SPONDYLITIS ASSOCIATION OF AMERICA: Form 990, tax year 2014

View the entire original 990 at ProPublica ↗

Organization
SPONDYLITIS ASSOCIATION OF AMERICA (EIN 95-3890767)
Tax period
2014-07-01 to 2015-06-30
Filed
2015-11-09
IRS object ID
201533139349303043
Schema version
2014v5.0
Source
Download XML · Original 990 at ProPublica

Every field in the e-filed return. Faint text is the IRS element name, for citing.

Return header ReturnHeader

FieldValueIRS element (for citing)
Return2015-11-09T17:36:03-08:00ReturnTs
Tax Period End2015-06-30TaxPeriodEndDt

Preparer Firm PreparerFirmGrp

Preparer Firm Name PreparerFirmName

FieldValueIRS element (for citing)
Business Name Line1ARMANINO LLPBusinessNameLine1Txt

Preparer US Address PreparerUSAddress

FieldValueIRS element (for citing)
Address Line111766 WILSHIRE BLVD NINTH FLAddressLine1Txt
CityLOS ANGELESCityNm
State AbbreviationCAStateAbbreviationCd
ZIP90025ZIPCd
FieldValueIRS element (for citing)
Return Type990ReturnTypeCd
Tax Period Begin2014-07-01TaxPeriodBeginDt

Filer Filer

FieldValueIRS element (for citing)
EIN953890767EIN

Business Name BusinessName

FieldValueIRS element (for citing)
Business Name Line1SPONDYLITIS ASSOCIATION OF AMERICABusinessNameLine1Txt
FieldValueIRS element (for citing)
Business Name ControlSPONBusinessNameControlTxt
Phone8188921616PhoneNum

US Address USAddress

FieldValueIRS element (for citing)
Address Line116360 ROSCOE BLVDAddressLine1Txt
CityVAN NUYCityNm
State AbbreviationCAStateAbbreviationCd
ZIP91406ZIPCd

Business Officer BusinessOfficerGrp

FieldValueIRS element (for citing)
PersonLAURIE SAVAGEPersonNm
Person TitleCEOPersonTitleTxt
Signature2015-11-09SignatureDt
Discuss With Paid PreparerYes (true)DiscussWithPaidPreparerInd

Preparer Person PreparerPersonGrp

FieldValueIRS element (for citing)
Preparer PersonThomas J SchultePreparerPersonNm
PTINP00637812PTIN
Phone3104784148PhoneNum
FieldValueIRS element (for citing)
Tax2014TaxYr
Build TS2016-02-25 16:41:14ZBuildTS

Form 990 IRS990

FieldValueIRS element (for citing)
Principal OfficerLAURIE SAVAGEPrincipalOfficerNm

