CURE DUCHENNE: Form 990, tax year 2019

View the entire original 990 at ProPublica ↗

Organization
CURE DUCHENNE (EIN 20-0299958)
Tax period
2019-01-01 to 2019-12-31
Filed
2020-11-16
IRS object ID
202043219349308689
Schema version
2019v5.1
Source
Download XML · Original 990 at ProPublica

Every field in the e-filed return. Faint text is the IRS element name, for citing.

Return header ReturnHeader

FieldValueIRS element (for citing)
Return2020-11-16T11:51:20-06:00ReturnTs
Tax Period End2019-12-31TaxPeriodEndDt

Preparer Firm PreparerFirmGrp

FieldValueIRS element (for citing)
Preparer Firm EIN954303700PreparerFirmEIN

Preparer Firm Name PreparerFirmName

FieldValueIRS element (for citing)
Business Name Line1JOHN S BALISY & COMPANYBusinessNameLine1Txt

Preparer US Address PreparerUSAddress

FieldValueIRS element (for citing)
Address Line124000 ALICIA PARKWAY 17 STE 466AddressLine1Txt
CityMISSION VIEJOCityNm
State AbbreviationCAStateAbbreviationCd
ZIP92691ZIPCd
FieldValueIRS element (for citing)
Return Type990ReturnTypeCd
Tax Period Begin2019-01-01TaxPeriodBeginDt

Filer Filer

FieldValueIRS element (for citing)
EIN200299958EIN

Business Name BusinessName

FieldValueIRS element (for citing)
Business Name Line1CURE DUCHENNEBusinessNameLine1Txt
FieldValueIRS element (for citing)
Business Name ControlCUREBusinessNameControlTxt
Phone9498722552PhoneNum

US Address USAddress

FieldValueIRS element (for citing)
Address Line11400 QUAIL STREET NO 110AddressLine1Txt
CityNEWPORT BEACHCityNm
State AbbreviationCAStateAbbreviationCd
ZIP92660ZIPCd

Business Officer BusinessOfficerGrp

FieldValueIRS element (for citing)
PersonDEBRA MILLERPersonNm
Person TitlePRESIDENTPersonTitleTxt
Phone9498722552PhoneNum
Signature2020-11-12SignatureDt

Preparer Person PreparerPersonGrp

FieldValueIRS element (for citing)
Preparer PersonJOHN S BALISY COMPANYPreparerPersonNm
PTINP01385861PTIN
Phone9495407519PhoneNum
FieldValueIRS element (for citing)
Tax2019TaxYr
Build TS2022-09-23 18:48:47ZBuildTS

Form 990 IRS990

FieldValueIRS element (for citing)
Principal OfficerDEBRA MILLERPrincipalOfficerNm

