SPONDYLITIS ASSOCIATION OF AMERICA: Form 990, tax year 2021
View the entire original 990 at ProPublica ↗
- Organization
- SPONDYLITIS ASSOCIATION OF AMERICA (EIN 95-3890767)
- Tax period
- 2021-07-01 to 2022-06-30
- Filed
- 2022-10-14
- IRS object ID
- 202212879349301801
- Schema version
- 2021v4.2
- Source
- Download XML · Original 990 at ProPublica
Every field in the e-filed return. Faint text is the IRS element name, for citing.
Return header ReturnHeader
| Field | Value | IRS element (for citing) |
|---|---|---|
| Return | 2022-10-14T12:52:52-05:00 | ReturnTs |
| Tax Period End | 2022-06-30 | TaxPeriodEndDt |
Preparer Firm PreparerFirmGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Preparer Firm EIN | 320530003 | PreparerFirmEIN |
Preparer Firm Name PreparerFirmName
| Field | Value | IRS element (for citing) |
|---|---|---|
| Business Name Line1 | QUIGLEY & MIRON | BusinessNameLine1Txt |
Preparer US Address PreparerUSAddress
| Field | Value | IRS element (for citing) |
|---|---|---|
| Address Line1 | 3550 WILSHIRE BLVD 1660 | AddressLine1Txt |
| City | LOS ANGELES | CityNm |
| State Abbreviation | CA | StateAbbreviationCd |
| ZIP | 90010 | ZIPCd |
| Field | Value | IRS element (for citing) |
|---|---|---|
| Return Type | 990 | ReturnTypeCd |
| Tax Period Begin | 2021-07-01 | TaxPeriodBeginDt |
Filer Filer
| Field | Value | IRS element (for citing) |
|---|---|---|
| EIN | 953890767 | EIN |
Business Name BusinessName
| Field | Value | IRS element (for citing) |
|---|---|---|
| Business Name Line1 | SPONDYLITIS ASSOCIATION OF AMERICA | BusinessNameLine1Txt |
| Field | Value | IRS element (for citing) |
|---|---|---|
| Business Name Control | SPON | BusinessNameControlTxt |
| Phone | 8188921616 | PhoneNum |
US Address USAddress
| Field | Value | IRS element (for citing) |
|---|---|---|
| Address Line1 | 16430 VENTURA BLVD 300 | AddressLine1Txt |
| City | ENCINO | CityNm |
| State Abbreviation | CA | StateAbbreviationCd |
| ZIP | 91436 | ZIPCd |
Business Officer BusinessOfficerGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Person | CASSIE SHAFER | PersonNm |
| Person Title | CHIEF EXECUTIVE OFFICER | PersonTitleTxt |
| Phone | 8188921616 | PhoneNum |
| Signature | 2022-10-14 | SignatureDt |
Signing Officer SigningOfficerGrp
Person Full Name PersonFullName
| Field | Value | IRS element (for citing) |
|---|---|---|
| Person First | CASSIE | PersonFirstNm |
| Person Last | SHAFER | PersonLastNm |
| Field | Value | IRS element (for citing) |
|---|---|---|
| SSN | 999009999 | SSN |
Preparer Person PreparerPersonGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Preparer Person | ARMEN GRIGORIAN | PreparerPersonNm |
| PTIN | P01582463 | PTIN |
| Phone | 2136393550 | PhoneNum |
Additional Filer Information AdditionalFilerInformation
Trusted Customer TrustedCustomerGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Trusted Customer | 3 | TrustedCustomerCd |
| Authentication Assurance Level | AAL1 | AuthenticationAssuranceLevelCd |
| Identity Assurance Level | IAL1 | IdentityAssuranceLevelCd |
| Field | Value | IRS element (for citing) |
|---|---|---|
| Tax | 2021 | TaxYr |
| Build TS | 2022-09-23 18:48:47Z | BuildTS |
Form 990 IRS990
| Field | Value | IRS element (for citing) |
|---|---|---|
| Principal Officer | CASSIE SHAFER | PrincipalOfficerNm |
US Address USAddress
| Field | Value | IRS element (for citing) |
|---|---|---|
| Address Line1 | 16430 VENTURA BLVD 300 | AddressLine1Txt |
| City | ENCINO | CityNm |
| State Abbreviation | CA | StateAbbreviationCd |
| ZIP | 91436 | ZIPCd |
| Field | Value | IRS element (for citing) |
|---|---|---|
| Gross Receipts | $5,601,641 | GrossReceiptsAmt |
| Group Return For Affiliates | 0 | GroupReturnForAffiliatesInd |
| Organization501c3 | Yes (X) | Organization501c3Ind |
| Website Address | WWW.SPONDYLITIS.ORG | WebsiteAddressTxt |
| Type Of Organization Corp | Yes (X) | TypeOfOrganizationCorpInd |
| Formation | 1983 | FormationYr |
| Legal Domicile State | CA | LegalDomicileStateCd |
| Activity Or Mission | ADVANCING RESEARCH, ACCELERATED DIAGNOSIS, OPTIMUM TREATMENT, PUBLIC AWARENESS AND HEALTH CARE PROFESSIONAL EDUCATION IN SPONDYLOARTHRITIS | ActivityOrMissionDesc |
| Voting Members Governing Body | 12 | VotingMembersGoverningBodyCnt |
| Voting Members Independent | 12 | VotingMembersIndependentCnt |
| Total Employee | 13 | TotalEmployeeCnt |
| Total Volunteers | 130 | TotalVolunteersCnt |
| Total Gross UBI | $0 | TotalGrossUBIAmt |
| Net Unrelated Bus Txbl Incm | $0 | NetUnrelatedBusTxblIncmAmt |
| PY Contributions Grants | $2,996,504 | PYContributionsGrantsAmt |
| CY Contributions Grants | $5,505,466 | CYContributionsGrantsAmt |
| PY Program Service Revenue | $3,551 | PYProgramServiceRevenueAmt |
| CY Program Service Revenue | $4,877 | CYProgramServiceRevenueAmt |
| PY Investment Income | $59,232 | PYInvestmentIncomeAmt |
| CY Investment Income | $60,228 | CYInvestmentIncomeAmt |
| PY Other Revenue | $0 | PYOtherRevenueAmt |
| CY Other Revenue | $0 | CYOtherRevenueAmt |
| PY Total Revenue | $3,059,287 | PYTotalRevenueAmt |
| CY Total Revenue | $5,570,571 | CYTotalRevenueAmt |
| PY Grants And Similar Paid | $123,292 | PYGrantsAndSimilarPaidAmt |
| CY Grants And Similar Paid | $451,878 | CYGrantsAndSimilarPaidAmt |
| PY Benefits Paid To Members | $0 | PYBenefitsPaidToMembersAmt |
| CY Benefits Paid To Members | $0 | CYBenefitsPaidToMembersAmt |
| PY Salaries Comp Emp Bnft Paid | $1,250,189 | PYSalariesCompEmpBnftPaidAmt |
| CY Salaries Comp Emp Bnft Paid | $1,367,444 | CYSalariesCompEmpBnftPaidAmt |
| PY Total Prof Fndrsng Expns | $0 | PYTotalProfFndrsngExpnsAmt |
| CY Total Prof Fndrsng Expns | $0 | CYTotalProfFndrsngExpnsAmt |
| CY Total Fundraising Expense | $107,683 | CYTotalFundraisingExpenseAmt |
| PY Other Expenses | $656,276 | PYOtherExpensesAmt |
| CY Other Expenses | $953,987 | CYOtherExpensesAmt |
| PY Total Expenses | $2,029,757 | PYTotalExpensesAmt |
| CY Total Expenses | $2,773,309 | CYTotalExpensesAmt |
| PY Revenues Less Expenses | $1,029,530 | PYRevenuesLessExpensesAmt |
| CY Revenues Less Expenses | $2,797,262 | CYRevenuesLessExpensesAmt |
| Total Assets BOY | $4,942,936 | TotalAssetsBOYAmt |
| Total Assets EOY | $7,928,906 | TotalAssetsEOYAmt |
| Total Liabilities BOY | $225,104 | TotalLiabilitiesBOYAmt |
| Total Liabilities EOY | $582,891 | TotalLiabilitiesEOYAmt |
| Net Assets Or Fund Balances BOY | $4,717,832 | NetAssetsOrFundBalancesBOYAmt |
