NATIONAL SPASMODIC DYSPHONIA ASSOCIATION: Form 990, tax year 2020

View the entire original 990 at ProPublica ↗

Organization
NATIONAL SPASMODIC DYSPHONIA ASSOCIATION (EIN 38-2918042)
Tax period
2020-04-01 to 2021-03-31
Filed
2021-11-23
IRS object ID
202143279349301004
Schema version
2020v4.1
Source
Download XML · Original 990 at ProPublica

Every field in the e-filed return. Faint text is the IRS element name, for citing.

Return header ReturnHeader

FieldValueIRS element (for citing)
Return2021-11-23T10:02:00-06:00ReturnTs
Tax Period End2021-03-31TaxPeriodEndDt

Preparer Firm PreparerFirmGrp

FieldValueIRS element (for citing)
Preparer Firm EIN260476995PreparerFirmEIN

Preparer Firm Name PreparerFirmName

FieldValueIRS element (for citing)
Business Name Line1TIGHE KRESS & ORR PCBusinessNameLine1Txt

Preparer US Address PreparerUSAddress

FieldValueIRS element (for citing)
Address Line12001 LARKIN AVENUE SUITE 202AddressLine1Txt
CityELGINCityNm
State AbbreviationILStateAbbreviationCd
ZIP60123ZIPCd
FieldValueIRS element (for citing)
Return Type990ReturnTypeCd
Tax Period Begin2020-04-01TaxPeriodBeginDt

Filer Filer

FieldValueIRS element (for citing)
EIN382918042EIN

Business Name BusinessName

FieldValueIRS element (for citing)
Business Name Line1NATIONAL SPASMODIC DYSPHONIA ASSOCIATIONBusinessNameLine1Txt
FieldValueIRS element (for citing)
Business Name ControlNATIBusinessNameControlTxt
Phone8007956732PhoneNum

US Address USAddress

FieldValueIRS element (for citing)
Address Line1300 PARK BOULEVARD NO 175AddressLine1Txt
CityITASCACityNm
State AbbreviationILStateAbbreviationCd
ZIP60143ZIPCd

Business Officer BusinessOfficerGrp

FieldValueIRS element (for citing)
PersonCHARLIE REAVISPersonNm
Person TitlePRESIDENTPersonTitleTxt
Phone8007956732PhoneNum
Signature2021-11-23SignatureDt
Discuss With Paid PreparerYes (1)DiscussWithPaidPreparerInd

Signing Officer SigningOfficerGrp

Person Full Name PersonFullName

FieldValueIRS element (for citing)
Person FirstCHARLIEPersonFirstNm
Person LastREAVISPersonLastNm
FieldValueIRS element (for citing)
SSN999009999SSN

Preparer Person PreparerPersonGrp

FieldValueIRS element (for citing)
Preparer PersonMATTHEW GLOWACKI CPA MASPreparerPersonNm
PTINP01716343PTIN
Phone8476952700PhoneNum
Preparation2021-11-17PreparationDt

Additional Filer Information AdditionalFilerInformation

Trusted Customer TrustedCustomerGrp

FieldValueIRS element (for citing)
Trusted Customer2TrustedCustomerCd
Authentication Assurance LevelAAL1AuthenticationAssuranceLevelCd
Identity Assurance LevelIAL1IdentityAssuranceLevelCd
FieldValueIRS element (for citing)
Tax2020TaxYr
Build TS2022-09-23 18:48:47ZBuildTS

Form 990 IRS990

FieldValueIRS element (for citing)
Principal OfficerKIMBERLY KUMANPrincipalOfficerNm