US Address USAddress

FieldValueIRS element (for citing)
Address Line11400 QUAIL STREET STE 110AddressLine1Txt
CityNEWPORT BEACHCityNm
State AbbreviationCAStateAbbreviationCd
ZIP92660ZIPCd
FieldValueIRS element (for citing)
Gross Receipts$30,601,249GrossReceiptsAmt
Group Return For Affiliates0GroupReturnForAffiliatesInd
Organization501c3Yes (X)Organization501c3Ind
Website AddressWWW.CUREDUCHENNE.ORGWebsiteAddressTxt
Type Of Organization CorpYes (X)TypeOfOrganizationCorpInd
Formation2003FormationYr
Legal Domicile StateCALegalDomicileStateCd
Activity Or MissionCOORDINATING AND FUNDING RESEARCH NECESSARY TO FIND A CURE FOR DUCHENNE MUSCULAR DYSTROPHY. ALSO, IMPROVING THE CARE AND HEALTH OF DUCHENNE MUSCULAR DISTROPHY PATIENTS.ActivityOrMissionDesc
Voting Members Governing Body12VotingMembersGoverningBodyCnt
Voting Members Independent10VotingMembersIndependentCnt
Total Employee28TotalEmployeeCnt
Total Volunteers0TotalVolunteersCnt
Total Gross UBI$0TotalGrossUBIAmt
Net Unrelated Bus Txbl Incm$0NetUnrelatedBusTxblIncmAmt
PY Contributions Grants$1,612,024PYContributionsGrantsAmt
CY Contributions Grants$2,509,935CYContributionsGrantsAmt
PY Program Service Revenue$0PYProgramServiceRevenueAmt
CY Program Service Revenue$0CYProgramServiceRevenueAmt
PY Investment Income$881,456PYInvestmentIncomeAmt
CY Investment Income$23,831,692CYInvestmentIncomeAmt
PY Other Revenue$2,319,864PYOtherRevenueAmt
CY Other Revenue$1,178,727CYOtherRevenueAmt
PY Total Revenue$4,813,344PYTotalRevenueAmt
CY Total Revenue$27,520,354CYTotalRevenueAmt
PY Grants And Similar Paid$150,000PYGrantsAndSimilarPaidAmt
CY Grants And Similar Paid$55,000CYGrantsAndSimilarPaidAmt
PY Benefits Paid To Members$0PYBenefitsPaidToMembersAmt
CY Benefits Paid To Members$0CYBenefitsPaidToMembersAmt
PY Salaries Comp Emp Bnft Paid$1,634,955PYSalariesCompEmpBnftPaidAmt
CY Salaries Comp Emp Bnft Paid$2,410,746CYSalariesCompEmpBnftPaidAmt
PY Total Prof Fndrsng Expns$116,000PYTotalProfFndrsngExpnsAmt
CY Total Prof Fndrsng Expns$146,000CYTotalProfFndrsngExpnsAmt
CY Total Fundraising Expense$1,165,196CYTotalFundraisingExpenseAmt
PY Other Expenses$2,413,838PYOtherExpensesAmt
CY Other Expenses$2,366,311CYOtherExpensesAmt
PY Total Expenses$4,314,793PYTotalExpensesAmt
CY Total Expenses$4,978,057CYTotalExpensesAmt
PY Revenues Less Expenses$498,551PYRevenuesLessExpensesAmt
CY Revenues Less Expenses$22,542,297CYRevenuesLessExpensesAmt
Total Assets BOY$6,797,553TotalAssetsBOYAmt
Total Assets EOY$29,774,719TotalAssetsEOYAmt
Total Liabilities BOY$81,849TotalLiabilitiesBOYAmt
Total Liabilities EOY$558,721TotalLiabilitiesEOYAmt
Net Assets Or Fund Balances BOY$6,715,704NetAssetsOrFundBalancesBOYAmt
Net Assets Or Fund Balances EOY$29,215,998NetAssetsOrFundBalancesEOYAmt
MissionCURE DUCHENNE IS A NON-PROFIT ORGANIZATION DEDICATED TO COORDINATING AND FUNDING RESEARCH NECESSARY TO FIND A CURE FOR DUCHENNE MUSCULAR DYSTROPHY, INCREASING PUBLIC AWARENESS FOR DUCHENNE MUSCULAR DYSTROPHY,AND IMPROVING CARE, HEALTH,AND QUAILITY OF LIVING.MissionDesc
Significant New Program Srvc0SignificantNewProgramSrvcInd
Significant Change0SignificantChangeInd
Expense$2,960,097ExpenseAmt
Grant$55,000GrantAmt
Revenue$23,859,107RevenueAmt
DescCURE DUCHENNE WAS ORGANIZED IN 2003 WITH THE MISSION TO FUND RESEARCH NECESSARY TO FIND A CURE FOR DUCHENNE MUSCULAR DYSTROPHY, AND IMPROVING THE CARE AND HEALTH OF DUCHENNE MUSCULAR DYSTROPHY PATIENTS.Desc
Total Program Service Expenses$2,960,097TotalProgramServiceExpensesAmt
Described In Section501c3Yes (1)DescribedInSection501c3Ind
Schedule B RequiredYes (1)ScheduleBRequiredInd
Political Campaign Acty0PoliticalCampaignActyInd
Lobbying Activities0LobbyingActivitiesInd
Subject To Proxy Tax0SubjectToProxyTaxInd
Donor Advised Fund0DonorAdvisedFundInd
Conservation Easements0ConservationEasementsInd
Collections Of Art0CollectionsOfArtInd
Credit Counseling0CreditCounselingInd
Donor Rstr Or Quasi Endowments0DonorRstrOrQuasiEndowmentsInd
Report Land Building EquipmentYes (1)ReportLandBuildingEquipmentInd
Report Investments Other Sec0ReportInvestmentsOtherSecInd
Report Program Related InvstYes (1)ReportProgramRelatedInvstInd
Report Other Assets0ReportOtherAssetsInd
Report Other LiabilitiesYes (1)ReportOtherLiabilitiesInd
Include FIN48 Footnote0IncludeFIN48FootnoteInd
Independent Audit Fincl Stmt0IndependentAuditFinclStmtInd
Consolidated Audit Fincl Stmt0ConsolidatedAuditFinclStmtInd
School Operating0SchoolOperatingInd
Foreign Office0ForeignOfficeInd
Foreign Activities0ForeignActivitiesInd
More Than5000 K To Org0MoreThan5000KToOrgInd
More Than5000 K To Individuals0MoreThan5000KToIndividualsInd
Professional FundraisingYes (1)ProfessionalFundraisingInd
Fundraising ActivitiesYes (1)FundraisingActivitiesInd
Gaming Activities0GamingActivitiesInd
Operate Hospital0OperateHospitalInd
Grants To OrganizationsYes (1)GrantsToOrganizationsInd
Grants To Individuals0GrantsToIndividualsInd
Schedule J RequiredYes (1)ScheduleJRequiredInd
Tax Exempt Bonds0TaxExemptBondsInd
Engaged In Excess Benefit Trans0EngagedInExcessBenefitTransInd
PY Excess Benefit Trans0PYExcessBenefitTransInd
Loan Outstanding0LoanOutstandingInd
Grant To Related Person0GrantToRelatedPersonInd
Business Rln With Org Mem0BusinessRlnWithOrgMemInd
Business Rln With Fam Mem0BusinessRlnWithFamMemInd
Business Rln With35 Ctrl Ent0BusinessRlnWith35CtrlEntInd
Deductible Non Cash Contri0DeductibleNonCashContriInd
Deductible Art Contribution0DeductibleArtContributionInd
Terminate Operations0TerminateOperationsInd
Partial Liquidation0PartialLiquidationInd
Disregarded EntityYes (1)DisregardedEntityInd
Related EntityYes (1)RelatedEntityInd
Related Organization Ctrl Ent0RelatedOrganizationCtrlEntInd
Trnsfr Exmpt Non Chrtbl Rltd Org0TrnsfrExmptNonChrtblRltdOrgInd
Activities Conducted Prtshp0ActivitiesConductedPrtshpInd
Schedule O RequiredYes (1)ScheduleORequiredInd
IRP Document56IRPDocumentCnt
IRP Document W2 G0IRPDocumentW2GCnt
Backup Wthld ComplianceYes (1)BackupWthldComplianceInd
Employee28EmployeeCnt
Employment Tax Returns FiledYes (1)EmploymentTaxReturnsFiledInd
Unrelated Bus Incm Over Limit0UnrelatedBusIncmOverLimitInd
Foreign Financial Account0ForeignFinancialAccountInd
Prohibited Tax Shelter Trans0ProhibitedTaxShelterTransInd
Taxable Party Notification0TaxablePartyNotificationInd
Nondeductible Contributions0NondeductibleContributionsInd
Quid Pro Quo Contributions0QuidProQuoContributionsInd
Form8282 Property Disposed Of0Form8282PropertyDisposedOfInd
Indoor Tanning Services0IndoorTanningServicesInd
Subj To Tax Rmnrtn Ex Prcht Pymt0SubjToTaxRmnrtnExPrchtPymtInd
Subject To Excs Tax Net Invst Inc0SubjectToExcsTaxNetInvstIncInd
Info In Schedule O Part VIYes (X)InfoInScheduleOPartVIInd
Governing Body Voting Members12GoverningBodyVotingMembersCnt
Independent Voting Member10IndependentVotingMemberCnt
Family Or Business RlnYes (1)FamilyOrBusinessRlnInd
Delegation Of Mgmt Duties0DelegationOfMgmtDutiesInd
Change To Org Documents0ChangeToOrgDocumentsInd
Material Diversion Or Misuse0MaterialDiversionOrMisuseInd
Members Or Stockholders0MembersOrStockholdersInd
Election Of Board Members0ElectionOfBoardMembersInd
Decisions Subject To Approva0DecisionsSubjectToApprovaInd
Minutes Of Governing BodyYes (1)MinutesOfGoverningBodyInd
Minutes Of CommitteesYes (1)MinutesOfCommitteesInd
Officer Mailing Address0OfficerMailingAddressInd
Local Chapters0LocalChaptersInd
Form990 Provided To Gvrn Body0Form990ProvidedToGvrnBodyInd
Conflict Of Interest PolicyYes (1)ConflictOfInterestPolicyInd
Annual Disclosure Covered PrsnYes (1)AnnualDisclosureCoveredPrsnInd
Regular Monitoring EnfrcYes (1)RegularMonitoringEnfrcInd
Whistleblower PolicyYes (1)WhistleblowerPolicyInd
Document Retention PolicyYes (1)DocumentRetentionPolicyInd
Compensation Process CEOYes (1)CompensationProcessCEOInd
Compensation Process OtherYes (1)CompensationProcessOtherInd
Investment In Joint Venture0InvestmentInJointVentureInd
States Where Copy Of Return Is FldCAStatesWhereCopyOfReturnIsFldCd
States Where Copy Of Return Is FldMAStatesWhereCopyOfReturnIsFldCd
States Where Copy Of Return Is FldTNStatesWhereCopyOfReturnIsFldCd
States Where Copy Of Return Is FldWIStatesWhereCopyOfReturnIsFldCd
Other WebsiteYes (X)OtherWebsiteInd
Upon RequestYes (X)UponRequestInd

