SPONDYLITIS ASSOCIATION OF AMERICA: Form 990, tax year 2017
View the entire original 990 at ProPublica ↗
- Organization
- SPONDYLITIS ASSOCIATION OF AMERICA (EIN 95-3890767)
- Tax period
- 2017-07-01 to 2018-06-30
- Filed
- 2018-09-28
- IRS object ID
- 201832719349300623
- Schema version
- 2017v2.3
- Source
- Download XML · Original 990 at ProPublica
Every field in the e-filed return. Faint text is the IRS element name, for citing.
Return header ReturnHeader
| Field | Value | IRS element (for citing) |
|---|---|---|
| Return | 2018-09-28T14:09:44-05:00 | ReturnTs |
| Tax Period End | 2018-06-30 | TaxPeriodEndDt |
Preparer Firm PreparerFirmGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Preparer Firm EIN | 320530003 | PreparerFirmEIN |
Preparer Firm Name PreparerFirmName
| Field | Value | IRS element (for citing) |
|---|---|---|
| Business Name Line1 | QUIGLEY & MIRON | BusinessNameLine1Txt |
Preparer US Address PreparerUSAddress
| Field | Value | IRS element (for citing) |
|---|---|---|
| Address Line1 | 3550 WILSHIRE BLVD 1660 | AddressLine1Txt |
| City | LOS ANGELES | CityNm |
| State Abbreviation | CA | StateAbbreviationCd |
| ZIP | 90010 | ZIPCd |
| Field | Value | IRS element (for citing) |
|---|---|---|
| Return Type | 990 | ReturnTypeCd |
| Tax Period Begin | 2017-07-01 | TaxPeriodBeginDt |
Filer Filer
| Field | Value | IRS element (for citing) |
|---|---|---|
| EIN | 953890767 | EIN |
Business Name BusinessName
| Field | Value | IRS element (for citing) |
|---|---|---|
| Business Name Line1 | SPONDYLITIS ASSOCIATION OF AMERICA | BusinessNameLine1Txt |
| Field | Value | IRS element (for citing) |
|---|---|---|
| Business Name Control | SPON | BusinessNameControlTxt |
| Phone | 8188921616 | PhoneNum |
US Address USAddress
| Field | Value | IRS element (for citing) |
|---|---|---|
| Address Line1 | 16360 ROSCOE BLVD NO 100 | AddressLine1Txt |
| City | VAN NUYS | CityNm |
| State Abbreviation | CA | StateAbbreviationCd |
| ZIP | 91406 | ZIPCd |
Business Officer BusinessOfficerGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Person | CASSIE SHAFER | PersonNm |
| Person Title | CHIEF EXECUTIVE OFFICER | PersonTitleTxt |
| Phone | 8188921616 | PhoneNum |
| Signature | 2018-09-28 | SignatureDt |
Preparer Person PreparerPersonGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Preparer Person | ARMEN GRIGORIAN | PreparerPersonNm |
| PTIN | P01582463 | PTIN |
| Phone | 2136393550 | PhoneNum |
Filing Security Information FilingSecurityInformation
IP Address IPAddress
| Field | Value | IRS element (for citing) |
|---|---|---|
| I Pv4 Address | 99.88.83.161 | IPv4AddressTxt |
| Field | Value | IRS element (for citing) |
|---|---|---|
| IP | 2018-09-28 | IPDt |
| IP Tm | 12:00:50 | IPTm |
| IP Timezone | PD | IPTimezoneCd |
| Filing License Type | P | FilingLicenseTypeCd |
| At Submission Creation Device Id | 0F0FD845D2A008496BEE8EAEB3220CD5F79CC4B9 | AtSubmissionCreationDeviceId |
| At Submission Filing Device Id | C1988052032BF7E796496D37049D37B62C620639 | AtSubmissionFilingDeviceId |
| Field | Value | IRS element (for citing) |
|---|---|---|
| Tax | 2017 | TaxYr |
| Build TS | 2018-06-14 16:35:46Z | BuildTS |
Form 990 IRS990
| Field | Value | IRS element (for citing) |
|---|---|---|
| Principal Officer | CASSIE SHAFER | PrincipalOfficerNm |
US Address USAddress
| Field | Value | IRS element (for citing) |
|---|---|---|
| Address Line1 | 16360 ROSCOE BLVD NO 100 | AddressLine1Txt |
| City | VAN NUYS | CityNm |
| State Abbreviation | CA | StateAbbreviationCd |
| ZIP | 91406 | ZIPCd |
| Field | Value | IRS element (for citing) |
|---|---|---|
| Gross Receipts | $3,757,699 | GrossReceiptsAmt |
| Group Return For Affiliates | 0 | GroupReturnForAffiliatesInd |
| Organization501c3 | Yes (X) | Organization501c3Ind |
| Website Address | WWW.SPONDYLITIS.ORG | WebsiteAddressTxt |
| Type Of Organization Corp | Yes (X) | TypeOfOrganizationCorpInd |
| Formation | 1983 | FormationYr |
| Legal Domicile State | CA | LegalDomicileStateCd |
| Activity Or Mission | ADVANCING RESEARCH, ACCELERATED DIAGNOSIS, OPTIMUM TREATMENT, PUBLIC AWARENESS, AND HEALTH CARE | ActivityOrMissionDesc |
| Voting Members Governing Body | 12 | VotingMembersGoverningBodyCnt |
| Voting Members Independent | 12 | VotingMembersIndependentCnt |
| Total Employee | 12 | TotalEmployeeCnt |
| Total Volunteers | 115 | TotalVolunteersCnt |
| Total Gross UBI | $0 | TotalGrossUBIAmt |
| Net Unrelated Bus Txbl Incm | $0 | NetUnrelatedBusTxblIncmAmt |
| PY Contributions Grants | $1,666,271 | PYContributionsGrantsAmt |
| CY Contributions Grants | $2,635,511 | CYContributionsGrantsAmt |
| PY Program Service Revenue | $6,118 | PYProgramServiceRevenueAmt |
| CY Program Service Revenue | $5,375 | CYProgramServiceRevenueAmt |
| PY Investment Income | $35,351 | PYInvestmentIncomeAmt |
| CY Investment Income | $41,534 | CYInvestmentIncomeAmt |
| PY Other Revenue | $0 | PYOtherRevenueAmt |
| CY Other Revenue | $0 | CYOtherRevenueAmt |
| PY Total Revenue | $1,707,740 | PYTotalRevenueAmt |
| CY Total Revenue | $2,682,420 | CYTotalRevenueAmt |
| PY Grants And Similar Paid | $50,000 | PYGrantsAndSimilarPaidAmt |
| CY Grants And Similar Paid | $211,316 | CYGrantsAndSimilarPaidAmt |
| PY Benefits Paid To Members | $0 | PYBenefitsPaidToMembersAmt |
| CY Benefits Paid To Members | $0 | CYBenefitsPaidToMembersAmt |
