CURE DUCHENNE: Form 990, tax year 2014
View the entire original 990 at ProPublica ↗
- Organization
- CURE DUCHENNE (EIN 20-0299958)
- Tax period
- 2014-01-01 to 2014-12-31
- Filed
- 2015-08-03
- IRS object ID
- 201542159349301069
- Schema version
- 2014v5.0
- Source
- Download XML · Original 990 at ProPublica
Every field in the e-filed return. Faint text is the IRS element name, for citing.
- Return header
- Form 990
- Schedule A
- Schedule B
- Schedule D
- Schedule F
- Schedule G
- Schedule I
- Schedule J
- Schedule O
Return header ReturnHeader
| Field | Value | IRS element (for citing) |
|---|---|---|
| Return | 2015-08-03T13:32:30-05:00 | ReturnTs |
| Tax Period End | 2014-12-31 | TaxPeriodEndDt |
Preparer Firm PreparerFirmGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Preparer Firm EIN | 954303700 | PreparerFirmEIN |
Preparer Firm Name PreparerFirmName
| Field | Value | IRS element (for citing) |
|---|---|---|
| Business Name Line1 | JOHN S BALISY & COMPANY | BusinessNameLine1Txt |
Preparer US Address PreparerUSAddress
| Field | Value | IRS element (for citing) |
|---|---|---|
| Address Line1 | 23792 ROCKFIELD BLVD STE 140 | AddressLine1Txt |
| City | LAKE FOREST | CityNm |
| State Abbreviation | CA | StateAbbreviationCd |
| ZIP | 92630 | ZIPCd |
| Field | Value | IRS element (for citing) |
|---|---|---|
| Return Type | 990 | ReturnTypeCd |
| Tax Period Begin | 2014-01-01 | TaxPeriodBeginDt |
Filer Filer
| Field | Value | IRS element (for citing) |
|---|---|---|
| EIN | 200299958 | EIN |
Business Name BusinessName
| Field | Value | IRS element (for citing) |
|---|---|---|
| Business Name Line1 | CURE DUCHENNE | BusinessNameLine1Txt |
| Field | Value | IRS element (for citing) |
|---|---|---|
| Business Name Control | CURE | BusinessNameControlTxt |
| Phone | 9498722552 | PhoneNum |
US Address USAddress
| Field | Value | IRS element (for citing) |
|---|---|---|
| Address Line1 | 1400 QUAIL STREET NO 110 | AddressLine1Txt |
| City | NEWPORT BEACH | CityNm |
| State Abbreviation | CA | StateAbbreviationCd |
| ZIP | 92660 | ZIPCd |
Business Officer BusinessOfficerGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Person | DEBRA MILLER | PersonNm |
| Person Title | PRESIDENT | PersonTitleTxt |
| Phone | 9498722552 | PhoneNum |
| Signature | 2015-07-23 | SignatureDt |
Preparer Person PreparerPersonGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Preparer Person | JOHN S BALISY COMPANY | PreparerPersonNm |
| PTIN | P01385861 | PTIN |
| Phone | 9495407519 | PhoneNum |
| Field | Value | IRS element (for citing) |
|---|---|---|
| Tax | 2014 | TaxYr |
| Build TS | 2016-02-25 16:41:14Z | BuildTS |
Form 990 IRS990
| Field | Value | IRS element (for citing) |
|---|---|---|
| Principal Officer | DEBRA MILLER | PrincipalOfficerNm |
US Address USAddress
| Field | Value | IRS element (for citing) |
|---|---|---|
| Address Line1 | 1400 QUAIL STREET STE 110 | AddressLine1Txt |
| City | NEWPORT BEACH | CityNm |
| State Abbreviation | CA | StateAbbreviationCd |
| ZIP | 92660 | ZIPCd |
| Field | Value | IRS element (for citing) |
|---|---|---|
| Gross Receipts | $4,957,483 | GrossReceiptsAmt |
| Group Return For Affiliates | 0 | GroupReturnForAffiliatesInd |
| Organization501c3 | Yes (X) | Organization501c3Ind |
| Website Address | WWW.CUREDUCHENNE.ORG | WebsiteAddressTxt |
| Type Of Organization Corp | Yes (X) | TypeOfOrganizationCorpInd |
| Formation | 2003 | FormationYr |
| Legal Domicile State | CA | LegalDomicileStateCd |
| Activity Or Mission | COORDINATING AND FUNDING RESEARCH NECESSARY TO FIND A CURE FOR DUCHENNE MUSCULAR DYSTROPHY. ALSO, IMPROVING THE CARE AND HEALTH OF DUCHENNE MUSCULAR DISTROPHY PATIENTS. | ActivityOrMissionDesc |
| Voting Members Governing Body | 11 | VotingMembersGoverningBodyCnt |
| Voting Members Independent | 11 | VotingMembersIndependentCnt |
| Total Employee | 6 | TotalEmployeeCnt |
| Total Volunteers | 0 | TotalVolunteersCnt |
| Total Gross UBI | $0 | TotalGrossUBIAmt |
| Net Unrelated Bus Txbl Incm | $0 | NetUnrelatedBusTxblIncmAmt |
| PY Contributions Grants | $1,457,692 | PYContributionsGrantsAmt |
| CY Contributions Grants | $1,320,395 | CYContributionsGrantsAmt |
| PY Program Service Revenue | $0 | PYProgramServiceRevenueAmt |
| CY Program Service Revenue | $0 | CYProgramServiceRevenueAmt |
| PY Investment Income | $41,362 | PYInvestmentIncomeAmt |
| CY Investment Income | $2,534,631 | CYInvestmentIncomeAmt |
| PY Other Revenue | $376,249 | PYOtherRevenueAmt |
| CY Other Revenue | $197,771 | CYOtherRevenueAmt |
| PY Total Revenue | $1,875,303 | PYTotalRevenueAmt |
| CY Total Revenue | $4,052,797 | CYTotalRevenueAmt |
| PY Grants And Similar Paid | $467,653 | PYGrantsAndSimilarPaidAmt |
| CY Grants And Similar Paid | $164,994 | CYGrantsAndSimilarPaidAmt |
| PY Benefits Paid To Members | $0 | PYBenefitsPaidToMembersAmt |
| CY Benefits Paid To Members | $0 | CYBenefitsPaidToMembersAmt |
| PY Salaries Comp Emp Bnft Paid | $689,723 | PYSalariesCompEmpBnftPaidAmt |
| CY Salaries Comp Emp Bnft Paid | $675,017 | CYSalariesCompEmpBnftPaidAmt |
| PY Total Prof Fndrsng Expns | $0 | PYTotalProfFndrsngExpnsAmt |
| CY Total Prof Fndrsng Expns | $0 | CYTotalProfFndrsngExpnsAmt |
