SPONDYLITIS ASSOCIATION OF AMERICA: Form 990, tax year 2025
View the entire original 990 at ProPublica ↗
- Organization
- SPONDYLITIS ASSOCIATION OF AMERICA (EIN 95-3890767)
- Tax period
- 2025-07-01 to 2026-06-30
- Filed
- 2026-09-24
- IRS object ID
- 202612679349300221
- Schema version
- 2025v4.2
- Source
- Download XML · Original 990 at ProPublica
Every field in the e-filed return. Faint text is the IRS element name, for citing.
Return header ReturnHeader
| Field | Value | IRS element (for citing) |
|---|---|---|
| Return | 2026-09-24T09:20:32-05:00 | ReturnTs |
| Tax Period End | 2026-06-30 | TaxPeriodEndDt |
Preparer Firm PreparerFirmGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Preparer Firm EIN | 320530003 | PreparerFirmEIN |
Preparer Firm Name PreparerFirmName
| Field | Value | IRS element (for citing) |
|---|---|---|
| Business Name Line1 | QUIGLEY & MIRON | BusinessNameLine1Txt |
Preparer US Address PreparerUSAddress
| Field | Value | IRS element (for citing) |
|---|---|---|
| Address Line1 | 3580 WILSHIRE BLVD STE 1755 | AddressLine1Txt |
| City | LOS ANGELES | CityNm |
| State Abbreviation | CA | StateAbbreviationCd |
| ZIP | 90010 | ZIPCd |
| Field | Value | IRS element (for citing) |
|---|---|---|
| Return Type | 990 | ReturnTypeCd |
| Tax Period Begin | 2025-07-01 | TaxPeriodBeginDt |
Filer Filer
| Field | Value | IRS element (for citing) |
|---|---|---|
| EIN | 953890767 | EIN |
Business Name BusinessName
| Field | Value | IRS element (for citing) |
|---|---|---|
| Business Name Line1 | SPONDYLITIS ASSOCIATION OF AMERICA | BusinessNameLine1Txt |
| Field | Value | IRS element (for citing) |
|---|---|---|
| Business Name Control | SPON | BusinessNameControlTxt |
| Phone | 8188921616 | PhoneNum |
US Address USAddress
| Field | Value | IRS element (for citing) |
|---|---|---|
| Address Line1 | 16430 VENTURA BLVD 300 | AddressLine1Txt |
| City | ENCINO | CityNm |
| State Abbreviation | CA | StateAbbreviationCd |
| ZIP | 91436 | ZIPCd |
Business Officer BusinessOfficerGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Person | CASSIE SHAFER | PersonNm |
| Person Title | CHIEF EXECUTIVE OFFICER | PersonTitleTxt |
| Phone | 8188921616 | PhoneNum |
| Signature | 2026-09-23 | SignatureDt |
Preparer Person PreparerPersonGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Preparer Person | ARMEN GRIGORIAN | PreparerPersonNm |
| PTIN | P01582463 | PTIN |
| Phone | 2136393550 | PhoneNum |
| Field | Value | IRS element (for citing) |
|---|---|---|
| Tax | 2025 | TaxYr |
Form 990 IRS990
| Field | Value | IRS element (for citing) |
|---|---|---|
| Principal Officer | CASSIE SHAFER | PrincipalOfficerNm |
US Address USAddress
| Field | Value | IRS element (for citing) |
|---|---|---|
| Address Line1 | 16430 VENTURA BLVD 300 | AddressLine1Txt |
| City | ENCINO | CityNm |
| State Abbreviation | CA | StateAbbreviationCd |
| ZIP | 91436 | ZIPCd |
| Field | Value | IRS element (for citing) |
|---|---|---|
| Gross Receipts | $3,604,354 | GrossReceiptsAmt |
| Group Return For Affiliates | 0 | GroupReturnForAffiliatesInd |
| Organization501c3 | Yes (X) | Organization501c3Ind |
| Website Address | WWW.SPONDYLITIS.ORG | WebsiteAddressTxt |
| Type Of Organization Corp | Yes (X) | TypeOfOrganizationCorpInd |
| Formation | 1983 | FormationYr |
| Legal Domicile State | CA | LegalDomicileStateCd |
| Activity Or Mission | ADVANCING RESEARCH, ACCELERATED DIAGNOSIS, OPTIMUM TREATMENT, PUBLIC AWARENESS AND HEALTH CARE PROFESSIONAL EDUCATION IN SPONDYLOARTHRITIS | ActivityOrMissionDesc |
| Voting Members Governing Body | 9 | VotingMembersGoverningBodyCnt |
| Voting Members Independent | 9 | VotingMembersIndependentCnt |
| Total Employee | 13 | TotalEmployeeCnt |
| Total Volunteers | 212 | TotalVolunteersCnt |
| Total Gross UBI | $0 | TotalGrossUBIAmt |
| Net Unrelated Bus Txbl Incm | $0 | NetUnrelatedBusTxblIncmAmt |
| PY Contributions Grants | $1,602,575 | PYContributionsGrantsAmt |
| CY Contributions Grants | $1,948,000 | CYContributionsGrantsAmt |
| PY Program Service Revenue | $6,469 | PYProgramServiceRevenueAmt |
| CY Program Service Revenue | $3,617 | CYProgramServiceRevenueAmt |
| PY Investment Income | $415,053 | PYInvestmentIncomeAmt |
| CY Investment Income | $212,908 | CYInvestmentIncomeAmt |
| PY Other Revenue | $0 | PYOtherRevenueAmt |
| CY Other Revenue | $0 | CYOtherRevenueAmt |
| PY Total Revenue | $2,024,097 | PYTotalRevenueAmt |
| CY Total Revenue | $2,164,525 | CYTotalRevenueAmt |
| PY Grants And Similar Paid | $197,850 | PYGrantsAndSimilarPaidAmt |
| CY Grants And Similar Paid | $668,476 | CYGrantsAndSimilarPaidAmt |
| PY Benefits Paid To Members | $0 | PYBenefitsPaidToMembersAmt |
| CY Benefits Paid To Members | $0 | CYBenefitsPaidToMembersAmt |
| PY Salaries Comp Emp Bnft Paid | $1,611,842 | PYSalariesCompEmpBnftPaidAmt |
| CY Salaries Comp Emp Bnft Paid | $1,609,104 | CYSalariesCompEmpBnftPaidAmt |
| PY Total Prof Fndrsng Expns | $0 | PYTotalProfFndrsngExpnsAmt |
| CY Total Prof Fndrsng Expns | $0 | CYTotalProfFndrsngExpnsAmt |
| CY Total Fundraising Expense | $103,002 | CYTotalFundraisingExpenseAmt |
| PY Other Expenses | $653,847 | PYOtherExpensesAmt |
| CY Other Expenses | $669,839 | CYOtherExpensesAmt |
| PY Total Expenses | $2,463,539 | PYTotalExpensesAmt |
| CY Total Expenses | $2,947,419 | CYTotalExpensesAmt |
| PY Revenues Less Expenses | -$439,442 | PYRevenuesLessExpensesAmt |
| CY Revenues Less Expenses | -$782,894 | CYRevenuesLessExpensesAmt |
| Total Assets BOY | $7,621,545 | TotalAssetsBOYAmt |
| Total Assets EOY | $6,995,834 | TotalAssetsEOYAmt |
| Total Liabilities BOY | $414,701 | TotalLiabilitiesBOYAmt |
| Total Liabilities EOY | $520,447 | TotalLiabilitiesEOYAmt |
| Net Assets Or Fund Balances BOY | $7,206,844 | NetAssetsOrFundBalancesBOYAmt |
| Net Assets Or Fund Balances EOY | $6,475,387 | NetAssetsOrFundBalancesEOYAmt |
| Info In Schedule O Part III | Yes (X) | InfoInScheduleOPartIIIInd |
| Mission | ADVANCING AND DIRECTLY SPONSORING SPONDYLOARTHRITIS RESEARCH, ACCELERATING DIAGNOSIS, SUPPORTING OPTIMUM TREATMENT FOR THE INDIVIDUAL, ADVANCING AWARENESS, AND PUBLIC AND HEALTH CARE PROFESSIONAL EDUCATION IN SPONDYLOARTHRITIS. | MissionDesc |
| Significant New Program Srvc | 0 | SignificantNewProgramSrvcInd |
| Significant Change | 0 | SignificantChangeInd |
| Expense | $953,760 | ExpenseAmt |
| Revenue | $3,617 | RevenueAmt |
