CYSTIC FIBROSIS FOUNDATION: Form 990, tax year 2020

View the entire original 990 at ProPublica ↗

Organization: CYSTIC FIBROSIS FOUNDATION (EIN 13-1930701)
Tax period: 2020-01-01 to 2020-12-31
Filed: 2021-11-10
IRS object ID: 202123149349304262
Schema version: 2020v4.1
Source: Download XML · Original 990 at ProPublica

Every field in the e-filed return. Faint text is the IRS element name, for citing.

Return header
Form 990
Schedule A
Schedule B
Schedule C
Schedule D
Schedule F
Schedule G
Schedule I
Schedule J
Schedule M
Schedule O
Schedule R

Return header ReturnHeader

Field	Value	IRS element (for citing)
Return	2021-11-10T12:28:49-06:00	ReturnTs
Tax Period End	2020-12-31	TaxPeriodEndDt

Preparer Firm PreparerFirmGrp

Field	Value	IRS element (for citing)
Preparer Firm EIN	135565207	PreparerFirmEIN

Preparer Firm Name PreparerFirmName

Field	Value	IRS element (for citing)
Business Name Line1	KPMG LLP	BusinessNameLine1Txt

Preparer US Address PreparerUSAddress

Field	Value	IRS element (for citing)
Address Line1	8350 BROAD STREET SUITE 900	AddressLine1Txt
City	MCLEAN	CityNm
State Abbreviation	VA	StateAbbreviationCd
ZIP	22102	ZIPCd

Field	Value	IRS element (for citing)
Return Type	990	ReturnTypeCd
Tax Period Begin	2020-01-01	TaxPeriodBeginDt

Filer Filer

Field	Value	IRS element (for citing)
EIN	131930701	EIN

Business Name BusinessName

Field	Value	IRS element (for citing)
Business Name Line1	CYSTIC FIBROSIS FOUNDATION	BusinessNameLine1Txt

Field	Value	IRS element (for citing)
Business Name Control	CYST	BusinessNameControlTxt
Phone	3019514422	PhoneNum

US Address USAddress

Field	Value	IRS element (for citing)
Address Line1	4550 MONTGOMERY AVENUE NO 1100N	AddressLine1Txt
City	BETHESDA	CityNm
State Abbreviation	MD	StateAbbreviationCd
ZIP	20814	ZIPCd

Business Officer BusinessOfficerGrp

Field	Value	IRS element (for citing)
Person	IRENA BARISIC	PersonNm
Person Title	EXECUTIVE VP & CFAO	PersonTitleTxt
Phone	3019514422	PhoneNum
Signature	2021-11-08	SignatureDt
Discuss With Paid Preparer	Yes (1)	DiscussWithPaidPreparerInd

Signing Officer SigningOfficerGrp

Person Full Name PersonFullName

Field	Value	IRS element (for citing)
Person First	IRENA	PersonFirstNm
Person Last	BARISIC	PersonLastNm

Field	Value	IRS element (for citing)
SSN	999009999	SSN

Preparer Person PreparerPersonGrp

Field	Value	IRS element (for citing)
Preparer Person	HYO JIN HEO	PreparerPersonNm
PTIN	P01908608	PTIN
Phone	7032868000	PhoneNum
Preparation	2021-11-08	PreparationDt

Additional Filer Information AdditionalFilerInformation

Trusted Customer TrustedCustomerGrp

Field	Value	IRS element (for citing)
Trusted Customer	3	TrustedCustomerCd
Authentication Assurance Level	AAL1	AuthenticationAssuranceLevelCd
Identity Assurance Level	IAL1	IdentityAssuranceLevelCd

Field	Value	IRS element (for citing)
Tax	2020	TaxYr
Build TS	2022-09-23 18:48:47Z	BuildTS

Form 990 IRS990

Field	Value	IRS element (for citing)
Principal Officer	MICHAEL P BOYLE MD	PrincipalOfficerNm

US Address USAddress

Field	Value	IRS element (for citing)
Address Line1	4550 MONTGOMERY AVENUE NO 1100N	AddressLine1Txt
City	BETHESDA	CityNm
State Abbreviation	MD	StateAbbreviationCd
ZIP	20814	ZIPCd

Field	Value	IRS element (for citing)
Gross Receipts	$2,292,513,166	GrossReceiptsAmt
Group Return For Affiliates	0	GroupReturnForAffiliatesInd
Organization501c3	Yes (X)	Organization501c3Ind
Website Address	WWW.CFF.ORG	WebsiteAddressTxt
Type Of Organization Corp	Yes (X)	TypeOfOrganizationCorpInd
Formation	1955	FormationYr
Legal Domicile State	DE	LegalDomicileStateCd
Activity Or Mission	TO CURE CYSTIC FIBROSIS (CF) AND TO PROVIDE ALL PEOPLE WITH CF THE OPPORTUNITY (CONTINUED ON SCH O) TO LEAD LONG, FULFILLING LIVES.	ActivityOrMissionDesc
Voting Members Governing Body	17	VotingMembersGoverningBodyCnt
Voting Members Independent	16	VotingMembersIndependentCnt
Total Employee	815	TotalEmployeeCnt
Total Volunteers	23000	TotalVolunteersCnt
Total Gross UBI	$598,348	TotalGrossUBIAmt
Net Unrelated Bus Txbl Incm	$174,139	NetUnrelatedBusTxblIncmAmt
PY Contributions Grants	$108,894,890	PYContributionsGrantsAmt
CY Contributions Grants	$73,199,355	CYContributionsGrantsAmt
PY Program Service Revenue	$4,147,243	PYProgramServiceRevenueAmt
CY Program Service Revenue	$1,666,083	CYProgramServiceRevenueAmt
PY Investment Income	$441,790,325	PYInvestmentIncomeAmt
CY Investment Income	$681,199,107	CYInvestmentIncomeAmt
PY Other Revenue	$50,945,967	PYOtherRevenueAmt
CY Other Revenue	$44,565,408	CYOtherRevenueAmt
PY Total Revenue	$605,778,425	PYTotalRevenueAmt
CY Total Revenue	$800,629,953	CYTotalRevenueAmt
PY Grants And Similar Paid	$155,248,642	PYGrantsAndSimilarPaidAmt
CY Grants And Similar Paid	$187,172,342	CYGrantsAndSimilarPaidAmt
PY Benefits Paid To Members	$0	PYBenefitsPaidToMembersAmt
CY Benefits Paid To Members	$0	CYBenefitsPaidToMembersAmt
PY Salaries Comp Emp Bnft Paid	$99,469,166	PYSalariesCompEmpBnftPaidAmt
CY Salaries Comp Emp Bnft Paid	$103,110,573	CYSalariesCompEmpBnftPaidAmt
PY Total Prof Fndrsng Expns	$323,686	PYTotalProfFndrsngExpnsAmt
CY Total Prof Fndrsng Expns	$179,250	CYTotalProfFndrsngExpnsAmt
CY Total Fundraising Expense	$21,579,522	CYTotalFundraisingExpenseAmt
PY Other Expenses	$93,608,605	PYOtherExpensesAmt
CY Other Expenses	$90,918,826	CYOtherExpensesAmt
PY Total Expenses	$348,650,099	PYTotalExpensesAmt
CY Total Expenses	$381,380,991	CYTotalExpensesAmt
PY Revenues Less Expenses	$257,128,326	PYRevenuesLessExpensesAmt
CY Revenues Less Expenses	$419,248,962	CYRevenuesLessExpensesAmt
Total Assets BOY	$4,476,511,082	TotalAssetsBOYAmt
Total Assets EOY	$5,369,999,661	TotalAssetsEOYAmt
Total Liabilities BOY	$239,802,250	TotalLiabilitiesBOYAmt
Total Liabilities EOY	$271,006,647	TotalLiabilitiesEOYAmt
Net Assets Or Fund Balances BOY	$4,236,708,832	NetAssetsOrFundBalancesBOYAmt
Net Assets Or Fund Balances EOY	$5,098,993,014	NetAssetsOrFundBalancesEOYAmt
Info In Schedule O Part III	Yes (X)	InfoInScheduleOPartIIIInd
Mission	THE MISSION OF THE CYSTIC FIBROSIS FOUNDATION IS TO CURE CYSTIC FIBROSIS (CF) AND TO PROVIDE ALL PEOPLE WITH CF THE OPPORTUNITY TO LEAD LONG, FULFILLING LIVES BY FUNDING RESEARCH AND DRUG DEVELOPMENT, PARTNERING WITH THE CF COMMUNITY, AND ADVANCING (CONTINUED ON SCH O) HIGH QUALITY, SPECIALIZED CARE.	MissionDesc
Significant New Program Srvc	0	SignificantNewProgramSrvcInd
Significant Change	0	SignificantChangeInd
Expense	$282,175,541	ExpenseAmt
Grant	$182,869,458	GrantAmt
Revenue	$8,579,844	RevenueAmt
Desc	MEDICAL PROGRAMS - SINCE 1955, THE CYSTIC FIBROSIS FOUNDATION HAS BEEN DEDICATED TO CURING AND CONTROLLING CYSTIC FIBROSIS (CF). THE CYSTIC FIBROSIS FOUNDATION IS THE WORLD'S LEADER IN THE SEARCH FOR A CURE FOR CYSTIC FIBROSIS, A LIFE-THREATENING GENETIC DISEASE THAT AFFECTS MORE THAN 30,000 PEOPLE IN THE UNITED STATES, AND 70,000 WORLDWIDE.THE FOUNDATION ACCOMPLISHES ITS MISSION BY FUNDING LIFE-SAVING RESEARCH TO DISCOVER AND DEVELOP EFFECTIVE THERAPIES FOR PEOPLE WITH CF. THE CF FOUNDATION HAS FUNDED HUNDREDS OF MILLIONS OF DOLLARS OF RESEARCH COSTS TO HELP DISCOVER/DEVELOP CF DRUGS AND THERAPIES. THROUGH THE FOUNDATION'S EFFORTS, THE LIFE EXPECTANCY OF PEOPLE WITH CF HAS MORE THAN DOUBLED IN THE LAST 30 YEARS, AND RESEARCH TO (CONT. ON SCH. O) FIND A CURE IS MORE PROMISING THAN EVER BEFORE. IN 2020, THE CF FOUNDATION INVESTED $258 MILLION INTO RESEARCH AND CARE.THE CF FOUNDATION HAS ATTRACTED SIGNIFICANT INDUSTRY INVOLVEMENT IN THE FIGHT AGAINST CF BY FUNDING CONTRACTED DRUG DISCOVERY AND DEVELOPMENT RESEARCH CONDUCTED BY BIOTECHNOLOGY COMPANIES. IT ALSO PROVIDES MATCHING AWARDS TO CF DRUG DEVELOPERS FOR CF RESEARCH ANDFUNDS A SPECIALIZED CF CLINICAL TRIALS NETWORK OF NEARLY 90 FOUNDATION-ACCREDITED CARE CENTERS. AS A RESULT OF THIS FUNDING, IN 2020 THE CF DRUG DEVELOPMENT PIPELINE HAD 40 THERAPIES INDEVELOPMENT IN ADDITION TO 16 FDA APPROVED TREATMENTS THAT ADDRESS COMPLICATIONS LIKE INFECTIONS AND A POTENTIAL CURE.THE TREATMENT AND CARE PROTOCOLS DEVELOPED BY THE CF FOUNDATION ARE HELPING TENS OF THOUSANDS OF PEOPLE WITH THE DISEASE LIVE LONGER, HEALTHIER LIVES.TO SUPPORT ITS MISSION, THE FOUNDATION FUNDS AND ACCREDITS A NATIONWIDE NETWORK OF MORE THAN 130 CARE CENTERS. THE CARE CENTER NETWORK PROVIDES THE BEST CARE FOR PEOPLE WITH CF AND HAS BEEN RECOGNIZED BY THE NATIONAL INSTITUTES OF HEALTH AS A MODEL OF CARE FOR A CHRONIC DISEASE. IN 2020, THE FOUNDATION PROVIDED MORE THAN $46 MILLION OF SUPPORT FOR CARE CENTERS AND CLINICIANS.THE FOUNDATION'S PATIENT REGISTRY COLLECTS INFORMATION ON THE HEALTH STATUS OF MORE THAN 31,411 PEOPLE WITH CF, PROVIDING CAREGIVERS AND RESEARCHERS CRITICAL INFORMATION TO HELP IDENTIFY NEW HEALTH TRENDS AND EFFECTIVE TREATMENTS AND IMPROVE THE QUALITY OF CF CARE. THE PATIENT REGISTRY IS AN INTERNATIONALLY RECOGNIZED MODEL FOR OTHER NONPROFIT HEALTH ORGANIZATIONS, INCLUDING CF ADVOCACY GROUPS.	Desc

Prog Srvc Accom Acty2 ProgSrvcAccomActy2Grp

Field	Value	IRS element (for citing)
Expense	$20,822,084	ExpenseAmt
Grant	$4,302,884	GrantAmt
Revenue	$0	RevenueAmt
Desc	COMMUNITY SERVICES - THE FOUNDATION PROVIDES MUCH-NEEDED SUPPORTFOR PATIENTS AND THEIR FAMILIES AS THEY MANAGE THE PHYSICAL,EMOTIONAL, AND FINANCIAL CHALLENGES OF LIVING WITH CF - FROMSUPPORTING SPECIALIZED QUALITY CF CARE, TO PROVIDING INFORMATIONAND RESOURCES TO HELP PEOPLE WITH CF BECOME EFFECTIVE PARTNERS INTHEIR CARE TO PROGRAMS TO HELP AFFECT THE ISOLATION OF LIVING WITHTHIS DISEASE. APPROXIMATELY 31,411 PEOPLE WITH CF WERE SERVED IN2020, INCLUDING APPROXIMATELY 708 INDIVIDUALS WHO WERE NEWLYDIAGNOSED.LACK OF ADEQUATE INSURANCE COVERAGE FOR CF MEDICATIONS HAS BEEN ACONSISTENT CONCERN FOR THOSE LIVING WITH THE DISEASE (CONT. ON SCH. O) AND THEIR FAMILIES. COMPASS IS A HIGHLY PERSONALIZED SERVICE TAILORED TO AN INDIVIDUAL'S CIRCUMSTANCES RELATED TO COMPLEX INSURANCE, FINANCIAL, LEGAL, AND OTHER ISSUES THAT CAN PREVENT ACCESS TOMUCH-NEEDED CF THERAPIES AND CARE.IN 2020, SKILLED CASE MANAGERS ADDRESSED MORE THAN 9,000 CASES FORPEOPLE WITH CF, THEIR FAMILIES, AND THEIR PROVIDER NETWORK,INCLUDING UNDERSTANDING AND MAXIMIZING THEIR INSURANCE COVERAGEAND BENEFITS, AS WELL AS GETTING HELP WITH OTHER NEEDS RELATED TODAILY LIFE WITH CF. CASE MANAGERS ALSO ASSISTED WITH FINDINGRESOURCES FOR ISSUES RELATED TO LIFE WITH CF THAT CAN AFFECTACCESS, INCLUDING BASIC LIVING AND FOOD EXPENSES.TODAY, MORE THAN HALF OF ALL PEOPLE WITH CF ARE AGE 18 OR OLDER.IN 2020, APPROXIMATELY 2,200 PEOPLE WITH CF AND THEIR FAMILYMEMBERS JOINED VIRTUAL EVENTS DESIGNED BY AND FOR ADULTS WITH CF, FAMILY, CLINICIANS AND RESEARCHERS INCLUDING BREATHECON, FAMILYCON AND RESEARCHCON, THAT PROVIDE AN OPPORTUNITY FOR THE CF COMMUNITY TO CONNECT, SHARE, AND LEARN FROM PEERS THROUGH OPEN AND HONEST DIALOGUE.	Desc

Prog Srvc Accom Acty3 ProgSrvcAccomActy3Grp

Field	Value	IRS element (for citing)
Expense	$24,580,646	ExpenseAmt
Grant	$0	GrantAmt
Revenue	$0	RevenueAmt
Desc	PUBLIC AND PROFESSIONAL INFORMATION AND EDUCATION - TO BROADEN ITSREACH AND TO SUPPORT ITS MISSION, THE CF FOUNDATION HAS PROGRAMSDESIGNED TO IMPROVE THE KNOWLEDGE OF PEOPLE WITH CF AND THEIRFAMILIES, MEDICAL PROFESSIONALS AND THE GENERAL PUBLIC REGARDINGTHE DISEASE. IN 2020, THERE WERE 364 PUBLICATIONS AND85 VIDEOS PRODUCED AND MADE AVAILABLE TO SUPPORT EDUCATION ANDAWARENESS. YEAR-ROUND, MEETINGS AND CONFERENCES PROVIDE UPDATESFOR CF RESEARCHERS, PHYSICIANS AND ALLIED HEALTH PROFESSIONALS AND OPPORTUNITIES FOR COLLABORATION ON FUTURE CF RESEARCH PROJECTS AND TREATMENT/CARE EFFORTS. IN 2020, OVER 3,003,311 UNIQUE VISITORS CAME TO THE CF FOUNDATION'S WEBSITE. NEW CONTENT ON CFF.ORG IN 2020 INCLUDED THE LAUNCH OF COVID-19 CARE AND ADVOCACY SECTIONS AND 103 BLOG POSTS.	Desc

Field	Value	IRS element (for citing)
Total Program Service Expenses	$327,578,271	TotalProgramServiceExpensesAmt
Described In Section501c3	Yes (1)	DescribedInSection501c3Ind
Schedule B Required	Yes (1)	ScheduleBRequiredInd
Political Campaign Acty	0	PoliticalCampaignActyInd
Lobbying Activities	Yes (1)	LobbyingActivitiesInd
Subject To Proxy Tax	0	SubjectToProxyTaxInd
Donor Advised Fund	0	DonorAdvisedFundInd
Conservation Easements	0	ConservationEasementsInd
Collections Of Art	0	CollectionsOfArtInd
Credit Counseling	0	CreditCounselingInd
Donor Rstr Or Quasi Endowments	0	DonorRstrOrQuasiEndowmentsInd
Report Land Building Equipment	Yes (1)	ReportLandBuildingEquipmentInd
Report Investments Other Sec	Yes (1)	ReportInvestmentsOtherSecInd
Report Program Related Invst	0	ReportProgramRelatedInvstInd
Report Other Assets	0	ReportOtherAssetsInd
Report Other Liabilities	0	ReportOtherLiabilitiesInd
Include FIN48 Footnote	Yes (1)	IncludeFIN48FootnoteInd
Independent Audit Fincl Stmt	Yes (1)	IndependentAuditFinclStmtInd
Consolidated Audit Fincl Stmt	0	ConsolidatedAuditFinclStmtInd
School Operating	0	SchoolOperatingInd
Foreign Office	0	ForeignOfficeInd
Foreign Activities	Yes (1)	ForeignActivitiesInd
More Than5000 K To Org	Yes (1)	MoreThan5000KToOrgInd
More Than5000 K To Individuals	0	MoreThan5000KToIndividualsInd
Professional Fundraising	Yes (1)	ProfessionalFundraisingInd
Fundraising Activities	Yes (1)	FundraisingActivitiesInd
Gaming Activities	Yes (1)	GamingActivitiesInd
Operate Hospital	0	OperateHospitalInd
Grants To Organizations	Yes (1)	GrantsToOrganizationsInd
Grants To Individuals	Yes (1)	GrantsToIndividualsInd
Schedule J Required	Yes (1)	ScheduleJRequiredInd
Tax Exempt Bonds	0	TaxExemptBondsInd
Engaged In Excess Benefit Trans	0	EngagedInExcessBenefitTransInd
PY Excess Benefit Trans	0	PYExcessBenefitTransInd
Loan Outstanding	0	LoanOutstandingInd
Grant To Related Person	0	GrantToRelatedPersonInd
Business Rln With Org Mem	0	BusinessRlnWithOrgMemInd
Business Rln With Fam Mem	0	BusinessRlnWithFamMemInd
Business Rln With35 Ctrl Ent	0	BusinessRlnWith35CtrlEntInd
Deductible Non Cash Contri	Yes (1)	DeductibleNonCashContriInd
Deductible Art Contribution	0	DeductibleArtContributionInd
Terminate Operations	0	TerminateOperationsInd
Partial Liquidation	0	PartialLiquidationInd
Disregarded Entity	0	DisregardedEntityInd
Related Entity	Yes (1)	RelatedEntityInd
Related Organization Ctrl Ent	Yes (1)	RelatedOrganizationCtrlEntInd
Transaction With Control Ent	Yes (1)	TransactionWithControlEntInd
Trnsfr Exmpt Non Chrtbl Rltd Org	0	TrnsfrExmptNonChrtblRltdOrgInd
Activities Conducted Prtshp	0	ActivitiesConductedPrtshpInd
Schedule O Required	Yes (1)	ScheduleORequiredInd
IRP Document	817	IRPDocumentCnt
IRP Document W2 G	0	IRPDocumentW2GCnt
Backup Wthld Compliance	Yes (1)	BackupWthldComplianceInd
Employee	815	EmployeeCnt
Employment Tax Returns Filed	Yes (1)	EmploymentTaxReturnsFiledInd
Unrelated Bus Incm Over Limit	Yes (1)	UnrelatedBusIncmOverLimitInd
Form990 T Filed	Yes (1)	Form990TFiledInd
Foreign Financial Account	0	ForeignFinancialAccountInd
Prohibited Tax Shelter Trans	0	ProhibitedTaxShelterTransInd
Taxable Party Notification	0	TaxablePartyNotificationInd
Nondeductible Contributions	0	NondeductibleContributionsInd
Quid Pro Quo Contributions	Yes (1)	QuidProQuoContributionsInd
Quid Pro Quo Contri Discl	Yes (1)	QuidProQuoContriDisclInd
Form8282 Property Disposed Of	Yes (1)	Form8282PropertyDisposedOfInd
Form8282 Filed	1	Form8282FiledCnt
Rcv Fnds To Pay Prsnl Bnft Cntrct	0	RcvFndsToPayPrsnlBnftCntrctInd
Pay Premiums Prsnl Bnft Cntrct	0	PayPremiumsPrsnlBnftCntrctInd
Form1098 C Filed	Yes (1)	Form1098CFiledInd
Indoor Tanning Services	0	IndoorTanningServicesInd
Subj To Tax Rmnrtn Ex Prcht Pymt	Yes (1)	SubjToTaxRmnrtnExPrchtPymtInd
Subject To Excs Tax Net Invst Inc	0	SubjectToExcsTaxNetInvstIncInd
Info In Schedule O Part VI	Yes (X)	InfoInScheduleOPartVIInd
Governing Body Voting Members	17	GoverningBodyVotingMembersCnt
Independent Voting Member	16	IndependentVotingMemberCnt
Family Or Business Rln	0	FamilyOrBusinessRlnInd
Delegation Of Mgmt Duties	0	DelegationOfMgmtDutiesInd
Change To Org Documents	0	ChangeToOrgDocumentsInd
Material Diversion Or Misuse	0	MaterialDiversionOrMisuseInd
Members Or Stockholders	0	MembersOrStockholdersInd
Election Of Board Members	0	ElectionOfBoardMembersInd
Decisions Subject To Approva	0	DecisionsSubjectToApprovaInd
Minutes Of Governing Body	Yes (1)	MinutesOfGoverningBodyInd
Minutes Of Committees	Yes (1)	MinutesOfCommitteesInd
Officer Mailing Address	0	OfficerMailingAddressInd
Local Chapters	Yes (1)	LocalChaptersInd
Policies Reference Chapters	Yes (1)	PoliciesReferenceChaptersInd
Form990 Provided To Gvrn Body	Yes (1)	Form990ProvidedToGvrnBodyInd
Conflict Of Interest Policy	Yes (1)	ConflictOfInterestPolicyInd
Annual Disclosure Covered Prsn	Yes (1)	AnnualDisclosureCoveredPrsnInd
Regular Monitoring Enfrc	Yes (1)	RegularMonitoringEnfrcInd
Whistleblower Policy	Yes (1)	WhistleblowerPolicyInd
Document Retention Policy	Yes (1)	DocumentRetentionPolicyInd
Compensation Process CEO	Yes (1)	CompensationProcessCEOInd
Compensation Process Other	Yes (1)	CompensationProcessOtherInd
Investment In Joint Venture	Yes (1)	InvestmentInJointVentureInd
Written Policy Or Procedure	Yes (1)	WrittenPolicyOrProcedureInd
States Where Copy Of Return Is Fld	AL	StatesWhereCopyOfReturnIsFldCd
States Where Copy Of Return Is Fld	AR	StatesWhereCopyOfReturnIsFldCd
States Where Copy Of Return Is Fld	CA	StatesWhereCopyOfReturnIsFldCd
States Where Copy Of Return Is Fld	FL	StatesWhereCopyOfReturnIsFldCd
States Where Copy Of Return Is Fld	GA	StatesWhereCopyOfReturnIsFldCd
States Where Copy Of Return Is Fld	HI	StatesWhereCopyOfReturnIsFldCd
States Where Copy Of Return Is Fld	IL	StatesWhereCopyOfReturnIsFldCd
States Where Copy Of Return Is Fld	IN	StatesWhereCopyOfReturnIsFldCd
States Where Copy Of Return Is Fld	KS	StatesWhereCopyOfReturnIsFldCd
States Where Copy Of Return Is Fld	KY	StatesWhereCopyOfReturnIsFldCd
States Where Copy Of Return Is Fld	MD	StatesWhereCopyOfReturnIsFldCd
States Where Copy Of Return Is Fld	MA	StatesWhereCopyOfReturnIsFldCd
States Where Copy Of Return Is Fld	MI	StatesWhereCopyOfReturnIsFldCd
States Where Copy Of Return Is Fld	MN	StatesWhereCopyOfReturnIsFldCd
States Where Copy Of Return Is Fld	MS	StatesWhereCopyOfReturnIsFldCd
States Where Copy Of Return Is Fld	NH	StatesWhereCopyOfReturnIsFldCd
States Where Copy Of Return Is Fld	NJ	StatesWhereCopyOfReturnIsFldCd
States Where Copy Of Return Is Fld	NM	StatesWhereCopyOfReturnIsFldCd
States Where Copy Of Return Is Fld	NY	StatesWhereCopyOfReturnIsFldCd
States Where Copy Of Return Is Fld	OR	StatesWhereCopyOfReturnIsFldCd
States Where Copy Of Return Is Fld	PA	StatesWhereCopyOfReturnIsFldCd
States Where Copy Of Return Is Fld	RI	StatesWhereCopyOfReturnIsFldCd
States Where Copy Of Return Is Fld	SC	StatesWhereCopyOfReturnIsFldCd
States Where Copy Of Return Is Fld	TN	StatesWhereCopyOfReturnIsFldCd
States Where Copy Of Return Is Fld	UT	StatesWhereCopyOfReturnIsFldCd
States Where Copy Of Return Is Fld	VA	StatesWhereCopyOfReturnIsFldCd
States Where Copy Of Return Is Fld	WV	StatesWhereCopyOfReturnIsFldCd
States Where Copy Of Return Is Fld	WI	StatesWhereCopyOfReturnIsFldCd
Own Website	Yes (X)	OwnWebsiteInd
Upon Request	Yes (X)	UponRequestInd

Books In Care Of Detail BooksInCareOfDetail

Business Name BusinessName

Field	Value	IRS element (for citing)
Business Name Line1	IRENA BARISIC & CHRIS GEGELYS	BusinessNameLine1Txt

Field	Value	IRS element (for citing)
Phone	3019514422	PhoneNum

US Address USAddress

Field	Value	IRS element (for citing)
Address Line1	4550 MONTGOMERY AVE SUITE 1100N	AddressLine1Txt
City	BETHESDA	CityNm
State Abbreviation	MD	StateAbbreviationCd
ZIP	20814	ZIPCd

Form990 Part VII Section A Form990PartVIISectionAGrp (29 entries)

TitleTitleTxt	Average Hours Per WeekAverageHoursPerWeekRt	Average Hours Per Week Rltd OrgAverageHoursPerWeekRltdOrgRt	Individual Trustee Or DirectorIndividualTrusteeOrDirectorInd	Reportable Comp From OrgReportableCompFromOrgAmt	Reportable Comp From Rltd OrgReportableCompFromRltdOrgAmt	Other CompensationOtherCompensationAmt	OfficerOfficerInd	Key EmployeeKeyEmployeeInd	Highest Compensated EmployeeHighestCompensatedEmployeeInd	Former Ofcr Director TrusteeFormerOfcrDirectorTrusteeInd
CATHERINE C MCLOUD
CHAIR	8.00	0.00	Yes (X)	$0	$0	$0
JOHN S WEINBERG
EXECUTIVE VICE CHAIR	5.00	0.00	Yes (X)	$0	$0	$0
MICHAEL P BOYLE MD
PRESIDENT & CEO	40.00	0.00	Yes (X)	$818,792	$0	$135,238	Yes (X)
DAVID A MOUNT
TREASURER	3.00	0.00	Yes (X)	$0	$0	$0
JESSICA H BOYD MD
TRUSTEE	3.00	0.00	Yes (X)	$0	$0	$0
KC BRYAN WHITE
TRUSTEE	3.00	0.00	Yes (X)	$0	$0	$0
CAROLE B GRIEGO MD
TRUSTEE	3.00	0.00	Yes (X)	$0	$0	$0
SUSAN L HOOK
TRUSTEE	3.00	0.00	Yes (X)	$0	$0	$0
CHAD T MOORE
TRUSTEE	3.00	0.00	Yes (X)	$0	$0	$0
ERIC R OLSON PHD
TRUSTEE	3.00	0.00	Yes (X)	$0	$0	$0
TERESA L ELDER
TRUSTEE	3.00	0.00	Yes (X)	$0	$0	$0
STEVEN SHAK MD
TRUSTEE	3.00	0.00	Yes (X)	$0	$0	$0
PAUL W WHETSELL
TRUSTEE	3.00	0.00	Yes (X)	$0	$0	$0
ROBERT H NIEHAUS
VICE CHAIR	5.00	0.00	Yes (X)	$0	$0	$0
THEODORE J TORPHY PHD
VICE CHAIR	5.00	0.00	Yes (X)	$0	$0	$0
LOUIS A DEFALCO
VICE CHAIR	5.00	0.00	Yes (X)	$0	$0	$0
RICHARD J GRAY ESQ
VICE CHAIR	5.00	0.00	Yes (X)	$0	$0	$0
VERA H TWIGG
EXECUTIVE VP & CFO	40.00	1.00		$559,940	$0	$88,055	Yes (X)
MARC S GINSKY
EXECUTIVE VP, COO & SECRET	40.00	1.00		$743,011	$0	$164,811	Yes (X)
JACK MAHLER MD
CHIEF INVESTMENT OFFICER	40.00	0.00		$1,261,832	$0	$636,888		Yes (X)
BRUCE MARSHALL MD
SENIOR VP, CLINICAL AFFAIR	40.00	0.00		$600,090	$0	$44,734		Yes (X)
WILLIAM SKACH MD
SENIOR VP, RESEARCH AFFAIR	40.00	0.00		$669,181	$0	$94,477		Yes (X)
JOHN P CLANCY MD
VP, CLINICAL RESEARCH	40.00	0.00		$477,651	$0	$61,878		Yes (X)
ERIC KOEHRSEN
MANAGING DIRECTOR, INVESTM	40.00	0.00		$627,271	$0	$177,499			Yes (X)
EARL LEE
MANAGING DIRECTOR, INVESTM	40.00	0.00		$725,703	$0	$163,699			Yes (X)
CHRIS GEGELYS
SENIOR VP, CHIEF LEGAL OFF	40.00	1.00		$488,813	$0	$79,307			Yes (X)
ALBERT FARO MD
VP, CLINICAL AFFAIRS	40.00	0.00		$418,378	$0	$61,864			Yes (X)
ANTHONY DURMOWICZ MD
VP, CLINICAL DEVELOPMENT	40.00	0.00		$504,174	$0	$28,007			Yes (X)
PRESTON CAMPBELL MD
FORMER CEO & STRATEGIC ADVISOR	40.00	0.00		$728,967	$0	$114,798				Yes (X)