US Address USAddress

FieldValueIRS element (for citing)
Address Line116360 ROSCOE BLVDAddressLine1Txt
CityVAN NUYSCityNm
State AbbreviationCAStateAbbreviationCd
ZIP91406ZIPCd
FieldValueIRS element (for citing)
Gross Receipts$1,811,703GrossReceiptsAmt
Group Return For AffiliatesfalseGroupReturnForAffiliatesInd
All Affiliates IncludedfalseAllAffiliatesIncludedInd
Organization501c3Yes (X)Organization501c3Ind
Website Addresswww.spondylitis.orgWebsiteAddressTxt
Type Of Organization CorpYes (X)TypeOfOrganizationCorpInd
Formation1983FormationYr
Legal Domicile StateCALegalDomicileStateCd
Activity Or MissionADVANCING RESEARCH, ACCELERATED DIAGNOSIS, OPTIMUM TREATMENT AND PUBLIC AND HEALTH CARE PROFESSIONAL EDUCATION IN SPONDYLOARTHRITIS.ActivityOrMissionDesc
Voting Members Governing Body10VotingMembersGoverningBodyCnt
Voting Members Independent10VotingMembersIndependentCnt
Total Employee9TotalEmployeeCnt
Total Volunteers485TotalVolunteersCnt
Total Gross UBI$0TotalGrossUBIAmt
PY Contributions Grants$1,324,005PYContributionsGrantsAmt
CY Contributions Grants$1,776,812CYContributionsGrantsAmt
PY Program Service Revenue$16,020PYProgramServiceRevenueAmt
CY Program Service Revenue$17,201CYProgramServiceRevenueAmt
PY Investment Income$11,934PYInvestmentIncomeAmt
CY Investment Income$17,690CYInvestmentIncomeAmt
CY Other Revenue$0CYOtherRevenueAmt
PY Total Revenue$1,351,959PYTotalRevenueAmt
CY Total Revenue$1,811,703CYTotalRevenueAmt
PY Grants And Similar Paid$150,000PYGrantsAndSimilarPaidAmt
CY Grants And Similar Paid$135,000CYGrantsAndSimilarPaidAmt
CY Benefits Paid To Members$0CYBenefitsPaidToMembersAmt
PY Salaries Comp Emp Bnft Paid$658,238PYSalariesCompEmpBnftPaidAmt
CY Salaries Comp Emp Bnft Paid$646,338CYSalariesCompEmpBnftPaidAmt
CY Total Prof Fndrsng Expns$0CYTotalProfFndrsngExpnsAmt
CY Total Fundraising Expense$93,715CYTotalFundraisingExpenseAmt
PY Other Expenses$410,854PYOtherExpensesAmt
CY Other Expenses$525,576CYOtherExpensesAmt
PY Total Expenses$1,219,092PYTotalExpensesAmt
CY Total Expenses$1,306,914CYTotalExpensesAmt
PY Revenues Less Expenses$132,867PYRevenuesLessExpensesAmt
CY Revenues Less Expenses$504,789CYRevenuesLessExpensesAmt
Total Assets BOY$1,968,387TotalAssetsBOYAmt
Total Assets EOY$2,234,186TotalAssetsEOYAmt
Total Liabilities BOY$274,276TotalLiabilitiesBOYAmt
Total Liabilities EOY$32,896TotalLiabilitiesEOYAmt
Net Assets Or Fund Balances BOY$1,694,111NetAssetsOrFundBalancesBOYAmt
Net Assets Or Fund Balances EOY$2,201,290NetAssetsOrFundBalancesEOYAmt
Info In Schedule O Part IIIYes (X)InfoInScheduleOPartIIIInd
MissionADVANCING RESEARCH, ACCELERATED DIAGNOSIS, OPTIMUM TREATMENT AND PUBLIC AND HEALTH CARE PROFESSIONAL EDUCATION IN SPONDYLOARTHRITIS.MissionDesc
Significant New Program SrvcYes (true)SignificantNewProgramSrvcInd
Significant ChangefalseSignificantChangeInd
Expense$592,944ExpenseAmt
Revenue$17,201RevenueAmt
DescPATIENT CONFERENCES, EDUCATION AND SUPPORT: THE AGENCY SPONSORED PATIENT EDUCATIONAL AND SUPPORT PROGRAMS THROUGH THE USE OF VARIOUS MEDIA. THE INTERACTIVE WEBSITE AT STOPAS.ORG SERVES 400,000 UNIQUE VISITORS PER QUARTER BASED ON GOOGLE ANALYTICS REPORTS. THE AGENCY SUPPORTS PATIENT EDUCATION IN SPONDYLOARTHRITIS DISEASE MANAGEMENT THROUGH IS TEEN WEBSITE (SWIFT); PUBLIC ELECTRONIC MESSAGES BOARDS; A SELF MANAGEMENT ACTION GUIDE; BOOKS; PAMPHLETS; BROCHURES; INSTRUCTIVE EXERCISE MATERIALS; HEALTH FAIRS; SOCIAL MEDIA; AND A NETWORK OF VOLUNTEER RUN SUPPORT AND EDUCATIONAL WORKSHOP GROUPS SPREAD OVER 29 STATES. THE AGENCY ALSO SPONSORED AND HOSTS SEVERAL IN PERSON PATIENT EDUCATIONAL SYMPOSIA EVERY YEAR BRINGING IN HIGHLY RESPECTED CLINICAL RESEARCHERS FOR ONE AND ONE INTERACTION WITH ATTENDEES. THE AGENCY ALSO COLLABORATES WITH INDUSTRY, ACADEMIA AND GOVERNMENT TO PRODUCE EDUCATIONAL MATERIALS FOR THE PUBLIC THAT ARE DISTRIBUTED BY VARIOUS MEANS BY THESE AGENCIES.Desc

Prog Srvc Accom Acty2 ProgSrvcAccomActy2Grp

FieldValueIRS element (for citing)
Expense$223,530ExpenseAmt
DescPHYSICIANS EDUCATION: THE AGENCY PRESENTED A CUTTING-EDGE, HIGH TECH, HANDS-ON WORKSHOP DESIGNED TO TRAIN RHEUMATOLOGISTS AND RADIOLOGISTS IN THE DIAGNOSIS OF AXSPA USING DICOM 3D IMAGING ON INDIVIDUAL CASE STUDY PRELOADED LAPTOPS. THE OBJECTIVE OF THIS CME COURSE WAS TO ACCELERATE DIAGNOSIS BY TEACHING PHYSICIANS TO RECOGNIZE THE EARLY CLINICAL SIGNS OF AXSPA AND THEN TO ORDER THE CORRECT IMAGING TO CONFIRM THE DIAGNOSIS. FUTURE PROGRAMS ARE PLANNED FOR 2016.Desc

