SPONDYLITIS ASSOCIATION OF AMERICA: Form 990, tax year 2020
View the entire original 990 at ProPublica ↗
- Organization
- SPONDYLITIS ASSOCIATION OF AMERICA (EIN 95-3890767)
- Tax period
- 2020-07-01 to 2021-06-30
- Filed
- 2021-10-04
- IRS object ID
- 202122779349301402
- Schema version
- 2020v4.1
- Source
- Download XML · Original 990 at ProPublica
Every field in the e-filed return. Faint text is the IRS element name, for citing.
Return header ReturnHeader
| Field | Value | IRS element (for citing) |
|---|---|---|
| Return | 2021-10-04T14:31:32-05:00 | ReturnTs |
| Tax Period End | 2021-06-30 | TaxPeriodEndDt |
Preparer Firm PreparerFirmGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Preparer Firm EIN | 320530003 | PreparerFirmEIN |
Preparer Firm Name PreparerFirmName
| Field | Value | IRS element (for citing) |
|---|---|---|
| Business Name Line1 | QUIGLEY & MIRON | BusinessNameLine1Txt |
Preparer US Address PreparerUSAddress
| Field | Value | IRS element (for citing) |
|---|---|---|
| Address Line1 | 3550 WILSHIRE BLVD 1660 | AddressLine1Txt |
| City | LOS ANGELES | CityNm |
| State Abbreviation | CA | StateAbbreviationCd |
| ZIP | 90010 | ZIPCd |
| Field | Value | IRS element (for citing) |
|---|---|---|
| Return Type | 990 | ReturnTypeCd |
| Tax Period Begin | 2020-07-01 | TaxPeriodBeginDt |
Filer Filer
| Field | Value | IRS element (for citing) |
|---|---|---|
| EIN | 953890767 | EIN |
Business Name BusinessName
| Field | Value | IRS element (for citing) |
|---|---|---|
| Business Name Line1 | SPONDYLITIS ASSOCIATION OF AMERICA | BusinessNameLine1Txt |
| Field | Value | IRS element (for citing) |
|---|---|---|
| Business Name Control | SPON | BusinessNameControlTxt |
| Phone | 8188921616 | PhoneNum |
US Address USAddress
| Field | Value | IRS element (for citing) |
|---|---|---|
| Address Line1 | 16430 VENTURA BLVD NO 300 | AddressLine1Txt |
| City | ENCINO | CityNm |
| State Abbreviation | CA | StateAbbreviationCd |
| ZIP | 91436 | ZIPCd |
Business Officer BusinessOfficerGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Person | CASSIE SHAFER | PersonNm |
| Person Title | CHIEF EXECUTIVE OFFICER | PersonTitleTxt |
| Phone | 8188921616 | PhoneNum |
| Signature | 2021-10-04 | SignatureDt |
Signing Officer SigningOfficerGrp
Person Full Name PersonFullName
| Field | Value | IRS element (for citing) |
|---|---|---|
| Person First | CASSIE | PersonFirstNm |
| Person Last | SHAFER | PersonLastNm |
| Field | Value | IRS element (for citing) |
|---|---|---|
| SSN | 999009999 | SSN |
Preparer Person PreparerPersonGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Preparer Person | ARMEN GRIGORIAN | PreparerPersonNm |
| PTIN | P01582463 | PTIN |
| Phone | 2136393550 | PhoneNum |
Additional Filer Information AdditionalFilerInformation
Trusted Customer TrustedCustomerGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Trusted Customer | 2 | TrustedCustomerCd |
| Authentication Assurance Level | AAL1 | AuthenticationAssuranceLevelCd |
| Identity Assurance Level | IAL1 | IdentityAssuranceLevelCd |
| Field | Value | IRS element (for citing) |
|---|---|---|
| Tax | 2020 | TaxYr |
| Build TS | 2022-09-23 18:48:47Z | BuildTS |
Form 990 IRS990
| Field | Value | IRS element (for citing) |
|---|---|---|
| Principal Officer | CASSIE SHAFER | PrincipalOfficerNm |
US Address USAddress
| Field | Value | IRS element (for citing) |
|---|---|---|
| Address Line1 | 16430 VENTURA BLVD NO 300 | AddressLine1Txt |
| City | ENCINO | CityNm |
| State Abbreviation | CA | StateAbbreviationCd |
| ZIP | 91436 | ZIPCd |
| Field | Value | IRS element (for citing) |
|---|---|---|
| Gross Receipts | $4,474,852 | GrossReceiptsAmt |
| Group Return For Affiliates | 0 | GroupReturnForAffiliatesInd |
| Organization501c3 | Yes (X) | Organization501c3Ind |
| Website Address | WWW.SPONDYLITIS.ORG | WebsiteAddressTxt |
| Type Of Organization Corp | Yes (X) | TypeOfOrganizationCorpInd |
| Formation | 1983 | FormationYr |
| Legal Domicile State | CA | LegalDomicileStateCd |
| Activity Or Mission | ADVANCING RESEARCH, ACCELERATED DIAGNOSIS, OPTIMUM TREATMENT, PUBLIC AWARENESS AND HEALTH CARE PROFESSIONAL EDUCATION IN SPONDYLOARTHRITIS | ActivityOrMissionDesc |
| Voting Members Governing Body | 12 | VotingMembersGoverningBodyCnt |
| Voting Members Independent | 12 | VotingMembersIndependentCnt |
| Total Employee | 12 | TotalEmployeeCnt |
| Total Volunteers | 115 | TotalVolunteersCnt |
| Total Gross UBI | $0 | TotalGrossUBIAmt |
| Net Unrelated Bus Txbl Incm | $0 | NetUnrelatedBusTxblIncmAmt |
| PY Contributions Grants | $2,181,281 | PYContributionsGrantsAmt |
| CY Contributions Grants | $2,996,504 | CYContributionsGrantsAmt |
| PY Program Service Revenue | $7,647 | PYProgramServiceRevenueAmt |
| CY Program Service Revenue | $3,551 | CYProgramServiceRevenueAmt |
| PY Investment Income | $23,359 | PYInvestmentIncomeAmt |
| CY Investment Income | $59,232 | CYInvestmentIncomeAmt |
| PY Other Revenue | $0 | PYOtherRevenueAmt |
| CY Other Revenue | $0 | CYOtherRevenueAmt |
| PY Total Revenue | $2,212,287 | PYTotalRevenueAmt |
| CY Total Revenue | $3,059,287 | CYTotalRevenueAmt |
| PY Grants And Similar Paid | $121,854 | PYGrantsAndSimilarPaidAmt |
| CY Grants And Similar Paid | $123,292 | CYGrantsAndSimilarPaidAmt |
| PY Benefits Paid To Members | $0 | PYBenefitsPaidToMembersAmt |
| CY Benefits Paid To Members | $0 | CYBenefitsPaidToMembersAmt |
| PY Salaries Comp Emp Bnft Paid | $1,167,778 | PYSalariesCompEmpBnftPaidAmt |
| CY Salaries Comp Emp Bnft Paid | $1,250,189 | CYSalariesCompEmpBnftPaidAmt |
| PY Total Prof Fndrsng Expns | $0 | PYTotalProfFndrsngExpnsAmt |
| CY Total Prof Fndrsng Expns | $0 | CYTotalProfFndrsngExpnsAmt |
| CY Total Fundraising Expense | $98,800 | CYTotalFundraisingExpenseAmt |
| PY Other Expenses | $758,378 | PYOtherExpensesAmt |