| PY Salaries Comp Emp Bnft Paid | $691,462 | PYSalariesCompEmpBnftPaidAmt |
| CY Salaries Comp Emp Bnft Paid | $833,268 | CYSalariesCompEmpBnftPaidAmt |
| PY Total Prof Fndrsng Expns | $0 | PYTotalProfFndrsngExpnsAmt |
| CY Total Prof Fndrsng Expns | $0 | CYTotalProfFndrsngExpnsAmt |
| CY Total Fundraising Expense | $83,888 | CYTotalFundraisingExpenseAmt |
| PY Other Expenses | $559,592 | PYOtherExpensesAmt |
| CY Other Expenses | $790,643 | CYOtherExpensesAmt |
| PY Total Expenses | $1,301,054 | PYTotalExpensesAmt |
| CY Total Expenses | $1,835,227 | CYTotalExpensesAmt |
| PY Revenues Less Expenses | $406,686 | PYRevenuesLessExpensesAmt |
| CY Revenues Less Expenses | $847,193 | CYRevenuesLessExpensesAmt |
| Total Assets BOY | $2,780,357 | TotalAssetsBOYAmt |
| Total Assets EOY | $3,559,276 | TotalAssetsEOYAmt |
| Total Liabilities BOY | $108,351 | TotalLiabilitiesBOYAmt |
| Total Liabilities EOY | $54,813 | TotalLiabilitiesEOYAmt |
| Net Assets Or Fund Balances BOY | $2,672,006 | NetAssetsOrFundBalancesBOYAmt |
| Net Assets Or Fund Balances EOY | $3,504,463 | NetAssetsOrFundBalancesEOYAmt |
| Info In Schedule O Part III | Yes (X) | InfoInScheduleOPartIIIInd |
| Mission | ADVANCING AND DIRECTLY SPONSORING AXIAL SPONDYLOARTHRITIS RESEARCH, ACCELERATING DIAGNOSIS, SUPPORTING OPTIMUM TREATMENT FOR THE INDIVIDUAL, ADVANCING AWARENESS, AND PUBLIC AND HEALTH CARE PROFESSIONAL EDUCATION IN AXIAL SPONDYLOARTHRITIS. | MissionDesc |
| Significant New Program Srvc | 0 | SignificantNewProgramSrvcInd |
| Significant Change | 0 | SignificantChangeInd |
| Expense | $597,108 | ExpenseAmt |
| Revenue | $5,375 | RevenueAmt |
| Desc | PATIENT CONFERENCES, SEMINARS, AND SUPPORTTHE ORGANIZATION SPONSORED PATIENT EDUCATION AND SUPPORT PROGRAMS THROUGH THE USE OF VARIOUS MEDIA. THE INTERACTIVE WEBSITE LOCATED AT SPONDYLITIS.ORG SERVES MORE THAN 500,000 UNIQUE VISITORS PER QUARTER BASED ON GOOGLE ANALYTICS REPORTS. THIS AS LIFE LIVE (TASLL)-DAN REYNOLDS AND NOVARTIS PHARMACEUTICALS HAVE PARTNERED WITH THE ORGANIZATION TO BRING AN INTERACTIVE ONLINE TALK SHOW VIDEO SERIES, THIS AS LIFE LIVE (TASLL), TO LIFE. THE ORGANIZATION PROVIDES GUIDANCE ON THE PROJECT, SUGGESTS INTERVIEWEES, ATTENDS THE VIDEO SHOOTS, AND ENSURES ACCURACY OF SPA INFORMATION RECORDED AND SHARED. A TOTAL OF SIX EPISODES WERE RELEASED DURING THE YEAR ENDED JUNE 30, 2018 AND A TOTAL OF NINE EPISODES HAVE BEEN RELEASED SINCE THE PROJECT LAUNCHED AT THE BEGINNING OF 2016.LIFE IMPACT SURVEY-A SURVEY WAS CONDUCTED WITH PATIENTS TO IDENTIFY THE PROPORTION OF PATIENTS WITH DELAYED DIAGNOSIS, REASONS, AND TREATMENT. THINK SPONDYLITIS AWARENESS CAMPAIGN-THE ORGANIZATION DESIGNED AND PROVIDED CUSTOM-MADE THINK SPONDYLITIS POSTCARDS AND INVITED THE ORGANIZATION'S MEMBERSHIP AND CONSTITUENTS TO SEND THESE CARDS WITH PERSONAL MESSAGES TO PHYSICIANS, WITH THE GOAL OF RAISING AWARENESS AMONG MEDICAL PROFESSIONALS, IN HONOR OF SPONDYLITIS AWARENESS MONTH AND WORLD AS DAY. WHITE BOARD ANIMATION VIDEO RELEASE: HAVE YOU BEEN DIAGNOSED WITH SPONDYLITIS?-THIS VIDEO SERIES IS TARGETED TO THE NEWLY DIAGNOSED WITH THE AIM OF INTRODUCING THE ORGANIZATION AND RESOURCES IT OFFERS.SPONDYLITIS PLUS-MEMBERS OF THE SPONDYLITIS ASSOCIATION OF AMERICA RECEIVE A COPY OF THE ORGANIZATION'S PRINT PUBLICATION SPONDYLITIS PLUS FREE OF CHARGE, ON A QUARTERLY BASIS. MORE THAN 5,000 COPIES ARE DISTRIBUTED QUARTERLY.ESUN-MORE THAN 24,000 PEOPLE ARE SUBSCRIBED TO AND RECEIVE THE ORGANIZATION'S MONTHLY SPONDYLITIS EDUCATION AND AWARENESS E-NEWSLETTER. | Desc |
Prog Srvc Accom Acty2 ProgSrvcAccomActy2Grp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Expense | $252,529 | ExpenseAmt |
| Desc | AWARENESS AND SUPPORT GROUPS-THE ORGANIZATION'S SUPPORT GROUPS CONTINUE TO BE ACTIVE ACROSS THE UNITED STATES, NUMBERING MORE THAN 39 GROUPS AND 50 LEADERS WITH OVER 100 MEETINGS HELD THROUGHOUT 2017. A TWO-DAY FORMAL SUPPORT GROUP LEADER TRAINING WAS HELD IN DENVER, COLORADO IN APRIL 2018, WITH 32 SUPPORT GROUP LEADERS ATTENDING. | Desc |
Prog Srvc Accom Acty3 ProgSrvcAccomActy3Grp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Expense | $160,566 | ExpenseAmt |
| Desc | PHYSICIAN EDUCATION-THE ORGANIZATION ATTENDED AND EXHIBITED AT THE NOVEMBER 2017 AMERICAN COLLEGE OF RHEUMATOLOGY CONFERENCE (ACR) IN SAN DIEGO, CALIFORNIA. IN CONNECTION WITH THIS EVENT, THE ORGANIZATION HELD ITS SPA EDUCATION SEMINAR AND IN-PERSON MEDICAL AND SCIENTIFIC ADVISORY BOARD MEETING.PRIMARY CARE MEDICAL CONFERENCES (PRIMED)-IN AN EFFORT TO INCREASE EDUCATION AND AWARENESS, IMPROVE EARLIER DIAGNOSIS OF THE DISEASE WITH PRIMARY CARE PHYSICIANS, AND, ULTIMATELY, REFERRAL TO RHEUMATOLOGISTS, THE ORGANIZATION MADE A STRATEGIC DECISION TO INCREASE ITS PRESENCE BY EXHIBITING AT FIVE ANNUAL NATIONWIDE/REGIONAL CONFERENCES THROUGHOUT THE UNITED STATES. IN THE SPRING OF 2018, THE ORGANIZATION EXHIBITED IN FT LAUDERDALE, FLORIDA; HOUSTON, TEXAS; AND ANAHEIM, CALIFORNIA. MORE THAN 1,000 LEADS FOR ADDITIONAL INFORMATION FROM HEALTHCARE PROVIDERS HAVE BEEN GENERATED FROM THE ORGANIZATION'S ATTENDANCE TO DATE. ADDITIONAL LOCATIONS ARE SCHEDULED IN THE FALL OF 2018. A SECOND PHASE OF THIS STRATEGY FOR 2018-19 WILL BE TO CONTINUE EXHIBITING AND SEEKING FUNDING FOR UNBRANDED PRESENTATIONS TO BE LED BY RHEUMATOLOGISTS IN THE REGION OF THE CONFERENCE.SPONDYLOARTHRITIS