| Desc | SAA DELIVERS PATIENT EDUCATION, DISEASE AWARENESS, AND SUPPORT SERVICES THROUGH AN INTEGRATED DIGITAL PLATFORM THAT INCLUDES VIRTUAL SEMINARS, WEBINARS, EDUCATIONAL CONTENT, ONLINE PUBLICATIONS, AND PATIENT SUPPORT RESOURCES. AT THE CENTER OF THESE EFFORTS IS WWW.SPONDYLITIS.ORG, A COMPREHENSIVE ONLINE RESOURCE FEATURING THOUSANDS OF PAGES OF PHYSICIAN-REVIEWED INFORMATION AND SERVING OVER 705,000 UNIQUE VISITORS ANNUALLY.GLOBAL SPONDYLOARTHRITIS SUMMIT 2026 SAAS SIGNATURE ONLINE EDUCATIONAL PROGRAM, 8THANNUAL GLOBAL SPONDYLOARTHRITIS SUMMIT, TOOK PLACE MAY 1-2. THIS YEAR'S SUMMIT FEATURED 12 PRESENTATIONS BY SUBJECT MATTER EXPERTS ON PRACTICAL STRATEGIES TO ADDRESS EVERYDAY CHALLENGES WHILE LIVING WITH SPA. EACH PRESENTATION FOLLOWED BY A LIVE Q&A FOR ATTENDEES TO HAVE THEIR MOST PRESSING QUESTIONS ANSWERED. THE SUMMIT ALSO FEATURED A LEADERBOARD CHALLENGE, AN ACTIVITY LOUNGE AND AN EXHIBIT HALL. SAA ALSO PROVIDED SPANISH LANGUAGE SUBTITLES FOR THE PRESENTATIONS. NEARLY 3,000 ATTENDEES FROM 75 COUNTRIES REGISTERED FOR THIS YEAR'S EVENT. RECORDINGS OF THE PRESENTATIONS ARE AVAILABLE AS ENDURING CONTENT ON SAA'S WEBSITE. HEALTHED LIVESTREAM - IN FYE 2026, SAA DEVELOPED AND LAUNCHED A NEW HEALTHED LIVESTREAM PROGRAM, IS IT JUST BACK PAINOR SOMETHING MORE?, HELD LIVE ON FEBRUARY 21, 2026 AND WAS DESIGNED TO REACH PEOPLE EXPERIENCING CHRONIC BACK PAIN WHO MAY NOT YET HAVE A SPONDYLOARTHRITIS DIAGNOSIS. OUR HEALTHED LIVESTREAM PROVIDED EXPERT EDUCATION ON THE COMMON CAUSES OF CHRONIC BACK PAIN, DIFFERENCES BETWEEN INFLAMMATORY AND MECHANICAL BACK PAIN, THE DIAGNOSTIC PROCESS, AND HOW INDIVIDUALS CAN ADVOCATE FOR APPROPRIATE EVALUATION AND CARE. THE PROGRAM WAS LAUNCHED IN CONJUNCTION WITH THE ROLLOUT OF THE A-TOOL, AN AXIAL SPONDYLOARTHRITIS SCREENING ASSESSMENT DEVELOPED BY ABHIJEET DANVE, MD, OF YALE SCHOOL OF MEDICINE. SAA COLLABORATED WITH DR. DANVE TO MAKE THE A-TOOL AVAILABLE THROUGH SAA'S WEBSITE, PROVIDING PEOPLE WITH CHRONIC BACK PAIN AN ACCESSIBLE WAY TO IDENTIFY SYMPTOMS THAT MAY WARRANT FURTHER MEDICAL EVALUATION. THE LIVESTREAM WAS BROADCAST ACROSS MULTIPLE SOCIAL MEDIA PLATFORMS INCLUDING YOUTUBE, FACEBOOK, INSTAGRAM, AND X AND WAS MADE AVAILABLE AFTERWARD AS ENDURING EDUCATIONAL CONTENT, CREATING A PATHWAY FROM BACK PAIN AWARENESS TO SCREENING AND POTENTIAL MEDICAL EVALUATION. THE PROGRAM WAS SUPPORTED BY AN EDUCATIONAL GRANT FROM ABBVIE.PATIENT EDUCATION PUBLICATIONS INCLUDE A COLLECTION OF 15 PHYSICIAN-VETTED ENGLISH-LANGUAGE SPONDYLOARTHRITIS EDUCATIONAL BROCHURES AND 10 SPANISH-LANGUAGE BROCHURES. IN FY26, THE PROGRAM WAS EXPANDED WITH THE ADDITION OF THREE NEW EDUCATIONAL BROCHURES FOCUSED ON PSORIATIC ARTHRITIS, ENTEROPATHIC ARTHRITIS, AND HIDRADENITIS SUPPURATIVA, ADDRESSING IDENTIFIED GAPS IN PATIENT EDUCATION RESOURCES.SPONDYLITIS PLUS MAGAZINE SAA MEMBERS RECEIVE QUARTERLY ISSUES OF THE ORGANIZATION'S PREMIERE PRINT PUBLICATION. SPONDYLITIS PLUS PROVIDES INDEPTH COVERAGE OF ISSUES SUCH AS PAIN, FATIGUE, AND OTHER COMPLICATIONS, DISCUSSES THE LATEST RESEARCH AND TREATMENT INFORMATION OFTEN PRESENTED BY PROMINENT RHEUMATOLOGISTS AND RESEARCHERS, FEATURES MOVING AND UNIQUE PERSONAL STORIES FROM OTHERS WITH SPONDYLOARTHRITIS, AND MUCH MORE. OVER 4,500 COPIES ARE DISTRIBUTED QUARTERLY.ESUN SAA REDESIGNED ITS ELECTRONIC SPONDYLOARTHRITIS UPDATE NEWSLETTER, TRANSITIONING FROM A SINGLE MONTHLY PUBLICATION TO TWO ISSUES PER MONTH. THIS ENHANCED COMMUNICATION MODEL ALLOWS SAA TO DELIVER MORE TIMELY NEWS, RESEARCH OPPORTUNITIES, UPCOMING PROGRAMS AND EVENTS, PATIENT STORIES, AND OTHER SPONDYLOARTHRITIS-RELATED RESOURCES TO ALMOST 50,000 SUBSCRIBERS.SPONDYCAST PODCAST SERIES SAA LAUNCHED A NEW WEEKLY PODCAST CALLED SPONDYCAST IN MARCH 2023, WITH A TOTAL OF 137 PODCASTS PRODUCED BY FYE26. BOARD MEMBER AND HOST JILL MILLER INTERVIEWS WORLD-RENOWNED SPECIALISTS IN VARIOUS FIELDS INCLUDING MEDICINE, PSYCHOLOGY, DIET AND NUTRITION, AND FITNESS. SPONDYCAST IS AVAILABLE ON A VARIETY OF PLATFORMS INCLUDING SPOTIFY, APPLE, IHEART RADIO, PANDORA, AMAZON MUSIC, AND MORE. DURING FYE26, SAA DEVELOPED PSORIATIC ARTHRITIS EXPLAINED, A NEW 10-EPISODE SPECIAL SERIES OF SPONDYCAST SUPPORTED BY NOVARTIS. THE SERIES PROVIDES ACCESSIBLE, EVIDENCE-BASED EDUCATION ON PSORIATIC ARTHRITIS (PSA) THROUGH CONVERSATIONS WITH LEADING HEALTHCARE EXPERTS AND PEOPLE LIVING WITH PSA. TOPICS INCLUDE SYMPTOMS AND DIAGNOSIS, TREATMENT ADVANCES, EXERCISE, EMOTIONAL WELL-BEING, ASSOCIATED HEALTH CONDITIONS, SEX AND GENDER DIFFERENCES, PATIENT-REPORTED OUTCOMES, INTIMACY AND SEXUAL HEALTH, THE GUT MICROBIOME, AND PERSONAL EXPERIENCES OF LIVING WITH PSA. THE SERIES LAUNCHED IN AUGUST 2026 IN RECOGNITION OF PSORIASIS AWARENESS MONTH, WITH NEW EPISODES RELEASED WEEKLY AND SUPPORTED BY A DEDICATED ONLINE RESOURCE PAGE FEATURING THE SERIES AND ADDITIONAL PSA EDUCATION."LIFE AFTER DIAGNOSIS" VIDEO SERIESTHIS PATIENT-FOCUSED EDUCATIONAL PROGRAM ADDRESSES THE UNMET NEED OF A SYSTEMATIC PATH TO UNDERSTANDING THE DIAGNOSIS, TREATMENTS, AND MANAGEMENT OF ANKYLOSING SPONDYLITIS (AS). THE PROJECT IS COMPRISED OF A SERIES OF SEVEN VIDEOS; EACH DELIVERED THROUGH AN EMAIL CONTAINING ADDITIONAL RESOURCES RELATED TO THE TOPIC AT HAND. THE CONTENT WAS DEVELOPED IN CLOSE COLLABORATION WITH LEADING HEALTH PROFESSIONALS AS WELL AS PATIENTS LIVING WITH AS. OVER 2,500 PARTICIPANTS HAVE ENROLLED IN THIS PROGRAM. NEXTGEN STORIES - SAA LAUNCHED NEXTGEN STORIES: LIVING WITH SPONDYLOARTHRITIS, A DISEASE AWARENESS INITIATIVE DESIGNED TO REACH AND ENGAGE GEN Z AND MILLENNIAL ADULTS LIVING WITH SPA. THE PROGRAM ENGAGES YOUNG ADULT CONTENT CREATORS WITH SPA TO SHARE AUTHENTIC LIVED EXPERIENCES THROUGH SHORT-FORM VIDEOS ON SOCIAL MEDIA PLATFORMS, INCLUDING FACEBOOK, INSTAGRAM, TIKTOK, AND YOUTUBE. CONTENT FOCUSES ON ISSUES RELEVANT TO YOUNGER ADULTS, INCLUDING DIAGNOSIS, MENTAL HEALTH, RELATIONSHIPS, SCHOOL AND WORK, FITNESS, SELF-ADVOCACY, AND NAVIGATING LIFE WITH A CHRONIC CONDITION. BY COMBINING PEER-LED STORYTELLING WITH ACCESS TO SAA'S TRUSTED EDUCATIONAL RESOURCES, NEXTGEN STORIES AIMS TO INCREASE SPA AWARENESS, REDUCE ISOLATION, STRENGTHEN SELF-ADVOCACY, AND EXPAND SAA'S REACH AMONG YOUNGER AUDIENCES.SAA'S SUPPORT GROUPS FROM JULY 1, 2025, TO JUNE 30, 2026, 30 ACTIVE SUPPORT GROUP LEADERS CONDUCTED A TOTAL OF 249 SUPPORT GROUP MEETINGS. OUR SUPPORT GROUPS SPANNED 19 STATES AND 1 FEDERAL DISTRICT (WASHINGTON, DC), ENSURING WIDESPREAD REACH AND ACCESSIBILITY FOR OUR COMMUNITY MEMBERS. MEETINGS WERE OFFERED IN VARIOUS FORMATS, INCLUDING ONLINE, IN-PERSON, AND HYBRID, TO ACCOMMODATE THE DIVERSE NEEDS OF ATTENDEES. 4 NEW SUPPORT GROUP LEADERS (PHILADELPHIA, SPANISH SPEAKERS, BOSTON) WERE WELCOMED. OUR NEW "SPANISH SPEAKER SUPPORT GROUP" WELCOMES INTERNATIONAL ATTENDEES FROM VARIOUS LATIN AMERICAN COUNTRIES. ALSO NEW IS "CAREGIVING WITH SPA SUPPORT GROUP" THESE MEETINGS OFFER EDUCATION, ENCOURAGEMENT, EMOTIONAL SUPPORT, AND ALLOW FOR OPEN DISCUSSION ABOUT MANAGING AND LIVING WITH SPONDYLOARTHRITIS, ATTENDEES JOIN FROM AROUND THE WORLD. WE HELD 12 SOCIAL CHAT HOURS, PROVIDING AN INFORMAL PLATFORM FOR SUPPORT GROUP LEADERS TO CONNECT, SHARE EXPERIENCES, AND OFFER MUTUAL SUPPORT OUTSIDE THE MORE STRUCTURED SUPPORT GROUP MEETINGS. FOUR QUARTERLY CHECK-INS WERE HELD, ALLOWING US TO PROVIDE PROFESSIONAL DEVELOPMENT AND GATHER FEEDBACK FROM SUPPORT GROUP LEADERS, ASSESS THE EFFECTIVENESS OF OUR PROGRAMS, AND MAKE NECESSARY ADJUSTMENTS TO BETTER SERVE OUR COMMUNITY.OUR "MEETINGS WITHOUT BORDERS" INITIATIVE CONTINUES TO GROW, WITH 387 INDIVIDUALS REGISTERED TO RECEIVE ALERTS ABOUT UPCOMING MEETINGS. THIS PROGRAM ALLOWS CONSTITUENTS TO JOIN MEETINGS BEYOND THEIR LOCAL AREA, FOSTERING A BROADER SENSE OF COMMUNITY AND SUPPORT. SUPPORT GROUP LEADERS HAVE REPORTED THAT THEY HAVE SEEN MEETING ATTENDEES JOINING THEIR SUPPORT GROUP MEETINGS FROM LOCATIONS OUTSIDE OF THEIR LOCAL AREA/STATE. | Desc |
Prog Srvc Accom Acty2 ProgSrvcAccomActy2Grp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Expense | $738,637 | ExpenseAmt |
| Grant | $668,476 | GrantAmt |
