SPONDYLITIS ASSOCIATION OF AMERICA: Form 990, tax year 2015

View the entire original 990 at ProPublica ↗

Organization
SPONDYLITIS ASSOCIATION OF AMERICA (EIN 95-3890767)
Tax period
2015-07-01 to 2016-06-30
Filed
2016-11-22
IRS object ID
201613279349301006
Schema version
2015v2.1
Source
Download XML · Original 990 at ProPublica

Every field in the e-filed return. Faint text is the IRS element name, for citing.

Return header ReturnHeader

FieldValueIRS element (for citing)
Return2016-11-22T17:01:53-06:00ReturnTs
Tax Period End2016-06-30TaxPeriodEndDt

Preparer Firm PreparerFirmGrp

FieldValueIRS element (for citing)
Preparer Firm EIN946214841PreparerFirmEIN

Preparer Firm Name PreparerFirmName

FieldValueIRS element (for citing)
Business Name Line1Armanino LLPBusinessNameLine1Txt

Preparer US Address PreparerUSAddress

FieldValueIRS element (for citing)
Address Line111766 Wilshire Blvd 9th FloorAddressLine1Txt
CityLos AngelesCityNm
State AbbreviationCAStateAbbreviationCd
ZIP90025ZIPCd
FieldValueIRS element (for citing)
Return Type990ReturnTypeCd
Tax Period Begin2015-07-01TaxPeriodBeginDt

Filer Filer

FieldValueIRS element (for citing)
EIN953890767EIN

Business Name BusinessName

FieldValueIRS element (for citing)
Business Name Line1SPONDYLITIS ASSOCIATION OF AMERICABusinessNameLine1Txt
FieldValueIRS element (for citing)
Business Name ControlSPONBusinessNameControlTxt
Phone8188921616PhoneNum

US Address USAddress

FieldValueIRS element (for citing)
Address Line116360 ROSCOE BLVD No 100AddressLine1Txt
CityVAN NUYSCityNm
State AbbreviationCAStateAbbreviationCd
ZIP91406ZIPCd

Business Officer BusinessOfficerGrp

FieldValueIRS element (for citing)
PersonLAURIE SAVAGEPersonNm
Person TitleCEOPersonTitleTxt
Phone8188921616PhoneNum
Signature2016-11-22SignatureDt
Discuss With Paid PreparerYes (1)DiscussWithPaidPreparerInd

Preparer Person PreparerPersonGrp

FieldValueIRS element (for citing)
Preparer PersonThomas SchultePreparerPersonNm
PTINP00637812PTIN
Phone3104784148PhoneNum
FieldValueIRS element (for citing)
Tax2015TaxYr
Build TS2017-02-10 21:41:12ZBuildTS

Form 990 IRS990

FieldValueIRS element (for citing)
Principal OfficerLAURIE SAVAGEPrincipalOfficerNm