| CY Total Fundraising Expense | $223,039 | CYTotalFundraisingExpenseAmt |
| PY Other Expenses | $799,037 | PYOtherExpensesAmt |
| CY Other Expenses | $706,800 | CYOtherExpensesAmt |
| PY Total Expenses | $1,956,413 | PYTotalExpensesAmt |
| CY Total Expenses | $1,546,811 | CYTotalExpensesAmt |
| PY Revenues Less Expenses | -$81,110 | PYRevenuesLessExpensesAmt |
| CY Revenues Less Expenses | $2,505,986 | CYRevenuesLessExpensesAmt |
| Total Assets BOY | $2,700,223 | TotalAssetsBOYAmt |
| Total Assets EOY | $7,112,452 | TotalAssetsEOYAmt |
| Total Liabilities BOY | $46,422 | TotalLiabilitiesBOYAmt |
| Total Liabilities EOY | $69,394 | TotalLiabilitiesEOYAmt |
| Net Assets Or Fund Balances BOY | $2,653,801 | NetAssetsOrFundBalancesBOYAmt |
| Net Assets Or Fund Balances EOY | $7,043,058 | NetAssetsOrFundBalancesEOYAmt |
| Info In Schedule O Part III | Yes (X) | InfoInScheduleOPartIIIInd |
| Mission | CURE DUCHENNE IS A NOT-FOR-PROFIT ORGANIZATION DEDICATED TO COORDINATING AND FUNDING RESEARCH NECESSARY TO FIND A CURE FOR DUCHENNE MUSCULAR DYSTROPHY, INCREASING PUBLIC AWARENESS FOR DUCHENNE MUSCULAR DYSTROPHY, AND IMPROVING THE CARE AND HEALTH DUCHENNE MUSCULAR DYSTROPHY PATIENTS. | MissionDesc |
| Significant New Program Srvc | 0 | SignificantNewProgramSrvcInd |
| Significant Change | 0 | SignificantChangeInd |
| Expense | $1,188,023 | ExpenseAmt |
| Grant | $164,994 | GrantAmt |
| Desc | CURE DUCHENNE WAS ORGANIZED IN 2003 WITH A MISSION TO FUND RESEARCH NECESSARY TO FIND A CURE FOR DUCHENNE MUSCULAR DYSTROPHY, AND IMPROVING THE CARE AND HEALTH OF DUCHENNE MUSCULAR DYSTROPHY PATIENTS. | Desc |
| Total Program Service Expenses | $1,188,023 | TotalProgramServiceExpensesAmt |
| Described In Section501c3 | Yes (1) | DescribedInSection501c3Ind |
| Schedule B Required | Yes (1) | ScheduleBRequiredInd |
| Political Campaign Acty | 0 | PoliticalCampaignActyInd |
| Lobbying Activities | 0 | LobbyingActivitiesInd |
| Subject To Proxy Tax | 0 | SubjectToProxyTaxInd |
| Donor Advised Fund | 0 | DonorAdvisedFundInd |
| Conservation Easements | 0 | ConservationEasementsInd |
| Collections Of Art | 0 | CollectionsOfArtInd |
| Credit Counseling | 0 | CreditCounselingInd |
| Temp Or Permanent Endowments | 0 | TempOrPermanentEndowmentsInd |
| Report Land Building Equipment | Yes (1) | ReportLandBuildingEquipmentInd |
| Report Investments Other Sec | Yes (1) | ReportInvestmentsOtherSecInd |
| Report Program Related Invst | 0 | ReportProgramRelatedInvstInd |
| Report Other Assets | 0 | ReportOtherAssetsInd |
| Report Other Liabilities | Yes (1) | ReportOtherLiabilitiesInd |
| Include FIN48 Footnote | 0 | IncludeFIN48FootnoteInd |
| Independent Audit Fincl Stmt | Yes (1) | IndependentAuditFinclStmtInd |
| Consolidated Audit Fincl Stmt | 0 | ConsolidatedAuditFinclStmtInd |
| School Operating | 0 | SchoolOperatingInd |
| Foreign Office | 0 | ForeignOfficeInd |
| Foreign Activities | 0 | ForeignActivitiesInd |
| More Than5000 K To Org | Yes (1) | MoreThan5000KToOrgInd |
| More Than5000 K To Individuals | 0 | MoreThan5000KToIndividualsInd |
| Professional Fundraising | Yes (1) | ProfessionalFundraisingInd |
| Fundraising Activities | 0 | FundraisingActivitiesInd |
| Gaming Activities | 0 | GamingActivitiesInd |
| Operate Hospital | 0 | OperateHospitalInd |
| Grants To Organizations | Yes (1) | GrantsToOrganizationsInd |
| Grants To Individuals | 0 | GrantsToIndividualsInd |
| Schedule J Required | Yes (1) | ScheduleJRequiredInd |
| Tax Exempt Bonds | 0 | TaxExemptBondsInd |
| Engaged In Excess Benefit Trans | 0 | EngagedInExcessBenefitTransInd |
| PY Excess Benefit Trans | 0 | PYExcessBenefitTransInd |
| Loan Outstanding | 0 | LoanOutstandingInd |
| Grant To Related Person | 0 | GrantToRelatedPersonInd |
| Business Rln With Org Mem | 0 | BusinessRlnWithOrgMemInd |
| Business Rln With Fam Mem | 0 | BusinessRlnWithFamMemInd |
| Business Rln With Officer Ent | 0 | BusinessRlnWithOfficerEntInd |
| Deductible Non Cash Contri | 0 | DeductibleNonCashContriInd |
| Deductible Art Contribution | 0 | DeductibleArtContributionInd |
| Terminate Operations | 0 | TerminateOperationsInd |
| Partial Liquidation | 0 | PartialLiquidationInd |
| Disregarded Entity | 0 | DisregardedEntityInd |
| Related Entity | 0 | RelatedEntityInd |
| Related Organization Ctrl Ent | 0 | RelatedOrganizationCtrlEntInd |
| Trnsfr Exmpt Non Chrtbl Rltd Org | 0 | TrnsfrExmptNonChrtblRltdOrgInd |
| Activities Conducted Prtshp | 0 | ActivitiesConductedPrtshpInd |
| Schedule O Required | Yes (1) | ScheduleORequiredInd |
| IRP Document | 54 | IRPDocumentCnt |
| IRP Document W2 G | 0 | IRPDocumentW2GCnt |
| Backup Wthld Compliance | Yes (1) | BackupWthldComplianceInd |
| Employee | 6 | EmployeeCnt |
| Employment Tax Returns Filed | 0 | EmploymentTaxReturnsFiledInd |
| Unrelated Bus Incm Over Limit | 0 | UnrelatedBusIncmOverLimitInd |
| Foreign Financial Account | 0 | ForeignFinancialAccountInd |
| Prohibited Tax Shelter Trans | 0 | ProhibitedTaxShelterTransInd |
| Taxable Party Notification | 0 | TaxablePartyNotificationInd |
| Nondeductible Contributions | 0 | NondeductibleContributionsInd |
| Quid Pro Quo Contributions | 0 | QuidProQuoContributionsInd |