Field	Value	IRS element (for citing)
Total Reportable Comp From Org	$8,623,803	TotalReportableCompFromOrgAmt
Tot Reportable Comp Rltd Org	$0	TotReportableCompRltdOrgAmt
Total Other Compensation	$1,851,255	TotalOtherCompensationAmt
Indiv Rcvd Greater Than100 K	281	IndivRcvdGreaterThan100KCnt
Former Ofcr Employees Listed	Yes (1)	FormerOfcrEmployeesListedInd
Total Comp Greater Than150 K	Yes (1)	TotalCompGreaterThan150KInd
Compensation From Other Srcs	0	CompensationFromOtherSrcsInd

Contractor Compensation ContractorCompensationGrp (5 entries)

Address Line1ContractorAddress/USAddress/AddressLine1Txt	CityContractorAddress/USAddress/CityNm	State AbbreviationContractorAddress/USAddress/StateAbbreviationCd	ZIPContractorAddress/USAddress/ZIPCd	ServicesServicesDesc	CompensationCompensationAmt	Address Line1ContractorAddress/ForeignAddress/AddressLine1Txt	CityContractorAddress/ForeignAddress/CityNm	CountryContractorAddress/ForeignAddress/CountryCd	Foreign PostalContractorAddress/ForeignAddress/ForeignPostalCd
VERTEX PHARMACEUTICALS INC
50 NORTHERN AVE	BOSTON	MA	02210	CONTRACTED RESEARCH	$10,000,000
ARCTURUS THERAPEUTICS INC
10628 SCIENCE CENTER DRIVE STE 200	SAN DIEGO	CA	92121	CONTRACTED RESEARCH	$8,000,000
CORBUS PHARMACEUTICALS INC
100 RIVER RIDGE DRIVE	NORWOOD	MA	02062	CONTRACTED RESEARCH	$5,000,000
MTS HEALTH PARTNERS LP
623 FIFTH AVENUE 14TH FLOOR	NEW YORK	NY	10022	FINANCIAL ADVISORY	$2,841,558
LAURENT PHARMACEUTICALS INC
				CONTRACTED RESEARCH	$2,700,000	355 PEEL ST STE 503	MONTREAL QUEBEC	CA	H3C 2G9

Field	Value	IRS element (for citing)
Cntrct Rcvd Greater Than100 K	104	CntrctRcvdGreaterThan100KCnt
Federated Campaigns	$427,067	FederatedCampaignsAmt
Fundraising	$44,222,819	FundraisingAmt
All Other Contributions	$28,549,469	AllOtherContributionsAmt
Noncash Contributions	$3,454,283	NoncashContributionsAmt
Total Contributions	$73,199,355	TotalContributionsAmt

Program Service Revenue ProgramServiceRevenueGrp (3 entries)

DescDesc	BusinessBusinessCd	Total Revenue ColumnTotalRevenueColumnAmt	Related Or Exempt Func IncomeRelatedOrExemptFuncIncomeAmt
SCIENTIFIC CONFERENCE	611600	$1,400,457	$1,400,457
DATA SAFETY MONITORING BOARD REVE	541900	$137,875	$137,875
CLINICAL STUDY	541900	$127,751	$127,751

Field	Value	IRS element (for citing)
Total Program Service Revenue	$1,666,083	TotalProgramServiceRevenueAmt

Investment Income InvestmentIncomeGrp

Field	Value	IRS element (for citing)
Total Revenue Column	$62,999,569	TotalRevenueColumnAmt
Unrelated Business Revenue	$598,348	UnrelatedBusinessRevenueAmt
Exclusion	$62,401,221	ExclusionAmt

Royalties Revenue RoyaltiesRevenueGrp

Field	Value	IRS element (for citing)
Total Revenue Column	$32,043,319	TotalRevenueColumnAmt
Related Or Exempt Func Income	$23,770	RelatedOrExemptFuncIncomeAmt
Exclusion	$32,019,549	ExclusionAmt

Gross Amount Sales Assets GrossAmountSalesAssetsGrp

Field	Value	IRS element (for citing)
Securities	$1,531,328,335	SecuritiesAmt
Other	$575,000,000	OtherAmt

Less Cost Oth Basis Sales Expnss LessCostOthBasisSalesExpnssGrp

Field	Value	IRS element (for citing)
Securities	$1,484,590,449	SecuritiesAmt
Other	$3,538,348	OtherAmt

Gain Or Loss GainOrLossGrp

Field	Value	IRS element (for citing)
Securities	$46,737,886	SecuritiesAmt
Other	$571,461,652	OtherAmt

Net Gain Or Loss Investments NetGainOrLossInvestmentsGrp

Field	Value	IRS element (for citing)
Total Revenue Column	$618,199,538	TotalRevenueColumnAmt
Exclusion	$618,199,538	ExclusionAmt

Field	Value	IRS element (for citing)
Fundraising Gross Income	$3,754,416	FundraisingGrossIncomeAmt
Contri Rpt Fundraising Event	$44,222,819	ContriRptFundraisingEventAmt
Fundraising Direct Expenses	$3,754,416	FundraisingDirectExpensesAmt

Net Incm From Fundraising Evt NetIncmFromFundraisingEvtGrp

Field	Value	IRS element (for citing)
Total Revenue Column	$0	TotalRevenueColumnAmt

Field	Value	IRS element (for citing)
Gaming Gross Income	$89,000	GamingGrossIncomeAmt
Gaming Direct Expenses	$0	GamingDirectExpensesAmt

Net Income From Gaming NetIncomeFromGamingGrp

Field	Value	IRS element (for citing)
Total Revenue Column	$89,000	TotalRevenueColumnAmt
Exclusion	$89,000	ExclusionAmt

Other Revenue Misc OtherRevenueMiscGrp (3 entries)

DescDesc	BusinessBusinessCd	Total Revenue ColumnTotalRevenueColumnAmt	Related Or Exempt Func IncomeRelatedOrExemptFuncIncomeAmt	ExclusionExclusionAmt
REFUNDED OR CANCELLED GRANTS	900099	$6,889,991	$6,889,991
REIMBURSEMENT PROCEEDS	900099	$2,889,947		$2,889,947
OTHER MISC. REVENUE	900099	$2,653,151		$2,653,151

Field	Value	IRS element (for citing)
Other Revenue Total	$12,433,089	OtherRevenueTotalAmt

Total Revenue TotalRevenueGrp

Field	Value	IRS element (for citing)
Total Revenue Column	$800,629,953	TotalRevenueColumnAmt
Related Or Exempt Func Income	$8,579,844	RelatedOrExemptFuncIncomeAmt
Unrelated Business Revenue	$598,348	UnrelatedBusinessRevenueAmt
Exclusion	$718,252,406	ExclusionAmt

Grants To Domestic Orgs GrantsToDomesticOrgsGrp

Field	Value	IRS element (for citing)
Total	$172,597,188	TotalAmt
Program Services	$172,597,188	ProgramServicesAmt

Grants To Domestic Individuals GrantsToDomesticIndividualsGrp

Field	Value	IRS element (for citing)
Total	$736,718	TotalAmt
Program Services	$736,718	ProgramServicesAmt

Foreign Grants ForeignGrantsGrp

Field	Value	IRS element (for citing)
Total	$13,838,436	TotalAmt
Program Services	$13,838,436	ProgramServicesAmt

Comp Current Ofcr Directors CompCurrentOfcrDirectorsGrp

Field	Value	IRS element (for citing)
Total	$6,356,579	TotalAmt
Program Services	$3,828,696	ProgramServicesAmt
Management And General	$1,474,667	ManagementAndGeneralAmt
Fundraising	$1,053,216	FundraisingAmt

Comp Disqual Persons CompDisqualPersonsGrp

Field	Value	IRS element (for citing)
Total	$1,005,533	TotalAmt
Program Services	$605,653	ProgramServicesAmt
Management And General	$233,274	ManagementAndGeneralAmt
Fundraising	$166,606	FundraisingAmt

Other Salaries And Wages OtherSalariesAndWagesGrp

Field	Value	IRS element (for citing)
Total	$75,005,669	TotalAmt
Program Services	$45,177,433	ProgramServicesAmt
Management And General	$17,400,617	ManagementAndGeneralAmt
Fundraising	$12,427,619	FundraisingAmt

Pension Plan Contributions PensionPlanContributionsGrp

Field	Value	IRS element (for citing)
Total	$2,728,996	TotalAmt
Program Services	$1,643,729	ProgramServicesAmt
Management And General	$633,102	ManagementAndGeneralAmt
Fundraising	$452,165	FundraisingAmt

Other Employee Benefits OtherEmployeeBenefitsGrp

Field	Value	IRS element (for citing)
Total	$12,515,296	TotalAmt
Program Services	$7,538,216	ProgramServicesAmt
Management And General	$2,903,432	ManagementAndGeneralAmt
Fundraising	$2,073,648	FundraisingAmt

Payroll Taxes PayrollTaxesGrp

Field	Value	IRS element (for citing)
Total	$5,498,500	TotalAmt
Program Services	$3,343,456	ProgramServicesAmt
Management And General	$1,159,860	ManagementAndGeneralAmt
Fundraising	$995,184	FundraisingAmt

Fees For Services Legal FeesForServicesLegalGrp

Field	Value	IRS element (for citing)
Total	$2,744,404	TotalAmt
Program Services	$2,637,171	ProgramServicesAmt
Management And General	$106,991	ManagementAndGeneralAmt
Fundraising	$242	FundraisingAmt

Fees For Services Accounting FeesForServicesAccountingGrp

Field	Value	IRS element (for citing)
Total	$388,050	TotalAmt
Management And General	$388,050	ManagementAndGeneralAmt

Fees For Services Lobbying FeesForServicesLobbyingGrp

Field	Value	IRS element (for citing)
Total	$720,819	TotalAmt
Program Services	$720,819	ProgramServicesAmt

Fees For Services Prof Fundraising FeesForServicesProfFundraising

Field	Value	IRS element (for citing)
Total	$179,250	TotalAmt
Fundraising	$179,250	FundraisingAmt

Fees For Srvc Invst Mgmnt Fees FeesForSrvcInvstMgmntFeesGrp

Field	Value	IRS element (for citing)
Total	$2,292,996	TotalAmt
Management And General	$2,292,996	ManagementAndGeneralAmt

Fees For Services Other FeesForServicesOtherGrp

Field	Value	IRS element (for citing)
Total	$4,579,576	TotalAmt
Program Services	$3,852,589	ProgramServicesAmt
Management And General	$682,800	ManagementAndGeneralAmt
Fundraising	$44,187	FundraisingAmt

Advertising AdvertisingGrp

Field	Value	IRS element (for citing)
Total	$10,785	TotalAmt
Program Services	$4,853	ProgramServicesAmt
Management And General	$1,834	ManagementAndGeneralAmt
Fundraising	$4,098	FundraisingAmt

Office Expenses OfficeExpensesGrp

Field	Value	IRS element (for citing)
Total	$3,706,117	TotalAmt
Program Services	$2,507,656	ProgramServicesAmt
Management And General	$338,789	ManagementAndGeneralAmt
Fundraising	$859,672	FundraisingAmt

Information Technology InformationTechnologyGrp

Field	Value	IRS element (for citing)
Total	$12,161,217	TotalAmt
Program Services	$8,928,364	ProgramServicesAmt
Management And General	$2,040,812	ManagementAndGeneralAmt
Fundraising	$1,192,041	FundraisingAmt

Occupancy OccupancyGrp

Field	Value	IRS element (for citing)
Total	$7,305,771	TotalAmt
Program Services	$4,497,325	ProgramServicesAmt
Management And General	$1,380,318	ManagementAndGeneralAmt
Fundraising	$1,428,128	FundraisingAmt

Travel TravelGrp

Field	Value	IRS element (for citing)
Total	$566,597	TotalAmt
Program Services	$383,487	ProgramServicesAmt
Management And General	$76,690	ManagementAndGeneralAmt
Fundraising	$106,420	FundraisingAmt

Conferences Meetings ConferencesMeetingsGrp

Field	Value	IRS element (for citing)
Total	$1,220,720	TotalAmt
Program Services	$1,005,902	ProgramServicesAmt
Management And General	$81,528	ManagementAndGeneralAmt
Fundraising	$133,290	FundraisingAmt

Depreciation Depletion DepreciationDepletionGrp

Field	Value	IRS element (for citing)
Total	$4,111,984	TotalAmt
Program Services	$3,374,968	ProgramServicesAmt
Management And General	$371,605	ManagementAndGeneralAmt
Fundraising	$365,411	FundraisingAmt

Insurance InsuranceGrp

Field	Value	IRS element (for citing)
Total	$759,433	TotalAmt
Program Services	$519,589	ProgramServicesAmt
Management And General	$213,740	ManagementAndGeneralAmt
Fundraising	$26,104	FundraisingAmt

Other Expenses OtherExpensesGrp (4 entries)

DescDesc	TotalTotalAmt	Program ServicesProgramServicesAmt	Management And GeneralManagementAndGeneralAmt	FundraisingFundraisingAmt
CONTRACTED RESEARCH	$46,947,082	$46,947,082
SPIROMETERS	$1,643,119	$1,643,119
MEDICAL QUALITY IMPROVE	$499,976	$499,976
TRAINING	$439,677	$326,827	$98,142	$14,708

All Other Expenses AllOtherExpensesGrp

Field	Value	IRS element (for citing)
Total	$820,503	TotalAmt
Program Services	$419,019	ProgramServicesAmt
Management And General	$343,951	ManagementAndGeneralAmt
Fundraising	$57,533	FundraisingAmt

Total Functional Expenses TotalFunctionalExpensesGrp

Field	Value	IRS element (for citing)
Total	$381,380,991	TotalAmt
Program Services	$327,578,271	ProgramServicesAmt
Management And General	$32,223,198	ManagementAndGeneralAmt
Fundraising	$21,579,522	FundraisingAmt

Field	Value	IRS element (for citing)
Joint Costs	Yes (X)	JointCostsInd

Total Joint Costs TotalJointCostsGrp

Field	Value	IRS element (for citing)
Total	$1,241,319	TotalAmt
Program Services	$358,809	ProgramServicesAmt
Management And General	$0	ManagementAndGeneralAmt
Fundraising	$882,510	FundraisingAmt

Cash Non Interest Bearing CashNonInterestBearingGrp

Field	Value	IRS element (for citing)
BOY	$81,770	BOYAmt
EOY	$35,549	EOYAmt

Savings And Temp Cash Invst SavingsAndTempCashInvstGrp

Field	Value	IRS element (for citing)
BOY	$69,282,429	BOYAmt
EOY	$69,522,190	EOYAmt

Pledges And Grants Receivable PledgesAndGrantsReceivableGrp

Field	Value	IRS element (for citing)
BOY	$5,560,596	BOYAmt
EOY	$4,506,399	EOYAmt

Accounts Receivable AccountsReceivableGrp

Field	Value	IRS element (for citing)
BOY	$23,594,344	BOYAmt
EOY	$39,442,408	EOYAmt

Inventories For Sale Or Use InventoriesForSaleOrUseGrp

Field	Value	IRS element (for citing)
BOY	$344,669	BOYAmt
EOY	$303,834	EOYAmt

Prepaid Expenses Defrd Charges PrepaidExpensesDefrdChargesGrp

Field	Value	IRS element (for citing)
BOY	$5,846,146	BOYAmt
EOY	$5,361,744	EOYAmt

Field	Value	IRS element (for citing)
Land Bldg Equip Cost Or Other Bss	$23,369,013	LandBldgEquipCostOrOtherBssAmt
Land Bldg Equip Accum Deprec	$15,520,301	LandBldgEquipAccumDeprecAmt

Land Bldg Equip Basis Net LandBldgEquipBasisNetGrp

Field	Value	IRS element (for citing)
BOY	$11,114,652	BOYAmt
EOY	$7,848,712	EOYAmt

Investments Pub Traded Sec InvestmentsPubTradedSecGrp

Field	Value	IRS element (for citing)
BOY	$3,325,008,913	BOYAmt
EOY	$3,627,909,660	EOYAmt

Investments Other Securities InvestmentsOtherSecuritiesGrp

Field	Value	IRS element (for citing)
BOY	$1,005,305,643	BOYAmt
EOY	$1,573,550,755	EOYAmt

Investments Program Related InvestmentsProgramRelatedGrp

Field	Value	IRS element (for citing)
BOY	$1,000,000	BOYAmt
EOY	$30,228,638	EOYAmt

Other Assets Total OtherAssetsTotalGrp

Field	Value	IRS element (for citing)
BOY	$29,371,920	BOYAmt
EOY	$11,289,772	EOYAmt

Total Assets TotalAssetsGrp

Field	Value	IRS element (for citing)
BOY	$4,476,511,082	BOYAmt
EOY	$5,369,999,661	EOYAmt

Accounts Payable Accr Expnss AccountsPayableAccrExpnssGrp

Field	Value	IRS element (for citing)
BOY	$38,067,909	BOYAmt
EOY	$31,173,557	EOYAmt

Grants Payable GrantsPayableGrp

Field	Value	IRS element (for citing)
BOY	$196,869,140	BOYAmt
EOY	$236,465,610	EOYAmt

Deferred Revenue DeferredRevenueGrp

Field	Value	IRS element (for citing)
BOY	$4,865,201	BOYAmt
EOY	$3,367,480	EOYAmt

Total Liabilities TotalLiabilitiesGrp

Field	Value	IRS element (for citing)
BOY	$239,802,250	BOYAmt
EOY	$271,006,647	EOYAmt

Field	Value	IRS element (for citing)
Organization Follows FASB117	Yes (X)	OrganizationFollowsFASB117Ind

No Donor Restriction Net Assets NoDonorRestrictionNetAssetsGrp

Field	Value	IRS element (for citing)
BOY	$4,226,469,269	BOYAmt
EOY	$5,089,568,156	EOYAmt

Donor Restriction Net Assets DonorRestrictionNetAssetsGrp

Field	Value	IRS element (for citing)
BOY	$10,239,563	BOYAmt
EOY	$9,424,858	EOYAmt

Total Net Assets Fund Balance TotalNetAssetsFundBalanceGrp

Field	Value	IRS element (for citing)
BOY	$4,236,708,832	BOYAmt
EOY	$5,098,993,014	EOYAmt

Tot Liab Net Assets Fund Balance TotLiabNetAssetsFundBalanceGrp

Field	Value	IRS element (for citing)
BOY	$4,476,511,082	BOYAmt
EOY	$5,369,999,661	EOYAmt

Field	Value	IRS element (for citing)
Reconcilation Revenue Expnss	$419,248,962	ReconcilationRevenueExpnssAmt
Net Unrlzd Gains Losses Invst	$443,035,220	NetUnrlzdGainsLossesInvstAmt
Other Changes In Net Assets	$0	OtherChangesInNetAssetsAmt
Method Of Accounting Accrual	Yes (X)	MethodOfAccountingAccrualInd
Accountant Compile Or Review	0	AccountantCompileOrReviewInd
FS Audited	Yes (1)	FSAuditedInd

FS Audited Basis FSAuditedBasisGrp

Field	Value	IRS element (for citing)
Separate Basis Fincl Stmt	Yes (X)	SeparateBasisFinclStmtInd

Field	Value	IRS element (for citing)
Audit Committee	Yes (1)	AuditCommitteeInd
Federal Grant Audit Required	0	FederalGrantAuditRequiredInd

Schedule A IRS990ScheduleA

Field	Value	IRS element (for citing)
Public Organization170	Yes (X)	PublicOrganization170Ind

Gifts Grants Contri Rcvd170 GiftsGrantsContriRcvd170Grp

Field	Value	IRS element (for citing)
Current Tax Year Minus4 Years	$117,148,751	CurrentTaxYearMinus4YearsAmt
Current Tax Year Minus3 Years	$110,650,273	CurrentTaxYearMinus3YearsAmt
Current Tax Year Minus2 Years	$108,058,591	CurrentTaxYearMinus2YearsAmt
Current Tax Year Minus1 Year	$108,894,890	CurrentTaxYearMinus1YearAmt
Current Tax Year	$73,199,355	CurrentTaxYearAmt
Total	$517,951,860	TotalAmt

Total Calendar Year170 TotalCalendarYear170Grp

Field	Value	IRS element (for citing)
Current Tax Year Minus4 Years	$117,148,751	CurrentTaxYearMinus4YearsAmt
Current Tax Year Minus3 Years	$110,650,273	CurrentTaxYearMinus3YearsAmt
Current Tax Year Minus2 Years	$108,058,591	CurrentTaxYearMinus2YearsAmt
Current Tax Year Minus1 Year	$108,894,890	CurrentTaxYearMinus1YearAmt
Current Tax Year	$73,199,355	CurrentTaxYearAmt
Total	$517,951,860	TotalAmt

Field	Value	IRS element (for citing)
Public Support Total170	$517,951,860	PublicSupportTotal170Amt

Gross Investment Income170 GrossInvestmentIncome170Grp

Field	Value	IRS element (for citing)
Current Tax Year Minus4 Years	$64,638,761	CurrentTaxYearMinus4YearsAmt
Current Tax Year Minus3 Years	$67,686,719	CurrentTaxYearMinus3YearsAmt
Current Tax Year Minus2 Years	$66,681,682	CurrentTaxYearMinus2YearsAmt
Current Tax Year Minus1 Year	$95,519,254	CurrentTaxYearMinus1YearAmt
Current Tax Year	$95,019,118	CurrentTaxYearAmt
Total	$389,545,534	TotalAmt

Other Income170 OtherIncome170Grp

Field	Value	IRS element (for citing)
Current Tax Year Minus4 Years	$14,060,761	CurrentTaxYearMinus4YearsAmt
Current Tax Year Minus3 Years	$15,116,982	CurrentTaxYearMinus3YearsAmt
Current Tax Year Minus2 Years	$15,369,965	CurrentTaxYearMinus2YearsAmt
Current Tax Year Minus1 Year	$15,976,419	CurrentTaxYearMinus1YearAmt
Current Tax Year	$9,386,514	CurrentTaxYearAmt
Total	$69,910,641	TotalAmt

Field	Value	IRS element (for citing)
Total Support	$977,408,035	TotalSupportAmt
Gross Receipts Rltd Activities	$58,198,885	GrossReceiptsRltdActivitiesAmt
Public Support CY170	0.52990	PublicSupportCY170Pct
Public Support PY170	0.55950	PublicSupportPY170Pct
Thirty Thr Pct Suprt Tests CY170	Yes (X)	ThirtyThrPctSuprtTestsCY170Ind

Form990 Schedule A Part VI Form990ScheduleAPartVIGrp (2 entries)

Form And Line ReferenceFormAndLineReferenceDesc

ExplanationExplanationTxt

SCHEDULE A, PART II, LINE 10, EXPLANATION OF OTHER INCOME:

MAILING LIST RENTAL - 2016 AMOUNT: $ 125,565. 2017 AMOUNT: $ 0. 2018 AMOUNT: $ 0. 2019 AMOUNT: $ 0. 2020 AMOUNT: $ 0. REIMBURSEMENT PROCEEDS - 2016 AMOUNT: $ 0. 2017 AMOUNT: $ 412,777. 2018 AMOUNT: $ 467,265. 2019 AMOUNT: $ 29,624. 2020 AMOUNT: $ 2,889,947. OTHER MISC REVENUE - 2016 AMOUNT: $ 0. 2017 AMOUNT: $ 0. 2018 AMOUNT: $ 0. 2019 AMOUNT: $ 0. 2020 AMOUNT: $ 2,653,151. GROSS FUNDRAISING REVENUE - 2016 AMOUNT: $ 13,706,145. 2017 AMOUNT: $ 14,552,162. 2018 AMOUNT: $ 14,774,450. 2019 AMOUNT: $ 15,811,603. 2020 AMOUNT: $ 3,754,416. GROSS GAMING REVENUE - 2016 AMOUNT: $ 229,051. 2017 AMOUNT: $ 152,043. 2018 AMOUNT: $ 128,250. 2019 AMOUNT: $ 135,192. 2020 AMOUNT: $ 89,000.

SCHEDULE A, PART II, LINE 12

THE FOUNDATION FOSTERS COLLABORATION WITHIN THE SCIENTIFIC COMMUNITY BY HOSTING A LARGE SCIENTIFIC CONFERENCE PROVIDING A FORUM FOR RESEARCHERS AND CAREGIVERS TO SHARE THEIR PRACTICES AND INVESTIGATION RESULTS WITH ONE ANOTHER. FEES FOR ATTENDANCE AT THIS CONFERENCE ARE REPORTED ON LINE 12. THE FOUNDATION MANAGES A POST-MARKETING SAFETY STUDY MANDATED BY THE FOOD & DRUG ADMINISTRATION (FDA) IN ORDER TO ENSURE THE SAFETY OF PEOPLE WITH CF. FEES FOR THIS SERVICE ARE REPORTED ON LINE 12. REIMBURSEMENTS FOR DATA SAFETY MONITORING BOARD AND PROTOCOL REVIEW COMMITTEE RELATED COSTS ARE REPORTED ON LINE 12.

