CURE DUCHENNE: Form 990, tax year 2018

View the entire original 990 at ProPublica ↗

Organization: CURE DUCHENNE (EIN 20-0299958)
Tax period: 2018-01-01 to 2018-12-31
Filed: 2019-08-05
IRS object ID: 201932179349300758
Schema version: 2018v3.1
Source: Download XML · Original 990 at ProPublica

Every field in the e-filed return. Faint text is the IRS element name, for citing.

Return header
Form 990
Schedule A
Schedule D
Schedule G
Schedule I
Schedule J
Schedule O
Schedule R

Return header ReturnHeader

Field	Value	IRS element (for citing)
Return	2019-08-05T11:56:26-05:00	ReturnTs
Tax Period End	2018-12-31	TaxPeriodEndDt

Preparer Firm PreparerFirmGrp

Field	Value	IRS element (for citing)
Preparer Firm EIN	954303700	PreparerFirmEIN

Preparer Firm Name PreparerFirmName

Field	Value	IRS element (for citing)
Business Name Line1	JOHN S BALISY & COMPANY	BusinessNameLine1Txt

Preparer US Address PreparerUSAddress

Field	Value	IRS element (for citing)
Address Line1	23792 ROCKFIELD BLVD STE 140	AddressLine1Txt
City	LAKE FOREST	CityNm
State Abbreviation	CA	StateAbbreviationCd
ZIP	92630	ZIPCd

Field	Value	IRS element (for citing)
Return Type	990	ReturnTypeCd
Tax Period Begin	2018-01-01	TaxPeriodBeginDt

Filer Filer

Field	Value	IRS element (for citing)
EIN	200299958	EIN

Business Name BusinessName

Field	Value	IRS element (for citing)
Business Name Line1	CURE DUCHENNE	BusinessNameLine1Txt

Field	Value	IRS element (for citing)
Business Name Control	CURE	BusinessNameControlTxt
Phone	9498722552	PhoneNum

US Address USAddress

Field	Value	IRS element (for citing)
Address Line1	1400 QUAIL STREET NO 110	AddressLine1Txt
City	NEWPORT BEACH	CityNm
State Abbreviation	CA	StateAbbreviationCd
ZIP	92660	ZIPCd

Business Officer BusinessOfficerGrp

Field	Value	IRS element (for citing)
Person	DEBRA MILLER	PersonNm
Person Title	PRESIDENT	PersonTitleTxt
Phone	9498722552	PhoneNum
Signature	2019-07-01	SignatureDt

Preparer Person PreparerPersonGrp

Field	Value	IRS element (for citing)
Preparer Person	JOHN S BALISY COMPANY	PreparerPersonNm
PTIN	P01385861	PTIN
Phone	9495407519	PhoneNum

Filing Security Information FilingSecurityInformation

IP Address IPAddress

Field	Value	IRS element (for citing)
I Pv4 Address	104.42.55.89	IPv4AddressTxt

Field	Value	IRS element (for citing)
IP	2019-07-01	IPDt
IP Tm	15:27:14	IPTm
IP Timezone	PD	IPTimezoneCd
Filing License Type	P	FilingLicenseTypeCd
At Submission Creation Device Id	B2ACE6CDA220F5DB05D3C9B537503C1558496528	AtSubmissionCreationDeviceId
At Submission Filing Device Id	B2ACE6CDA220F5DB05D3C9B537503C1558496528	AtSubmissionFilingDeviceId

Field	Value	IRS element (for citing)
Tax	2018	TaxYr
Build TS	2019-02-21 02:37:17Z	BuildTS

Form 990 IRS990

Field	Value	IRS element (for citing)
Principal Officer	DEBRA MILLER	PrincipalOfficerNm

US Address USAddress

Field	Value	IRS element (for citing)
Address Line1	1400 QUAIL STREET STE 110	AddressLine1Txt
City	NEWPORT BEACH	CityNm
State Abbreviation	CA	StateAbbreviationCd
ZIP	92660	ZIPCd

