NATIONAL SPASMODIC DYSPHONIA ASSOCIATION

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Cite this

Plain text NATIONAL SPASMODIC DYSPHONIA ASSOCIATION. furp.org, nonprofit organization profile, tax years 2010–2024. https://furp.org/org/national-spasmodic-dysphonia-association-382918042. Retrieved 2026-11-15.

APA furp.org. (n.d.). NATIONAL SPASMODIC DYSPHONIA ASSOCIATION [Nonprofit organization profile; tax years 2010–2024]. Retrieved November 15, 2026, from https://furp.org/org/national-spasmodic-dysphonia-association-382918042

MLA “NATIONAL SPASMODIC DYSPHONIA ASSOCIATION.” furp.org, tax years 2010–2024, https://furp.org/org/national-spasmodic-dysphonia-association-382918042. Accessed 15 Nov. 2026.

Retrieved 2026-11-15; covers tax years 2010–2024. Data: furp.org (index © the FURP Alliance; the records are public domain).

2024 · Form 990 · revenue $0 · expenses $0 · assets $0

EIN: 38-2918042
Address: 300 PARK BLVD STE 280, ITASCA, IL 60143-2655
Website: WWW.DYSPHONIA.ORG
NTEE code: G81 AIDS (Voluntary Health Associations and Medical Disciplines) inferred (by a small language model from the name and 990 text, confidence 0.55; not an IRS classification)
FURP topic: science: research education (from its 990 text; the topic index)
Exempt type: 501(c)(3): charitable, religious, educational, scientific or literary (corporation)
Ruling date: November 1990 (when the IRS recognized its exemption)
IRS status: Exempt (unconditional) (IRS Business Master File) IRS data ↗
Tax-deductible donations: Yes: listed in IRS Publication 78 (public charity) Pub 78 ↗
Foundation status: Public charity supported by the public (170(b)(1)(a)(vi))
Principal officer: Charlie Reavis (its 2025 Form 990-N)
Form 990-N e-postcards: 1 filed, 2025 (organizations with gross receipts normally $50,000 or less file this instead of a full Form 990) IRS data ↗
Cross-check: ProPublica Nonprofit Explorer

Mission

THE NATIONAL SPASMODIC DYSPHONIA ASSOCIATION IS DEDICATED TO IMPROVING THE LIVES OF PEOPLE AFFECTED BY SPASMODIC DYSPHONIA AND RELATED VOICE CONDITIONS THROUGH RESEARCH, EDUCATION, AWARENESS AND SUPPORT. WE FUND RESEARCH TO ADVANCE THE UNDERSTANDING OF THE CAUSES OF AND TREATMENTS FOR SPASMODIC DYSPHONIA AND RELATED VOICE CONDITIONS, AND EVENTUALLY A CURE. WE EDUCATE TO HELP REDUCE THE TIME TO DIAGNOSIS. WE RAISE AWARENESS TO REDUCE THE ISOLATION AROUND HAVING A VOICE DISORDER. WE PROVIDE SUPPORT TO THOSE AFFECTED AND THEIR FAMILIES THROUGH SYMPOSIUMS, SUPPORT GROUPS, AND ONLINE RESOURCES SO THAT NO ONE FEELS ALONE. THE NSDA IS DEDICATED TO HELPING THOSE WITH THESE DISORDERS OVERCOME ADVERSITY AND THRIVE BY CREATING A COMMUNITY THAT CARES ABOUT THEM AND THEIR VOICE.

Each tax year counts once: when a return was amended, only the latest return for that period is used below (superseded returns stay listed, greyed, under Finances).

People paid by the organization

1 person paid across every filing: current people first, then by total pay from this organization. Organizations counts every nonprofit each person appears on.

Name	Latest title	Years	Latest year pay	Total pay from here	Organizations
Kimberly Kuman	EXECUTIVE DIRECTOR	2010-2024	$96,423	$1,055,722	2

Officers and directors, no compensation reported

26 people listed on the returns with $0 (or no amount) in every compensation column: current people first. Hours are as filed on the latest return each person appears on.

Name	Latest title	Years	Hrs/wk (latest)	Compensation	Organizations
Dot Sowerby	DIRECTOR	2010-2024	2	$0 reported	2
Charles Reavis	PRESIDENT	2023-2024	15	$0 reported	2
Mary Bifaro	SUPPORT NETWORK DIRECTOR	2010-2024	10	$0 reported	2
Marcia Sterling	DIRECTOR	2010-2024	2	$0 reported	2
Beverly Matthews	TREASURER	2017-2024	2	$0 reported	2
Susan Beck	VICE PRESIDENT	2018-2024	2	$0 reported	2
Dennis Kaszeta	DIRECTOR	2020-2024	2	$0 reported	2
Bruce Menk	DIRECTOR	2020-2024	2	$0 reported	2
Charlie Womble	DIRECTOR	2010-2024	2	$0 reported	2
Sue Payne	DIRECTOR	2024	2	$0 reported	2
Scott Flanagan	DIRECTOR	2024	2	$0 reported	2
Dorothy Tannahill-Moran (former)	DIRECTOR	2021-2023	2	$0 reported	2
Jane Keller Gordon (former)	DIRECTOR	2019-2022	2	$0 reported	2
Charlie Reavis (former)	PRESIDENT	2010-2022	15	$0 reported	2
Larry Kolasa (former)	FOUNDING PRESIDENT	2019-2021	5	$0 reported	1
Warren Bandel (former)	DIRECTOR	2017-2020	5	$0 reported	1
Dorothy Tannahill-Morna (former)	DIRECTOR	2020	5	$0 reported	1
James Anderson (former)	DIRECTOR	2015-2019	2	$0 reported	1
Lawrence Kolasa (former)	DIRECTOR	2010-2018	2	$0 reported	1
Stephanie Mendel (former)	DIRECTOR	2010-2018	2	$0 reported	1
David Barton (former)	DIRECTOR	2010-2017	4	$0 reported	1
Gwendolyn Sims Davis (former)	DIRECTOR	2014-2017	1	$0 reported	1
Fred Hosier (former)	Director	2013-2016	2	$0 reported	1
John Comer (former)	Director	2010-2012	2	$0 reported	1
Sherry Whitley (former)	Director	2010-2011	0	$0 reported	1
Laurie Cermak (former)	Director	2010-2011	2	$0 reported	1

People by year

2024 · 12 people listed · 1 paid, $96K · 0 employees · 0 volunteers

Name	Title	Hrs/wk	From org	From related	Other	Total	Orgs
KIMBERLY KUMAN	EXECUTIVE DIRECTOR	52	$0	$96,423	$0	$96,423	2
DOT SOWERBY	DIRECTOR	2	$0	$0	$0	$0	2
CHARLES REAVIS	PRESIDENT	15	$0	$0	$0	$0	2
MARY BIFARO	SUPPORT NETWORK DIRECTOR	10	$0	$0	$0	$0	2
MARCIA STERLING	DIRECTOR	2	$0	$0	$0	$0	2
BEVERLY MATTHEWS	TREASURER	2	$0	$0	$0	$0	2
SUSAN BECK	VICE PRESIDENT	2	$0	$0	$0	$0	2
DENNIS KASZETA	DIRECTOR	2	$0	$0	$0	$0	2
BRUCE MENK	DIRECTOR	2	$0	$0	$0	$0	2
SUE PAYNE	DIRECTOR	2	$0	$0	$0	$0	2
CHARLIE WOMBLE	DIRECTOR	2	$0	$0	$0	$0	2
SCOTT FLANAGAN	DIRECTOR	2	$0	$0	$0	$0	2