Schedule B IRS990ScheduleB

Contributor Information ContributorInformationGrp

Field	Value	IRS element (for citing)
Contributor	RESTRICTED	ContributorNum

Contributor Business Name ContributorBusinessName

Field	Value	IRS element (for citing)
Business Name Line1	RESTRICTED	BusinessNameLine1

Contributor US Address ContributorUSAddress

Field	Value	IRS element (for citing)
Address Line1	RESTRICTED	AddressLine1
Address Line2	RESTRICTED	AddressLine2
City	RESTRICTED	City
State	RESTRICTED	State
ZIP Code	RESTRICTED	ZIPCode

Field	Value	IRS element (for citing)
Total Contributions	RESTRICTED	TotalContributionsAmt

Schedule C IRS990ScheduleC

Field	Value	IRS element (for citing)
Volunteers	Yes (1)	VolunteersInd
Paid Staff Or Management	Yes (1)	PaidStaffOrManagementInd
Media Advertisements	0	MediaAdvertisementsInd
Mailings Members	Yes (1)	MailingsMembersInd
Mailings Members	$55,778	MailingsMembersAmt
Publications Or Broadcast	Yes (1)	PublicationsOrBroadcastInd
Publications Or Broadcast	$6,472	PublicationsOrBroadcastAmt
Grants Other Organizations	0	GrantsOtherOrganizationsInd
Direct Contact Legislators	Yes (1)	DirectContactLegislatorsInd
Direct Contact Legislators	$1,319,463	DirectContactLegislatorsAmt
Rallies Demonstrations	0	RalliesDemonstrationsInd
Other Activities	Yes (1)	OtherActivitiesInd
Other Activities	$13,107	OtherActivitiesAmt
Total Lobbying Expenditures	$1,394,820	TotalLobbyingExpendituresAmt
Not Described Section501c3	0	NotDescribedSection501c3Ind

Supplemental Information Detail SupplementalInformationDetail

Field	Value	IRS element (for citing)
Form And Line Reference	PART II-B, LINE 1:	FormAndLineReferenceDesc
Explanation	LOBBYING ACTIVITY THE CYSTIC FIBROSIS FOUNDATION IS FOCUSED ON CURING CYSTIC FIBROSIS AND ENSURING ALL PEOPLE WITH THE DISEASE HAVE THE OPPORTUNITY TO LEAD LONG, FULFILLING LIVES. IN ADDITION TO FUNDING CYSTIC FIBROSIS RESEARCH, THE FOUNDATION ADVOCATES FOR POLICIES THAT ADVANCE BASIC, TRANSLATIONAL AND CLINICAL RESEARCH AND DEVELOPMENT OF TREATMENTS FOR RARE DISEASES LIKE CYSTIC FIBROSIS AND STRATEGIES THAT GIVE ALL PEOPLE WITH THE DISEASE ACCESS TO HIGH QUALITY, SPECIALIZED CYSTIC FIBROSIS CARE. ADVOCACY ACTIVITIES INCLUDE EMAIL COMMUNICATION ENCOURAGING GRASSROOTS ADVOCATES TO CONTACT THEIR LEGISLATORS, ANNUAL EVENTS WHERE VOLUNTEERS MEET WITH MEMBERS OF CONGRESS TO DISCUSS ISSUES CRITICAL TO THE CYSTIC FIBROSIS COMMUNITY, DEVELOPING WEB POSTS AND PUBLICATIONS TO REGULARLY UPDATE MEMBERS OF THE CYSTIC FIBROSIS COMMUNITY OF RELEVANT LEGISLATION AND ENCOURAGE INDIVIDUALS TO TAKE ACTION, AND COMMUNICATING REGULARLY WITH FEDERAL LEGISLATORS AND AGENCIES.	ExplanationTxt

Schedule D IRS990ScheduleD

Leasehold Improvements LeaseholdImprovementsGrp

Field	Value	IRS element (for citing)
Other Cost Or Other Basis	$5,710,526	OtherCostOrOtherBasisAmt
Depreciation	$1,855,583	DepreciationAmt
Book Value	$3,854,943	BookValueAmt

Equipment EquipmentGrp

Field	Value	IRS element (for citing)
Other Cost Or Other Basis	$17,658,487	OtherCostOrOtherBasisAmt
Depreciation	$13,664,718	DepreciationAmt
Book Value	$3,993,769	BookValueAmt

Field	Value	IRS element (for citing)
Total Book Value Land Buildings	$7,848,712	TotalBookValueLandBuildingsAmt

Other Securities OtherSecuritiesGrp (4 entries)

DescDesc	Book ValueBookValueAmt	Method ValuationMethodValuationCd
GLOBAL PUBLIC EQUITY	$736,320,177	F
PVT EQTY & OTHR ILLIQUID	$553,673,217	F
ABSOLUTE RETURN	$279,077,167	F
PERPETUAL TRUSTS	$4,480,194	F

Field	Value	IRS element (for citing)
Total Book Value Securities	$1,573,550,755	TotalBookValueSecuritiesAmt
Footnote Text	Yes (X)	FootnoteTextInd
Total Rev Etc Audited Fincl Stmt	$1,235,245,873	TotalRevEtcAuditedFinclStmtAmt
Net Unrealized Gains Invst	$443,035,220	NetUnrealizedGainsInvstAmt
Revenue Not Reported	$443,035,220	RevenueNotReportedAmt
Revenue Subtotal	$792,210,653	RevenueSubtotalAmt
Investment Expenses Not Incld	$8,419,300	InvestmentExpensesNotIncldAmt
Revenue Not Reported Fincl Stmt	$8,419,300	RevenueNotReportedFinclStmtAmt
Total Revenue Per Form990	$800,629,953	TotalRevenuePerForm990Amt
Tot Expns Etc Audited Fincl Stmt	$372,961,691	TotExpnsEtcAuditedFinclStmtAmt
Expenses Not Reported	$0	ExpensesNotReportedAmt
Expenses Subtotal	$372,961,691	ExpensesSubtotalAmt
Investment Expenses Not Incld2	$8,419,300	InvestmentExpensesNotIncld2Amt
Expenses Not Rpt Fincl Stmt	$8,419,300	ExpensesNotRptFinclStmtAmt
Total Expenses Per Form990	$381,380,991	TotalExpensesPerForm990Amt

Supplemental Information Detail SupplementalInformationDetail

Field	Value	IRS element (for citing)
Form And Line Reference	PART X, LINE 2:	FormAndLineReferenceDesc
Explanation	SCHEDULE D, PART X FIN 48 FOOTNOTE THE FOUNDATION IS A NOT-FOR-PROFIT VOLUNTARY HEALTH ORGANIZATION EXEMPT FROM FEDERAL INCOME TAXES UNDER 501(C)(3) OF THE INTERNAL REVENUE CODE (THE CODE) AND FROM STATE TAXES AND HAS BEEN CLASSIFIED AS AN ORGANIZATION THAT IS NOT A PRIVATE FOUNDATION UNDER SECTION 509(A) OF THE CODE. THE FOUNDATION DOES NOT HAVE ANY UNRELATED BUSINESS INCOME TAX LIABILITY AS OF DECEMBER 31, 2020 AND 2019. CONTRIBUTIONS TO THE FOUNDATION QUALIFY FOR THE CHARITABLE CONTRIBUTIONS DEDUCTION TO THE EXTENT PROVIDED BY SECTION 170 OF THE CODE. THE FOUNDATION IS NOT AWARE OF ANY TAX POSITION TAKEN THAT REQUIRES DISCLOSURE BASED ON CURRENT FACTS AND CIRCUMSTANCES. THE FOUNDATION ANNUALLY REVIEWS ITS TAX POSITIONS AND HAS DETERMINED THAT THERE ARE NO MATERIAL UNCERTAIN TAX POSITIONS THAT REQUIRE RECOGNITION OR DISCLOSURE IN THE FINANCIAL STATEMENTS.	ExplanationTxt

Schedule F IRS990ScheduleF

Field	Value	IRS element (for citing)
Grant Records Maintained	Yes (1)	GrantRecordsMaintainedInd

Account Activities Outside US AccountActivitiesOutsideUSGrp (13 entries)

RegionRegionTxt	Type Of Activities ConductedTypeOfActivitiesConductedTxt	Specific Services ProvidedSpecificServicesProvidedTxt	Region Total ExpendituresRegionTotalExpendituresAmt
EUROPE	GRANTMAKING	NONE	$7,037,347
EAST ASIA AND THE PACIFIC	GRANTMAKING	NONE	$3,736,260
NORTH AMERICA	GRANTMAKING	NONE	$2,808,976
MIDDLE EAST AND NORTH AFRICA	GRANTMAKING	NONE	$134,109
SUB-SAHARAN AFRICA	GRANTMAKING	NONE	$121,744
CENTRAL AMERICA & CARIBBEAN	INVESTMENTS		$1,126,602,000
EAST ASIA & PACIFIC	INVESTMENTS		$235,221,000
EUROPE	INVESTMENTS		$226,768,000
NORTH AMERICA	INVESTMENTS		$59,338,000
MIDDLE EAST AND NORTH AFRICA	INVESTMENTS		$1,552,000
NORTH AMERICA	PROGRAM SERVICES	CONTRACTED RESEARCH	$2,949,236
EUROPE	PROGRAM SERVICES	CONTRACTED RESEARCH	$1,274,275
EAST ASIA AND THE PACIFIC	PROGRAM SERVICES	CONTRACTED RESEARCH	$100,000

Field	Value	IRS element (for citing)
Subtotal Offices	0	SubtotalOfficesCnt
Subtotal Employees	0	SubtotalEmployeesCnt
Continuation Total Office	0	ContinuationTotalOfficeCnt
Continuation Total Employee	0	ContinuationTotalEmployeeCnt
Total Office	0	TotalOfficeCnt
Total Employee	0	TotalEmployeeCnt
Subtotal Spent	$1,602,429,436	SubtotalSpentAmt
Continuation Spent	$65,213,511	ContinuationSpentAmt
Total Spent	$1,667,642,947	TotalSpentAmt

Grants To Org Outside US GrantsToOrgOutsideUSGrp (47 entries)

RegionRegionTxt	Purpose Of GrantPurposeOfGrantTxt	Cash GrantCashGrantAmt	Manner Of Cash DisbursementMannerOfCashDisbursementTxt	Non Cash AssistanceNonCashAssistanceAmt
EUROPE (INCLUDING ICELAND & GREENLAND) - ALBANIA, ANDORRA, AUSTRIA, BELGIUM	RESEARCH	$130,151	WIRE	$0
NORTH AMERICA - CANADA AND MEXICO, BUT NOT THE UNITED STATES	CLINICAL RESEARCH STUDY	$635,853	WIRE	$0
EUROPE (INCLUDING ICELAND & GREENLAND) - ALBANIA, ANDORRA, AUSTRIA, BELGIUM	CLINICAL RESEARCH CENTER	$984,767	WIRE	$0
EUROPE (INCLUDING ICELAND & GREENLAND) - ALBANIA, ANDORRA, AUSTRIA, BELGIUM	QUALITY IMPROVEMENT	$1,457,636	WIRE	$0
EUROPE (INCLUDING ICELAND & GREENLAND) - ALBANIA, ANDORRA, AUSTRIA, BELGIUM	THERAPEUTICS DISCOVERY RESEARCH	$136,473	WIRE	$0
EUROPE (INCLUDING ICELAND & GREENLAND) - ALBANIA, ANDORRA, AUSTRIA, BELGIUM	CLINICAL RESEARCH	$182,714	WIRE	$0
EUROPE (INCLUDING ICELAND & GREENLAND) - ALBANIA, ANDORRA, AUSTRIA, BELGIUM	RESEARCH	$132,167	WIRE	$0
EUROPE (INCLUDING ICELAND & GREENLAND) - ALBANIA, ANDORRA, AUSTRIA, BELGIUM	CLINICAL RESEARCH CENTER	$1,021,205	WIRE	$0
EUROPE (INCLUDING ICELAND & GREENLAND) - ALBANIA, ANDORRA, AUSTRIA, BELGIUM	PILOT STUDY	$54,000	WIRE	$0
EUROPE (INCLUDING ICELAND & GREENLAND) - ALBANIA, ANDORRA, AUSTRIA, BELGIUM	RESEARCH	$16,076	WIRE	$0
EUROPE (INCLUDING ICELAND & GREENLAND) - ALBANIA, ANDORRA, AUSTRIA, BELGIUM	RESEARCH	$275,000	WIRE	$0
EUROPE (INCLUDING ICELAND & GREENLAND) - ALBANIA, ANDORRA, AUSTRIA, BELGIUM	RESEARCH	$134,600	WIRE	$0
EUROPE (INCLUDING ICELAND & GREENLAND) - ALBANIA, ANDORRA, AUSTRIA, BELGIUM	THERAPEUTICS DISCOVERY RESEARCH	$78,560	WIRE	$0
EUROPE (INCLUDING ICELAND & GREENLAND) - ALBANIA, ANDORRA, AUSTRIA, BELGIUM	RESEARCH	$132,300	WIRE	$0
NORTH AMERICA - CANADA AND MEXICO, BUT NOT THE UNITED STATES	RESEARCH	$140,000	WIRE	$0
EUROPE (INCLUDING ICELAND & GREENLAND) - ALBANIA, ANDORRA, AUSTRIA, BELGIUM	PILOT STUDY	$55,996	WIRE	$0
MIDDLE EAST AND NORTH AFRICA - ALGERIA, BAHRAIN, DJIBOUTI, EGYPT,	CLINICAL RESEARCH	$52,920	WIRE	$0
EUROPE (INCLUDING ICELAND & GREENLAND) - ALBANIA, ANDORRA, AUSTRIA, BELGIUM	CLINICAL RESEARCH	$757,107	WIRE	$0
EUROPE (INCLUDING ICELAND & GREENLAND) - ALBANIA, ANDORRA, AUSTRIA, BELGIUM	RESEARCH	$135,000	WIRE	$0
NORTH AMERICA - CANADA AND MEXICO, BUT NOT THE UNITED STATES	CLINICAL RESEARCH STUDY	$230,574	WIRE	$0
MIDDLE EAST AND NORTH AFRICA - ALGERIA, BAHRAIN, DJIBOUTI, EGYPT,	CLINICAL RESEARCH	$81,189	WIRE	$0
NORTH AMERICA - CANADA AND MEXICO, BUT NOT THE UNITED STATES	CLINICAL RESEARCH CENTER	$148,245	WIRE	$0
NORTH AMERICA - CANADA AND MEXICO, BUT NOT THE UNITED STATES	CLINICAL RESEARCH STUDY	$452,627	WIRE	$0
NORTH AMERICA - CANADA AND MEXICO, BUT NOT THE UNITED STATES	RESEARCH	$139,946	WIRE	$0
NORTH AMERICA - CANADA AND MEXICO, BUT NOT THE UNITED STATES	THERAPEUTICS DISCOVERY RESEARCH	$133,000	WIRE	$0
EUROPE (INCLUDING ICELAND & GREENLAND) - ALBANIA, ANDORRA, AUSTRIA, BELGIUM	RESEARCH	$105,911	WIRE	$0
EAST ASIA AND THE PACIFIC - AUSTRALIA, BRUNEI, BURMA, CAMBODIA,	RESEARCH	$32,357	WIRE	$0
EUROPE (INCLUDING ICELAND & GREENLAND) - ALBANIA, ANDORRA, AUSTRIA, BELGIUM	PILOT STUDY	$53,999	WIRE	$0
NORTH AMERICA - CANADA AND MEXICO, BUT NOT THE UNITED STATES	PILOT STUDY	$54,000	WIRE	$0
EAST ASIA AND THE PACIFIC - AUSTRALIA, BRUNEI, BURMA, CAMBODIA,	CLINICAL RESEARCH STUDY	$694,490	WIRE	$0
EAST ASIA AND THE PACIFIC - AUSTRALIA, BRUNEI, BURMA, CAMBODIA,	CLINICAL RESEARCH	$654,385	WIRE	$0
EAST ASIA AND THE PACIFIC - AUSTRALIA, BRUNEI, BURMA, CAMBODIA,	CLINICAL RESEARCH STUDY	$1,686,067	WIRE	$0
EUROPE (INCLUDING ICELAND & GREENLAND) - ALBANIA, ANDORRA, AUSTRIA, BELGIUM	PILOT STUDY	$108,000	WIRE	$0
EUROPE (INCLUDING ICELAND & GREENLAND) - ALBANIA, ANDORRA, AUSTRIA, BELGIUM	RESEARCH	$129,425	WIRE	$0
EUROPE (INCLUDING ICELAND & GREENLAND) - ALBANIA, ANDORRA, AUSTRIA, BELGIUM	RESEARCH	$139,715	WIRE	$0
NORTH AMERICA - CANADA AND MEXICO, BUT NOT THE UNITED STATES	CLINICAL CARE RESEARCH	$145,600	WIRE	$0
NORTH AMERICA - CANADA AND MEXICO, BUT NOT THE UNITED STATES	PILOT STUDY	$54,000	WIRE	$0
NORTH AMERICA - CANADA AND MEXICO, BUT NOT THE UNITED STATES	THERAPEUTICS DISCOVERY RESEARCH	$92,500	WIRE	$0
EUROPE (INCLUDING ICELAND & GREENLAND) - ALBANIA, ANDORRA, AUSTRIA, BELGIUM	THERAPEUTICS DISCOVERY RESEARCH	$202,230	WIRE	$0
NORTH AMERICA - CANADA AND MEXICO, BUT NOT THE UNITED STATES	CLINICAL RESEARCH STUDY	$443,397	WIRE	$0
NORTH AMERICA - CANADA AND MEXICO, BUT NOT THE UNITED STATES	RESEARCH	$139,234	WIRE	$0
SUB-SAHARAN AFRICA - ANGOLA, BENIN, BOTSWANA, BURKINA FASO,	CLINICAL RESEARCH	$121,744	WIRE	$0
EUROPE (INCLUDING ICELAND & GREENLAND) - ALBANIA, ANDORRA, AUSTRIA, BELGIUM	PILOT STUDY	$83,350	WIRE	$0
EUROPE (INCLUDING ICELAND & GREENLAND) - ALBANIA, ANDORRA, AUSTRIA, BELGIUM	THERAPEUTICS DISCOVERY RESEARCH	$428,903	WIRE	$0
EUROPE (INCLUDING ICELAND & GREENLAND) - ALBANIA, ANDORRA, AUSTRIA, BELGIUM	PILOT STUDY	$49,950	WIRE	$0
EAST ASIA AND THE PACIFIC - AUSTRALIA, BRUNEI, BURMA, CAMBODIA,	CLINICAL RESEARCH	$668,961	WIRE	$0
EUROPE (INCLUDING ICELAND & GREENLAND) - ALBANIA, ANDORRA, AUSTRIA, BELGIUM	PILOT STUDY	$52,112	WIRE	$0

Field	Value	IRS element (for citing)
Total501c3 Org	35	Total501c3OrgCnt
Transfer To Foreign Corp	Yes (1)	TransferToForeignCorpInd
Interest In Foreign Trust	0	InterestInForeignTrustInd
Foreign Corp Ownership	Yes (1)	ForeignCorpOwnershipInd
Passive Foreign Investmest Co	Yes (1)	PassiveForeignInvestmestCoInd
Foreign Partnership	Yes (1)	ForeignPartnershipInd
Boycott Countries	0	BoycottCountriesInd

Supplemental Information Detail SupplementalInformationDetail (2 entries)

Form And Line ReferenceFormAndLineReferenceDesc

ExplanationExplanationTxt

PART III ACCOUNTING METHOD:

SCHEDULE F, PART IV

PROCEDURES FOR MONITORING GRANT FUNDS OUTSIDE OF THE U.S. THE ORGANIZATION HAS PROCEDURES IN PLACE TO MONITOR THE SCIENTIFIC PROGRESS AND FINANCIAL ASPECTS OF GRANTS AWARDED TO ENTITIES OUTSIDE OF THE UNITED STATES. THE ORGANIZATION FOLLOWS THE U.S. DEPARTMENT OF TREASURY ANTI-TERRORIST FINANCING VOLUNTARY BEST PRACTICES GUIDELINES FOR CHARITIES. IN COMPLIANCE WITH THE BEST PRACTICES, THE ORGANIZATION COLLECTS AND REVIEWS INFORMATION ABOUT THE PROSPECTIVE GRANTEES AND CONDUCTS A VETTING PROCESS TO ENSURE THEY ARE NOT SUSPECTED OF ACTIVITIES RELATED TO TERRORISM. ONCE A GRANT IS APPROVED, A WRITTEN AGREEMENT IS SIGNED BY BOTH THE ORGANIZATION AND THE GRANTEE. FUNDING IS INCREMENTAL AND SPONSORED INSTITUTIONS ARE REQUIRED TO SUBMIT ANNUAL REPORTS OF EXPENDITURES AS WELL AS SCIENTIFIC PROGRESS REPORTS. SCIENTIFIC REPORTS ARE REVIEWED BY THE ORGANIZATION'S SCIENTIFIC STAFF TO DETERMINE PROGRESS. THE FINAL GRANT PAYMENT IS CONTINGENT UPON RECEIPT AND APPROVAL OF THE REPORT OF EXPENDITURES. REPORTS OF EXPENDITURES ARE REVIEWED AND APPROVED BY STAFF TO ENSURE INCURRED COSTS ARE APPROPRIATE. THE GRANTS TO THE MIDDLE EAST/NORTH AFRICA REGION WERE MADE TO THE RESEARCH FUND OF THE HADASSAH MEDICAL ORGANIZATION AND THE HEBREW UNIVERSITY OF JERUSALEM IN ISRAEL. FOREIGN FORMS THE ACTIVITIES REFERENCED IN SCHEDULE F, PART IV ARE LIMITED TO CERTAIN OF THE FOUNDATION'S INVESTMENTS.

Schedule G IRS990ScheduleG

Field	Value	IRS element (for citing)
Mail Solicitations	Yes (X)	MailSolicitationsInd
Email Solicitations	Yes (X)	EmailSolicitationsInd
Phone Solicitations	Yes (X)	PhoneSolicitationsInd
In Person Solicitations	Yes (X)	InPersonSolicitationsInd
Solicitation Of Non Govt Grants	Yes (X)	SolicitationOfNonGovtGrantsInd
Special Fundraising Events	Yes (X)	SpecialFundraisingEventsInd
Agrmt Prof Fundraising Acty	Yes (1)	AgrmtProfFundraisingActyInd

Fundraiser Activity Info FundraiserActivityInfoGrp (2 entries)

Address Line1USAddress/AddressLine1Txt	CityUSAddress/CityNm	State AbbreviationUSAddress/StateAbbreviationCd	ZIPUSAddress/ZIPCd	ActivityActivityTxt	Fundraiser Control Of FundsFundraiserControlOfFundsInd	Gross ReceiptsGrossReceiptsAmt	Retained By ContractorRetainedByContractorAmt	Net To OrganizationNetToOrganizationAmt
LAUTMAN MASKA NEILL & COMPANY
1730 RHODE ISLAND AVE NW	WASHINGTON	DC	20036	MAIL COUNSEL	0	$9,440,621	$168,000	$9,272,621
THE PURSUANT GROUP INC
15660 DALLAS PKWY	DALLAS	TX	75248	DATA ANALYS	0	$0	$11,250	$0

Field	Value	IRS element (for citing)
Total Gross Receipts	$9,440,621	TotalGrossReceiptsAmt
Total Retained By Contractors	$179,250	TotalRetainedByContractorsAmt
Total Net To Organization	$9,272,621	TotalNetToOrganizationAmt
Licensed States	AL	LicensedStatesCd
Licensed States	AK	LicensedStatesCd
Licensed States	AZ	LicensedStatesCd
Licensed States	AR	LicensedStatesCd
Licensed States	CA	LicensedStatesCd
Licensed States	CO	LicensedStatesCd
Licensed States	CT	LicensedStatesCd
Licensed States	DE	LicensedStatesCd
Licensed States	FL	LicensedStatesCd
Licensed States	GA	LicensedStatesCd
Licensed States	HI	LicensedStatesCd
Licensed States	ID	LicensedStatesCd
Licensed States	IL	LicensedStatesCd
Licensed States	IN	LicensedStatesCd
Licensed States	IA	LicensedStatesCd
Licensed States	KS	LicensedStatesCd
Licensed States	KY	LicensedStatesCd
Licensed States	LA	LicensedStatesCd
Licensed States	ME	LicensedStatesCd
Licensed States	MD	LicensedStatesCd
Licensed States	MA	LicensedStatesCd
Licensed States	MI	LicensedStatesCd
Licensed States	MN	LicensedStatesCd
Licensed States	MS	LicensedStatesCd
Licensed States	MO	LicensedStatesCd
Licensed States	MT	LicensedStatesCd
Licensed States	NE	LicensedStatesCd
Licensed States	NV	LicensedStatesCd
Licensed States	NH	LicensedStatesCd
Licensed States	NJ	LicensedStatesCd
Licensed States	NM	LicensedStatesCd
Licensed States	NY	LicensedStatesCd
Licensed States	NC	LicensedStatesCd
Licensed States	ND	LicensedStatesCd
Licensed States	OH	LicensedStatesCd
Licensed States	OK	LicensedStatesCd
Licensed States	OR	LicensedStatesCd
Licensed States	PA	LicensedStatesCd
Licensed States	RI	LicensedStatesCd
Licensed States	SC	LicensedStatesCd
Licensed States	SD	LicensedStatesCd
Licensed States	TN	LicensedStatesCd
Licensed States	TX	LicensedStatesCd
Licensed States	UT	LicensedStatesCd
Licensed States	VT	LicensedStatesCd
Licensed States	VA	LicensedStatesCd
Licensed States	WA	LicensedStatesCd
Licensed States	WV	LicensedStatesCd
Licensed States	WI	LicensedStatesCd
Licensed States	WY	LicensedStatesCd

Fundraising Event Information FundraisingEventInformationGrp

Field	Value	IRS element (for citing)
Event1	SKI	Event1Nm
Gross Receipts Event1	$2,692,799	GrossReceiptsEvent1Amt
Charitable Contri Event1	$1,142,406	CharitableContriEvent1Amt
Gross Revenue Event1	$1,550,393	GrossRevenueEvent1Amt
Cash Prizes Event1	$0	CashPrizesEvent1Amt
Non Cash Prizes Event1	$56,115	NonCashPrizesEvent1Amt
Rent Facility Costs Event1	$1,003,469	RentFacilityCostsEvent1Amt
Food And Beverage Event1	$322,582	FoodAndBeverageEvent1Amt
Entertainment Event1	$0	EntertainmentEvent1Amt
Other Direct Expenses Event1	$168,227	OtherDirectExpensesEvent1Amt
Event2	ATLANTA WALK	Event2Nm
Gross Receipts Event2	$1,839,425	GrossReceiptsEvent2Amt
Charitable Contri Event2	$1,819,950	CharitableContriEvent2Amt
Gross Revenue Event2	$19,475	GrossRevenueEvent2Amt
Non Cash Prizes Event2	$3,026	NonCashPrizesEvent2Amt
Rent Facility Costs Event2	$5,053	RentFacilityCostsEvent2Amt
Food And Beverage Event2	$1,000	FoodAndBeverageEvent2Amt
Other Direct Expenses Event2	$10,397	OtherDirectExpensesEvent2Amt
Other Events Total	244	OtherEventsTotalCnt
Gross Receipts Other Events	$43,445,011	GrossReceiptsOtherEventsAmt
Charitable Contri Other Events	$41,260,463	CharitableContriOtherEventsAmt
Gross Revenue Other Events	$2,184,548	GrossRevenueOtherEventsAmt
Cash Prizes Other Events	$0	CashPrizesOtherEventsAmt
Non Cash Prizes Other Events	$310,422	NonCashPrizesOtherEventsAmt
Rent Fclty Costs Other Events	$912,017	RentFcltyCostsOtherEventsAmt
Food And Beverage Other Events	$541,080	FoodAndBeverageOtherEventsAmt
Entertainment Other Events	$52,189	EntertainmentOtherEventsAmt
Oth Direct Expnss Other Events	$368,839	OthDirectExpnssOtherEventsAmt
Gross Receipts Total	$47,977,235	GrossReceiptsTotalAmt
Charitable Contributions Tot	$44,222,819	CharitableContributionsTotAmt
Gross Revenue Total Events	$3,754,416	GrossRevenueTotalEventsAmt
Non Cash Prizes Total Events	$369,563	NonCashPrizesTotalEventsAmt
Rent Fclty Costs Total Events	$1,920,539	RentFcltyCostsTotalEventsAmt
Food And Beverage Total Events	$864,662	FoodAndBeverageTotalEventsAmt
Entertainment Total Events	$52,189	EntertainmentTotalEventsAmt
Oth Direct Expnss Total Events	$547,463	OthDirectExpnssTotalEventsAmt
Direct Expense Summary Events	$3,754,416	DirectExpenseSummaryEventsAmt
Net Income Summary	$0	NetIncomeSummaryAmt

Gaming Information GamingInformationGrp

Field	Value	IRS element (for citing)
Gross Revenue Other Gaming	$89,000	GrossRevenueOtherGamingAmt
Volunteer Labor Other Gaming	0	VolunteerLaborOtherGamingInd
Gross Revenue Total Gaming	$89,000	GrossRevenueTotalGamingAmt
Net Gaming Income Summary	$89,000	NetGamingIncomeSummaryAmt

Field	Value	IRS element (for citing)
States Where Gaming Conducted	CO	StatesWhereGamingConductedCd
Licensed	Yes (1)	LicensedInd
License Suspended Etc	0	LicenseSuspendedEtcInd
Gaming With Nonmembers	0	GamingWithNonmembersInd
Member Of Other Entity	0	MemberOfOtherEntityInd
Gaming Other Facility	1.00000	GamingOtherFacilityPct

Persons With Books Name PersonsWithBooksName

Field	Value	IRS element (for citing)
Business Name Line1	THE ORGANIZATION	BusinessNameLine1Txt

Persons With Books US Address PersonsWithBooksUSAddress

Field	Value	IRS element (for citing)
Address Line1	4550 MONTGOMERY AVE SUITE 1100N	AddressLine1Txt
City	BETHESDA	CityNm
State Abbreviation	MD	StateAbbreviationCd
ZIP	20814	ZIPCd

Field	Value	IRS element (for citing)
Cntrct With3rd Prty For Game Rev	0	CntrctWith3rdPrtyForGameRevInd
Charitable Distribution Rqr	0	CharitableDistributionRqrInd

Supplemental Information Detail SupplementalInformationDetail

Field	Value	IRS element (for citing)
Form And Line Reference	SCHEDULE G, PART I, LINE 2B	FormAndLineReferenceDesc
Explanation	PROFESSIONAL FUNDRAISING SERVICES CFF HAD A WRITTEN CONTRACT WITH LAUTMAN MASKA NEILL & COMPANY TO CONSULT ON ITS DIRECT MAIL AND ANNUAL FUND EFFORTS DURING 2020. THE EXPENSE FOR THE PROJECT IS $14,000 PER MONTH OR $168,000 FOR THE ENTIRE YEAR OF SERVICES. IN ADDITION TO THE CONSULTING ACTIVITIES THAT MAY BE CONSIDERED PROFESSIONAL FUNDRAISING SERVICES, CFF ALSO ENGAGED LAUTMAN MASKA NEILL & COMPANY FOR CREATIVE DEVELOPMENT. LAUTMAN MASKA NEILL & COMPANY DOES NOT COLLECT ANY FUNDS ON BEHALF OF CFF. ALL DONATIONS THAT RESULT FROM MAILINGS WITH WHICH LAUTMAN MASKA NEILL & COMPANY ASSISTS ARE MADE PAYABLE DIRECTLY TO THE FOUNDATION. CFF HAD A WRITTEN CONTRACT WITH THE PURSUANT GROUP, INC TO CONDUCT A DONOR FILE ANALYSIS THROUGH SEPTEMBER 2020. THE EXPENSE FOR THE PROJECT WAS $11,250. THE PURSUANT GROUP DOES NOT COLLECT ANY FUNDS ON BEHALF OF CFF. ALL DONATIONS THAT RESULT FROM ANALYSIS PERFORMED BY THE PURSUANT GROUP ARE MADE PAYABLE DIRECTLY TO THE FOUNDATION. SCHEDULE G, PART III ON OCCASION, THE CYSTIC FIBROSIS FOUNDATION CONDUCTS RAFFLES, DRAWINGS, OR GAMES OF CHANCE AS PART OF ITS FUNDRAISING EVENTS. GAMING LICENSES ARE OBTAINED WHEN APPLICABLE PER STATE OR LOCAL REGULATION. THERE ARE CERTAIN STATES WHERE CFF ONLY CONDUCTS OPPORTUNITY DRAWINGS. ANY VOLUNTEER INVOLVEMENT IN SUCH ACTIVITIES WAS INSIGNIFICANT. NO OUTSIDE PARTY HAD ANY INVOLVEMENT IN GAMING ACTIVITIES AND THESE ACTIVITIES DO NOT GENERATE UNRELATED BUSINESS INCOME. THE EXECUTIVE DIRECTOR OF EACH OFFICE IS RESPONSIBLE FOR OVERSEEING GAMING ACTIVITIES CONDUCTED BY THEIR OFFICE.	ExplanationTxt

Schedule I IRS990ScheduleI

Field	Value	IRS element (for citing)
Grant Records Maintained	Yes (1)	GrantRecordsMaintainedInd

Recipient Table RecipientTable (609 entries)