Books In Care Of Detail BooksInCareOfDetail

Business Name BusinessName

FieldValueIRS element (for citing)
Business Name Line1DEBRA MILLERBusinessNameLine1Txt
FieldValueIRS element (for citing)
Phone9498722552PhoneNum

US Address USAddress

FieldValueIRS element (for citing)
Address Line11400 QUAIL STREET STE 110AddressLine1Txt
CityNEWPORT BEACHCityNm
State AbbreviationCAStateAbbreviationCd
ZIP92660ZIPCd

Form990 Part VII Section A Form990PartVIISectionAGrp (12 entries)

TitleTitleTxtAverage Hours Per WeekAverageHoursPerWeekRtIndividual Trustee Or DirectorIndividualTrusteeOrDirectorIndOfficerOfficerIndReportable Comp From OrgReportableCompFromOrgAmtReportable Comp From Rltd OrgReportableCompFromRltdOrgAmtOther CompensationOtherCompensationAmt
PAUL MILLER
SECRETARY10.00Yes (X)Yes (X)$0$0$0
DEBRA MILLER
PRESIDENT40.00Yes (X)Yes (X)$168,304$0$0
JEFFREY GOFFMAN
DIRECTOR1.00Yes (X)$0$0$0
PETER STRELOW
DIRECTOR1.00Yes (X)$0$0$0
KEVIN DORSEY
DIRECTOR1.00Yes (X)$0$0$0
RYAN WILLIAMS
DIRECTOR1.00Yes (X)$0$0$0
MARTIN LEHR
DIRECTOR1.00Yes (X)$0$0$0
ELAINE WU
DIRECTOR1.00Yes (X)$0$0$0
TJ FARNSWORTH
DIRECTOR1.00Yes (X)$0$0$0
MIKE HAGLIN
CHAIRMAN OF THE BOARD1.00Yes (X)$0$0$0
SARAH MCELROY
DIRECTOR1.00Yes (X)$0$0$0
TIM SULLIVAN
DIRECTOR1.00Yes (X)$0$0$0
FieldValueIRS element (for citing)
Total Reportable Comp From Org$168,304TotalReportableCompFromOrgAmt
Tot Reportable Comp Rltd Org$0TotReportableCompRltdOrgAmt
Total Other Compensation$0TotalOtherCompensationAmt
Indiv Rcvd Greater Than100 K5IndivRcvdGreaterThan100KCnt
Former Ofcr Employees Listed0FormerOfcrEmployeesListedInd
Total Comp Greater Than150 KYes (1)TotalCompGreaterThan150KInd
Compensation From Other Srcs0CompensationFromOtherSrcsInd

Contractor Compensation ContractorCompensationGrp

Contractor Name ContractorName

Business Name BusinessName

FieldValueIRS element (for citing)
Business Name Line1ANONYMOUSBusinessNameLine1Txt

