SPONDYLITIS ASSOCIATION OF AMERICA
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Cite this
Plain text SPONDYLITIS ASSOCIATION OF AMERICA. furp.org, nonprofit organization profile, tax years 2013–2025. https://furp.org/org/spondylitis-association-of-america-953890767. Retrieved 2026-11-03.
APA furp.org. (n.d.). SPONDYLITIS ASSOCIATION OF AMERICA [Nonprofit organization profile; tax years 2013–2025]. Retrieved November 3, 2026, from https://furp.org/org/spondylitis-association-of-america-953890767
MLA “SPONDYLITIS ASSOCIATION OF AMERICA.” furp.org, tax years 2013–2025, https://furp.org/org/spondylitis-association-of-america-953890767. Accessed 3 Nov. 2026.
Retrieved 2026-11-03; covers tax years 2013–2025. Data: furp.org, CC BY 4.0.
2025 · Form 990 · revenue $2.2M · expenses $2.9M · assets $7.0M
- EIN
- 95-3890767
- Address
- 16430 VENTURA BLVD STE 300, ENCINO, CA 91436-2141
- Website
- WWW.SPONDYLITIS.ORG
- NTEE code
- G55Z
- Exempt type
- 501(c)(3): charitable, religious, educational, scientific or literary (corporation)
- Ruling date
- March 1984 (when the IRS recognized its exemption)
- IRS status
- Exempt (unconditional) (IRS Business Master File) IRS data ↗
- Tax-deductible donations
- Yes: listed in IRS Publication 78 (public charity) Pub 78 ↗
- Foundation status
- Public charity, 509(a)(2)
- Cross-check
- ProPublica Nonprofit Explorer
Mission
ADVANCING AND DIRECTLY SPONSORING SPONDYLOARTHRITIS RESEARCH, ACCELERATING DIAGNOSIS, SUPPORTING OPTIMUM TREATMENT FOR THE INDIVIDUAL, ADVANCING AWARENESS, AND PUBLIC AND HEALTH CARE PROFESSIONAL EDUCATION IN SPONDYLOARTHRITIS.
Each tax year counts once: when a return was amended, only the latest return for that period is used below (superseded returns stay listed, greyed, under Finances).
People paid by the organization
5 people paid across every filing: current people first, then by total pay from this organization. Organizations counts every nonprofit each person appears on.
| Name | Latest title | Years | Latest year pay | Total pay from here | Organizations |
|---|---|---|---|---|---|
| Cassie Shafer | CHIEF EXECUTIVE OFFICER | 2017-2025 | $269,743 | $1,907,287 | 1 |
| Richard Howard | CHIEF MISSION DELIVERY OFF | 2017-2025 | $151,002 | $1,058,326 | 1 |
| Diann Peterson | CHIEF PHILANTHROPY OFFICER | 2019-2025 | $155,317 | $935,789 | 1 |
| Jason Blackwell | DIRECTOR, BRAND EXPERIENCE | 2024-2025 | $119,959 | $238,367 | 1 |
| Laurie Savage (former) | EXEC DIRECTOR THROUGH 9/15/17 | 2013-2017 | $121,570 | $704,694 | 1 |
Officers and directors, no compensation reported
23 people listed on the returns with $0 (or no amount) in every compensation column: current people first. Hours are as filed on the latest return each person appears on.
| Name | Latest title | Years | Hrs/wk (latest) | Compensation | Organizations |
|---|---|---|---|---|---|
| Craig Gimbel | DIRECTOR | 2013-2025 | 1 | $0 reported | 1 |
| Eric Goldstein | TREASURER | 2013-2025 | 2 | $0 reported | 1 |
| Erin Arnold | DIRECTOR | 2023-2025 | 1 | $0 reported | 1 |
| Arnold M Podolsky | DIRECTOR | 2019-2025 | 1 | $0 reported | 1 |
| Jill Miller | SECRETARY | 2020-2025 | 2 | $0 reported | 1 |
| Michael Pianin | BOARD CHAIR | 2013-2025 | 2 | $0 reported | 1 |
| John D Reveille | DIRECTOR | 2013-2025 | 1 | $0 reported | 1 |
| James Rosenbaum | DIRECTOR | 2013-2025 | 1 | $0 reported | 1 |
| Paula Olsiewski | VICE CHAIR | 2013-2025 | 2 | $0 reported | 1 |
| Ellen Carroll (former) | SECRETARY | 2016-2024 | 2 | $0 reported | 1 |
| Mary Ann Poladian (former) | DIRECTOR | 2018-2023 | 1 | $0 reported | 1 |
| Judy Smith (former) | DIRECTOR | 2023 | 1 | $0 reported | 1 |
| Pamela Weiss (former) | DIRECTOR | 2020-2022 | 1 | $0 reported | 1 |
| Batya Bilmes Lemler (former) | DIRECTOR | 2020-2022 | 1 | $0 reported | 1 |
| David Hallegua (former) | DIRECTOR | 2013-2019 | 1 | $0 reported | 1 |
| Randall Sapadin (former) | DIRECTOR | 2013-2019 | 1 | $0 reported | 1 |
| Michael H Weisman (former) | DIRECTOR | 2019 | 1 | $0 reported | 1 |
| Charlotte K Howard (former) | SECRETARY | 2013-2018 | 2 | $0 reported | 1 |
| Leslie Kautz (former) | BOARD TREASURER | 2013-2017 | 2 | $0 reported | 1 |
| Bob Ulrich (former) | DIRECTOR | 2017 | 1 | $0 reported | 1 |
| Robert Ulrich (former) | Director | 2013-2016 | 1 | $0 reported | 1 |
| Daniel Clegg (former) | DIRECTOR | 2013-2014 | 1 | $0 reported | 1 |
| Hilary Wilson (former) | DIRECTOR | 2013 | 1 | $0 reported | 1 |
People by year
2025 · 13 people listed · 4 paid, $696K · 13 employees · 212 volunteers
| Name | Title | Hrs/wk | From org | From related | Other | Total | Orgs |
|---|---|---|---|---|---|---|---|
| CASSIE SHAFER | CHIEF EXECUTIVE OFFICER | 40 | $243,950 | $0 | $25,793 | $269,743 | 1 |
| DIANN PETERSON | CHIEF PHILANTHROPY OFFICER | 40 | $134,611 | $0 | $20,706 | $155,317 | 1 |
| RICHARD HOWARD | CHIEF MISSION DELIVERY OFF | 40 | $129,760 | $0 | $21,242 | $151,002 | 1 |
| JASON BLACKWELL | DIRECTOR, BRAND EXPERIENCE | 40 | $105,169 | $0 | $14,790 | $119,959 | 1 |
| CRAIG GIMBEL | DIRECTOR | 1 | $0 | $0 | $0 | $0 | 1 |
| ERIC GOLDSTEIN | TREASURER | 2 | $0 | $0 | $0 | $0 | 1 |
| ERIN ARNOLD | DIRECTOR | 1 | $0 | $0 | $0 | $0 | 1 |
| ARNOLD M PODOLSKY | DIRECTOR | 1 | $0 | $0 | $0 | $0 | 1 |
| JILL MILLER | SECRETARY | 2 | $0 | $0 | $0 | $0 | 1 |
| MICHAEL PIANIN | BOARD CHAIR | 2 | $0 | $0 | $0 | $0 | 1 |
| JOHN D REVEILLE | DIRECTOR | 1 | $0 | $0 | $0 | $0 | 1 |
| JAMES ROSENBAUM | DIRECTOR | 1 | $0 | $0 | $0 | $0 | 1 |
| PAULA OLSIEWSKI | VICE CHAIR | 2 | $0 | $0 | $0 | $0 | 1 |
2024 · 14 people listed · 4 paid, $701K · 14 employees · 204 volunteers
| Name | Title | Hrs/wk | From org | From related | Other | Total | Orgs |
|---|---|---|---|---|---|---|---|
| CASSIE SHAFER | CHIEF EXECUTIVE OFFICER | 40 | $238,637 | $0 | $23,849 | $262,486 | 1 |
| RICHARD HOWARD | CHIEF MISSION DELIVERY OFF | 40 | $145,211 | $0 | $19,979 | $165,190 | 1 |
| DIANN PETERSON | CHIEF PHILANTHROPY OFFICER | 40 | $136,026 | $0 | $18,835 | $154,861 | 1 |
| JASON BLACKWELL | DIRECTOR, BRAND EXPERIENCE & PUBLIC AFFAIRS | 40 | $104,646 | $0 | $13,762 | $118,408 | 1 |
| ELLEN CARROLL | SECRETARY | 2 | $0 | $0 | $0 | $0 | 1 |
