CURE DUCHENNE

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Cite this

Plain text CURE DUCHENNE. furp.org, nonprofit organization profile, tax years 2014–2024. https://furp.org/org/cure-duchenne-200299958. Retrieved 2026-11-06.

APA furp.org. (n.d.). CURE DUCHENNE [Nonprofit organization profile; tax years 2014–2024]. Retrieved November 6, 2026, from https://furp.org/org/cure-duchenne-200299958

MLA “CURE DUCHENNE.” furp.org, tax years 2014–2024, https://furp.org/org/cure-duchenne-200299958. Accessed 6 Nov. 2026.

Retrieved 2026-11-06; covers tax years 2014–2024. Data: furp.org, CC BY 4.0.

2024 · Form 990 · revenue $3.9M · expenses $9.2M · assets $30.9M

EIN
20-0299958
Address
24000 ALICIA PARKWAY STE 466, MISSION VIEJO, CA 92691-3929
Website
WWW.CUREDUCHENNE.ORG
NTEE code
H50 Nerve, Muscle, Bone Diseases Research (Medical Research) published (IRS Business Master File)
Exempt type
501(c)(3): charitable, religious, educational, scientific or literary (corporation)
Ruling date
March 2004 (when the IRS recognized its exemption)
IRS status
Exempt (unconditional) (IRS Business Master File) IRS data ↗
Tax-deductible donations
Yes: listed in IRS Publication 78 (public charity) Pub 78 ↗
Foundation status
Public charity supported by the public (170(b)(1)(a)(vi))
Cross-check
ProPublica Nonprofit Explorer

Mission

CURE DUCHENNE IS A NON-PROFIT ORGANIZATION DEDICATED TO RAISING FUNDS; COORDINATING AND FUNDING RESEARCH NECESSARY TO FIND A CURE FOR DUCHENNE MUSCULAR DYSTROPHY, INCREASING PUBLIC AWARENESS FOR DUCHENNE MUSCULAR DYSTROPHY PATIENTS, IMPROVING CARE, HEALTH,AND QUAILITY OF LIVING FOR DUCHENNE MUSCULAR DYSTROPHY PATIENTS.

Each tax year counts once: when a return was amended, only the latest return for that period is used below (superseded returns stay listed, greyed, under Finances).

People paid by the organization

20 people paid across every filing: current people first, then by total pay from this organization. Organizations counts every nonprofit each person appears on.

NameLatest titleYearsLatest year payTotal pay from hereOrganizations
Debra Miller CEO2014-2024 $151,304$1,739,825 2
Lianna Orlando VICE PRESIDENT OF RESEARCH2020-2024 $213,873$991,532 1
Michael Kelly CHIEF SCIENTIFIC OFFICER2014-2024 $235,000$803,384 1
Kathlene Balisy FINANCE DIRECTOR2021-2024 $190,000$689,791 1
Heather Medlin DIRECTOR OF CLINICAL DEVEL2022-2024 $198,846$575,808 1
Andrea Pike DIRECTOR OF MARKETING2023-2024 $173,619$348,619 1
Monica Utley DIRECTOR OF PROGRAMS2023-2024 $168,502$338,855 1
Emilie Perkins DIRECTOR OF COMMUNICATIONS2023-2024 $169,737$336,004 1
Laura Hameed EXECUTIVE DIRECTOR2024 $243,077$243,077 1
Karen E Harley (former) VICE-PRESIDENT2014-2017 $125,103$489,466 1
Kent Mora (former) FORMER CHIEF OF STAFF2022-2023 $151,051$362,359 1
Joseph Knowles (former) VICE-PRESIDENT2016 $266,417$266,417 1
William D Abernerty (former) VICE PRESIDENT OPERATIONS2018 $223,891$223,891 1
Andrew Hoyer (former) SENIOR DIRECTOR OF DEVELOPMENT2014-2015 $108,915$219,915 1
Ryan Meardon (former) FORMER VP OF DONOR RELATIONS2023 $183,333$183,333 1
Joann Kemp (former) DIRECTOR OF CLINICAL PROGRAMS2021 $175,875$175,875 1
Erin Frey (former) SENIOR DIRECTOR OF ADVOCACY2020 $173,677$173,677 1
Christian Nelson (former) SENIOR DIRECTOR OF PHILANTHROPY2021 $165,000$165,000 1
Bradley Hodges (former) FORMER PARTNER WITH CUREDUCHENNE VENTURES2022 $151,231$151,231 1
Meghan Wood (former) VP BOF BUSINESS DEVELOPMEN2018 $121,500$121,500 1

Officers and directors, no compensation reported

26 people listed on the returns with $0 (or no amount) in every compensation column: current people first. Hours are as filed on the latest return each person appears on.

NameLatest titleYearsHrs/wk (latest)CompensationOrganizations
Paul Miller SECRETARY2014-2024 10 $0 reported 2
Jeffrey Goffman DIRECTOR2014-2024 1 $0 reported 1
Peter Strelow DIRECTOR2018-2024 1 $0 reported 1
David Macinnis DIRECTOR2020-2024 1 $0 reported 1
Dana White DIRECTOR2020-2024 1 $0 reported 1
Ryan Williams DIRECTOR2014-2024 1 $0 reported 1
Martin Lehr DIRECTOR2019-2024 1 $0 reported 1
Tj Farnsworth DIRECTOR2014-2024 1 $0 reported 1
Diane Kemple DIRECTOR2023-2024 1 $0 reported 1
Christopher Finazzo DIRECTOR2023-2024 1 $0 reported 1
Tim Sullivan DIRECTOR2019-2024 1 $0 reported 1
Bob Smith DIRECTOR2023-2024 1 $0 reported 1
John Managonore DIRECTOR2024 1 $0 reported 1
Nicholas Prytherch DIRECTOR2024 1 $0 reported 1
Elaine Wu (former) DIRECTOR2014-2022 1 $0 reported 1
Sarah Mcelroy (former) DIRECTOR2018-2022 1 $0 reported 1
Kevin Dorsey (former) DIRECTOR2014-2019 1 $0 reported 1
Mike Haglin (former) CHAIRMAN OF THE BOARD2018-2019 1 $0 reported 1
Ron Philip (former) DIRECTOR2014-2018 1 $0 reported 1
Evonne Sepsis (former) DIRECTOR2014-2018 1 $0 reported 1
Michelle Koll-O'Leary (former) DIRECTOR2018 1 $0 reported 1
Tom Scranton (former) DIRECTOR2014-2017 1 $0 reported 1
George Blank (former) DIRECTOR2014-2017 1 $0 reported 1
Thom Mcelroy (former) DIRECTOR2015-2017 1 $0 reported 1
Allesandro Plol (former) DIRECTOR2015-2017 1 $0 reported 1
Stephen Spivak (former) DIRECTOR2015-2017 1 $0 reported 1