2023 · 11 people listed · none paid · 0 employees · 0 volunteers

Name	Title	Hrs/wk	From org	From related	Other	Total	Orgs
DOT SOWERBY	DIRECTOR	2	$0	$0	$0	$0	2
CHARLES REAVIS	PRESIDENT	15	$0	$0	$0	$0	2
MARY BIFARO	SUPPORT NETWORK DIRECTOR	10	$0	$0	$0	$0	2
MARCIA STERLING	DIRECTOR	2	$0	$0	$0	$0	2
BEVERLY MATTHEWS	TREASURER	2	$0	$0	$0	$0	2
SUSAN BECK	DEVELOPMENT DIRECTOR	2	$0	$0	$0	$0	2
DENNIS KASZETA	DIRECTOR	2	$0	$0	$0	$0	2
BRUCE MENK	DIRECTOR	2	$0	$0	$0	$0	2
DOROTHY TANNAHILL-MORAN	DIRECTOR	2	$0	$0	$0	$0	2
CHARLIE WOMBLE	DIRECTOR	2	$0	$0	$0	$0	2
KIMBERLY KUMAN	EXECUTIVE DIRECTOR	52	$0	$0	$0	$0	2

2022 · 12 people listed · none paid · 0 employees · 0 volunteers

Name	Title	Hrs/wk	From org	From related	Other	Total	Orgs
JANE KELLER GORDON	DIRECTOR	2	$0	$0	$0	$0	2
DOT SOWERBY	DIRECTOR	2	$0	$0	$0	$0	2
CHARLIE REAVIS	PRESIDENT	15	$0	$0	$0	$0	2
MARY BIFARO	SUPPORT NETWORK DIRECTOR	10	$0	$0	$0	$0	2
MARCIA STERLING	DIRECTOR	2	$0	$0	$0	$0	2
BEVERLY MATTHEWS	TREASURER	2	$0	$0	$0	$0	2
SUSAN BECK	DEVELOPMENT DIRECTOR	2	$0	$0	$0	$0	2
DENNIS KASZETA	DIRECTOR	2	$0	$0	$0	$0	2
BRUCE MENK	DIRECTOR	2	$0	$0	$0	$0	2
DOROTHY TANNAHILL-MORAN	DIRECTOR	2	$0	$0	$0	$0	2
CHARLIE WOMBLE	DIRECTOR	2	$0	$0	$0	$0	2
KIMBERLY KUMAN	EXECUTIVE DIRECTOR	48	$0	$0	$0	$0	2

2021 · 13 people listed · 1 paid, $86K · 3 employees · 0 volunteers

Name	Title	Hrs/wk	From org	From related	Other	Total	Orgs
KIMBERLY KUMAN	EXECUTIVE DIRECTOR	44	$86,000	$0	$0	$86,000	2
JANE KELLER GORDON	DIRECTOR	5	$0	$0	$0	$0	2
DOT SOWERBY	DIRECTOR	5	$0	$0	$0	$0	2
CHARLIE REAVIS	PRESIDENT	20	$0	$0	$0	$0	2
MARY BIFARO	SUPPORT NETWORK DIRECTOR	15	$0	$0	$0	$0	2
MARCIA STERLING	DIRECTOR	5	$0	$0	$0	$0	2
BEVERLY MATTHEWS	TREASURER	5	$0	$0	$0	$0	2
SUSAN BECK	DEVELOPMENT DIRECTOR	10	$0	$0	$0	$0	2
LARRY KOLASA	FOUNDING PRESIDENT	5	$0	$0	$0	$0	1
DENNIS KASZETA	AREA CONTACT DIRECTOR	5	$0	$0	$0	$0	2
BRUCE MENK	DIRECTOR	5	$0	$0	$0	$0	2
DOROTHY TANNAHILL-MORAN	DIRECTOR	5	$0	$0	$0	$0	2
CHARLIE WOMBLE	DIRECTOR	5	$0	$0	$0	$0	2

2020 · 14 people listed · 1 paid, $80K · 3 employees · 350 volunteers

Name	Title	Hrs/wk	From org	From related	Other	Total	Orgs
KIMBERLY KUMAN	EXECUTIVE DIRECTOR	44	$80,000	$0	$0	$80,000	2
JANE KELLER GORDON	DIRECTOR	5	$0	$0	$0	$0	2
DOT SOWERBY	DIRECTOR	5	$0	$0	$0	$0	2
CHARLIE REAVIS	PRESIDENT	20	$0	$0	$0	$0	2
MARY BIFARO	SUPPORT SERVICES DIRECTOR	15	$0	$0	$0	$0	2
MARCIA STERLING	DIRECTOR	5	$0	$0	$0	$0	2
BEVERLY MATTHEWS	TREASURER	5	$0	$0	$0	$0	2
WARREN BANDEL	DIRECTOR	5	$0	$0	$0	$0	1
SUSAN BECK	DEVELOPMENT DIRECTOR	10	$0	$0	$0	$0	2
LARRY KOLASA	FOUNDING PRESIDENT	5	$0	$0	$0	$0	1
DENNIS KASZETA	DIRECTOR	5	$0	$0	$0	$0	2
BRUCE MENK	DIRECTOR	5	$0	$0	$0	$0	2
DOROTHY TANNAHILL-MORNA	DIRECTOR	5	$0	$0	$0	$0	1
CHARLIE WOMBLE	DIRECTOR	5	$0	$0	$0	$0	2

2019 · 12 people listed · 1 paid, $79K · 3 employees · 400 volunteers

Name	Title	Hrs/wk	From org	From related	Other	Total	Orgs
KIMBERLY KUMAN	EXECUTIVE DIRECTOR	44	$78,542	$0	$0	$78,542	2
CHARLIE WOMBLE	DIRECTOR	2	$0	$0	$0	$0	2
JAMES ANDERSON	DIRECTOR	2	$0	$0	$0	$0	1
JANE GORDON	DIRECTOR	2	$0	$0	$0	$0	2
DOT SOWERBY	DIRECTOR	4	$0	$0	$0	$0	2
CHARLIE REAVIS	PRESIDENT	16	$0	$0	$0	$0	2
MARY BIFARO	DIRECTOR	6	$0	$0	$0	$0	2
MARCIA STERLING	TREASURER	2	$0	$0	$0	$0	2
BEVERLY MATTHEWS	DIRECTOR	2	$0	$0	$0	$0	2
WARREN BANDEL	DIRECTOR	2	$0	$0	$0	$0	1
SUSAN BECK	DIRECTOR	4	$0	$0	$0	$0	2
LARRY KOLASA	FOUNDING PRESIDENT	2	$0	$0	$0	$0	1

2018 · 12 people listed · 1 paid, $83K · 3 employees · 400 volunteers

Name	Title	Hrs/wk	From org	From related	Other	Total	Orgs
KIMBERLY KUMAN	EXECUTIVE DIRECTOR	44	$75,000	$0	$8,373	$83,373	2
CHARLIE WOMBLE	DIRECTOR	2	$0	$0	$0	$0	2
JAMES ANDERSON	DIRECTOR	2	$0	$0	$0	$0	1
LAWRENCE KOLASA	DIRECTOR	2	$0	$0	$0	$0	1
STEPHANIE MENDEL	DIRECTOR	2	$0	$0	$0	$0	1
DOT SOWERBY	DIRECTOR	4	$0	$0	$0	$0	2
CHARLIE REAVIS	PRESIDENT	16	$0	$0	$0	$0	2
MARY BIFARO	DIRECTOR	6	$0	$0	$0	$0	2
MARCIA STERLING	TREASURER	2	$0	$0	$0	$0	2
BEVERLY MATTHEWS	DIRECTOR	3	$0	$0	$0	$0	2
WARREN BANDEL	DIRECTOR	3	$0	$0	$0	$0	1
SUSAN BECK	DIRECTOR	2	$0	$0	$0	$0	2