| CRAIG GIMBEL | DIRECTOR | 1 | $0 | $0 | $0 | $0 | 1 |
| ERIC GOLDSTEIN | TREASURER | 2 | $0 | $0 | $0 | $0 | 1 |
| ERIN ARNOLD | DIRECTOR | 1 | $0 | $0 | $0 | $0 | 1 |
| ARNOLD M PODOLSKY | DIRECTOR | 1 | $0 | $0 | $0 | $0 | 1 |
| JILL MILLER | DIRECTOR | 1 | $0 | $0 | $0 | $0 | 1 |
| MICHAEL PIANIN | BOARD CHAIR | 2 | $0 | $0 | $0 | $0 | 1 |
| JOHN D REVEILLE | DIRECTOR | 1 | $0 | $0 | $0 | $0 | 1 |
| JAMES ROSENBAUM | DIRECTOR | 1 | $0 | $0 | $0 | $0 | 1 |
| PAULA OLSIEWSKI | VICE CHAIR | 2 | $0 | $0 | $0 | $0 | 1 |
2023 · 15 people listed · 3 paid, $488K · 15 employees · 182 volunteers
| Name | Title | Hrs/wk | From org | From related | Other | Total | Orgs |
|---|---|---|---|---|---|---|---|
| CASSIE SHAFER | CHIEF EXECUTIVE OFFICER | 40 | $217,717 | $0 | $14,250 | $231,967 | 1 |
| RICHARD HOWARD | CHIEF MISSION DELIVERY OFF | 40 | $118,225 | $0 | $16,748 | $134,973 | 1 |
| DIANN PETERSON | CHIEF PHILANTHROPY OFFICER | 40 | $103,811 | $0 | $17,669 | $121,480 | 1 |
| ELLEN CARROLL | SECRETARY | 2 | $0 | $0 | $0 | $0 | 1 |
| CRAIG GIMBEL | DIRECTOR | 1 | $0 | $0 | $0 | $0 | 1 |
| ERIC GOLDSTEIN | TREASURER | 2 | $0 | $0 | $0 | $0 | 1 |
| ERIN ARNOLD | DIRECTOR | 1 | $0 | $0 | $0 | $0 | 1 |
| ARNOLD M PODOLSKY | DIRECTOR | 1 | $0 | $0 | $0 | $0 | 1 |
| MARY ANN POLADIAN | DIRECTOR | 1 | $0 | $0 | $0 | $0 | 1 |
| JILL MILLER | DIRECTOR | 1 | $0 | $0 | $0 | $0 | 1 |
| MICHAEL PIANIN | BOARD CHAIR | 2 | $0 | $0 | $0 | $0 | 1 |
| JUDY SMITH | DIRECTOR | 1 | $0 | $0 | $0 | $0 | 1 |
| JOHN D REVEILLE | DIRECTOR | 1 | $0 | $0 | $0 | $0 | 1 |
| JAMES ROSENBAUM | DIRECTOR | 1 | $0 | $0 | $0 | $0 | 1 |
| PAULA OLSIEWSKI | VICE CHAIR | 2 | $0 | $0 | $0 | $0 | 1 |
2022 · 15 people listed · 3 paid, $542K · 15 employees · 165 volunteers
| Name | Title | Hrs/wk | From org | From related | Other | Total | Orgs |
|---|---|---|---|---|---|---|---|
| CASSIE SHAFER | CHIEF EXECUTIVE OFFICER | 40 | $246,302 | $0 | $6,489 | $252,791 | 1 |
| RICHARD HOWARD | CHIEF MISSION DELIVERY OFFICER | 40 | $133,238 | $0 | $14,691 | $147,929 | 1 |
| DIANN PETERSON | CHIEF PHILANTHROPY OFFICER | 40 | $123,563 | $0 | $17,848 | $141,411 | 1 |
| ELLEN CARROLL | SECRETARY | 2 | $0 | $0 | $0 | $0 | 1 |
| CRAIG GIMBEL | DIRECTOR | 1 | $0 | $0 | $0 | $0 | 1 |
| ERIC GOLDSTEIN | TREASURER | 2 | $0 | $0 | $0 | $0 | 1 |
| PAMELA WEISS | DIRECTOR | 1 | $0 | $0 | $0 | $0 | 1 |
| ARNOLD M PODOLSKY | DIRECTOR | 1 | $0 | $0 | $0 | $0 | 1 |
| MARY ANN POLADIAN | DIRECTOR | 1 | $0 | $0 | $0 | $0 | 1 |
| JILL MILLER | DIRECTOR | 1 | $0 | $0 | $0 | $0 | 1 |
| MICHAEL PIANIN | BOARD CHAIR | 2 | $0 | $0 | $0 | $0 | 1 |
| BATYA BILMES LEMLER | DIRECTOR | 1 | $0 | $0 | $0 | $0 | 1 |
| JOHN D REVEILLE | DIRECTOR | 1 | $0 | $0 | $0 | $0 | 1 |
| JAMES ROSENBAUM | DIRECTOR | 1 | $0 | $0 | $0 | $0 | 1 |
| PAULA OLSIEWSKI | VICE CHAIR | 2 | $0 | $0 | $0 | $0 | 1 |
2021 · 15 people listed · 3 paid, $486K · 13 employees · 130 volunteers
| Name | Title | Hrs/wk | From org | From related | Other | Total | Orgs |
|---|---|---|---|---|---|---|---|
| CASSIE SHAFER | CHIEF EXECUTIVE OFFICER | 40 | $226,968 | $0 | $6,207 | $233,175 | 1 |
| DIANN PETERSON | CHIEF PHILANTHROPY OFFICER | 40 | $115,323 | $0 | $15,868 | $131,191 | 1 |
| RICHARD HOWARD | CHIEF MISSION ADVANCEMENT | 40 | $108,031 | $0 | $14,046 | $122,077 | 1 |
| ELLEN CARROLL | SECRETARY | 2 | $0 | $0 | $0 | $0 | 1 |
| CRAIG GIMBEL | DIRECTOR | 1 | $0 | $0 | $0 | $0 | 1 |
| ERIC GOLDSTEIN | TREASURER | 2 | $0 | $0 | $0 | $0 | 1 |
| PAMELA WEISS | DIRECTOR | 1 | $0 | $0 | $0 | $0 | 1 |
| ARNOLD M PODOLSKY | DIRECTOR | 1 | $0 | $0 | $0 | $0 | 1 |
| MARY ANN POLADIAN | DIRECTOR | 1 | $0 | $0 | $0 | $0 | 1 |
| JILL MILLER | DIRECTOR | 1 | $0 | $0 | $0 | $0 | 1 |
| MICHAEL PIANIN | BOARD CHAIR | 2 | $0 | $0 | $0 | $0 | 1 |
| BATYA BILMES LEMLER | DIRECTOR | 1 | $0 | $0 | $0 | $0 | 1 |
| JOHN D REVEILLE | DIRECTOR | 1 | $0 | $0 | $0 | $0 | 1 |
| JAMES ROSENBAUM | DIRECTOR | 1 | $0 | $0 | $0 | $0 | 1 |
| PAULA OLSIEWSKI | VICE CHAIR | 2 | $0 | $0 | $0 | $0 | 1 |
2020 · 15 people listed · 3 paid, $443K · 12 employees · 115 volunteers
| Name | Title | Hrs/wk | From org | From related | Other | Total | Orgs |
|---|---|---|---|---|---|---|---|
| CASSIE SHAFER | CHIEF EXECUTIVE OFFICER | 40 | $199,955 | $0 | $5,994 | $205,949 | 1 |
| DIANN PETERSON | CHIEF PHILANTHROPY OFFICER | 40 | $108,895 | $0 | $12,946 | $121,841 | 1 |
| RICHARD HOWARD | CHIEF MISSION ADVANCEMENT OFFICER | 40 | $112,128 | $0 | $3,360 | $115,488 | 1 |
| ELLEN CARROLL | SECRETARY | 2 | $0 | $0 | $0 | $0 | 1 |
| CRAIG GIMBEL | DIRECTOR | 1 | $0 | $0 | $0 | $0 | 1 |
| ERIC GOLDSTEIN | TREASURER | 2 | $0 | $0 | $0 | $0 | 1 |
| PAMELA WEISS | DIRECTOR | 1 | $0 | $0 | $0 | $0 | 1 |
| ARNOLD M PODOLSKY | DIRECTOR | 1 | $0 | $0 | $0 | $0 | 1 |
| MARY ANN POLADIAN | DIRECTOR | 1 | $0 | $0 | $0 | $0 | 1 |
| JILL MILLER | DIRECTOR | 1 | $0 | $0 | $0 | $0 | 1 |
| MICHAEL PIANIN | BOARD CHAIR | 2 | $0 | $0 | $0 | $0 | 1 |
| BATYA BILMES LEMLER | DIRECTOR | 1 | $0 | $0 | $0 | $0 | 1 |
| JOHN D REVEILLE | DIRECTOR | 1 | $0 | $0 | $0 | $0 | 1 |
| JAMES ROSENBAUM | DIRECTOR | 1 | $0 | $0 | $0 | $0 | 1 |
| PAULA OLSIEWSKI | VICE CHAIR | 2 | $0 | $0 | $0 | $0 | 1 |
2019 · 15 people listed · 3 paid, $419K · 13 employees · 115 volunteers
| Name | Title | Hrs/wk | From org | From related | Other | Total | Orgs |
|---|---|---|---|---|---|---|---|
| CASSIE SHAFER | CHIEF EXECUTIVE OFFICER | 40 | $189,454 | $0 | $6,438 | $195,892 | 1 |
| RICHARD HOWARD | CHIEF MISSION ADVANCEMENT OFFICER | 40 | $110,471 | $0 | $3,312 | $113,783 | 1 |
| DIANN PETERSON | CHIEF PHILANTHROPY OFFICER | 40 | $106,424 | $0 | $3,264 | $109,688 | 1 |
| ELLEN CARROLL | SECRETARY | 2 | $0 | $0 | $0 | $0 | 1 |
| CRAIG GIMBEL | DIRECTOR | 1 | $0 | $0 | $0 | $0 | 1 |
| ERIC GOLDSTEIN | VICE CHAIR, TREASURER | 2 | $0 | $0 | $0 | $0 | 1 |
| DAVID HALLEGUA | DIRECTOR | 1 | $0 | $0 | $0 | $0 | 1 |
| ARNOLD M PODOLSKY | DIRECTOR | 1 | $0 | $0 | $0 | $0 | 1 |
| MARY ANN POLADIAN | DIRECTOR | 1 | $0 | $0 | $0 | $0 | 1 |
| PAULA OLSIEWSKI | VICE CHAIR | 2 | $0 | $0 | $0 | $0 | 1 |
| MICHAEL PIANIN | BOARD CHAIR | 2 | $0 | $0 | $0 | $0 | 1 |
| RANDALL SAPADIN | DIRECTOR | 1 | $0 | $0 | $0 | $0 | 1 |