| Form8282 Property Disposed Of | 0 | Form8282PropertyDisposedOfInd |
| Indoor Tanning Services | 0 | IndoorTanningServicesInd |
| Info In Schedule O Part VI | Yes (X) | InfoInScheduleOPartVIInd |
| Governing Body Voting Members | 11 | GoverningBodyVotingMembersCnt |
| Independent Voting Member | 11 | IndependentVotingMemberCnt |
| Family Or Business Rln | Yes (1) | FamilyOrBusinessRlnInd |
| Delegation Of Mgmt Duties | 0 | DelegationOfMgmtDutiesInd |
| Change To Org Documents | 0 | ChangeToOrgDocumentsInd |
| Material Diversion Or Misuse | 0 | MaterialDiversionOrMisuseInd |
| Members Or Stockholders | 0 | MembersOrStockholdersInd |
| Election Of Board Members | 0 | ElectionOfBoardMembersInd |
| Decisions Subject To Approva | 0 | DecisionsSubjectToApprovaInd |
| Minutes Of Governing Body | Yes (1) | MinutesOfGoverningBodyInd |
| Minutes Of Committees | Yes (1) | MinutesOfCommitteesInd |
| Officer Mailing Address | 0 | OfficerMailingAddressInd |
| Local Chapters | 0 | LocalChaptersInd |
| Form990 Provided To Gvrn Body | 0 | Form990ProvidedToGvrnBodyInd |
| Conflict Of Interest Policy | Yes (1) | ConflictOfInterestPolicyInd |
| Annual Disclosure Covered Prsn | Yes (1) | AnnualDisclosureCoveredPrsnInd |
| Regular Monitoring Enfrc | Yes (1) | RegularMonitoringEnfrcInd |
| Whistleblower Policy | Yes (1) | WhistleblowerPolicyInd |
| Document Retention Policy | Yes (1) | DocumentRetentionPolicyInd |
| Compensation Process CEO | Yes (1) | CompensationProcessCEOInd |
| Compensation Process Other | Yes (1) | CompensationProcessOtherInd |
| Investment In Joint Venture | 0 | InvestmentInJointVentureInd |
| States Where Copy Of Return Is Fld | CA | StatesWhereCopyOfReturnIsFldCd |
| Upon Request | Yes (X) | UponRequestInd |
Books In Care Of Detail BooksInCareOfDetail
Business Name BusinessName
| Field | Value | IRS element (for citing) |
|---|---|---|
| Business Name Line1 | DEBRA MILLER | BusinessNameLine1Txt |
| Field | Value | IRS element (for citing) |
|---|---|---|
| Phone | 9497214063 | PhoneNum |
US Address USAddress
| Field | Value | IRS element (for citing) |
|---|---|---|
| Address Line1 | 1400 QUAIL STREET STE 110 | AddressLine1Txt |
| City | NEWPORT BEACH | CityNm |
| State Abbreviation | CA | StateAbbreviationCd |
| ZIP | 92660 | ZIPCd |
Form990 Part VII Section A Form990PartVIISectionAGrp (14 entries)
| TitleTitleTxt | Average Hours Per WeekAverageHoursPerWeekRt | Individual Trustee Or DirectorIndividualTrusteeOrDirectorInd | OfficerOfficerInd | Reportable Comp From OrgReportableCompFromOrgAmt | Reportable Comp From Rltd OrgReportableCompFromRltdOrgAmt | Other CompensationOtherCompensationAmt | Highest Compensated EmployeeHighestCompensatedEmployeeInd |
|---|---|---|---|---|---|---|---|
| PAUL MILLER | |||||||
| SECRETARY | 10.00 | Yes (X) | Yes (X) | $0 | $0 | $0 | |
| DEBRA MILLER | |||||||
| PRESIDENT | 40.00 | Yes (X) | Yes (X) | $180,000 | $0 | $0 | |
| JEFFREY GOFFMAN | |||||||
| DIRECTOR | 1.00 | Yes (X) | $0 | $0 | $0 | ||
| RON PHILIP | |||||||
| DIRECTOR | 1.00 | Yes (X) | $0 | $0 | $0 | ||
| TOM SCRANTON | |||||||
| DIRECTOR | 1.00 | Yes (X) | $0 | $0 | $0 | ||
| KEVIN DORSEY | |||||||
| DIRECTOR | 1.00 | Yes (X) | $0 | $0 | $0 | ||
| RYAN WILLIAMS | |||||||
| DIRECTOR | 1.00 | Yes (X) | $0 | $0 | $0 | ||
| EVONNE SEPSIS | |||||||
| DIRECTOR | 1.00 | Yes (X) | $0 | $0 | $0 | ||
| ELAINE WU | |||||||
| DIRECTOR | 1.00 | Yes (X) | $0 | $0 | $0 | ||
| TJ FARNSWORTH | |||||||
| DIRECTOR | 1.00 | Yes (X) | $0 | $0 | $0 | ||
| GEORGE BLANK | |||||||
| DIRECTOR | 1.00 | Yes (X) | $0 | $0 | $0 | ||
| KAREN E HARLEY | |||||||
| VICE-PRESIDENT | 40.00 | $120,000 | $0 | $0 | Yes (X) | ||
| MICHAEL G KELLY | |||||||
| CHIEF SCIENTIFIC OFFICER | 40.00 | $168,384 | $0 | $0 | Yes (X) | ||
| ANDREW HOYER | |||||||
| SENIOR DIRECTOR OF DEVELOPMENT | 40.00 | $111,000 | $0 | $0 | Yes (X) | ||
| Field | Value | IRS element (for citing) |
|---|---|---|
| Total Reportable Comp From Org | $579,384 | TotalReportableCompFromOrgAmt |
| Tot Reportable Comp Rltd Org | $0 | TotReportableCompRltdOrgAmt |
| Total Other Compensation | $0 | TotalOtherCompensationAmt |
| Indiv Rcvd Greater Than100 K | 4 | IndivRcvdGreaterThan100KCnt |
| Former Ofcr Employees Listed | 0 | FormerOfcrEmployeesListedInd |
| Total Comp Greater Than150 K | Yes (1) | TotalCompGreaterThan150KInd |
| Compensation From Other Srcs | 0 | CompensationFromOtherSrcsInd |
Contractor Compensation ContractorCompensationGrp
Contractor Name ContractorName
Business Name BusinessName
| Field | Value | IRS element (for citing) |
|---|---|---|
| Business Name Line1 | ANONYMOUS | BusinessNameLine1Txt |
Contractor Address ContractorAddress
US Address USAddress
| Field | Value | IRS element (for citing) |
|---|---|---|
| Address Line1 | 9140 IRVINE CENTER DRIVE | AddressLine1Txt |
| City | IRVINE | CityNm |
| State Abbreviation | CA | StateAbbreviationCd |
| ZIP | 92618 | ZIPCd |
| Field | Value | IRS element (for citing) |
|---|---|---|
| Services | FUNDRAISING | ServicesDesc |
| Compensation | $146,823 | CompensationAmt |
| Field | Value | IRS element (for citing) |
|---|---|---|
