CYSTIC FIBROSIS FOUNDATION
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Cite this
Plain text CYSTIC FIBROSIS FOUNDATION. furp.org, nonprofit organization profile, tax years 2010–2024. https://furp.org/org/cystic-fibrosis-foundation-131930701. Retrieved 2026-11-06.
APA furp.org. (n.d.). CYSTIC FIBROSIS FOUNDATION [Nonprofit organization profile; tax years 2010–2024]. Retrieved November 6, 2026, from https://furp.org/org/cystic-fibrosis-foundation-131930701
MLA “CYSTIC FIBROSIS FOUNDATION.” furp.org, tax years 2010–2024, https://furp.org/org/cystic-fibrosis-foundation-131930701. Accessed 6 Nov. 2026.
Retrieved 2026-11-06; covers tax years 2010–2024. Data: furp.org (index © the FURP Alliance; the records are public domain).
2024 · Form 990 · revenue $355.8M · expenses $439.1M · assets $4.99B
- EIN
- 13-1930701
- Address
- 4550 MONTGOMERY AVESTE 1100 N, BETHESDA, MD 20814-0000
- Website
- https://www.cff.org
- NTEE code
- G20 Birth Defects and Genetic Diseases (Voluntary Health Associations and Medical Disciplines) published (IRS Business Master File, as G200)
- FURP topic
- science: research education (from its 990 text; the topic index)
- Exempt type
- 501(c)(3): charitable, religious, educational, scientific or literary (corporation)
- Ruling date
- November 1957 (when the IRS recognized its exemption)
- IRS status
- Exempt (unconditional) (IRS Business Master File) IRS data ↗
- Tax-deductible donations
- Yes: listed in IRS Publication 78 (public charity) Pub 78 ↗
- Foundation status
- Public charity supported by the public (170(b)(1)(a)(vi))
- Principal officer
- David Norman (its 2014 Form 990-N)
- Form 990-N e-postcards
- 1 filed, 2014 (organizations with gross receipts normally $50,000 or less file this instead of a full Form 990) IRS data ↗
- Cross-check
- ProPublica Nonprofit Explorer
Mission
TO CURE CF AND PROVIDE ALL PEOPLE WITH CF THE OPPORTUNITY TO LEAD LONG, FULFILLING LIVES BY FUNDING RESEARCH AND DRUG DEVELOPMENT, PARTNERING WITH THE CF COMMUNITY, AND ADVANCING HIGH-QUALITY, SPECIALIZED CARE.
Each tax year counts once: when a return was amended, only the latest return for that period is used below (superseded returns stay listed, greyed, under Finances).
People paid by the organization
42 people paid across every filing: current people first, then by total pay from this organization. Organizations counts every nonprofit each person appears on.
| Name | Latest title | Years | Latest year pay | Total pay from here | Organizations |
|---|---|---|---|---|---|
| Michael P Boyle Md | PRESIDENT & CEO | 2018-2024 | $1,275,151 | $7,538,446 | 2 |
| Earl A Lee | MANAGING DIRECTOR, INVESTMENTS | 2019-2024 | $1,594,752 | $6,881,049 | 1 |
| Eric Koehrsen | MANAGING DIRECTOR, INVESTMENTS | 2019-2024 | $1,280,707 | $6,392,175 | 1 |
| Bruce Marshall Md | Chief Medical Officer Ending 7/1/2024 | 2015-2024 | $550,128 | $6,289,545 | 2 |
| John C Mahler Jr Md | CHIEF INVESTMENT OFFICER | 2023-2024 | $1,942,627 | $4,765,223 | 1 |
| John P Clancy Md | SVP, CLINICAL RESEARCH | 2020-2024 | $765,204 | $3,367,639 | 1 |
| Andrew Lewis | MANAGING DIRECTOR, INVESTMENTS | 2023-2024 | $1,401,714 | $2,720,161 | 1 |
| Albert Faro Md | Chief Medical Officer Beg. 7/1/2024 | 2017-2024 | $671,590 | $2,597,885 | 1 |
| Irena Barisic | EVP & CHIEF OPERATING & FINANCIAL OFFICER | 2022-2024 | $844,555 | $2,216,513 | 2 |
| Gentiana S Arovas | MANAGING DIRECTOR, INVESTMENTS OPERATIONS | 2021-2024 | $819,659 | $2,135,990 | 1 |
| Michael B Cavadel | SVP, CHIEF LEGAL OFFICER | 2022-2024 | $661,197 | $1,460,184 | 1 |
| STEVEn ROWE MD | EVP, Chief Scientific Officer | 2024 | $667,206 | $667,206 | 1 |
| Enrique Lin Shiao Phd | Principal of Mission Related Investments | 2024 | $589,642 | $589,642 | 1 |
| Preston Campbell Md (former) | FORMER CEO & STRATEGIC ADVISOR | 2010-2022 | $456,111 | $12,464,269 | 3 |
| Jack Mahler Md (former) | CHIEF INVESTMENT OFFICER | 2017-2022 | $2,694,782 | $10,663,382 | 1 |
| Robert J Beall Phd (former) | FORMER CEO/2018 CONSULTANT | 2010-2018 | $335,359 | $9,470,709 | 3 |
| Vera H Twigg (former) | FORMER EVP, CFO | 2010-2022 | $103,286 | $7,179,479 | 3 |
| C Richard Mattingly (former) | FORMER OFFICER | 2010-2019 | $101,212 | $7,131,827 | 3 |
| Marc S Ginsky (former) | FORMER COO | 2016-2022 | $160,000 | $5,641,587 | 2 |
| William Skach Md (former) | EVP & CHIEF SCIENTIFIC OFFICER | 2015-2023 | $279,304 | $5,019,886 | 2 |
| Chris Gegelys (former) | FORMER CHIEF LEGAL OFFICER | 2018-2022 | $176,462 | $2,361,494 | 2 |
| Anthony Durmowicz Md (former) | VP, CLINICAL DEVELOPMENT | 2019-2022 | $638,695 | $2,301,793 | 1 |
| David Mcloughlin (former) | SR. VP OF OPERATIONS | 2010-2015 | $421,928 | $2,017,547 | 2 |
| Drucy S Borowitz Md (former) | SENIOR VP, COMMUNITY AFFAIRS | 2016-2019 | $570,636 | $1,937,029 | 1 |
| Marybeth Mcmahon (former) | CHIEF OF STAFF | 2016-2022 | $645,343 | $1,793,968 | 1 |
| Glen Goldmark (former) | SENIOR VP OF HUMAN RESOURCES | 2010-2017 | $410,123 | $1,688,595 | 1 |
| Daniel Klein (former) | SR VP, PATIENT ACCESS PROGRAMS | 2010-2014 | $362,128 | $1,588,511 | 1 |
| Mary Dwight (former) | CHIEF POLICY & ADVOCACY OFFICER | 2011-2022 | $672,921 | $1,532,563 | 1 |
| Maureen Fraser (former) | SVP, FIELD MNGMT (UNTIL 5/2021) | 2010-2021 | $560,757 | $1,338,305 | 1 |
| Amy Demaria (former) | SR. VP OF COMMUNICATIONS | 2010-2015 | $316,510 | $1,260,178 | 1 |
| Ann Palmer (former) | SR. VICE PRESIDENT OF FIELD MG | 2010-2013 | $240,360 | $1,029,732 | 1 |
| Gregory August (former) | CHIEF INFORMATION OFFICER | 2010-2013 | $281,337 | $1,026,483 | 1 |
| John Mahler Md (former) | CHIEF INVESTMENT OFFICER | 2016 | $940,732 | $940,732 | 1 |
| Timothy A Waire Jr (former) | CHIEF INFORMATION OFFICER | 2016-2017 | $406,613 | $777,090 | 1 |
| Matthew Mcbrady (former) | MANAGING DIRECTOR, INVESTMENTS | 2018 | $533,026 | $533,026 | 1 |
| Irena Barisic As Of 62021 (former) | EVP, CFAO & ASST SEC. & ASST TRSR | 2021 | $376,778 | $376,778 | 1 |
| Leah Bloom Phd (former) | CHIEF OF STRATEGY | 2016 | $354,675 | $354,675 | 1 |
| William Blanton (former) | DIRECTOR OF INVESTMENTS | 2016 | $337,882 | $337,882 | 1 |
| Chris Penland Phd (former) | VICE PRESIDENT OF RESEARCH | 2015 | $315,242 | $315,242 | 2 |
| Christopher Penland PhD (former) | VP OF RESEARCH | 2014 | $280,155 | $280,155 | 1 |
| Preston W Campbell Iii Md (former) | FORMER CEO & STRATEGIC ADVISOR | 2023 | $257,491 | $257,491 | 1 |
| James Stone (former) | VP OF CYSTIC FIBROSIS SERVICES | 2012 | $255,536 | $255,536 | 1 |
Officers and directors, no compensation reported
35 people listed on the returns with $0 (or no amount) in every compensation column: current people first. Hours are as filed on the latest return each person appears on.
| Name | Latest title | Years | Hrs/wk (latest) | Compensation | Organizations |
|---|---|---|---|---|---|
| John S Weinberg | EXECUTIVE VICE CHAIR | 2017-2024 | 5 | $0 reported | 2 |
| Carole B Griego Md | TRUSTEE | 2014-2024 | 3 | $0 reported | 3 |
| David A Mount | TREASURER | 2010-2024 | 5 | $0 reported | 2 |
| Dodzie Sogah Phd | TRUSTEE | 2023-2024 | 3 | $0 reported | 1 |
| Dominic J Caruso | TRUSTEE | 2021-2024 | 3 | $0 reported | 1 |
| Elise Eberwein | TRUSTEE | 2024 | 3 | $0 reported | 1 |
| Eric R Olson Phd | VICE CHAIR | 2015-2024 | 5 | $0 reported | 3 |
| Eric Schneider Md | TRUSTEE | 2022-2024 | 3 | $0 reported | 1 |
| Jessica H Boyd Md | TRUSTEE | 2020-2024 | 3 | $0 reported | 1 |
| Kate O'Donnell | TRUSTEE | 2023-2024 | 3 | $0 reported | 1 |
| Kc Bryan White | CHAIR | 2010-2024 | 8 | $0 reported | 2 |
| Louis A Defalco | VICE CHAIR | 2014-2024 | 5 | $0 reported | 2 |
| Paul A Motenko | TRUSTEE | 2021-2024 | 3 | $0 reported | 1 |
| Robert H Niehaus | VICE CHAIR | 2015-2024 | 5 | $0 reported | 2 |
| Steven Shak Md | TRUSTEE | 2010-2024 | 3 | $0 reported | 3 |
| Teresa L Elder | VICE CHAIR | 2017-2024 | 5 | $0 reported | 1 |
| Catherine C Mcloud (former) | TRUSTEE | 2010-2022 | 3 | $0 reported | 3 |
| Chad T Moore (former) | TRUSTEE | 2010-2022 | 3 | $0 reported | 2 |
| Paul W Whetsell (former) | TRUSTEE | 2010-2022 | 3 | $0 reported | 2 |
| Theodore J Torphy Phd (former) | VICE CHAIR | 2010-2021 | 5 | $0 reported | 3 |
| Richard J Gray Esq (former) | TRUSTEE | 2010-2021 | 3 | $0 reported | 2 |
| Susan L Hook (former) | TRUSTEE (UNTIL 5/2021) | 2010-2021 | 3 | $0 reported | 2 |
| Theodore J Torphy Ph (former) | VICE CHAIR | 2019 | 5 | $0 reported | 1 |
| Richard L Dandurand (former) | TRUSTEE (THROUGH 5/15/18) | 2010-2018 | 3 | $0 reported | 2 |
| Amy S Weinberg (former) | TRUSTEE (THROUGH 5/17/2017) | 2010-2017 | 3 | $0 reported | 3 |
| Charles J Thayer (former) | TRUSTEE (THROUGH 5/17/2017) | 2010-2017 | 3 | $0 reported | 2 |
| Gary B Sabin (former) | TRUSTEE | 2010-2016 | 3 | $0 reported | 2 |
| Michael L Beatty Esq (former) | TRUSTEE | 2011-2015 | 3 | $0 reported | 2 |
| Gray B Sabin (former) | VICE CHAIRMAN | 2012-2015 | 5 | $0 reported | 2 |
| J Taylor Crandall (former) | TRUSTEE | 2010-2014 | 3 | $0 reported | 2 |
| Barry M Gump (former) | TRUSTEE | 2010-2013 | 3 | $0 reported | 2 |
| Christy L Shaffer PhD (former) | TRUSTEE | 2012-2013 | 3 | $0 reported | 2 |
| Christie L Shaffer PhD (former) | Trustee | 2011 | 3 | $0 reported | 2 |
| Robert Kaplan Trustee (former) | TRUSTEE | 2011 | 3 | $0 reported | 1 |
| Robert S Kaplan (former) | Trustee | 2010 | 3 | $0 reported | 4 |
People by year
2024 · 29 people listed · 13 paid, $13.1M · 875 employees · 56,403 volunteers
| Name | Title | Hrs/wk | From org | From related | Other | Total | Orgs |
|---|---|---|---|---|---|---|---|
| JOHN C MAHLER JR MD | CHIEF INVESTMENT OFFICER | 40 | $1,866,868 | $0 | $75,759 | $1,942,627 | 1 |
| EARL A LEE | MANAGING DIRECTOR, INVESTMENTS | 40 | $1,226,269 | $0 | $368,483 | $1,594,752 | 1 |
| ANDREW LEWIS | MANAGING DIRECTOR, INVESTMENTS | 40 | $1,363,454 | $0 | $38,260 | $1,401,714 | 1 |
| ERIC KOEHRSEN | MANAGING DIRECTOR, INVESTMENTS | 40 | $976,105 | $0 | $304,602 | $1,280,707 | 1 |
| MICHAEL P BOYLE MD | PRESIDENT & CEO | 40 | $1,054,388 | $0 | $220,763 | $1,275,151 | 2 |
| IRENA BARISIC | EVP & CHIEF OPERATING & FINANCIAL OFFICER | 40 | $761,939 | $0 | $82,616 | $844,555 | 2 |
| GENTIANA S AROVAS | MANAGING DIRECTOR, INVESTMENTS OPERATIONS | 40 | $642,532 | $0 | $177,127 | $819,659 | 1 |
| JOHN P CLANCY MD | SVP, CLINICAL RESEARCH | 40 | $669,826 | $0 | $95,378 | $765,204 | 1 |
| ALBERT FARO MD | Chief Medical Officer Beg. 7/1/2024 | 40 | $571,672 | $0 | $99,918 | $671,590 | 1 |
| STEVEn ROWE MD | EVP, Chief Scientific Officer | 32 | $534,655 | $0 | $132,551 | $667,206 | 1 |
| MICHAEL B CAVADEL | SVP, CHIEF LEGAL OFFICER | 40 | $558,135 | $0 | $103,062 | $661,197 | 1 |
| ENRIQUE LIN SHIAO PHD | Principal of Mission Related Investments | 40 | $507,691 | $0 | $81,951 | $589,642 | 1 |
| BRUCE MARSHALL MD | Chief Medical Officer Ending 7/1/2024 | 40 | $515,472 | $0 | $34,656 | $550,128 | 2 |
| CAROLE B GRIEGO MD | TRUSTEE | 3 | $0 | $0 | $0 | $0 | 3 |
| DAVID A MOUNT | TREASURER | 5 | $0 | $0 | $0 | $0 | 2 |
| DODZIE SOGAH PHD | TRUSTEE | 3 | $0 | $0 | $0 | $0 | 1 |
| DOMINIC J CARUSO | TRUSTEE | 3 | $0 | $0 | $0 | $0 | 1 |
| ELISE EBERWEIN | TRUSTEE | 3 | $0 | $0 | $0 | $0 | 1 |
| ERIC R OLSON PHD | VICE CHAIR | 5 | $0 | $0 | $0 | $0 | 3 |
| ERIC SCHNEIDER MD | TRUSTEE | 3 | $0 | $0 | $0 | $0 | 1 |
| JESSICA H BOYD MD | TRUSTEE | 3 | $0 | $0 | $0 | $0 | 1 |
| JOHN S WEINBERG | EXECUTIVE VICE CHAIR | 5 | $0 | $0 | $0 | $0 | 2 |
| KATE O'DONNELL | TRUSTEE | 3 | $0 | $0 | $0 | $0 | 1 |
| KC BRYAN WHITE | CHAIR | 8 | $0 | $0 | $0 | $0 | 2 |
| LOUIS A DEFALCO | VICE CHAIR | 5 | $0 | $0 | $0 | $0 | 2 |
| PAUL A MOTENKO | TRUSTEE | 3 | $0 | $0 | $0 | $0 | 1 |
| ROBERT H NIEHAUS | VICE CHAIR | 5 | $0 | $0 | $0 | $0 | 2 |
| STEVEN SHAK MD | TRUSTEE | 3 | $0 | $0 | $0 | $0 | 3 |
| TERESA L ELDER | VICE CHAIR | 5 | $0 | $0 | $0 | $0 | 1 |
2023 · 28 people listed · 13 paid, $13.0M · 847 employees · 53,389 volunteers
| Name | Title | Hrs/wk | From org | From related | Other | Total | Orgs |
|---|---|---|---|---|---|---|---|
| JOHN C MAHLER JR | CHIEF INVESTMENT OFFICER | 40 | $2,747,771 | $0 | $74,825 | $2,822,596 | 1 |
| MICHAEL P BOYLE MD | PRESIDENT & CEO | 40 | $1,372,546 | $0 | $100,236 | $1,472,782 | 2 |
| EARL A LEE | MANAGING DIRECTOR, INVESTMENTS | 40 | $1,114,424 | $0 | $282,686 | $1,397,110 | 1 |
| ANDREW LEWIS | MANAGING DIRECTOR, INVESTMENTS | 40 | $1,268,837 | $0 | $49,610 | $1,318,447 | 1 |
| ERIC KOEHRSEN | MANAGING DIRECTOR, INVESTMENTS | 40 | $949,505 | $0 | $269,002 | $1,218,507 | 1 |
| BRUCE MARSHALL MD | EVP & CHIEF MEDICAL OFFICER | 40 | $741,926 | $0 | $36,032 | $777,958 | 2 |
| JOHN P CLANCY MD | SVP, CLINICAL RESEARCH | 40 | $659,434 | $0 | $89,921 | $749,355 | 1 |
| IRENA BARISIC | EVP, CHIEF OPER/FIN OFFICER | 40 | $692,433 | $0 | $50,204 | $742,637 | 2 |
| GENTIANA S AROVAS | MANAGING DIRECTOR, INVESTMENTS | 40 | $541,296 | $0 | $190,441 | $731,737 | 1 |
| ALBERT FARO | VP CLINICAL AFFAIRS | 40 | $517,875 | $0 | $124,895 | $642,770 | 1 |