RESEARCH AND TREATMENT NETWORK (SPARTAN)-EACH YEAR, THE ORGANIZATION PARTICIPATES IN THE SPARTAN CONFERENCE. IN 2017, IT WAS HELD IN BOSTON, MASSACHUSETTS. ONE OF THE KEY AREAS ON THE AGENDA WERE BREAKOUT SESSIONS DEVOTED TO DISCUSSIONS, FOLLOW-UP, AND NEXT STEPS FROM THE ORGANIZATION'S UNMET NEEDS CONFERENCE. EUROPEAN CONGRESS OF RHEUMATOLOGY (EULAR)-IN JUNE 2017, THE ORGANIZATION ATTENDED EULAR, SHARING EXHIBIT SPACE WITH THE ANKYLOSING SPONDYLITIS INTERNATIONAL FEDERATION (ASIF). THREE SPONDYLITIS ASSOCIATION OF AMERICA ABSTRACTS AND ONE POSTER SESSION (FROM THE ORGANIZATION'S LIFE IMPACT SURVEY) WERE PRESENTED AT THIS CONFERENCE.ACR/SAA/SPARTAN TREATMENT GUIDELINES UPDATE-ACR AND THE ORGANIZATION ARE FUNDING PARTNERS IN THIS UPDATE, SCHEDULED TO BE RELEASED IN LATE 2018 OR EARLY 2019. THE ORGANIZATION HAS IDENTIFIED AND RECRUITED TWO PATIENTS TO BE INCLUDED ON THE VOTING PANEL WHO WILL REPRESENT THE PATIENT VOICE AND TAKE PART IN THE DECISION-MAKING PROCESS. THE ORGANIZATION REMAINS CLOSELY ENGAGED AND INVOLVED THROUGHOUT THE MEETING PROCESS. | Desc |
Prog Srvc Accom Acty Other ProgSrvcAccomActyOtherGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Expense | $479,369 | ExpenseAmt |
| Grant | $211,316 | GrantAmt |
| Desc | SPONDYLOARTHRITIS 2017: UNMET NEEDS CONFERENCE III-FOR TWO DAYS IN SEPTEMBER 2017, THE ORGANIZATION BROUGHT TOGETHER AN INTERNATIONAL GROUP OF LEADING RESEARCHERS TO THE NATIONAL INSTITUTES OF HEALTH (NIH) IN BETHESDA, MARYLAND, TO IDENTIFY PRESSING GAPS, SHARE INSIGHTS, DISCUSS SCIENTIFIC AND TREATMENT ISSUES, AND PROVIDE DIRECTION FOR THE NEXT DECADE OF SPONDYLOARTHRITIS RESEARCH. THE SPONDYLOARTHRITIS 2017: UNMET NEEDS CONFERENCE III, HOSTED BY THE ORGANIZATION IN COLLABORATION WITH THE NATIONAL INSTITUTE OF ARTHRITIS, MUSCULOSKELETAL AND SKIN DISEASES (NIAMS), GENERATED INTERDISCIPLINARY COLLABORATION AMONG RESEARCHERS AND CLINICIANS, AND OPENED NEW AREAS OF INVESTIGATION TO EXPAND THE BREADTH AND DEPTH OF SPONDYLOARTHRITIS RESEARCH. THE GOAL OF THIS CONFERENCE WAS TO GATHER LEADING EXPERTS IN THEIR FIELDS TO NOT ONLY DISCUSS THE PROGRESS MADE TO DATE, BUT TO ALSO EXAMINE THE ROAD THAT LIES AHEAD IN TERMS OF RESEARCH AND TREATMENT OF ALL THE CONDITIONS ASSOCIATED WITH THIS DISEASE.EARLY CAREER INVESTIGATOR AWARDS (ECI)-TWO ECI AWARDS WERE PRESENTED IN 2018 FOR A TOTAL OF $40,000 ($20,000 EACH). THEY WERE AWARDED TO THE FOLLOWING INSTITUTIONS:- BOSTON UNIVERSITY AND THE BOSTON VA - DR. MAUREEN DUBREUIL, A RHEUMATOLOGIST AND RESEARCHER AT BOSTON UNIVERSITY AND THE BOSTON VA FOCUSES HER RESEARCH ON COMPLICATIONS OF SPONDYLOARTHRITIS AND SIDE EFFECTS OF TREATMENT. IN ADDITION TO HER RESEARCH, DR. DUBREUIL IS WORKING TO EDUCATE THE NEXT GENERATION OF DOCTORS ON EVALUATING PATIENTS WITH BACK PAIN, AND CARING FOR THOSE WITH SPONDYLOARTHRITIS. - UNIVERSITY OF COLORADO HEALTH SCIENCES CENTER - DR. KRISTINE KUHN, WHO OBTAINED HER MD AND PHD AT THE UNIVERSITY OF COLORADO HEALTH SCIENCES CENTER, DEVELOPED HER INTEREST IN RHEUMATOLOGY WHILE WORKING ON HER PHD IN ARTHRITIS. AFTER GRADUATING MEDICAL SCHOOL, DR. KUHN MOVED TO ST. LOUIS, MISSOURI TO COMPLETE HER RESIDENCY IN INTERNAL MEDICINE AND FELLOWSHIP IN RHEUMATOLOGY AT BARNES-JEWISH HOSPITAL AND WASHINGTON UNIVERSITY. DURING THIS TRAINING, DR. KUHN OBSERVED MANY CHALLENGES THAT INDIVIDUALS FACE IN THE DIAGNOSIS AND TREATMENT OF SPONDYLOARTHRITIS. SHE BEGAN FOCUSING ON THIS TOPIC IN HER RESEARCH AND CLINICAL ACTIVITIES, AS PART OF HER OWN RESEARCH PROGRAM, WHEN SHE RETURNED TO COLORADO IN 2013 AS A FACULTY MEMBER AT THE UNIVERSITY OF COLORADO SCHOOL OF MEDICINE. IN ADDITION TO FUNDING ECI, THE ORGANIZATION RECEIVES FUNDING REQUESTS FROM OUTSIDE SOURCES TO SUPPORT RESEARCH RELATED TO SPONDYLITIS. BECAUSE THE ORGANIZATION HAS LIMITED RESOURCES FOR RESEARCH FUNDING, IT IS IMPERATIVE THAT ANY RESEARCH PROPOSALS MAKE OPTIMAL USE OF THE ORGANIZATION'S LIMITED RESOURCES. IN THE SPRING OF 2018, THE ORGANIZATION FUNDED $125,000 RESTRICTED TO ADDITIONAL RESEARCH STUDY GRANTS OUTSIDE OF THE ECI AWARDS. THESE ADDITIONAL RESEARCH GRANTS ARE DETAILED BELOW:- FUNDING RESEARCH AT THE UNIVERSITY OF CALIFORNIA, SAN FRANCISCO (UCSF), UNIVERSITY OF ALABAMA, BIRMINGHAM (UAB); AND QUEENSLAND UNIVERSITY OF TECHNOLOGY, AUSTRALIA (QUT). DR. LIANNE GENSLER, A RHEUMATOLOGIST AT UCSF MEDICAL CENTER AND THE DIRECTOR OF THE ANKYLOSING SPONDYLITIS CLINIC, WAS SELECTED ALONG WITH DR. MATTHEW STOLL (UAB) AND DR. MATTHEW BROWN (QUT) AND RECEIVED APPROVAL FOR THEIR MICROBIOME OF OFFSPRING IN ANKLOSING SPONDYLITIS (MOSAS) RESEARCH STUDY. MULTIPLE GENETIC AND ENVIRONMENTAL FACTORS RESULT IN THE DEVELOPMENT OF SPONDYLOARTHRITIS DISEASES, INCLUDING ANKYLOSING SPONDYLITIS (AS). THIS WILL BE THE FIRST STUDY OF ITS KIND TO EVALUATE THE PRE-DISEASE MICROBIOTA IN PATIENTS WITH A HIGHER LIKELIHOOD OF DEVELOPING ARTHRITIS.- FUNDING RESEARCH AT OREGON HEALTH AND SCIENCE UNIVERSITY (OHSU) THROUGH DRS. MARK ASQUITH AND JAMES ROSENBAUM. THEIR RESEARCH FOCUSES ON THE POTENTIAL ROLE FOR FUNGUS OR YEAST IN THE PATHOGENESIS OF SPONDYLOARTHRITIS. MICROBIOTA IS THE COMMUNITY OF MICRO-ORGANISMS THAT INHABIT THE INTERIOR AND EXTERIOR OF THE HUMAN BODY AT VARIOUS TISSUE SITES. DRS. ASQUITH AND ROSENBAUM'S RESEARCH UTILIZES FUNGAL MICROBIOTA TO INVESTIGATE A NOVEL THERAPEUTIC STRATEGY TO REDUCE OR PREVENT DISEASE SYMPTOMS IN AS PATIENTS.THE ORGANIZATION CONTINUES TO ADVANCE THE BELIEF THAT SUPPORTING RESEARCH WILL LEAD TO AN EVENTUAL CURE. IN THE SHORT-TERM, INSIGHTS GAINED FROM THESE STUDIES SHOULD ALSO EMPOWER AND ENGAGE CLINICIANS AND OTHERS IN THE MEDICAL COMMUNITY WITH OPPORTUNITIES TO CRITICALLY EVALUATE INFORMATION THROUGH, FOR EXAMPLE, PATIENT INTERVIEWS, PHYSICAL EXAMS, AND LABORATORY TESTS, IN ORDER TO FORMULATE A DIAGNOSIS AND DEVISE NEW TREATMENT OPTIONS.SOCIAL MEDIA-FACEBOOK AND TWITTER REMAIN A SOURCE OF EDUCATION AND AWARENESS WITH THE ORGANIZATION'S CONSTITUENTS. THE ORGANIZATION'S COMMUNITY FORUMS CONTINUE TO BE ACTIVE NOT ONLY FOR THE NEWLY-DIAGNOSED BUT THOSE LIVING WITH THIS DISEASE FROM A FEW YEARS TO ALMOST A LIFETIME. | Desc |