Address Line1USAddress/AddressLine1Txt	CityUSAddress/CityNm	State AbbreviationUSAddress/StateAbbreviationCd	ZIPUSAddress/ZIPCd	Recipient EINRecipientEIN	IRC SectionIRCSectionDesc	Cash GrantCashGrantAmt	Purpose Of GrantPurposeOfGrantTxt	Address Line2USAddress/AddressLine2Txt
ADVOCATE CHARITABLE FOUNDATION
3075 HIGHLAND PARKWAY SUITE 600	DOWNERS GROVE	IL	60515	363297360	501C(3)	$147,560	CF CARE CENTER
ALBANY MEDICAL COLLEGE
47 NEW SCOTLAND AVENUE	ALBANY	NY	12298	141338310	501C(3)	$125,808	CLINICAL RESEARCH CENTER
ALBANY MEDICAL COLLEGE
47 NEW SCOTLAND AVENUE	ALBANY	NY	12298	141338310	501C(3)	$178,415	CF CARE CENTER
ALL CHILDREN'S HOSPITAL INC
501 SIXTH AVENUE SOUND	ST PETERSBURG	FL	33701	590683252	501C(3)	$171,041	CLINICAL RESEARCH CENTER
ALL CHILDREN'S HOSPITAL INC
501 SIXTH AVENUE SOUND	ST PETERSBURG	FL	33701	590683252	501C(3)	$187,590	CF CARE CENTER
ANN AND ROBERT H LURIE CHILDREN'S HOSPITAL OF CHICAGO
225 E CHICAGO AVE	CHICAGO	IL	606112991	362170833	501C(3)	$62,000	TRAINING
ANN AND ROBERT H LURIE CHILDREN'S HOSPITAL OF CHICAGO
225 E CHICAGO AVE	CHICAGO	IL	606112991	362170833	501C(3)	$81,000	THERAPEUTICS DISCOVERY RESEARCH
ANN AND ROBERT H LURIE CHILDREN'S HOSPITAL OF CHICAGO
225 E CHICAGO AVE	CHICAGO	IL	606112991	362170833	501C(3)	$89,600	CLINICAL RESEARCH STUDY
ANN AND ROBERT H LURIE CHILDREN'S HOSPITAL OF CHICAGO
225 E CHICAGO AVE	CHICAGO	IL	606112991	362170833	501C(3)	$228,770	CLINICAL RESEARCH CENTER
ANN AND ROBERT H LURIE CHILDREN'S HOSPITAL OF CHICAGO
225 E CHICAGO AVE	CHICAGO	IL	606112991	362170833	501C(3)	$262,745	CF CARE CENTER
ANN AND ROBERT H LURIE CHILDREN'S HOSPITAL OF CHICAGO
225 E CHICAGO AVE	CHICAGO	IL	606112991	362170833	501C(3)	$589,182	ADULT CARE
ARIZONA BOARD OF REGENTS UNIVERSITY OF ARIZONA
888 N EUCLID AVENUE	TUCSON	AZ	85721	742652689	IRC 115	$34,677	ADHERENCE
ARIZONA BOARD OF REGENTS UNIVERSITY OF ARIZONA
888 N EUCLID AVENUE	TUCSON	AZ	85721	742652689	IRC 115	$162,702	CF CARE CENTER
ARIZONA BOARD OF REGENTS UNIVERSITY OF ARIZONA
888 N EUCLID AVENUE	TUCSON	AZ	85721	742652689	IRC 115	$193,321	CLINICAL RESEARCH CENTER
ARIZONA BOARD OF REGENTS UNIVERSITY OF ARIZONA
888 N EUCLID AVENUE	TUCSON	AZ	85721	742652689	IRC 115	$414,362	CLINICAL RESEARCH STUDY
ARKANSAS CHILDREN'S HOSPITAL RESEARCH INSTITUTE INC
13 CHILDRENS WAY	LITTLE ROCK	AR	72202	710694931	501C(3)	$154,910	CF CARE CENTER
ASCENSION SETON
2975 REGENT BLVD	IRVING	TX	75063	741109643	501C(3)	$123,093	CLINICAL RESEARCH CENTER
ASCENSION SETON
2975 REGENT BLVD	IRVING	TX	75063	741109643	501C(3)	$269,985	CF CARE CENTER
ATLANTIC HEALTH SYSTEM
475 SOUTH STREET	MORRISTON	NJ	07960	521958352	501C(3)	$122,572	CLINICAL RESEARCH CENTER
ATLANTIC HEALTH SYSTEM
475 SOUTH STREET	MORRISTON	NJ	07960	521958352	501C(3)	$159,260	CF CARE CENTER
AUGUSTA UNIVERSITY
1120 FIFTEENTH STREET	AUGUSTA	GA	30912	586002053	IRC 115	$32,884	ADULT CARE
AUGUSTA UNIVERSITY RESEARCH INSTITUTE INC
1120 15TH STREET	AUGUSTA	GA	30912	581418202	501C(3)	$82,809	CLINICAL RESEARCH CENTER
AUGUSTA UNIVERSITY RESEARCH INSTITUTE INC
1120 15TH STREET	AUGUSTA	GA	30912	581418202	501C(3)	$369,177	CF CARE CENTER
AUGUSTA UNIVERSITY RESEARCH INSTITUTE INC
1120 15TH STREET	AUGUSTA	GA	30912	581418202	501C(3)	$399,919	CLINICAL RESEARCH STUDY
BAYLOR COLLEGE OF MEDICINE
ONE BAYLOR PLAZA	HOUSTON	TX	77030	741613878	501C(3)	$26,776	ADHERENCE
BAYLOR COLLEGE OF MEDICINE
ONE BAYLOR PLAZA	HOUSTON	TX	77030	741613878	501C(3)	$284,082	CLINICAL RESEARCH CENTER
BAYLOR COLLEGE OF MEDICINE
ONE BAYLOR PLAZA	HOUSTON	TX	77030	741613878	501C(3)	$517,957	CF CARE CENTER
BAYLOR SCOTT & WHITE HEALTH
2401 S 31ST STREET	TEMPLE	TX	76508	463131350	501C(3)	$108,958	CF CARE CENTER
BAYSTATE MEDICAL CENTER INC
759 CHESNUT STREET	SPRINGFIELD	MA	01199	042790311	501C(3)	$60,180	CF CARE CENTER
BETH ISRAEL DEACONESS MEDICAL CENTER
330 BROOKLINE AVENUE	BOSTON	MA	022155491	042103881	501C(3)	$28,240	CLINICAL RESEARCH
BETH ISRAEL DEACONESS MEDICAL CENTER
330 BROOKLINE AVENUE	BOSTON	MA	022155491	042103881	501C(3)	$77,051	ADULT CARE
BETH ISRAEL DEACONESS MEDICAL CENTER
330 BROOKLINE AVENUE	BOSTON	MA	022155491	042103881	501C(3)	$213,474	CLINICAL RESEARCH STUDY
BETH ISRAEL MEDICAL CENTER
FIRST AVENUE AT 16TH STREET	NEW YORK	NY	10003	135564934	501C(3)	$156,875	CLINICAL RESEARCH CENTER
BETH ISRAEL MEDICAL CENTER
FIRST AVENUE AT 16TH STREET	NEW YORK	NY	10003	135564934	501C(3)	$190,410	CF CARE CENTER
BILLINGS CLINIC FOUNDATION
2917 TENTH AVE NORTH	BILLINGS	MT	59101	810407289	501C(3)	$41,625	ADULT CARE
BILLINGS CLINIC FOUNDATION
2917 TENTH AVE NORTH	BILLINGS	MT	59101	810407289	501C(3)	$111,515	CLINICAL RESEARCH CENTER
BILLINGS CLINIC FOUNDATION
2917 TENTH AVE NORTH	BILLINGS	MT	59101	810407289	501C(3)	$252,550	CF CARE CENTER
BOARD OF REGENTS NEVADA SYSTEM OF HIGHER EDUCATION
4505 SOUTH MARYLAND PARKWAY	LAS VEGAS	NV	89154	886000024	IRC 115	$53,708	PILOT STUDY
BOARD OF REGENTS OF THE UNIVERSITY OF OKLAHOMA HEALTH SCIENCES CENTER
PO BOX 26901	OKLAHOMA CITY	OK	731260901	731563627	501C(3)	$131,164	CLINICAL RESEARCH CENTER
BOARD OF REGENTS OF THE UNIVERSITY OF OKLAHOMA HEALTH SCIENCES CENTER
PO BOX 26901	OKLAHOMA CITY	OK	731260901	731563627	501C(3)	$448,239	CF CARE CENTER
BOARD OF REGENTS OF THE UNIVERSITY OF WISCONSIN SYSTEM
21 N PARK STREET	MADISON	WI	537151218	396006492	501C(3)	$181,930	CLINICAL RESEARCH CENTER
BOARD OF REGENTS OF THE UNIVERSITY OF WISCONSIN SYSTEM
21 N PARK STREET	MADISON	WI	537151218	396006492	501C(3)	$298,460	CF CARE CENTER
BOARD OF REGENTS OF THE UNIVERSITY OF WISCONSIN SYSTEM
21 N PARK STREET	MADISON	WI	537151218	396006492	501C(3)	$379,827	CLINICAL RESEARCH STUDY
BOARD OF TRUSTEES OF SOUTHERN ILLINOIS UNIVERSITY
PO BOX 19616	SPRINGFIELD	IL	627949616	376005961	501C(3)	$27,181	CF CARE CENTER
BOARD OF TRUSTEES OF THE LELAND STANFORD JUNIOR UNIVERSITY
455 BROADWAY DISCOVERY HALL 2ND	REDWOOD CITY	CA	940623126	941156365	501C(3)	$34,720	ADHERENCE	FLOOR
BOARD OF TRUSTEES OF THE LELAND STANFORD JUNIOR UNIVERSITY
455 BROADWAY DISCOVERY HALL 2ND	REDWOOD CITY	CA	940623126	941156365	501C(3)	$50,000	CLINICAL RESEARCH STUDY	FLOOR
BOARD OF TRUSTEES OF THE LELAND STANFORD JUNIOR UNIVERSITY
455 BROADWAY DISCOVERY HALL 2ND	REDWOOD CITY	CA	940623126	941156365	501C(3)	$116,655	TRAINING	FLOOR
BOARD OF TRUSTEES OF THE LELAND STANFORD JUNIOR UNIVERSITY
455 BROADWAY DISCOVERY HALL 2ND	REDWOOD CITY	CA	940623126	941156365	501C(3)	$192,650	RESEARCH STUDY	FLOOR
BOARD OF TRUSTEES OF THE LELAND STANFORD JUNIOR UNIVERSITY
455 BROADWAY DISCOVERY HALL 2ND	REDWOOD CITY	CA	940623126	941156365	501C(3)	$211,267	CLINICAL RESEARCH CENTER	FLOOR
BOARD OF TRUSTEES OF THE LELAND STANFORD JUNIOR UNIVERSITY
455 BROADWAY DISCOVERY HALL 2ND	REDWOOD CITY	CA	940623126	941156365	501C(3)	$407,290	CF CARE CENTER	FLOOR
BOARD OF TRUSTEES OF THE LELAND STANFORD JUNIOR UNIVERSITY
455 BROADWAY DISCOVERY HALL 2ND	REDWOOD CITY	CA	940623126	941156365	501C(3)	$669,822	RESEARCH	FLOOR
BOARD OF TRUSTEES OF THE UNIVERSITY OF ILLINOIS
506 S WRIGHT STREET	URBANA	IL	61801	376000511	501C(3)	$84,000	PILOT STUDY
BOSTON CHILDREN'S HEALTH PHYSICIANS LLP
40 SUNSHINE COTTAGE ROAD	VALHALLA	NY	06488	133956599	LLP	$76,501	ADULT CARE
BOSTON CHILDREN'S HEALTH PHYSICIANS LLP
40 SUNSHINE COTTAGE ROAD	VALHALLA	NY	06488	133956599	LLP	$122,207	CLINICAL RESEARCH CENTER
BOSTON CHILDREN'S HEALTH PHYSICIANS LLP
40 SUNSHINE COTTAGE ROAD	VALHALLA	NY	06488	133956599	LLP	$218,605	CF CARE CENTER
BOWLING GREEN STATE UNIVERSITY
1851 N RESEARCH DR	BOWLING GREEN	OH	43403	346402018	IRC 115	$54,000	PILOT STUDY
BREATHE BRAVELY INC
305 W 29TH ST	SIOUX FALLS	AL	57105	475334258	501C(3)	$19,275	COMMUNITY IMPACT
CALIFORNIA INSTITUTE OF TECHNOLOGY
1200 EAST CALIFORNIA BLVD M/C 234-6	PASADENA	CA	91125	951643307	501C(3)	$65,450	RESEARCH STUDY	234-6
CAMC HEALTH EDUCATION AND RESEARCH INSTITUTE
3110 MACCORKLE AVE SE	CHARLESTON	WV	25304	550753754	501C(3)	$97,410	CF CARE CENTER
CARLE FOUNDATION HOSPITAL
611 WEST PARK	URBANA	IL	61801	371119538	501C(3)	$69,250	CF CARE CENTER
CARNEGIE MELLON UNIVERSITY
5000 FORBES AVENUE	PITTSBURGH	PA	15213	250969449	501C(3)	$56,000	PILOT STUDY
CARNEGIE MELLON UNIVERSITY
5000 FORBES AVENUE	PITTSBURGH	PA	15213	250969449	501C(3)	$222,800	THERAPEUTICS DISCOVERY RESEARCH
CAROLINAS HEALTHCARE FOUNDATION
PO BOX 32861	CHARLOTTE	NC	282322861	566060481	501C(3)	$203,855	CF CARE CENTER
CASE WESTERN RESERVE UNIVERSITY
10900 EUCLID AVENUE	CLEVELAND	OH	44106	341018992	501C(3)	$24,369	ADULT CARE
CASE WESTERN RESERVE UNIVERSITY
10900 EUCLID AVENUE	CLEVELAND	OH	44106	341018992	501C(3)	$63,100	RESEARCH STUDY
CASE WESTERN RESERVE UNIVERSITY
10900 EUCLID AVENUE	CLEVELAND	OH	44106	341018992	501C(3)	$328,000	PILOT STUDY
CASE WESTERN RESERVE UNIVERSITY
10900 EUCLID AVENUE	CLEVELAND	OH	44106	341018992	501C(3)	$393,406	CLINICAL RESEARCH CENTER
CASE WESTERN RESERVE UNIVERSITY
10900 EUCLID AVENUE	CLEVELAND	OH	44106	341018992	501C(3)	$398,000	CLINICAL RESEARCH STUDY
CASE WESTERN RESERVE UNIVERSITY
10900 EUCLID AVENUE	CLEVELAND	OH	44106	341018992	501C(3)	$565,823	THERAPEUTICS DISCOVERY RESEARCH
CASE WESTERN RESERVE UNIVERSITY
10900 EUCLID AVENUE	CLEVELAND	OH	44106	341018992	501C(3)	$944,892	RESEARCH
CASE WESTERN RESERVE UNIVERSITY
10900 EUCLID AVENUE	CLEVELAND	OH	44106	341018992	501C(3)	$1,464,793	RESEARCH CENTER
CEDARS-SINAI MEDICAL CENTER
8700 BEVERLY BLVD	LOS ANGELES	CA	90048	951644600	501C(3)	$54,000	PILOT STUDY
CEDARS-SINAI MEDICAL CENTER
8700 BEVERLY BLVD	LOS ANGELES	CA	90048	951644600	501C(3)	$135,000	RESEARCH
CEDARS-SINAI MEDICAL CENTER
8700 BEVERLY BLVD	LOS ANGELES	CA	90048	951644600	501C(3)	$229,999	RESEARCH STUDY
CEDARS-SINAI MEDICAL CENTER
8700 BEVERLY BLVD	LOS ANGELES	CA	90048	951644600	501C(3)	$440,000	THERAPEUTICS DISCOVERY RESEARCH
CENTRAL FLORIDA PULMONARY GROUP PA
1115 EAST RIDGEWOOD STREET	ORLANDO	FL	32803	591760017	C CORP	$126,198	CLINICAL RESEARCH CENTER
CENTRAL FLORIDA PULMONARY GROUP PA
1115 EAST RIDGEWOOD STREET	ORLANDO	FL	32803	591760017	C CORP	$198,150	CF CARE CENTER
CHATTANOOGA HAMILTON COUNTY HOSPITAL AUTHORITY (DBA ERLANGER MEDICAL CENTER
975 EAST THIRD STREET	CHATTANOOGA	TN	37403	626000101	501C(3)	$95,570	CF CARE CENTER
CHILDREN'S HEALTH CARE
2525 CHICAGO AVENUE SOUTH	MINNEAPOLIS	MN	554041844	411754276	501C(3)	$66,724	ADHERENCE
CHILDREN'S HEALTH CARE
2525 CHICAGO AVENUE SOUTH	MINNEAPOLIS	MN	554041844	411754276	501C(3)	$133,432	CLINICAL RESEARCH CENTER
CHILDREN'S HEALTH CARE
2525 CHICAGO AVENUE SOUTH	MINNEAPOLIS	MN	554041844	411754276	501C(3)	$149,195	CF CARE CENTER
CHILDREN'S HOSPITAL CORPORATION (BOSTON CHILDREN'S)
BOSTON CHILDRENS HOSPITAL	BOSTON	MA	02115	042774441	501C(3)	$56,000	PILOT STUDY
CHILDREN'S HOSPITAL CORPORATION (BOSTON CHILDREN'S)
BOSTON CHILDRENS HOSPITAL	BOSTON	MA	02115	042774441	501C(3)	$68,050	RESEARCH STUDY
CHILDREN'S HOSPITAL CORPORATION (BOSTON CHILDREN'S)
BOSTON CHILDRENS HOSPITAL	BOSTON	MA	02115	042774441	501C(3)	$71,931	CLINICAL RESEARCH STUDY
CHILDREN'S HOSPITAL CORPORATION (BOSTON CHILDREN'S)
BOSTON CHILDRENS HOSPITAL	BOSTON	MA	02115	042774441	501C(3)	$228,733	TRAINING
CHILDREN'S HOSPITAL CORPORATION (BOSTON CHILDREN'S)
BOSTON CHILDRENS HOSPITAL	BOSTON	MA	02115	042774441	501C(3)	$263,573	RESEARCH
CHILDREN'S HOSPITAL CORPORATION (BOSTON CHILDREN'S)
BOSTON CHILDRENS HOSPITAL	BOSTON	MA	02115	042774441	501C(3)	$393,315	CF CARE CENTER
CHILDREN'S HOSPITAL CORPORATION (BOSTON CHILDREN'S)
BOSTON CHILDRENS HOSPITAL	BOSTON	MA	02115	042774441	501C(3)	$439,036	CLINICAL RESEARCH CENTER
CHILDREN'S HOSPITAL CORPORATION (BOSTON CHILDREN'S)
BOSTON CHILDRENS HOSPITAL	BOSTON	MA	02115	042774441	501C(3)	$1,206,636	ADHERENCE
CHILDREN'S HOSPITAL LOS ANGELES
4650 SUNSET BOULEVARD	LOS ANGELES	CA	900270982	951690977	501C(3)	$86,400	CLINICAL RESEARCH STUDY
CHILDREN'S HOSPITAL LOS ANGELES
4650 SUNSET BOULEVARD	LOS ANGELES	CA	900270982	951690977	501C(3)	$100,000	TRAINING
CHILDREN'S HOSPITAL LOS ANGELES
4650 SUNSET BOULEVARD	LOS ANGELES	CA	900270982	951690977	501C(3)	$208,683	CLINICAL RESEARCH CENTER
CHILDREN'S HOSPITAL LOS ANGELES
4650 SUNSET BOULEVARD	LOS ANGELES	CA	900270982	951690977	501C(3)	$220,246	CF CARE CENTER
CHILDREN'S HOSPITAL MEDICAL CENTER
3333 BURNET AVENUE	CINCINNATI	OH	452293039	310833936	501C(3)	$34,720	ADHERENCE
CHILDREN'S HOSPITAL MEDICAL CENTER
3333 BURNET AVENUE	CINCINNATI	OH	452293039	310833936	501C(3)	$128,750	TRAINING
CHILDREN'S HOSPITAL MEDICAL CENTER
3333 BURNET AVENUE	CINCINNATI	OH	452293039	310833936	501C(3)	$194,340	CF CARE CENTER
CHILDREN'S HOSPITAL MEDICAL CENTER
3333 BURNET AVENUE	CINCINNATI	OH	452293039	310833936	501C(3)	$272,283	RESEARCH STUDY
CHILDREN'S HOSPITAL MEDICAL CENTER
3333 BURNET AVENUE	CINCINNATI	OH	452293039	310833936	501C(3)	$350,928	CLINICAL RESEARCH CENTER
CHILDREN'S HOSPITAL MEDICAL CENTER
3333 BURNET AVENUE	CINCINNATI	OH	452293039	310833936	501C(3)	$600,000	RESEARCH CENTER
CHILDREN'S HOSPITAL MEDICAL CENTER
3333 BURNET AVENUE	CINCINNATI	OH	452293039	310833936	501C(3)	$1,203,310	CLINICAL RESEARCH STUDY
CHILDREN'S HOSPITAL MEDICAL CENTER
3333 BURNET AVENUE	CINCINNATI	OH	452293039	310833936	501C(3)	$2,492,104	CLINICAL CARE RESEARCH
CHILDREN'S HOSPITAL MEDICAL CENTER OF AKRON
ONE PERKINS SQUARE	AKRON	OH	44308	340714357	501C(3)	$107,926	CLINICAL RESEARCH CENTER
CHILDREN'S HOSPITAL MEDICAL CENTER OF AKRON
ONE PERKINS SQUARE	AKRON	OH	44308	340714357	501C(3)	$244,420	CF CARE CENTER
CHILDREN'S HOSPITAL OF ORANGE COUNTY
1201 WEST LA VETA AVENUE	ORANGE	CA	92868	952321786	501C(3)	$51,943	CLINICAL RESEARCH STUDY
CHILDREN'S HOSPITAL OF ORANGE COUNTY
1201 WEST LA VETA AVENUE	ORANGE	CA	92868	952321786	501C(3)	$63,001	THERAPEUTICS DISCOVERY RESEARCH
CHILDREN'S HOSPITAL OF ORANGE COUNTY
1201 WEST LA VETA AVENUE	ORANGE	CA	92868	952321786	501C(3)	$103,765	CF CARE CENTER
CHILDREN'S HOSPITAL OF PITTSBURGH OF UPMC HEALTH SYSTEM
4401 PENN AVENUE	PITTSBURGH	PA	15224	250402510	501C(3)	$431,000	CF CARE CENTER
CHILDREN'S LUNG SPECIALISTS
3006 S MARYLAND PKWY	LAS VEGAS	NV	89109	880271963	501C(3)	$217,065	CF CARE CENTER
CHILDREN'S MEDICAL CENTER
ONE CHILDRENS PLAZA	DAYTON	OH	454041815	310672132	501C(3)	$96,147	CLINICAL RESEARCH CENTER
CHILDREN'S MEDICAL CENTER
ONE CHILDRENS PLAZA	DAYTON	OH	454041815	310672132	501C(3)	$233,410	CF CARE CENTER
CHILDREN'S NATIONAL MEDICAL CENTER
111 MICHIGAN AVENUE NW	WASHINGTON	DC	20010	521640403	501C(3)	$43,587	ADULT CARE
CHILDREN'S RESEARCH INSTITUTE (AT CNMC)
111 MICHIGAN AVENUE NW	WASHINGTON	DC	20010	521654453	501C(3)	$218,705	CLINICAL RESEARCH STUDY
CHILDREN'S RESEARCH INSTITUTE (AT CNMC)
111 MICHIGAN AVENUE NW	WASHINGTON	DC	20010	521654453	501C(3)	$234,691	CF CARE CENTER
CHILDREN'S SPECIALTY GROUP PLLC
811 REDGATE AVENUE	NORFOLK	VA	23507	541871633	LLC	$161,620	CF CARE CENTER
CHRISTIANA CARE HEALTH SERVICES INC
PO BOX 2653	WILMINGTON	DE	198050653	510103684	501C(3)	$44,794	CF CARE CENTER
CHRISTUS SANTA ROSA HEALTH SYSTEM
FOR CHILDREN FAMILIES	SAN ANTONIO	TX	78207	741109665	501C(3)	$49,520	CF CARE CENTER
CLAIRE'S PLACE FOUNDATION INC
2110 ARTESIA BLVD B	REDONDO BEACH	CA	90278	452453459	501C(3)	$10,000	COMMUNITY IMPACT
COLORADO STATE UNIVERSITY
555 SOUTH HOWES	FORT COLLINS	CO	805232002	846000545	IRC 115	$125,000	RESEARCH
CONNECTICUT CHILDREN'S MEDICAL CENTER
202 WASHINGTON STREET	HARTFORD	CT	061063322	060646755	501C(3)	$93,210	CF CARE CENTER
COOK CHILDREN'S MEDICAL CENTER CF CENTER
801 SEVENTH AVENUE	FORT WORTH	TX	76104	752051646	501C(3)	$156,769	CLINICAL RESEARCH CENTER
COOK CHILDREN'S MEDICAL CENTER CF CENTER
801 SEVENTH AVENUE	FORT WORTH	TX	76104	752051646	501C(3)	$355,720	CF CARE CENTER
CYSTIC FIBROSIS PARENT EDUCATION GROUP
403 TYLER RUN DRIVE	WAKE FOREST	NC	27587	813589075	501C(3)	$8,505	COMMUNITY IMPACT
DARTMOUTH-HITCHCOCK CLINIC
ONE MEDICAL CENTER DRIVE	LEBANON	NH	03756	222519596	501C(3)	$39,048	CLINICAL RESEARCH
DARTMOUTH-HITCHCOCK CLINIC
ONE MEDICAL CENTER DRIVE	LEBANON	NH	03756	222519596	501C(3)	$69,250	TRAINING
DARTMOUTH-HITCHCOCK CLINIC
ONE MEDICAL CENTER DRIVE	LEBANON	NH	03756	222519596	501C(3)	$590,493	RESEARCH
DREXEL UNIVERSITY
1505 RACE STREET 10TH FLOOR	PHILADELPHIA	PA	19102	231352630	501C(3)	$80,250	CF CARE CENTER
DRISCOLL CHILDREN'S HOSPITAL
3533 SOUTH ALAMEDA	CORPUS CHRISTI	TX	78411	742577746	501C(3)	$123,925	CF CARE CENTER
DUKE UNIVERSITY
324 BLACKWELL ST	DURHAM	NC	27701	560532129	501C(3)	$12,311	THERAPEUTICS DISCOVERY RESEARCH
DUKE UNIVERSITY
324 BLACKWELL ST	DURHAM	NC	27701	560532129	501C(3)	$294,813	CF CARE CENTER
DUKE UNIVERSITY
324 BLACKWELL ST	DURHAM	NC	27701	560532129	501C(3)	$1,723,037	CLINICAL CARE RESEARCH
EAST CAROLINA UNIVERSITY
GREENVILLE CENTRE SUITE 2900	GREENVILLE	NC	278584353	566000403	IRC 115	$43,915	CF CARE CENTER
EAST TENNESSEE CHILDREN'S HOSPITAL ASSOCIATION INC
PO BOX 15010	KNOXVILLE	TN	379015010	626002604	501C(3)	$142,765	CF CARE CENTER
EASTERN MAINE MEDICAL CENTER
489 STATE STREET	BANGOR	ME	04402	010211501	501C(3)	$65,325	CF CARE CENTER
EMORY UNIVERSITY
1599 CLIFTON ROAD	ATLANTA	GA	30322	580566256	501C(3)	$100,991	RESEARCH CENTER
EMORY UNIVERSITY
1599 CLIFTON ROAD	ATLANTA	GA	30322	580566256	501C(3)	$162,000	PILOT STUDY
EMORY UNIVERSITY
1599 CLIFTON ROAD	ATLANTA	GA	30322	580566256	501C(3)	$210,219	CLINICAL RESEARCH CENTER
EMORY UNIVERSITY
1599 CLIFTON ROAD	ATLANTA	GA	30322	580566256	501C(3)	$223,998	TRAINING
EMORY UNIVERSITY
1599 CLIFTON ROAD	ATLANTA	GA	30322	580566256	501C(3)	$265,000	RESEARCH
EMORY UNIVERSITY
1599 CLIFTON ROAD	ATLANTA	GA	30322	580566256	501C(3)	$460,955	CF CARE CENTER
EMORY UNIVERSITY
1599 CLIFTON ROAD	ATLANTA	GA	30322	580566256	501C(3)	$902,359	CLINICAL RESEARCH STUDY
EMORY UNIVERSITY
1599 CLIFTON ROAD	ATLANTA	GA	30322	580566256	501C(3)	$1,044,123	QUALITY IMPROVEMENT
FAIRFAX NEONATAL ASSOCIATES PC DBAPEDIATRIC LUNG CENTER
2730-B PROSPERITY AVENUE	FAIRFAX	VA	22031	541110106	C CORP	$82,080	CF CARE CENTER
GEISINGER CLINIC
100 N ACADEMY AVE	DANVILLE	PA	178229800	236291113	501C(3)	$69,250	TRAINING
GEISINGER CLINIC
100 N ACADEMY AVE	DANVILLE	PA	178229800	236291113	501C(3)	$214,357	CF CARE CENTER
GEORGIA TECH RESEARCH CORPORATION
505 TENTH ST NW	ATLANTA	GA	30318	580603146	501C(3)	$54,000	PILOT STUDY
GEORGIA TECH RESEARCH CORPORATION
505 TENTH ST NW	ATLANTA	GA	30318	580603146	501C(3)	$351,875	RESEARCH STUDY
GEORGIA TECH RESEARCH CORPORATION
505 TENTH ST NW	ATLANTA	GA	30318	580603146	501C(3)	$443,488	RESEARCH
GEORGIA TECH RESEARCH CORPORATION
505 TENTH ST NW	ATLANTA	GA	30318	580603146	501C(3)	$868,000	CLINICAL RESEARCH STUDY
GOOD SAMARITAN HOSPITAL
1000 MONTAUK HIGHWAY	WEST ISLIP	NY	11795	111888924	501C(3)	$36,435	CF CARE CENTER
GUNDERSEN LUTHERAN MEDICAL FOUNDATION
1836 SOUTH AVENUE	LA CROSSE	WI	54601	391249705	501C(3)	$45,460	CF CARE CENTER
HARTFORD HOSPITAL
80 SEYMOUR STREET	HARTFORD	CT	061025037	060646668	501C(3)	$93,760	CF CARE CENTER
HARVARD MEDICAL SCHOOL
1033 MASSACHUSETTS AVENUE	CAMBRIDGE	MA	02138	042103580	501C(3)	$83,000	PILOT STUDY
HARVARD MEDICAL SCHOOL
1033 MASSACHUSETTS AVENUE	CAMBRIDGE	MA	02138	042103580	501C(3)	$396,695	THERAPEUTICS DISCOVERY RESEARCH