| CY Other Expenses | $656,276 | CYOtherExpensesAmt |
| PY Total Expenses | $2,048,010 | PYTotalExpensesAmt |
| CY Total Expenses | $2,029,757 | CYTotalExpensesAmt |
| PY Revenues Less Expenses | $164,277 | PYRevenuesLessExpensesAmt |
| CY Revenues Less Expenses | $1,029,530 | CYRevenuesLessExpensesAmt |
| Total Assets BOY | $4,049,261 | TotalAssetsBOYAmt |
| Total Assets EOY | $4,942,936 | TotalAssetsEOYAmt |
| Total Liabilities BOY | $387,069 | TotalLiabilitiesBOYAmt |
| Total Liabilities EOY | $225,104 | TotalLiabilitiesEOYAmt |
| Net Assets Or Fund Balances BOY | $3,662,192 | NetAssetsOrFundBalancesBOYAmt |
| Net Assets Or Fund Balances EOY | $4,717,832 | NetAssetsOrFundBalancesEOYAmt |
| Info In Schedule O Part III | Yes (X) | InfoInScheduleOPartIIIInd |
| Mission | ADVANCING AND DIRECTLY SPONSORING SPONDYLOARTHRITIS RESEARCH, ACCELERATING DIAGNOSIS, SUPPORTING OPTIMUM TREATMENT FOR THE INDIVIDUAL, ADVANCING AWARENESS, AND PUBLIC AND HEALTH CARE PROFESSIONAL EDUCATION IN SPONDYLOARTHRITIS. | MissionDesc |
| Significant New Program Srvc | 0 | SignificantNewProgramSrvcInd |
| Significant Change | 0 | SignificantChangeInd |
| Expense | $709,209 | ExpenseAmt |
| Revenue | $3,551 | RevenueAmt |
| Desc | PATIENT CONFERENCES, EDUCATION, AND PUBLICATIONSSAA SPONSORS PATIENT EDUCATION CONFERENCES, SEMINARS, AND PATIENT SUPPORT PROGRAMS THROUGH THE USE OF VARIOUS MEDIA PLATFORMS AND OUTLETS. SAA'S INTERACTIVE WEBSITE LOCATED AT WWW.SPONDYLITIS.ORG SERVES MORE THAN 500,000 UNIQUE VISITORS.PATIENT EDUCATION SEMINARS WERE HELD VIRTUALLY UTILIZING A ROBUST AND INTERACTIVE VIRTUAL CONFERENCE PLATFORM. THE PLATFORM FEATURED AN ANIMATED, AND INTERACTIVE LOBBY TO ACCESS DIFFERENT PARTS OF THE CONFERENCE HALL, INCLUDING EXHIBIT HALL, ACTIVITY LOUNGE, SPA RESOURCES HUB, AND PRESENTATION HALL WHERE ATTENDEES ACCESSED THE SPEAKERS' LIVE PRESENTATIONS AND TAKE PART IN MODERATED Q&A SESSIONS. IN ADDITION, FACEBOOK "LIVE" SEMINARS WERE ALSO CONDUCTED. THESE SEMINARS ARE RECORDED AND AVAILABLE FOR FUTURE USE THROUGH SAA'S WEBSITE. VIDEO SERIES PROJECT: "LIFE AFTER DIAGNOSIS" - A PATIENT-FOCUSED EDUCATIONAL PROGRAM ADDRESSING THE UNMET NEED OF A SYSTEMATIC PATH TO UNDERSTANDING THE DIAGNOSIS, TREATMENTS, AND MANAGEMENT OF ANKYLOSING SPONDYLITIS (AS). THESE PROJECTS INCLUDE A SEVEN-WEEK, SELF-MANAGEMENT EDUCATIONAL PROGRAM DESIGNED TO HELP PARTICIPANTS GAIN CONFIDENCE AND SKILLS TO BETTER MANAGE THEIR AS THROUGH A WHOLE PERSON APPROACH TO PHYSICAL, MENTAL, AND EMOTIONAL WELLNESS. SUBJECT MATTER EXPERTS AND CONTENT WRITERS HAVE BEEN RECRUITED FOR EACH OF THE SEVEN TOPICS.IMAS (INTERNATIONAL MAPPING ANKYLOSING SPONDYLITIS) - A PATIENT-CONCEIVED STUDY TO UNDERSTAND THE RAMIFICATIONS OF AS. SIMILAR TO SAA'S LIFE IMPACT STUDIES, IT HAS PRESENTED RESULTS FROM SEVERAL COUNTRIES IN EUROPE. SAA LAUNCHED THE USA COMPONENT OF THIS STUDY IN LATE SPRING.LIFE IMPACT SURVEY - RESULTS FROM THIS SURVEY CONTINUED TO BE DELIVERED THROUGH THIS REPORTING PERIOD. ABSTRACTS AND POSTERS WERE COMPLETED AND PRESENTED AT VARIOUS CONFERENCES THROUGHOUT THE YEAR. THE SURVEY WAS CONDUCTED WITH PATIENTS TO IDENTIFY PROPORTION OF PATIENTS WITH DELAYED DIAGNOSIS, REASONS, AND TREATMENT. RESULTS FROM THE SURVEY CONTINUED TO BE USED THROUGHOUT THE YEAR WITH ANALYSIS OF SPECIFIC AREAS TO CREATE WEBINARS AND OTHER EDUCATIONAL PROGRAMMING OPPORTUNITIES.SPONDYLITIS PLUS - MEMBERS OF SAA RECEIVE A QUARTERLY COPY OF THE ORGANIZATION'S PREMIERE PRINT PUBLICATION. SPONDYLITIS PLUS TACKLES ISSUES SUCH AS PAIN, FATIGUE, AND OTHER COMPLICATIONS, DISCUSSES THE LATEST RESEARCH AND TREATMENT INFORMATION (OFTEN PRESENTED BY PROMINENT RHEUMATOLOGISTS AND RESEARCHERS), AND FEATURES MOVING AND UNIQUE PERSONAL STORIES FROM OTHERS WITH SPA, AND MUCH MORE. OVER 5,000 COPIES ARE DISTRIBUTED QUARTERLY.ESUN - MORE THAN 43,000 PEOPLE SUBSCRIBE TO AND RECEIVE SAAFS MONTHLY SPONDYLITIS EDUCATION AND AWARENESS E-NEWSLETTER. IT CONTAINS A VARIETY OF SPONDYLITIS-RELATED CONTENT, SUCH AS NEWS, RESEARCH OPPORTUNITIES, STORIES FROM SPONDYLITIS PATIENTS, AND MORE.COVID-19 RESOURCE HUB AND RESEARCH SURVEY - WE CONTINUE TO SURVEY AND SUBMIT FINDINGS IN PEER REVIEWED SETTINGS. NUMEROUS ABSTRACTS HAVE BEEN SUBMITTED. SAA'S COVID-19 HUB CONTINUES TO BE UPDATED WITH THE LATEST INFORMATION PERTAINING TO INITIAL VACCINES AND BOOSTER VACCINES AS IT BECOMES AVAILABLE.GLOBAL SPONDYLOARTHRITIS SUMMIT 2021 - SAA'S SIGNATURE ONLINE EDUCATIONAL PROGRAM, 3RD ANNUAL GLOBAL SPONDYLOARTHRITIS SUMMIT, TOOK PLACE MAY 6-7. THIS YEAR'S ENHANCED VIRTUAL ENVIRONMENT PROVIDED A MORE INTERACTIVE EXPERIENCE FOR ATTENDEES. THE PROGRAM FEATURED 12 RHEUMATOLOGISTS AND MEDICAL PROFESSIONALS DISCUSSING KEY TOPICS TO THOSE IN THE INTERNATIONAL SPONDYLITIS COMMUNITY. SEVERAL OF THIS YEAR'S EXPERTS PARTICIPATED IN LIVE CHATS OR MODERATED ONLINE Q&A WITH ATTENDEES. THIS YEAR'S SUMMIT ALSO FEATURED DAILY TRIVIA QUIZZES, A LEADERBOARD CHALLENGE, A LIVE MAGIC SHOW, A LIVE JAZZ HAPPY HOUR, AN ACTIVITY LOUNGE AND AN EXHIBIT HALL. SAA ALSO PROVIDED FOREIGN LANGUAGE SUBTITLES FOR THE PRESENTATIONS. SUBTITLES WERE AVAILABLE IN SIX LANGUAGES. ALMOST 3,000 ATTENDEES FROM 87 COUNTRIES REGISTERED FOR THIS YEAR'S EVENT. | Desc |
Prog Srvc Accom Acty2 ProgSrvcAccomActy2Grp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Expense | $311,982 | ExpenseAmt |
| Desc | AWARENESS AND SUPPORT GROUPSSAA'S SUPPORT GROUPS CONTINUE TO BE ACTIVE ACROSS THE US. 47 ACTIVE GROUPS, IN 30 STATES, WITH 64 SUPPORT GROUP LEADERS. ONLINE SUPPORT GROUPS MADE AVAILABLE DURING COVID-19 FOR ALL PARTICIPANTS AS NEEDED. MORE THAN 225 MEETINGS WERE HELD THROUGH JUNE 2021. THE NUMBER OF GROUPS HAS HELD STEADY DURING THIS REPORTING PERIOD AS OUR COMMUNITY HAS ACCLIMATED TO LIFE DURING THE PANDEMIC.VIRTUAL SUPPORT GROUP LEADER TRAINING CONFERENCE PLANNING HAS BEEN TAKING PLACE THE LAST SIX MONTHS OF 2020 WITH THE VIRTUAL TRAINING CONFERENCE SCHEDULED FOR JULY 17, 2021. PLANNING COMMITTEE CONSISTS OF NINE SUPPORT GROUP LEADERS. | Desc |