Contractor Address ContractorAddress

US Address USAddress

FieldValueIRS element (for citing)
Address Line19140 IRVINE CENTER DRIVEAddressLine1Txt
CityIRVINECityNm
State AbbreviationCAStateAbbreviationCd
ZIP92618ZIPCd
FieldValueIRS element (for citing)
ServicesFUNDRAISINGServicesDesc
Compensation$146,000CompensationAmt
FieldValueIRS element (for citing)
Cntrct Rcvd Greater Than100 K1CntrctRcvdGreaterThan100KCnt
Fundraising$1,248,596FundraisingAmt
All Other Contributions$1,261,339AllOtherContributionsAmt
Total Contributions$2,509,935TotalContributionsAmt

Investment Income InvestmentIncomeGrp

FieldValueIRS element (for citing)
Total Revenue Column$29,871TotalRevenueColumnAmt
Related Or Exempt Func Income$29,871RelatedOrExemptFuncIncomeAmt

Gross Amount Sales Assets GrossAmountSalesAssetsGrp

FieldValueIRS element (for citing)
Securities$94,695SecuritiesAmt
Other$25,077,760OtherAmt

Less Cost Oth Basis Sales Expnss LessCostOthBasisSalesExpnssGrp

FieldValueIRS element (for citing)
Securities$145,799SecuritiesAmt
Other$1,224,835OtherAmt

Gain Or Loss GainOrLossGrp

FieldValueIRS element (for citing)
Securities-$51,104SecuritiesAmt
Other$23,852,925OtherAmt

Net Gain Or Loss Investments NetGainOrLossInvestmentsGrp

FieldValueIRS element (for citing)
Total Revenue Column$23,801,821TotalRevenueColumnAmt
Related Or Exempt Func Income$23,801,821RelatedOrExemptFuncIncomeAmt
FieldValueIRS element (for citing)
Fundraising Gross Income$2,861,573FundraisingGrossIncomeAmt
Contri Rpt Fundraising Event$1,248,596ContriRptFundraisingEventAmt
Fundraising Direct Expenses$1,710,261FundraisingDirectExpensesAmt

Net Incm From Fundraising Evt NetIncmFromFundraisingEvtGrp

FieldValueIRS element (for citing)
Total Revenue Column$1,151,312TotalRevenueColumnAmt
Exclusion$1,151,312ExclusionAmt

Other Revenue Misc OtherRevenueMiscGrp

FieldValueIRS element (for citing)
DescTRINDS LLC INCOMEDesc
Business541700BusinessCd
Total Revenue Column$27,415TotalRevenueColumnAmt
Related Or Exempt Func Income$27,415RelatedOrExemptFuncIncomeAmt
FieldValueIRS element (for citing)
Other Revenue Total$27,415OtherRevenueTotalAmt

Total Revenue TotalRevenueGrp

FieldValueIRS element (for citing)
Total Revenue Column$27,520,354TotalRevenueColumnAmt
Related Or Exempt Func Income$23,859,107RelatedOrExemptFuncIncomeAmt
Unrelated Business Revenue$0UnrelatedBusinessRevenueAmt
Exclusion$1,151,312ExclusionAmt

Grants To Domestic Orgs GrantsToDomesticOrgsGrp

FieldValueIRS element (for citing)
Total$55,000TotalAmt
Program Services$55,000ProgramServicesAmt

Comp Current Ofcr Directors CompCurrentOfcrDirectorsGrp

FieldValueIRS element (for citing)
Total$701,398TotalAmt
Program Services$471,531ProgramServicesAmt
Management And General$6,339ManagementAndGeneralAmt
Fundraising$223,528FundraisingAmt

Other Salaries And Wages OtherSalariesAndWagesGrp

FieldValueIRS element (for citing)
Total$1,444,698TotalAmt
Program Services$669,242ProgramServicesAmt
Management And General$445,891ManagementAndGeneralAmt
Fundraising$329,565FundraisingAmt

Other Employee Benefits OtherEmployeeBenefitsGrp

FieldValueIRS element (for citing)
Total$109,879TotalAmt
Program Services$73,869ProgramServicesAmt
Management And General$4,866ManagementAndGeneralAmt
Fundraising$31,144FundraisingAmt

Payroll Taxes PayrollTaxesGrp

FieldValueIRS element (for citing)
Total$154,771TotalAmt
Program Services$100,916ProgramServicesAmt
Management And General$4,950ManagementAndGeneralAmt
Fundraising$48,905FundraisingAmt

Fees For Services Legal FeesForServicesLegalGrp

FieldValueIRS element (for citing)
Total$97,263TotalAmt
Program Services$32,214ProgramServicesAmt
Management And General$56,062ManagementAndGeneralAmt
Fundraising$8,987FundraisingAmt

Fees For Services Prof Fundraising FeesForServicesProfFundraising

FieldValueIRS element (for citing)
Total$146,000TotalAmt
Fundraising$146,000FundraisingAmt

Fees For Services Other FeesForServicesOtherGrp

FieldValueIRS element (for citing)
Total$62,526TotalAmt
Program Services$3,190ProgramServicesAmt
Management And General$1,245ManagementAndGeneralAmt
Fundraising$58,091FundraisingAmt

Advertising AdvertisingGrp

FieldValueIRS element (for citing)
Total$59,173TotalAmt
Program Services$30,205ProgramServicesAmt
Management And General$10,449ManagementAndGeneralAmt
Fundraising$18,519FundraisingAmt