Field	Value	IRS element (for citing)
Gross Receipts	$5,596,819	GrossReceiptsAmt
Group Return For Affiliates	0	GroupReturnForAffiliatesInd
Organization501c3	Yes (X)	Organization501c3Ind
Website Address	WWW.CUREDUCHENNE.ORG	WebsiteAddressTxt
Type Of Organization Corp	Yes (X)	TypeOfOrganizationCorpInd
Formation	2003	FormationYr
Legal Domicile State	CA	LegalDomicileStateCd
Activity Or Mission	COORDINATING AND FUNDING RESEARCH NECESSARY TO FIND A CURE FOR DUCHENNE MUSCULAR DYSTROPHY. ALSO, IMPROVING THE CARE AND HEALTH OF DUCHENNE MUSCULAR DISTROPHY PATIENTS.	ActivityOrMissionDesc
Voting Members Governing Body	14	VotingMembersGoverningBodyCnt
Voting Members Independent	12	VotingMembersIndependentCnt
Total Employee	19	TotalEmployeeCnt
Total Volunteers	0	TotalVolunteersCnt
Total Gross UBI	$0	TotalGrossUBIAmt
Net Unrelated Bus Txbl Incm	$0	NetUnrelatedBusTxblIncmAmt
PY Contributions Grants	$1,392,399	PYContributionsGrantsAmt
CY Contributions Grants	$1,612,024	CYContributionsGrantsAmt
PY Program Service Revenue	$0	PYProgramServiceRevenueAmt
CY Program Service Revenue	$0	CYProgramServiceRevenueAmt
PY Investment Income	-$345,440	PYInvestmentIncomeAmt
CY Investment Income	$881,456	CYInvestmentIncomeAmt
PY Other Revenue	$1,938,049	PYOtherRevenueAmt
CY Other Revenue	$2,319,864	CYOtherRevenueAmt
PY Total Revenue	$2,985,008	PYTotalRevenueAmt
CY Total Revenue	$4,813,344	CYTotalRevenueAmt
PY Grants And Similar Paid	$100,000	PYGrantsAndSimilarPaidAmt
CY Grants And Similar Paid	$150,000	CYGrantsAndSimilarPaidAmt
PY Benefits Paid To Members	$0	PYBenefitsPaidToMembersAmt
CY Benefits Paid To Members	$0	CYBenefitsPaidToMembersAmt
PY Salaries Comp Emp Bnft Paid	$1,127,397	PYSalariesCompEmpBnftPaidAmt
CY Salaries Comp Emp Bnft Paid	$1,634,955	CYSalariesCompEmpBnftPaidAmt
PY Total Prof Fndrsng Expns	$100,089	PYTotalProfFndrsngExpnsAmt
CY Total Prof Fndrsng Expns	$116,000	CYTotalProfFndrsngExpnsAmt
CY Total Fundraising Expense	$837,776	CYTotalFundraisingExpenseAmt
PY Other Expenses	$1,264,921	PYOtherExpensesAmt
CY Other Expenses	$2,413,838	CYOtherExpensesAmt
PY Total Expenses	$2,592,407	PYTotalExpensesAmt
CY Total Expenses	$4,314,793	CYTotalExpensesAmt
PY Revenues Less Expenses	$392,601	PYRevenuesLessExpensesAmt
CY Revenues Less Expenses	$498,551	CYRevenuesLessExpensesAmt
Total Assets BOY	$6,196,389	TotalAssetsBOYAmt
Total Assets EOY	$6,797,553	TotalAssetsEOYAmt
Total Liabilities BOY	$22,157	TotalLiabilitiesBOYAmt
Total Liabilities EOY	$81,849	TotalLiabilitiesEOYAmt
Net Assets Or Fund Balances BOY	$6,174,232	NetAssetsOrFundBalancesBOYAmt
Net Assets Or Fund Balances EOY	$6,715,704	NetAssetsOrFundBalancesEOYAmt
Mission	CURE DUCHENNE IS A NOT-FOR-PROFIT ORGANIZATION DEDICATED TO COORDINATING AND FUNDING RESEARCH NECESSARY TO FIND A CURE FOR DUCHENNE MUSCULAR DYSTROPHY, INCREASING PUBLIC AWARENESS FOR DUCHENNE MUSCULAR DYSTROPHY, AND IMPROVING THEIR CARE AND HEALTH.	MissionDesc
Significant New Program Srvc	0	SignificantNewProgramSrvcInd
Significant Change	0	SignificantChangeInd
Expense	$2,803,320	ExpenseAmt
Grant	$150,000	GrantAmt
Revenue	$881,456	RevenueAmt
Desc	CURE DUCHENNE WAS ORGANIZED IN 2003 WITH A MISSION TO FUND RESEARCH NECESSARY TO FIND A CURE FOR DUCHENNE MUSCULAR DYSTROPHY, AND IMPROVING THE CARE AND HEALTH OF DUCHENNE MUSCULAR DYSTROPHY PATIENTS.	Desc
Total Program Service Expenses	$2,803,320	TotalProgramServiceExpensesAmt
Described In Section501c3	Yes (1)	DescribedInSection501c3Ind
Schedule B Required	0	ScheduleBRequiredInd
Political Campaign Acty	0	PoliticalCampaignActyInd
Lobbying Activities	0	LobbyingActivitiesInd
Subject To Proxy Tax	0	SubjectToProxyTaxInd
Donor Advised Fund	0	DonorAdvisedFundInd
Conservation Easements	0	ConservationEasementsInd
Collections Of Art	0	CollectionsOfArtInd
Credit Counseling	0	CreditCounselingInd
Temp Or Permanent Endowments	0	TempOrPermanentEndowmentsInd
Report Land Building Equipment	Yes (1)	ReportLandBuildingEquipmentInd
Report Investments Other Sec	0	ReportInvestmentsOtherSecInd
Report Program Related Invst	Yes (1)	ReportProgramRelatedInvstInd
Report Other Assets	0	ReportOtherAssetsInd
Report Other Liabilities	Yes (1)	ReportOtherLiabilitiesInd
Include FIN48 Footnote	0	IncludeFIN48FootnoteInd
Independent Audit Fincl Stmt	Yes (1)	IndependentAuditFinclStmtInd
Consolidated Audit Fincl Stmt	Yes (1)	ConsolidatedAuditFinclStmtInd
School Operating	0	SchoolOperatingInd
Foreign Office	0	ForeignOfficeInd
Foreign Activities	0	ForeignActivitiesInd
More Than5000 K To Org	0	MoreThan5000KToOrgInd
More Than5000 K To Individuals	0	MoreThan5000KToIndividualsInd
Professional Fundraising	Yes (1)	ProfessionalFundraisingInd
Fundraising Activities	Yes (1)	FundraisingActivitiesInd
Gaming Activities	0	GamingActivitiesInd
Operate Hospital	0	OperateHospitalInd
Grants To Organizations	Yes (1)	GrantsToOrganizationsInd
Grants To Individuals	0	GrantsToIndividualsInd
Schedule J Required	Yes (1)	ScheduleJRequiredInd
Tax Exempt Bonds	0	TaxExemptBondsInd
Engaged In Excess Benefit Trans	0	EngagedInExcessBenefitTransInd
PY Excess Benefit Trans	0	PYExcessBenefitTransInd
Loan Outstanding	0	LoanOutstandingInd
Grant To Related Person	0	GrantToRelatedPersonInd
Business Rln With Org Mem	0	BusinessRlnWithOrgMemInd
Business Rln With Fam Mem	0	BusinessRlnWithFamMemInd
Business Rln With Officer Ent	0	BusinessRlnWithOfficerEntInd
Deductible Non Cash Contri	0	DeductibleNonCashContriInd
Deductible Art Contribution	0	DeductibleArtContributionInd
Terminate Operations	0	TerminateOperationsInd
Partial Liquidation	0	PartialLiquidationInd
Disregarded Entity	Yes (1)	DisregardedEntityInd
Related Entity	Yes (1)	RelatedEntityInd
Related Organization Ctrl Ent	0	RelatedOrganizationCtrlEntInd
Trnsfr Exmpt Non Chrtbl Rltd Org	0	TrnsfrExmptNonChrtblRltdOrgInd
Activities Conducted Prtshp	0	ActivitiesConductedPrtshpInd
Schedule O Required	Yes (1)	ScheduleORequiredInd
IRP Document	80	IRPDocumentCnt
IRP Document W2 G	0	IRPDocumentW2GCnt
Employee	19	EmployeeCnt
Employment Tax Returns Filed	Yes (1)	EmploymentTaxReturnsFiledInd
Unrelated Bus Incm Over Limit	0	UnrelatedBusIncmOverLimitInd
Foreign Financial Account	0	ForeignFinancialAccountInd
Prohibited Tax Shelter Trans	0	ProhibitedTaxShelterTransInd
Taxable Party Notification	0	TaxablePartyNotificationInd
Nondeductible Contributions	0	NondeductibleContributionsInd
Quid Pro Quo Contributions	0	QuidProQuoContributionsInd
Form8282 Property Disposed Of	0	Form8282PropertyDisposedOfInd
Form1098 C Filed	Yes (1)	Form1098CFiledInd
Indoor Tanning Services	0	IndoorTanningServicesInd
Subj To Tax Rmnrtn Ex Prcht Pymt	0	SubjToTaxRmnrtnExPrchtPymtInd
Subject To Excs Tax Net Invst Inc	0	SubjectToExcsTaxNetInvstIncInd
Info In Schedule O Part VI	Yes (X)	InfoInScheduleOPartVIInd
Governing Body Voting Members	14	GoverningBodyVotingMembersCnt
Independent Voting Member	12	IndependentVotingMemberCnt
Family Or Business Rln	Yes (1)	FamilyOrBusinessRlnInd
Delegation Of Mgmt Duties	0	DelegationOfMgmtDutiesInd
Change To Org Documents	0	ChangeToOrgDocumentsInd
Material Diversion Or Misuse	0	MaterialDiversionOrMisuseInd
Members Or Stockholders	0	MembersOrStockholdersInd
Election Of Board Members	0	ElectionOfBoardMembersInd
Decisions Subject To Approva	0	DecisionsSubjectToApprovaInd
Minutes Of Governing Body	Yes (1)	MinutesOfGoverningBodyInd
Minutes Of Committees	Yes (1)	MinutesOfCommitteesInd
Officer Mailing Address	0	OfficerMailingAddressInd
Local Chapters	0	LocalChaptersInd
Form990 Provided To Gvrn Body	0	Form990ProvidedToGvrnBodyInd
Conflict Of Interest Policy	Yes (1)	ConflictOfInterestPolicyInd
Annual Disclosure Covered Prsn	Yes (1)	AnnualDisclosureCoveredPrsnInd
Regular Monitoring Enfrc	Yes (1)	RegularMonitoringEnfrcInd
Whistleblower Policy	Yes (1)	WhistleblowerPolicyInd
Document Retention Policy	Yes (1)	DocumentRetentionPolicyInd
Compensation Process CEO	Yes (1)	CompensationProcessCEOInd
Compensation Process Other	Yes (1)	CompensationProcessOtherInd
Investment In Joint Venture	0	InvestmentInJointVentureInd
States Where Copy Of Return Is Fld	CA	StatesWhereCopyOfReturnIsFldCd
Other Website	Yes (X)	OtherWebsiteInd
Upon Request	Yes (X)	UponRequestInd