| JOHN D REVEILLE | DIRECTOR | 1 | $0 | $0 | $0 | $0 | 1 |
| JAMES ROSENBAUM | DIRECTOR | 1 | $0 | $0 | $0 | $0 | 1 |
| MICHAEL H WEISMAN | DIRECTOR | 1 | $0 | $0 | $0 | $0 | 1 |
2018 · 12 people listed · 1 paid, $201K · 13 employees · 115 volunteers
| Name | Title | Hrs/wk | From org | From related | Other | Total | Orgs |
|---|---|---|---|---|---|---|---|
| CASSIE SHAFER | CHIEF EXECUTIVE OFFICER | 40 | $197,776 | $0 | $3,509 | $201,285 | 1 |
| ELLEN CARROLL | DIRECTOR | 1 | $0 | $0 | $0 | $0 | 1 |
| CRAIG GIMBEL | DIRECTOR | 1 | $0 | $0 | $0 | $0 | 1 |
| ERIC GOLDSTEIN | VICE CHAIR, TREASURER | 2 | $0 | $0 | $0 | $0 | 1 |
| DAVID HALLEGUA | DIRECTOR | 1 | $0 | $0 | $0 | $0 | 1 |
| CHARLOTTE K HOWARD | SECRETARY | 2 | $0 | $0 | $0 | $0 | 1 |
| MARY ANN POLADIAN | DIRECTOR | 1 | $0 | $0 | $0 | $0 | 1 |
| PAULA OLSIEWSKI | DIRECTOR | 1 | $0 | $0 | $0 | $0 | 1 |
| MICHAEL PIANIN | BOARD CHAIR | 2 | $0 | $0 | $0 | $0 | 1 |
| RANDALL SAPADIN | DIRECTOR | 1 | $0 | $0 | $0 | $0 | 1 |
| JOHN D REVEILLE | DIRECTOR | 1 | $0 | $0 | $0 | $0 | 1 |
| JAMES ROSENBAUM | DIRECTOR | 1 | $0 | $0 | $0 | $0 | 1 |
2017 · 15 people listed · 3 paid, $283K · 12 employees · 115 volunteers
| Name | Title | Hrs/wk | From org | From related | Other | Total | Orgs |
|---|---|---|---|---|---|---|---|
| LAURIE SAVAGE | EXEC DIRECTOR THROUGH 9/15/17 | 40 | $121,498 | $0 | $72 | $121,570 | 1 |
| RICHARD HOWARD | CHIEF MISSION ADVANCEMENT OFFICER | 40 | $100,200 | $0 | $7,684 | $107,884 | 1 |
| CASSIE SHAFER | CHIEF EXECUTIVE OFFICER | 40 | $53,958 | $0 | $41 | $53,999 | 1 |
| ELLEN CARROLL | DIRECTOR | 1 | $0 | $0 | $0 | $0 | 1 |
| CRAIG GIMBEL | DIRECTOR | 1 | $0 | $0 | $0 | $0 | 1 |
| ERIC GOLDSTEIN | VICE CHAIR | 2 | $0 | $0 | $0 | $0 | 1 |
| DAVID HALLEGUA | DIRECTOR | 1 | $0 | $0 | $0 | $0 | 1 |
| CHARLOTTE K HOWARD | SECRETARY | 2 | $0 | $0 | $0 | $0 | 1 |
| LESLIE KAUTZ | BOARD TREASURER | 2 | $0 | $0 | $0 | $0 | 1 |
| PAULA OLSIEWSKI | DIRECTOR | 1 | $0 | $0 | $0 | $0 | 1 |
| MICHAEL PIANIN | BOARD CHAIR | 2 | $0 | $0 | $0 | $0 | 1 |
| RANDALL SAPADIN | DIRECTOR | 1 | $0 | $0 | $0 | $0 | 1 |
| BOB ULRICH | DIRECTOR | 1 | $0 | $0 | $0 | $0 | 1 |
| JOHN D REVEILLE | DIRECTOR | 1 | $0 | $0 | $0 | $0 | 1 |
| JAMES ROSENBAUM | DIRECTOR | 1 | $0 | $0 | $0 | $0 | 1 |
2016 · 11 people listed · 1 paid, $152K · 8 employees · 115 volunteers
| Name | Title | Hrs/wk | From org | From related | Other | Total | Orgs |
|---|---|---|---|---|---|---|---|
| LAURIE SAVAGE | Executive Director | 40 | $150,961 | $0 | $1,319 | $152,280 | 1 |
| CHARLOTTE K HOWARD | BOARD CHAIR | 2 | $0 | $0 | $0 | $0 | 1 |
| LESLIE KAUTZ | BOARD TREASURER | 2 | $0 | $0 | $0 | $0 | 1 |
| MICHAEL PIANIN | BOARD VICECHAIR | 2 | $0 | $0 | $0 | $0 | 1 |
| ERIC GOLDSTEIN | BOARD SECRETARY | 2 | $0 | $0 | $0 | $0 | 1 |
| DAVID HALLEGUA | Director | 1 | $0 | $0 | $0 | $0 | 1 |
| PAULA OLSIEWSKI | Director | 1 | $0 | $0 | $0 | $0 | 1 |
| RANDALL SAPADIN | Director | 1 | $0 | $0 | $0 | $0 | 1 |
| ROBERT ULRICH | Director | 1 | $0 | $0 | $0 | $0 | 1 |
| CRAIG GIMBEL | DIRECTOR | 1 | $0 | $0 | $0 | $0 | 1 |
| Ellen Carroll | Director | 1 | $0 | $0 | $0 | $0 | 1 |
2015 · 10 people listed · 1 paid, $145K · 9 employees · 455 volunteers
| Name | Title | Hrs/wk | From org | From related | Other | Total | Orgs |
|---|---|---|---|---|---|---|---|
| LAURIE SAVAGE | Executive Director | 40 | $143,461 | $0 | $1,410 | $144,871 | 1 |
| CHARLOTTE K HOWARD | BOARD CHAIR | 2 | $0 | $0 | $0 | $0 | 1 |
| LESLIE KAUTZ | BOARD TREASURER | 2 | $0 | $0 | $0 | $0 | 1 |
| MICHAEL PIANIN | BOARD VICECHAIR | 2 | $0 | $0 | $0 | $0 | 1 |
| ERIC GOLDSTEIN | BOARD SECRETARY | 2 | $0 | $0 | $0 | $0 | 1 |
| DAVID HALLEGUA | Director | 1 | $0 | $0 | $0 | $0 | 1 |
| PAULA OLSIEWSKI | Director | 1 | $0 | $0 | $0 | $0 | 1 |
| RANDALL SAPADIN | Director | 1 | $0 | $0 | $0 | $0 | 1 |
| ROBERT ULRICH | Director | 1 | $0 | $0 | $0 | $0 | 1 |
| CRAIG GIMBEL | DIRECTOR | 1 | $0 | $0 | $0 | $0 | 1 |
2014 · 11 people listed · 1 paid, $146K · 9 employees · 485 volunteers
| Name | Title | Hrs/wk | From org | From related | Other | Total | Orgs |
|---|---|---|---|---|---|---|---|
| LAURIE SAVAGE | CEO | 40 | $137,500 | $0 | $8,910 | $146,410 | 1 |
| CHARLOTTE K HOWARD | BOARD CHAIR | 2 | $0 | $0 | $0 | $0 | 1 |
| LESLIE KAUTZ | BOARD TREASURER | 2 | $0 | $0 | $0 | $0 | 1 |
| MICHAEL PIANIN | BOARD VICECHAIR | 2 | $0 | $0 | $0 | $0 | 1 |
| ERIC GOLDSTEIN | BOARD SECRETARY | 2 | $0 | $0 | $0 | $0 | 1 |
| DANIEL CLEGG | DIRECTOR | 1 | $0 | $0 | $0 | $0 | 1 |
| CRAIG GIMBEL | DIRECTOR | 1 | $0 | $0 | $0 | $0 | 1 |
| DAVID HALLEGUA | Director | 1 | $0 | $0 | $0 | $0 | 1 |
| PAULA OLSIEWSKI | Director | 1 | $0 | $0 | $0 | $0 | 1 |
| RANDALL SAPADIN | Director | 1 | $0 | $0 | $0 | $0 | 1 |
| ROBERT ULRICH | Director | 1 | $0 | $0 | $0 | $0 | 1 |
2013 · 14 people listed · 1 paid, $140K · 10 employees · 460 volunteers
| Name | Title | Hrs/wk | From org | From related | Other | Total | Orgs |
|---|---|---|---|---|---|---|---|
| LAURIE SAVAGE | CEO | 40 | $131,707 | $0 | $7,856 | $139,563 | 1 |
| CRAIG GIMBEL | CHAIRMAN | 2 | $0 | $0 | $0 | $0 | 1 |
| CHARLOTTE K HOWARD | VICE CHAIR | 2 | $0 | $0 | $0 | $0 | 1 |
| LESLIE KAUTZ | TREASURER | 2 | $0 | $0 | $0 | $0 | 1 |
| MICHAEL PIANIN | SECRETARY | 1 | $0 | $0 | $0 | $0 | 1 |
| DANIEL CLEGG | MSAB CHAIR | 2 | $0 | $0 | $0 | $0 | 1 |
| ERIC GOLDSTEIN | DIRECTOR | 1 | $0 | $0 | $0 | $0 | 1 |
| DAVID HALLEGUA | DIRECTOR | 1 | $0 | $0 | $0 | $0 | 1 |
| PAULA OLSIEWSKI | DIRECTOR | 1 | $0 | $0 | $0 | $0 | 1 |
| JOHN D REVEILLE | DIRECTOR | 1 | $0 | $0 | $0 | $0 | 1 |
| JAMES ROSENBAUM | DIRECTOR | 1 | $0 | $0 | $0 | $0 | 1 |
| RANDALL SAPADIN | DIRECTOR | 1 | $0 | $0 | $0 | $0 | 1 |
| ROBERT ULRICH | DIRECTOR | 1 | $0 | $0 | $0 | $0 | 1 |
| HILARY WILSON | DIRECTOR | 1 | $0 | $0 | $0 | $0 | 1 |
Highest-paid independent contractors
2016 · 1 contractor · $207K
| Name | Location | Service | Paid |
|---|---|---|---|
| Fortuitas inc | VALENCIA, CA | WEBSITE UPGRADE | $207,129 |
Who the money went to