| Net Assets Or Fund Balances EOY | $7,346,015 | NetAssetsOrFundBalancesEOYAmt |
| Info In Schedule O Part III | Yes (X) | InfoInScheduleOPartIIIInd |
| Mission | ADVANCING AND DIRECTLY SPONSORING SPONDYLOARTHRITIS RESEARCH, ACCELERATING DIAGNOSIS, SUPPORTING OPTIMUM TREATMENT FOR THE INDIVIDUAL, ADVANCING AWARENESS, AND PUBLIC AND HEALTH CARE PROFESSIONAL EDUCATION IN SPONDYLOARTHRITIS. | MissionDesc |
| Significant New Program Srvc | 0 | SignificantNewProgramSrvcInd |
| Significant Change | 0 | SignificantChangeInd |
| Expense | $863,774 | ExpenseAmt |
| Grant | $451,878 | GrantAmt |
| Revenue | $4,877 | RevenueAmt |
| Desc | PATIENT EDUCATIONAL SEMINARS, WEBINARS, AND HEALTH EDUCATION CONTENT, ALONG WITH PATIENT SUPPORT PROGRAMS ARE DELIVERED VIA VARIOUS DIGITAL OUTLETS. SAA'S INTERACTIVE WEBSITE, LOCATED AT SPONDYLITIS.ORG, CONTAINS THOUSANDS OF PAGES OF SPONDYLOARTHRITIS INFORMATION, AND SERVES SS MORE THAN 586,000 UNIQUE VISITORS EACH YEAR.PATIENT EDUCATIONAL SEMINARS WERE HELD VIRTUALLY UTILIZING A ROBUST AND INTERACTIVE VIRTUAL CONFERENCE PLATFORM. THE PLATFORM FEATURED AN ANIMATED AND INTERACTIVE LOBBY TO ACCESS DIFFERENT PARTS OF THE CONFERENCE HALL, INCLUDING THE EXHIBIT HALL, ACTIVITY LOUNGE, SPA RESOURCES HUB, AND PRESENTATION HALL - WHERE ATTENDEES ACCESSED THE SPEAKERS' LIVE PRESENTATIONS AND TOOK PART IN MODERATED Q&A SESSIONS. IN ADDITION, "FACEBOOK LIVE" BROADCASTS WERE ALSO CONDUCTED. THESE BROADCASTS ARE RECORDED AND AVAILABLE FOR FUTURE USE THROUGH THE SAA WEBSITE.PATIENT EDUCATION PUBLICATIONS INCLUDE A COLLECTION OF 12 RECENTLY UPDATED (AND PHYSICIAN VETTED) ENGLISH LANGUAGE SPONDYLOARTHRITIS EDUCATIONAL BROCHURES, AND 10 NEW SPANISH LANGUAGE BROCHURES. AMONG THEM ARE OUR NEWEST ENGLISH LANGUAGE BROCHURES, "TALKING TO YOUR DOCTOR ABOUT SPONDYLOARTHRITIS," DEVELOPED IN MARCH OF 2022, AND "WHAT IS NR-AXSPA," DEVELOPED IN JANUARY OF 2021. ADDITIONALLY, THE EXISTING "WHAT IS ANKYLOSING SPONDYLITIS" BROCHURE WAS REWRITTEN AND REDESIGNED IN DECEMBER OF 2021. ALL 10 SPANISH LANGUAGE BROCHURES WERE ALSO COMPLETED IN 2021.SPONDYLITIS PLUS MAGAZINE-SAA MEMBERS RECEIVE QUARTERLY ISSUES OF THE ORGANIZATION'S PREMIERE PRINT PUBLICATION. SPONDYLITIS PLUS PROVIDES IN-DEPTH COVERAGE OF ISSUES SUCH AS PAIN, FATIGUE, AND OTHER COMPLICATIONS, DISCUSSES THE LATEST RESEARCH AND TREATMENT INFORMATION - OFTEN PRESENTED BY PROMINENT RHEUMATOLOGISTS AND RESEARCHERS, FEATURES MOVING AND UNIQUE PERSONAL STORIES FROM OTHERS WITH SPONDYLOARTHRITIS, AND MUCH MORE. OVER 4,500 COPIES ARE DISTRIBUTED QUARTERLY.STRAIGHT TALK ON SPONDYLOARTHRITIS PUBLICATION-THIS LEGACY PUBLICATION IS CURRENTLY BEING FULLY RE-WRITTEN AND REDESIGNED. THE FINISHED PRODUCT WILL HAVE 12 NEW CHAPTERS, WRITTEN BY VARIOUS CONTENT EXPERTS, AND RECEIVE A FULL REDESIGN. ESUN-ALMOST 36,000 PEOPLE SUBSCRIBE TO AND RECEIVE SAA'S ESUN EACH MONTH. ESUN, THE ELECTRONIC SPONDYLOARTHRITIS UPDATE NEWSLETTER, CONTAINS A VARIETY OF SPONDYLOARTHRITIS-RELATED CONTENT, SUCH AS NEWS, RESEARCH OPPORTUNITIES, UPCOMING SAA PROGRAMS AND OPPORTUNITIES, STORIES FROM THOSE LIVING WITH SPONDYLOARTHRITIS, AND MORE.COVID19 RESOURCE HUB AND RESEARCH SURVEY-WE CONTINUE TO SUBMIT SURVEY FINDINGS IN PEER REVIEWED SETTINGS. NUMEROUS ABSTRACTS HAVE BEEN SUBMITTED, AND THREE HAVE BEEN THUS FAR PUBLISHED. SAA'S COVID19 HUB CONTINUES TO BE UPDATED WITH THE LATEST INFORMATION ON THE INTERSECTION OF COVID19 AND SPONDYLOARTHRITIS, AS WELL AS INITIAL VACCINES AND BOOSTER VACCINES.SAA'S SUPPORT GROUPS-SAA'S SUPPORT GROUPS CONTINUE TO BE ACTIVE ACROSS THE US. 39 ACTIVE GROUPS, IN 25 STATES AND ONE GROUP IN INDIA, WITH 48 SUPPORT GROUP LEADERS. ONLINE SUPPORT GROUPS MADE AVAILABLE DURING COVID-19 FOR ALL PARTICIPANTS AS NEEDED. MORE THAN 236 MEETINGS HELD THROUGH JUNE 2022."LIFE AFTER DIAGNOSIS" VIDEO SERIES-A PATIENT FOCUSED EDUCATIONAL PROGRAM ADDRESSING THE UNMET NEED OF A SYSTEMATIC PATH TO UNDERSTANDING THE DIAGNOSIS, TREATMENTS, AND MANAGEMENT OF ANKYLOSING SPONDYLITIS (AS). THE PROJECT IS COMPRISED OF A SERIES OF SEVEN VIDEOS, EACH DELIVERED THROUGH AN EMAIL CONTAINING ADDITIONAL RESOURCES RELATED TO THE TOPIC AT HAND. THE CONTENT WAS DEVELOPED IN CLOSE COLLABORATION WITH LEADING HEALTH PROFESSIONALS AS WELL AS PATIENTS LIVING WITH AS.NEW ANIMATED VIDEO: WHAT IS NR-AXSPA?-SAA WORKED WITH A DIGITAL MEDIA PRODUCTION COMPANY TO SCRIPT AND DEVELOP OUR NEWEST ANIMATED EDUCATIONAL VIDEO, "WHAT IS NR-AXSPA?" THIS PIECE DISCUSSES COMMON SIGNS AND SYMPTOMS OF NR-AXSPA AND SHARES HELPFUL INFORMATION AND RESOURCES FOR THOSE IMPACTED (WHETHER DIAGNOSED OR NOT.)IMAS (INTERNATIONAL MAPPING ANKYLOSING SPONDYLITIS)-IT IS A PATIENT CONCEIVED STUDY TO UNDERSTAND THE RAMIFICATIONS OF AS. SPECIFICALLY THE STUDY DESCRIBES DEMOGRAPHICS, CLINICAL CHARACTERISTICS, JOURNEY TO AXSPA DIAGNOSIS, AND ASPECTS OF DISEASE BURDEN. SIMILAR TO SAA'S LIFE IMPACT STUDIES, IT HAS PRESENTED RESULTS FROM SEVERAL COUNTRIES IN EUROPE. SAA LAUNCHED THE USA COMPONENT OF THIS STUDY IN LATE SPRING AND HAS ADDED THE US DATA TO THE GLOBAL UNDERSTANDINGGLOBAL SPONDYLOARTHRITIS SUMMIT 2022-SAA'S SIGNATURE ONLINE EDUCATIONAL PROGRAM, 4TH ANNUAL GLOBAL SPONDYLOARTHRITIS SUMMIT, TOOK PLACE MAY 6-7. THIS YEAR'S ENHANCED VIRTUAL ENVIRONMENT PROVIDED A MORE INTERACTIVE EXPERIENCE FOR ATTENDEES. THE PROGRAM FEATURED 12 RHEUMATOLOGISTS AND MEDICAL PROFESSIONALS DISCUSSING KEY TOPICS TO THOSE IN THE INTERNATIONAL SPONDYLITIS COMMUNITY. SEVERAL OF THIS YEAR'S EXPERTS PARTICIPATED IN LIVE CHATS OR MODERATED ONLINE Q&A WITH ATTENDEES. THIS YEAR'S SUMMIT ALSO FEATURED DAILY TRIVIA QUIZZES, A LEADERBOARD CHALLENGE, A LIVE MAGIC SHOW, AN ACTIVITY LOUNGE AND AN EXHIBIT HALL. SAA ALSO PROVIDED FOREIGN LANGUAGE SUBTITLES FOR THE PRESENTATIONS. SUBTITLES WERE AVAILABLE IN SEVEN LANGUAGES: ARABIC, BULGARIAN, FRENCH, GERMAN, GREEK, RUSSIAN, AND SPANISH. MORE THAN 3,000 ATTENDEES FROM 87 COUNTRIES REGISTERED FOR THIS YEAR'S EVENT. | Desc |
Prog Srvc Accom Acty2 ProgSrvcAccomActy2Grp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Expense | $496,078 | ExpenseAmt |
