2021-10-04T14:31:32-05:00 2021-06-30 320530003 QUIGLEY & MIRON 3550 WILSHIRE BLVD 1660 LOS ANGELES CA 90010 990 2020-07-01 953890767 SPONDYLITIS ASSOCIATION OF AMERICA SPON 8188921616 16430 VENTURA BLVD NO 300 ENCINO CA 91436 CASSIE SHAFER CHIEF EXECUTIVE OFFICER 8188921616 2021-10-04 CASSIE SHAFER 999009999 ARMEN GRIGORIAN P01582463 2136393550 2 AAL1 IAL1 2020 2022-09-23 18:48:47Z CASSIE SHAFER 16430 VENTURA BLVD NO 300 ENCINO CA 91436 4474852 0 X WWW.SPONDYLITIS.ORG X 1983 CA ADVANCING RESEARCH, ACCELERATED DIAGNOSIS, OPTIMUM TREATMENT, PUBLIC AWARENESS AND HEALTH CARE PROFESSIONAL EDUCATION IN SPONDYLOARTHRITIS 12 12 12 115 0 0 2181281 2996504 7647 3551 23359 59232 0 0 2212287 3059287 121854 123292 0 0 1167778 1250189 0 0 98800 758378 656276 2048010 2029757 164277 1029530 4049261 4942936 387069 225104 3662192 4717832 X ADVANCING AND DIRECTLY SPONSORING SPONDYLOARTHRITIS RESEARCH, ACCELERATING DIAGNOSIS, SUPPORTING OPTIMUM TREATMENT FOR THE INDIVIDUAL, ADVANCING AWARENESS, AND PUBLIC AND HEALTH CARE PROFESSIONAL EDUCATION IN SPONDYLOARTHRITIS. 0 0 709209 3551 PATIENT CONFERENCES, EDUCATION, AND PUBLICATIONSSAA SPONSORS PATIENT EDUCATION CONFERENCES, SEMINARS, AND PATIENT SUPPORT PROGRAMS THROUGH THE USE OF VARIOUS MEDIA PLATFORMS AND OUTLETS. SAA'S INTERACTIVE WEBSITE LOCATED AT WWW.SPONDYLITIS.ORG SERVES MORE THAN 500,000 UNIQUE VISITORS.PATIENT EDUCATION SEMINARS WERE HELD VIRTUALLY UTILIZING A ROBUST AND INTERACTIVE VIRTUAL CONFERENCE PLATFORM. THE PLATFORM FEATURED AN ANIMATED, AND INTERACTIVE LOBBY TO ACCESS DIFFERENT PARTS OF THE CONFERENCE HALL, INCLUDING EXHIBIT HALL, ACTIVITY LOUNGE, SPA RESOURCES HUB, AND PRESENTATION HALL WHERE ATTENDEES ACCESSED THE SPEAKERS' LIVE PRESENTATIONS AND TAKE PART IN MODERATED Q&A SESSIONS. IN ADDITION, FACEBOOK "LIVE" SEMINARS WERE ALSO CONDUCTED. THESE SEMINARS ARE RECORDED AND AVAILABLE FOR FUTURE USE THROUGH SAA'S WEBSITE. VIDEO SERIES PROJECT: "LIFE AFTER DIAGNOSIS" - A PATIENT-FOCUSED EDUCATIONAL PROGRAM ADDRESSING THE UNMET NEED OF A SYSTEMATIC PATH TO UNDERSTANDING THE DIAGNOSIS, TREATMENTS, AND MANAGEMENT OF ANKYLOSING SPONDYLITIS (AS). THESE PROJECTS INCLUDE A SEVEN-WEEK, SELF-MANAGEMENT EDUCATIONAL PROGRAM DESIGNED TO HELP PARTICIPANTS GAIN CONFIDENCE AND SKILLS TO BETTER MANAGE THEIR AS THROUGH A WHOLE PERSON APPROACH TO PHYSICAL, MENTAL, AND