US Address USAddress

FieldValueIRS element (for citing)
Address Line1300 PARK BOULEVARDAddressLine1Txt
CityITASCACityNm
State AbbreviationILStateAbbreviationCd
ZIP60143ZIPCd
FieldValueIRS element (for citing)
Gross Receipts$2,551,885GrossReceiptsAmt
Group Return For Affiliates0GroupReturnForAffiliatesInd
Organization501c3Yes (X)Organization501c3Ind
Website AddressWWW.DYSPHONIA.ORGWebsiteAddressTxt
Type Of Organization CorpYes (X)TypeOfOrganizationCorpInd
Formation1989FormationYr
Legal Domicile StateILLegalDomicileStateCd
Activity Or MissionTHE NATIONAL SPASMODIC DYSPHONIA ASSOCIATION (NSDA) IS DEDICATED TO IMPROVING THE LIVES OF PEOPLE AFFECTED BY SPASMODIC DYSPHONIA AND RELATED VOICE CONDITIONS THROUGH RESEARCH, EDUCATION, AWARENESS AND SUPPORT.ActivityOrMissionDesc
Voting Members Governing Body15VotingMembersGoverningBodyCnt
Voting Members Independent13VotingMembersIndependentCnt
Total Employee3TotalEmployeeCnt
Total Volunteers350TotalVolunteersCnt
Total Gross UBI$0TotalGrossUBIAmt
Net Unrelated Bus Txbl Incm$0NetUnrelatedBusTxblIncmAmt
PY Contributions Grants$343,782PYContributionsGrantsAmt
CY Contributions Grants$2,530,473CYContributionsGrantsAmt
PY Program Service Revenue$11,778PYProgramServiceRevenueAmt
CY Program Service Revenue$0CYProgramServiceRevenueAmt
PY Investment Income$14,478PYInvestmentIncomeAmt
CY Investment Income$5,952CYInvestmentIncomeAmt
PY Other Revenue$1,693PYOtherRevenueAmt
CY Other Revenue$8,790CYOtherRevenueAmt
PY Total Revenue$371,731PYTotalRevenueAmt
CY Total Revenue$2,545,215CYTotalRevenueAmt
PY Grants And Similar Paid$51,000PYGrantsAndSimilarPaidAmt
CY Grants And Similar Paid$75,000CYGrantsAndSimilarPaidAmt
PY Benefits Paid To Members$0PYBenefitsPaidToMembersAmt
CY Benefits Paid To Members$0CYBenefitsPaidToMembersAmt
PY Salaries Comp Emp Bnft Paid$126,082PYSalariesCompEmpBnftPaidAmt
CY Salaries Comp Emp Bnft Paid$117,826CYSalariesCompEmpBnftPaidAmt
PY Total Prof Fndrsng Expns$0PYTotalProfFndrsngExpnsAmt
CY Total Prof Fndrsng Expns$0CYTotalProfFndrsngExpnsAmt
CY Total Fundraising Expense$19,785CYTotalFundraisingExpenseAmt
PY Other Expenses$145,637PYOtherExpensesAmt
CY Other Expenses$95,664CYOtherExpensesAmt
PY Total Expenses$322,719PYTotalExpensesAmt
CY Total Expenses$288,490CYTotalExpensesAmt
PY Revenues Less Expenses$49,012PYRevenuesLessExpensesAmt
CY Revenues Less Expenses$2,256,725CYRevenuesLessExpensesAmt
Total Assets BOY$630,527TotalAssetsBOYAmt
Total Assets EOY$2,932,455TotalAssetsEOYAmt
Total Liabilities BOY$30,474TotalLiabilitiesBOYAmt
Total Liabilities EOY$4,630TotalLiabilitiesEOYAmt
Net Assets Or Fund Balances BOY$600,053NetAssetsOrFundBalancesBOYAmt
Net Assets Or Fund Balances EOY$2,927,825NetAssetsOrFundBalancesEOYAmt
Info In Schedule O Part IIIYes (X)InfoInScheduleOPartIIIInd
MissionTHE NATIONAL SPASMODIC DYSPHONIA ASSOCIATION IS DEDICATED TO IMPROVING THE LIVES OF PEOPLE AFFECTED BY SPASMODIC DYSPHONIA AND RELATED VOICE CONDITIONS THROUGH RESEARCH, EDUCATION, AWARENESS AND SUPPORT. WE INCLUDE A COMMUNITY OF DEDICATED VOLUNTEERS, HEALTHCARE PROFESSIONALS, FRIENDS AND FAMILIES, AND STAFF DEDICATED TO THE VISION OF ERADICATING SPASMODIC DYSPHONIA AND RELATED VOICE CONDITIONS. WE FUND RESEARCH TO ADVANCE THE UNDERSTANDING OF THE CAUSES OF AND TREATMENTS FOR SPASMODIC DYSPHONIA AND RELATED VOICE CONDITIONS. WE EDUCATE TO HELP REDUCE THE TIME TO DIAGNOSIS. WE RAISE AWARENESS TO REDUCE THE STIGMA AND ISOLATION AROUND HAVING A VOICE DISORDER. WE PROVIDE SUPPORT TO THOSE AFFECTED AND THEIR FAMILIES THROUGH SYMPOSIUMS, SUPPORT GROUPS, AND ON-LINE RESOURCES SO THAT NO ONE FEELS ALONE. SPASMODIC DYSPHONIA, A FORM OF LARYNGEAL DYSTONIA, IS A NEUROLOGICAL DISORDER THAT AFFECTS THE VOICE, MAKING SPEAKING CHALLENGING. THE VOCAL CORDS SPASM CAUSING THE VOICE TO BE BROKEN, STRAINEMissionDesc
Significant New Program Srvc0SignificantNewProgramSrvcInd
Significant Change0SignificantChangeInd
Expense$99,292ExpenseAmt
Grant$75,000GrantAmt
DescTHE NSDA RAISES AWARENESS ABOUT SPASMODIC DYSPHONIA AND RELATED VOICE CONDITIONS THROUGH EDUCATION, OUTREACH, AND ADVOCACY ALLOWING FOR A BETTER UNDERSTANDING AND QUICKER DIAGNOSIS OF THIS DISORDER. AS WE BEGAN OUR FISCAL YEAR, THE IMPACT OF COVID-19 WAS QUICKLY BECOMING EVIDENT AND WE RESPONDED BY EDUCATING OUR COMMUNITY BY PROVIDING A RESOURCE PAGE ON COVID-19 ALONG WITH LAUNCHING TWO WEBINAR SERIES ADDRESSING THE CHALLENGES OF BEING QUARANTINED ON EMOTIONAL HEALTH AND MANAGING VOICE SYMPTOMS WITH INCREASED VOCAL DEMANDS AND, FOR SOME, LIMITED ACCESS TO TREATMENT. IN ADDITION, NEW MASKS WERE CREATED WITH MESSAGING THAT HELPED TO EXPLAIN VOICE ISSUES AND RAISE AWARENESS, ALONG WITH AN EXPANSION OF AWARENESS TOOLS LIKE BUTTONS AND INFORMATION CARDS. THE NSDA SYMPOSIUM WAS RE-ENVISIONED TO BE A COMBINATION OF PRE-RECORDED PRESENTATIONS AND LIVE PANEL DISCUSSIONS UTILIZING MANY OF THE SPEAKERS SCHEDULED FOR OUR 2020 IN-PERSON MEETING TO BE HELD IN THE DETROIT AREA MEETING; THIS GENERATED OVER 12 HOURS OF NEW CONTENT. THE FIRST-EVER VIRTUAL WALK FOR TALK TO BENEFIT THE NATIONAL SPASMODIC DYSPHONIA ASSOCIATION TOOK PLACE OCTOBER 22-25, 2020, BRINGING OUR COMMUNITY TOGETHER WITH CAMARADERIE, MENTORING, VISIBILITY, UNITY, EMPOWERMENT, ENCOURAGEMENT, AND STRENGTH. OVER 330 PEOPLE FROM CANADA, COLUMBIA, GERMANY, JAPAN, NEW ZEALAND, SINGAPORE AND 42 STATES IN THE U.S. WORKED TO RAISE AWARENESS AND FUNDS TO FIND ANSWERS FOR SPASMODIC DYSPHONIA AND RELATED VOICE CONDITIONS. THE WALK INCLUDED PEOPLE LIVING WITH A VOICE DISORDER, FAMILY, FRIENDS, AND HEALTHCARE PROFESSIONALS ALONG WITH DOGS, CATS, TWO GOATS, AND A GIRAFFE. PEOPLE WALKED, JOGGED, RAN, BIKED, AND EVEN SURFED RAISING AWARENESS IN NATIONAL PARKS, STATE PARKS, AND LOCAL NEIGHBORHOODS. ALL WITH THE GOAL OF USING OUR FEET TO HELP DEFEAT SPASMODIC DYSPHONIA AND RELATED VOICE CONDITIONS. WITH THE COMMUNITY'S SUPPORT, $114,441 WAS RAISED; ALL OF THOSE GIFTS WERE MATCHED FOR A TOTAL OF $228,882. THE 40-PAGE ISSUE OF THE NSDA NEWSLETTER, OUR VOICE, WAS DISTRIBUTED BOTH IN-PRINT AND AS A DOWNLOAD ALONG WITH ELECTRONIC NEWSLETTER, E-VOICE, WHICH IS SENT TO OVER 5,000 PEOPLE AFFECTED BY THESE VOICE CONDITIONS, HEALTHCARE PROFESSIONALS AND OTHERS INTERESTED IN LEARNING MORE ABOUT THE DISORDER. WE TOOK ADVANTAGE OF BEING ABLE TO CONNECT VIRTUALLY AND PRESENTED AT THE FALL VOICE CONFERENCE FOR HEALTHCARE EXPERTS IN VOICE AND PARTICIPATED IN NUMEROUS EDUCATIONAL SESSIONS WITH STUDENTS STUDYING SPEECH PATHOLOGY.Desc