| MICHAEL B CAVADEL | SVP, CHIEF LEGAL OFFICER | 40 | $494,693 | $0 | $81,854 | $576,547 | 1 |
| WILLIAM SKACH MD | EVP & CHIEF SCIENTIFIC OFFICER | 40 | $277,714 | $0 | $1,590 | $279,304 | 2 |
| PRESTON W CAMPBELL III MD | FORMER CEO & STRATEGIC ADVISOR | 40 | $241,993 | $0 | $15,498 | $257,491 | 1 |
| LOUIS A DEFALCO | VICE CHAIR | 5 | $0 | $0 | $0 | $0 | 2 |
| CAROLE B GRIEGO MD | TRUSTEE | 3 | $0 | $0 | $0 | $0 | 3 |
| KATE O'DONNELL | TRUSTEE | 3 | $0 | $0 | $0 | $0 | 1 |
| DODZIE SOGAH PHD | TRUSTEE | 3 | $0 | $0 | $0 | $0 | 1 |
| DAVID A MOUNT | TREASURER | 3 | $0 | $0 | $0 | $0 | 2 |
| ROBERT H NIEHAUS | VICE CHAIR | 5 | $0 | $0 | $0 | $0 | 2 |
| ERIC R OLSON PHD | VICE CHAIR | 5 | $0 | $0 | $0 | $0 | 3 |
| DOMINIC J CARUSO | TRUSTEE | 3 | $0 | $0 | $0 | $0 | 1 |
| PAUL A MOTENKO | TRUSTEE | 3 | $0 | $0 | $0 | $0 | 1 |
| TERESA L ELDER | VICE CHAIR | 5 | $0 | $0 | $0 | $0 | 1 |
| ERIC SCHNEIDER MD | TRUSTEE | 3 | $0 | $0 | $0 | $0 | 1 |
| STEVEN SHAK MD | TRUSTEE | 3 | $0 | $0 | $0 | $0 | 3 |
| JOHN S WEINBERG | EXECUTIVE VICE CHAIR | 5 | $0 | $0 | $0 | $0 | 2 |
| KC BRYAN WHITE | CHAIR | 8 | $0 | $0 | $0 | $0 | 2 |
| JESSICA H BOYD MD | TRUSTEE | 3 | $0 | $0 | $0 | $0 | 1 |
2022 · 32 people listed · 16 paid, $12.2M · 890 employees · 54,572 volunteers
| Name | Title | Hrs/wk | From org | From related | Other | Total | Orgs |
|---|---|---|---|---|---|---|---|
| JACK MAHLER MD | CHIEF INVESTMENT OFFICER | 40 | $2,463,847 | $0 | $230,935 | $2,694,782 | 1 |
| MICHAEL P BOYLE MD | PRESIDENT & CEO | 40 | $950,256 | $0 | $399,526 | $1,349,782 | 2 |
| EARL LEE | MANAGING DIRECTOR, INVESTMENTS | 40 | $1,023,013 | $0 | $234,362 | $1,257,375 | 1 |
| ERIC KOEHRSEN | MANAGING DIRECTOR, INVESTMENTS | 40 | $921,034 | $0 | $248,237 | $1,169,271 | 1 |
| BRUCE MARSHALL MD | EVP & CHIEF MEDICAL OFFICER | 40 | $692,205 | $0 | $104,713 | $796,918 | 2 |
| JOHN P CLANCY MD | SVP, CLINICAL RESEARCH | 40 | $551,336 | $0 | $154,612 | $705,948 | 1 |
| MARY DWIGHT | CHIEF POLICY & ADVOCACY OFFICER | 40 | $543,012 | $0 | $129,909 | $672,921 | 1 |
| MARYBETH MCMAHON | CHIEF OF STAFF | 40 | $552,564 | $0 | $92,779 | $645,343 | 1 |
| ANTHONY DURMOWICZ MD | VP, CLINICAL DEVELOPMENT | 40 | $574,023 | $0 | $64,672 | $638,695 | 1 |
| IRENA BARISIC | EVP, CFAO, ASST. SEC. & ASST. TRSR. | 40 | $557,940 | $0 | $71,381 | $629,321 | 2 |
| WILLIAM SKACH MD | EVP & CHIEF SCIENTIFIC OFFICER | 40 | $455,835 | $0 | $61,418 | $517,253 | 2 |
| PRESTON CAMPBELL MD | FORMER CEO & STRATEGIC ADVISOR | 40 | $393,943 | $0 | $62,168 | $456,111 | 3 |
| MICHAEL B CAVADEL | SVP, CHIEF LEGAL OFFICER, & SEC. | 40 | $194,080 | $0 | $28,360 | $222,440 | 1 |
| CHRIS GEGELYS | FORMER CHIEF LEGAL OFFICER | 0 | $176,462 | $0 | $0 | $176,462 | 2 |
| MARC S GINSKY | FORMER COO | 0 | $160,000 | $0 | $0 | $160,000 | 2 |
| VERA H TWIGG | FORMER EVP, CFO | 0 | $103,286 | $0 | $0 | $103,286 | 3 |
| LOUIS A DEFALCO | VICE CHAIR | 5 | $0 | $0 | $0 | $0 | 2 |
| CAROLE B GRIEGO MD | TRUSTEE | 3 | $0 | $0 | $0 | $0 | 3 |
| CATHERINE C MCLOUD | TRUSTEE | 3 | $0 | $0 | $0 | $0 | 3 |
| CHAD T MOORE | TRUSTEE | 3 | $0 | $0 | $0 | $0 | 2 |
| DAVID A MOUNT | TREASURER | 3 | $0 | $0 | $0 | $0 | 2 |
| ROBERT H NIEHAUS | VICE CHAIR | 5 | $0 | $0 | $0 | $0 | 2 |
| ERIC R OLSON PHD | VICE CHAIR | 5 | $0 | $0 | $0 | $0 | 3 |
| DOMINIC J CARUSO | TRUSTEE | 3 | $0 | $0 | $0 | $0 | 1 |
| PAUL A MOTENKO | TRUSTEE | 3 | $0 | $0 | $0 | $0 | 1 |
| TERESA L ELDER | VICE CHAIR | 5 | $0 | $0 | $0 | $0 | 1 |
| ERIC SCHNEIDER MD | TRUSTEE | 3 | $0 | $0 | $0 | $0 | 1 |
| STEVEN SHAK MD | TRUSTEE | 3 | $0 | $0 | $0 | $0 | 3 |
| JOHN S WEINBERG | EXECUTIVE VICE CHAIR | 5 | $0 | $0 | $0 | $0 | 2 |
| PAUL W WHETSELL | TRUSTEE | 3 | $0 | $0 | $0 | $0 | 2 |
| KC BRYAN WHITE | CHAIR | 8 | $0 | $0 | $0 | $0 | 2 |
| JESSICA H BOYD MD | TRUSTEE | 3 | $0 | $0 | $0 | $0 | 1 |
2021 · 33 people listed · 15 paid, $12.6M · 788 employees · 17,000 volunteers
| Name | Title | Hrs/wk | From org | From related | Other | Total | Orgs |
|---|---|---|---|---|---|---|---|
| JACK MAHLER MD | CHIEF INVESTMENT OFFICER | 40 | $1,401,121 | $0 | $657,424 | $2,058,545 | 1 |
| MARC S GINSKY | COO (UNTIL 8/2021) | 40 | $1,245,811 | $0 | $68,450 | $1,314,261 | 2 |
| MICHAEL P BOYLE MD | PRESIDENT & CEO | 40 | $744,103 | $0 | $447,890 | $1,191,993 | 2 |
| ERIC KOEHRSEN | MANAGING DIRECTOR, INVESTMENTS | 40 | $796,581 | $0 | $216,856 | $1,013,437 | 1 |
| EARL LEE | MANAGING DIRECTOR, INVESTMENTS | 40 | $724,883 | $0 | $190,323 | $915,206 | 1 |
| WILLIAM SKACH MD | EVP & CHIEF SCIENTIFIC OFFICER | 40 | $653,362 | $0 | $176,897 | $830,259 | 2 |
| VERA H TWIGG | CFO (UNTIL 7/2021) | 40 | $616,739 | $0 | $110,081 | $726,820 | 3 |
| BRUCE MARSHALL MD | EVP & CHIEF MEDICAL OFFICER | 40 | $578,644 | $0 | $136,453 | $715,097 | 2 |
| JOHN P CLANCY MD | VP, CLINICAL RESEARCH | 40 | $485,245 | $0 | $122,358 | $607,603 | 1 |
| PRESTON CAMPBELL MD | FORMER CEO & STRATEGIC ADVISOR | 40 | $399,495 | $0 | $201,352 | $600,847 | 3 |
| CHRIS GEGELYS | CHIEF LEGAL OFFICER & SECRETARY | 40 | $465,159 | $0 | $120,691 | $585,850 | 2 |
| GENTIANA AROVAS | INVESTMENT OPERATIONS DIRECTOR | 40 | $467,489 | $0 | $117,105 | $584,594 | 1 |
| ANTHONY DURMOWICZ MD | VP, CLINICAL DEVELOPMENT | 40 | $485,873 | $0 | $80,791 | $566,664 | 1 |
| MAUREEN FRASER | SVP, FIELD MNGMT (UNTIL 5/2021) | 40 | $485,415 | $0 | $75,342 | $560,757 | 1 |
| IRENA BARISIC AS OF 62021 | EVP, CFAO & ASST SEC. & ASST TRSR | 40 | $346,943 | $0 | $29,835 | $376,778 | 1 |
| CATHERINE C MCLOUD | CHAIR | 8 | $0 | $0 | $0 | $0 | 3 |
| JOHN S WEINBERG | EXECUTIVE VICE CHAIR | 6 | $0 | $0 | $0 | $0 | 2 |
| LOUIS A DEFALCO | VICE CHAIR | 5 | $0 | $0 | $0 | $0 | 2 |
| ROBERT H NIEHAUS | VICE CHAIR | 5 | $0 | $0 | $0 | $0 | 2 |
| ERIC R OLSON PHD | VICE CHAIR | 5 | $0 | $0 | $0 | $0 | 3 |
| THEODORE J TORPHY PHD | VICE CHAIR | 5 | $0 | $0 | $0 | $0 | 3 |
| DAVID A MOUNT | TREASURER | 3 | $0 | $0 | $0 | $0 | 2 |
| RICHARD J GRAY ESQ | TRUSTEE | 3 | $0 | $0 | $0 | $0 | 2 |
| CAROLE B GRIEGO MD | TRUSTEE | 3 | $0 | $0 | $0 | $0 | 3 |
| SUSAN L HOOK | TRUSTEE (UNTIL 5/2021) | 3 | $0 | $0 | $0 | $0 | 2 |
| CHAD T MOORE | TRUSTEE | 3 | $0 | $0 | $0 | $0 | 2 |
| DOMINIC J CARUSO | TRUSTEE (AS OF 5/2021) | 3 | $0 | $0 | $0 | $0 | 1 |
| PAUL A MOTENKO | TRUSTEE (AS OF 5/2021) | 3 | $0 | $0 | $0 | $0 | 1 |
| TERESA L ELDER | TRUSTEE | 3 | $0 | $0 | $0 | $0 | 1 |
| STEVEN SHAK MD | TRUSTEE | 3 | $0 | $0 | $0 | $0 | 3 |
| PAUL W WHETSELL | TRUSTEE | 3 | $0 | $0 | $0 | $0 | 2 |
| KC BRYAN WHITE | TRUSTEE | 3 | $0 | $0 | $0 | $0 | 2 |
| JESSICA H BOYD MD | TRUSTEE | 3 | $0 | $0 | $0 | $0 | 1 |
2020 · 29 people listed · 13 paid, $10.5M · 815 employees · 23,000 volunteers
| Name | Title | Hrs/wk | From org | From related | Other | Total | Orgs |
|---|---|---|---|---|---|---|---|
| JACK MAHLER MD | CHIEF INVESTMENT OFFICER | 40 | $1,261,832 | $0 | $636,888 | $1,898,720 | 1 |
| MICHAEL P BOYLE MD | PRESIDENT & CEO | 40 | $818,792 | $0 | $135,238 | $954,030 | 2 |
| MARC S GINSKY | EXECUTIVE VP, COO & SECRET | 40 | $743,011 | $0 | $164,811 | $907,822 | 2 |
| EARL LEE | MANAGING DIRECTOR, INVESTM | 40 | $725,703 | $0 | $163,699 | $889,402 | 1 |
| PRESTON CAMPBELL MD | FORMER CEO & STRATEGIC ADVISOR | 40 | $728,967 | $0 | $114,798 | $843,765 | 3 |
| ERIC KOEHRSEN | MANAGING DIRECTOR, INVESTM | 40 | $627,271 | $0 | $177,499 | $804,770 | 1 |
| WILLIAM SKACH MD | SENIOR VP, RESEARCH AFFAIR | 40 | $669,181 | $0 | $94,477 | $763,658 | 2 |
| VERA H TWIGG | EXECUTIVE VP & CFO | 40 | $559,940 | $0 | $88,055 | $647,995 | 3 |
| BRUCE MARSHALL MD | SENIOR VP, CLINICAL AFFAIR | 40 | $600,090 | $0 | $44,734 | $644,824 | 2 |
| CHRIS GEGELYS | SENIOR VP, CHIEF LEGAL OFF | 40 | $488,813 | $0 | $79,307 | $568,120 | 2 |
| JOHN P CLANCY MD | VP, CLINICAL RESEARCH | 40 | $477,651 | $0 | $61,878 | $539,529 | 1 |
| ANTHONY DURMOWICZ MD | VP, CLINICAL DEVELOPMENT | 40 | $504,174 | $0 | $28,007 | $532,181 | 1 |
| ALBERT FARO MD | VP, CLINICAL AFFAIRS | 40 | $418,378 | $0 | $61,864 | $480,242 | 1 |
| CATHERINE C MCLOUD | CHAIR | 8 | $0 | $0 | $0 | $0 | 3 |
| JOHN S WEINBERG | EXECUTIVE VICE CHAIR | 5 | $0 | $0 | $0 | $0 | 2 |
| DAVID A MOUNT | TREASURER | 3 | $0 | $0 | $0 | $0 | 2 |
| JESSICA H BOYD MD | TRUSTEE | 3 | $0 | $0 | $0 | $0 | 1 |
| KC BRYAN WHITE | TRUSTEE | 3 | $0 | $0 | $0 | $0 | 2 |
| CAROLE B GRIEGO MD | TRUSTEE | 3 | $0 | $0 | $0 | $0 | 3 |
| SUSAN L HOOK | TRUSTEE | 3 | $0 | $0 | $0 | $0 | 2 |
| CHAD T MOORE | TRUSTEE | 3 | $0 | $0 | $0 | $0 | 2 |
| ERIC R OLSON PHD | TRUSTEE | 3 | $0 | $0 | $0 | $0 | 3 |
| TERESA L ELDER | TRUSTEE | 3 | $0 | $0 | $0 | $0 | 1 |
| STEVEN SHAK MD | TRUSTEE | 3 | $0 | $0 | $0 | $0 | 3 |
| PAUL W WHETSELL | TRUSTEE | 3 | $0 | $0 | $0 | $0 | 2 |
| ROBERT H NIEHAUS | VICE CHAIR | 5 | $0 | $0 | $0 | $0 | 2 |
| THEODORE J TORPHY PHD | VICE CHAIR | 5 | $0 | $0 | $0 | $0 | 3 |
| LOUIS A DEFALCO | VICE CHAIR | 5 | $0 | $0 | $0 | $0 | 2 |
| RICHARD J GRAY ESQ | VICE CHAIR | 5 | $0 | $0 | $0 | $0 | 2 |
2019 · 28 people listed · 13 paid, $10.3M · 888 employees · 92,000 volunteers
| Name | Title | Hrs/wk | From org | From related | Other | Total | Orgs |
|---|---|---|---|---|---|---|---|
| JACK MAHLER MD | CHIEF INVESTMENT OFFICER | 40 | $1,129,788 | $0 | $454,050 | $1,583,838 | 1 |
| PRESTON CAMPBELL MD | PRESIDENT & CEO | 40 | $1,296,038 | $0 | $160,730 | $1,456,768 | 3 |
| MARC S GINSKY | EXECUTIVE VP, COO & SECRETARY | 40 | $798,697 | $0 | $196,290 | $994,987 | 2 |
| ERIC KOEHRSEN | MANAGING DIRECTOR, INVESTMENTS | 40 | $724,272 | $0 | $181,211 | $905,483 | 1 |
| EARL LEE | MANAGING DIRECTOR, INVESTMENTS | 40 | $795,644 | $0 | $31,560 | $827,204 | 1 |
| VERA H TWIGG | EXECUTIVE VP & CFO | 40 | $616,492 | $0 | $116,663 | $733,155 | 3 |
| MICHAEL P BOYLE MD | SR.VP,THERAPEUTICS DEVELOPMENT | 40 | $572,626 | $0 | $110,366 | $682,992 | 2 |
| WILLIAM SKACH MD | SENIOR VP, RESEARCH AFFAIRS | 40 | $553,576 | $0 | $108,709 | $662,285 | 2 |
| BRUCE MARSHALL MD | SENIOR VP, CLINICAL AFFAIRS | 40 | $570,534 | $0 | $44,951 | $615,485 | 2 |
| CHRIS GEGELYS | SENIOR VP, CHIEF LEGAL OFFICER | 40 | $508,694 | $0 | $76,727 | $585,421 | 2 |
| DRUCY S BOROWITZ MD | SENIOR VP, COMMUNITY AFFAIRS | 40 | $542,352 | $0 | $28,284 | $570,636 | 1 |
| ANTHONY DURMOWICZ MD | VP, CLINICAL DEVELOPMENT | 40 | $519,124 | $0 | $45,129 | $564,253 | 1 |
| C RICHARD MATTINGLY | FORMER OFFICER | 0 | $101,212 | $0 | $0 | $101,212 | 3 |
| LOUIS A DEFALCO | VICE CHAIR | 5 | $0 | $0 | $0 | $0 | 2 |
| RICHARD J GRAY ESQ | VICE CHAIR | 5 | $0 | $0 | $0 | $0 | 2 |
| CAROLE B GRIEGO MD | TRUSTEE | 3 | $0 | $0 | $0 | $0 | 3 |
| SUSAN L HOOK | TRUSTEE | 3 | $0 | $0 | $0 | $0 | 2 |
| CATHERINE C MCLOUD | CHAIR | 8 | $0 | $0 | $0 | $0 | 3 |
| CHAD T MOORE | TRUSTEE | 3 | $0 | $0 | $0 | $0 | 2 |
| DAVID A MOUNT | TREASURER | 3 | $0 | $0 | $0 | $0 | 2 |
| ROBERT H NIEHAUS | VICE CHAIR | 5 | $0 | $0 | $0 | $0 | 2 |
| ERIC R OLSON PHD | TRUSTEE | 3 | $0 | $0 | $0 | $0 | 3 |
| TERESA L ELDER | TRUSTEE | 3 | $0 | $0 | $0 | $0 | 1 |
| STEVEN SHAK MD | TRUSTEE | 3 | $0 | $0 | $0 | $0 | 3 |
| THEODORE J TORPHY PH | VICE CHAIR | 5 | $0 | $0 | $0 | $0 | 1 |
| JOHN S WEINBERG | EXECUTIVE VICE CHAIR | 5 | $0 | $0 | $0 | $0 | 2 |
| PAUL W WHETSELL | TRUSTEE | 3 | $0 | $0 | $0 | $0 | 2 |
| KC BRYAN WHITE | TRUSTEE | 3 | $0 | $0 | $0 | $0 | 2 |
2018 · 30 people listed · 14 paid, $8.9M · 846 employees · 92,000 volunteers
| Name | Title | Hrs/wk | From org | From related | Other | Total | Orgs |
|---|---|---|---|---|---|---|---|
| PRESTON CAMPBELL MD | PRESIDENT & CEO | 40 | $1,263,852 | $0 | $162,414 | $1,426,266 | 3 |
| JACK MAHLER MD | CHIEF INVESTMENT OFFICER | 40 | $924,937 | $0 | $153,170 | $1,078,107 | 1 |
| MARC S GINSKY | EXECUTIVE VP, COO & SECRETARY | 40 | $733,685 | $0 | $186,426 | $920,111 | 2 |
| VERA H TWIGG | EXECUTIVE VP & CFO | 40 | $696,431 | $0 | $102,882 | $799,313 | 3 |
| BRUCE MARSHALL MD | SENIOR VP, CLINICAL AFFAIRS | 40 | $602,074 | $0 | $32,864 | $634,938 | 2 |
| MICHAEL P BOYLE MD | SR.VP,THERAPEUTICS DEVELOPMENT | 40 | $497,768 | $0 | $113,948 | $611,716 | 2 |
| WILLIAM SKACH MD | SENIOR VP, RESEARCH AFFAIRS | 40 | $491,019 | $0 | $113,951 | $604,970 | 2 |
| DRUCY S BOROWITZ MD | SENIOR VP, COMMUNITY AFFAIRS | 40 | $499,834 | $0 | $35,464 | $535,298 | 1 |
| MATTHEW MCBRADY | MANAGING DIRECTOR, INVESTMENTS | 40 | $470,395 | $0 | $62,631 | $533,026 | 1 |
| CHRIS GEGELYS | SENIOR VP, CHIEF LEGAL OFFICER | 40 | $378,810 | $0 | $66,831 | $445,641 | 2 |
| ALBERT FARO MD | SR.DIRECTOR CLINICAL AFFAIRS | 40 | $355,016 | $0 | $66,941 | $421,957 | 1 |
| MARYBETH MCMAHON PHD | CHIEF OF STAFF | 40 | $364,566 | $0 | $53,765 | $418,331 | 1 |
| ROBERT J BEALL PHD | FORMER CEO/2018 CONSULTANT | 10 | $335,359 | $0 | $0 | $335,359 | 3 |
| C RICHARD MATTINGLY | FORMER COO | 0 | $100,816 | $0 | $0 | $100,816 | 3 |
| RICHARD L DANDURAND | TRUSTEE (THROUGH 5/15/18) | 3 | $0 | $0 | $0 | $0 | 2 |
| LOUIS A DEFALCO | VICE CHAIR | 5 | $0 | $0 | $0 | $0 | 2 |
| RICHARD J GRAY ESQ | VICE CHAIR | 5 | $0 | $0 | $0 | $0 | 2 |