Prog Srvc Accom Acty3 ProgSrvcAccomActy3Grp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Expense | $263,448 | ExpenseAmt |
| Desc | PHYSICIANS EDUCATION (EMT, CHIRO, PCP, RHEUMATOLOGY)PRIMARY CARE, AND CHIROPRACTOR ACCREDITED ONLINE EDUCATION: FOCUSING ON SHORTENING THE SPA DIAGNOSTIC DELAY - PHASE TWO OF A THREE YEAR GRANT-THE CHIROPRACTIC MODULE HAS BEEN COMPLETED, UNDERGONE REVIEW AND FINALIZED. IMMEDIATE ACTION MEDICINE, INC. (IAMED) IS IN THE PROCESS OF CHIROPRACTIC ACCREDITATION APPLICATION APPROVED THROUGH PACE (PROVIDERS OF APPROVED CONTINUING EDUCATION) WHICH IS GOVERNED BY THE FEDERATION OF CHIROPRACTIC LICENSING BOARDS.-THE PRIMARY CARE MODULE HAS BEEN COMPLETED, UNDERGONE REVIEW. VOICEOVER RECORDINGS ARE IN PROCESS AND ONCE COMPLETED, SAA WILL PARTNER WITH EXCEL CME TO JOINTLY SECURE AND PROVIDE THE ACCREDITATION NEEDED TO PROVIDE CME HOURS FOR PRIMARY CARE PROVIDERS.-THE ANESTHESIOLOGIST MODULE IS A NEW MODULE ADDED DURING THE LAST QUARTER OF FY 2021. IT IS EXPECTED TO BE COMPLETED AND APPROVED WITH CME'S DURING FY 2022. | Desc |
Prog Srvc Accom Acty Other ProgSrvcAccomActyOtherGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Expense | $371,783 | ExpenseAmt |
| Grant | $123,292 | GrantAmt |
| Desc | CLINICAL POCKET GUIDE FOR NON-RHEUMATOLOGISTS - AXIAL SPONDYLOARTHRITIS (AXSPA) CAN IMPACT EVERY CORNER OF LIFE. THIS POTENTIALLY DEBILITATING BUT MANAGEABLE RHEUMATIC CONDITION PRESENTS REAL CHALLENGES FOR PATIENTS AND CARE PROVIDERS ALIKE, BUT THE RIGHT CARE PROFESSIONAL, INCLUDING THOSE IN THE PRIMARY CARE SETTING, CAN MAKE ALL THE DIFFERENCE. AXSPA IS OFTEN DIFFICULT TO DIAGNOSE PARTLY BECAUSE ITS MOST COMMON SYMPTOM, BACK PAIN, IS A PERVASIVE PATIENT COMPLAINT WITH A VARIETY OF UNDERLYING CAUSES. THIS PARTIALLY EXPLAINS WHY IT CAN TAKE UP TO 10 YEARS TO OBTAIN THE CORRECT DIAGNOSIS. AXSPA AFFECTS ROUGHLY 3.2 MILLION ADULTS IN THE U.S. ALONE, MAKING IT MORE COMMON THAN RHEUMATOID ARTHRITIS. DESPITE THIS REALITY, AXSPA IS NOT ALWAYS WELL UNDERSTOOD BY THE GENERAL PUBLIC OR EVEN MEDICAL PROFESSIONALS. THIS DOCUMENT PROVIDES AN OVERVIEW OF AXSPA, AS WELL AS REFERRAL STRATEGIES AND TREATMENT RECOMMENDATIONS FOR PRIMARY CARE PHYSICIANS AND OTHER HEALTH PROFESSIONALS.DELAY TO DIAGNOSIS - SAA CONTINUES TO COLLABORATE WITH ASIF (AXIAL SPONDYLOARTHRITIS INTERNATIONAL FEDERATION) INITIATIVE TO UNDERSTAND THE DELAY TO DIAGNOSIS ON A GLOBAL LEVEL. INFORMATION GLEANED FROM "HACKATHON" PROGRAMS WILL BE SHARED WITH SPA COMMUNITY THROUGH THE SUMMER 2021 LAUNCH OF A GLOBAL INITIATIVE THAT INCLUDES INFORMATION ON THE WEBSITE AND SHARED WITH NUMEROUS MEMBER ORGANIZATIONS.RHEUM 2 DX AND SPONDYLOARTHRITIS RESEARCHRHEUM 2 DX. PHASE TWO OF A THREE YEAR GRANT. THE GOAL OF "RHEUM 2 DIAGNOSE" IS TO ADDRESS REAL WORLD BARRIERS TO AN ACCURATE AND EXPEDIENT DIAGNOSIS OF NR-AXSPA IN THE RHEUMATOLOGY SETTING. THIS ONLINE SERIES WILL HAVE TWO PARTS; A TOTAL OF THREE EDUCATIONAL PRESENTATIONS GEARED TO RHEUMATOLOGY FELLOWS, AND A TOTAL OF THREE EDUCATIONAL PRESENTATIONS GEARED TO MEDICAL STUDENTS. WORKING WITH SUBJECT MATTER EXPERTS (SMEFS) WHO WILL BE RESPONSIBLE FOR PROVIDING THE EDUCATIONAL CONTENT TO SAA IN A CLEAR AND DIGESTIBLE FORM. TOGETHER WE WILL WORK WITH DVI (VIDEO PRODUCTION COMPANY) TO PROFESSIONALLY (AND VIRTUALLY) RECORD THEIR PRESENTATIONS.EARLY CAREER INVESTIGATOR AWARDS (ECI) - ONE ECI AWARD WAS PRESENTED IN FY 2021 FOR $20,000, AWARDED TO TEJPAL GILL, PHD, ASSOCIATE PROFESSOR AT THE DIVISION ARTHRITIS AND RHEUMATIC DISEASES, OREGON HEALTH AND SCIENCE UNIVERSITY (OHSU), PORTLAND OR. DR. GILL'S MAIN FOCUS IS ON DECIPHERING THE HOST-MICROBE INTERACTIONS LEADING TO THE PATHOGENESIS (ORIGIN AND DEVELOPMENT) OF SPONDYLOARTHRITIS (SPA), ESPECIALLY ANKYLOSING SPONDYLITIS. DR. GILL HAS DEMONSTRATED THAT HLAB-27 ASSOCIATED MICROBIAL DYSBIOSIS IS DISTINCT BETWEEN DIFFERENT HOST BACKGROUNDS AND/OR ENVIRONMENT. AND YET, IN THE SUSCEPTIBLE GENETIC BACKGROUNDS, THE SAME IMMUNE/INFLAMMATORY RESPONSE IS OBSERVED. THESE RESULTS ARE IN CONTRAST TO THE EXISTING NOTION THAT A SINGLE OR A SMALL NUMBER OF MICROBES MAY DRIVE SPA DISEASE. DR. GILL'S CAREER GOAL IS TO INVESTIGATE THE MOLECULAR AND MICROBIAL MECHANISMS LEADING TO THE DEVELOPMENT OF SPA. CURRENTLY, HER GROUP IS INVESTIGATING THE RELATIONSHIP BETWEEN THE GUT MICROBES AND IMMUNE RESPONSE IN HLA-B27 POSITIVE PATIENTS WITH ANKYLOSING SPONDYLITIS. EFFORTS ARE UNDERWAY TO IDENTIFY GENES IN ADDITION TO HLA-B27 THAT MAY CONTRIBUTE TO DEVELOPMENT OF SPA. SINCE MANY ANKYLOSING SPONDYLITIS PATIENTS PRESENT SUBCLINICAL GUT INFLAMMATION, SHE IS WORKING TOWARDS THE DEVELOPMENT OF INTESTINAL ORGANOIDS-A NOVEL TOOL IN CELL BIOLOGY STUDY-TO DECIPHER THE MOLECULAR MECHANISMS LEADING TO HLA-B27-ASSOCIATED LOSS OF GUT EPITHELIAL BARRIER FUNCTION.IN ADDITION TO FUNDING ECI AWARDS, THE ORGANIZATION RECEIVES FUNDING REQUESTS FROM OUTSIDE SOURCES TO SUPPORT RESEARCH RELATED TO SPONDYLOARTHRITIS. BECAUSE THE ORGANIZATION HAS LIMITED RESOURCES FOR RESEARCH FUNDING, IT IS IMPERATIVE THAT ANY RESEARCH PROPOSALS MAKE OPTIMAL USE OF THESE LIMITED RESOURCES. TWO FUNDING REQUESTS WERE APPROVED STARTING IN 2019 AND RUNNING THROUGH 2021. BOTH GRANTS WENT TO CHILDREN'S HOSPITAL OF PHILADELPHIA FOR TWO DIFFERENT PROJECTS. -PAMELA WEISS, MD, MSCE, DIRECTOR OF CLINICAL RESEARCH AND ATTENDING, DIVISION OF RHEUMATOLOGY, CHILDREN'S HOSPITAL OF PHILADELPHIA ASSOCIATE PROFESSOR OF PEDIATRICS AND EPIDEMIOLOGY, UNIVERSITY OF PENNSYLVANIA PERELMAN SCHOOL OF MEDICINE RECEIVED FUNDING FOR AN "EXERCISE FOR DEVELOPMENT OF PEDIATRIC AXIAL DISEASE CLASSIFICATION CRITERIA", A COMPANION PROJECT TO AN NIH RO1 GRANT WITH