Grants this organization reported paying: Schedule I Part II of the Form 990, or the grants-paid list on the 990-PF. Open a year for every recipient. Recipients link to their own page when the grant names an EIN we have (990-PF grants list no EIN, so those link only on an exact, unique name and state). Grants to individuals are counted; their names are not shown.
2025 · 6 grants to organizations · $350K
Listed grants add up to $349,838; the return's “grants paid” expense line says $668,476. Returns can differ here (grants paid vs. accrued, items listed elsewhere); check the filing.
2024 · 4 grants to organizations · $198K
2023 · 2 grants to organizations · $159K
2022 · 1 grant to organizations · $30K
2021 · 8 grants to organizations · $437K
Listed grants add up to $436,878; the return's “grants paid” expense line says $451,878. Returns can differ here (grants paid vs. accrued, items listed elsewhere); check the filing.
2020 · 2 grants to organizations · $123K
2019 · 4 grants to organizations · $122K
2018 · 3 grants to organizations · $160K
2017 · 8 grants to organizations · $211K
2016 · 1 grant to organizations · $50K
2015 · 3 grants to organizations · $60K
2014 · 3 grants to organizations · $135K
2013 · 3 grants to organizations · $125K
Listed grants add up to $125,000; the return's “grants paid” expense line says $150,000. Returns can differ here (grants paid vs. accrued, items listed elsewhere); check the filing.
Negative amounts are returned or refunded grants; they are listed last and left out of the totals of grants paid.
Who gave
Contributor names are not public for this form type.
Public charities filing Form 990 or 990-EZ report large donors on Schedule B, but the IRS withholds their names and addresses from public copies. Private foundations (990-PF) are different: their contributors are public.
Finances
Newest first. Each filing: its name on one row, its figures on the row beneath. Greyed filings are superseded by a later return for the same period and are left out everywhere else on this page.
| Revenue | Expenses | Assets | Net assets | Contributions | Program revenue | Officer pay | Employees | Volunteers |
|---|---|---|---|---|---|---|---|---|
| 2025 · Form 990 | ||||||||
| $2,164,525 | $2,947,419 | $6,995,834 | $6,475,387 | $1,948,000 | $3,617 | $265,783 | 13 | 212 |
| 2024 · Form 990 | ||||||||
| $2,024,097 | $2,463,539 | $7,621,545 | $7,206,844 | $1,602,575 | $6,469 | $268,676 | 14 | 204 |
| 2023 · Form 990 | ||||||||
| $2,781,548 | $2,615,783 | $8,085,006 | $7,703,244 | $2,545,839 | $12,793 | $249,822 | 15 | 182 |
| 2022 · Form 990 | ||||||||
| $2,348,536 | $2,273,938 | $7,830,002 | $7,416,636 | $2,200,809 | $5,120 | $248,226 | 15 | 165 |
| 2021 · Form 990 | ||||||||
| $5,570,571 | $2,773,309 | $7,928,906 | $7,346,015 | $5,505,466 | $4,877 | $247,357 | 13 | 130 |
| 2020 · Form 990 | ||||||||
| $3,059,287 | $2,029,757 | $4,942,936 | $4,717,832 | $2,996,504 | $3,551 | $205,949 | 12 | 115 |
| 2019 · Form 990 | ||||||||
| $2,212,287 | $2,048,010 | $4,049,261 | $3,662,192 | $2,181,281 | $7,647 | $199,214 | 13 | 115 |
| 2018 · Form 990 | ||||||||
| $2,028,110 | $2,105,060 | $3,526,569 | $3,456,858 | $1,941,665 | $8,517 | $196,914 | 13 | 115 |
| 2017 · Form 990 | ||||||||
| $2,682,420 | $1,835,227 | $3,559,276 | $3,504,463 | $2,635,511 | $5,375 | $308,670 | 12 | 115 |
| 2016 · Form 990 | ||||||||
| $1,707,740 | $1,301,054 | $2,780,357 | $2,672,006 | $1,666,271 | $6,118 | $157,884 | 8 | 115 |
| 2015 · Form 990 | ||||||||
| $1,367,756 | $1,356,084 | $2,309,459 | $2,216,951 | $1,334,632 | $8,551 | $148,910 | 9 | 455 |
| 2014 · Form 990 | ||||||||
| $1,811,703 | $1,306,914 | $2,234,186 | $2,201,290 | $1,776,812 | $17,201 | $146,545 | 9 | 485 |
| 2013 · Form 990 | ||||||||
| $1,351,959 | $1,219,092 | $1,968,387 | $1,694,111 | $1,324,005 | $16,020 | $143,326 | 10 | 460 |
Funders of this organization
51 grantors reported grants to this organization, $2,962,689 in all, tax years 2010 to 2025; the 25 largest shown (all 51). Exact: the grantor wrote this organization's EIN. Fuzzy: the grantor wrote only a name (foundations' 990-PF has no EIN field), matched to the same or a near-identical name in the same state; the name as filed is shown. From the latest return for each grantor and year, so amended returns aren't counted twice. CSV
| Grantor | Type | Match | Years given | Grants | Total | Latest year | Latest year's amount | Grants |
|---|---|---|---|---|---|---|---|---|
| SIMON FAMILY FOUNDATION | Private foundation | Fuzzy filed as “SPONDYLITIS ASSOCIATION OF AMERICA” | 2018-2025 | 8 | $1,275,000 | 2025 | $200,000 | show |
| JEAN & E FLOYD KVAMME FOUNDATION | Private foundation | Fuzzy filed as “SPONDYLITIS ASSOCIATION OF AMERICA” | 2012-2015, 2020-2024 | 9 | $300,000 | 2024 | $25,000 | show |
| FIDELITY INVESTMENTS CHARITABLE GIFT FUND | DAF sponsor | Exact | 2016-2024 | 9 | $277,320 | 2024 | $35,600 | show |
| ROGER KLAUBER FAMILY FOUNDATION INC | Private foundation | Fuzzy filed as “SPONDYLITIS ASSOCIATION OF AMERICA” | 2015-2024 | 10 | $191,000 | 2024 | $15,000 | show |
| HIGGINS FAMILY CHARITABLE FOUNDATION | Private foundation | Fuzzy filed as “SPONDYLITIS ASSOCIATION OF AMERICA” | 2019-2024 | 6 | $170,000 | 2024 | $35,000 | show |
| DONOR ADVISED CHARITABLE GIVING | DAF sponsor | Exact | 2016-2024 | 9 | $169,775 | 2024 | $18,225 | show |
| UNITED WAY SUNCOAST INC | DAF sponsor | Exact | 2010-2013 | 4 | $137,040 | 2013 | $40,000 | show |
| AMERICAN ONLINE GIVING FOUNDATION INC | DAF sponsor | Exact | 2019-2025 | 7 | $118,264 | 2025 | $10,289 | show |
| FORGOOD INC | DAF sponsor | Exact | 2012-2017 | 6 | $48,188 | 2017 | $5,896 | show |
| THE CALIFORNIA ENDOWMENT | Private foundation | Fuzzy filed as “SPONDYLITIS ASSOCIATION OF AMERICA” | 2016 | 1 | $24,000 | 2016 | $24,000 | show |
| MURDY FOUNDATION | Private foundation | Fuzzy filed as “SPONDYLITIS ASSOCIATION OF AMERICA” | 2019-2024 | 6 | $23,000 | 2024 | $3,000 | show |
| AMAZONSMILE FOUNDATION | Private foundation | Fuzzy filed as “SPONDYLITIS ASSOCIATION OF AMERICA” | 2020-2023 | 4 | $22,044 | 2023 | $4,498 | show |
| MORGAN FAMILY FOUNDATION | Private foundation | Fuzzy filed as “SPONDYLITIS ASSOCIATION OF AMERICA” | 2020 | 1 | $20,000 | 2020 | $20,000 | show |
