2015-11-09T17:36:03-08:00 2015-06-30 ARMANINO LLP 11766 WILSHIRE BLVD NINTH FL LOS ANGELES CA 90025 990 2014-07-01 953890767 SPONDYLITIS ASSOCIATION OF AMERICA SPON 8188921616 16360 ROSCOE BLVD VAN NUY CA 91406 LAURIE SAVAGE CEO 2015-11-09 true Thomas J Schulte P00637812 3104784148 2014 2016-02-25 16:41:14Z LAURIE SAVAGE 16360 ROSCOE BLVD VAN NUYS CA 91406 1811703 false false X www.spondylitis.org X 1983 CA ADVANCING RESEARCH, ACCELERATED DIAGNOSIS, OPTIMUM TREATMENT AND PUBLIC AND HEALTH CARE PROFESSIONAL EDUCATION IN SPONDYLOARTHRITIS. 10 10 9 485 0 1324005 1776812 16020 17201 11934 17690 0 1351959 1811703 150000 135000 0 658238 646338 0 93715 410854 525576 1219092 1306914 132867 504789 1968387 2234186 274276 32896 1694111 2201290 X ADVANCING RESEARCH, ACCELERATED DIAGNOSIS, OPTIMUM TREATMENT AND PUBLIC AND HEALTH CARE PROFESSIONAL EDUCATION IN SPONDYLOARTHRITIS. true false 592944 17201 PATIENT CONFERENCES, EDUCATION AND SUPPORT: THE AGENCY SPONSORED PATIENT EDUCATIONAL AND SUPPORT PROGRAMS THROUGH THE USE OF VARIOUS MEDIA. THE INTERACTIVE WEBSITE AT STOPAS.ORG SERVES 400,000 UNIQUE VISITORS PER QUARTER BASED ON GOOGLE ANALYTICS REPORTS. THE AGENCY SUPPORTS PATIENT EDUCATION IN SPONDYLOARTHRITIS DISEASE MANAGEMENT THROUGH IS TEEN WEBSITE (SWIFT); PUBLIC ELECTRONIC MESSAGES BOARDS; A SELF MANAGEMENT ACTION GUIDE; BOOKS; PAMPHLETS; BROCHURES; INSTRUCTIVE EXERCISE MATERIALS; HEALTH FAIRS; SOCIAL MEDIA; AND A NETWORK OF VOLUNTEER RUN SUPPORT AND EDUCATIONAL WORKSHOP GROUPS SPREAD OVER 29 STATES. THE AGENCY ALSO SPONSORED AND HOSTS SEVERAL IN PERSON PATIENT EDUCATIONAL SYMPOSIA EVERY YEAR BRINGING IN HIGHLY RESPECTED CLINICAL RESEARCHERS FOR ONE AND ONE INTERACTION WITH ATTENDEES. THE AGENCY ALSO COLLABORATES WITH INDUSTRY, ACADEMIA AND GOVERNMENT TO PRODUCE EDUCATIONAL MATERIALS FOR THE PUBLIC THAT ARE DISTRIBUTED BY VARIOUS MEANS BY THESE AGENCIES. 223530 PHYSICIANS EDUCATION: THE AGENCY PRESENTED A CUTTING-EDGE, HIGH TECH, HANDS-ON WORKSHOP DESIGNED TO TRAIN RHEUMATOLOGISTS AND RADIOLOGISTS IN THE DIAGNOSIS OF AXSPA USING DICOM 3D IMAGING ON INDIVIDUAL CASE STUDY PRELOADED LAPTOPS. THE OBJECTIVE OF THIS CME COURSE WAS TO ACCELERATE DIAGNOSIS BY TEACHING PHYSICIANS TO RECOGNIZE THE EARLY CLINICAL SIGNS OF AXSPA AND THEN TO ORDER THE CORRECT IMAGING TO CONFIRM THE DIAGNOSIS. FUTURE PROGRAMS ARE PLANNED FOR 2016. 100000 100000 IRAP1 GENETIC RESEARCH:THE AGENCY SPONSORED GENETIC RESEARCH REGARDING THE IRAP1 GENE TO UNCOVER ITS POTENTIAL INTERACTION WITH THE MAIN GENE, HLA-B27, IN TRIGGERING SPONDYLOARTHRITIS IN GENETICALLY SUSCEPTIBLE INDIVIDUALS. 105318 35000 1021792 true true false false false false false false false false true false false false false false true false false false false false false false false false false true false false false false false false false false false false false false false false false false false false false false false false false true 9 0 true 9 true false false false false false false false false 0 false false false false false false false false false false X 10 10 false false false false false false false true true false false true true true true true true true true false CA X X X LAURIE SAVAGE 8188921616 16360 ROSCOE BLVD VAN NUYS CA 91406 CHARLOTTE K HOWARD BOARD CHAIR 2.00 0.00 X X 0 0 0 LESLIE KAUTZ BOARD TREASURER 2.00 0.00 X X 0 0 0 MICHAEL PIANIN BOARD VICECHAIR 2.00 0.00 X X 0 0 0 ERIC GOLDSTEIN BOARD SECRETARY 2.00 0.00 X X 0 0 0 DANIEL CLEGG DIRECTOR 1.00 0.00 X 0 0 0 CRAIG GIMBEL DIRECTOR 1.00 0.00 X 0 0 0 DAVID HALLEGUA Director 1.00 0.00 X 0 0 0 PAULA OLSIEWSKI Director 1.00 0.00 X 0 0 0 RANDALL SAPADIN Director 1.00 0.00 X 0 0 0 ROBERT ULRICH Director 1.00 0.00 X 0 0 0 LAURIE SAVAGE CEO 40.00 0.00 