| Desc | RESEARCH EARLY CAREER INVESTIGATOR AWARDS (ECI)-TWO ECI AWARDS WERE PRESENTED IN FY21-22 TOTALING $40,000, AND WERE AWARDED TO DR. RUTH NAPIER, ASSISTANT PROFESSOR AT OREGON HEALTH AND SCIENCE UNIVERSITY (OHSU), PORTLAND OR AND DR. MARK HWANG, ASSISTANT PROFESSOR OF MEDICINE AT UNIVERSITY OF TEXAS HEALTH SCIENCE CENTER, HOUSTON, TX. DR. NAPIER'S RESEARCH IS FOCUSED ON UNDERSTANDING THE IMMUNOLOGICAL (CELLULAR) MECHANISMS THAT TRIGGER AUTOIMMUNE AND AUTOINFLAMMATORY DISEASES IN GENETICALLY-SUSCEPTIBLE INDIVIDUALS. IN PARTICULAR SHE IS INTERESTED IN HOW MICROBIAL-SIGNALING MOLECULES LIKE CASPASE RECRUITMENT DOMAIN-CONTAINING PROTEIN 9 (CARD9) CONTROL DISEASE IN ANKYLOSING SPONDYLITIS (AS)DR. HWANG'S RESEARCH SEEKS TO HELP AS PATIENTS BY PREDICTING THEIR RISK OF LONG-TERM SPINAL DAMAGE, INFORMING THEM A PRIORI, AND ALLOWING TIMELY INITIATION OF POTENTIAL DISEASE-MODIFYING TREATMENT BEFORE IRREVERSIBLE SPINAL DAMAGE HAS OCCURRED. THE OVERALL OBJECTIVES IN THE UTHSC-H SPONDYLOARTHRITIS PROGRAM ARE TO (I) DEVELOP ALGORITHMS THAT WILL IDENTIFY AS RADIOGRAPHIC SPINAL DAMAGE PATTERNS THROUGH MOLECULAR DATA AND (II) CHARACTERIZE THE INTEGRAL BIOLOGIC PATHWAYS RESPONSIBLE FOR SPINAL DAMAGE.IN ADDITION TO FUNDING ECI AWARDS THE ORGANIZATION RECEIVES FUNDING REQUESTS FROM OUTSIDE SOURCES TO SUPPORT RESEARCH RELATED TO SPONDYLOARTHRITIS. BECAUSE THE ORGANIZATION HAS LIMITED RESOURCES FOR RESEARCH FUNDING, IT IS IMPERATIVE THAT ANY RESEARCH PROPOSALS MAKE OPTIMAL USE OF THESE LIMITED RESOURCES. THREE FUNDING REQUESTS WERE APPROVED IN 2022. THESE GRANTS WENT TO THE FOLLOWING: - MICHAEL WEISMAN, MD - GROUNDBREAKING RESEARCH SOUGHT TO GAIN A BETTER UNDERSTANDING OF THE RATES AND PREDICTORS OF SPA AND ITS ASSOCIATED FUNCTIONAL OUTCOMES IN MILITARY POPULATIONS. - KRISTI KUHN, MD - RESEARCH COMBINED TRANSLATIONAL OBSERVATIONS FROM A STUDY POPULATION OF PEOPLE WITH AS WITH MECHANISTIC WET-BENCH STUDIES AIMING TO ADDRESS THE IMMUNOLOGIC CONSEQUENCES OF MICROBIOME CHANGES IN PATIENTS WITH SPA. THE STUDY PROVIDES AN IMPORTANT FOUNDATION TO ADDRESS WHY THE MICROBIOME IS IMPORTANT IN THE DEVELOPMENT OF SPA.- TEJPAL GILL, MD - RESEARCH SOUGHT TO UNDERSTAND THE MECHANISM UNDERLYING DISEASE SUSCEPTIBILITY. SPECIFICALLY, TO DETERMINE THE METABOLIC PROFILE IN AXIAL SPONDYLOARTHRITIS (AXSPA) PATIENTS IN COMPARISON WITH HLA-B27 POSITIVE AND HLA-B27 NEGATIVE HEALTHY CONTROLS AS A TOOL TO DETERMINE THE CONTRIBUTION OF HLA-B27 AND DISEASE ON THE FECAL AND PLASMA METABOLOME.SAA ALSO RECEIVED A BEQUEST IN 2022 RESTRICTED TO RESEARCH. THIS MONEY WILL BE USED TO PLAN AND CONDUCT OUR 3RD UNMET NEEDS RESEARCH CONFERENCE IN SEPT 2023 FOLLOWED BY A REQUEST FOR PROPOSALS IN THE UNMET NEEDS RESEARCH AREAS IDENTIFIED THROUGH THE CONFERENCE. | Desc |
Prog Srvc Accom Acty3 ProgSrvcAccomActy3Grp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Expense | $374,225 | ExpenseAmt |
| Desc | HEALTH CARE PROVIDER EDUCATION AND OUTREACHPRIMARY CARE, AND CHIROPRACTOR ACCREDITED ONLINE EDUCATION: FOCUSING ON SHORTENING THE SPA DIAGNOSTIC DELAY-THE PRIMARY CARE AND CHIROPRACTIC FACING EDUCATIONAL MODULES WERE FINALIZED, ACCREDITED, AND LAUNCHED IN DEC 2021.THE PRIMARY CARE MODULE IS TITLED, "DEMYSTIFYING AXIAL SPONDYLOARTHRITIS IN PRIMARY CARE: RECOGNITION, DIAGNOSIS, AND WHAT COMES NEXT." THE PURPOSE OF THIS MODULE IS TO INCREASE THE AWARENESS OF AXSPA AMONG PRIMARY CARE PROVIDERS, GIVING THEM THE TOOLS TO APPROPRIATELY SUSPECT, DIAGNOSE, AND REFER AXSPA PATIENTS TO RHEUMATOLOGY TO ENSURE TIMELY DIAGNOSIS AND TREATMENT, AND IMPROVE PATIENT OUTCOMES.THE MODULE IS ACCREDITED FOR AMA/PRA CATEGORY 1 CREDITS THROUGH SAA'S PARTNERSHIP WITH EXCEL CME (WWW.EXCELCME.COM). ADDITIONALLY, ACTIVITIES ACCREDITED BY ACCME PROVIDERS ARE ACCEPTED AND RECOGNIZED FOR CREDIT BY THE AAPA (PHYSICIAN ASSISTANTS) AND THE AANP (NURSE PRACTITIONERS), ALLOWING US TO OFFER THIS LEARNING OPPORTUNITY TO A WIDE GROUP OF PRIMARY CARE PROVIDERS.THE CHIROPRACTIC MODULE IS TITLED, "SPOTTING AXIAL SPONDYLOARTHRITIS IN CHIROPRACTIC SETTINGS: IS AXSPA BEHIND YOUR PATIENT'S BACK PAIN? THE PURPOSE OF THIS MODULE IS TO INCREASE THE AWARENESS OF AXSPA AMONG CHIROPRACTORS, GIVING THEM THE TOOLS TO APPROPRIATELY SUSPECT, DIAGNOSE, AND REFER AXSPA PATIENTS TO RHEUMATOLOGISTS TO ENSURE TIMELY TREATMENT AND IMPROVE PATIENT OUTCOMES.THIS MODULE HAS BEEN ACCREDITED THROUGH PACE (PROVIDERS OF APPROVED CONTINUING EDUCATION) THROUGH A PARTNERSHIP WITH THE NATIONAL UNIVERSITY OF HEALTH SCIENCES ACCREDITATION BOARD AND PROVIDES ONE CE CREDIT. ACCREDITED ONLINE EDUCATION FOR FIRST RESPONDERS SAA'S COURSE FOR FIRST RESPONDERS, "EMS PITFALLS: ANKYLOSING SPONDYLITIS" WILL BE REACCREDITED IN DECEMBER 2022 AND CONTINUE TO PROVIDE 1 CE CREDIT FOR FIRST RESPONDERS AND NURSES. STANDARD EMS TREATMENT PROTOCOLS CAN CAUSE INJURY, DISABILITY, AND EVEN DEATH IN PATIENTS WITH ANKYLOSING SPONDYLITIS (AS). THIS COURSE PROVIDES TOOLS TO RECOGNIZE AS, AND SAFELY AND PROPERLY MANAGE IT IN EMERGENCY SITUATIONS.ADDITIONAL HCP EDUCATIONAL MODULES ARE IN DEVELOPMENT AND INCLUDE: ANESTHESIOLOGY AND AIRWAY MANAGEMENT MODULE-THE ANESTHESIOLOGY AND AIRWAY MANAGEMENT MODULE IS A NEW MODULE ADDED DURING THE LAST QUARTER OF FY2021. WE ARE IN THE EARLY PLANNING STAGES FOR THE DEVELOPMENT AND ACCREDITATION OF THIS 1-HOUR, ONLINE ACCREDITED ACTIVITY FOCUSING ON AXSPA AND AIRWAY MANAGEMENT. THE MODULE IS EXPECTED TO BE COMPLETED AND ACCREDITED DURING FY22-23.CASE-BASED MRI EDUCATIONAL TOOL FOR AXIAL SPONDYLOARTHRITIS-WE ARE SUPPORTING THE ENHANCEMENT BY CARE ARTHRITIS OF A NEWLY DEVELOPED MOBILE APP WHICH WILL HOST AND DELIVER MRI CASE STUDIES GEARED TO RHEUMATOLOGISTS AND RADIOLOGISTS. THE APP CURRENTLY HOSTS CONTENT FROM RHEUMNOW AND IS BEING EXPANDED WITH AN EDUCATIONAL MRI CASE STUDY FEATURE. THE PROGRAM AIMS TO ADDRESS A TOP-RANKED UNMET EDUCATIONAL NEED IN THE FIELD OF SPONDYLOARTHRITIS, NAMELY, THE APPROPRIATE INTERPRETATION OF MRI BY RHEUMATOLOGISTS AND RADIOLOGISTS FOR EARLY DIAGNOSIS OF SPA. THE APP STREAMING CONTENT WILL BE CASE-BASED AND INCLUDE BOTH CLINICAL AND IMAGING COMPONENTS. THE LAUNCH DATE OF THIS PROGRAM WILL BE DETERMINED BY ACCREDITATION AND DISTRIBUTION TIMELINES AND NEEDS. GOAL IS DURING FY 22-23.RHEUM TO DIAGNOSE-PHASE THREE OF A THREE-YEAR GRANT. THE GOAL OF "RHEUM TO DIAGNOSE" IS TO ADDRESS REAL WORLD BARRIERS TO AN ACCURATE AND EXPEDIENT DIAGNOSIS OF NR-AXSPA IN THE RHEUMATOLOGY SETTING. THE PHYSICIAN-FACING CONTENT OF RHEUM TO DIAGNOSE INCLUDES A TOTAL OF SIX PRESENTATIONS FEATURING EXPERTS IN SPONDYLOARTHRITIS, GEARED TO TWO DISTINCT AUDIENCES: RHEUMATOLOGY FELLOWS, AND MEDICAL STUDENTS. ALL SIX PRESENTATIONS (THREE FOR RHEUMATOLOGY FELLOWS, AND THREE FOR MEDICAL STUDENTS) ALONG WITH A PROMOTIONAL TRAILER, HAVE NOW BEEN PROFESSIONALLY RECORDED. SAA HAS CONTRACTED WITH A LEADING MARKETING FIRM SPECIALIZING IN HEALTHCARE AND HCP OUTREACH AND WILL BE GUIDING THE PROMOTION AND DISTRIBUTION OF THESE, AND OTHER AXSPA EDUCATIONAL CONTENT CREATED AS PART OF THIS GRANT.DELAY TO DIAGNOSIS-SAA CONTINUES TO COLLABORATE WITH ASIF (AXIAL SPONDYLOARTHRITIS INTERNATIONAL FEDERATION) INITIATIVE TO UNDERSTAND THE DELAY TO DIAGNOSIS ON A GLOBAL LEVEL. INFORMATION GLEANED FROM "HACKATHON" PROGRAMS WILL BE SHARED WITH SPA COMMUNITY THROUGH THE SUMMER 2021 LAUNCH OF A GLOBAL INITIATIVE THAT INCLUDES INFORMATION ON THE WEBSITE AND SHARED WITH NUMEROUS MEMBER ORGANIZATIONS. | Desc |