| THISTLE & ROSE FOUNDATION | Private foundation | Fuzzy filed as “SPONDYLITIS ASSOCIATION OF AMERICA” | 2014-2017, 2020-2022 | 7 | $19,000 | 2022 | $5,000 | show |
| NATIONAL PHILANTHROPIC TR | DAF sponsor | Exact | 2022, 2024 | 2 | $17,750 | 2024 | $7,750 | show |
| PAYPAL CHARITABLE GIVING FUND | DAF sponsor | Exact | 2023-2024 | 2 | $17,563 | 2024 | $11,547 | show |
| THE POCONO CHARITABLE FOUNDATION | Private foundation | Fuzzy filed as “Spondylitis Association of America”, “SPONDYLITIS ASSOCIATION OF AMERICA” | 2015-2017, 2019 | 4 | $17,000 | 2019 | $5,000 | show |
| GREATER HOUSTON COMMUNITY FOUNDATION | DAF sponsor | Exact | 2022 | 1 | $11,400 | 2022 | $11,400 | show |
| STUPP BROS BRIDGE & IRON CO FOUNDATION | Private foundation | Fuzzy filed as “SPONDYLITIS ASSOCIATION OF AMERICA” | 2019-2023 | 5 | $10,500 | 2023 | $1,000 | show |
| CONCORDIA LUTHERAN MINISTRIESFOUNDATION | Public charity | Exact | 2016 | 1 | $10,000 | 2016 | $10,000 | show |
| YOUNG FOUNDATION | Private foundation | Fuzzy filed as “Spondylitis Association of America” | 2013-2023 | 11 | $9,800 | 2023 | $750 | show |
| MACINNIS FAMILY FOUNDATION | Private foundation | Fuzzy filed as “SPONDYLITIS ASSOCIATION OF AMERICA” | 2013-2023 | 11 | $9,250 | 2023 | $250 | show |
| AMERICAN ENDOWMENT FOUNDATION | DAF sponsor | Exact | 2016 | 1 | $8,291 | 2016 | $8,291 | show |
| JEWISH COMMUNAL FUND | DAF sponsor | Exact | 2013 | 1 | $8,000 | 2013 | $8,000 | show |
| THE CHICAGO COMMUNITY TRUST | DAF sponsor | Exact | 2021 | 1 | $6,375 | 2021 | $6,375 | show |
Nearby + Similar BETA
Organizations like this one: what they do and who they are linked to
Same category: NTEE code and revenue
Ranked without any AI: same NTEE code first, then the same NTEE group; then revenue within 2x, 5x or 10x; then the same state; then similar name and mission text. Same state only · More (100)
| Organization | State | NTEE | Latest revenue | Latest expenses | Top-paid title | Top pay | Why similar |
|---|---|---|---|---|---|---|---|
| SPINA BIFIDA ASSOCIATION OF AMERICA | VA | G55 | $1,911,274 | $1,859,428 | PRESIDENT AND CEO | $163,111 | Same NTEE code G55, revenue within 2x, similar mission |
| AMERICAN SPINAL INJURY ASSOCIATION | VA | G55 | $1,000,785 | $1,239,785 | Past President | $0 | Same NTEE code G55, revenue within 5x, similar name |
| SPINA BIFIDA ASSOCIATION OF WESTERN PENNSYLVANIA | PA | G55 | $762,965 | $915,229 | Chairman | $0 | Same NTEE code G55, revenue within 5x |
| ACADEMY OF SPINAL CORD INJURY PROFESSIONALS INC | IL | G55 | $627,027 | $645,133 | EXECUTIVE VICE PRESIDENT | $24,000 | Same NTEE code G55, revenue within 5x |
| ILLINOIS SPINA BIFIDA ASSOCIATION | IL | G55 | $268,168 | $308,580 | Executive Director | $106,957 | Same NTEE code G55, revenue within 10x |
| SPINA BIFIDA ASSOCIATION OF GREATER NEW ENGLAND INC | MA | G55 | $276,967 | $266,672 | EXECUTIVE DIRECTOR | $75,070 | Same NTEE code G55, revenue within 10x |
| SPINAL CORD SOCIETY | MN | G55 | $260,674 | $290,238 | VICE PRESIDE | $52,735 | Same NTEE code G55, revenue within 10x |
| SPINAL CORD INJURY NETWORK INTERNATIONAL | CA | G55 | $366 | $46,432 | President & CEO | $0 | Same NTEE code G55, revenue differs more than 10x, same state |
| SPINA BIFIDA ASSOCIATION OF ARIZONA INC | AZ | G55 | $86,223 | $104,701 | EXECUTIVE DIRECTOR | $47,846 | Same NTEE code G55, revenue differs more than 10x |
| SPINA BIFIDA ASSOCIATION OF KENTUCKY INC | KY | G55 | $180,920 | $175,004 | EXECUTIVE DIRECTOR | $60,000 | Same NTEE code G55, revenue differs more than 10x |
| CENTRAL JERSEY SPINAL CORD ASSOCIATION INC | NJ | G55 | $3,098 | $2,354 | PRESIDENT | $0 | Same NTEE code G55, revenue differs more than 10x |
| SPINA BIFIDA ASSOC OF JACKSONVILLE INC | FL | G55 | $97,737 | $254,121 | EXECUTIVE DI | $37,921 | Same NTEE code G55, revenue differs more than 10x |
| LUNG CANCER FOUNDATION OF AMERICA | CA | G12 | $2,800,681 | $2,145,537 | EXECUTIVE DIRECTOR | $214,770 | Same NTEE group G, revenue within 2x, same state |
| AMERICAN GLAUCOME SOCIETY INC | CA | G41 | $2,520,856 | $2,416,903 | PRES THRU 3/2024 / PAST PRESIDENT | $0 | Same NTEE group G, revenue within 2x, same state |
| UNITED CEREBRAL PALSY ASSOCIATION OF SAN DIEGO COUNTY | CA | G20 | $3,392,257 | $3,264,062 | Executive Direc | $131,805 | Same NTEE group G, revenue within 2x, same state |
| AUTISM SOCIETY INLAND EMPIRE INC | CA | G84 | $1,332,046 | $1,301,125 | Vice President | $0 | Same NTEE group G, revenue within 2x, same state, similar mission |
| UNITED CEREBRAL PALSY ASSOCIATION INC OF STANISLAUS COUNTY | CA | G20 | $3,014,270 | $2,784,386 | EXECUTIVE DIRECTOR | $97,641 | Same NTEE group G, revenue within 2x, same state |
| ALZHEIMERS PREVENTION AND REVERSAL PROJECT INC | CA | G83 | $2,978,341 | $2,957,367 | PRESIDENT | $0 | Same NTEE group G, revenue within 2x, same state |
| INTL SOCIETY OF ARTHROSCOPY KNEE SURGERY AND ORTHOPAEDIC SPORTS MED | CA | G9B | $2,187,602 | $2,754,983 | CEO-EXECUTIVE DIRECTOR | $385,684 | Same NTEE group G, revenue within 2x, same state |
| FOUNDATION FOR UCP OF GREATER SACRAMENTO | CA | G50 | $3,047,375 | $203,788 | PRESIDENT / CEO | $127,995 | Same NTEE group G, revenue within 2x, same state |
| SIERRA FOOTHILLS AIDS FOUNDATION | CA | G81 | $1,322,427 | $1,146,831 | EXECUTIVE DI | $102,500 | Same NTEE group G, revenue within 2x, same state |
| NATIONAL FOUNDATION FOR AUTISM RESEARCH | CA | G99 | $2,075,570 | $1,940,824 | Executive Dir. | $169,916 | Same NTEE group G, revenue within 2x, same state |
| VITAL ACCESS CARE FOUNDATION | CA | G30 | $3,252,848 | $2,205,208 | EMPLOYEE | $115,459 | Same NTEE group G, revenue within 2x, same state |
| WEST FRESNO HEALTH CARE COALITION | CA | G90 | $2,135,648 | $2,817,784 | EXECUTIVE DIRECTOR | $86,010 | Same NTEE group G, revenue within 2x, same state |
| THE DOWN SYNDROME CONNECTION OF THE BAY AREA | CA | G25 | $1,420,299 | $1,364,535 | Executive Dir. | $123,786 | Same NTEE group G, revenue within 2x, same state |
Who funds organizations like this
Grantors that funded the 100 most similar organizations. Ranked by total given to them. Foundations (990-PF) and donor-advised fund sponsors only. Same matching as Funders above (by EIN, or by name for foundations).
