CURE DUCHENNE: Form 990, tax year 2015

View the entire original 990 at ProPublica ↗

Organization
CURE DUCHENNE (EIN 20-0299958)
Tax period
2015-01-01 to 2015-12-31
Filed
2016-09-06
IRS object ID
201612509349300536
Schema version
2015v2.1
Source
Download XML · Original 990 at ProPublica

Every field in the e-filed return. Faint text is the IRS element name, for citing.

Return header ReturnHeader

FieldValueIRS element (for citing)
Return2016-09-06T13:08:46-05:00ReturnTs
Tax Period End2015-12-31TaxPeriodEndDt

Preparer Firm PreparerFirmGrp

FieldValueIRS element (for citing)
Preparer Firm EIN954303700PreparerFirmEIN

Preparer Firm Name PreparerFirmName

FieldValueIRS element (for citing)
Business Name Line1JOHN S BALISY & COMPANYBusinessNameLine1Txt

Preparer US Address PreparerUSAddress

FieldValueIRS element (for citing)
Address Line123792 ROCKFIELD BLVD STE 140AddressLine1Txt
CityLAKE FORESTCityNm
State AbbreviationCAStateAbbreviationCd
ZIP92630ZIPCd
FieldValueIRS element (for citing)
Return Type990ReturnTypeCd
Tax Period Begin2015-01-01TaxPeriodBeginDt

Filer Filer

FieldValueIRS element (for citing)
EIN200299958EIN

Business Name BusinessName

FieldValueIRS element (for citing)
Business Name Line1CURE DUCHENNEBusinessNameLine1Txt
FieldValueIRS element (for citing)
Business Name ControlCUREBusinessNameControlTxt
Phone9498722552PhoneNum

US Address USAddress

FieldValueIRS element (for citing)
Address Line11400 QUAIL STREET NO 110AddressLine1Txt
CityNEWPORT BEACHCityNm
State AbbreviationCAStateAbbreviationCd
ZIP92660ZIPCd

Business Officer BusinessOfficerGrp

FieldValueIRS element (for citing)
PersonDEBRA MILLERPersonNm
Person TitlePRESIDENTPersonTitleTxt
Phone9498722552PhoneNum
Signature2016-08-18SignatureDt

Preparer Person PreparerPersonGrp

FieldValueIRS element (for citing)
Preparer PersonJOHN S BALISY COMPANYPreparerPersonNm
PTINP01385861PTIN
Phone9495407519PhoneNum
FieldValueIRS element (for citing)
Tax2015TaxYr
Build TS2016-12-15 16:53:06ZBuildTS

Form 990 IRS990

FieldValueIRS element (for citing)
Principal OfficerDEBRA MILLERPrincipalOfficerNm