| CAROLE B GRIEGO MD | TRUSTEE | 3 | $0 | $0 | $0 | $0 | 3 |
| SUSAN L HOOK | TRUSTEE | 3 | $0 | $0 | $0 | $0 | 2 |
| CATHERINE C MCLOUD | CHAIR | 8 | $0 | $0 | $0 | $0 | 3 |
| CHAD T MOORE | TRUSTEE | 3 | $0 | $0 | $0 | $0 | 2 |
| DAVID A MOUNT | TREASURER | 3 | $0 | $0 | $0 | $0 | 2 |
| ROBERT H NIEHAUS | VICE CHAIR | 5 | $0 | $0 | $0 | $0 | 2 |
| ERIC R OLSON PHD | TRUSTEE | 3 | $0 | $0 | $0 | $0 | 3 |
| TERESA L ELDER | TRUSTEE | 3 | $0 | $0 | $0 | $0 | 1 |
| STEVEN SHAK MD | TRUSTEE | 3 | $0 | $0 | $0 | $0 | 3 |
| THEODORE J TORPHY PHD | VICE CHAIR | 5 | $0 | $0 | $0 | $0 | 3 |
| JOHN S WEINBERG | TRUSTEE | 3 | $0 | $0 | $0 | $0 | 2 |
| PAUL W WHETSELL | EXECUTIVE VICE CHAIR | 5 | $0 | $0 | $0 | $0 | 2 |
| KC BRYAN WHITE | TRUSTEE | 3 | $0 | $0 | $0 | $0 | 2 |
2017 · 31 people listed · 13 paid, $8.2M · 760 employees · 92,000 volunteers
| Name | Title | Hrs/wk | From org | From related | Other | Total | Orgs |
|---|---|---|---|---|---|---|---|
| PRESTON CAMPBELL MD | PRESIDENT & CEO | 37 | $805,765 | $396,810 | $207,207 | $1,409,782 | 3 |
| JACK MAHLER MD | CHIEF INVESTMENT OFFICER | 55 | $1,197,052 | $0 | $152,338 | $1,349,390 | 1 |
| MARC S GINSKY | EXECUTIVE VP, COO & SECRETARY | 50 | $663,211 | $0 | $226,013 | $889,224 | 2 |
| VERA H TWIGG | EXECUTIVE VP & CFO | 50 | $524,706 | $0 | $127,750 | $652,456 | 3 |
| BRUCE MARSHALL MD | SENIOR VP, CLINICAL AFFAIRS | 45 | $430,358 | $101,381 | $32,540 | $564,279 | 2 |
| WILLIAM SKACH MD | SENIOR VP, RESEARCH AFFAIRS | 8 | $74,361 | $421,375 | $67,421 | $563,157 | 2 |
| DRUCY S BOROWITZ MD | SENIOR VP, COMMUNITY AFFAIRS | 55 | $470,366 | $0 | $32,312 | $502,678 | 1 |
| ROBERT J BEALL PHD | FORMER CEO/CURRENT CONSULTANT | 10 | $383,094 | $55,949 | $0 | $439,043 | 3 |
| GLEN GOLDMARK | SENIOR VP OF HUMAN RESOURCES | 55 | $355,185 | $0 | $54,938 | $410,123 | 1 |
| TIMOTHY A WAIRE JR | CHIEF INFORMATION OFFICER | 55 | $341,523 | $0 | $65,090 | $406,613 | 1 |
| MARYBETH MCMAHON PHD | CHIEF OF STAFF | 55 | $332,209 | $0 | $52,917 | $385,126 | 1 |
| ALBERT FARO MD | SR DIRECTOR, CLINICAL AFFAIRS | 55 | $319,590 | $0 | $61,736 | $381,326 | 1 |
| C RICHARD MATTINGLY | FORMER COO | 0 | $197,010 | $0 | $0 | $197,010 | 3 |
| RICHARD L DANDURAND | TRUSTEE | 3 | $0 | $0 | $0 | $0 | 2 |
| LOUIS A DEFALCO | VICE CHAIR | 5 | $0 | $0 | $0 | $0 | 2 |
| RICHARD J GRAY ESQ | VICE CHAIR | 5 | $0 | $0 | $0 | $0 | 2 |
| CAROLE B GRIEGO MD | TRUSTEE | 3 | $0 | $0 | $0 | $0 | 3 |
| SUSAN L HOOK | TRUSTEE | 3 | $0 | $0 | $0 | $0 | 2 |
| CATHERINE C MCLOUD | CHAIR | 8 | $0 | $0 | $0 | $0 | 3 |
| CHAD T MOORE | TRUSTEE | 3 | $0 | $0 | $0 | $0 | 2 |
| DAVID A MOUNT | TREASURER | 3 | $0 | $0 | $0 | $0 | 2 |
| ROBERT H NIEHAUS | VICE CHAIR | 5 | $0 | $0 | $0 | $0 | 2 |
| ERIC R OLSON PHD | TRUSTEE | 3 | $0 | $0 | $0 | $0 | 3 |
| TERESA L ELDER | TRUSTEE (AS OF 5/18/2017) | 3 | $0 | $0 | $0 | $0 | 1 |
| STEVEN SHAK MD | TRUSTEE | 3 | $0 | $0 | $0 | $0 | 3 |
| CHARLES J THAYER | TRUSTEE (THROUGH 5/17/2017) | 3 | $0 | $0 | $0 | $0 | 2 |
| THEODORE J TORPHY PHD | TRUSTEE | 3 | $0 | $0 | $0 | $0 | 3 |
| AMY S WEINBERG | TRUSTEE (THROUGH 5/17/2017) | 3 | $0 | $0 | $0 | $0 | 3 |
| JOHN S WEINBERG | TRUSTEE (AS OF 5/18/2017) | 3 | $0 | $0 | $0 | $0 | 2 |
| PAUL W WHETSELL | EXECUTIVE VICE CHAIRMAN | 5 | $0 | $0 | $0 | $0 | 2 |
| KC BRYAN WHITE | TRUSTEE | 3 | $0 | $0 | $0 | $0 | 2 |
2016 · 30 people listed · 13 paid, $6.6M · 731 employees · 250,000 volunteers
| Name | Title | Hrs/wk | From org | From related | Other | Total | Orgs |
|---|---|---|---|---|---|---|---|
| PRESTON CAMPBELL MD | PRESIDENT & CEO | 37 | $616,640 | $304,574 | $255,951 | $1,177,165 | 3 |
| JOHN MAHLER MD | CHIEF INVESTMENT OFFICER | 55 | $830,745 | $0 | $109,987 | $940,732 | 1 |
| ROBERT J BEALL PHD | FORMER CEO&CURRENT CONSULTANT | 10 | $518,038 | $126,109 | $565 | $644,712 | 3 |
| VERA H TWIGG | EXECUTIVE VP & CFO | 50 | $465,131 | $0 | $103,024 | $568,155 | 3 |
| BRUCE MARSHALL MD | SENIOR VP, CLINICAL AFFAIRS | 41 | $386,312 | $95,540 | $32,117 | $513,969 | 2 |
| MARC S GINSKY | EXECUTIVE VP, COO & SECRETARY | 50 | $305,540 | $0 | $149,642 | $455,182 | 2 |
| WILLIAM SKACH MD | SENIOR VP, RESEARCH AFFAIRS | 8 | $58,192 | $329,757 | $54,167 | $442,116 | 2 |
| TIMOTHY A WAIRE JR | CHIEF INFORMATION OFFICER | 55 | $308,006 | $0 | $62,471 | $370,477 | 1 |
| LEAH BLOOM PHD | CHIEF OF STRATEGY | 55 | $305,677 | $0 | $48,998 | $354,675 | 1 |
| MARYBETH MCMAHON PHD | CHIEF OF STAFF | 55 | $294,073 | $0 | $51,095 | $345,168 | 1 |
| WILLIAM BLANTON | DIRECTOR OF INVESTMENTS | 55 | $309,472 | $0 | $28,410 | $337,882 | 1 |
| DRUCY S BOROWITZ MD | SVP, COMMUNITY PARTNERSHIPS | 55 | $320,867 | $0 | $7,550 | $328,417 | 1 |
| C RICHARD MATTINGLY | FORMER COO | 0 | $135,951 | $0 | $7,251 | $143,202 | 3 |
| RICHARD L DANDURAND | TRUSTEE | 3 | $0 | $0 | $0 | $0 | 2 |
| LOUIS DEFALCO | VICE CHAIR | 5 | $0 | $0 | $0 | $0 | 2 |
| RICHARD J GRAY ESQ | VICE CHAIR | 5 | $0 | $0 | $0 | $0 | 2 |
| CAROLE B GRIEGO MD | TRUSTEE | 3 | $0 | $0 | $0 | $0 | 3 |
| SUSAN L HOOK | TRUSTEE | 3 | $0 | $0 | $0 | $0 | 2 |
| CATHERINE C MCLOUD | CHAIR | 8 | $0 | $0 | $0 | $0 | 3 |
| CHAD T MOORE | TRUSTEE | 3 | $0 | $0 | $0 | $0 | 2 |
| DAVID A MOUNT | TREASURER | 5 | $0 | $0 | $0 | $0 | 2 |
| ROBERT H NIEHAUS | VICE CHAIR | 5 | $0 | $0 | $0 | $0 | 2 |
| ERIC OLSON PHD | TRUSTEE | 3 | $0 | $0 | $0 | $0 | 3 |
| GARY B SABIN | TRUSTEE | 3 | $0 | $0 | $0 | $0 | 2 |
| STEVEN SHAK MD | TRUSTEE | 3 | $0 | $0 | $0 | $0 | 3 |
| CHARLES J THAYER | TRUSTEE | 3 | $0 | $0 | $0 | $0 | 2 |
| THEODORE J TORPHY PHD | TRUSTEE | 3 | $0 | $0 | $0 | $0 | 3 |
| AMY S WEINBERG | TRUSTEE | 3 | $0 | $0 | $0 | $0 | 3 |
| PAUL W WHETSELL | EXECUTIVE VICE CHAIR | 5 | $0 | $0 | $0 | $0 | 2 |
| KC BRYAN WHITE | TRUSTEE | 3 | $0 | $0 | $0 | $0 | 2 |
2015 · 29 people listed · 11 paid, $9.4M · 315 employees · 250,000 volunteers
| Name | Title | Hrs/wk | From org | From related | Other | Total | Orgs |
|---|---|---|---|---|---|---|---|
| C RICHARD MATTINGLY | EXEC VP & COO | 50 | $2,718,373 | $0 | $68,546 | $2,786,919 | 3 |
| ROBERT BEALL PHD | PRESIDENT & CEO (UNTIL 9/30) | 36 | $1,575,208 | $779,230 | $108,896 | $2,463,334 | 3 |
| PRESTON CAMPBELL MD | PRESIDENT & CEO (AS OF 10/1) | 36 | $496,970 | $245,571 | $212,541 | $955,082 | 3 |
| VERA H TWIGG | EXECUTIVE VP, CFO & SECRETARY | 50 | $499,672 | $0 | $107,968 | $607,640 | 3 |
| BRUCE MARSHALL MD | SR. VP OF CLINICAL AFFAIRS | 15 | $129,754 | $314,135 | $32,060 | $475,949 | 2 |
| DAVID MCLOUGHLIN | SR. VP OF OPERATIONS | 35 | $253,478 | $108,101 | $60,349 | $421,928 | 2 |
| WILLIAM SKACH MD | SR. VP OF RESEARCH AFFAIRS | 12 | $74,887 | $233,504 | $48,493 | $356,884 | 2 |
| MARY DWIGHT | SVP POLICY & PATIENT ASSIST. | 50 | $265,074 | $0 | $66,399 | $331,473 | 1 |
| MAUREEN FRASER | VP OF FIELD MANAGEMENT | 50 | $275,519 | $0 | $45,385 | $320,904 | 1 |
| AMY DEMARIA | SR. VP OF COMMUNICATIONS | 50 | $275,520 | $0 | $40,990 | $316,510 | 1 |
| CHRIS PENLAND PHD | VICE PRESIDENT OF RESEARCH | 35 | $139,511 | $122,427 | $53,304 | $315,242 | 2 |
| MICHAEL L BEATTY ESQ | TRUSTEE | 3 | $0 | $0 | $0 | $0 | 2 |
| RICHARD L DANDURAND | VICE CHAIRMAN | 5 | $0 | $0 | $0 | $0 | 2 |
| LOUIS DEFALCO | TRUSTEE | 3 | $0 | $0 | $0 | $0 | 2 |
| RICHARD J GRAY ESQ | VICE CHAIRMAN | 5 | $0 | $0 | $0 | $0 | 2 |
| CAROLE B GRIEGO MD | TRUSTEE | 3 | $0 | $0 | $0 | $0 | 3 |
| SUSAN L HOOK | TRUSTEE | 5 | $0 | $0 | $0 | $0 | 2 |
| CATHERINE C MCLOUD | CHAIR | 8 | $0 | $0 | $0 | $0 | 3 |
| CHAD T MOORE | TRUSTEE | 3 | $0 | $0 | $0 | $0 | 2 |
| DAVID A MOUNT | TREASURER | 3 | $0 | $0 | $0 | $0 | 2 |
| ROBERT H NIEHAUS | TRUSTEE | 3 | $0 | $0 | $0 | $0 | 2 |
| ERIC OLSON PHD | TRUSTEE | 3 | $0 | $0 | $0 | $0 | 3 |
| GRAY B SABIN | VICE CHAIRMAN | 5 | $0 | $0 | $0 | $0 | 2 |
| STEVEN SHAK MD | TRUSTEE | 3 | $0 | $0 | $0 | $0 | 3 |
| CHARLES J THAYER | TRUSTEE | 3 | $0 | $0 | $0 | $0 | 2 |
| THEODORE J TORPHY PHD | TRUSTEE | 3 | $0 | $0 | $0 | $0 | 3 |
| AMY S WEINBERG | TRUSTEE | 3 | $0 | $0 | $0 | $0 | 3 |
| PAUL W WHETSELL | EXECUTIVE VICE CHAIRMAN | 5 | $0 | $0 | $0 | $0 | 2 |
| KC BRYAN WHITE | TRUSTEE | 5 | $0 | $0 | $0 | $0 | 2 |
2014 · 26 people listed · 10 paid, $5.2M · 271 employees · 250,000 volunteers
| Name | Title | Hrs/wk | From org | From related | Other | Total | Orgs |
|---|---|---|---|---|---|---|---|
| Robert J Beall PhD | PRESIDENT / CEO | 36 | $650,137 | $323,554 | $224,033 | $1,197,724 | 3 |
| C Richard Mattingly | EXEC VP, COO & SECRETARY | 50 | $645,755 | $0 | $189,266 | $835,021 | 3 |
| Preston Campbell MD | EXEC VP OF MEDICAL AFFAIRS | 36 | $432,875 | $213,925 | $174,822 | $821,622 | 3 |
| Vera H Twigg | EXECUTIVE VP AND CFO | 50 | $461,903 | $0 | $85,449 | $547,352 | 3 |
| Daniel Klein | SR VP, PATIENT ACCESS PROGRAMS | 50 | $294,147 | $0 | $67,981 | $362,128 | 1 |
| David McLoughlin | SR. VP OF OPERATIONS | 35 | $233,360 | $69,839 | $57,656 | $360,855 | 2 |
| Glen Goldmark | VP OF HUMAN RESOURCES | 50 | $239,238 | $0 | $47,024 | $286,262 | 1 |
| Mary Dwight | SVP POLICY & COMM AFFAIRS | 50 | $221,875 | $0 | $60,062 | $281,937 | 1 |
| Christopher Penland PhD | VP OF RESEARCH | 35 | $199,932 | $30,745 | $49,478 | $280,155 | 1 |
| Maureen Fraser | VP OF FIELD MANAGEMENT | 50 | $219,955 | $0 | $40,382 | $260,337 | 1 |
| Michael L Beatty Esq | TRUSTEE | 3 | $0 | $0 | $0 | $0 | 2 |
| J Taylor Crandall | TRUSTEE | 3 | $0 | $0 | $0 | $0 | 2 |
| Richard L Dandurand | VICE CHAIRMAN | 3 | $0 | $0 | $0 | $0 | 2 |
| Louis DeFalco | TRUSTEE | 3 | $0 | $0 | $0 | $0 | 2 |
| Richard J Gray Esq | VICE CHAIRMAN | 5 | $0 | $0 | $0 | $0 | 2 |
| Carole B Griego MD | TRUSTEE | 3 | $0 | $0 | $0 | $0 | 3 |
| Susan L Hook | LEADERSHIP COUNCIL CHAIR | 5 | $0 | $0 | $0 | $0 | 2 |
| Catherine C McLoud | CHAIR | 8 | $0 | $0 | $0 | $0 | 3 |
| Chad T Moore | TRUSTEE | 3 | $0 | $0 | $0 | $0 | 2 |
| David A Mount | TRUSTEE | 3 | $0 | $0 | $0 | $0 | 2 |
| Gray B Sabin | VICE CHAIRMAN | 5 | $0 | $0 | $0 | $0 | 2 |
| Steven Shak MD | TRUSTEE | 3 | $0 | $0 | $0 | $0 | 3 |
| Charles J Thayer | TREASURER | 3 | $0 | $0 | $0 | $0 | 2 |
| Amy S Weinberg | TRUSTEE | 3 | $0 | $0 | $0 | $0 | 3 |
| Paul W Whetsell | EXEC VICE CHAIRMAN | 5 | $0 | $0 | $0 | $0 | 2 |
| KC Bryan White | ADULT ADVISORY COUNCIL CHAIR | 5 | $0 | $0 | $0 | $0 | 2 |
2013 · 26 people listed · 10 paid, $6.0M · 257 employees · 250,000 volunteers
| Name | Title | Hrs/wk | From org | From related | Other | Total | Orgs |
|---|---|---|---|---|---|---|---|
| Preston W Campbell MD | EXEC VP FOR MEDICAL AFFAIRS | 36 | $796,908 | $394,239 | $202,914 | $1,394,061 | 3 |
| Robert J Beall PhD | PRESIDENT & CEO | 36 | $737,313 | $364,564 | $261,787 | $1,363,664 | 3 |
| C Richard Mattingly | EXEC VP, COO & SECRETARY | 50 | $752,470 | $0 | $220,754 | $973,224 | 3 |
| Vera H Twigg | SR. VP & CFO | 50 | $486,851 | $0 | $91,349 | $578,200 | 3 |
| DAVID MCLOUGHLIN | SR. VICE PRESIDENT OF OPS | 50 | $286,388 | $0 | $56,418 | $342,806 | 2 |
| GREGORY AUGUST | CHIEF INFORMATION OFFICER | 50 | $229,682 | $0 | $51,655 | $281,337 | 1 |
| GLEN GOLDMARK | VP OF HUMAN RESOURCES | 50 | $230,969 | $0 | $45,754 | $276,723 | 1 |
| DANIEL KLEIN | SR VP, PATIENT ACCESS PROGS | 50 | $243,807 | $0 | $32,095 | $275,902 | 1 |
| AMY DEMARIA | SR VP OF COMMUNICATIONS | 50 | $227,400 | $0 | $35,445 | $262,845 | 1 |
| Ann Palmer | SR. VICE PRESIDENT OF FIELD MG | 50 | $198,883 | $0 | $41,477 | $240,360 | 1 |
| Michael L Beatty | TRUSTEE | 3 | $0 | $0 | $0 | $0 | 2 |
| J Taylor Crandall | TRUSTEE | 3 | $0 | $0 | $0 | $0 | 2 |
| Richard L Dandurand | VICE CHAIRMAN | 5 | $0 | $0 | $0 | $0 | 2 |
| Richard J Gray Esq | VICE CHAIRMAN | 5 | $0 | $0 | $0 | $0 | 2 |
| Barry M Gump | TRUSTEE | 3 | $0 | $0 | $0 | $0 | 2 |
| Susan L Hook | TRUSTEE | 3 | $0 | $0 | $0 | $0 | 2 |
| Catherine C McLoud | TRUSTEE | 8 | $0 | $0 | $0 | $0 | 3 |
| Chad T Moore | TRUSTEE | 3 | $0 | $0 | $0 | $0 | 2 |
| David A Mount | TRUSTEE | 3 | $0 | $0 | $0 | $0 | 2 |
| Gray B Sabin | TRUSTEE | 5 | $0 | $0 | $0 | $0 | 2 |
| Christy L Shaffer PhD | TRUSTEE | 3 | $0 | $0 | $0 | $0 | 2 |
| Steven Shak MD | TRUSTEE | 3 | $0 | $0 | $0 | $0 | 3 |
| Charles J Thayer | TRUSTEE | 3 | $0 | $0 | $0 | $0 | 2 |
| Amy S Weinberg | TRUSTEE | 3 | $0 | $0 | $0 | $0 | 3 |
| Paul W Whetsell | TRUSTEE | 5 | $0 | $0 | $0 | $0 | 2 |
| KC Bryan White | TRUSTEE | 3 | $0 | $0 | $0 | $0 | 2 |
2012 · 27 people listed · 11 paid, $4.8M · 329 employees · 250,000 volunteers
| Name | Title | Hrs/wk | From org | From related | Other | Total | Orgs |
|---|---|---|---|---|---|---|---|
| ROBERT J BEALL PHD | PRESIDENT & CEO | 36 | $669,561 | $329,867 | $112,672 | $1,112,100 | 3 |
| C RICHARD MATTINGLY | EXEC. VP, COO & SECRETARY | 50 | $466,050 | $0 | $168,894 | $634,944 | 3 |
| PRESTON CAMPBELL MD | EXECUTIVE VP OF MEDICAL AFFAIR | 36 | $301,432 | $151,900 | $155,629 | $608,961 | 3 |
| DANIEL KLEIN | SR. VP OF CFFP | 50 | $411,943 | $0 | $35,595 | $447,538 | 1 |
| VERA H TWIGG | SR. VP & CFO | 50 | $335,965 | $0 | $77,783 | $413,748 | 3 |
