NATIONAL SPASMODIC DYSPHONIA ASSOCIATION: Form 990, tax year 2010

View the entire original 990 at ProPublica ↗

Organization
NATIONAL SPASMODIC DYSPHONIA ASSOCIATION (EIN 38-2918042)
Tax period
2010-04-01 to 2011-03-31
Filed
2011-11-14
IRS object ID
201113189349303616
Schema version
2010v3.2
Source
Download XML · Original 990 at ProPublica

Every field in the e-filed return. Faint text is the IRS element name, for citing.

Return header ReturnHeader

FieldValueIRS element (for citing)
Timestamp2011-11-14T09:56:46-08:00Timestamp
Tax Period End Date2011-03-31TaxPeriodEndDate

Preparer Firm PreparerFirm

Preparer Firm Business Name PreparerFirmBusinessName

FieldValueIRS element (for citing)
Business Name Line1GAIL L MATHEWS & ASSOCIATES LLCBusinessNameLine1

Preparer Firm US Address PreparerFirmUSAddress

FieldValueIRS element (for citing)
Address Line1800 ROOSEVELT RD BLDG C STE 202AddressLine1
CityGLEN ELLYNCity
StateILState
ZIP Code60137ZIPCode
FieldValueIRS element (for citing)
Return Type990ReturnType
Tax Period Begin Date2010-04-01TaxPeriodBeginDate

Filer Filer

FieldValueIRS element (for citing)
EIN382918042EIN

Name Name

FieldValueIRS element (for citing)
Business Name Line1NATIONAL SPASMODIC DYSPHONIA ASSOC INCBusinessNameLine1
FieldValueIRS element (for citing)
Name ControlNATINameControl
Phone8007956732Phone

US Address USAddress

FieldValueIRS element (for citing)
Address Line1300 PARK BOULEVARDAddressLine1
CityITASCACity
StateILState
ZIP Code60143ZIPCode

Officer Officer

FieldValueIRS element (for citing)
NameCHARLIE REAVISName
TitlePresidentTitle
Date Signed2011-11-09DateSigned

Preparer Preparer

FieldValueIRS element (for citing)
NameGAIL L MATHEWSName
Phone6307939390Phone
FieldValueIRS element (for citing)
Tax Year2010TaxYear
Build TS2016-03-07 17:11:31ZBuildTS

Form 990 IRS990

FieldValueIRS element (for citing)
Name Of Principal Officer PersonKIMBERLY KUMANNameOfPrincipalOfficerPerson