DR. WEISS TO FILL THE UNMET NEED FOR A PEDIATRIC CLASSIFICATION CRITERIA. THE SAA GRANT WILL BE USED TO FUND IN-PERSON MEETING OF LEADING EXPERTS IN JUVENILE SPA. DUE TO THE COVID-19 STAY AT HOME TRAVEL RESTRICTIONS, THE MEETING IN GHENT (EUROPE) WAS POSTPONED. A NEW PROPOSED MEETING IS BEING PLANNED. -DR. WEISS'S SECOND GRANT IS ANCILLARY TO A PATIENT-CENTERED OUTCOMES RESEARCH INSTITUTE (PCORI) GRANT TITLED THE ROLE OF IMAGING AND SEROLOGIC BIOMARKERS IN PREDICTING FLARE IN CHILDREN WITH SPONDYLOARTHRITIS. THIS WILL BE A THREE-YEAR FUNDED GRANT BY SAA. PRINCIPAL INVESTIGATOR: PAMELA WEISS, MD MSCE, ASSOCIATE PROFESSOR OF PEDIATRICS AND EPIDEMIOLOGY, UPENN PERELMAN SCHOOL OF MEDICINE CLINICAL RESEARCH DIRECTOR AND ATTENDING PHYSICIAN, DIVISION OF RHEUMATOLOGY, CHOP. THIS TRIAL WILL HOPEFULLY IMPACT THE EVIDENCE BASE TO MAKE DECISIONS AT POINT OF CARE OF OUR KIDS WITH SPA WHO ARE IN SUSTAINED REMISSION AND INTERESTED IN TRIALING OFF TNFI. THIS PROJECT AUGMENTS A PCORI FUNDED STUDY. | Desc |
| Field | Value | IRS element (for citing) |
|---|---|---|
| Total Other Prog Srvc Expense | $371,783 | TotalOtherProgSrvcExpenseAmt |
| Total Other Prog Srvc Grant | $123,292 | TotalOtherProgSrvcGrantAmt |
| Total Program Service Expenses | $1,656,422 | TotalProgramServiceExpensesAmt |
| Described In Section501c3 | Yes (1) | DescribedInSection501c3Ind |
| Schedule B Required | Yes (1) | ScheduleBRequiredInd |
| Political Campaign Acty | 0 | PoliticalCampaignActyInd |
| Lobbying Activities | 0 | LobbyingActivitiesInd |
| Subject To Proxy Tax | 0 | SubjectToProxyTaxInd |
| Donor Advised Fund | 0 | DonorAdvisedFundInd |
| Conservation Easements | 0 | ConservationEasementsInd |
| Collections Of Art | 0 | CollectionsOfArtInd |
| Credit Counseling | 0 | CreditCounselingInd |
| Donor Rstr Or Quasi Endowments | 0 | DonorRstrOrQuasiEndowmentsInd |
| Report Land Building Equipment | Yes (1) | ReportLandBuildingEquipmentInd |
| Report Investments Other Sec | 0 | ReportInvestmentsOtherSecInd |
| Report Program Related Invst | 0 | ReportProgramRelatedInvstInd |
| Report Other Assets | 0 | ReportOtherAssetsInd |
| Report Other Liabilities | 0 | ReportOtherLiabilitiesInd |
| Include FIN48 Footnote | Yes (1) | IncludeFIN48FootnoteInd |
| Independent Audit Fincl Stmt | Yes (1) | IndependentAuditFinclStmtInd |
| Consolidated Audit Fincl Stmt | 0 | ConsolidatedAuditFinclStmtInd |
| School Operating | 0 | SchoolOperatingInd |
| Foreign Office | 0 | ForeignOfficeInd |
| Foreign Activities | 0 | ForeignActivitiesInd |
| More Than5000 K To Org | 0 | MoreThan5000KToOrgInd |
| More Than5000 K To Individuals | 0 | MoreThan5000KToIndividualsInd |
| Professional Fundraising | 0 | ProfessionalFundraisingInd |
| Fundraising Activities | 0 | FundraisingActivitiesInd |
| Gaming Activities | 0 | GamingActivitiesInd |
| Operate Hospital | 0 | OperateHospitalInd |
| Grants To Organizations | Yes (1) | GrantsToOrganizationsInd |
| Grants To Individuals | 0 | GrantsToIndividualsInd |
| Schedule J Required | Yes (1) | ScheduleJRequiredInd |
| Tax Exempt Bonds | 0 | TaxExemptBondsInd |
| Engaged In Excess Benefit Trans | 0 | EngagedInExcessBenefitTransInd |
| PY Excess Benefit Trans | 0 | PYExcessBenefitTransInd |
| Loan Outstanding | 0 | LoanOutstandingInd |
| Grant To Related Person | 0 | GrantToRelatedPersonInd |
| Business Rln With Org Mem | 0 | BusinessRlnWithOrgMemInd |
| Business Rln With Fam Mem | 0 | BusinessRlnWithFamMemInd |
| Business Rln With35 Ctrl Ent | 0 | BusinessRlnWith35CtrlEntInd |
| Deductible Non Cash Contri | 0 | DeductibleNonCashContriInd |
| Deductible Art Contribution | 0 | DeductibleArtContributionInd |
| Terminate Operations | 0 | TerminateOperationsInd |
| Partial Liquidation | 0 | PartialLiquidationInd |
| Disregarded Entity | 0 | DisregardedEntityInd |
| Related Entity | 0 | RelatedEntityInd |
| Related Organization Ctrl Ent | 0 | RelatedOrganizationCtrlEntInd |
| Trnsfr Exmpt Non Chrtbl Rltd Org | 0 | TrnsfrExmptNonChrtblRltdOrgInd |
| Activities Conducted Prtshp | 0 | ActivitiesConductedPrtshpInd |
| Schedule O Required | Yes (1) | ScheduleORequiredInd |
| IRP Document | 12 | IRPDocumentCnt |
| IRP Document W2 G | 0 | IRPDocumentW2GCnt |
| Employee | 12 | EmployeeCnt |
| Employment Tax Returns Filed | Yes (1) | EmploymentTaxReturnsFiledInd |
| Unrelated Bus Incm Over Limit | 0 | UnrelatedBusIncmOverLimitInd |
| Foreign Financial Account | 0 | ForeignFinancialAccountInd |
| Prohibited Tax Shelter Trans | 0 | ProhibitedTaxShelterTransInd |
| Taxable Party Notification | 0 | TaxablePartyNotificationInd |
| Nondeductible Contributions | 0 | NondeductibleContributionsInd |
| Quid Pro Quo Contributions | 0 | QuidProQuoContributionsInd |
| Form8282 Property Disposed Of | 0 | Form8282PropertyDisposedOfInd |
| Rcv Fnds To Pay Prsnl Bnft Cntrct | 0 | RcvFndsToPayPrsnlBnftCntrctInd |
| Pay Premiums Prsnl Bnft Cntrct | 0 | PayPremiumsPrsnlBnftCntrctInd |
| Indoor Tanning Services | 0 | IndoorTanningServicesInd |
| Subj To Tax Rmnrtn Ex Prcht Pymt | 0 | SubjToTaxRmnrtnExPrchtPymtInd |
| Subject To Excs Tax Net Invst Inc | 0 | SubjectToExcsTaxNetInvstIncInd |
| Info In Schedule O Part VI | Yes (X) | InfoInScheduleOPartVIInd |
| Governing Body Voting Members | 12 | GoverningBodyVotingMembersCnt |
| Independent Voting Member | 12 | IndependentVotingMemberCnt |
| Family Or Business Rln | 0 | FamilyOrBusinessRlnInd |
| Delegation Of Mgmt Duties | 0 | DelegationOfMgmtDutiesInd |
| Change To Org Documents | 0 | ChangeToOrgDocumentsInd |
| Material Diversion Or Misuse | 0 | MaterialDiversionOrMisuseInd |
| Members Or Stockholders | 0 | MembersOrStockholdersInd |
| Election Of Board Members | 0 | ElectionOfBoardMembersInd |
| Decisions Subject To Approva | 0 | DecisionsSubjectToApprovaInd |
| Minutes Of Governing Body | Yes (1) | MinutesOfGoverningBodyInd |
