NATIONAL SPASMODIC DYSPHONIA ASSOCIATION: Form 990, tax year 2011
View the entire original 990 at ProPublica ↗
- Organization
- NATIONAL SPASMODIC DYSPHONIA ASSOCIATION (EIN 38-2918042)
- Tax period
- 2011-04-01 to 2012-03-31
- Filed
- 2012-09-28
- IRS object ID
- 201222729349300532
- Schema version
- 2011v1.2
- Source
- Download XML · Original 990 at ProPublica
Every field in the e-filed return. Faint text is the IRS element name, for citing.
Return header ReturnHeader
| Field | Value | IRS element (for citing) |
|---|---|---|
| Timestamp | 2012-09-28T16:00:10-07:00 | Timestamp |
| Tax Period End Date | 2012-03-31 | TaxPeriodEndDate |
Preparer Firm PreparerFirm
Preparer Firm Business Name PreparerFirmBusinessName
| Field | Value | IRS element (for citing) |
|---|---|---|
| Business Name Line1 | GAIL L MATHEWS & ASSOCIATES LLC | BusinessNameLine1 |
Preparer Firm US Address PreparerFirmUSAddress
| Field | Value | IRS element (for citing) |
|---|---|---|
| Address Line1 | 800 ROOSEVELT RD BLDG C STE 202 | AddressLine1 |
| City | GLEN ELLYN | City |
| State | IL | State |
| ZIP Code | 60137 | ZIPCode |
| Field | Value | IRS element (for citing) |
|---|---|---|
| Return Type | 990 | ReturnType |
| Tax Period Begin Date | 2011-04-01 | TaxPeriodBeginDate |
Filer Filer
| Field | Value | IRS element (for citing) |
|---|---|---|
| EIN | 382918042 | EIN |
Name Name
| Field | Value | IRS element (for citing) |
|---|---|---|
| Business Name Line1 | NATIONAL SPASMODIC DYSPHONIA ASSOC INC | BusinessNameLine1 |
| Field | Value | IRS element (for citing) |
|---|---|---|
| Name Control | NATI | NameControl |
| Phone | 8007956732 | Phone |
US Address USAddress
| Field | Value | IRS element (for citing) |
|---|---|---|
| Address Line1 | 300 PARK BOULEVARD | AddressLine1 |
| City | ITASCA | City |
| State | IL | State |
| ZIP Code | 60143 | ZIPCode |
Officer Officer
| Field | Value | IRS element (for citing) |
|---|---|---|
| Name | CHARLIE REAVIS | Name |
| Title | President | Title |
| Date Signed | 2012-09-26 | DateSigned |
| Authorize Third Party | true | AuthorizeThirdParty |
Preparer Preparer
| Field | Value | IRS element (for citing) |
|---|---|---|
| Name | GAIL L MATHEWS | Name |
| Phone | 6307939390 | Phone |
| Field | Value | IRS element (for citing) |
|---|---|---|
| Tax Year | 2011 | TaxYear |
| Build TS | 2016-02-24 21:20:13Z | BuildTS |
Form 990 IRS990
| Field | Value | IRS element (for citing) |
|---|---|---|
| Name Of Principal Officer Person | KIMBERLY KUMAN | NameOfPrincipalOfficerPerson |
Address Principal Officer US AddressPrincipalOfficerUS
| Field | Value | IRS element (for citing) |
|---|---|---|
| Address Line1 | 300 PARK BOULEVARD | AddressLine1 |
| City | ITASCA | City |
| State | IL | State |
| ZIP Code | 60143 | ZIPCode |
| Field | Value | IRS element (for citing) |
|---|---|---|
| Gross Receipts | 539658 | GrossReceipts |
| Group Return For Affiliates | false | GroupReturnForAffiliates |
| All Affiliates Included | false | AllAffiliatesIncluded |
| Organization501c3 | X | Organization501c3 |
| Web Site | WWW. DYSPHONIA.ORG | WebSite |
| Type Of Organization Corporation | X | TypeOfOrganizationCorporation |
| Year Formation | 1989 | YearFormation |
| State Legal Domicile | IL | StateLegalDomicile |
| Activity Or Mission Description | THE MISSION OF THE NATIONAL SPASMODIC DYSPHONIA ASSOCIATION IS TO ADVANCE MEDICAL RESEARCH INTO THE CAUSES OF AND TREATMENTS FOR SPASMODIC DYSPHONIA, PROMOTE PHYSICIAN AND PUBLIC AWARENESS OF THE DISORDER, AND PROVIDE SUPPORT TO THOSE AFFECTED BY SPASMODIC DYSPHONIA. | ActivityOrMissionDescription |
| Nbr Voting Members Governing Body | 9 | NbrVotingMembersGoverningBody |
| Nbr Independent Voting Members | 9 | NbrIndependentVotingMembers |
| Total Nbr Employees | 3 | TotalNbrEmployees |
| Total Nbr Volunteers | 400 | TotalNbrVolunteers |
| Total Gross UBI | 0 | TotalGrossUBI |
| Contributions Grants Prior Year | 185979 | ContributionsGrantsPriorYear |
| Contributions Grants Current Year | 215952 | ContributionsGrantsCurrentYear |
| Program Service Revenue Prior Year | 1150 | ProgramServiceRevenuePriorYear |
| Program Service Revenue CY | 6910 | ProgramServiceRevenueCY |
| Investment Income Prior Year | 5568 | InvestmentIncomePriorYear |
| Investment Income Current Year | 1209 | InvestmentIncomeCurrentYear |
| Other Revenue Prior Year | 2165 | OtherRevenuePriorYear |
| Other Revenue Current Year | 5383 | OtherRevenueCurrentYear |
| Total Revenue Prior Year | 194862 | TotalRevenuePriorYear |
| Total Revenue Current Year | 229454 | TotalRevenueCurrentYear |
| Grants And Similar Amnts Prior Year | 19885 | GrantsAndSimilarAmntsPriorYear |
| Grants And Similar Amnts CY | 11065 | GrantsAndSimilarAmntsCY |
| Benefits Paid To Members CY | 0 | BenefitsPaidToMembersCY |
| Salaries Etc Prior Year | 93117 | SalariesEtcPriorYear |