The full list · all similar organizations
Where the money went
Every expense line on each return, biggest first: Form 990 Part IX (with its program, management and fundraising columns), 990-EZ Part I, or 990-PF Part I. Event marks lines the organization itself describes as events. “Events” in each summary adds those lines, conferences and meetings, and the direct costs of fundraising events. Unusual is not the same as improper. Many of these patterns have ordinary explanations. Check the filing.
2025 · Form 990 · $2,947,419 spent · pay $1,609,104 · grants $668,476 · events $42,103
| Line | As described | Total | Program | Management | Fundraising | Share |
|---|---|---|---|---|---|---|
| Other salaries and wages | $1,080,769 | $858,706 | $177,238 | $44,825 | 36.7% | |
| Grants to US organizations and governments | $349,838 | $349,838 | - | - | 11.9% | |
| Grants outside the US | $318,638 | $318,638 | - | - | 10.8% | |
| Pay: officers, directors, trustees, key employees | $265,783 | $186,048 | $53,157 | $26,578 | 9.0% | |
| Other employee benefits | $133,979 | $105,142 | $22,504 | $6,333 | 4.5% | |
| Office expenses | $108,889 | $70,957 | $36,213 | $1,719 | 3.7% | |
| Fees: other services | $107,567 | $106,957 | - | $610 | 3.6% | |
| Travel | $106,945 | $99,753 | - | $7,192 | 3.6% | |
| Payroll taxes | $99,333 | $77,188 | $16,953 | $5,192 | 3.4% | |
| Fees: accounting | $77,829 | - | $77,829 | - | 2.6% | |
| Occupancy | $55,101 | $38,564 | $13,244 | $3,293 | 1.9% | |
| Other (as described) | POSTAGE | $50,437 | $28,721 | $20,555 | $1,161 | 1.7% |
| Other (as described) | PRINTING | $47,330 | $38,879 | $8,451 | $0 | 1.6% |
| Information technology | $44,202 | $37,902 | $3,825 | $2,475 | 1.5% | |
| Conferences, conventions and meetings | $42,103 | $42,029 | - | $74 | 1.4% | |
| Pension plan contributions | $29,240 | $23,266 | $4,790 | $1,184 | 1.0% | |
| Other (as described) | WRITING AND DESIGN | $14,694 | $13,478 | $0 | $1,216 | 0.5% |
| Depreciation and depletion | $8,126 | $4,856 | $2,120 | $1,150 | 0.3% | |
| Other (as described) | STATE LICENSING | $3,791 | $3,791 | - | - | 0.1% |
| Fees: legal | $2,825 | - | $2,825 | - | 0.1% | |
| Total | $2,947,419 | 100% |
2024 · Form 990 · $2,463,539 spent · pay $1,611,842 · grants $197,850 · events $56,690
| Line | As described | Total | Program | Management | Fundraising | Share |
|---|---|---|---|---|---|---|
| Other salaries and wages | $1,088,407 | $864,992 | $177,668 | $45,747 | 44.2% | |
| Pay: officers, directors, trustees, key employees | $268,676 | $188,073 | $53,735 | $26,868 | 10.9% | |
| Grants to US organizations and governments | $197,850 | $197,850 | - | - | 8.0% | |
| Other employee benefits | $126,946 | $101,801 | $19,536 | $5,609 | 5.2% | |
| Office expenses | $113,537 | $77,108 | $34,876 | $1,553 | 4.6% | |
| Payroll taxes | $97,984 | $76,328 | $16,534 | $5,122 | 4.0% | |
| Fees: other services | $96,882 | $96,882 | - | - | 3.9% | |
| Fees: accounting | $89,440 | - | $76,792 | $12,648 | 3.6% | |
| Travel | $69,120 | $57,322 | - | $11,798 | 2.8% | |
| Conferences, conventions and meetings | $56,690 | $56,690 | - | - | 2.3% | |
| Occupancy | $53,350 | $37,635 | $12,540 | $3,175 | 2.2% | |
| Information technology | $51,387 | $45,287 | $3,750 | $2,350 | 2.1% | |
| Other (as described) | POSTAGE | $44,324 | $27,527 | $16,782 | $15 | 1.8% |
| Other (as described) | PRINTING | $39,243 | $30,602 | $8,641 | - | 1.6% |
| Pension plan contributions | $29,829 | $23,774 | $4,998 | $1,057 | 1.2% | |
| Depreciation and depletion | $17,652 | $13,587 | $2,680 | $1,385 | 0.7% | |
| Other (as described) | WRITING AND DESIGN | $17,345 | $16,057 | - | $1,288 | 0.7% |
| Other (as described) | STATE LICENSING | $4,877 | $4,877 | - | - | 0.2% |
| Total | $2,463,539 | 100% |
2023 · Form 990 · $2,615,783 spent · pay $1,586,995 · grants $159,178 · events $113,756
| Line | As described | Total | Program | Management | Fundraising | Share |
|---|---|---|---|---|---|---|
| Other salaries and wages | $1,086,019 | $872,977 | $168,394 | $44,648 | 41.5% | |
| Pay: officers, directors, trustees, key employees | $249,822 | $174,875 | $49,964 | $24,983 | 9.6% | |
| Fees: other services | $170,488 | $158,005 | - | $12,483 | 6.5% | |
| Grants to US organizations and governments | $159,178 | $159,178 | - | - | 6.1% | |
| Office expenses | $120,550 | $83,224 | $36,353 | $973 | 4.6% | |
| Other employee benefits | $117,909 | $94,137 | $18,544 | $5,228 | 4.5% | |
| Conferences, conventions and meetings | $113,756 | $113,756 | - | - | 4.3% | |
| Payroll taxes | $96,593 | $73,966 | $17,194 | $5,433 | 3.7% | |
| Travel | $90,864 | $89,230 | - | $1,634 | 3.5% | |
| Fees: accounting | $90,311 | - | $90,311 | - | 3.5% | |
| Information technology | $77,887 | $71,937 | $3,650 | $2,300 | 3.0% | |
| Other (as described) | DESIGN AND PRINTING | $71,916 | $60,981 | $10,935 | - | 2.7% |
| Other (as described) | POSTAGE | $53,798 | $36,973 | $16,825 | - | 2.1% |
| Occupancy | $51,816 | $36,066 | $12,550 | $3,200 | 2.0% | |
| Pension plan contributions | $36,652 | $28,805 | $5,963 | $1,884 | 1.4% | |
| Depreciation and depletion | $21,520 | $16,733 | $3,212 | $1,575 | 0.8% | |
| Other (as described) | STATE LICENSING | $6,704 | $6,704 | - | - | 0.3% |
| Total | $2,615,783 | 100% |
2022 · Form 990 · $2,273,938 spent · pay $1,504,909 · grants $30,000 · events $73,681
| Line | As described | Total | Program | Management | Fundraising | Share |
|---|---|---|---|---|---|---|
| Other salaries and wages | $1,025,964 | $812,525 | $178,196 | $35,243 | 45.1% | |
| Office expenses | $253,120 | $192,986 | $48,949 | $11,185 | 11.1% | |
| Pay: officers, directors, trustees, key employees | $248,226 | $198,580 | $24,823 | $24,823 | 10.9% | |
| Fees: other services | $189,353 | $182,423 | $6,930 | - | 8.3% | |
| Other employee benefits | $112,294 | $92,011 | $15,680 | $4,603 | 4.9% | |
| Payroll taxes | $92,450 | $71,510 | $16,188 | $4,752 | 4.1% | |
| Conferences, conventions and meetings | $73,681 | $73,681 | - | - | 3.2% | |
| Fees: accounting | $70,660 | $8,900 | $61,760 | - | 3.1% | |
| Occupancy | $49,994 | $36,944 | $10,950 | $2,100 | 2.2% | |
| Information technology | $41,418 | $35,718 | $3,500 | $2,200 | 1.8% | |
| Travel | $38,586 | $37,778 | - | $808 | 1.7% | |
| Grants to US organizations and governments | $30,000 | $30,000 | - | - | 1.3% | |
| Pension plan contributions | $25,975 | $21,413 | $3,890 | $672 | 1.1% | |
| Depreciation and depletion | $22,217 | $18,017 | $2,600 | $1,600 | 1.0% | |
| Total | $2,273,938 | 100% |
2021 · Form 990 · $2,773,309 spent · pay $1,367,444 · grants $451,878 · events $136,633
| Line | As described | Total | Program | Management | Fundraising | Share |