Books In Care Of Detail BooksInCareOfDetail

Business Name BusinessName

Field	Value	IRS element (for citing)
Business Name Line1	DEBRA MILLER	BusinessNameLine1Txt

Field	Value	IRS element (for citing)
Phone	9498722552	PhoneNum

US Address USAddress

Field	Value	IRS element (for citing)
Address Line1	1400 QUAIL STREET STE 110	AddressLine1Txt
City	NEWPORT BEACH	CityNm
State Abbreviation	CA	StateAbbreviationCd
ZIP	92660	ZIPCd

Form990 Part VII Section A Form990PartVIISectionAGrp (15 entries)

TitleTitleTxt	Average Hours Per WeekAverageHoursPerWeekRt	Individual Trustee Or DirectorIndividualTrusteeOrDirectorInd	OfficerOfficerInd	Reportable Comp From OrgReportableCompFromOrgAmt	Reportable Comp From Rltd OrgReportableCompFromRltdOrgAmt	Other CompensationOtherCompensationAmt	Highest Compensated EmployeeHighestCompensatedEmployeeInd
PAUL MILLER
SECRETARY	5.00	Yes (X)	Yes (X)	$0	$0	$0
DEBRA MILLER
PRESIDENT	40.00	Yes (X)	Yes (X)	$150,000	$0	$0
JEFFREY GOFFMAN
DIRECTOR	1.00	Yes (X)		$0	$0	$0
RON PHILIP
DIRECTOR	1.00	Yes (X)		$0	$0	$0
KEVIN DORSEY
DIRECTOR	1.00	Yes (X)		$0	$0	$0
RYAN WILLIAMS
DIRECTOR	1.00	Yes (X)		$0	$0	$0
EVONNE SEPSIS
DIRECTOR	1.00	Yes (X)		$0	$0	$0
ELAINE WU
DIRECTOR	1.00	Yes (X)		$0	$0	$0
TJ FARNSWORTH
DIRECTOR	1.00	Yes (X)		$0	$0	$0
MIKE HAGLIN
CHAIRMAN OF THE BOARD	1.00	Yes (X)		$0	$0	$0
SARAH MCELROY
DIRECTOR	1.00	Yes (X)		$0	$0	$0
MICHELLE KOLL-O'LEARY
DIRECTOR	1.00	Yes (X)		$0	$0	$0
PETER STRELOW
DIRECTOR	1.00	Yes (X)		$0	$0	$0
MEGHAN WOOD
VP BOF BUSINESS DEVELOPMEN	40.00			$121,500	$0	$0	Yes (X)
WILLIAM D ABERNERTY
VICE PRESIDENT OPERATIONS	40.00			$223,891	$0	$0	Yes (X)