| Salaries Etc Current Year | 94888 | SalariesEtcCurrentYear |
| Total Prof Fundrsng Exp CY | 0 | TotalProfFundrsngExpCY |
| Total Fundrsng Exp Current Year | 19355 | TotalFundrsngExpCurrentYear |
| Other Expense Prior Year | 126743 | OtherExpensePriorYear |
| Other Expenses Current Year | 140318 | OtherExpensesCurrentYear |
| Total Expenses Prior Year | 239745 | TotalExpensesPriorYear |
| Total Expenses Current Year | 246271 | TotalExpensesCurrentYear |
| Revenues Less Expenses Prior Year | -44883 | RevenuesLessExpensesPriorYear |
| Revenues Less Expenses CY | -16817 | RevenuesLessExpensesCY |
| Total Assets BOY | 537713 | TotalAssetsBOY |
| Total Assets EOY | 532354 | TotalAssetsEOY |
| Total Liabilities BOY | 2715 | TotalLiabilitiesBOY |
| Total Liabilities EOY | 13168 | TotalLiabilitiesEOY |
| Net Assets Or Fund Balances BOY | 534998 | NetAssetsOrFundBalancesBOY |
| Net Assets Or Fund Balances EOY | 519186 | NetAssetsOrFundBalancesEOY |
| Mission Description | THE MISSION OF THE NATIONAL SPASMODIC DYSPHONIA ASSOCIATION IS TO ADVANCE MEDICAL RESEARCH INTO THE CAUSES OF AND TREATMENTS FOR SPASMODIC DYSPHONIA, PROMOTE PHYSICIAN AND PUBLIC AWARENESS OF THE DISORDER, AND PROVIDE SUPPORT TO THOSE AFFECTED BY SPASMODIC DYSPHONIA THROUGH SYMPOSIUMS, SUPPORT GROUPS, AND ON-LINE RESOURCES. sPASMODIC DYSPHONIA IS A NEUROLOGICAL VOICE DISORDER THAT INVOLVES "SPASMS" OF THE VOCAL CORDS CAUSING INTERRUPTIONS OF SPEECH AND AFFECTING THE VOICE QUALITY. THE NSDA IS COMPRISED OF PEOPLE WITH sd, HEALTHCARE PROFESSIONALS, VOLUNTEERS, FRIENDS, AND FAMILIES. IT IS THE ONLY ORGANIZATION DEDICATED SOLELY TO THE SD COMMUNITY. | MissionDescription |
| Significant New Program Services | false | SignificantNewProgramServices |
| Significant Change | false | SignificantChange |
| Expense | 115396 | Expense |
| Description | OUTREACH-THROUGH OUTREACH, EDUCATION, AND ADVOCACY, THE NSDA RAISES THE PROFILE OF SD IN THE COMMUNITY, ALLOWING FOR QUICKER DIAGNOSIS, BETTER UNDERSTANDING, AND MORE ACCEPTANCE OF THIS DISORDER. THIS IS ACHIEVED THROUGH THE MAINTENANCE OF A HEALTHCARE REFERRAL DIRECTORY OF CLOSE TO 600 HEALTHCARE PROFESSIONALS THAT SPECIALIZE IN SD; ADVOCATING FOR PEOPLE WITH SD THROUGH THE DYSTONIA ADVOCACY NETWORK, EXHIBITING AT PROFESSIONAL MEDICAL EDUCATIONAL CONFERENCES TO REACH OUT TO HEALTHCARE PROFESSIONALS TREATING SD; PROMOTING AWARENESS EVENTS SUCH AS WORLD VOICE DAY (APRIL 16); HOSTING A NATIONAL SYMPOSIUM (MAY 2011 AND A REGIONAL SYMPOSIUM (SEPTEMBER 2011) TO PROVIDE A LEARNING ENVIRONMENT IN WHICH PEOPLE WITH SD MAY ENHANCE THEIR UNDERSTANDING OF THE DISORDER; PUBLISHING THE NEWSLETTER, OUR VOICE, TWICE A YEAR THAT CONTAINS UPDATES ON RESEARCH, AWARENESS, AND SUPPORT. THE NSDA WEBSITE (WWW.DYSPHONIA.ORG) PROVIDES EDUCATION AND SUPPORT ALONG WITH VOICE SAMPLES, VIDEO CLIPS AND INFORMATION ON TREATMENT, SUPPORT, EVENTS, AND THE LATEST NEWS. | Description |
Activity2 Activity2
| Field | Value | IRS element (for citing) |
|---|---|---|
| Expense | 68397 | Expense |
| Description | SUPPORT-THE NSDA PRIDES ITSELF ON THE WIDE RANGE OF SUPPORT OPTIONS TO FIT THE NEEDS OF AFFECTED INDIVIDUALS AND THEIR FAMILIES INCLUDING ESTABLISHING AND MAINTAINING OVER 80 LOCAL SUPPORT GROUPS AND AN AREA CONTACT NETWORK OF OVER 250 VOLUNTEERS; PUBLISHING AND PRODUCING BOOKS, BROCHURES, DVDS, AND OTHER RESOURCES; CREATING SPECIAL TOOLS AIMED AT SPECIFIC ISSUES WITHIN THE SD COMMUNITY SUCH AS EMPLOYMENT AND INSURANCE; SPONSOR ON-LINE INITIATIVES INCLUDING AN INTERNET BULLETIN BOARD HTTP://WWW.DYSPHONIA-BB.ORG/FORUMS/SD/ THAT PROVIDES AN OPEN FORUM FOR PEOPLE WITH SD TO EXCHANGE IDEAS, DISCUSS PERSONAL EXPERIENCES, AND TO CONNECT WITH OTHERS; PUBLISHING A QUARTERLY ON-LINE NEWSLETTER CALLED VOICES OF SUPPORT WHICH RECOGNIZES THE SUPPORT ACTIVITIES OF THE ORGANIZATION; AND SPONSORING AN ANNUAL LEADERSHIP DAY IN CONJUNCTION WITH A SYMPOSIUM. | Description |
Activity3 Activity3
| Field | Value | IRS element (for citing) |
|---|---|---|
| Expense | 21877 | Expense |
| Grants | 11065 | Grants |
| Description | RESEARCH-THE NSDA IS STRONGLY COMMITTED TO UNDERSTANDING THE SCIENCE OF SD AND SUPPORTING RESEARCH. TO THIS END, THE NSDA IS AN ACTIVE MEMBER OF THE DYSTONIA COALITION, AN NIH-FUNDED INITIATIVE SUPPORTED BY PATIENT ADVOCACY GROUPS, FORMED TO ADVANCE CLINICAL RESEARCH FOR FOCAL DYSTONIA, PROVIDED GRANT SUPPORT FOR PROJECT 3 OF THE DYSTONIA COALITION ON THE DEVELOPMENT OF THE DIAGNOSTIC TOOL FOR SPASMODIC DYSPHONIA; MAINTAINS THE NSDA SCIENTIFIC ADVISORY BOARD FOR CONSULTATION ON HOW TO FURTHER ADVANCE RESEARCH FOR SUPPORT OF BETTER TREATMENTS AND ULTIMATELY A CURE FOR SD. | Description |
| Field | Value | IRS element (for citing) |
|---|---|---|
| Total Program Service Expense | 205670 | TotalProgramServiceExpense |
| Described In501 C3 | true | DescribedIn501C3 |
| Schedule B Required | true | ScheduleBRequired |