| Desc | EARLY CAREER INVESTIGATOR AWARDS (ECI)TWO OF THESE PRESTIGIOUS JANE BRUCKEL EARLY CAREER INVESTIGATOR AWARDS WERE PUBLICLY PRESENTED DURING THE AMERICAN COLLEGE OF RHEUMATOLOGY ANNUAL CONFERENCE THIS FISCAL YEAR. EACH RECEIVED $30,000 TO CONDUCT SPONDYLOARTHRITIS RESEARCH THIS YEAR. -DR. PARAS KARMACHARYA, MD, MS, ASSISTANT PROFESSOR OF MEDICINE IN THE DIVISION OF RHEUMATOLOGY AND IMMUNOLOGY AT VANDERBILT UNIVERSITY MEDICAL CENTER.DURING HIS INTERNAL MEDICINE RESIDENCY, DR. KARMACHARYA FOCUSED ON CLINICAL RESEARCH AND EPIDEMIOLOGICAL STUDIES USING NATIONAL DATABASES. AS A RHEUMATOLOGY FELLOW AT MAYO CLINIC, HE INVESTIGATED THE EPIDEMIOLOGY OF PSORIATIC ARTHRITIS (PSA) AND THE COMORBIDITIES ASSOCIATED WITH SPA. HIS RESEARCH HAS BEEN PUBLISHED IN LEADING RHEUMATOLOGY JOURNALS, INCLUDING ANNALS OF THE RHEUMATIC DISEASES, ARTHRITIS CARE & RESEARCH, AND ACR OPEN RHEUMATOLOGY. IN RECOGNITION OF HIS CONTRIBUTIONS, HE RECEIVED THE 2020 PHILIP S. HENCH AWARD FOR EXCELLENCE AS A SUBSPECIALTY FELLOW IN RHEUMATOLOGY.- DR. RACHAEL STOVALL, MD, MAS, IS AN ACTING ASSISTANT PROFESSOR I THE DIVISION OF RHEUMATOLOGY AT THE UNIVERSITY OF WASHINGTON, SPECIALIZING IN AXIAL SPONDYLOARTHRITIS (AXSPA). DR. STOVALL COMPLETED A RESEARCH-FOCUSED RHEUMATOLOGY FELLOWSHIP AT THE UNIVERSITY OF CALIFORNIA SAN FRANCISCO (UCSF), WHERE SHE ALSO EARNED A MASTER OF ADVANCED STUDIES IN CLINICAL AND EPIDEMIOLOGICAL RESEARCH. HER RESEARCH BEGAN DURING HER INTERNAL MEDICINE RESIDENCY AT BOSTON UNIVERSITY MEDICAL CENTER, WHERE SHE STUDIED THE IMPACT OF TUMOR NECROSIS FACTOR INHIBITORS AND OTHER THERAPIES ON SPA PATIENTS. HER FINDINGS ON FRACTURE RISK, OPIOID USE, AND SEX DIFFERENCES IN FUNCTIONAL OUTCOMES IN AXSPA HAVE BEEN PUBLISHED IN ARTHRITIS CARE & RESEARCH AND NATURE REVIEWS RHEUMATOLOGY.IN ADDITION TO FUNDING ECI AWARDS, SAA RECEIVES FUNDING REQUESTS FROM OUTSIDE SOURCES TO SUPPORT RESEARCH RELATED TO SPONDYLOARTHRITIS. THE ORGANIZATION CONSIDERS IT IMPERATIVE THAT ANY RESEARCH PROPOSALS MAKE OPTIMAL USE OF THESE LIMITED RESOURCES. THE FOLLOWING SAA FUNDED RESEARCH GRANTS WERE CONDUCTED DURING THIS FISCAL YEAR: JOERG ERMANN, MD AT THE BRIGHAM AND WOMEN'S HOSPITAL HARVARD MEDICAL SCHOOL. STUDY ""DECODING AXIAL SPONDYLOARTHRITIS THROUGH TISSUE ANALYSIS." KRISTINE KUHN, MD, PHD AT THE UNIVERSITY OF COLORADO ANSCHUTZ MEDICAL CAMPUS. STUDY ""LICENSING OF GUT-TRAFFICKED T CELLS BY EPITHELIAL MHC CLASS II." SUSAN MURPHY, SCD OTR AT THE UNIVERSITY OF MICHIGAN HEALTH SYSTEM. STUDY "RENEW SPONDYLOARTHRITIS:FEASIBILITY, ACCEPTABILITY, AND PRELIMINARY EFFICACY OF A PEER HEALTH COACHED RESILIENCE-BUILDING ENERGYMANAGEMENT INTERVENTION TO ENHANCE WELLBEING AND FATIGUE." | Desc |
Prog Srvc Accom Acty3 ProgSrvcAccomActy3Grp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Expense | $374,704 | ExpenseAmt |
| Desc | OTHER PROGRAM SERVICESSOCIAL MEDIA OUR SOCIAL MEDIA CHANNELS (FACEBOOK, TWITTER, INSTAGRAM, AND LINKEDIN) ARE ESSENTIAL TOOLS FOR INCREASING AWARENESS AND ENGAGING WITH SAA'S CONSTITUENTS. DURING THE FISCAL YEAR ENDING JUNE 30, 2026, OUR SOCIAL MEDIA CHANNELS EARNED 2,062,916 IMPRESSIONS, 39,068 ENGAGEMENTS (LIKES, SHARES, COMMENTS) AND 11,867 POST LINK CLICKS. FACEBOOK ACCOUNTED FOR 1,726,069 IMPRESSIONS; INSTAGRAM ACCOUNTED FOR 272,968, TWITTER ACCOUNTED FOR 33,317, LINKEDIN ACCOUNTED FOR 29,366 AND TIKTOK ACCOUNTED FOR 1,196.YOUTUBE AS A VIDEO SHARING PLATFORM, YOUTUBE ALSO SERVES AS A SEARCH ENGINE. IN FACT, YOUTUBE IS THE SECOND MOST POPULAR SEARCH ENGINE IN THE WORLD WITH ONLY GOOGLE SURPASSING IT. DURING THE FISCAL YEAR ENDING JUNE 30, 2026, THERE WERE 54.4K VIEWS AND 676.6K IMPRESSIONS OF VIDEO CONTENT ON OUR YOUTUBE CHANNEL.SAA WEBSITE DURING THE FISCAL YEAR ENDING JUNE 30, 2026, SAA WEBSITE HAD 781,181 PAGE VIEWS AND 333,740 UNIQUE USERS. IN TERMS OF DEMOGRAPHICS, 58 PERCENT OF WEBSITE VISITORS ARE FEMALE, AND 42 PERCENT ARE MALE. THE AGE GROUPS WERE 18-24 (10,128), 25-34 (15,784), 35-44 (13,567), AND 45 54 (11,680), 55-64 (9,907), AND 65+ (6,478).COMMUNITY FORUM - SAA'S COMMUNITY FORUMS ALSO CONTINUE TO BE ACTIVE NOT ONLY FOR THE NEWLY DIAGNOSED BUT THOSE LIVING WITH THE DISEASE FROM A FEW YEARS TO ALMOST A LIFETIME. TO DATE, THERE ARE 21,941 MEMBERS PARTICIPATING IN 255,148 POSTS/DISCUSSIONS.SAA STORYTELLERS, YOUR STORIES ON STAGESAA STORYTELLERS, YOUR STORIES ON STAGE IS A VIRTUAL COMMUNITY STORYTELLING SHOW THAT IS AN EXTENSION OF THE STORIES FEATURED IN OUR QUARTERLY NEWSMAGAZINE, SPONDYLITIS PLUS. PATIENTS JOIN THE PRESENTATION BROADCAST ON YOUTUBE AND CONNECT VIA POSITIVE COMMENTS AND GOODWILL. THIS VIRTUAL SHOW FEATURES FOUR STORYTELLERS SHARING THEIR JOURNEYS LIVING WITH ANKYLOSING SPONDYLITIS AND RELATED DISEASES OR CARING FOR SOMEONE LIVING WITH THE DISEASE. THIS MISSION OF THIS PROJECT IS TO BUILD EMPATHY AND CONNECTION THROUGH THE POWER OF STORY. THIS SEASON'S SHOWS WERE PRESENTED WITH SUPPORT FROM BMS, TOTAL VIEWS FOR SHOWS PRESENTED IN DECEMBER, FEBRUARY, APRIL, AND JUNE WERE ALMOST 2,000. WALK YOUR AS OFF (WYASO) SAA'S VIRTUAL WALK IS A YEAR-ROUND CAMPAIGN TO ENCOURAGE PEOPLE TO "FIND THEIR HAPPY PACE AND KEEP MOVING. THIS INTERNATIONAL EFFORT HAS GROWN INTO A MUCH-BELOVED EVENT THAT BRINGS PEOPLE TOGETHER AND ENCOURAGES HEALTHY ACTIVITIES. SUNDAY, MAY 3, 2026, WAS A SPECIAL WALK YOUR AS OFF DAY, NEW FOR THIS YEAR. THE ADDITION OF WALK YOUR AS OFF DAY WITH A VIRTUAL COMPONENT, INCREASED FUNDRAISING, ENGAGEMENT, AND OVERALL EXERCISE. SPONDYLITIS PATIENTS FROM AROUND THE WORLD CHECKED IN TO SAY HI AND SHARED MOTIVATING COMMENTS. SPONDYLOARTHRITIS (SPA) AWARENESS MONTHSPONDYLOARTHRITIS (SPA) AWARENESS MONTH WAS CELEBRATED MAY 2026. RAISING AWARENESS DURING MAY AND THROUGHOUT THE YEAR HELPS INCREASE VISIBILITY OF SPA. THROUGH THESE EFFORTS, WE ALSO EMPHASIZE THE NEED FOR RECOGNIZING THE SYMPTOMS FOR PROPER AND TIMELY DIAGNOSIS, FUNDING RESEARCH FOR A CURE, AND SUPPORT PROGRAMS THAT EDUCATE AND EMPOWER THOSE IMPACTED BY SPA TO MAKE MORE INFORMED DECISIONS ABOUT THEIR HEALTH. OUR THEME FOR 2026 WAS "WE MOVE DIFFERENTLY WITH SPONDYLOARTHRITIS." THE CAMPAIGN SHONE A LIGHT ON HOW PEOPLE LIVING WITH SPA ADAPT, PERSIST, AND NAVIGATE DAILY LIFE.BASDAI CALCULATOR THE BATH ANKYLOSING SPONDYLITIS DISEASE ACTIVITY INDEX (BASDAI) IS A SELF-ADMINISTERED QUESTIONNAIRE THAT CONTAINS SIX QUESTIONS REGARDING SUBJECTIVE SYMPTOMS DURING THE WEEK PRIOR TO ANSWERING THE QUESTIONS. AN INTERACTIVE BASDAI WAS LAUNCHED ON SAA'S WEBSITE IN JANUARY 2024. THUS FAR, THERE HAVE BEEN 37,042 COMPLETIONS.ADVOCACYSAA'S ADVOCACY PROGRAM CONTINUES TO EXPAND BOTH IN THE NUMBER OF INITIATIVES AND ACTIONS TAKEN, AS WELL AS THE NUMBER OF SPONDYLITIS COMMUNITY ADVOCATES. ADVOCACY PLANS ARE GUIDED BY STRATEGIC PRIORITIES, INCLUDING INCREASING PUBLIC AWARENESS, IMPROVING ACCESS TO HEALTHCARE, INCREASING FEDERAL RESEARCH FUNDING TO FIND A CURE FOR SPONDYLITIS, AND INFLUENCING PUBLIC POLICIES THAT AFFECT THE SPONDYLITIS COMMUNITY. ADVOCACY SPECIFIC ACTIONS ARE GUIDED WITH THE INPUT FROM THE ADVOCACY ADVISORY COMMITTEE WHICH IS MADE UP OF PATIENTS, LOVED ONES, AND PHYSICIANS. SAA ADVOCACY EFFORTS AIM TO CREATE POSITIVE CHANGE FOR AND WITHIN THE SPONDYLITIS COMMUNITY THROUGH STATE AND NATIONAL CAMPAIGNS. THESE EFFORTS UTILIZE A MULTICHANNEL APPROACH TO REACH POTENTIAL ADVOCATES AND TARGETED LEGISLATORS WHERE THEY ARE, WHETHER ON SOCIAL MEDIA, EMAIL, WEBSITES, PODCASTS, NEWSPAPERS, OR SAA PUBLICATIONS. ADVOCATES ARE ENCOURAGED TO PARTICIPATE THROUGH SURVEYS, PETITIONS, POLLS, LETTER-WRITING CAMPAIGNS, LETTERS, AND EMAILS TO SPECIFIC LEGISLATORS, AS WELL AS, WHEN POSSIBLE, IN-PERSON CONVERSATIONS WITH STATE, LOCAL, AND NATIONAL LEGISLATORS. SAA AMPLIFIES THE IMPACT AS AN ACTIVE PARTICIPANT IN 42 MEETINGS WITH COALITIONS OF OTHER PATIENT-CENTRIC NON-PROFIT ORGANIZATIONS. SPECIFIC ACTIVITIES INCLUDE ARTICLES IN SPONDYLITIS PLUS MAGAZINE ON THE FOLLOWING TOPICS: THE IMPORTANCE AND WAYS PATIENTS CAN BECOME EFFECTIVE ADVOCATES; BREAKING DOWN BARRIERS TO RHEUMATOLOGY CARE; WHAT TO DO WHEN TREATMENT IS DENIED; AND MEDICAL GASLIGHTING. NOT ONLY ARE THERE 18 ACTIVE GRASSROOT CAMPAIGNS, SURVEYS, AND PETITIONS COVERING A WIDE RANGE OF PUBLIC POLICY ISSUES, SAA WROTE OR SIGNED ONTO 40 LETTERS TO LEGISLATORS OR PUBLIC OFFICIALS. SEVEN NEW ADVOCACY PODCASTS WERE AIRED ON SPONDYCAST. FURTHER, CAMPAIGNS ARE PROMOTED THROUGH SAA'S ESUN EMAIL, SAA'S EDUCATION/SUPPORT GROUP LEADERS, AND PUBLICLY THROUGH 63 POSTS MADE ON POPULAR SOCIAL MEDIA PLATFORMS OF FACEBOOK TWITTER, LINKEDIN, X, AND INSTAGRAM. | Desc |