Prog Srvc Accom Acty2 ProgSrvcAccomActy2Grp

FieldValueIRS element (for citing)
Expense$42,301ExpenseAmt
DescSUPPORTING PEOPLE WITH SPASMODIC DYSPHONIA AND RELATED VOICE CONDITIONS HAS BEEN A PART OF THE NSDA MISSION SINCE IT WAS FOUNDED. THERE ARE CURRENTLY JUST OVER 50 NSDA SUPPORT GROUPS AND OVER 200 AREA CONTACT PERSONS. WITH ALL OF THE IN-PERSON MEETINGS BEING CANCELLED, WE NEEDED TO SHIFT TO A NEW OPTION, VIRTUAL SUPPORT MEETINGS. OUR SUPPORT GROUP LEADERS HAVE READILY JUMPED IN AND OFTENTIMES, WE HAVE HOSTED BOTH STATE-WIDE AND REGIONAL MEETINGS TO PROVIDE EVEN MORE SUPPORT. WE ARE GETTING TO KNOW OUR LEADERS BETTER AND UNDERSTAND HOW WE CAN HELP SUPPORT THEM IN THEIR ROLE. WE ARE IDENTIFYING NEW PEOPLE TO BECOME AREA CONTACT PERSONS TO FURTHER EXPAND OUR NETWORK. MOST IMPORTANTLY, OUR COMMUNITY IS TRULY GETTING TO KNOW THE ORGANIZATION IN A WAY IT HASN'T BEFORE SO THEY KNOW WE REALLY DO CARE ABOUT THEM AND THEIR VOICE. OUR SUPPORT NETWORK IS RECOGNIZED QUARTERLY IN AN ON-LINE NEWSLETTER, VOICES OF SUPPORT, AND THEY ARE INVITED TO PARTICIPATE IN AN ANNUAL LEADERSHIP WORKSHOP WHICH WAS HELD VIRTUALLY WITH THE LARGEST NUMBER OF PARTICIPANTS INCLUDING INTERNATIONAL INVOLVEMENT. THE NSDA PROVIDES A WIDE RANGE OF SUPPORT OPTIONS TO HELP INDIVIDUALS WITH SD AND RELATED VOICE CONDITIONS AND THEIR FAMILIES LEARN TO LIVE MORE EFFECTIVELY WITH THIS DISORDER. BOOKS, BROCHURES, AND VIDEOS ARE PUBLISHED ALONG WITH RESOURCES AND TOOLS. REGARDLESS OF THE CAUSE OF A VOICE DISORDER, OUR MEMBERS CAN PROVIDE EACH OTHER WITH COPING TECHNIQUES TO HELP THE NEWLY DIAGNOSED OR THOSE GOING THROUGH DIFFICULT TIMES.Desc