Prog Srvc Accom Acty Other ProgSrvcAccomActyOtherGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Expense | $556,588 | ExpenseAmt |
| Desc | SAA'S SUPPORT GROUPS-SAA'S SUPPORT GROUPS CONTINUE TO BE ACTIVE ACROSS THE US. 39 ACTIVE GROUPS, IN 25 STATES AND ONE GROUP IN INDIA, WITH 48 SUPPORT GROUP LEADERS. ONLINE SUPPORT GROUPS MADE AVAILABLE DURING COVID-19 FOR ALL PARTICIPANTS AS NEEDED. MORE THAN 236 MEETINGS HELD THROUGH JUNE 2022.RHEUM TO DIAGNOSE-PHASE THREE OF A THREE-YEAR GRANT. THE GOAL OF "RHEUM TO DIAGNOSE" IS TO ADDRESS REAL WORLD BARRIERS TO AN ACCURATE AND EXPEDIENT DIAGNOSIS OF NR-AXSPA IN THE RHEUMATOLOGY SETTING. THE PHYSICIAN-FACING CONTENT OF RHEUM TO DIAGNOSE INCLUDES A TOTAL OF SIX PRESENTATIONS FEATURING EXPERTS IN SPONDYLOARTHRITIS, GEARED TO TWO DISTINCT AUDIENCES: RHEUMATOLOGY FELLOWS, AND MEDICAL STUDENTS. SOCIAL MEDIA - FACEBOOK AND TWITTER REMAIN A PRIMARY SOURCE OF EDUCATION AND AWARENESS WITH SAA'S CONSTITUENTS. DURING THE FISCAL YEAR ENDING JUNE 30, 2022, FACEBOOK EARNED 769,370 IMPRESSIONS AND 47,056 ENGAGEMENTS AND TWITTER EARNED 828,741 IMPRESSIONS AND 12,491 ENGAGEMENTS. THE SAA'S COMMUNITY FORUMS ALSO CONTINUE TO BE ACTIVE NOT ONLY FOR THE NEWLY DIAGNOSED BUT THOSE LIVING WITH THE DISEASE FROM A FEW YEARS TO ALMOST A LIFETIME. IN ADDITION, OUR INSTAGRAM COMMUNITY CONTINUES TO GROW AND CONTRIBUTED 180,022 IMPRESSIONS AND 7,660 ENGAGEMENTS DURING THE SAME PERIOD.SPONDYLOARTHRITIS (SPA) AWARENESS MONTH-SPONDYLOARTHRITIS (SPA) AWARENESS MONTH WAS CELEBRATED MAY 2022. ACTIVITIES INCLUDED RAISING AWARENESS DURING MAY AND THROUGHOUT THE YEAR HELPS INCREASE VISIBILITY OF SPONDYLOARTHRITIS. THROUGH THESE EFFORTS, WE ALSO EMPHASIZE THE NEED FOR RECOGNIZING THE SYMPTOMS FOR PROPER AND TIMELY DIAGNOSIS, FUNDING RESEARCH FOR A CURE, AND SUPPORT PROGRAMS THAT EDUCATE AND EMPOWER THOSE IMPACTED BY SPA TO MAKE MORE INFORMED DECISIONS ABOUT THEIR HEALTH. OUR THEME FOR 2022 FOCUSED ON EMOTIONAL WELLNESS, BASED ON THE TOPIC OUR PARTNERS AT ASIF PINNED FOR WORLD AS DAY. | Desc |
| Field | Value | IRS element (for citing) |
|---|---|---|
| Total Other Prog Srvc Expense | $556,588 | TotalOtherProgSrvcExpenseAmt |
| Total Program Service Expenses | $2,290,665 | TotalProgramServiceExpensesAmt |
| Described In Section501c3 | Yes (1) | DescribedInSection501c3Ind |
| Schedule B Required | Yes (1) | ScheduleBRequiredInd |
| Political Campaign Acty | 0 | PoliticalCampaignActyInd |
| Lobbying Activities | 0 | LobbyingActivitiesInd |
| Subject To Proxy Tax | 0 | SubjectToProxyTaxInd |
| Donor Advised Fund | 0 | DonorAdvisedFundInd |
| Conservation Easements | 0 | ConservationEasementsInd |
| Collections Of Art | 0 | CollectionsOfArtInd |
| Credit Counseling | 0 | CreditCounselingInd |
| Donor Rstr Or Quasi Endowments | 0 | DonorRstrOrQuasiEndowmentsInd |
| Report Land Building Equipment | Yes (1) | ReportLandBuildingEquipmentInd |
| Report Investments Other Sec | 0 | ReportInvestmentsOtherSecInd |
| Report Program Related Invst | 0 | ReportProgramRelatedInvstInd |
| Report Other Assets | 0 | ReportOtherAssetsInd |
| Report Other Liabilities | 0 | ReportOtherLiabilitiesInd |
| Include FIN48 Footnote | Yes (1) | IncludeFIN48FootnoteInd |
| Independent Audit Fincl Stmt | Yes (1) | IndependentAuditFinclStmtInd |
| Consolidated Audit Fincl Stmt | 0 | ConsolidatedAuditFinclStmtInd |
| School Operating | 0 | SchoolOperatingInd |
| Foreign Office | 0 | ForeignOfficeInd |
| Foreign Activities | 0 | ForeignActivitiesInd |
| More Than5000 K To Org | 0 | MoreThan5000KToOrgInd |
| More Than5000 K To Individuals | 0 | MoreThan5000KToIndividualsInd |
| Professional Fundraising | 0 | ProfessionalFundraisingInd |
| Fundraising Activities | 0 | FundraisingActivitiesInd |
| Gaming Activities | 0 | GamingActivitiesInd |
| Operate Hospital | 0 | OperateHospitalInd |
| Grants To Organizations | Yes (1) | GrantsToOrganizationsInd |
| Grants To Individuals | Yes (1) | GrantsToIndividualsInd |
| Schedule J Required | Yes (1) | ScheduleJRequiredInd |
| Tax Exempt Bonds | 0 | TaxExemptBondsInd |
| Engaged In Excess Benefit Trans | 0 | EngagedInExcessBenefitTransInd |
| PY Excess Benefit Trans | 0 | PYExcessBenefitTransInd |
| Loan Outstanding | 0 | LoanOutstandingInd |
| Grant To Related Person | 0 | GrantToRelatedPersonInd |
| Business Rln With Org Mem | 0 | BusinessRlnWithOrgMemInd |
| Business Rln With Fam Mem | 0 | BusinessRlnWithFamMemInd |
| Business Rln With35 Ctrl Ent | 0 | BusinessRlnWith35CtrlEntInd |
| Deductible Non Cash Contri | 0 | DeductibleNonCashContriInd |
| Deductible Art Contribution | 0 | DeductibleArtContributionInd |
| Terminate Operations | 0 | TerminateOperationsInd |
| Partial Liquidation | 0 | PartialLiquidationInd |
| Disregarded Entity | 0 | DisregardedEntityInd |
| Related Entity | 0 | RelatedEntityInd |
| Related Organization Ctrl Ent | 0 | RelatedOrganizationCtrlEntInd |
| Trnsfr Exmpt Non Chrtbl Rltd Org | 0 | TrnsfrExmptNonChrtblRltdOrgInd |
| Activities Conducted Prtshp | 0 | ActivitiesConductedPrtshpInd |
| Schedule O Required | Yes (1) | ScheduleORequiredInd |
| IRP Document | 16 | IRPDocumentCnt |
| IRP Document W2 G | 0 | IRPDocumentW2GCnt |
| Employee | 13 | EmployeeCnt |
| Employment Tax Returns Filed | Yes (1) | EmploymentTaxReturnsFiledInd |
| Unrelated Bus Incm Over Limit | 0 | UnrelatedBusIncmOverLimitInd |
| Foreign Financial Account | 0 | ForeignFinancialAccountInd |
| Prohibited Tax Shelter Trans | 0 | ProhibitedTaxShelterTransInd |
| Taxable Party Notification | 0 | TaxablePartyNotificationInd |
| Nondeductible Contributions | 0 | NondeductibleContributionsInd |
| Quid Pro Quo Contributions | 0 | QuidProQuoContributionsInd |
| Form8282 Property Disposed Of | 0 | Form8282PropertyDisposedOfInd |
| Rcv Fnds To Pay Prsnl Bnft Cntrct | 0 | RcvFndsToPayPrsnlBnftCntrctInd |
| Pay Premiums Prsnl Bnft Cntrct | 0 | PayPremiumsPrsnlBnftCntrctInd |
