SPONDYLITIS ASSOCIATION OF AMERICA: Form 990, tax year 2023

View the entire original 990 at ProPublica ↗

Organization
SPONDYLITIS ASSOCIATION OF AMERICA (EIN 95-3890767)
Tax period
2023-07-01 to 2024-06-30
Filed
2024-09-30
IRS object ID
202432749349301328
Schema version
2023v5.1
Source
Download XML · Original 990 at ProPublica

Every field in the e-filed return. Faint text is the IRS element name, for citing.

Return header ReturnHeader

FieldValueIRS element (for citing)
Return2024-09-30T15:27:40-05:00ReturnTs
Tax Period End2024-06-30TaxPeriodEndDt

Preparer Firm PreparerFirmGrp

FieldValueIRS element (for citing)
Preparer Firm EIN320530003PreparerFirmEIN

Preparer Firm Name PreparerFirmName

FieldValueIRS element (for citing)
Business Name Line1QUIGLEY & MIRONBusinessNameLine1Txt

Preparer US Address PreparerUSAddress

FieldValueIRS element (for citing)
Address Line13550 WILSHIRE BLVD 1660AddressLine1Txt
CityLOS ANGELESCityNm
State AbbreviationCAStateAbbreviationCd
ZIP90010ZIPCd
FieldValueIRS element (for citing)
Return Type990ReturnTypeCd
Tax Period Begin2023-07-01TaxPeriodBeginDt

Filer Filer

FieldValueIRS element (for citing)
EIN953890767EIN

Business Name BusinessName

FieldValueIRS element (for citing)
Business Name Line1SPONDYLITIS ASSOCIATION OF AMERICABusinessNameLine1Txt
FieldValueIRS element (for citing)
Business Name ControlSPONBusinessNameControlTxt
Phone8188921616PhoneNum

US Address USAddress

FieldValueIRS element (for citing)
Address Line116430 VENTURA BLVD 300AddressLine1Txt
CityENCINOCityNm
State AbbreviationCAStateAbbreviationCd
ZIP91436ZIPCd

Business Officer BusinessOfficerGrp

FieldValueIRS element (for citing)
PersonCASSIE SHAFERPersonNm
Person TitleCHIEF EXECUTIVE OFFICERPersonTitleTxt
Phone8188921616PhoneNum
Signature2024-09-30SignatureDt
FieldValueIRS element (for citing)
IRS Responsible Prty Info Curr0IRSResponsiblePrtyInfoCurrInd

Preparer Person PreparerPersonGrp

FieldValueIRS element (for citing)
Preparer PersonARMEN GRIGORIANPreparerPersonNm
PTINP01582463PTIN
Phone2136393550PhoneNum
FieldValueIRS element (for citing)
Tax2023TaxYr
Build TS2024-10-15 13:58:12ZBuildTS

Form 990 IRS990

FieldValueIRS element (for citing)
Principal OfficerCASSIE SHAFERPrincipalOfficerNm

US Address USAddress

FieldValueIRS element (for citing)
Address Line116430 VENTURA BLVD 300AddressLine1Txt
CityENCINOCityNm
State AbbreviationCAStateAbbreviationCd
ZIP91436ZIPCd
FieldValueIRS element (for citing)
Gross Receipts$2,981,058GrossReceiptsAmt
Group Return For Affiliates0GroupReturnForAffiliatesInd
Organization501c3Yes (X)Organization501c3Ind
Website AddressWWW.SPONDYLITIS.ORGWebsiteAddressTxt
Type Of Organization CorpYes (X)TypeOfOrganizationCorpInd
Formation1983FormationYr
Legal Domicile StateCALegalDomicileStateCd
Activity Or MissionADVANCING RESEARCH, ACCELERATED DIAGNOSIS, OPTIMUM TREATMENT, PUBLIC AWARENESS AND HEALTH CARE PROFESSIONAL EDUCATION IN SPONDYLOARTHRITISActivityOrMissionDesc
Voting Members Governing Body12VotingMembersGoverningBodyCnt
Voting Members Independent12VotingMembersIndependentCnt
Total Employee15TotalEmployeeCnt
Total Volunteers182TotalVolunteersCnt
Total Gross UBI$0TotalGrossUBIAmt
Net Unrelated Bus Txbl Incm$0NetUnrelatedBusTxblIncmAmt
PY Contributions Grants$2,200,809PYContributionsGrantsAmt
CY Contributions Grants$2,545,839CYContributionsGrantsAmt
PY Program Service Revenue$5,120PYProgramServiceRevenueAmt
CY Program Service Revenue$12,793CYProgramServiceRevenueAmt
PY Investment Income$142,607PYInvestmentIncomeAmt
CY Investment Income$222,916CYInvestmentIncomeAmt
PY Other Revenue$0PYOtherRevenueAmt
CY Other Revenue$0CYOtherRevenueAmt
PY Total Revenue$2,348,536PYTotalRevenueAmt
CY Total Revenue$2,781,548CYTotalRevenueAmt
PY Grants And Similar Paid$30,000PYGrantsAndSimilarPaidAmt
CY Grants And Similar Paid$159,178CYGrantsAndSimilarPaidAmt
PY Benefits Paid To Members$0PYBenefitsPaidToMembersAmt
CY Benefits Paid To Members$0CYBenefitsPaidToMembersAmt
PY Salaries Comp Emp Bnft Paid$1,504,909PYSalariesCompEmpBnftPaidAmt
CY Salaries Comp Emp Bnft Paid$1,586,995CYSalariesCompEmpBnftPaidAmt
PY Total Prof Fndrsng Expns$0PYTotalProfFndrsngExpnsAmt
CY Total Prof Fndrsng Expns$0CYTotalProfFndrsngExpnsAmt
CY Total Fundraising Expense$104,341CYTotalFundraisingExpenseAmt
PY Other Expenses$739,029PYOtherExpensesAmt
CY Other Expenses$869,610CYOtherExpensesAmt
PY Total Expenses$2,273,938PYTotalExpensesAmt
CY Total Expenses$2,615,783CYTotalExpensesAmt
PY Revenues Less Expenses$74,598PYRevenuesLessExpensesAmt
CY Revenues Less Expenses$165,765CYRevenuesLessExpensesAmt
Total Assets BOY$7,830,002TotalAssetsBOYAmt
Total Assets EOY$8,085,006TotalAssetsEOYAmt
Total Liabilities BOY$413,366TotalLiabilitiesBOYAmt