Prog Srvc Accom Acty3 ProgSrvcAccomActy3Grp

FieldValueIRS element (for citing)
Expense$106,541ExpenseAmt
DescTHE NSDA IS STRONGLY COMMITTED TO UNDERSTANDING THE CAUSES OF SPASMODIC DYSPHONIA AND RELATED VOICE CONDITIONS BY SUPPORTING RESEARCH TO FIND BETTER TREATMENTS AND ULTIMATELY A CURE. WORKING WITH A SCIENTIFIC ADVISORY BOARD COMPRISED OF THE LEADING EXPERTS IN THE FIELD, THE NSDA FUNDS RESEARCH GRANTS, HELPS TO FACILITATE RESEARCH, AND PROMOTES RESEARCH TRIALS TO ITS MEMBERSHIP. WHILE RESEARCH WAS PUT ON HOLD AT MANY INSTITUTIONS BECAUSE OF TRAVEL RESTRICTIONS, WE ONCE AGAIN TOOK ADVANTAGE OF VIRTUAL MEETINGS WITH SCIENTIFIC ADVISORY BOARD CHAIR, DR. GERALD BERKE. WE MEET WITH DIFFERENT RESEARCH TEAMS WHICH DIRECTLY LED TO THE SUBMISSION AND FUNDING OF TWO RESEARCH GRANTS BY THE NSDA; MEETING WITH NEW RESEARCHERS AND CREATING COLLABORATIVE EFFORTS THAT WILL HOPEFULLY LEAD TO NEW GRANT APPLICATIONS; AND WORKING TO PULL TOGETHER A WORKING COMMITTEE OF EXPERTS IN THE FIELD OF VOICE TO HELP ADVANCE DIAGNOSIS AND UNDERSTANDING. A GRANT ENTITLED, DEVELOPMENT OF A COMPUTERIZED, VIDEO-BASED MEASURE OF SEVERITY FOR LARYNGEAL DYSTONIA BY AVRAHAM MENDELSOHN, MD, AT UNIVERSITY OF CALIFORNIA, LOS ANGELES, WAS FUNDED TO CREATE AN OBJECTIVE COMPUTERIZED DIAGNOSTIC TOOL. TERESA J. KIMBERLEY, PHD, PT AND RUSSELL BANKS, PHD, CCC-SLP AT THE MGH INSTITUTE OF HEALTH PROFESSIONS, BOSTON, MA, ALSO RECEIVED FUNDING FOR THE GRANT NOVEL APPLICATION OF RTMS IN ABDUCTOR LARYNGEAL DYSTONIA, TO EXPLORE A POSSIBLE NEW TREATMENT OPTION FOR ABDUCTOR SPASMODIC DYSPHONIA. THE NSDA ENCOURAGES YOUNG RESEARCHERS TO BECOME MORE INVOLVED THROUGH THE SPONSORSHIP OF RESEARCH AWARDS TO TRAVEL TO THE ANNUAL MEETINGS OF PROFESSIONAL VOICE ORGANIZATIONS. WITH THE SHIFT TO VIRTUAL, WE SUPPORTED AWARDS FOR THE MEETINGS OF THE AMERICAN LARYNGOLOGICAL ASSOCIATION, FALL VOICE CONFERENCE, AND VOICE FOUNDATION. THE NSDA IS AN ACTIVE MEMBER OF THE DYSTONIA COALITION, A NIH-FUNDED INITIATIVE FORMED TO ADVANCE CLINICAL RESEARCH FOR FOCAL DYSTONIA. IN ADDITION, WE PROVIDE ADMINISTRATIVE SUPPORT FOR THE GLOBAL DYSTONIA REGISTRY AND ARE ACTIVE IN THE DYSTONIA BRAIN COLLECTIVE, WORKING WITH OTHER DYSTONIA ORGANIZATIONS TO ADVANCE THE UNDERSTANDING OF ALL FORMS OF DYSTONIA, INCLUDING SPASMODIC DYSPHONIA.Desc
FieldValueIRS element (for citing)
Total Program Service Expenses$248,134TotalProgramServiceExpensesAmt
Described In Section501c3Yes (1)DescribedInSection501c3Ind
Schedule B RequiredYes (1)ScheduleBRequiredInd
Political Campaign Acty0PoliticalCampaignActyInd
Lobbying ActivitiesYes (1)LobbyingActivitiesInd
Subject To Proxy Tax0SubjectToProxyTaxInd
Donor Advised Fund0DonorAdvisedFundInd
Conservation Easements0ConservationEasementsInd
Collections Of Art0CollectionsOfArtInd
Credit Counseling0CreditCounselingInd
Donor Rstr Or Quasi Endowments0DonorRstrOrQuasiEndowmentsInd
Report Land Building Equipment0ReportLandBuildingEquipmentInd
Report Investments Other SecYes (1)ReportInvestmentsOtherSecInd
Report Program Related Invst0ReportProgramRelatedInvstInd
Report Other AssetsYes (1)ReportOtherAssetsInd
Report Other Liabilities0ReportOtherLiabilitiesInd
Include FIN48 FootnoteYes (1)IncludeFIN48FootnoteInd
Independent Audit Fincl StmtYes (1)IndependentAuditFinclStmtInd
Consolidated Audit Fincl Stmt0ConsolidatedAuditFinclStmtInd
School Operating0SchoolOperatingInd
Foreign Office0ForeignOfficeInd
Foreign Activities0ForeignActivitiesInd
More Than5000 K To Org0MoreThan5000KToOrgInd
More Than5000 K To Individuals0MoreThan5000KToIndividualsInd
Professional Fundraising0ProfessionalFundraisingInd
Fundraising Activities0FundraisingActivitiesInd
Gaming Activities0GamingActivitiesInd
Operate Hospital0OperateHospitalInd
Grants To OrganizationsYes (1)GrantsToOrganizationsInd
Grants To Individuals0GrantsToIndividualsInd
Schedule J Required0ScheduleJRequiredInd
Tax Exempt Bonds0TaxExemptBondsInd
Engaged In Excess Benefit Trans0EngagedInExcessBenefitTransInd
PY Excess Benefit Trans0PYExcessBenefitTransInd
Loan Outstanding0LoanOutstandingInd
Grant To Related Person0GrantToRelatedPersonInd
Business Rln With Org Mem0BusinessRlnWithOrgMemInd
Business Rln With Fam Mem0BusinessRlnWithFamMemInd
Business Rln With35 Ctrl Ent0BusinessRlnWith35CtrlEntInd
Deductible Non Cash ContriYes (1)DeductibleNonCashContriInd
Deductible Art Contribution0DeductibleArtContributionInd
Terminate Operations0TerminateOperationsInd
Partial Liquidation0PartialLiquidationInd
Disregarded Entity0DisregardedEntityInd
Related Entity0RelatedEntityInd
Related Organization Ctrl Ent0RelatedOrganizationCtrlEntInd
Trnsfr Exmpt Non Chrtbl Rltd Org0TrnsfrExmptNonChrtblRltdOrgInd
Activities Conducted Prtshp0ActivitiesConductedPrtshpInd
Schedule O RequiredYes (1)ScheduleORequiredInd
IRP Document4IRPDocumentCnt
IRP Document W2 G0IRPDocumentW2GCnt
Backup Wthld ComplianceYes (1)BackupWthldComplianceInd
Employee3EmployeeCnt
Employment Tax Returns FiledYes (1)EmploymentTaxReturnsFiledInd
Unrelated Bus Incm Over Limit0UnrelatedBusIncmOverLimitInd
Foreign Financial Account0ForeignFinancialAccountInd
Prohibited Tax Shelter Trans0ProhibitedTaxShelterTransInd
Taxable Party Notification0TaxablePartyNotificationInd
Nondeductible Contributions0NondeductibleContributionsInd
Quid Pro Quo Contributions0QuidProQuoContributionsInd
Form8282 Property Disposed Of0Form8282PropertyDisposedOfInd
Indoor Tanning Services0IndoorTanningServicesInd
Subj To Tax Rmnrtn Ex Prcht Pymt0SubjToTaxRmnrtnExPrchtPymtInd
Subject To Excs Tax Net Invst Inc0SubjectToExcsTaxNetInvstIncInd
Info In Schedule O Part VIYes (X)InfoInScheduleOPartVIInd
Governing Body Voting Members15GoverningBodyVotingMembersCnt
Independent Voting Member13IndependentVotingMemberCnt
Family Or Business Rln0FamilyOrBusinessRlnInd
Delegation Of Mgmt Duties0DelegationOfMgmtDutiesInd
Change To Org Documents0ChangeToOrgDocumentsInd
Material Diversion Or Misuse0MaterialDiversionOrMisuseInd
Members Or Stockholders0MembersOrStockholdersInd
Election Of Board Members0ElectionOfBoardMembersInd
Decisions Subject To Approva0DecisionsSubjectToApprovaInd
Minutes Of Governing BodyYes (1)MinutesOfGoverningBodyInd
Minutes Of Committees0MinutesOfCommitteesInd
Officer Mailing Address0OfficerMailingAddressInd
Local Chapters0LocalChaptersInd
Form990 Provided To Gvrn BodyYes (1)Form990ProvidedToGvrnBodyInd
Conflict Of Interest PolicyYes (1)ConflictOfInterestPolicyInd
Annual Disclosure Covered PrsnYes (1)AnnualDisclosureCoveredPrsnInd
Regular Monitoring EnfrcYes (1)RegularMonitoringEnfrcInd
Whistleblower PolicyYes (1)WhistleblowerPolicyInd
Document Retention PolicyYes (1)DocumentRetentionPolicyInd
Compensation Process CEOYes (1)CompensationProcessCEOInd
Compensation Process Other0CompensationProcessOtherInd
Investment In Joint Venture0InvestmentInJointVentureInd
States Where Copy Of Return Is FldILStatesWhereCopyOfReturnIsFldCd
States Where Copy Of Return Is FldMIStatesWhereCopyOfReturnIsFldCd
Other WebsiteYes (X)OtherWebsiteInd
Upon RequestYes (X)UponRequestInd