Prog Srvc Accom Acty3 ProgSrvcAccomActy3Grp

FieldValueIRS element (for citing)
Expense$100,000ExpenseAmt
Grant$100,000GrantAmt
DescIRAP1 GENETIC RESEARCH:THE AGENCY SPONSORED GENETIC RESEARCH REGARDING THE IRAP1 GENE TO UNCOVER ITS POTENTIAL INTERACTION WITH THE MAIN GENE, HLA-B27, IN TRIGGERING SPONDYLOARTHRITIS IN GENETICALLY SUSCEPTIBLE INDIVIDUALS.Desc
FieldValueIRS element (for citing)
Total Other Prog Srvc Expense$105,318TotalOtherProgSrvcExpenseAmt
Total Other Prog Srvc Grant$35,000TotalOtherProgSrvcGrantAmt
Total Program Service Expenses$1,021,792TotalProgramServiceExpensesAmt
Described In Section501c3Yes (true)DescribedInSection501c3Ind
Schedule B RequiredYes (true)ScheduleBRequiredInd
Political Campaign ActyfalsePoliticalCampaignActyInd
Lobbying ActivitiesfalseLobbyingActivitiesInd
Subject To Proxy TaxfalseSubjectToProxyTaxInd
Donor Advised FundfalseDonorAdvisedFundInd
Conservation EasementsfalseConservationEasementsInd
Collections Of ArtfalseCollectionsOfArtInd
Credit CounselingfalseCreditCounselingInd
Temp Or Permanent EndowmentsfalseTempOrPermanentEndowmentsInd
Report Land Building EquipmentYes (true)ReportLandBuildingEquipmentInd
Report Investments Other SecfalseReportInvestmentsOtherSecInd
Report Program Related InvstfalseReportProgramRelatedInvstInd
Report Other AssetsfalseReportOtherAssetsInd
Report Other LiabilitiesfalseReportOtherLiabilitiesInd
Include FIN48 FootnotefalseIncludeFIN48FootnoteInd
Independent Audit Fincl StmtYes (true)IndependentAuditFinclStmtInd
Consolidated Audit Fincl StmtfalseConsolidatedAuditFinclStmtInd
School OperatingfalseSchoolOperatingInd
Foreign OfficefalseForeignOfficeInd
Foreign ActivitiesfalseForeignActivitiesInd
More Than5000 K To OrgfalseMoreThan5000KToOrgInd
More Than5000 K To IndividualsfalseMoreThan5000KToIndividualsInd
Professional FundraisingfalseProfessionalFundraisingInd
Fundraising ActivitiesfalseFundraisingActivitiesInd
Gaming ActivitiesfalseGamingActivitiesInd
Operate HospitalfalseOperateHospitalInd
Grants To OrganizationsYes (true)GrantsToOrganizationsInd
Grants To IndividualsfalseGrantsToIndividualsInd
Schedule J RequiredfalseScheduleJRequiredInd
Tax Exempt BondsfalseTaxExemptBondsInd
Invest Tax Exempt BondsfalseInvestTaxExemptBondsInd
Escrow AccountfalseEscrowAccountInd
On Behalf Of IssuerfalseOnBehalfOfIssuerInd
Engaged In Excess Benefit TransfalseEngagedInExcessBenefitTransInd
PY Excess Benefit TransfalsePYExcessBenefitTransInd
Loan OutstandingfalseLoanOutstandingInd
Grant To Related PersonfalseGrantToRelatedPersonInd
Business Rln With Org MemfalseBusinessRlnWithOrgMemInd
Business Rln With Fam MemfalseBusinessRlnWithFamMemInd
Business Rln With Officer EntfalseBusinessRlnWithOfficerEntInd
Deductible Non Cash ContrifalseDeductibleNonCashContriInd
Deductible Art ContributionfalseDeductibleArtContributionInd
Terminate OperationsfalseTerminateOperationsInd
Partial LiquidationfalsePartialLiquidationInd
Disregarded EntityfalseDisregardedEntityInd
Related EntityfalseRelatedEntityInd
Related Organization Ctrl EntfalseRelatedOrganizationCtrlEntInd
Transaction With Control EntfalseTransactionWithControlEntInd
Trnsfr Exmpt Non Chrtbl Rltd OrgfalseTrnsfrExmptNonChrtblRltdOrgInd
Activities Conducted PrtshpfalseActivitiesConductedPrtshpInd
Schedule O RequiredYes (true)ScheduleORequiredInd
IRP Document9IRPDocumentCnt
IRP Document W2 G0IRPDocumentW2GCnt
Backup Wthld ComplianceYes (true)BackupWthldComplianceInd
Employee9EmployeeCnt
Employment Tax Returns FiledYes (true)EmploymentTaxReturnsFiledInd
Unrelated Bus Incm Over LimitfalseUnrelatedBusIncmOverLimitInd
Form990 T FiledfalseForm990TFiledInd
Foreign Financial AccountfalseForeignFinancialAccountInd
Prohibited Tax Shelter TransfalseProhibitedTaxShelterTransInd
Taxable Party NotificationfalseTaxablePartyNotificationInd
Nondeductible ContributionsfalseNondeductibleContributionsInd
Quid Pro Quo ContributionsfalseQuidProQuoContributionsInd
Form8282 Property Disposed OffalseForm8282PropertyDisposedOfInd
Form8282 Filed0Form8282FiledCnt
Rcv Fnds To Pay Prsnl Bnft CntrctfalseRcvFndsToPayPrsnlBnftCntrctInd
Pay Premiums Prsnl Bnft CntrctfalsePayPremiumsPrsnlBnftCntrctInd
Form8899 FiledindfalseForm8899Filedind
Form1098 C FiledfalseForm1098CFiledInd
DAF Excess Business HoldingsfalseDAFExcessBusinessHoldingsInd
Taxable DistributionsfalseTaxableDistributionsInd
Distribution To DonorfalseDistributionToDonorInd
Org Filed In Lieu Of Form1041falseOrgFiledInLieuOfForm1041Ind
Licensed More Than One StatefalseLicensedMoreThanOneStateInd
Indoor Tanning ServicesfalseIndoorTanningServicesInd
Info In Schedule O Part VIYes (X)InfoInScheduleOPartVIInd
Governing Body Voting Members10GoverningBodyVotingMembersCnt
Independent Voting Member10IndependentVotingMemberCnt
Family Or Business RlnfalseFamilyOrBusinessRlnInd
Delegation Of Mgmt DutiesfalseDelegationOfMgmtDutiesInd
Change To Org DocumentsfalseChangeToOrgDocumentsInd
Material Diversion Or MisusefalseMaterialDiversionOrMisuseInd
Members Or StockholdersfalseMembersOrStockholdersInd
Election Of Board MembersfalseElectionOfBoardMembersInd
Decisions Subject To ApprovafalseDecisionsSubjectToApprovaInd
Minutes Of Governing BodyYes (true)MinutesOfGoverningBodyInd
Minutes Of CommitteesYes (true)MinutesOfCommitteesInd
Officer Mailing AddressfalseOfficerMailingAddressInd
Local ChaptersfalseLocalChaptersInd
Form990 Provided To Gvrn BodyYes (true)Form990ProvidedToGvrnBodyInd
Conflict Of Interest PolicyYes (true)ConflictOfInterestPolicyInd
Annual Disclosure Covered PrsnYes (true)AnnualDisclosureCoveredPrsnInd
Regular Monitoring EnfrcYes (true)RegularMonitoringEnfrcInd
Whistleblower PolicyYes (true)WhistleblowerPolicyInd
Document Retention PolicyYes (true)DocumentRetentionPolicyInd
Compensation Process CEOYes (true)CompensationProcessCEOInd
Compensation Process OtherYes (true)CompensationProcessOtherInd
Investment In Joint VenturefalseInvestmentInJointVentureInd
States Where Copy Of Return Is FldCAStatesWhereCopyOfReturnIsFldCd
Own WebsiteYes (X)OwnWebsiteInd
Other WebsiteYes (X)OtherWebsiteInd
Upon RequestYes (X)UponRequestInd