US Address USAddress

FieldValueIRS element (for citing)
Address Line11400 QUAIL STREET STE 110AddressLine1Txt
CityNEWPORT BEACHCityNm
State AbbreviationCAStateAbbreviationCd
ZIP92660ZIPCd
FieldValueIRS element (for citing)
Gross Receipts$3,623,986GrossReceiptsAmt
Group Return For Affiliates0GroupReturnForAffiliatesInd
Organization501c3Yes (X)Organization501c3Ind
Website AddressWWW.CUREDUCHENNE.ORGWebsiteAddressTxt
Type Of Organization CorpYes (X)TypeOfOrganizationCorpInd
Formation2003FormationYr
Legal Domicile StateCALegalDomicileStateCd
Activity Or MissionCOORDINATING AND FUNDING RESEARCH NECESSARY TO FIND A CURE FOR DUCHENNE MUSCULAR DYSTROPHY. ALSO, IMPROVING THE CARE AND HEALTH OF DUCHENNE MUSCULAR DISTROPHY PATIENTS.ActivityOrMissionDesc
Voting Members Governing Body14VotingMembersGoverningBodyCnt
Voting Members Independent14VotingMembersIndependentCnt
Total Employee7TotalEmployeeCnt
Total Volunteers0TotalVolunteersCnt
Total Gross UBI$0TotalGrossUBIAmt
Net Unrelated Bus Txbl Incm$0NetUnrelatedBusTxblIncmAmt
PY Contributions Grants$1,320,395PYContributionsGrantsAmt
CY Contributions Grants$1,649,355CYContributionsGrantsAmt
PY Program Service Revenue$0PYProgramServiceRevenueAmt
CY Program Service Revenue$0CYProgramServiceRevenueAmt
PY Investment Income$2,534,631PYInvestmentIncomeAmt
CY Investment Income$217,136CYInvestmentIncomeAmt
PY Other Revenue$197,771PYOtherRevenueAmt
CY Other Revenue$35,615CYOtherRevenueAmt
PY Total Revenue$4,052,797PYTotalRevenueAmt
CY Total Revenue$1,902,106CYTotalRevenueAmt
PY Grants And Similar Paid$164,994PYGrantsAndSimilarPaidAmt
CY Grants And Similar Paid$478,067CYGrantsAndSimilarPaidAmt
PY Benefits Paid To Members$0PYBenefitsPaidToMembersAmt
CY Benefits Paid To Members$0CYBenefitsPaidToMembersAmt
PY Salaries Comp Emp Bnft Paid$675,017PYSalariesCompEmpBnftPaidAmt
CY Salaries Comp Emp Bnft Paid$763,677CYSalariesCompEmpBnftPaidAmt
PY Total Prof Fndrsng Expns$0PYTotalProfFndrsngExpnsAmt
CY Total Prof Fndrsng Expns$144,891CYTotalProfFndrsngExpnsAmt
CY Total Fundraising Expense$411,215CYTotalFundraisingExpenseAmt
PY Other Expenses$706,800PYOtherExpensesAmt
CY Other Expenses$1,131,509CYOtherExpensesAmt
PY Total Expenses$1,546,811PYTotalExpensesAmt
CY Total Expenses$2,518,144CYTotalExpensesAmt
PY Revenues Less Expenses$2,505,986PYRevenuesLessExpensesAmt
CY Revenues Less Expenses-$616,038CYRevenuesLessExpensesAmt
Total Assets BOY$7,112,452TotalAssetsBOYAmt
Total Assets EOY$6,440,098TotalAssetsEOYAmt
Total Liabilities BOY$69,394TotalLiabilitiesBOYAmt
Total Liabilities EOY$165,805TotalLiabilitiesEOYAmt
Net Assets Or Fund Balances BOY$7,043,058NetAssetsOrFundBalancesBOYAmt
Net Assets Or Fund Balances EOY$6,274,293NetAssetsOrFundBalancesEOYAmt
Info In Schedule O Part IIIYes (X)InfoInScheduleOPartIIIInd
MissionCURE DUCHENNE IS A NOT-FOR-PROFIT ORGANIZATION DEDICATED TO COORDINATING AND FUNDING RESEARCH NECESSARY TO FIND A CURE FOR DUCHENNE MUSCULAR DYSTROPHY, INCREASING PUBLIC AWARENESS FOR DUCHENNE MUSCULAR DYSTROPHY, AND IMPROVING THE CARE AND HEALTH OF DUCHENNE MUSCULAR DYSTROPHY PATIENTS.MissionDesc
Significant New Program Srvc0SignificantNewProgramSrvcInd
Significant Change0SignificantChangeInd
Expense$1,929,887ExpenseAmt
Grant$478,067GrantAmt
DescCURE DUCHENNE WAS ORGANIZED IN 2003 WITH A MISSION TO FUND RESEARCH NECESSARY TO FIND A CURE FOR DUCHENNE MUSCULAR DYSTROPHY, AND IMPROVING THE CARE AND HEALTH OF DUCHENNE MUSCULAR DYSTROPHY PATIENTS.Desc
Total Program Service Expenses$1,929,887TotalProgramServiceExpensesAmt
Described In Section501c3Yes (1)DescribedInSection501c3Ind
Schedule B RequiredYes (1)ScheduleBRequiredInd
Political Campaign Acty0PoliticalCampaignActyInd
Lobbying Activities0LobbyingActivitiesInd
Subject To Proxy Tax0SubjectToProxyTaxInd
Donor Advised Fund0DonorAdvisedFundInd
Conservation Easements0ConservationEasementsInd
Collections Of Art0CollectionsOfArtInd
Credit Counseling0CreditCounselingInd
Temp Or Permanent Endowments0TempOrPermanentEndowmentsInd
Report Land Building EquipmentYes (1)ReportLandBuildingEquipmentInd
Report Investments Other Sec0ReportInvestmentsOtherSecInd
Report Program Related InvstYes (1)ReportProgramRelatedInvstInd
Report Other Assets0ReportOtherAssetsInd