Books In Care Of Detail BooksInCareOfDetail

Business Name BusinessName

FieldValueIRS element (for citing)
Business Name Line1KIMBERLY A KUMANBusinessNameLine1Txt
FieldValueIRS element (for citing)
Phone8007956732PhoneNum

US Address USAddress

FieldValueIRS element (for citing)
Address Line1300 PARK BOULEVARD SUITE 175AAddressLine1Txt
CityITASCACityNm
State AbbreviationILStateAbbreviationCd
ZIP60143ZIPCd

Form990 Part VII Section A Form990PartVIISectionAGrp (14 entries)

TitleTitleTxtAverage Hours Per WeekAverageHoursPerWeekRtIndividual Trustee Or DirectorIndividualTrusteeOrDirectorIndReportable Comp From OrgReportableCompFromOrgAmtReportable Comp From Rltd OrgReportableCompFromRltdOrgAmtOther CompensationOtherCompensationAmtOfficerOfficerInd
JANE KELLER GORDON
DIRECTOR5.00Yes (X)$0$0$0
DOT SOWERBY
DIRECTOR5.00Yes (X)$0$0$0
CHARLIE REAVIS
PRESIDENT20.00Yes (X)$0$0$0Yes (X)
MARY BIFARO
SUPPORT SERVICES DIRECTOR15.00Yes (X)$0$0$0Yes (X)
MARCIA STERLING
DIRECTOR5.00Yes (X)$0$0$0
BEVERLY MATTHEWS
TREASURER5.00Yes (X)$0$0$0Yes (X)
WARREN BANDEL
DIRECTOR5.00Yes (X)$0$0$0
SUSAN BECK
DEVELOPMENT DIRECTOR10.00Yes (X)$0$0$0Yes (X)
LARRY KOLASA
FOUNDING PRESIDENT5.00Yes (X)$0$0$0
DENNIS KASZETA
DIRECTOR5.00Yes (X)$0$0$0
BRUCE MENK
DIRECTOR5.00Yes (X)$0$0$0
DOROTHY TANNAHILL-MORNA
DIRECTOR5.00Yes (X)$0$0$0
CHARLIE WOMBLE
DIRECTOR5.00Yes (X)$0$0$0
KIMBERLY KUMAN
EXECUTIVE DIRECTOR44.00$80,000$0$0Yes (X)
FieldValueIRS element (for citing)
Total Reportable Comp From Org$80,000TotalReportableCompFromOrgAmt
Tot Reportable Comp Rltd Org$0TotReportableCompRltdOrgAmt
Total Other Compensation$0TotalOtherCompensationAmt
Indiv Rcvd Greater Than100 K0IndivRcvdGreaterThan100KCnt
Former Ofcr Employees Listed0FormerOfcrEmployeesListedInd
Total Comp Greater Than150 K0TotalCompGreaterThan150KInd
Compensation From Other Srcs0CompensationFromOtherSrcsInd
Cntrct Rcvd Greater Than100 K0CntrctRcvdGreaterThan100KCnt
Membership Dues$8,380MembershipDuesAmt
Government Grants$54,215GovernmentGrantsAmt
All Other Contributions$2,467,878AllOtherContributionsAmt
Noncash Contributions$1,815,000NoncashContributionsAmt
Total Contributions$2,530,473TotalContributionsAmt

Investment Income InvestmentIncomeGrp

FieldValueIRS element (for citing)
Total Revenue Column$11,737TotalRevenueColumnAmt
Exclusion$11,737ExclusionAmt

Gross Amount Sales Assets GrossAmountSalesAssetsGrp

FieldValueIRS element (for citing)
Securities$885SecuritiesAmt

Less Cost Oth Basis Sales Expnss LessCostOthBasisSalesExpnssGrp

FieldValueIRS element (for citing)
Securities$6,670SecuritiesAmt

Gain Or Loss GainOrLossGrp

FieldValueIRS element (for citing)
Securities-$5,785SecuritiesAmt

Net Gain Or Loss Investments NetGainOrLossInvestmentsGrp

FieldValueIRS element (for citing)
Total Revenue Column-$5,785TotalRevenueColumnAmt
Related Or Exempt Func Income-$5,785RelatedOrExemptFuncIncomeAmt

Other Revenue Misc OtherRevenueMiscGrp

FieldValueIRS element (for citing)
DescOTHER INCOMEDesc
Business900099BusinessCd
Total Revenue Column$8,790TotalRevenueColumnAmt
Related Or Exempt Func Income$8,790RelatedOrExemptFuncIncomeAmt
FieldValueIRS element (for citing)
Other Revenue Total$8,790OtherRevenueTotalAmt

Total Revenue TotalRevenueGrp

FieldValueIRS element (for citing)
Total Revenue Column$2,545,215TotalRevenueColumnAmt
Related Or Exempt Func Income$3,005RelatedOrExemptFuncIncomeAmt
Unrelated Business Revenue$0UnrelatedBusinessRevenueAmt
Exclusion$11,737ExclusionAmt

Grants To Domestic Orgs GrantsToDomesticOrgsGrp

FieldValueIRS element (for citing)
Total$75,000TotalAmt
Program Services$75,000ProgramServicesAmt