Prog Srvc Accom Acty Other ProgSrvcAccomActyOtherGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Expense | $337,612 | ExpenseAmt |
| Desc | HEALTH CARE PROVIDER EDUCATION AND OUTREACHBACK 2 SPA BASICS PILOT PROGRAM - THIS PROGRAM WAS CREATED TO RAISE SPA AWARENESS AND EDUCATE PRIMARY CARE PROVIDERS AND OTHER HEALTHCARE PROFESSIONALS WITHIN A HOSPITAL'S HEALTHCARE SYSTEM USING MEDICAL RESIDENTS AS TRAINERS. RESIDENTS WHO COMPLETED THEIR CORE CLINICAL TRAINING IN INTERNAL MEDICINE AND HAVE CHOSEN RHEUMATOLOGY AS A SPECIALTY PARTICIPATED IN A SERIES OF 3-5 TRAININGS ABOUT SPA CONDUCTED VIRTUALLY VIA ZOOM. ONCE THESE RESIDENTS COMPLETE THE "TRAIN-THE-TRAINER" CURRICULUM, THEY SET UP PRESENTATIONS AT THEIR LOCAL HOSPITALS TO PROVIDE EDUCATION AND INCREASE AWARENESS OF SPA. FOR THE PILOT PROGRAM, WE HAD 15 RESIDENTS ENROLL WHO THEN GAVE PRESENTATIONS ON SPA TO OVER 165 MEDICAL PROFESSIONALS WITHIN THEIR MEDICAL INSTITUTIONS. ACCREDITED ONLINE EDUCATION FOR FIRST RESPONDERS"EMS PITFALLS: ANKYLOSING SPONDYLITIS" - SAA'S COURSE FOR FIRST RESPONDERS, "EMS PITFALLS: ANKYLOSING SPONDYLITIS" WAS REACCREDITED IN DECEMBER 2022 AND CONTINUES TO PROVIDE 1 CE CREDIT FOR FIRST RESPONDERS AND NURSES.STANDARD EMS TREATMENT PROTOCOLS CAN CAUSE INJURY, DISABILITY, AND EVEN DEATH IN PATIENTS WITH ANKYLOSING SPONDYLITIS (AS). THIS COURSE PROVIDES TOOLS TO RECOGNIZE AS, AND SAFELY AND PROPERLY MANAGE IT IN EMERGENCYSITUATIONS.ANESTHESIOLOGY AND AIRWAY MANAGEMENT MODULE THE SPONDYLITIS ASSOCIATION OF AMERICA LAUNCHED THE ONLINE ACCREDITED COURSE FOR ANESTHESIOLOGISTS IN EARLY FEBRUARY 2023. THIS COLLABORATION WITH HENRY FORD HEALTH AIMS TO PROVIDE A COMPREHENSIVE AND PRACTICAL LEARNING EXPERIENCE FOR HEALTHCARE PROFESSIONALS TO ENHANCE THEIR SKILLS IN AIRWAY MANAGEMENT FOR PATIENTS WITH ANKYLOSING SPONDYLITIS. THIS ACTIVITY IS GUARANTEED TO HAVE A MINIMUM OF 600 LEARNERS. CASEBASED MRI EDUCATIONAL TOOL FOR AXIAL SPONDYLOARTHRITISSAA SUPPORTED THE ENHANCEMENT BY CARE ARTHRITIS OF A MOBILE APP, LAUNCHED IN 2023, WHICH HOSTS AND DELIVERS MRI CASE STUDIES GEARED TO RHEUMATOLOGISTS AND RADIOLOGISTS. THE PROGRAM AIMS TO ADDRESS A TOPRANKED UNMET EDUCATIONAL NEED IN THE FIELD OF SPONDYLOARTHRITIS, NAMELY, THE APPROPRIATE INTERPRETATION OF MRI BY RHEUMATOLOGISTS AND RADIOLOGISTS FOR EARLY DIAGNOSIS OF SPA. THE APP STREAMING CONTENT IS CASEBASED AND INCLUDES BOTH CLINICAL AND IMAGING COMPONENTS. RHEUM TO DIAGNOSE - THE GOAL OF "RHEUM TO DIAGNOSE" IS TO ADDRESS REAL WORLD BARRIERS TO AN ACCURATE AND EXPEDIENT DIAGNOSIS OF NRAXSPA IN THE RHEUMATOLOGY SETTING. THE PHYSICIANFACING CONTENT OF RHEUM TO DIAGNOSE INCLUDES A TOTAL OF SIX PRESENTATIONS FEATURING EXPERTS IN SPONDYLOARTHRITIS, GEARED TO TWO DISTINCT AUDIENCES: RHEUMATOLOGY FELLOWS, AND MEDICAL STUDENTS. ALL SIX PRESENTATIONS (THREE FOR RHEUMATOLOGY FELLOWS, AND THREE FOR MEDICAL STUDENTS) ALONG WITH A PROMOTIONAL TRAILER, ARE AVAILABLE ON SAA'S WEBSITE. | Desc |
| Field | Value | IRS element (for citing) |
|---|---|---|
| Total Other Prog Srvc Expense | $337,612 | TotalOtherProgSrvcExpenseAmt |
| Total Program Service Expenses | $2,404,713 | TotalProgramServiceExpensesAmt |
| Described In Section501c3 | Yes (1) | DescribedInSection501c3Ind |
| Schedule B Required | Yes (1) | ScheduleBRequiredInd |
| Political Campaign Acty | 0 | PoliticalCampaignActyInd |
| Lobbying Activities | 0 | LobbyingActivitiesInd |
| Subject To Proxy Tax | 0 | SubjectToProxyTaxInd |
| Donor Advised Fund | 0 | DonorAdvisedFundInd |
| Conservation Easements | 0 | ConservationEasementsInd |
| Collections Of Art | 0 | CollectionsOfArtInd |
| Credit Counseling | 0 | CreditCounselingInd |
| Donor Rstr Or Quasi Endowments | Yes (1) | DonorRstrOrQuasiEndowmentsInd |
| Report Land Building Equipment | Yes (1) | ReportLandBuildingEquipmentInd |
| Report Investments Other Sec | 0 | ReportInvestmentsOtherSecInd |
| Report Program Related Invst | 0 | ReportProgramRelatedInvstInd |
| Report Other Assets | 0 | ReportOtherAssetsInd |
| Report Other Liabilities | Yes (1) | ReportOtherLiabilitiesInd |
| Include FIN48 Footnote | Yes (1) | IncludeFIN48FootnoteInd |
| Independent Audit Fincl Stmt | Yes (1) | IndependentAuditFinclStmtInd |
| Consolidated Audit Fincl Stmt | 0 | ConsolidatedAuditFinclStmtInd |
| School Operating | 0 | SchoolOperatingInd |
| Foreign Office | 0 | ForeignOfficeInd |
| Foreign Activities | Yes (1) | ForeignActivitiesInd |
| More Than5000 K To Org | Yes (1) | MoreThan5000KToOrgInd |
| More Than5000 K To Individuals | 0 | MoreThan5000KToIndividualsInd |
| Professional Fundraising | 0 | ProfessionalFundraisingInd |
| Fundraising Activities | 0 | FundraisingActivitiesInd |
| Gaming Activities | 0 | GamingActivitiesInd |
| Operate Hospital | 0 | OperateHospitalInd |
| Grants To Organizations | Yes (1) | GrantsToOrganizationsInd |
| Grants To Individuals | 0 | GrantsToIndividualsInd |
| Schedule J Required | Yes (1) | ScheduleJRequiredInd |
| Tax Exempt Bonds | 0 | TaxExemptBondsInd |
| Engaged In Excess Benefit Trans | 0 | EngagedInExcessBenefitTransInd |
| PY Excess Benefit Trans | 0 | PYExcessBenefitTransInd |
| Loan Outstanding | 0 | LoanOutstandingInd |
| Grant To Related Person | 0 | GrantToRelatedPersonInd |
| Business Rln With Org Mem | 0 | BusinessRlnWithOrgMemInd |
| Business Rln With Fam Mem | 0 | BusinessRlnWithFamMemInd |
| Business Rln With35 Ctrl Ent | 0 | BusinessRlnWith35CtrlEntInd |
| Deductible Non Cash Contri | 0 | DeductibleNonCashContriInd |
| Deductible Art Contribution | 0 | DeductibleArtContributionInd |
| Terminate Operations | 0 | TerminateOperationsInd |
| Partial Liquidation | 0 | PartialLiquidationInd |
| Disregarded Entity | 0 | DisregardedEntityInd |
| Related Entity | 0 | RelatedEntityInd |
| Related Organization Ctrl Ent | 0 | RelatedOrganizationCtrlEntInd |
| Trnsfr Exmpt Non Chrtbl Rltd Org | 0 | TrnsfrExmptNonChrtblRltdOrgInd |
| Activities Conducted Prtshp | 0 | ActivitiesConductedPrtshpInd |
| Schedule O Required | Yes (1) | ScheduleORequiredInd |
| IRP Document | 6 | IRPDocumentCnt |
| IRP Document W2 G | 0 | IRPDocumentW2GCnt |
| Employee | 13 | EmployeeCnt |
| Employment Tax Returns Filed | Yes (1) | EmploymentTaxReturnsFiledInd |
| Unrelated Bus Incm Over Limit | 0 | UnrelatedBusIncmOverLimitInd |
| Foreign Financial Account | 0 | ForeignFinancialAccountInd |
| Prohibited Tax Shelter Trans | 0 | ProhibitedTaxShelterTransInd |
| Taxable Party Notification | 0 | TaxablePartyNotificationInd |
| Nondeductible Contributions | 0 | NondeductibleContributionsInd |
| Quid Pro Quo Contributions | 0 | QuidProQuoContributionsInd |
| Form8282 Property Disposed Of | 0 | Form8282PropertyDisposedOfInd |
| Rcv Fnds To Pay Prsnl Bnft Cntrct | 0 | RcvFndsToPayPrsnlBnftCntrctInd |
| Pay Premiums Prsnl Bnft Cntrct | 0 | PayPremiumsPrsnlBnftCntrctInd |
| Indoor Tanning Services | 0 | IndoorTanningServicesInd |
