SPONDYLITIS ASSOCIATION OF AMERICA: Form 990, tax year 2022
View the entire original 990 at ProPublica ↗
- Organization
- SPONDYLITIS ASSOCIATION OF AMERICA (EIN 95-3890767)
- Tax period
- 2022-07-01 to 2023-06-30
- Filed
- 2023-10-17
- IRS object ID
- 202332909349301183
- Schema version
- 2022v5.0
- Source
- Download XML · Original 990 at ProPublica
Every field in the e-filed return. Faint text is the IRS element name, for citing.
Return header ReturnHeader
| Field | Value | IRS element (for citing) |
|---|---|---|
| Return | 2023-10-17T22:49:30-05:00 | ReturnTs |
| Tax Period End | 2023-06-30 | TaxPeriodEndDt |
Preparer Firm PreparerFirmGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Preparer Firm EIN | 320530003 | PreparerFirmEIN |
Preparer Firm Name PreparerFirmName
| Field | Value | IRS element (for citing) |
|---|---|---|
| Business Name Line1 | QUIGLEY & MIRON | BusinessNameLine1Txt |
Preparer US Address PreparerUSAddress
| Field | Value | IRS element (for citing) |
|---|---|---|
| Address Line1 | 3550 WILSHIRE BLVD 1660 | AddressLine1Txt |
| City | LOS ANGELES | CityNm |
| State Abbreviation | CA | StateAbbreviationCd |
| ZIP | 90010 | ZIPCd |
| Field | Value | IRS element (for citing) |
|---|---|---|
| Return Type | 990 | ReturnTypeCd |
| Tax Period Begin | 2022-07-01 | TaxPeriodBeginDt |
Filer Filer
| Field | Value | IRS element (for citing) |
|---|---|---|
| EIN | 953890767 | EIN |
Business Name BusinessName
| Field | Value | IRS element (for citing) |
|---|---|---|
| Business Name Line1 | SPONDYLITIS ASSOCIATION OF AMERICA | BusinessNameLine1Txt |
| Field | Value | IRS element (for citing) |
|---|---|---|
| Business Name Control | SPON | BusinessNameControlTxt |
| Phone | 8188921616 | PhoneNum |
US Address USAddress
| Field | Value | IRS element (for citing) |
|---|---|---|
| Address Line1 | 16430 VENTURA BLVD 300 | AddressLine1Txt |
| City | ENCINO | CityNm |
| State Abbreviation | CA | StateAbbreviationCd |
| ZIP | 91436 | ZIPCd |
Business Officer BusinessOfficerGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Person | CASSIE SHAFER | PersonNm |
| Person Title | CHIEF EXECUTIVE OFFICER | PersonTitleTxt |
| Phone | 8188921616 | PhoneNum |
| Signature | 2023-10-17 | SignatureDt |
Signing Officer SigningOfficerGrp
Person Full Name PersonFullName
| Field | Value | IRS element (for citing) |
|---|---|---|
| Person First | CASSIE | PersonFirstNm |
| Person Last | SHAFER | PersonLastNm |
| Field | Value | IRS element (for citing) |
|---|---|---|
| SSN | 999009999 | SSN |
| Field | Value | IRS element (for citing) |
|---|---|---|
| IRS Responsible Prty Info Curr | 0 | IRSResponsiblePrtyInfoCurrInd |
Preparer Person PreparerPersonGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Preparer Person | ARMEN GRIGORIAN | PreparerPersonNm |
| PTIN | P01582463 | PTIN |
| Phone | 2136393550 | PhoneNum |
Additional Filer Information AdditionalFilerInformation
Trusted Customer TrustedCustomerGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Trusted Customer | 2 | TrustedCustomerCd |
| Authentication Assurance Level | AAL1 | AuthenticationAssuranceLevelCd |
| Identity Assurance Level | IAL1 | IdentityAssuranceLevelCd |
| Field | Value | IRS element (for citing) |
|---|---|---|
| Tax | 2022 | TaxYr |
| Build TS | 2023-04-26 12:10:37Z | BuildTS |
Form 990 IRS990
| Field | Value | IRS element (for citing) |
|---|---|---|
| Principal Officer | CASSIE SHAFER | PrincipalOfficerNm |
US Address USAddress
| Field | Value | IRS element (for citing) |
|---|---|---|
| Address Line1 | 16430 VENTURA BLVD 300 | AddressLine1Txt |
| City | ENCINO | CityNm |
| State Abbreviation | CA | StateAbbreviationCd |
| ZIP | 91436 | ZIPCd |
| Field | Value | IRS element (for citing) |
|---|---|---|
| Gross Receipts | $2,348,536 | GrossReceiptsAmt |
| Group Return For Affiliates | 0 | GroupReturnForAffiliatesInd |
| Organization501c3 | Yes (X) | Organization501c3Ind |
| Website Address | WWW.SPONDYLITIS.ORG | WebsiteAddressTxt |
| Type Of Organization Corp | Yes (X) | TypeOfOrganizationCorpInd |
| Formation | 1983 | FormationYr |
| Legal Domicile State | CA | LegalDomicileStateCd |
| Activity Or Mission | ADVANCING RESEARCH, ACCELERATED DIAGNOSIS, OPTIMUM TREATMENT, PUBLIC AWARENESS AND HEALTH CARE PROFESSIONAL EDUCATION IN SPONDYLOARTHRITIS | ActivityOrMissionDesc |
| Voting Members Governing Body | 12 | VotingMembersGoverningBodyCnt |
| Voting Members Independent | 12 | VotingMembersIndependentCnt |
| Total Employee | 15 | TotalEmployeeCnt |
| Total Volunteers | 165 | TotalVolunteersCnt |
| Total Gross UBI | $0 | TotalGrossUBIAmt |
| Net Unrelated Bus Txbl Incm | $0 | NetUnrelatedBusTxblIncmAmt |
| PY Contributions Grants | $5,505,466 | PYContributionsGrantsAmt |
| CY Contributions Grants | $2,200,809 | CYContributionsGrantsAmt |
| PY Program Service Revenue | $4,877 | PYProgramServiceRevenueAmt |
| CY Program Service Revenue | $5,120 | CYProgramServiceRevenueAmt |
| PY Investment Income | $60,228 | PYInvestmentIncomeAmt |
| CY Investment Income | $142,607 | CYInvestmentIncomeAmt |
| PY Other Revenue | $0 | PYOtherRevenueAmt |
| CY Other Revenue | $0 | CYOtherRevenueAmt |
| PY Total Revenue | $5,570,571 | PYTotalRevenueAmt |
| CY Total Revenue | $2,348,536 | CYTotalRevenueAmt |
| PY Grants And Similar Paid | $451,878 | PYGrantsAndSimilarPaidAmt |
| CY Grants And Similar Paid | $30,000 | CYGrantsAndSimilarPaidAmt |
| PY Benefits Paid To Members | $0 | PYBenefitsPaidToMembersAmt |
| CY Benefits Paid To Members | $0 | CYBenefitsPaidToMembersAmt |
| PY Salaries Comp Emp Bnft Paid | $1,367,444 | PYSalariesCompEmpBnftPaidAmt |
| CY Salaries Comp Emp Bnft Paid | $1,504,909 | CYSalariesCompEmpBnftPaidAmt |
| PY Total Prof Fndrsng Expns | $0 | PYTotalProfFndrsngExpnsAmt |
| CY Total Prof Fndrsng Expns | $0 | CYTotalProfFndrsngExpnsAmt |
| CY Total Fundraising Expense | $87,986 | CYTotalFundraisingExpenseAmt |
| PY Other Expenses | $953,987 | PYOtherExpensesAmt |
| CY Other Expenses | $739,029 | CYOtherExpensesAmt |
| PY Total Expenses | $2,773,309 | PYTotalExpensesAmt |
| CY Total Expenses | $2,273,938 | CYTotalExpensesAmt |
| PY Revenues Less Expenses | $2,797,262 | PYRevenuesLessExpensesAmt |
| CY Revenues Less Expenses | $74,598 | CYRevenuesLessExpensesAmt |
| Total Assets BOY | $7,928,906 | TotalAssetsBOYAmt |
| Total Assets EOY | $7,830,002 | TotalAssetsEOYAmt |