| Political Activities | false | PoliticalActivities |
| Lobbying Activities | true | LobbyingActivities |
| Subject To Proxy Tax | false | SubjectToProxyTax |
| Donor Advised Funds | false | DonorAdvisedFunds |
| Conservation Easements | false | ConservationEasements |
| Collections Of Art | false | CollectionsOfArt |
| Credit Counseling | false | CreditCounseling |
| Term Or Permanent Endowments | false | TermOrPermanentEndowments |
| Report Land Bldg Equip | false | ReportLandBldgEquip |
| Report Invest Oth Securities | false | ReportInvestOthSecurities |
| Report Prog Rel Invest | false | ReportProgRelInvest |
| Report Other Assets | false | ReportOtherAssets |
| Report Other Liabilities | false | ReportOtherLiabilities |
| Report Fin48 Footnote | false | ReportFin48Footnote |
| Independent Audit Financial Stmt | true | IndependentAuditFinancialStmt |
| Consolidated Audit Financial Stmt | false | ConsolidatedAuditFinancialStmt |
| School | false | School |
| Foreign Office | false | ForeignOffice |
| Foreign Activities | false | ForeignActivities |
| More Than5000 K To Organizations | false | MoreThan5000KToOrganizations |
| More Than5000 K To Individuals | false | MoreThan5000KToIndividuals |
| Professional Fundraising | false | ProfessionalFundraising |
| Fundraising Activities | false | FundraisingActivities |
| Gaming | false | Gaming |
| Hospital | false | Hospital |
| Grants To Organizations | true | GrantsToOrganizations |
| Grants To Individuals | false | GrantsToIndividuals |
| Schedule J Required | false | ScheduleJRequired |
| Tax Exempt Bonds | false | TaxExemptBonds |
| Invest Tax Exempt Bonds | false | InvestTaxExemptBonds |
| Escrow Account | false | EscrowAccount |
| On Behalf Of Issuer | false | OnBehalfOfIssuer |
| Excess Benefit Transaction | false | ExcessBenefitTransaction |
| Prior Excess Benefit Transaction | false | PriorExcessBenefitTransaction |
| Loan To Officer Or DQP | false | LoanToOfficerOrDQP |
| Grant To Related Person | false | GrantToRelatedPerson |
| Bsnss Rltnshp With Organization | false | BsnssRltnshpWithOrganization |
| Bsnss Rltnshp Thru Family Member | false | BsnssRltnshpThruFamilyMember |
| Officer Entity With Bsnss Rltnshp | false | OfficerEntityWithBsnssRltnshp |
| Deductible Non Cash Contributions | false | DeductibleNonCashContributions |
| Deductible Contributions Of Art | false | DeductibleContributionsOfArt |
| Terminated | false | Terminated |
| Partial Liquidation | false | PartialLiquidation |
| Disregarded Entity | false | DisregardedEntity |
| Related Entity | false | RelatedEntity |
| Related Org Controlled Entity | false | RelatedOrgControlledEntity |
| Transaction Related Entity | false | TransactionRelatedEntity |
| Transfers To Exempt Non Chrtbl Org | false | TransfersToExemptNonChrtblOrg |
| Activities Conducted Partnership | false | ActivitiesConductedPartnership |
| Schedule O Required | true | ScheduleORequired |
| Number Forms Transmitted With1096 | 1 | NumberFormsTransmittedWith1096 |
| Number W2 G Included | 0 | NumberW2GIncluded |
| Compliance With Backup Witholding | true | ComplianceWithBackupWitholding |
| Number Of Employees | 3 | NumberOfEmployees |
| Employment Tax Returns Filed | true | EmploymentTaxReturnsFiled |
| Unrelated Business Income | false | UnrelatedBusinessIncome |
| Form990-T Filed | false | Form990-TFiled |
| Foreign Financial Account | false | ForeignFinancialAccount |
| Prohibited Tax Shelter Trans | false | ProhibitedTaxShelterTrans |
| Taxable Party Notification | false | TaxablePartyNotification |
| Form8886 T Filed | false | Form8886TFiled |
| Non Deductible Contributions | false | NonDeductibleContributions |
| Non Deductible Disclosure | false | NonDeductibleDisclosure |
| Quid Pro Quo Contributions | false | QuidProQuoContributions |
| Quid Pro Quo Disclosure | false | QuidProQuoDisclosure |
| Form8282 Property Disposed Of | false | Form8282PropertyDisposedOf |
| Number Of8282 Filed | 0 | NumberOf8282Filed |
| Funds To Pay Premiums | false | FundsToPayPremiums |
| Premiums Paid | false | PremiumsPaid |
| Form8899 Filed | false | Form8899Filed |
| Form1098 C Filed | false | Form1098CFiled |
| Excess Business Holdings | false | ExcessBusinessHoldings |
| Taxable Distributions | false | TaxableDistributions |
| Distribution To Donor | false | DistributionToDonor |
| Filed Lieu1041 | false | FiledLieu1041 |
| Licensed More Than One State | false | LicensedMoreThanOneState |
| Indoor Tanning Services | false | IndoorTanningServices |
| Form720 Filed | false | Form720Filed |
| Info In Schedule O Part VI | X | InfoInScheduleOPartVI |
| Nbr Voting Governing Body Members | 9 | NbrVotingGoverningBodyMembers |
| Number Independent Voting Members | 9 | NumberIndependentVotingMembers |
| Family Or Business Relationship | false | FamilyOrBusinessRelationship |