Field	Value	IRS element (for citing)
Total Reportable Comp From Org	$495,391	TotalReportableCompFromOrgAmt
Tot Reportable Comp Rltd Org	$0	TotReportableCompRltdOrgAmt
Total Other Compensation	$0	TotalOtherCompensationAmt
Indiv Rcvd Greater Than100 K	3	IndivRcvdGreaterThan100KCnt
Former Ofcr Employees Listed	0	FormerOfcrEmployeesListedInd
Total Comp Greater Than150 K	Yes (1)	TotalCompGreaterThan150KInd
Compensation From Other Srcs	0	CompensationFromOtherSrcsInd

Contractor Compensation ContractorCompensationGrp

Contractor Name ContractorName

Business Name BusinessName

Field	Value	IRS element (for citing)
Business Name Line1	ANONYMOUS	BusinessNameLine1Txt

Contractor Address ContractorAddress

US Address USAddress

Field	Value	IRS element (for citing)
Address Line1	9140 IRVINE CENTER DRIVE	AddressLine1Txt
City	IRVINE	CityNm
State Abbreviation	CA	StateAbbreviationCd
ZIP	92618	ZIPCd

Field	Value	IRS element (for citing)
Services	FUNDRAISING	ServicesDesc
Compensation	$116,000	CompensationAmt

Field	Value	IRS element (for citing)
Cntrct Rcvd Greater Than100 K	1	CntrctRcvdGreaterThan100KCnt
Fundraising	$101,550	FundraisingAmt
All Other Contributions	$1,510,474	AllOtherContributionsAmt
Total Contributions	$1,612,024	TotalContributionsAmt

Investment Income InvestmentIncomeGrp

Field	Value	IRS element (for citing)
Total Revenue Column	$9,248	TotalRevenueColumnAmt
Related Or Exempt Func Income	$9,248	RelatedOrExemptFuncIncomeAmt

Gross Amount Sales Assets GrossAmountSalesAssetsGrp

Field	Value	IRS element (for citing)
Other	$872,208	OtherAmt

Less Cost Oth Basis Sales Expnss LessCostOthBasisSalesExpnssGrp

Field	Value	IRS element (for citing)
Other	$0	OtherAmt

Gain Or Loss GainOrLossGrp

Field	Value	IRS element (for citing)
Other	$872,208	OtherAmt

Net Gain Or Loss Investments NetGainOrLossInvestmentsGrp

Field	Value	IRS element (for citing)
Total Revenue Column	$872,208	TotalRevenueColumnAmt
Related Or Exempt Func Income	$872,208	RelatedOrExemptFuncIncomeAmt

Field	Value	IRS element (for citing)
Fundraising Gross Income	$3,103,339	FundraisingGrossIncomeAmt
Contri Rpt Fundraising Event	$101,550	ContriRptFundraisingEventAmt
Fundraising Direct Expenses	$783,475	FundraisingDirectExpensesAmt

Net Incm From Fundraising Evt NetIncmFromFundraisingEvtGrp

Field	Value	IRS element (for citing)
Total Revenue Column	$2,319,864	TotalRevenueColumnAmt
Exclusion	$2,319,864	ExclusionAmt

Total Revenue TotalRevenueGrp

Field	Value	IRS element (for citing)
Total Revenue Column	$4,813,344	TotalRevenueColumnAmt
Related Or Exempt Func Income	$881,456	RelatedOrExemptFuncIncomeAmt
Unrelated Business Revenue	$0	UnrelatedBusinessRevenueAmt
Exclusion	$2,319,864	ExclusionAmt

Grants To Domestic Orgs GrantsToDomesticOrgsGrp

Field	Value	IRS element (for citing)
Total	$150,000	TotalAmt
Program Services	$150,000	ProgramServicesAmt

Comp Current Ofcr Directors CompCurrentOfcrDirectorsGrp

Field	Value	IRS element (for citing)
Total	$150,000	TotalAmt
Program Services	$127,299	ProgramServicesAmt
Fundraising	$22,701	FundraisingAmt

Other Salaries And Wages OtherSalariesAndWagesGrp

Field	Value	IRS element (for citing)
Total	$1,325,992	TotalAmt
Program Services	$701,966	ProgramServicesAmt
Management And General	$268,193	ManagementAndGeneralAmt
Fundraising	$355,833	FundraisingAmt

Other Employee Benefits OtherEmployeeBenefitsGrp

Field	Value	IRS element (for citing)
Total	$68,309	TotalAmt
Program Services	$41,972	ProgramServicesAmt
Management And General	$5,239	ManagementAndGeneralAmt
Fundraising	$21,098	FundraisingAmt

Payroll Taxes PayrollTaxesGrp

Field	Value	IRS element (for citing)
Total	$90,654	TotalAmt
Program Services	$52,508	ProgramServicesAmt
Management And General	$12,861	ManagementAndGeneralAmt
Fundraising	$25,285	FundraisingAmt

Fees For Services Legal FeesForServicesLegalGrp

Field	Value	IRS element (for citing)
Total	$75,330	TotalAmt
Program Services	$9,450	ProgramServicesAmt
Management And General	$61,791	ManagementAndGeneralAmt
Fundraising	$4,089	FundraisingAmt

Fees For Services Prof Fundraising FeesForServicesProfFundraising

Field	Value	IRS element (for citing)
Total	$116,000	TotalAmt
Fundraising	$116,000	FundraisingAmt