Address Principal Officer US AddressPrincipalOfficerUS

FieldValueIRS element (for citing)
Address Line1300 PARK BOULEVARDAddressLine1
CityITASCACity
StateILState
ZIP Code60143ZIPCode
FieldValueIRS element (for citing)
Gross Receipts552749GrossReceipts
Group Return For AffiliatesfalseGroupReturnForAffiliates
All Affiliates IncludedfalseAllAffiliatesIncluded
Organization501c3XOrganization501c3
Web SiteWWW. DYSPHONIA.ORGWebSite
Type Of Organization CorporationXTypeOfOrganizationCorporation
Year Formation1989YearFormation
State Legal DomicileILStateLegalDomicile
Activity Or Mission DescriptionTHE MISSION OF THE NATIONAL SPASMODIC DYSPHONIA ASSOCIATION IS TO ADVANCE MEDICAL RESEARCH INTO THE CAUSES OF AND TREATMENTS FOR SPASMODIC DYSPHONIA, PROMOTE PHYSICIAN AND PUBLIC AWARENESS OF THE DISORDER, AND PROVIDE SUPPORT TO THOSE AFFECTED BY SPASMODIC DYSPHONIA.ActivityOrMissionDescription
Nbr Voting Members Governing Body10NbrVotingMembersGoverningBody
Nbr Independent Voting Members10NbrIndependentVotingMembers
Total Nbr Employees2TotalNbrEmployees
Total Nbr Volunteers375TotalNbrVolunteers
Total Gross UBI0TotalGrossUBI
Contributions Grants Prior Year309020ContributionsGrantsPriorYear
Contributions Grants Current Year185979ContributionsGrantsCurrentYear
Program Service Revenue Prior Year2422ProgramServiceRevenuePriorYear
Program Service Revenue CY1150ProgramServiceRevenueCY
Investment Income Prior Year2781InvestmentIncomePriorYear
Investment Income Current Year5568InvestmentIncomeCurrentYear
Other Revenue Prior Year3561OtherRevenuePriorYear
Other Revenue Current Year2165OtherRevenueCurrentYear
Total Revenue Prior Year317784TotalRevenuePriorYear
Total Revenue Current Year194862TotalRevenueCurrentYear
Grants And Similar Amnts Prior Year15677GrantsAndSimilarAmntsPriorYear
Grants And Similar Amnts CY19885GrantsAndSimilarAmntsCY
Benefits Paid To Members CY0BenefitsPaidToMembersCY
Salaries Etc Prior Year95055SalariesEtcPriorYear
Salaries Etc Current Year93117SalariesEtcCurrentYear
Total Prof Fundrsng Exp CY0TotalProfFundrsngExpCY
Total Fundrsng Exp Current Year19636TotalFundrsngExpCurrentYear
Other Expense Prior Year133332OtherExpensePriorYear
Other Expenses Current Year126743OtherExpensesCurrentYear
Total Expenses Prior Year244064TotalExpensesPriorYear
Total Expenses Current Year239745TotalExpensesCurrentYear
Revenues Less Expenses Prior Year73720RevenuesLessExpensesPriorYear
Revenues Less Expenses CY-44883RevenuesLessExpensesCY
Total Assets BOY583168TotalAssetsBOY
Total Assets EOY537713TotalAssetsEOY
Total Liabilities BOY2194TotalLiabilitiesBOY
Total Liabilities EOY2715TotalLiabilitiesEOY
Net Assets Or Fund Balances BOY580974NetAssetsOrFundBalancesBOY
Net Assets Or Fund Balances EOY534998NetAssetsOrFundBalancesEOY
Mission DescriptionTHE MISSION OF THE NATIONAL SPASMODIC DYSPHONIA ASSOCIATION IS TO ADVANCE MEDICAL RESEARCH INTO THE CAUSES OF AND TREATMENTS FOR SPASMODIC DYSPHONIA, PROMOTE PHYSICIAN AND PUBLIC AWARENESS OF THE DISORDER, AND PROVIDE SUPPORT TO THOSE AFFECTED BY SPASMODIC DYSPHONIA THROUGH SYMPOSIUMS, SUPPORT GROUPS, AND ON-LINE RESOURCES. sPASMODIC DYSPHONIA IS A NEUROLOGICAL VOICE DISORDER THAT INVOLVES "SPASMS" OF THE VOCAL CORDS CAUSING INTERRUPTIONS OF SPEECH AND AFFECTING THE VOICE QUALITY. THE NSDA IS COMPRISED OF PEOPLE WITH sd, HEALTHCARE PROFESSIONALS, VOLUNTEERS, FRIENDS, AND FAMILIES. IT IS THE ONLY ORGANIZATION DEDICATED SOLELY TO THE SD COMMUNITY.MissionDescription
Significant New Program ServicesfalseSignificantNewProgramServices
Significant ChangefalseSignificantChange
Expense122417Expense
DescriptionOUTREACH-THROUGH OUTREACH, EDUCATION, AND ADVOCACY, THE NSDA RAISES THE PROFILE OF SD IN THE COMMUNITY, ALLOWING FOR QUICKER DIAGNOSIS, BETTER UNDERSTANDING, AND MORE ACCEPTANCE OF THIS DISORDER. THIS IS ACHIEVED THROUGH THE MAINTENANCE OF A HEALTHCARE REFERRAL DIRECTORY OF CLOSE TO 600 HEALTHCARE PROFESSIONALS THAT SPECIALIZE IN SD; ADVOCATING FOR PEOPLE WITH SD THROUGH THE DYSTONIA ADVOCACY NETWORK, EXHIBITING AT PROFESSIONAL MEDICAL EDUCATIONAL CONFERENCES TO REACH OUT TO HEALTHCARE PROFESSIONALS TREATING SD; PROMOTING AWARENESS EVENTS SUCH AS WORLD VOICE DAY (APRIL 16); HOSTING TWO REGIONAL SYMPOSIUMS (MAY AND OCTOBER 2010) TO PROVIDE A LEARNING ENVIRONMENT IN WHICH PEOPLE WITH SD MAY ENHANCE THEIR UNDERSTANDING OF THE DISORDER; PUBLISHING THE NEWSLETTER, OUR VOICE, TWICE A YEAR THAT CONTAINS UPDATES ON RESEARCH, AWARENESS, AND SUPPORT. THE NSDA LAUNCHED A COMPLETELY REDESIGNED WEBSITE IN 2010 (WWW.DYSPHONIA.ORG) THAT PROVIDES EDUCATION AND SUPPORT ALONG WITH VOICE SAMPLES, VIDEO CLIPS AND INFORMATION ON TREATMENT, SUPPORT, EVENTS, AND THE LATEST NEWS.Description