| Total Liabilities BOY | $582,891 | TotalLiabilitiesBOYAmt |
| Total Liabilities EOY | $413,366 | TotalLiabilitiesEOYAmt |
| Net Assets Or Fund Balances BOY | $7,346,015 | NetAssetsOrFundBalancesBOYAmt |
| Net Assets Or Fund Balances EOY | $7,416,636 | NetAssetsOrFundBalancesEOYAmt |
| Info In Schedule O Part III | Yes (X) | InfoInScheduleOPartIIIInd |
| Mission | ADVANCING AND DIRECTLY SPONSORING SPONDYLOARTHRITIS RESEARCH, ACCELERATING DIAGNOSIS, SUPPORTING OPTIMUM TREATMENT FOR THE INDIVIDUAL, ADVANCING AWARENESS, AND PUBLIC AND HEALTH CARE PROFESSIONAL EDUCATION IN SPONDYLOARTHRITIS. | MissionDesc |
| Significant New Program Srvc | 0 | SignificantNewProgramSrvcInd |
| Significant Change | 0 | SignificantChangeInd |
| Expense | $889,884 | ExpenseAmt |
| Revenue | $5,120 | RevenueAmt |
| Desc | PATIENT EDUCATIONAL SEMINARS, WEBINARS, AND HEALTH EDUCATION CONTENT, ALONG WITH PATIENT SUPPORT PROGRAMS ARE DELIVERED VIA VARIOUS DIGITAL OUTLETS. SAA'S INTERACTIVE WEBSITE, LOCATED AT SPONDYLITIS.ORG, CONTAINS THOUSANDS OF PAGES OF SPONDYLOARTHRITIS INFORMATION, AND SERVES MORE THAN 500,000 UNIQUE VISITORS AND 1.4 MILLION PAGE VIEWS EACH YEAR.PATIENT EDUCATIONAL SEMINARS WERE HELD VIRTUALLY UTILIZING A ROBUST AND INTERACTIVE VIRTUAL CONFERENCE PLATFORM. THE PLATFORM FEATURED AN ANIMATED AND INTERACTIVE LOBBY TO ACCESS DIFFERENT PARTS OF THE CONFERENCE HALL, INCLUDING THE EXHIBIT HALL, ACTIVITY LOUNGE, SPA RESOURCES HUB, AND PRESENTATION HALL - WHERE ATTENDEES ACCESSED THE SPEAKERS' LIVE PRESENTATIONS AND TOOK PART IN MODERATED Q&A SESSIONS. THESE BROADCASTS ARE RECORDED AND AVAILABLE FOR FUTURE USE THROUGH THE SAA WEBSITE.PATIENT EDUCATION PUBLICATIONS INCLUDE A COLLECTION OF 14 UPDATED (AND PHYSICIAN VETTED) ENGLISH LANGUAGE SPONDYLOARTHRITIS EDUCATIONAL BROCHURES, AND 10 SPANISH LANGUAGE BROCHURES. SPONDYLITIS PLUS MAGAZINE-SAA MEMBERS RECEIVE QUARTERLY ISSUES OF THE ORGANIZATION'S PREMIERE PRINT PUBLICATION. SPONDYLITIS PLUS PROVIDES IN-DEPTH COVERAGE OF ISSUES SUCH AS PAIN, FATIGUE, AND OTHER COMPLICATIONS, DISCUSSES THE LATEST RESEARCH AND TREATMENT INFORMATION - OFTEN PRESENTED BY PROMINENT RHEUMATOLOGISTS AND RESEARCHERS, FEATURES MOVING AND UNIQUE PERSONAL STORIES FROM OTHERS WITH SPONDYLOARTHRITIS, AND MUCH MORE. OVER 4,500 COPIES ARE DISTRIBUTED QUARTERLY.STRAIGHT TALK ON SPONDYLOARTHRITIS PUBLICATION-THIS LEGACY PUBLICATION IS CURRENTLY BEING FULLY RE-WRITTEN AND REDESIGNED. THE FINISHED PRODUCT WILL HAVE 12 NEW CHAPTERS, WRITTEN BY VARIOUS CONTENT EXPERTS, AND RECEIVE A FULL REDESIGN. SPONDYCAST-LAUNCHED IN MARCH 2023, SAA'S NEW PODCAST SERIES IS SPECIFICALLY FOR PEOPLE WITH SPONDYLOARTHRITIS. EACH NEW EPISODE, RELEASED WEEKLY, FEATURES INTERVIEWS WITH EXPERTS IN VARIOUS FIELDS INCLUDING MEDICINE, PSYCHOLOGY, NUTRITION, AND FITNESS. SPONDYCAST WEEKLY HOST IS SAA BOARD MEMBER, JILL MILLER.STORYTELLING-THE INITIAL YEAR-LONG LAUNCH OF SAA STORYTELLERS, YOUR STORIES ON STAGE ENDED ON A HIGH NOTE IN SPRING OF 2023. SAA STORYTELLERS, YOUR STORIES ON STAGE IS A VIRTUAL COMMUNITY STORYTELLING SHOW WHERE FIVE MEMBERS OF THE SPA COMMUNITY SHARE PERSONAL STORIES ABOUT SPONDYLOARTHRITIS DURING AN HOUR-LONG PRESENTATION THAT INSPIRES, ENTERTAINS, AND CONNECTS YOU TO LIKEMINDED PEERS. SAA ENGAGED WITH 30 PATIENT STORYTELLERS DURING 6 DIFFERENT LIVE YOUTUBE BROADCASTS FROM SPRING 2022 TO SPRING 2023. THE PATIENT STORYTELLERS WERE BASED IN THE US AS WELL AS FROM AROUND THE WORLD, WITH STORIES COMING FROM AS FAR AWAY AS KUWAIT, CROATIA, AND NEW ZEALAND. ESUN-MORE THAN 36,000 PEOPLE SUBSCRIBE TO AND RECEIVE SAA'S ESUN EACH MONTH. ESUN, THE ELECTRONIC SPONDYLOARTHRITIS UPDATE NEWSLETTER, CONTAINS A VARIETY OF SPONDYLOARTHRITIS-RELATED CONTENT, SUCH AS NEWS, RESEARCH OPPORTUNITIES, UPCOMING SAA PROGRAMS AND OPPORTUNITIES, STORIES FROM THOSE LIVING WITH SPONDYLOARTHRITIS, AND MORE.COVID-19 RESOURCE HUB-SAA'S COVID-19 HUB CONTINUES TO BE UPDATED WITH THE LATEST INFORMATION ON THE INTERSECTION OF COVID-19 AND SPONDYLOARTHRITIS.SAA'S SUPPORT GROUPS-SAA'S SUPPORT GROUPS PROVIDE A SAFE AND COMPASSIONATE ENVIRONMENT WHERE ATTENDEES CAN ASK QUESTIONS, TELL THEIR STORIES, AND LISTEN TO OTHERS - ALL IN THE SPIRIT OF LEARNING FROM ONE ANOTHER. JOINING A GROUP CAN ROUND OUT YOUR SUPPORT TEAM WITH A RELIABLE SOURCE OF HELP AND CONNECTION.THOSE WHO ATTEND SAA SUPPORT GROUPS BECOME PART OF A VAST PEER NETWORK WHERE SHARED EXPERIENCE FORMS THE BASIS OF A STRONG AND VIBRANT COMMUNITY. GROUP LEADERS AND MEMBERS OFFER SUPPORT, UNDERSTANDING, AND ENCOURAGEMENT TO ONE ANOTHER ON THE JOURNEY TOWARD ACHIEVING BETTER DISEASE MANAGEMENT AND A HIGHER QUALITY OF LIFE.SAA'S SUPPORT GROUPS CONTINUE TO BE ACTIVE ACROSS THE US. ALTHOUGH WE HAVE 44 ACTIVE GROUP LEADERS ACROSS 23 STATES, ANYONE, ANYWHERE CAN PARTICIPATE IN ANY MEETING OF THEIR CHOICE. THIS YEAR (JUL 2022-JUNE 2023) WE HAVE HELD 209 MEETINGS (AVERAGING 17 PER MONTH)."LIFE AFTER DIAGNOSIS" VIDEO SERIES-MORE THAN 2,000 PEOPLE HAVE SIGNED UP FOR THIS ON-GOING EDUCATIONAL PROGRAM ADDRESSING THE UNMET NEED OF A SYSTEMATIC PATH TO UNDERSTANDING THE DIAGNOSIS, TREATMENTS, AND MANAGEMENT OF ANKYLOSING SPONDYLITIS (AS). THE PROJECT IS COMPRISED OF A SERIES OF SEVEN VIDEOS, EACH DELIVERED THROUGH AN EMAIL CONTAINING ADDITIONAL RESOURCES RELATED TO THE TOPIC AT HAND. THE CONTENT WAS DEVELOPED IN CLOSE COLLABORATION WITH LEADING HEALTH PROFESSIONALS AS WELL AS PATIENTS LIVING WITH AS.SPONDYSTRONG-SAA EXERCISE VIDEO COLLABORATION - SAA TEAMED UP WITH THE CO-FOUNDERS OF SPONDYSTRONG TO CREATE A SERIES OF EIGHT EXERCISE VIDEOS SPECIALLY DESIGNED FOR THOSE LIVING WITH SPONDYLOARTHRITIS. SAA RELEASED TWO VIDEOS PER WEEK DURING SEPTEMBER, ONE YOGA VIDEO AND ONE FITNESS VIDEO, IN HONOR OF PAIN AWARENESS MONTH. ALL VIDEOS REMAIN AVAILABLE ON SAA'S WEBSITE AND YOUTUBE CHANNEL. CAPES (CLINICIAN AND PATIENT EDUCATION SERIES)-SAA PARTNERED WITH SPARTAN, GRAPPA, AND NPF, TO DEVELOP A SERIES OF WEBINARS AND PODCASTS TO EDUCATE PHYSICIANS AND PATIENTS ON SPONDYLOARTHRITIS AND PSORIATIC ARTHRITIS. SEVEN WEBINARS AND SEVEN PODCASTS HAVE AIRED AND ARE AVAILABLE FOR ON-DEMAND VIEWING.IMAS (INTERNATIONAL MAPPING ANKYLOSING SPONDYLITIS)-IT IS A PATIENT CONCEIVED STUDY TO UNDERSTAND THE RAMIFICATIONS OF AS. SPECIFICALLY, THE STUDY DESCRIBES DEMOGRAPHICS, CLINICAL CHARACTERISTICS, JOURNEY TO AXSPA DIAGNOSIS, AND ASPECTS OF DISEASE BURDEN. RESULTS OF THIS STUDY WERE PUBLISHED IN ACR OPEN RHEUMATOLOGY, AND THIS USA DATASET HAS BEEN ADDED TO THE GLOBAL RESULTS FOR A CLEARER PICTURE OF HOW SPONDYLOARTHRITIS IMPACTS PEOPLE INTERNATIONALLY.GLOBAL SPONDYLOARTHRITIS SUMMIT 2023-SAA'S SIGNATURE ONLINE EDUCATIONAL PROGRAM, 5TH ANNUAL GLOBAL SPONDYLOARTHRITIS SUMMIT, TOOK PLACE MAY 5-6. THIS YEAR'S ENHANCED VIRTUAL ENVIRONMENT PROVIDED A MORE INTERACTIVE EXPERIENCE FOR ATTENDEES. THE PROGRAM FEATURED 12 RHEUMATOLOGISTS AND MEDICAL PROFESSIONALS DISCUSSING KEY TOPICS TO THOSE IN THE INTERNATIONAL SPONDYLITIS COMMUNITY. SEVERAL OF THIS YEAR'S EXPERTS PARTICIPATED IN LIVE CHATS OR MODERATED ONLINE Q&A WITH ATTENDEES. PATIENTS AND RESEARCHERS WERE INVITED TO PRESENT POSTERS IN THE NEW FEATURE POSTER HALL. THIS YEAR'S SUMMIT ALSO FEATURED DAILY TRIVIA QUIZZES, A LEADERBOARD CHALLENGE, LIVE TAI CHI AND BELLY DANCING ACTIVITIES, AN ACTIVITY LOUNGE, AND AN EXHIBIT HALL. MORE THAN 3,200 ATTENDEES FROM 87 COUNTRIES REGISTERED FOR THIS YEAR'S EVENT. | Desc |