HARVARD MEDICAL SCHOOL
1033 MASSACHUSETTS AVENUE	CAMBRIDGE	MA	02138	042103580	501C(3)	$839,989	CLINICAL RESEARCH STUDY
HEALTH ADVOCACY SUMMIT INC
1962 DOCKSIDE DRIVE	GREENWOOD	IN	46143	830866589	501C(3)	$10,000	COMMUNITY IMPACT
HEALTHWELL FOUNDATION
PO BOX 4133	GAITHERSBURG	MD	20885	200413676	501C(3)	$4,200,000	PATIENT ASSISTANCE
HENRY M JACKSON FOUNDATION FOR THE ADVANCEMENT OF MILITARY MEDICINE INC
6720A ROCKLEDGE DRIVE	BETHESDA	MD	20817	521317896	501C(3)	$47,500	CF CARE CENTER
ICAHN SCHOOL OF MEDICINE AT MOUNT SINAI
ONE GUSTAVE L LEVY PLACE	NEW YORK	NY	10029	136171197	501C(3)	$18,318	CLINICAL RESEARCH CENTER
ICAHN SCHOOL OF MEDICINE AT MOUNT SINAI
ONE GUSTAVE L LEVY PLACE	NEW YORK	NY	10029	136171197	501C(3)	$33,570	CF CARE CENTER
ICAHN SCHOOL OF MEDICINE AT MOUNT SINAI
ONE GUSTAVE L LEVY PLACE	NEW YORK	NY	10029	136171197	501C(3)	$112,000	RESEARCH
INOVA HEALTH CARE SERVICES
8110 GATEHOUSE ROAD	FALLS CHURCH	VA	22042	540620889	501C(3)	$40,166	ADULT CARE
INOVA HEALTH CARE SERVICES
8110 GATEHOUSE ROAD	FALLS CHURCH	VA	22042	540620889	501C(3)	$121,848	CF CARE CENTER
IOM HEALTH SYSTEM LP
DBA LUTHERAN HOSPITAL OF INDIA	FT WAYNE	IN	46804	351963748	LP	$84,735	CF CARE CENTER
IOWA HEALTH FOUNDATION
1415 WOODLAND AVENUE	DES MOINES	IA	50309	421467682	501C(3)	$105,655	CF CARE CENTER
JOE DIMAGGIO CHILDREN'S HOSPITAL FOUNDATION INC
3329 JOHNSON STREET	HOLLYWOOD	FL	33021	650492343	501C(3)	$102,649	CLINICAL RESEARCH CENTER
KAISER FOUNDATION RESEARCH INSTITUTE
ONE KAISER PLAZA	OAKLAND	CA	94612	941105628	501C(3)	$502,465	CF CARE CENTER
LANDON PEDIATRIC FOUNDATION
3291 LOMA VISTA RD	VENTURA	CA	93003	931097216	501C(3)	$47,765	CF CARE CENTER
LEE MEMORIAL HEALTH SYSTEM FOUNDATION INC
9800 SOUTH HEALTHPARK DRIVE	FORT MYERS	FL	33908	650645343	501C(3)	$52,615	CF CARE CENTER
LEHIGH VALLEY HOSPITAL
2100 MACK BLVD	ALLENTOWN	PA	181035622	231689692	501C(3)	$117,927	CF CARE CENTER
LOMA LINDA UNIVERSITY
11145 ANDERSON STREET	LOMA LINDA	CA	92354	951816009	501C(3)	$91,625	CF CARE CENTER
LONG ISLAND JEWISH MEDICAL CENTER
270-05 76TH AVENUE	NEW HYDE PARK	NY	11040	112241326	501C(3)	$216,850	CF CARE CENTER
LOUISIANA STATE UNIVERSITY HEALTH SCIENCES CENTER
433 BOLIVAR ST	NEW ORLEANS	LA	70112	726087770	501C(3)	$27,000	PILOT STUDY
LOUISIANA STATE UNIVERSITY HEALTH SCIENCES CENTER
PO BOX 33932	SHREVEPORT	LA	71130	720702002	501C(3)	$159,600	CF CARE CENTER
LOYOLA UNIVERSITY CHICAGO
820 NORTH MICHIGAN AVENUE	CHICAGO	IL	606112147	361408475	501C(3)	$78,807	CF CARE CENTER
MAGEE-WOMEN'S RESEARCH INSTITUTE AND FOUNDATION
3240 CRAFT PLACE	PITTSBURGH	PA	15213	251462312	501C(3)	$88,525	CLINICAL RESEARCH STUDY
MAINE MEDICAL CENTER
22 BRAMHALL STREET	PORTLAND	ME	041023175	010238552	501C(3)	$45,993	ADULT CARE
MAINE MEDICAL CENTER
22 BRAMHALL STREET	PORTLAND	ME	041023175	010238552	501C(3)	$143,418	CLINICAL RESEARCH CENTER
MAINE MEDICAL CENTER
22 BRAMHALL STREET	PORTLAND	ME	041023175	010238552	501C(3)	$188,303	CF CARE CENTER
MAINE MEDICAL CENTER
22 BRAMHALL STREET	PORTLAND	ME	041023175	010238552	501C(3)	$360,699	CLINICAL RESEARCH STUDY
MARSHFIELD CLINIC RESEARCH FOUNDATION
1000 N OAK AVENUE	MARSHFIELD	WI	54449	390452970	501C(3)	$66,720	CF CARE CENTER
MARY BRIDGE CHILDREN'S FOUNDATION
PO BOX 5299	TACOMA	WA	98415	943030039	501C(3)	$82,485	CF CARE CENTER
MASSACHUSETTS INSTITUTE OF TECHNOLOGY
77 MASSACHUSETTS AVENUE	CAMBRIDGE	MA	021394307	042103594	501C(3)	$65,450	THERAPEUTICS DISCOVERY RESEARCH
MAYO CLINIC
200 FIRST STREET SW	ROCHESTER	MN	55905	416011702	501C(3)	$121,270	CF CARE CENTER
MEDICAL UNIVERSITY OF SOUTH CAROLINA
179 ASHLEY AVENUE	CHARLESTON	SC	294258908	576000722	501C(3)	$42,090	ADULT CARE
MEDICAL UNIVERSITY OF SOUTH CAROLINA
179 ASHLEY AVENUE	CHARLESTON	SC	294258908	576000722	501C(3)	$62,500	RESEARCH
MEDICAL UNIVERSITY OF SOUTH CAROLINA
179 ASHLEY AVENUE	CHARLESTON	SC	294258908	576000722	501C(3)	$281,005	CLINICAL RESEARCH CENTER
MEDICAL UNIVERSITY OF SOUTH CAROLINA
179 ASHLEY AVENUE	CHARLESTON	SC	294258908	576000722	501C(3)	$284,415	CF CARE CENTER
MEMORIAL HEALTH SERVICES
17360 BROOKHURST STREET	FOUNTAIN VALLEY	CA	92708	951643381	501C(3)	$140,211	CLINICAL RESEARCH CENTER
MEMORIAL MEDICAL CENTER FOUNDATION
2801 ATLANTIC AVENUE	LONG BEACH	CA	90806	956105984	501C(3)	$210,775	CF CARE CENTER
MH MISSION HOSPITAL LLLP
PO BOX 550	NASHVILLE TN	MD	372020550	832048706	LLP	$33,460	CF CARE CENTER
MICHIGAN STATE UNIVERSITY
426 AUDITORIUM ROAD	EAST LANSING	MI	48824	386005984	501C(3)	$24,354	ADULT CARE
MICHIGAN STATE UNIVERSITY
426 AUDITORIUM ROAD	EAST LANSING	MI	48824	386005984	501C(3)	$78,940	CF CARE CENTER
MICHIGAN STATE UNIVERSITY
426 AUDITORIUM ROAD	EAST LANSING	MI	48824	386005984	501C(3)	$84,000	THERAPEUTICS DISCOVERY RESEARCH
MIDDLE EAST CYSTIC FIBROSIS ASSOCIATION
842 SOUTH ST	BOSTON	MA	02131	851096028	170(B)(1)(A)(VI)	$105,411	QUALITY IMPROVEMENT
MONMOUTH MEDICAL CENTER FOUNDATION
300 SECOND AVENUE	LONG BRANCH	NJ	07740	222456079	501C(3)	$81,918	CLINICAL RESEARCH CENTER
MONMOUTH MEDICAL CENTER FOUNDATION
300 SECOND AVENUE	LONG BRANCH	NJ	07740	222456079	501C(3)	$161,035	CF CARE CENTER
NATIONAL DISEASE RESEARCH INTERCHANGE
1628 JOHN F KENNEDY BLVD	PHILADELPHIA	PA	19103	232213205	509(A)(2)	$346,297	THERAPEUTICS DISCOVERY RESEARCH
NATIONAL HEART LUNG & BLOOD INSTITUTE NATIONAL INSTITUTES OF HEALTH DHH
31 CENTER DRIVE	BETHESDA	MD	20892	520858115	GOVERNMENT ENTITY	$78,111	QUALITY IMPROVEMENT
NATIONAL JEWISH MEDICAL AND RESEARCH CENTER
1400 JACKSON STREET	DENVER	CO	80206	742044647	501C(3)	$26,871	ADHERENCE
NATIONAL JEWISH MEDICAL AND RESEARCH CENTER
1400 JACKSON STREET	DENVER	CO	80206	742044647	501C(3)	$35,640	ADULT CARE
NATIONAL JEWISH MEDICAL AND RESEARCH CENTER
1400 JACKSON STREET	DENVER	CO	80206	742044647	501C(3)	$110,000	PILOT STUDY
NATIONAL JEWISH MEDICAL AND RESEARCH CENTER
1400 JACKSON STREET	DENVER	CO	80206	742044647	501C(3)	$135,000	RESEARCH
NATIONAL JEWISH MEDICAL AND RESEARCH CENTER
1400 JACKSON STREET	DENVER	CO	80206	742044647	501C(3)	$188,591	RESEARCH CENTER
NATIONAL JEWISH MEDICAL AND RESEARCH CENTER
1400 JACKSON STREET	DENVER	CO	80206	742044647	501C(3)	$292,540	CF CARE CENTER
NATIONAL JEWISH MEDICAL AND RESEARCH CENTER
1400 JACKSON STREET	DENVER	CO	80206	742044647	501C(3)	$403,884	CLINICAL RESEARCH
NATIONAL JEWISH MEDICAL AND RESEARCH CENTER
1400 JACKSON STREET	DENVER	CO	80206	742044647	501C(3)	$625,251	CLINICAL RESEARCH CENTER
NATIONAL JEWISH MEDICAL AND RESEARCH CENTER
1400 JACKSON STREET	DENVER	CO	80206	742044647	501C(3)	$1,039,961	CLINICAL RESEARCH STUDY
NATIONAL ORGANIZATION OF AFRICAN AMERICANS WITH CYSTIC FIBROSIS
6001 SOUTHWIND DRIVE	NORTH LITTLE ROCK	AR	72118	852269576	501C(3)	$10,000	COMMUNITY IMPACT
NEMOURS CHILDREN'S HEALTH SYSTEM
1600 ROCKLAND ROAD	WILMINGTON	DE	198033607	590634433	501C(3)	$53,863	CLINICAL RESEARCH STUDY
NEMOURS CHILDREN'S HEALTH SYSTEM
1600 ROCKLAND ROAD	WILMINGTON	DE	198033607	590634433	501C(3)	$256,111	CLINICAL RESEARCH CENTER
NEMOURS CHILDREN'S HEALTH SYSTEM
1600 ROCKLAND ROAD	WILMINGTON	DE	198033607	590634433	501C(3)	$503,920	CF CARE CENTER
NEW YORK UNIVERSITY
ONE FIRST AVENUE	NEW YORK	NY	10016	135562308	501C(3)	$43,200	QUALITY IMPROVEMENT
NEW YORK UNIVERSITY
ONE FIRST AVENUE	NEW YORK	NY	10016	135562308	501C(3)	$51,541	PILOT STUDY
NEW YORK UNIVERSITY
ONE FIRST AVENUE	NEW YORK	NY	10016	135562308	501C(3)	$65,450	RESEARCH STUDY
NEW YORK UNIVERSITY
ONE FIRST AVENUE	NEW YORK	NY	10016	135562308	501C(3)	$150,330	CF CARE CENTER
NORTH SUBURBAN PULMONARY AND CRITICAL CARE CONSULTANTS SC
9201N WAUKEGAN ROAD	MORTON GROVE	IL	60053	364393017	C CORP	$54,400	CF CARE CENTER
NORTHWESTERN UNIVERSITY
633 CLARK ST	EVANSTON	IL	60208	362167817	501C(3)	$85,977	ADHERENCE
NORTHWESTERN UNIVERSITY
633 CLARK ST	EVANSTON	IL	60208	362167817	501C(3)	$115,721	CLINICAL RESEARCH CENTER
NORTHWESTERN UNIVERSITY
633 CLARK ST	EVANSTON	IL	60208	362167817	501C(3)	$123,810	CF CARE CENTER
NORTHWESTERN UNIVERSITY
633 CLARK ST	EVANSTON	IL	60208	362167817	501C(3)	$166,364	CLINICAL RESEARCH
OREGON HEALTH & SCIENCE UNIVERSITY
3181 SW SAM JACKSON PARK RD	PORTLAND	OR	97239	931176109	501C(3)	$7,459	ADHERENCE
OREGON HEALTH & SCIENCE UNIVERSITY
3181 SW SAM JACKSON PARK RD	PORTLAND	OR	97239	931176109	501C(3)	$81,482	ADULT CARE
OREGON HEALTH & SCIENCE UNIVERSITY
3181 SW SAM JACKSON PARK RD	PORTLAND	OR	97239	931176109	501C(3)	$143,419	CLINICAL RESEARCH CENTER
OREGON HEALTH & SCIENCE UNIVERSITY
3181 SW SAM JACKSON PARK RD	PORTLAND	OR	97239	931176109	501C(3)	$361,510	CF CARE CENTER
OREGON STATE UNIVERSITY
PO BOX 1086	CORVALLIS	OR	973391086	611730890	IRC 115	$267,433	THERAPEUTICS DISCOVERY RESEARCH
ORLANDO HEALTH FOUNDATION
3160 SOUTHGATE COMMERCE BLVD SUITE	ORLANDO	FL	32806	592244943	501C(3)	$117,705	CF CARE CENTER
OSF SAINT FRANCIS MEDICAL CENTER
530 NE GLEN OAK AVE	PEORIA	IL	61637	370662569	501C(3)	$82,887	CLINICAL RESEARCH CENTER
OSF SAINT FRANCIS MEDICAL CENTER
530 NE GLEN OAK AVE	PEORIA	IL	61637	370662569	501C(3)	$156,680	CF CARE CENTER
PENNSYLVANIA STATE UNIVERSITY
500 UNIVERSITY DRIVE	HERSHEY	PA	17033	246000376	IRC 115	$90,631	CLINICAL RESEARCH CENTER
PENNSYLVANIA STATE UNIVERSITY
500 UNIVERSITY DRIVE	HERSHEY	PA	17033	246000376	IRC 115	$235,580	CF CARE CENTER
PENSACOLA LUNG GROUP MDS PA
500 UNIVERSITY DRIVE	PENSACOLA	FL	32503	592313481	501C(3)	$60,220	CF CARE CENTER
PHOENIX CHILDREN'S HOSPITAL FOUNDATION
2929 CAMELBACK ROAD	PHOENIX	AZ	85016	742421549	501C(3)	$341,270	CF CARE CENTER
PROJECT CF SPOUSE
170 DAVIS COURT	HIRAM	GA	30141	813803502	501C(3)	$10,000	COMMUNITY IMPACT
PROVIDENCE HEALTH & SERVICES WASHINGTON
PO BOX 389672	SEATTLE	WA	981389672	510216586	170(B)(1)(A)(III)	$142,489	CLINICAL RESEARCH CENTER
PROVIDENCE HEALTH & SERVICES WASHINGTON
PO BOX 389672	SEATTLE	WA	981389672	510216586	170(B)(1)(A)(III)	$273,660	CF CARE CENTER
REGENTS OF THE UNIVERSITY OF CALIFORNIA AT IRVINE
OFFICE OF RESEARCH	IRVINE	CA	926977600	952226406	501C(3)	$11,000	THERAPEUTICS DISCOVERY RESEARCH
REGENTS OF THE UNIVERSITY OF CALIFORNIA AT IRVINE
OFFICE OF RESEARCH	IRVINE	CA	926977600	952226406	501C(3)	$145,600	CLINICAL CARE RESEARCH
REGENTS OF THE UNIVERSITY OF COLORADO AT DENVER
1800 GRANT STREET	DENVER	CO	80203	846000555	501C(3)	$19,871	ADHERENCE
REGENTS OF THE UNIVERSITY OF COLORADO AT DENVER
1800 GRANT STREET	DENVER	CO	80203	846000555	501C(3)	$63,100	RESEARCH STUDY
REGENTS OF THE UNIVERSITY OF COLORADO AT DENVER
1800 GRANT STREET	DENVER	CO	80203	846000555	501C(3)	$138,568	RESEARCH
REGENTS OF THE UNIVERSITY OF COLORADO AT DENVER
1800 GRANT STREET	DENVER	CO	80203	846000555	501C(3)	$256,230	CF CARE CENTER
REGENTS OF THE UNIVERSITY OF COLORADO AT DENVER
1800 GRANT STREET	DENVER	CO	80203	846000555	501C(3)	$269,027	CLINICAL RESEARCH STUDY
REGENTS OF THE UNIVERSITY OF COLORADO AT DENVER
1800 GRANT STREET	DENVER	CO	80203	846000555	501C(3)	$554,166	CLINICAL RESEARCH
REGENTS OF THE UNIVERSITY OF COLORADO AT DENVER
1800 GRANT STREET	DENVER	CO	80203	846000555	501C(3)	$560,500	TRAINING
REGENTS OF THE UNIVERSITY OF COLORADO AT DENVER
1800 GRANT STREET	DENVER	CO	80203	846000555	501C(3)	$579,920	CLINICAL RESEARCH CENTER
REGENTS OF THE UNIVERSITY OF COLORADO AT DENVER
1800 GRANT STREET	DENVER	CO	80203	846000555	501C(3)	$958,615	CLINICAL CARE RESEARCH
RENOWN HEALTH FOUNDATION
1155 MILL ST	RENO	NV	89502	942972749	501C(3)	$60,470	CF CARE CENTER
RHODE ISLAND HOSPITAL
593 EDDY STREET	PROVIDENCE	RI	02903	050258954	501C(3)	$35,617	ADULT CARE
RHODE ISLAND HOSPITAL
593 EDDY STREET	PROVIDENCE	RI	02903	050258954	501C(3)	$162,585	CF CARE CENTER
ROSALIND FRANKLIN UNIVERSITY OF MEDICINE AND SCIENCE
3333 GREEN BAY RD	NORTH CHICAGO	IL	60064	362181973	501C(3)	$63,100	RESEARCH STUDY
ROSALIND FRANKLIN UNIVERSITY OF MEDICINE AND SCIENCE
3333 GREEN BAY RD	NORTH CHICAGO	IL	60064	362181973	501C(3)	$134,178	RESEARCH
RUSH UNIVERSITY MEDICAL CENTER
1653 W CONGRESS PARKWAY	CHICAGO	IL	60612	362174823	501C(3)	$112,275	CF CARE CENTER
RUTGERS THE STATE UNIVERSITY OF NEW JERSEY
65 BERGEN STREET	NEWARK	NJ	07103	462354111	IRC 115	$124,190	CLINICAL CARE RESEARCH
RUTGERS THE STATE UNIVERSITY OF NEW JERSEY
65 BERGEN STREET	NEWARK	NJ	07103	462354111	IRC 115	$157,735	CF CARE CENTER
RUTGERS THE STATE UNIVERSITY OF NEW JERSEY
65 BERGEN STREET	NEWARK	NJ	07103	462354111	IRC 115	$161,014	CLINICAL RESEARCH CENTER
SAINT BARNABAS MEDICAL CENTER
94 OLD SHORT HILLS ROAD	LIVINGSTON	NJ	07039	221494440	501C(3)	$52,145	CF CARE CENTER
SAINT JOSEPH REGIONAL MEDICAL CENTER - SOUTH BEND CAMPUS INC
5215 HOLY CROSS PARKWAY	MISHAWAKA	IN	465451469	350868157	501C(3)	$112,675	CF CARE CENTER
SAINT JOSEPH'S HOSPITAL AND MEDICAL CENTER
703 MAIN STREET	PETERSON	NJ	07503	221487602	501C(3)	$53,805	CF CARE CENTER
SANFORD CLINIC
PO BOX 5039	SIOUX FALLS	SD	571175039	460447693	501C(3)	$126,569	CLINICAL RESEARCH CENTER
SANFORD CLINIC
PO BOX 5039	SIOUX FALLS	SD	571175039	460447693	501C(3)	$173,800	CF CARE CENTER
SANFORD MEDICAL CENTER FARGO
PO BOX 2010	FARGO	ND	58112	450226909	501C(3)	$53,475	CF CARE CENTER
SANTA BARBARA COTTAGE HOSPITAL
400 WEST PUEBLO STREET	SANTA BARBARA	CA	93105	951644629	501C(3)	$84,695	CF CARE CENTER
SEATTLE CHILDREN'S HOSPITAL
PO BOX 5371	SEATTLE	WA	981455005	910564748	501C(3)	$28,227	ADHERENCE
SEATTLE CHILDREN'S HOSPITAL
PO BOX 5371	SEATTLE	WA	981455005	910564748	501C(3)	$35,640	ADULT CARE
SEATTLE CHILDREN'S HOSPITAL
PO BOX 5371	SEATTLE	WA	981455005	910564748	501C(3)	$97,125	TRAINING
SEATTLE CHILDREN'S HOSPITAL
PO BOX 5371	SEATTLE	WA	981455005	910564748	501C(3)	$265,024	CLINICAL CARE RESEARCH
SEATTLE CHILDREN'S HOSPITAL
PO BOX 5371	SEATTLE	WA	981455005	910564748	501C(3)	$266,360	CF CARE CENTER
SEATTLE CHILDREN'S HOSPITAL
PO BOX 5371	SEATTLE	WA	981455005	910564748	501C(3)	$2,308,476	CLINICAL RESEARCH STUDY
SEATTLE CHILDREN'S HOSPITAL
PO BOX 5371	SEATTLE	WA	981455005	910564748	501C(3)	$4,994,019	CLINICAL RESEARCH CENTER
SEATTLE CHILDREN'S HOSPITAL
PO BOX 5371	SEATTLE	WA	981455005	910564748	501C(3)	$19,631,929	CLINICAL RESEARCH
SEATTLE INSTITUTE FOR BIOMEDICAL AND CLINICAL RESEARCH
1660 S COLUMBIAN WAY	SEATTLE	WA	98108	911452438	501C(3)	$56,000	PILOT STUDY
SOUTH BROWARD HOSPITAL DISTRICT
3501 JOHNSON STREET	HOLLYWOOD	FL	33021	596014973	501C(3)	$188,930	CF CARE CENTER
SPECTRUM HEALTH FOUNDATION
100 MICHIGAN ST NE	GRAND RAPIDS	MI	49503	382752328	501C(3)	$82,080	ADULT CARE
SPECTRUM HEALTH FOUNDATION
100 MICHIGAN ST NE	GRAND RAPIDS	MI	49503	382752328	501C(3)	$197,676	CLINICAL RESEARCH CENTER
SPECTRUM HEALTH FOUNDATION
100 MICHIGAN ST NE	GRAND RAPIDS	MI	49503	382752328	501C(3)	$350,187	CF CARE CENTER
ST ALEXIUS MEDICAL CENTER
900 EAST BROADWAY AVENUE	BISMARCK	ND	585014520	450226711	501C(3)	$93,255	CF CARE CENTER
ST LOUIS UNIVERSITY
221 NORTH GRAND BLVD	ST LOUIS	MO	63103	430654872	501C(3)	$107,024	ADULT CARE
ST LOUIS UNIVERSITY
221 NORTH GRAND BLVD	ST LOUIS	MO	63103	430654872	501C(3)	$108,016	CLINICAL RESEARCH CENTER
ST LOUIS UNIVERSITY
221 NORTH GRAND BLVD	ST LOUIS	MO	63103	430654872	501C(3)	$187,055	CF CARE CENTER
ST LUKE'S REGIONAL MEDICAL CENTER LTD
190 E BANNOCK	BOISE	ID	83712	820161600	501C(3)	$120,717	CLINICAL RESEARCH CENTER
ST LUKE'S REGIONAL MEDICAL CENTER LTD
190 E BANNOCK	BOISE	ID	83712	820161600	501C(3)	$171,712	CF CARE CENTER
ST MARY'S MEDICAL CENTER INC
ACCOUNTING MANAGER	WEST PALM BEACH	FL	33407	752932830	C CORP	$85,345	CF CARE CENTER
ST VINCENT HOSPITAL OF THE HOSPITAL SISTERS OF THE THIRD ORDER OF ST FRAN
835 S VAN BUREN	GREEN BAY	WI	543013256	390817529	501C(3)	$79,090	CF CARE CENTER
STATE OF MISSISSIPPIUNIVERSITY OF MISSISSIPPI MEDICAL CENTER
2500 NORTH STATE STREET	JACKSON	MS	392164505	646008520	501C(3)	$161,979	CF CARE CENTER
SUNY UPSTATE MEDICAL UNIVERSITY COLLEGE OF MEDICINE
PO BOX 9	ALBANY	NY	12201	141368361	501C(3)	$13,728	CLINICAL CARE RESEARCH
SUNY UPSTATE MEDICAL UNIVERSITY COLLEGE OF MEDICINE
PO BOX 9	ALBANY	NY	12201	141368361	501C(3)	$33,330	ADHERENCE
SUNY UPSTATE MEDICAL UNIVERSITY COLLEGE OF MEDICINE
PO BOX 9	ALBANY	NY	12201	141368361	501C(3)	$36,668	ADULT CARE
SUNY UPSTATE MEDICAL UNIVERSITY COLLEGE OF MEDICINE
PO BOX 9	ALBANY	NY	12201	141368361	501C(3)	$80,313	CLINICAL RESEARCH
SUNY UPSTATE MEDICAL UNIVERSITY COLLEGE OF MEDICINE
PO BOX 9	ALBANY	NY	12201	141368361	501C(3)	$261,252	CLINICAL RESEARCH CENTER
SUNY UPSTATE MEDICAL UNIVERSITY COLLEGE OF MEDICINE
PO BOX 9	ALBANY	NY	12201	141368361	501C(3)	$494,273	CF CARE CENTER
SUTTER BAY HOSPITALS
475 BRANNAN STREET	SAN FRANCISCO	CA	941075419	940562680	501C(3)	$40,340	CF CARE CENTER
SUTTER MEDICAL CENTER SACRAMENTO
PO BOX 160727	SACRAMENTO	CA	95833	941156621	501C(3)	$100,955	CF CARE CENTER
TAMPA GENERAL HOSPITAL FOUNDATION INC
TRANSPLANT SERVICES	TAMPA	FL	33601	237354477	501C(3)	$176,200	CF CARE CENTER
TEMPLE UNIVERSITY OF THE COMMONWEALTH SYSTEM OF HIGHER EDUCATION
1852 N 10TH STREET	PHILADELPHIA	PA	19122	231365971	501C(3)	$132,364	RESEARCH
TEXAS A&M AGRILIFE RESEARCH
PO BOX 10420	COLLEGE STATION	TX	77842	746000541	501C(3)	$140,000	RESEARCH
TEXAS TECH UNIVERSITY HEALTH SCIENCES CENTER
3601 4TH STREET	LUBBOCK	TX	794306209	752668014	501C(3)	$67,240	CF CARE CENTER
THE ADMINISTRATORS OF THE TULANE EDUCATIONAL FUND
6823 ST CHARLES AVENUE	NEW ORLEANS	LA	70118	720423889	501C(3)	$37,226	ADULT CARE
THE ADMINISTRATORS OF THE TULANE EDUCATIONAL FUND
6823 ST CHARLES AVENUE	NEW ORLEANS	LA	70118	720423889	501C(3)	$111,823	CLINICAL RESEARCH CENTER
THE ADMINISTRATORS OF THE TULANE EDUCATIONAL FUND
6823 ST CHARLES AVENUE	NEW ORLEANS	LA	70118	720423889	501C(3)	$203,140	CF CARE CENTER
THE BOARD OF TRUSTEES OF THE UNIVERSITY OF ALABAMA
BOX 870136	TUSCALOOSA	AL	35487	636001138	501C(3)	$55,321	PILOT STUDY
THE BOARD OF TRUSTEES OF THE UNIVERSITY
4301 WEST MARKHAM ST	LITTLE ROCK	AR	72205	716046242	U.S. STATE	$129,050	CF CARE CENTER
THE BOARD OF TRUSTEES OF THE UNIVERSITY
4301 WEST MARKHAM ST	LITTLE ROCK	AR	72205	716046242	U.S. STATE	$181,825	CLINICAL RESEARCH CENTER
THE CHARLOTTE-MECKLENBURG HOSPITAL AUTHORITY
PO BOX 601979	CHARLOTTE	NC	282601979	560529945	501C(3)	$13,289	CLINICAL RESEARCH
THE CHILDREN'S HOSPITAL OF PHILADELPHIA
3401 CIVIC CENTER BLVD	PHILADELPHIA	PA	19104	231352166	501C(3)	$103,002	TRAINING
THE CHILDREN'S HOSPITAL OF PHILADELPHIA
3401 CIVIC CENTER BLVD	PHILADELPHIA	PA	19104	231352166	501C(3)	$113,772	CLINICAL RESEARCH
THE CHILDREN'S HOSPITAL OF PHILADELPHIA
3401 CIVIC CENTER BLVD	PHILADELPHIA	PA	19104	231352166	501C(3)	$145,363	CLINICAL RESEARCH STUDY
THE CHILDREN'S HOSPITAL OF PHILADELPHIA
3401 CIVIC CENTER BLVD	PHILADELPHIA	PA	19104	231352166	501C(3)	$219,842	CLINICAL RESEARCH CENTER
THE CHILDREN'S HOSPITAL OF PHILADELPHIA
3401 CIVIC CENTER BLVD	PHILADELPHIA	PA	19104	231352166	501C(3)	$237,714	CF CARE CENTER
THE CHILDREN'S MERCY HOSPITAL
2401 GILLHAM ROAD	KANSAS CITY	MO	64108	440605373	501C(3)	$193,290	CF CARE CENTER
THE CHILDREN'S MERCY HOSPITAL
2401 GILLHAM ROAD	KANSAS CITY	MO	64108	440605373	501C(3)	$222,860	CLINICAL RESEARCH CENTER
THE CLEVELAND CLINIC FOUNDATION
9500 EUCLID AVENUE	CLEVELAND	OH	44131	340714585	501C(3)	$54,529	CLINICAL RESEARCH CENTER