Activity2 Activity2

FieldValueIRS element (for citing)
Expense50051Expense
DescriptionSUPPORT-THE NSDA PRIDES ITSELF ON THE WIDE RANGE OF SUPPORT OPTIONS TO FIT THE NEEDS OF AFFECTED INDIVIDUALS AND THEIR FAMILIES INCLUDING ESTABLISHING AND MAINTAINING OVER 80 LOCAL SUPPORT GROUPS AND AN AREA CONTACT NETWORK OF OVER 250 VOLUNTEERS; PUBLISHING AND PRODUCING BOOKS, BROCHURES, DVDS, AND OTHER RESOURCES; CREATING SPECIAL TOOLS AIMED AT SPECIFIC ISSUES WITHIN THE SD COMMUNITY SUCH AS EMPLOYMENT AND INSURANCE; SPONSOR ON-LINE INITIATIVES INCLUDING AN INTERNET BULLETIN BOARD HTTP://WWW.DYSPHONIA-BB.ORG/FORUMS/SD/ THAT PROVIDES AN OPEN FORUM FOR PEOPLE WITH SD TO EXCHANGE IDEAS, DISCUSS PERSONAL EXPERIENCES, AND TO CONNECT WITH OTHERS; PUBLISHING A QUARTERLY ON-LINE NEWSLETTER CALLED VOICES OF SUPPORT WHICH RECOGNIZES THE SUPPORT ACTIVITIES OF THE ORGANIZATION; AND SPONSORING AN ANNUAL LEADERSHIP DAY IN CONJUNCTION WITH A SYMPOSIUM.Description