| Subj To Tax Rmnrtn Ex Prcht Pymt | 0 | SubjToTaxRmnrtnExPrchtPymtInd |
| Subject To Excs Tax Net Invst Inc | 0 | SubjectToExcsTaxNetInvstIncInd |
| Info In Schedule O Part VI | Yes (X) | InfoInScheduleOPartVIInd |
| Governing Body Voting Members | 9 | GoverningBodyVotingMembersCnt |
| Independent Voting Member | 9 | IndependentVotingMemberCnt |
| Family Or Business Rln | 0 | FamilyOrBusinessRlnInd |
| Delegation Of Mgmt Duties | 0 | DelegationOfMgmtDutiesInd |
| Change To Org Documents | 0 | ChangeToOrgDocumentsInd |
| Material Diversion Or Misuse | 0 | MaterialDiversionOrMisuseInd |
| Members Or Stockholders | 0 | MembersOrStockholdersInd |
| Election Of Board Members | 0 | ElectionOfBoardMembersInd |
| Decisions Subject To Approva | 0 | DecisionsSubjectToApprovaInd |
| Minutes Of Governing Body | Yes (1) | MinutesOfGoverningBodyInd |
| Minutes Of Committees | Yes (1) | MinutesOfCommitteesInd |
| Officer Mailing Address | 0 | OfficerMailingAddressInd |
| Local Chapters | 0 | LocalChaptersInd |
| Form990 Provided To Gvrn Body | Yes (1) | Form990ProvidedToGvrnBodyInd |
| Conflict Of Interest Policy | Yes (1) | ConflictOfInterestPolicyInd |
| Annual Disclosure Covered Prsn | Yes (1) | AnnualDisclosureCoveredPrsnInd |
| Regular Monitoring Enfrc | Yes (1) | RegularMonitoringEnfrcInd |
| Whistleblower Policy | Yes (1) | WhistleblowerPolicyInd |
| Document Retention Policy | Yes (1) | DocumentRetentionPolicyInd |
| Compensation Process CEO | Yes (1) | CompensationProcessCEOInd |
| Compensation Process Other | Yes (1) | CompensationProcessOtherInd |
| Investment In Joint Venture | 0 | InvestmentInJointVentureInd |
| States Where Copy Of Return Is Fld | CA | StatesWhereCopyOfReturnIsFldCd |
| Own Website | Yes (X) | OwnWebsiteInd |
| Other Website | Yes (X) | OtherWebsiteInd |
| Upon Request | Yes (X) | UponRequestInd |
Books In Care Of Detail BooksInCareOfDetail
Business Name BusinessName
| Field | Value | IRS element (for citing) |
|---|---|---|
| Business Name Line1 | CASSIE SHAFER | BusinessNameLine1Txt |
| Field | Value | IRS element (for citing) |
|---|---|---|
| Phone | 8188921616 | PhoneNum |
US Address USAddress
| Field | Value | IRS element (for citing) |
|---|---|---|
| Address Line1 | 16430 VENTURA BLVD SUITE 300 | AddressLine1Txt |
| City | ENCINO | CityNm |
| State Abbreviation | CA | StateAbbreviationCd |
| ZIP | 91436 | ZIPCd |
Form990 Part VII Section A Form990PartVIISectionAGrp (13 entries)
| TitleTitleTxt | Average Hours Per WeekAverageHoursPerWeekRt | Individual Trustee Or DirectorIndividualTrusteeOrDirectorInd | Reportable Comp From OrgReportableCompFromOrgAmt | Reportable Comp From Rltd OrgReportableCompFromRltdOrgAmt | Other CompensationOtherCompensationAmt | OfficerOfficerInd | Highest Compensated EmployeeHighestCompensatedEmployeeInd |
|---|---|---|---|---|---|---|---|
| CRAIG GIMBEL | |||||||
| DIRECTOR | 1.00 | Yes (X) | $0 | $0 | $0 | ||
| ERIC GOLDSTEIN | |||||||
| TREASURER | 2.00 | Yes (X) | $0 | $0 | $0 | Yes (X) | |
| ERIN ARNOLD | |||||||
| DIRECTOR | 1.00 | Yes (X) | $0 | $0 | $0 | ||
| ARNOLD M PODOLSKY | |||||||
| DIRECTOR | 1.00 | Yes (X) | $0 | $0 | $0 | ||
| JILL MILLER | |||||||
| SECRETARY | 2.00 | Yes (X) | $0 | $0 | $0 | Yes (X) | |
| MICHAEL PIANIN | |||||||
| BOARD CHAIR | 2.00 | Yes (X) | $0 | $0 | $0 | Yes (X) | |
| JOHN D REVEILLE | |||||||
| DIRECTOR | 1.00 | Yes (X) | $0 | $0 | $0 | ||
| JAMES ROSENBAUM | |||||||
| DIRECTOR | 1.00 | Yes (X) | $0 | $0 | $0 | ||
| PAULA OLSIEWSKI | |||||||
| VICE CHAIR | 2.00 | Yes (X) | $0 | $0 | $0 | Yes (X) | |
| CASSIE SHAFER | |||||||
| CHIEF EXECUTIVE OFFICER | 40.00 | $243,950 | $0 | $25,793 | Yes (X) | ||
| DIANN PETERSON | |||||||
| CHIEF PHILANTHROPY OFFICER | 40.00 | $134,611 | $0 | $20,706 | Yes (X) | ||
| RICHARD HOWARD | |||||||
| CHIEF MISSION DELIVERY OFF | 40.00 | $129,760 | $0 | $21,242 | Yes (X) | ||
| JASON BLACKWELL | |||||||
| DIRECTOR, BRAND EXPERIENCE | 40.00 | $105,169 | $0 | $14,790 | Yes (X) | ||
| Field | Value | IRS element (for citing) |
|---|---|---|
| Total Reportable Comp From Org | $613,490 | TotalReportableCompFromOrgAmt |
| Tot Reportable Comp Rltd Org | $0 | TotReportableCompRltdOrgAmt |
| Total Other Compensation | $82,531 | TotalOtherCompensationAmt |
| Indiv Rcvd Greater Than100 K | 4 | IndivRcvdGreaterThan100KCnt |
| Former Ofcr Employees Listed | 0 | FormerOfcrEmployeesListedInd |
| Total Comp Greater Than150 K | Yes (1) | TotalCompGreaterThan150KInd |
| Compensation From Other Srcs | 0 | CompensationFromOtherSrcsInd |
| Cntrct Rcvd Greater Than100 K | 0 | CntrctRcvdGreaterThan100KCnt |
| All Other Contributions | $1,948,000 | AllOtherContributionsAmt |
| Total Contributions | $1,948,000 | TotalContributionsAmt |
Program Service Revenue ProgramServiceRevenueGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Desc | PROGRAM REVENUE | Desc |
| Business | 611710 | BusinessCd |
| Total Revenue Column | $3,617 | TotalRevenueColumnAmt |
| Related Or Exempt Func Income | $3,617 | RelatedOrExemptFuncIncomeAmt |
| Field | Value | IRS element (for citing) |
|---|---|---|
| Total Program Service Revenue | $3,617 | TotalProgramServiceRevenueAmt |
Investment Income InvestmentIncomeGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Total Revenue Column | $175,863 | TotalRevenueColumnAmt |
| Exclusion | $175,863 | ExclusionAmt |
Gross Amount Sales Assets GrossAmountSalesAssetsGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Securities | $1,476,874 | SecuritiesAmt |
Less Cost Oth Basis Sales Expnss LessCostOthBasisSalesExpnssGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Securities | $1,439,245 | SecuritiesAmt |
| Other | $584 | OtherAmt |
Gain Or Loss GainOrLossGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Securities | $37,629 | SecuritiesAmt |
| Other | -$584 | OtherAmt |
Net Gain Or Loss Investments NetGainOrLossInvestmentsGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Total Revenue Column | $37,045 | TotalRevenueColumnAmt |
| Exclusion | $37,045 | ExclusionAmt |
Total Revenue TotalRevenueGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Total Revenue Column | $2,164,525 | TotalRevenueColumnAmt |
| Related Or Exempt Func Income | $3,617 | RelatedOrExemptFuncIncomeAmt |
| Unrelated Business Revenue | $0 | UnrelatedBusinessRevenueAmt |
| Exclusion | $212,908 | ExclusionAmt |
Grants To Domestic Orgs GrantsToDomesticOrgsGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Total | $349,838 | TotalAmt |
| Program Services | $349,838 | ProgramServicesAmt |
Foreign Grants ForeignGrantsGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Total | $318,638 | TotalAmt |
| Program Services | $318,638 | ProgramServicesAmt |
Comp Current Ofcr Directors CompCurrentOfcrDirectorsGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Total | $265,783 | TotalAmt |
| Program Services | $186,048 | ProgramServicesAmt |
| Management And General | $53,157 | ManagementAndGeneralAmt |
| Fundraising | $26,578 | FundraisingAmt |
Other Salaries And Wages OtherSalariesAndWagesGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Total | $1,080,769 | TotalAmt |
| Program Services | $858,706 | ProgramServicesAmt |
| Management And General | $177,238 | ManagementAndGeneralAmt |
| Fundraising | $44,825 | FundraisingAmt |
Pension Plan Contributions PensionPlanContributionsGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Total | $29,240 | TotalAmt |
| Program Services | $23,266 | ProgramServicesAmt |