THE CLEVELAND CLINIC FOUNDATION
9500 EUCLID AVENUE	CLEVELAND	OH	44131	340714585	501C(3)	$124,035	CF CARE CENTER
THE CLEVELAND CLINIC FOUNDATION
9500 EUCLID AVENUE	CLEVELAND	OH	44131	340714585	501C(3)	$301,440	RESEARCH
THE CLEVELAND CLINIC FOUNDATION
9500 EUCLID AVENUE	CLEVELAND	OH	44131	340714585	501C(3)	$789,663	CLINICAL CARE RESEARCH
THE CURATORS OF THE UNIVERSITY OF MISSOURI
115 BUSINESS LOOP 70 WEST	COLUMBIA	MO	652118230	436003859	501C(3)	$81,000	THERAPEUTICS DISCOVERY RESEARCH
THE CURATORS OF THE UNIVERSITY OF MISSOURI
115 BUSINESS LOOP 70 WEST	COLUMBIA	MO	652118230	436003859	501C(3)	$148,551	ADULT CARE
THE CURATORS OF THE UNIVERSITY OF MISSOURI
115 BUSINESS LOOP 70 WEST	COLUMBIA	MO	652118230	436003859	501C(3)	$176,240	CF CARE CENTER
THE CURATORS OF THE UNIVERSITY OF MISSOURI
115 BUSINESS LOOP 70 WEST	COLUMBIA	MO	652118230	436003859	501C(3)	$275,000	RESEARCH
THE FEINSTEIN INSTITUTE FOR MEDICAL RESEARCH
972 BRUSH HOLLOW ROAD	WESTBURY	NY	11590	112673595	501C(3)	$123,944	CLINICAL RESEARCH
THE FEINSTEIN INSTITUTE FOR MEDICAL RESEARCH
972 BRUSH HOLLOW ROAD	WESTBURY	NY	11590	112673595	501C(3)	$151,521	CLINICAL RESEARCH CENTER
THE GENERAL HOSPITAL CORPORATION (MASSACHUSETTS GENERAL HOSPITAL)
55 FRUIT STREET	BOSTON	MA	02114	042697983	501C(3)	$38,987	ADULT CARE
THE GENERAL HOSPITAL CORPORATION (MASSACHUSETTS GENERAL HOSPITAL)
55 FRUIT STREET	BOSTON	MA	02114	042697983	501C(3)	$130,900	RESEARCH STUDY
THE GENERAL HOSPITAL CORPORATION (MASSACHUSETTS GENERAL HOSPITAL)
55 FRUIT STREET	BOSTON	MA	02114	042697983	501C(3)	$145,600	CLINICAL CARE RESEARCH
THE GENERAL HOSPITAL CORPORATION (MASSACHUSETTS GENERAL HOSPITAL)
55 FRUIT STREET	BOSTON	MA	02114	042697983	501C(3)	$162,000	TRAINING
THE GENERAL HOSPITAL CORPORATION (MASSACHUSETTS GENERAL HOSPITAL)
55 FRUIT STREET	BOSTON	MA	02114	042697983	501C(3)	$168,000	THERAPEUTICS DISCOVERY RESEARCH
THE GENERAL HOSPITAL CORPORATION (MASSACHUSETTS GENERAL HOSPITAL)
55 FRUIT STREET	BOSTON	MA	02114	042697983	501C(3)	$169,115	CLINICAL RESEARCH CENTER
THE GENERAL HOSPITAL CORPORATION (MASSACHUSETTS GENERAL HOSPITAL)
55 FRUIT STREET	BOSTON	MA	02114	042697983	501C(3)	$229,300	CF CARE CENTER
THE GENERAL HOSPITAL CORPORATION (MASSACHUSETTS GENERAL HOSPITAL)
55 FRUIT STREET	BOSTON	MA	02114	042697983	501C(3)	$389,636	CLINICAL RESEARCH STUDY
THE GENERAL HOSPITAL CORPORATION (MASSACHUSETTS GENERAL HOSPITAL)
55 FRUIT STREET	BOSTON	MA	02114	042697983	501C(3)	$1,288,854	RESEARCH
THE HITCHCOCK FOUNDATION
ONE MEDICAL CENTER DRIVE	LEBANON	NH	03756	020222139	501C(3)	$35,400	ADULT CARE
THE HITCHCOCK FOUNDATION
ONE MEDICAL CENTER DRIVE	LEBANON	NH	03756	020222139	501C(3)	$152,360	CLINICAL RESEARCH CENTER
THE HITCHCOCK FOUNDATION
ONE MEDICAL CENTER DRIVE	LEBANON	NH	03756	020222139	501C(3)	$224,515	CF CARE CENTER
THE JOHNS HOPKINS UNIVERSITY
3910 KESWICK ROAD	BALTIMORE	MD	21211	520595110	501C(3)	$28,967	CLINICAL CARE RESEARCH
THE JOHNS HOPKINS UNIVERSITY
3910 KESWICK ROAD	BALTIMORE	MD	21211	520595110	501C(3)	$54,000	PILOT STUDY
THE JOHNS HOPKINS UNIVERSITY
3910 KESWICK ROAD	BALTIMORE	MD	21211	520595110	501C(3)	$187,686	TRAINING
THE JOHNS HOPKINS UNIVERSITY
3910 KESWICK ROAD	BALTIMORE	MD	21211	520595110	501C(3)	$312,522	CLINICAL RESEARCH CENTER
THE JOHNS HOPKINS UNIVERSITY
3910 KESWICK ROAD	BALTIMORE	MD	21211	520595110	501C(3)	$389,342	CLINICAL RESEARCH
THE JOHNS HOPKINS UNIVERSITY
3910 KESWICK ROAD	BALTIMORE	MD	21211	520595110	501C(3)	$440,085	CF CARE CENTER
THE JOHNS HOPKINS UNIVERSITY
3910 KESWICK ROAD	BALTIMORE	MD	21211	520595110	501C(3)	$544,730	RESEARCH
THE JOHNS HOPKINS UNIVERSITY
3910 KESWICK ROAD	BALTIMORE	MD	21211	520595110	501C(3)	$986,798	ADHERENCE
THE JOHNS HOPKINS UNIVERSITY
3910 KESWICK ROAD	BALTIMORE	MD	21211	520595110	501C(3)	$1,293,223	CLINICAL RESEARCH STUDY
THE MEDICAL COLLEGE OF WISCONSIN
8701 WATERTOWN PLANK ROAD	MILWAUKEE	WI	532263548	390806261	501C(3)	$73,563	CLINICAL RESEARCH
THE MEDICAL COLLEGE OF WISCONSIN
8701 WATERTOWN PLANK ROAD	MILWAUKEE	WI	532263548	390806261	501C(3)	$157,674	CLINICAL RESEARCH CENTER
THE MEDICAL COLLEGE OF WISCONSIN
8701 WATERTOWN PLANK ROAD	MILWAUKEE	WI	532263548	390806261	501C(3)	$360,087	CF CARE CENTER
THE OHIO STATE UNIVERSITY
1960 KENNY ROAD	COLUMBUS	OH	432101016	316025986	IRC 115	$125,000	RESEARCH
THE RECTOR AND VISITORS OF THE UNIVERSITY OF VIRGINIA
1001 NORTH EMMET STREET	CHARLOTTESVILLE	VA	229044195	546001796	501C(3)	$74,703	ADULT CARE
THE RECTOR AND VISITORS OF THE UNIVERSITY OF VIRGINIA
1001 NORTH EMMET STREET	CHARLOTTESVILLE	VA	229044195	546001796	501C(3)	$121,811	CLINICAL RESEARCH CENTER
THE RECTOR AND VISITORS OF THE UNIVERSITY OF VIRGINIA
1001 NORTH EMMET STREET	CHARLOTTESVILLE	VA	229044195	546001796	501C(3)	$264,930	CF CARE CENTER
THE REGENTS OF THE UNIVERSITY OF CALIFORNIA DAVIS
ONE SHIELDS AVENUE	DAVIS	CA	95618	946036494	501C(3)	$40,126	ADULT CARE
THE REGENTS OF THE UNIVERSITY OF CALIFORNIA DAVIS
ONE SHIELDS AVENUE	DAVIS	CA	95618	946036494	501C(3)	$118,779	CLINICAL RESEARCH CENTER
THE REGENTS OF THE UNIVERSITY OF CALIFORNIA DAVIS
ONE SHIELDS AVENUE	DAVIS	CA	95618	946036494	501C(3)	$158,075	CF CARE CENTER
THE REGENTS OF THE UNIVERSITY OF CALIFORNIA LOS ANGELES
10889 WILSHIRE BOULEVARD	LOS ANGELES	CA	900951406	956006143	501C(3)	$92,880	ADULT CARE
THE REGENTS OF THE UNIVERSITY OF CALIFORNIA LOS ANGELES
10889 WILSHIRE BOULEVARD	LOS ANGELES	CA	900951406	956006143	501C(3)	$193,583	CF CARE CENTER
THE REGENTS OF THE UNIVERSITY OF CALIFORNIA LOS ANGELES
10889 WILSHIRE BOULEVARD	LOS ANGELES	CA	900951406	956006143	501C(3)	$362,255	CLINICAL RESEARCH STUDY
THE REGENTS OF THE UNIVERSITY OF CALIFORNIA LOS ANGELES
10889 WILSHIRE BOULEVARD	LOS ANGELES	CA	900951406	956006143	501C(3)	$662,300	THERAPEUTICS DISCOVERY RESEARCH
THE REGENTS OF THE UNIVERSITY OF CALIFORNIA SAN DIEGO
9500 GILMAN DRIVE	LA JOLLA	CA	920930953	956006144	501C(3)	$84,000	PILOT STUDY
THE REGENTS OF THE UNIVERSITY OF CALIFORNIA SAN DIEGO
9500 GILMAN DRIVE	LA JOLLA	CA	920930953	956006144	501C(3)	$89,600	CLINICAL RESEARCH STUDY
THE REGENTS OF THE UNIVERSITY OF CALIFORNIA SAN DIEGO
9500 GILMAN DRIVE	LA JOLLA	CA	920930953	956006144	501C(3)	$125,777	CLINICAL RESEARCH CENTER
THE REGENTS OF THE UNIVERSITY OF CALIFORNIA SAN DIEGO
9500 GILMAN DRIVE	LA JOLLA	CA	920930953	956006144	501C(3)	$319,070	CF CARE CENTER
THE REGENTS OF THE UNIVERSITY OF CALIFORNIA SAN FRANCISCO
490 ILLINOIS STREET 4TH FLOOR	SAN FRANCISCO	CA	94143	946036493	501C(3)	$41,142	ADULT CARE
THE REGENTS OF THE UNIVERSITY OF CALIFORNIA SAN FRANCISCO
490 ILLINOIS STREET 4TH FLOOR	SAN FRANCISCO	CA	94143	946036493	501C(3)	$145,600	CLINICAL CARE RESEARCH
THE REGENTS OF THE UNIVERSITY OF CALIFORNIA SAN FRANCISCO
490 ILLINOIS STREET 4TH FLOOR	SAN FRANCISCO	CA	94143	946036493	501C(3)	$175,000	RESEARCH CENTER
THE REGENTS OF THE UNIVERSITY OF CALIFORNIA SAN FRANCISCO
490 ILLINOIS STREET 4TH FLOOR	SAN FRANCISCO	CA	94143	946036493	501C(3)	$213,117	CLINICAL RESEARCH CENTER
THE REGENTS OF THE UNIVERSITY OF CALIFORNIA SAN FRANCISCO
490 ILLINOIS STREET 4TH FLOOR	SAN FRANCISCO	CA	94143	946036493	501C(3)	$274,000	CLINICAL RESEARCH STUDY
THE REGENTS OF THE UNIVERSITY OF CALIFORNIA SAN FRANCISCO
490 ILLINOIS STREET 4TH FLOOR	SAN FRANCISCO	CA	94143	946036493	501C(3)	$311,064	TRAINING
THE REGENTS OF THE UNIVERSITY OF CALIFORNIA SAN FRANCISCO
490 ILLINOIS STREET 4TH FLOOR	SAN FRANCISCO	CA	94143	946036493	501C(3)	$353,865	CF CARE CENTER
THE REGENTS OF THE UNIVERSITY OF CALIFORNIA SAN FRANCISCO
490 ILLINOIS STREET 4TH FLOOR	SAN FRANCISCO	CA	94143	946036493	501C(3)	$375,779	THERAPEUTICS DISCOVERY RESEARCH
THE REGENTS OF THE UNIVERSITY OF CALIFORNIA SAN FRANCISCO
490 ILLINOIS STREET 4TH FLOOR	SAN FRANCISCO	CA	94143	946036493	501C(3)	$668,840	RESEARCH
THE REGENTS OF THE UNIVERSITY OF MICHIGAN
3003 SOUTH STATE STREET	ANN ARBOR	MI	481091274	386006309	501C(3)	$22,812	ADHERENCE
THE REGENTS OF THE UNIVERSITY OF MICHIGAN
3003 SOUTH STATE STREET	ANN ARBOR	MI	481091274	386006309	501C(3)	$90,151	ADULT CARE
THE REGENTS OF THE UNIVERSITY OF MICHIGAN
3003 SOUTH STATE STREET	ANN ARBOR	MI	481091274	386006309	501C(3)	$131,500	TRAINING
THE REGENTS OF THE UNIVERSITY OF MICHIGAN
3003 SOUTH STATE STREET	ANN ARBOR	MI	481091274	386006309	501C(3)	$226,791	CLINICAL RESEARCH CENTER
THE REGENTS OF THE UNIVERSITY OF MICHIGAN
3003 SOUTH STATE STREET	ANN ARBOR	MI	481091274	386006309	501C(3)	$439,677	THERAPEUTICS DISCOVERY RESEARCH
THE REGENTS OF THE UNIVERSITY OF MICHIGAN
3003 SOUTH STATE STREET	ANN ARBOR	MI	481091274	386006309	501C(3)	$472,706	CF CARE CENTER
THE REGENTS OF THE UNIVERSITY OF MICHIGAN
3003 SOUTH STATE STREET	ANN ARBOR	MI	481091274	386006309	501C(3)	$662,999	CLINICAL RESEARCH STUDY
THE REGENTS OF THE UNIVERSITY OF MICHIGAN
3003 SOUTH STATE STREET	ANN ARBOR	MI	481091274	386006309	501C(3)	$1,218,990	CLINICAL CARE RESEARCH
THE REGENTS OF THE UNIVERSITY OF MINNESOTA
COURTHOUSE DEPT 106	BAGLEY	MN	56621	416007513	501C(3)	$35,487	CLINICAL RESEARCH
THE REGENTS OF THE UNIVERSITY OF MINNESOTA
COURTHOUSE DEPT 106	BAGLEY	MN	56621	416007513	501C(3)	$50,679	ADHERENCE
THE REGENTS OF THE UNIVERSITY OF MINNESOTA
COURTHOUSE DEPT 106	BAGLEY	MN	56621	416007513	501C(3)	$62,000	TRAINING
THE REGENTS OF THE UNIVERSITY OF MINNESOTA
COURTHOUSE DEPT 106	BAGLEY	MN	56621	416007513	501C(3)	$63,100	RESEARCH STUDY
THE REGENTS OF THE UNIVERSITY OF MINNESOTA
COURTHOUSE DEPT 106	BAGLEY	MN	56621	416007513	501C(3)	$85,841	CLINICAL RESEARCH STUDY
THE REGENTS OF THE UNIVERSITY OF MINNESOTA
COURTHOUSE DEPT 106	BAGLEY	MN	56621	416007513	501C(3)	$145,600	CLINICAL CARE RESEARCH
THE REGENTS OF THE UNIVERSITY OF MINNESOTA
COURTHOUSE DEPT 106	BAGLEY	MN	56621	416007513	501C(3)	$203,627	CLINICAL RESEARCH CENTER
THE REGENTS OF THE UNIVERSITY OF MINNESOTA
COURTHOUSE DEPT 106	BAGLEY	MN	56621	416007513	501C(3)	$358,491	ADULT CARE
THE REGENTS OF THE UNIVERSITY OF MINNESOTA
COURTHOUSE DEPT 106	BAGLEY	MN	56621	416007513	501C(3)	$454,365	CF CARE CENTER
THE RESEARCH INSTITUTE AT NATIONWIDE CHILDREN'S HOSPITAL
700 CHILDRENS DRIVE	COLUMBUS	OH	432052664	316056230	501C(3)	$39,097	THERAPEUTICS DISCOVERY RESEARCH
THE RESEARCH INSTITUTE AT NATIONWIDE CHILDREN'S HOSPITAL
700 CHILDRENS DRIVE	COLUMBUS	OH	432052664	316056230	501C(3)	$56,000	PILOT STUDY
THE RESEARCH INSTITUTE AT NATIONWIDE CHILDREN'S HOSPITAL
700 CHILDRENS DRIVE	COLUMBUS	OH	432052664	316056230	501C(3)	$149,786	QUALITY IMPROVEMENT
THE RESEARCH INSTITUTE AT NATIONWIDE CHILDREN'S HOSPITAL
700 CHILDRENS DRIVE	COLUMBUS	OH	432052664	316056230	501C(3)	$229,000	TRAINING
THE RESEARCH INSTITUTE AT NATIONWIDE CHILDREN'S HOSPITAL
700 CHILDRENS DRIVE	COLUMBUS	OH	432052664	316056230	501C(3)	$250,000	RESEARCH
THE RESEARCH INSTITUTE AT NATIONWIDE CHILDREN'S HOSPITAL
700 CHILDRENS DRIVE	COLUMBUS	OH	432052664	316056230	501C(3)	$356,615	CLINICAL RESEARCH CENTER
THE RESEARCH INSTITUTE AT NATIONWIDE CHILDREN'S HOSPITAL
700 CHILDRENS DRIVE	COLUMBUS	OH	432052664	316056230	501C(3)	$432,730	CF CARE CENTER
THE RESEARCH INSTITUTE AT NATIONWIDE CHILDREN'S HOSPITAL
700 CHILDRENS DRIVE	COLUMBUS	OH	432052664	316056230	501C(3)	$500,000	RESEARCH CENTER
THE ROCKEFELLER UNIVERSITY
1230 YORK AVENUE	NEW YORK	NY	10065	131624158	501C(3)	$65,450	RESEARCH STUDY
THE ROCKEFELLER UNIVERSITY
1230 YORK AVENUE	NEW YORK	NY	10065	131624158	501C(3)	$139,116	RESEARCH
THE SCRIPPS RESEARCH INSTITUTE
10550 N TORREY PINES ROAD	LA JOLLA	CA	92307	330435954	501C(3)	$65,450	RESEARCH STUDY
THE TOLEDO HOSPITAL
2142 N COVE BLVD	TOLEDO	OH	43606	344428256	501C(3)	$124,768	CLINICAL RESEARCH CENTER
THE TOLEDO HOSPITAL
2142 N COVE BLVD	TOLEDO	OH	43606	344428256	501C(3)	$179,190	CF CARE CENTER
THE TRUSTEES OF COLUMBIA UNIVERSITY IN THE CITY OF NEW YORK
630 WEST 168TH STREET	NEW YORK	NY	100323702	135598093	501C(3)	$37,828	ADULT CARE
THE TRUSTEES OF COLUMBIA UNIVERSITY IN THE CITY OF NEW YORK
630 WEST 168TH STREET	NEW YORK	NY	100323702	135598093	501C(3)	$145,600	CLINICAL CARE RESEARCH
THE TRUSTEES OF COLUMBIA UNIVERSITY IN THE CITY OF NEW YORK
630 WEST 168TH STREET	NEW YORK	NY	100323702	135598093	501C(3)	$342,474	RESEARCH
THE TRUSTEES OF COLUMBIA UNIVERSITY IN THE CITY OF NEW YORK
630 WEST 168TH STREET	NEW YORK	NY	100323702	135598093	501C(3)	$411,415	CF CARE CENTER
THE TRUSTEES OF COLUMBIA UNIVERSITY IN THE CITY OF NEW YORK
630 WEST 168TH STREET	NEW YORK	NY	100323702	135598093	501C(3)	$430,974	CLINICAL RESEARCH CENTER
THE UNIVERSITY OF ALABAMA AT BIRMINGHAM
1720 2ND AVENUE SOUTH	BIRMINGHAM	AL	352940111	636005396	501C(3)	$34,136	ADHERENCE
THE UNIVERSITY OF ALABAMA AT BIRMINGHAM
1720 2ND AVENUE SOUTH	BIRMINGHAM	AL	352940111	636005396	501C(3)	$175,450	RESEARCH STUDY
THE UNIVERSITY OF ALABAMA AT BIRMINGHAM
1720 2ND AVENUE SOUTH	BIRMINGHAM	AL	352940111	636005396	501C(3)	$198,500	TRAINING
THE UNIVERSITY OF ALABAMA AT BIRMINGHAM
1720 2ND AVENUE SOUTH	BIRMINGHAM	AL	352940111	636005396	501C(3)	$207,827	CLINICAL RESEARCH
THE UNIVERSITY OF ALABAMA AT BIRMINGHAM
1720 2ND AVENUE SOUTH	BIRMINGHAM	AL	352940111	636005396	501C(3)	$306,000	PILOT STUDY
THE UNIVERSITY OF ALABAMA AT BIRMINGHAM
1720 2ND AVENUE SOUTH	BIRMINGHAM	AL	352940111	636005396	501C(3)	$393,875	CF CARE CENTER
THE UNIVERSITY OF ALABAMA AT BIRMINGHAM
1720 2ND AVENUE SOUTH	BIRMINGHAM	AL	352940111	636005396	501C(3)	$404,022	QUALITY IMPROVEMENT
THE UNIVERSITY OF ALABAMA AT BIRMINGHAM
1720 2ND AVENUE SOUTH	BIRMINGHAM	AL	352940111	636005396	501C(3)	$462,562	CLINICAL RESEARCH CENTER
THE UNIVERSITY OF ALABAMA AT BIRMINGHAM
1720 2ND AVENUE SOUTH	BIRMINGHAM	AL	352940111	636005396	501C(3)	$550,000	RESEARCH CENTER
THE UNIVERSITY OF ALABAMA AT BIRMINGHAM
1720 2ND AVENUE SOUTH	BIRMINGHAM	AL	352940111	636005396	501C(3)	$670,668	THERAPEUTICS DISCOVERY RESEARCH
THE UNIVERSITY OF ALABAMA AT BIRMINGHAM
1720 2ND AVENUE SOUTH	BIRMINGHAM	AL	352940111	636005396	501C(3)	$1,158,904	CLINICAL RESEARCH STUDY
THE UNIVERSITY OF ALABAMA AT BIRMINGHAM
1720 2ND AVENUE SOUTH	BIRMINGHAM	AL	352940111	636005396	501C(3)	$1,218,775	RESEARCH
THE UNIVERSITY OF CENTRAL FLORIDA BOARD OF TRUSTEES
12201 RESEARCH PARKWAY	ORLANDO	FL	32826	592924021	170(B)(1)(A)(II)	$56,000	PILOT STUDY
THE UNIVERSITY OF CHICAGO
225 EAST CHICAGO AVENUE	CHICAGO	IL	606112991	362177139	501C(3)	$146,070	CF CARE CENTER
THE UNIVERSITY OF MARYLAND COLLEGE PARK
7809 REGENTS DRIVE	COLLEGE PARK	MD	207425141	526002033	IRC 115	$20,525	RESEARCH STUDY
THE UNIVERSITY OF MARYLAND COLLEGE PARK
7809 REGENTS DRIVE	COLLEGE PARK	MD	207425141	526002033	IRC 115	$53,766	PILOT STUDY
THE UNIVERSITY OF NORTH CAROLINA AT CHAPEL HILL
104 AIRPORT DRIVE SUITE 2200	CHAPEL HILL	NC	275991350	566001393	501C(3)	$40,402	ADULT CARE
THE UNIVERSITY OF NORTH CAROLINA AT CHAPEL HILL
104 AIRPORT DRIVE SUITE 2200	CHAPEL HILL	NC	275991350	566001393	501C(3)	$117,142	CLINICAL RESEARCH
THE UNIVERSITY OF NORTH CAROLINA AT CHAPEL HILL
104 AIRPORT DRIVE SUITE 2200	CHAPEL HILL	NC	275991350	566001393	501C(3)	$260,435	RESEARCH STUDY
THE UNIVERSITY OF NORTH CAROLINA AT CHAPEL HILL
104 AIRPORT DRIVE SUITE 2200	CHAPEL HILL	NC	275991350	566001393	501C(3)	$317,750	TRAINING
THE UNIVERSITY OF NORTH CAROLINA AT CHAPEL HILL
104 AIRPORT DRIVE SUITE 2200	CHAPEL HILL	NC	275991350	566001393	501C(3)	$465,000	PILOT STUDY
THE UNIVERSITY OF NORTH CAROLINA AT CHAPEL HILL
104 AIRPORT DRIVE SUITE 2200	CHAPEL HILL	NC	275991350	566001393	501C(3)	$484,855	CLINICAL RESEARCH STUDY
THE UNIVERSITY OF NORTH CAROLINA AT CHAPEL HILL
104 AIRPORT DRIVE SUITE 2200	CHAPEL HILL	NC	275991350	566001393	501C(3)	$500,400	CF CARE CENTER
THE UNIVERSITY OF NORTH CAROLINA AT CHAPEL HILL
104 AIRPORT DRIVE SUITE 2200	CHAPEL HILL	NC	275991350	566001393	501C(3)	$550,000	RESEARCH CENTER
THE UNIVERSITY OF NORTH CAROLINA AT CHAPEL HILL
104 AIRPORT DRIVE SUITE 2200	CHAPEL HILL	NC	275991350	566001393	501C(3)	$809,392	CLINICAL RESEARCH CENTER
THE UNIVERSITY OF NORTH CAROLINA AT CHAPEL HILL
104 AIRPORT DRIVE SUITE 2200	CHAPEL HILL	NC	275991350	566001393	501C(3)	$1,802,627	RESEARCH
THE UNIVERSITY OF NORTH CAROLINA AT CHAPEL HILL
104 AIRPORT DRIVE SUITE 2200	CHAPEL HILL	NC	275991350	566001393	501C(3)	$2,000,625	THERAPEUTICS DISCOVERY RESEARCH
THE UNIVERSITY OF TENNESSEE
63 SOUTH DUNLAP STREET	MEMPHIS	TN	38163	626001636	IRC 115	$183,935	CF CARE CENTER
THE UNIVERSITY OF TEXAS AT AUSTIN
110 INNER CAMPUS DR	AUSTIN	TX	78712	746000203	501C(3)	$344,250	THERAPEUTICS DISCOVERY RESEARCH
THE UNIVERSITY OF TEXAS HEALTH SCIENCE CENTER AT HOUSTON
7000 FANNIN STREET	HOUSTON	TX	77030	741761309	501C(3)	$1,131,597	THERAPEUTICS DISCOVERY RESEARCH
THE UNIVERSITY OF TEXAS HEALTH SCIENCE CENTER AT SAN ANTONIO
7703 FLOYD CURL DRIVE	SAN ANTONIO	TX	782293900	741586031	501C(3)	$195,686	CLINICAL RESEARCH STUDY
THE UNIVERSITY OF TEXAS HEALTH SCIENCE CENTER AT SAN ANTONIO
7703 FLOYD CURL DRIVE	SAN ANTONIO	TX	782293900	741586031	501C(3)	$196,670	CF CARE CENTER
THE UNIVERSITY OF TEXAS SOUTHWESTERN MEDICAL CENTER
5323 HARRY HINES BLVD	DALLAS	TX	753909020	756002868	170(B)(1)(A)(V)	$14,364	CLINICAL RESEARCH
THE UNIVERSITY OF TEXAS SOUTHWESTERN MEDICAL CENTER
5323 HARRY HINES BLVD	DALLAS	TX	753909020	756002868	170(B)(1)(A)(V)	$33,683	ADHERENCE
THE UNIVERSITY OF TEXAS SOUTHWESTERN MEDICAL CENTER
5323 HARRY HINES BLVD	DALLAS	TX	753909020	756002868	170(B)(1)(A)(V)	$41,142	ADULT CARE
THE UNIVERSITY OF TEXAS SOUTHWESTERN MEDICAL CENTER
5323 HARRY HINES BLVD	DALLAS	TX	753909020	756002868	170(B)(1)(A)(V)	$128,385	TRAINING
THE UNIVERSITY OF TEXAS SOUTHWESTERN MEDICAL CENTER
5323 HARRY HINES BLVD	DALLAS	TX	753909020	756002868	170(B)(1)(A)(V)	$296,346	THERAPEUTICS DISCOVERY RESEARCH
THE UNIVERSITY OF TEXAS SOUTHWESTERN MEDICAL CENTER
5323 HARRY HINES BLVD	DALLAS	TX	753909020	756002868	170(B)(1)(A)(V)	$321,952	CLINICAL RESEARCH STUDY
THE UNIVERSITY OF TEXAS SOUTHWESTERN MEDICAL CENTER
5323 HARRY HINES BLVD	DALLAS	TX	753909020	756002868	170(B)(1)(A)(V)	$479,537	CLINICAL RESEARCH CENTER
THE UNIVERSITY OF TEXAS SOUTHWESTERN MEDICAL CENTER
5323 HARRY HINES BLVD	DALLAS	TX	753909020	756002868	170(B)(1)(A)(V)	$486,570	CF CARE CENTER
THE UNIVERSITY OF VERMONT AND STATE AGRICULTURAL COLLEGE
85 SOUTH PROSPECT STREET	BURLINGTON	VT	05405	030179440	501C(3)	$40,026	ADULT CARE
THE UNIVERSITY OF VERMONT AND STATE AGRICULTURAL COLLEGE
85 SOUTH PROSPECT STREET	BURLINGTON	VT	05405	030179440	501C(3)	$124,913	CLINICAL RESEARCH CENTER
THE UNIVERSITY OF VERMONT AND STATE AGRICULTURAL COLLEGE
85 SOUTH PROSPECT STREET	BURLINGTON	VT	05405	030179440	501C(3)	$263,840	RESEARCH
THE VANDERBILT UNIVERSITY
2301 VANDERBILT PLACE	NASHVILLE	TN	372406310	620476822	501C(3)	$54,000	PILOT STUDY
THE VANDERBILT UNIVERSITY
2301 VANDERBILT PLACE	NASHVILLE	TN	372406310	620476822	501C(3)	$65,396	RESEARCH STUDY
THOMAS JEFFERSON UNIVERSITY
33 S 9TH STREET	PHILADELPHIA	PA	19107	231352651	501C(3)	$90,204	CLINICAL RESEARCH CENTER
THOMAS JEFFERSON UNIVERSITY
33 S 9TH STREET	PHILADELPHIA	PA	19107	231352651	501C(3)	$142,323	CF CARE CENTER
TRUSTEES OF BOSTON UNIVERSITY