| Cntrct Rcvd Greater Than100 K | 1 | CntrctRcvdGreaterThan100KCnt |
| Fundraising | $1,316,427 | FundraisingAmt |
| All Other Contributions | $3,968 | AllOtherContributionsAmt |
| Noncash Contributions | $3,968 | NoncashContributionsAmt |
| Total Contributions | $1,320,395 | TotalContributionsAmt |
Investment Income InvestmentIncomeGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Total Revenue Column | $22,594 | TotalRevenueColumnAmt |
| Related Or Exempt Func Income | $22,594 | RelatedOrExemptFuncIncomeAmt |
Gross Amount Sales Assets GrossAmountSalesAssetsGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Securities | $2,941,345 | SecuritiesAmt |
Less Cost Oth Basis Sales Expnss LessCostOthBasisSalesExpnssGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Securities | $429,308 | SecuritiesAmt |
Gain Or Loss GainOrLossGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Securities | $2,512,037 | SecuritiesAmt |
Net Gain Or Loss Investments NetGainOrLossInvestmentsGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Total Revenue Column | $2,512,037 | TotalRevenueColumnAmt |
| Exclusion | $2,512,037 | ExclusionAmt |
| Field | Value | IRS element (for citing) |
|---|---|---|
| Fundraising Gross Income | $673,149 | FundraisingGrossIncomeAmt |
| Contri Rpt Fundraising Event | $1,316,427 | ContriRptFundraisingEventAmt |
| Fundraising Direct Expenses | $475,378 | FundraisingDirectExpensesAmt |
Net Incm From Fundraising Evt NetIncmFromFundraisingEvtGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Total Revenue Column | $197,771 | TotalRevenueColumnAmt |
| Exclusion | $197,771 | ExclusionAmt |
Total Revenue TotalRevenueGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Total Revenue Column | $4,052,797 | TotalRevenueColumnAmt |
| Related Or Exempt Func Income | $22,594 | RelatedOrExemptFuncIncomeAmt |
| Unrelated Business Revenue | $0 | UnrelatedBusinessRevenueAmt |
| Exclusion | $2,709,808 | ExclusionAmt |
Grants To Domestic Orgs GrantsToDomesticOrgsGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Total | $162,494 | TotalAmt |
| Program Services | $162,494 | ProgramServicesAmt |
Foreign Grants ForeignGrantsGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Total | $2,500 | TotalAmt |
| Program Services | $2,500 | ProgramServicesAmt |
Comp Current Ofcr Directors CompCurrentOfcrDirectorsGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Total | $579,384 | TotalAmt |
| Program Services | $534,384 | ProgramServicesAmt |
| Fundraising | $45,000 | FundraisingAmt |
Other Salaries And Wages OtherSalariesAndWagesGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Total | $52,195 | TotalAmt |
| Management And General | $22,916 | ManagementAndGeneralAmt |
| Fundraising | $29,279 | FundraisingAmt |
Payroll Taxes PayrollTaxesGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Total | $43,438 | TotalAmt |
| Program Services | $20,167 | ProgramServicesAmt |
| Management And General | $3,851 | ManagementAndGeneralAmt |
| Fundraising | $19,420 | FundraisingAmt |
Fees For Services Legal FeesForServicesLegalGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Total | $57,761 | TotalAmt |
| Program Services | $50,804 | ProgramServicesAmt |
| Management And General | $4,885 | ManagementAndGeneralAmt |
| Fundraising | $2,072 | FundraisingAmt |
Fees For Services Accounting FeesForServicesAccountingGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Total | $33,535 | TotalAmt |
| Management And General | $33,535 | ManagementAndGeneralAmt |
Advertising AdvertisingGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Total | $2,424 | TotalAmt |
| Program Services | $2,324 | ProgramServicesAmt |
| Management And General | $100 | ManagementAndGeneralAmt |
Office Expenses OfficeExpensesGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Total | $11,717 | TotalAmt |
| Program Services | $7,417 | ProgramServicesAmt |
| Management And General | $4,096 | ManagementAndGeneralAmt |
| Fundraising | $204 | FundraisingAmt |
Information Technology InformationTechnologyGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Total | $31,682 | TotalAmt |
| Program Services | $18,270 | ProgramServicesAmt |
| Management And General | $5,556 | ManagementAndGeneralAmt |
| Fundraising | $7,856 | FundraisingAmt |
Occupancy OccupancyGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Total | $45,395 | TotalAmt |
| Program Services | $22,203 | ProgramServicesAmt |
| Management And General | $10,958 | ManagementAndGeneralAmt |
| Fundraising | $12,234 | FundraisingAmt |
Travel TravelGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Total | $102,758 | TotalAmt |
| Program Services | $80,528 | ProgramServicesAmt |
| Management And General | $193 | ManagementAndGeneralAmt |
| Fundraising | $22,037 | FundraisingAmt |
Depreciation Depletion DepreciationDepletionGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Total | $462 | TotalAmt |
| Management And General | $462 | ManagementAndGeneralAmt |
Insurance InsuranceGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Total | $59,761 | TotalAmt |
| Program Services | $44,874 | ProgramServicesAmt |
| Management And General | $840 | ManagementAndGeneralAmt |