| Indoor Tanning Services | 0 | IndoorTanningServicesInd |
| Subj To Tax Rmnrtn Ex Prcht Pymt | 0 | SubjToTaxRmnrtnExPrchtPymtInd |
| Subject To Excs Tax Net Invst Inc | 0 | SubjectToExcsTaxNetInvstIncInd |
| Info In Schedule O Part VI | Yes (X) | InfoInScheduleOPartVIInd |
| Governing Body Voting Members | 12 | GoverningBodyVotingMembersCnt |
| Independent Voting Member | 12 | IndependentVotingMemberCnt |
| Family Or Business Rln | 0 | FamilyOrBusinessRlnInd |
| Delegation Of Mgmt Duties | 0 | DelegationOfMgmtDutiesInd |
| Change To Org Documents | 0 | ChangeToOrgDocumentsInd |
| Material Diversion Or Misuse | 0 | MaterialDiversionOrMisuseInd |
| Members Or Stockholders | 0 | MembersOrStockholdersInd |
| Election Of Board Members | 0 | ElectionOfBoardMembersInd |
| Decisions Subject To Approva | 0 | DecisionsSubjectToApprovaInd |
| Minutes Of Governing Body | Yes (1) | MinutesOfGoverningBodyInd |
| Minutes Of Committees | Yes (1) | MinutesOfCommitteesInd |
| Officer Mailing Address | 0 | OfficerMailingAddressInd |
| Local Chapters | 0 | LocalChaptersInd |
| Form990 Provided To Gvrn Body | Yes (1) | Form990ProvidedToGvrnBodyInd |
| Conflict Of Interest Policy | Yes (1) | ConflictOfInterestPolicyInd |
| Annual Disclosure Covered Prsn | Yes (1) | AnnualDisclosureCoveredPrsnInd |
| Regular Monitoring Enfrc | Yes (1) | RegularMonitoringEnfrcInd |
| Whistleblower Policy | Yes (1) | WhistleblowerPolicyInd |
| Document Retention Policy | Yes (1) | DocumentRetentionPolicyInd |
| Compensation Process CEO | Yes (1) | CompensationProcessCEOInd |
| Compensation Process Other | Yes (1) | CompensationProcessOtherInd |
| Investment In Joint Venture | 0 | InvestmentInJointVentureInd |
| States Where Copy Of Return Is Fld | CA | StatesWhereCopyOfReturnIsFldCd |
| Own Website | Yes (X) | OwnWebsiteInd |
| Other Website | Yes (X) | OtherWebsiteInd |
| Upon Request | Yes (X) | UponRequestInd |
Books In Care Of Detail BooksInCareOfDetail
Business Name BusinessName
| Field | Value | IRS element (for citing) |
|---|---|---|
| Business Name Line1 | CASSIE SHAFER | BusinessNameLine1Txt |
| Field | Value | IRS element (for citing) |
|---|---|---|
| Phone | 8188921616 | PhoneNum |
US Address USAddress
| Field | Value | IRS element (for citing) |
|---|---|---|
| Address Line1 | 16430 VENTURA BLVD SUITE 300 | AddressLine1Txt |
| City | ENCINO | CityNm |
| State Abbreviation | CA | StateAbbreviationCd |
| ZIP | 91436 | ZIPCd |
Form990 Part VII Section A Form990PartVIISectionAGrp (15 entries)
| TitleTitleTxt | Average Hours Per WeekAverageHoursPerWeekRt | Individual Trustee Or DirectorIndividualTrusteeOrDirectorInd | OfficerOfficerInd | Reportable Comp From OrgReportableCompFromOrgAmt | Reportable Comp From Rltd OrgReportableCompFromRltdOrgAmt | Other CompensationOtherCompensationAmt | Highest Compensated EmployeeHighestCompensatedEmployeeInd |
|---|---|---|---|---|---|---|---|
| ELLEN CARROLL | |||||||
| SECRETARY | 2.00 | Yes (X) | Yes (X) | $0 | $0 | $0 | |
| CRAIG GIMBEL | |||||||
| DIRECTOR | 1.00 | Yes (X) | $0 | $0 | $0 | ||
| ERIC GOLDSTEIN | |||||||
| TREASURER | 2.00 | Yes (X) | Yes (X) | $0 | $0 | $0 | |
| PAMELA WEISS | |||||||
| DIRECTOR | 1.00 | Yes (X) | $0 | $0 | $0 | ||
| ARNOLD M PODOLSKY | |||||||
| DIRECTOR | 1.00 | Yes (X) | $0 | $0 | $0 | ||
| MARY ANN POLADIAN | |||||||
| DIRECTOR | 1.00 | Yes (X) | $0 | $0 | $0 | ||
| JILL MILLER | |||||||
| DIRECTOR | 1.00 | Yes (X) | $0 | $0 | $0 | ||
| MICHAEL PIANIN | |||||||
| BOARD CHAIR | 2.00 | Yes (X) | Yes (X) | $0 | $0 | $0 | |
| BATYA BILMES LEMLER | |||||||
| DIRECTOR | 1.00 | Yes (X) | $0 | $0 | $0 | ||
| JOHN D REVEILLE | |||||||
| DIRECTOR | 1.00 | Yes (X) | $0 | $0 | $0 | ||
| JAMES ROSENBAUM | |||||||
| DIRECTOR | 1.00 | Yes (X) | $0 | $0 | $0 | ||
| PAULA OLSIEWSKI | |||||||
| VICE CHAIR | 2.00 | Yes (X) | Yes (X) | $0 | $0 | $0 | |
| CASSIE SHAFER | |||||||
| CHIEF EXECUTIVE OFFICER | 40.00 | Yes (X) | $226,968 | $0 | $6,207 | ||
| DIANN PETERSON | |||||||
| CHIEF PHILANTHROPY OFFICER | 40.00 | $115,323 | $0 | $15,868 | Yes (X) | ||
| RICHARD HOWARD | |||||||
| CHIEF MISSION ADVANCEMENT | 40.00 | $108,031 | $0 | $14,046 | Yes (X) | ||
| Field | Value | IRS element (for citing) |
|---|---|---|
| Total Reportable Comp From Org | $450,322 | TotalReportableCompFromOrgAmt |
| Tot Reportable Comp Rltd Org | $0 | TotReportableCompRltdOrgAmt |
| Total Other Compensation | $36,121 | TotalOtherCompensationAmt |
| Indiv Rcvd Greater Than100 K | 3 | IndivRcvdGreaterThan100KCnt |
| Former Ofcr Employees Listed | 0 | FormerOfcrEmployeesListedInd |
| Total Comp Greater Than150 K | Yes (1) | TotalCompGreaterThan150KInd |
| Compensation From Other Srcs | 0 | CompensationFromOtherSrcsInd |
| Cntrct Rcvd Greater Than100 K | 0 | CntrctRcvdGreaterThan100KCnt |
| All Other Contributions | $5,505,466 | AllOtherContributionsAmt |
| Noncash Contributions | $2,000 | NoncashContributionsAmt |
| Total Contributions | $5,505,466 | TotalContributionsAmt |
Program Service Revenue ProgramServiceRevenueGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Desc | PUBLICATION SALES | Desc |
| Business | 611710 | BusinessCd |
| Total Revenue Column | $4,877 | TotalRevenueColumnAmt |
| Related Or Exempt Func Income | $4,877 | RelatedOrExemptFuncIncomeAmt |
| Field | Value | IRS element (for citing) |
|---|---|---|
| Total Program Service Revenue | $4,877 | TotalProgramServiceRevenueAmt |
Investment Income InvestmentIncomeGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Total Revenue Column | $51,298 | TotalRevenueColumnAmt |
| Exclusion | $51,298 | ExclusionAmt |
Gross Amount Sales Assets GrossAmountSalesAssetsGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Securities | $40,000 | SecuritiesAmt |
Less Cost Oth Basis Sales Expnss LessCostOthBasisSalesExpnssGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Securities | $31,070 | SecuritiesAmt |
Gain Or Loss GainOrLossGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Securities | $8,930 | SecuritiesAmt |
Net Gain Or Loss Investments NetGainOrLossInvestmentsGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Total Revenue Column | $8,930 | TotalRevenueColumnAmt |
| Exclusion | $8,930 | ExclusionAmt |
Total Revenue TotalRevenueGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Total Revenue Column | $5,570,571 | TotalRevenueColumnAmt |
| Related Or Exempt Func Income | $4,877 | RelatedOrExemptFuncIncomeAmt |
