2020-11-16T11:51:20-06:00 2019-12-31 954303700 JOHN S BALISY & COMPANY 24000 ALICIA PARKWAY 17 STE 466 MISSION VIEJO CA 92691 990 2019-01-01 200299958 CURE DUCHENNE CURE 9498722552 1400 QUAIL STREET NO 110 NEWPORT BEACH CA 92660 DEBRA MILLER PRESIDENT 9498722552 2020-11-12 JOHN S BALISY COMPANY P01385861 9495407519 2019 2022-09-23 18:48:47Z DEBRA MILLER 1400 QUAIL STREET STE 110 NEWPORT BEACH CA 92660 30601249 0 X WWW.CUREDUCHENNE.ORG X 2003 CA COORDINATING AND FUNDING RESEARCH NECESSARY TO FIND A CURE FOR DUCHENNE MUSCULAR DYSTROPHY. ALSO, IMPROVING THE CARE AND HEALTH OF DUCHENNE MUSCULAR DISTROPHY PATIENTS. 12 10 28 0 0 0 1612024 2509935 0 0 881456 23831692 2319864 1178727 4813344 27520354 150000 55000 0 0 1634955 2410746 116000 146000 1165196 2413838 2366311 4314793 4978057 498551 22542297 6797553 29774719 81849 558721 6715704 29215998 CURE DUCHENNE IS A NON-PROFIT ORGANIZATION DEDICATED TO COORDINATING AND FUNDING RESEARCH NECESSARY TO FIND A CURE FOR DUCHENNE MUSCULAR DYSTROPHY, INCREASING PUBLIC AWARENESS FOR DUCHENNE MUSCULAR DYSTROPHY,AND IMPROVING CARE, HEALTH,AND QUAILITY OF LIVING. 0 0 2960097 55000 23859107 CURE DUCHENNE WAS ORGANIZED IN 2003 WITH THE MISSION TO FUND RESEARCH NECESSARY TO FIND A CURE FOR DUCHENNE MUSCULAR DYSTROPHY, AND IMPROVING THE CARE AND HEALTH OF DUCHENNE MUSCULAR DYSTROPHY PATIENTS. 2960097 1 1 0 0 0 0 0 0 0 0 1 0 1 0 1 0 0 0 0 0 0 0 0 1 1 0 0 1 0 1 0 0 0 0 0 0 0 0 0 0 0 0 1 1 0 0 0 1 56 0 1 28 1 0 0 0 0 0 0 0 0 0 0 X 12 10 1 0 0 0 0 0 0 1 1 0 0 0 1 1 1 1 1 1 1 0 CA MA TN WI X X DEBRA MILLER 9498722552 1400 QUAIL STREET STE 110 NEWPORT BEACH CA 92660 PAUL MILLER SECRETARY 10.00 X X 0 0 0 DEBRA MILLER PRESIDENT 40.00 X X 168304 0 0 JEFFREY GOFFMAN DIRECTOR 1.00 X 0 0 0 PETER STRELOW DIRECTOR 1.00 X 0 0 0 KEVIN DORSEY DIRECTOR 1.00 X 0 0 0 RYAN WILLIAMS DIRECTOR 1.00 X 0 0 0 MARTIN LEHR DIRECTOR 1.00 X 0 0 0 ELAINE WU DIRECTOR 1.00 X 0 0 0 TJ FARNSWORTH DIRECTOR 1.00 X 0 0 0 MIKE HAGLIN CHAIRMAN OF THE BOARD 1.00 X 0 0 0 SARAH MCELROY DIRECTOR 1.00 X 0 0 0 TIM SULLIVAN DIRECTOR 1.00 X 0 0 0 168304 0 0 5 0 1 0 ANONYMOUS 9140 IRVINE CENTER DRIVE IRVINE CA 92618 FUNDRAISING 146000 1 1248596 1261339 2509935 29871 29871 94695 25077760 145799 1224835 -51104 23852925 23801821 23801821 2861573 1248596 1710261 1151312 1151312 TRINDS LLC INCOME 541700 27415 27415 27415 27520354 23859107 0 1151312 55000 55000 701398 471531 6339 223528 1444698 669242 445891 329565 109879 73869 4866 31144 154771 100916 4950 48905 97263 32214 56062 8987 146000 146000 62526 3190 1245 58091 59173 30205 10449 18519 159212 48299 96008 14905 119234 100576 15325 3333 116044 90209 7832 18003 417363 249590 71944 95829 24221 15669 1630 6922 OUTSIDE SERVICES 971652 768210 86763 116679 COMMUNITY RELATIONS EXP 141495 141495 DUES & SUBSCRIPTIONS 64856 33211 