US Address USAddress

FieldValueIRS element (for citing)
Address Line116360 ROSCOE BLVD No 100AddressLine1Txt
CityVAN NUYSCityNm
State AbbreviationCAStateAbbreviationCd
ZIP91406ZIPCd
FieldValueIRS element (for citing)
Gross Receipts$1,367,756GrossReceiptsAmt
Group Return For Affiliates0GroupReturnForAffiliatesInd
Organization501c3Yes (X)Organization501c3Ind
Website Addresswww.spondylitis.orgWebsiteAddressTxt
Type Of Organization CorpYes (X)TypeOfOrganizationCorpInd
Formation1983FormationYr
Legal Domicile StateCALegalDomicileStateCd
Activity Or MissionAdvancing research, accelerated diagnosis, optimum treatment, and public and health care professional education in Spondyloarthritis.ActivityOrMissionDesc
Voting Members Governing Body9VotingMembersGoverningBodyCnt
Voting Members Independent9VotingMembersIndependentCnt
Total Employee9TotalEmployeeCnt
Total Volunteers455TotalVolunteersCnt
Total Gross UBI$0TotalGrossUBIAmt
Net Unrelated Bus Txbl Incm$0NetUnrelatedBusTxblIncmAmt
PY Contributions Grants$1,776,812PYContributionsGrantsAmt
CY Contributions Grants$1,334,632CYContributionsGrantsAmt
PY Program Service Revenue$17,201PYProgramServiceRevenueAmt
CY Program Service Revenue$8,551CYProgramServiceRevenueAmt
PY Investment Income$17,690PYInvestmentIncomeAmt
CY Investment Income$24,573CYInvestmentIncomeAmt
PY Other Revenue$0PYOtherRevenueAmt
CY Other Revenue$0CYOtherRevenueAmt
PY Total Revenue$1,811,703PYTotalRevenueAmt
CY Total Revenue$1,367,756CYTotalRevenueAmt
PY Grants And Similar Paid$135,000PYGrantsAndSimilarPaidAmt
CY Grants And Similar Paid$60,000CYGrantsAndSimilarPaidAmt
PY Benefits Paid To Members$0PYBenefitsPaidToMembersAmt
CY Benefits Paid To Members$0CYBenefitsPaidToMembersAmt
PY Salaries Comp Emp Bnft Paid$646,338PYSalariesCompEmpBnftPaidAmt
CY Salaries Comp Emp Bnft Paid$647,364CYSalariesCompEmpBnftPaidAmt
PY Total Prof Fndrsng Expns$0PYTotalProfFndrsngExpnsAmt
CY Total Prof Fndrsng Expns$0CYTotalProfFndrsngExpnsAmt
CY Total Fundraising Expense$79,008CYTotalFundraisingExpenseAmt
PY Other Expenses$525,576PYOtherExpensesAmt
CY Other Expenses$648,720CYOtherExpensesAmt
PY Total Expenses$1,306,914PYTotalExpensesAmt
CY Total Expenses$1,356,084CYTotalExpensesAmt
PY Revenues Less Expenses$504,789PYRevenuesLessExpensesAmt
CY Revenues Less Expenses$11,672CYRevenuesLessExpensesAmt
Total Assets BOY$2,234,186TotalAssetsBOYAmt
Total Assets EOY$2,309,459TotalAssetsEOYAmt
Total Liabilities BOY$32,896TotalLiabilitiesBOYAmt
Total Liabilities EOY$92,508TotalLiabilitiesEOYAmt
Net Assets Or Fund Balances BOY$2,201,290NetAssetsOrFundBalancesBOYAmt
Net Assets Or Fund Balances EOY$2,216,951NetAssetsOrFundBalancesEOYAmt
Info In Schedule O Part IIIYes (X)InfoInScheduleOPartIIIInd
MissionAdvancing and directly sponsoring Axial Spondylarthritis research, accelerating diagnosis, supporting optimum treatment for the individual, advancing awareness, and public and health care professional education in Axial Spondyloarthritis.MissionDesc
Significant New Program Srvc0SignificantNewProgramSrvcInd
Significant Change0SignificantChangeInd
Expense$766,233ExpenseAmt
Revenue$8,551RevenueAmt
DescPATIENT CONFERENCES, EDUCATION AND SUPPORT: THE AGENCY SPONSORED PATIENT EDUCATIONAL AND SUPPORT PROGRAMS THROUGH THE USE OF VARIOUS MEDIA. THE INTERACTIVE WEBSITE AT STOPAS.ORG SERVES 400,000 UNIQUE VISITORS PER QUARTER BASED ON GOOGLE ANALYTICS REPORTS. THE AGENCY SUPPORTS PATIENT EDUCATION IN SPONDYLOARTHRITIS DISEASE MANAGEMENT THROUGH IS TEEN WEBSITE (SWIFT); PUBLIC ELECTRONIC MESSAGES BOARDS; A SELF MANAGEMENT ACTION GUIDE; BOOKS; PAMPHLETS; BROCHURES; INSTRUCTIVE EXERCISE MATERIALS; HEALTH FAIRS; SOCIAL MEDIA; AND A NETWORK OF VOLUNTEER RUN SUPPORT AND EDUCATIONAL WORKSHOP GROUPS SPREAD OVER 29 STATES. THE AGENCY ALSO SPONSORED AND HOSTS SEVERAL IN PERSON PATIENT EDUCATIONAL SYMPOSIA EVERY YEAR BRINGING IN HIGHLY RESPECTED CLINICAL RESEARCHERS FOR ONE AND ONE INTERACTION WITH ATTENDEES. THE AGENCY ALSO COLLABORATES WITH INDUSTRY, ACADEMIA AND GOVERNMENT TO PRODUCE EDUCATIONAL MATERIALS FOR THE PUBLIC THAT ARE DISTRIBUTED BY VARIOUS MEANS BY THESE AGENCIES.Desc