Fees For Services Other FeesForServicesOtherGrp

Field	Value	IRS element (for citing)
Total	$32,453	TotalAmt
Program Services	$1,160	ProgramServicesAmt
Management And General	$588	ManagementAndGeneralAmt
Fundraising	$30,705	FundraisingAmt

Advertising AdvertisingGrp

Field	Value	IRS element (for citing)
Total	$54,316	TotalAmt
Program Services	$28,075	ProgramServicesAmt
Management And General	$8,206	ManagementAndGeneralAmt
Fundraising	$18,035	FundraisingAmt

Office Expenses OfficeExpensesGrp

Field	Value	IRS element (for citing)
Total	$176,617	TotalAmt
Program Services	$38,806	ProgramServicesAmt
Management And General	$122,499	ManagementAndGeneralAmt
Fundraising	$15,312	FundraisingAmt

Information Technology InformationTechnologyGrp

Field	Value	IRS element (for citing)
Total	$135,773	TotalAmt
Program Services	$62,285	ProgramServicesAmt
Management And General	$37,527	ManagementAndGeneralAmt
Fundraising	$35,961	FundraisingAmt

Occupancy OccupancyGrp

Field	Value	IRS element (for citing)
Total	$69,416	TotalAmt
Program Services	$34,480	ProgramServicesAmt
Management And General	$17,999	ManagementAndGeneralAmt
Fundraising	$16,937	FundraisingAmt

Travel TravelGrp

Field	Value	IRS element (for citing)
Total	$450,690	TotalAmt
Program Services	$350,361	ProgramServicesAmt
Management And General	$41,198	ManagementAndGeneralAmt
Fundraising	$59,131	FundraisingAmt

Insurance InsuranceGrp

Field	Value	IRS element (for citing)
Total	$11,216	TotalAmt
Program Services	$5,561	ProgramServicesAmt
Management And General	$2,613	ManagementAndGeneralAmt
Fundraising	$3,042	FundraisingAmt

Other Expenses OtherExpensesGrp (4 entries)

DescDesc	TotalTotalAmt	Program ServicesProgramServicesAmt	Management And GeneralManagementAndGeneralAmt	FundraisingFundraisingAmt
OUTSIDE SERVICES	$960,432	$813,820	$71,059	$75,553
COMMUNITY RELATIONS EXP	$323,669	$323,669
PRINTING & REPRODUCTION	$42,239	$12,671	$12,296	$17,272
PUBLIC RELATIONS	$27,735	$27,735	$0	$0

All Other Expenses AllOtherExpensesGrp

Field	Value	IRS element (for citing)
Total	$53,952	TotalAmt
Program Services	$21,502	ProgramServicesAmt
Management And General	$11,628	ManagementAndGeneralAmt
Fundraising	$20,822	FundraisingAmt

Total Functional Expenses TotalFunctionalExpensesGrp

Field	Value	IRS element (for citing)
Total	$4,314,793	TotalAmt
Program Services	$2,803,320	ProgramServicesAmt
Management And General	$673,697	ManagementAndGeneralAmt
Fundraising	$837,776	FundraisingAmt

Cash Non Interest Bearing CashNonInterestBearingGrp

Field	Value	IRS element (for citing)
BOY	$4,283,624	BOYAmt
EOY	$3,291,495	EOYAmt

Field	Value	IRS element (for citing)
Land Bldg Equip Cost Or Other Bss	$17,063	LandBldgEquipCostOrOtherBssAmt
Land Bldg Equip Accum Deprec	$17,063	LandBldgEquipAccumDeprecAmt

Land Bldg Equip Basis Net LandBldgEquipBasisNetGrp

Field	Value	IRS element (for citing)
BOY	$0	BOYAmt
EOY	$0	EOYAmt

Investments Program Related InvestmentsProgramRelatedGrp

Field	Value	IRS element (for citing)
BOY	$1,893,108	BOYAmt
EOY	$3,301,268	EOYAmt

Other Assets Total OtherAssetsTotalGrp

Field	Value	IRS element (for citing)
BOY	$19,657	BOYAmt
EOY	$204,790	EOYAmt

Total Assets TotalAssetsGrp

Field	Value	IRS element (for citing)
BOY	$6,196,389	BOYAmt
EOY	$6,797,553	EOYAmt

Deferred Revenue DeferredRevenueGrp

Field	Value	IRS element (for citing)
EOY	$51,191	EOYAmt

Other Liabilities OtherLiabilitiesGrp

Field	Value	IRS element (for citing)
BOY	$22,157	BOYAmt
EOY	$30,658	EOYAmt

Total Liabilities TotalLiabilitiesGrp

Field	Value	IRS element (for citing)
BOY	$22,157	BOYAmt
EOY	$81,849	EOYAmt

Field	Value	IRS element (for citing)
Organization Follows SFAS117	Yes (X)	OrganizationFollowsSFAS117Ind

Unrestricted Net Assets UnrestrictedNetAssetsGrp

Field	Value	IRS element (for citing)
BOY	$6,174,232	BOYAmt
EOY	$6,715,704	EOYAmt

Total Net Assets Fund Balance TotalNetAssetsFundBalanceGrp

Field	Value	IRS element (for citing)
BOY	$6,174,232	BOYAmt
EOY	$6,715,704	EOYAmt

Tot Liab Net Assets Fund Balance TotLiabNetAssetsFundBalanceGrp

Field	Value	IRS element (for citing)
BOY	$6,196,389	BOYAmt
EOY	$6,797,553	EOYAmt

Field	Value	IRS element (for citing)
Reconcilation Revenue Expnss	$498,551	ReconcilationRevenueExpnssAmt
Net Unrlzd Gains Losses Invst	$42,921	NetUnrlzdGainsLossesInvstAmt
Other Changes In Net Assets	$0	OtherChangesInNetAssetsAmt
Method Of Accounting Accrual	Yes (X)	MethodOfAccountingAccrualInd
Accountant Compile Or Review	0	AccountantCompileOrReviewInd
FS Audited	Yes (1)	FSAuditedInd