Books In Care Of Detail BooksInCareOfDetail

FieldValueIRS element (for citing)
PersonLAURIE SAVAGEPersonNm
Phone8188921616PhoneNum

US Address USAddress

FieldValueIRS element (for citing)
Address Line116360 ROSCOE BLVDAddressLine1Txt
CityVAN NUYSCityNm
State AbbreviationCAStateAbbreviationCd
ZIP91406ZIPCd

Form990 Part VII Section A Form990PartVIISectionAGrp (11 entries)

TitleTitleTxtAverage Hours Per WeekAverageHoursPerWeekRtAverage Hours Per Week Rltd OrgAverageHoursPerWeekRltdOrgRtIndividual Trustee Or DirectorIndividualTrusteeOrDirectorIndOfficerOfficerIndReportable Comp From OrgReportableCompFromOrgAmtReportable Comp From Rltd OrgReportableCompFromRltdOrgAmtOther CompensationOtherCompensationAmt
CHARLOTTE K HOWARD
BOARD CHAIR2.000.00Yes (X)Yes (X)$0$0$0
LESLIE KAUTZ
BOARD TREASURER2.000.00Yes (X)Yes (X)$0$0$0
MICHAEL PIANIN
BOARD VICECHAIR2.000.00Yes (X)Yes (X)$0$0$0
ERIC GOLDSTEIN
BOARD SECRETARY2.000.00Yes (X)Yes (X)$0$0$0
DANIEL CLEGG
DIRECTOR1.000.00Yes (X)$0$0$0
CRAIG GIMBEL
DIRECTOR1.000.00Yes (X)$0$0$0
DAVID HALLEGUA
Director1.000.00Yes (X)$0$0$0
PAULA OLSIEWSKI
Director1.000.00Yes (X)$0$0$0
RANDALL SAPADIN
Director1.000.00Yes (X)$0$0$0
ROBERT ULRICH
Director1.000.00Yes (X)$0$0$0
LAURIE SAVAGE
CEO40.000.00Yes (X)$137,500$0$8,910
FieldValueIRS element (for citing)
Total Reportable Comp From Org$137,500TotalReportableCompFromOrgAmt
Total Other Compensation$8,910TotalOtherCompensationAmt
Indiv Rcvd Greater Than100 K1IndivRcvdGreaterThan100KCnt
Former Ofcr Employees ListedfalseFormerOfcrEmployeesListedInd
Total Comp Greater Than150 KfalseTotalCompGreaterThan150KInd
Compensation From Other SrcsfalseCompensationFromOtherSrcsInd
Cntrct Rcvd Greater Than100 K0CntrctRcvdGreaterThan100KCnt
Federated Campaigns$21,515FederatedCampaignsAmt
All Other Contributions$1,755,297AllOtherContributionsAmt
Total Contributions$1,776,812TotalContributionsAmt

Program Service Revenue ProgramServiceRevenueGrp

FieldValueIRS element (for citing)
DescPUBLICATION SALESDesc
Business611710BusinessCd
Total Revenue Column$17,201TotalRevenueColumnAmt
Related Or Exempt Func Income$17,201RelatedOrExemptFuncIncomeAmt
FieldValueIRS element (for citing)
Total Program Service Revenue$17,201TotalProgramServiceRevenueAmt

Investment Income InvestmentIncomeGrp

FieldValueIRS element (for citing)
Total Revenue Column$15,420TotalRevenueColumnAmt
Exclusion$15,420ExclusionAmt

Incm From Invest Bond Proceeds IncmFromInvestBondProceedsGrp

FieldValueIRS element (for citing)
Total Revenue Column$0TotalRevenueColumnAmt

Royalties Revenue RoyaltiesRevenueGrp

FieldValueIRS element (for citing)
Total Revenue Column$0TotalRevenueColumnAmt

Net Rental Income Or Loss NetRentalIncomeOrLossGrp

FieldValueIRS element (for citing)
Total Revenue Column$0TotalRevenueColumnAmt

Gross Amount Sales Assets GrossAmountSalesAssetsGrp

FieldValueIRS element (for citing)
Securities$2,270SecuritiesAmt

Gain Or Loss GainOrLossGrp

FieldValueIRS element (for citing)
Securities$2,270SecuritiesAmt

Net Gain Or Loss Investments NetGainOrLossInvestmentsGrp

FieldValueIRS element (for citing)
Total Revenue Column$2,270TotalRevenueColumnAmt
Exclusion$2,270ExclusionAmt