Comp Current Ofcr Directors CompCurrentOfcrDirectorsGrp

FieldValueIRS element (for citing)
Total$84,861TotalAmt
Program Services$67,889ProgramServicesAmt
Management And General$8,486ManagementAndGeneralAmt
Fundraising$8,486FundraisingAmt

Other Salaries And Wages OtherSalariesAndWagesGrp

FieldValueIRS element (for citing)
Total$25,322TotalAmt
Program Services$20,256ProgramServicesAmt
Management And General$2,533ManagementAndGeneralAmt
Fundraising$2,533FundraisingAmt

Payroll Taxes PayrollTaxesGrp

FieldValueIRS element (for citing)
Total$7,643TotalAmt
Program Services$6,115ProgramServicesAmt
Management And General$764ManagementAndGeneralAmt
Fundraising$764FundraisingAmt

Fees For Services Accounting FeesForServicesAccountingGrp

FieldValueIRS element (for citing)
Total$12,103TotalAmt
Program Services$9,682ProgramServicesAmt
Management And General$1,211ManagementAndGeneralAmt
Fundraising$1,210FundraisingAmt

Fees For Srvc Invst Mgmnt Fees FeesForSrvcInvstMgmntFeesGrp

FieldValueIRS element (for citing)
Total$3,759TotalAmt
Management And General$3,759ManagementAndGeneralAmt

Occupancy OccupancyGrp

FieldValueIRS element (for citing)
Total$8,100TotalAmt
Program Services$6,480ProgramServicesAmt
Management And General$810ManagementAndGeneralAmt
Fundraising$810FundraisingAmt

Conferences Meetings ConferencesMeetingsGrp

FieldValueIRS element (for citing)
Total$1,284TotalAmt
Program Services$1,240ProgramServicesAmt
Management And General$22ManagementAndGeneralAmt
Fundraising$22FundraisingAmt

Other Expenses OtherExpensesGrp (4 entries)

DescDescTotalTotalAmtProgram ServicesProgramServicesAmtManagement And GeneralManagementAndGeneralAmtFundraisingFundraisingAmt
ADMINISTRATION$21,685$17,085$2,018$2,582
NEWSLETTER$14,105$13,745$180$180
AWARENESS / SUPPORT$9,397$8,681$358$358
ADVOCACY$8,057$8,057

All Other Expenses AllOtherExpensesGrp

FieldValueIRS element (for citing)
Total$17,174TotalAmt
Program Services$13,904ProgramServicesAmt
Management And General$430ManagementAndGeneralAmt
Fundraising$2,840FundraisingAmt

Total Functional Expenses TotalFunctionalExpensesGrp

FieldValueIRS element (for citing)
Total$288,490TotalAmt
Program Services$248,134ProgramServicesAmt
Management And General$20,571ManagementAndGeneralAmt
Fundraising$19,785FundraisingAmt

Cash Non Interest Bearing CashNonInterestBearingGrp

FieldValueIRS element (for citing)
BOY$140,174BOYAmt
EOY$163,472EOYAmt

Savings And Temp Cash Invst SavingsAndTempCashInvstGrp

FieldValueIRS element (for citing)
BOY$39,016BOYAmt
EOY$208,201EOYAmt

Investments Other Securities InvestmentsOtherSecuritiesGrp

FieldValueIRS element (for citing)
BOY$450,026BOYAmt
EOY$610,058EOYAmt

Other Assets Total OtherAssetsTotalGrp

FieldValueIRS element (for citing)
BOY$1,311BOYAmt
EOY$1,950,724EOYAmt

Total Assets TotalAssetsGrp

FieldValueIRS element (for citing)
BOY$630,527BOYAmt
EOY$2,932,455EOYAmt

Accounts Payable Accr Expnss AccountsPayableAccrExpnssGrp

FieldValueIRS element (for citing)
BOY$27,618BOYAmt
EOY$4,630EOYAmt

Deferred Revenue DeferredRevenueGrp

FieldValueIRS element (for citing)
BOY$2,856BOYAmt

Total Liabilities TotalLiabilitiesGrp

FieldValueIRS element (for citing)
BOY$30,474BOYAmt
EOY$4,630EOYAmt
FieldValueIRS element (for citing)
Organization Follows FASB117Yes (X)OrganizationFollowsFASB117Ind

No Donor Restriction Net Assets NoDonorRestrictionNetAssetsGrp

FieldValueIRS element (for citing)
BOY$586,053BOYAmt
EOY$2,888,355EOYAmt

Donor Restriction Net Assets DonorRestrictionNetAssetsGrp

FieldValueIRS element (for citing)
BOY$14,000BOYAmt
EOY$39,470EOYAmt

Total Net Assets Fund Balance TotalNetAssetsFundBalanceGrp

FieldValueIRS element (for citing)
BOY$600,053BOYAmt
EOY$2,927,825EOYAmt

Tot Liab Net Assets Fund Balance TotLiabNetAssetsFundBalanceGrp

FieldValueIRS element (for citing)
BOY$630,527BOYAmt
EOY$2,932,455EOYAmt
FieldValueIRS element (for citing)
Reconcilation Revenue Expnss$2,256,725ReconcilationRevenueExpnssAmt
Net Unrlzd Gains Losses Invst$71,047NetUnrlzdGainsLossesInvstAmt
Other Changes In Net Assets$0OtherChangesInNetAssetsAmt
Info In Schedule O Part XIIYes (X)InfoInScheduleOPartXIIInd
Method Of Accounting AccrualYes (X)MethodOfAccountingAccrualInd
Accountant Compile Or Review0AccountantCompileOrReviewInd
FS AuditedYes (1)FSAuditedInd

FS Audited Basis FSAuditedBasisGrp

FieldValueIRS element (for citing)
Separate Basis Fincl StmtYes (X)SeparateBasisFinclStmtInd
FieldValueIRS element (for citing)
Audit CommitteeYes (1)AuditCommitteeInd
Federal Grant Audit Required0FederalGrantAuditRequiredInd

Schedule A IRS990ScheduleA

FieldValueIRS element (for citing)
Public Organization170Yes (X)PublicOrganization170Ind

Gifts Grants Contri Rcvd170 GiftsGrantsContriRcvd170Grp

FieldValueIRS element (for citing)
Current Tax Year Minus4 Years$216,865CurrentTaxYearMinus4YearsAmt
Current Tax Year Minus3 Years$294,197CurrentTaxYearMinus3YearsAmt
Current Tax Year Minus2 Years$311,073CurrentTaxYearMinus2YearsAmt
Current Tax Year Minus1 Year$343,782CurrentTaxYearMinus1YearAmt
Current Tax Year$2,530,473CurrentTaxYearAmt
Total$3,696,390TotalAmt