Activity3 Activity3

FieldValueIRS element (for citing)
Expense28044Expense
Grants19885Grants
DescriptionRESEARCH-THE NSDA IS STRONGLY COMMITTED TO UNDERSTANDING THE SCIENCE OF SD AND SUPPORTING RESEARCH. TO THIS END, THE NSDA FUNDED ITS SECOND RESEARCH GRANT; IS AN ACTIVE MEMBER OF THE DYSTONIA COALITION, AN NIH-FUNDED INITIATIVE FORMED TO ADVANCE CLINICAL RESEARCH FOR FOCAL DYSTONIA, PROVIDED GRANT SUPPORT FOR PROJECT 3 OF THE DYSTONIA COALITION ON THE DEVELOPMENT OF THE DIAGNOSTIC TOOL FOR SPASMODIC DYSPHONIA; MAINTAINS THE NSDA SCIENTIFIC ADVISORY BOARD FOR CONSULTATION ON HOW TO FURTHER ADVANCE RESEARCH FOR SUPPORT OF BETTER TREATMENTS AND ULTIMATELY A CURE FOR SD.Description
FieldValueIRS element (for citing)
Total Program Service Expense200512TotalProgramServiceExpense
Described In501 C3trueDescribedIn501C3
Schedule B RequiredtrueScheduleBRequired
Political ActivitiesfalsePoliticalActivities
Lobbying ActivitiestrueLobbyingActivities
Subject To Proxy TaxfalseSubjectToProxyTax
Donor Advised FundsfalseDonorAdvisedFunds
Conservation EasementsfalseConservationEasements
Collections Of ArtfalseCollectionsOfArt
Credit CounselingfalseCreditCounseling
Term Or Permanent EndowmentsfalseTermOrPermanentEndowments
Report Land Bldg EquipfalseReportLandBldgEquip
Report Invest Oth SecuritiesfalseReportInvestOthSecurities
Report Prog Rel InvestfalseReportProgRelInvest
Report Other AssetsfalseReportOtherAssets
Report Other LiabilitiesfalseReportOtherLiabilities
Report Fin48 FootnotefalseReportFin48Footnote
Independent Audit Financial StmtfalseIndependentAuditFinancialStmt
Consolidated Audit Financial StmtfalseConsolidatedAuditFinancialStmt
SchoolfalseSchool
Foreign OfficefalseForeignOffice
Foreign ActivitiesfalseForeignActivities
More Than5000 K To OrganizationsfalseMoreThan5000KToOrganizations
More Than5000 K To IndividualsfalseMoreThan5000KToIndividuals
Professional FundraisingfalseProfessionalFundraising
Fundraising ActivitiesfalseFundraisingActivities
GamingfalseGaming
HospitalfalseHospital
Grants To OrganizationstrueGrantsToOrganizations
Grants To IndividualsfalseGrantsToIndividuals
Schedule J RequiredfalseScheduleJRequired
Tax Exempt BondsfalseTaxExemptBonds
Invest Tax Exempt BondsfalseInvestTaxExemptBonds
Escrow AccountfalseEscrowAccount
On Behalf Of IssuerfalseOnBehalfOfIssuer
Excess Benefit TransactionfalseExcessBenefitTransaction
Prior Excess Benefit TransactionfalsePriorExcessBenefitTransaction
Loan To Officer Or DQPfalseLoanToOfficerOrDQP
Grant To Related PersonfalseGrantToRelatedPerson
Bsnss Rltnshp With OrganizationfalseBsnssRltnshpWithOrganization
Bsnss Rltnshp Thru Family MemberfalseBsnssRltnshpThruFamilyMember
Officer Entity With Bsnss RltnshpfalseOfficerEntityWithBsnssRltnshp
Deductible Non Cash ContributionsfalseDeductibleNonCashContributions
Deductible Contributions Of ArtfalseDeductibleContributionsOfArt
TerminatedfalseTerminated
Partial LiquidationfalsePartialLiquidation
Disregarded EntityfalseDisregardedEntity
Related EntityfalseRelatedEntity
Related Org Controlled EntityfalseRelatedOrgControlledEntity
Transaction Related EntityfalseTransactionRelatedEntity
Transfers To Exempt Non Chrtbl OrgfalseTransfersToExemptNonChrtblOrg
Activities Conducted PartnershipfalseActivitiesConductedPartnership
Schedule O RequiredtrueScheduleORequired
Number Forms Transmitted With10960NumberFormsTransmittedWith1096
Number W2 G Included0NumberW2GIncluded
Compliance With Backup WitholdingfalseComplianceWithBackupWitholding
Number Of Employees2NumberOfEmployees
Employment Tax Returns FiledtrueEmploymentTaxReturnsFiled
Unrelated Business IncomefalseUnrelatedBusinessIncome
Form990-T FiledfalseForm990-TFiled
Foreign Financial AccountfalseForeignFinancialAccount
Prohibited Tax Shelter TransfalseProhibitedTaxShelterTrans
Taxable Party NotificationfalseTaxablePartyNotification
Form8886 T FiledfalseForm8886TFiled
Non Deductible ContributionsfalseNonDeductibleContributions
Non Deductible DisclosurefalseNonDeductibleDisclosure
Quid Pro Quo ContributionsfalseQuidProQuoContributions
Quid Pro Quo DisclosurefalseQuidProQuoDisclosure
Form8282 Property Disposed OffalseForm8282PropertyDisposedOf
Number Of8282 Filed0NumberOf8282Filed
Funds To Pay PremiumsfalseFundsToPayPremiums
Premiums PaidfalsePremiumsPaid
Form8899 FiledfalseForm8899Filed
Form1098 C FiledfalseForm1098CFiled
Excess Business HoldingsfalseExcessBusinessHoldings
Taxable DistributionsfalseTaxableDistributions
Distribution To DonorfalseDistributionToDonor
Filed Lieu1041falseFiledLieu1041
Licensed More Than One StatefalseLicensedMoreThanOneState
Indoor Tanning ServicesfalseIndoorTanningServices
Form720 FiledfalseForm720Filed
Info In Schedule O Part VIXInfoInScheduleOPartVI
Nbr Voting Governing Body Members10NbrVotingGoverningBodyMembers
Number Independent Voting Members10NumberIndependentVotingMembers
Family Or Business RelationshipfalseFamilyOrBusinessRelationship
Delegation Of Management DutiesfalseDelegationOfManagementDuties
Changes To Organizing DocsfalseChangesToOrganizingDocs
Material Diversion Or MisusefalseMaterialDiversionOrMisuse
Members Or StockholdersfalseMembersOrStockholders
Election Of Board MembersfalseElectionOfBoardMembers
Decisions Subject To ApprovalfalseDecisionsSubjectToApproval
Minutes Of Governing BodytrueMinutesOfGoverningBody
Minutes Of CommitteesfalseMinutesOfCommittees
Officer Mailing AddressfalseOfficerMailingAddress
Local ChaptersfalseLocalChapters
Policies Reference ChaptersfalsePoliciesReferenceChapters
Form990 Provided To Governing BodytrueForm990ProvidedToGoverningBody
Conflict Of Interest PolicytrueConflictOfInterestPolicy
Annual Disclosure Covered PersonsfalseAnnualDisclosureCoveredPersons
Regular Monitoring EnforcementfalseRegularMonitoringEnforcement
Whistleblower PolicytrueWhistleblowerPolicy
Document Retention PolicyfalseDocumentRetentionPolicy
Compensation Process CEOtrueCompensationProcessCEO
Compensation Process OtherfalseCompensationProcessOther
Investment In Joint VenturefalseInvestmentInJointVenture
Written Policy Or ProcedurefalseWrittenPolicyOrProcedure
States Where Copy Of Return Is FiledMIStatesWhereCopyOfReturnIsFiled
States Where Copy Of Return Is FiledILStatesWhereCopyOfReturnIsFiled
Upon RequestXUponRequest

The Books Are In Care Of TheBooksAreInCareOf

FieldValueIRS element (for citing)
Name PersonKIMBERLY A KUMANNamePerson
Telephone Number8007956732TelephoneNumber

Address US AddressUS

FieldValueIRS element (for citing)
Address Line1300 PARK BOULEVARD 415AddressLine1
CityITASCACity
StateILState
ZIP Code60143ZIPCode

Form990 Part VII Section A Form990PartVIISectionA (12 entries)