FS Audited Basis FSAuditedBasisGrp

Field	Value	IRS element (for citing)
Consol And Sep Basis Fincl Stmt	Yes (X)	ConsolAndSepBasisFinclStmtInd

Field	Value	IRS element (for citing)
Audit Committee	0	AuditCommitteeInd
Federal Grant Audit Required	0	FederalGrantAuditRequiredInd

Schedule A IRS990ScheduleA

Field	Value	IRS element (for citing)
Public Organization170	Yes (X)	PublicOrganization170Ind

Gifts Grants Contri Rcvd170 GiftsGrantsContriRcvd170Grp

Field	Value	IRS element (for citing)
Current Tax Year Minus4 Years	$1,993,544	CurrentTaxYearMinus4YearsAmt
Current Tax Year Minus3 Years	$2,457,585	CurrentTaxYearMinus3YearsAmt
Current Tax Year Minus2 Years	$2,830,597	CurrentTaxYearMinus2YearsAmt
Current Tax Year Minus1 Year	$4,084,960	CurrentTaxYearMinus1YearAmt
Current Tax Year	$4,715,363	CurrentTaxYearAmt
Total	$16,082,049	TotalAmt

Total Calendar Year170 TotalCalendarYear170Grp

Field	Value	IRS element (for citing)
Current Tax Year Minus4 Years	$1,993,544	CurrentTaxYearMinus4YearsAmt
Current Tax Year Minus3 Years	$2,457,585	CurrentTaxYearMinus3YearsAmt
Current Tax Year Minus2 Years	$2,830,597	CurrentTaxYearMinus2YearsAmt
Current Tax Year Minus1 Year	$4,084,960	CurrentTaxYearMinus1YearAmt
Current Tax Year	$4,715,363	CurrentTaxYearAmt
Total	$16,082,049	TotalAmt

Field	Value	IRS element (for citing)
Public Support Total170	$16,082,049	PublicSupportTotal170Amt

Gross Investment Income170 GrossInvestmentIncome170Grp

Field	Value	IRS element (for citing)
Current Tax Year Minus4 Years	$22,594	CurrentTaxYearMinus4YearsAmt
Current Tax Year Minus3 Years	$18,688	CurrentTaxYearMinus3YearsAmt
Current Tax Year Minus2 Years	$67,051	CurrentTaxYearMinus2YearsAmt
Current Tax Year Minus1 Year	$44,106	CurrentTaxYearMinus1YearAmt
Current Tax Year	$881,456	CurrentTaxYearAmt
Total	$1,033,895	TotalAmt

Field	Value	IRS element (for citing)
Total Support	$17,115,944	TotalSupportAmt
Public Support CY170	0.93960	PublicSupportCY170Pct
Public Support PY170	0.98610	PublicSupportPY170Pct
Thirty Thr Pct Suprt Tests CY170	Yes (X)	ThirtyThrPctSuprtTestsCY170Ind

Schedule D IRS990ScheduleD

Field	Value	IRS element (for citing)
Agent Trustee Etc	0	AgentTrusteeEtcInd
Incl Escrow Custodial Acct Liab	0	InclEscrowCustodialAcctLiabInd

Other Land Buildings OtherLandBuildingsGrp

Field	Value	IRS element (for citing)
Other Cost Or Other Basis	$17,063	OtherCostOrOtherBasisAmt
Depreciation	$17,063	DepreciationAmt
Book Value	$0	BookValueAmt

Field	Value	IRS element (for citing)
Total Book Value Land Buildings	$0	TotalBookValueLandBuildingsAmt

Invst Program Related Org InvstProgramRelatedOrgGrp

Field	Value	IRS element (for citing)
Desc	INVESTMENTS HELD	Desc
Book Value	$3,301,268	BookValueAmt
Method Valuation	F	MethodValuationCd

Field	Value	IRS element (for citing)
Total Book Value Program Rltd	$3,301,268	TotalBookValueProgramRltdAmt

Other Liabilities Org OtherLiabilitiesOrgGrp

Field	Value	IRS element (for citing)
Desc	CREDIT CARD PAYABLE	Desc
Amt	$30,658	Amt

Field	Value	IRS element (for citing)
Total Liability	$30,658	TotalLiabilityAmt
Total Rev Etc Audited Fincl Stmt	$4,856,265	TotalRevEtcAuditedFinclStmtAmt
Net Unrealized Gains Invst	$42,921	NetUnrealizedGainsInvstAmt
Revenue Not Reported	$42,921	RevenueNotReportedAmt
Revenue Subtotal	$4,813,344	RevenueSubtotalAmt
Revenue Not Reported Fincl Stmt	$0	RevenueNotReportedFinclStmtAmt
Total Revenue Per Form990	$4,813,344	TotalRevenuePerForm990Amt
Tot Expns Etc Audited Fincl Stmt	$4,314,793	TotExpnsEtcAuditedFinclStmtAmt
Expenses Not Reported	$0	ExpensesNotReportedAmt
Expenses Subtotal	$4,314,793	ExpensesSubtotalAmt
Expenses Not Rpt Fincl Stmt	$0	ExpensesNotRptFinclStmtAmt
Total Expenses Per Form990	$4,314,793	TotalExpensesPerForm990Amt

Schedule G IRS990ScheduleG

Field	Value	IRS element (for citing)
Special Fundraising Events	Yes (X)	SpecialFundraisingEventsInd
Agrmt Prof Fundraising Acty	0	AgrmtProfFundraisingActyInd

Fundraiser Activity Info FundraiserActivityInfoGrp

Organization Business Name OrganizationBusinessName

Field	Value	IRS element (for citing)
Business Name Line1	ANONYMOUS	BusinessNameLine1Txt