2017 · 13 people listed · 1 paid, $82K · 3 employees · 400 volunteers

Name	Title	Hrs/wk	From org	From related	Other	Total	Orgs
KIMBERLY KUMAN	EXECUTIVE DIRECTOR	44	$75,000	$0	$7,481	$82,481	2
CHARLIE WOMBLE	DIRECTOR	2	$0	$0	$0	$0	2
DAVID BARTON	DIRECTOR	4	$0	$0	$0	$0	1
GWENDOLYN SIMS DAVIS	DIRECTOR	1	$0	$0	$0	$0	1
JAMES ANDERSON	DIRECTOR	2	$0	$0	$0	$0	1
LAWRENCE KOLASA	DIRECTOR	2	$0	$0	$0	$0	1
STEPHANIE MENDEL	DIRECTOR	2	$0	$0	$0	$0	1
DOT SOWERBY	DIRECTOR	4	$0	$0	$0	$0	2
CHARLIE REAVIS	PRESIDENT	16	$0	$0	$0	$0	2
MARY BIFARO	DIRECTOR	4	$0	$0	$0	$0	2
MARCIA STERLING	TREASURER	2	$0	$0	$0	$0	2
BEVERLY MATTHEWS	DIRECTOR	2	$0	$0	$0	$0	2
WARREN BANDEL	DIRECTOR	2	$0	$0	$0	$0	1

2016 · 12 people listed · 1 paid, $82K · 3 employees · 400 volunteers

Name	Title	Hrs/wk	From org	From related	Other	Total	Orgs
KIMBERLY KUMAN	Executive Direc	44	$75,000	$0	$7,285	$82,285	2
CHARLIE WOMBLE	Director	2	$0	$0	$0	$0	2
DAVID BARTON	Director	4	$0	$0	$0	$0	1
GWENDOLYN SIMS DAVIS	Director	2	$0	$0	$0	$0	1
FRED HOSIER	Director	2	$0	$0	$0	$0	1
JAMES ANDERSON	Director	4	$0	$0	$0	$0	1
LAWRENCE KOLASA	Director	2	$0	$0	$0	$0	1
STEPHANIE MENDEL	Director	2	$0	$0	$0	$0	1
DOT SOWERBY	Director	4	$0	$0	$0	$0	2
CHARLIE REAVIS	President	16	$0	$0	$0	$0	2
MARY BIFARO	Director	6	$0	$0	$0	$0	2
MARCIA STERLING	Treasurer	2	$0	$0	$0	$0	2

2015 · 12 people listed · 1 paid, $85K · 3 employees · 400 volunteers

Name	Title	Hrs/wk	From org	From related	Other	Total	Orgs
KIMBERLY KUMAN	Executive Direc	44	$78,125	$0	$7,038	$85,163	2
CHARLIE WOMBLE	Director	2	$0	$0	$0	$0	2
DAVID BARTON	Director	4	$0	$0	$0	$0	1
GWENDOLYN SIMS DAVIS	Director	2	$0	$0	$0	$0	1
FRED HOSIER	Director	2	$0	$0	$0	$0	1
JAMES ANDERSON	Director	4	$0	$0	$0	$0	1
LAWRENCE KOLASA	Director	2	$0	$0	$0	$0	1
STEPHANIE MENDEL	Director	2	$0	$0	$0	$0	1
DOT SOWERBY	Director	4	$0	$0	$0	$0	2
CHARLIE REAVIS	President	16	$0	$0	$0	$0	2
MARY BIFARO	Director	6	$0	$0	$0	$0	2
MARCIA STERLING	Treasurer	2	$0	$0	$0	$0	2

2014 · 11 people listed · 1 paid, $79K · 2 employees · 425 volunteers

Name	Title	Hrs/wk	From org	From related	Other	Total	Orgs
KIMBERLY KUMAN	Executive Direc	40	$70,625	$0	$7,941	$78,566	2
CHARLIE WOMBLE	Director	2	$0	$0	$0	$0	2
DAVID BARTON	Director	4	$0	$0	$0	$0	1
GWENDOLYN SIMS DAVIS	Director	2	$0	$0	$0	$0	1
FRED HOSIER	Director	2	$0	$0	$0	$0	1
LAWRENCE KOLASA	Director	2	$0	$0	$0	$0	1
STEPHANIE MENDEL	Director	4	$0	$0	$0	$0	1
DOT SOWERBY	Director	4	$0	$0	$0	$0	2
CHARLIE REAVIS	President	10	$0	$0	$0	$0	2
MARY BIFARO	Director	6	$0	$0	$0	$0	2
MARCIA STERLING	Treasurer	2	$0	$0	$0	$0	2

2013 · 10 people listed · 1 paid, $77K · 2 employees · 425 volunteers

Name	Title	Hrs/wk	From org	From related	Other	Total	Orgs
KIMBERLY KUMAN	Executive Direc	40	$70,000	$0	$7,307	$77,307	2
CHARLIE WOMBLE	Director	3	$0	$0	$0	$0	2
DAVID BARTON	Director	4	$0	$0	$0	$0	1
FRED HOSIER	Director	2	$0	$0	$0	$0	1
LAWRENCE KOLASA	Director	1	$0	$0	$0	$0	1
STEPHANIE MENDEL	Director	4	$0	$0	$0	$0	1
DOT SOWERBY	Director	4	$0	$0	$0	$0	2
CHARLIE REAVIS	President	10	$0	$0	$0	$0	2
MARY BIFARO	Director	6	$0	$0	$0	$0	2
MARCIA STERLING	Treasurer	2	$0	$0	$0	$0	2

2012 · 10 people listed · 1 paid, $77K · 2 employees · 425 volunteers

Name	Title	Hrs/wk	From org	From related	Other	Total	Orgs
KIMBERLY KUMAN	Executive Direc	40	$70,000	$0	$6,933	$76,933	2
MARCIA STERLING	Treasurer	2	$0	$0	$0	$0	2
MARY BIFARO	Director	6	$0	$0	$0	$0	2
CHARLIE REAVIS	President	10	$0	$0	$0	$0	2
DOT SOWERBY	Director	4	$0	$0	$0	$0	2
STEPHANIE MENDEL	Director	4	$0	$0	$0	$0	1
LAWRENCE KOLASA	Director	1	$0	$0	$0	$0	1
JOHN COMER	Director	2	$0	$0	$0	$0	1
DAVID BARTON	Director	4	$0	$0	$0	$0	1
CHARLIE WOMBLE	Director	3	$0	$0	$0	$0	2

2011 · 12 people listed · 1 paid, $75K · 3 employees · 400 volunteers

Name	Title	Hrs/wk	From org	From related	Other	Total	Orgs
KIMBERLY KUMAN	Executive Direc	40	$70,000	$0	$4,650	$74,650	2
SHERRY WHITLEY	Director	0	$0	$0	$0	$0	1
MARCIA STERLING	Treasurer	2	$0	$0	$0	$0	2
MARY BIFARO	Director	6	$0	$0	$0	$0	2
CHARLIE REAVIS	President	10	$0	$0	$0	$0	2
DOT SOWERBY	Director	4	$0	$0	$0	$0	2
STEPHANIE MENDEL	Director	4	$0	$0	$0	$0	1
LAWRENCE KOLASA	Director	1	$0	$0	$0	$0	1
JOHN COMER	Director	2	$0	$0	$0	$0	1
LAURIE CERMAK	Director	2	$0	$0	$0	$0	1
DAVID BARTON	Director	4	$0	$0	$0	$0	1
CHARLIE WOMBLE	Director	3	$0	$0	$0	$0	2

2010 · 12 people listed · 1 paid, $74K · 2 employees · 375 volunteers

Name	Title	Hrs/wk	From org	From related	Other	Total	Orgs
KIMBERLY KUMAN	Executive Direc	40	$70,000	$0	$3,999	$73,999	2
STEPHANIE MENDEL	Director	4	$0	$0	$0	$0	1
SHERRY WHITLEY	Director	0	$0	$0	$0	$0	1
MARY BIFARO	Director	6	$0	$0	$0	$0	2
MARCIA STERLING	Treasurer	2	$0	$0	$0	$0	2
LAWRENCE KOLASA	Director	1	$0	$0	$0	$0	1
LAURIE CERMAK	Director	2	$0	$0	$0	$0	1
JOHN COMER	Director	2	$0	$0	$0	$0	1
DOT SOWERBY	PAST PRESIDENT	4	$0	$0	$0	$0	2
DAVID BARTON	PAST PRESIDENT	4	$0	$0	$0	$0	1
CHARLIE WOMBLE	Director	3	$0	$0	$0	$0	2
CHARLIE REAVIS	President	10	$0	$0	$0	$0	2

Highest-paid independent contractors

No independent contractors reported.