People by year

2024 · 23 people listed · 9 paid, $1.7M · 30 employees · 0 volunteers
NameTitleHrs/wkFrom orgFrom relatedOtherTotalOrgs
LAURA HAMEED EXECUTIVE DIRECTOR40 $243,077$0$0 $243,0771
MICHAEL KELLY CHIEF SCIENTIFIC OFFICER40 $235,000$0$0 $235,0001
LIANNA ORLANDO VICE PRESIDENT OF RESEARCH40 $213,873$0$0 $213,8731
HEATHER MEDLIN DIRECTOR OF CLINICAL DEVEL40 $198,846$0$0 $198,8461
KATHLENE BALISY FINANCE DIRECTOR40 $190,000$0$0 $190,0001
ANDREA PIKE DIRECTOR OF MARKETING40 $173,619$0$0 $173,6191
EMILIE PERKINS DIRECTOR OF COMMUNICATIONS40 $169,737$0$0 $169,7371
MONICA UTLEY DIRECTOR OF PROGRAMS40 $168,502$0$0 $168,5021
DEBRA MILLER CEO40 $151,304$0$0 $151,3042
PAUL MILLER SECRETARY10 $0$0$0 $02
JEFFREY GOFFMAN DIRECTOR1 $0$0$0 $01
PETER STRELOW DIRECTOR1 $0$0$0 $01
DAVID MACINNIS DIRECTOR1 $0$0$0 $01
DANA WHITE DIRECTOR1 $0$0$0 $01
RYAN WILLIAMS DIRECTOR1 $0$0$0 $01
MARTIN LEHR DIRECTOR1 $0$0$0 $01
TJ FARNSWORTH DIRECTOR1 $0$0$0 $01
DIANE KEMPLE DIRECTOR1 $0$0$0 $01
CHRISTOPHER FINAZZO DIRECTOR1 $0$0$0 $01
TIM SULLIVAN DIRECTOR1 $0$0$0 $01
BOB SMITH DIRECTOR1 $0$0$0 $01
JOHN MANAGONORE DIRECTOR1 $0$0$0 $01
NICHOLAS PRYTHERCH DIRECTOR1 $0$0$0 $01
2023 · 22 people listed · 10 paid, $1.8M · 35 employees · 0 volunteers
NameTitleHrs/wkFrom orgFrom relatedOtherTotalOrgs
LIANNA ORLANDO VICE PRESIDENT OF RESEARCH40 $225,000$0$0 $225,0001
MICHAEL KELLY CHIEF SCIENTIFIC OFFICER40 $225,000$0$0 $225,0001
HEATHER MEDLIN DIRECTOR OF CLINICAL DEVELOPMENT40 $220,141$0$0 $220,1411
RYAN MEARDON FORMER VP OF DONOR RELATIONS40 $183,333$0$0 $183,3331
KATHLENE BALISY FINANCE DIRECTOR40 $175,000$0$0 $175,0001
ANDREA PIKE DIRECTOR OF MARKETING40 $175,000$0$0 $175,0001
MONICA UTLEY DIRECTOR OF PROGRAMS40 $170,353$0$0 $170,3531
EMILIE PERKINS DIRECTOR OF COMMUNICATIONS40 $166,267$0$0 $166,2671
DEBRA MILLER PRESIDENT & CEO40 $151,304$0$0 $151,3042
KENT MORA FORMER CHIEF OF STAFF40 $151,051$0$0 $151,0511
PAUL MILLER SECRETARY10 $0$0$0 $02
JEFFREY GOFFMAN DIRECTOR1 $0$0$0 $01
PETER STRELOW DIRECTOR1 $0$0$0 $01
DAVID MACINNIS DIRECTOR1 $0$0$0 $01
DANA WHITE DIRECTOR1 $0$0$0 $01
RYAN WILLIAMS DIRECTOR1 $0$0$0 $01
MARTIN LEHR DIRECTOR1 $0$0$0 $01
TJ FARNSWORTH DIRECTOR1 $0$0$0 $01
DIANE KEMPLE DIRECTOR1 $0$0$0 $01
CHRISTOPHER FINAZZO DIRECTOR1 $0$0$0 $01
TIM SULLIVAN DIRECTOR1 $0$0$0 $01
BOB SMITH DIRECTOR1 $0$0$0 $01
2022 · 18 people listed · 7 paid, $1.2M · 37 employees · 18 volunteers
NameTitleHrs/wkFrom orgFrom relatedOtherTotalOrgs
KENT MORA FORMER CHIEF OF STAFF40 $211,308$0$0 $211,3081
LIANNA ORLANDO VICE PRESIDENT OF RESEARCH40 $196,917$0$0 $196,9171
MICHAEL KELLY CHIEF SCIENTIFIC OFFICER40 $175,000$0$0 $175,0001
KATHLENE BALISY FINANCE DIRECTOR40 $170,833$0$0 $170,8331
HEATHER MEDLIN SENIOR DIRECTOR OF CLINICAL DEVELOPMENT40 $156,821$0$0 $156,8211
DEBRA MILLER PRESIDENT & CEO40 $151,305$0$0 $151,3052
BRADLEY HODGES FORMER PARTNER WITH CUREDUCHENNE VENTURES40 $151,231$0$0 $151,2311
PAUL MILLER SECRETARY10 $0$0$0 $02
JEFFREY GOFFMAN DIRECTOR1 $0$0$0 $01
PETER STRELOW DIRECTOR1 $0$0$0 $01
DAVID MACINNIS DIRECTOR1 $0$0$0 $01
DANA WHITE DIRECTOR1 $0$0$0 $01
RYAN WILLIAMS DIRECTOR1 $0$0$0 $01
MARTIN LEHR DIRECTOR1 $0$0$0 $01
ELAINE WU DIRECTOR1 $0$0$0 $01
TJ FARNSWORTH DIRECTOR1 $0$0$0 $01
SARAH MCELROY DIRECTOR1 $0$0$0 $01
TIM SULLIVAN DIRECTOR1 $0$0$0 $01
2021 · 16 people listed · 5 paid, $827K · 30 employees · 0 volunteers
NameTitleHrs/wkFrom orgFrom relatedOtherTotalOrgs
LIANNA ORLANDO SENIOR DIRECTOR OF RESEARCH40 $180,875$0$0 $180,8751
JOANN KEMP DIRECTOR OF CLINICAL PROGRAMS40 $175,875$0$0 $175,8751
CHRISTIAN NELSON SENIOR DIRECTOR OF PHILANTHROPY40 $165,000$0$0 $165,0001
KATHLENE BALISY FINANCE DIRECTOR40 $153,958$0$0 $153,9581
DEBRA MILLER PRESIDENT & CEO40 $151,304$0$0 $151,3042
PAUL MILLER SECRETARY10 $0$0$0 $02
JEFFREY GOFFMAN DIRECTOR1 $0$0$0 $01
PETER STRELOW DIRECTOR1 $0$0$0 $01
DAVID MACINNIS DIRECTOR1 $0$0$0 $01
DANA WHITE DIRECTOR1 $0$0$0 $01
RYAN WILLIAMS DIRECTOR1 $0$0$0 $01
MARTIN LEHR DIRECTOR1 $0$0$0 $01
ELAINE WU DIRECTOR1 $0$0$0 $01
TJ FARNSWORTH DIRECTOR1 $0$0$0 $01
SARAH MCELROY DIRECTOR1 $0$0$0 $01
TIM SULLIVAN DIRECTOR1 $0$0$0 $01
2020 · 14 people listed · 3 paid, $500K · 27 employees · 0 volunteers
NameTitleHrs/wkFrom orgFrom relatedOtherTotalOrgs
LIANNA ORLANDO SENIOR DIRECTOR OF RESEARCH40 $174,867$0$0 $174,8671
ERIN FREY SENIOR DIRECTOR OF ADVOCACY40 $173,677$0$0 $173,6771
DEBRA MILLER PRESIDENT40 $151,304$0$0 $151,3042
PAUL MILLER SECRETARY10 $0$0$0 $02