Total Liabilities EOY$381,762TotalLiabilitiesEOYAmt
Net Assets Or Fund Balances BOY$7,416,636NetAssetsOrFundBalancesBOYAmt
Net Assets Or Fund Balances EOY$7,703,244NetAssetsOrFundBalancesEOYAmt
Info In Schedule O Part IIIYes (X)InfoInScheduleOPartIIIInd
MissionADVANCING AND DIRECTLY SPONSORING SPONDYLOARTHRITIS RESEARCH, ACCELERATING DIAGNOSIS, SUPPORTING OPTIMUM TREATMENT FOR THE INDIVIDUAL, ADVANCING AWARENESS, AND PUBLIC AND HEALTH CARE PROFESSIONAL EDUCATION IN SPONDYLOARTHRITIS.MissionDesc
Significant New Program Srvc0SignificantNewProgramSrvcInd
Significant Change0SignificantChangeInd
Expense$1,015,649ExpenseAmt
Revenue$12,793RevenueAmt
DescSOCIAL MEDIA-OUR SOCIAL MEDIA CHANNELS (FACEBOOK, TWITTER, INSTAGRAM, AND LINKEDIN) ARE ESSENTIAL TOOLS FOR INCREASING AWARENESS AND ENGAGING WITH SAA'S CONSTITUENTS. DURING THE FISCAL YEAR ENDING JUNE 30, 2024, OUR SOCIAL MEDIA CHANNELS EARNED 1,330,300 IMPRESSIONS, 47,396 ENGAGEMENTS (LIKES, SHARES, COMMENTS) AND 8,933 POST LINK CLICKS. FACEBOOK ACCOUNTED FOR 807,112 IMPRESSIONS; INSTAGRAM ACCOUNTED FOR 349,320, TWITTER ACCOUNTED FOR 144,254, AND LINKEDIN ACCOUNTED FOR 29, 614. YOUTUBE-AS A VIDEO SHARING PLATFORM, YOUTUBE ALSO SERVES AS A SEARCH ENGINE. IN FACT, YOUTUBE IS THE SECOND MOST POPULAR SEARCH ENGINE IN THE WORLD WITH ONLY GOOGLE SURPASSING IT. DURING THE 2023/2024 FISCAL YEAR, THERE WERE 83.5K VIEWS AND 1.1. MILLION IMPRESSIONS OF VIDEO CONTENT ON OUR YOUTUBE CHANNEL.SAA WEBSITE-DURING THE 2023/2024 FISCAL YEAR, SAA WEBSITE HAD 739,399 PAGE VIEWS AND 309,933 UNIQUE USERS. IN TERMS OF DEMOGRAPHICS, 58 PERCENT OF WEBSITE VISITORS ARE FEMALE, AND 42 PERCENT ARE MALE. THE AGE GROUPS WERE EVENLY DISTRIBUTED 25-34 (15,563), 35-44 (13,041), AND 45 - 54 (11,744).COMMUNITY FORUM - SAA'S COMMUNITY FORUMS ALSO CONTINUE TO BE ACTIVE NOT ONLY FOR THE NEWLY DIAGNOSED BUT THOSE LIVING WITH THE DISEASE FROM A FEW YEARS TO ALMOST A LIFETIME. TO DATE, THERE ARE 21,878 MEMBERS PARTICIPATING IN 255, 108 POSTS/DISCUSSIONS.SPONDYLOARTHRITIS (SPA) AWARENESS MONTH-SPONDYLOARTHRITIS (SPA) AWARENESS MONTH WAS CELEBRATED MAY 2024. RAISING AWARENESS DURING MAY AND THROUGHOUT THE YEAR HELPS INCREASE VISIBILITY OF SPONDYLOARTHRITIS. THROUGH THESE EFFORTS, WE ALSO EMPHASIZE THE NEED FOR RECOGNIZING THE SYMPTOMS FOR PROPER AND TIMELY DIAGNOSIS, FUNDING RESEARCH FOR A CURE, AND SUPPORT PROGRAMS THAT EDUCATE AND EMPOWER THOSE IMPACTED BY SPA TO MAKE MORE INFORMED DECISIONS ABOUT THEIR HEALTH. OUR THEME FOR 2024 FOCUSED ON SIGNS & SYMPTOMS, BASED ON THE TOPIC OUR PARTNERS AT ASIF PINNED FOR WORLD AS DAY.ADVOCACYSAA'S ADVOCACY PROGRAM IS EVER-EXPANDING IN BOTH THE NUMBER OF INITIATIVES AND ACTIONS TAKEN AND SPONDYLITIS COMMUNITY ADVOCATES. ADVOCACY PLANS ARE INFORMED BY THE STRATEGIC PRIORITIES OF INCREASING PUBLIC AWARENESS, IMPROVING ACCESS TO HEALTH CARE, INCREASING FEDERAL RESEARCH FUNDING TO CURE SPONDYLITIS, AND INFLUENCING PUBLIC POLICIES THAT IMPACT THE SPONDYLITIS COMMUNITY. SAA ADVOCACY EFFORTS SEEK TO CREATE POSITIVE CHANGE ON BEHALF OF AND WITHIN THE SPONDYLITIS COMMUNITY THROUGH STATE AND NATIONAL CAMPAIGNS. THE EFFORTS USE A MULTICHANNEL APPROACH TO REACH POTENTIAL ADVOCATES AND TARGETED LEGISLATORS 'WHERE THEY ARE AT,' WHETHER IT IS ON SOCIAL MEDIA, EMAIL, WEBSITES, PODCASTS, NEWSPAPERS, AND WITHIN SAA PUBLICATIONS. THE ADVOCATE'S ACTIONABLE ITEMS INCLUDE SURVEYS, PETITIONS, POLLS, LETTER-WRITING CAMPAIGNS, LETTERS AND EMAILS TO SPECIFIC LEGISLATORS, AND WHEN-POSSIBLE, THROUGH IN-PERSON CONVERSATIONS WITH STATE, LOCAL, AND NATIONAL LEGISLATORS. SPECIFIC ACTIVITIES INCLUDE THE SURVEY & CAMPAIGN "HAVE YOU EXPERIENCED MEDICAL GASLIGHTING. AND CREATING OTHER NEW CAMPAIGNS LIKE "SELF-ADVOCACY: AT YOUR DOCTOR'S APPOINTMENT" HIGHLIGHTING SAA ADVICE AND RESOURCES AS PART OF AN ONGOING, EVERGREEN SELF-ADVOCACY RESOURCES SERIES, AND ARTICLES IN SPONDYLITIS PLUS MAGAZINE SUCH AS "WHAT IS STEP THERAPY AND WHY YOU SHOULD CARE AND "THE USE OF AI FOR HEALTHCARE DECISIONS COULD HELP AND HARM PATIENTS." SAA'S RICHARD HOWARD WAS AN AUTHOR ON ALTERNATIVE FUNDING PROGRAMS' ARTICLE PUBLISHED IN THE MAY ISSUE OF HR.COM'S HR LEGAL & COMPLIANCE EXCELLENCE MAGAZINE. IN ADDITION, SAA SIGNED ON ITS SUPPORT FOR PBM REFORMS TO IMPROVE PATIENT ACCESS TO LOWER COST MEDICATIONS AND THE ALL COPAYS COUNT COALITION LETTERS TO STATE INSURANCE COMMISSIONERS URGING THEM TO ENFORCE THE 2020 NBPP PROVISION RESTRICTING USE OF COPAY ACCUMULATOR ADJUSTORS, WROTE LETTERS IN SUPPORT OF CA SB 1120 - PHYSICIANS MAKE DECISIONS ACT, WHICH MANDATES PHYSICIAN OVERSIGHT WHEN ALGORITHMS ARE USED TO DECIDE ON HEALTHCARE PROVIDERS' REQUESTS TO OFFER MEDICAL SERVICES, AND NUMEROUS OTHERS ON KEY TOPIC AREAS TO IMPROVE PATIENT ACCESS AND IMPACT OUR SPONDYLOARTHRITIS COMMUNITY.Desc