TitleTitleAverage Hours Per WeekAverageHoursPerWeekIndividual Trustee Or DirectorIndividualTrusteeOrDirectorReportable Comp From OrganizationReportableCompFromOrganizationReportable Comp From Related OrgsReportableCompFromRelatedOrgsOther CompensationOtherCompensationOfficerOfficerKey EmployeeKeyEmployee
STEPHANIE MENDEL
Director4.00X000
SHERRY WHITLEY
Director0.00X000
MARY BIFARO
Director6.00X000
MARCIA STERLING
Treasurer2.00X000X
LAWRENCE KOLASA
Director1.00X000
LAURIE CERMAK
Director2.00X000
KIMBERLY KUMAN
Executive Direc40.007000003999XX
JOHN COMER
Director2.00X000
DOT SOWERBY
PAST PRESIDENT4.00X000
DAVID BARTON
PAST PRESIDENT4.00X000X
CHARLIE WOMBLE
Director3.00X000
CHARLIE REAVIS
President10.00X000X
FieldValueIRS element (for citing)
Total Reportable Comp From Org70000TotalReportableCompFromOrg
Total Other Compensation3999TotalOtherCompensation
Number Individuals GT100 K0NumberIndividualsGT100K
Formers ListedfalseFormersListed
Total Comp GT150 KfalseTotalCompGT150K
Compensation From Other SourcesfalseCompensationFromOtherSources
Number Of Contractors GT100 K0NumberOfContractorsGT100K
All Other Contributions185979AllOtherContributions
Noncash Contributions8961NoncashContributions
Total Contributions185979TotalContributions

Program Service Revenue ProgramServiceRevenue

FieldValueIRS element (for citing)
DescriptionPROGRAM REGISTRATIONSDescription
Business Code900099BusinessCode
Total Revenue Column1150TotalRevenueColumn
Related Or Exempt Function Income1150RelatedOrExemptFunctionIncome
FieldValueIRS element (for citing)
Total Program Service Revenue1150TotalProgramServiceRevenue

Investment Income InvestmentIncome

FieldValueIRS element (for citing)
Total Revenue Column6402TotalRevenueColumn
Related Or Exempt Function Income6402RelatedOrExemptFunctionIncome

Income From Invest Bond Proceeds IncomeFromInvestBondProceeds

FieldValueIRS element (for citing)
Total Revenue Column0TotalRevenueColumn

Royalties Revenue RoyaltiesRevenue

FieldValueIRS element (for citing)
Total Revenue Column0TotalRevenueColumn

Net Rental Income Or Loss NetRentalIncomeOrLoss

FieldValueIRS element (for citing)
Total Revenue Column0TotalRevenueColumn

Gross Amount Sales Assets GrossAmountSalesAssets

FieldValueIRS element (for citing)
Securities357053Securities

Less Cost Oth Basis Sales Expenses LessCostOthBasisSalesExpenses

FieldValueIRS element (for citing)
Securities357887Securities

Gain Or Loss GainOrLoss

FieldValueIRS element (for citing)
Securities-834Securities

Net Gain Or Loss Investments NetGainOrLossInvestments

FieldValueIRS element (for citing)
Total Revenue Column-834TotalRevenueColumn
Related Or Exempt Function Income-834RelatedOrExemptFunctionIncome

Net Income From Fundraising Events NetIncomeFromFundraisingEvents

FieldValueIRS element (for citing)
Total Revenue Column0TotalRevenueColumn

Net Income From Gaming NetIncomeFromGaming

FieldValueIRS element (for citing)
Total Revenue Column0TotalRevenueColumn

Net Income Or Loss NetIncomeOrLoss

FieldValueIRS element (for citing)
Total Revenue Column0TotalRevenueColumn

Other Revenue Misc OtherRevenueMisc

FieldValueIRS element (for citing)
DescriptionMERCHANDISE SALESDescription
Business Code900099BusinessCode
Total Revenue Column2165TotalRevenueColumn
Related Or Exempt Function Income2165RelatedOrExemptFunctionIncome
FieldValueIRS element (for citing)
Total Other Revenue2165TotalOtherRevenue

Total Revenue TotalRevenue

FieldValueIRS element (for citing)
Total Revenue Column194862TotalRevenueColumn
Related Or Exempt Function Income8883RelatedOrExemptFunctionIncome

Grants To Domestic Orgs GrantsToDomesticOrgs

FieldValueIRS element (for citing)
Total19885Total
Program Services19885ProgramServices

Grants To Domestic Individuals GrantsToDomesticIndividuals

FieldValueIRS element (for citing)
Total0Total

Foreign Grants ForeignGrants

FieldValueIRS element (for citing)
Total0Total

Benefits To Members BenefitsToMembers

FieldValueIRS element (for citing)
Total0Total

Comp Current Officers Directors CompCurrentOfficersDirectors

FieldValueIRS element (for citing)
Total73999Total
Program Services59199ProgramServices
Management And General7400ManagementAndGeneral
Fundraising7400Fundraising

Comp Disqual Persons CompDisqualPersons

FieldValueIRS element (for citing)
Total0Total

Other Salaries And Wages OtherSalariesAndWages

FieldValueIRS element (for citing)
Total12618Total
Program Services10094ProgramServices
Management And General1262ManagementAndGeneral
Fundraising1262Fundraising