Prog Srvc Accom Acty2 ProgSrvcAccomActy2Grp

FieldValueIRS element (for citing)
Expense$230,773ExpenseAmt
Revenue$0RevenueAmt
DescPHYSICIANS EDUCATION: THE AGENCY PRESENTED A CUTTING-EDGE, HIGH TECH, HANDS-ON WORKSHOP DESIGNED TO TRAIN RHEUMATOLOGISTS AND RADIOLOGISTS IN THE DIAGNOSIS OF AXSPA USING DICOM 3D IMAGING ON INDIVIDUAL CASE STUDY PRELOADED LAPTOPS. THE OBJECTIVE OF THIS CME COURSE WAS TO ACCELERATE DIAGNOSIS BY TEACHING PHYSICIANS TO RECOGNIZE THE EARLY CLINICAL SIGNS OF AXSPA AND THEN TO ORDER THE CORRECT IMAGING TO CONFIRM THE DIAGNOSIS. FUTURE PROGRAMS ARE PLANNED FOR 2016.Desc

Prog Srvc Accom Acty3 ProgSrvcAccomActy3Grp

FieldValueIRS element (for citing)
Expense$79,356ExpenseAmt
Grant$60,000GrantAmt
DescEARLY INVESTIGATOR'S AWARD: THE EARLY INVESTIGATOR AWARD SEEKS OUT TO IDENTIFY THOSE WHOM ALREADY HAVE DEMONSTRATED A BODY OF WORK IN AXIAL SPONDYLOARTHRITIS AND TO CONTINUE SUPPORT THAT WORK UP TO AN ASSISTANCE PROFESSORSHIP LEVEL OF ACHIEVEMENT LEVEL.Desc
FieldValueIRS element (for citing)
Total Program Service Expenses$1,076,362TotalProgramServiceExpensesAmt
Described In Section501c3Yes (1)DescribedInSection501c3Ind
Schedule B RequiredYes (1)ScheduleBRequiredInd
Political Campaign Acty0PoliticalCampaignActyInd
Lobbying Activities0LobbyingActivitiesInd
Subject To Proxy Tax0SubjectToProxyTaxInd
Donor Advised Fund0DonorAdvisedFundInd
Conservation Easements0ConservationEasementsInd
Collections Of Art0CollectionsOfArtInd
Credit Counseling0CreditCounselingInd
Temp Or Permanent Endowments0TempOrPermanentEndowmentsInd
Report Land Building EquipmentYes (1)ReportLandBuildingEquipmentInd
Report Investments Other SecYes (1)ReportInvestmentsOtherSecInd
Report Program Related Invst0ReportProgramRelatedInvstInd
Report Other Assets0ReportOtherAssetsInd
Report Other Liabilities0ReportOtherLiabilitiesInd
Include FIN48 Footnote0IncludeFIN48FootnoteInd
Independent Audit Fincl StmtYes (1)IndependentAuditFinclStmtInd
Consolidated Audit Fincl Stmt0ConsolidatedAuditFinclStmtInd
School Operating0SchoolOperatingInd
Foreign Office0ForeignOfficeInd
Foreign Activities0ForeignActivitiesInd
More Than5000 K To Org0MoreThan5000KToOrgInd
More Than5000 K To Individuals0MoreThan5000KToIndividualsInd
Professional Fundraising0ProfessionalFundraisingInd
Fundraising Activities0FundraisingActivitiesInd
Gaming Activities0GamingActivitiesInd
Operate Hospital0OperateHospitalInd
Grants To OrganizationsYes (1)GrantsToOrganizationsInd
Grants To Individuals0GrantsToIndividualsInd
Schedule J Required0ScheduleJRequiredInd
Tax Exempt Bonds0TaxExemptBondsInd
Engaged In Excess Benefit Trans0EngagedInExcessBenefitTransInd
PY Excess Benefit Trans0PYExcessBenefitTransInd
Loan Outstanding0LoanOutstandingInd
Grant To Related Person0GrantToRelatedPersonInd
Business Rln With Org Mem0BusinessRlnWithOrgMemInd
Business Rln With Fam Mem0BusinessRlnWithFamMemInd
Business Rln With Officer Ent0BusinessRlnWithOfficerEntInd