Net Incm From Fundraising Evt NetIncmFromFundraisingEvtGrp

FieldValueIRS element (for citing)
Total Revenue Column$0TotalRevenueColumnAmt

Net Income From Gaming NetIncomeFromGamingGrp

FieldValueIRS element (for citing)
Total Revenue Column$0TotalRevenueColumnAmt

Net Income Or Loss NetIncomeOrLossGrp

FieldValueIRS element (for citing)
Total Revenue Column$0TotalRevenueColumnAmt
FieldValueIRS element (for citing)
Other Revenue Total$0OtherRevenueTotalAmt

Total Revenue TotalRevenueGrp

FieldValueIRS element (for citing)
Total Revenue Column$1,811,703TotalRevenueColumnAmt
Related Or Exempt Func Income$17,201RelatedOrExemptFuncIncomeAmt
Exclusion$17,690ExclusionAmt

Grants To Domestic Orgs GrantsToDomesticOrgsGrp

FieldValueIRS element (for citing)
Total$135,000TotalAmt
Program Services$135,000ProgramServicesAmt

Grants To Domestic Individuals GrantsToDomesticIndividualsGrp

FieldValueIRS element (for citing)
Total$0TotalAmt

Foreign Grants ForeignGrantsGrp

FieldValueIRS element (for citing)
Total$0TotalAmt

Benefits To Members BenefitsToMembersGrp

FieldValueIRS element (for citing)
Total$0TotalAmt

Comp Current Ofcr Directors CompCurrentOfcrDirectorsGrp

FieldValueIRS element (for citing)
Total$146,545TotalAmt
Program Services$117,236ProgramServicesAmt
Management And General$14,654ManagementAndGeneralAmt
Fundraising$14,655FundraisingAmt

Comp Disqual Persons CompDisqualPersonsGrp

FieldValueIRS element (for citing)
Total$0TotalAmt

Other Salaries And Wages OtherSalariesAndWagesGrp

FieldValueIRS element (for citing)
Total$416,497TotalAmt
Program Services$305,372ProgramServicesAmt
Management And General$69,475ManagementAndGeneralAmt
Fundraising$41,650FundraisingAmt

Pension Plan Contributions PensionPlanContributionsGrp

FieldValueIRS element (for citing)
Total$0TotalAmt

Other Employee Benefits OtherEmployeeBenefitsGrp

FieldValueIRS element (for citing)
Total$39,633TotalAmt
Program Services$29,397ProgramServicesAmt
Management And General$6,273ManagementAndGeneralAmt
Fundraising$3,963FundraisingAmt

Payroll Taxes PayrollTaxesGrp

FieldValueIRS element (for citing)
Total$43,663TotalAmt
Program Services$32,748ProgramServicesAmt
Management And General$6,549ManagementAndGeneralAmt
Fundraising$4,366FundraisingAmt

Fees For Services Management FeesForServicesManagementGrp

FieldValueIRS element (for citing)
Total$0TotalAmt

Fees For Services Legal FeesForServicesLegalGrp

FieldValueIRS element (for citing)
Total$0TotalAmt

Fees For Services Accounting FeesForServicesAccountingGrp

FieldValueIRS element (for citing)
Total$57,288TotalAmt
Management And General$57,288ManagementAndGeneralAmt

Fees For Services Lobbying FeesForServicesLobbyingGrp

FieldValueIRS element (for citing)
Total$0TotalAmt

Fees For Services Prof Fundraising FeesForServicesProfFundraising

FieldValueIRS element (for citing)
Total$0TotalAmt

Fees For Srvc Invst Mgmnt Fees FeesForSrvcInvstMgmntFeesGrp

FieldValueIRS element (for citing)
Total$0TotalAmt

Fees For Services Other FeesForServicesOtherGrp

FieldValueIRS element (for citing)
Total$0TotalAmt

Advertising AdvertisingGrp

FieldValueIRS element (for citing)
Total$0TotalAmt

Office Expenses OfficeExpensesGrp

FieldValueIRS element (for citing)
Total$53,934TotalAmt
Program Services$24,271ProgramServicesAmt
Management And General$18,877ManagementAndGeneralAmt
Fundraising$10,786FundraisingAmt

Information Technology InformationTechnologyGrp

FieldValueIRS element (for citing)
Total$0TotalAmt

Royalties RoyaltiesGrp

FieldValueIRS element (for citing)
Total$0TotalAmt

Occupancy OccupancyGrp

FieldValueIRS element (for citing)
Total$74,039TotalAmt
Program Services$59,231ProgramServicesAmt
Management And General$7,404ManagementAndGeneralAmt
Fundraising$7,404FundraisingAmt

Travel TravelGrp

FieldValueIRS element (for citing)
Total$29,529TotalAmt
Program Services$24,696ProgramServicesAmt
Fundraising$4,833FundraisingAmt

Pymt Travel Entrtnmnt Pub Ofcl PymtTravelEntrtnmntPubOfclGrp

FieldValueIRS element (for citing)
Total$0TotalAmt

Conferences Meetings ConferencesMeetingsGrp

FieldValueIRS element (for citing)
Total$150,513TotalAmt
Program Services$150,513ProgramServicesAmt