Report Other LiabilitiesYes (1)ReportOtherLiabilitiesInd
Include FIN48 Footnote0IncludeFIN48FootnoteInd
Independent Audit Fincl StmtYes (1)IndependentAuditFinclStmtInd
Consolidated Audit Fincl Stmt0ConsolidatedAuditFinclStmtInd
School Operating0SchoolOperatingInd
Foreign Office0ForeignOfficeInd
Foreign Activities0ForeignActivitiesInd
More Than5000 K To Org0MoreThan5000KToOrgInd
More Than5000 K To Individuals0MoreThan5000KToIndividualsInd
Professional FundraisingYes (1)ProfessionalFundraisingInd
Fundraising ActivitiesYes (1)FundraisingActivitiesInd
Gaming Activities0GamingActivitiesInd
Operate Hospital0OperateHospitalInd
Grants To OrganizationsYes (1)GrantsToOrganizationsInd
Grants To Individuals0GrantsToIndividualsInd
Schedule J Required0ScheduleJRequiredInd
Tax Exempt Bonds0TaxExemptBondsInd
Engaged In Excess Benefit Trans0EngagedInExcessBenefitTransInd
PY Excess Benefit Trans0PYExcessBenefitTransInd
Loan Outstanding0LoanOutstandingInd
Grant To Related Person0GrantToRelatedPersonInd
Business Rln With Org Mem0BusinessRlnWithOrgMemInd
Business Rln With Fam Mem0BusinessRlnWithFamMemInd
Business Rln With Officer Ent0BusinessRlnWithOfficerEntInd
Deductible Non Cash Contri0DeductibleNonCashContriInd
Deductible Art Contribution0DeductibleArtContributionInd
Terminate Operations0TerminateOperationsInd
Partial Liquidation0PartialLiquidationInd
Disregarded EntityYes (1)DisregardedEntityInd
Related Entity0RelatedEntityInd
Related Organization Ctrl Ent0RelatedOrganizationCtrlEntInd
Trnsfr Exmpt Non Chrtbl Rltd Org0TrnsfrExmptNonChrtblRltdOrgInd
Activities Conducted Prtshp0ActivitiesConductedPrtshpInd
Schedule O RequiredYes (1)ScheduleORequiredInd
IRP Document46IRPDocumentCnt
IRP Document W2 G0IRPDocumentW2GCnt
Employee7EmployeeCnt
Employment Tax Returns Filed0EmploymentTaxReturnsFiledInd
Unrelated Bus Incm Over Limit0UnrelatedBusIncmOverLimitInd
Foreign Financial Account0ForeignFinancialAccountInd
Prohibited Tax Shelter Trans0ProhibitedTaxShelterTransInd
Taxable Party Notification0TaxablePartyNotificationInd
Nondeductible Contributions0NondeductibleContributionsInd
Quid Pro Quo Contributions0QuidProQuoContributionsInd
Form8282 Property Disposed Of0Form8282PropertyDisposedOfInd
Rcv Fnds To Pay Prsnl Bnft Cntrct0RcvFndsToPayPrsnlBnftCntrctInd
Pay Premiums Prsnl Bnft Cntrct0PayPremiumsPrsnlBnftCntrctInd
Form8899 Filedind0Form8899Filedind
Form1098 C Filed0Form1098CFiledInd
DAF Excess Business Holdings0DAFExcessBusinessHoldingsInd
Taxable Distributions0TaxableDistributionsInd
Distribution To Donor0DistributionToDonorInd
Org Filed In Lieu Of Form10410OrgFiledInLieuOfForm1041Ind
Licensed More Than One State0LicensedMoreThanOneStateInd
Indoor Tanning Services0IndoorTanningServicesInd
Info In Schedule O Part VIYes (X)InfoInScheduleOPartVIInd
Governing Body Voting Members14GoverningBodyVotingMembersCnt
Independent Voting Member14IndependentVotingMemberCnt
Family Or Business RlnYes (1)FamilyOrBusinessRlnInd
Delegation Of Mgmt Duties0DelegationOfMgmtDutiesInd
Change To Org Documents0ChangeToOrgDocumentsInd
Material Diversion Or Misuse0MaterialDiversionOrMisuseInd
Members Or Stockholders0MembersOrStockholdersInd
Election Of Board Members0ElectionOfBoardMembersInd
Decisions Subject To Approva0DecisionsSubjectToApprovaInd
Minutes Of Governing BodyYes (1)MinutesOfGoverningBodyInd
Minutes Of CommitteesYes (1)MinutesOfCommitteesInd
Officer Mailing Address0OfficerMailingAddressInd
Local Chapters0LocalChaptersInd
Form990 Provided To Gvrn Body0Form990ProvidedToGvrnBodyInd
Conflict Of Interest PolicyYes (1)ConflictOfInterestPolicyInd
Annual Disclosure Covered PrsnYes (1)AnnualDisclosureCoveredPrsnInd
Regular Monitoring EnfrcYes (1)RegularMonitoringEnfrcInd
Whistleblower PolicyYes (1)WhistleblowerPolicyInd
Document Retention PolicyYes (1)DocumentRetentionPolicyInd
Compensation Process CEOYes (1)CompensationProcessCEOInd
Compensation Process OtherYes (1)CompensationProcessOtherInd
Investment In Joint Venture0InvestmentInJointVentureInd
Written Policy Or Procedure0WrittenPolicyOrProcedureInd
States Where Copy Of Return Is FldCAStatesWhereCopyOfReturnIsFldCd
Other WebsiteYes (X)OtherWebsiteInd
Upon RequestYes (X)UponRequestInd