JEFFREY GOFFMAN DIRECTOR1 $0$0$0 $01
PETER STRELOW DIRECTOR1 $0$0$0 $01
DAVID MACINNIS DIRECTOR1 $0$0$0 $01
DANA WHITE DIRECTOR1 $0$0$0 $01
RYAN WILLIAMS DIRECTOR1 $0$0$0 $01
MARTIN LEHR DIRECTOR1 $0$0$0 $01
ELAINE WU DIRECTOR1 $0$0$0 $01
TJ FARNSWORTH DIRECTOR1 $0$0$0 $01
SARAH MCELROY DIRECTOR1 $0$0$0 $01
TIM SULLIVAN DIRECTOR1 $0$0$0 $01
2019 · 12 people listed · 1 paid, $168K · 28 employees · 0 volunteers
NameTitleHrs/wkFrom orgFrom relatedOtherTotalOrgs
DEBRA MILLER PRESIDENT40 $168,304$0$0 $168,3042
PAUL MILLER SECRETARY10 $0$0$0 $02
JEFFREY GOFFMAN DIRECTOR1 $0$0$0 $01
PETER STRELOW DIRECTOR1 $0$0$0 $01
KEVIN DORSEY DIRECTOR1 $0$0$0 $01
RYAN WILLIAMS DIRECTOR1 $0$0$0 $01
MARTIN LEHR DIRECTOR1 $0$0$0 $01
ELAINE WU DIRECTOR1 $0$0$0 $01
TJ FARNSWORTH DIRECTOR1 $0$0$0 $01
MIKE HAGLIN CHAIRMAN OF THE BOARD1 $0$0$0 $01
SARAH MCELROY DIRECTOR1 $0$0$0 $01
TIM SULLIVAN DIRECTOR1 $0$0$0 $01
2018 · 15 people listed · 3 paid, $495K · 19 employees · 0 volunteers
NameTitleHrs/wkFrom orgFrom relatedOtherTotalOrgs
WILLIAM D ABERNERTY VICE PRESIDENT OPERATIONS40 $223,891$0$0 $223,8911
DEBRA MILLER PRESIDENT40 $150,000$0$0 $150,0002
MEGHAN WOOD VP BOF BUSINESS DEVELOPMEN40 $121,500$0$0 $121,5001
PAUL MILLER SECRETARY5 $0$0$0 $02
JEFFREY GOFFMAN DIRECTOR1 $0$0$0 $01
RON PHILIP DIRECTOR1 $0$0$0 $01
KEVIN DORSEY DIRECTOR1 $0$0$0 $01
RYAN WILLIAMS DIRECTOR1 $0$0$0 $01
EVONNE SEPSIS DIRECTOR1 $0$0$0 $01
ELAINE WU DIRECTOR1 $0$0$0 $01
TJ FARNSWORTH DIRECTOR1 $0$0$0 $01
MIKE HAGLIN CHAIRMAN OF THE BOARD1 $0$0$0 $01
SARAH MCELROY DIRECTOR1 $0$0$0 $01
MICHELLE KOLL-O'LEARY DIRECTOR1 $0$0$0 $01
PETER STRELOW DIRECTOR1 $0$0$0 $01
2017 · 15 people listed · 2 paid, $340K · 16 employees · 0 volunteers
NameTitleHrs/wkFrom orgFrom relatedOtherTotalOrgs
DEBRA MILLER PRESIDENT40 $215,000$0$0 $215,0002
KAREN E HARLEY VICE-PRESIDENT40 $125,103$0$0 $125,1031
PAUL MILLER SECRETARY10 $0$0$0 $02
JEFFREY GOFFMAN DIRECTOR1 $0$0$0 $01
RON PHILIP DIRECTOR1 $0$0$0 $01
TOM SCRANTON DIRECTOR1 $0$0$0 $01
KEVIN DORSEY DIRECTOR1 $0$0$0 $01
RYAN WILLIAMS DIRECTOR1 $0$0$0 $01
EVONNE SEPSIS DIRECTOR1 $0$0$0 $01
ELAINE WU DIRECTOR1 $0$0$0 $01
TJ FARNSWORTH DIRECTOR1 $0$0$0 $01
GEORGE BLANK DIRECTOR1 $0$0$0 $01
THOM MCELROY DIRECTOR1 $0$0$0 $01
ALLESANDRO PLOL DIRECTOR1 $0$0$0 $01
STEPHEN SPIVAK DIRECTOR1 $0$0$0 $01
2016 · 16 people listed · 3 paid, $509K · 0 employees · 0 volunteers
NameTitleHrs/wkFrom orgFrom relatedOtherTotalOrgs
JOSEPH KNOWLES VICE-PRESIDENT40 $266,417$0$0 $266,4171
KAREN E HARLEY VICE-PRESIDENT40 $122,363$0$0 $122,3631
DEBRA MILLER PRESIDENT40 $120,000$0$0 $120,0002
PAUL MILLER SECRETARY10 $0$0$0 $02
JEFFREY GOFFMAN DIRECTOR1 $0$0$0 $01
RON PHILIP DIRECTOR1 $0$0$0 $01
TOM SCRANTON DIRECTOR1 $0$0$0 $01
KEVIN DORSEY DIRECTOR1 $0$0$0 $01
RYAN WILLIAMS DIRECTOR1 $0$0$0 $01
EVONNE SEPSIS DIRECTOR1 $0$0$0 $01
ELAINE WU DIRECTOR1 $0$0$0 $01
TJ FARNSWORTH DIRECTOR1 $0$0$0 $01
GEORGE BLANK DIRECTOR1 $0$0$0 $01
THOM MCELROY DIRECTOR1 $0$0$0 $01
ALLESANDRO PLOL DIRECTOR1 $0$0$0 $01
STEPHEN SPIVAK DIRECTOR1 $0$0$0 $01
2015 · 16 people listed · 3 paid, $381K · 7 employees · 0 volunteers
NameTitleHrs/wkFrom orgFrom relatedOtherTotalOrgs
DEBRA MILLER PRESIDENT40 $150,000$0$0 $150,0002
KAREN E HARLEY VICE-PRESIDENT40 $122,000$0$0 $122,0001
ANDREW HOYER SENIOR DIRECTOR OF DEVELOPMENT40 $108,915$0$0 $108,9151
PAUL MILLER SECRETARY10 $0$0$0 $02
JEFFREY GOFFMAN DIRECTOR1 $0$0$0 $01
RON PHILIP DIRECTOR1 $0$0$0 $01
TOM SCRANTON DIRECTOR1 $0$0$0 $01
KEVIN DORSEY DIRECTOR1 $0$0$0 $01
RYAN WILLIAMS DIRECTOR1 $0$0$0 $01
EVONNE SEPSIS DIRECTOR1 $0$0$0 $01
ELAINE WU DIRECTOR1 $0$0$0 $01
TJ FARNSWORTH DIRECTOR1 $0$0$0 $01
GEORGE BLANK DIRECTOR1 $0$0$0 $01
THOM MCELROY DIRECTOR1 $0$0$0 $01
ALLESANDRO PLOL DIRECTOR1 $0$0$0 $01
STEPHEN SPIVAK DIRECTOR1 $0$0$0 $01
2014 · 14 people listed · 4 paid, $579K · 6 employees · 0 volunteers
NameTitleHrs/wkFrom orgFrom relatedOtherTotalOrgs
DEBRA MILLER PRESIDENT40 $180,000$0$0 $180,0002
MICHAEL G KELLY CHIEF SCIENTIFIC OFFICER40 $168,384$0$0 $168,3841
KAREN E HARLEY VICE-PRESIDENT40 $120,000$0$0 $120,0001
ANDREW HOYER SENIOR DIRECTOR OF DEVELOPMENT40 $111,000$0$0 $111,0001
PAUL MILLER SECRETARY10 $0$0$0 $02
JEFFREY GOFFMAN DIRECTOR1 $0$0$0 $01
RON PHILIP DIRECTOR1 $0$0$0 $01
TOM SCRANTON DIRECTOR1 $0$0$0 $01
KEVIN DORSEY DIRECTOR1 $0$0$0 $01
RYAN WILLIAMS DIRECTOR1 $0$0$0 $01
EVONNE SEPSIS DIRECTOR1 $0$0$0 $01
ELAINE WU DIRECTOR1 $0$0$0 $01
TJ FARNSWORTH DIRECTOR1 $0$0$0 $01
GEORGE BLANK DIRECTOR1 $0$0$0 $01