| Management And General | $4,790 | ManagementAndGeneralAmt |
| Fundraising | $1,184 | FundraisingAmt |
Other Employee Benefits OtherEmployeeBenefitsGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Total | $133,979 | TotalAmt |
| Program Services | $105,142 | ProgramServicesAmt |
| Management And General | $22,504 | ManagementAndGeneralAmt |
| Fundraising | $6,333 | FundraisingAmt |
Payroll Taxes PayrollTaxesGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Total | $99,333 | TotalAmt |
| Program Services | $77,188 | ProgramServicesAmt |
| Management And General | $16,953 | ManagementAndGeneralAmt |
| Fundraising | $5,192 | FundraisingAmt |
Fees For Services Legal FeesForServicesLegalGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Total | $2,825 | TotalAmt |
| Management And General | $2,825 | ManagementAndGeneralAmt |
Fees For Services Accounting FeesForServicesAccountingGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Total | $77,829 | TotalAmt |
| Management And General | $77,829 | ManagementAndGeneralAmt |
Fees For Services Other FeesForServicesOtherGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Total | $107,567 | TotalAmt |
| Program Services | $106,957 | ProgramServicesAmt |
| Fundraising | $610 | FundraisingAmt |
Office Expenses OfficeExpensesGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Total | $108,889 | TotalAmt |
| Program Services | $70,957 | ProgramServicesAmt |
| Management And General | $36,213 | ManagementAndGeneralAmt |
| Fundraising | $1,719 | FundraisingAmt |
Information Technology InformationTechnologyGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Total | $44,202 | TotalAmt |
| Program Services | $37,902 | ProgramServicesAmt |
| Management And General | $3,825 | ManagementAndGeneralAmt |
| Fundraising | $2,475 | FundraisingAmt |
Occupancy OccupancyGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Total | $55,101 | TotalAmt |
| Program Services | $38,564 | ProgramServicesAmt |
| Management And General | $13,244 | ManagementAndGeneralAmt |
| Fundraising | $3,293 | FundraisingAmt |
Travel TravelGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Total | $106,945 | TotalAmt |
| Program Services | $99,753 | ProgramServicesAmt |
| Fundraising | $7,192 | FundraisingAmt |
Conferences Meetings ConferencesMeetingsGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Total | $42,103 | TotalAmt |
| Program Services | $42,029 | ProgramServicesAmt |
| Fundraising | $74 | FundraisingAmt |
Depreciation Depletion DepreciationDepletionGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Total | $8,126 | TotalAmt |
| Program Services | $4,856 | ProgramServicesAmt |
| Management And General | $2,120 | ManagementAndGeneralAmt |
| Fundraising | $1,150 | FundraisingAmt |
Other Expenses OtherExpensesGrp (4 entries)
| DescDesc | TotalTotalAmt | Program ServicesProgramServicesAmt | Management And GeneralManagementAndGeneralAmt | FundraisingFundraisingAmt |
|---|---|---|---|---|
| POSTAGE | $50,437 | $28,721 | $20,555 | $1,161 |
| PRINTING | $47,330 | $38,879 | $8,451 | $0 |
| WRITING AND DESIGN | $14,694 | $13,478 | $0 | $1,216 |
| STATE LICENSING | $3,791 | $3,791 |
Total Functional Expenses TotalFunctionalExpensesGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Total | $2,947,419 | TotalAmt |
| Program Services | $2,404,713 | ProgramServicesAmt |
| Management And General | $439,704 | ManagementAndGeneralAmt |
| Fundraising | $103,002 | FundraisingAmt |
Cash Non Interest Bearing CashNonInterestBearingGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| BOY | $182,551 | BOYAmt |
| EOY | $166,260 | EOYAmt |
Savings And Temp Cash Invst SavingsAndTempCashInvstGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| BOY | $6,880,996 | BOYAmt |
| EOY | $358,569 | EOYAmt |
Accounts Receivable AccountsReceivableGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| BOY | $53,250 | BOYAmt |
| EOY | $65,000 | EOYAmt |
Prepaid Expenses Defrd Charges PrepaidExpensesDefrdChargesGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| BOY | $8,990 | BOYAmt |
| EOY | $15,399 | EOYAmt |
| Field | Value | IRS element (for citing) |
|---|---|---|
| Land Bldg Equip Cost Or Other Bss | $55,733 | LandBldgEquipCostOrOtherBssAmt |
| Land Bldg Equip Accum Deprec | $35,003 | LandBldgEquipAccumDeprecAmt |
Land Bldg Equip Basis Net LandBldgEquipBasisNetGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| BOY | $21,938 | BOYAmt |
| EOY | $20,730 | EOYAmt |
Investments Pub Traded Sec InvestmentsPubTradedSecGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| BOY | $320,327 | BOYAmt |
| EOY | $6,262,217 | EOYAmt |
Other Assets Total OtherAssetsTotalGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| BOY | $153,493 | BOYAmt |
| EOY | $107,659 | EOYAmt |
Total Assets TotalAssetsGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| BOY | $7,621,545 | BOYAmt |
| EOY | $6,995,834 | EOYAmt |
Accounts Payable Accr Expnss AccountsPayableAccrExpnssGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| BOY | $260,497 | BOYAmt |
| EOY | $411,684 | EOYAmt |
Other Liabilities OtherLiabilitiesGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| BOY | $154,204 | BOYAmt |
| EOY | $108,763 | EOYAmt |
Total Liabilities TotalLiabilitiesGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| BOY | $414,701 | BOYAmt |
| EOY | $520,447 | EOYAmt |
| Field | Value | IRS element (for citing) |
|---|---|---|
| Organization Follows FASB117 | Yes (X) | OrganizationFollowsFASB117Ind |
No Donor Restriction Net Assets NoDonorRestrictionNetAssetsGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| BOY | $4,379,051 | BOYAmt |
| EOY | $4,179,774 | EOYAmt |
Donor Restriction Net Assets DonorRestrictionNetAssetsGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| BOY | $2,827,793 | BOYAmt |
| EOY | $2,295,613 | EOYAmt |
Total Net Assets Fund Balance TotalNetAssetsFundBalanceGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| BOY | $7,206,844 | BOYAmt |
| EOY | $6,475,387 | EOYAmt |
Tot Liab Net Assets Fund Balance TotLiabNetAssetsFundBalanceGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| BOY | $7,621,545 | BOYAmt |
| EOY | $6,995,834 | EOYAmt |
| Field | Value | IRS element (for citing) |
|---|---|---|
| Reconcilation Revenue Expnss | -$782,894 | ReconcilationRevenueExpnssAmt |
| Net Unrlzd Gains Losses Invst | $51,437 | NetUnrlzdGainsLossesInvstAmt |
| Other Changes In Net Assets | $0 | OtherChangesInNetAssetsAmt |
| Info In Schedule O Part XII | Yes (X) | InfoInScheduleOPartXIIInd |
| Method Of Accounting Accrual | Yes (X) | MethodOfAccountingAccrualInd |
| Accountant Compile Or Review | 0 | AccountantCompileOrReviewInd |
| FS Audited | Yes (1) | FSAuditedInd |
FS Audited Basis FSAuditedBasisGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Separate Basis Fincl Stmt | Yes (X) | SeparateBasisFinclStmtInd |
| Field | Value | IRS element (for citing) |
|---|---|---|
| Audit Committee | Yes (1) | AuditCommitteeInd |
| Federal Grant Audit Required | 0 | FederalGrantAuditRequiredInd |
Schedule A IRS990ScheduleA
| Field | Value | IRS element (for citing) |
|---|---|---|
| Public Organization170 | Yes (X) | PublicOrganization170Ind |
Gifts Grants Contri Rcvd170 GiftsGrantsContriRcvd170Grp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Current Tax Year Minus4 Years | $5,505,466 | CurrentTaxYearMinus4YearsAmt |
| Current Tax Year Minus3 Years | $2,200,809 | CurrentTaxYearMinus3YearsAmt |