Books In Care Of Detail BooksInCareOfDetail

Business Name BusinessName

FieldValueIRS element (for citing)
Business Name Line1DEBRA MILLERBusinessNameLine1Txt
FieldValueIRS element (for citing)
Phone9497214063PhoneNum

US Address USAddress

FieldValueIRS element (for citing)
Address Line11400 QUAIL STREET STE 110AddressLine1Txt
CityNEWPORT BEACHCityNm
State AbbreviationCAStateAbbreviationCd
ZIP92660ZIPCd

Form990 Part VII Section A Form990PartVIISectionAGrp (16 entries)

TitleTitleTxtAverage Hours Per WeekAverageHoursPerWeekRtIndividual Trustee Or DirectorIndividualTrusteeOrDirectorIndOfficerOfficerIndReportable Comp From OrgReportableCompFromOrgAmtReportable Comp From Rltd OrgReportableCompFromRltdOrgAmtOther CompensationOtherCompensationAmtHighest Compensated EmployeeHighestCompensatedEmployeeInd
PAUL MILLER
SECRETARY10.00Yes (X)Yes (X)$0$0$0
DEBRA MILLER
PRESIDENT40.00Yes (X)Yes (X)$150,000$0$0
JEFFREY GOFFMAN
DIRECTOR1.00Yes (X)$0$0$0
RON PHILIP
DIRECTOR1.00Yes (X)$0$0$0
TOM SCRANTON
DIRECTOR1.00Yes (X)$0$0$0
KEVIN DORSEY
DIRECTOR1.00Yes (X)$0$0$0
RYAN WILLIAMS
DIRECTOR1.00Yes (X)$0$0$0
EVONNE SEPSIS
DIRECTOR1.00Yes (X)$0$0$0
ELAINE WU
DIRECTOR1.00Yes (X)$0$0$0
TJ FARNSWORTH
DIRECTOR1.00Yes (X)$0$0$0
GEORGE BLANK
DIRECTOR1.00Yes (X)$0$0$0
THOM MCELROY
DIRECTOR1.00Yes (X)$0$0$0
ALLESANDRO PLOL
DIRECTOR1.00Yes (X)$0$0$0
STEPHEN SPIVAK
DIRECTOR1.00Yes (X)$0$0$0
KAREN E HARLEY
VICE-PRESIDENT40.00$122,000$0$0Yes (X)
ANDREW HOYER
SENIOR DIRECTOR OF DEVELOPMENT40.00$108,915$0$0Yes (X)
FieldValueIRS element (for citing)
Total Reportable Comp From Org$380,915TotalReportableCompFromOrgAmt
Tot Reportable Comp Rltd Org$0TotReportableCompRltdOrgAmt
Total Other Compensation$0TotalOtherCompensationAmt
Indiv Rcvd Greater Than100 K3IndivRcvdGreaterThan100KCnt
Former Ofcr Employees Listed0FormerOfcrEmployeesListedInd
Total Comp Greater Than150 K0TotalCompGreaterThan150KInd
Compensation From Other Srcs0CompensationFromOtherSrcsInd

Contractor Compensation ContractorCompensationGrp (2 entries)

Address Line1ContractorAddress/USAddress/AddressLine1TxtCityContractorAddress/USAddress/CityNmState AbbreviationContractorAddress/USAddress/StateAbbreviationCdZIPContractorAddress/USAddress/ZIPCdServicesServicesDescCompensationCompensationAmt
RLM FINSBURY LLC
3 COLUMBUS CIRCLE FLOOR 9NEW YORKNY10105MARKETING$122,511
ANONYMOUS
9140 IRVINE CENTER DRIVEIRVINECA92618FUNDRAISING$117,400
FieldValueIRS element (for citing)
Cntrct Rcvd Greater Than100 K2CntrctRcvdGreaterThan100KCnt
Fundraising$823,875FundraisingAmt
All Other Contributions$825,480AllOtherContributionsAmt
Total Contributions$1,649,355TotalContributionsAmt

Investment Income InvestmentIncomeGrp

FieldValueIRS element (for citing)
Total Revenue Column$18,688TotalRevenueColumnAmt
Related Or Exempt Func Income$18,688RelatedOrExemptFuncIncomeAmt

Gross Amount Sales Assets GrossAmountSalesAssetsGrp

FieldValueIRS element (for citing)
Securities$1,147,713SecuritiesAmt

Less Cost Oth Basis Sales Expnss LessCostOthBasisSalesExpnssGrp

FieldValueIRS element (for citing)
Securities$949,265SecuritiesAmt

Gain Or Loss GainOrLossGrp

FieldValueIRS element (for citing)
Securities$198,448SecuritiesAmt

Net Gain Or Loss Investments NetGainOrLossInvestmentsGrp

FieldValueIRS element (for citing)
Total Revenue Column$198,448TotalRevenueColumnAmt
Exclusion$198,448ExclusionAmt
FieldValueIRS element (for citing)
Fundraising Gross Income$808,230FundraisingGrossIncomeAmt
Contri Rpt Fundraising Event$823,875ContriRptFundraisingEventAmt
Fundraising Direct Expenses$772,615FundraisingDirectExpensesAmt

Net Incm From Fundraising Evt NetIncmFromFundraisingEvtGrp

FieldValueIRS element (for citing)
Total Revenue Column$35,615TotalRevenueColumnAmt
Exclusion$35,615ExclusionAmt

Total Revenue TotalRevenueGrp

FieldValueIRS element (for citing)
Total Revenue Column$1,902,106TotalRevenueColumnAmt
Related Or Exempt Func Income$18,688RelatedOrExemptFuncIncomeAmt
Unrelated Business Revenue$0UnrelatedBusinessRevenueAmt
Exclusion$234,063ExclusionAmt

Grants To Domestic Orgs GrantsToDomesticOrgsGrp

FieldValueIRS element (for citing)
Total$478,067TotalAmt
Program Services$478,067ProgramServicesAmt

Comp Current Ofcr Directors CompCurrentOfcrDirectorsGrp

FieldValueIRS element (for citing)
Total$380,905TotalAmt
Program Services$326,457ProgramServicesAmt
Fundraising$54,448FundraisingAmt

Other Salaries And Wages OtherSalariesAndWagesGrp

FieldValueIRS element (for citing)
Total$270,049TotalAmt
Program Services$190,411ProgramServicesAmt
Management And General$22,374ManagementAndGeneralAmt
Fundraising$57,264FundraisingAmt