Highest-paid independent contractors

2024 · 5 contractors · $987K
NameLocationServicePaid
TRINDS LLCPITTSBURGH, PAPROGRAM SERVICES$348,380
KAPTURE VISIONIRVINE, CAEVENT SERVICES$180,662
DMH NAPA VALLEY LLCNAPA, CACONSULTING COMPANY$166,101
BRAND AMP LLCCOSTA MESA, CAMARKETING SERVICES$159,617
I3 EVENT MARKETINGAUSTIN, TXEVENT SERVICES$131,759
2023 · 5 contractors · $1.1M
NameLocationServicePaid
TRINDS LLCPITTSBURGH, PAPROGRAM SERVICES$339,986
STARS & STRIPE CHILDREN FOUNDATIONIRVINE, CAEVENT SERVICES$252,000
MOBILITY WORKSNORWOOD, MAMEDICAL DEVICE SERVICES$182,590
DMH NAPA VALLEY LLCNAPA, CACONSULTING COMPANY$174,068
BRAND AMP LLCCOSTA MESA, CAMARKETING$150,779
2022 · 5 contractors · $1.5M
NameLocationServicePaid
THE WORTHWHILE COMPANYCHARLOTTE, NCSOFTWARE DEVELOPMENT$875,400
TRINDS LLCPITTSBURG, PARESEARCH$289,580
SYSTEM HOLDINGS LLCPITTSBURG, PAEMPLOYMENT SERVICES$139,602
BRAND AMP LLCCOSTA MESA, CAMARKETING$127,461
IDEAL HALLCOSTA MESA, CAMARKETING$115,419
2020 · 1 contractor · $67K
NameLocationServicePaid
ANONYMOUSIRVINE, CAFUNDRAISING$66,614
2019 · 1 contractor · $146K
NameLocationServicePaid
ANONYMOUSIRVINE, CAFUNDRAISING$146,000
2018 · 1 contractor · $116K
NameLocationServicePaid
ANONYMOUSIRVINE, CAFUNDRAISING$116,000
2017 · 1 contractor · $100K
NameLocationServicePaid
ANONYMOUSIRVINE, CAFUNDRAISING$100,089
2016 · 2 contractors · $210K
NameLocationServicePaid
ANONYMOUSIRVINE, CAFUNDRAISING$116,000
RLM FINSBURY LLCNEW YORK, NYMARKETING$93,523
2015 · 2 contractors · $240K
NameLocationServicePaid
RLM FINSBURY LLCNEW YORK, NYMARKETING$122,511
ANONYMOUSIRVINE, CAFUNDRAISING$117,400
2014 · 1 contractor · $147K
NameLocationServicePaid
ANONYMOUSIRVINE, CAFUNDRAISING$146,823

Who the money went to

Grants this organization reported paying: Schedule I Part II of the Form 990, or the grants-paid list on the 990-PF. Open a year for every recipient. Recipients link to their own page when the grant names an EIN we have (990-PF grants list no EIN, so those link only on an exact, unique name and state). Grants to individuals are counted; their names are not shown.

2024 · 4 grants to organizations · $660K
2023 · 3 grants to organizations · $495K
2022 · 2 grants to organizations · $330K
2021 · 4 grants to organizations · $395K
2020 · 1 grant to organizations · $68K
2019 · 1 grant to organizations · $55K
2018 · 2 grants to organizations · $150K
2017 · 1 grant to organizations · $100K
2016 · 5 grants to organizations · $798K
2015 · 5 grants to organizations · $478K
2014 · 4 grants to organizations · $162K

Listed grants add up to $162,494; the return's “grants paid” expense line says $164,994. Returns can differ here (grants paid vs. accrued, items listed elsewhere); check the filing.

Negative amounts are returned or refunded grants; they are listed last and left out of the totals of grants paid.

Who gave

Contributor names are not public for this form type.

Public charities filing Form 990 or 990-EZ report large donors on Schedule B, but the IRS withholds their names and addresses from public copies. Private foundations (990-PF) are different: their contributors are public.

Finances

Newest first. Each filing: its name on one row, its figures on the row beneath. Greyed filings are superseded by a later return for the same period and are left out everywhere else on this page.

RevenueExpensesAssetsNet assetsContributionsProgram revenueOfficer payEmployeesVolunteers
2024 · Form 990 period ending 2024-12-31 · view filing · original 990 ↗
$3,941,885$9,167,617 $30,906,923$30,659,059 $3,505,601$0 $2,095,003300
2023 · Form 990 period ending 2023-12-31 · view filing · original 990 ↗
$7,357,938$10,247,154 $27,086,351$26,829,916 $4,489,779$0 $2,563,123350
2022 · Form 990 period ending 2022-12-31 · view filing · original 990 ↗
$5,751,368$9,005,616 $28,410,543$28,099,885 $2,429,586$0 $1,216,1223718
2021 · Form 990 period ending 2021-12-31 · view filing · original 990 ↗
$5,442,219$7,605,386 $33,154,912$32,845,254 $2,697,179$0 $950,137300
2020 · Form 990 period ending 2020-12-31 · view filing · original 990 ↗
$5,329,712$5,957,804 $40,900,297$40,458,148 $2,772,905$0 $1,159,114270
2019 · Form 990 period ending 2019-12-31 · view filing · original 990 ↗
$27,520,354$4,978,057 $29,774,719$29,215,998 $2,509,935$0 $701,398280
2018 · Form 990 period ending 2018-12-31 · view filing · original 990 ↗
$4,813,344$4,314,793 $6,797,553$6,715,704 $1,612,024$0 $150,000190
2017 · Form 990 period ending 2017-12-31 · view filing · original 990 ↗
$2,985,008$2,592,407 $6,196,389$6,174,232 $1,392,399$0 $471,331160
2016 · Form 990 period ending 2016-12-31 · view filing · original 990 ↗
$2,050,636$3,255,183 $5,890,732$4,858,850 $1,505,094$0 $508,78000
2015 · Form 990 period ending 2015-12-31 · view filing · original 990 ↗
$1,902,106$2,518,144 $6,440,098$6,274,293 $1,649,355$0 $380,90570
2014 · Form 990 period ending 2014-12-31 · view filing · original 990 ↗
$4,052,797$1,546,811 $7,112,452$7,043,058 $1,320,395$0 $579,38460

Connected to

Organizations that list some of the same people on their returns (officers, directors, key employees on this organization’s latest return), and related organizations it lists on Schedule R.

Funders of this organization

92 grantors reported grants to this organization, $18,204,426 in all, tax years 2010 to 2025; the 25 largest shown (all 92). Exact: the grantor wrote this organization's EIN. Fuzzy: the grantor wrote only a name (foundations' 990-PF has no EIN field), matched to the same or a near-identical name in the same state; the name as filed is shown. From the latest return for each grantor and year, so amended returns aren't counted twice. CSV