| Delegation Of Management Duties | false | DelegationOfManagementDuties |
| Changes To Organizing Docs | false | ChangesToOrganizingDocs |
| Material Diversion Or Misuse | false | MaterialDiversionOrMisuse |
| Members Or Stockholders | false | MembersOrStockholders |
| Election Of Board Members | false | ElectionOfBoardMembers |
| Decisions Subject To Approval | false | DecisionsSubjectToApproval |
| Minutes Of Governing Body | true | MinutesOfGoverningBody |
| Minutes Of Committees | false | MinutesOfCommittees |
| Officer Mailing Address | false | OfficerMailingAddress |
| Local Chapters | false | LocalChapters |
| Policies Reference Chapters | false | PoliciesReferenceChapters |
| Form990 Provided To Governing Body | true | Form990ProvidedToGoverningBody |
| Conflict Of Interest Policy | true | ConflictOfInterestPolicy |
| Annual Disclosure Covered Persons | true | AnnualDisclosureCoveredPersons |
| Regular Monitoring Enforcement | true | RegularMonitoringEnforcement |
| Whistleblower Policy | true | WhistleblowerPolicy |
| Document Retention Policy | true | DocumentRetentionPolicy |
| Compensation Process CEO | true | CompensationProcessCEO |
| Compensation Process Other | false | CompensationProcessOther |
| Investment In Joint Venture | false | InvestmentInJointVenture |
| Written Policy Or Procedure | false | WrittenPolicyOrProcedure |
| States Where Copy Of Return Is Filed | MI | StatesWhereCopyOfReturnIsFiled |
| States Where Copy Of Return Is Filed | IL | StatesWhereCopyOfReturnIsFiled |
| Upon Request | X | UponRequest |
The Books Are In Care Of TheBooksAreInCareOf
| Field | Value | IRS element (for citing) |
|---|---|---|
| Name Person | KIMBERLY A KUMAN | NamePerson |
| Telephone Number | 8007956732 | TelephoneNumber |
Address US AddressUS
| Field | Value | IRS element (for citing) |
|---|---|---|
| Address Line1 | 300 PARK BOULEVARD 415 | AddressLine1 |
| City | ITASCA | City |
| State | IL | State |
| ZIP Code | 60143 | ZIPCode |
Form990 Part VII Section A Form990PartVIISectionA (12 entries)
| TitleTitle | Average Hours Per WeekAverageHoursPerWeek | Individual Trustee Or DirectorIndividualTrusteeOrDirector | Reportable Comp From OrganizationReportableCompFromOrganization | Reportable Comp From Related OrgsReportableCompFromRelatedOrgs | Other CompensationOtherCompensation | OfficerOfficer |
|---|---|---|---|---|---|---|
| SHERRY WHITLEY | ||||||
| Director | 0.50 | X | 0 | 0 | 0 | |
| MARCIA STERLING | ||||||
| Treasurer | 2.00 | X | 0 | 0 | 0 | X |
| MARY BIFARO | ||||||
| Director | 6.00 | X | 0 | 0 | 0 | |
| CHARLIE REAVIS | ||||||
| President | 10.00 | X | 0 | 0 | 0 | X |
| DOT SOWERBY | ||||||
| Director | 4.00 | X | 0 | 0 | 0 | |
| STEPHANIE MENDEL | ||||||
| Director | 4.00 | X | 0 | 0 | 0 | |
| LAWRENCE KOLASA | ||||||
| Director | 1.00 | X | 0 | 0 | 0 | |
| JOHN COMER | ||||||
| Director | 2.00 | X | 0 | 0 | 0 | |
| LAURIE CERMAK | ||||||
| Director | 2.00 | X | 0 | 0 | 0 | |
| DAVID BARTON | ||||||
| Director | 4.00 | X | 0 | 0 | 0 | X |
| CHARLIE WOMBLE | ||||||
| Director | 3.00 | X | 0 | 0 | 0 | |
| KIMBERLY KUMAN | ||||||
| Executive Direc | 40.00 | 70000 | 0 | 4650 | X | |
| Field | Value | IRS element (for citing) |
|---|---|---|
| Total Reportable Comp From Org | 70000 | TotalReportableCompFromOrg |
| Total Other Compensation | 4650 | TotalOtherCompensation |
| Number Individuals GT100 K | 0 | NumberIndividualsGT100K |
| Formers Listed | false | FormersListed |
| Total Comp GT150 K | false | TotalCompGT150K |
| Compensation From Other Sources | false | CompensationFromOtherSources |
| Number Of Contractors GT100 K | 0 | NumberOfContractorsGT100K |
| All Other Contributions | 215952 | AllOtherContributions |
| Noncash Contributions | 5840 | NoncashContributions |
| Total Contributions | 215952 | TotalContributions |
Program Service Revenue ProgramServiceRevenue
| Field | Value | IRS element (for citing) |
|---|---|---|
| Description | PROGRAM REGISTRATIONS | Description |
| Business Code | 900099 | BusinessCode |
| Total Revenue Column | 6910 | TotalRevenueColumn |
| Related Or Exempt Function Income | 6910 | RelatedOrExemptFunctionIncome |
| Field | Value | IRS element (for citing) |
|---|---|---|
| Total Program Service Revenue | 6910 | TotalProgramServiceRevenue |
Investment Income InvestmentIncome
| Field | Value | IRS element (for citing) |
|---|---|---|
| Total Revenue Column | 3946 | TotalRevenueColumn |
| Related Or Exempt Function Income | 3946 | RelatedOrExemptFunctionIncome |
Income From Invest Bond Proceeds IncomeFromInvestBondProceeds
| Field | Value | IRS element (for citing) |
|---|---|---|
| Total Revenue Column | 0 | TotalRevenueColumn |
Royalties Revenue RoyaltiesRevenue
| Field | Value | IRS element (for citing) |
|---|---|---|
| Total Revenue Column | 0 | TotalRevenueColumn |
Net Rental Income Or Loss NetRentalIncomeOrLoss