| Current Tax Year Minus2 Years | $2,545,839 | CurrentTaxYearMinus2YearsAmt |
| Current Tax Year Minus1 Year | $1,602,575 | CurrentTaxYearMinus1YearAmt |
| Current Tax Year | $1,948,000 | CurrentTaxYearAmt |
| Total | $13,802,689 | TotalAmt |
Total Calendar Year170 TotalCalendarYear170Grp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Current Tax Year Minus4 Years | $5,505,466 | CurrentTaxYearMinus4YearsAmt |
| Current Tax Year Minus3 Years | $2,200,809 | CurrentTaxYearMinus3YearsAmt |
| Current Tax Year Minus2 Years | $2,545,839 | CurrentTaxYearMinus2YearsAmt |
| Current Tax Year Minus1 Year | $1,602,575 | CurrentTaxYearMinus1YearAmt |
| Current Tax Year | $1,948,000 | CurrentTaxYearAmt |
| Total | $13,802,689 | TotalAmt |
| Field | Value | IRS element (for citing) |
|---|---|---|
| Substantial Contributors Tot | $5,666,746 | SubstantialContributorsTotAmt |
| Public Support Total170 | $8,135,943 | PublicSupportTotal170Amt |
Gross Investment Income170 GrossInvestmentIncome170Grp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Current Tax Year Minus4 Years | $51,298 | CurrentTaxYearMinus4YearsAmt |
| Current Tax Year Minus3 Years | $142,607 | CurrentTaxYearMinus3YearsAmt |
| Current Tax Year Minus2 Years | $222,426 | CurrentTaxYearMinus2YearsAmt |
| Current Tax Year Minus1 Year | $388,355 | CurrentTaxYearMinus1YearAmt |
| Current Tax Year | $264,300 | CurrentTaxYearAmt |
| Total | $1,068,986 | TotalAmt |
| Field | Value | IRS element (for citing) |
|---|---|---|
| Total Support | $14,871,675 | TotalSupportAmt |
| Gross Receipts Rltd Activities | $32,876 | GrossReceiptsRltdActivitiesAmt |
| Public Support CY170 | 0.54710 | PublicSupportCY170Pct |
| Public Support PY170 | 0.50750 | PublicSupportPY170Pct |
| Thirty Thr Pct Suprt Tests CY170 | Yes (X) | ThirtyThrPctSuprtTestsCY170Ind |
Schedule B IRS990ScheduleB
Contributor Information ContributorInformationGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Contributor | RESTRICTED | ContributorNum |
Contributor Business Name ContributorBusinessName
| Field | Value | IRS element (for citing) |
|---|---|---|
| Business Name Line1 | RESTRICTED | BusinessNameLine1 |
Contributor US Address ContributorUSAddress
| Field | Value | IRS element (for citing) |
|---|---|---|
| Address Line1 | RESTRICTED | AddressLine1 |
| Address Line2 | RESTRICTED | AddressLine2 |
| City | RESTRICTED | City |
| State | RESTRICTED | State |
| ZIP Code | RESTRICTED | ZIPCode |
| Field | Value | IRS element (for citing) |
|---|---|---|
| Total Contributions | RESTRICTED | TotalContributionsAmt |
Schedule D IRS990ScheduleD
CY Endwmt Fund CYEndwmtFundGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Beginning Year Balance | $341,548 | BeginningYearBalanceAmt |
| Contributions | $10,000 | ContributionsAmt |
| Investment Earnings Or Losses | $40,979 | InvestmentEarningsOrLossesAmt |
| Grants Or Scholarships | $100,479 | GrantsOrScholarshipsAmt |
| End Year Balance | $292,048 | EndYearBalanceAmt |
CY Minus1 Yr Endwmt Fund CYMinus1YrEndwmtFundGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Beginning Year Balance | $335,682 | BeginningYearBalanceAmt |
| Investment Earnings Or Losses | $34,352 | InvestmentEarningsOrLossesAmt |
| Grants Or Scholarships | $28,486 | GrantsOrScholarshipsAmt |
| End Year Balance | $341,548 | EndYearBalanceAmt |
CY Minus2 Yr Endwmt Fund CYMinus2YrEndwmtFundGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Beginning Year Balance | $304,143 | BeginningYearBalanceAmt |
| Investment Earnings Or Losses | $31,539 | InvestmentEarningsOrLossesAmt |
| End Year Balance | $335,682 | EndYearBalanceAmt |
CY Minus3 Yr Endwmt Fund CYMinus3YrEndwmtFundGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Beginning Year Balance | $275,277 | BeginningYearBalanceAmt |
| Investment Earnings Or Losses | $28,866 | InvestmentEarningsOrLossesAmt |
| End Year Balance | $304,143 | EndYearBalanceAmt |
CY Minus4 Yr Endwmt Fund CYMinus4YrEndwmtFundGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Beginning Year Balance | $320,692 | BeginningYearBalanceAmt |
| Investment Earnings Or Losses | -$45,415 | InvestmentEarningsOrLossesAmt |
| End Year Balance | $275,277 | EndYearBalanceAmt |
| Field | Value | IRS element (for citing) |
|---|---|---|
| Board Designated Balance EOY | 1.00000 | BoardDesignatedBalanceEOYPct |
| Endowments Held Unrelated Org | 0 | EndowmentsHeldUnrelatedOrgInd |
| Endowments Held Related Org | 0 | EndowmentsHeldRelatedOrgInd |
Equipment EquipmentGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Other Cost Or Other Basis | $44,640 | OtherCostOrOtherBasisAmt |
| Depreciation | $24,152 | DepreciationAmt |
| Book Value | $20,488 | BookValueAmt |
Other Land Buildings OtherLandBuildingsGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Other Cost Or Other Basis | $11,093 | OtherCostOrOtherBasisAmt |
| Depreciation | $10,851 | DepreciationAmt |
| Book Value | $242 | BookValueAmt |
| Field | Value | IRS element (for citing) |
|---|---|---|
| Total Book Value Land Buildings | $20,730 | TotalBookValueLandBuildingsAmt |
Other Liabilities Org OtherLiabilitiesOrgGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Desc | OPERATING LEASE LIABILITY | Desc |
| Amt | $108,763 | Amt |
| Field | Value | IRS element (for citing) |
|---|---|---|
| Total Liability | $108,763 | TotalLiabilityAmt |
| Footnote Text | Yes (X) | FootnoteTextInd |
| Total Rev Etc Audited Fincl Stmt | $2,216,462 | TotalRevEtcAuditedFinclStmtAmt |
| Net Unrealized Gains Invst | $51,437 | NetUnrealizedGainsInvstAmt |
| Donated Services And Use Fclts | $500 | DonatedServicesAndUseFcltsAmt |
| Revenue Not Reported | $51,937 | RevenueNotReportedAmt |
| Revenue Subtotal | $2,164,525 | RevenueSubtotalAmt |
| Revenue Not Reported Fincl Stmt | $0 | RevenueNotReportedFinclStmtAmt |
| Total Revenue Per Form990 | $2,164,525 | TotalRevenuePerForm990Amt |
| Tot Expns Etc Audited Fincl Stmt | $2,947,919 | TotExpnsEtcAuditedFinclStmtAmt |
| Donated Services Use Fclts | $500 | DonatedServicesUseFcltsAmt |
| Expenses Not Reported | $500 | ExpensesNotReportedAmt |
| Expenses Subtotal | $2,947,419 | ExpensesSubtotalAmt |
| Expenses Not Rpt Fincl Stmt | $0 | ExpensesNotRptFinclStmtAmt |
| Total Expenses Per Form990 | $2,947,419 | TotalExpensesPerForm990Amt |
Supplemental Information Detail SupplementalInformationDetail
| Field | Value | IRS element (for citing) |
|---|---|---|
| Form And Line Reference | PART X, LINE 2: | FormAndLineReferenceDesc |
| Explanation | ACCOUNTING STANDARDS REQUIRE AN ORGANIZATION TO EVALUATE ITS TAX POSITIONS AND PROVIDE FOR A LIABILITY FOR ANY POSITIONS THAT WOULD NOT BE CONSIDERED 'MORE LIKELY THAN NOT' TO BE UPHELD UNDER A TAX AUTHORITY EXAMINATION. MANAGEMENT HAS EVALUATED ITS TAX POSITIONS AND HAS CONCLUDED THAT A PROVISION FOR A TAX LIABILITY IS NOT NECESSARY AT JUNE 30, 2026. GENERALLY, THE ORGANIZATION'S INFORMATION RETURNS REMAIN OPEN FOR EXAMINATION FOR A PERIOD OF THREE (FEDERAL) OR FOUR (STATE OF CALIFORNIA) YEARS FROM THE DATE OF FILING. | ExplanationTxt |
Schedule F IRS990ScheduleF
| Field | Value | IRS element (for citing) |
|---|---|---|
| Grant Records Maintained | Yes (1) | GrantRecordsMaintainedInd |
Account Activities Outside US AccountActivitiesOutsideUSGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Region | NORTH AMERICA | RegionTxt |
| Offices | 0 | OfficesCnt |
| Employee | 0 | EmployeeCnt |