Who the money went to

Grants this organization reported paying: Schedule I Part II of the Form 990, or the grants-paid list on the 990-PF. Open a year for every recipient. Recipients link to their own page when the grant names an EIN we have (990-PF grants list no EIN, so those link only on an exact, unique name and state). Grants to individuals are counted; their names are not shown.

2020 · 2 grants to organizations · $75K

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2019 · 1 grant to organizations · $51K

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2018 · 2 grants to organizations · $59K

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2017 · 1 grant to organizations · $25K

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2015 · 1 grant to organizations · $25K

Show every grant for 2015 · CSV

2014 · 1 grant to organizations · $45K

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2012 · 1 grant to organizations · $34K

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2011 · 1 grant to organizations · $11K

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2010 · 1 grant to organizations · $20K

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Negative amounts are returned or refunded grants; they are listed last and left out of the totals of grants paid.

Who gave

Contributor names are not public for this form type.

Public charities filing Form 990 or 990-EZ report large donors on Schedule B, but the IRS withholds their names and addresses from public copies. Private foundations (990-PF) are different: their contributors are public.

Finances

Newest first. Each filing: its name on one row, its figures on the row beneath. Greyed filings are superseded by a later return for the same period and are left out everywhere else on this page.

Revenue	Expenses	Assets	Net assets	Contributions	Program revenue	Officer pay	Employees	Volunteers
2024 · Form 990 period ending 2025-03-31 · view filing · original 990 ↗
$0	$0	$0	$0	$0	$0	$0	0	0
2023 · Form 990 period ending 2024-03-31 · view filing · original 990 ↗
$0	$0	$0	$0	$0	$0	$0	0	0
2022 · Form 990 period ending 2023-03-31 · amended · view filing · original 990 ↗
$0	$0	$0	$0	$0	$0	$0	0	0
2021 · Form 990 period ending 2022-03-31 · view filing · original 990 ↗
$611,049	$536,887	$3,059,425	$2,948,768	$542,254	$0	$92,887	3	0
2020 · Form 990 period ending 2021-03-31 · view filing · original 990 ↗
$2,545,215	$288,490	$2,932,455	$2,927,825	$2,530,473	$0	$84,861	3	350
2019 · Form 990 period ending 2020-03-31 · view filing · original 990 ↗
$371,731	$322,719	$630,527	$600,053	$343,782	$11,778	$82,191	3	400
2018 · Form 990 period ending 2019-03-31 · view filing · original 990 ↗
$327,153	$313,309	$589,573	$570,909	$311,073	$2,895	$78,000	3	400
2017 · Form 990 period ending 2018-03-31 · view filing · original 990 ↗
$323,390	$267,085	$549,825	$543,734	$305,636	$5,250	$86,557	3	400
2016 · Form 990 period ending 2017-03-31 · view filing · original 990 ↗
$231,169	$256,872	$510,678	$478,488	$216,865	$4,895	$82,285	3	400
2015 · Form 990 period ending 2016-03-31 · view filing · original 990 ↗
$283,517	$275,905	$537,725	$487,658	$260,239	$12,935	$82,038	3	400
2014 · Form 990 period ending 2015-03-31 · view filing · original 990 ↗
$250,086	$275,163	$520,731	$490,667	$231,789	$10,855	$82,941	2	425
2013 · Form 990 period ending 2014-03-31 · view filing · original 990 ↗
$228,050	$221,680	$523,537	$517,829	$216,492	$7,177	$77,307	2	425
2012 · Form 990 period ending 2013-03-31 · view filing · original 990 ↗
$227,110	$236,862	$516,374	$511,403	$218,468	$4,829	$76,933	2	425
2011 · Form 990 period ending 2012-03-31 · view filing · original 990 ↗
$229,454	$246,271	$532,354	$519,186	$215,952	$6,910	$74,650	3	400
2010 · Form 990 period ending 2011-03-31 · view filing · original 990 ↗
$194,862	$239,745	$537,713	$534,998	$185,979	$1,150	$73,999	2	375

Connected to

Organizations that list some of the same people on their returns (officers, directors, key employees on this organization’s latest return), and related organizations it lists on Schedule R.

DYSPHONIA INTERNATIONAL INC Itasca, IL · 12 people in common (Beverly Matthews, Bruce Menk, Charles Reavis)

Funders of this organization

25 grantors reported grants to this organization, $1,364,258 in all, tax years 2010 to 2024. Exact: the grantor wrote this organization's EIN. Fuzzy: the grantor wrote only a name (foundations' 990-PF has no EIN field), matched to the same or a near-identical name in the same state; the name as filed is shown. From the latest return for each grantor and year, so amended returns aren't counted twice. CSV

Grantor	Total given	Grants	Latest year's amount	Latest year	Years given	Type	Match	Grants
SILICON VALLEY COMMUNITY FOUNDATION	$684,444	13	$72,706	2023	2011-2023	DAF sponsor	Exact	show
EDWARDSON FAMILY FOUNDATION	$130,000	9	$10,000	2022	2014-2022	Private foundation	Fuzzy filed as “NATIONAL SPASMODIC DYSPHONIA ASSOCIATION”	show
MASON AVE FAMILY FOUNDATION	$100,000	1	$100,000	2021	2021	Private foundation	Fuzzy filed as “NATIONAL SPASMODIC DYSPHONIA ASSOCIATION”	show
FIDELITY INVESTMENTS CHARITABLE GIFT FUND	$98,650	4	$6,850	2021	2018-2021	DAF sponsor	Exact	show
DONOR ADVISED CHARITABLE GIVING	$82,440	9	$5,600	2023	2014-2016, 2018-2023	DAF sponsor	Exact	show
NATIONAL PHILANTHROPIC TR	$80,000	3	$40,000	2024	2022-2024	DAF sponsor	Exact	show
THE CHICAGO COMMUNITY TRUST	$58,250	6	$10,000	2024	2018-2019, 2021-2024	DAF sponsor	Exact	show
FORGOOD INC	$57,278	4	$9,294	2023	2020-2023	DAF sponsor	Exact	show
AMERICAN ONLINE GIVING FOUNDATION INC	$22,417	4	$5,333	2022	2019-2022	DAF sponsor	Exact	show
ABBVIE FOUNDATION	$10,050	3	$10,000	2021	2018-2019, 2021	Private foundation	Fuzzy filed as “National Spasmodic Dysphonia Association”, “NATIONAL SPASMODIC DYSPHONIA ASSOCIATION”	show
MILLION DOLLAR ROUND TABLE FOUNDATION	$10,000	1	$10,000	2013	2013	Public charity	Exact	show
PAYPAL CHARITABLE GIVING FUND	$8,388	1	$8,388	2024	2024	DAF sponsor	Exact	show
AMERICAN ENDOWMENT FOUNDATION	$5,982	1	$5,982	2016	2016	DAF sponsor	Exact	show
HALL & EVANS LLC FOUNDATION	$3,000	6	$500	2017	2010-2013, 2015, 2017	Private foundation	Fuzzy filed as “National Spasmodic Dysphonia Association”, “NATIONAL SPASMODIC DYSPHONIA ASSOCIATION”	show
AMAZONSMILE FOUNDATION	$2,869	4	$560	2023	2020-2023	Private foundation	Fuzzy filed as “NATIONAL SPASMODIC DYSPHONIA ASSOCIATION”	show
W W W FOUNDATION	$2,500	1	$2,500	2014	2014	Private foundation	Fuzzy filed as “NATIONAL SPASMODIC DYSPHONIA ASSOCIATION”	show
BANK OF AMERICA CHARITABLE FOUNDATION INC	$2,165	13	$150	2021	2012-2014, 2016-2019, 2021	Private foundation	Fuzzy filed as “NATIONAL SPASMODIC DYSPHONIA ASSOC”, “NATIONAL SPASMODIC DYSPHONIA ASSOCI”, “NATIONAL SPASMODIC DYSPHONIA ASSOCIATION”	show
GEORGE AND REVA GRAZIADIO FOUNDATION	$2,000	2	$1,000	2019	2018-2019	Private foundation	Fuzzy filed as “NATIONAL SPASMODIC DYSPHONIA ASSOCIATION”	show
HARRY & YVONNE LENART CHARITABLE FOUNDATION	$1,000	1	$1,000	2018	2018	Private foundation	Fuzzy filed as “NATIONAL SPASMODIC DYSPHONIA ASSOCIATION”	show
BARTZ MARR FAMILY FOUNDATION	$1,000	1	$1,000	2015	2015	Private foundation	Fuzzy filed as “NATIONAL SPASMODIC DYSPHONIA ASSOCIATION”	show
PROGRESSIVE BUSINESS PUBLICATIONS	$1,000	1	$1,000	2013	2013	Private foundation	Fuzzy filed as “NATIONAL SPASMODIC DYSPHONIA ASSOCIATION”	show
JPMORGAN CHASE FOUNDATION	$500	1	$500	2022	2022	Private foundation	Fuzzy filed as “NATIONAL SPASMODIC DYSPHONIA ASSOCIATION”	show
HCA HEALTHCARE FOUNDATION	$145	3	$145	2016	2016	Private foundation	Fuzzy filed as “NATIONAL SPASMODIC DYSPHONIA ASSOC”	show
JOSEPH AND ROSE RONTAL FOUNDATION	$100	1	$100	2018	2018	Private foundation	Fuzzy filed as “NATIONAL SPASMODIC DYSPHONIA ASSOCIATION”	show
CELANESE FOUNDATION	$80	1	$80	2018	2018	Private foundation	Fuzzy filed as “NATIONAL SPASMODIC DYSPHONIA ASSOCIATION”	show