US Address USAddress

Field	Value	IRS element (for citing)
Address Line1	9140 IRVINE CENTER DRIVE	AddressLine1Txt
City	IRVINE	CityNm
State Abbreviation	CA	StateAbbreviationCd
ZIP	92618	ZIPCd

Field	Value	IRS element (for citing)
Activity	GOLF TOURNAMENT/ANNUAL GALA FUNDRAISING	ActivityTxt
Fundraiser Control Of Funds	0	FundraiserControlOfFundsInd
Gross Receipts	$1,430,378	GrossReceiptsAmt
Retained By Contractor	$116,000	RetainedByContractorAmt
Net To Organization	$1,314,378	NetToOrganizationAmt

Field	Value	IRS element (for citing)
Total Gross Receipts	$1,430,378	TotalGrossReceiptsAmt
Total Retained By Contractors	$116,000	TotalRetainedByContractorsAmt
Total Net To Organization	$1,314,378	TotalNetToOrganizationAmt
Licensed States	CA	LicensedStatesCd

Fundraising Event Information FundraisingEventInformationGrp

Field	Value	IRS element (for citing)
Event1	GETZLAF GOLF TOURNAMENT	Event1Nm
Gross Receipts Event1	$547,488	GrossReceiptsEvent1Amt
Charitable Contri Event1	$55,000	CharitableContriEvent1Amt
Gross Revenue Event1	$492,488	GrossRevenueEvent1Amt
Other Direct Expenses Event1	$139,492	OtherDirectExpensesEvent1Amt
Event2	FUNDRAISER-NEWPORT BEACH GALA	Event2Nm
Gross Receipts Event2	$962,000	GrossReceiptsEvent2Amt
Charitable Contri Event2	$46,550	CharitableContriEvent2Amt
Gross Revenue Event2	$915,450	GrossRevenueEvent2Amt
Other Direct Expenses Event2	$120,415	OtherDirectExpensesEvent2Amt
Other Events Total	10	OtherEventsTotalCnt
Gross Receipts Other Events	$1,695,401	GrossReceiptsOtherEventsAmt
Gross Revenue Other Events	$1,695,401	GrossRevenueOtherEventsAmt
Oth Direct Expnss Other Events	$523,568	OthDirectExpnssOtherEventsAmt
Gross Receipts Total	$3,204,889	GrossReceiptsTotalAmt
Charitable Contributions Tot	$101,550	CharitableContributionsTotAmt
Gross Revenue Total Events	$3,103,339	GrossRevenueTotalEventsAmt
Oth Direct Expnss Total Events	$783,475	OthDirectExpnssTotalEventsAmt
Direct Expense Summary Events	$783,475	DirectExpenseSummaryEventsAmt
Net Income Summary	$2,319,864	NetIncomeSummaryAmt

Supplemental Information Detail SupplementalInformationDetail

Field	Value	IRS element (for citing)
Form And Line Reference	SCHEDULE G, PART I, LINE 2B, COLUMN (V)	FormAndLineReferenceDesc
Explanation	DURING 2018, THE ORGANIZATION PAID THE FUNDRAISER $116,000. THESE PAYMENTS REPRESENT SERVICES RENDERED DURING THE FUNDRAISING EVENTS, INCLUDING ORGANIZING AND COORDINATING THE FUNCTIONS.	ExplanationTxt

Schedule I IRS990ScheduleI

Field	Value	IRS element (for citing)
Grant Records Maintained	0	GrantRecordsMaintainedInd

Recipient Table RecipientTable (2 entries)

Address Line1USAddress/AddressLine1Txt	CityUSAddress/CityNm	State AbbreviationUSAddress/StateAbbreviationCd	ZIPUSAddress/ZIPCd	Recipient EINRecipientEIN	Cash GrantCashGrantAmt	Purpose Of GrantPurposeOfGrantTxt
NATIONWIDE CHILDREN'S HOSPITAL
700 CHILDRENS DRIVE	COLUMBUS	OH	43205	311036372	$50,000	EDUCATION / OUTREACH / RESEARCH
UNIVERSITY OF TEXAS SOUTHWESTERN MEDICAL CENTER
5323 HARRY HINES BLVD	DALLAS	TX	75390		$100,000	EDUCATION / OUTREACH / RESEARCH

Schedule J IRS990ScheduleJ

Field	Value	IRS element (for citing)
Board Or Committee Approval	Yes (X)	BoardOrCommitteeApprovalInd
Severance Payment	0	SeverancePaymentInd
Supplemental Nonqual Rtr Plan	0	SupplementalNonqualRtrPlanInd
Equity Based Comp Arrngm	0	EquityBasedCompArrngmInd
Comp Based On Revenue Of Flng Org	0	CompBasedOnRevenueOfFlngOrgInd
Comp Bsd On Rev Related Orgs	0	CompBsdOnRevRelatedOrgsInd
Comp Bsd Net Earns Flng Org	0	CompBsdNetEarnsFlngOrgInd
Comp Bsd Net Earns Rltd Orgs	0	CompBsdNetEarnsRltdOrgsInd
Any Non Fixed Payments	0	AnyNonFixedPaymentsInd
Initial Contract Exception	0	InitialContractExceptionInd

Rltd Org Officer Trst Key Empl RltdOrgOfficerTrstKeyEmplGrp

Field	Value	IRS element (for citing)
Person	WILLIAM D ABERNERTY	PersonNm
Title	VICE PRESIDENT OPERATIONS	TitleTxt
Base Compensation Filing Org	$223,891	BaseCompensationFilingOrgAmt
Compensation Based On Rltd Orgs	$0	CompensationBasedOnRltdOrgsAmt
Bonus Filing Organization	$0	BonusFilingOrganizationAmount
Bonus Related Organizations	$0	BonusRelatedOrganizationsAmt
Other Compensation Filing Org	$0	OtherCompensationFilingOrgAmt
Other Compensation Rltd Orgs	$0	OtherCompensationRltdOrgsAmt
Deferred Compensation Flng Org	$0	DeferredCompensationFlngOrgAmt
Deferred Comp Rltd Orgs	$0	DeferredCompRltdOrgsAmt
Nontaxable Benefits Filing Org	$0	NontaxableBenefitsFilingOrgAmt
Nontaxable Benefits Rltd Orgs	$0	NontaxableBenefitsRltdOrgsAmt
Total Compensation Filing Org	$223,891	TotalCompensationFilingOrgAmt
Total Compensation Rltd Orgs	$0	TotalCompensationRltdOrgsAmt
Comp Report Prior990 Filing Org	$0	CompReportPrior990FilingOrgAmt
Comp Report Prior990 Rltd Orgs	$0	CompReportPrior990RltdOrgsAmt