Other Employee Benefits OtherEmployeeBenefitsGrp

FieldValueIRS element (for citing)
Total$56,710TotalAmt
Program Services$41,825ProgramServicesAmt
Management And General$2,740ManagementAndGeneralAmt
Fundraising$12,145FundraisingAmt

Payroll Taxes PayrollTaxesGrp

FieldValueIRS element (for citing)
Total$56,013TotalAmt
Program Services$37,804ProgramServicesAmt
Management And General$3,019ManagementAndGeneralAmt
Fundraising$15,190FundraisingAmt

Fees For Services Legal FeesForServicesLegalGrp

FieldValueIRS element (for citing)
Total$65,243TotalAmt
Program Services$39,563ProgramServicesAmt
Management And General$23,992ManagementAndGeneralAmt
Fundraising$1,688FundraisingAmt

Fees For Services Prof Fundraising FeesForServicesProfFundraising

FieldValueIRS element (for citing)
Total$144,891TotalAmt
Fundraising$144,891FundraisingAmt

Advertising AdvertisingGrp

FieldValueIRS element (for citing)
Total$697TotalAmt
Program Services$697ProgramServicesAmt

Office Expenses OfficeExpensesGrp

FieldValueIRS element (for citing)
Total$19,297TotalAmt
Program Services$3,235ProgramServicesAmt
Management And General$15,931ManagementAndGeneralAmt
Fundraising$131FundraisingAmt

Information Technology InformationTechnologyGrp

FieldValueIRS element (for citing)
Total$68,632TotalAmt
Program Services$33,097ProgramServicesAmt
Management And General$21,864ManagementAndGeneralAmt
Fundraising$13,671FundraisingAmt

Occupancy OccupancyGrp

FieldValueIRS element (for citing)
Total$50,870TotalAmt
Program Services$27,256ProgramServicesAmt
Management And General$11,208ManagementAndGeneralAmt
Fundraising$12,406FundraisingAmt

Travel TravelGrp

FieldValueIRS element (for citing)
Total$177,954TotalAmt
Program Services$141,474ProgramServicesAmt
Management And General$72ManagementAndGeneralAmt
Fundraising$36,408FundraisingAmt

Conferences Meetings ConferencesMeetingsGrp

FieldValueIRS element (for citing)
Total$19,152TotalAmt
Program Services$11,608ProgramServicesAmt
Management And General$508ManagementAndGeneralAmt
Fundraising$7,036FundraisingAmt

Depreciation Depletion DepreciationDepletionGrp

FieldValueIRS element (for citing)
Total$260TotalAmt
Management And General$260ManagementAndGeneralAmt

Insurance InsuranceGrp

FieldValueIRS element (for citing)
Total$14,110TotalAmt
Program Services$2,557ProgramServicesAmt
Management And General$1,074ManagementAndGeneralAmt
Fundraising$10,479FundraisingAmt

Other Expenses OtherExpensesGrp (4 entries)

DescDescTotalTotalAmtProgram ServicesProgramServicesAmtManagement And GeneralManagementAndGeneralAmtFundraisingFundraisingAmt
OUTSIDE CONTRACT SERVIC$510,201$469,302$40,899
PATIENT OUTREACH$61,457$61,457
PUBLIC RELATIONS$47,000$47,000
BANK & CREDIT CARD CHAR$30,632$844$2,665$27,123

All Other Expenses AllOtherExpensesGrp

FieldValueIRS element (for citing)
Total$66,004TotalAmt
Program Services$17,233ProgramServicesAmt
Management And General$30,436ManagementAndGeneralAmt
Fundraising$18,335FundraisingAmt

Total Functional Expenses TotalFunctionalExpensesGrp

FieldValueIRS element (for citing)
Total$2,518,144TotalAmt
Program Services$1,929,887ProgramServicesAmt
Management And General$177,042ManagementAndGeneralAmt
Fundraising$411,215FundraisingAmt

Cash Non Interest Bearing CashNonInterestBearingGrp

FieldValueIRS element (for citing)
BOY$238,548BOYAmt
EOY$607,140EOYAmt

Savings And Temp Cash Invst SavingsAndTempCashInvstGrp

FieldValueIRS element (for citing)
BOY$1,991,777BOYAmt
EOY$2,576,683EOYAmt

Oth Notes Loans Receivable Net OthNotesLoansReceivableNetGrp

FieldValueIRS element (for citing)
BOY$649,130BOYAmt
EOY$0EOYAmt
FieldValueIRS element (for citing)
Land Bldg Equip Cost Or Other Bss$17,063LandBldgEquipCostOrOtherBssAmt
Land Bldg Equip Accum Deprec$16,967LandBldgEquipAccumDeprecAmt