Nearby + Similar BETA

Organizations like this one: what they do and who they are linked to

Organizations like this one

Same category: NTEE code and revenue

Ranked without any AI: same NTEE code first, then the same NTEE group; then revenue within 2x, 5x or 10x; then the same state; then similar name and mission text. NTEE: the IRS’s code when it lists one, otherwise FURP’s inferred code. Same state only · More (100)

Organization	State	NTEE	Latest revenue	Latest expenses	Top-paid title	Top pay	Why similar
WRITERS PLANNERS TRAINERS	IL	G81	$520,236	$423,150	CHAIRMAN OF THE BOARD/PRESIDENT	$0	Same NTEE code G81, same state
MOTHER AND CHILD ALLIANCE	IL	G81	$2,003,314	$1,981,894	Executive Dir.	$203,916	Same NTEE code G81, same state
SICKLE SCHMICKLE NFP	IL	G81	$14,082	$10,477	DIRECTOR	$0	Same NTEE code G81, same state
FACE Aids	IL	G81	$228,030	$211,994	Prior Exec Dir	$48,000	Same NTEE code G81, same state
PROJECT HOPEFUL NFP	IL	G81	$17,258	$21,007	Executive Dir.	$0	Same NTEE code G81, same state
Have a Heart for Sickle Cell Anemia	IL	G81	$3,143	$20,612	President	$0	Same NTEE code G81, same state
MAKING A DAILY EFFORT	IL	G81	$169,667	$74,897	PresidentED	$13,443	Same NTEE code G81, same state
INTERNATIONAL AIDS EDUCATION PROJECTINC	IL	G81	$0	-	EXECUTIVE DIRECTOR	$0	Same NTEE code G81, same state
PRIZE4LIFE INC	IL	G81	$59	$1,812	DIRECTOR	$0	Same NTEE code G81, same state
Alzheimers Disease and Related Disorders Association	NM	G81	$1,230,150	$1,199,934	Executive Director	$88,066	Same NTEE code G81, similar mission
ADAP ADVOCACY ASSOCIATION	NC	G81	$580,068	$532,048	Board Member	$0	Same NTEE code G81
HAIRY CELL LEUKEMIA FOUNDATION	NY	G81	$1,112,293	$1,502,176	EXECUTIVE DIRECTOR	$158,940	Same NTEE code G81, similar mission
DOWN SYNDROME ASSOCIATION OF ORANGE COUNTY	CA	G81	$486,738	$411,704	EXECUTIVE DIR.	$69,935	Same NTEE code G81
INTERNATIONAL FRIENDS OF ELTON JOHN AIDS	NY	G81	$305,257	$303,619	DIRECTOR, PRESIDENT AND TR	$0	Same NTEE code G81
SELF PROTECTION AWARENESS (SPA)	VA	G81	$4,559	$7,197	CHAIRPERSON	$0	Same NTEE code G81
NATIONAL BLACK LEADERSHIP COMMISSION ON AIDS INC	NY	G81	$1,913,153	$1,979,895	CEO	$187,274	Same NTEE code G81
XEL FOUNDATION	PA	G81	$661,720	$50,099	PRESIDENT/CHAIR/DIR	$0	Same NTEE code G81, similar mission
AMERICAN AUTOIMMUNE RELATED DISEASES ASSOCIATION	MI	G81	$2,965,208	$2,303,003	PRESIDENT & CEO	$239,899	Same NTEE code G81
NATIONAL MULTIPLE SCLEROSIS SOCIETY	CA	G81	$0	$0	TRUSTEE	$0	Same NTEE code G81
COALITION FOR HIV AWARENESS AND PREVENTION OF CENTRAL VIRGINIA	VA	G81	$70,415	$47,451	Treasurer	$0	Same NTEE code G81
AMYOTROPHIC LATERAL SCLEROSIS ASSOC	CA	G81	$15,576	$305	VICE CHAIR, SEC	$0	Same NTEE code G81
ICG FOUNDATION	FL	G81	$61,208	-	PRESIDENT	$0	Same NTEE code G81
ALZHEIMERS DISEASE FOUNDATION INC	MN	G81	$245,823	$174,506	CEO	$319,903	Same NTEE code G81
AIDS WALK SAN FRANCISCO FOUNDATION	CA	G81	$1,041,018	$974,554	Treasurer	$0	Same NTEE code G81
MARIO A FINNELL ALS FOUNDATION	TX	G81	$65,848	$41,358	BOARD OF DIR	$0	Same NTEE code G81

Who funds organizations like this

Grantors that funded the 100 most similar organizations. Ranked by total given to them. Foundations (990-PF) and donor-advised fund sponsors only. Same matching as Funders above (by EIN, or by name for foundations).