Interest InterestGrp

FieldValueIRS element (for citing)
Total$0TotalAmt

Payments To Affiliates PaymentsToAffiliatesGrp

FieldValueIRS element (for citing)
Total$0TotalAmt

Depreciation Depletion DepreciationDepletionGrp

FieldValueIRS element (for citing)
Total$6,928TotalAmt
Program Services$5,194ProgramServicesAmt
Management And General$1,734ManagementAndGeneralAmt

Insurance InsuranceGrp

FieldValueIRS element (for citing)
Total$0TotalAmt

Other Expenses OtherExpensesGrp (4 entries)

DescDescTotalTotalAmtProgram ServicesProgramServicesAmtManagement And GeneralManagementAndGeneralAmtFundraisingFundraisingAmt
Printing and Publications$52,561$46,821$3,260$2,480
Postage and Shipping$44,751$35,280$5,893$3,578
Communications and Website$44,092$44,092
State Licensing Fees$11,941$11,941

All Other Expenses AllOtherExpensesGrp

FieldValueIRS element (for citing)
Total$0TotalAmt

Total Functional Expenses TotalFunctionalExpensesGrp

FieldValueIRS element (for citing)
Total$1,306,914TotalAmt
Program Services$1,021,792ProgramServicesAmt
Management And General$191,407ManagementAndGeneralAmt
Fundraising$93,715FundraisingAmt

Cash Non Interest Bearing CashNonInterestBearingGrp

FieldValueIRS element (for citing)
BOY$326,064BOYAmt
EOY$459,511EOYAmt

Savings And Temp Cash Invst SavingsAndTempCashInvstGrp

FieldValueIRS element (for citing)
BOY$1,485,124BOYAmt
EOY$1,624,221EOYAmt

Pledges And Grants Receivable PledgesAndGrantsReceivableGrp

FieldValueIRS element (for citing)
EOY$0EOYAmt

Accounts Receivable AccountsReceivableGrp

FieldValueIRS element (for citing)
BOY$3,000BOYAmt
EOY$0EOYAmt

Receivables From Officers Etc ReceivablesFromOfficersEtcGrp

FieldValueIRS element (for citing)
EOY$0EOYAmt

Rcvbl From Disqualified Prsn RcvblFromDisqualifiedPrsnGrp

FieldValueIRS element (for citing)
EOY$0EOYAmt

Oth Notes Loans Receivable Net OthNotesLoansReceivableNetGrp

FieldValueIRS element (for citing)
EOY$0EOYAmt

Inventories For Sale Or Use InventoriesForSaleOrUseGrp

FieldValueIRS element (for citing)
EOY$0EOYAmt

Prepaid Expenses Defrd Charges PrepaidExpensesDefrdChargesGrp

FieldValueIRS element (for citing)
BOY$12,874BOYAmt
EOY$9,979EOYAmt
FieldValueIRS element (for citing)
Land Bldg Equip Cost Or Other Bss$57,466LandBldgEquipCostOrOtherBssAmt
Land Bldg Equip Accum Deprec$42,064LandBldgEquipAccumDeprecAmt

Land Bldg Equip Basis Net LandBldgEquipBasisNetGrp

FieldValueIRS element (for citing)
BOY$20,264BOYAmt
EOY$15,402EOYAmt

Investments Pub Traded Sec InvestmentsPubTradedSecGrp

FieldValueIRS element (for citing)
BOY$115,620BOYAmt
EOY$119,632EOYAmt

Investments Other Securities InvestmentsOtherSecuritiesGrp

FieldValueIRS element (for citing)
EOY$0EOYAmt

Investments Program Related InvestmentsProgramRelatedGrp

FieldValueIRS element (for citing)
EOY$0EOYAmt

Intangible Assets IntangibleAssetsGrp

FieldValueIRS element (for citing)
EOY$0EOYAmt

Other Assets Total OtherAssetsTotalGrp

FieldValueIRS element (for citing)
BOY$5,441BOYAmt
EOY$5,441EOYAmt

Total Assets TotalAssetsGrp

FieldValueIRS element (for citing)
BOY$1,968,387BOYAmt
EOY$2,234,186EOYAmt

Accounts Payable Accr Expnss AccountsPayableAccrExpnssGrp

FieldValueIRS element (for citing)
BOY$33,197BOYAmt
EOY$32,896EOYAmt

Grants Payable GrantsPayableGrp

FieldValueIRS element (for citing)
BOY$100,000BOYAmt

Other Liabilities OtherLiabilitiesGrp

FieldValueIRS element (for citing)
BOY$141,079BOYAmt

Total Liabilities TotalLiabilitiesGrp

FieldValueIRS element (for citing)
BOY$274,276BOYAmt
EOY$32,896EOYAmt
FieldValueIRS element (for citing)
Organization Follows SFAS117Yes (X)OrganizationFollowsSFAS117Ind