Office Expenses OfficeExpensesGrp

FieldValueIRS element (for citing)
Total$159,212TotalAmt
Program Services$48,299ProgramServicesAmt
Management And General$96,008ManagementAndGeneralAmt
Fundraising$14,905FundraisingAmt

Information Technology InformationTechnologyGrp

FieldValueIRS element (for citing)
Total$119,234TotalAmt
Program Services$100,576ProgramServicesAmt
Management And General$15,325ManagementAndGeneralAmt
Fundraising$3,333FundraisingAmt

Occupancy OccupancyGrp

FieldValueIRS element (for citing)
Total$116,044TotalAmt
Program Services$90,209ProgramServicesAmt
Management And General$7,832ManagementAndGeneralAmt
Fundraising$18,003FundraisingAmt

Travel TravelGrp

FieldValueIRS element (for citing)
Total$417,363TotalAmt
Program Services$249,590ProgramServicesAmt
Management And General$71,944ManagementAndGeneralAmt
Fundraising$95,829FundraisingAmt

Insurance InsuranceGrp

FieldValueIRS element (for citing)
Total$24,221TotalAmt
Program Services$15,669ProgramServicesAmt
Management And General$1,630ManagementAndGeneralAmt
Fundraising$6,922FundraisingAmt

Other Expenses OtherExpensesGrp (4 entries)

DescDescTotalTotalAmtProgram ServicesProgramServicesAmtManagement And GeneralManagementAndGeneralAmtFundraisingFundraisingAmt
OUTSIDE SERVICES$971,652$768,210$86,763$116,679
COMMUNITY RELATIONS EXP$141,495$141,495
DUES & SUBSCRIPTIONS$64,856$33,211$15,558$16,087
PRINTING & REPRODUCTION$50,484$24,884$5,941$19,659

All Other Expenses AllOtherExpensesGrp

FieldValueIRS element (for citing)
Total$82,788TotalAmt
Program Services$51,787ProgramServicesAmt
Management And General$21,961ManagementAndGeneralAmt
Fundraising$9,040FundraisingAmt

Total Functional Expenses TotalFunctionalExpensesGrp

FieldValueIRS element (for citing)
Total$4,978,057TotalAmt
Program Services$2,960,097ProgramServicesAmt
Management And General$852,764ManagementAndGeneralAmt
Fundraising$1,165,196FundraisingAmt

Cash Non Interest Bearing CashNonInterestBearingGrp

FieldValueIRS element (for citing)
BOY$3,291,495BOYAmt
EOY$24,556,650EOYAmt
FieldValueIRS element (for citing)
Land Bldg Equip Cost Or Other Bss$17,063LandBldgEquipCostOrOtherBssAmt
Land Bldg Equip Accum Deprec$17,063LandBldgEquipAccumDeprecAmt

Land Bldg Equip Basis Net LandBldgEquipBasisNetGrp

FieldValueIRS element (for citing)
BOY$0BOYAmt
EOY$0EOYAmt

Investments Program Related InvestmentsProgramRelatedGrp

FieldValueIRS element (for citing)
BOY$3,301,268BOYAmt
EOY$4,969,176EOYAmt

Other Assets Total OtherAssetsTotalGrp

FieldValueIRS element (for citing)
BOY$204,790BOYAmt
EOY$248,893EOYAmt

Total Assets TotalAssetsGrp

FieldValueIRS element (for citing)
BOY$6,797,553BOYAmt
EOY$29,774,719EOYAmt

Accounts Payable Accr Expnss AccountsPayableAccrExpnssGrp

FieldValueIRS element (for citing)
EOY$60,170EOYAmt

Deferred Revenue DeferredRevenueGrp

FieldValueIRS element (for citing)
BOY$51,191BOYAmt
EOY$149,100EOYAmt

Other Liabilities OtherLiabilitiesGrp

FieldValueIRS element (for citing)
BOY$30,658BOYAmt
EOY$349,451EOYAmt

Total Liabilities TotalLiabilitiesGrp

FieldValueIRS element (for citing)
BOY$81,849BOYAmt
EOY$558,721EOYAmt
FieldValueIRS element (for citing)
Organization Follows FASB117Yes (X)OrganizationFollowsFASB117Ind

No Donor Restriction Net Assets NoDonorRestrictionNetAssetsGrp

FieldValueIRS element (for citing)
BOY$6,715,704BOYAmt
EOY$29,215,998EOYAmt

Total Net Assets Fund Balance TotalNetAssetsFundBalanceGrp

FieldValueIRS element (for citing)
BOY$6,715,704BOYAmt
EOY$29,215,998EOYAmt

Tot Liab Net Assets Fund Balance TotLiabNetAssetsFundBalanceGrp

FieldValueIRS element (for citing)
BOY$6,797,553BOYAmt
EOY$29,774,719EOYAmt
FieldValueIRS element (for citing)
Reconcilation Revenue Expnss$22,542,297ReconcilationRevenueExpnssAmt
Net Unrlzd Gains Losses Invst-$42,003NetUnrlzdGainsLossesInvstAmt
Other Changes In Net Assets$0OtherChangesInNetAssetsAmt
Method Of Accounting AccrualYes (X)MethodOfAccountingAccrualInd
Accountant Compile Or Review0AccountantCompileOrReviewInd
FS AuditedYes (1)FSAuditedInd

FS Audited Basis FSAuditedBasisGrp

FieldValueIRS element (for citing)
Consol And Sep Basis Fincl StmtYes (X)ConsolAndSepBasisFinclStmtInd
FieldValueIRS element (for citing)
Audit Committee0AuditCommitteeInd
Federal Grant Audit Required0FederalGrantAuditRequiredInd