Deductible Non Cash Contri0DeductibleNonCashContriInd
Deductible Art Contribution0DeductibleArtContributionInd
Terminate Operations0TerminateOperationsInd
Partial Liquidation0PartialLiquidationInd
Disregarded Entity0DisregardedEntityInd
Related Entity0RelatedEntityInd
Related Organization Ctrl Ent0RelatedOrganizationCtrlEntInd
Trnsfr Exmpt Non Chrtbl Rltd Org0TrnsfrExmptNonChrtblRltdOrgInd
Activities Conducted Prtshp0ActivitiesConductedPrtshpInd
Schedule O RequiredYes (1)ScheduleORequiredInd
IRP Document7IRPDocumentCnt
IRP Document W2 G0IRPDocumentW2GCnt
Backup Wthld ComplianceYes (1)BackupWthldComplianceInd
Employee9EmployeeCnt
Employment Tax Returns FiledYes (1)EmploymentTaxReturnsFiledInd
Unrelated Bus Incm Over Limit0UnrelatedBusIncmOverLimitInd
Foreign Financial Account0ForeignFinancialAccountInd
Prohibited Tax Shelter Trans0ProhibitedTaxShelterTransInd
Taxable Party Notification0TaxablePartyNotificationInd
Nondeductible Contributions0NondeductibleContributionsInd
Quid Pro Quo Contributions0QuidProQuoContributionsInd
Form8282 Property Disposed Of0Form8282PropertyDisposedOfInd
Rcv Fnds To Pay Prsnl Bnft Cntrct0RcvFndsToPayPrsnlBnftCntrctInd
Pay Premiums Prsnl Bnft Cntrct0PayPremiumsPrsnlBnftCntrctInd
Form8899 Filedind0Form8899Filedind
Form1098 C Filed0Form1098CFiledInd
DAF Excess Business Holdings0DAFExcessBusinessHoldingsInd
Taxable Distributions0TaxableDistributionsInd
Distribution To Donor0DistributionToDonorInd
Indoor Tanning Services0IndoorTanningServicesInd
Info In Schedule O Part VIYes (X)InfoInScheduleOPartVIInd
Governing Body Voting Members9GoverningBodyVotingMembersCnt
Independent Voting Member9IndependentVotingMemberCnt
Family Or Business Rln0FamilyOrBusinessRlnInd
Delegation Of Mgmt Duties0DelegationOfMgmtDutiesInd
Change To Org Documents0ChangeToOrgDocumentsInd
Material Diversion Or Misuse0MaterialDiversionOrMisuseInd
Members Or Stockholders0MembersOrStockholdersInd
Election Of Board Members0ElectionOfBoardMembersInd
Decisions Subject To Approva0DecisionsSubjectToApprovaInd
Minutes Of Governing BodyYes (1)MinutesOfGoverningBodyInd
Minutes Of CommitteesYes (1)MinutesOfCommitteesInd
Officer Mailing Address0OfficerMailingAddressInd
Local Chapters0LocalChaptersInd
Form990 Provided To Gvrn BodyYes (1)Form990ProvidedToGvrnBodyInd
Conflict Of Interest PolicyYes (1)ConflictOfInterestPolicyInd
Annual Disclosure Covered PrsnYes (1)AnnualDisclosureCoveredPrsnInd
Regular Monitoring EnfrcYes (1)RegularMonitoringEnfrcInd
Whistleblower PolicyYes (1)WhistleblowerPolicyInd
Document Retention PolicyYes (1)DocumentRetentionPolicyInd
Compensation Process CEOYes (1)CompensationProcessCEOInd
Compensation Process OtherYes (1)CompensationProcessOtherInd
Investment In Joint Venture0InvestmentInJointVentureInd
States Where Copy Of Return Is FldCAStatesWhereCopyOfReturnIsFldCd
Own WebsiteYes (X)OwnWebsiteInd
Other WebsiteYes (X)OtherWebsiteInd
Upon RequestYes (X)UponRequestInd