EMOTIONAL WELLNESS. SUBJECT MATTER EXPERTS AND CONTENT WRITERS HAVE BEEN RECRUITED FOR EACH OF THE SEVEN TOPICS.IMAS (INTERNATIONAL MAPPING ANKYLOSING SPONDYLITIS) - A PATIENT-CONCEIVED STUDY TO UNDERSTAND THE RAMIFICATIONS OF AS. SIMILAR TO SAA'S LIFE IMPACT STUDIES, IT HAS PRESENTED RESULTS FROM SEVERAL COUNTRIES IN EUROPE. SAA LAUNCHED THE USA COMPONENT OF THIS STUDY IN LATE SPRING.LIFE IMPACT SURVEY - RESULTS FROM THIS SURVEY CONTINUED TO BE DELIVERED THROUGH THIS REPORTING PERIOD. ABSTRACTS AND POSTERS WERE COMPLETED AND PRESENTED AT VARIOUS CONFERENCES THROUGHOUT THE YEAR. THE SURVEY WAS CONDUCTED WITH PATIENTS TO IDENTIFY PROPORTION OF PATIENTS WITH DELAYED DIAGNOSIS, REASONS, AND TREATMENT. RESULTS FROM THE SURVEY CONTINUED TO BE USED THROUGHOUT THE YEAR WITH ANALYSIS OF SPECIFIC AREAS TO CREATE WEBINARS AND OTHER EDUCATIONAL PROGRAMMING OPPORTUNITIES.SPONDYLITIS PLUS - MEMBERS OF SAA RECEIVE A QUARTERLY COPY OF THE ORGANIZATION'S PREMIERE PRINT PUBLICATION. SPONDYLITIS PLUS TACKLES ISSUES SUCH AS PAIN, FATIGUE, AND OTHER COMPLICATIONS, DISCUSSES THE LATEST RESEARCH AND TREATMENT INFORMATION (OFTEN PRESENTED BY PROMINENT RHEUMATOLOGISTS AND RESEARCHERS), AND FEATURES MOVING AND UNIQUE PERSONAL STORIES FROM OTHERS WITH SPA, AND MUCH MORE. OVER 5,000 COPIES ARE DISTRIBUTED QUARTERLY.ESUN - MORE THAN 43,000 PEOPLE SUBSCRIBE TO AND RECEIVE SAAFS MONTHLY SPONDYLITIS EDUCATION AND AWARENESS E-NEWSLETTER. IT CONTAINS A VARIETY OF SPONDYLITIS-RELATED CONTENT, SUCH AS NEWS, RESEARCH OPPORTUNITIES, STORIES FROM SPONDYLITIS PATIENTS, AND MORE.COVID-19 RESOURCE HUB AND RESEARCH SURVEY - WE CONTINUE TO SURVEY AND SUBMIT FINDINGS IN PEER REVIEWED SETTINGS. NUMEROUS ABSTRACTS HAVE BEEN SUBMITTED. SAA'S COVID-19 HUB CONTINUES TO BE UPDATED WITH THE LATEST INFORMATION PERTAINING TO INITIAL VACCINES AND BOOSTER VACCINES AS IT BECOMES AVAILABLE.GLOBAL SPONDYLOARTHRITIS SUMMIT 2021 - SAA'S SIGNATURE ONLINE EDUCATIONAL PROGRAM, 3RD ANNUAL GLOBAL SPONDYLOARTHRITIS SUMMIT, TOOK PLACE MAY 6-7. THIS YEAR'S ENHANCED VIRTUAL ENVIRONMENT PROVIDED A MORE INTERACTIVE EXPERIENCE FOR ATTENDEES. THE PROGRAM FEATURED 12 RHEUMATOLOGISTS AND MEDICAL PROFESSIONALS DISCUSSING KEY TOPICS TO THOSE IN THE INTERNATIONAL SPONDYLITIS COMMUNITY. SEVERAL OF THIS YEAR'S EXPERTS PARTICIPATED IN LIVE CHATS OR MODERATED ONLINE Q&A WITH