2016-09-06T13:08:46-05:00 2015-12-31 954303700 JOHN S BALISY & COMPANY 23792 ROCKFIELD BLVD STE 140 LAKE FOREST CA 92630 990 2015-01-01 200299958 CURE DUCHENNE CURE 9498722552 1400 QUAIL STREET NO 110 NEWPORT BEACH CA 92660 DEBRA MILLER PRESIDENT 9498722552 2016-08-18 JOHN S BALISY COMPANY P01385861 9495407519 2015 2016-12-15 16:53:06Z DEBRA MILLER 1400 QUAIL STREET STE 110 NEWPORT BEACH CA 92660 3623986 0 X WWW.CUREDUCHENNE.ORG X 2003 CA COORDINATING AND FUNDING RESEARCH NECESSARY TO FIND A CURE FOR DUCHENNE MUSCULAR DYSTROPHY. ALSO, IMPROVING THE CARE AND HEALTH OF DUCHENNE MUSCULAR DISTROPHY PATIENTS. 14 14 7 0 0 0 1320395 1649355 0 0 2534631 217136 197771 35615 4052797 1902106 164994 478067 0 0 675017 763677 0 144891 411215 706800 1131509 1546811 2518144 2505986 -616038 7112452 6440098 69394 165805 7043058 6274293 X CURE DUCHENNE IS A NOT-FOR-PROFIT ORGANIZATION DEDICATED TO COORDINATING AND FUNDING RESEARCH NECESSARY TO FIND A CURE FOR DUCHENNE MUSCULAR DYSTROPHY, INCREASING PUBLIC AWARENESS FOR DUCHENNE MUSCULAR DYSTROPHY, AND IMPROVING THE CARE AND HEALTH OF DUCHENNE MUSCULAR DYSTROPHY PATIENTS. 0 0 1929887 478067 CURE DUCHENNE WAS ORGANIZED IN 2003 WITH A MISSION TO FUND RESEARCH NECESSARY TO FIND A CURE FOR DUCHENNE MUSCULAR DYSTROPHY, AND IMPROVING THE CARE AND HEALTH OF DUCHENNE MUSCULAR DYSTROPHY PATIENTS. 1929887 1 1 0 0 0 0 0 0 0 0 1 0 1 0 1 0 1 0 0 0 0 0 0 1 1 0 0 1 0 0 0 0 0 0 0 0 0 0 0 0 0 0 1 0 0 0 0 1 46 0 7 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 X 14 14 1 0 0 0 0 0 0 1 1 0 0 0 1 1 1 1 1 1 1 0 0 CA X X DEBRA MILLER 9497214063 1400 QUAIL STREET STE 110 NEWPORT BEACH CA 92660 PAUL MILLER SECRETARY 10.00 X X 0 0 0 DEBRA MILLER PRESIDENT 40.00 X X 150000 0 0 JEFFREY GOFFMAN DIRECTOR 1.00 X 0 0 0 RON PHILIP DIRECTOR 1.00 X 0 0 0 TOM SCRANTON DIRECTOR 1.00 X 0 0 0 KEVIN DORSEY DIRECTOR 1.00 X 0 0 0 RYAN WILLIAMS DIRECTOR 1.00 X 0 0 0 EVONNE SEPSIS DIRECTOR 1.00 X 0 0 0 ELAINE WU DIRECTOR 1.00 X 0 0 0 TJ FARNSWORTH DIRECTOR 1.00 X 0 0 0 GEORGE BLANK DIRECTOR 1.00 X 0 0 0 THOM MCELROY DIRECTOR 1.00 X 0 0 0 ALLESANDRO PLOL DIRECTOR 1.00 X 0 0 0 STEPHEN SPIVAK DIRECTOR 1.00 X 0 0 0 KAREN E HARLEY VICE-PRESIDENT 40.00 X 122000 0 0 ANDREW HOYER SENIOR DIRECTOR OF DEVELOPMENT 40.00 X 108915 0 0 380915 0 0 3 0 0 0 RLM FINSBURY LLC 3 COLUMBUS CIRCLE FLOOR 9 NEW YORK NY 10105 MARKETING 122511 ANONYMOUS 9140 IRVINE CENTER DRIVE IRVINE CA 92618 FUNDRAISING 117400 2 823875 825480 1649355 18688 18688 1147713 949265 198448 198448 198448 808230 823875 772615 35615 35615 1902106 18688 0 234063 478067 478067 380905 326457 54448 270049 190411 22374 57264 56710 41825 2740 12145 56013 37804 3019 15190 65243 39563 23992 1688 144891 144891 697 697 19297 3235 15931 131 68632 33097 21864 13671 50870 27256 11208 12406 177954 141474 72 36408 19152 11608 508 7036 260 260 14110 2557 1074 10479 OUTSIDE CONTRACT SERVIC 510201 469302 40899 PATIENT OUTREACH 61457 61457 PUBLIC