| DAVID MCLOUGHLIN | SR. VP OF OPERATIONS | 40 | $210,744 | $52,686 | $57,736 | $321,166 | 2 |
| ANN PALMER | SR. VP OF FIELD MANAGEMENT | 50 | $224,058 | $0 | $55,108 | $279,166 | 1 |
| GREGORY AUGUST | CHIEF INFORMATION OFFICER | 50 | $209,056 | $0 | $52,146 | $261,202 | 1 |
| JAMES STONE | VP OF CYSTIC FIBROSIS SERVICES | 50 | $225,052 | $0 | $30,484 | $255,536 | 1 |
| GLEN GOLDMARK | VP OF HUMAN RESOURCES | 50 | $206,181 | $0 | $45,479 | $251,660 | 1 |
| AMY DEMARIA | SR. VP OF COMMUNICATIONS | 50 | $204,533 | $0 | $33,920 | $238,453 | 1 |
| MICHAEL L BEATTY | TRUSTEE | 3 | $0 | $0 | $0 | $0 | 2 |
| J TAYLOR CRANDALL | TRUSTEE | 3 | $0 | $0 | $0 | $0 | 2 |
| RICHARD L DANDURAND | TRUSTEE | 3 | $0 | $0 | $0 | $0 | 2 |
| RICHARD J GRAY | TRUSTEE | 3 | $0 | $0 | $0 | $0 | 2 |
| BARRY M GUMP | TRUSTEE | 3 | $0 | $0 | $0 | $0 | 2 |
| SUSAN L HOOK | TRUSTEE | 3 | $0 | $0 | $0 | $0 | 2 |
| CATHERINE C MCLOUD | TRUSTEE | 5 | $0 | $0 | $0 | $0 | 3 |
| CHAD T MOORE | TRUSTEE | 3 | $0 | $0 | $0 | $0 | 2 |
| DAVID A MOUNT | TRUSTEE | 3 | $0 | $0 | $0 | $0 | 2 |
| GRAY B SABIN | TRUSTEE | 3 | $0 | $0 | $0 | $0 | 2 |
| CHRISTY L SHAFFER PHD | TRUSTEE | 3 | $0 | $0 | $0 | $0 | 2 |
| STEVEN SHAK MD | TRUSTEE | 3 | $0 | $0 | $0 | $0 | 3 |
| CHARLES J THAYER | TRUSTEE | 3 | $0 | $0 | $0 | $0 | 2 |
| AMY S WEINBERG | TRUSTEE | 3 | $0 | $0 | $0 | $0 | 3 |
| PAUL W WHETSELL | TRUSTEE | 3 | $0 | $0 | $0 | $0 | 2 |
| KC BRYAN WHITE | TRUSTEE | 3 | $0 | $0 | $0 | $0 | 2 |
2011 · 29 people listed · 11 paid, $4.9M · 319 employees · 250,000 volunteers
| Name | Title | Hrs/wk | From org | From related | Other | Total | Orgs |
|---|---|---|---|---|---|---|---|
| Robert J Beall PhD | President & CEO | 34 | $477,065 | $234,488 | $362,172 | $1,073,725 | 3 |
| C Richard Mattingly | Exec VP and COO | 50 | $475,320 | $0 | $284,459 | $759,779 | 3 |
| Preston W Campbell MD | Exec VP of Medical Affairs | 34 | $310,778 | $156,360 | $268,893 | $736,031 | 3 |
| Vera H Twigg | Sr. VP and CFO | 50 | $325,228 | $0 | $119,955 | $445,183 | 3 |
| David McLoughlin | Sr. Vice President of Operatio | 50 | $267,117 | $0 | $49,005 | $316,122 | 2 |
| Daniel Klein | Sr. Vice President - CFFP | 50 | $248,172 | $0 | $29,128 | $277,300 | 1 |
| Ann Palmer | Sr. Vice President of Field Ma | 50 | $233,610 | $0 | $42,419 | $276,029 | 1 |
| Gregory August | Chief Information Officer | 50 | $218,198 | $0 | $44,500 | $262,698 | 1 |
| Glen Goldmark | VP of Human Resources | 50 | $213,637 | $0 | $39,578 | $253,215 | 1 |
| Mary Dwight | VP of Government Affairs | 50 | $195,488 | $0 | $50,744 | $246,232 | 1 |
| Amy DeMaria | Sr VP of Communications | 50 | $212,990 | $0 | $28,682 | $241,672 | 1 |
| J Taylor Crandall | Trustee | 3 | $0 | $0 | $0 | $0 | 2 |
| Michael L Beatty | Trustee | 3 | $0 | $0 | $0 | $0 | 2 |
| Richard L Dandurand | Vice Chairman | 5 | $0 | $0 | $0 | $0 | 2 |
| Richard J Gray | Trustee | 3 | $0 | $0 | $0 | $0 | 2 |
| Barry M Gump | Trustee | 3 | $0 | $0 | $0 | $0 | 2 |
| Susan L Hook | Vice Chair | 5 | $0 | $0 | $0 | $0 | 2 |
| Catherine C McLoud | Chair | 7 | $0 | $0 | $0 | $0 | 3 |
| Chad T Moore | Trustee | 3 | $0 | $0 | $0 | $0 | 2 |
| David A Mount | Trustee | 5 | $0 | $0 | $0 | $0 | 2 |
| Gary B Sabin | Executive Vice Chairman | 5 | $0 | $0 | $0 | $0 | 2 |
| Christie L Shaffer PHD | Trustee | 3 | $0 | $0 | $0 | $0 | 2 |
| Steven Shak MD | Trustee | 3 | $0 | $0 | $0 | $0 | 3 |
| Charles J Thayer | Treasurer | 3 | $0 | $0 | $0 | $0 | 2 |
| Theodore J Torphy PhD | Trustee | 3 | $0 | $0 | $0 | $0 | 3 |
| Amy S Weinberg | Trustee | 3 | $0 | $0 | $0 | $0 | 3 |
| Paul W Whetsell | Trustee | 5 | $0 | $0 | $0 | $0 | 2 |
| KC Bryan White | Trustee | 3 | $0 | $0 | $0 | $0 | 2 |
| ROBERT KAPLAN TRUSTEE | TRUSTEE | 3 | $0 | $0 | $0 | $0 | 1 |
2010 · 27 people listed · 11 paid, $3.9M · 308 employees · 250,000 volunteers
| Name | Title | Hrs/wk | From org | From related | Other | Total | Orgs |
|---|---|---|---|---|---|---|---|
| Robert J Beall PhD | President & CEO | 34 | $403,094 | $198,548 | $239,406 | $841,048 | 3 |
| C Richard Mattingly | Exec VP and COO | 50 | $427,271 | $0 | $172,429 | $599,700 | 3 |
| Preston W Campbell MD | Exec VP of Medical Affairs | 34 | $278,976 | $140,934 | $157,898 | $577,808 | 3 |
| Vera H Twigg | Sr. VP and CFO | 50 | $273,807 | $0 | $82,369 | $356,176 | 3 |
| David McLoughlin | Sr. VP OF OPERATIONS | 50 | $208,853 | $0 | $45,817 | $254,670 | 2 |
| Ann Palmer | SR. VP OF FIELD MANAGEMENT | 50 | $199,614 | $0 | $34,563 | $234,177 | 1 |
| Daniel Klein | Sr. Vice President - CFFP | 50 | $202,479 | $0 | $23,164 | $225,643 | 1 |
| Gregory August | Chief Information Officer | 50 | $179,978 | $0 | $41,268 | $221,246 | 1 |
| Glen Goldmark | VP of Human Resources | 50 | $176,282 | $0 | $34,330 | $210,612 | 1 |
| Amy DeMaria | Sr VP of Communications | 50 | $175,994 | $0 | $24,704 | $200,698 | 1 |
| Maureen Fraser | SR. DIR of Field Management | 50 | $163,765 | $0 | $32,542 | $196,307 | 1 |
| Amy S Weinberg | Trustee | 3 | $0 | $0 | $0 | $0 | 3 |
| Barry M Gump | Trustee | 3 | $0 | $0 | $0 | $0 | 2 |
| Catherine C McLoud | Chair | 3 | $0 | $0 | $0 | $0 | 3 |
| Chad T Moore | Treasurer | 3 | $0 | $0 | $0 | $0 | 2 |
| Charles J Thayer | Vice Chair | 3 | $0 | $0 | $0 | $0 | 2 |
| David A Mount | Trustee | 3 | $0 | $0 | $0 | $0 | 2 |
| Gary B Sabin | Executive Vice Chair | 3 | $0 | $0 | $0 | $0 | 2 |
| J Taylor Crandall | Treasurer | 3 | $0 | $0 | $0 | $0 | 2 |
| KC Bryan White | Trustee | 3 | $0 | $0 | $0 | $0 | 2 |
| Paul W Whetsell | Trustee | 3 | $0 | $0 | $0 | $0 | 2 |
| Richard J Gray | Trustee | 3 | $0 | $0 | $0 | $0 | 2 |
| Richard L Dandurand | Vice Chairman | 3 | $0 | $0 | $0 | $0 | 2 |
| Robert S Kaplan | Trustee | 3 | $0 | $0 | $0 | $0 | 4 |
| Steven Shak MD | Trustee | 3 | $0 | $0 | $0 | $0 | 3 |
| Susan L Hook | Vice Chair | 3 | $0 | $0 | $0 | $0 | 2 |
| Theodore J Torphy PhD | Trustee | 3 | $0 | $0 | $0 | $0 | 3 |
Highest-paid independent contractors
2024 · 5 contractors · $32.9M
| Name | Location | Service | Paid |
|---|---|---|---|
| VERTEX PHARMACEUTICALS INC | BOSTON, MA | CONTRACTED RESEARCH | $12,500,000 |
| Prime Medicine Inc | Cambridge, MA | Contracted Research | $6,000,000 |
| ANAGRAM THERAPEUTICS INC | FRAMINGHAM, MA | CONTRACTED RESEARCH | $5,500,000 |
| PIONEERING MEDICINE (CF) | CAMBRIDGE, MA | CONTRACTED RESEARCH | $5,211,571 |
| Slalom LLC | SEATTLE, WA | Technology Consulting | $3,656,673 |
2023 · 5 contractors · $43.5M
| Name | Location | Service | Paid |
|---|---|---|---|
| PIONEERING MEDICINE (CF) LLC | CAMBRIDGE, MA | CONTRACTED RESEARCH | $16,730,000 |
| ARCTURUS THERAPEUTICS INC | SAN DIEGO, CA | CONTRACTED RESEARCH | $11,065,017 |
| VERTEX PHARMACEUTICALS INC | BOSTON, MA | CONTRACTED RESEARCH | $7,500,000 |
| ANAGRAM THERAPEUTICS INC | FRAMINGHAM, MA | CONTRACTED RESEARCH | $6,500,000 |
| FREEMAN DECORATING CO | DALLAS, TX | EVENT SERVICES | $1,722,580 |
2022 · 5 contractors · $34.8M
| Name | Location | Service | Paid |
|---|---|---|---|
| VERTEX PHARMACEUTICALS INC | BOSTON, MA | CONTRACTED RESEARCH | $10,000,000 |
| ELOXX PHARMACEUTICALS | WALTHAM, MA | CONTRACTED RESEARCH | $8,811,900 |
| PIONEERING MEDICINE (CF) LLC | CAMBRIDGE, MA | CONTRACTED RESEARCH | $8,000,000 |
| SYNSPIRA THERAPEUTICS INC | FRAMINGHAM, MA | CONTRACTED RESEARCH | $5,450,000 |
| ARMATA PHARMACEUTICALS INC | MARINA DEL RAY, CA | CONTRACTED RESEARCH | $2,500,000 |
2021 · 5 contractors · $32.4M
| Name | Location | Service | Paid |
|---|---|---|---|
| PIONEERING MEDICINE (CF) LLC | CAMBRIDGE, MA | CONTRACTED RESEARCH | $12,000,000 |
| VERTEX PHARMACEUTICALS INC | BOSTON, MA | CONTRACTED RESEARCH | $10,000,000 |
| ICAGEN INC | DURHAM, NC | CONTRACTED RESEARCH | $3,811,979 |
| MICROBION CORPORATION | BOZEMAN, MT | CONTRACTED RESEARCH | $3,395,005 |
| MATINAS BIOPHARMA INC | BEDMINSTER, NJ | CONTRACTED RESEARCH | $3,176,058 |
2020 · 5 contractors · $28.5M
| Name | Location | Service | Paid |
|---|---|---|---|
| VERTEX PHARMACEUTICALS INC | BOSTON, MA | CONTRACTED RESEARCH | $10,000,000 |
| ARCTURUS THERAPEUTICS INC | SAN DIEGO, CA | CONTRACTED RESEARCH | $8,000,000 |
| CORBUS PHARMACEUTICALS INC | NORWOOD, MA | CONTRACTED RESEARCH | $5,000,000 |
| MTS HEALTH PARTNERS LP | NEW YORK, NY | FINANCIAL ADVISORY | $2,841,558 |
| LAURENT PHARMACEUTICALS INC | MONTREAL QUEBEC | CONTRACTED RESEARCH | $2,700,000 |
2019 · 5 contractors · $31.6M
| Name | Location | Service | Paid |
|---|---|---|---|
| VERTEX PHARMACEUTICALS INC | BOSTON, MA | CONTRACTED RESEARCH | $12,500,000 |
| CLINICAL RESEARCH SEQUENCING PLATFO | CAMBRIDGE, MA | CONTRACTED RESEARCH | $6,441,110 |
| CORBUS PHARMACEUTICALS INC | NORWOOD, MA | CONTRACTED RESEARCH | $5,000,000 |
| ARCTURUS THERAPEUTICS INC | SAN DIEGO, CA | CONTRACTED RESEARCH | $4,100,901 |
| Laurent Pharmaceuticals Inc | MONTREAL, QUEBEC | CONTRACTED RESEARCH | $3,600,000 |
2018 · 5 contractors · $29.8M
| Name | Location | Service | Paid |
|---|---|---|---|
| CORBUS PHARMACEUTICALS INC | NORWOOD, MA | CONTRACTED RESEARCH | $12,515,000 |
| VERTEX PHARMACEUTICALS INC | BOSTON, MA | CONTRACTED RESEARCH | $7,500,000 |
| CELTAXSYS INC | ATLANTA, GA | CONTRACTED RESEARCH | $3,896,667 |
| GENZYME CORPORATION | FRAMINGHAM, MA | CONTRACTED RESEARCH | $2,943,660 |
| SPYRYX BIOSCIENCES INC | DURHAM, NC | CONTRACTED RESEARCH | $2,923,217 |
2017 · 5 contractors · $10.2M
| Name | Location | Service | Paid |
|---|---|---|---|
| NTC MAZZUCA CONTRACTING INC | ANNAPOLIS JUNCTION, MD | GENERAL CONTRACTING | $2,818,532 |
| CELERITY IT LLC | MCLEAN, VA | IT CONSULTING | $2,054,243 |
| SUFIAN PASSAMANO | HOUSTON, TX | PATIENT ASSISTANCE | $1,950,500 |
| BARES CAPITAL MANAGEMENT INC | AUSTIN, TX | INVESTMENT MGMT | $1,669,042 |
| GARDNER RUSSO GARDNER LLC | LANCASTER, PA | INVESTMENT MGMT | $1,665,599 |
2016 · 5 contractors · $6.5M
| Name | Location | Service | Paid |
|---|---|---|---|
| GARDNER RUSSO GARDNER LLC | LANCASTER, PA | INVESTMENT MGMT | $1,509,059 |
| CELERITY IT LLC | MCLEAN, VA | SOFTWARE DEV/MAINT | $1,378,958 |
| SUFIAN PASSAMANO | HOUSTON, TX | PATIENT ASSISTANCE | $1,368,250 |
| BARES CAPITAL MANAGEMENT INC | AUSTIN, TX | INVESTMENT MGMT | $1,152,160 |
| MIND OVER MACHINES | OWINGS MILLS, MD | SOFTWARE DEV/MAINT | $1,111,028 |
2015 · 5 contractors · $5.1M
| Name | Location | Service | Paid |
|---|---|---|---|
| SUFIAN PASSAMANO | HOUSTON, TX | HOTLINE/PATIENT ASSI | $1,380,875 |
| ARAMARK AVENTURA CATERING | PHOENIX, AZ | CONFERENCE CATERING | $1,122,753 |
| SCHANER LUBITZ PLLC | BETHESDA, MD | LEGAL/TRANSACTION | $994,427 |
| THREESPOT MEDIA LLC | WASHINGTON, DC | CONSULTING | $911,468 |
| GRANTMAIL DIRECT LTD | NINGBO, 0 | PRINTING | $652,384 |
2014 · 5 contractors · $3.9M
| Name | Location | Service | Paid |
|---|---|---|---|
| SUFIAN PASSAMANO | HOUSTON, TX | HOTLINE/PATIENT ASST | $1,098,500 |
| FOOD SERVICES MANAGEMENT BY MGR LL | ATLANTA, GA | CONFERENCE CATERING | $881,861 |
| ACCU-LABEL INC | FORT WAYNE, IN | PRINTING | $661,335 |
| SCHANER LUBITZ PLLC | BETHESDA, MD | LEGAL COUNSEL | $634,894 |
| GRANTMAIL DIRECT LTD | WORLD TRADE CENTER, NINGBO | PRINTING | $613,668 |
2013 · 5 contractors · $4.0M
| Name | Location | Service | Paid |
|---|---|---|---|
| PRODUCTION SOLUTIONS | PRINTING | $1,395,284 | |
| ITS RESOURCE LLC | IT SERVICES | $890,607 | |
| SUFIAN PASSAMANO | LEGAL INFO HOTLINE | $746,764 | |
| GRANTMAIL DIRECT LTD | PRINTING | $628,688 | |
| UTAH FOOD SERVICES INC | CONFERENCE CATERING | $357,576 |
2012 · 5 contractors · $4.2M
| Name | Location | Service | Paid |
|---|---|---|---|
| ICS CORPORATION | PHILADELPHIA, PA | MAILSHOP | $953,560 |
| RAYMOND JAMES ASSOCIATES | ST PETERSBURG, FL | TRANSACTION ADVISORY | $867,262 |
| HUB LABELS | HAGERSTOWN, MD | PRINTING | $825,170 |
| SUFIAN PASSAMANO | HOUSTON, TX | CASE MGMT/HOTLINE SV | $779,250 |
| THE PEABODY ORLANDO | ORLANDO, FL | CONFERENCE VENUE | $759,799 |
2011 · 5 contractors · $4.3M
| Name | Location | Service | Paid |
|---|---|---|---|
| ICS CORPORATION | PHILADELPHIA, PA | MAILSHOP | $1,452,328 |
| HUB LABELS | HAGERSTOWN, MD | PRINTING | $936,511 |
| DIAMONDBACK DIRECT | SEVERNA PARK, MD | MAILSHOP | $850,497 |
| RMI DIRECT MARKETING | DANBURY, CT | LIST MANAGEMENT | $550,440 |
| ITS RESOURCES LLC | ROCKVILLE, MD | IT SERVICES | $464,713 |
2010 · 5 contractors · $4.9M
| Name | Location | Service | Paid |
|---|---|---|---|
| ICS CORPORATION | PHILADELPHIA, PA | MAILSHOP | $1,612,213 |
| DIAMONDBACK DIRECT | SEVERNA PARK, MD | MAILSHOP | $1,087,635 |
| HUB LABELS | HAGERSTOWN, MD | PRINTING | $1,064,775 |
| RMI DIRECT MARKETING | DANBURY, CT | LIST MANAGEMENT | $603,656 |
| CENTERPLATE | DENVER, CO | EVENT CATERING | $493,835 |
Who the money went to
Grants this organization reported paying: Schedule I Part II of the Form 990, or the grants-paid list on the 990-PF. Open a year for every recipient. Recipients link to their own page when the grant names an EIN we have (990-PF grants list no EIN, so those link only on an exact, unique name and state). Grants to individuals are counted; their names are not shown.