Books In Care Of Detail BooksInCareOfDetail

Business Name BusinessName

FieldValueIRS element (for citing)
Business Name Line1LAURIE SAVAGEBusinessNameLine1Txt
FieldValueIRS element (for citing)
Phone8188921616PhoneNum

US Address USAddress

FieldValueIRS element (for citing)
Address Line116360 ROSCOE BLVDAddressLine1Txt
CityVAN NUYSCityNm
State AbbreviationCAStateAbbreviationCd
ZIP91406ZIPCd

Form990 Part VII Section A Form990PartVIISectionAGrp (10 entries)

TitleTitleTxtAverage Hours Per WeekAverageHoursPerWeekRtIndividual Trustee Or DirectorIndividualTrusteeOrDirectorIndOfficerOfficerIndReportable Comp From OrgReportableCompFromOrgAmtReportable Comp From Rltd OrgReportableCompFromRltdOrgAmtOther CompensationOtherCompensationAmt
CHARLOTTE K HOWARD
BOARD CHAIR2.00Yes (X)Yes (X)$0$0$0
LESLIE KAUTZ
BOARD TREASURER2.00Yes (X)Yes (X)$0$0$0
MICHAEL PIANIN
BOARD VICECHAIR2.00Yes (X)Yes (X)$0$0$0
ERIC GOLDSTEIN
BOARD SECRETARY2.00Yes (X)Yes (X)$0$0$0
DAVID HALLEGUA
Director1.00Yes (X)$0$0$0
PAULA OLSIEWSKI
Director1.00Yes (X)$0$0$0
RANDALL SAPADIN
Director1.00Yes (X)$0$0$0
ROBERT ULRICH
Director1.00Yes (X)$0$0$0
CRAIG GIMBEL
DIRECTOR1.00Yes (X)$0$0$0
LAURIE SAVAGE
Executive Director40.00Yes (X)$143,461$0$1,410
FieldValueIRS element (for citing)
Total Reportable Comp From Org$143,461TotalReportableCompFromOrgAmt
Tot Reportable Comp Rltd Org$0TotReportableCompRltdOrgAmt
Total Other Compensation$1,410TotalOtherCompensationAmt
Indiv Rcvd Greater Than100 K1IndivRcvdGreaterThan100KCnt
Former Ofcr Employees Listed0FormerOfcrEmployeesListedInd
Total Comp Greater Than150 K0TotalCompGreaterThan150KInd
Compensation From Other Srcs0CompensationFromOtherSrcsInd
Cntrct Rcvd Greater Than100 K0CntrctRcvdGreaterThan100KCnt
All Other Contributions$1,334,632AllOtherContributionsAmt
Total Contributions$1,334,632TotalContributionsAmt

Program Service Revenue ProgramServiceRevenueGrp

FieldValueIRS element (for citing)
DescPUBLICATION SALESDesc
Business611710BusinessCd
Total Revenue Column$8,551TotalRevenueColumnAmt
Related Or Exempt Func Income$8,551RelatedOrExemptFuncIncomeAmt
FieldValueIRS element (for citing)
Total Program Service Revenue$8,551TotalProgramServiceRevenueAmt

Investment Income InvestmentIncomeGrp

FieldValueIRS element (for citing)
Total Revenue Column$24,573TotalRevenueColumnAmt
Exclusion$24,573ExclusionAmt

Total Revenue TotalRevenueGrp

FieldValueIRS element (for citing)
Total Revenue Column$1,367,756TotalRevenueColumnAmt
Related Or Exempt Func Income$8,551RelatedOrExemptFuncIncomeAmt
Unrelated Business Revenue$0UnrelatedBusinessRevenueAmt
Exclusion$24,573ExclusionAmt

Grants To Domestic Orgs GrantsToDomesticOrgsGrp

FieldValueIRS element (for citing)
Total$60,000TotalAmt
Program Services$60,000ProgramServicesAmt

Comp Current Ofcr Directors CompCurrentOfcrDirectorsGrp

FieldValueIRS element (for citing)
Total$148,910TotalAmt
Program Services$119,128ProgramServicesAmt
Management And General$14,891ManagementAndGeneralAmt
Fundraising$14,891FundraisingAmt

Other Salaries And Wages OtherSalariesAndWagesGrp

FieldValueIRS element (for citing)
Total$416,462TotalAmt
Program Services$299,937ProgramServicesAmt
Management And General$70,525ManagementAndGeneralAmt
Fundraising$46,000FundraisingAmt

Other Employee Benefits OtherEmployeeBenefitsGrp

FieldValueIRS element (for citing)
Total$37,811TotalAmt
Program Services$29,128ProgramServicesAmt
Management And General$5,609ManagementAndGeneralAmt
Fundraising$3,074FundraisingAmt

Payroll Taxes PayrollTaxesGrp

FieldValueIRS element (for citing)
Total$44,181TotalAmt
Program Services$32,791ProgramServicesAmt
Management And General$6,651ManagementAndGeneralAmt
Fundraising$4,739FundraisingAmt

Fees For Services Accounting FeesForServicesAccountingGrp

FieldValueIRS element (for citing)
Total$57,875TotalAmt
Management And General$57,875ManagementAndGeneralAmt

Office Expenses OfficeExpensesGrp

FieldValueIRS element (for citing)
Total$49,239TotalAmt
Program Services$25,025ProgramServicesAmt
Management And General$23,484ManagementAndGeneralAmt
Fundraising$730FundraisingAmt