Grantor	Total given	Grants	Organizations funded	Type	Years	Which ones
FIDELITY INVESTMENTS CHARITABLE GIFT FUND funds this one	$11,969,540	89	22	DAF sponsor	2016–2024	HAIRY CELL LEUKEMIA FOUNDATION; LuMind IDSC Foundation; YOUNG 1OVE FOUNDATION; GLOBAL FORUM ON MSM & HIV and 18 more
VALLEY FUND CHARITABLE FOUNDATION	$4,250,000	5	1	Private foundation	2019–2024	LuMind IDSC Foundation
YALE UNIVERSITY	$3,615,332	15	1	DAF sponsor	2009–2023	APNH A PLACE TO NOURISH YOUR HEALTH
FORGOOD INC funds this one	$2,654,039	89	18	DAF sponsor	2010–2024	AIDS LEGAL REFERRAL PANEL OF THE SAN FRANCISCO BAY AREA; WASHINGTON AREA CONSORTIUM OF HIV; LuMind IDSC Foundation; NATIONAL AIDS MEMORIAL INC and 14 more
DONOR ADVISED CHARITABLE GIVING funds this one	$2,539,506	100	25	DAF sponsor	2014–2024	YOUNG 1OVE FOUNDATION; LuMind IDSC Foundation; EQUESTRIAN AID FOUNDATION INC; HIV RESOURCE CONSORTIUM INC and 21 more
THE SUSAN THOMPSON BUFFETT FOUNDATION	$2,115,560	19	2	Private foundation	2011–2025	WOMEN WITH A VISION; SONOMA COUNTY ACADEMIC FOUNDATION FOR EXCELLENCE IN MEDICINE
FORD FOUNDATION	$1,600,000	13	1	Private foundation	2010–2018	NATIONAL BLACK LEADERSHIP COMMISSION ON AIDS INC
ROCKEFELLER PHILANTHROPY ADVISORS INC	$1,587,000	9	3	DAF sponsor	2011–2023	WOMEN WITH A VISION; HAIRY CELL LEUKEMIA FOUNDATION; LuMind IDSC Foundation
AMERICAN ONLINE GIVING FOUNDATION INC funds this one	$1,465,501	72	23	DAF sponsor	2019–2025	LuMind IDSC Foundation; CREUTZFELDT-JAKOB DISEASE FOUNDATION INC; AIDS WALK SAN FRANCISCO FOUNDATION; NATIONAL AIDS MEMORIAL INC and 19 more
FOUNDATION FOR A JUST SOCIETY	$1,050,000	6	1	Private foundation	2020–2024	WOMEN WITH A VISION
VANGUARD CHARITABLE ENDOWMENT PROGRAM	$1,044,247	10	5	DAF sponsor	2020–2024	LuMind IDSC Foundation; AMYOTROPHIC LATERAL SCLEROSIS; CREUTZFELDT-JAKOB DISEASE FOUNDATION INC; AIDS LEGAL REFERRAL PANEL OF THE SAN FRANCISCO BAY AREA and 1 more
SILICON VALLEY COMMUNITY FOUNDATION funds this one	$1,023,628	22	10	DAF sponsor	2010–2024	HAIRY CELL LEUKEMIA FOUNDATION; WOMEN WITH A VISION; FACE Aids; YOUNG 1OVE FOUNDATION and 6 more
TULSA COMMUNITY FOUNDATION	$837,292	10	1	DAF sponsor	2012–2024	HIV RESOURCE CONSORTIUM INC
MARGUERITE CASEY FOUNDATION	$825,000	4	1	Private foundation	2019–2023	WOMEN WITH A VISION
MULAGO FOUNDATION	$775,000	4	1	Private foundation	2022–2024	YOUNG 1OVE FOUNDATION

The full list · all similar organizations

Where the money went

Every expense line on each return, biggest first: Form 990 Part IX (with its program, management and fundraising columns), 990-EZ Part I, or 990-PF Part I. Event marks lines the organization itself describes as events. “Events” in each summary adds those lines, conferences and meetings, and the direct costs of fundraising events. Unusual is not the same as improper. Many of these patterns have ordinary explanations. Check the filing.

2021 · Form 990 · $536,887 spent · pay $130,535 · grants $174,955 · events $1,172

Line	As described	Total	Program	Management	Fundraising	Share
Grants to US organizations and governments		$174,955	$174,955	-	-	32.6%
Other (as described)	ADMINISTRATION	$121,977	$97,564	$12,226	$12,187	22.7%
Pay: officers, directors, trustees, key employees		$92,887	$74,309	$9,289	$9,289	17.3%
Other (as described)	DEVELOPMENT	$34,151	$27,847	$3,622	$2,682	6.4%
Other salaries and wages		$29,023	$23,219	$2,902	$2,902	5.4%
All other expenses		$15,136	$14,241	$448	$447	2.8%
Other (as described)	NEWSLETTER	$13,500	$13,500	-	-	2.5%
Fees: accounting		$13,369	$10,695	$1,337	$1,337	2.5%
Fees: investment management		$12,180	-	$12,180	-	2.3%
Other (as described)	AWARENESS / SUPPORT	$11,812	$10,951	$430	$431	2.2%
Payroll taxes		$8,625	$6,900	$863	$862	1.6%
Occupancy		$8,100	$6,480	$810	$810	1.5%
Conferences, conventions and meetings		$1,172	$1,083	$45	$44	0.2%
Total		$536,887				100%

View the filing

2020 · Form 990 · $288,490 spent · pay $117,826 · grants $75,000 · events $1,284

Line	As described	Total	Program	Management	Fundraising	Share
Pay: officers, directors, trustees, key employees		$84,861	$67,889	$8,486	$8,486	29.4%
Grants to US organizations and governments		$75,000	$75,000	-	-	26.0%
Other salaries and wages		$25,322	$20,256	$2,533	$2,533	8.8%
Other (as described)	ADMINISTRATION	$21,685	$17,085	$2,018	$2,582	7.5%
All other expenses		$17,174	$13,904	$430	$2,840	6.0%
Other (as described)	NEWSLETTER	$14,105	$13,745	$180	$180	4.9%
Fees: accounting		$12,103	$9,682	$1,211	$1,210	4.2%
Other (as described)	AWARENESS / SUPPORT	$9,397	$8,681	$358	$358	3.3%
Occupancy		$8,100	$6,480	$810	$810	2.8%
Other (as described)	ADVOCACY	$8,057	$8,057	-	-	2.8%
Payroll taxes		$7,643	$6,115	$764	$764	2.6%
Fees: investment management		$3,759	-	$3,759	-	1.3%
Conferences, conventions and meetings		$1,284	$1,240	$22	$22	0.4%
Total		$288,490				100%

View the filing

2019 · Form 990 · $322,719 spent · pay $126,082 · grants $51,000 · events $54,070

Line	As described	Total	Program	Management	Fundraising	Share
Pay: officers, directors, trustees, key employees		$82,191	$65,753	$8,219	$8,219	25.5%
Conferences, conventions and meetings		$54,070	$52,536	$767	$767	16.8%
Grants to US organizations and governments		$51,000	$51,000	-	-	15.8%
Other salaries and wages		$35,344	$28,276	$3,534	$3,534	11.0%
Other (as described)	ADMINISTRATION	$23,531	$19,181	$2,175	$2,175	7.3%
Other (as described)	OTHER RESEARCH COSTS	$15,433	$15,433	-	-	4.8%
Fees: accounting		$12,394	$9,916	$1,239	$1,239	3.8%
All other expenses		$11,572	$7,601	$141	$3,830	3.6%
Other (as described)	AWARENESS / SUPPORT	$11,319	$10,641	$339	$339	3.5%
Payroll taxes		$8,547	$6,837	$855	$855	2.6%
Occupancy		$8,226	$6,580	$823	$823	2.5%
Other (as described)	PRINTING	$6,085	$5,860	-	$225	1.9%
Fees: investment management		$3,007	-	$3,007	-	0.9%
Total		$322,719				100%

View the filing

2018 · Form 990 · $313,309 spent · pay $134,612 · grants $59,338 · events $19,610

Line	As described	Total	Program	Management	Fundraising	Share
Pay: officers, directors, trustees, key employees		$78,000	$62,400	$7,800	$7,800	24.9%
Grants to US organizations and governments		$59,338	$59,338	-	-	18.9%
Other salaries and wages		$47,822	$38,486	$5,050	$4,286	15.3%
All other expenses		$22,459	$17,732	$3,863	$864	7.2%
Other (as described)	ADMINISTRATION	$19,965	$16,177	$1,894	$1,894	6.4%
Conferences, conventions and meetings		$19,610	$18,445	$583	$582	6.3%
Other (as described)	OTHER RESEARCH COSTS	$12,852	$12,832	$10	$10	4.1%
Other (as described)	NEWSLETTER	$11,825	$11,705	$60	$60	3.8%
Other (as described)	AWARENESS / SUPPORT	$11,158	$10,820	$169	$169	3.6%
Fees: accounting		$10,113	$8,090	$1,011	$1,012	3.2%
Occupancy		$8,837	$7,070	$884	$883	2.8%
Payroll taxes		$8,790	$7,032	$879	$879	2.8%
Fees: investment management		$2,540	-	$2,540	-	0.8%
Total		$313,309				100%

View the filing

2017 · Form 990 · $267,085 spent · pay $107,155 · grants $25,000 · events $28,490