2024 · 624 grants to organizations · $189.6M
Listed grants add up to $189,565,612; the return's “grants paid” expense line says $202,017,166. Returns can differ here (grants paid vs. accrued, items listed elsewhere); check the filing.
2023 · 633 grants to organizations · $186.8M
Listed grants add up to $186,780,931; the return's “grants paid” expense line says $200,455,461. Returns can differ here (grants paid vs. accrued, items listed elsewhere); check the filing.
2022 · 599 grants to organizations · $173.0M
Listed grants add up to $172,994,773; the return's “grants paid” expense line says $184,032,962. Returns can differ here (grants paid vs. accrued, items listed elsewhere); check the filing.
2021 · 619 grants to organizations · $163.8M
Listed grants add up to $163,786,972; the return's “grants paid” expense line says $178,329,656. Returns can differ here (grants paid vs. accrued, items listed elsewhere); check the filing.
2020 · 609 grants to organizations · $172.6M
Listed grants add up to $172,594,190; the return's “grants paid” expense line says $187,172,342. Returns can differ here (grants paid vs. accrued, items listed elsewhere); check the filing.
2019 · 606 grants to organizations · $143.4M
Listed grants add up to $143,388,595; the return's “grants paid” expense line says $155,248,642. Returns can differ here (grants paid vs. accrued, items listed elsewhere); check the filing.
2018 · 575 grants to organizations · $135.2M
Listed grants add up to $135,204,120; the return's “grants paid” expense line says $144,315,284. Returns can differ here (grants paid vs. accrued, items listed elsewhere); check the filing.
2017 · 360 grants to organizations · $177.7M
Listed grants add up to $177,659,190; the return's “grants paid” expense line says $179,923,805. Returns can differ here (grants paid vs. accrued, items listed elsewhere); check the filing.
2016 · 370 grants to organizations · $196.8M
2015 · 335 grants to organizations · $130.0M
Listed grants add up to $130,046,052; the return's “grants paid” expense line says $132,612,012. Returns can differ here (grants paid vs. accrued, items listed elsewhere); check the filing.
2014 · 302 grants to organizations · $30.9M
Listed grants add up to $30,859,746; the return's “grants paid” expense line says $32,902,431. Returns can differ here (grants paid vs. accrued, items listed elsewhere); check the filing.
2013 · 285 grants to organizations · $25.2M
Listed grants add up to $25,166,420; the return's “grants paid” expense line says $27,334,715. Returns can differ here (grants paid vs. accrued, items listed elsewhere); check the filing.
2012 · 270 grants to organizations · $23.5M
Listed grants add up to $23,513,382; the return's “grants paid” expense line says $25,842,486. Returns can differ here (grants paid vs. accrued, items listed elsewhere); check the filing.
2011 · 283 grants to organizations · $73.0M
Listed grants add up to $73,024,422; the return's “grants paid” expense line says $74,501,565. Returns can differ here (grants paid vs. accrued, items listed elsewhere); check the filing.
2010 · 251 grants to organizations · $20.8M
Listed grants add up to $20,833,377; the return's “grants paid” expense line says $21,487,961. Returns can differ here (grants paid vs. accrued, items listed elsewhere); check the filing.
Negative amounts are returned or refunded grants; they are listed last and left out of the totals of grants paid.
Who gave
Contributor names are not public for this form type.
Public charities filing Form 990 or 990-EZ report large donors on Schedule B, but the IRS withholds their names and addresses from public copies. Private foundations (990-PF) are different: their contributors are public.
Finances
Newest first. Each filing: its name on one row, its figures on the row beneath. Greyed filings are superseded by a later return for the same period and are left out everywhere else on this page.
| Revenue | Expenses | Assets | Net assets | Contributions | Program revenue | Officer pay | Employees | Volunteers |
|---|---|---|---|---|---|---|---|---|
| 2024 · Form 990 | ||||||||
| $355,798,320 | $439,138,919 | $4,986,222,387 | $4,693,624,506 | $95,892,260 | $3,272,736 | $7,377,657 | 875 | 56,403 |
| 2023 · Form 990 | ||||||||
| $292,016,280 | $443,404,599 | $4,885,921,122 | $4,592,956,300 | $86,607,373 | $3,437,695 | $7,141,874 | 847 | 53,389 |
| 2022 · Form 990 | ||||||||
| $248,630,352 | $396,664,114 | $4,735,058,992 | $4,443,719,016 | $97,948,958 | $2,555,705 | $6,916,442 | 890 | 54,572 |
| 2021 · Form 990 | ||||||||
| $417,237,551 | $375,611,186 | $5,691,109,976 | $5,416,630,309 | $86,536,159 | $1,263,333 | $8,407,208 | 788 | 17,000 |
| 2020 · Form 990 | ||||||||
| $800,629,953 | $381,380,991 | $5,369,999,661 | $5,098,993,014 | $73,199,355 | $1,666,083 | $6,356,579 | 815 | 23,000 |
| 2019 · Form 990 | ||||||||
| $605,778,425 | $348,650,099 | $4,476,511,082 | $4,236,708,832 | $108,894,890 | $4,147,243 | $6,729,509 | 888 | 92,000 |
| 2018 · Form 990 | ||||||||
| $275,790,756 | $337,912,568 | $4,013,935,956 | $3,775,363,472 | $108,058,591 | $4,441,092 | $6,075,419 | 846 | 92,000 |
| 2017 · Form 990 | ||||||||
| $275,482,021 | $292,766,690 | $4,401,077,858 | $4,194,186,065 | $110,650,273 | $3,971,424 | $4,394,102 | 760 | 92,000 |
| 2016 · Form 990 | ||||||||
| $192,528,975 | $299,650,531 | $3,919,394,927 | $3,732,155,178 | $117,148,751 | $2,246,282 | $3,248,161 | 731 | 250,000 |
| 2015 · Form 990 | ||||||||
| $148,459,096 | $192,986,761 | $3,803,485,303 | $3,679,424,528 | $95,908,297 | $2,216,198 | $6,449,238 | 315 | 250,000 |
| 2014 · Form 990 | ||||||||
| $3,349,013,060 | $80,021,438 | $3,922,688,693 | $3,814,362,946 | $3,285,132,614 | $2,155,742 | $3,025,537 | 271 | 250,000 |
| 2013 · Form 990 | ||||||||
| $297,690,483 | $75,047,721 | $692,698,706 | $597,765,846 | $279,115,653 | $2,168,133 | $3,669,026 | 257 | 250,000 |
| 2012 · Form 990 | ||||||||
| $260,818,976 | $79,288,914 | $435,100,702 | $350,629,883 | $193,893,253 | $30,108,699 | $2,681,208 | 329 | 250,000 |
| 2011 · Form 990 | ||||||||
| $136,580,184 | $125,721,614 | $216,321,364 | $175,448,915 | $101,016,403 | $26,269,945 | $2,331,798 | 319 | 250,000 |
| 2010 · Form 990 | ||||||||
| $134,467,821 | $67,973,496 | $221,040,934 | $188,293,709 | $106,799,244 | $21,411,864 | $3,480,415 | 308 | 250,000 |
Connected to
Organizations that list some of the same people on their returns (officers, directors, key employees on this organization’s latest return), and related organizations it lists on Schedule R.
- CYSTIC FIBROSIS FOUNDATION - GROUP RETURN FOR Bethesda, MD · 7 people in common (Carole B Griego Md, David A Mount, Eric R Olson Phd)
- CYSTIC FIBROSIS FOUNDATION THERAPEUTICS INC Bethesda, MD · 6 people in common (Bruce Marshall Md, Carole B Griego Md, Eric R Olson Phd) · related organization (Schedule R)
- JOHN S & AMY S WEINBERG FOUNDATION New York, NY · 1 person in common (John S Weinberg)
Funders of this organization
1,543 grantors reported grants to this organization, $3,551,193,400 in all, tax years 2009 to 2025; the 25 largest shown (all 1,543). Exact: the grantor wrote this organization's EIN. Fuzzy: the grantor wrote only a name (foundations' 990-PF has no EIN field), matched to the same or a near-identical name in the same state; the name as filed is shown. From the latest return for each grantor and year, so amended returns aren't counted twice. CSV
| Grantor | Total given | Grants | Latest year's amount | Latest year | Years given | Type | Match | Grants |
|---|---|---|---|---|---|---|---|---|
| CYSTIC FIBROSIS FOUNDATION THERAPEUTICS INC | $3,436,710,064 | 3 | $3,180,372,057 | 2014 | 2012-2014 | Public charity | Exact | show |
| FIDELITY INVESTMENTS CHARITABLE GIFT FUND | $17,622,563 | 9 | $3,624,110 | 2024 | 2016, 2018-2024 | DAF sponsor | Exact | show |
| AMERICAN ONLINE GIVING FOUNDATION INC | $8,333,288 | 8 | $1,537,522 | 2025 | 2019-2025 | DAF sponsor | Exact | show |
| DONOR ADVISED CHARITABLE GIVING | $6,890,249 | 68 | $1,073,131 | 2024 | 2014-2024 | DAF sponsor | Exact | show |
| JOEY O DONNELL FOUNDATION TRUST | $6,660,180 | 14 | $319,890 | 2024 | 2009-2016, 2019-2024 | Public charity | Exact | show |
| ROBERT AND KATE NIEHAUS FOUNDATION INC | $2,500,000 | 6 | $600,000 | 2024 | 2011-2013, 2020, 2023-2024 | Private foundation | Fuzzy filed as “CYSTIC FIBROSIS FOUNDATION” | show |
| GLOBAL FOR GOOD FUND INC | $2,226,236 | 21 | $285,000 | 2024 | 2010, 2015-2024 | Public charity | Exact | show |
| CHC CREATING HEALTHIER COMMUNITIES | $2,143,914 | 14 | $86,108 | 2024 | 2011, 2013-2018, 2020-2024 | Public charity | Exact | show |
| NATIONAL PHILANTHROPIC TR | $1,955,749 | 12 | $393,860 | 2024 | 2014-2024 | DAF sponsor | Exact | show |
| THE BLACKBAUD GIVING FUND | $1,866,818 | 14 | $298,340 | 2025 | 2016-2019, 2021-2025 | DAF sponsor | Exact | show |
| PAYPAL CHARITABLE GIVING FUND | $1,743,389 | 10 | $1,232,736 | 2024 | 2015, 2017-2024 | DAF sponsor | Exact | show |
| MORGAN STANLEY GLOBAL IMPACT FUNDING TRUST INC | $1,740,549 | 32 | $555,000 | 2024 | 2013-2024 | DAF sponsor | Exact | show |
| BOSTON FOUNDATION INC | $1,679,974 | 21 | $79,337 | 2024 | 2009-2010, 2014-2024 | DAF sponsor | Exact | show |
| LOST LAKE RUN INC | $1,660,100 | 10 | $90,000 | 2024 | 2014-2019, 2021-2024 | Public charity | Exact | show |
| JEFFREY A ALTMAN FOUNDATION INC | $1,648,800 | 9 | $100,000 | 2018 | 2009-2016, 2018 | Private foundation | Fuzzy filed as “CYSTIC FIBROSIS FOUNDATION” | show |
| AMERICAN ENDOWMENT FOUNDATION | $1,553,404 | 31 | $377,865 | 2024 | 2016-2024 | DAF sponsor | Exact | show |
| IVAN BOWEN FAMILY FOUNDATION | $1,475,000 | 13 | $125,000 | 2025 | 2013-2025 | Private foundation | Fuzzy filed as “CYSTIC FIBROSIS FOUNDATION” | show |
| NATIONAL CHRISTIAN CHARITABLE FOUNDATION | $1,356,966 | 47 | $253,425 | 2024 | 2012-2024 | DAF sponsor | Exact | show |
| WILLIAM & SYLVIA SILBERSTEIN FOUNDATION INC | $1,189,480 | 11 | $113,000 | 2023 | 2011, 2013-2016, 2018-2023 | Private foundation | Fuzzy filed as “CYSTIC FIBROSIS FOUNDATION” | show |
| AMERICAN SENIOR BENEFITS ASSOCIATION | $1,137,123 | 7 | $108,500 | 2022 | 2015-2018, 2020-2022 | Public charity | Exact | show |
| THE BETTY BAZAR FOUNDATION | $1,000,000 | 2 | $500,000 | 2024 | 2023-2024 | Private foundation | Fuzzy filed as “Cystic Fibrosis Foundation” | show |
| VANGUARD CHARITABLE ENDOWMENT PROGRAM | $976,592 | 5 | $274,412 | 2024 | 2020-2024 | DAF sponsor | Exact | show |
| WISHES & DREAMS FOR CYSTIC FIBROSIS | $915,000 | 7 | $125,000 | 2024 | 2017-2019, 2021-2024 | Public charity | Exact | show |
| CHARITIES AID FOUNDATION AMERICA | $885,727 | 9 | $286,961 | 2024 | 2019-2024 | DAF sponsor | Exact | show |
| SHAUN OHARA FOUNDATION INC | $884,535 | 16 | $52,000 | 2024 | 2011-2019, 2021-2024 | Public charity | Exact | show |
Nearby + Similar BETA
Organizations like this one: what they do and who they are linked to
Same category: NTEE code and revenue
Ranked without any AI: same NTEE code first, then the same NTEE group; then revenue within 2x, 5x or 10x; then the same state; then similar name and mission text. Same state only · More (100)
| Organization | State | NTEE | Latest revenue | Latest expenses | Top-paid title | Top pay | Why similar |
|---|---|---|---|---|---|---|---|
| UNITED CEREBRAL PALSY ASSOCIATIONS OF NEW YORK STATE INC | NY | G20 | $274,118,557 | $268,128,048 | PRESIDENT & CEO | $914,832 | Same NTEE code G20, revenue within 2x |
| UNITED CEREBRAL PALSY OF NEW YORK CITY INC | NY | G20 | $242,730,314 | $247,206,214 | CEO, ADAPT COMMUNITY NETWORK (THRU 11/24) | $943,636 | Same NTEE code G20, revenue within 2x |
| WORLD FEDERATION OF HEMOPHILIA USA | NY | G20 | $1,095,526,264 | $1,154,898,723 | President | $0 | Same NTEE code G20, revenue within 5x |
| UPSTATE CEREBRAL PALSY INC | NY | G20 | $124,592,778 | $123,497,488 | PSYCHIATRIST | $380,762 | Same NTEE code G20, revenue within 5x |
| THE CENTER FOR DISCOVERY INC | NY | G20 | $171,818,211 | $167,466,338 | PRESIDENT AND CEO | $716,858 | Same NTEE code G20, revenue within 5x |
| CENTER FOR DISABILITY SERVICES INC | NY | G20 | $125,771,990 | $122,060,178 | PRESIDENT/CE | $509,274 | Same NTEE code G20, revenue within 5x |
| MARCH OF DIMES INC | VA | G20 | $85,191,655 | $84,167,068 | PRESIDENT/CEO | $488,009 | Same NTEE code G20, revenue within 5x |
| PILLAR CARE CONTINUUM INC | NJ | G20 | $52,908,973 | $47,852,856 | PRESIDENT AND CEO | $255,398 | Same NTEE code G20, revenue within 10x |
| UNITED CEREBRAL PALSY OF QUEENS | NY | G20 | $45,060,876 | $41,663,993 | EXECUTIVE DIRECTOR | $246,837 | Same NTEE code G20, revenue within 10x |
| UNITED CEREBRAL PALSY ASSOCIATION OF NASSAU COUNTY INC | NY | G20 | $46,110,280 | $44,748,379 | EXECUTIVE DIRECTOR | $450,606 | Same NTEE code G20, revenue within 10x |
| UNITED CEREBRAL PALSY ASSOCIATION OF GREATER SUFFOLK INC | NY | G20 | $64,778,495 | $60,942,589 | PRESIDENT & CEO | $348,705 | Same NTEE code G20, revenue within 10x |
| LADACIN NETWORK INC | NJ | G20 | $36,943,349 | $35,711,497 | EXECUTIVE DIRECTOR | $339,352 | Same NTEE code G20, revenue within 10x |
| NEW JERSEY INSTITUTE FOR DISABILITIES INC | NJ | G20 | $51,334,047 | $51,573,790 | PRESIDENT | $262,494 | Same NTEE code G20, revenue within 10x |
| HEMOPHILIA OF GEORGIA INC | GA | G20 | $53,788,955 | $30,448,559 | Chief Medical Officer | $428,688 | Same NTEE code G20, revenue within 10x |
| UNITED HEMOPHILIA FOUNDATION | MD | G20 | $187,470 | $165,331 | President/CEO | $0 | Same NTEE code G20, revenue differs more than 10x, same state |
| TEAM TRACE INC | MD | G20 | $111,956 | $127,947 | PRESIDENT | $0 | Same NTEE code G20, revenue differs more than 10x, same state |
| INTERNATIONAL WAGR SYNDROME ASSOCIATION | MD | G20 | $73,819 | $73,600 | EXECUTIVE DIRECTOR | $25,935 | Same NTEE code G20, revenue differs more than 10x, same state |
| EASTER SEALS SERVING DC-MD-VA INC | MD | G20 | $30,880,621 | $33,937,371 | President & CEO | $444,975 | Same NTEE code G20, revenue differs more than 10x, same state |
| THERAPIES FOR INHERITED NEUROPATHIES INC | MD | G20 | $661,134 | $387,790 | Chief Executive Officer | $0 | Same NTEE code G20, revenue differs more than 10x, same state |
| GENETIC ALLIANCE INC | MD | G20 | $1,350,741 | $1,359,383 | PRESIDENT/CEO | $137,793 | Same NTEE code G20, revenue differs more than 10x, same state |
| CYSTIC FIBROSIS RESEARCH FUND | PA | G20 | $3,033,288 | $2,762,609 | Director | $0 | Same NTEE code G20, revenue differs more than 10x, similar name |
| CHION FOUNDATION | IL | G20 | $1,176 | $1,325 | Treasurer | $0 | Same NTEE code G20, revenue differs more than 10x, similar name |
| POLG FOUNDATION | NY | G20 | $3,364,753 | $2,107,901 | Director / CSO | $315,983 | Same NTEE code G20, revenue differs more than 10x |
| GRIN2B FOUNDATION | IL | G20 | $233,410 | $193,831 | EXECUTIVE DIRECTOR | $20,770 | Same NTEE code G20, revenue differs more than 10x |
| CSNK2A1 FOUNDATION | CA | G20 | $754,167 | $596,714 | EXECUTIVE DIRECTOR | $0 | Same NTEE code G20, revenue differs more than 10x |
Who funds organizations like this
Grantors that funded the 100 most similar organizations. Ranked by total given to them. Foundations (990-PF) and donor-advised fund sponsors only. Same matching as Funders above (by EIN, or by name for foundations).