Prog Srvc Accom Acty2 ProgSrvcAccomActy2Grp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Expense | $423,816 | ExpenseAmt |
| Desc | THE PRIMARY CARE MODULE, "DEMYSTIFYING AXIAL SPONDYLOARTHRITIS IN PRIMARY CARE: RECOGNITION, DIAGNOSIS, AND WHAT COMES NEXT," CONTINUED TO ENROLL PARTICIPANTS TO INCREASE THE AWARENESS OF AXSPA AMONG PRIMARY CARE PROVIDERS, GIVING THEM THE TOOLS TO APPROPRIATELY SUSPECT, DIAGNOSE, AND REFER AXSPA PATIENTS TO RHEUMATOLOGY TO ENSURE TIMELY DIAGNOSIS AND TREATMENT, AND IMPROVE PATIENT OUTCOMES.THE MODULE IS ACCREDITED FOR AMA/PRA CATEGORY 1 CREDITS THROUGH SAA'S PARTNERSHIP WITH EXCEL CME (WWW.EXCELCME.COM). ADDITIONALLY, ACTIVITIES ACCREDITED BY ACCME PROVIDERS ARE ACCEPTED AND RECOGNIZED FOR CREDIT BY THE AAPA (PHYSICIAN ASSISTANTS) AND THE AANP (NURSE PRACTITIONERS), ALLOWING US TO OFFER THIS LEARNING OPPORTUNITY TO A WIDE GROUP OF PRIMARY CARE PROVIDERS.THE CHIROPRACTIC MODULE, "SPOTTING AXIAL SPONDYLOARTHRITIS IN CHIROPRACTIC SETTINGS: IS AXSPA BEHIND YOUR PATIENT'S BACK PAIN?", ALSO CONTINUED TO ENROLL PARTICIPANTS TO INCREASE THE AWARENESS OF AXSPA AMONG CHIROPRACTORS, GIVING THEM THE TOOLS TO APPROPRIATELY SUSPECT, DIAGNOSE, AND REFER AXSPA PATIENTS TO RHEUMATOLOGISTS TO ENSURE TIMELY TREATMENT AND IMPROVE PATIENT OUTCOMES.THIS MODULE HAS BEEN ACCREDITED THROUGH PACE (PROVIDERS OF APPROVED CONTINUING EDUCATION) THROUGH A PARTNERSHIP WITH THE NATIONAL UNIVERSITY OF HEALTH SCIENCES ACCREDITATION BOARD AND PROVIDES ONE CE CREDIT. ANESTHESIOLOGY AND AIRWAY MANAGEMENT CONTINUING EDUCATION MODULE-THE ANESTHESIOLOGY AND AIRWAY MANAGEMENT MODULE LAUNCHED IN FEBRUARY 2023 AND IS AN ONLINE ACCREDITED COURSE FOR ANESTHESIOLOGIST'S TO PROVIDE A COMPREHENSIVE AND PRACTICAL LEARNING EXPERIENCE FOR HEALTHCARE PROFESSIONALS TO ENHANCE THEIR SKILLS IN AIRWAY MANAGEMENT FOR PATIENTS WITH ANKYLOSING SPONDYLITIS. PARTICIPANTS CAN RECEIVE ONE AMA PRA CATEGORY CREDIT, ONE ANCC CREDIT, OR ONE AAPA CREDIT DEPENDING ON THEIR CREDENTIALS. CASE-BASED MRI EDUCATIONAL TOOL FOR AXIAL SPONDYLOARTHRITIS-SAA SUPPORTED THE ENHANCEMENT BY CARE ARTHRITIS OF A NEWLY DEVELOPED MOBILE APP THAT HOSTS AND DELIVERS MRI CASE STUDIES GEARED TO RHEUMATOLOGISTS AND RADIOLOGISTS. THE PROGRAM ADDRESSES A TOP-RANKED UNMET EDUCATIONAL NEED IN THE FIELD OF SPONDYLOARTHRITIS, NAMELY, THE APPROPRIATE INTERPRETATION OF MRI BY RHEUMATOLOGISTS AND RADIOLOGISTS FOR EARLY DIAGNOSIS OF SPA. UPDATES OF NEW CASES WILL BE ADDED TO THE APP THROUGHOUT THE NEXT FISCAL YEAR. RHEUM TO DIAGNOSE-PHASE THREE OF A THREE-YEAR GRANT. THE GOAL OF "RHEUM TO DIAGNOSE" IS TO ADDRESS REAL WORLD BARRIERS TO AN ACCURATE AND EXPEDIENT DIAGNOSIS OF NR-AXSPA IN THE RHEUMATOLOGY SETTING. ROOTED IN ORIGINAL RESEARCH CONDUCTED BY SAA IN PHASE ONE DURING YEAR ONE, THE PHYSICIAN-FACING CONTENT OF RHEUM TO DIAGNOSE INCLUDES A TOTAL OF SIX PRESENTATIONS FEATURING EXPERTS IN SPONDYLOARTHRITIS, GEARED TO TWO DISTINCT AUDIENCES: RHEUMATOLOGY FELLOWS, AND MEDICAL STUDENTS. ALL SIX PRESENTATIONS (THREE FOR RHEUMATOLOGY FELLOWS, AND THREE FOR MEDICAL STUDENTS) ALONG WITH A PROMOTIONAL TRAILER, HAVE NOW BEEN PROFESSIONALLY RECORDED. SAA CONTRACTED WITH A LEADING MARKETING FIRM SPECIALIZING IN HEALTHCARE AND HCP OUTREACH AND GUIDED THE PROMOTION AND DISTRIBUTION OF THESE, AND OTHER AXSPA EDUCATIONAL CONTENT, CREATED AS PART OF THIS GRANT. | Desc |
Prog Srvc Accom Acty3 ProgSrvcAccomActy3Grp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Expense | $350,702 | ExpenseAmt |
| Desc | SOCIAL MEDIA - FACEBOOK AND TWITTER REMAIN A PRIMARY SOURCE OF EDUCATION AND AWARENESS WITH SAA'S CONSTITUENTS. DURING THE FISCAL YEAR ENDED JUNE 30, 2023, FACEBOOK EARNED 5,380,013 IMPRESSIONS AND 238,627 ENGAGEMENTS; TWITTER EARNED 206,997 IMPRESSIONS AND 5,885 ENGAGEMENTS; INSTAGRAM EARNED 1,651,534 IMPRESSIONS AND 15,505 ENGAGEMENTS; AND LINKEDIN EARNED 30,079 IMPRESSIONS AND 1,557 ENGAGEMENTS. SAA'S COMMUNITY FORUMS ALSO CONTINUE TO BE ACTIVE NOT ONLY FOR THE NEWLY DIAGNOSED BUT THOSE LIVING WITH THE DISEASE FROM A FEW YEARS TO ALMOST A LIFETIME.SPONDYLOARTHRITIS (SPA) AWARENESS MONTH-SPONDYLOARTHRITIS (SPA) AWARENESS MONTH WAS CELEBRATED IN MAY 2023. WHILE THE GLOBAL SPONDYLOARTHRITIS SUMMIT IS THE HIGHLIGHT OF THE MONTH, WE ALSO FEATURE OTHER CONTENT AND ACTIVITIES TO RAISE AWARENESS AND INCREASE VISIBILITY OF SPONDYLOARTHRITIS. THROUGH THESE EFFORTS, WE EMPHASIZE THE NEED FOR RECOGNIZING THE SYMPTOMS FOR PROPER AND TIMELY DIAGNOSIS, FUNDING RESEARCH FOR A CURE, AND SUPPORT PROGRAMS THAT EDUCATE AND EMPOWER THOSE IMPACTED BY SPA TO MAKE MORE INFORMED DECISIONS ABOUT THEIR HEALTH. OUR THEME FOR 2023 FOCUSED ON MOVING FOR AXSPA, BASED ON THE TOPIC OUR PARTNERS AT ASIF PINNED FOR WORLD AS DAY. SPANISH MULTICULTURAL OUTREACH CAMPAIGN-THE PROGRAMS TEAM TRANSLATED SEVERAL OF SAA'S EDUCATIONAL BROCHURES INTO SPANISH TO MAKE THIS IMPORTANT CONTENT ACCESSIBLE FOR A WIDER AUDIENCE THAT IS ALSO UNDERSERVED. MARKETING SUPPORTED THIS SPANISH MULTICULTURAL OUTREACH CAMPAIGN THROUGH DIGITAL MARKETING ADVERTISEMENTS PLACED ON FACEBOOK, GOOGLE PPC AND GOOGLE DISPLAY. FACEBOOK GARNERED MORE THAN 1.9 MILLION IMPRESSIONS, 20,500 LANDING PAGE VIEWS, AND 2, 650 "COULD I HAVE SPONDYLITIS" QUIZ COMPLETIONS. THE GOOGLE ADS, COMBINED, GARNERED ALMOST 1.9 MILLION IMPRESSIONS AND 400 "COULD I HAVE SPONDYLITIS" QUIZ COMPLETIONS.RHEUM 2 DX-MARKETING SUPPORTED THE RHEUM 2 DX CAMPAIGN WITH DIGITAL ADVERTISING TO REACH THE TARGET AUDIENCES FOR PATIENTS AND HCP (HEALTH CARE PRACTITIONERS). FOR THE PATIENT FACING CAMPAIGN, ADS YIELDED MORE THAN 96,000 NEW USERS AND 110,000 LANDING PAGE SESSIONS. IN ADDITION, THE DIGITAL CAMPAIGN GARNERED 17,131,304 IMPRESSIONS AND 234, 812 CLICKS COMBINED FROM GOOGLE SEARCH, GOOGLE DISPLAY, FACEBOOK ADS, AND YOUTUBE ADS. FOR THE PHYSICIAN FACING CAMPAIGN, ADS YIELDED MORE THAN 36,000 NEW USERS AND 42,000 LANDING PAGE SESSIONS. IN ADDITION, THE DIGITAL CAMPAIGN GARNERED MORE THAN 5, 768, 502 IMPRESSIONS AND 100,566 CLICKS COMBINED FROM GOOGLE DISPLAY, LINKEDIN SPONSORED MESSAGING AND LINKEDIN SPONSORED CONTENT. | Desc |