| Fundraising | $14,047 | FundraisingAmt |
Other Expenses OtherExpensesGrp (4 entries)
| DescDesc | TotalTotalAmt | Program ServicesProgramServicesAmt | Management And GeneralManagementAndGeneralAmt | FundraisingFundraisingAmt |
|---|---|---|---|---|
| OUTSIDE CONTRACT SERVIC | $302,912 | $234,151 | $30,988 | $37,773 |
| BANK & CREDIT CARD CHAR | $16,909 | $602 | $2,392 | $13,915 |
| PRINTING & REPRODUCTION | $13,620 | $1,728 | $3,936 | $7,956 |
| POSTAGE & DELIVERY EXPE | $9,432 | $94 | $1,912 | $7,426 |
All Other Expenses AllOtherExpensesGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Total | $18,432 | TotalAmt |
| Program Services | $5,483 | ProgramServicesAmt |
| Management And General | $9,129 | ManagementAndGeneralAmt |
| Fundraising | $3,820 | FundraisingAmt |
Total Functional Expenses TotalFunctionalExpensesGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Total | $1,546,811 | TotalAmt |
| Program Services | $1,188,023 | ProgramServicesAmt |
| Management And General | $135,749 | ManagementAndGeneralAmt |
| Fundraising | $223,039 | FundraisingAmt |
Cash Non Interest Bearing CashNonInterestBearingGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| BOY | $205,083 | BOYAmt |
| EOY | $238,548 | EOYAmt |
Savings And Temp Cash Invst SavingsAndTempCashInvstGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| BOY | $290,943 | BOYAmt |
| EOY | $1,991,777 | EOYAmt |
Oth Notes Loans Receivable Net OthNotesLoansReceivableNetGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| BOY | $626,568 | BOYAmt |
| EOY | $649,130 | EOYAmt |
| Field | Value | IRS element (for citing) |
|---|---|---|
| Land Bldg Equip Cost Or Other Bss | $17,063 | LandBldgEquipCostOrOtherBssAmt |
| Land Bldg Equip Accum Deprec | $16,372 | LandBldgEquipAccumDeprecAmt |
Land Bldg Equip Basis Net LandBldgEquipBasisNetGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| BOY | $1,078 | BOYAmt |
| EOY | $691 | EOYAmt |
Investments Other Securities InvestmentsOtherSecuritiesGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| BOY | $1,574,388 | BOYAmt |
| EOY | $4,230,218 | EOYAmt |
Intangible Assets IntangibleAssetsGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| BOY | $131 | BOYAmt |
| EOY | $56 | EOYAmt |
Other Assets Total OtherAssetsTotalGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| BOY | $2,032 | BOYAmt |
| EOY | $2,032 | EOYAmt |
Total Assets TotalAssetsGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| BOY | $2,700,223 | BOYAmt |
| EOY | $7,112,452 | EOYAmt |
Other Liabilities OtherLiabilitiesGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| BOY | $46,422 | BOYAmt |
| EOY | $69,394 | EOYAmt |
Total Liabilities TotalLiabilitiesGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| BOY | $46,422 | BOYAmt |
| EOY | $69,394 | EOYAmt |
| Field | Value | IRS element (for citing) |
|---|---|---|
| Organization Follows SFAS117 | Yes (X) | OrganizationFollowsSFAS117Ind |
Unrestricted Net Assets UnrestrictedNetAssetsGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| BOY | $2,653,801 | BOYAmt |
| EOY | $7,043,058 | EOYAmt |
Total Net Assets Fund Balance TotalNetAssetsFundBalanceGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| BOY | $2,653,801 | BOYAmt |
| EOY | $7,043,058 | EOYAmt |
Tot Liab Net Assets Fund Balance TotLiabNetAssetsFundBalanceGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| BOY | $2,700,223 | BOYAmt |
| EOY | $7,112,452 | EOYAmt |
| Field | Value | IRS element (for citing) |
|---|---|---|
| Reconcilation Revenue Expnss | $2,505,986 | ReconcilationRevenueExpnssAmt |
| Net Unrlzd Gains Losses Invst | $1,883,271 | NetUnrlzdGainsLossesInvstAmt |
| Other Changes In Net Assets | $0 | OtherChangesInNetAssetsAmt |
| Method Of Accounting Accrual | Yes (X) | MethodOfAccountingAccrualInd |
| Accountant Compile Or Review | 0 | AccountantCompileOrReviewInd |
| FS Audited | 0 | FSAuditedInd |
| Federal Grant Audit Required | 0 | FederalGrantAuditRequiredInd |
Schedule A IRS990ScheduleA
| Field | Value | IRS element (for citing) |
|---|---|---|
| Public Organization170 | Yes (X) | PublicOrganization170Ind |
Gifts Grants Contri Rcvd170 GiftsGrantsContriRcvd170Grp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Current Tax Year Minus4 Years | $1,258,555 | CurrentTaxYearMinus4YearsAmt |
| Current Tax Year Minus3 Years | $1,271,672 | CurrentTaxYearMinus3YearsAmt |
| Current Tax Year Minus2 Years | $2,386,942 | CurrentTaxYearMinus2YearsAmt |
| Current Tax Year Minus1 Year | $2,346,536 | CurrentTaxYearMinus1YearAmt |
| Current Tax Year | $1,993,544 | CurrentTaxYearAmt |
| Total | $9,257,249 | TotalAmt |
Total Calendar Year170 TotalCalendarYear170Grp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Current Tax Year Minus4 Years | $1,258,555 | CurrentTaxYearMinus4YearsAmt |
| Current Tax Year Minus3 Years | $1,271,672 | CurrentTaxYearMinus3YearsAmt |
| Current Tax Year Minus2 Years | $2,386,942 | CurrentTaxYearMinus2YearsAmt |
| Current Tax Year Minus1 Year | $2,346,536 | CurrentTaxYearMinus1YearAmt |
| Current Tax Year | $1,993,544 | CurrentTaxYearAmt |
| Total | $9,257,249 | TotalAmt |
| Field | Value | IRS element (for citing) |
|---|---|---|