Prog Srvc Accom Acty2 ProgSrvcAccomActy2Grp

FieldValueIRS element (for citing)
Expense$347,043ExpenseAmt
DescBACK 2 SPA BASICS PILOT PROGRAM-THIS PROGRAM WAS CREATED TO RAISE SPA AWARENESS AND EDUCATE PRIMARY CARE PROVIDERS AND OTHER HEALTHCARE PROFESSIONALS WITHIN A HOSPITAL'S HEALTHCARE SYSTEM USING MEDICAL RESIDENTS AS TRAINERS. RESIDENTS WHO COMPLETED THEIR CORE CLINICAL TRAINING IN INTERNAL MEDICINE AND HAVE CHOSEN RHEUMATOLOGY AS A SPECIALTY PARTICIPATED IN A SERIES OF 3-5 TRAININGS ABOUT SPA CONDUCTED VIRTUALLY VIA ZOOM. ONCE THESE RESIDENTS COMPLETE THE "TRAIN-THE-TRAINER" CURRICULUM, THEY SET UP PRESENTATIONS AT THEIR LOCAL HOSPITALS TO PROVIDE EDUCATION AND INCREASE AWARENESS OF SPA. FOR THE PILOT PROGRAM, WE HAD 15 RESIDENTS ENROLL WHO THEN GAVE PRESENTATIONS ON SPA TO OVER 165 MEDICAL PROFESSIONALS WITHIN THEIR MEDICAL INSTITUTIONS. SAA'S COURSE FOR FIRST RESPONDERS, "EMS PITFALLS: ANKYLOSING SPONDYLITIS" WAS REACCREDITED IN DECEMBER 2022 AND CONTINUES TO PROVIDE 1 CE CREDIT FOR FIRST RESPONDERS AND NURSES.STANDARD EMS TREATMENT PROTOCOLS CAN CAUSE INJURY, DISABILITY, AND EVEN DEATH IN PATIENTS WITH ANKYLOSING SPONDYLITIS (AS). THIS COURSE PROVIDES TOOLS TO RECOGNIZE AS, AND SAFELY AND PROPERLY MANAGE IT IN EMERGENCY SITUATIONS.ANESTHESIOLOGY AND AIRWAY MANAGEMENT MODULE-THE SPONDYLITIS ASSOCIATION OF AMERICA LAUNCHED THE ONLINE ACCREDITED COURSE FOR ANESTHESIOLOGISTS IN EARLY FEBRUARY 2023. THIS COLLABORATION WITH HENRY FORD HEALTH AIMS TO PROVIDE A COMPREHENSIVE AND PRACTICAL LEARNING EXPERIENCE FOR HEALTHCARE PROFESSIONALS TO ENHANCE THEIR SKILLS IN AIRWAY MANAGEMENT FOR PATIENTS WITH ANKYLOSING SPONDYLITIS. THIS ACTIVITY IS GUARANTEED TO HAVE A MINIMUM OF 600 LEARNERS. CASE-BASED MRI EDUCATIONAL TOOL FOR AXIAL SPONDYLOARTHRITIS-SAA SUPPORTED THE ENHANCEMENT BY CARE ARTHRITIS OF A MOBILE APP, LAUNCHED IN 2023, WHICH HOSTS AND DELIVERS MRI CASE STUDIES GEARED TO RHEUMATOLOGISTS AND RADIOLOGISTS. THE PROGRAM AIMS TO ADDRESS A TOP-RANKED UNMET EDUCATIONAL NEED IN THE FIELD OF SPONDYLOARTHRITIS, NAMELY, THE APPROPRIATE INTERPRETATION OF MRI BY RHEUMATOLOGISTS AND RADIOLOGISTS FOR EARLY DIAGNOSIS OF SPA. THE APP STREAMING CONTENT IS CASE-BASED AND INCLUDES BOTH CLINICAL AND IMAGING COMPONENTS. RHEUM TO DIAGNOSE-THE GOAL OF "RHEUM TO DIAGNOSE" IS TO ADDRESS REAL WORLD BARRIERS TO AN ACCURATE AND EXPEDIENT DIAGNOSIS OF NR-AXSPA IN THE RHEUMATOLOGY SETTING. THE PHYSICIAN-FACING CONTENT OF RHEUM TO DIAGNOSE INCLUDES A TOTAL OF SIX PRESENTATIONS FEATURING EXPERTS IN SPONDYLOARTHRITIS, GEARED TO TWO DISTINCT AUDIENCES: RHEUMATOLOGY FELLOWS, AND MEDICAL STUDENTS. ALL SIX PRESENTATIONS (THREE FOR RHEUMATOLOGY FELLOWS, AND THREE FOR MEDICAL STUDENTS) ALONG WITH A PROMOTIONAL TRAILER, ARE AVAILABLE ON SAA'S WEBSITE.Desc