GrantorTypeMatchYears givenGrantsTotalLatest yearLatest year's amountGrants
CHAMPIONS OFF THE FIELD Public charity Exact 2014-2024 11$7,428,118 2024$1,960,000
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VANGUARD CHARITABLE ENDOWMENT PROGRAM DAF sponsor Exact 2021-2024 4$5,580,334 2024$1,516,000
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CD ACCESS Public charity Exact 2023 1$846,800 2023$846,800
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FIDELITY INVESTMENTS CHARITABLE GIFT FUND DAF sponsor Exact 2016-2024 9$782,531 2024$304,750
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C3 LEGACY FOUNDATION Private foundation Fuzzy filed as “Cure Duchenne”, “CURE DUCHENNE” 2012-2018, 2020-2025 13$362,500 2025$50,000
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NATIONAL PHILANTHROPIC TR DAF sponsor Exact 2017, 2019, 2021-2024 6$301,500 2024$128,000
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AMERICAN ONLINE GIVING FOUNDATION INC DAF sponsor Exact 2019-2025 7$277,653 2025$89,473
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AMERICAN ENDOWMENT FOUNDATION DAF sponsor Exact 2018-2019, 2021-2022, 2024 5$242,500 2024$101,000
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STANLEY E HANSON FOUNDATION Private foundation Fuzzy filed as “CURE DUCHENNE” 2016-2019, 2021 5$225,000 2021$50,000
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FAIRFIELD COUNTYS COMMUNITY FOUNDATION INC DAF sponsor Exact 2021-2024 4$187,500 2024$82,500
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DONOR ADVISED CHARITABLE GIVING DAF sponsor Exact 2018, 2021-2024 5$154,855 2024$38,675
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ORANGE COUNTY COMMUNITY FOUNDATION DAF sponsor Exact 2011-2015, 2017-2018, 2022-2023 9$136,880 2023$20,000
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TEACH A MAN TO FISH FOUNDATION Private foundation Fuzzy filed as “CURE DUCHENNE” 2014 1$125,000 2014$125,000
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AUSTIN COMMUNITY FOUNDATION DAF sponsor Exact 2016-2024 9$105,850 2024$10,000
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STARS & STRIPES CHILDRENS FOUNDATION Public charity Exact 2023 1$100,000 2023$100,000
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FORGOOD INC DAF sponsor Exact 2010, 2015-2018 5$94,843 2018$13,359
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DEFEAT DUCHENNE LNC Public charity Exact 2016, 2018-2019 3$90,000 2019$17,500
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HOLDEN FAMILY FOUNDATION Private foundation Fuzzy filed as “CURE DUCHENNE” 2016-2022 7$70,000 2022$10,000
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PAYPAL CHARITABLE GIVING FUND DAF sponsor Exact 2020-2021, 2023-2024 4$64,139 2024$18,321
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BILEK CHARITABLE FOUNDATION Private foundation Fuzzy filed as “CURE DUCHENNE” 2018-2019, 2023, 2025 4$62,000 2025$7,500
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NATIONAL CHRISTIAN CHARITABLE FOUNDATION DAF sponsor Exact 2015-2016, 2018, 2020, 2022-2024 7$56,000 2024$9,000
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GREATER CINCINNATI FOUNDATION DAF sponsor Exact 2023 1$50,000 2023$50,000
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STEPHEN G AND REGINA OSWALD FOUNDATION Private foundation Fuzzy filed as “CURE DUCHENNE” 2022 1$50,000 2022$50,000
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UNITED WAY WORLDWIDE DAF sponsor Exact 2018 1$50,000 2018$50,000
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MANN CHARITABLE FOUNDATION Public charity Fuzzy filed as “CURE DUCHENNE” 2023-2025 3$49,374 2025$34,348
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Nearby + Similar BETA

Organizations like this one: what they do and who they are linked to

Same category: NTEE code and revenue

Ranked without any AI: same NTEE code first, then the same NTEE group; then revenue within 2x, 5x or 10x; then the same state; then similar name and mission text. Same state only · More (100)

OrganizationStateNTEELatest revenueLatest expensesTop-paid titleTop payWhy similar
SETTING SCOLIOSIS STRAIGHT FOUNDATIONCAH50 $2,745,752$1,859,994 Secretary$210,087 Same NTEE code H50, revenue within 2x, same state
ORTHOPAEDIC EDUCATION AND RESEARCHCAH50 $2,535,758$1,971,350 MEDICAL DIRECTOR$203,400 Same NTEE code H50, revenue within 2x, same state
MANN MEDICAL RESEARCH ORGANIZATIONCAH50 $7,305,685$386,120 DIRECTOR, PRESIDENT$91,555 Same NTEE code H50, revenue within 2x, same state
ORTHOCAROLINA RESEARCH INSTITUTE INCNCH50 $2,643,097$2,078,142 EXECUTIVE DIRECTOR$181,466 Same NTEE code H50, revenue within 2x
ORTHOPAEDIC RESEARCH AND EDUCATION FOUNDATIONILH50 $4,671,069$6,171,537 CEO$369,096 Same NTEE code H50, revenue within 2x
OSTEOGENESIS IMPERFECTA FOUNDATION INCMDH50 $2,607,851$2,627,305 CHIEF EXECUTIVE OFFICER$245,422 Same NTEE code H50, revenue within 2x
AO NORTH AMERICA CHARITABLE FUNDPAH50 $4,045,459$3,161,469 EXECUTIVE DIRECTOR$337,633 Same NTEE code H50, revenue within 2x
MPN RESEARCH FOUNDATIONILH50 $3,585,445$3,761,976 CHIEF EXECUTIVE OFFICER$345,097 Same NTEE code H50, revenue within 2x
CHILD NEUROLOGY EDUCATION AND RESEARCH FOUNDATIONOHH50 $1,263,681$1,885,833 Executive Director$325,921 Same NTEE code H50, revenue within 5x
CMT RESEARCH FOUNDATION INCGAH50 $8,662,522$4,587,545 Chief Operations Officer$249,886 Same NTEE code H50, revenue within 5x
TWIN CITIES ORTHOPEDICS FOUNDATIONMNH50 $881,422$1,004,363 CFO$0 Same NTEE code H50, revenue within 5x
COLLABORATIVE TRAJECTORY ANALYSIS PROJECTMAH50 $1,887,913$1,069,737 EXECUTIVE DIRECTOR & CO-FOUNDER$285,000 Same NTEE code H50, revenue within 5x
JACOBS INSTITUTE INCNYH50 $13,903,778$12,142,887 CHIEF MEDICAL OFFICER & CEO$750,000 Same NTEE code H50, revenue within 5x
PEDIATRIC SPINE FOUNDATIONUTH50 $1,866,494$1,736,562 EXECUTIVE DIRECTOR$183,681 Same NTEE code H50, revenue within 5x
ORTHOPAEDIC FOUNDATION FOR ACTIVE LIFESTYLES INCCTH50 $1,595,536$822,776 EXECUTIVE DIRECTOR$216,596 Same NTEE code H50, revenue within 5x
THE HAWKINS FOUNDATIONSCH50 $1,112,291$938,176 DIRECTOR$0 Same NTEE code H50, revenue within 5x
ANTERIOR HIP FOUNDATION INCCOH50 $1,133,843$825,821 FOUNDER$0 Same NTEE code H50, revenue within 5x
FELLOWSHIP OF ORTHOPEADIC RESEARCHERS INCLAH50 $1,070,923$1,043,500 DIRECTOR$251,037 Same NTEE code H50, revenue within 5x
SPINE INSTITUTE OF LOUISIANA FOUNDATION INCLAH50 $1,243,749$1,587,309 CEO$0 Same NTEE code H50, revenue within 5x
CURE CMD INCCAH50 $677,234$442,453 Executive Director Secretary$108,898 Same NTEE code H50, revenue within 10x, same state
INTERNATIONAL NEUROMODULATION SOCIETYCAH50 $653,817$801,456 EDITOR-IN-CH$221,900 Same NTEE code H50, revenue within 10x, same state
CHARLEYS FUND INCMAH50 $628,496$491,964 PRESIDENT$0 Same NTEE code H50, revenue within 10x, similar mission
CHRISTOPHER REEVE FOUNDATION A NEW JERSEY NONPROFIT CORPORATIONNJH50 $22,618,426$16,432,299 PRESIDENT AND CEO$346,983 Same NTEE code H50, revenue within 10x
KENNEDYS DISEASE ASSOCIATIONGAH50 $745,674$1,099,089 PRESIDENT$0 Same NTEE code H50, revenue within 10x
THE INTERNATIONAL THYROID CANCER STUDY GROUP INCNYH50 $613,818$372,508 CFO/ CO-FOUNDER$0 Same NTEE code H50, revenue within 10x

Who funds organizations like this

Grantors that funded the 100 most similar organizations. Ranked by total given to them. Foundations (990-PF) and donor-advised fund sponsors only. Same matching as Funders above (by EIN, or by name for foundations).