15558 16087 PRINTING & REPRODUCTION 50484 24884 5941 19659 82788 51787 21961 9040 4978057 2960097 852764 1165196 3291495 24556650 17063 17063 0 0 3301268 4969176 204790 248893 6797553 29774719 60170 51191 149100 30658 349451 81849 558721 X 6715704 29215998 6715704 29215998 6797553 29774719 22542297 -42003 0 X 0 1 X 0 0 X 2457585 2830597 4084960 4715363 5323906 19412411 2457585 2830597 4084960 4715363 5323906 19412411 19412411 18688 67051 44106 9248 29844 168937 19581348 26119707 0.99140 0.93960 X RESTRICTED RESTRICTED RESTRICTED RESTRICTED RESTRICTED RESTRICTED RESTRICTED RESTRICTED 0 0 17063 17063 0 0 INVESTMENTS HELD 4969176 F 4969176 CREDIT CARD PAYABLE 38263 ACCRUED EXPENSES PAYABLE 311188 349451 X 0 ANONYMOUS 9140 IRVINE CENTER DRIVE IRVINE CA 92618 GOLF TOURNAMENT/ANNUAL GALA FUNDRAISING 0 1637290 146000 1491290 1637290 146000 1491290 CA GETZLAF GOLF TOURNAMENT 764405 362341 402064 236709 FUNDRAISER-NEWPORT BEACH GALA 872885 367190 505695 350989 22 2472879 519065 1953814 1122563 4110169 1248596 2861573 1710261 1710261 1151312 SCHEDULE G, PART I, LINE 2B, COLUMN (V) DURING 2019, THE ORGANIZATION PAID THE FUNDRAISER $146,000. THESE PAYMENTS REPRESENT SERVICES RENDERED DURING THE FUNDRAISING EVENTS, INCLUDING ORGANIZING AND COORDINATING THE FUNCTIONS. 0 UNIVERSITY OF MASSACHUSETTS MEDICAL SCHOOL 222 MAPLE AVENUE SHREWSBURY MA 01545 043167352 55000 EDUCATION/ OUTREACH/ RESEARCH X X X 0 0 0 0 0 0 0 0 0 DEBRA MILLER PRESIDENT 168304 0 0 0 0 0 0 0 0 0 168304 0 0 0 FORM 990, PART VI, SECTION A, LINE 2 DEBRA AND PAUL MILLER HAVE A FAMILY RELATIONSHIP. FORM 990, PART VI, SECTION B, LINE 11B FORM 990 WILL BE AVAILABLE TO ALL THE BOARD MEMBERS TO REVIEW PRIOR TO FILING AT THE REGULARLY SCHEDULED BOARD MEETINGS. HOWEVER, A LIMITED NUMBER OF BOARD MEMBERS WILL REVIEW THE ENTIRE FORM 990 PRIOR TO FILING. FORM 990, PART VI, SECTION B, LINE 12C THE BOARD OF DIRECTORS ARE REQUIRED TO REVIEW AND SIGN THE CONFLICT OF INTEREST POLICY AT LEAST ANNUALLY. THE BOARD MEMBER MUST INFORM THE REST OF THE BOARD IF A CONFLICT ARISES OR IF IT EXISTS. FORM 990, PART VI, SECTION B, LINE 15 COMPENSATION OF TOP MANAGEMENT AND OFFICERS OF THE ORGANIZATION ARE REVIEWED BY INDEPENDENT LEGAL COUNSEL AND SUBMITTED TO THE BOARD MEMBERS FOR APPROVAL. FORM 990, PART VI, SECTION C, LINE 19 THE ORGANZIATION'S AUDITED FINANCIAL STATEMENTS AND FORM 990 ARE AVAILABLE TO THE PUBLIC VIA THE GUIDESTAR USA INC WEBSITE. CUREDUCHENNE VENTURE LLC 24000 ALICIA PARKWAY STE 466 MISSION VIEJO CA 92691 383934145 INVESTING IN RESEARCH CA 23474296 5678565 CURE DUCHENNE CD ACCESS 24000 ALICIA PARKWAY STE 466 MISSION VIEJO CA 92691 813735979 DISTRIBUTE MEDICINE & OTHER THERAPIES TO INDIVIDUALS WITH DUCHENNE DISEASE CA 501(C)(3) ACTIVE CURE DUCHENNE 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0