Information Technology InformationTechnologyGrp

FieldValueIRS element (for citing)
Total$152,675TotalAmt
Program Services$151,679ProgramServicesAmt
Management And General$540ManagementAndGeneralAmt
Fundraising$456FundraisingAmt

Occupancy OccupancyGrp

FieldValueIRS element (for citing)
Total$74,529TotalAmt
Program Services$62,529ProgramServicesAmt
Management And General$6,000ManagementAndGeneralAmt
Fundraising$6,000FundraisingAmt

Travel TravelGrp

FieldValueIRS element (for citing)
Total$30,258TotalAmt
Program Services$29,024ProgramServicesAmt
Fundraising$1,234FundraisingAmt

Conferences Meetings ConferencesMeetingsGrp

FieldValueIRS element (for citing)
Total$191,163TotalAmt
Program Services$191,163ProgramServicesAmt

Depreciation Depletion DepreciationDepletionGrp

FieldValueIRS element (for citing)
Total$5,172TotalAmt
Program Services$3,879ProgramServicesAmt
Management And General$1,293ManagementAndGeneralAmt

Other Expenses OtherExpensesGrp (3 entries)

DescDescTotalTotalAmtProgram ServicesProgramServicesAmtManagement And GeneralManagementAndGeneralAmtFundraisingFundraisingAmt
Postage$37,779$27,262$9,621$896
Printing and publicatio$37,688$32,475$4,225$988
State Licensing Fees$12,342$12,342

Total Functional Expenses TotalFunctionalExpensesGrp

FieldValueIRS element (for citing)
Total$1,356,084TotalAmt
Program Services$1,076,362ProgramServicesAmt
Management And General$200,714ManagementAndGeneralAmt
Fundraising$79,008FundraisingAmt

Cash Non Interest Bearing CashNonInterestBearingGrp

FieldValueIRS element (for citing)
BOY$459,511BOYAmt
EOY$271,467EOYAmt

Savings And Temp Cash Invst SavingsAndTempCashInvstGrp

FieldValueIRS element (for citing)
BOY$1,624,221BOYAmt
EOY$1,859,079EOYAmt

Accounts Receivable AccountsReceivableGrp

FieldValueIRS element (for citing)
EOY$27,000EOYAmt

Prepaid Expenses Defrd Charges PrepaidExpensesDefrdChargesGrp

FieldValueIRS element (for citing)
BOY$9,979BOYAmt
EOY$7,985EOYAmt
FieldValueIRS element (for citing)
Land Bldg Equip Cost Or Other Bss$52,926LandBldgEquipCostOrOtherBssAmt
Land Bldg Equip Accum Deprec$39,645LandBldgEquipAccumDeprecAmt

Land Bldg Equip Basis Net LandBldgEquipBasisNetGrp

FieldValueIRS element (for citing)
BOY$15,402BOYAmt
EOY$13,281EOYAmt

Investments Other Securities InvestmentsOtherSecuritiesGrp

FieldValueIRS element (for citing)
BOY$119,632BOYAmt
EOY$125,206EOYAmt

Other Assets Total OtherAssetsTotalGrp

FieldValueIRS element (for citing)
BOY$5,441BOYAmt
EOY$5,441EOYAmt

Total Assets TotalAssetsGrp

FieldValueIRS element (for citing)
BOY$2,234,186BOYAmt
EOY$2,309,459EOYAmt

Accounts Payable Accr Expnss AccountsPayableAccrExpnssGrp

FieldValueIRS element (for citing)
BOY$32,896BOYAmt
EOY$92,508EOYAmt

Total Liabilities TotalLiabilitiesGrp

FieldValueIRS element (for citing)
BOY$32,896BOYAmt
EOY$92,508EOYAmt
FieldValueIRS element (for citing)
Organization Follows SFAS117Yes (X)OrganizationFollowsSFAS117Ind