Schedule O IRS990ScheduleO

Supplemental Information Detail SupplementalInformationDetail (5 entries)

Form And Line ReferenceFormAndLineReferenceDesc	ExplanationExplanationTxt
FORM 990, PART VI, SECTION A, LINE 2	DEBRA AND PAUL MILLER HAVE A FAMILY RELATIONSHIP.
FORM 990, PART VI, SECTION B, LINE 11B	FORM 990 WILL BE AVAILABLE TO ALL THE BOARD MEMBERS TO REVIEW PRIOR TO FILING AT THE REGULARLY SCHEDULED BOARD MEETINGS. HOWEVER, A LIMITED NUMBER OF BOARD MEMBERS WILL REVIEW THE ENTIRE FORM 990 PRIOR TO FILING.
FORM 990, PART VI, SECTION B, LINE 12C	THE BOARD OF DIRECTORS ARE REQUIRED TO REVIEW AND SIGN THE CONFLICT OF INTEREST POLICY AT LEAST ANNUALLY. THE BOARD MEMBER MUST INFORM THE REST OF THE BOARD IF A CONFLICT ARISES OR IF IT EXISTS.
FORM 990, PART VI, SECTION B, LINE 15	COMPENSATION OF TOP MANAGEMENT AND OFFICERS OF THE ORGANIZATION ARE REVIEWED BY INDEPENDENT LEGAL COUNSEL AND SUBMITTED TO THE BOARD MEMBERS FOR APPROVAL.
FORM 990, PART VI, SECTION C, LINE 19	THE ORGANZIATION'S AUDITED FINANCIAL STATEMENTS AND FORM 990 ARE AVAILABLE TO THE PUBLIC VIA THE GUIDESTAR USA INC WEBSITE.

Schedule R IRS990ScheduleR

Id Disregarded Entities IdDisregardedEntitiesGrp

Disregarded Entity Name DisregardedEntityName

Field	Value	IRS element (for citing)
Business Name Line1	CUREDUCHENNE VENTURE LLC	BusinessNameLine1Txt

US Address USAddress

Field	Value	IRS element (for citing)
Address Line1	23792 ROCKFIELD BOULEVARD SUITE 140	AddressLine1Txt
City	LAKE FOREST	CityNm
State Abbreviation	CA	StateAbbreviationCd
ZIP	92630	ZIPCd

Field	Value	IRS element (for citing)
EIN	383934145	EIN
Primary Activities	INVESTING IN RESEARCH	PrimaryActivitiesTxt
Legal Domicile State	CA	LegalDomicileStateCd

Id Related Tax Exempt Org IdRelatedTaxExemptOrgGrp

Disregarded Entity Name DisregardedEntityName

Field	Value	IRS element (for citing)
Business Name Line1	CD ACCESS	BusinessNameLine1Txt

US Address USAddress

Field	Value	IRS element (for citing)
Address Line1	23792 ROCKFIELD BLVD	AddressLine1Txt
City	LAKE FOREST	CityNm
State Abbreviation	CA	StateAbbreviationCd
ZIP	92630	ZIPCd

Field	Value	IRS element (for citing)
Primary Activities	DISTRIBUTION OF ALTERNATIVE TREATMENT AND MEDICATION TO CERTAIN INDIVIDUALS	PrimaryActivitiesTxt
Legal Domicile State	CA	LegalDomicileStateCd
Exempt Code Section	501(C)(3)	ExemptCodeSectionTxt
Public Charity Status	LINE 7	PublicCharityStatusTxt
Controlled Organization	0	ControlledOrganizationInd

Field	Value	IRS element (for citing)
Receipt Of Int Annts Rnts Rylts	0	ReceiptOfIntAnntsRntsRyltsInd
Gift Grnt Or Cap Contri To Oth Org	0	GiftGrntOrCapContriToOthOrgInd
Gift Grnt Cap Contri From Oth Org	0	GiftGrntCapContriFromOthOrgInd
Loans Or Guarantees To Other Org	0	LoansOrGuaranteesToOtherOrgInd
Loans Or Guarantees From Oth Org	0	LoansOrGuaranteesFromOthOrgInd
Div Related Organization	0	DivRelatedOrganizationInd
Asset Sale To Other Org	0	AssetSaleToOtherOrgInd
Asset Purchase From Other Org	0	AssetPurchaseFromOtherOrgInd
Asset Exchange	0	AssetExchangeInd
Rental Of Facilities To Oth Org	0	RentalOfFacilitiesToOthOrgInd
Rental Of Fclts From Oth Org	0	RentalOfFcltsFromOthOrgInd
Perform Of Services For Oth Org	0	PerformOfServicesForOthOrgInd
Perform Of Services By Other Org	0	PerformOfServicesByOtherOrgInd
Sharing Of Facilities	0	SharingOfFacilitiesInd
Paid Employees Sharing	0	PaidEmployeesSharingInd
Reimbursement Paid To Other Org	0	ReimbursementPaidToOtherOrgInd
Reimbursement Paid By Other Org	0	ReimbursementPaidByOtherOrgInd
Transfer To Other Org	0	TransferToOtherOrgInd
Transfer From Other Org	0	TransferFromOtherOrgInd