ATTENDEES. THIS YEAR'S SUMMIT ALSO FEATURED DAILY TRIVIA QUIZZES, A LEADERBOARD CHALLENGE, A LIVE MAGIC SHOW, A LIVE JAZZ HAPPY HOUR, AN ACTIVITY LOUNGE AND AN EXHIBIT HALL. SAA ALSO PROVIDED FOREIGN LANGUAGE SUBTITLES FOR THE PRESENTATIONS. SUBTITLES WERE AVAILABLE IN SIX LANGUAGES. ALMOST 3,000 ATTENDEES FROM 87 COUNTRIES REGISTERED FOR THIS YEAR'S EVENT. 311982 AWARENESS AND SUPPORT GROUPSSAA'S SUPPORT GROUPS CONTINUE TO BE ACTIVE ACROSS THE US. 47 ACTIVE GROUPS, IN 30 STATES, WITH 64 SUPPORT GROUP LEADERS. ONLINE SUPPORT GROUPS MADE AVAILABLE DURING COVID-19 FOR ALL PARTICIPANTS AS NEEDED. MORE THAN 225 MEETINGS WERE HELD THROUGH JUNE 2021. THE NUMBER OF GROUPS HAS HELD STEADY DURING THIS REPORTING PERIOD AS OUR COMMUNITY HAS ACCLIMATED TO LIFE DURING THE PANDEMIC.VIRTUAL SUPPORT GROUP LEADER TRAINING CONFERENCE PLANNING HAS BEEN TAKING PLACE THE LAST SIX MONTHS OF 2020 WITH THE VIRTUAL TRAINING CONFERENCE SCHEDULED FOR JULY 17, 2021. PLANNING COMMITTEE CONSISTS OF NINE SUPPORT GROUP LEADERS. 263448 PHYSICIANS EDUCATION (EMT, CHIRO, PCP, RHEUMATOLOGY)PRIMARY CARE, AND CHIROPRACTOR ACCREDITED ONLINE EDUCATION: FOCUSING ON SHORTENING THE SPA DIAGNOSTIC DELAY - PHASE TWO OF A THREE YEAR GRANT-THE CHIROPRACTIC MODULE HAS BEEN COMPLETED, UNDERGONE REVIEW AND FINALIZED. IMMEDIATE ACTION MEDICINE, INC. (IAMED) IS IN THE PROCESS OF CHIROPRACTIC ACCREDITATION APPLICATION APPROVED THROUGH PACE (PROVIDERS OF APPROVED CONTINUING EDUCATION) WHICH IS GOVERNED BY THE FEDERATION OF CHIROPRACTIC LICENSING BOARDS.-THE PRIMARY CARE MODULE HAS BEEN COMPLETED, UNDERGONE REVIEW. VOICEOVER RECORDINGS ARE IN PROCESS AND ONCE COMPLETED, SAA WILL PARTNER WITH EXCEL CME TO JOINTLY SECURE AND PROVIDE THE ACCREDITATION NEEDED TO PROVIDE CME HOURS FOR PRIMARY CARE PROVIDERS.-THE ANESTHESIOLOGIST MODULE IS A NEW MODULE ADDED DURING THE LAST QUARTER OF FY 2021. IT IS EXPECTED TO BE COMPLETED AND APPROVED WITH CME'S DURING FY 2022. 371783 123292 CLINICAL POCKET GUIDE FOR NON-RHEUMATOLOGISTS - AXIAL SPONDYLOARTHRITIS (AXSPA) CAN IMPACT EVERY CORNER OF LIFE. THIS POTENTIALLY DEBILITATING BUT MANAGEABLE RHEUMATIC CONDITION PRESENTS REAL CHALLENGES FOR PATIENTS AND CARE PROVIDERS ALIKE, BUT THE RIGHT CARE PROFESSIONAL, INCLUDING THOSE IN THE PRIMARY CARE SETTING, CAN MAKE ALL THE DIFFERENCE. AXSPA IS OFTEN DIFFICULT TO DIAGNOSE PARTLY