Unrestricted Net Assets UnrestrictedNetAssetsGrp

FieldValueIRS element (for citing)
BOY$1,572,301BOYAmt
EOY$1,695,645EOYAmt

Temporarily Rstr Net Assets TemporarilyRstrNetAssetsGrp

FieldValueIRS element (for citing)
BOY$628,989BOYAmt
EOY$521,306EOYAmt

Total Net Assets Fund Balance TotalNetAssetsFundBalanceGrp

FieldValueIRS element (for citing)
BOY$2,201,290BOYAmt
EOY$2,216,951EOYAmt

Tot Liab Net Assets Fund Balance TotLiabNetAssetsFundBalanceGrp

FieldValueIRS element (for citing)
BOY$2,234,186BOYAmt
EOY$2,309,459EOYAmt
FieldValueIRS element (for citing)
Reconcilation Revenue Expnss$11,672ReconcilationRevenueExpnssAmt
Net Unrlzd Gains Losses Invst$3,989NetUnrlzdGainsLossesInvstAmt
Other Changes In Net Assets$0OtherChangesInNetAssetsAmt
Method Of Accounting AccrualYes (X)MethodOfAccountingAccrualInd
Accountant Compile Or Review0AccountantCompileOrReviewInd
FS AuditedYes (1)FSAuditedInd

FS Audited Basis FSAuditedBasisGrp

FieldValueIRS element (for citing)
Separate Basis Fincl StmtYes (X)SeparateBasisFinclStmtInd
FieldValueIRS element (for citing)
Audit CommitteeYes (1)AuditCommitteeInd
Federal Grant Audit Required0FederalGrantAuditRequiredInd

Schedule A IRS990ScheduleA

FieldValueIRS element (for citing)
Public Organization170Yes (X)PublicOrganization170Ind

Gifts Grants Contri Rcvd170 GiftsGrantsContriRcvd170Grp

FieldValueIRS element (for citing)
Current Tax Year Minus4 Years$1,097,124CurrentTaxYearMinus4YearsAmt
Current Tax Year Minus3 Years$1,311,730CurrentTaxYearMinus3YearsAmt
Current Tax Year Minus2 Years$1,324,005CurrentTaxYearMinus2YearsAmt
Current Tax Year Minus1 Year$1,776,812CurrentTaxYearMinus1YearAmt
Current Tax Year$1,334,632CurrentTaxYearAmt
Total$6,844,303TotalAmt

Total Calendar Year170 TotalCalendarYear170Grp

FieldValueIRS element (for citing)
Current Tax Year Minus4 Years$1,097,124CurrentTaxYearMinus4YearsAmt
Current Tax Year Minus3 Years$1,311,730CurrentTaxYearMinus3YearsAmt
Current Tax Year Minus2 Years$1,324,005CurrentTaxYearMinus2YearsAmt
Current Tax Year Minus1 Year$1,776,812CurrentTaxYearMinus1YearAmt
Current Tax Year$1,334,632CurrentTaxYearAmt
Total$6,844,303TotalAmt
FieldValueIRS element (for citing)
Substantial Contributors Tot$1,774,439SubstantialContributorsTotAmt
Public Support Total170$5,069,864PublicSupportTotal170Amt

Gross Investment Income170 GrossInvestmentIncome170Grp

FieldValueIRS element (for citing)
Current Tax Year Minus4 Years$13,683CurrentTaxYearMinus4YearsAmt
Current Tax Year Minus3 Years$10,142CurrentTaxYearMinus3YearsAmt
Current Tax Year Minus2 Years$11,177CurrentTaxYearMinus2YearsAmt
Current Tax Year Minus1 Year$15,420CurrentTaxYearMinus1YearAmt
Current Tax Year$24,573CurrentTaxYearAmt
Total$74,995TotalAmt
FieldValueIRS element (for citing)
Total Support$6,919,298TotalSupportAmt
Gross Receipts Rltd Activities$76,810GrossReceiptsRltdActivitiesAmt
Public Support CY1700.73270PublicSupportCY170Pct
Thirty Thr Pct Suprt Tests CY170Yes (X)ThirtyThrPctSuprtTestsCY170Ind

Schedule B IRS990ScheduleB

Contributor Information ContributorInformationGrp

FieldValueIRS element (for citing)
ContributorRESTRICTEDContributorNum

Contributor Business Name ContributorBusinessName

FieldValueIRS element (for citing)
Business Name Line1RESTRICTEDBusinessNameLine1

Contributor US Address ContributorUSAddress

FieldValueIRS element (for citing)
Address Line1RESTRICTEDAddressLine1
Address Line2RESTRICTEDAddressLine2
CityRESTRICTEDCity
StateRESTRICTEDState
ZIP CodeRESTRICTEDZIPCode
FieldValueIRS element (for citing)
Total ContributionsRESTRICTEDTotalContributionsAmt

Schedule D IRS990ScheduleD

Equipment EquipmentGrp

FieldValueIRS element (for citing)
Other Cost Or Other Basis$52,926OtherCostOrOtherBasisAmt
Depreciation$39,645DepreciationAmt
Book Value$13,281BookValueAmt
FieldValueIRS element (for citing)
Total Book Value Land Buildings$13,281TotalBookValueLandBuildingsAmt