The full list · all similar organizations
Where the money went
Every expense line on each return, biggest first: Form 990 Part IX (with its program, management and fundraising columns), 990-EZ Part I, or 990-PF Part I. Event marks lines the organization itself describes as events. “Events” in each summary adds those lines, conferences and meetings, and the direct costs of fundraising events. Unusual is not the same as improper. Many of these patterns have ordinary explanations. Check the filing.
2024 · Form 990 · $439,138,919 spent · pay $143,748,863 · grants $202,017,166 · events $26,685,942
| Line | As described | Total | Program | Management | Fundraising | Share |
|---|---|---|---|---|---|---|
| Grants to US organizations and governments | $189,712,483 | $189,712,483 | - | - | 43.2% | |
| Other salaries and wages | $103,316,517 | $54,900,056 | $29,590,592 | $18,825,869 | 23.5% | |
| Other (as described) | CONTRACTED RESEARCH | $31,692,660 | $31,692,660 | - | - | 7.2% |
| Other employee benefits | $18,310,800 | $9,380,238 | $4,628,915 | $4,301,647 | 4.2% | |
| Information technology | $14,237,632 | $8,180,444 | $3,420,824 | $2,636,364 | 3.2% | |
| Grants outside the US | $11,655,772 | $11,655,772 | - | - | 2.7% | |
| Conferences, conventions and meetings | $11,407,805 | $9,210,895 | $861,488 | $1,335,422 | 2.6% | |
| Occupancy | $7,667,521 | $4,585,375 | $1,566,658 | $1,515,488 | 1.7% | |
| Pension plan contributions | $7,591,804 | $4,101,309 | $2,061,086 | $1,429,409 | 1.7% | |
| Pay: officers, directors, trustees, key employees | $7,377,657 | $4,454,463 | $2,668,623 | $254,571 | 1.7% | |
| Fees: other services | $7,184,578 | $4,934,416 | $2,250,162 | $0 | 1.6% | |
| Payroll taxes | $7,042,399 | $3,771,085 | $1,903,150 | $1,368,164 | 1.6% | |
| Office expenses | $5,517,115 | $2,991,090 | $527,317 | $1,998,708 | 1.3% | |
| Fees: investment management | $3,153,831 | - | $3,153,831 | - | 0.7% | |
| Depreciation and depletion | $2,645,604 | $1,882,652 | $455,272 | $307,680 | 0.6% | |
| Travel | $2,562,131 | $1,484,177 | $554,960 | $522,994 | 0.6% | |
| Other (as described) | Other Taxes and Fees | $2,124,394 | $555,746 | $1,498,875 | $69,773 | 0.5% |
| Fees: lobbying | $840,554 | $840,554 | - | - | 0.2% | |
| Insurance | $792,595 | $504,491 | $258,372 | $29,732 | 0.2% | |
| Other (as described) | TRAINING | $759,753 | $409,381 | $269,835 | $80,537 | 0.2% |
| Other (as described) | Miscellaneous | $713,382 | $186,622 | $503,330 | $23,430 | 0.2% |
| Grants to US individuals | $648,911 | $648,911 | - | - | 0.1% | |
| Fees: legal | $610,499 | $289,235 | $298,573 | $22,691 | 0.1% | |
| Fees: accounting | $515,914 | $1,624 | $514,290 | - | 0.1% | |
| All other expenses | $473,243 | $138,723 | $318,976 | $15,544 | 0.1% | |
| Fees: professional fundraisers | $353,500 | - | - | $353,500 | 0.1% | |
| Advertising and promotion | $120,179 | $92,759 | $8,774 | $18,646 | 0.0% | |
| Pay: disqualified persons | $109,686 | $104,204 | $5,482 | - | 0.0% | |
| Fundraising events Event | direct expenses; gross income $15,278,137 | $15,278,137 | reported apart | |||
| Total | $439,138,919 | 100% |
2023 · Form 990 · $443,404,599 spent · pay $127,953,243 · grants $200,455,461 · events $23,254,496
| Line | As described | Total | Program | Management | Fundraising | Share |
|---|---|---|---|---|---|---|
| Grants to US organizations and governments | $186,907,445 | $186,907,445 | - | - | 42.2% | |
| Other salaries and wages | $90,365,830 | $48,316,291 | $25,361,237 | $16,688,302 | 20.4% | |
| Other (as described) | CONTRACTED RESEARCH | $58,687,072 | $58,687,072 | - | - | 13.2% |
| Other employee benefits | $16,308,874 | $8,846,577 | $4,500,717 | $2,961,580 | 3.7% | |
| Grants outside the US | $13,205,048 | $13,205,048 | - | - | 3.0% | |
| Information technology | $13,032,957 | $7,462,272 | $2,721,270 | $2,849,415 | 2.9% | |
| Conferences, conventions and meetings | $8,660,244 | $7,027,449 | $533,069 | $1,099,726 | 2.0% | |
| Occupancy | $7,666,750 | $4,851,778 | $1,358,001 | $1,456,971 | 1.7% | |
| Pay: officers, directors, trustees, key employees | $7,141,874 | $3,835,249 | $1,994,317 | $1,312,308 | 1.6% | |
| Pension plan contributions | $7,114,223 | $3,942,789 | $1,912,780 | $1,258,654 | 1.6% | |
| Payroll taxes | $6,455,402 | $3,576,339 | $1,610,993 | $1,268,070 | 1.5% | |
| Fees: other services | $6,394,897 | $4,799,509 | $1,562,035 | $33,353 | 1.4% | |
| Office expenses | $5,682,132 | $3,245,372 | $424,652 | $2,012,108 | 1.3% | |
| All other expenses | $3,499,578 | $943,331 | $2,361,407 | $194,840 | 0.8% | |
| Travel | $2,978,569 | $1,843,875 | $574,877 | $559,817 | 0.7% | |
| Depreciation and depletion | $2,742,703 | $2,051,076 | $395,123 | $296,504 | 0.6% | |
| Fees: investment management | $2,657,320 | - | $2,657,320 | - | 0.6% | |
| Fees: lobbying | $803,465 | $803,465 | - | - | 0.2% | |
| Insurance | $720,002 | $467,811 | $222,979 | $29,212 | 0.2% | |
| Pay: disqualified persons | $567,040 | $304,505 | $158,342 | $104,193 | 0.1% | |
| Other (as described) | TRAINING | $503,760 | $319,681 | $124,205 | $59,874 | 0.1% |
| Fees: accounting | $463,476 | - | $463,476 | - | 0.1% | |
| Grants to US individuals | $342,968 | $342,968 | - | - | 0.1% | |
| Fees: legal | $299,115 | $23,140 | $275,507 | $468 | 0.1% | |
| Fees: professional fundraisers | $176,400 | - | - | $176,400 | 0.0% | |
| Advertising and promotion | $27,455 | $9,060 | $4,667 | $13,728 | 0.0% | |
| Fundraising events Event | direct expenses; gross income $14,594,252 | $14,594,252 | reported apart | |||
| Total | $443,404,599 | 100% |
2022 · Form 990 · $396,664,114 spent · pay $116,829,042 · grants $184,032,962 · events $20,237,270
| Line | As described | Total | Program | Management | Fundraising | Share |
|---|---|---|---|---|---|---|
| Grants to US organizations and governments | $173,015,994 | $173,015,994 | - | - | 43.6% | |
| Other salaries and wages | $84,064,519 | $44,604,339 | $23,286,099 | $16,174,081 | 21.2% | |
| Other (as described) | CONTRACTED RESEARCH | $44,542,945 | $44,542,945 | - | - | 11.2% |
| Information technology | $13,411,352 | $7,861,341 | $2,927,348 | $2,622,663 | 3.4% | |
| Other employee benefits | $13,002,247 | $6,898,946 | $3,601,658 | $2,501,643 | 3.3% | |
| Grants outside the US | $10,506,537 | $10,506,537 | - | - | 2.6% | |
| Conferences, conventions and meetings | $7,899,087 | $6,717,968 | $408,670 | $772,449 | 2.0% | |
| Occupancy | $7,346,178 | $4,569,675 | $1,239,716 | $1,536,787 | 1.9% | |
| Pay: officers, directors, trustees, key employees | $6,916,442 | $3,669,840 | $1,915,873 | $1,330,729 | 1.7% | |
| Pension plan contributions | $6,044,963 | $3,207,436 | $1,674,471 | $1,163,056 | 1.5% | |
| Office expenses | $5,955,346 | $3,598,398 | $483,925 | $1,873,023 | 1.5% | |
| Payroll taxes | $5,905,012 | $3,199,151 | $1,475,098 | $1,230,763 | 1.5% | |
| Fees: other services | $5,338,970 | $4,490,002 | $817,253 | $31,715 | 1.3% | |
| Fees: investment management | $2,418,459 | - | $2,418,459 | - | 0.6% | |
| Depreciation and depletion | $2,238,383 | $1,759,128 | $203,541 | $275,714 | 0.6% | |
| All other expenses | $2,032,572 | $789,417 | $1,067,811 | $175,344 | 0.5% | |
| Travel | $1,482,316 | $964,156 | $210,149 | $308,011 | 0.4% | |
| Pay: disqualified persons | $895,859 | $475,340 | $248,155 | $172,364 | 0.2% | |
| Insurance | $819,709 | $565,989 | $217,511 | $36,209 | 0.2% | |
| Fees: lobbying | $724,854 | $724,854 | - | - | 0.2% | |
| Grants to US individuals | $510,431 | $510,431 | - | - | 0.1% | |
| Other (as described) | TRAINING | $467,112 | $251,740 | $170,727 | $44,645 | 0.1% |
| Fees: accounting | $362,937 | - | $362,937 | - | 0.1% | |
| Fees: legal | $272,819 | $126,112 | $146,707 | - | 0.1% | |
| Other (as described) | MEDICAL QUALITY IMPROVE | $184,481 | $184,481 | - | - | 0.0% |
| Fees: professional fundraisers | $176,400 | - | - | $176,400 | 0.0% | |
| Other (as described) | SPIROMETERS | $107,900 | $107,900 | - | - | 0.0% |
| Advertising and promotion | $20,290 | $6,696 | $3,449 | $10,145 | 0.0% | |
| Fundraising events Event | direct expenses; gross income $12,338,183 | $12,338,183 | reported apart | |||
| Total | $396,664,114 | 100% |
2021 · Form 990 · $375,611,186 spent · pay $107,679,100 · grants $178,329,656 · events $5,410,922
| Line | As described | Total | Program | Management | Fundraising | Share |
|---|---|---|---|---|---|---|
| Grants to US organizations and governments | $163,803,073 | $163,803,073 | - | - | 43.6% | |
| Other salaries and wages | $75,118,912 | $44,961,629 | $18,559,077 | $11,598,206 | 20.0% | |
| Other (as described) | CONTRACTED RESEARCH | $51,177,870 | $51,177,870 | - | - | 13.6% |
| Grants outside the US | $14,037,371 | $14,037,371 | - | - | 3.7% | |
| Other employee benefits | $12,664,337 | $7,580,104 | $3,128,885 | $1,955,348 | 3.4% | |
| Information technology | $11,232,026 | $7,732,325 | $2,309,811 | $1,189,890 | 3.0% | |
| Pay: officers, directors, trustees, key employees | $8,407,208 | $5,032,045 | $2,077,107 | $1,298,056 | 2.2% | |
| Occupancy | $6,373,917 | $4,087,331 | $1,143,533 | $1,143,053 | 1.7% | |
| Pension plan contributions | $5,487,947 | $3,284,751 | $1,355,868 | $847,328 | 1.5% | |
| Payroll taxes | $5,399,848 | $3,311,695 | $1,193,418 | $894,735 | 1.4% | |
| Fees: other services | $4,607,104 | $3,901,716 | $521,345 | $184,043 | 1.2% | |
| Office expenses | $3,658,046 | $2,523,092 | $195,409 | $939,545 | 1.0% | |
| Depreciation and depletion | $2,726,418 | $2,314,268 | $227,062 | $185,088 | 0.7% | |
| Fees: investment management | $2,643,636 | - | $2,643,636 | - | 0.7% | |
| Conferences, conventions and meetings | $1,967,221 | $1,747,713 | $72,773 | $146,735 | 0.5% | |
| All other expenses | $1,502,715 | $377,761 | $1,037,081 | $87,873 | 0.4% | |
| Insurance | $725,795 | $501,925 | $188,471 | $35,399 | 0.2% | |
| Fees: lobbying | $682,260 | $682,260 | - | - | 0.2% | |
| Pay: disqualified persons | $600,848 | $359,631 | $148,447 | $92,770 | 0.2% | |
| Other (as described) | SPIROMETERS | $542,770 | $542,770 | - | - | 0.1% |
| Grants to US individuals | $489,212 | $489,212 | - | - | 0.1% | |
| Fees: legal | $429,465 | $289,891 | $139,297 | $277 | 0.1% | |
| Other (as described) | MEDICAL QUALITY IMPROVE | $410,501 | $410,501 | - | - | 0.1% |
| Other (as described) | TRAINING | $341,973 | $239,386 | $79,628 | $22,959 | 0.1% |
| Fees: accounting | $217,841 | - | $217,841 | - | 0.1% | |
| Fees: professional fundraisers | $176,400 | - | - | $176,400 | 0.0% | |
| Travel | $174,212 | $100,699 | $28,966 | $44,547 | 0.0% | |
| Advertising and promotion | $12,260 | $5,517 | $2,084 | $4,659 | 0.0% | |
| Fundraising events Event | direct expenses; gross income $3,443,701 | $3,443,701 | reported apart | |||
| Total | $375,611,186 | 100% |
2020 · Form 990 · $381,380,991 spent · pay $103,110,573 · grants $187,172,342 · events $4,975,136
| Line | As described | Total | Program | Management | Fundraising | Share |
|---|---|---|---|---|---|---|
| Grants to US organizations and governments | $172,597,188 | $172,597,188 | - | - | 45.3% | |
| Other salaries and wages | $75,005,669 | $45,177,433 | $17,400,617 | $12,427,619 | 19.7% | |
| Other (as described) | CONTRACTED RESEARCH | $46,947,082 | $46,947,082 | - | - | 12.3% |
| Grants outside the US | $13,838,436 | $13,838,436 | - | - | 3.6% | |
| Other employee benefits | $12,515,296 | $7,538,216 | $2,903,432 | $2,073,648 | 3.3% | |
| Information technology | $12,161,217 | $8,928,364 | $2,040,812 | $1,192,041 | 3.2% | |
| Occupancy | $7,305,771 | $4,497,325 | $1,380,318 | $1,428,128 | 1.9% | |
| Pay: officers, directors, trustees, key employees | $6,356,579 | $3,828,696 | $1,474,667 | $1,053,216 | 1.7% | |
| Payroll taxes | $5,498,500 | $3,343,456 | $1,159,860 | $995,184 | 1.4% | |
| Fees: other services | $4,579,576 | $3,852,589 | $682,800 | $44,187 | 1.2% | |
| Depreciation and depletion | $4,111,984 | $3,374,968 | $371,605 | $365,411 | 1.1% | |
| Office expenses | $3,706,117 | $2,507,656 | $338,789 | $859,672 | 1.0% | |
| Fees: legal | $2,744,404 | $2,637,171 | $106,991 | $242 | 0.7% | |
| Pension plan contributions | $2,728,996 | $1,643,729 | $633,102 | $452,165 | 0.7% | |
| Fees: investment management | $2,292,996 | - | $2,292,996 | - | 0.6% | |
| Other (as described) | SPIROMETERS | $1,643,119 | $1,643,119 | - | - | 0.4% |
| Conferences, conventions and meetings | $1,220,720 | $1,005,902 | $81,528 | $133,290 | 0.3% | |
| Pay: disqualified persons | $1,005,533 | $605,653 | $233,274 | $166,606 | 0.3% | |
| All other expenses | $820,503 | $419,019 | $343,951 | $57,533 | 0.2% | |
| Insurance | $759,433 | $519,589 | $213,740 | $26,104 | 0.2% | |
| Grants to US individuals | $736,718 | $736,718 | - | - | 0.2% | |
| Fees: lobbying | $720,819 | $720,819 | - | - | 0.2% | |
| Travel | $566,597 | $383,487 | $76,690 | $106,420 | 0.1% | |
| Other (as described) | MEDICAL QUALITY IMPROVE | $499,976 | $499,976 | - | - | 0.1% |
| Other (as described) | TRAINING | $439,677 | $326,827 | $98,142 | $14,708 | 0.1% |
| Fees: accounting | $388,050 | - | $388,050 | - | 0.1% | |
| Fees: professional fundraisers | $179,250 | - | - | $179,250 | 0.0% | |
| Advertising and promotion | $10,785 | $4,853 | $1,834 | $4,098 | 0.0% | |
| Fundraising events Event | direct expenses; gross income $3,754,416 | $3,754,416 | reported apart | |||
| Total | $381,380,991 | 100% |
2019 · Form 990 · $348,650,099 spent · pay $99,469,166 · grants $155,248,642 · events $22,934,859
| Line | As described | Total | Program | Management | Fundraising | Share |
|---|---|---|---|---|---|---|
| Grants to US organizations and governments | $143,401,389 | $143,401,389 | - | - | 41.1% | |
| Other salaries and wages | $71,752,291 | $39,422,067 | $17,203,020 | $15,127,204 | 20.6% | |
| Other (as described) | CONTRACTED RESEARCH | $39,719,382 | $39,719,382 | - | - | 11.4% |
| Grants outside the US | $11,642,991 | $11,642,991 | - | - | 3.3% | |