BECAUSE ITS MOST COMMON SYMPTOM, BACK PAIN, IS A PERVASIVE PATIENT COMPLAINT WITH A VARIETY OF UNDERLYING CAUSES. THIS PARTIALLY EXPLAINS WHY IT CAN TAKE UP TO 10 YEARS TO OBTAIN THE CORRECT DIAGNOSIS. AXSPA AFFECTS ROUGHLY 3.2 MILLION ADULTS IN THE U.S. ALONE, MAKING IT MORE COMMON THAN RHEUMATOID ARTHRITIS. DESPITE THIS REALITY, AXSPA IS NOT ALWAYS WELL UNDERSTOOD BY THE GENERAL PUBLIC OR EVEN MEDICAL PROFESSIONALS. THIS DOCUMENT PROVIDES AN OVERVIEW OF AXSPA, AS WELL AS REFERRAL STRATEGIES AND TREATMENT RECOMMENDATIONS FOR PRIMARY CARE PHYSICIANS AND OTHER HEALTH PROFESSIONALS.DELAY TO DIAGNOSIS - SAA CONTINUES TO COLLABORATE WITH ASIF (AXIAL SPONDYLOARTHRITIS INTERNATIONAL FEDERATION) INITIATIVE TO UNDERSTAND THE DELAY TO DIAGNOSIS ON A GLOBAL LEVEL. INFORMATION GLEANED FROM "HACKATHON" PROGRAMS WILL BE SHARED WITH SPA COMMUNITY THROUGH THE SUMMER 2021 LAUNCH OF A GLOBAL INITIATIVE THAT INCLUDES INFORMATION ON THE WEBSITE AND SHARED WITH NUMEROUS MEMBER ORGANIZATIONS.RHEUM 2 DX AND SPONDYLOARTHRITIS RESEARCHRHEUM 2 DX. PHASE TWO OF A THREE YEAR GRANT. THE GOAL OF "RHEUM 2 DIAGNOSE" IS TO ADDRESS REAL WORLD BARRIERS TO AN ACCURATE AND EXPEDIENT DIAGNOSIS OF NR-AXSPA IN THE RHEUMATOLOGY SETTING. THIS ONLINE SERIES WILL HAVE TWO PARTS; A TOTAL OF THREE EDUCATIONAL PRESENTATIONS GEARED TO RHEUMATOLOGY FELLOWS, AND A TOTAL OF THREE EDUCATIONAL PRESENTATIONS GEARED TO MEDICAL STUDENTS. WORKING WITH SUBJECT MATTER EXPERTS (SMEFS) WHO WILL BE RESPONSIBLE FOR PROVIDING THE EDUCATIONAL CONTENT TO SAA IN A CLEAR AND DIGESTIBLE FORM. TOGETHER WE WILL WORK WITH DVI (VIDEO PRODUCTION COMPANY) TO PROFESSIONALLY (AND VIRTUALLY) RECORD THEIR PRESENTATIONS.EARLY CAREER INVESTIGATOR AWARDS (ECI) - ONE ECI AWARD WAS PRESENTED IN FY 2021 FOR $20,000, AWARDED TO TEJPAL GILL, PHD, ASSOCIATE PROFESSOR AT THE DIVISION ARTHRITIS AND RHEUMATIC DISEASES, OREGON HEALTH AND SCIENCE UNIVERSITY (OHSU), PORTLAND OR. DR. GILL'S MAIN FOCUS IS ON DECIPHERING THE HOST-MICROBE INTERACTIONS LEADING TO THE PATHOGENESIS (ORIGIN AND DEVELOPMENT) OF SPONDYLOARTHRITIS (SPA), ESPECIALLY ANKYLOSING SPONDYLITIS. DR. GILL HAS DEMONSTRATED THAT HLAB-27 ASSOCIATED MICROBIAL DYSBIOSIS IS DISTINCT BETWEEN DIFFERENT HOST BACKGROUNDS AND/OR ENVIRONMENT. AND YET, IN THE SUSCEPTIBLE GENETIC BACKGROUNDS, THE SAME IMMUNE/INFLAMMATORY RESPONSE IS