| Field | Value | IRS element (for citing) |
|---|---|---|
| Total Other Prog Srvc Expense | $479,369 | TotalOtherProgSrvcExpenseAmt |
| Total Other Prog Srvc Grant | $211,316 | TotalOtherProgSrvcGrantAmt |
| Total Program Service Expenses | $1,489,572 | TotalProgramServiceExpensesAmt |
| Described In Section501c3 | Yes (1) | DescribedInSection501c3Ind |
| Schedule B Required | Yes (1) | ScheduleBRequiredInd |
| Political Campaign Acty | 0 | PoliticalCampaignActyInd |
| Lobbying Activities | 0 | LobbyingActivitiesInd |
| Subject To Proxy Tax | 0 | SubjectToProxyTaxInd |
| Donor Advised Fund | 0 | DonorAdvisedFundInd |
| Conservation Easements | 0 | ConservationEasementsInd |
| Collections Of Art | 0 | CollectionsOfArtInd |
| Credit Counseling | 0 | CreditCounselingInd |
| Temp Or Permanent Endowments | 0 | TempOrPermanentEndowmentsInd |
| Report Land Building Equipment | Yes (1) | ReportLandBuildingEquipmentInd |
| Report Investments Other Sec | 0 | ReportInvestmentsOtherSecInd |
| Report Program Related Invst | 0 | ReportProgramRelatedInvstInd |
| Report Other Assets | 0 | ReportOtherAssetsInd |
| Report Other Liabilities | 0 | ReportOtherLiabilitiesInd |
| Include FIN48 Footnote | Yes (1) | IncludeFIN48FootnoteInd |
| Independent Audit Fincl Stmt | Yes (1) | IndependentAuditFinclStmtInd |
| Consolidated Audit Fincl Stmt | 0 | ConsolidatedAuditFinclStmtInd |
| School Operating | 0 | SchoolOperatingInd |
| Foreign Office | 0 | ForeignOfficeInd |
| Foreign Activities | 0 | ForeignActivitiesInd |
| More Than5000 K To Org | 0 | MoreThan5000KToOrgInd |
| More Than5000 K To Individuals | 0 | MoreThan5000KToIndividualsInd |
| Professional Fundraising | 0 | ProfessionalFundraisingInd |
| Fundraising Activities | 0 | FundraisingActivitiesInd |
| Gaming Activities | 0 | GamingActivitiesInd |
| Operate Hospital | 0 | OperateHospitalInd |
| Grants To Organizations | Yes (1) | GrantsToOrganizationsInd |
| Grants To Individuals | 0 | GrantsToIndividualsInd |
| Schedule J Required | 0 | ScheduleJRequiredInd |
| Tax Exempt Bonds | 0 | TaxExemptBondsInd |
| Engaged In Excess Benefit Trans | 0 | EngagedInExcessBenefitTransInd |
| PY Excess Benefit Trans | 0 | PYExcessBenefitTransInd |
| Loan Outstanding | 0 | LoanOutstandingInd |
| Grant To Related Person | 0 | GrantToRelatedPersonInd |
| Business Rln With Org Mem | 0 | BusinessRlnWithOrgMemInd |
| Business Rln With Fam Mem | 0 | BusinessRlnWithFamMemInd |
| Business Rln With Officer Ent | 0 | BusinessRlnWithOfficerEntInd |
| Deductible Non Cash Contri | 0 | DeductibleNonCashContriInd |
| Deductible Art Contribution | 0 | DeductibleArtContributionInd |
| Terminate Operations | 0 | TerminateOperationsInd |
| Partial Liquidation | 0 | PartialLiquidationInd |
| Disregarded Entity | 0 | DisregardedEntityInd |
| Related Entity | 0 | RelatedEntityInd |
| Related Organization Ctrl Ent | 0 | RelatedOrganizationCtrlEntInd |
| Trnsfr Exmpt Non Chrtbl Rltd Org | 0 | TrnsfrExmptNonChrtblRltdOrgInd |
| Activities Conducted Prtshp | 0 | ActivitiesConductedPrtshpInd |
| Schedule O Required | Yes (1) | ScheduleORequiredInd |
| IRP Document | 7 | IRPDocumentCnt |
| IRP Document W2 G | 0 | IRPDocumentW2GCnt |
| Employee | 12 | EmployeeCnt |
| Employment Tax Returns Filed | Yes (1) | EmploymentTaxReturnsFiledInd |
| Unrelated Bus Incm Over Limit | 0 | UnrelatedBusIncmOverLimitInd |
| Foreign Financial Account | 0 | ForeignFinancialAccountInd |
| Prohibited Tax Shelter Trans | 0 | ProhibitedTaxShelterTransInd |
| Taxable Party Notification | 0 | TaxablePartyNotificationInd |
| Nondeductible Contributions | 0 | NondeductibleContributionsInd |
| Quid Pro Quo Contributions | 0 | QuidProQuoContributionsInd |
| Form8282 Property Disposed Of | 0 | Form8282PropertyDisposedOfInd |
| Rcv Fnds To Pay Prsnl Bnft Cntrct | 0 | RcvFndsToPayPrsnlBnftCntrctInd |
| Pay Premiums Prsnl Bnft Cntrct | 0 | PayPremiumsPrsnlBnftCntrctInd |
| Indoor Tanning Services | 0 | IndoorTanningServicesInd |
| Info In Schedule O Part VI | Yes (X) | InfoInScheduleOPartVIInd |
| Governing Body Voting Members | 12 | GoverningBodyVotingMembersCnt |
| Independent Voting Member | 12 | IndependentVotingMemberCnt |
| Family Or Business Rln | 0 | FamilyOrBusinessRlnInd |
| Delegation Of Mgmt Duties | 0 | DelegationOfMgmtDutiesInd |
| Change To Org Documents | 0 | ChangeToOrgDocumentsInd |
| Material Diversion Or Misuse | 0 | MaterialDiversionOrMisuseInd |
| Members Or Stockholders | 0 | MembersOrStockholdersInd |
| Election Of Board Members | 0 | ElectionOfBoardMembersInd |
| Decisions Subject To Approva | 0 | DecisionsSubjectToApprovaInd |