Total Calendar Year170 TotalCalendarYear170Grp

FieldValueIRS element (for citing)
Current Tax Year Minus4 Years$216,865CurrentTaxYearMinus4YearsAmt
Current Tax Year Minus3 Years$294,197CurrentTaxYearMinus3YearsAmt
Current Tax Year Minus2 Years$311,073CurrentTaxYearMinus2YearsAmt
Current Tax Year Minus1 Year$343,782CurrentTaxYearMinus1YearAmt
Current Tax Year$2,530,473CurrentTaxYearAmt
Total$3,696,390TotalAmt
FieldValueIRS element (for citing)
Substantial Contributors Tot$334,380SubstantialContributorsTotAmt
Public Support Total170$3,362,010PublicSupportTotal170Amt

Gross Investment Income170 GrossInvestmentIncome170Grp

FieldValueIRS element (for citing)
Current Tax Year Minus4 Years$9,030CurrentTaxYearMinus4YearsAmt
Current Tax Year Minus3 Years$13,590CurrentTaxYearMinus3YearsAmt
Current Tax Year Minus2 Years$14,014CurrentTaxYearMinus2YearsAmt
Current Tax Year Minus1 Year$14,264CurrentTaxYearMinus1YearAmt
Current Tax Year$11,737CurrentTaxYearAmt
Total$62,635TotalAmt

Other Income170 OtherIncome170Grp

FieldValueIRS element (for citing)
Current Tax Year Minus3 Years$2,003CurrentTaxYearMinus3YearsAmt
Current Tax Year Minus2 Years$441CurrentTaxYearMinus2YearsAmt
Current Tax Year Minus1 Year$1,693CurrentTaxYearMinus1YearAmt
Current Tax Year$8,790CurrentTaxYearAmt
Total$12,927TotalAmt
FieldValueIRS element (for citing)
Total Support$3,771,952TotalSupportAmt
Public Support CY1700.89130PublicSupportCY170Pct
Public Support PY1700.69260PublicSupportPY170Pct
Thirty Thr Pct Suprt Tests CY170Yes (X)ThirtyThrPctSuprtTestsCY170Ind

Schedule B IRS990ScheduleB

Contributor Information ContributorInformationGrp

FieldValueIRS element (for citing)
ContributorRESTRICTEDContributorNum

Contributor Business Name ContributorBusinessName

FieldValueIRS element (for citing)
Business Name Line1RESTRICTEDBusinessNameLine1

Contributor US Address ContributorUSAddress

FieldValueIRS element (for citing)
Address Line1RESTRICTEDAddressLine1
Address Line2RESTRICTEDAddressLine2
CityRESTRICTEDCity
StateRESTRICTEDState
ZIP CodeRESTRICTEDZIPCode
FieldValueIRS element (for citing)
Total ContributionsRESTRICTEDTotalContributionsAmt

Schedule C IRS990ScheduleC

FieldValueIRS element (for citing)
VolunteersYes (1)VolunteersInd
Paid Staff Or ManagementYes (1)PaidStaffOrManagementInd
Media Advertisements0MediaAdvertisementsInd
Mailings MembersYes (1)MailingsMembersInd
Publications Or Broadcast0PublicationsOrBroadcastInd
Grants Other Organizations0GrantsOtherOrganizationsInd
Direct Contact LegislatorsYes (1)DirectContactLegislatorsInd
Rallies Demonstrations0RalliesDemonstrationsInd
Other Activities0OtherActivitiesInd
Total Lobbying Expenditures$0TotalLobbyingExpendituresAmt
Not Described Section501c30NotDescribedSection501c3Ind

Supplemental Information Detail SupplementalInformationDetail

FieldValueIRS element (for citing)
Form And Line ReferencePART II-B, LINE 1:FormAndLineReferenceDesc
ExplanationTHE NSDA ADVOCACY ACTIVITIES INCLUDE AN ANNUAL ADVOCACY DAY IN WASHINGTON DC WHERE VOLUNTEERS AND STAFF VISIT CONGRESSIONAL OFFICES; PUBLISHING ARTICLES ABOUT ISSUES IMPORTANT TO MEMBERS OF THE ORGANIZATION; AND ENCOURAGING VOLUNTEERS TO MEET LOCALLY WITH LEGISLATORS TO DISCUSS SPASMODIC DYSPHONIA (LARYNGEAL DYSTONIA) AND KEY ISSUES THAT AFFECT OUR CONSTITUENTS.ExplanationTxt

Schedule D IRS990ScheduleD

FieldValueIRS element (for citing)
Total Book Value Land Buildings$0TotalBookValueLandBuildingsAmt

Other Securities OtherSecuritiesGrp (3 entries)

DescDescBook ValueBookValueAmtMethod ValuationMethodValuationCd
FIXED INCOME MUTUAL FUNDS$422,282F
EQUITY MUTUAL FUNDS$170,720F
OTHER MUTUAL FUNDS$17,056F
FieldValueIRS element (for citing)
Total Book Value Securities$610,058TotalBookValueSecuritiesAmt

Other Assets Org OtherAssetsOrgGrp (2 entries)

DescDescBook ValueBookValueAmt
OTHER ASSETS$903
BEQUEST RECEIVABLE$1,949,821
FieldValueIRS element (for citing)
Total Book Value Other Assets$1,950,724TotalBookValueOtherAssetsAmt
Footnote TextYes (X)FootnoteTextInd
Total Rev Etc Audited Fincl Stmt$2,612,503TotalRevEtcAuditedFinclStmtAmt
Net Unrealized Gains Invst$71,047NetUnrealizedGainsInvstAmt
Revenue Not Reported$71,047RevenueNotReportedAmt
Revenue Subtotal$2,541,456RevenueSubtotalAmt
Investment Expenses Not Incld$3,759InvestmentExpensesNotIncldAmt
Revenue Not Reported Fincl Stmt$3,759RevenueNotReportedFinclStmtAmt
Total Revenue Per Form990$2,545,215TotalRevenuePerForm990Amt
Tot Expns Etc Audited Fincl Stmt$284,731TotExpnsEtcAuditedFinclStmtAmt
Expenses Not Reported$0ExpensesNotReportedAmt
Expenses Subtotal$284,731ExpensesSubtotalAmt
Investment Expenses Not Incld2$3,759InvestmentExpensesNotIncld2Amt
Expenses Not Rpt Fincl Stmt$3,759ExpensesNotRptFinclStmtAmt
Total Expenses Per Form990$288,490TotalExpensesPerForm990Amt