OBSERVED. THESE RESULTS ARE IN CONTRAST TO THE EXISTING NOTION THAT A SINGLE OR A SMALL NUMBER OF MICROBES MAY DRIVE SPA DISEASE. DR. GILL'S CAREER GOAL IS TO INVESTIGATE THE MOLECULAR AND MICROBIAL MECHANISMS LEADING TO THE DEVELOPMENT OF SPA. CURRENTLY, HER GROUP IS INVESTIGATING THE RELATIONSHIP BETWEEN THE GUT MICROBES AND IMMUNE RESPONSE IN HLA-B27 POSITIVE PATIENTS WITH ANKYLOSING SPONDYLITIS. EFFORTS ARE UNDERWAY TO IDENTIFY GENES IN ADDITION TO HLA-B27 THAT MAY CONTRIBUTE TO DEVELOPMENT OF SPA. SINCE MANY ANKYLOSING SPONDYLITIS PATIENTS PRESENT SUBCLINICAL GUT INFLAMMATION, SHE IS WORKING TOWARDS THE DEVELOPMENT OF INTESTINAL ORGANOIDS-A NOVEL TOOL IN CELL BIOLOGY STUDY-TO DECIPHER THE MOLECULAR MECHANISMS LEADING TO HLA-B27-ASSOCIATED LOSS OF GUT EPITHELIAL BARRIER FUNCTION.IN ADDITION TO FUNDING ECI AWARDS, THE ORGANIZATION RECEIVES FUNDING REQUESTS FROM OUTSIDE SOURCES TO SUPPORT RESEARCH RELATED TO SPONDYLOARTHRITIS. BECAUSE THE ORGANIZATION HAS LIMITED RESOURCES FOR RESEARCH FUNDING, IT IS IMPERATIVE THAT ANY RESEARCH PROPOSALS MAKE OPTIMAL USE OF THESE LIMITED RESOURCES. TWO FUNDING REQUESTS WERE APPROVED STARTING IN 2019 AND RUNNING THROUGH 2021. BOTH GRANTS WENT TO CHILDREN'S HOSPITAL OF PHILADELPHIA FOR TWO DIFFERENT PROJECTS. -PAMELA WEISS, MD, MSCE, DIRECTOR OF CLINICAL RESEARCH AND ATTENDING, DIVISION OF RHEUMATOLOGY, CHILDREN'S HOSPITAL OF PHILADELPHIA ASSOCIATE PROFESSOR OF PEDIATRICS AND EPIDEMIOLOGY, UNIVERSITY OF PENNSYLVANIA PERELMAN SCHOOL OF MEDICINE RECEIVED FUNDING FOR AN "EXERCISE FOR DEVELOPMENT OF PEDIATRIC AXIAL DISEASE CLASSIFICATION CRITERIA", A COMPANION PROJECT TO AN NIH RO1 GRANT WITH DR. WEISS TO FILL THE UNMET NEED FOR A PEDIATRIC CLASSIFICATION CRITERIA. THE SAA GRANT WILL BE USED TO FUND IN-PERSON MEETING OF LEADING EXPERTS IN JUVENILE SPA. DUE TO THE COVID-19 STAY AT HOME TRAVEL RESTRICTIONS, THE MEETING IN GHENT (EUROPE) WAS POSTPONED. A NEW PROPOSED MEETING IS BEING PLANNED. -DR. WEISS'S SECOND GRANT IS ANCILLARY TO A PATIENT-CENTERED OUTCOMES RESEARCH INSTITUTE (PCORI) GRANT TITLED THE ROLE OF IMAGING AND SEROLOGIC BIOMARKERS IN PREDICTING FLARE IN CHILDREN WITH SPONDYLOARTHRITIS. THIS WILL BE A THREE-YEAR FUNDED GRANT BY SAA. PRINCIPAL INVESTIGATOR: PAMELA WEISS, MD MSCE, ASSOCIATE PROFESSOR OF PEDIATRICS AND EPIDEMIOLOGY, UPENN PERELMAN SCHOOL OF MEDICINE CLINICAL RESEARCH DIRECTOR AND ATTENDING PHYSICIAN, DIVISION OF RHEUMATOLOGY, CHOP. THIS TRIAL WILL HOPEFULLY IMPACT THE EVIDENCE BASE TO MAKE DECISIONS AT POINT OF CARE OF OUR KIDS WITH SPA WHO ARE IN SUSTAINED REMISSION AND INTERESTED IN TRIALING OFF TNFI. THIS PROJECT AUGMENTS A PCORI FUNDED STUDY. 