Land Bldg Equip Basis Net LandBldgEquipBasisNetGrp

FieldValueIRS element (for citing)
BOY$691BOYAmt
EOY$96EOYAmt

Investments Program Related InvestmentsProgramRelatedGrp

FieldValueIRS element (for citing)
BOY$4,230,218BOYAmt
EOY$3,254,147EOYAmt

Intangible Assets IntangibleAssetsGrp

FieldValueIRS element (for citing)
BOY$56BOYAmt
EOY$0EOYAmt

Other Assets Total OtherAssetsTotalGrp

FieldValueIRS element (for citing)
BOY$2,032BOYAmt
EOY$2,032EOYAmt

Total Assets TotalAssetsGrp

FieldValueIRS element (for citing)
BOY$7,112,452BOYAmt
EOY$6,440,098EOYAmt

Other Liabilities OtherLiabilitiesGrp

FieldValueIRS element (for citing)
BOY$69,394BOYAmt
EOY$165,805EOYAmt

Total Liabilities TotalLiabilitiesGrp

FieldValueIRS element (for citing)
BOY$69,394BOYAmt
EOY$165,805EOYAmt
FieldValueIRS element (for citing)
Organization Follows SFAS117Yes (X)OrganizationFollowsSFAS117Ind

Unrestricted Net Assets UnrestrictedNetAssetsGrp

FieldValueIRS element (for citing)
BOY$7,043,058BOYAmt
EOY$6,274,293EOYAmt

Total Net Assets Fund Balance TotalNetAssetsFundBalanceGrp

FieldValueIRS element (for citing)
BOY$7,043,058BOYAmt
EOY$6,274,293EOYAmt

Tot Liab Net Assets Fund Balance TotLiabNetAssetsFundBalanceGrp

FieldValueIRS element (for citing)
BOY$7,112,452BOYAmt
EOY$6,440,098EOYAmt
FieldValueIRS element (for citing)
Reconcilation Revenue Expnss-$616,038ReconcilationRevenueExpnssAmt
Net Unrlzd Gains Losses Invst-$152,727NetUnrlzdGainsLossesInvstAmt
Other Changes In Net Assets$0OtherChangesInNetAssetsAmt
Method Of Accounting AccrualYes (X)MethodOfAccountingAccrualInd
Accountant Compile Or Review0AccountantCompileOrReviewInd
FS Audited0FSAuditedInd
Federal Grant Audit Required0FederalGrantAuditRequiredInd

Schedule A IRS990ScheduleA

FieldValueIRS element (for citing)
Public Organization170Yes (X)PublicOrganization170Ind

Gifts Grants Contri Rcvd170 GiftsGrantsContriRcvd170Grp

FieldValueIRS element (for citing)
Current Tax Year Minus4 Years$1,271,672CurrentTaxYearMinus4YearsAmt
Current Tax Year Minus3 Years$2,386,942CurrentTaxYearMinus3YearsAmt
Current Tax Year Minus2 Years$2,346,536CurrentTaxYearMinus2YearsAmt
Current Tax Year Minus1 Year$1,993,544CurrentTaxYearMinus1YearAmt
Current Tax Year$2,457,585CurrentTaxYearAmt
Total$10,456,279TotalAmt

Total Calendar Year170 TotalCalendarYear170Grp

FieldValueIRS element (for citing)
Current Tax Year Minus4 Years$1,271,672CurrentTaxYearMinus4YearsAmt
Current Tax Year Minus3 Years$2,386,942CurrentTaxYearMinus3YearsAmt
Current Tax Year Minus2 Years$2,346,536CurrentTaxYearMinus2YearsAmt
Current Tax Year Minus1 Year$1,993,544CurrentTaxYearMinus1YearAmt
Current Tax Year$2,457,585CurrentTaxYearAmt
Total$10,456,279TotalAmt
FieldValueIRS element (for citing)
Public Support Total170$10,456,279PublicSupportTotal170Amt

Gross Investment Income170 GrossInvestmentIncome170Grp

FieldValueIRS element (for citing)
Current Tax Year Minus4 Years$34,789CurrentTaxYearMinus4YearsAmt
Current Tax Year Minus3 Years$38,984CurrentTaxYearMinus3YearsAmt
Current Tax Year Minus2 Years$41,362CurrentTaxYearMinus2YearsAmt
Current Tax Year Minus1 Year$22,594CurrentTaxYearMinus1YearAmt
Current Tax Year$18,688CurrentTaxYearAmt
Total$156,417TotalAmt
FieldValueIRS element (for citing)
Total Support$10,612,696TotalSupportAmt
Public Support CY1700.98530PublicSupportCY170Pct
Public Support PY1700.98170PublicSupportPY170Pct
Thirty Thr Pct Suprt Tests CY170Yes (X)ThirtyThrPctSuprtTestsCY170Ind

Schedule B IRS990ScheduleB

Contributor Information ContributorInformationGrp

FieldValueIRS element (for citing)
ContributorRESTRICTEDContributorNum

Contributor Business Name ContributorBusinessName

FieldValueIRS element (for citing)
Business Name Line1RESTRICTEDBusinessNameLine1

Contributor US Address ContributorUSAddress

FieldValueIRS element (for citing)
Address Line1RESTRICTEDAddressLine1
Address Line2RESTRICTEDAddressLine2
CityRESTRICTEDCity
StateRESTRICTEDState
ZIP CodeRESTRICTEDZIPCode
FieldValueIRS element (for citing)
Total ContributionsRESTRICTEDTotalContributionsAmt

Schedule D IRS990ScheduleD

Equipment EquipmentGrp

FieldValueIRS element (for citing)
Other Cost Or Other Basis$17,063OtherCostOrOtherBasisAmt
Depreciation$16,967DepreciationAmt
Book Value$96BookValueAmt