| Public Support Total170 | $9,257,249 | PublicSupportTotal170Amt |
Gross Investment Income170 GrossInvestmentIncome170Grp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Current Tax Year Minus4 Years | $34,789 | CurrentTaxYearMinus4YearsAmt |
| Current Tax Year Minus3 Years | $34,789 | CurrentTaxYearMinus3YearsAmt |
| Current Tax Year Minus2 Years | $38,984 | CurrentTaxYearMinus2YearsAmt |
| Current Tax Year Minus1 Year | $41,362 | CurrentTaxYearMinus1YearAmt |
| Current Tax Year | $22,594 | CurrentTaxYearAmt |
| Total | $172,518 | TotalAmt |
| Field | Value | IRS element (for citing) |
|---|---|---|
| Total Support | $9,429,767 | TotalSupportAmt |
| Public Support CY170 | 0.98170 | PublicSupportCY170Pct |
| Public Support PY170 | 0.98160 | PublicSupportPY170Pct |
| Thirty Thr Pct Suprt Tests CY170 | Yes (X) | ThirtyThrPctSuprtTestsCY170Ind |
Schedule B IRS990ScheduleB
Contributor Information ContributorInformationGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Contributor | RESTRICTED | ContributorNum |
Contributor Business Name ContributorBusinessName
| Field | Value | IRS element (for citing) |
|---|---|---|
| Business Name Line1 | RESTRICTED | BusinessNameLine1 |
Contributor US Address ContributorUSAddress
| Field | Value | IRS element (for citing) |
|---|---|---|
| Address Line1 | RESTRICTED | AddressLine1 |
| Address Line2 | RESTRICTED | AddressLine2 |
| City | RESTRICTED | City |
| State | RESTRICTED | State |
| ZIP Code | RESTRICTED | ZIPCode |
| Field | Value | IRS element (for citing) |
|---|---|---|
| Total Contributions | RESTRICTED | TotalContributionsAmt |
Schedule D IRS990ScheduleD
Other Land Buildings OtherLandBuildingsGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Other Cost Or Other Basis | $17,063 | OtherCostOrOtherBasisAmt |
| Depreciation | $16,372 | DepreciationAmt |
| Book Value | $691 | BookValueAmt |
| Field | Value | IRS element (for citing) |
|---|---|---|
| Total Book Value Land Buildings | $691 | TotalBookValueLandBuildingsAmt |
Other Securities OtherSecuritiesGrp (2 entries)
| DescDesc | Book ValueBookValueAmt | Method ValuationMethodValuationCd |
|---|---|---|
| INVESTMENT IN PROSENSA HOLDINGS, N.V. (SEE FOOTNOTE 1) | $3,022,163 | F |
| INVESTMENTS HELD | $1,208,055 | F |
| Field | Value | IRS element (for citing) |
|---|---|---|
| Total Book Value Securities | $4,230,218 | TotalBookValueSecuritiesAmt |
Other Liabilities Org OtherLiabilitiesOrgGrp (2 entries)
| DescDesc | AmtAmt |
|---|---|
| CREDIT CARD PAYABLE | $13,442 |
| ACCRUED EXPENSES | $55,952 |
| Field | Value | IRS element (for citing) |
|---|---|---|
| Total Liability | $69,394 | TotalLiabilityAmt |
| Total Rev Etc Audited Fincl Stmt | $5,936,067 | TotalRevEtcAuditedFinclStmtAmt |
| Net Unrealized Gains Invst | $1,883,270 | NetUnrealizedGainsInvstAmt |
| Revenue Not Reported | $1,883,270 | RevenueNotReportedAmt |
| Revenue Subtotal | $4,052,797 | RevenueSubtotalAmt |
| Revenue Not Reported Fincl Stmt | $0 | RevenueNotReportedFinclStmtAmt |
| Total Revenue Per Form990 | $4,052,797 | TotalRevenuePerForm990Amt |
| Tot Expns Etc Audited Fincl Stmt | $1,546,811 | TotExpnsEtcAuditedFinclStmtAmt |
| Expenses Not Reported | $0 | ExpensesNotReportedAmt |
| Expenses Subtotal | $1,546,811 | ExpensesSubtotalAmt |
| Expenses Not Rpt Fincl Stmt | $0 | ExpensesNotRptFinclStmtAmt |
| Total Expenses Per Form990 | $1,546,811 | TotalExpensesPerForm990Amt |
Schedule F IRS990ScheduleF
| Field | Value | IRS element (for citing) |
|---|---|---|
| Grant Records Maintained | 0 | GrantRecordsMaintainedInd |
| Subtotal Offices | 0 | SubtotalOfficesCnt |
| Subtotal Employees | 0 | SubtotalEmployeesCnt |
| Continutation Total Office | 0 | ContinutationTotalOfficeCnt |
| Continutation Total Employee | 0 | ContinutationTotalEmployeeCnt |
| Total Office | 0 | TotalOfficeCnt |
| Total Employee | 0 | TotalEmployeeCnt |
| Subtotal Spent | $0 | SubtotalSpentAmt |
| Continuation Spent | $0 | ContinuationSpentAmt |
| Total Spent | $0 | TotalSpentAmt |
Grants To Org Outside US GrantsToOrgOutsideUSGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Region | EUROPE (INCLUDING ICELAND & GREENLAND) - ALBANIA, ANDORRA, AUSTRIA, BELGIUM | RegionTxt |
| Cash Grant | $2,500 | CashGrantAmt |
| Field | Value | IRS element (for citing) |
|---|---|---|
| Transfer To Foreign Corp | 0 | TransferToForeignCorpInd |
| Interest In Foreign Trust | 0 | InterestInForeignTrustInd |
| Foreign Corp Ownership | 0 | ForeignCorpOwnershipInd |
| Passive Foreign Investmest Co | 0 | PassiveForeignInvestmestCoInd |
| Foreign Partnership | 0 | ForeignPartnershipInd |
| Boycott Countries | 0 | BoycottCountriesInd |
Schedule G IRS990ScheduleG
| Field | Value | IRS element (for citing) |
|---|---|---|
| Special Fundraising Events | Yes (X) | SpecialFundraisingEventsInd |
| Agrmt Prof Fundraising Acty | 0 | AgrmtProfFundraisingActyInd |
Fundraiser Activity Info FundraiserActivityInfoGrp
Organization Business Name OrganizationBusinessName
| Field | Value | IRS element (for citing) |
|---|---|---|
| Business Name Line1 | ANONYMOUS | BusinessNameLine1Txt |
US Address USAddress
| Field | Value | IRS element (for citing) |
|---|---|---|
| Address Line1 | 9140 IRVINE CENTER DRIVE | AddressLine1Txt |