GrantorTypeTotal givenGrantsOrganizations fundedYearsWhich ones
JEFFREY CARLTON CHARITABLE FOUNDATION UDT DATED APRIL 10 2009 Private foundation$20,500,0005 12020–2024 PARALYZED VETERANS OF AMERICA
FIDELITY INVESTMENTS CHARITABLE GIFT FUND funds this one DAF sponsor$15,255,017179 382016–2024 PARALYZED VETERANS OF AMERICA; CHILDRENS TUMOR FOUNDATION; KERLAN-JOBE ORTHOPAEDIC FOUNDATION; CHRISTOPHER REEVE FOUNDATION A NEW JERSEY NONPROFIT CORPORATION and 34 more
DONOR ADVISED CHARITABLE GIVING funds this one DAF sponsor$7,340,671126 272014–2024 CHILDRENS TUMOR FOUNDATION; FOUNDATION OF ORTHOPEDICS AND COMPLEX SPINE INC; CMT RESEARCH FOUNDATION INC; CHRISTOPHER REEVE FOUNDATION A NEW JERSEY NONPROFIT CORPORATION and 23 more
JEWISH COMMUNAL FUND DAF sponsor$6,074,55435 52009–2024 CHILDRENS TUMOR FOUNDATION; FOUNDATION OF ORTHOPEDICS AND COMPLEX SPINE INC; CHRISTOPHER REEVE FOUNDATION A NEW JERSEY NONPROFIT CORPORATION; CHARLEYS FUND INC and 1 more
SPARTANBURG COUNTY FOUNDATION DAF sponsor$5,406,0008 12010–2017 THE HAWKINS FOUNDATION
LILLY ENDOWMENT INC Private foundation$5,000,0001 12025–2025 PARALYZED VETERANS OF AMERICA
VANGUARD CHARITABLE ENDOWMENT PROGRAM funds this one DAF sponsor$4,635,30243 162020–2024 CHRISTOPHER REEVE FOUNDATION A NEW JERSEY NONPROFIT CORPORATION; CMT RESEARCH FOUNDATION INC; CHILDRENS TUMOR FOUNDATION; PARALYZED VETERANS OF AMERICA and 12 more
THE@RICHARD AND MARCY HORVITZ FOUNDATION Private foundation$4,068,48728 12010–2022 CHILDRENS TUMOR FOUNDATION
AMERICAN JEWISH JOINT DISTRIBUTION COMMITTEE INC DAF sponsor$3,668,8596 12016–2022 FOUNDATION OF ORTHOPEDICS AND COMPLEX SPINE INC
AMERICAN ONLINE GIVING FOUNDATION INC funds this one DAF sponsor$3,360,01266 152019–2025 CHILDRENS TUMOR FOUNDATION; PARALYZED VETERANS OF AMERICA; CHRISTOPHER REEVE FOUNDATION A NEW JERSEY NONPROFIT CORPORATION; AUDRE LORDE PROJECT INC and 11 more
FORGOOD INC funds this one DAF sponsor$2,175,72671 182010–2023 CURE CMD INC; MPN RESEARCH FOUNDATION; DETERMINED2HEAL FOUNDATION INC; CHILDRENS TUMOR FOUNDATION and 14 more
FOUNDATION FOR THE CAROLINAS DAF sponsor$1,993,48519 22015–2024 ORTHOCAROLINA RESEARCH INSTITUTE INC; PARALYZED VETERANS OF AMERICA
NATIONAL PHILANTHROPIC TR funds this one DAF sponsor$1,737,59060 122014–2024 CHILDRENS TUMOR FOUNDATION; FOUNDATION OF ORTHOPEDICS AND COMPLEX SPINE INC; OSTEOGENESIS IMPERFECTA FOUNDATION INC; PARALYZED VETERANS OF AMERICA and 8 more
DUKE ENDOWMENT Private foundation$1,640,0006 12019–2024 ORTHOCAROLINA RESEARCH INSTITUTE INC
PENSKE FOUNDATION INC Private foundation$1,500,0002 12022–2024 PARALYZED VETERANS OF AMERICA

The full list · all similar organizations

Where the money went

Every expense line on each return, biggest first: Form 990 Part IX (with its program, management and fundraising columns), 990-EZ Part I, or 990-PF Part I. Event marks lines the organization itself describes as events. “Events” in each summary adds those lines, conferences and meetings, and the direct costs of fundraising events. Unusual is not the same as improper. Many of these patterns have ordinary explanations. Check the filing.

2024 · Form 990 · $9,167,617 spent · pay $4,567,404 · grants $660,000 · events $2,977,720
LineAs describedTotalProgramManagementFundraisingShare
Pay: officers, directors, trustees, key employees $2,095,003$1,978,336$15,125$101,542 22.9%
Other salaries and wages $1,840,165$966,631$461,475$412,059 20.1%
Other (as described)RESEARCH EXPENSE $1,352,680$1,352,680-- 14.8%
Grants to US organizations and governments $660,000$660,000-- 7.2%
Travel $620,884$542,727$664$77,493 6.8%
Other (as described)PUBLIC RELATIONS $467,239$466,114-$1,125 5.1%
Fees: legal $338,359$239,738$84,799$13,822 3.7%
Payroll taxes $323,159$259,379$17,655$46,125 3.5%
Information technology $266,105$172,352$85,085$8,668 2.9%
Other employee benefits $224,478$194,053$439$29,986 2.4%
All other expenses $219,361$98,730$40,126$80,505 2.4%
Other (as described)PROMOTIONAL EXPENSE $130,462$88,076$8,512$33,874 1.4%
Occupancy $126,148$102,613$5,042$18,493 1.4%
Office expenses $123,975$35,094$70,473$18,408 1.4%
Other (as described)DUES & SUBSCRIPTIONS $92,972$72,987$10,463$9,522 1.0%
Pension plan contributions $84,599$73,133$166$11,300 0.9%
Fees: accounting $69,001-$69,001- 0.8%
Advertising and promotion $50,132$36,217-$13,915 0.5%
Fees: other services $40,151$1,814$33,163$5,174 0.4%
Insurance $38,852$25,741$8,322$4,789 0.4%
Depreciation and depletion $3,892-$3,892- 0.0%
Fundraising events Eventdirect expenses; gross income $5,171,016$2,977,720reported apart
Total$9,167,617100%

View the filing

2023 · Form 990 · $10,247,154 spent · pay $4,682,911 · grants $495,000 · events $2,920,102
LineAs describedTotalProgramManagementFundraisingShare
Pay: officers, directors, trustees, key employees $2,563,123$2,380,782$14,255$168,086 25.0%
Other (as described)OUTSIDE SERVICES $2,407,152$2,336,910$67,889$2,353 23.5%
Other salaries and wages $1,540,526$854,951$313,509$372,066 15.0%
Travel $540,276$286,734$78,129$175,413 5.3%
Grants to US organizations and governments $495,000$495,000-- 4.8%
Other (as described)PUBLIC RELATIONS $464,766$464,766-- 4.5%
Fees: legal $377,814$310,570$6,195$61,049 3.7%
Payroll taxes $311,195$237,522$19,252$54,421 3.0%
Other (as described)OFFICE SUPPLIES $268,543$84,499$160,412$23,632 2.6%
Other employee benefits $268,067$212,139$2,681$53,247 2.6%
All other expenses $232,437$103,901$33,225$95,311 2.3%
Occupancy $175,894$161,157$3,293$11,444 1.7%
Information technology $155,775$123,898$20,874$11,003 1.5%
Other (as described)RESEARCH EXPENSE $130,007$130,007-- 1.3%
Conferences, conventions and meetings $125,936$60,256$23,809$41,871 1.2%
Advertising and promotion $84,972$79,241$125$5,606 0.8%
Fees: accounting $68,759$41,255$13,752$13,752 0.7%
Fees: other services $20,734$1,098$4,222$15,414 0.2%
Insurance $9,148$5,551$2,039$1,558 0.1%
Depreciation and depletion $6,488-$6,488- 0.1%
Office expenses $542-$542- 0.0%
Fundraising events Eventdirect expenses; gross income $4,731,548$2,794,166reported apart
Total$10,247,154100%