Line	As described	Total	Program	Management	Fundraising	Share
Pay: officers, directors, trustees, key employees		$86,557	$69,805	$8,376	$8,376	32.4%
Conferences, conventions and meetings		$28,490	$27,870	$310	$310	10.7%
Grants to US organizations and governments		$25,000	$25,000	-	-	9.4%
Other (as described)	ADMINISTRATION	$23,219	$18,717	$2,251	$2,251	8.7%
All other expenses		$19,475	$18,369	$335	$771	7.3%
Other (as described)	AWARENESS / SUPPORT	$19,244	$19,206	$19	$19	7.2%
Other salaries and wages		$13,674	$10,940	$1,367	$1,367	5.1%
Other (as described)	NEWSLETTER	$12,405	$11,925	$240	$240	4.6%
Other (as described)	ADVOCACY	$11,348	$11,348	$0	$0	4.2%
Fees: accounting		$9,583	$7,667	$958	$958	3.6%
Occupancy		$8,715	$6,973	$871	$871	3.3%
Payroll taxes		$6,924	$5,540	$692	$692	2.6%
Fees: investment management		$2,451	-	$2,451	-	0.9%
Total		$267,085				100%

View the filing

2016 · Form 990 · $256,872 spent · pay $104,018 · grants $26,100 · events $21,241

Line	As described	Total	Program	Management	Fundraising	Share
Pay: officers, directors, trustees, key employees		$82,285	$65,829	$8,228	$8,228	32.0%
Grants outside the US		$25,000	$25,000	-	-	9.7%
Conferences, conventions and meetings		$21,241	$20,467	$387	$387	8.3%
Other (as described)	ADMINISTRATION	$19,926	$16,571	$1,698	$1,657	7.8%
All other expenses		$19,782	$16,000	$471	$3,311	7.7%
Other (as described)	AWARENESS/SUPPORT	$16,357	$15,519	$419	$419	6.4%
Other (as described)	ADVOCACY	$16,193	$16,193	-	-	6.3%
Other salaries and wages		$14,716	$11,772	$1,472	$1,472	5.7%
Other (as described)	NEWSLETTER	$13,845	$13,845	-	-	5.4%
Fees: accounting		$8,965	$7,172	$897	$896	3.5%
Occupancy		$8,715	$6,971	$872	$872	3.4%
Payroll taxes		$7,017	$5,613	$702	$702	2.7%
Fees: investment management		$1,730	-	$1,730	-	0.7%
Grants to US organizations and governments		$600	$600	-	-	0.2%
Grants to US individuals		$500	$500	-	-	0.2%
Total		$256,872				100%

View the filing

2015 · Form 990 · $275,905 spent · pay $101,998 · grants $25,000 · events $53,808

Line	As described	Total	Program	Management	Fundraising	Share
Pay: officers, directors, trustees, key employees		$82,038	$65,630	$8,204	$8,204	29.7%
Conferences, conventions and meetings		$53,808	$52,336	$736	$736	19.5%
Grants to US organizations and governments		$25,000	$25,000	-	-	9.1%
Other (as described)	AWARENESS/SUPPORT	$20,550	$20,032	$259	$259	7.4%
All other expenses		$18,724	$13,789	$296	$4,639	6.8%
Other (as described)	ADMINISTRATION	$18,683	$15,544	$1,577	$1,562	6.8%
Other salaries and wages		$13,098	$10,478	$1,310	$1,310	4.7%
Other (as described)	NEWSLETTER	$9,669	$9,669	-	-	3.5%
Fees: accounting		$9,188	$7,350	$919	$919	3.3%
Occupancy		$8,734	$6,988	$873	$873	3.2%
Other (as described)	ADVOCACY	$8,167	$8,167	-	-	3.0%
Payroll taxes		$6,862	$5,490	$686	$686	2.5%
Fees: investment management		$1,384	-	$1,384	-	0.5%
Total		$275,905				100%

View the filing

2014 · Form 990 · $275,163 spent · pay $103,835 · grants $45,000 · events $41,336

Line	As described	Total	Program	Management	Fundraising	Share
Pay: officers, directors, trustees, key employees		$82,941	$66,353	$8,294	$8,294	30.1%
Grants to US organizations and governments		$45,000	$45,000	-	-	16.4%
Conferences, conventions and meetings		$38,208	$37,561	$323	$324	13.9%
All other expenses		$19,813	$17,620	$379	$1,814	7.2%
Other (as described)	ADMINISTRATION	$17,097	$14,101	$1,579	$1,417	6.2%
Other (as described)	AWARENESS/SUPPORT	$17,070	$15,716	$677	$677	6.2%
Other salaries and wages		$13,927	$11,141	$1,393	$1,393	5.1%
Fees: accounting		$9,888	$7,910	$989	$989	3.6%
Occupancy		$8,748	$6,998	$875	$875	3.2%
Other (as described)	NEWSLETTER	$7,936	$7,936	-	-	2.9%
Payroll taxes		$6,967	$5,588	$682	$697	2.5%
Other (as described)	DEVELOPMENT	$6,721	$195	-	$6,526	2.4%
Fees: investment management		$847	-	$847	-	0.3%
Fundraising events Event	direct expenses; gross income $3,128	$3,128				reported apart
Total		$275,163				100%

View the filing

2013 · Form 990 · $221,680 spent · pay $97,183 · grants $0 · events $39,885

Line	As described	Total	Program	Management	Fundraising	Share
Pay: officers, directors, trustees, key employees		$77,307	$61,845	$7,731	$7,731	34.9%
Conferences, conventions and meetings		$39,885	$38,963	$461	$461	18.0%
All other expenses		$19,558	$12,624	$313	$6,621	8.8%
Other (as described)	NEWSLETTER	$15,585	$14,885	$350	$350	7.0%
Other (as described)	ADMINISTRATION	$14,454	$11,401	$1,669	$1,384	6.5%
Other salaries and wages		$13,358	$10,686	$1,336	$1,336	6.0%
Fees: accounting		$10,236	$8,188	$1,024	$1,024	4.6%
Occupancy		$8,661	$6,929	$866	$866	3.9%
Other (as described)	AWARENESS/SUPPORT	$8,571	$8,571	-	-	3.9%
Other (as described)	Printing and Publications	$7,088	$7,062	$13	$13	3.2%
Payroll taxes		$6,518	$5,214	$652	$652	2.9%
Fees: investment management		$336	-	$336	-	0.2%
Fees: other services		$123	$99	$12	$12	0.1%
Total		$221,680				100%

View the filing

2012 · Form 990 · $236,862 spent · pay $96,579 · grants $34,250 · events $26,201

Line	As described	Total	Program	Management	Fundraising	Share
Pay: officers, directors, trustees, key employees		$76,933	$61,547	$7,693	$7,693	32.5%
Grants to US organizations and governments		$34,250	$34,250	-	-	14.5%
Conferences, conventions and meetings		$26,201	$25,717	$267	$217	11.1%
Other (as described)	AWARENESS/SUPPORT	$14,973	$14,815	$79	$79	6.3%
Other (as described)	ADMINISTRATION	$14,662	$11,810	$1,570	$1,282	6.2%
Other salaries and wages		$13,143	$10,514	$1,315	$1,314	5.5%
All other expenses		$11,704	$6,957	$310	$4,437	4.9%
Other (as described)	NEWSLETTER	$11,084	$8,991	$1,046	$1,047	4.7%
Fees: accounting		$10,765	$4,000	$6,265	$500	4.5%
Occupancy		$8,772	$7,018	$877	$877	3.7%
Other (as described)	ADVOCACY	$7,872	$7,872	-	-	3.3%
Payroll taxes		$6,503	$5,203	$650	$650	2.7%
Total		$236,862				100%