Schedule A IRS990ScheduleA

FieldValueIRS element (for citing)
Public Organization170Yes (X)PublicOrganization170Ind

Gifts Grants Contri Rcvd170 GiftsGrantsContriRcvd170Grp

FieldValueIRS element (for citing)
Current Tax Year Minus4 Years$2,457,585CurrentTaxYearMinus4YearsAmt
Current Tax Year Minus3 Years$2,830,597CurrentTaxYearMinus3YearsAmt
Current Tax Year Minus2 Years$4,084,960CurrentTaxYearMinus2YearsAmt
Current Tax Year Minus1 Year$4,715,363CurrentTaxYearMinus1YearAmt
Current Tax Year$5,323,906CurrentTaxYearAmt
Total$19,412,411TotalAmt

Total Calendar Year170 TotalCalendarYear170Grp

FieldValueIRS element (for citing)
Current Tax Year Minus4 Years$2,457,585CurrentTaxYearMinus4YearsAmt
Current Tax Year Minus3 Years$2,830,597CurrentTaxYearMinus3YearsAmt
Current Tax Year Minus2 Years$4,084,960CurrentTaxYearMinus2YearsAmt
Current Tax Year Minus1 Year$4,715,363CurrentTaxYearMinus1YearAmt
Current Tax Year$5,323,906CurrentTaxYearAmt
Total$19,412,411TotalAmt
FieldValueIRS element (for citing)
Public Support Total170$19,412,411PublicSupportTotal170Amt

Gross Investment Income170 GrossInvestmentIncome170Grp

FieldValueIRS element (for citing)
Current Tax Year Minus4 Years$18,688CurrentTaxYearMinus4YearsAmt
Current Tax Year Minus3 Years$67,051CurrentTaxYearMinus3YearsAmt
Current Tax Year Minus2 Years$44,106CurrentTaxYearMinus2YearsAmt
Current Tax Year Minus1 Year$9,248CurrentTaxYearMinus1YearAmt
Current Tax Year$29,844CurrentTaxYearAmt
Total$168,937TotalAmt
FieldValueIRS element (for citing)
Total Support$19,581,348TotalSupportAmt
Gross Receipts Rltd Activities$26,119,707GrossReceiptsRltdActivitiesAmt
Public Support CY1700.99140PublicSupportCY170Pct
Public Support PY1700.93960PublicSupportPY170Pct
Thirty Thr Pct Suprt Tests CY170Yes (X)ThirtyThrPctSuprtTestsCY170Ind

Schedule B IRS990ScheduleB

Contributor Information ContributorInformationGrp

FieldValueIRS element (for citing)
ContributorRESTRICTEDContributorNum

Contributor Business Name ContributorBusinessName

FieldValueIRS element (for citing)
Business Name Line1RESTRICTEDBusinessNameLine1

Contributor US Address ContributorUSAddress

FieldValueIRS element (for citing)
Address Line1RESTRICTEDAddressLine1
Address Line2RESTRICTEDAddressLine2
CityRESTRICTEDCity
StateRESTRICTEDState
ZIP CodeRESTRICTEDZIPCode
FieldValueIRS element (for citing)
Total ContributionsRESTRICTEDTotalContributionsAmt

Schedule D IRS990ScheduleD

FieldValueIRS element (for citing)
Agent Trustee Etc0AgentTrusteeEtcInd
Incl Escrow Custodial Acct Liab0InclEscrowCustodialAcctLiabInd

Other Land Buildings OtherLandBuildingsGrp

FieldValueIRS element (for citing)
Other Cost Or Other Basis$17,063OtherCostOrOtherBasisAmt
Depreciation$17,063DepreciationAmt
Book Value$0BookValueAmt
FieldValueIRS element (for citing)
Total Book Value Land Buildings$0TotalBookValueLandBuildingsAmt

Invst Program Related Org InvstProgramRelatedOrgGrp

FieldValueIRS element (for citing)
DescINVESTMENTS HELDDesc
Book Value$4,969,176BookValueAmt
Method ValuationFMethodValuationCd
FieldValueIRS element (for citing)
Total Book Value Program Rltd$4,969,176TotalBookValueProgramRltdAmt

Other Liabilities Org OtherLiabilitiesOrgGrp (2 entries)

DescDescAmtAmt
CREDIT CARD PAYABLE$38,263
ACCRUED EXPENSES PAYABLE$311,188
FieldValueIRS element (for citing)
Total Liability$349,451TotalLiabilityAmt

Schedule G IRS990ScheduleG

FieldValueIRS element (for citing)
Special Fundraising EventsYes (X)SpecialFundraisingEventsInd
Agrmt Prof Fundraising Acty0AgrmtProfFundraisingActyInd

Fundraiser Activity Info FundraiserActivityInfoGrp

Organization Business Name OrganizationBusinessName

FieldValueIRS element (for citing)
Business Name Line1ANONYMOUSBusinessNameLine1Txt

US Address USAddress

FieldValueIRS element (for citing)
Address Line19140 IRVINE CENTER DRIVEAddressLine1Txt
CityIRVINECityNm
State AbbreviationCAStateAbbreviationCd
ZIP92618ZIPCd
FieldValueIRS element (for citing)
ActivityGOLF TOURNAMENT/ANNUAL GALA FUNDRAISINGActivityTxt
Fundraiser Control Of Funds0FundraiserControlOfFundsInd
Gross Receipts$1,637,290GrossReceiptsAmt
Retained By Contractor$146,000RetainedByContractorAmt
Net To Organization$1,491,290NetToOrganizationAmt
FieldValueIRS element (for citing)
Total Gross Receipts$1,637,290TotalGrossReceiptsAmt
Total Retained By Contractors$146,000TotalRetainedByContractorsAmt
Total Net To Organization$1,491,290TotalNetToOrganizationAmt
Licensed StatesCALicensedStatesCd