| Minutes Of Governing Body | Yes (1) | MinutesOfGoverningBodyInd |
| Minutes Of Committees | Yes (1) | MinutesOfCommitteesInd |
| Officer Mailing Address | 0 | OfficerMailingAddressInd |
| Local Chapters | 0 | LocalChaptersInd |
| Form990 Provided To Gvrn Body | Yes (1) | Form990ProvidedToGvrnBodyInd |
| Conflict Of Interest Policy | Yes (1) | ConflictOfInterestPolicyInd |
| Annual Disclosure Covered Prsn | Yes (1) | AnnualDisclosureCoveredPrsnInd |
| Regular Monitoring Enfrc | Yes (1) | RegularMonitoringEnfrcInd |
| Whistleblower Policy | Yes (1) | WhistleblowerPolicyInd |
| Document Retention Policy | Yes (1) | DocumentRetentionPolicyInd |
| Compensation Process CEO | Yes (1) | CompensationProcessCEOInd |
| Compensation Process Other | Yes (1) | CompensationProcessOtherInd |
| Investment In Joint Venture | 0 | InvestmentInJointVentureInd |
| States Where Copy Of Return Is Fld | CA | StatesWhereCopyOfReturnIsFldCd |
| Own Website | Yes (X) | OwnWebsiteInd |
| Other Website | Yes (X) | OtherWebsiteInd |
| Upon Request | Yes (X) | UponRequestInd |
Books In Care Of Detail BooksInCareOfDetail
Business Name BusinessName
| Field | Value | IRS element (for citing) |
|---|---|---|
| Business Name Line1 | CASSIE SHAFER | BusinessNameLine1Txt |
| Field | Value | IRS element (for citing) |
|---|---|---|
| Phone | 8188921616 | PhoneNum |
US Address USAddress
| Field | Value | IRS element (for citing) |
|---|---|---|
| Address Line1 | 16360 ROSCOE BLVD | AddressLine1Txt |
| City | VAN NUYS | CityNm |
| State Abbreviation | CA | StateAbbreviationCd |
| ZIP | 91406 | ZIPCd |
Form990 Part VII Section A Form990PartVIISectionAGrp (15 entries)
| TitleTitleTxt | Average Hours Per WeekAverageHoursPerWeekRt | Individual Trustee Or DirectorIndividualTrusteeOrDirectorInd | Reportable Comp From OrgReportableCompFromOrgAmt | Reportable Comp From Rltd OrgReportableCompFromRltdOrgAmt | Other CompensationOtherCompensationAmt | OfficerOfficerInd |
|---|---|---|---|---|---|---|
| ELLEN CARROLL | ||||||
| DIRECTOR | 1.00 | Yes (X) | $0 | $0 | $0 | |
| CRAIG GIMBEL | ||||||
| DIRECTOR | 1.00 | Yes (X) | $0 | $0 | $0 | |
| ERIC GOLDSTEIN | ||||||
| VICE CHAIR | 2.00 | Yes (X) | $0 | $0 | $0 | Yes (X) |
| DAVID HALLEGUA | ||||||
| DIRECTOR | 1.00 | Yes (X) | $0 | $0 | $0 | |
| CHARLOTTE K HOWARD | ||||||
| SECRETARY | 2.00 | Yes (X) | $0 | $0 | $0 | Yes (X) |
| LESLIE KAUTZ | ||||||
| BOARD TREASURER | 2.00 | Yes (X) | $0 | $0 | $0 | Yes (X) |
| PAULA OLSIEWSKI | ||||||
| DIRECTOR | 1.00 | Yes (X) | $0 | $0 | $0 | |
| MICHAEL PIANIN | ||||||
| BOARD CHAIR | 2.00 | Yes (X) | $0 | $0 | $0 | Yes (X) |
| RANDALL SAPADIN | ||||||
| DIRECTOR | 1.00 | Yes (X) | $0 | $0 | $0 | |
| BOB ULRICH | ||||||
| DIRECTOR | 1.00 | Yes (X) | $0 | $0 | $0 | |
| JOHN D REVEILLE | ||||||
| DIRECTOR | 1.00 | Yes (X) | $0 | $0 | $0 | |
| JAMES ROSENBAUM | ||||||
| DIRECTOR | 1.00 | Yes (X) | $0 | $0 | $0 | |
| CASSIE SHAFER | ||||||
| CHIEF EXECUTIVE OFFICER | 40.00 | $53,958 | $0 | $41 | Yes (X) | |
| LAURIE SAVAGE | ||||||
| EXEC DIRECTOR THROUGH 9/15/17 | 40.00 | $121,498 | $0 | $72 | Yes (X) | |
| RICHARD HOWARD | ||||||
| CHIEF MISSION ADVANCEMENT OFFICER | 40.00 | $100,200 | $0 | $7,684 | Yes (X) | |
| Field | Value | IRS element (for citing) |
|---|---|---|
| Total Reportable Comp From Org | $275,656 | TotalReportableCompFromOrgAmt |
| Tot Reportable Comp Rltd Org | $0 | TotReportableCompRltdOrgAmt |
| Total Other Compensation | $7,797 | TotalOtherCompensationAmt |
| Indiv Rcvd Greater Than100 K | 2 | IndivRcvdGreaterThan100KCnt |
| Former Ofcr Employees Listed | 0 | FormerOfcrEmployeesListedInd |
| Total Comp Greater Than150 K | 0 | TotalCompGreaterThan150KInd |
| Compensation From Other Srcs | 0 | CompensationFromOtherSrcsInd |
| Cntrct Rcvd Greater Than100 K | 0 | CntrctRcvdGreaterThan100KCnt |
| All Other Contributions | $2,635,511 | AllOtherContributionsAmt |
| Total Contributions | $2,635,511 | TotalContributionsAmt |
Program Service Revenue ProgramServiceRevenueGrp (2 entries)
| DescDesc | BusinessBusinessCd | Total Revenue ColumnTotalRevenueColumnAmt | Related Or Exempt Func IncomeRelatedOrExemptFuncIncomeAmt |
|---|---|---|---|
| PUBLICATION SALES | 611710 | $5,191 | $5,191 |
| MISCELLANEOUS | 900099 | $184 | $184 |
| Field | Value | IRS element (for citing) |
|---|---|---|
| Total Program Service Revenue | $5,375 | TotalProgramServiceRevenueAmt |
Investment Income InvestmentIncomeGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Total Revenue Column | $35,065 | TotalRevenueColumnAmt |
| Exclusion | $35,065 | ExclusionAmt |
Gross Amount Sales Assets GrossAmountSalesAssetsGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Securities | $1,081,748 | SecuritiesAmt |
Less Cost Oth Basis Sales Expnss LessCostOthBasisSalesExpnssGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Securities | $1,075,279 | SecuritiesAmt |
Gain Or Loss GainOrLossGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Securities | $6,469 | SecuritiesAmt |
Net Gain Or Loss Investments NetGainOrLossInvestmentsGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Total Revenue Column | $6,469 | TotalRevenueColumnAmt |
| Exclusion | $6,469 | ExclusionAmt |
Total Revenue TotalRevenueGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Total Revenue Column | $2,682,420 | TotalRevenueColumnAmt |