Prog Srvc Accom Acty3 ProgSrvcAccomActy3Grp

FieldValueIRS element (for citing)
Expense$296,119ExpenseAmt
DescEDUCATION AND AWARENESSPATIENT EDUCATIONAL SEMINARS, WEBINARS, AND HEALTH EDUCATION CONTENT, ALONG WITH PATIENT SUPPORT PROGRAMS ARE DELIVERED VIA VARIOUS DIGITAL OUTLETS. SAA'S INTERACTIVE WEBSITE, LOCATED AT SPONDYLITIS.ORG, CONTAINS THOUSANDS OF PAGES OF SPONDYLOARTHRITIS INFORMATION, AND SERVES ALMOST 600,000 UNIQUE VISITORS EACH YEAR.PATIENT EDUCATIONAL SEMINARS WERE HELD VIRTUALLY UTILIZING A ROBUST AND INTERACTIVE VIRTUAL CONFERENCE PLATFORM. THE PLATFORM FEATURED AN ANIMATED AND INTERACTIVE LOBBY TO ACCESS DIFFERENT PARTS OF THE CONFERENCE HALL, INCLUDING THE EXHIBIT HALL, ACTIVITY LOUNGE, SPA RESOURCES HUB, AND PRESENTATION HALL - WHERE ATTENDEES ACCESSED THE SPEAKERS' LIVE PRESENTATIONS AND TOOK PART IN MODERATED Q&A SESSIONS. IN ADDITION, "FACEBOOK LIVE" BROADCASTS WERE ALSO CONDUCTED. THESE BROADCASTS ARE RECORDED AND AVAILABLE FOR FUTURE USE THROUGH THE SAA WEBSITE.PATIENT EDUCATION PUBLICATIONS INCLUDE A COLLECTION OF 12 UPDATED (AND PHYSICIAN VETTED) ENGLISH LANGUAGE SPONDYLOARTHRITIS EDUCATIONAL BROCHURES, AND 10 SPANISH LANGUAGE BROCHURES.AMONG THEM ARE OUR NEWEST BROCHURES, "TALKING TO YOUR DOCTOR ABOUT SPONDYLOARTHRITIS, AND "WHAT IS NR-AXSPA.". ADDITIONALLY, THE EXISTING "WHAT IS ANKYLOSING SPONDYLITIS" BROCHURE WAS REWRITTEN AND REDESIGNED. SAA ALSO OFFERS 10 SPANISH LANGUAGE BROCHURES.SPONDYLITIS PLUS MAGAZINE-SAA MEMBERS RECEIVE QUARTERLY ISSUES OF THE ORGANIZATION'S PREMIERE PRINT PUBLICATION. SPONDYLITIS PLUS PROVIDES IN-DEPTH COVERAGE OF ISSUES SUCH AS PAIN, FATIGUE, AND OTHER COMPLICATIONS, DISCUSSES THE LATEST RESEARCH AND TREATMENT INFORMATION - OFTEN PRESENTED BY PROMINENT RHEUMATOLOGISTS AND RESEARCHERS, FEATURES MOVING AND UNIQUE PERSONAL STORIES FROM OTHERS WITH SPONDYLOARTHRITIS, AND MUCH MORE. OVER 4,500 COPIES ARE DISTRIBUTED QUARTERLY.STRAIGHT TALK ON SPONDYLOARTHRITIS BOOK - THE 4TH EDITION OF THIS LEGACY PUBLICATION WAS FULLY RE-WRITTEN AND REDESIGNED. RELEASED IN DECEMBER OF 2023, THIS FULL COLOR EDITION FEATURES 12 NEW CHAPTERS, WRITTEN BY VARIOUS CONTENT EXPERTS, AND RECEIVED A FULL REDESIGN.ESUN-ALMOST 45,000 PEOPLE SUBSCRIBE TO AND RECEIVE SAA'S ESUN EACH MONTH. ESUN, THE ELECTRONIC SPONDYLOARTHRITIS UPDATE NEWSLETTER, CONTAINS A VARIETY OF SPONDYLOARTHRITIS-RELATED CONTENT, SUCH AS NEWS, RESEARCH OPPORTUNITIES, UPCOMING SAA PROGRAMS AND OPPORTUNITIES, STORIES FROM THOSE LIVING WITH SPONDYLOARTHRITIS, AND MORE.SPONDYCAST PODCAST SERIES-SAA LAUNCHED A NEW WEEKLY PODCAST CALLED SPONDYCAST IN MARCH 2023, WITH AN ADDITIONAL 48 EPISODES RELEASED IN FY24. BOARD MEMBER AND HOST JILL MILLER INTERVIEWS WORLD-RENOWNED SPECIALISTS IN VARIOUS FIELDS INCLUDING MEDICINE, PSYCHOLOGY, DIET AND NUTRITION, AND FITNESS. SPONDYCAST IS AVAILABLE ON A VARIETY OF PLATFORMS INCLUDING SPOTIFY, APPLE, IHEART RADIO, PANDORA, AMAZON MUSIC, GOOGLE PODCASTS, AND MORE. "LIFE AFTER DIAGNOSIS" VIDEO SERIES-THIS PATIENT-FOCUSED EDUCATIONAL PROGRAM ADDRESSES THE UNMET NEED OF A SYSTEMATIC PATH TO UNDERSTANDING THE DIAGNOSIS, TREATMENTS, AND MANAGEMENT OF ANKYLOSING SPONDYLITIS (AS). THE PROJECT IS COMPRISED OF A SERIES OF SEVEN VIDEOS, EACH DELIVERED THROUGH AN EMAIL CONTAINING ADDITIONAL RESOURCES RELATED TO THE TOPIC AT HAND. THE CONTENT WAS DEVELOPED IN CLOSE COLLABORATION WITH LEADING HEALTH PROFESSIONALS AS WELL AS PATIENTS LIVING WITH AS. OVER 2,400 PARTICIPANTS HAVE ENROLLED IN THIS PROGRAM. ANIMATED VIDEO: WHAT IS NR-AXSPA?-SAA WORKED WITH A DIGITAL MEDIA PRODUCTION COMPANY TO SCRIPT AND DEVELOP OUR NEWEST ANIMATED EDUCATIONAL VIDEO, "WHAT IS NR-AXSPA?" THIS PIECE DISCUSSES COMMON SIGNS AND SYMPTOMS OF NR-AXSPA AND SHARES HELPFUL INFORMATION AND RESOURCES FOR THOSE IMPACTED (WHETHER DIAGNOSED OR NOT.)HEALTHY LIVING WITH AXSPA-THANKS TO THE SPONSORSHIP OF UCB, SAA CREATED A 2-PART VIDEO SERIES CALLED HEALTHY LIVING WITH AXSPA. THE FIRST VIDEO IN THIS UNIQUE SERIES, HEALTHY LIVING WITH AXSPA: COOKING WITH KEVIN GILLESPIE, FEATURES A COOKING DEMONSTRATION TO EDUCATE AND INSPIRE PEOPLE TO EMBRACE AN ANTI-INFLAMMATORY DIET FOR IMPROVED HEALTH OUTCOMES. IN THE SECOND VIDEO OF THE SERIES, HEALTHY LIVING WITH AXSPA: MANAGING MENTAL AND EMOTIONAL HEALTH, RHEUMATOLOGIST HILLARY NORTON AND LICENSED PSYCHOLOGIST DR. JANA LOMAX DISCUSS THE IMPACT OF SPONDYLOARTHRITIS ON MENTAL HEALTH AND PROVIDE TIPS THAT CAN MAKE A HUGE IMPACT ON WELL-BEING WHILE MANAGING A CHRONIC CONDITION. BOTH VIDEOS ARE AVAILABLE ON SAA'S WEBSITE AS ENDURING CONTENT. GLOBAL SPONDYLOARTHRITIS SUMMIT 2024-SAA'S SIGNATURE ONLINE EDUCATIONAL PROGRAM, 6TH ANNUAL GLOBAL SPONDYLOARTHRITIS SUMMIT, TOOK PLACE MAY 3-4. THIS YEAR'S SUMMIT FEATURED 6 PRESENTATIONS BY SUBJECT MATTER EXPERTS, 4 BREAKOUT GROUP SESSIONS COVERING TOPICS AIMED AT FOSTERING PEER CONNECTION AND SUPPORT WITHIN OUR COMMUNITY, AND 2 PHYSICAL MOVEMENT SESSIONS TO ENCOURAGE PARTICIPANTS TO BE ACTIVE. WE OFFERED A MORE INTERACTIVE EXPERIENCE, ENABLING PARTICIPANTS TO NOT ONLY GAIN VALUABLE MEDICAL INSIGHTS BUT ALSO CONNECT WITH PEERS IN THEIR COMMUNITY THAT CAN POSITIVELY IMPACT THEIR WELL-BEING. IT ALSO FEATURED DAILY TRIVIA QUIZZES, A LEADERBOARD CHALLENGE, AN ACTIVITY LOUNGE AND AN EXHIBIT HALL. SAA ALSO PROVIDED SPANISH LANGUAGE SUBTITLES FOR THE PRESENTATIONS. MORE THAN 3,000 ATTENDEES FROM 94 COUNTRIES REGISTERED FOR THIS YEAR'S EVENT. RECORDINGS OF THE PRESENTATIONS AND Q&AS, AS WELL AS NOTES DETAILING HIGHLIGHTS FROM THE BREAKOUT SESSIONS ARE AVAILABLE AS ENDURING CONTENT ON SAA'S WEBSITE, SAA'S SUPPORT GROUPS-FROM JULY 1, 2023, TO JUNE 30, 2024, 37 ACTIVE SUPPORT GROUP LEADERS CONDUCTED A TOTAL OF 192 SUPPORT GROUP MEETINGS. OUR SUPPORT GROUPS SPANNED 20 STATES, ENSURING WIDESPREAD REACH AND ACCESSIBILITY FOR OUR COMMUNITY MEMBERS. MEETINGS WERE OFFERED IN VARIOUS FORMATS, INCLUDING ONLINE, IN-PERSON, AND HYBRID, TO ACCOMMODATE THE DIVERSE NEEDS OF ATTENDEES. WE HELD 12 SOCIAL CHAT HOURS, PROVIDING AN INFORMAL PLATFORM FOR SUPPORT GROUP LEADERS TO CONNECT, SHARE EXPERIENCES, AND OFFER MUTUAL SUPPORT OUTSIDE THE MORE STRUCTURED SUPPORT GROUP MEETINGS. FOUR QUARTERLY CHECK-INS WERE HELD, ALLOWING US TO PROVIDE PROFESSIONAL DEVELOPMENT AND GATHER FEEDBACK FROM SUPPORT GROUP LEADERS, ASSESS THE EFFECTIVENESS OF OUR PROGRAMS, AND MAKE NECESSARY ADJUSTMENTS TO BETTER SERVE OUR COMMUNITY. WE WELCOMED THREE NEW SUPPORT GROUP LEADERS (TWIN CITIES, MN, WORCESTER, MA, AND NYC, NY). THESE ADDITIONS REFLECT OUR ONGOING EFFORTS TO EXPAND OUR REACH AND ENHANCE SUPPORT FOR INDIVIDUALS WITH ANKYLOSING SPONDYLITIS IN NEW REGIONS.CURRENTLY, OUR "MEETINGS WITHOUT BORDERS" INITIATIVE CONTINUES TO GROW, WITH 318 INDIVIDUALS REGISTERED TO RECEIVE ALERTS ABOUT UPCOMING MEETINGS. THIS PROGRAM ALLOWS CONSTITUENTS TO JOIN MEETINGS BEYOND THEIR LOCAL AREA, FOSTERING A BROADER SENSE OF COMMUNITY AND SUPPORT. SUPPORT GROUP LEADERS HAVE REPORTED THAT THEY HAVE SEEN MEETING ATTENDEES JOINING THEIR SUPPORT GROUP MEETINGS FROM LOCATIONS OUTSIDE OF THEIR LOCAL AREA/STATE.Desc