| Unrelated Business Revenue | $0 | UnrelatedBusinessRevenueAmt |
| Exclusion | $60,228 | ExclusionAmt |
| Field | Value | IRS element (for citing) |
|---|---|---|
| Info In Schedule O Part IX | Yes (X) | InfoInScheduleOPartIXInd |
Grants To Domestic Orgs GrantsToDomesticOrgsGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Total | $436,878 | TotalAmt |
| Program Services | $436,878 | ProgramServicesAmt |
Grants To Domestic Individuals GrantsToDomesticIndividualsGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Total | $15,000 | TotalAmt |
| Program Services | $15,000 | ProgramServicesAmt |
Comp Current Ofcr Directors CompCurrentOfcrDirectorsGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Total | $247,357 | TotalAmt |
| Program Services | $197,885 | ProgramServicesAmt |
| Management And General | $24,736 | ManagementAndGeneralAmt |
| Fundraising | $24,736 | FundraisingAmt |
Other Salaries And Wages OtherSalariesAndWagesGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Total | $921,031 | TotalAmt |
| Program Services | $700,040 | ProgramServicesAmt |
| Management And General | $166,020 | ManagementAndGeneralAmt |
| Fundraising | $54,971 | FundraisingAmt |
Pension Plan Contributions PensionPlanContributionsGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Total | $21,918 | TotalAmt |
| Program Services | $17,668 | ProgramServicesAmt |
| Management And General | $2,802 | ManagementAndGeneralAmt |
| Fundraising | $1,448 | FundraisingAmt |
Other Employee Benefits OtherEmployeeBenefitsGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Total | $92,539 | TotalAmt |
| Program Services | $71,136 | ProgramServicesAmt |
| Management And General | $15,577 | ManagementAndGeneralAmt |
| Fundraising | $5,826 | FundraisingAmt |
Payroll Taxes PayrollTaxesGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Total | $84,599 | TotalAmt |
| Program Services | $63,063 | ProgramServicesAmt |
| Management And General | $15,210 | ManagementAndGeneralAmt |
| Fundraising | $6,326 | FundraisingAmt |
Fees For Services Legal FeesForServicesLegalGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Total | $3,469 | TotalAmt |
| Management And General | $3,469 | ManagementAndGeneralAmt |
Fees For Services Accounting FeesForServicesAccountingGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Total | $71,964 | TotalAmt |
| Management And General | $71,964 | ManagementAndGeneralAmt |
Fees For Services Other FeesForServicesOtherGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Total | $357,196 | TotalAmt |
| Program Services | $357,196 | ProgramServicesAmt |
Office Expenses OfficeExpensesGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Total | $281,558 | TotalAmt |
| Program Services | $213,942 | ProgramServicesAmt |
| Management And General | $58,733 | ManagementAndGeneralAmt |
| Fundraising | $8,883 | FundraisingAmt |
Information Technology InformationTechnologyGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Total | $27,787 | TotalAmt |
| Program Services | $22,087 | ProgramServicesAmt |
| Management And General | $3,500 | ManagementAndGeneralAmt |
| Fundraising | $2,200 | FundraisingAmt |
Occupancy OccupancyGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Total | $48,585 | TotalAmt |
| Program Services | $36,085 | ProgramServicesAmt |
| Management And General | $10,550 | ManagementAndGeneralAmt |
| Fundraising | $1,950 | FundraisingAmt |
Travel TravelGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Total | $6,137 | TotalAmt |
| Program Services | $6,137 | ProgramServicesAmt |
Conferences Meetings ConferencesMeetingsGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Total | $136,633 | TotalAmt |
| Program Services | $136,590 | ProgramServicesAmt |
| Fundraising | $43 | FundraisingAmt |
Depreciation Depletion DepreciationDepletionGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Total | $20,658 | TotalAmt |
| Program Services | $16,958 | ProgramServicesAmt |
| Management And General | $2,400 | ManagementAndGeneralAmt |
| Fundraising | $1,300 | FundraisingAmt |
Total Functional Expenses TotalFunctionalExpensesGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Total | $2,773,309 | TotalAmt |
| Program Services | $2,290,665 | ProgramServicesAmt |
| Management And General | $374,961 | ManagementAndGeneralAmt |
| Fundraising | $107,683 | FundraisingAmt |
Cash Non Interest Bearing CashNonInterestBearingGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| BOY | $424,746 | BOYAmt |
| EOY | $235,048 | EOYAmt |
Savings And Temp Cash Invst SavingsAndTempCashInvstGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| BOY | $4,017,438 | BOYAmt |
| EOY | $7,300,421 | EOYAmt |
Pledges And Grants Receivable PledgesAndGrantsReceivableGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| EOY | $32,000 | EOYAmt |
Accounts Receivable AccountsReceivableGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| BOY | $3,174 | BOYAmt |
Prepaid Expenses Defrd Charges PrepaidExpensesDefrdChargesGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| BOY | $69,922 | BOYAmt |
| EOY | $18,092 | EOYAmt |
| Field | Value | IRS element (for citing) |
|---|---|---|
| Land Bldg Equip Cost Or Other Bss | $37,425 | LandBldgEquipCostOrOtherBssAmt |
| Land Bldg Equip Accum Deprec | $16,653 | LandBldgEquipAccumDeprecAmt |
Land Bldg Equip Basis Net LandBldgEquipBasisNetGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| BOY | $14,629 | BOYAmt |
| EOY | $20,772 | EOYAmt |
Investments Pub Traded Sec InvestmentsPubTradedSecGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| BOY | $355,162 | BOYAmt |
| EOY | $279,503 | EOYAmt |
Intangible Assets IntangibleAssetsGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| BOY | $54,247 | BOYAmt |
| EOY | $39,452 | EOYAmt |
Other Assets Total OtherAssetsTotalGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| BOY | $3,618 | BOYAmt |
| EOY | $3,618 | EOYAmt |
Total Assets TotalAssetsGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| BOY | $4,942,936 | BOYAmt |
| EOY | $7,928,906 | EOYAmt |
Accounts Payable Accr Expnss AccountsPayableAccrExpnssGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| BOY | $225,104 | BOYAmt |
| EOY | $582,891 | EOYAmt |
Total Liabilities TotalLiabilitiesGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| BOY | $225,104 | BOYAmt |
| EOY | $582,891 | EOYAmt |
| Field | Value | IRS element (for citing) |
|---|---|---|