| Minutes Of Committees | Yes (1) | MinutesOfCommitteesInd |
| Officer Mailing Address | 0 | OfficerMailingAddressInd |
| Local Chapters | 0 | LocalChaptersInd |
| Form990 Provided To Gvrn Body | Yes (1) | Form990ProvidedToGvrnBodyInd |
| Conflict Of Interest Policy | Yes (1) | ConflictOfInterestPolicyInd |
| Annual Disclosure Covered Prsn | Yes (1) | AnnualDisclosureCoveredPrsnInd |
| Regular Monitoring Enfrc | Yes (1) | RegularMonitoringEnfrcInd |
| Whistleblower Policy | Yes (1) | WhistleblowerPolicyInd |
| Document Retention Policy | Yes (1) | DocumentRetentionPolicyInd |
| Compensation Process CEO | Yes (1) | CompensationProcessCEOInd |
| Compensation Process Other | Yes (1) | CompensationProcessOtherInd |
| Investment In Joint Venture | 0 | InvestmentInJointVentureInd |
| States Where Copy Of Return Is Fld | CA | StatesWhereCopyOfReturnIsFldCd |
| Own Website | Yes (X) | OwnWebsiteInd |
| Other Website | Yes (X) | OtherWebsiteInd |
| Upon Request | Yes (X) | UponRequestInd |
Books In Care Of Detail BooksInCareOfDetail
Business Name BusinessName
| Field | Value | IRS element (for citing) |
|---|---|---|
| Business Name Line1 | CASSIE SHAFER | BusinessNameLine1Txt |
| Field | Value | IRS element (for citing) |
|---|---|---|
| Phone | 8188921616 | PhoneNum |
US Address USAddress
| Field | Value | IRS element (for citing) |
|---|---|---|
| Address Line1 | 16430 VENTURA BLVD SUITE 300 | AddressLine1Txt |
| City | ENCINO | CityNm |
| State Abbreviation | CA | StateAbbreviationCd |
| ZIP | 91436 | ZIPCd |
Form990 Part VII Section A Form990PartVIISectionAGrp (15 entries)
| TitleTitleTxt | Average Hours Per WeekAverageHoursPerWeekRt | Individual Trustee Or DirectorIndividualTrusteeOrDirectorInd | OfficerOfficerInd | Reportable Comp From OrgReportableCompFromOrgAmt | Reportable Comp From Rltd OrgReportableCompFromRltdOrgAmt | Other CompensationOtherCompensationAmt | Highest Compensated EmployeeHighestCompensatedEmployeeInd |
|---|---|---|---|---|---|---|---|
| ELLEN CARROLL | |||||||
| SECRETARY | 2.00 | Yes (X) | Yes (X) | $0 | $0 | $0 | |
| CRAIG GIMBEL | |||||||
| DIRECTOR | 1.00 | Yes (X) | $0 | $0 | $0 | ||
| ERIC GOLDSTEIN | |||||||
| TREASURER | 2.00 | Yes (X) | Yes (X) | $0 | $0 | $0 | |
| PAMELA WEISS | |||||||
| DIRECTOR | 1.00 | Yes (X) | $0 | $0 | $0 | ||
| ARNOLD M PODOLSKY | |||||||
| DIRECTOR | 1.00 | Yes (X) | $0 | $0 | $0 | ||
| MARY ANN POLADIAN | |||||||
| DIRECTOR | 1.00 | Yes (X) | $0 | $0 | $0 | ||
| JILL MILLER | |||||||
| DIRECTOR | 1.00 | Yes (X) | $0 | $0 | $0 | ||
| MICHAEL PIANIN | |||||||
| BOARD CHAIR | 2.00 | Yes (X) | Yes (X) | $0 | $0 | $0 | |
| BATYA BILMES LEMLER | |||||||
| DIRECTOR | 1.00 | Yes (X) | $0 | $0 | $0 | ||
| JOHN D REVEILLE | |||||||
| DIRECTOR | 1.00 | Yes (X) | $0 | $0 | $0 | ||
| JAMES ROSENBAUM | |||||||
| DIRECTOR | 1.00 | Yes (X) | $0 | $0 | $0 | ||
| PAULA OLSIEWSKI | |||||||
| VICE CHAIR | 2.00 | Yes (X) | Yes (X) | $0 | $0 | $0 | |
| CASSIE SHAFER | |||||||
| CHIEF EXECUTIVE OFFICER | 40.00 | Yes (X) | $199,955 | $0 | $5,994 | ||
| DIANN PETERSON | |||||||
| CHIEF PHILANTHROPY OFFICER | 40.00 | $108,895 | $0 | $12,946 | Yes (X) | ||
| RICHARD HOWARD | |||||||
| CHIEF MISSION ADVANCEMENT OFFICER | 40.00 | $112,128 | $0 | $3,360 | Yes (X) | ||
| Field | Value | IRS element (for citing) |
|---|---|---|
| Total Reportable Comp From Org | $420,978 | TotalReportableCompFromOrgAmt |
| Tot Reportable Comp Rltd Org | $0 | TotReportableCompRltdOrgAmt |
| Total Other Compensation | $22,300 | TotalOtherCompensationAmt |
| Indiv Rcvd Greater Than100 K | 3 | IndivRcvdGreaterThan100KCnt |
| Former Ofcr Employees Listed | 0 | FormerOfcrEmployeesListedInd |
| Total Comp Greater Than150 K | Yes (1) | TotalCompGreaterThan150KInd |
| Compensation From Other Srcs | 0 | CompensationFromOtherSrcsInd |
| Cntrct Rcvd Greater Than100 K | 0 | CntrctRcvdGreaterThan100KCnt |
| Government Grants | $205,900 | GovernmentGrantsAmt |
| All Other Contributions | $2,790,604 | AllOtherContributionsAmt |
| Noncash Contributions | $500 | NoncashContributionsAmt |
| Total Contributions | $2,996,504 | TotalContributionsAmt |
Program Service Revenue ProgramServiceRevenueGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Desc | PUBLICATION SALES | Desc |
| Business | 611710 | BusinessCd |
| Total Revenue Column | $3,551 | TotalRevenueColumnAmt |
| Related Or Exempt Func Income | $3,551 | RelatedOrExemptFuncIncomeAmt |
| Field | Value | IRS element (for citing) |
|---|---|---|
| Total Program Service Revenue | $3,551 | TotalProgramServiceRevenueAmt |
Investment Income InvestmentIncomeGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Total Revenue Column | $61,787 | TotalRevenueColumnAmt |
| Exclusion | $61,787 | ExclusionAmt |
Gross Amount Sales Assets GrossAmountSalesAssetsGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Securities | $1,413,010 | SecuritiesAmt |
Less Cost Oth Basis Sales Expnss LessCostOthBasisSalesExpnssGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Securities | $1,409,668 | SecuritiesAmt |
| Other | $5,897 | OtherAmt |
Gain Or Loss GainOrLossGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Securities | $3,342 | SecuritiesAmt |
| Other | -$5,897 | OtherAmt |
Net Gain Or Loss Investments NetGainOrLossInvestmentsGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Total Revenue Column | -$2,555 | TotalRevenueColumnAmt |
| Exclusion | -$2,555 | ExclusionAmt |
Total Revenue TotalRevenueGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Total Revenue Column | $3,059,287 | TotalRevenueColumnAmt |
| Related Or Exempt Func Income | $3,551 | RelatedOrExemptFuncIncomeAmt |
| Unrelated Business Revenue | $0 | UnrelatedBusinessRevenueAmt |
| Exclusion | $59,232 | ExclusionAmt |