Prog Srvc Accom Acty Other ProgSrvcAccomActyOtherGrp

FieldValueIRS element (for citing)
Expense$418,736ExpenseAmt
Grant$159,178GrantAmt
DescEARLY CAREER INVESTIGATOR AWARDS (ECI)- DR. MICHAEL PALEY, ASSISTANT PROFESSOR OF MEDICINE IN THE DIVISION OF RHEUMATOLOGY AT WASHINGTON UNIVERSITY SCHOOL OF MEDICINE, WON THE PRESTIGIOUS $30,000 JANE BRUCKEL EARLY CAREER INVESTIGATOR AWARD IN AXIAL SPONDYLOARTHRITIS. DR. PALEY'S RESEARCH FOCUSES ON STUDYING SYSTEMIC INFLAMMATORY DISORDERS IN IMMUNE-PRIVILEGED ORGANS (I.E., AREAS OF THE BODY THAT ARE LESS LIKELY TO HAVE AN IMMUNE RESPONSE) SUCH AS THE EYES AND THE BRAIN. THIS INCLUDES HLA-B27+ ANTERIOR UVEITIS IN AXIAL SPONDYLOARTHRITIS AND NEUROLOGICAL INFLAMMATION FROM SARCOIDOSIS. AS AN OCULAR RHEUMATOLOGIST, HIS RESEARCH ON HLA-B27+ ANTERIOR UVEITIS LED HIM TO AXIAL SPONDYLOARTHRITIS RESEARCH.IN ADDITION TO FUNDING ECI AWARDS THE ORGANIZATION RECEIVES FUNDING REQUESTS FROM OUTSIDE SOURCES TO SUPPORT RESEARCH RELATED TO SPONDYLOARTHRITIS. SAA CONSIDERS IT IMPERATIVE THAT ANY RESEARCH PROPOSALS MAKE OPTIMAL USE OF THESE LIMITED RESOURCES. THE FOLLOWING SAA FUNDED RESEARCH GRANTS WERE CONDUCTED DURING THIS FISCAL YEAR:-TEJPAL GILL, PHD AT THE OREGON HEALTH & SCIENCE UNIVERSITY - INNOVATIVE STUDY "CHARACTERIZING AUTOIMMUNITY IN ANKYLOSING SPONDYLITIS" EMPLOYS BASIC SCIENCE RESEARCH USING CLINICAL SAMPLES AS WELL AS HLA-B27 TRANSGENIC RAT MODELS OF SPONDYLOARTHRITIS (SPA) TO ELUCIDATE AUTOIMMUNE MECHANISMS UNDERLYING AS PATHOGENESIS.-PAM WEISS, MD- NOVEL JUVENILE SPONDYLOARTHRITIS STUDY OF "ANTI-DRUG ANTIBODY DEVELOPMENT AND THE ROLE OF IMAGING TO SCREEN FOR AXIAL DISEASE FLARE AFTER TNF INHIBITOR DE-ESCALATION." ADDRESSES CRITICAL QUESTIONS BY PARENTS REGARDING THE RAMIFICATIONS OF DE-ESCALATING BIOLOGIC TREATMENTS WHEN DISEASE HAS BEEN INACTIVE. SAA, IN COLLABORATION WITH THE NATIONAL INSTITUTES OF HEALTH (NIH), HOSTED THE 2023 SPONDYLOARTHRITIS UNMET RESEARCH NEEDS CONFERENCE IV AT THE NIH IN BETHESDA, MARYLAND TO DISCUSS THE FUTURE OF SPONDYLOARTHRITIS RESEARCH AND EXISTING GAPS OF KNOWLEDGE AND UNDERSTANDING OF THE DISEASE. THE PRESENTERS WERE WORLD RENOWNED EXPERTS IN THE FOLLOWING SPECIFIC AREAS THAT WERE IDENTIFIED BY THE PLANNING COMMITTEE TO ADDRESS UNMET NEEDS IN SPA RESEARCH: ENDOTYPES (DISEASE SUBTYPES), PAIN, IMAGING, HEALTH DISPARITIES, AND THERAPEUTICS. THIS HIGHLY VALUED SEPTEMBER MEETING CONTINUED THE TRADITION OF EXCELLENCE AND IMPACT ON RESEARCH SEEN IN PREVIOUS CONFERENCES HELD IN 1998, 2006, AND 2017. IN ADDITION TO INVITING THE LEADING SPONDYLOARTHRITIS RESEARCHERS, A CONCERTED EFFORT WAS MADE TO INVITE -AND SPONSOR- RESEARCHERS WHO ARE EARLY IN THEIR CAREERS TO INSPIRE AND ENCOURAGE THEM TO BE THE NEXT GENERATION OF LEADING SCIENTISTS. THESE EARLY CAREER RESEARCHERS WERE NOT ONLY FULL PARTICIPANTS IN THE CONFERENCE, BUT THEY ALSO PRESENTED POSTERS ON THEIR SPONDYLOARTHRITIS RESEARCH. THE CONFERENCE WAS FINANCIALLY SUPPORTED BY CORPORATE SPONSOR NOVARTIS, AND BY A VERY GENEROUS BEQUEST TO SAA.SAA, IN COLLABORATION WITH THE NATIONAL INSTITUTES OF HEALTH (NIH), HOSTED THE 2023 SPONDYLOARTHRITIS UNMET RESEARCH NEEDS CONFERENCE IV AT THE NIH IN BETHESDA, MARYLAND TO DISCUSS THE FUTURE OF SPONDYLOARTHRITIS RESEARCH AND EXISTING GAPS OF KNOWLEDGE AND UNDERSTANDING OF THE DISEASE. THE PRESENTERS WERE WORLD RENOWNED EXPERTS IN THE FOLLOWING SPECIFIC AREAS THAT WERE IDENTIFIED BY THE PLANNING COMMITTEE TO ADDRESS UNMET NEEDS IN SPA RESEARCH: ENDOTYPES (DISEASE SUBTYPES), PAIN, IMAGING, HEALTH DISPARITIES, AND THERAPEUTICS. THIS HIGHLY VALUED SEPTEMBER MEETING CONTINUED THE TRADITION OF EXCELLENCE & IMPACT ON RESEARCH SEEN IN PREVIOUS CONFERENCES HELD IN 1998, 2006, AND 2017. IN ADDITION TO INVITING THE LEADING SPONDYLOARTHRITIS RESEARCHERS, A CONCERTED EFFORT WAS MADE TO INVITE -AND SPONSOR- RESEARCHERS WHO ARE EARLY IN THEIR CAREERS TO INSPIRE AND ENCOURAGE THEM TO BE THE NEXT GENERATION OF LEADING SCIENTISTS. THESE EARLY CAREER RESEARCHERS WERE NOT ONLY FULL PARTICIPANTS IN THE CONFERENCE, BUT THEY ALSO PRESENTED POSTERS ON THEIR SPONDYLOARTHRITIS RESEARCH. THE CONFERENCE WAS FINANCIALLY SUPPORTED BY CORPORATE SPONSOR NOVARTIS, AND BY A VERY GENEROUS BEQUEST TO SAA.Desc
FieldValueIRS element (for citing)
Total Other Prog Srvc Expense$418,736TotalOtherProgSrvcExpenseAmt
Total Other Prog Srvc Grant$159,178TotalOtherProgSrvcGrantAmt
Total Program Service Expenses$2,077,547TotalProgramServiceExpensesAmt
Described In Section501c3Yes (1)DescribedInSection501c3Ind
Schedule B RequiredYes (1)ScheduleBRequiredInd
Political Campaign Acty0PoliticalCampaignActyInd
Lobbying Activities0LobbyingActivitiesInd
Subject To Proxy Tax0SubjectToProxyTaxInd
Donor Advised Fund0DonorAdvisedFundInd
Conservation Easements0ConservationEasementsInd
Collections Of Art0CollectionsOfArtInd
Credit Counseling0CreditCounselingInd
Donor Rstr Or Quasi Endowments0DonorRstrOrQuasiEndowmentsInd
Report Land Building EquipmentYes (1)ReportLandBuildingEquipmentInd
Report Investments Other Sec0ReportInvestmentsOtherSecInd
Report Program Related Invst0ReportProgramRelatedInvstInd
Report Other Assets0ReportOtherAssetsInd
Report Other LiabilitiesYes (1)ReportOtherLiabilitiesInd
Include FIN48 FootnoteYes (1)IncludeFIN48FootnoteInd
Independent Audit Fincl StmtYes (1)IndependentAuditFinclStmtInd
Consolidated Audit Fincl Stmt0ConsolidatedAuditFinclStmtInd
School Operating0SchoolOperatingInd
Foreign Office0ForeignOfficeInd
Foreign Activities0ForeignActivitiesInd
More Than5000 K To Org0MoreThan5000KToOrgInd
More Than5000 K To Individuals0MoreThan5000KToIndividualsInd
Professional Fundraising0ProfessionalFundraisingInd
Fundraising Activities0FundraisingActivitiesInd
Gaming Activities0GamingActivitiesInd
Operate Hospital0OperateHospitalInd
Grants To OrganizationsYes (1)GrantsToOrganizationsInd
Grants To Individuals0GrantsToIndividualsInd
Schedule J RequiredYes (1)ScheduleJRequiredInd
Tax Exempt Bonds0TaxExemptBondsInd
Engaged In Excess Benefit Trans0EngagedInExcessBenefitTransInd
PY Excess Benefit Trans0PYExcessBenefitTransInd
Loan Outstanding0LoanOutstandingInd
Grant To Related Person0GrantToRelatedPersonInd
Business Rln With Org Mem0BusinessRlnWithOrgMemInd
Business Rln With Fam Mem0BusinessRlnWithFamMemInd
Business Rln With35 Ctrl Ent0BusinessRlnWith35CtrlEntInd
Deductible Non Cash Contri0DeductibleNonCashContriInd
Deductible Art Contribution0DeductibleArtContributionInd
Terminate Operations0TerminateOperationsInd
Partial Liquidation0PartialLiquidationInd
Disregarded Entity0DisregardedEntityInd
Related Entity0RelatedEntityInd
Related Organization Ctrl Ent0RelatedOrganizationCtrlEntInd
Trnsfr Exmpt Non Chrtbl Rltd Org0TrnsfrExmptNonChrtblRltdOrgInd
Activities Conducted Prtshp0ActivitiesConductedPrtshpInd
Schedule O RequiredYes (1)ScheduleORequiredInd
IRP Document21IRPDocumentCnt
IRP Document W2 G0IRPDocumentW2GCnt
Employee15EmployeeCnt
Employment Tax Returns FiledYes (1)EmploymentTaxReturnsFiledInd
Unrelated Bus Incm Over Limit0UnrelatedBusIncmOverLimitInd
Foreign Financial Account0ForeignFinancialAccountInd
Prohibited Tax Shelter Trans0ProhibitedTaxShelterTransInd
Taxable Party Notification0TaxablePartyNotificationInd
Nondeductible Contributions0NondeductibleContributionsInd
Quid Pro Quo Contributions0QuidProQuoContributionsInd
Form8282 Property Disposed Of0Form8282PropertyDisposedOfInd
Rcv Fnds To Pay Prsnl Bnft Cntrct0RcvFndsToPayPrsnlBnftCntrctInd
Pay Premiums Prsnl Bnft Cntrct0PayPremiumsPrsnlBnftCntrctInd
Indoor Tanning Services0IndoorTanningServicesInd
Subj To Tax Rmnrtn Ex Prcht Pymt0SubjToTaxRmnrtnExPrchtPymtInd
Subject To Excs Tax Net Invst Inc0SubjectToExcsTaxNetInvstIncInd
Info In Schedule O Part VIYes (X)InfoInScheduleOPartVIInd
Governing Body Voting Members12GoverningBodyVotingMembersCnt
Independent Voting Member12IndependentVotingMemberCnt
Family Or Business Rln0FamilyOrBusinessRlnInd
Delegation Of Mgmt Duties0DelegationOfMgmtDutiesInd
Change To Org Documents0ChangeToOrgDocumentsInd
Material Diversion Or Misuse0MaterialDiversionOrMisuseInd
Members Or Stockholders0MembersOrStockholdersInd
Election Of Board Members0ElectionOfBoardMembersInd
Decisions Subject To Approva0DecisionsSubjectToApprovaInd
Minutes Of Governing BodyYes (1)MinutesOfGoverningBodyInd
Minutes Of CommitteesYes (1)MinutesOfCommitteesInd
Officer Mailing Address0OfficerMailingAddressInd
Local Chapters0LocalChaptersInd
Form990 Provided To Gvrn BodyYes (1)Form990ProvidedToGvrnBodyInd
Conflict Of Interest PolicyYes (1)ConflictOfInterestPolicyInd
Annual Disclosure Covered PrsnYes (1)AnnualDisclosureCoveredPrsnInd
Regular Monitoring EnfrcYes (1)RegularMonitoringEnfrcInd
Whistleblower PolicyYes (1)WhistleblowerPolicyInd
Document Retention PolicyYes (1)DocumentRetentionPolicyInd
Compensation Process CEOYes (1)CompensationProcessCEOInd
Compensation Process OtherYes (1)CompensationProcessOtherInd
Investment In Joint Venture0InvestmentInJointVentureInd
States Where Copy Of Return Is FldCAStatesWhereCopyOfReturnIsFldCd
Own WebsiteYes (X)OwnWebsiteInd
Other WebsiteYes (X)OtherWebsiteInd
Upon RequestYes (X)UponRequestInd