Unrestricted Net Assets UnrestrictedNetAssetsGrp

FieldValueIRS element (for citing)
BOY$1,472,168BOYAmt
EOY$1,572,301EOYAmt

Temporarily Rstr Net Assets TemporarilyRstrNetAssetsGrp

FieldValueIRS element (for citing)
BOY$221,943BOYAmt
EOY$628,989EOYAmt

Total Net Assets Fund Balance TotalNetAssetsFundBalanceGrp

FieldValueIRS element (for citing)
BOY$1,694,111BOYAmt
EOY$2,201,290EOYAmt

Tot Liab Net Assets Fund Balance TotLiabNetAssetsFundBalanceGrp

FieldValueIRS element (for citing)
BOY$1,968,387BOYAmt
EOY$2,234,186EOYAmt
FieldValueIRS element (for citing)
Reconcilation Revenue Expnss$504,789ReconcilationRevenueExpnssAmt
Net Unrlzd Gains Losses Invst$2,390NetUnrlzdGainsLossesInvstAmt
Method Of Accounting AccrualYes (X)MethodOfAccountingAccrualInd
Accountant Compile Or ReviewfalseAccountantCompileOrReviewInd
FS AuditedYes (true)FSAuditedInd

FS Audited Basis FSAuditedBasisGrp

FieldValueIRS element (for citing)
Separate Basis Fincl StmtYes (X)SeparateBasisFinclStmtInd
FieldValueIRS element (for citing)
Audit CommitteeYes (true)AuditCommitteeInd
Federal Grant Audit RequiredfalseFederalGrantAuditRequiredInd

Schedule A IRS990ScheduleA

FieldValueIRS element (for citing)
Public Organization170Yes (X)PublicOrganization170Ind

Gifts Grants Contri Rcvd170 GiftsGrantsContriRcvd170Grp

FieldValueIRS element (for citing)
Current Tax Year Minus4 Years$1,047,061CurrentTaxYearMinus4YearsAmt
Current Tax Year Minus3 Years$1,097,124CurrentTaxYearMinus3YearsAmt
Current Tax Year Minus2 Years$1,311,730CurrentTaxYearMinus2YearsAmt
Current Tax Year Minus1 Year$1,324,005CurrentTaxYearMinus1YearAmt
Current Tax Year$1,776,812CurrentTaxYearAmt
Total$6,556,732TotalAmt

Tax Rev Levied Orgnztnl Bnft170 TaxRevLeviedOrgnztnlBnft170Grp

FieldValueIRS element (for citing)
Total$0TotalAmt

Govt Furn Srvc Fclts Vl170 GovtFurnSrvcFcltsVl170Grp

FieldValueIRS element (for citing)
Total$0TotalAmt

Total Calendar Year170 TotalCalendarYear170Grp

FieldValueIRS element (for citing)
Current Tax Year Minus4 Years$1,047,061CurrentTaxYearMinus4YearsAmt
Current Tax Year Minus3 Years$1,097,124CurrentTaxYearMinus3YearsAmt
Current Tax Year Minus2 Years$1,311,730CurrentTaxYearMinus2YearsAmt
Current Tax Year Minus1 Year$1,324,005CurrentTaxYearMinus1YearAmt
Current Tax Year$1,776,812CurrentTaxYearAmt
Total$6,556,732TotalAmt
FieldValueIRS element (for citing)
Substantial Contributors Tot$1,674,370SubstantialContributorsTotAmt
Public Support Total170$4,882,362PublicSupportTotal170Amt

Gross Investment Income170 GrossInvestmentIncome170Grp

FieldValueIRS element (for citing)
Current Tax Year Minus4 Years$13,506CurrentTaxYearMinus4YearsAmt
Current Tax Year Minus3 Years$13,683CurrentTaxYearMinus3YearsAmt
Current Tax Year Minus2 Years$10,142CurrentTaxYearMinus2YearsAmt
Current Tax Year Minus1 Year$11,177CurrentTaxYearMinus1YearAmt
Current Tax Year$15,420CurrentTaxYearAmt
Total$63,928TotalAmt

Unrelated Business Net Incm170 UnrelatedBusinessNetIncm170Grp

FieldValueIRS element (for citing)
Total$0TotalAmt

Other Income170 OtherIncome170Grp

FieldValueIRS element (for citing)
Total$0TotalAmt
FieldValueIRS element (for citing)
Total Support$6,620,660TotalSupportAmt
Gross Receipts Rltd Activities$90,045GrossReceiptsRltdActivitiesAmt
Public Support CY1700.73740PublicSupportCY170Pct
Public Support PY1700.70340PublicSupportPY170Pct
Thirty Thr Pct Suprt Tests CY170Yes (X)ThirtyThrPctSuprtTestsCY170Ind

Schedule B IRS990ScheduleB

Contributor Information ContributorInformationGrp

FieldValueIRS element (for citing)
ContributorRESTRICTEDContributorNum

Contributor Business Name ContributorBusinessName

FieldValueIRS element (for citing)
Business Name Line1RESTRICTEDBusinessNameLine1

Contributor US Address ContributorUSAddress

FieldValueIRS element (for citing)
Address Line1RESTRICTEDAddressLine1
Address Line2RESTRICTEDAddressLine2
CityRESTRICTEDCity
StateRESTRICTEDState
ZIP CodeRESTRICTEDZIPCode
FieldValueIRS element (for citing)
Total ContributionsRESTRICTEDTotalContributionsAmt