| Related Or Exempt Func Income | $5,375 | RelatedOrExemptFuncIncomeAmt |
| Unrelated Business Revenue | $0 | UnrelatedBusinessRevenueAmt |
| Exclusion | $41,534 | ExclusionAmt |
Grants To Domestic Orgs GrantsToDomesticOrgsGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Total | $211,316 | TotalAmt |
| Program Services | $211,316 | ProgramServicesAmt |
Comp Current Ofcr Directors CompCurrentOfcrDirectorsGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Total | $308,670 | TotalAmt |
| Program Services | $268,513 | ProgramServicesAmt |
| Management And General | $20,079 | ManagementAndGeneralAmt |
| Fundraising | $20,078 | FundraisingAmt |
Other Salaries And Wages OtherSalariesAndWagesGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Total | $436,796 | TotalAmt |
| Program Services | $331,696 | ProgramServicesAmt |
| Management And General | $73,093 | ManagementAndGeneralAmt |
| Fundraising | $32,007 | FundraisingAmt |
Other Employee Benefits OtherEmployeeBenefitsGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Total | $26,931 | TotalAmt |
| Program Services | $20,688 | ProgramServicesAmt |
| Management And General | $4,053 | ManagementAndGeneralAmt |
| Fundraising | $2,190 | FundraisingAmt |
Payroll Taxes PayrollTaxesGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Total | $60,871 | TotalAmt |
| Program Services | $49,252 | ProgramServicesAmt |
| Management And General | $7,453 | ManagementAndGeneralAmt |
| Fundraising | $4,166 | FundraisingAmt |
Fees For Services Accounting FeesForServicesAccountingGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Total | $67,263 | TotalAmt |
| Management And General | $67,263 | ManagementAndGeneralAmt |
Fees For Services Other FeesForServicesOtherGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Total | $133,591 | TotalAmt |
| Program Services | $126,541 | ProgramServicesAmt |
| Management And General | $7,050 | ManagementAndGeneralAmt |
Office Expenses OfficeExpensesGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Total | $181,845 | TotalAmt |
| Program Services | $120,329 | ProgramServicesAmt |
| Management And General | $54,205 | ManagementAndGeneralAmt |
| Fundraising | $7,311 | FundraisingAmt |
Information Technology InformationTechnologyGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Total | $66,111 | TotalAmt |
| Program Services | $61,561 | ProgramServicesAmt |
| Management And General | $2,600 | ManagementAndGeneralAmt |
| Fundraising | $1,950 | FundraisingAmt |
Occupancy OccupancyGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Total | $81,585 | TotalAmt |
| Program Services | $55,585 | ProgramServicesAmt |
| Management And General | $21,000 | ManagementAndGeneralAmt |
| Fundraising | $5,000 | FundraisingAmt |
Travel TravelGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Total | $119,872 | TotalAmt |
| Program Services | $109,591 | ProgramServicesAmt |
| Management And General | $1,771 | ManagementAndGeneralAmt |
| Fundraising | $8,510 | FundraisingAmt |
Conferences Meetings ConferencesMeetingsGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Total | $103,096 | TotalAmt |
| Program Services | $102,020 | ProgramServicesAmt |
| Fundraising | $1,076 | FundraisingAmt |
Depreciation Depletion DepreciationDepletionGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Total | $30,635 | TotalAmt |
| Program Services | $25,835 | ProgramServicesAmt |
| Management And General | $3,200 | ManagementAndGeneralAmt |
| Fundraising | $1,600 | FundraisingAmt |
Other Expenses OtherExpensesGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Desc | STATE LICENSING | Desc |
| Total | $6,645 | TotalAmt |
| Program Services | $6,645 | ProgramServicesAmt |
Total Functional Expenses TotalFunctionalExpensesGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Total | $1,835,227 | TotalAmt |
| Program Services | $1,489,572 | ProgramServicesAmt |
| Management And General | $261,767 | ManagementAndGeneralAmt |
| Fundraising | $83,888 | FundraisingAmt |
Cash Non Interest Bearing CashNonInterestBearingGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| BOY | $384,497 | BOYAmt |
| EOY | $201,472 | EOYAmt |
Savings And Temp Cash Invst SavingsAndTempCashInvstGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| BOY | $1,896,381 | BOYAmt |
| EOY | $2,921,894 | EOYAmt |
Accounts Receivable AccountsReceivableGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| BOY | $129,500 | BOYAmt |
| EOY | $65,971 | EOYAmt |
Prepaid Expenses Defrd Charges PrepaidExpensesDefrdChargesGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| BOY | $8,208 | BOYAmt |
| EOY | $12,571 | EOYAmt |
| Field | Value | IRS element (for citing) |
|---|---|---|
| Land Bldg Equip Cost Or Other Bss | $48,676 | LandBldgEquipCostOrOtherBssAmt |
| Land Bldg Equip Accum Deprec | $38,853 | LandBldgEquipAccumDeprecAmt |
Land Bldg Equip Basis Net LandBldgEquipBasisNetGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| BOY | $10,089 | BOYAmt |
| EOY | $9,823 | EOYAmt |
Investments Pub Traded Sec InvestmentsPubTradedSecGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| BOY | $233,408 | BOYAmt |
| EOY | $254,351 | EOYAmt |
Intangible Assets IntangibleAssetsGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| BOY | $112,833 | BOYAmt |
| EOY | $87,753 | EOYAmt |