371783 123292 1656422 1 1 0 0 0 0 0 0 0 0 1 0 0 0 0 1 1 0 0 0 0 0 0 0 0 0 0 1 0 1 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 1 12 0 12 1 0 0 0 0 0 0 0 0 0 0 0 0 X 12 12 0 0 0 0 0 0 0 1 1 0 0 1 1 1 1 1 1 1 1 0 CA X X X CASSIE SHAFER 8188921616 16430 VENTURA BLVD SUITE 300 ENCINO CA 91436 ELLEN CARROLL SECRETARY 2.00 X X 0 0 0 CRAIG GIMBEL DIRECTOR 1.00 X 0 0 0 ERIC GOLDSTEIN TREASURER 2.00 X X 0 0 0 PAMELA WEISS DIRECTOR 1.00 X 0 0 0 ARNOLD M PODOLSKY DIRECTOR 1.00 X 0 0 0 MARY ANN POLADIAN DIRECTOR 1.00 X 0 0 0 JILL MILLER DIRECTOR 1.00 X 0 0 0 MICHAEL PIANIN BOARD CHAIR 2.00 X X 0 0 0 BATYA BILMES LEMLER DIRECTOR 1.00 X 0 0 0 JOHN D REVEILLE DIRECTOR 1.00 X 0 0 0 JAMES ROSENBAUM DIRECTOR 1.00 X 0 0 0 PAULA OLSIEWSKI VICE CHAIR 2.00 X X 0 0 0 CASSIE SHAFER CHIEF EXECUTIVE OFFICER 40.00 X 199955 0 5994 DIANN PETERSON CHIEF PHILANTHROPY OFFICER 40.00 X 108895 0 12946 RICHARD HOWARD CHIEF MISSION ADVANCEMENT OFFICER 40.00 X 112128 0 3360 420978 0 22300 3 0 1 0 0 205900 2790604 500 2996504 PUBLICATION SALES 611710 3551 3551 3551 61787 61787 1413010 1409668 5897 3342 -5897 -2555 -2555 3059287 3551 0 59232 123292 123292 205949 164759 20595 20595 870108 709533 104911 55664 20611 16614 2636 1361 76114 61252 9256 5606 77407 61361 9993 6053 66449 66449 190642 190642 242794 186409 50941 5444 25899 22099 2200 1600 51551 44600 5601 1350 56724 56724 17804 14724 1953 1127 STATE LICENSING 4413 4413 2029757 1656422 274535 98800 636894 424746 2833300 4017438 207518 3174 9821 69922 57644 43015 12721 14629 274524 355162 69042 54247 5441 3618 4049261 4942936 181169 225104 205900 0 387069 225104 X 2528016 3654020 1134176 1063812 3662192 4717832 4049261 4942936 1029530 26110 0 X X 0 1 X 1 0 X 1666271 1652738 1941665 2181281 2996504 10438459 1666271 1652738 1941665 2181281 2996504 10438459 4500844 5937615 25145 35065 68076 65844 61787 255917 10694376 31208 0.55520 0.60840 X SCHEDULE A, PART VI, LIST OF UNUSUAL GRANTS: DESCRIPTION: CONTRIBUTION DATE: 06/30/18 AMOUNT: 982773. RESTRICTED RESTRICTED RESTRICTED