Other Land Buildings OtherLandBuildingsGrp

FieldValueIRS element (for citing)
Other Cost Or Other Basis$0OtherCostOrOtherBasisAmt
Depreciation$0DepreciationAmt
FieldValueIRS element (for citing)
Total Book Value Land Buildings$96TotalBookValueLandBuildingsAmt

Invst Program Related Org InvstProgramRelatedOrgGrp

FieldValueIRS element (for citing)
DescINVESTMENTS HELDDesc
Book Value$3,254,147BookValueAmt
Method ValuationFMethodValuationCd
FieldValueIRS element (for citing)
Total Book Value Program Rltd$3,254,147TotalBookValueProgramRltdAmt

Other Liabilities Org OtherLiabilitiesOrgGrp (2 entries)

DescDescAmtAmt
CREDIT CARD PAYABLE$33,101
ACCRUED EXPENSES$132,704
FieldValueIRS element (for citing)
Total Liability$165,805TotalLiabilityAmt
Total Rev Etc Audited Fincl Stmt$1,749,379TotalRevEtcAuditedFinclStmtAmt
Net Unrealized Gains Invst-$152,727NetUnrealizedGainsInvstAmt
Revenue Not Reported-$152,727RevenueNotReportedAmt
Revenue Subtotal$1,902,106RevenueSubtotalAmt
Revenue Not Reported Fincl Stmt$0RevenueNotReportedFinclStmtAmt
Total Revenue Per Form990$1,902,106TotalRevenuePerForm990Amt
Tot Expns Etc Audited Fincl Stmt$2,518,143TotExpnsEtcAuditedFinclStmtAmt
Expenses Not Reported$0ExpensesNotReportedAmt
Expenses Subtotal$2,518,143ExpensesSubtotalAmt
Expenses Not Rpt Fincl Stmt$0ExpensesNotRptFinclStmtAmt
Total Expenses Per Form990$2,518,143TotalExpensesPerForm990Amt

Schedule G IRS990ScheduleG

FieldValueIRS element (for citing)
Special Fundraising EventsYes (X)SpecialFundraisingEventsInd
Agrmt Prof Fundraising Acty0AgrmtProfFundraisingActyInd

Fundraiser Activity Info FundraiserActivityInfoGrp

Organization Business Name OrganizationBusinessName

FieldValueIRS element (for citing)
Business Name Line1ANONYMOUSBusinessNameLine1Txt

US Address USAddress

FieldValueIRS element (for citing)
Address Line19140 IRVINE CENTER DRIVEAddressLine1Txt
CityIRVINECityNm
State AbbreviationCAStateAbbreviationCd
ZIP92618ZIPCd
FieldValueIRS element (for citing)
ActivityGOLF TOURNAMENT/ANNUAL GALA FUNDRAISINGActivityTxt
Fundraiser Control Of Funds0FundraiserControlOfFundsInd
Gross Receipts$1,632,105GrossReceiptsAmt
Retained By Contractor$117,400RetainedByContractorAmt
Net To Organization$1,632,105NetToOrganizationAmt
FieldValueIRS element (for citing)
Total Gross Receipts$1,632,105TotalGrossReceiptsAmt
Total Retained By Contractors$117,400TotalRetainedByContractorsAmt
Total Net To Organization$1,632,105TotalNetToOrganizationAmt
Licensed StatesCALicensedStatesCd

Fundraising Event Information FundraisingEventInformationGrp

FieldValueIRS element (for citing)
Event1GETZLAF GOLF TOURNAMENTEvent1Nm
Gross Receipts Event1$227,715GrossReceiptsEvent1Amt
Charitable Contri Event1$114,949CharitableContriEvent1Amt
Gross Revenue Event1$112,766GrossRevenueEvent1Amt
Other Direct Expenses Event1$107,797OtherDirectExpensesEvent1Amt
Event2FUNDRAISER-NEWPORT BEACH GALAEvent2Nm
Gross Receipts Event2$513,432GrossReceiptsEvent2Amt
Charitable Contri Event2$292,496CharitableContriEvent2Amt
Gross Revenue Event2$220,936GrossRevenueEvent2Amt
Other Direct Expenses Event2$243,051OtherDirectExpensesEvent2Amt
Other Events Total9OtherEventsTotalCnt
Gross Receipts Other Events$890,958GrossReceiptsOtherEventsAmt
Charitable Contri Other Events$416,430CharitableContriOtherEventsAmt
Gross Revenue Other Events$474,528GrossRevenueOtherEventsAmt
Oth Direct Expnss Other Events$421,767OthDirectExpnssOtherEventsAmt
Gross Receipts Total$1,632,105GrossReceiptsTotalAmt
Charitable Contributions Tot$823,875CharitableContributionsTotAmt
Gross Revenue Total Events$808,230GrossRevenueTotalEventsAmt
Oth Direct Expnss Total Events$772,615OthDirectExpnssTotalEventsAmt
Direct Expense Summary Events$772,615DirectExpenseSummaryEventsAmt
Net Income Summary$35,615NetIncomeSummaryAmt