Pension Plan Contributions PensionPlanContributions

FieldValueIRS element (for citing)
Total0Total

Other Employee Benefits OtherEmployeeBenefits

FieldValueIRS element (for citing)
Total0Total

Payroll Taxes PayrollTaxes

FieldValueIRS element (for citing)
Total6500Total
Program Services5200ProgramServices
Management And General650ManagementAndGeneral
Fundraising650Fundraising

Fees For Services Management FeesForServicesManagement

FieldValueIRS element (for citing)
Total0Total

Fees For Services Legal FeesForServicesLegal

FieldValueIRS element (for citing)
Total0Total

Fees For Services Accounting FeesForServicesAccounting

FieldValueIRS element (for citing)
Total5000Total
Program Services4000ProgramServices
Management And General500ManagementAndGeneral
Fundraising500Fundraising

Fees For Services Lobbying FeesForServicesLobbying

FieldValueIRS element (for citing)
Total0Total

Fees For Services Prof Fundraising FeesForServicesProfFundraising

FieldValueIRS element (for citing)
Total0Total

Fees For Services Invst Mgmnt Fees FeesForServicesInvstMgmntFees

FieldValueIRS element (for citing)
Total0Total

Fees For Services Other FeesForServicesOther

FieldValueIRS element (for citing)
Total5841Total
Program Services180ProgramServices
Management And General5638ManagementAndGeneral
Fundraising23Fundraising

Advertising Advertising

FieldValueIRS element (for citing)
Total0Total

Office Expenses OfficeExpenses

FieldValueIRS element (for citing)
Total0Total

Information Technology InformationTechnology

FieldValueIRS element (for citing)
Total0Total

Royalties Royalties

FieldValueIRS element (for citing)
Total0Total

Occupancy Occupancy

FieldValueIRS element (for citing)
Total8941Total
Program Services7153ProgramServices
Management And General894ManagementAndGeneral
Fundraising894Fundraising

Travel Travel

FieldValueIRS element (for citing)
Total0Total

Travel Entrtnmnt Public Officials TravelEntrtnmntPublicOfficials

FieldValueIRS element (for citing)
Total0Total

Conferences Meetings ConferencesMeetings

FieldValueIRS element (for citing)
Total18696Total
Program Services17347ProgramServices
Management And General829ManagementAndGeneral
Fundraising520Fundraising

Interest Interest

FieldValueIRS element (for citing)
Total0Total

Payments To Affiliates PaymentsToAffiliates

FieldValueIRS element (for citing)
Total0Total

Depreciation Depletion DepreciationDepletion

FieldValueIRS element (for citing)
Total0Total

Insurance Insurance

FieldValueIRS element (for citing)
Total0Total

Other Expenses OtherExpenses (5 entries)

DescriptionDescriptionTotalTotalProgram ServicesProgramServicesManagement And GeneralManagementAndGeneralFundraisingFundraising
Printing and Publications573156175757
NEWSLETTER24323226792001444
AWARENESS/SUPPORT1992619926
ADVOCACY1489614896
ADMINISTRATION12016917618281012

All Other Expenses AllOtherExpenses

FieldValueIRS element (for citing)
Total11373Total
Program Services5160ProgramServices
Management And General339ManagementAndGeneral
Fundraising5874Fundraising

Total Functional Expenses TotalFunctionalExpenses

FieldValueIRS element (for citing)
Total239745Total
Program Services200512ProgramServices
Management And General19597ManagementAndGeneral
Fundraising19636Fundraising