| Type Of Activities Conducted | PROGRAM SERVICES | TypeOfActivitiesConductedTxt |
| Specific Services Provided | RESEARCH GRANTS AWARDED | SpecificServicesProvidedTxt |
| Region Total Expenditures | $318,638 | RegionTotalExpendituresAmt |
| Field | Value | IRS element (for citing) |
|---|---|---|
| Subtotal Offices | 0 | SubtotalOfficesCnt |
| Subtotal Employees | 0 | SubtotalEmployeesCnt |
| Continuation Total Office | 0 | ContinuationTotalOfficeCnt |
| Continuation Total Employee | 0 | ContinuationTotalEmployeeCnt |
| Total Office | 0 | TotalOfficeCnt |
| Total Employee | 0 | TotalEmployeeCnt |
| Subtotal Spent | $318,638 | SubtotalSpentAmt |
| Continuation Spent | $0 | ContinuationSpentAmt |
| Total Spent | $318,638 | TotalSpentAmt |
Grants To Org Outside US GrantsToOrgOutsideUSGrp (2 entries)
| RegionRegionTxt | Purpose Of GrantPurposeOfGrantTxt | Cash GrantCashGrantAmt | Manner Of Cash DisbursementMannerOfCashDisbursementTxt | Non Cash AssistanceNonCashAssistanceAmt |
|---|---|---|---|---|
| NORTH AMERICA | DR. HAROON "MATERNAL MORBIDITY IN AXIAL SA" | $118,638 | CASH PAYMENT | $0 |
| NORTH AMERICA | DR. INMAN "EXOSOMAL MICRORNA TREATMENT" | $200,000 | CASH PAYMENT | $0 |
| Field | Value | IRS element (for citing) |
|---|---|---|
| Total501c3 Org | 1 | Total501c3OrgCnt |
| Transfer To Foreign Corp | 0 | TransferToForeignCorpInd |
| Interest In Foreign Trust | 0 | InterestInForeignTrustInd |
| Foreign Corp Ownership | 0 | ForeignCorpOwnershipInd |
| Passive Foreign Investmest Co | 0 | PassiveForeignInvestmestCoInd |
| Foreign Partnership | 0 | ForeignPartnershipInd |
| Boycott Countries | 0 | BoycottCountriesInd |
Supplemental Information Detail SupplementalInformationDetail
| Field | Value | IRS element (for citing) |
|---|---|---|
| Form And Line Reference | PART I, LINE 2: | FormAndLineReferenceDesc |
| Explanation | GRANT FUNDS REQUIRE REPORTING FEEDBACK INCLUDING RESEARCH FINDINGS. | ExplanationTxt |
Schedule I IRS990ScheduleI
| Field | Value | IRS element (for citing) |
|---|---|---|
| Grant Records Maintained | Yes (1) | GrantRecordsMaintainedInd |
Recipient Table RecipientTable (6 entries)
| Address Line1USAddress/AddressLine1Txt | CityUSAddress/CityNm | State AbbreviationUSAddress/StateAbbreviationCd | ZIPUSAddress/ZIPCd | Recipient EINRecipientEIN | IRC SectionIRCSectionDesc | Cash GrantCashGrantAmt | Non Cash AssistanceNonCashAssistanceAmt | Purpose Of GrantPurposeOfGrantTxt |
|---|---|---|---|---|---|---|---|---|
| AMERICAN COLLEGE OF RHEUMATOLOGY | ||||||||
| 200 LAKE BLVD NE | ATLANTA | GA | 30319 | 581627547 | 501C3 | $50,000 | $0 | TREATMENT GUIDELINES |
| HACKENSACK MERIDIAN HEALTH | ||||||||
| 111 IDEATION WAY | NUTLEY | NJ | 07110 | 221487576 | 501C3 | $30,000 | $0 | DR. ADAM MAYER ECI AWARD |
| OREGON HEALTH & SCIENCE UNIVERSITY FOUND | ||||||||
| 3181 SW SAM JACKSON PARK ROAD | PORTLAND | OR | 97539 | 237083114 | $30,000 | $0 | DR. BITTAR ECI AWARD | |
| THE REGENTS OF THE UNIVERSITY OF MICHIGAN | ||||||||
| 24 FRANK LLOYD WRIGHT DRIVE 3100 | ANN ARBOR | IL | 48105 | 386006309 | $109,840 | $0 | RESILIENCE-BUILDING ENERGY MNGM INTERV. (DR. MURPHY) | |
| UC REGENTS | ||||||||
| 1650 OWENS STREET 5TH FLOOR BAY 5B | SAN FRANCISCO | CA | 94158 | 946036493 | $30,000 | $0 | DR. MENGWASSER ECI AWARD | |
| WASHINGTON UNIVERSITY SCHOOL OF MEDICINE | ||||||||
| 660 S EUCLID AVE | ST LOUIS | MO | 63110 | 430653611 | 501C3 | $99,998 | $0 | DR. PALEY "DEFINING INTESTINAL ORIGINS OF AXIAL SA" |
| Field | Value | IRS element (for citing) |
|---|---|---|
| Total501c3 Org | 6 | Total501c3OrgCnt |
Supplemental Information Detail SupplementalInformationDetail
| Field | Value | IRS element (for citing) |
|---|---|---|
| Form And Line Reference | PART I, LINE 2: | FormAndLineReferenceDesc |
| Explanation | RESEARCHERS ARE REQUIRED TO PROVIDE THE ORGANIZATION WITH PROGRESS REPORTS BASED ON A VARIETY OF MILESTONES INDIVIDUAL TO EACH STUDY, AND TO ENSURE THAT ANY PUBLICATION IN PEER REVIEW ACKNOWLEDGES THE ORGANIZATION'S FUNDING SUPPORT TOWARD THE EFFORT. | ExplanationTxt |
Schedule J IRS990ScheduleJ
| Field | Value | IRS element (for citing) |
|---|---|---|
| Board Or Committee Approval | Yes (X) | BoardOrCommitteeApprovalInd |
| Severance Payment | 0 | SeverancePaymentInd |
| Supplemental Nonqual Rtr Plan | 0 | SupplementalNonqualRtrPlanInd |
| Equity Based Comp Arrngm | 0 | EquityBasedCompArrngmInd |
| Comp Based On Revenue Of Flng Org | 0 | CompBasedOnRevenueOfFlngOrgInd |
| Comp Bsd On Rev Related Orgs | 0 | CompBsdOnRevRelatedOrgsInd |
| Comp Bsd Net Earns Flng Org | 0 | CompBsdNetEarnsFlngOrgInd |
| Comp Bsd Net Earns Rltd Orgs | 0 | CompBsdNetEarnsRltdOrgsInd |
| Any Non Fixed Payments | 0 | AnyNonFixedPaymentsInd |
| Initial Contract Exception | 0 | InitialContractExceptionInd |
Rltd Org Officer Trst Key Empl RltdOrgOfficerTrstKeyEmplGrp (3 entries)
| TitleTitleTxt | Base Compensation Filing OrgBaseCompensationFilingOrgAmt | Compensation Based On Rltd OrgsCompensationBasedOnRltdOrgsAmt | Bonus Filing OrganizationBonusFilingOrganizationAmount | Bonus Related OrganizationsBonusRelatedOrganizationsAmt | Other Compensation Filing OrgOtherCompensationFilingOrgAmt | Other Compensation Rltd OrgsOtherCompensationRltdOrgsAmt | Deferred Compensation Flng OrgDeferredCompensationFlngOrgAmt | Deferred Comp Rltd OrgsDeferredCompRltdOrgsAmt | Nontaxable Benefits Filing OrgNontaxableBenefitsFilingOrgAmt | Nontaxable Benefits Rltd OrgsNontaxableBenefitsRltdOrgsAmt | Total Compensation Filing OrgTotalCompensationFilingOrgAmt | Total Compensation Rltd OrgsTotalCompensationRltdOrgsAmt | Comp Report Prior990 Filing OrgCompReportPrior990FilingOrgAmt | Comp Report Prior990 Rltd OrgsCompReportPrior990RltdOrgsAmt |
|---|---|---|---|---|---|---|---|---|---|---|---|---|---|---|
| CASSIE SHAFER | ||||||||||||||
| CHIEF EXECUTIVE OFFICER | $243,950 | $0 | $0 | $0 | $0 | $0 | $7,320 | $0 | $18,473 | $0 | $269,743 | $0 | $0 | $0 |
| DIANN PETERSON | ||||||||||||||
| CHIEF PHILANTHROPY OFFICER | $134,611 | $0 | $0 | $0 | $0 | $0 | $4,080 | $0 | $16,626 | $0 | $155,317 | $0 | $0 | $0 |
| RICHARD HOWARD | ||||||||||||||
| CHIEF MISSION DELIVERY OFF | $129,760 | $0 | $0 | $0 | $0 | $0 | $4,356 | $0 | $16,886 | $0 | $151,002 | $0 | $0 | $0 |
Schedule O IRS990ScheduleO
Supplemental Information Detail SupplementalInformationDetail (5 entries)
| Form And Line ReferenceFormAndLineReferenceDesc | ExplanationExplanationTxt |
|---|---|
| FORM 990, PART VI, SECTION B, LINE 11B | THE AUDIT COMMITTEE REVIEWS THE DOCUMENT PRIOR TO ITS DISTRIBUTION TO THE ENTIRE BOARD FOR REVIEW. |
| FORM 990, PART VI, SECTION B, LINE 12C | ALL DIRECTORS AND SENIOR EMPLOYEES ARE REQUIRED TO COMPLETE AND SIGN A DISCLOSURE FORM LISTING ANY POTENTIAL CONFLICTS OF INTEREST BY SEPTEMBER 30, ANNUALLY. |
| FORM 990, PART VI, SECTION B, LINE 15 | THE ORGANIZATION UTILIZES CURRENT COMPENSATION DATA PUBLISHED BY THE NATIONAL HEALTH COUNCIL AND THE AMERICAN SOCIETY OF ASSOCIATION EXECUTIVES, AND OTHER FACTORS IN ORDER TO DETERMINE COMPENSATION. |
| FORM 990, PART VI, SECTION C, LINE 19 | THE ORGANIZATION PRODUCES AN ANNUAL REPORT THAT IS PUBLISHED ON ITS WEBSITE |
| FORM 990, PART XII, LINE 2C | THE ORGANIZATION'S AUDIT COMMITTEE HAS RESPONSIBILITY FOR THE OVERSIGHT OF THE AUDIT OF ITS FINANCIAL STATEMENTS AND SELECTION OF THE INDEPENDENT AUDITOR, SUBJECT TO THE APPROVAL OF THE BOARD OF DIRECTORS. THIS RESPONSIBILITY IS UNCHANGED FROM THE PRIOR YEAR. |
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