Supplemental Information Detail SupplementalInformationDetail

FieldValueIRS element (for citing)
Form And Line ReferencePART X, LINE 2:FormAndLineReferenceDesc
ExplanationMANAGEMENT HAS ANALYZED THE TAX POSITIONS TAKEN BY THE ASSOCIATION, AND HAS CONCLUDED THERE ARE NO UNCERTAIN POSITIONS TAKEN OR EXPECTED TO BE TAKEN THAT WOULD REQUIRE RECOGNITION OF A LIABILITY OR DISCLOSURE IN THE FINANCIAL STATEMENTS.ExplanationTxt

Schedule I IRS990ScheduleI

FieldValueIRS element (for citing)
Grant Records Maintained0GrantRecordsMaintainedInd

Recipient Table RecipientTable (2 entries)

Address Line1USAddress/AddressLine1TxtAddress Line2USAddress/AddressLine2TxtCityUSAddress/CityNmState AbbreviationUSAddress/StateAbbreviationCdZIPUSAddress/ZIPCdRecipient EINRecipientEINIRC SectionIRCSectionDescCash GrantCashGrantAmtPurpose Of GrantPurposeOfGrantTxt
THE MGH INSTITUTE OF HEALTH PROFESSIONS INC
36 FIRST AVENUE OFFICE OF THEPROVOSTBOSTONMA021294557042868893501(C)3$50,000RESEARCH ON A POSSIBLE NEW TREATMENT OPTION FOR ABDUCTOR SPASMODIC DYSPHONIA, THE RARER VERSION OF THIS VOICE DISORDER THAT CURRENTLY HAS VERY LIMITED TREATMENT OPTIONS.
UC REGENTS
BOX 957089 1125 MURPHY HALL 405HILGARD AVENUELOS ANGELESCA900957089956006143501(C)3$25,000RESEARCH ON DEVOLVING AN OBJECTIVE COMPUTERIZED DIAGNOSTIC TOOL TO IMPROVE TO BOTH A QUICKER AND MORE ACCURATE DIAGNOSIS OF SPASMODIC DYSPHONIA AND POSSIBLY OTHER VOICE CONDITIONS.

Schedule M IRS990ScheduleM

Real Estate Residential RealEstateResidentialGrp

FieldValueIRS element (for citing)
Non Cash CheckboxYes (X)NonCashCheckboxInd
Contribution1ContributionCnt
Noncash Contributions Rpt F990$935,000NoncashContributionsRptF990Amt
Method Of Determining RevenuesAPPRAISAL OF FMVMethodOfDeterminingRevenuesTxt

Real Estate Commercial RealEstateCommercialGrp

FieldValueIRS element (for citing)
Non Cash CheckboxYes (X)NonCashCheckboxInd
Contribution1ContributionCnt
Noncash Contributions Rpt F990$850,000NoncashContributionsRptF990Amt
Method Of Determining RevenuesAPPRAISAL OF FMVMethodOfDeterminingRevenuesTxt
FieldValueIRS element (for citing)
Any Property That Must Be Held0AnyPropertyThatMustBeHeldInd
Review Process Unusual NC Gifts0ReviewProcessUnusualNCGiftsInd
Third Parties Used0ThirdPartiesUsedInd

Schedule O IRS990ScheduleO

Supplemental Information Detail SupplementalInformationDetail (6 entries)

Form And Line ReferenceFormAndLineReferenceDescExplanationExplanationTxt
FORM 990, PART VI, SECTION A, LINE 8BTHE DETAIL REVIEW OF THE FORM 990 DRAFT WAS CONDUCTED BY THE ORGANIZATION'S MANAGEMENT, TREASURER, PRESIDENT, ANOTHER BOARD MEMBER AND REPRESENTATIVE OF THE ORGANIZATION'S TAX FIRM. A COPY OF THE 990 WAS DISTRIBUTED TO ALL BOARD MEMBERS PRIOR TO FILING.
FORM 990, PART VI, SECTION B, LINE 11BTHE DETAIL REVIEW OF THE FORM 990 DRAFT WAS CONDUCTED BY THE ORGANIZATION'S MANAGEMENT, TREASURER, PRESIDENT, ANOTHER BOARD MEMBER AND REPRESENTATIVE OF THE ORGANIZATION'S TAX FIRM. A COPY OF THE 990 WAS DISTRIBUTED TO ALL BOARD MEMBERS PRIOR TO FILING.
FORM 990, PART VI, SECTION B, LINE 12CTHE PRESIDENT AND EXECUTIVE DIRECTOR REVIEW THE ANNUAL CONFLICT OF INTEREST FORMS TO ENSURE THAT NO BOARD MEMBER IS IN CONFLICT.
FORM 990, PART VI, SECTION B, LINE 15ATHE COMPENSATION (SALARY AND BENEFITS) OF THE EXECUTIVE DIRECTOR IS REVIEWED ANNUALLY AS PART OF THE ANNUAL BUDGET PROCESS. THE COMPENSATION IS APPROVED BY THE BOARD OF DIRECTORS, ALL OF WHICH ARE INDEPENDENT PERSONS. THE APPROVAL IS DOCUMENTED IN THE MINUTES OF THE BOARD OF DIRECTORS.
FORM 990, PART VI, SECTION C, LINE 19ARTICLES OF INCORPORATION ARE PUBLICLY AVAILABLE FROM THE MICHIGAN SECRETARY OF STATE'S OFFICE. THE CONFLICT OF INTEREST POLICY IS PUBLICLY AVAILABLE ON THE ORGANIZATION'S WEBSITE. REQUESTS FOR FINANCIAL STATEMENTS (OTHER THAN THOSE INCLUDED IN IRS FORM 990) ARE REVIEWED FOR MERIT.
FORM 990, PART XIITHE PROCESS HAS NOT CHANGED FROM THE PRIOR YEAR.

Comments

Anonymous: no account or email. Up to 2,000 characters, at most one link. Comments are checked automatically; some wait for review.