View the filing

2011 · Form 990 · $246,271 spent · pay $94,888 · grants $11,065 · events $44,000

Line	As described	Total	Program	Management	Fundraising	Share
Pay: officers, directors, trustees, key employees		$74,650	$59,719	$7,466	$7,465	30.3%
Conferences, conventions and meetings		$44,000	$43,194	$496	$310	17.9%
Other (as described)	NEWSLETTER	$25,558	$20,446	$2,556	$2,556	10.4%
Other (as described)	AWARENESS/SUPPORT	$15,818	$15,772	$23	$23	6.4%
Other (as described)	ADMINISTRATION	$15,481	$11,307	$2,866	$1,308	6.3%
Other salaries and wages		$13,672	$11,218	$1,052	$1,402	5.6%
Grants to US organizations and governments		$11,065	$11,065	-	-	4.5%
Occupancy		$8,915	$7,132	$891	$892	3.6%
All other expenses		$7,690	$3,859	$364	$3,467	3.1%
Other (as described)	Printing and Publications	$7,086	$5,932	$380	$774	2.9%
Other (as described)	ADVOCACY	$6,755	$6,755	-	-	2.7%
Payroll taxes		$6,566	$5,271	$637	$658	2.7%
Fees: accounting		$5,000	$4,000	$500	$500	2.0%
Fees: other services		$4,015	-	$4,015	-	1.6%
Total		$246,271				100%

View the filing

2010 · Form 990 · $239,745 spent · pay $93,117 · grants $19,885 · events $18,696

Line	As described	Total	Program	Management	Fundraising	Share
Pay: officers, directors, trustees, key employees		$73,999	$59,199	$7,400	$7,400	30.9%
Other (as described)	NEWSLETTER	$24,323	$22,679	$200	$1,444	10.1%
Other (as described)	AWARENESS/SUPPORT	$19,926	$19,926	-	-	8.3%
Grants to US organizations and governments		$19,885	$19,885	-	-	8.3%
Conferences, conventions and meetings		$18,696	$17,347	$829	$520	7.8%
Other (as described)	ADVOCACY	$14,896	$14,896	-	-	6.2%
Other salaries and wages		$12,618	$10,094	$1,262	$1,262	5.3%
Other (as described)	ADMINISTRATION	$12,016	$9,176	$1,828	$1,012	5.0%
All other expenses		$11,373	$5,160	$339	$5,874	4.7%
Occupancy		$8,941	$7,153	$894	$894	3.7%
Payroll taxes		$6,500	$5,200	$650	$650	2.7%
Fees: other services		$5,841	$180	$5,638	$23	2.4%
Other (as described)	Printing and Publications	$5,731	$5,617	$57	$57	2.4%
Fees: accounting		$5,000	$4,000	$500	$500	2.1%
Total		$239,745				100%

View the filing

Federal grants and contracts

Awards from USAspending.gov to a recipient with this organization's name and zip code. Obligations by federal fiscal year (October to September); each award links to its page on usaspending.gov.

Fiscal year	Grants and other assistance	Contracts	Awards
2020	$0	$0	1

Largest awards · 0 shown

Year	Agency	Kind	Program	Description	Obligated

In the news

184 news articles name this organization (May 2015 to January 2026); the latest 10:

On This Day in 2021, We Lost the Early Rock Star Who Shared an Eerie Connection With the "Father of Country Music"
americansongwriter.com, January 19, 2026
ADHD Drugs' Mechanism Misunderstood
miragenews.com, December 29, 2025
Brain imaging reveals how stimulant drugs improve performance in ADHD
news-medical.net, December 27, 2025
Brain Study Of 12,000 Kids Rewrites How Doctors Thought ADHD Medications Work
studyfinds.org, December 25, 2025
ADHD Stimulant Meds: New Insights on Effectiveness
miragenews.com, December 24, 2025
The uneasy history of horror films and disability
philstar.com, October 31, 2025
The uneasy history of horror films and disability
theconversation.com, October 21, 2025
'Magic mushrooms' work by scrambling key brain network
futurity.org, July 22, 2024
Spasmodic Dysphonia Treatment Market Poised for Unbelievable Expansion of USD 17 Billion by 2030
businessinsider.com, October 10, 2023
RFK Jr. Explains the Evolution of His Vocal Condition
theepochtimes.com, June 30, 2023

News article metadata and links: The GDELT Project (https://www.gdeltproject.org/). Matched by: Exact name match: "national spasmodic dysphonia association". A shared name is not proof of the same organization; how the matching works. Most in the news.

Also on this site Fuzzy

Record	Name as filed	Where	Dataset	Matched by
Nonprofit	DYSPHONIA INTERNATIONAL INC	IL	Nonprofits (IRS Form 990)	same street address and ZIP code, 300 PARK BLVD STE 280 60143 (FUZZY: a shared address, not proof of a shared organization)

Matched by an identifier (EIN, CIK, CRD), by name and state or city, or by street address; a shared name or address is not proof of the same person or organization. Every link says how it was made; how the cross-referencing works.

Others with the same interests

NTEE code AIDS, IL first:

More with this interest.

In other datasets, the same topic (Health) in IL:

Lobbying client: 32 BIOSCIENCES (Federal lobbying (LDA))

Interests: AIDS · science:research_education · Health

The area Census

County outline, the place (blue), the tract (orange) and the ZIP center (dot).

In Census Tract 8402.01, DuPage County, Illinois, place (city or town) Itasca, IL, county DuPage County, IL, state Illinois; placed by its ZIP code (county and tract) and city name (place). The tract is the tract holding most of the record's ZIP code (FURP does not geocode street addresses).

KIMBERLY KUMAN was paid $96,423, 0.8 times the median household income in Itasca, IL ($114,294), where 2.0% of residents live in poverty.

Measure	Census tract Census Tract 8402.01, DuPage County, Illinois	Place (city or town) Itasca, IL	County DuPage County, IL	State Illinois
Population B01003	6,189	9,355	930,024	12,694,798
Population, 2020 census P1	6,348	9,543	932,877	12,812,508
Median age B01002	45.3	43.1	40.2	39.0
Under 18 B01001	18.7%	21.0%	22.2%	21.8%
65 and over B01001	15.4%	14.6%	17.3%	17.0%
Households B11001	2,572	3,754	350,758	5,036,449
Foreign born B05002	25.2%	23.9%	20.5%	14.7%
Median household income B19013	$121,486	$114,294	$112,096	$83,390
Median family income B19113	$117,412	$115,859	$138,559	$106,018
Per capita income B19301	$72,117	$62,712	$58,189	$46,406
Poverty rate B17001	1.1%	2.0%	6.6%	11.8%
Unemployment rate B23025	2.6%	2.6%	4.9%	5.8%
Civilian labor force B23025	3,760	5,463	509,668	6,652,134
Mean commute (minutes) B08013	25.6	25.9	27.7	27.8
Bachelor's degree or higher B15003	58.4%	52.9%	51.8%	37.8%
Housing units B25001	2,816	4,087	367,152	5,457,452
Owner-occupied B25003	78.9%	69.3%	73.1%	67.1%
Renters B25003	21.1%	30.7%	26.9%	32.9%
Median home value B25077	$392,500	$390,800	$391,400	$263,300
Median gross rent B25064	$2,242	$1,892	$1,688	$1,274
White, not Hispanic B03002	68.9%	67.1%	62.2%	58.1%
Black B03002	0.3%	0.4%	4.8%	13.3%
Hispanic or Latino B03002	8.4%	13.7%	16.1%	18.8%
Asian B03002	16.0%	13.3%	13.0%	5.9%
American Indian and Alaska Native B03002	0.0%	0.0%	0.0%	0.1%

Economy now FRED unemployment 4.6% in Sep 2026 (4.5% a year earlier); per capita personal income $78,987 in 2025, up 28% in five years (+3.1% after inflation); the state; Source: FRED, Federal Reserve Bank of St. Louis.

Data: IPUMS NHGIS (ACS 2020-2024 and the 2020 census); each figure links to its table for that area at data.census.gov. Records are placed by ZIP code and city name, not street address. More: everything FURP has in Census Tract 8402.01, DuPage County, Illinois.

NATIONAL SPASMODIC DYSPHONIA ASSOCIATION

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The area Census

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