Other Assets Total OtherAssetsTotalGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| BOY | $5,441 | BOYAmt |
| EOY | $5,441 | EOYAmt |
Total Assets TotalAssetsGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| BOY | $2,780,357 | BOYAmt |
| EOY | $3,559,276 | EOYAmt |
Accounts Payable Accr Expnss AccountsPayableAccrExpnssGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| BOY | $108,351 | BOYAmt |
| EOY | $54,813 | EOYAmt |
Total Liabilities TotalLiabilitiesGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| BOY | $108,351 | BOYAmt |
| EOY | $54,813 | EOYAmt |
| Field | Value | IRS element (for citing) |
|---|---|---|
| Organization Follows SFAS117 | Yes (X) | OrganizationFollowsSFAS117Ind |
Unrestricted Net Assets UnrestrictedNetAssetsGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| BOY | $2,027,283 | BOYAmt |
| EOY | $2,799,272 | EOYAmt |
Temporarily Rstr Net Assets TemporarilyRstrNetAssetsGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| BOY | $644,723 | BOYAmt |
| EOY | $705,191 | EOYAmt |
Total Net Assets Fund Balance TotalNetAssetsFundBalanceGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| BOY | $2,672,006 | BOYAmt |
| EOY | $3,504,463 | EOYAmt |
Tot Liab Net Assets Fund Balance TotLiabNetAssetsFundBalanceGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| BOY | $2,780,357 | BOYAmt |
| EOY | $3,559,276 | EOYAmt |
| Field | Value | IRS element (for citing) |
|---|---|---|
| Reconcilation Revenue Expnss | $847,193 | ReconcilationRevenueExpnssAmt |
| Net Unrlzd Gains Losses Invst | -$14,736 | NetUnrlzdGainsLossesInvstAmt |
| Other Changes In Net Assets | $0 | OtherChangesInNetAssetsAmt |
| Info In Schedule O Part XII | Yes (X) | InfoInScheduleOPartXIIInd |
| Method Of Accounting Accrual | Yes (X) | MethodOfAccountingAccrualInd |
| Accountant Compile Or Review | 0 | AccountantCompileOrReviewInd |
| FS Audited | Yes (1) | FSAuditedInd |
FS Audited Basis FSAuditedBasisGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Separate Basis Fincl Stmt | Yes (X) | SeparateBasisFinclStmtInd |
| Field | Value | IRS element (for citing) |
|---|---|---|
| Audit Committee | Yes (1) | AuditCommitteeInd |
| Federal Grant Audit Required | 0 | FederalGrantAuditRequiredInd |
Schedule A IRS990ScheduleA
| Field | Value | IRS element (for citing) |
|---|---|---|
| Public Organization170 | Yes (X) | PublicOrganization170Ind |
Gifts Grants Contri Rcvd170 GiftsGrantsContriRcvd170Grp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Current Tax Year Minus4 Years | $1,324,005 | CurrentTaxYearMinus4YearsAmt |
| Current Tax Year Minus3 Years | $1,776,812 | CurrentTaxYearMinus3YearsAmt |
| Current Tax Year Minus2 Years | $1,334,632 | CurrentTaxYearMinus2YearsAmt |
| Current Tax Year Minus1 Year | $1,666,271 | CurrentTaxYearMinus1YearAmt |
| Current Tax Year | $2,635,511 | CurrentTaxYearAmt |
| Total | $8,737,231 | TotalAmt |
Total Calendar Year170 TotalCalendarYear170Grp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Current Tax Year Minus4 Years | $1,324,005 | CurrentTaxYearMinus4YearsAmt |
| Current Tax Year Minus3 Years | $1,776,812 | CurrentTaxYearMinus3YearsAmt |
| Current Tax Year Minus2 Years | $1,334,632 | CurrentTaxYearMinus2YearsAmt |
| Current Tax Year Minus1 Year | $1,666,271 | CurrentTaxYearMinus1YearAmt |
| Current Tax Year | $2,635,511 | CurrentTaxYearAmt |
| Total | $8,737,231 | TotalAmt |
| Field | Value | IRS element (for citing) |
|---|---|---|
| Substantial Contributors Tot | $2,757,028 | SubstantialContributorsTotAmt |
| Public Support Total170 | $5,980,203 | PublicSupportTotal170Amt |
Gross Investment Income170 GrossInvestmentIncome170Grp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Current Tax Year Minus4 Years | $11,177 | CurrentTaxYearMinus4YearsAmt |
| Current Tax Year Minus3 Years | $15,420 | CurrentTaxYearMinus3YearsAmt |
| Current Tax Year Minus2 Years | $24,573 | CurrentTaxYearMinus2YearsAmt |
| Current Tax Year Minus1 Year | $25,145 | CurrentTaxYearMinus1YearAmt |
| Current Tax Year | $35,065 | CurrentTaxYearAmt |
| Total | $111,380 | TotalAmt |
| Field | Value | IRS element (for citing) |
|---|---|---|
| Total Support | $8,848,611 | TotalSupportAmt |
| Public Support CY170 | 0.67580 | PublicSupportCY170Pct |
| Public Support PY170 | 0.72300 | PublicSupportPY170Pct |
| Thirty Thr Pct Suprt Tests CY170 | Yes (X) | ThirtyThrPctSuprtTestsCY170Ind |
Schedule B IRS990ScheduleB
Schedule D IRS990ScheduleD
Equipment EquipmentGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Other Cost Or Other Basis | $37,182 | OtherCostOrOtherBasisAmt |
| Depreciation | $29,617 | DepreciationAmt |
| Book Value | $7,565 | BookValueAmt |
Other Land Buildings OtherLandBuildingsGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Other Cost Or Other Basis | $11,494 | OtherCostOrOtherBasisAmt |
| Depreciation | $9,236 | DepreciationAmt |
| Book Value | $2,258 | BookValueAmt |
| Field | Value | IRS element (for citing) |
|---|---|---|
| Total Book Value Land Buildings | $9,823 | TotalBookValueLandBuildingsAmt |
| Footnote Text | Yes (X) | FootnoteTextInd |
| Total Rev Etc Audited Fincl Stmt | $2,712,964 | TotalRevEtcAuditedFinclStmtAmt |
| Net Unrealized Gains Invst | -$14,736 | NetUnrealizedGainsInvstAmt |
| Donated Services And Use Fclts | $45,280 | DonatedServicesAndUseFcltsAmt |
| Revenue Not Reported | $30,544 | RevenueNotReportedAmt |