| Organization Follows FASB117 | Yes (X) | OrganizationFollowsFASB117Ind |
No Donor Restriction Net Assets NoDonorRestrictionNetAssetsGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| BOY | $3,654,020 | BOYAmt |
| EOY | $4,296,789 | EOYAmt |
Donor Restriction Net Assets DonorRestrictionNetAssetsGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| BOY | $1,063,812 | BOYAmt |
| EOY | $3,049,226 | EOYAmt |
Total Net Assets Fund Balance TotalNetAssetsFundBalanceGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| BOY | $4,717,832 | BOYAmt |
| EOY | $7,346,015 | EOYAmt |
Tot Liab Net Assets Fund Balance TotLiabNetAssetsFundBalanceGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| BOY | $4,942,936 | BOYAmt |
| EOY | $7,928,906 | EOYAmt |
| Field | Value | IRS element (for citing) |
|---|---|---|
| Reconcilation Revenue Expnss | $2,797,262 | ReconcilationRevenueExpnssAmt |
| Net Unrlzd Gains Losses Invst | -$169,079 | NetUnrlzdGainsLossesInvstAmt |
| Other Changes In Net Assets | $0 | OtherChangesInNetAssetsAmt |
| Info In Schedule O Part XII | Yes (X) | InfoInScheduleOPartXIIInd |
| Method Of Accounting Accrual | Yes (X) | MethodOfAccountingAccrualInd |
| Accountant Compile Or Review | 0 | AccountantCompileOrReviewInd |
| FS Audited | Yes (1) | FSAuditedInd |
FS Audited Basis FSAuditedBasisGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Separate Basis Fincl Stmt | Yes (X) | SeparateBasisFinclStmtInd |
| Field | Value | IRS element (for citing) |
|---|---|---|
| Audit Committee | Yes (1) | AuditCommitteeInd |
| Federal Grant Audit Required | 0 | FederalGrantAuditRequiredInd |
Schedule A IRS990ScheduleA
| Field | Value | IRS element (for citing) |
|---|---|---|
| Public Organization170 | Yes (X) | PublicOrganization170Ind |
Gifts Grants Contri Rcvd170 GiftsGrantsContriRcvd170Grp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Current Tax Year Minus4 Years | $1,652,738 | CurrentTaxYearMinus4YearsAmt |
| Current Tax Year Minus3 Years | $1,941,665 | CurrentTaxYearMinus3YearsAmt |
| Current Tax Year Minus2 Years | $2,181,281 | CurrentTaxYearMinus2YearsAmt |
| Current Tax Year Minus1 Year | $2,996,504 | CurrentTaxYearMinus1YearAmt |
| Current Tax Year | $5,505,466 | CurrentTaxYearAmt |
| Total | $14,277,654 | TotalAmt |
Total Calendar Year170 TotalCalendarYear170Grp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Current Tax Year Minus4 Years | $1,652,738 | CurrentTaxYearMinus4YearsAmt |
| Current Tax Year Minus3 Years | $1,941,665 | CurrentTaxYearMinus3YearsAmt |
| Current Tax Year Minus2 Years | $2,181,281 | CurrentTaxYearMinus2YearsAmt |
| Current Tax Year Minus1 Year | $2,996,504 | CurrentTaxYearMinus1YearAmt |
| Current Tax Year | $5,505,466 | CurrentTaxYearAmt |
| Total | $14,277,654 | TotalAmt |
| Field | Value | IRS element (for citing) |
|---|---|---|
| Substantial Contributors Tot | $6,979,958 | SubstantialContributorsTotAmt |
| Public Support Total170 | $7,297,696 | PublicSupportTotal170Amt |
Gross Investment Income170 GrossInvestmentIncome170Grp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Current Tax Year Minus4 Years | $35,065 | CurrentTaxYearMinus4YearsAmt |
| Current Tax Year Minus3 Years | $68,076 | CurrentTaxYearMinus3YearsAmt |
| Current Tax Year Minus2 Years | $65,844 | CurrentTaxYearMinus2YearsAmt |
| Current Tax Year Minus1 Year | $61,787 | CurrentTaxYearMinus1YearAmt |
| Current Tax Year | $51,298 | CurrentTaxYearAmt |
| Total | $282,070 | TotalAmt |
| Field | Value | IRS element (for citing) |
|---|---|---|
| Total Support | $14,559,724 | TotalSupportAmt |
| Gross Receipts Rltd Activities | $29,967 | GrossReceiptsRltdActivitiesAmt |
| Public Support CY170 | 0.50120 | PublicSupportCY170Pct |
| Public Support PY170 | 0.55520 | PublicSupportPY170Pct |
| Thirty Thr Pct Suprt Tests CY170 | Yes (X) | ThirtyThrPctSuprtTestsCY170Ind |
Schedule B IRS990ScheduleB
Contributor Information ContributorInformationGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Contributor | RESTRICTED | ContributorNum |
Contributor Business Name ContributorBusinessName
| Field | Value | IRS element (for citing) |
|---|---|---|
| Business Name Line1 | RESTRICTED | BusinessNameLine1 |
Contributor US Address ContributorUSAddress
| Field | Value | IRS element (for citing) |
|---|---|---|
| Address Line1 | RESTRICTED | AddressLine1 |
| Address Line2 | RESTRICTED | AddressLine2 |
| City | RESTRICTED | City |
| State | RESTRICTED | State |
| ZIP Code | RESTRICTED | ZIPCode |
| Field | Value | IRS element (for citing) |
|---|---|---|
| Total Contributions | RESTRICTED | TotalContributionsAmt |
Schedule D IRS990ScheduleD
Equipment EquipmentGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Other Cost Or Other Basis | $26,332 | OtherCostOrOtherBasisAmt |
| Depreciation | $11,559 | DepreciationAmt |
| Book Value | $14,773 | BookValueAmt |
Other Land Buildings OtherLandBuildingsGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Other Cost Or Other Basis | $11,093 | OtherCostOrOtherBasisAmt |
| Depreciation | $5,094 | DepreciationAmt |
| Book Value | $5,999 | BookValueAmt |
| Field | Value | IRS element (for citing) |
|---|---|---|
| Total Book Value Land Buildings | $20,772 | TotalBookValueLandBuildingsAmt |
| Footnote Text | Yes (X) | FootnoteTextInd |
| Total Rev Etc Audited Fincl Stmt | $5,401,492 | TotalRevEtcAuditedFinclStmtAmt |
| Net Unrealized Gains Invst | -$169,079 | NetUnrealizedGainsInvstAmt |
| Revenue Not Reported | -$169,079 | RevenueNotReportedAmt |
| Revenue Subtotal | $5,570,571 | RevenueSubtotalAmt |
| Revenue Not Reported Fincl Stmt | $0 | RevenueNotReportedFinclStmtAmt |
| Total Revenue Per Form990 | $5,570,571 | TotalRevenuePerForm990Amt |
| Tot Expns Etc Audited Fincl Stmt | $2,773,309 | TotExpnsEtcAuditedFinclStmtAmt |
| Expenses Not Reported | $0 | ExpensesNotReportedAmt |
| Expenses Subtotal | $2,773,309 | ExpensesSubtotalAmt |
| Expenses Not Rpt Fincl Stmt | $0 | ExpensesNotRptFinclStmtAmt |
| Total Expenses Per Form990 | $2,773,309 | TotalExpensesPerForm990Amt |
Supplemental Information Detail SupplementalInformationDetail
| Field | Value | IRS element (for citing) |
|---|---|---|
| Form And Line Reference | PART X, LINE 2: | FormAndLineReferenceDesc |