X 137500 0 8910 137500 8910 1 false false false 0 21515 1755297 1776812 PUBLICATION SALES 611710 17201 17201 17201 15420 15420 0 0 0 2270 2270 2270 2270 0 0 0 0 1811703 17201 17690 135000 135000 0 0 0 146545 117236 14654 14655 0 416497 305372 69475 41650 0 39633 29397 6273 3963 43663 32748 6549 4366 0 0 57288 57288 0 0 0 0 0 53934 24271 18877 10786 0 0 74039 59231 7404 7404 29529 24696 4833 0 150513 150513 0 0 6928 5194 1734 0 Printing and Publications 52561 46821 3260 2480 Postage and Shipping 44751 35280 5893 3578 Communications and Website 44092 44092 State Licensing Fees 11941 11941 0 1306914 1021792 191407 93715 326064 459511 1485124 1624221 0 3000 0 0 0 0 0 12874 9979 57466 42064 20264 15402 115620 119632 0 0 0 5441 5441 1968387 2234186 33197 32896 100000 141079 274276 32896 X 1472168 1572301 221943 628989 1694111 2201290 1968387 2234186 504789 2390 X false true X true false X 1047061 1097124 1311730 1324005 1776812 6556732 0 0 1047061 1097124 1311730 1324005 1776812 6556732 1674370 4882362 13506 13683 10142 11177 15420 63928 0 0 6620660 90045 0.73740 0.70340 X RESTRICTED RESTRICTED RESTRICTED RESTRICTED RESTRICTED RESTRICTED RESTRICTED RESTRICTED 57466 42064 15402 15402 1814093 2390 2390 1811703 1811703 1306914 1306914 1306914 true CHILDRENS HOSPITAL OF PHILA 3615 CIVIC CENTER BLVD PHILADELPHIA PA 19104 232237932 501(C)(3) 10000 0 PATIENT REGISTRY GUIDELINES OR HEALTH & SCI UNIV FND 1121 SW SALMON STREET PORTLAND OR 97205 237083114 501(C)(3) 25000 0 MICROBIONE RESEARCH UNI OF TX - SW MEDICAL CENTER 1801 INWOOD ROAD DALLAS TX 75235 756002868 501(C)(3) 100000 0 IRAP1 GENETIC RESEARCH 2 1 Grantmaker's Description of How Grants are Used RESEARCHERS ARE REQUIRED TO PROVIDE THE AGENCY WITH PROGRESS REPORTS BASED ON A VARIETY OF MILESTONES, INDIVIDUAL TO EACH STUDY, AND TO ENSURE THAT ANY PUBLICATION IN PEER REVIEW ACKNOWLEDGES THE AGENCYS FUNDING SUPPORT TOWARD THE EFFORT. Form 990, Part III, Line 4d: Other Program Services Description OTHER PROGRAM SERVICES 4: IRAP1 GENETIC RESEARCH:THE AGENCY SPONSORED GENETIC RESEARCH REGARDING THE IRAP1 GENE TO UNCOVER ITS POTENTIAL INTERACTION WITH THE MAIN GENE, HLA-B27, IN TRIGGERING SPONDYLOARTHRITIS IN GENETICALLY SUSCEPTIBLE INDIVIDUALS. OTHER PROGRAM SERVICES 5: MICROBIONE RESEARCH: THE AGENCY SPONSORED MICROBIONE RESEARCH TO EXPLORE PROOF OF CONCEPT THAT THE BIOME (THE FLORA BAD AND GOOD IN THE GI TRACT) CAN BE ALTERED TO DEVELOP A PROPHYLACTIC TREATMENT IN PREVENTING THE TRIGGER OF IRITIS WHICH IS COMMON COMPLICATION OF SPONDYLITIS AND WHICH CAN LEAD TO BLINDNESS. Form 990, Part VI, Line 11b: Form 990 Review Process THE FINANCE COMMITTEE, WHICH IS COMPRISED OF THE KEY OFFICERS OF THE BOARD, REVIEWS THE DOCUMENT PRIOR TO ITS DISTRIBUTION TO THE ENTIRE BOARD FOR REVIEW. Form 990, Part VI, Line 12c: Explanation of Monitoring and Enforcement of Conflicts ALL DIRECTORS AND SENIOR EMPLOYEES ARE REQUIRED TO COMPLETE AND SIGN A DISCLOSURE FORM LISTING ANY POTENTIAL CONFLICTS OF INTEREST BY SEPTEMBER 30, ANNUALLY. Form 990, Part VI, Line 15a: Compensation Review & Approval Process - CEO, Top Management THE ORGANIZATION UTILIZES CURRENT COMPENSATION DATA PUBLISHED BY THE NATIONAL HEALTH COUNCIL AND THE AMERICAN SOCIETY OF ASSOCIATION EXECUTIVES IN ORDER TO DETERMINE COMPENSATION. Form 990, Part VI, Line 15b: Compensation Review and Approval Process for Officers and Key Employees THE ORGANIZATION UTILIZES CURRENT COMPENSATION DATA PUBLISHED BY THE NATIONAL HEALTH COUNCIL AND THE AMERICAN SOCIETY OF ASSOCIATION EXECUTIVES IN ORDER TO DETERMINE COMPENSATION. Form 990, Part VI, Line 19: Other Organization Documents Publicly Available THE ORGANIZATION PRODUCES AN ANNUAL REPORT THAT IS PUBLISHED ON ITS WEBSITE.