| City | IRVINE | CityNm |
| State Abbreviation | CA | StateAbbreviationCd |
| ZIP | 92618 | ZIPCd |
| Field | Value | IRS element (for citing) |
|---|---|---|
| Activity | GOLF TOURNAMENT/ANNUAL GALAS | ActivityTxt |
| Fundraiser Control Of Funds | 0 | FundraiserControlOfFundsInd |
| Gross Receipts | $1,079,446 | GrossReceiptsAmt |
| Retained By Contractor | $146,823 | RetainedByContractorAmt |
| Net To Organization | $1,079,446 | NetToOrganizationAmt |
| Field | Value | IRS element (for citing) |
|---|---|---|
| Total Gross Receipts | $1,079,446 | TotalGrossReceiptsAmt |
| Total Retained By Contractors | $146,823 | TotalRetainedByContractorsAmt |
| Total Net To Organization | $1,079,446 | TotalNetToOrganizationAmt |
| Licensed States | CA | LicensedStatesCd |
Fundraising Event Information FundraisingEventInformationGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Event1 | GETZLAF GOLF TOURNAMENT | Event1Nm |
| Gross Receipts Event1 | $301,544 | GrossReceiptsEvent1Amt |
| Charitable Contri Event1 | $50,000 | CharitableContriEvent1Amt |
| Gross Revenue Event1 | $251,544 | GrossRevenueEvent1Amt |
| Other Direct Expenses Event1 | $154,161 | OtherDirectExpensesEvent1Amt |
| Event2 | FUNDRAISER-NEWPORT BEACH GALA | Event2Nm |
| Gross Receipts Event2 | $362,799 | GrossReceiptsEvent2Amt |
| Charitable Contri Event2 | $118,250 | CharitableContriEvent2Amt |
| Gross Revenue Event2 | $244,549 | GrossRevenueEvent2Amt |
| Other Direct Expenses Event2 | $105,758 | OtherDirectExpensesEvent2Amt |
| Other Events Total | 13 | OtherEventsTotalCnt |
| Gross Receipts Other Events | $1,325,233 | GrossReceiptsOtherEventsAmt |
| Charitable Contri Other Events | $1,148,177 | CharitableContriOtherEventsAmt |
| Gross Revenue Other Events | $177,056 | GrossRevenueOtherEventsAmt |
| Oth Direct Expnss Other Events | $215,459 | OthDirectExpnssOtherEventsAmt |
| Gross Receipts Total | $1,989,576 | GrossReceiptsTotalAmt |
| Charitable Contributions Tot | $1,316,427 | CharitableContributionsTotAmt |
| Gross Revenue Total Events | $673,149 | GrossRevenueTotalEventsAmt |
| Oth Direct Expnss Total Events | $475,378 | OthDirectExpnssTotalEventsAmt |
| Direct Expense Summary Events | $475,378 | DirectExpenseSummaryEventsAmt |
| Net Income Summary | $197,771 | NetIncomeSummaryAmt |
Supplemental Information Detail SupplementalInformationDetail
| Field | Value | IRS element (for citing) |
|---|---|---|
| Form And Line Reference | SCHEDULE G, PART I, LINE 2B, COLUMN (V) | FormAndLineReferenceDesc |
| Explanation | DURING 2014, THE ORGANIZATION PAID THE FUNDRAISER $146,823. THESE PAYMENTS REPRESENT SERVICES RENDERED DURING THE FUNDRAISING EVENTS, INCLUDING ORGANIZING AND COORDINATING THE FUNCTIONS. | ExplanationTxt |
Schedule I IRS990ScheduleI
| Field | Value | IRS element (for citing) |
|---|---|---|
| Grant Records Maintained | 0 | GrantRecordsMaintainedInd |
Recipient Table RecipientTable (4 entries)
| Address Line1USAddress/AddressLine1Txt | CityUSAddress/CityNm | State AbbreviationUSAddress/StateAbbreviationCd | ZIPUSAddress/ZIPCd | Recipient EINRecipientEIN | Cash GrantCashGrantAmt | Purpose Of GrantPurposeOfGrantTxt |
|---|---|---|---|---|---|---|
| NATIONWIDE CHILDREN'S HOSPITAL | ||||||
| 700 CHILDRENS DRIVE | COLUMBUS | OH | 43205 | 311036372 | $134,300 | EDUCATION / OUTREACH / RESEARCH |
| CHILDREN'S RESEARCH INSTITUTE | ||||||
| 111 MICHIGAN AVE NW | WASHINGTON | DC | 20010 | 521654453 | $8,700 | EDUCATION / OUTREACH / RESEARCH |
| EFFICACY OF DUCHENNE TRIALS CO SUSAN WARD | ||||||
| 5B LANCASTER STREET | CAMBRIDGE | MA | 02140 | $12,500 | EDUCATION / OUTREACH / RESEARCH | |
| OTHER MISCELLANEOUS GRANTS | ||||||
| 1400 QUAIL STREET | NEWPORT BEACH | CA | 92660 | $6,994 | EDUCATION / OUTREACH / RESEARCH | |
Schedule J IRS990ScheduleJ
| Field | Value | IRS element (for citing) |
|---|---|---|
| Board Or Committee Approval | Yes (X) | BoardOrCommitteeApprovalInd |
| Severance Payment | 0 | SeverancePaymentInd |
| Supplemental Nonqual Rtr Plan | 0 | SupplementalNonqualRtrPlanInd |
| Equity Based Comp Arrngm | 0 | EquityBasedCompArrngmInd |
| Comp Based On Revenue Of Flng Org | 0 | CompBasedOnRevenueOfFlngOrgInd |
| Comp Bsd On Rev Related Orgs | 0 | CompBsdOnRevRelatedOrgsInd |
| Comp Bsd Net Earns Flng Org | 0 | CompBsdNetEarnsFlngOrgInd |
| Comp Bsd Net Earns Rltd Orgs | 0 | CompBsdNetEarnsRltdOrgsInd |
| Any Non Fixed Payments | 0 | AnyNonFixedPaymentsInd |
| Initial Contract Exception | 0 | InitialContractExceptionInd |
Rltd Org Officer Trst Key Empl RltdOrgOfficerTrstKeyEmplGrp (4 entries)
| TitleTitleTxt | Base Compensation Filing OrgBaseCompensationFilingOrgAmt | Compensation Based On Rltd OrgsCompensationBasedOnRltdOrgsAmt | Bonus Filing OrganizationBonusFilingOrganizationAmount | Bonus Related OrganizationsBonusRelatedOrganizationsAmt | Other Compensation Filing OrgOtherCompensationFilingOrgAmt | Other Compensation Rltd OrgsOtherCompensationRltdOrgsAmt | Deferred Compensation Flng OrgDeferredCompensationFlngOrgAmt | Deferred Comp Rltd OrgsDeferredCompRltdOrgsAmt | Nontaxable Benefits Filing OrgNontaxableBenefitsFilingOrgAmt | Nontaxable Benefits Rltd OrgsNontaxableBenefitsRltdOrgsAmt | Total Compensation Filing OrgTotalCompensationFilingOrgAmt | Total Compensation Rltd OrgsTotalCompensationRltdOrgsAmt | Comp Report Prior990 Filing OrgCompReportPrior990FilingOrgAmt | Comp Report Prior990 Rltd OrgsCompReportPrior990RltdOrgsAmt |