| Field | Value | IRS element (for citing) |
|---|---|---|
| Total Revenue Column | 0 | TotalRevenueColumn |
Gross Amount Sales Assets GrossAmountSalesAssets
| Field | Value | IRS element (for citing) |
|---|---|---|
| Securities | 307467 | Securities |
Less Cost Oth Basis Sales Expenses LessCostOthBasisSalesExpenses
| Field | Value | IRS element (for citing) |
|---|---|---|
| Securities | 310204 | Securities |
Gain Or Loss GainOrLoss
| Field | Value | IRS element (for citing) |
|---|---|---|
| Securities | -2737 | Securities |
Net Gain Or Loss Investments NetGainOrLossInvestments
| Field | Value | IRS element (for citing) |
|---|---|---|
| Total Revenue Column | -2737 | TotalRevenueColumn |
| Related Or Exempt Function Income | -2737 | RelatedOrExemptFunctionIncome |
Net Income From Fundraising Events NetIncomeFromFundraisingEvents
| Field | Value | IRS element (for citing) |
|---|---|---|
| Total Revenue Column | 0 | TotalRevenueColumn |
Net Income From Gaming NetIncomeFromGaming
| Field | Value | IRS element (for citing) |
|---|---|---|
| Total Revenue Column | 0 | TotalRevenueColumn |
Net Income Or Loss NetIncomeOrLoss
| Field | Value | IRS element (for citing) |
|---|---|---|
| Total Revenue Column | 0 | TotalRevenueColumn |
Other Revenue Misc OtherRevenueMisc
| Field | Value | IRS element (for citing) |
|---|---|---|
| Description | MERCHANDISE SALES | Description |
| Business Code | 900099 | BusinessCode |
| Total Revenue Column | 5383 | TotalRevenueColumn |
| Related Or Exempt Function Income | 5383 | RelatedOrExemptFunctionIncome |
| Field | Value | IRS element (for citing) |
|---|---|---|
| Total Other Revenue | 5383 | TotalOtherRevenue |
Total Revenue TotalRevenue
| Field | Value | IRS element (for citing) |
|---|---|---|
| Total Revenue Column | 229454 | TotalRevenueColumn |
| Related Or Exempt Function Income | 13502 | RelatedOrExemptFunctionIncome |
Grants To Domestic Orgs GrantsToDomesticOrgs
| Field | Value | IRS element (for citing) |
|---|---|---|
| Total | 11065 | Total |
| Program Services | 11065 | ProgramServices |
Grants To Domestic Individuals GrantsToDomesticIndividuals
| Field | Value | IRS element (for citing) |
|---|---|---|
| Total | 0 | Total |
Foreign Grants ForeignGrants
| Field | Value | IRS element (for citing) |
|---|---|---|
| Total | 0 | Total |
Benefits To Members BenefitsToMembers
| Field | Value | IRS element (for citing) |
|---|---|---|
| Total | 0 | Total |
Comp Current Officers Directors CompCurrentOfficersDirectors
| Field | Value | IRS element (for citing) |
|---|---|---|
| Total | 74650 | Total |
| Program Services | 59719 | ProgramServices |
| Management And General | 7466 | ManagementAndGeneral |
| Fundraising | 7465 | Fundraising |
Comp Disqual Persons CompDisqualPersons
| Field | Value | IRS element (for citing) |
|---|---|---|
| Total | 0 | Total |
Other Salaries And Wages OtherSalariesAndWages
| Field | Value | IRS element (for citing) |
|---|---|---|
| Total | 13672 | Total |
| Program Services | 11218 | ProgramServices |
| Management And General | 1052 | ManagementAndGeneral |
| Fundraising | 1402 | Fundraising |
Pension Plan Contributions PensionPlanContributions
| Field | Value | IRS element (for citing) |
|---|---|---|
| Total | 0 | Total |
Other Employee Benefits OtherEmployeeBenefits
| Field | Value | IRS element (for citing) |
|---|---|---|
| Total | 0 | Total |
Payroll Taxes PayrollTaxes
| Field | Value | IRS element (for citing) |
|---|---|---|
| Total | 6566 | Total |
| Program Services | 5271 | ProgramServices |
| Management And General | 637 | ManagementAndGeneral |
| Fundraising | 658 | Fundraising |
Fees For Services Management FeesForServicesManagement
| Field | Value | IRS element (for citing) |
|---|---|---|
| Total | 0 | Total |
Fees For Services Legal FeesForServicesLegal
| Field | Value | IRS element (for citing) |
|---|---|---|
| Total | 0 | Total |
Fees For Services Accounting FeesForServicesAccounting
| Field | Value | IRS element (for citing) |
|---|---|---|
| Total | 5000 | Total |
| Program Services | 4000 | ProgramServices |
| Management And General | 500 | ManagementAndGeneral |
| Fundraising | 500 | Fundraising |
Fees For Services Lobbying FeesForServicesLobbying
| Field | Value | IRS element (for citing) |
|---|---|---|
| Total | 0 | Total |
Fees For Services Prof Fundraising FeesForServicesProfFundraising
| Field | Value | IRS element (for citing) |
|---|---|---|
| Total | 0 | Total |
Fees For Services Invst Mgmnt Fees FeesForServicesInvstMgmntFees
| Field | Value | IRS element (for citing) |
|---|---|---|
| Total | 0 | Total |
Fees For Services Other FeesForServicesOther
| Field | Value | IRS element (for citing) |
|---|---|---|
| Total | 4015 | Total |
| Management And General | 4015 | ManagementAndGeneral |
Advertising Advertising
| Field | Value | IRS element (for citing) |