Prog Srvc Accom Acty Other ProgSrvcAccomActyOtherGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Expense | $148,084 | ExpenseAmt |
| Grant | $30,000 | GrantAmt |
| Desc | EARLY CAREER INVESTIGATOR AWARDS (ECI)-A $30,000 ECI AWARD WAS PRESENTED IN FALL 2022 TO DR. JEAN LIEW, ASSISTANT PROFESSOR OF MEDICINE IN THE SECTION OF RHEUMATOLOGY, CHOBANIAN & AVEDISIAN SCHOOL OF MEDICINE AT BOSTON UNIVERSITY IN BOSTON, MASSACHUSETTS.DR. LIEW IS RESEARCHING THE LONG-TERM USE OF OPIOID MEDICATIONS, AND WHETHER DIFFERENT THERAPIES INCLUDING TNF INHIBITORS COULD DECREASE THE NEED TO USE THOSE MEDICATIONS. SHE IS ALSO STUDYING THE FACTORS THAT CONTRIBUTE TO DELAYED DIAGNOSIS IN PEOPLE WITH AXSPA. HER PREVIOUS RESEARCH FOCUSED ON CARDIOVASCULAR RISK, SPECIFICALLY WHETHER NSAIDS OR TNF INHIBITORS WERE ASSOCIATED WITH HYPERTENSION RISK. ADDITIONALLY, AS A MEMBER OF THE COVID-19 GLOBAL RHEUMATOLOGY ALLIANCE (GRA) AND ITS STEERING COMMITTEE, SHE HAS LED MULTIPLE PROJECTS RELATING TO DATA COLLECTION AND ANALYSIS OF THE IMPACT OF THE COVID-19 PANDEMIC ON INDIVIDUALS WITH RHEUMATIC DISEASE.IN ADDITION TO FUNDING ECI AWARDS THE ORGANIZATION RECEIVES FUNDING REQUESTS FROM OUTSIDE SOURCES TO SUPPORT RESEARCH RELATED TO SPONDYLOARTHRITIS. BECAUSE THE ORGANIZATION HAS LIMITED RESOURCES FOR RESEARCH FUNDING, IT IS IMPERATIVE THAT ANY RESEARCH PROPOSALS MAKE OPTIMAL USE OF THESE LIMITED RESOURCES. THREE RESEARCH PROJECTS CONTINUED IN THIS FISCAL YEAR AND WILL BE COMPLETED AND SUBMITTED FOR JOURNAL PUBLICATION IN FY 2023. THESE GRANTS WENT TO THE FOLLOWING: - MICHAEL WEISMAN, MD - INVESTIGATING THE RELATIONSHIP BETWEEN INFLAMMATORY BOWEL DISEASE (IBD) AND SPONDYLOARTHRITIS IN THE PROJECT TITLED "SPONDYLITIS IN IBD: PREVALENCE AND ASSOCIATIONS IN THE IBD SPACE." THE STUDY IS COLLABORATING WITH GASTROENTEROLOGIST AND RHEUMATOLOGIST RESEARCHERS AT SEVEN SITES IN THE USA. - KRISTI KUHN, MD - BASED ON HER LAB'S NOVEL AND EXCITING WORK THAT SHOWS HOW T CELLS IN THE GUT MIGRATE TO THE JOINT WHERE THEY PRODUCE CYTOKINES TNF AND IL-17 AND CONTRIBUTE TO JOINT PATHOLOGY. SPA HAS LONG BEEN SUSPECTED TO HAVE A CONNECTION WITH INTESTINAL IMMUNITY, AND THIS WORK DEMONSTRATES A DIRECT LINK BETWEEN THE TWO ANATOMIC SITES. THIS RESEARCH EXTENDS THE WORK TO UNDERSTAND WHY THE T CELLS LEAVE THE GUT AND MIGRATE TO THE JOINT THROUGH EVALUATION OF THE GENE REGULATORY AND TRANSCRIPTIONAL CHANGES THAT OCCUR DURING THIS MIGRATION. THE RESULTS WILL LEAD TO MECHANISTIC STUDIES TO VALIDATE THE IDENTIFIED PATHWAYS. ULTIMATELY HOPES TO THERAPEUTICALLY TARGET THIS MIGRATION FOR THE TREATMENT OF SPA.- TEJPAL GILL, MD - RESEARCH SOUGHT TO UNDERSTAND THE MECHANISM UNDERLYING DISEASE SUSCEPTIBILITY. SPECIFICALLY, TO DETERMINE THE METABOLIC PROFILE IN AXIAL SPONDYLOARTHRITIS (AXSPA) PATIENTS IN COMPARISON WITH HLA-B27 POSITIVE AND HLA-B27 NEGATIVE HEALTHY CONTROLS AS A TOOL TO DETERMINE THE CONTRIBUTION OF HLA-B27 AND DISEASE ON THE FECAL AND PLASMA METABOLOME.MUCH REMAINS UNKNOWN REGARDING THE CAUSE AND TREATMENT OF SPONDYLOARTHRITIS. SAA IS CONTINUING THE TRADITION OF PROACTIVELY ADDRESSING RESEARCH GAPS THROUGH THE 2023 SPONDYLOARTHRITIS UNMET RESEARCH NEEDS CONFERENCE IV. THE UPCOMING CONFERENCE WILL BE HELD ON SEPTEMBER 28 & 29, 2023 ON THE NIH CAMPUS. PROGRAMMING AND PLANNING FOR THE CONFERENCE WERE DONE IN THIS FISCAL YEAR (FY22-23).ADVOCACY-THE ADVOCACY PROGRAM CONTINUES TO GROW IN TERMS OF THE NUMBER OF INITIATIVES AND MEMBER ADVOCATES. SAA SENDS LETTERS TO ELECTED OFFICIALS REGARDING POLICIES' IMPACT ON PEOPLE LIVING WITH SPA. IN ADDITION, THROUGH EMAIL, ARTICLES, AND SOCIAL MEDIA, SAA PROVIDES INFORMATION ON HOW PUBLIC POLICIES AFFECT PATIENTS. SAA WEBSITE FACILITATES THE ABILITY OF MEMBERS TO CONTACT THEIR OWN ELECTED OFFICIALS TO ADVOCATE ON THEIR OWN BEHALF. AT ANY GIVEN TIME DURING THE YEAR, THERE ARE ROUGHLY FIFTY ACTIVE STATE, FEDERAL AND MEDIAL CAMPAIGNS. SPECIFICALLY, ACTIVITIES INCLUDED STATE PROCLAMATIONS FOR SPA AWARENESS MONTH; SIGN-ON LETTERS FOR STEP THERAPY, SAFE STEP ACT, PROTECTION FROM INSURANCE ACCUMULATOR PROGRAMS, IMPROVED PATIENT ACCESS, HEALTH DATA PRIVACY, AND NUMEROUS OTHER KEY TOPIC AREAS THAT IMPACT OUR SPONDYLOARTHRITIS COMMUNITY. THIS FISCAL YEAR, SAA ADDED PETITIONS AND SURVEYS TO THE EXISTING ENGAGEMENT AND INFORMATION CAMPAIGNS. | Desc |
| Field | Value | IRS element (for citing) |
|---|---|---|
| Total Other Prog Srvc Expense | $148,084 | TotalOtherProgSrvcExpenseAmt |
| Total Other Prog Srvc Grant | $30,000 | TotalOtherProgSrvcGrantAmt |
| Total Program Service Expenses | $1,812,486 | TotalProgramServiceExpensesAmt |
| Described In Section501c3 | Yes (1) | DescribedInSection501c3Ind |
| Schedule B Required | Yes (1) | ScheduleBRequiredInd |
| Political Campaign Acty | 0 | PoliticalCampaignActyInd |
| Lobbying Activities | 0 | LobbyingActivitiesInd |
| Subject To Proxy Tax | 0 | SubjectToProxyTaxInd |
| Donor Advised Fund | 0 | DonorAdvisedFundInd |
| Conservation Easements | 0 | ConservationEasementsInd |
| Collections Of Art | 0 | CollectionsOfArtInd |
| Credit Counseling | 0 | CreditCounselingInd |
| Donor Rstr Or Quasi Endowments | 0 | DonorRstrOrQuasiEndowmentsInd |
| Report Land Building Equipment | Yes (1) | ReportLandBuildingEquipmentInd |
| Report Investments Other Sec | 0 | ReportInvestmentsOtherSecInd |
| Report Program Related Invst | 0 | ReportProgramRelatedInvstInd |
| Report Other Assets | 0 | ReportOtherAssetsInd |
| Report Other Liabilities | 0 | ReportOtherLiabilitiesInd |
| Include FIN48 Footnote | Yes (1) | IncludeFIN48FootnoteInd |
| Independent Audit Fincl Stmt | Yes (1) | IndependentAuditFinclStmtInd |
| Consolidated Audit Fincl Stmt | 0 | ConsolidatedAuditFinclStmtInd |
| School Operating | 0 | SchoolOperatingInd |
| Foreign Office | 0 | ForeignOfficeInd |