Grants To Domestic Orgs GrantsToDomesticOrgsGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Total | $123,292 | TotalAmt |
| Program Services | $123,292 | ProgramServicesAmt |
Comp Current Ofcr Directors CompCurrentOfcrDirectorsGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Total | $205,949 | TotalAmt |
| Program Services | $164,759 | ProgramServicesAmt |
| Management And General | $20,595 | ManagementAndGeneralAmt |
| Fundraising | $20,595 | FundraisingAmt |
Other Salaries And Wages OtherSalariesAndWagesGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Total | $870,108 | TotalAmt |
| Program Services | $709,533 | ProgramServicesAmt |
| Management And General | $104,911 | ManagementAndGeneralAmt |
| Fundraising | $55,664 | FundraisingAmt |
Pension Plan Contributions PensionPlanContributionsGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Total | $20,611 | TotalAmt |
| Program Services | $16,614 | ProgramServicesAmt |
| Management And General | $2,636 | ManagementAndGeneralAmt |
| Fundraising | $1,361 | FundraisingAmt |
Other Employee Benefits OtherEmployeeBenefitsGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Total | $76,114 | TotalAmt |
| Program Services | $61,252 | ProgramServicesAmt |
| Management And General | $9,256 | ManagementAndGeneralAmt |
| Fundraising | $5,606 | FundraisingAmt |
Payroll Taxes PayrollTaxesGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Total | $77,407 | TotalAmt |
| Program Services | $61,361 | ProgramServicesAmt |
| Management And General | $9,993 | ManagementAndGeneralAmt |
| Fundraising | $6,053 | FundraisingAmt |
Fees For Services Accounting FeesForServicesAccountingGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Total | $66,449 | TotalAmt |
| Management And General | $66,449 | ManagementAndGeneralAmt |
Fees For Services Other FeesForServicesOtherGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Total | $190,642 | TotalAmt |
| Program Services | $190,642 | ProgramServicesAmt |
Office Expenses OfficeExpensesGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Total | $242,794 | TotalAmt |
| Program Services | $186,409 | ProgramServicesAmt |
| Management And General | $50,941 | ManagementAndGeneralAmt |
| Fundraising | $5,444 | FundraisingAmt |
Information Technology InformationTechnologyGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Total | $25,899 | TotalAmt |
| Program Services | $22,099 | ProgramServicesAmt |
| Management And General | $2,200 | ManagementAndGeneralAmt |
| Fundraising | $1,600 | FundraisingAmt |
Occupancy OccupancyGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Total | $51,551 | TotalAmt |
| Program Services | $44,600 | ProgramServicesAmt |
| Management And General | $5,601 | ManagementAndGeneralAmt |
| Fundraising | $1,350 | FundraisingAmt |
Conferences Meetings ConferencesMeetingsGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Total | $56,724 | TotalAmt |
| Program Services | $56,724 | ProgramServicesAmt |
Depreciation Depletion DepreciationDepletionGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Total | $17,804 | TotalAmt |
| Program Services | $14,724 | ProgramServicesAmt |
| Management And General | $1,953 | ManagementAndGeneralAmt |
| Fundraising | $1,127 | FundraisingAmt |
Other Expenses OtherExpensesGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Desc | STATE LICENSING | Desc |
| Total | $4,413 | TotalAmt |
| Program Services | $4,413 | ProgramServicesAmt |
Total Functional Expenses TotalFunctionalExpensesGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Total | $2,029,757 | TotalAmt |
| Program Services | $1,656,422 | ProgramServicesAmt |
| Management And General | $274,535 | ManagementAndGeneralAmt |
| Fundraising | $98,800 | FundraisingAmt |
Cash Non Interest Bearing CashNonInterestBearingGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| BOY | $636,894 | BOYAmt |
| EOY | $424,746 | EOYAmt |
Savings And Temp Cash Invst SavingsAndTempCashInvstGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| BOY | $2,833,300 | BOYAmt |
| EOY | $4,017,438 | EOYAmt |
Accounts Receivable AccountsReceivableGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| BOY | $207,518 | BOYAmt |
| EOY | $3,174 | EOYAmt |
Prepaid Expenses Defrd Charges PrepaidExpensesDefrdChargesGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| BOY | $9,821 | BOYAmt |
| EOY | $69,922 | EOYAmt |
| Field | Value | IRS element (for citing) |
|---|---|---|
| Land Bldg Equip Cost Or Other Bss | $57,644 | LandBldgEquipCostOrOtherBssAmt |
| Land Bldg Equip Accum Deprec | $43,015 | LandBldgEquipAccumDeprecAmt |
Land Bldg Equip Basis Net LandBldgEquipBasisNetGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| BOY | $12,721 | BOYAmt |
| EOY | $14,629 | EOYAmt |
Investments Pub Traded Sec InvestmentsPubTradedSecGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| BOY | $274,524 | BOYAmt |
| EOY | $355,162 | EOYAmt |
Intangible Assets IntangibleAssetsGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| BOY | $69,042 | BOYAmt |
| EOY | $54,247 | EOYAmt |
Other Assets Total OtherAssetsTotalGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| BOY | $5,441 | BOYAmt |
| EOY | $3,618 | EOYAmt |
Total Assets TotalAssetsGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| BOY | $4,049,261 | BOYAmt |
| EOY | $4,942,936 | EOYAmt |
Accounts Payable Accr Expnss AccountsPayableAccrExpnssGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| BOY | $181,169 | BOYAmt |
| EOY | $225,104 | EOYAmt |
Other Liabilities OtherLiabilitiesGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| BOY | $205,900 | BOYAmt |
| EOY | $0 | EOYAmt |
Total Liabilities TotalLiabilitiesGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| BOY | $387,069 | BOYAmt |
| EOY | $225,104 | EOYAmt |
| Field | Value | IRS element (for citing) |
|---|---|---|