|---|---|---|
| Total | 0 | Total |
Office Expenses OfficeExpenses
| Field | Value | IRS element (for citing) |
|---|---|---|
| Total | 0 | Total |
Information Technology InformationTechnology
| Field | Value | IRS element (for citing) |
|---|---|---|
| Total | 0 | Total |
Royalties Royalties
| Field | Value | IRS element (for citing) |
|---|---|---|
| Total | 0 | Total |
Occupancy Occupancy
| Field | Value | IRS element (for citing) |
|---|---|---|
| Total | 8915 | Total |
| Program Services | 7132 | ProgramServices |
| Management And General | 891 | ManagementAndGeneral |
| Fundraising | 892 | Fundraising |
Travel Travel
| Field | Value | IRS element (for citing) |
|---|---|---|
| Total | 0 | Total |
Travel Entrtnmnt Public Officials TravelEntrtnmntPublicOfficials
| Field | Value | IRS element (for citing) |
|---|---|---|
| Total | 0 | Total |
Conferences Meetings ConferencesMeetings
| Field | Value | IRS element (for citing) |
|---|---|---|
| Total | 44000 | Total |
| Program Services | 43194 | ProgramServices |
| Management And General | 496 | ManagementAndGeneral |
| Fundraising | 310 | Fundraising |
Interest Interest
| Field | Value | IRS element (for citing) |
|---|---|---|
| Total | 0 | Total |
Payments To Affiliates PaymentsToAffiliates
| Field | Value | IRS element (for citing) |
|---|---|---|
| Total | 0 | Total |
Depreciation Depletion DepreciationDepletion
| Field | Value | IRS element (for citing) |
|---|---|---|
| Total | 0 | Total |
Insurance Insurance
| Field | Value | IRS element (for citing) |
|---|---|---|
| Total | 0 | Total |
Other Expenses OtherExpenses (5 entries)
| DescriptionDescription | TotalTotal | Program ServicesProgramServices | Management And GeneralManagementAndGeneral | FundraisingFundraising |
|---|---|---|---|---|
| Printing and Publications | 7086 | 5932 | 380 | 774 |
| NEWSLETTER | 25558 | 20446 | 2556 | 2556 |
| AWARENESS/SUPPORT | 15818 | 15772 | 23 | 23 |
| ADVOCACY | 6755 | 6755 | ||
| ADMINISTRATION | 15481 | 11307 | 2866 | 1308 |
All Other Expenses AllOtherExpenses
| Field | Value | IRS element (for citing) |
|---|---|---|
| Total | 7690 | Total |
| Program Services | 3859 | ProgramServices |
| Management And General | 364 | ManagementAndGeneral |
| Fundraising | 3467 | Fundraising |
Total Functional Expenses TotalFunctionalExpenses
| Field | Value | IRS element (for citing) |
|---|---|---|
| Total | 246271 | Total |
| Program Services | 205670 | ProgramServices |
| Management And General | 21246 | ManagementAndGeneral |
| Fundraising | 19355 | Fundraising |
Cash Non Interest Bearing CashNonInterestBearing
| Field | Value | IRS element (for citing) |
|---|---|---|
| BOY | 23728 | BOY |
| EOY | 46956 | EOY |
Savings And Temp Cash Investments SavingsAndTempCashInvestments
| Field | Value | IRS element (for citing) |
|---|---|---|
| BOY | 442151 | BOY |
| EOY | 456935 | EOY |
Pledges And Grants Receivable PledgesAndGrantsReceivable
| Field | Value | IRS element (for citing) |
|---|---|---|
| EOY | 0 | EOY |
Accounts Receivable AccountsReceivable
| Field | Value | IRS element (for citing) |
|---|---|---|
| EOY | 0 | EOY |
Receivables From Officers Etc ReceivablesFromOfficersEtc
| Field | Value | IRS element (for citing) |
|---|---|---|
| EOY | 0 | EOY |
Receivables From Disqual Persons ReceivablesFromDisqualPersons
| Field | Value | IRS element (for citing) |
|---|---|---|
| EOY | 0 | EOY |
Other Notes Loans Receivable Net OtherNotesLoansReceivableNet
| Field | Value | IRS element (for citing) |
|---|---|---|
| EOY | 0 | EOY |
Inventories For Sale Or Use InventoriesForSaleOrUse
| Field | Value | IRS element (for citing) |
|---|---|---|
| EOY | 0 | EOY |
Prepaid Expenses Deferred Charges PrepaidExpensesDeferredCharges
| Field | Value | IRS element (for citing) |
|---|---|---|
| EOY | 0 | EOY |
Land Buildings Equipment Basis Net LandBuildingsEquipmentBasisNet
| Field | Value | IRS element (for citing) |
|---|---|---|
| EOY | 0 | EOY |
Investments Pub Traded Securities InvestmentsPubTradedSecurities
| Field | Value | IRS element (for citing) |
|---|---|---|
| BOY | 66812 | BOY |
| EOY | 15328 | EOY |
Investments Other Securities InvestmentsOtherSecurities
| Field | Value | IRS element (for citing) |
|---|---|---|
| EOY | 0 | EOY |
Investments Program Related InvestmentsProgramRelated
| Field | Value | IRS element (for citing) |
|---|---|---|
| EOY | 0 | EOY |
Intangible Assets IntangibleAssets
| Field | Value | IRS element (for citing) |
|---|---|---|
| EOY | 0 | EOY |
Other Assets Total OtherAssetsTotal
| Field | Value | IRS element (for citing) |
|---|---|---|
| BOY | 5022 | BOY |
| EOY | 13135 | EOY |
Total Assets TotalAssets
| Field | Value | IRS element (for citing) |
|---|---|---|
| BOY | 537713 | BOY |
| EOY | 532354 | EOY |
Accounts Payable Accrued Expenses AccountsPayableAccruedExpenses
| Field | Value | IRS element (for citing) |