| Foreign Activities | 0 | ForeignActivitiesInd |
| More Than5000 K To Org | 0 | MoreThan5000KToOrgInd |
| More Than5000 K To Individuals | 0 | MoreThan5000KToIndividualsInd |
| Professional Fundraising | 0 | ProfessionalFundraisingInd |
| Fundraising Activities | 0 | FundraisingActivitiesInd |
| Gaming Activities | 0 | GamingActivitiesInd |
| Operate Hospital | 0 | OperateHospitalInd |
| Grants To Organizations | Yes (1) | GrantsToOrganizationsInd |
| Grants To Individuals | 0 | GrantsToIndividualsInd |
| Schedule J Required | Yes (1) | ScheduleJRequiredInd |
| Tax Exempt Bonds | 0 | TaxExemptBondsInd |
| Engaged In Excess Benefit Trans | 0 | EngagedInExcessBenefitTransInd |
| PY Excess Benefit Trans | 0 | PYExcessBenefitTransInd |
| Loan Outstanding | 0 | LoanOutstandingInd |
| Grant To Related Person | 0 | GrantToRelatedPersonInd |
| Business Rln With Org Mem | 0 | BusinessRlnWithOrgMemInd |
| Business Rln With Fam Mem | 0 | BusinessRlnWithFamMemInd |
| Business Rln With35 Ctrl Ent | 0 | BusinessRlnWith35CtrlEntInd |
| Deductible Non Cash Contri | 0 | DeductibleNonCashContriInd |
| Deductible Art Contribution | 0 | DeductibleArtContributionInd |
| Terminate Operations | 0 | TerminateOperationsInd |
| Partial Liquidation | 0 | PartialLiquidationInd |
| Disregarded Entity | 0 | DisregardedEntityInd |
| Related Entity | 0 | RelatedEntityInd |
| Related Organization Ctrl Ent | 0 | RelatedOrganizationCtrlEntInd |
| Trnsfr Exmpt Non Chrtbl Rltd Org | 0 | TrnsfrExmptNonChrtblRltdOrgInd |
| Activities Conducted Prtshp | 0 | ActivitiesConductedPrtshpInd |
| Schedule O Required | Yes (1) | ScheduleORequiredInd |
| IRP Document | 21 | IRPDocumentCnt |
| IRP Document W2 G | 0 | IRPDocumentW2GCnt |
| Employee | 15 | EmployeeCnt |
| Employment Tax Returns Filed | Yes (1) | EmploymentTaxReturnsFiledInd |
| Unrelated Bus Incm Over Limit | 0 | UnrelatedBusIncmOverLimitInd |
| Foreign Financial Account | 0 | ForeignFinancialAccountInd |
| Prohibited Tax Shelter Trans | 0 | ProhibitedTaxShelterTransInd |
| Taxable Party Notification | 0 | TaxablePartyNotificationInd |
| Nondeductible Contributions | 0 | NondeductibleContributionsInd |
| Quid Pro Quo Contributions | 0 | QuidProQuoContributionsInd |
| Form8282 Property Disposed Of | 0 | Form8282PropertyDisposedOfInd |
| Rcv Fnds To Pay Prsnl Bnft Cntrct | 0 | RcvFndsToPayPrsnlBnftCntrctInd |
| Pay Premiums Prsnl Bnft Cntrct | 0 | PayPremiumsPrsnlBnftCntrctInd |
| Indoor Tanning Services | 0 | IndoorTanningServicesInd |
| Subj To Tax Rmnrtn Ex Prcht Pymt | 0 | SubjToTaxRmnrtnExPrchtPymtInd |
| Subject To Excs Tax Net Invst Inc | 0 | SubjectToExcsTaxNetInvstIncInd |
| Info In Schedule O Part VI | Yes (X) | InfoInScheduleOPartVIInd |
| Governing Body Voting Members | 12 | GoverningBodyVotingMembersCnt |
| Independent Voting Member | 12 | IndependentVotingMemberCnt |
| Family Or Business Rln | 0 | FamilyOrBusinessRlnInd |
| Delegation Of Mgmt Duties | 0 | DelegationOfMgmtDutiesInd |
| Change To Org Documents | 0 | ChangeToOrgDocumentsInd |
| Material Diversion Or Misuse | 0 | MaterialDiversionOrMisuseInd |
| Members Or Stockholders | 0 | MembersOrStockholdersInd |
| Election Of Board Members | 0 | ElectionOfBoardMembersInd |
| Decisions Subject To Approva | 0 | DecisionsSubjectToApprovaInd |
| Minutes Of Governing Body | Yes (1) | MinutesOfGoverningBodyInd |
| Minutes Of Committees | Yes (1) | MinutesOfCommitteesInd |
| Officer Mailing Address | 0 | OfficerMailingAddressInd |
| Local Chapters | 0 | LocalChaptersInd |
| Form990 Provided To Gvrn Body | Yes (1) | Form990ProvidedToGvrnBodyInd |
| Conflict Of Interest Policy | Yes (1) | ConflictOfInterestPolicyInd |
| Annual Disclosure Covered Prsn | Yes (1) | AnnualDisclosureCoveredPrsnInd |
| Regular Monitoring Enfrc | Yes (1) | RegularMonitoringEnfrcInd |
| Whistleblower Policy | Yes (1) | WhistleblowerPolicyInd |
| Document Retention Policy | Yes (1) | DocumentRetentionPolicyInd |
| Compensation Process CEO | Yes (1) | CompensationProcessCEOInd |
| Compensation Process Other | Yes (1) | CompensationProcessOtherInd |
| Investment In Joint Venture | 0 | InvestmentInJointVentureInd |
| States Where Copy Of Return Is Fld | CA | StatesWhereCopyOfReturnIsFldCd |
| Own Website | Yes (X) | OwnWebsiteInd |
| Other Website | Yes (X) | OtherWebsiteInd |
| Upon Request | Yes (X) | UponRequestInd |
Books In Care Of Detail BooksInCareOfDetail
Business Name BusinessName
| Field | Value | IRS element (for citing) |
|---|---|---|
| Business Name Line1 | CASSIE SHAFER | BusinessNameLine1Txt |
| Field | Value | IRS element (for citing) |
|---|---|---|
| Phone | 8188921616 | PhoneNum |
US Address USAddress
| Field | Value | IRS element (for citing) |
|---|---|---|
| Address Line1 | 16430 VENTURA BLVD SUITE 300 | AddressLine1Txt |
| City | ENCINO | CityNm |
| State Abbreviation | CA | StateAbbreviationCd |
| ZIP | 91436 | ZIPCd |
Form990 Part VII Section A Form990PartVIISectionAGrp (15 entries)
| TitleTitleTxt | Average Hours Per WeekAverageHoursPerWeekRt | Individual Trustee Or DirectorIndividualTrusteeOrDirectorInd | OfficerOfficerInd | Reportable Comp From OrgReportableCompFromOrgAmt | Reportable Comp From Rltd OrgReportableCompFromRltdOrgAmt | Other CompensationOtherCompensationAmt | Highest Compensated EmployeeHighestCompensatedEmployeeInd |
|---|---|---|---|---|---|---|---|
| ELLEN CARROLL | |||||||
| SECRETARY | 2.00 | Yes (X) | Yes (X) | $0 | $0 | $0 | |
| CRAIG GIMBEL | |||||||
| DIRECTOR | 1.00 | Yes (X) | $0 | $0 | $0 | ||
| ERIC GOLDSTEIN | |||||||
| TREASURER | 2.00 | Yes (X) | Yes (X) | $0 | $0 | $0 | |
| PAMELA WEISS | |||||||
| DIRECTOR | 1.00 | Yes (X) | $0 | $0 | $0 | ||
| ARNOLD M PODOLSKY | |||||||
| DIRECTOR | 1.00 | Yes (X) | $0 | $0 | $0 | ||
| MARY ANN POLADIAN | |||||||
| DIRECTOR | 1.00 | Yes (X) | $0 | $0 | $0 | ||
| JILL MILLER | |||||||
| DIRECTOR | 1.00 | Yes (X) | $0 | $0 | $0 | ||
| MICHAEL PIANIN | |||||||
| BOARD CHAIR | 2.00 | Yes (X) | Yes (X) | $0 | $0 | $0 | |
| BATYA BILMES LEMLER | |||||||
| DIRECTOR | 1.00 | Yes (X) | $0 | $0 | $0 | ||
| JOHN D REVEILLE | |||||||
| DIRECTOR | 1.00 | Yes (X) | $0 | $0 | $0 | ||
| JAMES ROSENBAUM | |||||||
| DIRECTOR | 1.00 | Yes (X) | $0 | $0 | $0 | ||
| PAULA OLSIEWSKI | |||||||
| VICE CHAIR | 2.00 | Yes (X) | Yes (X) | $0 | $0 | $0 | |
| CASSIE SHAFER | |||||||
| CHIEF EXECUTIVE OFFICER | 40.00 | Yes (X) | $246,302 | $0 | $6,489 | ||
