2019-08-05T11:56:26-05:00 2018-12-31 954303700 JOHN S BALISY & COMPANY 23792 ROCKFIELD BLVD STE 140 LAKE FOREST CA 92630 990 2018-01-01 200299958 CURE DUCHENNE CURE 9498722552 1400 QUAIL STREET NO 110 NEWPORT BEACH CA 92660 DEBRA MILLER PRESIDENT 9498722552 2019-07-01 JOHN S BALISY COMPANY P01385861 9495407519 104.42.55.89 2019-07-01 15:27:14 PD P B2ACE6CDA220F5DB05D3C9B537503C1558496528 B2ACE6CDA220F5DB05D3C9B537503C1558496528 2018 2019-02-21 02:37:17Z DEBRA MILLER 1400 QUAIL STREET STE 110 NEWPORT BEACH CA 92660 5596819 0 X WWW.CUREDUCHENNE.ORG X 2003 CA COORDINATING AND FUNDING RESEARCH NECESSARY TO FIND A CURE FOR DUCHENNE MUSCULAR DYSTROPHY. ALSO, IMPROVING THE CARE AND HEALTH OF DUCHENNE MUSCULAR DISTROPHY PATIENTS. 14 12 19 0 0 0 1392399 1612024 0 0 -345440 881456 1938049 2319864 2985008 4813344 100000 150000 0 0 1127397 1634955 100089 116000 837776 1264921 2413838 2592407 4314793 392601 498551 6196389 6797553 22157 81849 6174232 6715704 CURE DUCHENNE IS A NOT-FOR-PROFIT ORGANIZATION DEDICATED TO COORDINATING AND FUNDING RESEARCH NECESSARY TO FIND A CURE FOR DUCHENNE MUSCULAR DYSTROPHY, INCREASING PUBLIC AWARENESS FOR DUCHENNE MUSCULAR DYSTROPHY, AND IMPROVING THEIR CARE AND HEALTH. 0 0 2803320 150000 881456 CURE DUCHENNE WAS ORGANIZED IN 2003 WITH A MISSION TO FUND RESEARCH NECESSARY TO FIND A CURE FOR DUCHENNE MUSCULAR DYSTROPHY, AND IMPROVING THE CARE AND HEALTH OF DUCHENNE MUSCULAR DYSTROPHY PATIENTS. 2803320 1 0 0 0 0 0 0 0 0 0 1 0 1 0 1 0 1 1 0 0 0 0 0 1 1 0 0 1 0 1 0 0 0 0 0 0 0 0 0 0 0 0 1 1 0 0 0 1 80 0 19 1 0 0 0 0 0 0 0 1 0 0 0 X 14 12 1 0 0 0 0 0 0 1 1 0 0 0 1 1 1 1 1 1 1 0 CA X X DEBRA MILLER 9498722552 1400 QUAIL STREET STE 110 NEWPORT BEACH CA 92660 PAUL MILLER SECRETARY 5.00 X X 0 0 0 DEBRA MILLER PRESIDENT 40.00 X X 150000 0 0 JEFFREY GOFFMAN DIRECTOR 1.00 X 0 0 0 RON PHILIP DIRECTOR 1.00 X 0 0 0 KEVIN DORSEY DIRECTOR 1.00 X 0 0 0 RYAN WILLIAMS DIRECTOR 1.00 X 0 0 0 EVONNE SEPSIS DIRECTOR 1.00 X 0 0 0 ELAINE WU DIRECTOR 1.00 X 0 0 0 TJ FARNSWORTH DIRECTOR 1.00 X 0 0 0 MIKE HAGLIN CHAIRMAN OF THE BOARD 1.00 X 0 0 0 SARAH MCELROY DIRECTOR 1.00 X 0 0 0 MICHELLE KOLL-O'LEARY DIRECTOR 1.00 X 0 0 0 PETER STRELOW DIRECTOR 1.00 X 0 0 0 MEGHAN WOOD VP BOF BUSINESS DEVELOPMEN 40.00 X 121500 0 0 WILLIAM D ABERNERTY VICE PRESIDENT OPERATIONS 40.00 X 223891 0 0 495391 0 0 3 0 1 0 ANONYMOUS 9140 IRVINE CENTER DRIVE IRVINE CA 92618 FUNDRAISING 116000 1 101550 1510474 1612024 9248 9248 872208 0 872208 872208 872208 3103339 101550 783475 2319864 2319864 4813344 881456 0 2319864 150000 150000 150000 127299 22701 1325992 701966 268193 355833 68309 41972 5239 21098 90654 52508 12861 25285 75330 9450 61791 4089 116000 116000 32453 1160 588 30705 54316 28075 8206 18035 176617 38806 122499 15312 135773 62285 37527 35961 69416 34480 17999 16937 450690 350361 41198 59131 11216 5561 2613 3042 OUTSIDE SERVICES 