|---|---|---|
| BOY | 1250 | BOY |
| EOY | 12398 | EOY |
Deferred Revenue DeferredRevenue
| Field | Value | IRS element (for citing) |
|---|---|---|
| BOY | 1465 | BOY |
| EOY | 770 | EOY |
Total Liabilities TotalLiabilities
| Field | Value | IRS element (for citing) |
|---|---|---|
| BOY | 2715 | BOY |
| EOY | 13168 | EOY |
| Field | Value | IRS element (for citing) |
|---|---|---|
| Follow SFAS117 | X | FollowSFAS117 |
Unrestricted Net Assets UnrestrictedNetAssets
| Field | Value | IRS element (for citing) |
|---|---|---|
| BOY | 483078 | BOY |
| EOY | 486556 | EOY |
Temporarily Restricted Net Assets TemporarilyRestrictedNetAssets
| Field | Value | IRS element (for citing) |
|---|---|---|
| BOY | 51920 | BOY |
| EOY | 32630 | EOY |
Total Net Assets Fund Balances TotalNetAssetsFundBalances
| Field | Value | IRS element (for citing) |
|---|---|---|
| BOY | 534998 | BOY |
| EOY | 519186 | EOY |
Total Liab Net Assets Fund Balances TotalLiabNetAssetsFundBalances
| Field | Value | IRS element (for citing) |
|---|---|---|
| BOY | 537713 | BOY |
| EOY | 532354 | EOY |
| Field | Value | IRS element (for citing) |
|---|---|---|
| Info In Schedule O Part XI | X | InfoInScheduleOPartXI |
| Reconcilation Revenue Expenses | -16817 | ReconcilationRevenueExpenses |
| Reconcilation Other Changes | 1005 | ReconcilationOtherChanges |
| Method Of Accounting Accrual | X | MethodOfAccountingAccrual |
| Accountant Compile Or Review | false | AccountantCompileOrReview |
| FS Audited | true | FSAudited |
| Audit Committee | true | AuditCommittee |
| Financial Statement Separate | X | FinancialStatementSeparate |
| Federal Grant Audit Required | false | FederalGrantAuditRequired |
| Federal Grant Audit Performed | false | FederalGrantAuditPerformed |
Schedule A IRS990ScheduleA
| Field | Value | IRS element (for citing) |
|---|---|---|
| Publicly Supported Org170b1 Avi | X | PubliclySupportedOrg170b1Avi |
Gifts Grants Contrib Received170 GiftsGrantsContribReceived170
| Field | Value | IRS element (for citing) |
|---|---|---|
| Current Tax Year Minus4 Years | 324606 | CurrentTaxYearMinus4Years |
| Current Tax Year Minus3 Years | 217199 | CurrentTaxYearMinus3Years |
| Current Tax Year Minus2 Years | 309020 | CurrentTaxYearMinus2Years |
| Current Tax Year Minus1 Year | 185979 | CurrentTaxYearMinus1Year |
| Current Tax Year | 215952 | CurrentTaxYear |
| Total | 1252756 | Total |
Tax Rev Levied For Org Benefit170 TaxRevLeviedForOrgBenefit170
| Field | Value | IRS element (for citing) |
|---|---|---|
| Total | 0 | Total |
Value Srvc Fclts Furnished By Govt ValueSrvcFcltsFurnishedByGovt
| Field | Value | IRS element (for citing) |
|---|---|---|
| Total | 0 | Total |
Total170 Total170
| Field | Value | IRS element (for citing) |
|---|---|---|
| Current Tax Year Minus4 Years | 324606 | CurrentTaxYearMinus4Years |
| Current Tax Year Minus3 Years | 217199 | CurrentTaxYearMinus3Years |
| Current Tax Year Minus2 Years | 309020 | CurrentTaxYearMinus2Years |
| Current Tax Year Minus1 Year | 185979 | CurrentTaxYearMinus1Year |
| Current Tax Year | 215952 | CurrentTaxYear |
| Total | 1252756 | Total |
| Field | Value | IRS element (for citing) |
|---|---|---|
| Amounts Subst Contributors Total | 370042 | AmountsSubstContributorsTotal |
| Public Support Total170 | 882714 | PublicSupportTotal170 |
Gross Investment Income170 GrossInvestmentIncome170
| Field | Value | IRS element (for citing) |
|---|---|---|
| Current Tax Year Minus4 Years | 7703 | CurrentTaxYearMinus4Years |
| Current Tax Year Minus3 Years | 1980 | CurrentTaxYearMinus3Years |
| Current Tax Year Minus2 Years | 2781 | CurrentTaxYearMinus2Years |
| Current Tax Year Minus1 Year | 5568 | CurrentTaxYearMinus1Year |
| Current Tax Year | 1209 | CurrentTaxYear |
| Total | 19241 | Total |
Net UBI NetUBI
| Field | Value | IRS element (for citing) |
|---|---|---|
| Total | 0 | Total |
Other Income170 OtherIncome170
| Field | Value | IRS element (for citing) |
|---|---|---|
| Total | 0 | Total |
| Field | Value | IRS element (for citing) |
|---|---|---|
| Total Support | 1271997 | TotalSupport |
| Gross Receipts From Admissions Etc | 39335 | GrossReceiptsFromAdmissionsEtc |
| Public Support Pertcentage170 | 0.69400 | PublicSupportPertcentage170 |
| Public Support Pertcent Prior Year | 0.61730 | PublicSupportPertcentPriorYear |
| Thirty Three Percnt Tests CY170 | X | ThirtyThreePercntTestsCY170 |
Schedule B IRS990ScheduleB
Contributor Info ContributorInfo
| Field | Value | IRS element (for citing) |
|---|---|---|
| Contributor Number | RESTRICTED | ContributorNumber |
Contributor Name Business ContributorNameBusiness
| Field | Value | IRS element (for citing) |
|---|---|---|
| Business Name Line1 | RESTRICTED | BusinessNameLine1 |
Contributor Address US ContributorAddressUS
| Field | Value | IRS element (for citing) |
|---|---|---|