881 COMMONWEALTH AVENUE	BOSTON	MA	02215	042103547	501C(3)	$56,000	PILOT STUDY
TRUSTEES OF BOSTON UNIVERSITY
881 COMMONWEALTH AVENUE	BOSTON	MA	02215	042103547	501C(3)	$136,414	RESEARCH
TRUSTEES OF BOSTON UNIVERSITY
881 COMMONWEALTH AVENUE	BOSTON	MA	02215	042103547	501C(3)	$224,000	THERAPEUTICS DISCOVERY RESEARCH
TRUSTEES OF DARTMOUTH COLLEGE
OFFICE OF SPONSORED PROJECTS	HANOVER	NH	037551421	020222111	501C(3)	$188,542	CLINICAL RESEARCH STUDY
TRUSTEES OF DARTMOUTH COLLEGE
OFFICE OF SPONSORED PROJECTS	HANOVER	NH	037551421	020222111	501C(3)	$321,922	QUALITY IMPROVEMENT
TRUSTEES OF DARTMOUTH COLLEGE
OFFICE OF SPONSORED PROJECTS	HANOVER	NH	037551421	020222111	501C(3)	$720,000	RESEARCH CENTER
TRUSTEES OF DARTMOUTH COLLEGE
OFFICE OF SPONSORED PROJECTS	HANOVER	NH	037551421	020222111	501C(3)	$804,997	RESEARCH
TRUSTEES OF INDIANA UNIVERSITY
509 E 3RD STREET	BLOOMINGTON	IN	474013654	356001673	501C(3)	$46,440	ADULT CARE
TRUSTEES OF INDIANA UNIVERSITY
509 E 3RD STREET	BLOOMINGTON	IN	474013654	356001673	501C(3)	$104,000	PILOT STUDY
TRUSTEES OF INDIANA UNIVERSITY
509 E 3RD STREET	BLOOMINGTON	IN	474013654	356001673	501C(3)	$195,500	TRAINING
TRUSTEES OF INDIANA UNIVERSITY
509 E 3RD STREET	BLOOMINGTON	IN	474013654	356001673	501C(3)	$199,174	QUALITY IMPROVEMENT
TRUSTEES OF INDIANA UNIVERSITY
509 E 3RD STREET	BLOOMINGTON	IN	474013654	356001673	501C(3)	$358,126	CLINICAL RESEARCH CENTER
TRUSTEES OF INDIANA UNIVERSITY
509 E 3RD STREET	BLOOMINGTON	IN	474013654	356001673	501C(3)	$468,133	CF CARE CENTER
TRUSTEES OF INDIANA UNIVERSITY
509 E 3RD STREET	BLOOMINGTON	IN	474013654	356001673	501C(3)	$1,175,289	CLINICAL RESEARCH STUDY
TRUSTEES OF THE UNIVERSITY OF PENNSYLVANIA
3451 WALNUT STREET	PHILADELPHIA	PA	191046284	231352685	501C(3)	$6,820	CLINICAL RESEARCH
TRUSTEES OF THE UNIVERSITY OF PENNSYLVANIA
3451 WALNUT STREET	PHILADELPHIA	PA	191046284	231352685	501C(3)	$65,450	RESEARCH STUDY
TRUSTEES OF THE UNIVERSITY OF PENNSYLVANIA
3451 WALNUT STREET	PHILADELPHIA	PA	191046284	231352685	501C(3)	$87,287	ADULT CARE
TRUSTEES OF THE UNIVERSITY OF PENNSYLVANIA
3451 WALNUT STREET	PHILADELPHIA	PA	191046284	231352685	501C(3)	$152,943	CLINICAL RESEARCH STUDY
TRUSTEES OF THE UNIVERSITY OF PENNSYLVANIA
3451 WALNUT STREET	PHILADELPHIA	PA	191046284	231352685	501C(3)	$162,000	RESEARCH
TRUSTEES OF THE UNIVERSITY OF PENNSYLVANIA
3451 WALNUT STREET	PHILADELPHIA	PA	191046284	231352685	501C(3)	$174,121	THERAPEUTICS DISCOVERY RESEARCH
TRUSTEES OF THE UNIVERSITY OF PENNSYLVANIA
3451 WALNUT STREET	PHILADELPHIA	PA	191046284	231352685	501C(3)	$272,700	CF CARE CENTER
TRUSTEES OF THE UNIVERSITY OF PENNSYLVANIA
3451 WALNUT STREET	PHILADELPHIA	PA	191046284	231352685	501C(3)	$510,288	CLINICAL CARE RESEARCH
TUFTS MEDICAL CENTER
800 WASHINGTON STREET	BOSTON	MA	02111	043400617	501C(3)	$29,500	CF CARE CENTER
UNITED STATES ADULT CYSTIC FIBROSIS ASSOCIATION
4646 NE DIVISION STREET	GRESHAM	OR	97030	931036770	501C(3)	$10,000	COMMUNITY IMPACT
UNIVERSITY AT BUFFALO PEDIATRIC ASSOCIATES
1001 MAIN ST	BUFFALO	NY	14203	161238821	501C(3)	$198,065	CF CARE CENTER
UNIVERSITY HOSPITALS OF CLEVELAND RAINBOW BABIES
11100 EUCLID AVENUE	CLEVELAND	OH	44106	341567805	501C(3)	$21,922	CLINICAL RESEARCH CENTER
UNIVERSITY HOSPITALS OF CLEVELAND RAINBOW BABIES
11100 EUCLID AVENUE	CLEVELAND	OH	44106	341567805	501C(3)	$38,620	ADULT CARE
UNIVERSITY HOSPITALS OF CLEVELAND RAINBOW BABIES
11100 EUCLID AVENUE	CLEVELAND	OH	44106	341567805	501C(3)	$274,975	CF CARE CENTER
UNIVERSITY OF CINCINNATI
51 GOODMAN DR	CINCINNATI	OH	452210222	316000989	501C(3)	$72,030	CLINICAL RESEARCH CENTER
UNIVERSITY OF CINCINNATI
51 GOODMAN DR	CINCINNATI	OH	452210222	316000989	501C(3)	$100,000	CLINICAL RESEARCH STUDY
UNIVERSITY OF CINCINNATI
51 GOODMAN DR	CINCINNATI	OH	452210222	316000989	501C(3)	$202,115	CF CARE CENTER
UNIVERSITY OF CINCINNATI PHYSICIANS COMPANY
3200 BURNET AVENUE	CINCINNATI	OH	45229	311405915	501C(3)	$21,090	CLINICAL RESEARCH CENTER
UNIVERSITY OF FLORIDA
SUITE 1250 EAST CAMPUS OFFICE	GAINESVILLE	FL	326115500	596002052	IRC 115	$35,640	ADULT CARE	BUILDING
UNIVERSITY OF FLORIDA
SUITE 1250 EAST CAMPUS OFFICE	GAINESVILLE	FL	326115500	596002052	IRC 115	$61,975	TRAINING	BUILDING
UNIVERSITY OF FLORIDA
SUITE 1250 EAST CAMPUS OFFICE	GAINESVILLE	FL	326115500	596002052	IRC 115	$110,000	PILOT STUDY	BUILDING
UNIVERSITY OF FLORIDA
SUITE 1250 EAST CAMPUS OFFICE	GAINESVILLE	FL	326115500	596002052	IRC 115	$138,497	CLINICAL RESEARCH CENTER	BUILDING
UNIVERSITY OF FLORIDA
SUITE 1250 EAST CAMPUS OFFICE	GAINESVILLE	FL	326115500	596002052	IRC 115	$268,785	CF CARE CENTER	BUILDING
UNIVERSITY OF GEORGIA RESEARCH FOUNDATION INC DEPARTMENT OF INFECTIOUS DI
310 EAST CAMPUS ROAD	ATHENS	GA	30602	581353149	501C(3)	$56,000	PILOT STUDY
UNIVERSITY OF IOWA
105 JESSUP HALL	IOWA CITY	IA	52242	426004813	501C(3)	$69,500	TRAINING
UNIVERSITY OF IOWA
105 JESSUP HALL	IOWA CITY	IA	52242	426004813	501C(3)	$114,513	CLINICAL RESEARCH CENTER
UNIVERSITY OF IOWA
105 JESSUP HALL	IOWA CITY	IA	52242	426004813	501C(3)	$130,000	QUALITY IMPROVEMENT
UNIVERSITY OF IOWA
105 JESSUP HALL	IOWA CITY	IA	52242	426004813	501C(3)	$144,025	RESEARCH STUDY
UNIVERSITY OF IOWA
105 JESSUP HALL	IOWA CITY	IA	52242	426004813	501C(3)	$265,010	CF CARE CENTER
UNIVERSITY OF IOWA
105 JESSUP HALL	IOWA CITY	IA	52242	426004813	501C(3)	$604,999	THERAPEUTICS DISCOVERY RESEARCH
UNIVERSITY OF IOWA
105 JESSUP HALL	IOWA CITY	IA	52242	426004813	501C(3)	$766,500	CLINICAL RESEARCH STUDY
UNIVERSITY OF IOWA
105 JESSUP HALL	IOWA CITY	IA	52242	426004813	501C(3)	$800,000	RESEARCH CENTER
UNIVERSITY OF KANSAS CENTER FOR RESEARCH INC
2385 IRVING HILL ROAD	LAWRENCE	KS	66045	480680117	170(B)(1)(A)(II)	$200,000	CLINICAL RESEARCH STUDY
UNIVERSITY OF KANSAS MEDICAL CENTER RESEARCH INSTITUTE INC
3901 RAINBOW BLVD	KANSAS CITY	KS	66160	481108830	501C(3)	$16,316	CLINICAL RESEARCH STUDY
UNIVERSITY OF KANSAS MEDICAL CENTER RESEARCH INSTITUTE INC
3901 RAINBOW BLVD	KANSAS CITY	KS	66160	481108830	501C(3)	$52,458	ADHERENCE
UNIVERSITY OF KANSAS MEDICAL CENTER RESEARCH INSTITUTE INC
3901 RAINBOW BLVD	KANSAS CITY	KS	66160	481108830	501C(3)	$65,450	RESEARCH STUDY
UNIVERSITY OF KANSAS MEDICAL CENTER RESEARCH INSTITUTE INC
3901 RAINBOW BLVD	KANSAS CITY	KS	66160	481108830	501C(3)	$76,440	ADULT CARE
UNIVERSITY OF KANSAS MEDICAL CENTER RESEARCH INSTITUTE INC
3901 RAINBOW BLVD	KANSAS CITY	KS	66160	481108830	501C(3)	$236,295	CF CARE CENTER
UNIVERSITY OF KANSAS MEDICAL CENTER RESEARCH INSTITUTE INC
3901 RAINBOW BLVD	KANSAS CITY	KS	66160	481108830	501C(3)	$340,856	CLINICAL RESEARCH CENTER
UNIVERSITY OF KENTUCKY RESEARCH FOUNDATION
109 KINKEAD HALL	LEXINGTON	KY	40506	616033693	501C(3)	$124,397	CLINICAL RESEARCH CENTER
UNIVERSITY OF KENTUCKY RESEARCH FOUNDATION
109 KINKEAD HALL	LEXINGTON	KY	40506	616033693	501C(3)	$288,970	CF CARE CENTER
UNIVERSITY OF LOUISVILLE RESEARCH FOUNDATION INC
300 E MARKET STREET	LOUISVILLE	KY	402021959	611029626	501C(3)	$79,893	CLINICAL RESEARCH CENTER
UNIVERSITY OF LOUISVILLE RESEARCH FOUNDATION INC
300 E MARKET STREET	LOUISVILLE	KY	402021959	611029626	501C(3)	$264,597	CF CARE CENTER
UNIVERSITY OF MASSACHUSETTS MEDICAL CENTER
55 NORTH LAKE AVENUE	WORCESTER	MA	01655	043167352	IRC 115	$41,858	ADULT CARE
UNIVERSITY OF MASSACHUSETTS MEDICAL CENTER
55 NORTH LAKE AVENUE	WORCESTER	MA	01655	043167352	IRC 115	$136,987	CLINICAL RESEARCH CENTER
UNIVERSITY OF MASSACHUSETTS MEDICAL CENTER
55 NORTH LAKE AVENUE	WORCESTER	MA	01655	043167352	IRC 115	$197,545	CF CARE CENTER
UNIVERSITY OF MASSACHUSETTS MEDICAL CENTER
55 NORTH LAKE AVENUE	WORCESTER	MA	01655	043167352	IRC 115	$216,000	THERAPEUTICS DISCOVERY RESEARCH
UNIVERSITY OF MASSACHUSETTS MEDICAL CENTER
55 NORTH LAKE AVENUE	WORCESTER	MA	01655	043167352	IRC 115	$280,000	RESEARCH
UNIVERSITY OF MIAMI
PO BOX 248106 CONTROLLERS OFFICE	CORAL GABLES	FL	331242912	590624458	501C(3)	$76,064	ADULT CARE
UNIVERSITY OF MIAMI
PO BOX 248106 CONTROLLERS OFFICE	CORAL GABLES	FL	331242912	590624458	501C(3)	$80,954	CLINICAL RESEARCH STUDY
UNIVERSITY OF MIAMI
PO BOX 248106 CONTROLLERS OFFICE	CORAL GABLES	FL	331242912	590624458	501C(3)	$145,260	CLINICAL RESEARCH CENTER
UNIVERSITY OF MIAMI
PO BOX 248106 CONTROLLERS OFFICE	CORAL GABLES	FL	331242912	590624458	501C(3)	$237,247	CF CARE CENTER
UNIVERSITY OF NEBRASKA MEDICAL CENTER
987835 NEBRASKA MEDICAL CENTER	OMAHA	NE	681987835	470049123	501C(3)	$118,099	CLINICAL RESEARCH CENTER
UNIVERSITY OF NEBRASKA MEDICAL CENTER
987835 NEBRASKA MEDICAL CENTER	OMAHA	NE	681987835	470049123	501C(3)	$434,495	CF CARE CENTER
UNIVERSITY OF NEW MEXICO
1 UNIVERSITY OF NEW MEXICO	ALBUQUERQUE	NM	87131	856000642	IRC 115	$157,416	CF CARE CENTER
UNIVERSITY OF NORTH CAROLINA AT CHARLOTTE
9201 UNIVERSITY CITY BOULEVARD	CHARLOTTE	NC	28223	560791228	501C(3)	$25,765	RESEARCH
UNIVERSITY OF NOTRE DAME DU LAC
731 GRACE HALL	NOTRE DAME	IN	46556	350868188	501C(3)	$218,600	CLINICAL RESEARCH STUDY
UNIVERSITY OF PITTSBURGH
116 ATWOOD STREET	PITTSBURGH	PA	15260	250965591	501C(3)	$54,000	PILOT STUDY
UNIVERSITY OF PITTSBURGH
116 ATWOOD STREET	PITTSBURGH	PA	15260	250965591	501C(3)	$63,100	RESEARCH STUDY
UNIVERSITY OF PITTSBURGH
116 ATWOOD STREET	PITTSBURGH	PA	15260	250965591	501C(3)	$65,450	QUALITY IMPROVEMENT
UNIVERSITY OF PITTSBURGH
116 ATWOOD STREET	PITTSBURGH	PA	15260	250965591	501C(3)	$196,500	TRAINING
UNIVERSITY OF PITTSBURGH
116 ATWOOD STREET	PITTSBURGH	PA	15260	250965591	501C(3)	$199,023	CLINICAL CARE RESEARCH
UNIVERSITY OF PITTSBURGH
116 ATWOOD STREET	PITTSBURGH	PA	15260	250965591	501C(3)	$307,258	CLINICAL RESEARCH CENTER
UNIVERSITY OF PITTSBURGH
116 ATWOOD STREET	PITTSBURGH	PA	15260	250965591	501C(3)	$505,492	CLINICAL RESEARCH STUDY
UNIVERSITY OF PITTSBURGH
116 ATWOOD STREET	PITTSBURGH	PA	15260	250965591	501C(3)	$550,000	RESEARCH CENTER
UNIVERSITY OF PITTSBURGH
116 ATWOOD STREET	PITTSBURGH	PA	15260	250965591	501C(3)	$657,957	RESEARCH
UNIVERSITY OF PITTSBURGH PHYSICIANS
CLINICAL TRAIL RECEIPTS MAIL STOP	PITTSBURGH	PA	152192739	232919472	501C(3)	$49,879	ADULT CARE	UST 015801 600 GRANT ST
UNIVERSITY OF ROCHESTER
518 HYLAN BUILDING	ROCHESTER	NY	14627	160743209	501C(3)	$39,758	ADULT CARE
UNIVERSITY OF ROCHESTER
518 HYLAN BUILDING	ROCHESTER	NY	14627	160743209	501C(3)	$63,100	RESEARCH STUDY
UNIVERSITY OF ROCHESTER
518 HYLAN BUILDING	ROCHESTER	NY	14627	160743209	501C(3)	$88,233	CLINICAL RESEARCH CENTER
UNIVERSITY OF ROCHESTER
518 HYLAN BUILDING	ROCHESTER	NY	14627	160743209	501C(3)	$191,565	CF CARE CENTER
UNIVERSITY OF ROCHESTER
518 HYLAN BUILDING	ROCHESTER	NY	14627	160743209	501C(3)	$280,000	THERAPEUTICS DISCOVERY RESEARCH
UNIVERSITY OF ROCHESTER
518 HYLAN BUILDING	ROCHESTER	NY	14627	160743209	501C(3)	$558,880	RESEARCH
UNIVERSITY OF SOUTH CAROLINA
1600 HAMPTON STREET	COLUMBIA	SC	29208	576001153	IRC 115	$97,045	CF CARE CENTER
UNIVERSITY OF SOUTH FLORIDA
4202 EAST FOWLER AVENUE	TAMPA	FL	336205800	593102112	IRC 115	$69,230	CF CARE CENTER
UNIVERSITY OF SOUTH FLORIDA
4202 EAST FOWLER AVENUE	TAMPA	FL	336205800	593102112	IRC 115	$125,000	RESEARCH
UNIVERSITY OF SOUTHERN CALIFORNIA
UNIVERSITY GARDENS	LOS ANGELES	CA	900898003	951642394	501C(3)	$50,394	CLINICAL RESEARCH CENTER
UNIVERSITY OF SOUTHERN CALIFORNIA
UNIVERSITY GARDENS	LOS ANGELES	CA	900898003	951642394	501C(3)	$148,900	CF CARE CENTER
UNIVERSITY OF SOUTHERN CALIFORNIA
UNIVERSITY GARDENS	LOS ANGELES	CA	900898003	951642394	501C(3)	$209,765	THERAPEUTICS DISCOVERY RESEARCH
UNIVERSITY OF TENNESSE MEDICAL CENTER
1924 ALCOA HIGHWAY	KNOXVILLE	TN	37920	311626179	501C(3)	$154,055	CF CARE CENTER
UNIVERSITY OF TEXAS HEALTH SCIENCE CENTER AT TYLER
11937 US HIGHWAY 271	TYLER	TX	757083154	756001354	501C(3)	$82,726	CLINICAL RESEARCH CENTER
UNIVERSITY OF TEXAS HEALTH SCIENCE CENTER AT TYLER
11937 US HIGHWAY 271	TYLER	TX	757083154	756001354	501C(3)	$86,750	CF CARE CENTER
UNIVERSITY OF TEXAS MD ANDERSON CANCER CENTER
1515 HOLCOMBE BOULEVARD	HOUSTON	TX	770307009	746001118	IRC 115	$52,200	RESEARCH
UNIVERSITY OF TEXAS MD ANDERSON CANCER CENTER
1515 HOLCOMBE BOULEVARD	HOUSTON	TX	770307009	746001118	IRC 115	$125,000	THERAPEUTICS DISCOVERY RESEARCH
UNIVERSITY OF UTAH
201 S PRESIDENTS CIRCLE	SALT LAKE CITY	UT	841120922	876000525	501C(3)	$63,100	RESEARCH STUDY
UNIVERSITY OF UTAH
201 S PRESIDENTS CIRCLE	SALT LAKE CITY	UT	841120922	876000525	501C(3)	$149,721	TRAINING
UNIVERSITY OF UTAH
201 S PRESIDENTS CIRCLE	SALT LAKE CITY	UT	841120922	876000525	501C(3)	$222,821	CLINICAL RESEARCH CENTER
UNIVERSITY OF UTAH
201 S PRESIDENTS CIRCLE	SALT LAKE CITY	UT	841120922	876000525	501C(3)	$485,165	CF CARE CENTER
UNIVERSITY OF VERMONT MEDICAL CENTER INC
111 COLCHESTER AVENUE	BURLINGTON	VT	05401	030219309	501C(3)	$21,324	ADHERENCE
UNIVERSITY OF VERMONT MEDICAL CENTER INC
111 COLCHESTER AVENUE	BURLINGTON	VT	05401	030219309	501C(3)	$199,065	CF CARE CENTER
UNIVERSITY OF WASHINGTON
4300 ROOSEVELT WAY NE	SEATTLE	WA	98105	916001537	IRC 115	$32,432	THERAPEUTICS DISCOVERY RESEARCH
UNIVERSITY OF WASHINGTON
4300 ROOSEVELT WAY NE	SEATTLE	WA	98105	916001537	IRC 115	$82,080	ADULT CARE
UNIVERSITY OF WASHINGTON
4300 ROOSEVELT WAY NE	SEATTLE	WA	98105	916001537	IRC 115	$109,999	PILOT STUDY
UNIVERSITY OF WASHINGTON
4300 ROOSEVELT WAY NE	SEATTLE	WA	98105	916001537	IRC 115	$210,460	CF CARE CENTER
UNIVERSITY OF WASHINGTON
4300 ROOSEVELT WAY NE	SEATTLE	WA	98105	916001537	IRC 115	$323,044	CLINICAL CARE RESEARCH
UNIVERSITY OF WASHINGTON
4300 ROOSEVELT WAY NE	SEATTLE	WA	98105	916001537	IRC 115	$386,395	CLINICAL RESEARCH CENTER
UNIVERSITY OF WASHINGTON
4300 ROOSEVELT WAY NE	SEATTLE	WA	98105	916001537	IRC 115	$518,465	RESEARCH STUDY
UNIVERSITY OF WASHINGTON
4300 ROOSEVELT WAY NE	SEATTLE	WA	98105	916001537	IRC 115	$549,858	RESEARCH
UNIVERSITY OF WASHINGTON
4300 ROOSEVELT WAY NE	SEATTLE	WA	98105	916001537	IRC 115	$801,455	RESEARCH CENTER
UNIVERSITY OF WASHINGTON
4300 ROOSEVELT WAY NE	SEATTLE	WA	98105	916001537	IRC 115	$1,093,121	CLINICAL RESEARCH STUDY
UNIVERSITY OF WASHINGTON
4300 ROOSEVELT WAY NE	SEATTLE	WA	98105	916001537	IRC 115	$1,204,801	CLINICAL RESEARCH
UNIVERSITY SYSTEM OF NEW HAMPSHIRE
5 CHENELL DRIVE	CONCORD	NH	03301	026000937	501C(3)	$2,679,306	QUALITY IMPROVEMENT
UPSTATE AFFILIATE ORGANIZATION
300 E MCBEE AVE	GREENVILLE	SC	29601	811723202	501C(3)	$104,275	CF CARE CENTER
UTAH STATE UNIVERSITY
1415 OLD MAIN HILL	LOGAN	UT	843222400	876000528	501C(3)	$139,943	RESEARCH
VALLEY CHILDREN'S HOSPITAL
9300 VALLEY CHILDRENS PLACE	MADERA	CA	93636	941294954	501C(3)	$100,305	CLINICAL RESEARCH CENTER
VALLEY CHILDREN'S HOSPITAL
9300 VALLEY CHILDRENS PLACE	MADERA	CA	93636	941294954	501C(3)	$242,103	CF CARE CENTER
VANDERBILT UNIVERSITY MEDICAL CENTER
1161 21ST AVE SOUTH	NASHVILLE	TN	37232	352528741	501C(3)	$70,000	RESEARCH
VANDERBILT UNIVERSITY MEDICAL CENTER
1161 21ST AVE SOUTH	NASHVILLE	TN	37232	352528741	501C(3)	$142,927	CLINICAL RESEARCH CENTER
VANDERBILT UNIVERSITY MEDICAL CENTER
1161 21ST AVE SOUTH	NASHVILLE	TN	37232	352528741	501C(3)	$415,029	CF CARE CENTER
VARIETY CHILDREN'S HOSPITAL
3100 SW 62ND AVENUE	MIAMI	FL	331553009	590638499	501C(3)	$54,150	CF CARE CENTER
VHS CHILDREN'S HOSPITAL OF MICHIGAN INC
8663 WOODWARD AVE	DETROIT	MI	48201	272845064	C CORP	$108,840	CF CARE CENTER
VIA CHRISTI HOSPITAL WICHITA INC
929 N SAINT FRANCIS	WICHITA	KS	67214	481172106	501C(3)	$143,240	CF CARE CENTER
VIRGINIA COMMONWEALTH UNIVERSITY
PO BOX 843035	RICHMOND	VA	232843035	546001758	IRC 115	$34,720	ADHERENCE
VIRGINIA COMMONWEALTH UNIVERSITY
PO BOX 843035	RICHMOND	VA	232843035	546001758	IRC 115	$35,640	ADULT CARE
VIRGINIA COMMONWEALTH UNIVERSITY
PO BOX 843035	RICHMOND	VA	232843035	546001758	IRC 115	$57,251	RESEARCH STUDY
VIRGINIA COMMONWEALTH UNIVERSITY
PO BOX 843035	RICHMOND	VA	232843035	546001758	IRC 115	$62,000	TRAINING
VIRGINIA COMMONWEALTH UNIVERSITY
PO BOX 843035	RICHMOND	VA	232843035	546001758	IRC 115	$96,673	CLINICAL RESEARCH STUDY
VIRGINIA COMMONWEALTH UNIVERSITY
PO BOX 843035	RICHMOND	VA	232843035	546001758	IRC 115	$140,919	CLINICAL RESEARCH CENTER
VIRGINIA COMMONWEALTH UNIVERSITY
PO BOX 843035	RICHMOND	VA	232843035	546001758	IRC 115	$228,335	CF CARE CENTER
VIRGINIA COMMONWEALTH UNIVERSITY
PO BOX 843035	RICHMOND	VA	232843035	546001758	IRC 115	$265,000	RESEARCH
WAKE FOREST UNIVERSITY HEALTH SCIENCES
MEDICAL CENTER BLVD	WINSTONSALEM	NC	27157	223849199	501C(3)	$93,069	CLINICAL RESEARCH CENTER
WAKE FOREST UNIVERSITY HEALTH SCIENCES
MEDICAL CENTER BLVD	WINSTONSALEM	NC	27157	223849199	501C(3)	$231,169	CF CARE CENTER
WASHINGTON UNIVERSITY
700 ROSEDALE AVENUE	ST LOUIS	MO	631121408	430653611	501C(3)	$34,720	ADHERENCE
WASHINGTON UNIVERSITY
700 ROSEDALE AVENUE	ST LOUIS	MO	631121408	430653611	501C(3)	$125,000	RESEARCH
WASHINGTON UNIVERSITY
700 ROSEDALE AVENUE	ST LOUIS	MO	631121408	430653611	501C(3)	$145,600	CLINICAL CARE RESEARCH
WASHINGTON UNIVERSITY
700 ROSEDALE AVENUE	ST LOUIS	MO	631121408	430653611	501C(3)	$211,465	CLINICAL RESEARCH CENTER
WASHINGTON UNIVERSITY
700 ROSEDALE AVENUE	ST LOUIS	MO	631121408	430653611	501C(3)	$476,360	CF CARE CENTER
WAYNE STATE UNIVERSITY
5057 WOODWARD AVENUE	DETROIT	MI	48202	386028429	501C(3)	$13,067	ADULT CARE
WAYNE STATE UNIVERSITY
5057 WOODWARD AVENUE	DETROIT	MI	48202	386028429	501C(3)	$96,610	CF CARE CENTER
WAYNE STATE UNIVERSITY
5057 WOODWARD AVENUE	DETROIT	MI	48202	386028429	501C(3)	$132,271	CLINICAL RESEARCH CENTER
WEST VIRGINIA UNIVERSITY RESEARCH CORPORATION
886 CHESTNUT RIDGE ROAD	MORGANTOWN	WV	26506	550665758	501C(3)	$33,492	ADHERENCE
WEST VIRGINIA UNIVERSITY RESEARCH CORPORATION
886 CHESTNUT RIDGE ROAD	MORGANTOWN	WV	26506	550665758	501C(3)	$39,873	ADULT CARE
WEST VIRGINIA UNIVERSITY RESEARCH CORPORATION
886 CHESTNUT RIDGE ROAD	MORGANTOWN	WV	26506	550665758	501C(3)	$90,640	CLINICAL RESEARCH CENTER
WEST VIRGINIA UNIVERSITY RESEARCH CORPORATION
886 CHESTNUT RIDGE ROAD	MORGANTOWN	WV	26506	550665758	501C(3)	$233,300	CF CARE CENTER
WESTERN MICHIGAN UNIVERSITY SCHOOL OF MEDICINE
1000 OAKLAND DRIVE	KALAMAZOO	MI	49008	454135256	501C(3)	$87,953	CF CARE CENTER
WILLIAM MARSH RICE UNIVERSITY
6100 S MAIN MS-16	HOUSTON	TX	770051892	741109620	170(B)(1)(A)(II)	$110,907	PILOT STUDY
WILLIAM MARSH RICE UNIVERSITY
6100 S MAIN MS-16	HOUSTON	TX	770051892	741109620	170(B)(1)(A)(II)	$360,030	THERAPEUTICS DISCOVERY RESEARCH
YALE UNIVERSITY
150 MUNSON STREET	NEW HAVEN	CT	065208327	060646973	501C(3)	$56,000	PILOT STUDY
YALE UNIVERSITY
150 MUNSON STREET	NEW HAVEN	CT	065208327	060646973	501C(3)	$120,000	TRAINING
YALE UNIVERSITY
150 MUNSON STREET	NEW HAVEN	CT	065208327	060646973	501C(3)	$130,900	RESEARCH STUDY
YALE UNIVERSITY
150 MUNSON STREET	NEW HAVEN	CT	065208327	060646973	501C(3)	$140,000	RESEARCH
YALE UNIVERSITY
150 MUNSON STREET	NEW HAVEN	CT	065208327	060646973	501C(3)	$181,698	CF CARE CENTER
YALE UNIVERSITY
150 MUNSON STREET	NEW HAVEN	CT	065208327	060646973	501C(3)	$192,474	CLINICAL RESEARCH CENTER
YALE UNIVERSITY
150 MUNSON STREET	NEW HAVEN	CT	065208327	060646973	501C(3)	$810,000	THERAPEUTICS DISCOVERY RESEARCH
YALE UNIVERSITY
150 MUNSON STREET	NEW HAVEN	CT	065208327	060646973	501C(3)	$961,807	CLINICAL RESEARCH STUDY