960432 813820 71059 75553 COMMUNITY RELATIONS EXP 323669 323669 PRINTING & REPRODUCTION 42239 12671 12296 17272 PUBLIC RELATIONS 27735 27735 0 0 53952 21502 11628 20822 4314793 2803320 673697 837776 4283624 3291495 17063 17063 0 0 1893108 3301268 19657 204790 6196389 6797553 51191 22157 30658 22157 81849 X 6174232 6715704 6174232 6715704 6196389 6797553 498551 42921 0 X 0 1 X 0 0 X 1993544 2457585 2830597 4084960 4715363 16082049 1993544 2457585 2830597 4084960 4715363 16082049 16082049 22594 18688 67051 44106 881456 1033895 17115944 0.93960 0.98610 X 0 0 17063 17063 0 0 INVESTMENTS HELD 3301268 F 3301268 CREDIT CARD PAYABLE 30658 30658 4856265 42921 42921 4813344 0 4813344 4314793 0 4314793 0 4314793 X 0 ANONYMOUS 9140 IRVINE CENTER DRIVE IRVINE CA 92618 GOLF TOURNAMENT/ANNUAL GALA FUNDRAISING 0 1430378 116000 1314378 1430378 116000 1314378 CA GETZLAF GOLF TOURNAMENT 547488 55000 492488 139492 FUNDRAISER-NEWPORT BEACH GALA 962000 46550 915450 120415 10 1695401 1695401 523568 3204889 101550 3103339 783475 783475 2319864 SCHEDULE G, PART I, LINE 2B, COLUMN (V) DURING 2018, THE ORGANIZATION PAID THE FUNDRAISER $116,000. THESE PAYMENTS REPRESENT SERVICES RENDERED DURING THE FUNDRAISING EVENTS, INCLUDING ORGANIZING AND COORDINATING THE FUNCTIONS. 0 NATIONWIDE CHILDREN'S HOSPITAL 700 CHILDRENS DRIVE COLUMBUS OH 43205 311036372 50000 EDUCATION / OUTREACH / RESEARCH UNIVERSITY OF TEXAS SOUTHWESTERN MEDICAL CENTER 5323 HARRY HINES BLVD DALLAS TX 75390 100000 EDUCATION / OUTREACH / RESEARCH X 0 0 0 0 0 0 0 0 0 WILLIAM D ABERNERTY VICE PRESIDENT OPERATIONS 223891 0 0 0 0 0 0 0 0 0 223891 0 0 0 FORM 990, PART VI, SECTION A, LINE 2 DEBRA AND PAUL MILLER HAVE A FAMILY RELATIONSHIP. FORM 990, PART VI, SECTION B, LINE 11B FORM 990 WILL BE AVAILABLE TO ALL THE BOARD MEMBERS TO REVIEW PRIOR TO FILING AT THE REGULARLY SCHEDULED BOARD MEETINGS. HOWEVER, A LIMITED NUMBER OF BOARD MEMBERS WILL REVIEW THE ENTIRE FORM 990 PRIOR TO FILING. FORM 990, PART VI, SECTION B, LINE 12C THE BOARD OF DIRECTORS ARE REQUIRED TO REVIEW AND SIGN THE CONFLICT OF INTEREST POLICY AT LEAST ANNUALLY. THE BOARD MEMBER MUST INFORM THE REST OF THE BOARD IF A CONFLICT ARISES OR IF IT EXISTS. FORM 990, PART VI, SECTION B, LINE 15 COMPENSATION OF TOP MANAGEMENT AND OFFICERS OF THE ORGANIZATION ARE REVIEWED BY INDEPENDENT LEGAL COUNSEL AND SUBMITTED TO THE BOARD MEMBERS FOR APPROVAL. FORM 990, PART VI, SECTION C, LINE 19 THE ORGANZIATION'S AUDITED FINANCIAL STATEMENTS AND FORM 990 ARE AVAILABLE TO THE PUBLIC VIA THE GUIDESTAR USA INC WEBSITE. CUREDUCHENNE VENTURE LLC 23792 ROCKFIELD BOULEVARD SUITE 140 LAKE FOREST CA 92630 383934145 INVESTING IN RESEARCH CA CD ACCESS 23792 ROCKFIELD BLVD LAKE FOREST CA 92630 DISTRIBUTION OF ALTERNATIVE TREATMENT AND MEDICATION TO CERTAIN INDIVIDUALS CA 501(C)(3) LINE 7 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0