| Address Line1 | RESTRICTED | AddressLine1 |
| Address Line2 | RESTRICTED | AddressLine2 |
| City | RESTRICTED | City |
| State | RESTRICTED | State |
| ZIP Code | RESTRICTED | ZIPCode |
| Field | Value | IRS element (for citing) |
|---|---|---|
| Aggregate Contributions | RESTRICTED | AggregateContributions |
Schedule C IRS990ScheduleC
| Field | Value | IRS element (for citing) |
|---|---|---|
| Form4720 Filed4955 Tax | false | Form4720Filed4955Tax |
| Correction Made | false | CorrectionMade |
| Volunteers | true | Volunteers |
| Paid Staff Or Management | true | PaidStaffOrManagement |
| Media Advertisements | false | MediaAdvertisements |
| Mailings Members | true | MailingsMembers |
| Publications Or Broadcast | false | PublicationsOrBroadcast |
| Grants Other Organizations | false | GrantsOtherOrganizations |
| Direct Contact Legislators | true | DirectContactLegislators |
| Rallies Demonstrations | false | RalliesDemonstrations |
| Other Activities | false | OtherActivities |
| Not Described In501c3 | false | NotDescribedIn501c3 |
| Form4720 Filed4912 Tax | false | Form4720Filed4912Tax |
Schedule D IRS990ScheduleD
| Field | Value | IRS element (for citing) |
|---|---|---|
| Total Revenue | 229454 | TotalRevenue |
| Total Expenses | 246271 | TotalExpenses |
| Excess Or Deficit For Year | -16817 | ExcessOrDeficitForYear |
| Net Unrealized GL On Investments | 1005 | NetUnrealizedGLOnInvestments |
| Total Adjustments | 1005 | TotalAdjustments |
| Excess Or Deficit Per FS | -15812 | ExcessOrDeficitPerFS |
| Tot Revenue Etc Audited Fincl Stmt | 230459 | TotRevenueEtcAuditedFinclStmt |
| Net Unrealized Gains Investments | 1005 | NetUnrealizedGainsInvestments |
| Revenue Not Rptd F990 | 1005 | RevenueNotRptdF990 |
| Revenue Subtotal | 229454 | RevenueSubtotal |
| Total Revenue Per Form990 | 229454 | TotalRevenuePerForm990 |
| Tot Expenses Etc Audited Fincl Stmt | 246271 | TotExpensesEtcAuditedFinclStmt |
| Expenses Subtotal | 246271 | ExpensesSubtotal |
| Total Expenses Per Form990 | 246271 | TotalExpensesPerForm990 |
Schedule I IRS990ScheduleI
| Field | Value | IRS element (for citing) |
|---|---|---|
| Records Maintained | true | RecordsMaintained |
Recipient Table RecipientTable
Recipient Name Business RecipientNameBusiness
| Field | Value | IRS element (for citing) |
|---|---|---|
| Business Name Line1 | DYSTONIA MEDICAL RESEARCH FOUNDA | BusinessNameLine1 |
Address US AddressUS
| Field | Value | IRS element (for citing) |
|---|---|---|
| Address Line1 | 1 EAST WACKER DRIVE | AddressLine1 |
| City | CHICAGO | City |
| State | IL | State |
| ZIP Code | 60601 | ZIPCode |
| Field | Value | IRS element (for citing) |
|---|---|---|
| EIN Of Recipient | 953378526 | EINOfRecipient |
| IRC Section | 501(c)3 | IRCSection |
| Amount Of Cash Grant | 11065 | AmountOfCashGrant |
| Amount Of Non Cash Assistance | 0 | AmountOfNonCashAssistance |
| Purpose Of Grant | SUPPORT FOR DYSTONIA COALITION | PurposeOfGrant |
| Field | Value | IRS element (for citing) |
|---|---|---|
| Total Nbr Of501 C3 And Govt Grants | 1 | TotalNbrOf501C3AndGovtGrants |
| Total Nbr Of Other Organizations | 0 | TotalNbrOfOtherOrganizations |
Form990 Schedule I Part IV Form990ScheduleIPartIV
| Field | Value | IRS element (for citing) |
|---|---|---|
| Identifier | Grantmaker's Description of How Grants are Used | Identifier |
| Explanation | FUNDING FOR GRANTS FOR 2011 WAS TO SUPPORT PROJECT 3 FOR THE DYSTONIA COALITION ON DEVELOPING DIAGNOSIS TOOLS FOR SPASMODIC DYSPHONIA. THE REVIEW OF THIS GRANT'S PROGRESS IS PROVIDED BY THE DYSTONIA COALITION'S EXECUTIVE COMMITTEE AND REPORTED BACK TO THE NSDA. | Explanation |
Schedule O IRS990ScheduleO
General Explanation GeneralExplanation (3 entries)
| IdentifierIdentifier | Return ReferenceReturnReference | ExplanationExplanation |
|---|---|---|
| Form 990, Part VI, Line 19 | Form 990, Part VI, Line 19: Other Organization Documents Publicly Available | THE ARTICLES OF INCORPORATION ARE PUBLICLY AVAILABLE FROM THE ILLINOIS SECRETARY OF STATE'S OFFICE. THE CONFLICT OF INTEREST POLICY (PART OF THE CODE OF ETHICS) IS PUBLICLY AVAILABLE ON THE ORGANIZATION'S WEBSITE. REQUESTS FOR FINANCIAL STATEMENTS (OTHER THAN THOSE INCLUDED IN IRS FORM 990) ARE REVIEWED FOR MERIT. |
| Form 990, Part VI, Line 12c | Form 990, Part VI, Line 12c: Explanation of Monitoring and Enforcement of Conflicts | THE PRESIDENT AND EXECUTIVE DIRECTOR REVIEW THE ANNUAL CONFLICT OF INTEREST FORMS TO ENSURE THAT NO BOARD MEMBER IS IN CONFLICT. |
| Form 990, Part VI, Line 11 | Form 990, Part VI, Line 11: Form 990 Review Process | THE DETAIL REVIEW OF THE FORM 990 DRAFT WAS CONDUCTED BY THE ORGANIZATION'S MANAGEMENT, TREASURER, PRESIDENT AND REPRESENTATIVE OF THE ORGANIZATION'S TAX FIRM. A COPY OF THE 990 WAS DISTRIBUTED TO ALL BOARD MEMBERS PRIOR TO FILING. |
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