| Organization Follows FASB117 | Yes (X) | OrganizationFollowsFASB117Ind |
No Donor Restriction Net Assets NoDonorRestrictionNetAssetsGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| BOY | $2,528,016 | BOYAmt |
| EOY | $3,654,020 | EOYAmt |
Donor Restriction Net Assets DonorRestrictionNetAssetsGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| BOY | $1,134,176 | BOYAmt |
| EOY | $1,063,812 | EOYAmt |
Total Net Assets Fund Balance TotalNetAssetsFundBalanceGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| BOY | $3,662,192 | BOYAmt |
| EOY | $4,717,832 | EOYAmt |
Tot Liab Net Assets Fund Balance TotLiabNetAssetsFundBalanceGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| BOY | $4,049,261 | BOYAmt |
| EOY | $4,942,936 | EOYAmt |
| Field | Value | IRS element (for citing) |
|---|---|---|
| Reconcilation Revenue Expnss | $1,029,530 | ReconcilationRevenueExpnssAmt |
| Net Unrlzd Gains Losses Invst | $26,110 | NetUnrlzdGainsLossesInvstAmt |
| Other Changes In Net Assets | $0 | OtherChangesInNetAssetsAmt |
| Info In Schedule O Part XII | Yes (X) | InfoInScheduleOPartXIIInd |
| Method Of Accounting Accrual | Yes (X) | MethodOfAccountingAccrualInd |
| Accountant Compile Or Review | 0 | AccountantCompileOrReviewInd |
| FS Audited | Yes (1) | FSAuditedInd |
FS Audited Basis FSAuditedBasisGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Separate Basis Fincl Stmt | Yes (X) | SeparateBasisFinclStmtInd |
| Field | Value | IRS element (for citing) |
|---|---|---|
| Audit Committee | Yes (1) | AuditCommitteeInd |
| Federal Grant Audit Required | 0 | FederalGrantAuditRequiredInd |
Schedule A IRS990ScheduleA
| Field | Value | IRS element (for citing) |
|---|---|---|
| Public Organization170 | Yes (X) | PublicOrganization170Ind |
Gifts Grants Contri Rcvd170 GiftsGrantsContriRcvd170Grp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Current Tax Year Minus4 Years | $1,666,271 | CurrentTaxYearMinus4YearsAmt |
| Current Tax Year Minus3 Years | $1,652,738 | CurrentTaxYearMinus3YearsAmt |
| Current Tax Year Minus2 Years | $1,941,665 | CurrentTaxYearMinus2YearsAmt |
| Current Tax Year Minus1 Year | $2,181,281 | CurrentTaxYearMinus1YearAmt |
| Current Tax Year | $2,996,504 | CurrentTaxYearAmt |
| Total | $10,438,459 | TotalAmt |
Total Calendar Year170 TotalCalendarYear170Grp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Current Tax Year Minus4 Years | $1,666,271 | CurrentTaxYearMinus4YearsAmt |
| Current Tax Year Minus3 Years | $1,652,738 | CurrentTaxYearMinus3YearsAmt |
| Current Tax Year Minus2 Years | $1,941,665 | CurrentTaxYearMinus2YearsAmt |
| Current Tax Year Minus1 Year | $2,181,281 | CurrentTaxYearMinus1YearAmt |
| Current Tax Year | $2,996,504 | CurrentTaxYearAmt |
| Total | $10,438,459 | TotalAmt |
| Field | Value | IRS element (for citing) |
|---|---|---|
| Substantial Contributors Tot | $4,500,844 | SubstantialContributorsTotAmt |
| Public Support Total170 | $5,937,615 | PublicSupportTotal170Amt |
Gross Investment Income170 GrossInvestmentIncome170Grp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Current Tax Year Minus4 Years | $25,145 | CurrentTaxYearMinus4YearsAmt |
| Current Tax Year Minus3 Years | $35,065 | CurrentTaxYearMinus3YearsAmt |
| Current Tax Year Minus2 Years | $68,076 | CurrentTaxYearMinus2YearsAmt |
| Current Tax Year Minus1 Year | $65,844 | CurrentTaxYearMinus1YearAmt |
| Current Tax Year | $61,787 | CurrentTaxYearAmt |
| Total | $255,917 | TotalAmt |
| Field | Value | IRS element (for citing) |
|---|---|---|
| Total Support | $10,694,376 | TotalSupportAmt |
| Gross Receipts Rltd Activities | $31,208 | GrossReceiptsRltdActivitiesAmt |
| Public Support CY170 | 0.55520 | PublicSupportCY170Pct |
| Public Support PY170 | 0.60840 | PublicSupportPY170Pct |
| Thirty Thr Pct Suprt Tests CY170 | Yes (X) | ThirtyThrPctSuprtTestsCY170Ind |
Form990 Schedule A Part VI Form990ScheduleAPartVIGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Form And Line Reference | SCHEDULE A, PART VI, LIST OF UNUSUAL GRANTS: | FormAndLineReferenceDesc |
| Explanation | DESCRIPTION: CONTRIBUTION DATE: 06/30/18 AMOUNT: 982773. | ExplanationTxt |
Schedule B IRS990ScheduleB
Contributor Information ContributorInformationGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Contributor | RESTRICTED | ContributorNum |
Contributor Business Name ContributorBusinessName
| Field | Value | IRS element (for citing) |
|---|---|---|
| Business Name Line1 | RESTRICTED | BusinessNameLine1 |
Contributor US Address ContributorUSAddress
| Field | Value | IRS element (for citing) |
|---|---|---|
| Address Line1 | RESTRICTED | AddressLine1 |
| Address Line2 | RESTRICTED | AddressLine2 |
| City | RESTRICTED | City |
| State | RESTRICTED | State |
| ZIP Code | RESTRICTED | ZIPCode |
| Field | Value | IRS element (for citing) |
|---|---|---|
| Total Contributions | RESTRICTED | TotalContributionsAmt |
Schedule D IRS990ScheduleD
Equipment EquipmentGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Other Cost Or Other Basis | $42,723 | OtherCostOrOtherBasisAmt |
| Depreciation | $33,874 | DepreciationAmt |
| Book Value | $8,849 | BookValueAmt |
Other Land Buildings OtherLandBuildingsGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Other Cost Or Other Basis | $14,921 | OtherCostOrOtherBasisAmt |
| Depreciation | $9,141 | DepreciationAmt |
| Book Value | $5,780 | BookValueAmt |
| Field | Value | IRS element (for citing) |
|---|---|---|
| Total Book Value Land Buildings | $14,629 | TotalBookValueLandBuildingsAmt |
| Footnote Text | Yes (X) | FootnoteTextInd |
| Total Rev Etc Audited Fincl Stmt | $3,085,397 | TotalRevEtcAuditedFinclStmtAmt |
| Net Unrealized Gains Invst | $26,110 | NetUnrealizedGainsInvstAmt |
| Revenue Not Reported | $26,110 | RevenueNotReportedAmt |
| Revenue Subtotal | $3,059,287 | RevenueSubtotalAmt |