Books In Care Of Detail BooksInCareOfDetail

Business Name BusinessName

FieldValueIRS element (for citing)
Business Name Line1CASSIE SHAFERBusinessNameLine1Txt
FieldValueIRS element (for citing)
Phone8188921616PhoneNum

US Address USAddress

FieldValueIRS element (for citing)
Address Line116430 VENTURA BLVD SUITE 300AddressLine1Txt
CityENCINOCityNm
State AbbreviationCAStateAbbreviationCd
ZIP91436ZIPCd

Form990 Part VII Section A Form990PartVIISectionAGrp (15 entries)

TitleTitleTxtAverage Hours Per WeekAverageHoursPerWeekRtIndividual Trustee Or DirectorIndividualTrusteeOrDirectorIndOfficerOfficerIndReportable Comp From OrgReportableCompFromOrgAmtReportable Comp From Rltd OrgReportableCompFromRltdOrgAmtOther CompensationOtherCompensationAmtHighest Compensated EmployeeHighestCompensatedEmployeeInd
ELLEN CARROLL
SECRETARY2.00Yes (X)Yes (X)$0$0$0
CRAIG GIMBEL
DIRECTOR1.00Yes (X)$0$0$0
ERIC GOLDSTEIN
TREASURER2.00Yes (X)Yes (X)$0$0$0
ERIN ARNOLD
DIRECTOR1.00Yes (X)$0$0$0
ARNOLD M PODOLSKY
DIRECTOR1.00Yes (X)$0$0$0
MARY ANN POLADIAN
DIRECTOR1.00Yes (X)$0$0$0
JILL MILLER
DIRECTOR1.00Yes (X)$0$0$0
MICHAEL PIANIN
BOARD CHAIR2.00Yes (X)Yes (X)$0$0$0
JUDY SMITH
DIRECTOR1.00Yes (X)$0$0$0
JOHN D REVEILLE
DIRECTOR1.00Yes (X)$0$0$0
JAMES ROSENBAUM
DIRECTOR1.00Yes (X)$0$0$0
PAULA OLSIEWSKI
VICE CHAIR2.00Yes (X)Yes (X)$0$0$0
CASSIE SHAFER
CHIEF EXECUTIVE OFFICER40.00Yes (X)$217,717$0$14,250
DIANN PETERSON
CHIEF PHILANTHROPY OFFICER40.00$103,811$0$17,669Yes (X)
RICHARD HOWARD
CHIEF MISSION DELIVERY OFF40.00$118,225$0$16,748Yes (X)
FieldValueIRS element (for citing)
Total Reportable Comp From Org$439,753TotalReportableCompFromOrgAmt
Tot Reportable Comp Rltd Org$0TotReportableCompRltdOrgAmt
Total Other Compensation$48,667TotalOtherCompensationAmt
Indiv Rcvd Greater Than100 K3IndivRcvdGreaterThan100KCnt
Former Ofcr Employees Listed0FormerOfcrEmployeesListedInd
Total Comp Greater Than150 KYes (1)TotalCompGreaterThan150KInd
Compensation From Other Srcs0CompensationFromOtherSrcsInd
Cntrct Rcvd Greater Than100 K0CntrctRcvdGreaterThan100KCnt
All Other Contributions$2,545,839AllOtherContributionsAmt
Total Contributions$2,545,839TotalContributionsAmt

Program Service Revenue ProgramServiceRevenueGrp

FieldValueIRS element (for citing)
DescPROGRAM REVENUEDesc
Business611710BusinessCd
Total Revenue Column$12,793TotalRevenueColumnAmt
Related Or Exempt Func Income$12,793RelatedOrExemptFuncIncomeAmt
FieldValueIRS element (for citing)
Total Program Service Revenue$12,793TotalProgramServiceRevenueAmt

Investment Income InvestmentIncomeGrp

FieldValueIRS element (for citing)
Total Revenue Column$222,426TotalRevenueColumnAmt
Exclusion$222,426ExclusionAmt

Gross Amount Sales Assets GrossAmountSalesAssetsGrp

FieldValueIRS element (for citing)
Securities$200,000SecuritiesAmt

Less Cost Oth Basis Sales Expnss LessCostOthBasisSalesExpnssGrp

FieldValueIRS element (for citing)
Securities$198,188SecuritiesAmt
Other$1,322OtherAmt

Gain Or Loss GainOrLossGrp

FieldValueIRS element (for citing)
Securities$1,812SecuritiesAmt
Other-$1,322OtherAmt

Net Gain Or Loss Investments NetGainOrLossInvestmentsGrp

FieldValueIRS element (for citing)
Total Revenue Column$490TotalRevenueColumnAmt
Exclusion$490ExclusionAmt

Total Revenue TotalRevenueGrp

FieldValueIRS element (for citing)
Total Revenue Column$2,781,548TotalRevenueColumnAmt
Related Or Exempt Func Income$12,793RelatedOrExemptFuncIncomeAmt
Unrelated Business Revenue$0UnrelatedBusinessRevenueAmt
Exclusion$222,916ExclusionAmt

Grants To Domestic Orgs GrantsToDomesticOrgsGrp

FieldValueIRS element (for citing)
Total$159,178TotalAmt
Program Services$159,178ProgramServicesAmt

Comp Current Ofcr Directors CompCurrentOfcrDirectorsGrp

FieldValueIRS element (for citing)
Total$249,822TotalAmt
Program Services$174,875ProgramServicesAmt
Management And General$49,964ManagementAndGeneralAmt
Fundraising$24,983FundraisingAmt

Other Salaries And Wages OtherSalariesAndWagesGrp

FieldValueIRS element (for citing)
Total$1,086,019TotalAmt
Program Services$872,977ProgramServicesAmt
Management And General$168,394ManagementAndGeneralAmt
Fundraising$44,648FundraisingAmt

Pension Plan Contributions PensionPlanContributionsGrp

FieldValueIRS element (for citing)
Total$36,652TotalAmt
Program Services$28,805ProgramServicesAmt
Management And General$5,963ManagementAndGeneralAmt
Fundraising$1,884FundraisingAmt

Other Employee Benefits OtherEmployeeBenefitsGrp

FieldValueIRS element (for citing)
Total$117,909TotalAmt
Program Services$94,137ProgramServicesAmt
Management And General$18,544ManagementAndGeneralAmt
Fundraising$5,228FundraisingAmt

Payroll Taxes PayrollTaxesGrp

FieldValueIRS element (for citing)
Total$96,593TotalAmt
Program Services$73,966ProgramServicesAmt
Management And General$17,194ManagementAndGeneralAmt
Fundraising$5,433FundraisingAmt

Fees For Services Accounting FeesForServicesAccountingGrp

FieldValueIRS element (for citing)
Total$90,311TotalAmt
Management And General$90,311ManagementAndGeneralAmt

Fees For Services Other FeesForServicesOtherGrp

FieldValueIRS element (for citing)
Total$170,488TotalAmt
Program Services$158,005ProgramServicesAmt
Fundraising$12,483FundraisingAmt

Office Expenses OfficeExpensesGrp

FieldValueIRS element (for citing)
Total$120,550TotalAmt
Program Services$83,224ProgramServicesAmt
Management And General$36,353ManagementAndGeneralAmt
Fundraising$973FundraisingAmt

Information Technology InformationTechnologyGrp

FieldValueIRS element (for citing)
Total$77,887TotalAmt
Program Services$71,937ProgramServicesAmt
Management And General$3,650ManagementAndGeneralAmt
Fundraising$2,300FundraisingAmt

Occupancy OccupancyGrp

FieldValueIRS element (for citing)
Total$51,816TotalAmt
Program Services$36,066ProgramServicesAmt
Management And General$12,550ManagementAndGeneralAmt
Fundraising$3,200FundraisingAmt

