2016-11-22T17:01:53-06:00 2016-06-30 946214841 Armanino LLP 11766 Wilshire Blvd 9th Floor Los Angeles CA 90025 990 2015-07-01 953890767 SPONDYLITIS ASSOCIATION OF AMERICA SPON 8188921616 16360 ROSCOE BLVD No 100 VAN NUYS CA 91406 LAURIE SAVAGE CEO 8188921616 2016-11-22 1 Thomas Schulte P00637812 3104784148 2015 2017-02-10 21:41:12Z LAURIE SAVAGE 16360 ROSCOE BLVD No 100 VAN NUYS CA 91406 1367756 0 X www.spondylitis.org X 1983 CA Advancing research, accelerated diagnosis, optimum treatment, and public and health care professional education in Spondyloarthritis. 9 9 9 455 0 0 1776812 1334632 17201 8551 17690 24573 0 0 1811703 1367756 135000 60000 0 0 646338 647364 0 0 79008 525576 648720 1306914 1356084 504789 11672 2234186 2309459 32896 92508 2201290 2216951 X Advancing and directly sponsoring Axial Spondylarthritis research, accelerating diagnosis, supporting optimum treatment for the individual, advancing awareness, and public and health care professional education in Axial Spondyloarthritis. 0 0 766233 8551 PATIENT CONFERENCES, EDUCATION AND SUPPORT: THE AGENCY SPONSORED PATIENT EDUCATIONAL AND SUPPORT PROGRAMS THROUGH THE USE OF VARIOUS MEDIA. THE INTERACTIVE WEBSITE AT STOPAS.ORG SERVES 400,000 UNIQUE VISITORS PER QUARTER BASED ON GOOGLE ANALYTICS REPORTS. THE AGENCY SUPPORTS PATIENT EDUCATION IN SPONDYLOARTHRITIS DISEASE MANAGEMENT THROUGH IS TEEN WEBSITE (SWIFT); PUBLIC ELECTRONIC MESSAGES BOARDS; A SELF MANAGEMENT ACTION GUIDE; BOOKS; PAMPHLETS; BROCHURES; INSTRUCTIVE EXERCISE MATERIALS; HEALTH FAIRS; SOCIAL MEDIA; AND A NETWORK OF VOLUNTEER RUN SUPPORT AND EDUCATIONAL WORKSHOP GROUPS SPREAD OVER 29 STATES. THE AGENCY ALSO SPONSORED AND HOSTS SEVERAL IN PERSON PATIENT EDUCATIONAL SYMPOSIA EVERY YEAR BRINGING IN HIGHLY RESPECTED CLINICAL RESEARCHERS FOR ONE AND ONE INTERACTION WITH ATTENDEES. THE AGENCY ALSO COLLABORATES WITH INDUSTRY, ACADEMIA AND GOVERNMENT TO PRODUCE EDUCATIONAL MATERIALS FOR THE PUBLIC THAT ARE DISTRIBUTED BY VARIOUS MEANS BY THESE AGENCIES. 230773 0 PHYSICIANS EDUCATION: THE AGENCY PRESENTED A CUTTING-EDGE, HIGH TECH, HANDS-ON WORKSHOP DESIGNED TO TRAIN RHEUMATOLOGISTS AND RADIOLOGISTS IN THE DIAGNOSIS OF AXSPA USING DICOM 3D IMAGING ON INDIVIDUAL CASE STUDY PRELOADED LAPTOPS. THE OBJECTIVE OF THIS CME COURSE WAS TO ACCELERATE DIAGNOSIS BY TEACHING PHYSICIANS TO RECOGNIZE THE EARLY CLINICAL SIGNS OF AXSPA AND THEN TO ORDER THE CORRECT IMAGING TO CONFIRM THE DIAGNOSIS. FUTURE PROGRAMS ARE PLANNED FOR 2016. 79356 60000 EARLY INVESTIGATOR'S AWARD: THE EARLY INVESTIGATOR AWARD SEEKS OUT TO IDENTIFY THOSE WHOM ALREADY HAVE DEMONSTRATED A BODY OF WORK IN AXIAL SPONDYLOARTHRITIS AND TO CONTINUE SUPPORT THAT WORK UP TO AN ASSISTANCE PROFESSORSHIP LEVEL OF ACHIEVEMENT LEVEL. 