View the filing

2022 · Form 990 · $9,005,616 spent · pay $3,851,657 · grants $330,000 · events $2,462,858
LineAs describedTotalProgramManagementFundraisingShare
Other (as described)OUTSIDE SERVICES $2,269,069$2,057,420$136,099$75,550 25.2%
Other salaries and wages $2,174,238$1,373,482$326,427$474,329 24.1%
Pay: officers, directors, trustees, key employees $1,216,122$1,132,599$15,211$68,312 13.5%
Travel $409,105$249,542$109,813$49,750 4.5%
Occupancy $385,034$309,392$14,555$61,087 4.3%
Grants to US organizations and governments $330,000$330,000-- 3.7%
Other (as described)PROMOTIONAL EXPENSE $327,334$214,051$62,998$50,285 3.6%
All other expenses $264,356$109,302$105,376$49,678 2.9%
Payroll taxes $258,263$189,637$20,226$48,400 2.9%
Other (as described)PUBLIC RELATIONS $252,504$246,001-$6,503 2.8%
Fees: other services $242,659$160,200$17,478$64,981 2.7%
Information technology $229,575$89,322$117,985$22,268 2.5%
Other employee benefits $203,034$163,035$20$39,979 2.3%
Office expenses $180,698$13,514$165,278$1,906 2.0%
Other (as described)DUES & SUBSCRIPTIONS $134,145$47,810$53,402$32,933 1.5%
Insurance $59,928$32,866$12,576$14,486 0.7%
Fees: accounting $45,701$13,470$29,001$3,230 0.5%
Fees: legal $19,797$5,083$11,927$2,787 0.2%
Depreciation and depletion $4,054-$4,054- 0.0%
Fundraising events Eventdirect expenses; gross income $5,669,912$2,462,858reported apart
Total$9,005,616100%

View the filing

2021 · Form 990 · $7,605,386 spent · pay $2,939,257 · grants $394,830 · events $1,135,593
LineAs describedTotalProgramManagementFundraisingShare
Other (as described)OUTSIDE SERVICES $2,383,786$2,362,678$20,337$771 31.3%
Other salaries and wages $1,586,069$1,062,485$319,654$203,930 20.9%
Pay: officers, directors, trustees, key employees $950,137$608,524$7,698$333,915 12.5%
Advertising and promotion $446,840$267,995$7,277$171,568 5.9%
Grants to US organizations and governments $394,830$394,830-- 5.2%
Information technology $389,063$339,706$42,779$6,578 5.1%
Payroll taxes $228,651$161,619$20,750$46,282 3.0%
Fees: legal $195,330$95,533$96,294$3,503 2.6%
Occupancy $175,298$142,450$8,212$24,636 2.3%
Other employee benefits $174,400$134,179-$40,221 2.3%
Other (as described)PUBLIC RELATIONS $167,210$163,575-$3,635 2.2%
Office expenses $158,386$63,019$49,347$46,020 2.1%
Travel $97,527$37,481$15,340$44,706 1.3%
All other expenses $87,842$43,751$11,091$33,000 1.2%
Insurance $51,252$38,340$327$12,585 0.7%
Other (as described)DUES & SUBSCRIPTIONS $46,965$34,694$4,842$7,429 0.6%
Other (as described)PROMOTIONAL EXPENSE $45,181$3,820$17,876$23,485 0.6%
Fees: other services $26,619$1,723$2,963$21,933 0.4%
Fundraising events Eventdirect expenses; gross income $3,069,711$1,135,593reported apart
Total$7,605,386100%

View the filing

2020 · Form 990 · $5,957,804 spent · pay $3,048,620 · grants $68,000 · events $761,521
LineAs describedTotalProgramManagementFundraisingShare
Other salaries and wages $1,475,810$731,787$344,798$399,225 24.8%
Other (as described)OUTSIDE SERVICES $1,441,395$1,325,126$116,269- 24.2%
Pay: officers, directors, trustees, key employees $1,159,114$1,027,255$7,250$124,609 19.5%
Other employee benefits $219,416$163,917$13,911$41,588 3.7%
Information technology $203,505$176,196$15,634$11,675 3.4%
Payroll taxes $194,280$151,133$3,909$39,238 3.3%
Other (as described)RESEARCH EXPENSE $186,778$186,778-- 3.1%
Other (as described)PUBLIC RELATIONS $148,940$148,940-- 2.5%
Fees: legal $139,186$4,216$133,648$1,322 2.3%
Occupancy $138,644$111,565$6,770$20,309 2.3%
All other expenses $135,142$54,461$31,167$49,514 2.3%
Other (as described)COMMUNITY RELATIONS EXP $115,072$115,072-- 1.9%
Office expenses $94,890$32,774$56,696$5,420 1.6%
Grants to US organizations and governments $68,000$68,000-- 1.1%
Fees: professional fundraisers $66,614--$66,614 1.1%
Travel $48,394$38,777$1,539$8,078 0.8%
Fees: other services $39,657$1,815$3,081$34,761 0.7%
Fees: accounting $32,996-$32,996- 0.6%
Insurance $31,887$25,244$2,630$4,013 0.5%
Conferences, conventions and meetings $18,084$6,362$6,204$5,518 0.3%
Fundraising events Eventdirect expenses; gross income $1,725,733$743,437reported apart
Total$5,957,804100%

View the filing

2019 · Form 990 · $4,978,057 spent · pay $2,410,746 · grants $55,000 · events $1,710,261
LineAs describedTotalProgramManagementFundraisingShare
Other salaries and wages $1,444,698$669,242$445,891$329,565 29.0%
Other (as described)OUTSIDE SERVICES $971,652$768,210$86,763$116,679 19.5%
Pay: officers, directors, trustees, key employees $701,398$471,531$6,339$223,528 14.1%
Travel $417,363$249,590$71,944$95,829 8.4%
Office expenses $159,212$48,299$96,008$14,905 3.2%
Payroll taxes $154,771$100,916$4,950$48,905 3.1%
Fees: professional fundraisers $146,000--$146,000 2.9%
Other (as described)COMMUNITY RELATIONS EXP $141,495$141,495-- 2.8%
Information technology $119,234$100,576$15,325$3,333 2.4%
Occupancy $116,044$90,209$7,832$18,003 2.3%
Other employee benefits $109,879$73,869$4,866$31,144 2.2%
Fees: legal $97,263$32,214$56,062$8,987 2.0%
All other expenses $82,788$51,787$21,961$9,040 1.7%
Other (as described)DUES & SUBSCRIPTIONS $64,856$33,211$15,558$16,087 1.3%
Fees: other services $62,526$3,190$1,245$58,091 1.3%
Advertising and promotion $59,173$30,205$10,449$18,519 1.2%
Grants to US organizations and governments $55,000$55,000-- 1.1%
Other (as described)PRINTING & REPRODUCTION $50,484$24,884$5,941$19,659 1.0%
Insurance $24,221$15,669$1,630$6,922 0.5%
Fundraising events Eventdirect expenses; gross income $2,861,573$1,710,261reported apart
Total$4,978,057100%

View the filing

2018 · Form 990 · $4,314,793 spent · pay $1,634,955 · grants $150,000 · events $783,475
LineAs describedTotalProgramManagementFundraisingShare
Other salaries and wages $1,325,992$701,966$268,193$355,833 30.7%
Other (as described)OUTSIDE SERVICES $960,432$813,820$71,059$75,553 22.3%
Travel $450,690$350,361$41,198$59,131 10.4%
Other (as described)COMMUNITY RELATIONS EXP $323,669$323,669-- 7.5%
Office expenses $176,617$38,806$122,499$15,312 4.1%
Grants to US organizations and governments $150,000$150,000-- 3.5%
Pay: officers, directors, trustees, key employees $150,000$127,299-$22,701 3.5%
Information technology $135,773$62,285$37,527$35,961 3.1%
Fees: professional fundraisers $116,000--$116,000 2.7%
Payroll taxes $90,654$52,508$12,861$25,285 2.1%
Fees: legal $75,330$9,450$61,791$4,089 1.7%
Occupancy $69,416$34,480$17,999$16,937 1.6%
Other employee benefits $68,309$41,972$5,239$21,098 1.6%
Advertising and promotion $54,316$28,075$8,206$18,035 1.3%
All other expenses $53,952$21,502$11,628$20,822 1.3%
Other (as described)PRINTING & REPRODUCTION $42,239$12,671$12,296$17,272 1.0%
Fees: other services $32,453$1,160$588$30,705 0.8%
Other (as described)PUBLIC RELATIONS $27,735$27,735$0$0 0.6%
Insurance $11,216$5,561$2,613$3,042 0.3%
Fundraising events Eventdirect expenses; gross income $3,103,339$783,475reported apart
Total$4,314,793100%