| DIANN PETERSON | |||||||
| CHIEF PHILANTHROPY OFFICER | 40.00 | $123,563 | $0 | $17,848 | Yes (X) | ||
| RICHARD HOWARD | |||||||
| CHIEF MISSION DELIVERY OFFICER | 40.00 | $133,238 | $0 | $14,691 | Yes (X) | ||
| Field | Value | IRS element (for citing) |
|---|---|---|
| Total Reportable Comp From Org | $503,103 | TotalReportableCompFromOrgAmt |
| Tot Reportable Comp Rltd Org | $0 | TotReportableCompRltdOrgAmt |
| Total Other Compensation | $39,028 | TotalOtherCompensationAmt |
| Indiv Rcvd Greater Than100 K | 3 | IndivRcvdGreaterThan100KCnt |
| Former Ofcr Employees Listed | 0 | FormerOfcrEmployeesListedInd |
| Total Comp Greater Than150 K | Yes (1) | TotalCompGreaterThan150KInd |
| Compensation From Other Srcs | 0 | CompensationFromOtherSrcsInd |
| Cntrct Rcvd Greater Than100 K | 0 | CntrctRcvdGreaterThan100KCnt |
| All Other Contributions | $2,200,809 | AllOtherContributionsAmt |
| Total Contributions | $2,200,809 | TotalContributionsAmt |
Program Service Revenue ProgramServiceRevenueGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Desc | PUBLICATION SALES | Desc |
| Business | 611710 | BusinessCd |
| Total Revenue Column | $5,120 | TotalRevenueColumnAmt |
| Related Or Exempt Func Income | $5,120 | RelatedOrExemptFuncIncomeAmt |
| Field | Value | IRS element (for citing) |
|---|---|---|
| Total Program Service Revenue | $5,120 | TotalProgramServiceRevenueAmt |
Investment Income InvestmentIncomeGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Total Revenue Column | $142,607 | TotalRevenueColumnAmt |
| Exclusion | $142,607 | ExclusionAmt |
Total Revenue TotalRevenueGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Total Revenue Column | $2,348,536 | TotalRevenueColumnAmt |
| Related Or Exempt Func Income | $5,120 | RelatedOrExemptFuncIncomeAmt |
| Unrelated Business Revenue | $0 | UnrelatedBusinessRevenueAmt |
| Exclusion | $142,607 | ExclusionAmt |
Grants To Domestic Orgs GrantsToDomesticOrgsGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Total | $30,000 | TotalAmt |
| Program Services | $30,000 | ProgramServicesAmt |
Comp Current Ofcr Directors CompCurrentOfcrDirectorsGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Total | $248,226 | TotalAmt |
| Program Services | $198,580 | ProgramServicesAmt |
| Management And General | $24,823 | ManagementAndGeneralAmt |
| Fundraising | $24,823 | FundraisingAmt |
Other Salaries And Wages OtherSalariesAndWagesGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Total | $1,025,964 | TotalAmt |
| Program Services | $812,525 | ProgramServicesAmt |
| Management And General | $178,196 | ManagementAndGeneralAmt |
| Fundraising | $35,243 | FundraisingAmt |
Pension Plan Contributions PensionPlanContributionsGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Total | $25,975 | TotalAmt |
| Program Services | $21,413 | ProgramServicesAmt |
| Management And General | $3,890 | ManagementAndGeneralAmt |
| Fundraising | $672 | FundraisingAmt |
Other Employee Benefits OtherEmployeeBenefitsGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Total | $112,294 | TotalAmt |
| Program Services | $92,011 | ProgramServicesAmt |
| Management And General | $15,680 | ManagementAndGeneralAmt |
| Fundraising | $4,603 | FundraisingAmt |
Payroll Taxes PayrollTaxesGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Total | $92,450 | TotalAmt |
| Program Services | $71,510 | ProgramServicesAmt |
| Management And General | $16,188 | ManagementAndGeneralAmt |
| Fundraising | $4,752 | FundraisingAmt |
Fees For Services Accounting FeesForServicesAccountingGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Total | $70,660 | TotalAmt |
| Program Services | $8,900 | ProgramServicesAmt |
| Management And General | $61,760 | ManagementAndGeneralAmt |
Fees For Services Other FeesForServicesOtherGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Total | $189,353 | TotalAmt |
| Program Services | $182,423 | ProgramServicesAmt |
| Management And General | $6,930 | ManagementAndGeneralAmt |
Office Expenses OfficeExpensesGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Total | $253,120 | TotalAmt |
| Program Services | $192,986 | ProgramServicesAmt |
| Management And General | $48,949 | ManagementAndGeneralAmt |
| Fundraising | $11,185 | FundraisingAmt |
Information Technology InformationTechnologyGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Total | $41,418 | TotalAmt |
| Program Services | $35,718 | ProgramServicesAmt |
| Management And General | $3,500 | ManagementAndGeneralAmt |
| Fundraising | $2,200 | FundraisingAmt |
Occupancy OccupancyGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Total | $49,994 | TotalAmt |
| Program Services | $36,944 | ProgramServicesAmt |
| Management And General | $10,950 | ManagementAndGeneralAmt |
| Fundraising | $2,100 | FundraisingAmt |
Travel TravelGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Total | $38,586 | TotalAmt |
| Program Services | $37,778 | ProgramServicesAmt |
| Fundraising | $808 | FundraisingAmt |
Conferences Meetings ConferencesMeetingsGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Total | $73,681 | TotalAmt |
| Program Services | $73,681 | ProgramServicesAmt |
Depreciation Depletion DepreciationDepletionGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Total | $22,217 | TotalAmt |
| Program Services | $18,017 | ProgramServicesAmt |
| Management And General | $2,600 | ManagementAndGeneralAmt |
| Fundraising | $1,600 | FundraisingAmt |
Total Functional Expenses TotalFunctionalExpensesGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Total | $2,273,938 | TotalAmt |
| Program Services | $1,812,486 | ProgramServicesAmt |
| Management And General | $373,466 | ManagementAndGeneralAmt |
| Fundraising | $87,986 | FundraisingAmt |
Cash Non Interest Bearing CashNonInterestBearingGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| BOY | $235,048 | BOYAmt |
| EOY | $350,400 | EOYAmt |
Savings And Temp Cash Invst SavingsAndTempCashInvstGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| BOY | $7,300,421 | BOYAmt |
| EOY | $7,092,825 | EOYAmt |
Pledges And Grants Receivable PledgesAndGrantsReceivableGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| BOY | $32,000 | BOYAmt |
Prepaid Expenses Defrd Charges PrepaidExpensesDefrdChargesGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| BOY | $18,092 | BOYAmt |
| EOY | $25,276 | EOYAmt |