| Revenue Subtotal | $2,682,420 | RevenueSubtotalAmt |
| Revenue Not Reported Fincl Stmt | $0 | RevenueNotReportedFinclStmtAmt |
| Total Revenue Per Form990 | $2,682,420 | TotalRevenuePerForm990Amt |
| Tot Expns Etc Audited Fincl Stmt | $1,880,507 | TotExpnsEtcAuditedFinclStmtAmt |
| Donated Services Use Fclts | $45,280 | DonatedServicesUseFcltsAmt |
| Expenses Not Reported | $45,280 | ExpensesNotReportedAmt |
| Expenses Subtotal | $1,835,227 | ExpensesSubtotalAmt |
| Expenses Not Rpt Fincl Stmt | $0 | ExpensesNotRptFinclStmtAmt |
| Total Expenses Per Form990 | $1,835,227 | TotalExpensesPerForm990Amt |
Supplemental Information Detail SupplementalInformationDetail
| Field | Value | IRS element (for citing) |
|---|---|---|
| Form And Line Reference | PART X, LINE 2: | FormAndLineReferenceDesc |
| Explanation | ACCOUNTING STANDARDS REQUIRE AN ORGANIZATION TO EVALUATE ITS TAX POSITIONS AND PROVIDE FOR A LIABILITY FOR ANY POSITIONS THAT WOULD NOT BE CONSIDERED 'MORE LIKELY THAN NOT' TO BE UPHELD UNDER A TAX AUTHORITY EXAMINATION. MANAGEMENT HAS EVALUATED ITS TAX POSITIONS AND HAS CONCLUDED THAT A PROVISION FOR A TAX LIABILITY IS NOT NECESSARY AT JUNE 30, 2018. GENERALLY, THE ORGANIZATION'S INFORMATION RETURNS REMAIN OPEN FOR EXAMINATION FOR A PERIOD OF THREE (FEDERAL) OR FOUR (STATE OF CALIFORNIA) YEARS FROM THE DATE OF FILING. | ExplanationTxt |
Schedule I IRS990ScheduleI
| Field | Value | IRS element (for citing) |
|---|---|---|
| Grant Records Maintained | Yes (1) | GrantRecordsMaintainedInd |
Recipient Table RecipientTable (8 entries)
| Address Line1USAddress/AddressLine1Txt | CityUSAddress/CityNm | State AbbreviationUSAddress/StateAbbreviationCd | ZIPUSAddress/ZIPCd | Recipient EINRecipientEIN | IRC SectionIRCSectionDesc | Cash GrantCashGrantAmt | Purpose Of GrantPurposeOfGrantTxt | Address Line1ForeignAddress/AddressLine1Txt | CityForeignAddress/CityNm | Province Or StateForeignAddress/ProvinceOrStateNm | CountryForeignAddress/CountryCd | Foreign PostalForeignAddress/ForeignPostalCd |
|---|---|---|---|---|---|---|---|---|---|---|---|---|
| OREGON HEALTH & SCIENCE UNIVERSITY FOUNDATION | ||||||||||||
| 1121 SW SALMON STREET 100 | PORTLAND | OR | 97205 | 257083114 | 501(C)(3) | $25,000 | HLA B27 MICROBIAL POPULATION OF THE BOWEL STUDY | |||||
| UNIVERSITY OF COLORADO SCHOOL OF MEDICINE | ||||||||||||
| 1775 AURORA COURT | AURORA | CO | 80045 | 846000555 | 501(C)(3) | $20,000 | RESEARCH IN AXSPA | |||||
| BOSTON UNIVERSITY SCHOOL OF MEDICINE | ||||||||||||
| 595 COMMONWEALTH AVE 700 | BOSTON | MA | 02215 | 042103547 | 501(C)(3) | $20,000 | RESEARCH IN AXSPA | |||||
| UC REGENTS | ||||||||||||
| 400 PARNASSUS AVE BOX 0326 | SAN FRANCISCO | CA | 94143 | 946036493 | 501(C)(3) | $24,692 | MICROBIOME OF OFFSPRING IN ANKYLOSING SPONDYLITIS | |||||
| UAB DEPARTMENT OF PEDIATRICS | ||||||||||||
| 1600 7TH AVE SOUTH LOWDER 608 | BITMINGHAM | AL | 35233 | 636001138 | 501(C)(3) | $43,418 | MICROBIOME OF OFFSPRING IN ANKYLOSING SPONDYLITIS | |||||
| CEDARS-SINAI MEDICAL CENTER | ||||||||||||
| 8797 BEVERLY BLVD 250 | LOS ANGELES | CA | 90048 | 951644600 | 501(C)(3) | $1,500 | AXIAL SPA GUIDELINES | |||||
| AMERICAN COLLEGE OF RHEUMATOLOGY | ||||||||||||
| 2200 LAKE BLVD NE | ATLANTA | GA | 30319 | 581627547 | 501(C)(3) | $45,000 | AXIAL SPA GUIDELINES | |||||
| QUEENSLAND UNIVERSITY OF TECHNOLOGY | ||||||||||||
| 501(C)(3) | $31,706 | MICROBIOME OF OFFSPRING IN ANKYLOSING SPONDYLITIS | LEVEL 2 88 MUSK AVENUE | KELVIN GROVE | QLT | AS | 4059 | |||||
| Field | Value | IRS element (for citing) |
|---|---|---|
| Total501c3 Org | 8 | Total501c3OrgCnt |
Supplemental Information Detail SupplementalInformationDetail
| Field | Value | IRS element (for citing) |
|---|---|---|
| Form And Line Reference | PART I, LINE 2: | FormAndLineReferenceDesc |
| Explanation | RESEARCHERS ARE REQUIRED TO PROVIDE THE AGENCY WITH PROGRESS REPORTS BASED ON A VARIETY OF MILESTONES, INDIVIDUAL TO EACH STUDY, AND TO ENSURE THAT ANY PUBLICATION IN PEER REVIEW ACKNOWLEDGES THE AGENCYS FUNDING SUPPORT TOWARD THE EFFORT. | ExplanationTxt |
Schedule O IRS990ScheduleO
Supplemental Information Detail SupplementalInformationDetail (5 entries)
| Form And Line ReferenceFormAndLineReferenceDesc | ExplanationExplanationTxt |
|---|---|
| FORM 990, PART VI, SECTION B, LINE 11B | THE AUDIT COMMITTEE REVIEWS THE DOCUMENT PRIOR TO ITS DISTRIBUTION TO THE ENTIRE BOARD FOR REVIEW. |
| FORM 990, PART VI, SECTION B, LINE 12C | ALL DIRECTORS AND SENIOR EMPLOYEES ARE REQUIRED TO COMPLETE AND SIGN A DISCLOSURE FORM LISTING ANY POTENTIAL CONFLICTS OF INTEREST BY SEPTEMBER 30, ANNUALLY. |
| FORM 990, PART VI, SECTION B, LINE 15 | THE ORGANIZATION UTILIZES CURRENT COMPENSATION DATA PUBLISHED BY THE NATIONAL HEALTH COUNCIL AND THE AMERICAN SOCIETY OF ASSOCIATION EXECUTIVES, AND OTHER FACTORS IN ORDER TO DETERMINE COMPENSATION. |
| FORM 990, PART VI, SECTION C, LINE 19 | THE ORGANIZATION PRODUCES AN ANNUAL REPORT THAT IS PUBLISHED ON ITS WEBSITE |
| FORM 990, PART XII, LINE 2C | THE ORGANIZATION'S AUDIT COMMITTEE HAS RESPONSIBILITY FOR THE OVERSIGHT OF THE AUDIT OF ITS FINANCIAL STATEMENTS AND SELECTION OF THE INDEPENDENT AUDITOR, SUBJECT TO THE APPROVAL OF THE BOARD OF DIRECTORS. THIS RESPONSIBILITY IS UNCHANGED FROM THE PRIOR YEAR. |
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