Other Securities OtherSecuritiesGrp

FieldValueIRS element (for citing)
DescEQUITY MUTUAL FUNDSDesc
Book Value$125,206BookValueAmt
Method ValuationFMethodValuationCd
FieldValueIRS element (for citing)
Total Book Value Securities$125,206TotalBookValueSecuritiesAmt
Total Rev Etc Audited Fincl Stmt$1,371,745TotalRevEtcAuditedFinclStmtAmt
Net Unrealized Gains Invst$3,989NetUnrealizedGainsInvstAmt
Revenue Not Reported$3,989RevenueNotReportedAmt
Revenue Subtotal$1,367,756RevenueSubtotalAmt
Revenue Not Reported Fincl Stmt$0RevenueNotReportedFinclStmtAmt
Total Revenue Per Form990$1,367,756TotalRevenuePerForm990Amt
Tot Expns Etc Audited Fincl Stmt$1,356,084TotExpnsEtcAuditedFinclStmtAmt
Expenses Not Reported$0ExpensesNotReportedAmt
Expenses Subtotal$1,356,084ExpensesSubtotalAmt
Expenses Not Rpt Fincl Stmt$0ExpensesNotRptFinclStmtAmt
Total Expenses Per Form990$1,356,084TotalExpensesPerForm990Amt

Schedule I IRS990ScheduleI

FieldValueIRS element (for citing)
Grant Records MaintainedYes (1)GrantRecordsMaintainedInd

Recipient Table RecipientTable (3 entries)

Address Line1USAddress/AddressLine1TxtCityUSAddress/CityNmState AbbreviationUSAddress/StateAbbreviationCdZIPUSAddress/ZIPCdRecipient EINRecipientEINIRC SectionIRCSectionDescCash GrantCashGrantAmtPurpose Of GrantPurposeOfGrantTxt
University of Utah Dept of Internal Medicine
30 N 1900 East Rm 4C104Salt Lake CityUT84132876000525501(c)(3)$20,000Axial Spondyloarthritis research
Brigham & Women's Hospital
1 Jimmy Fund Way Rm 614BostonMA02115042312909501(c)(3)$20,000Axial Spondyloarthritis research
Oregon Health & Science University Foundation
1121 SW Salmon St Rm 100PortlandOR97205237083114501(c)(3)$20,000Axial Spondyloarthritis research

Supplemental Information Detail SupplementalInformationDetail

FieldValueIRS element (for citing)
Form And Line ReferencePart I, Line 2:FormAndLineReferenceDesc
ExplanationRESEARCHERS ARE REQUIRED TO PROVIDE THE AGENCY WITH PROGRESS REPORTS BASED ON A VARIETY OF MILESTONES, INDIVIDUAL TO EACH STUDY, AND TO ENSURE THAT ANY PUBLICATION IN PEER REVIEW ACKNOWLEDGES THE AGENCYS FUNDING SUPPORT TOWARD THE EFFORT.ExplanationTxt

Schedule O IRS990ScheduleO

Supplemental Information Detail SupplementalInformationDetail (4 entries)

Form And Line ReferenceFormAndLineReferenceDescExplanationExplanationTxt
Form 990, Part VI, Section B, line 11Line 11a explanation - THE FINANCE COMMITTEE, WHICH IS COMPRISED OF THE KEY OFFICERS OF THE BOARD, REVIEWS THE DOCUMENT PRIOR TO ITS DISTRIBUTION TO THE ENTIRE BOARD FOR REVIEW.
Form 990, Part VI, Section B, line 12cALL DIRECTORS AND SENIOR EMPLOYEES ARE REQUIRED TO COMPLETE AND SIGN A DISCLOSURE FORM LISTING ANY POTENTIAL CONFLICTS OF INTEREST BY SEPTEMBER 30, ANNUALLY.
Form 990, Part VI, Section B, line 15THE ORGANIZATION UTILIZES CURRENT COMPENSATION DATA PUBLISHED BY THE NATIONAL HEALTH COUNCIL AND THE AMERICAN SOCIETY OF ASSOCIATION EXECUTIVES IN ORDER TO DETERMINE COMPENSATION.
Form 990, Part VI, Section C, line 19THE ORGANIZATION PRODUCES AN ANNUAL REPORT THAT IS PUBLISHED ON ITS WEBSITE.

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