RESTRICTED RESTRICTED RESTRICTED RESTRICTED RESTRICTED 42723 33874 8849 14921 9141 5780 14629 X 3085397 26110 26110 3059287 0 3059287 2029757 0 2029757 0 2029757 PART X, LINE 2: ACCOUNTING STANDARDS REQUIRE AN ORGANIZATION TO EVALUATE ITS TAX POSITIONS AND PROVIDE FOR A LIABILITY FOR ANY POSITIONS THAT WOULD NOT BE CONSIDERED 'MORE LIKELY THAN NOT' TO BE UPHELD UNDER A TAX AUTHORITY EXAMINATION. MANAGEMENT HAS EVALUATED ITS TAX POSITIONS AND HAS CONCLUDED THAT A PROVISION FOR A TAX LIABILITY IS NOT NECESSARY AT JUNE 30, 2021. GENERALLY, THE ORGANIZATION'S INFORMATION RETURNS REMAIN OPEN FOR EXAMINATION FOR A PERIOD OF THREE (FEDERAL) OR FOUR (STATE OF CALIFORNIA) YEARS FROM THE DATE OF FILING. 1 OREGON HEALTH & SCIENCE UNIVERS FOUNDATION 1121 SW SALMON STREET 100 PORTLAND OR 97205 237083114 501(C)(3) 20000 EARLY INVESTIGATOR AWARD (JBRF) CHILDREN'S HOSPITAL OF PHILADELPHIA 3615 CIVIC CENTER BLVD ARC 142D PHILADELPHIA PA 19104 232237932 501(C)(3) 103292 IMAGING & BIOMARKERS IN CHILDREN 2 PART I, LINE 2: RESEARCHERS ARE REQUIRED TO PROVIDE THE ORGANIZATION WITH PROGRESS REPORTS BASED ON A VARIETY OF MILESTONES INDIVIDUAL TO EACH STUDY, AND TO ENSURE THAT ANY PUBLICATION IN PEER REVIEW ACKNOWLEDGES THE ORGANIZATION'S FUNDING SUPPORT TOWARD THE EFFORT. X 0 0 0 0 0 0 0 0 0 CASSIE SHAFER CHIEF EXECUTIVE OFFICER 199955 0 0 0 0 0 5994 0 0 0 205949 0 0 0 FORM 990, PART VI, SECTION B, LINE 11B THE AUDIT COMMITTEE REVIEWS THE DOCUMENT PRIOR TO ITS DISTRIBUTION TO THE ENTIRE BOARD FOR REVIEW. FORM 990, PART VI, SECTION B, LINE 12C ALL DIRECTORS AND SENIOR EMPLOYEES ARE REQUIRED TO COMPLETE AND SIGN A DISCLOSURE FORM LISTING ANY POTENTIAL CONFLICTS OF INTEREST BY SEPTEMBER 30, ANNUALLY. FORM 990, PART VI, SECTION B, LINE 15 THE ORGANIZATION UTILIZES CURRENT COMPENSATION DATA PUBLISHED BY THE NATIONAL HEALTH COUNCIL AND THE AMERICAN SOCIETY OF ASSOCIATION EXECUTIVES, AND OTHER FACTORS IN ORDER TO DETERMINE COMPENSATION. FORM 990, PART VI, SECTION C, LINE 19 THE ORGANIZATION PRODUCES AN ANNUAL REPORT THAT IS PUBLISHED ON ITS WEBSITE FORM 990, PART XII, LINE 2C THE ORGANIZATION'S AUDIT COMMITTEE HAS RESPONSIBILITY FOR THE OVERSIGHT OF THE AUDIT OF ITS FINANCIAL STATEMENTS AND SELECTION OF THE INDEPENDENT AUDITOR, SUBJECT TO THE APPROVAL OF THE BOARD OF DIRECTORS. THIS RESPONSIBILITY IS UNCHANGED FROM THE PRIOR YEAR.