| Field | Value | IRS element (for citing) |
|---|---|---|
| Land Bldg Equip Cost Or Other Bss | $44,211 | LandBldgEquipCostOrOtherBssAmt |
| Land Bldg Equip Accum Deprec | $24,075 | LandBldgEquipAccumDeprecAmt |
Land Bldg Equip Basis Net LandBldgEquipBasisNetGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| BOY | $20,772 | BOYAmt |
| EOY | $20,136 | EOYAmt |
Investments Pub Traded Sec InvestmentsPubTradedSecGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| BOY | $279,503 | BOYAmt |
| EOY | $313,090 | EOYAmt |
Intangible Assets IntangibleAssetsGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| BOY | $39,452 | BOYAmt |
| EOY | $24,657 | EOYAmt |
Other Assets Total OtherAssetsTotalGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| BOY | $3,618 | BOYAmt |
| EOY | $3,618 | EOYAmt |
Total Assets TotalAssetsGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| BOY | $7,928,906 | BOYAmt |
| EOY | $7,830,002 | EOYAmt |
Accounts Payable Accr Expnss AccountsPayableAccrExpnssGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| BOY | $582,891 | BOYAmt |
| EOY | $413,366 | EOYAmt |
Total Liabilities TotalLiabilitiesGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| BOY | $582,891 | BOYAmt |
| EOY | $413,366 | EOYAmt |
| Field | Value | IRS element (for citing) |
|---|---|---|
| Organization Follows FASB117 | Yes (X) | OrganizationFollowsFASB117Ind |
No Donor Restriction Net Assets NoDonorRestrictionNetAssetsGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| BOY | $4,296,789 | BOYAmt |
| EOY | $4,497,313 | EOYAmt |
Donor Restriction Net Assets DonorRestrictionNetAssetsGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| BOY | $3,049,226 | BOYAmt |
| EOY | $2,919,323 | EOYAmt |
Total Net Assets Fund Balance TotalNetAssetsFundBalanceGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| BOY | $7,346,015 | BOYAmt |
| EOY | $7,416,636 | EOYAmt |
Tot Liab Net Assets Fund Balance TotLiabNetAssetsFundBalanceGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| BOY | $7,928,906 | BOYAmt |
| EOY | $7,830,002 | EOYAmt |
| Field | Value | IRS element (for citing) |
|---|---|---|
| Reconcilation Revenue Expnss | $74,598 | ReconcilationRevenueExpnssAmt |
| Net Unrlzd Gains Losses Invst | -$3,977 | NetUnrlzdGainsLossesInvstAmt |
| Other Changes In Net Assets | $0 | OtherChangesInNetAssetsAmt |
| Info In Schedule O Part XII | Yes (X) | InfoInScheduleOPartXIIInd |
| Method Of Accounting Accrual | Yes (X) | MethodOfAccountingAccrualInd |
| Accountant Compile Or Review | 0 | AccountantCompileOrReviewInd |
| FS Audited | Yes (1) | FSAuditedInd |
FS Audited Basis FSAuditedBasisGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Separate Basis Fincl Stmt | Yes (X) | SeparateBasisFinclStmtInd |
| Field | Value | IRS element (for citing) |
|---|---|---|
| Audit Committee | Yes (1) | AuditCommitteeInd |
| Federal Grant Audit Required | 0 | FederalGrantAuditRequiredInd |
Schedule A IRS990ScheduleA
| Field | Value | IRS element (for citing) |
|---|---|---|
| Public Organization170 | Yes (X) | PublicOrganization170Ind |
Gifts Grants Contri Rcvd170 GiftsGrantsContriRcvd170Grp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Current Tax Year Minus4 Years | $1,941,665 | CurrentTaxYearMinus4YearsAmt |
| Current Tax Year Minus3 Years | $2,181,281 | CurrentTaxYearMinus3YearsAmt |
| Current Tax Year Minus2 Years | $2,996,504 | CurrentTaxYearMinus2YearsAmt |
| Current Tax Year Minus1 Year | $5,505,466 | CurrentTaxYearMinus1YearAmt |
| Current Tax Year | $2,200,809 | CurrentTaxYearAmt |
| Total | $14,825,725 | TotalAmt |
Total Calendar Year170 TotalCalendarYear170Grp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Current Tax Year Minus4 Years | $1,941,665 | CurrentTaxYearMinus4YearsAmt |
| Current Tax Year Minus3 Years | $2,181,281 | CurrentTaxYearMinus3YearsAmt |
| Current Tax Year Minus2 Years | $2,996,504 | CurrentTaxYearMinus2YearsAmt |
| Current Tax Year Minus1 Year | $5,505,466 | CurrentTaxYearMinus1YearAmt |
| Current Tax Year | $2,200,809 | CurrentTaxYearAmt |
| Total | $14,825,725 | TotalAmt |
| Field | Value | IRS element (for citing) |
|---|---|---|
| Substantial Contributors Tot | $7,360,869 | SubstantialContributorsTotAmt |
| Public Support Total170 | $7,464,856 | PublicSupportTotal170Amt |
Gross Investment Income170 GrossInvestmentIncome170Grp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Current Tax Year Minus4 Years | $68,076 | CurrentTaxYearMinus4YearsAmt |
| Current Tax Year Minus3 Years | $65,844 | CurrentTaxYearMinus3YearsAmt |
| Current Tax Year Minus2 Years | $61,787 | CurrentTaxYearMinus2YearsAmt |
| Current Tax Year Minus1 Year | $51,298 | CurrentTaxYearMinus1YearAmt |
| Current Tax Year | $142,607 | CurrentTaxYearAmt |
| Total | $389,612 | TotalAmt |
| Field | Value | IRS element (for citing) |
|---|---|---|
| Total Support | $15,215,337 | TotalSupportAmt |
| Gross Receipts Rltd Activities | $29,712 | GrossReceiptsRltdActivitiesAmt |
| Public Support CY170 | 0.49060 | PublicSupportCY170Pct |
| Public Support PY170 | 0.50120 | PublicSupportPY170Pct |
| Thirty Thr Pct Suprt Tests CY170 | Yes (X) | ThirtyThrPctSuprtTestsCY170Ind |
Schedule B IRS990ScheduleB
Contributor Information ContributorInformationGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Contributor | RESTRICTED | ContributorNum |
Contributor Business Name ContributorBusinessName
| Field | Value | IRS element (for citing) |
|---|---|---|
| Business Name Line1 | RESTRICTED | BusinessNameLine1 |
Contributor US Address ContributorUSAddress
| Field | Value | IRS element (for citing) |
|---|---|---|
| Address Line1 | RESTRICTED | AddressLine1 |
| Address Line2 | RESTRICTED | AddressLine2 |
| City | RESTRICTED | City |
| State | RESTRICTED | State |
| ZIP Code | RESTRICTED | ZIPCode |
| Field | Value | IRS element (for citing) |
|---|---|---|
| Total Contributions | RESTRICTED | TotalContributionsAmt |
Schedule D IRS990ScheduleD
Equipment EquipmentGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Other Cost Or Other Basis | $33,118 | OtherCostOrOtherBasisAmt |
| Depreciation | $17,148 | DepreciationAmt |
| Book Value | $15,970 | BookValueAmt |
Other Land Buildings OtherLandBuildingsGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Other Cost Or Other Basis | $11,093 | OtherCostOrOtherBasisAmt |
| Depreciation | $6,927 | DepreciationAmt |