| Explanation | ACCOUNTING STANDARDS REQUIRE AN ORGANIZATION TO EVALUATE ITS TAX POSITIONS AND PROVIDE FOR A LIABILITY FOR ANY POSITIONS THAT WOULD NOT BE CONSIDERED 'MORE LIKELY THAN NOT' TO BE UPHELD UNDER A TAX AUTHORITY EXAMINATION. MANAGEMENT HAS EVALUATED ITS TAX POSITIONS AND HAS CONCLUDED THAT A PROVISION FOR A TAX LIABILITY IS NOT NECESSARY AT JUNE 30, 2022. GENERALLY, THE ORGANIZATION'S INFORMATION RETURNS REMAIN OPEN FOR EXAMINATION FOR A PERIOD OF THREE (FEDERAL) OR FOUR (STATE OF CALIFORNIA) YEARS FROM THE DATE OF FILING. | ExplanationTxt |
Schedule I IRS990ScheduleI
| Field | Value | IRS element (for citing) |
|---|---|---|
| Grant Records Maintained | Yes (1) | GrantRecordsMaintainedInd |
Recipient Table RecipientTable (8 entries)
| Address Line1USAddress/AddressLine1Txt | CityUSAddress/CityNm | State AbbreviationUSAddress/StateAbbreviationCd | ZIPUSAddress/ZIPCd | Recipient EINRecipientEIN | IRC SectionIRCSectionDesc | Cash GrantCashGrantAmt | Non Cash AssistanceNonCashAssistanceAmt | Purpose Of GrantPurposeOfGrantTxt |
|---|---|---|---|---|---|---|---|---|
| OREGON HEALTH & SCIENCE UNIVERS FOUNDATION | ||||||||
| 1121 SW SALMON STREET 100 | PORTLAND | OR | 97205 | 237083114 | 501(C)(3) | $121,878 | $0 | ROLE OF HLA-B27 METABOLIC PROFILING, EARLY INVESTIGATOR AWARD |
| UNIVERSITY OF TEXAS | ||||||||
| 6431 FANNIN STREET MSB 5270 | HOUSTON | TX | 77030 | 741761309 | 501(C)(3) | $20,000 | $0 | EARLY INVESTIGATOR AWARD |
| UNIVERSITY OF COLORADO SCHOOL OF MEDICINE | ||||||||
| 1775 AURORA CT MAIL STOP B115 | AURORA | CO | 80045 | 846000555 | 501(C)(3) | $150,000 | $0 | GENE REGULATIONS OF GUT-TRAFFICKING T CELLS |
| UNIVERSITY OF CHICAGO | ||||||||
| 6054 S DREXEL AVE 300 | CHICAGO | IL | 60637 | 362177139 | 501(C)(3) | $25,000 | $0 | SPONDYLITIS IN INFLAMMATORY BOWEL DISEASE |
| NYU SCHOOL OF MEDICINE | ||||||||
| PO BOX 415026 | BOSTON | MA | 002415026 | 135562308 | 501(C)(3) | $35,000 | $0 | SPONDYLITIS IN INFLAMMATORY BOWEL DISEASE |
| MAYO CLINIC RESEARCH | ||||||||
| PO BOX 860334 | ST PAUL | MN | 554860334 | 416011702 | 501(C)(3) | $25,000 | $0 | SPONDYLITIS IN INFLAMMATORY BOWEL DISEASE |
| ICAHN SCHOOL OF MEDICINE AT MOUNT SINAI | ||||||||
| ONE GUSTAVE L LEVY PLACE BOX 1075 | NEW YORK | NY | 10029 | 136171197 | 501(C)(3) | $25,000 | $0 | SPONDYLITIS IN INFLAMMATORY BOWEL DISEASE |
| BRIGHAM & WOMEN'S HOSPITAL | ||||||||
| 399 REVOLUTION DRIVE | SOMERVILLE | MA | 02145 | 042312909 | 501(C)(3) | $35,000 | $0 | SPONDYLITIS IN INFLAMMATORY BOWEL DISEASE |
| Field | Value | IRS element (for citing) |
|---|---|---|
| Total501c3 Org | 8 | Total501c3OrgCnt |
Grants Other Asst To Indiv In US GrantsOtherAsstToIndivInUSGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Grant Type | CASH GRANT | GrantTypeTxt |
| Recipient | 1 | RecipientCnt |
| Cash Grant | $15,000 | CashGrantAmt |
Supplemental Information Detail SupplementalInformationDetail
| Field | Value | IRS element (for citing) |
|---|---|---|
| Form And Line Reference | PART I, LINE 2: | FormAndLineReferenceDesc |
| Explanation | RESEARCHERS ARE REQUIRED TO PROVIDE THE ORGANIZATION WITH PROGRESS REPORTS BASED ON A VARIETY OF MILESTONES INDIVIDUAL TO EACH STUDY, AND TO ENSURE THAT ANY PUBLICATION IN PEER REVIEW ACKNOWLEDGES THE ORGANIZATION'S FUNDING SUPPORT TOWARD THE EFFORT. | ExplanationTxt |
Schedule J IRS990ScheduleJ
| Field | Value | IRS element (for citing) |
|---|---|---|
| Board Or Committee Approval | Yes (X) | BoardOrCommitteeApprovalInd |
| Severance Payment | 0 | SeverancePaymentInd |
| Supplemental Nonqual Rtr Plan | 0 | SupplementalNonqualRtrPlanInd |
| Equity Based Comp Arrngm | 0 | EquityBasedCompArrngmInd |
| Comp Based On Revenue Of Flng Org | 0 | CompBasedOnRevenueOfFlngOrgInd |
| Comp Bsd On Rev Related Orgs | 0 | CompBsdOnRevRelatedOrgsInd |
| Comp Bsd Net Earns Flng Org | 0 | CompBsdNetEarnsFlngOrgInd |
| Comp Bsd Net Earns Rltd Orgs | 0 | CompBsdNetEarnsRltdOrgsInd |
| Any Non Fixed Payments | 0 | AnyNonFixedPaymentsInd |
| Initial Contract Exception | 0 | InitialContractExceptionInd |
Rltd Org Officer Trst Key Empl RltdOrgOfficerTrstKeyEmplGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Person | CASSIE SHAFER | PersonNm |
| Title | CHIEF EXECUTIVE OFFICER | TitleTxt |
| Base Compensation Filing Org | $226,968 | BaseCompensationFilingOrgAmt |
| Compensation Based On Rltd Orgs | $0 | CompensationBasedOnRltdOrgsAmt |
| Bonus Filing Organization | $0 | BonusFilingOrganizationAmount |
| Bonus Related Organizations | $0 | BonusRelatedOrganizationsAmt |
| Other Compensation Filing Org | $0 | OtherCompensationFilingOrgAmt |
| Other Compensation Rltd Orgs | $0 | OtherCompensationRltdOrgsAmt |
| Deferred Compensation Flng Org | $6,207 | DeferredCompensationFlngOrgAmt |
| Deferred Comp Rltd Orgs | $0 | DeferredCompRltdOrgsAmt |
| Nontaxable Benefits Filing Org | $0 | NontaxableBenefitsFilingOrgAmt |
| Nontaxable Benefits Rltd Orgs | $0 | NontaxableBenefitsRltdOrgsAmt |
| Total Compensation Filing Org | $233,175 | TotalCompensationFilingOrgAmt |
| Total Compensation Rltd Orgs | $0 | TotalCompensationRltdOrgsAmt |
| Comp Report Prior990 Filing Org | $0 | CompReportPrior990FilingOrgAmt |
| Comp Report Prior990 Rltd Orgs | $0 | CompReportPrior990RltdOrgsAmt |
Schedule O IRS990ScheduleO
Supplemental Information Detail SupplementalInformationDetail (6 entries)
| Form And Line ReferenceFormAndLineReferenceDesc | ExplanationExplanationTxt |
|---|---|
| FORM 990, PART VI, SECTION B, LINE 11B | THE AUDIT COMMITTEE REVIEWS THE DOCUMENT PRIOR TO ITS DISTRIBUTION TO THE ENTIRE BOARD FOR REVIEW. |
| FORM 990, PART VI, SECTION B, LINE 12C | ALL DIRECTORS AND SENIOR EMPLOYEES ARE REQUIRED TO COMPLETE AND SIGN A DISCLOSURE FORM LISTING ANY POTENTIAL CONFLICTS OF INTEREST BY SEPTEMBER 30, ANNUALLY. |
| FORM 990, PART VI, SECTION B, LINE 15 | THE ORGANIZATION UTILIZES CURRENT COMPENSATION DATA PUBLISHED BY THE NATIONAL HEALTH COUNCIL AND THE AMERICAN SOCIETY OF ASSOCIATION EXECUTIVES, AND OTHER FACTORS IN ORDER TO DETERMINE COMPENSATION. |
| FORM 990, PART VI, SECTION C, LINE 19 | THE ORGANIZATION PRODUCES AN ANNUAL REPORT THAT IS PUBLISHED ON ITS WEBSITE |
| FORM 990, PART IX, LINE 11G | PROFESSIONAL SERVICES: PROGRAM SERVICE EXPENSES 357,196. MANAGEMENT AND GENERAL EXPENSES 0. FUNDRAISING EXPENSES 0. TOTAL EXPENSES 357,196. |
| FORM 990, PART XII, LINE 2C | THE ORGANIZATION'S AUDIT COMMITTEE HAS RESPONSIBILITY FOR THE OVERSIGHT OF THE AUDIT OF ITS FINANCIAL STATEMENTS AND SELECTION OF THE INDEPENDENT AUDITOR, SUBJECT TO THE APPROVAL OF THE BOARD OF DIRECTORS. THIS RESPONSIBILITY IS UNCHANGED FROM THE PRIOR YEAR. |
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