Fundraising Event Information FundraisingEventInformationGrp

FieldValueIRS element (for citing)
Event1GETZLAF GOLF TOURNAMENTEvent1Nm
Gross Receipts Event1$764,405GrossReceiptsEvent1Amt
Charitable Contri Event1$362,341CharitableContriEvent1Amt
Gross Revenue Event1$402,064GrossRevenueEvent1Amt
Other Direct Expenses Event1$236,709OtherDirectExpensesEvent1Amt
Event2FUNDRAISER-NEWPORT BEACH GALAEvent2Nm
Gross Receipts Event2$872,885GrossReceiptsEvent2Amt
Charitable Contri Event2$367,190CharitableContriEvent2Amt
Gross Revenue Event2$505,695GrossRevenueEvent2Amt
Other Direct Expenses Event2$350,989OtherDirectExpensesEvent2Amt
Other Events Total22OtherEventsTotalCnt
Gross Receipts Other Events$2,472,879GrossReceiptsOtherEventsAmt
Charitable Contri Other Events$519,065CharitableContriOtherEventsAmt
Gross Revenue Other Events$1,953,814GrossRevenueOtherEventsAmt
Oth Direct Expnss Other Events$1,122,563OthDirectExpnssOtherEventsAmt
Gross Receipts Total$4,110,169GrossReceiptsTotalAmt
Charitable Contributions Tot$1,248,596CharitableContributionsTotAmt
Gross Revenue Total Events$2,861,573GrossRevenueTotalEventsAmt
Oth Direct Expnss Total Events$1,710,261OthDirectExpnssTotalEventsAmt
Direct Expense Summary Events$1,710,261DirectExpenseSummaryEventsAmt
Net Income Summary$1,151,312NetIncomeSummaryAmt

Supplemental Information Detail SupplementalInformationDetail

FieldValueIRS element (for citing)
Form And Line ReferenceSCHEDULE G, PART I, LINE 2B, COLUMN (V)FormAndLineReferenceDesc
ExplanationDURING 2019, THE ORGANIZATION PAID THE FUNDRAISER $146,000. THESE PAYMENTS REPRESENT SERVICES RENDERED DURING THE FUNDRAISING EVENTS, INCLUDING ORGANIZING AND COORDINATING THE FUNCTIONS.ExplanationTxt

Schedule I IRS990ScheduleI

FieldValueIRS element (for citing)
Grant Records Maintained0GrantRecordsMaintainedInd

Recipient Table RecipientTable

Recipient Business Name RecipientBusinessName

FieldValueIRS element (for citing)
Business Name Line1UNIVERSITY OF MASSACHUSETTS MEDICAL SCHOOLBusinessNameLine1Txt

US Address USAddress

FieldValueIRS element (for citing)
Address Line1222 MAPLE AVENUEAddressLine1Txt
CitySHREWSBURYCityNm
State AbbreviationMAStateAbbreviationCd
ZIP01545ZIPCd
FieldValueIRS element (for citing)
Recipient EIN043167352RecipientEIN
Cash Grant$55,000CashGrantAmt
Purpose Of GrantEDUCATION/ OUTREACH/ RESEARCHPurposeOfGrantTxt

Schedule J IRS990ScheduleJ

FieldValueIRS element (for citing)
Independent ConsultantYes (X)IndependentConsultantInd
Compensation SurveyYes (X)CompensationSurveyInd
Board Or Committee ApprovalYes (X)BoardOrCommitteeApprovalInd
Severance Payment0SeverancePaymentInd
Supplemental Nonqual Rtr Plan0SupplementalNonqualRtrPlanInd
Equity Based Comp Arrngm0EquityBasedCompArrngmInd
Comp Based On Revenue Of Flng Org0CompBasedOnRevenueOfFlngOrgInd
Comp Bsd On Rev Related Orgs0CompBsdOnRevRelatedOrgsInd
Comp Bsd Net Earns Flng Org0CompBsdNetEarnsFlngOrgInd
Comp Bsd Net Earns Rltd Orgs0CompBsdNetEarnsRltdOrgsInd
Any Non Fixed Payments0AnyNonFixedPaymentsInd
Initial Contract Exception0InitialContractExceptionInd

Rltd Org Officer Trst Key Empl RltdOrgOfficerTrstKeyEmplGrp

FieldValueIRS element (for citing)
PersonDEBRA MILLERPersonNm
TitlePRESIDENTTitleTxt
Base Compensation Filing Org$168,304BaseCompensationFilingOrgAmt
Compensation Based On Rltd Orgs$0CompensationBasedOnRltdOrgsAmt
Bonus Filing Organization$0BonusFilingOrganizationAmount
Bonus Related Organizations$0BonusRelatedOrganizationsAmt
Other Compensation Filing Org$0OtherCompensationFilingOrgAmt
Other Compensation Rltd Orgs$0OtherCompensationRltdOrgsAmt
Deferred Compensation Flng Org$0DeferredCompensationFlngOrgAmt
Deferred Comp Rltd Orgs$0DeferredCompRltdOrgsAmt
Nontaxable Benefits Filing Org$0NontaxableBenefitsFilingOrgAmt
Nontaxable Benefits Rltd Orgs$0NontaxableBenefitsRltdOrgsAmt
Total Compensation Filing Org$168,304TotalCompensationFilingOrgAmt
Total Compensation Rltd Orgs$0TotalCompensationRltdOrgsAmt
Comp Report Prior990 Filing Org$0CompReportPrior990FilingOrgAmt
Comp Report Prior990 Rltd Orgs$0CompReportPrior990RltdOrgsAmt