RELATIONS 47000 47000 BANK & CREDIT CARD CHAR 30632 844 2665 27123 66004 17233 30436 18335 2518144 1929887 177042 411215 238548 607140 1991777 2576683 649130 0 17063 16967 691 96 4230218 3254147 56 0 2032 2032 7112452 6440098 69394 165805 69394 165805 X 7043058 6274293 7043058 6274293 7112452 6440098 -616038 -152727 0 X 0 0 0 X 1271672 2386942 2346536 1993544 2457585 10456279 1271672 2386942 2346536 1993544 2457585 10456279 10456279 34789 38984 41362 22594 18688 156417 10612696 0.98530 0.98170 X RESTRICTED RESTRICTED RESTRICTED RESTRICTED RESTRICTED RESTRICTED RESTRICTED RESTRICTED 17063 16967 96 0 0 96 INVESTMENTS HELD 3254147 F 3254147 CREDIT CARD PAYABLE 33101 ACCRUED EXPENSES 132704 165805 1749379 -152727 -152727 1902106 0 1902106 2518143 0 2518143 0 2518143 X 0 ANONYMOUS 9140 IRVINE CENTER DRIVE IRVINE CA 92618 GOLF TOURNAMENT/ANNUAL GALA FUNDRAISING 0 1632105 117400 1632105 1632105 117400 1632105 CA GETZLAF GOLF TOURNAMENT 227715 114949 112766 107797 FUNDRAISER-NEWPORT BEACH GALA 513432 292496 220936 243051 9 890958 416430 474528 421767 1632105 823875 808230 772615 772615 35615 SCHEDULE G, PART I, LINE 2B, COLUMN (V) DURING 2014, THE ORGANIZATION PAID THE FUNDRAISER $146,823. THESE PAYMENTS REPRESENT SERVICES RENDERED DURING THE FUNDRAISING EVENTS, INCLUDING ORGANIZING AND COORDINATING THE FUNCTIONS. 0 NATIONWIDE CHILDREN'S HOSPITAL 700 CHILDRENS DRIVE COLUMBUS OH 43205 311036372 267116 EDUCATION / OUTREACH / RESEARCH CINCINNATI CHILDRENS HOSPITAL 3333 BURNET AVENUE CINCINNATI OH 45229 20000 EDUCATION / OUTREACH / RESEARCH UCLA FOUNDATION-CDMD 10920 WILSHIRE BLVD STE 900 LOS ANGELES CA 90024 25000 EDUCATION / OUTREACH / RESEARCH RASRX LLC 231 BONETTI DRIVE STE 400 SAN LUIS OBISPO CA 93401 125000 EDUCATION / OUTREACH / RESEARCH OTHER MISCELLANEOUS GRANTS 1400 QUAIL STREET NEWPORT BEACH CA 92660 40951 EDUCATION / OUTREACH / RESEARCH X 0 0 0 0 0 0 0 0 0 FORM 990, PART VI, SECTION A, LINE 2 DEBRA AND PAUL MILLER HAVE A FAMILY RELATIONSHIP. FORM 990, PART VI, SECTION B, LINE 11 FORM 990 WILL BE AVAILABLE TO THE BOARD TO REVIEW PRIOR TO FILING AT THE REGULARLY SCHEDULE BOARD MEETINGS. HOWEVER, A LIMITED NUMBER OF BOARD MEMBERS WILL REVIEW THE ENTIRE FORM 990 PRIOR TO FILING. FORM 990, PART VI, SECTION B, LINE 12C THE BOARD OF DIRECTORS ARE REQUIRED TO REVIEW AND SIGN THE CONFLICT OF INTEREST POLICY AT LEAST ANNUALLY. THE BOARD MEMBER MUST INFORM THE REST OF THE BOARD IF A CONFLICT ARISES OR IF IT EXISTS. FORM 990, PART VI, SECTION B, LINE 15 COMPENSATION OF TOP MANAGEMENT AND OFFICERS OF THE ORGANIZATION ARE REVIEWED BY INDEPENDENT LEGAL COUNSEL AND SUBMITTED TO THE BOARD MEMBERS FOR APPROVAL. FORM 990, PART VI, SECTION C, LINE 19 THE ORGANZIATION'S AUDITED FINANCIAL STATEMENTS AND FORM 990 ARE AVAILABLE TO THE PUBLIC VIA THE GUIDESTAR USA INC WEBSITE. CUREDUCHENNE VENTURE LLC 23792 ROCKFIELD BOULEVARD SUITE 140 LAKE FOREST CA 92630 383934145 INVESTING IN RESEARCH CA 99247 5584217