Travel TravelGrp

FieldValueIRS element (for citing)
Total$90,864TotalAmt
Program Services$89,230ProgramServicesAmt
Fundraising$1,634FundraisingAmt

Conferences Meetings ConferencesMeetingsGrp

FieldValueIRS element (for citing)
Total$113,756TotalAmt
Program Services$113,756ProgramServicesAmt

Depreciation Depletion DepreciationDepletionGrp

FieldValueIRS element (for citing)
Total$21,520TotalAmt
Program Services$16,733ProgramServicesAmt
Management And General$3,212ManagementAndGeneralAmt
Fundraising$1,575FundraisingAmt

Other Expenses OtherExpensesGrp (3 entries)

DescDescTotalTotalAmtProgram ServicesProgramServicesAmtManagement And GeneralManagementAndGeneralAmt
DESIGN AND PRINTING$71,916$60,981$10,935
POSTAGE$53,798$36,973$16,825
STATE LICENSING$6,704$6,704

Total Functional Expenses TotalFunctionalExpensesGrp

FieldValueIRS element (for citing)
Total$2,615,783TotalAmt
Program Services$2,077,547ProgramServicesAmt
Management And General$433,895ManagementAndGeneralAmt
Fundraising$104,341FundraisingAmt

Cash Non Interest Bearing CashNonInterestBearingGrp

FieldValueIRS element (for citing)
BOY$350,400BOYAmt
EOY$266,538EOYAmt

Savings And Temp Cash Invst SavingsAndTempCashInvstGrp

FieldValueIRS element (for citing)
BOY$7,092,825BOYAmt
EOY$7,157,125EOYAmt

Accounts Receivable AccountsReceivableGrp

FieldValueIRS element (for citing)
EOY$103,031EOYAmt

Prepaid Expenses Defrd Charges PrepaidExpensesDefrdChargesGrp

FieldValueIRS element (for citing)
BOY$25,276BOYAmt
EOY$20,033EOYAmt
FieldValueIRS element (for citing)
Land Bldg Equip Cost Or Other Bss$44,645LandBldgEquipCostOrOtherBssAmt
Land Bldg Equip Accum Deprec$30,139LandBldgEquipAccumDeprecAmt

Land Bldg Equip Basis Net LandBldgEquipBasisNetGrp

FieldValueIRS element (for citing)
BOY$20,136BOYAmt
EOY$14,506EOYAmt

Investments Pub Traded Sec InvestmentsPubTradedSecGrp

FieldValueIRS element (for citing)
BOY$313,090BOYAmt
EOY$315,825EOYAmt

Intangible Assets IntangibleAssetsGrp

FieldValueIRS element (for citing)
BOY$24,657BOYAmt
EOY$9,862EOYAmt

Other Assets Total OtherAssetsTotalGrp

FieldValueIRS element (for citing)
BOY$3,618BOYAmt
EOY$198,086EOYAmt

Total Assets TotalAssetsGrp

FieldValueIRS element (for citing)
BOY$7,830,002BOYAmt
EOY$8,085,006EOYAmt

Accounts Payable Accr Expnss AccountsPayableAccrExpnssGrp

FieldValueIRS element (for citing)
BOY$413,366BOYAmt
EOY$184,796EOYAmt

Other Liabilities OtherLiabilitiesGrp

FieldValueIRS element (for citing)
BOY$0BOYAmt
EOY$196,966EOYAmt

Total Liabilities TotalLiabilitiesGrp

FieldValueIRS element (for citing)
BOY$413,366BOYAmt
EOY$381,762EOYAmt
FieldValueIRS element (for citing)
Organization Follows FASB117Yes (X)OrganizationFollowsFASB117Ind

No Donor Restriction Net Assets NoDonorRestrictionNetAssetsGrp

FieldValueIRS element (for citing)
BOY$4,497,313BOYAmt
EOY$4,642,591EOYAmt

Donor Restriction Net Assets DonorRestrictionNetAssetsGrp

FieldValueIRS element (for citing)
BOY$2,919,323BOYAmt
EOY$3,060,653EOYAmt

Total Net Assets Fund Balance TotalNetAssetsFundBalanceGrp

FieldValueIRS element (for citing)
BOY$7,416,636BOYAmt
EOY$7,703,244EOYAmt

Tot Liab Net Assets Fund Balance TotLiabNetAssetsFundBalanceGrp

FieldValueIRS element (for citing)
BOY$7,830,002BOYAmt
EOY$8,085,006EOYAmt
FieldValueIRS element (for citing)
Reconcilation Revenue Expnss$165,765ReconcilationRevenueExpnssAmt
Net Unrlzd Gains Losses Invst$120,843NetUnrlzdGainsLossesInvstAmt
Other Changes In Net Assets$0OtherChangesInNetAssetsAmt
Info In Schedule O Part XIIYes (X)InfoInScheduleOPartXIIInd
Method Of Accounting AccrualYes (X)MethodOfAccountingAccrualInd
Accountant Compile Or Review0AccountantCompileOrReviewInd
FS AuditedYes (1)FSAuditedInd

FS Audited Basis FSAuditedBasisGrp

FieldValueIRS element (for citing)
Separate Basis Fincl StmtYes (X)SeparateBasisFinclStmtInd
FieldValueIRS element (for citing)
Audit CommitteeYes (1)AuditCommitteeInd
Federal Grant Audit Required0FederalGrantAuditRequiredInd

Schedule A IRS990ScheduleA

FieldValueIRS element (for citing)
Public Organization170Yes (X)PublicOrganization170Ind

Gifts Grants Contri Rcvd170 GiftsGrantsContriRcvd170Grp

FieldValueIRS element (for citing)
Current Tax Year Minus4 Years$2,181,281CurrentTaxYearMinus4YearsAmt
Current Tax Year Minus3 Years$2,996,504CurrentTaxYearMinus3YearsAmt
Current Tax Year Minus2 Years$5,505,466CurrentTaxYearMinus2YearsAmt
Current Tax Year Minus1 Year$2,200,809CurrentTaxYearMinus1YearAmt
Current Tax Year$2,545,839CurrentTaxYearAmt
Total$15,429,899TotalAmt

Total Calendar Year170 TotalCalendarYear170Grp

FieldValueIRS element (for citing)
Current Tax Year Minus4 Years$2,181,281CurrentTaxYearMinus4YearsAmt
Current Tax Year Minus3 Years$2,996,504CurrentTaxYearMinus3YearsAmt
Current Tax Year Minus2 Years$5,505,466CurrentTaxYearMinus2YearsAmt
Current Tax Year Minus1 Year$2,200,809CurrentTaxYearMinus1YearAmt
Current Tax Year$2,545,839CurrentTaxYearAmt
Total$15,429,899TotalAmt
FieldValueIRS element (for citing)
Substantial Contributors Tot$7,311,418SubstantialContributorsTotAmt
Public Support Total170$8,118,481PublicSupportTotal170Amt

Gross Investment Income170 GrossInvestmentIncome170Grp

FieldValueIRS element (for citing)
Current Tax Year Minus4 Years$65,844CurrentTaxYearMinus4YearsAmt
Current Tax Year Minus3 Years$61,787CurrentTaxYearMinus3YearsAmt
Current Tax Year Minus2 Years$51,298CurrentTaxYearMinus2YearsAmt
Current Tax Year Minus1 Year$142,607CurrentTaxYearMinus1YearAmt
Current Tax Year$222,426CurrentTaxYearAmt
Total$543,962TotalAmt
FieldValueIRS element (for citing)
Total Support$15,973,861TotalSupportAmt
Gross Receipts Rltd Activities$33,988GrossReceiptsRltdActivitiesAmt
Public Support CY1700.50820PublicSupportCY170Pct
Public Support PY1700.49060PublicSupportPY170Pct
Thirty Thr Pct Suprt Tests CY170Yes (X)ThirtyThrPctSuprtTestsCY170Ind

Schedule B IRS990ScheduleB

Contributor Information ContributorInformationGrp

FieldValueIRS element (for citing)
ContributorRESTRICTEDContributorNum

Contributor Business Name ContributorBusinessName

FieldValueIRS element (for citing)
Business Name Line1RESTRICTEDBusinessNameLine1

Contributor US Address ContributorUSAddress

FieldValueIRS element (for citing)
Address Line1RESTRICTEDAddressLine1
Address Line2RESTRICTEDAddressLine2
CityRESTRICTEDCity
StateRESTRICTEDState
ZIP CodeRESTRICTEDZIPCode
FieldValueIRS element (for citing)
Total ContributionsRESTRICTEDTotalContributionsAmt