|---|---|---|---|---|---|---|
| Other salaries and wages | $921,031 | $700,040 | $166,020 | $54,971 | 33.2% | |
| Grants to US organizations and governments | $436,878 | $436,878 | - | - | 15.8% | |
| Fees: other services | $357,196 | $357,196 | - | - | 12.9% | |
| Office expenses | $281,558 | $213,942 | $58,733 | $8,883 | 10.2% | |
| Pay: officers, directors, trustees, key employees | $247,357 | $197,885 | $24,736 | $24,736 | 8.9% | |
| Conferences, conventions and meetings | $136,633 | $136,590 | - | $43 | 4.9% | |
| Other employee benefits | $92,539 | $71,136 | $15,577 | $5,826 | 3.3% | |
| Payroll taxes | $84,599 | $63,063 | $15,210 | $6,326 | 3.1% | |
| Fees: accounting | $71,964 | - | $71,964 | - | 2.6% | |
| Occupancy | $48,585 | $36,085 | $10,550 | $1,950 | 1.8% | |
| Information technology | $27,787 | $22,087 | $3,500 | $2,200 | 1.0% | |
| Pension plan contributions | $21,918 | $17,668 | $2,802 | $1,448 | 0.8% | |
| Depreciation and depletion | $20,658 | $16,958 | $2,400 | $1,300 | 0.7% | |
| Grants to US individuals | $15,000 | $15,000 | - | - | 0.5% | |
| Travel | $6,137 | $6,137 | - | - | 0.2% | |
| Fees: legal | $3,469 | - | $3,469 | - | 0.1% | |
| Total | $2,773,309 | 100% |
2020 · Form 990 · $2,029,757 spent · pay $1,250,189 · grants $123,292 · events $56,724
| Line | As described | Total | Program | Management | Fundraising | Share |
|---|---|---|---|---|---|---|
| Other salaries and wages | $870,108 | $709,533 | $104,911 | $55,664 | 42.9% | |
| Office expenses | $242,794 | $186,409 | $50,941 | $5,444 | 12.0% | |
| Pay: officers, directors, trustees, key employees | $205,949 | $164,759 | $20,595 | $20,595 | 10.1% | |
| Fees: other services | $190,642 | $190,642 | - | - | 9.4% | |
| Grants to US organizations and governments | $123,292 | $123,292 | - | - | 6.1% | |
| Payroll taxes | $77,407 | $61,361 | $9,993 | $6,053 | 3.8% | |
| Other employee benefits | $76,114 | $61,252 | $9,256 | $5,606 | 3.7% | |
| Fees: accounting | $66,449 | - | $66,449 | - | 3.3% | |
| Conferences, conventions and meetings | $56,724 | $56,724 | - | - | 2.8% | |
| Occupancy | $51,551 | $44,600 | $5,601 | $1,350 | 2.5% | |
| Information technology | $25,899 | $22,099 | $2,200 | $1,600 | 1.3% | |
| Pension plan contributions | $20,611 | $16,614 | $2,636 | $1,361 | 1.0% | |
| Depreciation and depletion | $17,804 | $14,724 | $1,953 | $1,127 | 0.9% | |
| Other (as described) | STATE LICENSING | $4,413 | $4,413 | - | - | 0.2% |
| Total | $2,029,757 | 100% |
2019 · Form 990 · $2,048,010 spent · pay $1,167,778 · grants $121,854 · events $62,411
| Line | As described | Total | Program | Management | Fundraising | Share |
|---|---|---|---|---|---|---|
| Other salaries and wages | $803,198 | $654,558 | $97,442 | $51,198 | 39.2% | |
| Fees: other services | $226,230 | $226,230 | - | - | 11.0% | |
| Office expenses | $219,661 | $167,858 | $46,881 | $4,922 | 10.7% | |
| Pay: officers, directors, trustees, key employees | $199,214 | $159,370 | $19,922 | $19,922 | 9.7% | |
| Grants to US organizations and governments | $121,854 | $121,854 | - | - | 5.9% | |
| Occupancy | $87,311 | $61,118 | $17,462 | $8,731 | 4.3% | |
| Other employee benefits | $72,774 | $59,090 | $8,523 | $5,161 | 3.6% | |
| Payroll taxes | $72,697 | $57,723 | $9,337 | $5,637 | 3.5% | |
| Fees: accounting | $65,430 | - | $65,430 | - | 3.2% | |
| Conferences, conventions and meetings | $62,411 | $61,593 | - | $818 | 3.0% | |
| Travel | $47,638 | $40,516 | $3,228 | $3,894 | 2.3% | |
| Information technology | $24,365 | $23,163 | $696 | $506 | 1.2% | |
| Pension plan contributions | $19,895 | $16,169 | $2,494 | $1,232 | 1.0% | |
| Depreciation and depletion | $19,625 | $15,775 | $2,600 | $1,250 | 1.0% | |
| Other (as described) | STATE LICENSING | $5,707 | $5,707 | - | - | 0.3% |
| Total | $2,048,010 | 100% |
2018 · Form 990 · $2,105,060 spent · pay $1,099,229 · grants $159,994 · events $68,679
| Line | As described | Total | Program | Management | Fundraising | Share |
|---|---|---|---|---|---|---|
| Other salaries and wages | $749,197 | $603,838 | $95,796 | $49,563 | 35.6% | |
| Office expenses | $213,141 | $151,508 | $57,007 | $4,626 | 10.1% | |
| Fees: other services | $209,064 | $209,064 | - | - | 9.9% | |
| Pay: officers, directors, trustees, key employees | $196,914 | $157,532 | $19,691 | $19,691 | 9.4% | |
| Grants to US organizations and governments | $159,994 | $159,994 | - | - | 7.6% | |
| Travel | $101,762 | $92,463 | $6,476 | $2,823 | 4.8% | |
| Occupancy | $85,241 | $58,241 | $21,800 | $5,200 | 4.0% | |
| Payroll taxes | $70,193 | $56,856 | $8,423 | $4,914 | 3.3% | |
| Conferences, conventions and meetings | $68,679 | $67,039 | - | $1,640 | 3.3% | |
| Fees: accounting | $65,127 | - | $65,127 | - | 3.1% | |
| Information technology | $64,822 | $61,022 | $2,200 | $1,600 | 3.1% | |
| Other employee benefits | $59,166 | $48,112 | $7,175 | $3,879 | 2.8% | |
| Depreciation and depletion | $31,611 | $26,611 | $3,300 | $1,700 | 1.5% | |
| Pension plan contributions | $23,759 | $19,120 | $2,904 | $1,735 | 1.1% | |
| Other (as described) | STATE LICENSING | $6,390 | $6,390 | - | - | 0.3% |
| Total | $2,105,060 | 100% |
2017 · Form 990 · $1,835,227 spent · pay $833,268 · grants $211,316 · events $103,096
| Line | As described | Total | Program | Management | Fundraising | Share |
|---|---|---|---|---|---|---|
| Other salaries and wages | $436,796 | $331,696 | $73,093 | $32,007 | 23.8% | |
| Pay: officers, directors, trustees, key employees | $308,670 | $268,513 | $20,079 | $20,078 | 16.8% | |
| Grants to US organizations and governments | $211,316 | $211,316 | - | - | 11.5% | |
| Office expenses | $181,845 | $120,329 | $54,205 | $7,311 | 9.9% | |
| Fees: other services | $133,591 | $126,541 | $7,050 | - | 7.3% | |
| Travel | $119,872 | $109,591 | $1,771 | $8,510 | 6.5% | |
| Conferences, conventions and meetings | $103,096 | $102,020 | - | $1,076 | 5.6% | |
| Occupancy | $81,585 | $55,585 | $21,000 | $5,000 | 4.4% | |
| Fees: accounting | $67,263 | - | $67,263 | - | 3.7% | |
| Information technology | $66,111 | $61,561 | $2,600 | $1,950 | 3.6% | |
| Payroll taxes | $60,871 | $49,252 | $7,453 | $4,166 | 3.3% | |
| Depreciation and depletion | $30,635 | $25,835 | $3,200 | $1,600 | 1.7% | |
| Other employee benefits | $26,931 | $20,688 | $4,053 | $2,190 | 1.5% | |
| Other (as described) | STATE LICENSING | $6,645 | $6,645 | - | - | 0.4% |
| Total | $1,835,227 | 100% |
2016 · Form 990 · $1,301,054 spent · pay $691,462 · grants $50,000 · events $22,293
| Line | As described | Total | Program | Management | Fundraising | Share |
|---|---|---|---|---|---|---|
| Other salaries and wages | $453,803 | $323,992 | $89,024 | $40,787 | 34.9% | |