| Information technology | $11,371,753 | $7,729,233 | $2,004,874 | $1,637,646 | 3.3% | |
| Other employee benefits | $10,575,751 | $5,810,517 | $2,535,597 | $2,229,637 | 3.0% | |
| Conferences, conventions and meetings | $7,123,256 | $5,664,442 | $476,496 | $982,318 | 2.0% | |
| Occupancy | $6,738,238 | $3,839,227 | $1,323,984 | $1,575,027 | 1.9% | |
| Pay: officers, directors, trustees, key employees | $6,729,509 | $3,697,320 | $1,613,438 | $1,418,751 | 1.9% | |
| Fees: other services | $6,340,491 | $5,278,463 | $907,502 | $154,526 | 1.8% | |
| Office expenses | $6,140,270 | $3,747,788 | $652,027 | $1,740,455 | 1.8% | |
| Pension plan contributions | $5,202,675 | $2,858,448 | $1,247,371 | $1,096,856 | 1.5% | |
| Payroll taxes | $5,037,240 | $2,721,815 | $1,130,120 | $1,185,305 | 1.4% | |
| Depreciation and depletion | $4,034,528 | $3,244,104 | $379,614 | $410,810 | 1.2% | |
| Fees: investment management | $3,272,948 | - | $3,272,948 | - | 0.9% | |
| Travel | $2,798,639 | $1,817,319 | $461,423 | $519,897 | 0.8% | |
| Other (as described) | OTHER | $1,581,354 | $868,938 | $543,085 | $169,331 | 0.5% |
| Fees: legal | $1,127,995 | $1,024,990 | $100,527 | $2,478 | 0.3% | |
| Insurance | $901,415 | $619,029 | $230,600 | $51,786 | 0.3% | |
| Fees: lobbying | $720,241 | $720,241 | - | - | 0.2% | |
| Other (as described) | MEDICAL QUALITY IMPROVEMENT | $716,903 | $716,903 | - | - | 0.2% |
| Other (as described) | TRAINING | $699,217 | $447,790 | $209,312 | $42,115 | 0.2% |
| Fees: professional fundraisers | $323,686 | - | - | $323,686 | 0.1% | |
| Fees: accounting | $309,350 | - | $309,350 | - | 0.1% | |
| Grants to US individuals | $204,262 | $204,262 | - | - | 0.1% | |
| Pay: disqualified persons | $171,700 | $94,335 | $41,166 | $36,199 | 0.0% | |
| Advertising and promotion | $12,625 | $4,166 | $2,525 | $5,934 | 0.0% | |
| Fundraising events Event | direct expenses; gross income $15,811,603 | $15,811,603 | reported apart | |||
| Total | $348,650,099 | 100% |
2018 · Form 990 · $337,912,568 spent · pay $90,187,520 · grants $144,315,284 · events $21,492,803
| Line | As described | Total | Program | Management | Fundraising | Share |
|---|---|---|---|---|---|---|
| Grants to US organizations and governments | $135,222,105 | $135,222,105 | - | - | 40.0% | |
| Other salaries and wages | $65,074,455 | $35,165,470 | $15,885,334 | $14,023,651 | 19.3% | |
| Other (as described) | CONTRACTED RESEARCH | $47,792,297 | $47,792,297 | - | - | 14.1% |
| Other employee benefits | $9,664,411 | $5,315,017 | $2,414,412 | $1,934,982 | 2.9% | |
| Fees: investment management | $9,655,029 | - | $9,655,029 | - | 2.9% | |
| Information technology | $9,481,746 | $6,624,076 | $1,330,360 | $1,527,310 | 2.8% | |
| Grants outside the US | $8,954,958 | $8,954,958 | - | - | 2.7% | |
| Conferences, conventions and meetings | $6,718,353 | $5,230,689 | $496,328 | $991,336 | 2.0% | |
| Occupancy | $6,163,555 | $3,687,271 | $1,180,730 | $1,295,554 | 1.8% | |
| Pay: officers, directors, trustees, key employees | $6,075,419 | $3,482,544 | $1,217,947 | $1,374,928 | 1.8% | |
| Fees: other services | $6,021,156 | $4,573,279 | $1,262,277 | $185,600 | 1.8% | |
| Office expenses | $6,011,970 | $3,328,071 | $675,199 | $2,008,700 | 1.8% | |
| Payroll taxes | $4,609,227 | $2,694,375 | $929,105 | $985,747 | 1.4% | |
| Pension plan contributions | $4,327,833 | $2,529,594 | $872,523 | $925,716 | 1.3% | |
| Depreciation and depletion | $3,460,046 | $2,645,379 | $371,225 | $443,442 | 1.0% | |
| Travel | $2,629,951 | $1,918,305 | $348,083 | $363,563 | 0.8% | |
| Other (as described) | OTHER | $1,133,491 | $565,707 | $400,862 | $166,922 | 0.3% |
| Insurance | $923,613 | $562,178 | $163,909 | $197,526 | 0.3% | |
| Fees: lobbying | $856,530 | $856,530 | - | - | 0.3% | |
| Fees: legal | $765,607 | $594,397 | $140,899 | $30,311 | 0.2% | |
| Other (as described) | MEDICAL QUALITY IMPROVEMENT | $681,557 | $681,557 | - | - | 0.2% |
| Other (as described) | TRAINING | $514,300 | $244,043 | $194,214 | $76,043 | 0.2% |
| Pay: disqualified persons | $436,175 | $364,913 | $33,474 | $37,788 | 0.1% | |
| Fees: professional fundraisers | $326,000 | - | - | $326,000 | 0.1% | |
| Fees: accounting | $264,675 | - | $264,675 | - | 0.1% | |
| Grants to US individuals | $138,221 | $138,221 | - | - | 0.0% | |
| Advertising and promotion | $9,888 | $4,692 | $3,734 | $1,462 | 0.0% | |
| Fundraising events Event | direct expenses; gross income $14,774,450 | $14,774,450 | reported apart | |||
| Total | $337,912,568 | 100% |
2017 · Form 990 · $292,766,690 spent · pay $68,025,837 · grants $179,923,805 · events $20,023,538
| Line | As described | Total | Program | Management | Fundraising | Share |
|---|---|---|---|---|---|---|
| Grants to US organizations and governments | $177,688,641 | $177,688,641 | - | - | 60.7% | |
| Other salaries and wages | $50,275,582 | $27,958,528 | $9,582,469 | $12,734,585 | 17.2% | |
| Fees: investment management | $9,017,639 | - | $9,017,639 | - | 3.1% | |
| Information technology | $7,125,429 | $5,159,294 | $683,182 | $1,282,953 | 2.4% | |
| Other employee benefits | $6,143,522 | $3,416,447 | $1,170,949 | $1,556,126 | 2.1% | |
| Conferences, conventions and meetings | $5,471,376 | $4,706,605 | $162,058 | $602,713 | 1.9% | |
| Fees: other services | $4,841,694 | $3,898,075 | $677,742 | $265,877 | 1.7% | |
| Office expenses | $4,717,234 | $2,380,323 | $296,598 | $2,040,313 | 1.6% | |
| Pay: officers, directors, trustees, key employees | $4,394,102 | $2,443,584 | $837,511 | $1,113,007 | 1.5% | |
| Occupancy | $4,293,486 | $2,275,623 | $642,999 | $1,374,864 | 1.5% | |
| Payroll taxes | $3,417,848 | $1,880,798 | $560,986 | $976,064 | 1.2% | |
| Pension plan contributions | $3,214,679 | $1,787,701 | $612,714 | $814,264 | 1.1% | |
| Grants outside the US | $2,186,637 | $2,186,637 | - | - | 0.7% | |
| Depreciation and depletion | $2,086,005 | $1,369,642 | $220,775 | $495,588 | 0.7% | |
| Travel | $1,833,941 | $1,252,485 | $168,788 | $412,668 | 0.6% | |
| Other (as described) | OTHER | $1,222,538 | $329,625 | $677,596 | $215,317 | 0.4% |
| Other (as described) | TRAINING | $956,137 | $481,879 | $137,580 | $336,678 | 0.3% |
| Other (as described) | MEDICAL QUALITY IMPROVEMENT | $828,070 | $828,070 | - | - | 0.3% |
| Insurance | $798,720 | $532,825 | $178,336 | $87,559 | 0.3% | |
| Fees: lobbying | $663,815 | $663,815 | - | - | 0.2% | |
| Pay: disqualified persons | $580,104 | $442,227 | $59,201 | $78,676 | 0.2% | |
| Fees: legal | $363,175 | $259,733 | $86,923 | $16,519 | 0.1% | |
| Fees: professional fundraisers | $288,543 | - | - | $288,543 | 0.1% | |
| Fees: accounting | $285,760 | - | $285,760 | - | 0.1% | |
| Grants to US individuals | $48,527 | $48,527 | - | - | 0.0% | |
| Advertising and promotion | $23,486 | $10,099 | $2,818 | $10,569 | 0.0% | |
| Fundraising events Event | direct expenses; gross income $14,552,162 | $14,552,162 | reported apart | |||
| Total | $292,766,690 | 100% |
2016 · Form 990 · $299,650,531 spent · pay $58,875,323 · grants $198,127,696 · events $18,803,808
| Line | As described | Total | Program | Management | Fundraising | Share |
|---|---|---|---|---|---|---|
| Grants to US organizations and governments | $196,781,906 | $196,781,906 | - | - | 65.7% | |
| Other salaries and wages | $44,176,990 | $23,799,550 | $8,287,473 | $12,089,967 | 14.7% | |
| Fees: investment management | $7,854,093 | - | $7,854,093 | - | 2.6% | |
| Information technology | $7,792,091 | $5,752,940 | $629,855 | $1,409,296 | 2.6% | |
| Other employee benefits | $5,119,719 | $2,758,156 | $960,444 | $1,401,119 | 1.7% | |
| Conferences, conventions and meetings | $5,097,663 | $4,478,348 | $135,180 | $484,135 | 1.7% | |
| Fees: other services | $4,277,751 | $3,676,276 | $270,820 | $330,655 | 1.4% | |
| Occupancy | $3,914,949 | $2,170,919 | $524,305 | $1,219,725 | 1.3% | |
| Office expenses | $3,765,353 | $2,113,695 | $370,439 | $1,281,219 | 1.3% | |
| Payroll taxes | $3,501,638 | $1,841,938 | $601,641 | $1,058,059 | 1.2% | |
| Pay: officers, directors, trustees, key employees | $3,248,161 | $1,749,888 | $609,345 | $888,928 | 1.1% | |
| Other (as described) | OTHER EXPENSES | $2,344,302 | $727,577 | $596,475 | $1,020,250 | 0.8% |
| Pension plan contributions | $2,167,010 | $1,167,437 | $406,525 | $593,048 | 0.7% | |
| Travel | $1,779,302 | $1,233,340 | $168,781 | $377,181 | 0.6% | |
| Depreciation and depletion | $1,346,014 | $851,020 | $159,472 | $335,522 | 0.4% | |
| Other (as described) | MEDICAL QUALITY IMPROVEMENT | $1,282,277 | $1,282,277 | - | - | 0.4% |
| Grants outside the US | $1,208,215 | $1,208,215 | - | - | 0.4% | |
| Other (as described) | CARE CENTER SUPPORT | $946,282 | $946,282 | - | - | 0.3% |
| Pay: disqualified persons | $661,805 | $477,387 | $75,002 | $109,416 | 0.2% | |
| Fees: legal | $626,111 | $515,729 | $108,284 | $2,098 | 0.2% | |
| Fees: lobbying | $574,720 | $574,720 | - | - | 0.2% | |
| Insurance | $555,857 | $406,732 | $104,402 | $44,723 | 0.2% | |
| Fees: accounting | $344,410 | - | $344,410 | - | 0.1% | |
| Grants to US individuals | $137,575 | $137,575 | - | - | 0.0% | |
| Fees: professional fundraisers | $133,446 | - | - | $133,446 | 0.0% | |
| Advertising and promotion | $12,891 | $5,543 | $1,547 | $5,801 | 0.0% | |
| Fundraising events Event | direct expenses; gross income $13,706,145 | $13,706,145 | reported apart | |||
| Total | $299,650,531 | 100% |
2015 · Form 990 · $192,986,761 spent · pay $32,239,198 · grants $132,612,012 · events $4,122,590
| Line | As described | Total | Program | Management | Fundraising | Share |
|---|---|---|---|---|---|---|
| Grants to US organizations and governments | $130,036,670 | $130,036,670 | - | - | 67.4% | |
| Other salaries and wages | $20,235,358 | $12,827,875 | $4,362,801 | $3,044,682 | 10.5% | |
| Pay: officers, directors, trustees, key employees | $6,449,238 | $4,163,714 | $1,290,927 | $994,597 | 3.3% | |
| Fees: investment management | $5,013,975 | - | $5,013,975 | - | 2.6% | |
| Fees: other services | $4,157,288 | $3,640,198 | $142,745 | $374,345 | 2.2% | |
| Conferences, conventions and meetings | $4,122,590 | $3,848,113 | $80,947 | $193,530 | 2.1% | |
| Information technology | $3,867,178 | $3,349,834 | $112,539 | $404,805 | 2.0% | |
| Other employee benefits | $2,984,036 | $1,909,154 | $617,667 | $457,215 | 1.5% | |
| Other (as described) | DIRECT MAIL PRINTING | $1,890,346 | $536,858 | - | $1,353,488 | 1.0% |
| Grants to US individuals | $1,839,565 | $1,839,565 | - | - | 1.0% | |
| Payroll taxes | $1,551,761 | $959,736 | $324,237 | $267,788 | 0.8% | |
| Other (as described) | DIRECT MAIL POSTAGE | $1,301,504 | $369,627 | - | $931,877 | 0.7% |
| Occupancy | $1,138,748 | $841,192 | $169,822 | $127,734 | 0.6% | |
| All other expenses | $1,082,346 | $642,115 | $209,876 | $230,355 | 0.6% | |
| Pension plan contributions | $1,018,805 | $662,520 | $207,263 | $149,022 | 0.5% | |
| Travel | $885,874 | $762,884 | $51,620 | $71,370 | 0.5% | |
| Office expenses | $818,560 | $590,087 | $123,600 | $104,873 | 0.4% | |
| Other (as described) | MEDICAL QUALITY IMPROVEMENT | $802,991 | $802,991 | - | - | 0.4% |
| Grants outside the US | $735,777 | $735,777 | - | - | 0.4% | |
| Fees: legal | $720,995 | $649,960 | $71,035 | - | 0.4% | |
| Other (as described) | TRAINING | $510,125 | $310,454 | $77,050 | $122,621 | 0.3% |
| Depreciation and depletion | $500,221 | $342,076 | $91,462 | $66,683 | 0.3% | |
| Fees: lobbying | $469,844 | $469,844 | - | - | 0.2% | |
| Insurance | $355,238 | $264,491 | $58,986 | $31,761 | 0.2% | |
| Fees: accounting | $299,022 | $30,991 | $268,031 | - | 0.2% | |
| Fees: professional fundraisers | $192,000 | - | - | $192,000 | 0.1% | |
| Advertising and promotion | $6,706 | $3,889 | $872 | $1,945 | 0.0% | |
| Total | $192,986,761 | 100% |
2014 · Form 990 · $80,021,438 spent · pay $25,951,581 · grants $32,902,431 · events $2,701,138
| Line | As described | Total | Program | Management | Fundraising | Share |
|---|---|---|---|---|---|---|
| Grants to US organizations and governments | $30,871,659 | $30,871,659 | - | - | 38.6% | |
| Other salaries and wages | $18,137,443 | $11,023,665 | $3,992,977 | $3,120,801 | 22.7% | |
| Royalties | $3,908,327 | $3,040,725 | $362,357 | $505,245 | 4.9% | |
| Advertising and promotion | $3,712,955 | $2,309,448 | $931,076 | $472,431 | 4.6% | |
| Pay: officers, directors, trustees, key employees | $3,025,537 | $1,838,876 | $666,075 | $520,586 | 3.8% | |
| Conferences, conventions and meetings | $2,701,138 | $2,638,865 | $20,276 | $41,997 | 3.4% | |
| Other employee benefits | $2,528,201 | $1,536,603 | $556,586 | $435,012 | 3.2% | |
| Other (as described) | DIRECT MAIL PRINTING | $2,218,536 | $686,193 | - | $1,532,343 | 2.8% |
| Other (as described) | DIRECT MAIL POSTAGE | $2,006,784 | $620,698 | - | $1,386,086 | 2.5% |
| Grants to US individuals | $1,831,702 | $1,831,702 | - | - | 2.3% | |
| Payroll taxes | $1,361,461 | $813,849 | $289,253 | $258,359 | 1.7% | |
| Occupancy | $1,235,897 | $736,177 | $326,076 | $173,644 | 1.5% | |
| Pension plan contributions | $898,939 | $546,362 | $197,902 | $154,675 | 1.1% | |
| Other (as described) | QUALITY IMPROVEMENT TRAINING | $783,404 | $783,404 | - | $0 | 1.0% |
| All other expenses | $623,201 | $269,629 | $153,344 | $200,228 | 0.8% | |
| Travel | $614,123 | $514,654 | $37,822 | $61,647 | 0.8% | |
| Information technology | $543,025 | $433,387 | $31,903 | $77,735 | 0.7% | |
| Fees: legal | $481,774 | $420,744 | $61,030 | $0 | 0.6% | |
| Depreciation and depletion | $455,762 | $300,088 | $91,501 | $64,173 | 0.6% | |
| Fees: lobbying | $435,561 | $435,561 | $0 | - | 0.5% | |
| Insurance | $395,424 | $318,970 | $15,690 | $60,764 | 0.5% | |
| Other (as described) | TRAINING | $366,111 | $232,448 | $45,905 | $87,758 | 0.5% |
| Fees: accounting | $286,629 | $28,425 | $258,204 | $0 | 0.4% | |
| Grants outside the US | $199,070 | $199,070 | - | - | 0.2% | |
| Fees: investment management | $196,167 | - | $196,167 | - | 0.2% | |