Schedule D IRS990ScheduleD

Equipment EquipmentGrp

FieldValueIRS element (for citing)
Other Cost Or Other Basis$33,552OtherCostOrOtherBasisAmt
Depreciation$21,379DepreciationAmt
Book Value$12,173BookValueAmt

Other Land Buildings OtherLandBuildingsGrp

FieldValueIRS element (for citing)
Other Cost Or Other Basis$11,093OtherCostOrOtherBasisAmt
Depreciation$8,760DepreciationAmt
Book Value$2,333BookValueAmt
FieldValueIRS element (for citing)
Total Book Value Land Buildings$14,506TotalBookValueLandBuildingsAmt

Other Liabilities Org OtherLiabilitiesOrgGrp

FieldValueIRS element (for citing)
DescOPERATING LEASE LIABILITYDesc
Amt$196,966Amt
FieldValueIRS element (for citing)
Total Liability$196,966TotalLiabilityAmt
Footnote TextYes (X)FootnoteTextInd
Total Rev Etc Audited Fincl Stmt$2,902,391TotalRevEtcAuditedFinclStmtAmt
Net Unrealized Gains Invst$120,843NetUnrealizedGainsInvstAmt
Revenue Not Reported$120,843RevenueNotReportedAmt
Revenue Subtotal$2,781,548RevenueSubtotalAmt
Revenue Not Reported Fincl Stmt$0RevenueNotReportedFinclStmtAmt
Total Revenue Per Form990$2,781,548TotalRevenuePerForm990Amt
Tot Expns Etc Audited Fincl Stmt$2,615,783TotExpnsEtcAuditedFinclStmtAmt
Expenses Not Reported$0ExpensesNotReportedAmt
Expenses Subtotal$2,615,783ExpensesSubtotalAmt
Expenses Not Rpt Fincl Stmt$0ExpensesNotRptFinclStmtAmt
Total Expenses Per Form990$2,615,783TotalExpensesPerForm990Amt

Supplemental Information Detail SupplementalInformationDetail

FieldValueIRS element (for citing)
Form And Line ReferencePART X, LINE 2:FormAndLineReferenceDesc
ExplanationACCOUNTING STANDARDS REQUIRE AN ORGANIZATION TO EVALUATE ITS TAX POSITIONS AND PROVIDE FOR A LIABILITY FOR ANY POSITIONS THAT WOULD NOT BE CONSIDERED 'MORE LIKELY THAN NOT' TO BE UPHELD UNDER A TAX AUTHORITY EXAMINATION. MANAGEMENT HAS EVALUATED ITS TAX POSITIONS AND HAS CONCLUDED THAT A PROVISION FOR A TAX LIABILITY IS NOT NECESSARY AT JUNE 30, 2024. GENERALLY, THE ORGANIZATION'S INFORMATION RETURNS REMAIN OPEN FOR EXAMINATION FOR A PERIOD OF THREE (FEDERAL) OR FOUR (STATE OF CALIFORNIA) YEARS FROM THE DATE OF FILING.ExplanationTxt

Schedule I IRS990ScheduleI

FieldValueIRS element (for citing)
Grant Records MaintainedYes (1)GrantRecordsMaintainedInd

Recipient Table RecipientTable (2 entries)

Address Line1USAddress/AddressLine1TxtCityUSAddress/CityNmState AbbreviationUSAddress/StateAbbreviationCdZIPUSAddress/ZIPCdRecipient EINRecipientEINIRC SectionIRCSectionDescCash GrantCashGrantAmtNon Cash AssistanceNonCashAssistanceAmtPurpose Of GrantPurposeOfGrantTxt
WASHINGTON UNIVERSITY IN ST LOUIS
7425 FORSYTH BLVD MSC 1299-414-355ST LOUISMO63105430653611501C(3)$30,000$0EARLY INVESTIGATOR AWARD
OREGON HEALTH & SCIENCE UNIVERSITY FOUNDATION
3181 SW SAM JACKSON PARK RDPORTLANDOR97239237083114501C(3)$129,178$0CHARACTERIZING AUTOIMMUNITY IN AS
FieldValueIRS element (for citing)
Total501c3 Org2Total501c3OrgCnt

Supplemental Information Detail SupplementalInformationDetail

FieldValueIRS element (for citing)
Form And Line ReferencePART I, LINE 2:FormAndLineReferenceDesc
ExplanationRESEARCHERS ARE REQUIRED TO PROVIDE THE ORGANIZATION WITH PROGRESS REPORTS BASED ON A VARIETY OF MILESTONES INDIVIDUAL TO EACH STUDY, AND TO ENSURE THAT ANY PUBLICATION IN PEER REVIEW ACKNOWLEDGES THE ORGANIZATION'S FUNDING SUPPORT TOWARD THE EFFORT.ExplanationTxt

Schedule J IRS990ScheduleJ

FieldValueIRS element (for citing)
Board Or Committee ApprovalYes (X)BoardOrCommitteeApprovalInd
Severance Payment0SeverancePaymentInd
Supplemental Nonqual Rtr Plan0SupplementalNonqualRtrPlanInd
Equity Based Comp Arrngm0EquityBasedCompArrngmInd
Comp Based On Revenue Of Flng Org0CompBasedOnRevenueOfFlngOrgInd
Comp Bsd On Rev Related Orgs0CompBsdOnRevRelatedOrgsInd
Comp Bsd Net Earns Flng Org0CompBsdNetEarnsFlngOrgInd
Comp Bsd Net Earns Rltd Orgs0CompBsdNetEarnsRltdOrgsInd
Any Non Fixed Payments0AnyNonFixedPaymentsInd
Initial Contract Exception0InitialContractExceptionInd

Rltd Org Officer Trst Key Empl RltdOrgOfficerTrstKeyEmplGrp

FieldValueIRS element (for citing)
PersonCASSIE SHAFERPersonNm
TitleCHIEF EXECUTIVE OFFICERTitleTxt
Base Compensation Filing Org$217,717BaseCompensationFilingOrgAmt
Compensation Based On Rltd Orgs$0CompensationBasedOnRltdOrgsAmt
Bonus Filing Organization$0BonusFilingOrganizationAmount
Bonus Related Organizations$0BonusRelatedOrganizationsAmt
Other Compensation Filing Org$0OtherCompensationFilingOrgAmt
Other Compensation Rltd Orgs$0OtherCompensationRltdOrgsAmt
Deferred Compensation Flng Org$14,250DeferredCompensationFlngOrgAmt
Deferred Comp Rltd Orgs$0DeferredCompRltdOrgsAmt
Nontaxable Benefits Filing Org$0NontaxableBenefitsFilingOrgAmt
Nontaxable Benefits Rltd Orgs$0NontaxableBenefitsRltdOrgsAmt
Total Compensation Filing Org$231,967TotalCompensationFilingOrgAmt
Total Compensation Rltd Orgs$0TotalCompensationRltdOrgsAmt
Comp Report Prior990 Filing Org$0CompReportPrior990FilingOrgAmt
Comp Report Prior990 Rltd Orgs$0CompReportPrior990RltdOrgsAmt

Schedule O IRS990ScheduleO

Supplemental Information Detail SupplementalInformationDetail (5 entries)

Form And Line ReferenceFormAndLineReferenceDescExplanationExplanationTxt
FORM 990, PART VI, SECTION B, LINE 11BTHE AUDIT COMMITTEE REVIEWS THE DOCUMENT PRIOR TO ITS DISTRIBUTION TO THE ENTIRE BOARD FOR REVIEW.
FORM 990, PART VI, SECTION B, LINE 12CALL DIRECTORS AND SENIOR EMPLOYEES ARE REQUIRED TO COMPLETE AND SIGN A DISCLOSURE FORM LISTING ANY POTENTIAL CONFLICTS OF INTEREST BY SEPTEMBER 30, ANNUALLY.
FORM 990, PART VI, SECTION B, LINE 15THE ORGANIZATION UTILIZES CURRENT COMPENSATION DATA PUBLISHED BY THE NATIONAL HEALTH COUNCIL AND THE AMERICAN SOCIETY OF ASSOCIATION EXECUTIVES, AND OTHER FACTORS IN ORDER TO DETERMINE COMPENSATION.
FORM 990, PART VI, SECTION C, LINE 19THE ORGANIZATION PRODUCES AN ANNUAL REPORT THAT IS PUBLISHED ON ITS WEBSITE
FORM 990, PART XII, LINE 2CTHE ORGANIZATION'S AUDIT COMMITTEE HAS RESPONSIBILITY FOR THE OVERSIGHT OF THE AUDIT OF ITS FINANCIAL STATEMENTS AND SELECTION OF THE INDEPENDENT AUDITOR, SUBJECT TO THE APPROVAL OF THE BOARD OF DIRECTORS. THIS RESPONSIBILITY IS UNCHANGED FROM THE PRIOR YEAR.

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