| Revenue Not Reported Fincl Stmt | $0 | RevenueNotReportedFinclStmtAmt |
| Total Revenue Per Form990 | $3,059,287 | TotalRevenuePerForm990Amt |
| Tot Expns Etc Audited Fincl Stmt | $2,029,757 | TotExpnsEtcAuditedFinclStmtAmt |
| Expenses Not Reported | $0 | ExpensesNotReportedAmt |
| Expenses Subtotal | $2,029,757 | ExpensesSubtotalAmt |
| Expenses Not Rpt Fincl Stmt | $0 | ExpensesNotRptFinclStmtAmt |
| Total Expenses Per Form990 | $2,029,757 | TotalExpensesPerForm990Amt |
Supplemental Information Detail SupplementalInformationDetail
| Field | Value | IRS element (for citing) |
|---|---|---|
| Form And Line Reference | PART X, LINE 2: | FormAndLineReferenceDesc |
| Explanation | ACCOUNTING STANDARDS REQUIRE AN ORGANIZATION TO EVALUATE ITS TAX POSITIONS AND PROVIDE FOR A LIABILITY FOR ANY POSITIONS THAT WOULD NOT BE CONSIDERED 'MORE LIKELY THAN NOT' TO BE UPHELD UNDER A TAX AUTHORITY EXAMINATION. MANAGEMENT HAS EVALUATED ITS TAX POSITIONS AND HAS CONCLUDED THAT A PROVISION FOR A TAX LIABILITY IS NOT NECESSARY AT JUNE 30, 2021. GENERALLY, THE ORGANIZATION'S INFORMATION RETURNS REMAIN OPEN FOR EXAMINATION FOR A PERIOD OF THREE (FEDERAL) OR FOUR (STATE OF CALIFORNIA) YEARS FROM THE DATE OF FILING. | ExplanationTxt |
Schedule I IRS990ScheduleI
| Field | Value | IRS element (for citing) |
|---|---|---|
| Grant Records Maintained | Yes (1) | GrantRecordsMaintainedInd |
Recipient Table RecipientTable (2 entries)
| Address Line1USAddress/AddressLine1Txt | CityUSAddress/CityNm | State AbbreviationUSAddress/StateAbbreviationCd | ZIPUSAddress/ZIPCd | Recipient EINRecipientEIN | IRC SectionIRCSectionDesc | Cash GrantCashGrantAmt | Purpose Of GrantPurposeOfGrantTxt |
|---|---|---|---|---|---|---|---|
| OREGON HEALTH & SCIENCE UNIVERS FOUNDATION | |||||||
| 1121 SW SALMON STREET 100 | PORTLAND | OR | 97205 | 237083114 | 501(C)(3) | $20,000 | EARLY INVESTIGATOR AWARD (JBRF) |
| CHILDREN'S HOSPITAL OF PHILADELPHIA | |||||||
| 3615 CIVIC CENTER BLVD ARC 142D | PHILADELPHIA | PA | 19104 | 232237932 | 501(C)(3) | $103,292 | IMAGING & BIOMARKERS IN CHILDREN |
| Field | Value | IRS element (for citing) |
|---|---|---|
| Total501c3 Org | 2 | Total501c3OrgCnt |
Supplemental Information Detail SupplementalInformationDetail
| Field | Value | IRS element (for citing) |
|---|---|---|
| Form And Line Reference | PART I, LINE 2: | FormAndLineReferenceDesc |
| Explanation | RESEARCHERS ARE REQUIRED TO PROVIDE THE ORGANIZATION WITH PROGRESS REPORTS BASED ON A VARIETY OF MILESTONES INDIVIDUAL TO EACH STUDY, AND TO ENSURE THAT ANY PUBLICATION IN PEER REVIEW ACKNOWLEDGES THE ORGANIZATION'S FUNDING SUPPORT TOWARD THE EFFORT. | ExplanationTxt |
Schedule J IRS990ScheduleJ
| Field | Value | IRS element (for citing) |
|---|---|---|
| Board Or Committee Approval | Yes (X) | BoardOrCommitteeApprovalInd |
| Severance Payment | 0 | SeverancePaymentInd |
| Supplemental Nonqual Rtr Plan | 0 | SupplementalNonqualRtrPlanInd |
| Equity Based Comp Arrngm | 0 | EquityBasedCompArrngmInd |
| Comp Based On Revenue Of Flng Org | 0 | CompBasedOnRevenueOfFlngOrgInd |
| Comp Bsd On Rev Related Orgs | 0 | CompBsdOnRevRelatedOrgsInd |
| Comp Bsd Net Earns Flng Org | 0 | CompBsdNetEarnsFlngOrgInd |
| Comp Bsd Net Earns Rltd Orgs | 0 | CompBsdNetEarnsRltdOrgsInd |
| Any Non Fixed Payments | 0 | AnyNonFixedPaymentsInd |
| Initial Contract Exception | 0 | InitialContractExceptionInd |
Rltd Org Officer Trst Key Empl RltdOrgOfficerTrstKeyEmplGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Person | CASSIE SHAFER | PersonNm |
| Title | CHIEF EXECUTIVE OFFICER | TitleTxt |
| Base Compensation Filing Org | $199,955 | BaseCompensationFilingOrgAmt |
| Compensation Based On Rltd Orgs | $0 | CompensationBasedOnRltdOrgsAmt |
| Bonus Filing Organization | $0 | BonusFilingOrganizationAmount |
| Bonus Related Organizations | $0 | BonusRelatedOrganizationsAmt |
| Other Compensation Filing Org | $0 | OtherCompensationFilingOrgAmt |
| Other Compensation Rltd Orgs | $0 | OtherCompensationRltdOrgsAmt |
| Deferred Compensation Flng Org | $5,994 | DeferredCompensationFlngOrgAmt |
| Deferred Comp Rltd Orgs | $0 | DeferredCompRltdOrgsAmt |
| Nontaxable Benefits Filing Org | $0 | NontaxableBenefitsFilingOrgAmt |
| Nontaxable Benefits Rltd Orgs | $0 | NontaxableBenefitsRltdOrgsAmt |
| Total Compensation Filing Org | $205,949 | TotalCompensationFilingOrgAmt |
| Total Compensation Rltd Orgs | $0 | TotalCompensationRltdOrgsAmt |
| Comp Report Prior990 Filing Org | $0 | CompReportPrior990FilingOrgAmt |
| Comp Report Prior990 Rltd Orgs | $0 | CompReportPrior990RltdOrgsAmt |
Schedule O IRS990ScheduleO
Supplemental Information Detail SupplementalInformationDetail (5 entries)
| Form And Line ReferenceFormAndLineReferenceDesc | ExplanationExplanationTxt |
|---|---|
| FORM 990, PART VI, SECTION B, LINE 11B | THE AUDIT COMMITTEE REVIEWS THE DOCUMENT PRIOR TO ITS DISTRIBUTION TO THE ENTIRE BOARD FOR REVIEW. |
| FORM 990, PART VI, SECTION B, LINE 12C | ALL DIRECTORS AND SENIOR EMPLOYEES ARE REQUIRED TO COMPLETE AND SIGN A DISCLOSURE FORM LISTING ANY POTENTIAL CONFLICTS OF INTEREST BY SEPTEMBER 30, ANNUALLY. |
| FORM 990, PART VI, SECTION B, LINE 15 | THE ORGANIZATION UTILIZES CURRENT COMPENSATION DATA PUBLISHED BY THE NATIONAL HEALTH COUNCIL AND THE AMERICAN SOCIETY OF ASSOCIATION EXECUTIVES, AND OTHER FACTORS IN ORDER TO DETERMINE COMPENSATION. |
| FORM 990, PART VI, SECTION C, LINE 19 | THE ORGANIZATION PRODUCES AN ANNUAL REPORT THAT IS PUBLISHED ON ITS WEBSITE |
| FORM 990, PART XII, LINE 2C | THE ORGANIZATION'S AUDIT COMMITTEE HAS RESPONSIBILITY FOR THE OVERSIGHT OF THE AUDIT OF ITS FINANCIAL STATEMENTS AND SELECTION OF THE INDEPENDENT AUDITOR, SUBJECT TO THE APPROVAL OF THE BOARD OF DIRECTORS. THIS RESPONSIBILITY IS UNCHANGED FROM THE PRIOR YEAR. |
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