| Fees: professional fundraisers | $192,000 | - | - | $192,000 | 0.2% | |
| Office expenses | $10,608 | $6,153 | $1,379 | $3,076 | 0.0% | |
| Total | $80,021,438 | 100% |
2013 · Form 990 · $75,047,721 spent · pay $25,419,186 · grants $27,334,715 · events $2,243,664
| Line | As described | Total | Program | Management | Fundraising | Share |
|---|---|---|---|---|---|---|
| Grants to US organizations and governments | $25,179,825 | $25,179,825 | - | - | 33.6% | |
| Other salaries and wages | $17,429,853 | $11,449,665 | $3,509,214 | $2,470,974 | 23.2% | |
| Pay: officers, directors, trustees, key employees | $3,669,026 | $2,410,182 | $738,698 | $520,146 | 4.9% | |
| Information technology | $3,544,741 | $2,511,662 | $488,715 | $544,364 | 4.7% | |
| Fees: other services | $3,051,626 | $2,270,776 | $37,542 | $743,308 | 4.1% | |
| Other (as described) | DIRECT MAIL PRINTING | $2,899,191 | $865,118 | $0 | $2,034,073 | 3.9% |
| Other (as described) | DIRECT MAIL POSTAGE | $2,423,838 | $723,274 | $0 | $1,700,564 | 3.2% |
| Conferences, conventions and meetings | $2,243,664 | $2,126,777 | $48,299 | $68,588 | 3.0% | |
| Grants to US individuals | $1,900,474 | $1,900,474 | - | - | 2.5% | |
| Other (as described) | PROVISION FOR DOUBTFUL ACCOUNT | $1,875,308 | $0 | $1,875,308 | $0 | 2.5% |
| Other employee benefits | $1,707,375 | $1,121,574 | $343,752 | $242,049 | 2.3% | |
| Payroll taxes | $1,385,105 | $908,657 | $268,261 | $208,187 | 1.8% | |
| Occupancy | $1,266,461 | $793,970 | $315,758 | $156,733 | 1.7% | |
| Pension plan contributions | $1,227,827 | $806,559 | $247,203 | $174,065 | 1.6% | |
| All other expenses | $1,119,681 | $803,416 | $13,594 | $302,671 | 1.5% | |
| Office expenses | $962,756 | $874,107 | $12,708 | $75,941 | 1.3% | |
| Travel | $678,266 | $587,043 | $31,571 | $59,652 | 0.9% | |
| Insurance | $449,388 | $322,588 | $61,668 | $65,132 | 0.6% | |
| Other (as described) | TRAINING | $376,641 | $239,170 | $63,173 | $74,298 | 0.5% |
| Depreciation and depletion | $366,183 | $254,942 | $64,952 | $46,289 | 0.5% | |
| Fees: accounting | $328,320 | $50,885 | $277,435 | - | 0.4% | |
| Fees: legal | $288,197 | $245,278 | $42,919 | - | 0.4% | |
| Fees: lobbying | $266,173 | $266,173 | - | - | 0.4% | |
| Grants outside the US | $254,416 | $254,416 | - | - | 0.3% | |
| Fees: investment management | $111,438 | $0 | $111,438 | - | 0.1% | |
| Advertising and promotion | $41,948 | $25,588 | $6,712 | $9,648 | 0.1% | |
| Total | $75,047,721 | 100% |
2012 · Form 990 · $79,288,914 spent · pay $29,994,467 · grants $25,842,486 · events $2,443,790
| Line | As described | Total | Program | Management | Fundraising | Share |
|---|---|---|---|---|---|---|
| Grants to US organizations and governments | $23,530,938 | $23,530,938 | - | - | 29.7% | |
| Other salaries and wages | $21,805,285 | $15,902,544 | $3,400,554 | $2,502,187 | 27.5% | |
| Information technology | $3,896,695 | $3,063,964 | $306,872 | $525,859 | 4.9% | |
| Fees: other services | $3,030,329 | $2,245,033 | $0 | $785,296 | 3.8% | |
| Other (as described) | DIRECT MAIL PRINTING | $2,998,803 | $824,371 | $0 | $2,174,432 | 3.8% |
| Other (as described) | DIRECT MAIL POSTAGE | $2,785,473 | $765,727 | $0 | $2,019,746 | 3.5% |
| Pay: officers, directors, trustees, key employees | $2,681,208 | $1,955,399 | $418,137 | $307,672 | 3.4% | |
| Other employee benefits | $2,491,848 | $1,817,299 | $388,606 | $285,943 | 3.1% | |
| Conferences, conventions and meetings | $2,443,790 | $2,401,735 | $13,829 | $28,226 | 3.1% | |
| Office expenses | $1,748,045 | $1,564,032 | $75,299 | $108,714 | 2.2% | |
| Grants to US individuals | $1,670,420 | $1,670,420 | - | - | 2.1% | |
| Payroll taxes | $1,655,879 | $1,247,462 | $209,114 | $199,303 | 2.1% | |
| Occupancy | $1,634,556 | $1,214,017 | $259,671 | $160,868 | 2.1% | |
| Pension plan contributions | $1,360,247 | $992,025 | $212,132 | $156,090 | 1.7% | |
| All other expenses | $976,561 | $312,369 | $618,229 | $45,963 | 1.2% | |
| Travel | $793,201 | $699,429 | $27,316 | $66,456 | 1.0% | |
| Grants outside the US | $641,128 | $641,128 | - | - | 0.8% | |
| Fees: legal | $578,023 | $537,516 | $40,507 | $0 | 0.7% | |
| Other (as described) | TRAINING | $546,284 | $341,205 | $87,067 | $118,012 | 0.7% |
| Depreciation and depletion | $532,604 | $448,971 | $43,658 | $39,975 | 0.7% | |
| Other (as described) | MAILING LIST RENTAL | $464,438 | $127,674 | $0 | $336,764 | 0.6% |
| Insurance | $447,871 | $363,025 | $33,216 | $51,630 | 0.6% | |
| Fees: lobbying | $252,712 | $252,712 | $0 | $0 | 0.3% | |
| Fees: accounting | $182,708 | $55,611 | $127,097 | $0 | 0.2% | |
| Fees: investment management | $106,366 | $0 | $106,366 | $0 | 0.1% | |
| Advertising and promotion | $33,502 | $20,436 | $5,360 | $7,706 | 0.0% | |
| Total | $79,288,914 | 100% |
2011 · Form 990 · $125,721,614 spent · pay $27,272,258 · grants $74,501,565 · events $2,394,030
| Line | As described | Total | Program | Management | Fundraising | Share |
|---|---|---|---|---|---|---|
| Grants to US organizations and governments | $73,053,292 | $73,053,292 | - | - | 58.1% | |
| Other salaries and wages | $20,131,956 | $14,896,590 | $2,890,194 | $2,345,172 | 16.0% | |
| Other (as described) | DIRECT MAIL PRINTING | $3,585,707 | $1,056,349 | $0 | $2,529,358 | 2.9% |
| Information technology | $3,584,763 | $2,824,293 | $271,911 | $488,559 | 2.9% | |
| Other (as described) | DIRECT MAIL POSTAGE | $3,222,034 | $949,211 | $0 | $2,272,823 | 2.6% |
| Fees: other services | $2,965,468 | $1,999,889 | $0 | $965,579 | 2.4% | |
| Conferences, conventions and meetings | $2,394,030 | $2,358,973 | $12,874 | $22,183 | 1.9% | |
| Pay: officers, directors, trustees, key employees | $2,331,798 | $1,725,408 | $334,759 | $271,631 | 1.9% | |
| Other employee benefits | $2,003,186 | $1,482,253 | $287,582 | $233,351 | 1.6% | |
| Office expenses | $1,955,394 | $1,768,900 | $83,822 | $102,672 | 1.6% | |
| Payroll taxes | $1,594,641 | $1,214,254 | $191,535 | $188,852 | 1.3% | |
| Occupancy | $1,505,673 | $1,190,541 | $198,720 | $116,412 | 1.2% | |
| Grants to US individuals | $1,212,242 | $1,212,242 | - | - | 1.0% | |
| Pension plan contributions | $1,210,677 | $895,837 | $173,808 | $141,032 | 1.0% | |
| All other expenses | $1,150,085 | $557,371 | $548,653 | $44,061 | 0.9% | |
| Travel | $786,559 | $694,250 | $21,990 | $70,319 | 0.6% | |
| Other (as described) | MAILING LIST RENTAL | $574,881 | $169,360 | $0 | $405,521 | 0.5% |
| Depreciation and depletion | $485,741 | $426,836 | $29,705 | $29,200 | 0.4% | |
| Insurance | $408,836 | $338,988 | $24,428 | $45,420 | 0.3% | |
| Fees: legal | $380,252 | $324,835 | $55,417 | $0 | 0.3% | |
| Other (as described) | TRAINING | $366,080 | $281,331 | $38,592 | $46,157 | 0.3% |
| Fees: lobbying | $293,211 | $293,211 | $0 | $0 | 0.2% | |
| Grants outside the US | $236,031 | $236,031 | - | - | 0.2% | |
| Fees: accounting | $180,167 | $59,890 | $120,277 | $0 | 0.1% | |
| Fees: investment management | $102,488 | $0 | $102,488 | $0 | 0.1% | |
| Advertising and promotion | $6,422 | $3,917 | $1,028 | $1,477 | 0.0% | |
| Total | $125,721,614 | 100% |
2010 · Form 990 · $67,973,496 spent · pay $24,796,813 · grants $21,487,961 · events $2,383,462
| Line | As described | Total | Program | Management | Fundraising | Share |
|---|---|---|---|---|---|---|
| Grants to US organizations and governments | $20,885,838 | $20,885,838 | - | - | 30.7% | |
| Other salaries and wages | $17,189,270 | $12,627,344 | $2,520,976 | $2,040,950 | 25.3% | |
| Other (as described) | DIRECT MAIL PRINTING | $3,758,425 | $1,149,326 | $0 | $2,609,099 | 5.5% |
| Pay: officers, directors, trustees, key employees | $3,480,415 | $2,556,735 | $510,437 | $413,243 | 5.1% | |
| Other (as described) | DIRECT MAIL POSTAGE | $3,354,197 | $1,025,713 | $0 | $2,328,484 | 4.9% |
| Information technology | $2,763,447 | $2,119,331 | $208,244 | $435,872 | 4.1% | |
| Conferences, conventions and meetings | $2,383,462 | $2,335,003 | $18,509 | $29,950 | 3.5% | |
| Fees: other services | $2,349,407 | $1,533,403 | $0 | $816,004 | 3.5% | |
| Other employee benefits | $1,869,019 | $1,372,993 | $274,110 | $221,916 | 2.7% | |
| Occupancy | $1,459,323 | $1,134,555 | $204,654 | $120,114 | 2.1% | |
| Office expenses | $1,385,665 | $1,216,906 | $95,540 | $73,219 | 2.0% | |
| Payroll taxes | $1,358,760 | $1,015,201 | $175,554 | $168,005 | 2.0% | |
| Pension plan contributions | $899,349 | $660,667 | $131,898 | $106,784 | 1.3% | |
| All other expenses | $855,124 | $104,256 | $705,529 | $45,339 | 1.3% | |
| Travel | $640,974 | $551,840 | $27,977 | $61,157 | 0.9% | |
| Other (as described) | MAILING LIST RENTAL | $622,384 | $190,325 | $0 | $432,059 | 0.9% |
| Grants to US individuals | $596,723 | $596,723 | - | - | 0.9% | |
| Depreciation and depletion | $469,209 | $411,782 | $30,288 | $27,139 | 0.7% | |
| Fees: legal | $418,245 | $335,784 | $82,461 | $0 | 0.6% | |
| Insurance | $378,346 | $301,152 | $29,778 | $47,416 | 0.6% | |
| Other (as described) | TRAINING | $365,661 | $270,118 | $45,001 | $50,542 | 0.5% |
| Fees: accounting | $177,810 | $58,991 | $118,819 | $0 | 0.3% | |
| Other (as described) | QUALITY IMPROVEMENT TRAINING | $149,283 | $149,283 | $0 | $0 | 0.2% |
| Fees: investment management | $101,164 | $0 | $101,164 | $0 | 0.1% | |
| Fees: lobbying | $45,600 | $45,600 | $0 | $0 | 0.1% | |
| Advertising and promotion | $10,996 | $6,593 | $2,028 | $2,375 | 0.0% | |
| Grants outside the US | $5,400 | $5,400 | - | - | 0.0% | |
| Total | $67,973,496 | 100% |
Federal lobbying
Lobbying Disclosure Act reports naming a client or registrant with this organization's name and state. Spent: what lobbying for it cost (firm income plus its own reported expenses). Earned: income it reported as a lobbying firm.
| Year | Spent | Earned | Reports |
|---|---|---|---|
| 2026 | $780,000 | 9 | |
| 2025 | $880,000 | 12 | |
| 2024 | $1,450,000 | 13 | |
| 2023 | $960,000 | 13 | |
| 2022 | $760,000 | 13 | |
| 2021 | $640,000 | 13 | |
| 2020 | $800,000 | 12 | |
| 2019 | $1,190,000 | 13 | |
| 2018 | $1,170,000 | 13 | |
| 2017 | $1,120,000 | 8 | |
| 2016 | $700,000 | 8 | |
| 2015 | $500,000 | 9 | |
| 2014 | $440,000 | 11 | |
| 2013 | $310,000 | 10 | |
| 2012 | $470,000 | 8 | |
| 2011 | $332,896 | 10 | |
| 2010 | $366,252 | 12 | |
| 2009 | $373,835 | 12 | |
| 2008 | $150,030 | 8 | |
| 2007 | $303,235 | 9 | |
| 2006 | $125,790 | 4 | |
| 2005 | $100,000 | 3 | |
| 2004 | $120,000 | 4 | |
| 2003 | $100,000 | 3 | |
| 2002 | $60,000 | 3 | |
| 2001 | $20,000 | 6 |
Issues: Health Issues, Medical/Disease Research/Clinical Labs, Budget/Appropriations, Medicare/Medicaid, Insurance, Pharmacy, Taxation/Internal Revenue Code, Science/Technology, Government Issues, Agriculture, Small Business, Disaster Planning/Emergencies
Firms hired: CYSTIC FIBROSIS FOUNDATION, THORN RUN PARTNERS, TURNER & GOSS LLP, ROPES & GRAY, LLP, BENNETT TURNER & COLEMAN LLP
State business registration
- CYSTIC FIBROSIS FOUNDATION MD, Employee benefit plan sponsor (Form 5500), Filed for plan year 2025
- DAYTONA BEACH JEEP CLUB LLC FL, Florida limited liability company (FLAL), Inactive, formed 2021-03-31
- CYSTIC FIBROSIS FOUNDATION FL, Foreign nonprofit corporation (FORNP), Active, formed 1974-10-30
The same business name in the same state, from the state’s official registry data.
Patents
4 US patents filed in the last 20 years.
- Cystic Fibrosis Foundation 4 patents, 2019-08-13 to 2026-04-28 EXACT high confidence: identical full name and state
| Patent | Title | Granted | Source |
|---|---|---|---|
| US 12612409 | Pyrrolopyrimidines as CFTR potentiators | 2026-04-28 | PTBLXML, file of 2026-04-28 |
| US 10766904 | Bicyclic heteroaryl derivatives as CFTR potentiators | 2020-09-08 | PVGPATDIS, file of 2026-04-10 |
| US 10494374 | Pyrrolopyrimidines as CFTR potentiators | 2019-12-03 | PVGPATDIS, file of 2026-04-10 |
| US 10377762 | Bicyclic heteroaryl derivatives as CFTR potentiators | 2019-08-13 | PVGPATDIS, file of 2026-04-10 |
The newest patents of the PatentsView assignees above, matched to this record by name (and state).
Trademarks
68 US trademarks, 34 live.
- Cystic Fibrosis Foundation 68 marks, MD EXACT high confidence: identical full name and state
| Mark | Serial | Filed | Status | Source |
|---|---|---|---|---|
| XTREME HIKE | 98865961 | 2024-11-21 | Registered | TRTDXFAP, file of 2026-05-18 |
| CF CYCLE FOR LIFE | 98865955 | 2024-11-21 | Registered | TRTDXFAP, file of 2026-05-18 |
| CF CLIMB | 98865904 | 2024-11-21 | Registered | TRTDXFAP, file of 2026-05-18 |
| GREAT STRIDES | 98549932 | 2024-05-14 | Registered | TRTDXFAP, file of 2026-08-12 |
| COMPASS CYSTIC FIBROSIS FOUNDATION | 86770389 | 2015-09-28 | Registered | TRTDXFAP, file of 2026-08-14 |
| CF FOUNDATION COMPASS | 86767153 | 2015-09-24 | Registered | TRTDXFAP, file of 2026-08-14 |
| ADDING TOMORROWS | 86406135 | 2014-09-25 | Registration cancelled | TRTDXFAP, file of 2026-06-24 |
| BREWER'S BALL | 85926024 | 2013-05-08 | Registered and renewed | TRTYRAP, file of 2026-04-03 |
| PARTNERS IN PROGRESS ANNUAL FUND CYSTIC FIBROSIS FOUNDATION | 85925631 | 2013-05-07 | Abandoned | TRCFECO2, file of 2024-03-27 |
| GREAT STRIDES CYSTIC FIBROSIS FOUNDATION | 85925620 | 2013-05-07 | Registered and renewed | TRTYRAP, file of 2026-04-03 |
The newest marks of the trademark owners above, matched to this record by name (and state).
Drug and device company payments (Open Payments) Fuzzy
- Teaching hospital receiving payments: Cystic Fibrosis Foundation, $14,000 in 4 records, 2024–2025 (same name and state)
Also on this site Fuzzy
| Record | Name as filed | Where | Dataset | Matched by |
|---|---|---|---|---|
| Plan sponsor | CYSTIC FIBROSIS FOUNDATION | MD | Form 5500 (employee benefit plans) | EIN (EXACT) |
| Payment recipient | Cystic Fibrosis Foundation | MD | Open Payments (drug and device company payments) | name and state |
Matched by name (and state) or EIN only; a shared name is not proof of the same person or organization.
Comments