1076362 1 1 0 0 0 0 0 0 0 0 1 1 0 0 0 0 1 0 0 0 0 0 0 0 0 0 0 1 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 1 7 0 1 9 1 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 X 9 9 0 0 0 0 0 0 0 1 1 0 0 1 1 1 1 1 1 1 1 0 CA X X X LAURIE SAVAGE 8188921616 16360 ROSCOE BLVD VAN NUYS CA 91406 CHARLOTTE K HOWARD BOARD CHAIR 2.00 X X 0 0 0 LESLIE KAUTZ BOARD TREASURER 2.00 X X 0 0 0 MICHAEL PIANIN BOARD VICECHAIR 2.00 X X 0 0 0 ERIC GOLDSTEIN BOARD SECRETARY 2.00 X X 0 0 0 DAVID HALLEGUA Director 1.00 X 0 0 0 PAULA OLSIEWSKI Director 1.00 X 0 0 0 RANDALL SAPADIN Director 1.00 X 0 0 0 ROBERT ULRICH Director 1.00 X 0 0 0 CRAIG GIMBEL DIRECTOR 1.00 X 0 0 0 LAURIE SAVAGE Executive Director 40.00 X 143461 0 1410 143461 0 1410 1 0 0 0 0 1334632 1334632 PUBLICATION SALES 611710 8551 8551 8551 24573 24573 1367756 8551 0 24573 60000 60000 148910 119128 14891 14891 416462 299937 70525 46000 37811 29128 5609 3074 44181 32791 6651 4739 57875 57875 49239 25025 23484 730 152675 151679 540 456 74529 62529 6000 6000 30258 29024 1234 191163 191163 5172 3879 1293 Postage 37779 27262 9621 896 Printing and publicatio 37688 32475 4225 988 State Licensing Fees 12342 12342 1356084 1076362 200714 79008 459511 271467 1624221 1859079 27000 9979 7985 52926 39645 15402 13281 119632 125206 5441 5441 2234186 2309459 32896 92508 32896 92508 X 1572301 1695645 628989 521306 2201290 2216951 2234186 2309459 11672 3989 0 X 0 1 X 1 0 X 1097124 1311730 1324005 1776812 1334632 6844303 1097124 1311730 1324005 1776812 1334632 6844303 1774439 5069864 13683 10142 11177 15420 24573 74995 6919298 76810 0.73270 X RESTRICTED RESTRICTED RESTRICTED RESTRICTED RESTRICTED RESTRICTED RESTRICTED RESTRICTED 52926 39645 13281 13281 EQUITY MUTUAL FUNDS 125206 F 125206 1371745 3989 3989 1367756 0 1367756 1356084 0 1356084 0 1356084 1 University of Utah Dept of Internal Medicine 30 N 1900 East Rm 4C104 Salt Lake City UT 84132 876000525 501(c)(3) 20000 Axial Spondyloarthritis research Brigham & Women's Hospital 1 Jimmy Fund Way Rm 614 Boston MA 02115 042312909 501(c)(3) 20000 Axial Spondyloarthritis research Oregon Health & Science University Foundation 1121 SW Salmon St Rm 100 Portland OR 97205 237083114 501(c)(3) 20000 Axial Spondyloarthritis research Part I, Line 2: RESEARCHERS ARE REQUIRED TO PROVIDE THE AGENCY WITH PROGRESS REPORTS BASED ON A VARIETY OF MILESTONES, INDIVIDUAL TO EACH STUDY, AND TO ENSURE THAT ANY PUBLICATION IN PEER REVIEW ACKNOWLEDGES THE AGENCYS FUNDING SUPPORT TOWARD THE EFFORT. Form 990, Part VI, Section B, line 11 Line 11a explanation - THE FINANCE COMMITTEE, WHICH IS COMPRISED OF THE KEY OFFICERS OF THE BOARD, REVIEWS THE DOCUMENT PRIOR TO ITS DISTRIBUTION TO THE ENTIRE BOARD FOR REVIEW. Form 990, Part VI, Section B, line 12c ALL DIRECTORS AND SENIOR EMPLOYEES ARE REQUIRED TO COMPLETE AND SIGN A DISCLOSURE FORM LISTING ANY POTENTIAL CONFLICTS OF INTEREST BY SEPTEMBER 30, ANNUALLY. Form 990, Part VI, Section B, line 15 THE ORGANIZATION UTILIZES CURRENT COMPENSATION DATA PUBLISHED BY THE NATIONAL HEALTH COUNCIL AND THE AMERICAN SOCIETY OF ASSOCIATION EXECUTIVES IN ORDER TO DETERMINE COMPENSATION. Form 990, Part VI, Section C, line 19 THE ORGANIZATION PRODUCES AN ANNUAL REPORT THAT IS PUBLISHED ON ITS WEBSITE.