Schedule O IRS990ScheduleO

Supplemental Information Detail SupplementalInformationDetail (5 entries)

Form And Line ReferenceFormAndLineReferenceDescExplanationExplanationTxt
FORM 990, PART VI, SECTION A, LINE 2DEBRA AND PAUL MILLER HAVE A FAMILY RELATIONSHIP.
FORM 990, PART VI, SECTION B, LINE 11BFORM 990 WILL BE AVAILABLE TO ALL THE BOARD MEMBERS TO REVIEW PRIOR TO FILING AT THE REGULARLY SCHEDULED BOARD MEETINGS. HOWEVER, A LIMITED NUMBER OF BOARD MEMBERS WILL REVIEW THE ENTIRE FORM 990 PRIOR TO FILING.
FORM 990, PART VI, SECTION B, LINE 12CTHE BOARD OF DIRECTORS ARE REQUIRED TO REVIEW AND SIGN THE CONFLICT OF INTEREST POLICY AT LEAST ANNUALLY. THE BOARD MEMBER MUST INFORM THE REST OF THE BOARD IF A CONFLICT ARISES OR IF IT EXISTS.
FORM 990, PART VI, SECTION B, LINE 15COMPENSATION OF TOP MANAGEMENT AND OFFICERS OF THE ORGANIZATION ARE REVIEWED BY INDEPENDENT LEGAL COUNSEL AND SUBMITTED TO THE BOARD MEMBERS FOR APPROVAL.
FORM 990, PART VI, SECTION C, LINE 19THE ORGANZIATION'S AUDITED FINANCIAL STATEMENTS AND FORM 990 ARE AVAILABLE TO THE PUBLIC VIA THE GUIDESTAR USA INC WEBSITE.

Schedule R IRS990ScheduleR

Id Disregarded Entities IdDisregardedEntitiesGrp

Disregarded Entity Name DisregardedEntityName

FieldValueIRS element (for citing)
Business Name Line1CUREDUCHENNE VENTURE LLCBusinessNameLine1Txt

US Address USAddress

FieldValueIRS element (for citing)
Address Line124000 ALICIA PARKWAY STE 466AddressLine1Txt
CityMISSION VIEJOCityNm
State AbbreviationCAStateAbbreviationCd
ZIP92691ZIPCd
FieldValueIRS element (for citing)
EIN383934145EIN
Primary ActivitiesINVESTING IN RESEARCHPrimaryActivitiesTxt
Legal Domicile StateCALegalDomicileStateCd
Total Income$23,474,296TotalIncomeAmt
End Of Year Assets$5,678,565EndOfYearAssetsAmt

Direct Controlling Entity Name DirectControllingEntityName

FieldValueIRS element (for citing)
Business Name Line1CURE DUCHENNEBusinessNameLine1Txt

Id Related Tax Exempt Org IdRelatedTaxExemptOrgGrp

Disregarded Entity Name DisregardedEntityName

FieldValueIRS element (for citing)
Business Name Line1CD ACCESSBusinessNameLine1Txt

US Address USAddress

FieldValueIRS element (for citing)
Address Line124000 ALICIA PARKWAY STE 466AddressLine1Txt
CityMISSION VIEJOCityNm
State AbbreviationCAStateAbbreviationCd
ZIP92691ZIPCd
FieldValueIRS element (for citing)
EIN813735979EIN
Primary ActivitiesDISTRIBUTE MEDICINE & OTHER THERAPIES TO INDIVIDUALS WITH DUCHENNE DISEASEPrimaryActivitiesTxt
Legal Domicile StateCALegalDomicileStateCd
Exempt Code Section501(C)(3)ExemptCodeSectionTxt
Public Charity StatusACTIVEPublicCharityStatusTxt

Direct Controlling Entity Name DirectControllingEntityName

FieldValueIRS element (for citing)
Business Name Line1CURE DUCHENNEBusinessNameLine1Txt
FieldValueIRS element (for citing)
Controlled Organization0ControlledOrganizationInd
FieldValueIRS element (for citing)
Receipt Of Int Annts Rnts Rylts0ReceiptOfIntAnntsRntsRyltsInd
Gift Grnt Or Cap Contri To Oth Org0GiftGrntOrCapContriToOthOrgInd
Gift Grnt Cap Contri From Oth Org0GiftGrntCapContriFromOthOrgInd
Loans Or Guarantees To Other Org0LoansOrGuaranteesToOtherOrgInd
Loans Or Guarantees From Oth Org0LoansOrGuaranteesFromOthOrgInd
Div Related Organization0DivRelatedOrganizationInd
Asset Sale To Other Org0AssetSaleToOtherOrgInd
Asset Purchase From Other Org0AssetPurchaseFromOtherOrgInd
Asset Exchange0AssetExchangeInd
Rental Of Facilities To Oth Org0RentalOfFacilitiesToOthOrgInd
Rental Of Fclts From Oth Org0RentalOfFcltsFromOthOrgInd
Perform Of Services For Oth Org0PerformOfServicesForOthOrgInd
Perform Of Services By Other Org0PerformOfServicesByOtherOrgInd
Sharing Of Facilities0SharingOfFacilitiesInd
Paid Employees Sharing0PaidEmployeesSharingInd
Reimbursement Paid To Other Org0ReimbursementPaidToOtherOrgInd
Reimbursement Paid By Other Org0ReimbursementPaidByOtherOrgInd
Transfer To Other Org0TransferToOtherOrgInd
Transfer From Other Org0TransferFromOtherOrgInd

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