Supplemental Information Detail SupplementalInformationDetail

FieldValueIRS element (for citing)
Form And Line ReferenceSCHEDULE G, PART I, LINE 2B, COLUMN (V)FormAndLineReferenceDesc
ExplanationDURING 2014, THE ORGANIZATION PAID THE FUNDRAISER $146,823. THESE PAYMENTS REPRESENT SERVICES RENDERED DURING THE FUNDRAISING EVENTS, INCLUDING ORGANIZING AND COORDINATING THE FUNCTIONS.ExplanationTxt

Schedule I IRS990ScheduleI

FieldValueIRS element (for citing)
Grant Records Maintained0GrantRecordsMaintainedInd

Recipient Table RecipientTable (5 entries)

Address Line1USAddress/AddressLine1TxtCityUSAddress/CityNmState AbbreviationUSAddress/StateAbbreviationCdZIPUSAddress/ZIPCdRecipient EINRecipientEINCash GrantCashGrantAmtPurpose Of GrantPurposeOfGrantTxt
NATIONWIDE CHILDREN'S HOSPITAL
700 CHILDRENS DRIVECOLUMBUSOH43205311036372$267,116EDUCATION / OUTREACH / RESEARCH
CINCINNATI CHILDRENS HOSPITAL
3333 BURNET AVENUECINCINNATIOH45229$20,000EDUCATION / OUTREACH / RESEARCH
UCLA FOUNDATION-CDMD
10920 WILSHIRE BLVD STE 900LOS ANGELESCA90024$25,000EDUCATION / OUTREACH / RESEARCH
RASRX LLC
231 BONETTI DRIVE STE 400SAN LUIS OBISPOCA93401$125,000EDUCATION / OUTREACH / RESEARCH
OTHER MISCELLANEOUS GRANTS
1400 QUAIL STREETNEWPORT BEACHCA92660$40,951EDUCATION / OUTREACH / RESEARCH

Schedule J IRS990ScheduleJ

FieldValueIRS element (for citing)
Board Or Committee ApprovalYes (X)BoardOrCommitteeApprovalInd
Severance Payment0SeverancePaymentInd
Supplemental Nonqual Rtr Plan0SupplementalNonqualRtrPlanInd
Equity Based Comp Arrngm0EquityBasedCompArrngmInd
Comp Based On Revenue Of Flng Org0CompBasedOnRevenueOfFlngOrgInd
Comp Bsd On Rev Related Orgs0CompBsdOnRevRelatedOrgsInd
Comp Bsd Net Earns Flng Org0CompBsdNetEarnsFlngOrgInd
Comp Bsd Net Earns Rltd Orgs0CompBsdNetEarnsRltdOrgsInd
Any Non Fixed Payments0AnyNonFixedPaymentsInd
Initial Contract Exception0InitialContractExceptionInd

Schedule O IRS990ScheduleO

Supplemental Information Detail SupplementalInformationDetail (5 entries)

Form And Line ReferenceFormAndLineReferenceDescExplanationExplanationTxt
FORM 990, PART VI, SECTION A, LINE 2DEBRA AND PAUL MILLER HAVE A FAMILY RELATIONSHIP.
FORM 990, PART VI, SECTION B, LINE 11FORM 990 WILL BE AVAILABLE TO THE BOARD TO REVIEW PRIOR TO FILING AT THE REGULARLY SCHEDULE BOARD MEETINGS. HOWEVER, A LIMITED NUMBER OF BOARD MEMBERS WILL REVIEW THE ENTIRE FORM 990 PRIOR TO FILING.
FORM 990, PART VI, SECTION B, LINE 12CTHE BOARD OF DIRECTORS ARE REQUIRED TO REVIEW AND SIGN THE CONFLICT OF INTEREST POLICY AT LEAST ANNUALLY. THE BOARD MEMBER MUST INFORM THE REST OF THE BOARD IF A CONFLICT ARISES OR IF IT EXISTS.
FORM 990, PART VI, SECTION B, LINE 15COMPENSATION OF TOP MANAGEMENT AND OFFICERS OF THE ORGANIZATION ARE REVIEWED BY INDEPENDENT LEGAL COUNSEL AND SUBMITTED TO THE BOARD MEMBERS FOR APPROVAL.
FORM 990, PART VI, SECTION C, LINE 19THE ORGANZIATION'S AUDITED FINANCIAL STATEMENTS AND FORM 990 ARE AVAILABLE TO THE PUBLIC VIA THE GUIDESTAR USA INC WEBSITE.

Schedule R IRS990ScheduleR

Id Disregarded Entities IdDisregardedEntitiesGrp

Disregarded Entity Name DisregardedEntityName

FieldValueIRS element (for citing)
Business Name Line1CUREDUCHENNE VENTURE LLCBusinessNameLine1Txt

US Address USAddress

FieldValueIRS element (for citing)
Address Line123792 ROCKFIELD BOULEVARD SUITE 140AddressLine1Txt
CityLAKE FORESTCityNm
State AbbreviationCAStateAbbreviationCd
ZIP92630ZIPCd
FieldValueIRS element (for citing)
EIN383934145EIN
Primary ActivitiesINVESTING IN RESEARCHPrimaryActivitiesTxt
Legal Domicile StateCALegalDomicileStateCd
Total Income$99,247TotalIncomeAmt
End Of Year Assets$5,584,217EndOfYearAssetsAmt

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