Cash Non Interest Bearing CashNonInterestBearing

FieldValueIRS element (for citing)
BOY40589BOY
EOY23728EOY

Savings And Temp Cash Investments SavingsAndTempCashInvestments

FieldValueIRS element (for citing)
BOY418420BOY
EOY442151EOY

Pledges And Grants Receivable PledgesAndGrantsReceivable

FieldValueIRS element (for citing)
BOY37500BOY
EOY0EOY

Accounts Receivable AccountsReceivable

FieldValueIRS element (for citing)
EOY0EOY

Receivables From Officers Etc ReceivablesFromOfficersEtc

FieldValueIRS element (for citing)
EOY0EOY

Receivables From Disqual Persons ReceivablesFromDisqualPersons

FieldValueIRS element (for citing)
EOY0EOY

Other Notes Loans Receivable Net OtherNotesLoansReceivableNet

FieldValueIRS element (for citing)
EOY0EOY

Inventories For Sale Or Use InventoriesForSaleOrUse

FieldValueIRS element (for citing)
EOY0EOY

Prepaid Expenses Deferred Charges PrepaidExpensesDeferredCharges

FieldValueIRS element (for citing)
EOY0EOY

Land Buildings Equipment Basis Net LandBuildingsEquipmentBasisNet

FieldValueIRS element (for citing)
EOY0EOY

Investments Pub Traded Securities InvestmentsPubTradedSecurities

FieldValueIRS element (for citing)
BOY83741BOY
EOY66812EOY

Investments Other Securities InvestmentsOtherSecurities

FieldValueIRS element (for citing)
EOY0EOY

Investments Program Related InvestmentsProgramRelated

FieldValueIRS element (for citing)
EOY0EOY

Intangible Assets IntangibleAssets

FieldValueIRS element (for citing)
EOY0EOY

Other Assets Total OtherAssetsTotal

FieldValueIRS element (for citing)
BOY2918BOY
EOY5022EOY

Total Assets TotalAssets

FieldValueIRS element (for citing)
BOY583168BOY
EOY537713EOY

Accounts Payable Accrued Expenses AccountsPayableAccruedExpenses

FieldValueIRS element (for citing)
BOY2194BOY
EOY1250EOY

Deferred Revenue DeferredRevenue

FieldValueIRS element (for citing)
EOY1465EOY

Total Liabilities TotalLiabilities

FieldValueIRS element (for citing)
BOY2194BOY
EOY2715EOY
FieldValueIRS element (for citing)
Follow SFAS117XFollowSFAS117

Unrestricted Net Assets UnrestrictedNetAssets

FieldValueIRS element (for citing)
BOY503894BOY
EOY483078EOY

Temporarily Restricted Net Assets TemporarilyRestrictedNetAssets

FieldValueIRS element (for citing)
BOY77080BOY
EOY51920EOY

Total Net Assets Fund Balances TotalNetAssetsFundBalances

FieldValueIRS element (for citing)
BOY580974BOY
EOY534998EOY

Total Liab Net Assets Fund Balances TotalLiabNetAssetsFundBalances

FieldValueIRS element (for citing)
BOY583168BOY
EOY537713EOY
FieldValueIRS element (for citing)
Info In Schedule O Part XIXInfoInScheduleOPartXI
Reconcilation Revenue Expenses-44883ReconcilationRevenueExpenses
Reconcilation Other Changes-1093ReconcilationOtherChanges
Method Of Accounting AccrualXMethodOfAccountingAccrual
Accountant Compile Or ReviewtrueAccountantCompileOrReview
FS AuditedfalseFSAudited
Audit CommitteetrueAuditCommittee
Financial Statement SeparateXFinancialStatementSeparate
Federal Grant Audit RequiredfalseFederalGrantAuditRequired
Federal Grant Audit PerformedfalseFederalGrantAuditPerformed

Schedule A IRS990ScheduleA

FieldValueIRS element (for citing)
Publicly Supported Org170b1 AviXPubliclySupportedOrg170b1Avi

Gifts Grants Contrib Received170 GiftsGrantsContribReceived170

FieldValueIRS element (for citing)
Current Tax Year Minus4 Years266901CurrentTaxYearMinus4Years
Current Tax Year Minus3 Years324606CurrentTaxYearMinus3Years
Current Tax Year Minus2 Years217199CurrentTaxYearMinus2Years
Current Tax Year Minus1 Year309020CurrentTaxYearMinus1Year
Current Tax Year185979CurrentTaxYear
Total1303705Total

Tax Rev Levied For Org Benefit170 TaxRevLeviedForOrgBenefit170

FieldValueIRS element (for citing)
Total0Total

Value Srvc Fclts Furnished By Govt ValueSrvcFcltsFurnishedByGovt

FieldValueIRS element (for citing)
Total0Total

Total170 Total170

FieldValueIRS element (for citing)
Current Tax Year Minus4 Years266901CurrentTaxYearMinus4Years
Current Tax Year Minus3 Years324606CurrentTaxYearMinus3Years
Current Tax Year Minus2 Years217199CurrentTaxYearMinus2Years
Current Tax Year Minus1 Year309020CurrentTaxYearMinus1Year
Current Tax Year185979CurrentTaxYear
Total1303705Total
FieldValueIRS element (for citing)
Amounts Subst Contributors Total483622AmountsSubstContributorsTotal
Public Support Total170820083PublicSupportTotal170

Gross Investment Income170 GrossInvestmentIncome170

FieldValueIRS element (for citing)
Current Tax Year Minus4 Years6736CurrentTaxYearMinus4Years
Current Tax Year Minus3 Years7703CurrentTaxYearMinus3Years
Current Tax Year Minus2 Years1980CurrentTaxYearMinus2Years
Current Tax Year Minus1 Year2781CurrentTaxYearMinus1Year
Current Tax Year5568CurrentTaxYear
Total24768Total

Net UBI NetUBI

FieldValueIRS element (for citing)
Total0Total

Other Income170 OtherIncome170

FieldValueIRS element (for citing)
Current Tax Year Minus4 Years8CurrentTaxYearMinus4Years
Total8Total
FieldValueIRS element (for citing)
Total Support1328481TotalSupport
Gross Receipts From Admissions Etc39534GrossReceiptsFromAdmissionsEtc
Public Support Pertcentage1700.61730PublicSupportPertcentage170
Public Support Pertcent Prior Year0.57020PublicSupportPertcentPriorYear
Thirty Three Percnt Tests CY170XThirtyThreePercntTestsCY170