|---|---|---|---|---|---|---|---|---|---|---|---|---|---|---|
| DEBRA MILLER | ||||||||||||||
| PRESIDENT | $120,000 | $0 | $60,000 | $0 | $0 | $0 | $0 | $0 | $0 | $0 | $180,000 | $0 | $0 | $0 |
| KAREN E HARLEY | ||||||||||||||
| VICE-PRESIDENT | $120,000 | $0 | $0 | $0 | $0 | $0 | $0 | $0 | $0 | $0 | $120,000 | $0 | $0 | $0 |
| MICHAEL G KELLY | ||||||||||||||
| CHIEF SCIENTIFIC OFFICER | $168,384 | $0 | $0 | $0 | $0 | $0 | $0 | $0 | $0 | $0 | $168,384 | $0 | $0 | $0 |
| ANDREW HOYER | ||||||||||||||
| SENIOR DIRECTOR OF DEVELOPMENT | $111,000 | $0 | $0 | $0 | $0 | $0 | $0 | $0 | $0 | $0 | $111,000 | $0 | $0 | $0 |
Schedule O IRS990ScheduleO
Supplemental Information Detail SupplementalInformationDetail (7 entries)
| Form And Line ReferenceFormAndLineReferenceDesc | ExplanationExplanationTxt |
|---|---|
| FORM 990, PART III, LINE 4D, OTHER PROGRAM SERVICES | CURE DUCHENNE MADE TWO SEPARATE INVESTMENTS IN PROSENSA HOLDINGS, N.V., A PRIVATELY HELD COMPANY LOCATED IN THE NETHERLANDS. IN NOVEMBER 2004, CURE DUCHENNE INVESTED $336,250. IN DECEMBER 2006, A PORTION OF A NON-INTEREST BEARING LOAN IN THE AMOUNT OF $485,425 WAS CONVERTED TO EQUITY COMMON SHARES. SEE BALANCE SHEET AND FOOTNOTE NO. 1. THE FUNDS CONTRIBUTED BY CURE DUCHENNE ARE RESTRICTED FOR RESEARCH TO FINDING A CURE FOR DUCHENNE MUSCULAR DYSTROPHY. THE ORGANIZATION MONITORS PROSENSA'S RESEARCH ACTIVITIES TO ENSURE PROPER UTILIZATION OF THE CONTRIBUTED FUNDS. THE EQUITY INTEREST MAY PROVIDE THE ORGANIZATION WITH ADDTIONAL CAPITAL IN THE FUTURE TO FUND OTHER RESEARCH PROJECTS FOR DUCHENNE MUSCULAR DYSTROPHY. IN 2013, PROSENA HOLDING, N.V. BECAME A PUBLICILY TRADED COMPANY LISTED ON THE NASDAQ. AS SUCH, THE VALUE REFLECTED ON THE BALANCE SHEET AT DECEMBER 31, 2013 IS CARRIED AT MARKET VALUE. DURING 2014, PROSENA HOLDINGS, N.V. WAS PURCHASED BY BIOMARIN PHARMACUETICALS, INC. BIOMARIN HAS DECIDED TO DE-LIST PROSENA HOLDING, N.V. FROM THE NASDAQ AND WILL BE PURCHASING BACK ALL OF PROSENA HOLDING, N.V'S OUTSTANDING STOCK. THE VALUE REFLECTED ON THE BALANCE SHEET AT DECEMBER 31, 2014 IS CARRIED AT COST OF $17.75 PER SHARE, WHICH IS THE AGREED UPON PRICE BETWEEN BIOMARIN PHARMACEUTICAL AND PROSENA HOLDING, N.V. FOR PROSENA'S OUTSTANDING STOCK. |
| FORM 990, PART VI, SECTION A, LINE 2 | DEBRA AND PAUL MILLER HAVE A FAMILY RELATIONSHIP. |
| FORM 990, PART VI, SECTION B, LINE 11 | FORM 990 WILL BE AVAILABLE TO THE BOARD TO REVIEW PRIOR TO FILING AT THE REGULARLY SCHEDULE BOARD MEETINGS. HOWEVER, A LIMITED NUMBER OF BOARD MEMBERS WILL REVIEW THE ENTIRE FORM 990 PRIOR TO FILING. |
| FORM 990, PART VI, SECTION B, LINE 12C | THE BOARD OF DIRECTORS ARE REQUIRED TO REVIEW AND SIGN THE CONFLICT OF INTEREST POLICY AT LEAST ANNUALLY. THE BOARD MEMBER MUST INFORM THE REST OF THE BOARD IF A CONFLICT ARISES OR IF IT EXISTS. |
| FORM 990, PART VI, SECTION B, LINE 15 | COMPENSATION OF TOP MANAGEMENT AND OFFICERS OF THE ORGANIZATION ARE REVIEWED BY INDEPENDENT LEGAL COUNSEL AND SUBMITTED TO THE BOARD MEMBERS FOR APPROVAL. |
| FORM 990, PART VI, SECTION C, LINE 19 | THE ORGANZIATION'S AUDITED FINANCIAL STATEMENTS AND FORM 990 ARE AVAILABLE TO THE PUBLIC UPON REQUEST. |
| FOOTNOTE NO. 1 IN RE: INVESTMENT IN PROSENA HOLDINGS, N.V. | THE ORGANIZATION MADE TWO SEPARATE INVESTMENTS IN PROSENSA HOLDINGS, N.V., A PRIVATELY HELD COMPANY LOCATED IN THE NETHERLANDS. IN NOVEMBER 2004, CURE DUCHENNE INVESTED $336,250. IN DECEMBER 2006, A PORTION OF A NON-INTEREST BEARING LOAN IN THE AMOUNT OF $485,425 WAS CONVERTED TO EQUITY COMMON SHARES. THESE CONTRIBUTED FUNDS ARE RESTRICTED FOR USE IN RESEARCH DIRECTLY RELATED TO FINDING A CURE FOR DUCHENNE MUSCULAR DYSTROPHY. CURE DUCHENNE'S BOARD MONITORS PROSENSA'S RESEARCH ACTIVITIES AND AUTHORIZES RELEASE OF ADDITIONAL FUNDS TO PROSENSA FOR FURTHER RESEARCH AS OBJECTIVES ARE MET BY PROSENSA. CURE DUCHENNE RECEIVED A EQUITY INTEREST IN PROSENSA FOR THE CONTRIBUTIONS. THE EQUITY INTEREST ENABLES CURE DUCHENNE TO MONITOR PROSENSA'S RESEARCH EFFORTS TO FINDING A CURE FOR DUCHENNE MUSCULAR DYSTROPHY. ADDITIONALLY, THE EQUITY INTEREST IN PROSENSA MAY PROVIDE CURE DUCHENNE WITH ADDITIONAL CAPITAL IN THE FUTURE TO FUND OTHER RESEARCH PROJECTS FOR DUCHENNE MUSCULAR DYSTROPHY. IN 2013, PROSENA HOLDING, N.V. BECAME A PUBLICILY TRADED COMPANY LISTED ON THE NASDAQ. AS SUCH, THE VALUE REFLECTED ON THE BALANCE SHEET AT DECEMBER 31, 2013 IS CARRIED AT MARKET VALUE. DURING 2014, PROSENA HOLDINGS, N.V. WAS PURCHASED BY BIOMARIN PHARMACUETICALS, INC. BIOMARIN HAS DECIDED TO DE-LIST PROSENA HOLDING, N.V. FROM THE NASDAQ AND WILL BE PURCHASING BACK ALL OF PROSENA HOLDING, N.V'S OUTSTANDING STOCK. THE VALUE REFLECTED ON THE BALANCE SHEET AT DECEMBER 31, 2014 IS CARRIED AT COST OF $17.75 PER SHARE, WHICH IS THE AGREED UPON PRICE BETWEEN BIOMARIN PHARMACEUTICAL AND PROSENA HOLDING, N.V. FOR PROSENA HOLDING'S OUTSTANDING STOCK. |
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