| Pay: officers, directors, trustees, key employees | $157,884 | $126,308 | $15,788 | $15,788 | 12.1% | |
| Information technology | $137,955 | $137,355 | $600 | - | 10.6% | |
| Fees: other services | $105,450 | $88,575 | $16,875 | - | 8.1% | |
| Occupancy | $67,426 | $57,426 | $5,500 | $4,500 | 5.2% | |
| Fees: accounting | $62,212 | - | $62,212 | - | 4.8% | |
| Grants to US organizations and governments | $50,000 | $50,000 | - | - | 3.8% | |
| Payroll taxes | $46,736 | $34,148 | $8,175 | $4,413 | 3.6% | |
| Office expenses | $44,483 | $26,600 | $16,540 | $1,343 | 3.4% | |
| Other (as described) | Postage | $33,262 | $23,611 | $8,638 | $1,013 | 2.6% |
| Other employee benefits | $33,039 | $23,356 | $6,289 | $3,394 | 2.5% | |
| Travel | $31,828 | $25,971 | - | $5,857 | 2.4% | |
| Other (as described) | Printing and publicatio | $31,034 | $27,141 | $2,044 | $1,849 | 2.4% |
| Conferences, conventions and meetings | $22,293 | $21,738 | - | $555 | 1.7% | |
| Depreciation and depletion | $17,275 | $16,325 | $950 | - | 1.3% | |
| Other (as described) | State Licensing Fees | $6,374 | $6,374 | - | - | 0.5% |
| Total | $1,301,054 | 100% |
2015 · Form 990 · $1,356,084 spent · pay $647,364 · grants $60,000 · events $191,163
| Line | As described | Total | Program | Management | Fundraising | Share |
|---|---|---|---|---|---|---|
| Other salaries and wages | $416,462 | $299,937 | $70,525 | $46,000 | 30.7% | |
| Conferences, conventions and meetings | $191,163 | $191,163 | - | - | 14.1% | |
| Information technology | $152,675 | $151,679 | $540 | $456 | 11.3% | |
| Pay: officers, directors, trustees, key employees | $148,910 | $119,128 | $14,891 | $14,891 | 11.0% | |
| Occupancy | $74,529 | $62,529 | $6,000 | $6,000 | 5.5% | |
| Grants to US organizations and governments | $60,000 | $60,000 | - | - | 4.4% | |
| Fees: accounting | $57,875 | - | $57,875 | - | 4.3% | |
| Office expenses | $49,239 | $25,025 | $23,484 | $730 | 3.6% | |
| Payroll taxes | $44,181 | $32,791 | $6,651 | $4,739 | 3.3% | |
| Other employee benefits | $37,811 | $29,128 | $5,609 | $3,074 | 2.8% | |
| Other (as described) | Postage | $37,779 | $27,262 | $9,621 | $896 | 2.8% |
| Other (as described) | Printing and publicatio | $37,688 | $32,475 | $4,225 | $988 | 2.8% |
| Travel | $30,258 | $29,024 | - | $1,234 | 2.2% | |
| Other (as described) | State Licensing Fees | $12,342 | $12,342 | - | - | 0.9% |
| Depreciation and depletion | $5,172 | $3,879 | $1,293 | - | 0.4% | |
| Total | $1,356,084 | 100% |
2014 · Form 990 · $1,306,914 spent · pay $646,338 · grants $135,000 · events $150,513
| Line | As described | Total | Program | Management | Fundraising | Share |
|---|---|---|---|---|---|---|
| Other salaries and wages | $416,497 | $305,372 | $69,475 | $41,650 | 31.9% | |
| Conferences, conventions and meetings | $150,513 | $150,513 | - | - | 11.5% | |
| Pay: officers, directors, trustees, key employees | $146,545 | $117,236 | $14,654 | $14,655 | 11.2% | |
| Grants to US organizations and governments | $135,000 | $135,000 | - | - | 10.3% | |
| Occupancy | $74,039 | $59,231 | $7,404 | $7,404 | 5.7% | |
| Fees: accounting | $57,288 | - | $57,288 | - | 4.4% | |
| Office expenses | $53,934 | $24,271 | $18,877 | $10,786 | 4.1% | |
| Other (as described) | Printing and Publications | $52,561 | $46,821 | $3,260 | $2,480 | 4.0% |
| Other (as described) | Postage and Shipping | $44,751 | $35,280 | $5,893 | $3,578 | 3.4% |
| Other (as described) | Communications and Website | $44,092 | $44,092 | - | - | 3.4% |
| Payroll taxes | $43,663 | $32,748 | $6,549 | $4,366 | 3.3% | |
| Other employee benefits | $39,633 | $29,397 | $6,273 | $3,963 | 3.0% | |
| Travel | $29,529 | $24,696 | - | $4,833 | 2.3% | |
| Other (as described) | State Licensing Fees | $11,941 | $11,941 | - | - | 0.9% |
| Depreciation and depletion | $6,928 | $5,194 | $1,734 | - | 0.5% | |
| Total | $1,306,914 | 100% |
2013 · Form 990 · $1,219,092 spent · pay $658,238 · grants $150,000 · events $38,893
| Line | As described | Total | Program | Management | Fundraising | Share |
|---|---|---|---|---|---|---|
| Other salaries and wages | $434,062 | $318,796 | $71,860 | $43,406 | 35.6% | |
| Pay: officers, directors, trustees, key employees | $143,326 | $114,661 | $14,333 | $14,332 | 11.8% | |
| Grants to US organizations and governments | $125,000 | $125,000 | - | - | 10.3% | |
| Occupancy | $69,215 | $55,608 | $6,686 | $6,921 | 5.7% | |
| Fees: accounting | $58,164 | - | $58,164 | - | 4.8% | |
| Other (as described) | Communications and Website | $54,636 | $54,636 | - | - | 4.5% |
| Office expenses | $53,316 | $24,514 | $25,872 | $2,930 | 4.4% | |
| Other (as described) | Printing and Publications | $47,612 | $42,140 | $2,813 | $2,659 | 3.9% |
| Other (as described) | Postage and Shipping | $47,470 | $34,788 | $10,235 | $2,447 | 3.9% |
| Payroll taxes | $44,966 | $33,725 | $6,744 | $4,497 | 3.7% | |
| Conferences, conventions and meetings | $38,893 | $38,893 | - | - | 3.2% | |
| Other employee benefits | $35,884 | $26,496 | $5,799 | $3,589 | 2.9% | |
| Grants outside the US | $25,000 | $25,000 | - | - | 2.1% | |
| Travel | $23,520 | $18,705 | - | $4,815 | 1.9% | |
| Other (as described) | State Licensing Fees | $11,234 | $11,234 | - | - | 0.9% |
| Depreciation and depletion | $6,145 | $4,609 | $1,536 | - | 0.5% | |
| Fees: legal | $649 | - | $649 | - | 0.1% | |
| Total | $1,219,092 | 100% |
Federal lobbying
Lobbying Disclosure Act reports naming a client or registrant with this organization's name and state. Spent: what lobbying for it cost (firm income plus its own reported expenses). Earned: income it reported as a lobbying firm.
| Year | Spent | Earned | Reports |
|---|---|---|---|
| 2014 | 5 | ||
| 2013 | 4 | ||
| 2012 | 4 | ||
| 2011 | 3 |
Issues: Health Issues
Firms hired: LOBBYIT.COM
State business registration
- SPONDYLITIS ASSOCIATION OF AMERICA DC, Foreign Nonprofit Corporation, Active - In Good Standing, formed 2013-04-22
The same business name in the same state, from the state’s official registry data.
Trademarks
3 US trademarks, 3 live.
- Spondylitis Association of America 3 marks, CA EXACT high confidence: identical full name and state
| Mark | Serial | Filed | Status | Source |
|---|---|---|---|---|
| SERVING THE SPONDYLOARTHRITIS COMMUNITY | 90975289 | 2020-10-12 | Registered | TRCFECO2, file of 2024-03-27 |
| SERVING THE SPONDYLOARTHRITIS COMMUNITY | 90249872 | 2020-10-12 | Registered | TRCFECO2, file of 2024-03-27 |
| SPONDYLITIS ASSOCIATION OF AMERICA | 88854932 | 2020-03-31 | Registered | TRTDXFAP, file of 2026-09-14 |
The newest marks of the trademark owners above, matched to this record by name (and state).
Comments