View the filing

2017 · Form 990 · $2,592,407 spent · pay $1,127,397 · grants $100,000 · events $754,512
LineAs describedTotalProgramManagementFundraisingShare
Other salaries and wages $508,704$124,561$193,622$190,521 19.6%
Pay: officers, directors, trustees, key employees $471,331$349,739-$121,592 18.2%
Other (as described)OUTSIDE SERVICES $463,503$335,001$54,831$73,671 17.9%
Travel $274,334$212,329$1,480$60,525 10.6%
Fees: professional fundraisers $100,089--$100,089 3.9%
Grants to US organizations and governments $100,000$100,000-- 3.9%
Fees: legal $87,460$32,305$53,364$1,791 3.4%
Information technology $81,925$43,250$26,774$11,901 3.2%
Payroll taxes $77,214$41,563$12,010$23,641 3.0%
Occupancy $70,619$32,993$11,582$26,044 2.7%
Other employee benefits $70,148$45,518$2,436$22,194 2.7%
Other (as described)PUBLIC RELATIONS $51,397$50,848$549$0 2.0%
Office expenses $50,888$11,850$29,918$9,120 2.0%
Fees: other services $45,808$1,725$1,867$42,216 1.8%
Advertising and promotion $43,020$25,904$2,127$14,989 1.7%
Other (as described)PRINTING & REPRODUCTION $42,515$14,264$7,391$20,860 1.6%
All other expenses $28,431$12,593$5,778$10,060 1.1%
Other (as described)DUES & SUBSCRIPTIONS $19,430$13,042$3,279$3,109 0.7%
Insurance $5,591$2,536$1,658$1,397 0.2%
Fundraising events Eventdirect expenses; gross income $2,692,561$754,512reported apart
Total$2,592,407100%

View the filing

2016 · Form 990 · $3,255,183 spent · pay $1,051,064 · grants $797,517 · events $744,665
LineAs describedTotalProgramManagementFundraisingShare
Grants to US organizations and governments $797,517$797,517-- 24.5%
Other (as described)OUTSIDE CONTRACT SERVIC $517,048$411,927$88,388$16,733 15.9%
Pay: officers, directors, trustees, key employees $508,780$508,780-- 15.6%
Pay: disqualified persons $409,827$221,178$27,009$161,640 12.6%
Travel $254,379$215,289$1,376$37,714 7.8%
Fees: legal $140,369$72,780$54,520$13,069 4.3%
Fees: professional fundraisers $116,000--$116,000 3.6%
Occupancy $74,416$39,245$11,731$23,440 2.3%
Other employee benefits $66,271$51,718$1,903$12,650 2.0%
Payroll taxes $66,186$53,277$2,113$10,796 2.0%
Information technology $61,857$25,735$22,704$13,418 1.9%
All other expenses $52,303$31,337$8,181$12,785 1.6%
Conferences, conventions and meetings $44,060$30,679$371$13,010 1.4%
Office expenses $38,905$15,712$22,181$1,012 1.2%
Other (as described)BANK & CREDIT CARD CHAR $35,336$1,036$3,683$30,617 1.1%
Fees: accounting $28,573-$28,573- 0.9%
Other (as described)PRINTING & REPRODUCTION $24,514$7,504$2,714$14,296 0.8%
Other (as described)DUES & SUBSCRIPTIONS $16,896$9,325$2,310$5,261 0.5%
Advertising and promotion $1,852$462-$1,390 0.1%
Depreciation and depletion $94-$94- 0.0%
Fundraising events Eventdirect expenses; gross income $1,325,503$700,605reported apart
Total$3,255,183100%

View the filing

2015 · Form 990 · $2,518,144 spent · pay $763,677 · grants $478,067 · events $791,767
LineAs describedTotalProgramManagementFundraisingShare
Other (as described)OUTSIDE CONTRACT SERVIC $510,201$469,302$40,899- 20.3%
Grants to US organizations and governments $478,067$478,067-- 19.0%
Pay: officers, directors, trustees, key employees $380,905$326,457-$54,448 15.1%
Other salaries and wages $270,049$190,411$22,374$57,264 10.7%
Travel $177,954$141,474$72$36,408 7.1%
Fees: professional fundraisers $144,891--$144,891 5.8%
Information technology $68,632$33,097$21,864$13,671 2.7%
All other expenses $66,004$17,233$30,436$18,335 2.6%
Fees: legal $65,243$39,563$23,992$1,688 2.6%
Other (as described)PATIENT OUTREACH $61,457$61,457-- 2.4%
Other employee benefits $56,710$41,825$2,740$12,145 2.3%
Payroll taxes $56,013$37,804$3,019$15,190 2.2%
Occupancy $50,870$27,256$11,208$12,406 2.0%
Other (as described)PUBLIC RELATIONS $47,000$47,000-- 1.9%
Other (as described)BANK & CREDIT CARD CHAR $30,632$844$2,665$27,123 1.2%
Office expenses $19,297$3,235$15,931$131 0.8%
Conferences, conventions and meetings $19,152$11,608$508$7,036 0.8%
Insurance $14,110$2,557$1,074$10,479 0.6%
Advertising and promotion $697$697-- 0.0%
Depreciation and depletion $260-$260- 0.0%
Fundraising events Eventdirect expenses; gross income $808,230$772,615reported apart
Total$2,518,144100%

View the filing

2014 · Form 990 · $1,546,811 spent · pay $675,017 · grants $164,994 · events $475,378
LineAs describedTotalProgramManagementFundraisingShare
Pay: officers, directors, trustees, key employees $579,384$534,384-$45,000 37.5%
Other (as described)OUTSIDE CONTRACT SERVIC $302,912$234,151$30,988$37,773 19.6%
Grants to US organizations and governments $162,494$162,494-- 10.5%
Travel $102,758$80,528$193$22,037 6.6%
Insurance $59,761$44,874$840$14,047 3.9%
Fees: legal $57,761$50,804$4,885$2,072 3.7%
Other salaries and wages $52,195-$22,916$29,279 3.4%
Occupancy $45,395$22,203$10,958$12,234 2.9%
Payroll taxes $43,438$20,167$3,851$19,420 2.8%
Fees: accounting $33,535-$33,535- 2.2%
Information technology $31,682$18,270$5,556$7,856 2.0%
All other expenses $18,432$5,483$9,129$3,820 1.2%
Other (as described)BANK & CREDIT CARD CHAR $16,909$602$2,392$13,915 1.1%
Other (as described)PRINTING & REPRODUCTION $13,620$1,728$3,936$7,956 0.9%
Office expenses $11,717$7,417$4,096$204 0.8%
Other (as described)POSTAGE & DELIVERY EXPE $9,432$94$1,912$7,426 0.6%
Grants outside the US $2,500$2,500-- 0.2%
Advertising and promotion $2,424$2,324$100- 0.2%
Depreciation and depletion $462-$462- 0.0%
Fundraising events Eventdirect expenses; gross income $673,149$475,378reported apart
Total$1,546,811100%

View the filing

State business registration

The same business name in the same state, from the state’s official registry data.

Trademarks

1 US trademark, 1 live.

MarkSerialFiledStatusSource
CURE DUCHENNE CARES CERTIFIED PHYSICAL THERAPIST868991512016-02-05RegisteredTRTDXFAP, file of 2026-05-27

The newest marks of the trademark owners above, matched to this record by name (and state).

Also on this site Fuzzy

RecordName as filedWhereDatasetMatched by
Plan sponsorCURE DUCHENNECAForm 5500 (employee benefit plans)EIN (EXACT)

Matched by name (and state) or EIN only; a shared name is not proof of the same person or organization.

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