Schedule B IRS990ScheduleB

Contributor Info ContributorInfo

FieldValueIRS element (for citing)
Contributor NumberRESTRICTEDContributorNumber

Contributor Name Business ContributorNameBusiness

FieldValueIRS element (for citing)
Business Name Line1RESTRICTEDBusinessNameLine1

Contributor Address US ContributorAddressUS

FieldValueIRS element (for citing)
Address Line1RESTRICTEDAddressLine1
Address Line2RESTRICTEDAddressLine2
CityRESTRICTEDCity
StateRESTRICTEDState
ZIP CodeRESTRICTEDZIPCode
FieldValueIRS element (for citing)
Aggregate ContributionsRESTRICTEDAggregateContributions

Schedule C IRS990ScheduleC

FieldValueIRS element (for citing)
Form4720 Filed4955 TaxfalseForm4720Filed4955Tax
Correction MadefalseCorrectionMade
VolunteerstrueVolunteers
Paid Staff Or ManagementtruePaidStaffOrManagement
Media AdvertisementsfalseMediaAdvertisements
Mailings MemberstrueMailingsMembers
Publications Or BroadcastfalsePublicationsOrBroadcast
Grants Other OrganizationsfalseGrantsOtherOrganizations
Direct Contact LegislatorstrueDirectContactLegislators
Direct Contact Legislators$2,500DirectContactLegislatorsAmount
Rallies DemonstrationsfalseRalliesDemonstrations
Other ActivitiesfalseOtherActivities
Total Lobbying Expenditures IIB2500TotalLobbyingExpendituresIIB
Not Described In501c3falseNotDescribedIn501c3
Form4720 Filed4912 TaxfalseForm4720Filed4912Tax

Schedule I IRS990ScheduleI

FieldValueIRS element (for citing)
Records MaintainedtrueRecordsMaintained

Recipient Table RecipientTable

Recipient Name Business RecipientNameBusiness

FieldValueIRS element (for citing)
Business Name Line1UNIV OF KENTUCKY RESEABusinessNameLine1

Address US AddressUS

FieldValueIRS element (for citing)
Address Line1301 PETERSON SERVICE BLDGAddressLine1
CityLEXINGTONCity
StateKYState
ZIP Code40506ZIPCode
FieldValueIRS element (for citing)
EIN Of Recipient616033693EINOfRecipient
IRC Section501C3IRCSection
Amount Of Cash Grant19885AmountOfCashGrant
Amount Of Non Cash Assistance0AmountOfNonCashAssistance
Purpose Of GrantMEDICAL RESEARCHPurposeOfGrant
FieldValueIRS element (for citing)
Total Nbr Of501 C3 And Govt Grants1TotalNbrOf501C3AndGovtGrants
Total Nbr Of Other Organizations0TotalNbrOfOtherOrganizations

Form990 Schedule I Part IV Form990ScheduleIPartIV

FieldValueIRS element (for citing)
IdentifierGrantmaker's Description of How Grants are UsedIdentifier
ExplanationGRANTS ARE MONITORED BY THE SCIENTIFIC ADVISORY BOARD THROUGH 6-MONTH PROGRESS REPORTS WHICH ARE THEN PROVIDED TO THE BOARD OF DIRECTORS FOR THEIR RECOMMENDATIONS ON WHETHER FUNDING SHOULD CONTINUE. IF FUNDING DOES CONTINUE, A FINAL REPORT IS SUBMITTED AFTER COMPLETION OF THE GRANT.Explanation

Schedule O IRS990ScheduleO

General Explanation GeneralExplanation (2 entries)

IdentifierIdentifierReturn ReferenceReturnReferenceExplanationExplanation
Form 990, Part VI, Line 19Form 990, Part VI, Line 19: Other Organization Documents Publicly AvailableTHE ARTICLES OF INCORPORATION ARE PUBLICLY AVAILABLE FROM THE ILLINOIS SECRETARY OF STATE'S OFFICE. THE CONFLICT OF INTEREST POLICY (PART OF THE CODE OF ETHICS) IS PUBLICLY AVAILABLE ON THE ORGANIZATION'S WEBSITE. REQUESTS FOR FINANCIAL STATEMENTS (OTHER THAN THOSE INCLUDED IN IRS FORM 990) ARE REVIEWED FOR MERIT.
Form 990, Part VI, Line 11Form 990, Part VI, Line 11: Form 990 Review ProcessTHE DETAIL REVIEW OF THE FORM 990 DRAFT WAS CONDUCTED BY THE ORGANIZATION'S MANAGEMENT, TREASURER, PRESIDENT AND REPRESENTATIVE OF THE ORGANIZATION'S TAX FIRM. A COPY OF THE 990 WAS DISTRIBUTED TO ALL BOARD MEMBERS PRIOR TO FILING.

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