| Book Value | $4,166 | BookValueAmt |
| Field | Value | IRS element (for citing) |
|---|---|---|
| Total Book Value Land Buildings | $20,136 | TotalBookValueLandBuildingsAmt |
| Footnote Text | Yes (X) | FootnoteTextInd |
| Total Rev Etc Audited Fincl Stmt | $2,344,559 | TotalRevEtcAuditedFinclStmtAmt |
| Net Unrealized Gains Invst | -$3,977 | NetUnrealizedGainsInvstAmt |
| Revenue Not Reported | -$3,977 | RevenueNotReportedAmt |
| Revenue Subtotal | $2,348,536 | RevenueSubtotalAmt |
| Revenue Not Reported Fincl Stmt | $0 | RevenueNotReportedFinclStmtAmt |
| Total Revenue Per Form990 | $2,348,536 | TotalRevenuePerForm990Amt |
| Tot Expns Etc Audited Fincl Stmt | $2,273,938 | TotExpnsEtcAuditedFinclStmtAmt |
| Expenses Not Reported | $0 | ExpensesNotReportedAmt |
| Expenses Subtotal | $2,273,938 | ExpensesSubtotalAmt |
| Expenses Not Rpt Fincl Stmt | $0 | ExpensesNotRptFinclStmtAmt |
| Total Expenses Per Form990 | $2,273,938 | TotalExpensesPerForm990Amt |
Supplemental Information Detail SupplementalInformationDetail
| Field | Value | IRS element (for citing) |
|---|---|---|
| Form And Line Reference | PART X, LINE 2: | FormAndLineReferenceDesc |
| Explanation | ACCOUNTING STANDARDS REQUIRE AN ORGANIZATION TO EVALUATE ITS TAX POSITIONS AND PROVIDE FOR A LIABILITY FOR ANY POSITIONS THAT WOULD NOT BE CONSIDERED 'MORE LIKELY THAN NOT' TO BE UPHELD UNDER A TAX AUTHORITY EXAMINATION. MANAGEMENT HAS EVALUATED ITS TAX POSITIONS AND HAS CONCLUDED THAT A PROVISION FOR A TAX LIABILITY IS NOT NECESSARY AT JUNE 30, 2023. GENERALLY, THE ORGANIZATION'S INFORMATION RETURNS REMAIN OPEN FOR EXAMINATION FOR A PERIOD OF THREE (FEDERAL) OR FOUR (STATE OF CALIFORNIA) YEARS FROM THE DATE OF FILING. | ExplanationTxt |
Schedule I IRS990ScheduleI
| Field | Value | IRS element (for citing) |
|---|---|---|
| Grant Records Maintained | Yes (1) | GrantRecordsMaintainedInd |
Recipient Table RecipientTable
Recipient Business Name RecipientBusinessName
| Field | Value | IRS element (for citing) |
|---|---|---|
| Business Name Line1 | BOSTON UNIVERSITY SCHOOL OF MEDICINE | BusinessNameLine1Txt |
US Address USAddress
| Field | Value | IRS element (for citing) |
|---|---|---|
| Address Line1 | 650 ALBANY STREET SUITE X200 | AddressLine1Txt |
| City | BOSTON | CityNm |
| State Abbreviation | MA | StateAbbreviationCd |
| ZIP | 02118 | ZIPCd |
| Field | Value | IRS element (for citing) |
|---|---|---|
| Recipient EIN | 043314093 | RecipientEIN |
| IRC Section | 501(C)(3) | IRCSectionDesc |
| Cash Grant | $30,000 | CashGrantAmt |
| Non Cash Assistance | $0 | NonCashAssistanceAmt |
| Purpose Of Grant | EARLY INVESTIGATOR AWARD | PurposeOfGrantTxt |
| Field | Value | IRS element (for citing) |
|---|---|---|
| Total501c3 Org | 1 | Total501c3OrgCnt |
Supplemental Information Detail SupplementalInformationDetail
| Field | Value | IRS element (for citing) |
|---|---|---|
| Form And Line Reference | PART I, LINE 2: | FormAndLineReferenceDesc |
| Explanation | RESEARCHERS ARE REQUIRED TO PROVIDE THE ORGANIZATION WITH PROGRESS REPORTS BASED ON A VARIETY OF MILESTONES INDIVIDUAL TO EACH STUDY, AND TO ENSURE THAT ANY PUBLICATION IN PEER REVIEW ACKNOWLEDGES THE ORGANIZATION'S FUNDING SUPPORT TOWARD THE EFFORT. | ExplanationTxt |
Schedule J IRS990ScheduleJ
| Field | Value | IRS element (for citing) |
|---|---|---|
| Board Or Committee Approval | Yes (X) | BoardOrCommitteeApprovalInd |
| Severance Payment | 0 | SeverancePaymentInd |
| Supplemental Nonqual Rtr Plan | 0 | SupplementalNonqualRtrPlanInd |
| Equity Based Comp Arrngm | 0 | EquityBasedCompArrngmInd |
| Comp Based On Revenue Of Flng Org | 0 | CompBasedOnRevenueOfFlngOrgInd |
| Comp Bsd On Rev Related Orgs | 0 | CompBsdOnRevRelatedOrgsInd |
| Comp Bsd Net Earns Flng Org | 0 | CompBsdNetEarnsFlngOrgInd |
| Comp Bsd Net Earns Rltd Orgs | 0 | CompBsdNetEarnsRltdOrgsInd |
| Any Non Fixed Payments | 0 | AnyNonFixedPaymentsInd |
| Initial Contract Exception | 0 | InitialContractExceptionInd |
Rltd Org Officer Trst Key Empl RltdOrgOfficerTrstKeyEmplGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Person | CASSIE SHAFER | PersonNm |
| Title | CHIEF EXECUTIVE OFFICER | TitleTxt |
| Base Compensation Filing Org | $246,302 | BaseCompensationFilingOrgAmt |
| Compensation Based On Rltd Orgs | $0 | CompensationBasedOnRltdOrgsAmt |
| Bonus Filing Organization | $0 | BonusFilingOrganizationAmount |
| Bonus Related Organizations | $0 | BonusRelatedOrganizationsAmt |
| Other Compensation Filing Org | $0 | OtherCompensationFilingOrgAmt |
| Other Compensation Rltd Orgs | $0 | OtherCompensationRltdOrgsAmt |
| Deferred Compensation Flng Org | $6,489 | DeferredCompensationFlngOrgAmt |
| Deferred Comp Rltd Orgs | $0 | DeferredCompRltdOrgsAmt |
| Nontaxable Benefits Filing Org | $0 | NontaxableBenefitsFilingOrgAmt |
| Nontaxable Benefits Rltd Orgs | $0 | NontaxableBenefitsRltdOrgsAmt |
| Total Compensation Filing Org | $252,791 | TotalCompensationFilingOrgAmt |
| Total Compensation Rltd Orgs | $0 | TotalCompensationRltdOrgsAmt |
| Comp Report Prior990 Filing Org | $0 | CompReportPrior990FilingOrgAmt |
| Comp Report Prior990 Rltd Orgs | $0 | CompReportPrior990RltdOrgsAmt |
Schedule O IRS990ScheduleO
Supplemental Information Detail SupplementalInformationDetail (5 entries)
| Form And Line ReferenceFormAndLineReferenceDesc | ExplanationExplanationTxt |
|---|---|
| FORM 990, PART VI, SECTION B, LINE 11B | THE AUDIT COMMITTEE REVIEWS THE DOCUMENT PRIOR TO ITS DISTRIBUTION TO THE ENTIRE BOARD FOR REVIEW. |
| FORM 990, PART VI, SECTION B, LINE 12C | ALL DIRECTORS AND SENIOR EMPLOYEES ARE REQUIRED TO COMPLETE AND SIGN A DISCLOSURE FORM LISTING ANY POTENTIAL CONFLICTS OF INTEREST BY SEPTEMBER 30, ANNUALLY. |
| FORM 990, PART VI, SECTION B, LINE 15 | THE ORGANIZATION UTILIZES CURRENT COMPENSATION DATA PUBLISHED BY THE NATIONAL HEALTH COUNCIL AND THE AMERICAN SOCIETY OF ASSOCIATION EXECUTIVES, AND OTHER FACTORS IN ORDER TO DETERMINE COMPENSATION. |
| FORM 990, PART VI, SECTION C, LINE 19 | THE ORGANIZATION PRODUCES AN ANNUAL REPORT THAT IS PUBLISHED ON ITS WEBSITE |
| FORM 990, PART XII, LINE 2C | THE ORGANIZATION'S AUDIT COMMITTEE HAS RESPONSIBILITY FOR THE OVERSIGHT OF THE AUDIT OF ITS FINANCIAL STATEMENTS AND SELECTION OF THE INDEPENDENT AUDITOR, SUBJECT TO THE APPROVAL OF THE BOARD OF DIRECTORS. THIS RESPONSIBILITY IS UNCHANGED FROM THE PRIOR YEAR. |
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