Schedule D IRS990ScheduleD

Equipment EquipmentGrp

FieldValueIRS element (for citing)
Other Cost Or Other Basis$57,466OtherCostOrOtherBasisAmt
Depreciation$42,064DepreciationAmt
Book Value$15,402BookValueAmt
FieldValueIRS element (for citing)
Total Book Value Land Buildings$15,402TotalBookValueLandBuildingsAmt
Total Rev Etc Audited Fincl Stmt$1,814,093TotalRevEtcAuditedFinclStmtAmt
Net Unrealized Gains Invst$2,390NetUnrealizedGainsInvstAmt
Revenue Not Reported$2,390RevenueNotReportedAmt
Revenue Subtotal$1,811,703RevenueSubtotalAmt
Total Revenue Per Form990$1,811,703TotalRevenuePerForm990Amt
Tot Expns Etc Audited Fincl Stmt$1,306,914TotExpnsEtcAuditedFinclStmtAmt
Expenses Subtotal$1,306,914ExpensesSubtotalAmt
Total Expenses Per Form990$1,306,914TotalExpensesPerForm990Amt

Schedule I IRS990ScheduleI

FieldValueIRS element (for citing)
Grant Records MaintainedYes (true)GrantRecordsMaintainedInd

Recipient Table RecipientTable (3 entries)

Address Line1USAddress/AddressLine1TxtCityUSAddress/CityNmState AbbreviationUSAddress/StateAbbreviationCdZIPUSAddress/ZIPCdRecipient EINRecipientEINIRC SectionIRCSectionDescCash GrantCashGrantAmtNon Cash AssistanceNonCashAssistanceAmtPurpose Of GrantPurposeOfGrantTxt
CHILDRENS HOSPITAL OF PHILA
3615 CIVIC CENTER BLVDPHILADELPHIAPA19104232237932501(C)(3)$10,000$0PATIENT REGISTRY GUIDELINES
OR HEALTH & SCI UNIV FND
1121 SW SALMON STREETPORTLANDOR97205237083114501(C)(3)$25,000$0MICROBIONE RESEARCH
UNI OF TX - SW MEDICAL CENTER
1801 INWOOD ROADDALLASTX75235756002868501(C)(3)$100,000$0IRAP1 GENETIC RESEARCH
FieldValueIRS element (for citing)
Total501c3 Org2Total501c3OrgCnt
Total Other Org1TotalOtherOrgCnt

Supplemental Information Detail SupplementalInformationDetail

FieldValueIRS element (for citing)
Form And Line ReferenceGrantmaker's Description of How Grants are UsedFormAndLineReferenceDesc
ExplanationRESEARCHERS ARE REQUIRED TO PROVIDE THE AGENCY WITH PROGRESS REPORTS BASED ON A VARIETY OF MILESTONES, INDIVIDUAL TO EACH STUDY, AND TO ENSURE THAT ANY PUBLICATION IN PEER REVIEW ACKNOWLEDGES THE AGENCYS FUNDING SUPPORT TOWARD THE EFFORT.ExplanationTxt

Schedule O IRS990ScheduleO

Supplemental Information Detail SupplementalInformationDetail (6 entries)

Form And Line ReferenceFormAndLineReferenceDescExplanationExplanationTxt
Form 990, Part III, Line 4d: Other Program Services DescriptionOTHER PROGRAM SERVICES 4: IRAP1 GENETIC RESEARCH:THE AGENCY SPONSORED GENETIC RESEARCH REGARDING THE IRAP1 GENE TO UNCOVER ITS POTENTIAL INTERACTION WITH THE MAIN GENE, HLA-B27, IN TRIGGERING SPONDYLOARTHRITIS IN GENETICALLY SUSCEPTIBLE INDIVIDUALS. OTHER PROGRAM SERVICES 5: MICROBIONE RESEARCH: THE AGENCY SPONSORED MICROBIONE RESEARCH TO EXPLORE PROOF OF CONCEPT THAT THE BIOME (THE FLORA BAD AND GOOD IN THE GI TRACT) CAN BE ALTERED TO DEVELOP A PROPHYLACTIC TREATMENT IN PREVENTING THE TRIGGER OF IRITIS WHICH IS COMMON COMPLICATION OF SPONDYLITIS AND WHICH CAN LEAD TO BLINDNESS.
Form 990, Part VI, Line 11b: Form 990 Review ProcessTHE FINANCE COMMITTEE, WHICH IS COMPRISED OF THE KEY OFFICERS OF THE BOARD, REVIEWS THE DOCUMENT PRIOR TO ITS DISTRIBUTION TO THE ENTIRE BOARD FOR REVIEW.
Form 990, Part VI, Line 12c: Explanation of Monitoring and Enforcement of ConflictsALL DIRECTORS AND SENIOR EMPLOYEES ARE REQUIRED TO COMPLETE AND SIGN A DISCLOSURE FORM LISTING ANY POTENTIAL CONFLICTS OF INTEREST BY SEPTEMBER 30, ANNUALLY.
Form 990, Part VI, Line 15a: Compensation Review & Approval Process - CEO, Top ManagementTHE ORGANIZATION UTILIZES CURRENT COMPENSATION DATA PUBLISHED BY THE NATIONAL HEALTH COUNCIL AND THE AMERICAN SOCIETY OF ASSOCIATION EXECUTIVES IN ORDER TO DETERMINE COMPENSATION.
Form 990, Part VI, Line 15b: Compensation Review and Approval Process for Officers and Key EmployeesTHE ORGANIZATION UTILIZES CURRENT COMPENSATION DATA PUBLISHED BY THE NATIONAL HEALTH COUNCIL AND THE AMERICAN SOCIETY OF ASSOCIATION EXECUTIVES IN ORDER TO DETERMINE COMPENSATION.
Form 990, Part VI, Line 19: Other Organization Documents Publicly AvailableTHE ORGANIZATION PRODUCES AN ANNUAL REPORT THAT IS PUBLISHED ON ITS WEBSITE.

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