Field	Value	IRS element (for citing)
Total501c3 Org	227	Total501c3OrgCnt
Total Other Org	10	TotalOtherOrgCnt

Grants Other Asst To Indiv In US GrantsOtherAsstToIndivInUSGrp (2 entries)

Grant TypeGrantTypeTxt	RecipientRecipientCnt	Cash GrantCashGrantAmt
FELLOWSHIPS	60	$711,614
COMMUNITY IMPACT	3	$25,104

Supplemental Information Detail SupplementalInformationDetail

Field	Value	IRS element (for citing)
Form And Line Reference	SCHEDULE I, PART I, LINE 2	FormAndLineReferenceDesc
Explanation	THE ORGANIZATION HAS PROCEDURES IN PLACE TO MONITOR THE SCIENTIFIC PROGRESS AND FINANCIAL ASPECTS OF GRANT FUNDS AWARDED TO ENTITIES INSIDE OF THE U.S. SPONSORED INSTITUTIONS ARE REQUIRED TO SUBMIT ANNUAL REPORTS OF EXPENDITURES AS WELL AS SCIENTIFIC PROGRESS REPORTS. SCIENTIFIC REPORTS ARE REVIEWED BY THE ORGANIZATION'S SCIENTIFIC STAFF TO ENSURE PROGRESS HAS BEEN ATTAINED. THE FINAL GRANT PAYMENT IS CONTINGENT UPON RECEIPT AND APPROVAL OF THE REPORT OF EXPENDITURES. REPORTS OF EXPENDITURES ARE REVIEWED AND APPROVED BY STAFF TO ENSURE INCURRED COSTS ARE APPROPRIATE. FOR GRANTS TO FOR-PROFIT ORGANIZATIONS THE CF FOUNDATION HAS PROCEDURES IN PLACE TO 1) SEE THAT THE GRANT FUNDS AWARDED ARE SPENT ONLY FOR THE PURPOSE FOR WHICH THE GRANT IS MADE AND 2) OBTAIN FULL AND COMPLETE REPORTS FROM THE GRANTEE ORGANIZATION ON HOW THE FUNDS ARE SPENT CONSISTENT WITH IRS GUIDELINES FOR EXPENDITURE RESPONSIBILITY. THE ORGANIZATION PERFORMS PRE-GRANT INQUIRIES DEALING WITH MATTERS SUCH AS THE IDENTITY, HISTORY, ACTIVITIES, AND PRACTICES OF THE GRANTEE TO GAIN REASONABLE ASSURANCE THAT THEY WILL USE THE GRANT FUNDS FOR THE PURPOSE FOR WHICH RECEIVED. ONCE A GRANT IS APPROVED, A WRITTEN AGREEMENT IS SIGNED BY BOTH THE ORGANIZATION AND THE GRANTEE THAT INCLUDES THE FOLLOWING AGREEMENTS: ANY AMOUNTS NOT USED FOR PURPOSES OF THE GRANT WILL BE REPAID, THE GRANTEE WILL KEEP RECORDS OF RECEIPTS AND EXPENDITURES AND MAKE THEM AVAILABLE TO THE GRANTOR AT REASONABLE TIMES, AND FUNDS CANNOT BE USED TO INFLUENCE LEGISLATION OR UNDERTAKE ANY NONEXEMPT ACTIVITY. SCHEDULE I, PART III SEE SUPPLEMENTAL INFORMATION FOR PART I, LINE 2 FOR PROCEDURES USED TO MONITOR THESE GRANTS.	ExplanationTxt

Schedule J IRS990ScheduleJ

Field	Value	IRS element (for citing)
Compensation Committee	Yes (X)	CompensationCommitteeInd
Independent Consultant	Yes (X)	IndependentConsultantInd
Form990 Of Other Organizations	Yes (X)	Form990OfOtherOrganizationsInd
Written Employment Contract	Yes (X)	WrittenEmploymentContractInd
Compensation Survey	Yes (X)	CompensationSurveyInd
Board Or Committee Approval	Yes (X)	BoardOrCommitteeApprovalInd
Severance Payment	0	SeverancePaymentInd
Supplemental Nonqual Rtr Plan	Yes (1)	SupplementalNonqualRtrPlanInd
Equity Based Comp Arrngm	0	EquityBasedCompArrngmInd
Comp Based On Revenue Of Flng Org	0	CompBasedOnRevenueOfFlngOrgInd
Comp Bsd On Rev Related Orgs	0	CompBsdOnRevRelatedOrgsInd
Comp Bsd Net Earns Flng Org	0	CompBsdNetEarnsFlngOrgInd
Comp Bsd Net Earns Rltd Orgs	0	CompBsdNetEarnsRltdOrgsInd
Any Non Fixed Payments	Yes (1)	AnyNonFixedPaymentsInd
Initial Contract Exception	0	InitialContractExceptionInd

Rltd Org Officer Trst Key Empl RltdOrgOfficerTrstKeyEmplGrp (13 entries)

TitleTitleTxt	Base Compensation Filing OrgBaseCompensationFilingOrgAmt	Compensation Based On Rltd OrgsCompensationBasedOnRltdOrgsAmt	Bonus Filing OrganizationBonusFilingOrganizationAmount	Bonus Related OrganizationsBonusRelatedOrganizationsAmt	Other Compensation Filing OrgOtherCompensationFilingOrgAmt	Other Compensation Rltd OrgsOtherCompensationRltdOrgsAmt	Deferred Compensation Flng OrgDeferredCompensationFlngOrgAmt	Deferred Comp Rltd OrgsDeferredCompRltdOrgsAmt	Nontaxable Benefits Filing OrgNontaxableBenefitsFilingOrgAmt	Nontaxable Benefits Rltd OrgsNontaxableBenefitsRltdOrgsAmt	Total Compensation Filing OrgTotalCompensationFilingOrgAmt	Total Compensation Rltd OrgsTotalCompensationRltdOrgsAmt	Comp Report Prior990 Filing OrgCompReportPrior990FilingOrgAmt	Comp Report Prior990 Rltd OrgsCompReportPrior990RltdOrgsAmt
JACK MAHLER MD
CHIEF INVESTMENT OFFICER	$614,527	$0	$446,250	$0	$201,055	$0	$606,820	$0	$30,068	$0	$1,898,720	$0	$200,000	$0
MICHAEL P BOYLE MD
PRESIDENT & CEO	$560,207	$0	$104,391	$0	$154,194	$0	$94,250	$0	$40,988	$0	$954,030	$0	$43,689	$0
MARC S GINSKY
EXECUTIVE VP, COO & SECRET	$532,525	$0	$185,895	$0	$24,591	$0	$123,823	$0	$40,988	$0	$907,822	$0	$85,224	$0
EARL LEE
MANAGING DIRECTOR, INVESTM	$428,522	$0	$296,205	$0	$976	$0	$138,345	$0	$25,354	$0	$889,402	$0	$0	$0
PRESTON CAMPBELL MD
FORMER CEO & STRATEGIC ADVISOR	$421,077	$0	$300,365	$0	$7,525	$0	$87,617	$0	$27,181	$0	$843,765	$0	$100,481	$0
ERIC KOEHRSEN
MANAGING DIRECTOR, INVESTM	$377,988	$0	$248,430	$0	$853	$0	$137,046	$0	$40,453	$0	$804,770	$0	$0	$0
WILLIAM SKACH MD
SENIOR VP, RESEARCH AFFAIR	$528,179	$0	$103,577	$0	$37,425	$0	$55,356	$0	$39,121	$0	$763,658	$0	$48,465	$0
VERA H TWIGG
EXECUTIVE VP & CFO	$422,606	$0	$117,834	$0	$19,500	$0	$62,029	$0	$26,026	$0	$647,995	$0	$36,239	$0
BRUCE MARSHALL MD
SENIOR VP, CLINICAL AFFAIR	$516,517	$0	$74,122	$0	$9,451	$0	$44,734	$0	$0	$0	$644,824	$0	$0	$0
CHRIS GEGELYS
SENIOR VP, CHIEF LEGAL OFF	$416,798	$0	$67,961	$0	$4,054	$0	$38,451	$0	$40,856	$0	$568,120	$0	$0	$0
JOHN P CLANCY MD
VP, CLINICAL RESEARCH	$423,450	$0	$50,011	$0	$4,190	$0	$25,256	$0	$36,622	$0	$539,529	$0	$0	$0
ANTHONY DURMOWICZ MD
VP, CLINICAL DEVELOPMENT	$439,648	$0	$57,960	$0	$6,566	$0	$25,407	$0	$2,600	$0	$532,181	$0	$0	$0
ALBERT FARO MD
VP, CLINICAL AFFAIRS	$369,591	$0	$45,226	$0	$3,561	$0	$22,867	$0	$38,997	$0	$480,242	$0	$0	$0

Supplemental Information Detail SupplementalInformationDetail (4 entries)

Form And Line ReferenceFormAndLineReferenceDesc	ExplanationExplanationTxt
PART I, LINE 7	SEVERAL INDIVIDUALS LISTED IN FORM 990, PART VII, SECTION A, LINE 1A, PARTICIPATED IN THE FOUNDATION'S INCENTIVE COMPENSATION PLAN, FROM WHICH NON-FIXED PAYMENTS NOT DESCRIBED IN LINES 5 AND 6 WERE PAID. THE INCENTIVE COMPENSATION PLAN PAYS NON-FIXED PAYMENTS SUBJECT TO, AND BASED ON, THE ACHIEVEMENT OF ANNUAL PERFORMANCE OBJECTIVES ESTABLISHED IN ADVANCE BY THE COMPENSATION COMMITTEE OF THE BOARD OF TRUSTEES. IN ADDITION, THE INCENTIVE COMPENSATION PLAN PAYS NON-FIXED PAYMENTS THAT RELATE TO A THREE-YEAR PERFORMANCE PERIOD, SUBJECT TO, AND BASED ON, THE ACHIEVEMENT OF LONG-TERM PERFORMANCE OBJECTIVES ESTABLISHED IN ADVANCE BY THE COMPENSATION COMMITTEE OF THE BOARD. ANY FINANCIAL PERFORMANCE OBJECTIVES ESTABLISHED UNDER THE INCENTIVE COMPENSATION PLAN DO NOT INCLUDE PROGRAM-RELATED REVENUES SUCH AS ROYALTY STREAMS OR LUMP-SUM PAYMENTS, AND SALES PROCEEDS FROM TRANSFER OF THE FOREGOING TO THIRD PARTIES RELATED TO THE DEVELOPMENT AND APPROVAL OF CF DRUGS.
FORM 990, PART VII, SECTION A	SUPPLEMENTAL NONQUALIFIED RETIREMENT PLAN: CERTAIN PERSONS LISTED IN FORM 990, PART VII, SECTION A PARTICIPATE IN A NONQUALIFIED DEFERRED COMPENSATION PLAN, UNDER WHICH INTERESTS ARE FORFEITED BY THE PARTICIPANT IF THE PARTICIPANT VOLUNTARILY TERMINATES EMPLOYMENT PRIOR TO THE DESIGNATED VESTING DATE. FURTHER INFORMATION ABOUT THE NONQUALIFIED DEFERRED COMPENSATION PLAN IN WHICH THOSE PERSONS PARTICIPATE, INCLUDING THE AMOUNT OF ANY PAYMENT MADE BY THE PLAN DURING THE REPORTING YEAR, IS PROVIDED IN THE ADDITIONAL INFORMATION FOR SCHEDULE J, PART II, BELOW.
PART II	A) NAME: M. BOYLE, M.D.; (B)(I) BASE COMPENSATION: BASE SALARY - $560,207; (B)(II) BONUS & INCENTIVE COMPENSATION: ANNUAL INCENTIVE PLAN BENEFIT (1) - $75,702, LONG-TERM INCENTIVE PLAN PAYMENT, WHICH WAS PREVIOUSLY REPORTED (6) - $28,689; (B)(III) OTHER REPORTABLE COMPENSATION: TAXABLE GENERAL ORGANIZATION GROUP TERM LIFE INSURANCE PREMIUM - $5,062, VESTED SERP ACCOUNT (7) - $149,132; (C) DEFERRED COMPENSATION: RETIREMENT BENEFIT (2) - $11,400, LONG-TERM INCENTIVE PLAN BENEFIT (6) - $82,850; (D) NONTAXABLE BENEFITS: EMPLOYER CONTRIBUTION TO GENERAL ORGANIZATION HEALTH PLAN BENEFIT - $30,725, EMPLOYEE CONTRIBUTION TO HEALTH SAVINGS ACCOUNT BENEFIT - $6,100, EMPLOYEE CONTRIBUTION TO GENERAL ORGANIZATION HEALTH PLAN BENEFIT - $4,163; (F) COMPENSATION REPORTED IN PRIOR FORM 990 (3) - $43,689. CYSTIC FIBROSIS FOUNDATION. (A) NAME: M. GINSKY.; (B)(I) BASE COMPENSATION: BASE SALARY - $532,525; (B)(II) BONUS & INCENTIVE COMPENSATION: ANNUAL INCENTIVE PLAN BENEFIT (1) - $100,671, LONG-TERM INCENTIVE PLAN PAYMENT, WHICH WAS PREVIOUSLY REPORTED (6) - $85,224; (B)(III) OTHER REPORTABLE COMPENSATION: OTHER BENEFITS INCLUDING TAXABLE GENERAL ORGANIZATION GROUP TERM LIFE INSURANCE PREMIUM - $5,091, SECTION 457(B) PLAN (5) - $19,500; (C) DEFERRED COMPENSATION: RETIREMENT BENEFIT (2) - $11,400, LONG-TERM INCENTIVE PLAN BENEFIT (6) - $82,000, SERP (4) - $30,423; (D) NONTAXABLE BENEFITS: EMPLOYER CONTRIBUTION TO GENERAL ORGANIZATION HEALTH PLAN BENEFIT - $30,725, EMPLOYEE CONTRIBUTION TO HEALTH SAVINGS ACCOUNT BENEFIT - $6,100, EMPLOYEE CONTRIBUTION TO GENERAL ORGANIZATION HEALTH PLAN BENEFIT - $4,163; (F) COMPENSATION REPORTED IN PRIOR FORM 990 (3) - $85,224. CYSTIC FIBROSIS FOUNDATION. (A) NAME: V. TWIGG; (B)(I) BASE COMPENSATION: BASE SALARY - $422,606; (B)(II) BONUS & INCENTIVE COMPENSATION: ANNUAL INCENTIVE PLAN BENEFIT (1) - $81,595, LONG-TERM INCENTIVE PLAN PAYMENT, WHICH WAS PREVIOUSLY REPORTED (6) - $36,239; (B)(III) OTHER REPORTABLE COMPENSATION: SECTION 457(B) PLAN (5) - $19,500; (C) DEFERRED COMPENSATION: RETIREMENT BENEFIT (2) - $11,400, LONG-TERM INCENTIVE PLAN BENEFIT (6) - $37,679, SERP (4) - $12,950; (D) NONTAXABLE BENEFITS: EMPLOYER CONTRIBUTION TO GENERAL ORGANIZATION HEALTH PLAN BENEFIT - $19,523 : EMPLOYEE CONTRIBUTION TO FLEXIBLE SPENDING ACCOUNT BENEFIT - $845, EMPLOYEE CONTRIBUTION TO GENERAL ORGANIZATION HEALTH PLAN BENEFIT - $5,658; (F) COMPENSATION REPORTED IN PRIOR FORM 990 (3) -$36,239. CYSTIC FIBROSIS FOUNDATION. (A) NAME: J. MAHLER; (B)(I) BASE COMPENSATION: BASE SALARY - $614,527; (B)(II) BONUS & INCENTIVE COMPENSATION: ANNUAL INCENTIVE PLAN BENEFIT (9) - $446,250; (B)(III) OTHER REPORTABLE COMPENSATION: OTHER BENEFITS INCLUDING TAXABLE GENERAL ORGANIZATION GROUP TERM LIFE INSURANCE PREMIUM - $7,813, VESTED SERP ACCOUNT (8) - $193,242; (C) DEFERRED COMPENSATION: RETIREMENT BENEFIT (2) - $11,400, SERP (4) - $100,000, DEFERRED ANNUAL INCENTIVE (9) $495,420; (D) NONTAXABLE BENEFITS: EMPLOYER CONTRIBUTION TO GENERAL ORGANIZATION HEALTH PLAN BENEFIT - $21,288, EMPLOYEE CONTRIBUTION TO HEALTH SAVINGS ACCOUNT BENEFIT - $6,100, EMPLOYEE CONTRIBUTION TO GENERAL ORGANIZATION HEALTH PLAN BENEFIT - $2,680; (F) COMPENSATION REPORTED IN PRIOR FORM 990 (3) - $200,000. (A) NAME: P. CAMPBELL, M.D.; (B)(I) BASE COMPENSATION: BASE SALARY - $421,077; (B)(II) BONUS & INCENTIVE COMPENSATION: ANNUAL INCENTIVE PLAN BENEFIT (1) - $199,884, LONG-TERM INCENTIVE PLAN PAYMENT, WHICH WAS PREVIOUSLY REPORTED (6) - $100,481; (B)(III) OTHER REPORTABLE COMPENSATION: TAXABLE GENERAL ORGANIZATION GROUP TERM LIFE INSURANCE PREMIUM - $7,525; (C) DEFERRED COMPENSATION: RETIREMENT BENEFIT (2) - $11,400, LONG-TERM INCENTIVE PLAN BENEFIT (6) - $76,217; (D) NONTAXABLE BENEFITS: EMPLOYER CONTRIBUTION TO GENERAL ORGANIZATION HEALTH PLAN BENEFIT - $19,523, EMPLOYEE CONTRIBUTION TO FLEXIBLE SPENDING ACCOUNT BENEFIT - $2,000, EMPLOYEE CONTRIBUTION TO GENERAL ORGANIZATION HEALTH PLAN BENEFIT - $5,658; (F) COMPENSATION REPORTED IN PRIOR FORM 990 (3) - $100,481. (1) THIS IS AN AWARD SUBJECT TO, AND BASED ON, ACHIEVEMENT OF ANNUAL PERFORMANCE STANDARDS ESTABLISHED IN ADVANCE BY THE COMPENSATION COMMITTEE OF THE BOARD. ANY FINANCIAL PERFORMANCE OBJECTIVES ESTABLISHED UNDER THE INCENTIVE COMPENSATION PLAN DO NOT INCLUDE PROGRAM-RELATED REVENUES SUCH AS ROYALTY STREAMS OR LUMP-SUM PAYMENTS, AND SALES PROCEEDS FROM TRANSFER OF THE FOREGOING TO THIRD PARTIES RELATED TO THE DEVELOPMENT AND APPROVAL OF CF DRUGS. (2) THIS IS THE EMPLOYER CONTRIBUTION MADE UNDER THE CYSTIC FIBROSIS FOUNDATION 401(K) PLAN FOR THE 2020 PLAN YEAR. (3) THIS AMOUNT IS INCLUDED IN COLUMN B OF THIS FORM 990 AND HAS ALREADY BEEN PREVIOUSLY REPORTED AS COMPENSATION ON PRIOR YEARS' FORM 990S, AND THEREFORE (AS REQUIRED BY THE INSTRUCTIONS) IS DOUBLE-REPORTED. (4) A. THIS IS AN UNVESTED EMPLOYER CONTRIBUTION TO THE SERP. B. SERP INTERESTS ARE FORFEITED BY THE PARTICIPANT IF THE PARTICIPANT VOLUNTARILY TERMINATES EMPLOYMENT PRIOR TO ATTAINING THE VESTING DATE DESIGNATED BY CFF (WHICH IS EITHER A SPECIFIED AGE OR DATE, DEPENDING ON THE PARTICIPANT). C. SERP INTERESTS ARE HELD IN A TRUST SUBJECT TO THE CLAIMS OF CFF'S BANKRUPTCY CREDITORS. IN THE EVENT OF A CFF BANKRUPTCY, PARTICIPANTS WOULD BECOME GENERAL UNSECURED CREDITORS OF CFF. D. THE SERP IS A NONQUALIFIED DEFERRED COMPENSATION PLAN. THIS MEANS THAT PARTICIPANTS DO NOT RECEIVE THE TAX BENEFITS AVAILABLE TO PARTICIPANTS IN TAX QUALIFIED RETIREMENT PLANS. FOR EXAMPLE, UNDER CURRENT LAW, INTERESTS UNDER SERPS ARE REPORTABLE AS TAXABLE COMPENSATION WHEN THEY BECOME VESTED, EVEN IF THOSE AMOUNTS ARE NOT YET PAYABLE TO THE PARTICIPANT (AND EVEN IF THOSE AMOUNTS ARE NEVER PAID TO THE PARTICIPANT). E. THE SERP'S DESIGN WAS REVIEWED AND OPINED UPON AS REASONABLE BY AN INDEPENDENT COMPENSATION CONSULTANT. F. CFF RETAINS THE RIGHT TO AMEND OR TERMINATE THE SERP AT ANY TIME. (5) A. THIS IS A VESTED CONTRIBUTION TO THE 457(B) PLAN FOR THE REPORTING PERIOD. B. IN THE EVENT OF A CFF BANKRUPTCY, PARTICIPANTS ARE GENERAL UNSECURED CREDITORS OF CFF. C. DISTRIBUTIONS FROM THE 457(B) PLAN MAY NOT BE ROLLED-OVER TO AN IRA OR QUALIFIED PLAN (BUT MAY ONLY BE ROLLED-OVER TO ANOTHER 457(B) PLAN). D. THE 457(B) PLAN'S DESIGN WAS REVIEWED AND OPINED UPON AS REASONABLE BY AN INDEPENDENT COMPENSATION CONSULTANT. CONTRIBUTIONS TO THE 457(B) PLAN ARE SUBJECT TO ANNUAL IRS LIMITS ($19,500 FOR 2020). E. CFF RETAINS THE RIGHT TO AMEND OR TERMINATE THE 457(B) PLAN AT ANY TIME. (6) THIS PLAN PROVIDES FOR AWARDS THAT RELATE TO A THREE-YEAR PERFORMANCE PERIOD, SUBJECT TO, AND BASED ON, ACHIEVEMENT OF PERFORMANCE OBJECTIVES ESTABLISHED IN ADVANCE BY THE COMPENSATION COMMITTEE OF THE BOARD. ANY FINANCIAL PERFORMANCE OBJECTIVES ESTABLISHED UNDER THE INCENTIVE COMPENSATION PLAN DO NOT INCLUDE PROGRAM-RELATED REVENUES SUCH AS ROYALTY STREAMS OR LUMP-SUM PAYMENTS, AND SALES PROCEEDS FROM TRANSFER OF THE FOREGOING TO THIRD PARTIES RELATED TO THE DEVELOPMENT AND APPROVAL OF CF DRUGS. EACH YEAR, A NEW THREE-YEAR PERFORMANCE PERIOD BEGINS. AS REQUIRED BY THE FORM 990 INSTRUCTIONS, THE AMOUNTS REPORTED IN COLUMN (C) ON THIS FORM 990 REFLECT AN ESTIMATE OF THE PORTION OF EACH AWARD THAT THE EXECUTIVE ACCRUED UNDER THE PLAN FOR PERFORMANCE IN 2020 (I.E., WITH RESPECT TO THE 2018-2020, 2019-2021 AND THE 2020-2022 PERFORMANCE PERIODS), BUT THE AMOUNTS REPORTED IN COLUMN (C) HAVE NOT BEEN EARNED, AWARDED OR PAID UNDER THE PLAN. THE INDIVIDUAL MUST BE EMPLOYED ON 12/31/20, 12/31/21 AND 12/31/22 TO BE ELIGIBLE TO RECEIVE FULL PAYMENT OF THE AWARD FOR THE 2018-2020, 2019-2021 AND THE 2020-2022 PERFORMANCE PERIODS, RESPECTIVELY. THE AWARD RELATING TO THE 3-YEAR PERFORMANCE PERIOD ENDING 12/31/19 WAS PAID IN 2020, AND IS PROPERLY REPORTED AGAIN (AS COMPENSATION IN COLUMN (B)(II)) ON THIS FORM 990 (EVEN THOUGH AN ESTIMATE OF THE PORTION OF THIS AWARD THAT THE EXECUTIVE ACCRUED UNDER THE PLAN FOR PERFORMANCE IN 2019, 2018 AND 2017 WAS REPORTED IN COLUMN (C) OF THE FORM 990 FOR EACH OF THOSE YEARS). (7) THIS AMOUNT BECAME VESTED AND TAXABLE IN 2020 UNDER THE SERP DESCRIBED IN FOOTNOTE (4) ABOVE, UNDER WHICH THE INDIVIDUAL RECEIVED CONTRIBUTIONS FROM 2015-2017 AND IN 2020. AS REQUIRED, A PORTION OF THE CONTRIBUTIONS TO THIS SERP THAT GENERATED THE AMOUNT REPORTED IN COLUMN B (III) OF THIS FORM 990 WERE REPORTED ON PRIOR YEARS' FORM 990S IN COLUMN (C). THOSE PREVIOUSLY REPORTED AMOUNTS ARE REFLECTED IN COLUMN F OF THIS FORM 990. (8) THIS AMOUNT BECAME VESTED AND TAXABLE IN 2020 UNDER THE SERP DESCRIBED IN FOOTNOTE (4) ABOVE, UNDER WHICH THE INDIVIDUAL RECEIVED CONTRIBUTIONS FROM 2018-2019. AS REQUIRED, A PORTION OF THE CONTRIBUTIONS TO THIS SERP THAT GENERATED THE AMOUNT REPORTED IN COLUMN B (III) OF THIS FORM 990 WERE REPORTED ON PRIOR YEARS' FORM 990S IN COLUMN (C). THOSE PREVIOUSLY REPORTED AMOUNTS ARE REFLECTED IN COLUMN F OF THIS FORM 990.
(9) A. THE INVESTMENT DEPARTMENT INCENTIVE AND RETENTION PLAN PROVIDES AN	AWARD SUBJECT TO, AND BASED ON, ACHIEVEMENT OF ANNUAL PERFORMANCE STANDARDS ESTABLISHED IN ADVANCE BY THE COMPENSATION COMMITTEE OF THE BOARD. B. UNDER THE PLAN, FIFTY PERCENT OF THE ANNUAL INCENTIVE EARNED BY THE PARTICIPANT IS DEFERRED AND SUBJECT TO A SUBSTANTIAL RISK OF FORFEITURE. THE DEFERRED AWARD BECOMES VESTED ON MARCH 31 TWO YEARS AFTER IT IS DETERMINED THE AWARD HAS BEEN EARNED AND IS PAID IMMEDIATELY THEREAFTER. THE DEFERRED AWARD IS FORFEITED BY THE PARTICIPANT IF THE PARTICIPANT VOLUNTARILY TERMINATES EMPLOYMENT OR IS TERMINATED FOR CAUSE PRIOR TO ATTAINING THE VESTNG DATE. DEFERRED INTERESTS ARE SUBJECT TO THE CLAIMS OF CFF'S BAKRPTCY CREDITORS. IN THE EVENT OF A CFF BANKRUPTCY, THE PARTICIPANT WOULD BECOME A GENERAL UNSECURED CREDITOR OF CFF. C. THE PLAN'S DESIGN WAS REVIEWED AND OPINED UPON AS REASONABLE BY AN INDEPENDENT COMPENSATION CONSULTANT. D. CFF RETAINS THE RIGHT TO AMEND OR TERMINATE THE PLAN AT ANY TIME.

Schedule M IRS990ScheduleM

Cars And Other Vehicles CarsAndOtherVehiclesGrp

Field	Value	IRS element (for citing)
Non Cash Checkbox	Yes (X)	NonCashCheckboxInd
Contribution	32	ContributionCnt
Noncash Contributions Rpt F990	$27,797	NoncashContributionsRptF990Amt
Method Of Determining Revenues	NET CASH RECEIPTS	MethodOfDeterminingRevenuesTxt

Securities Publicly Traded SecuritiesPubliclyTradedGrp

Field	Value	IRS element (for citing)
Non Cash Checkbox	Yes (X)	NonCashCheckboxInd
Contribution	94	ContributionCnt
Noncash Contributions Rpt F990	$908,439	NoncashContributionsRptF990Amt
Method Of Determining Revenues	NET CASH RECEIPTS	MethodOfDeterminingRevenuesTxt

Other Non Cash Contri Table OtherNonCashContriTableGrp

Field	Value	IRS element (for citing)
Non Cash Checkbox	Yes (X)	NonCashCheckboxInd
Desc	TANGIBLE AUCTION ITEMS	Desc
Contribution	4799	ContributionCnt
Noncash Contributions Rpt F990	$2,518,047	NoncashContributionsRptF990Amt
Method Of Determining Revenues	NET CASH RECEIPTS	MethodOfDeterminingRevenuesTxt

Field	Value	IRS element (for citing)
Form8283 Received	2	Form8283ReceivedCnt
Any Property That Must Be Held	0	AnyPropertyThatMustBeHeldInd
Review Process Unusual NC Gifts	Yes (1)	ReviewProcessUnusualNCGiftsInd
Third Parties Used	Yes (1)	ThirdPartiesUsedInd

Supplemental Information Detail SupplementalInformationDetail

Field	Value	IRS element (for citing)
Form And Line Reference	SCHEDULE M, PART I, LINE 6	FormAndLineReferenceDesc
Explanation	THIRD PARTY SELLER CYSTIC FIBROSIS FOUNDATION CONTRACTS WITH A THIRD PARTY TO ADMINISTER ITS VEHICLE DONATION PROGRAM AND SELL DONATED VEHICLES. THE THIRD PARTY DOES NOT SOLICIT DONATIONS.	ExplanationTxt

Schedule O IRS990ScheduleO

Supplemental Information Detail SupplementalInformationDetail (5 entries)

Form And Line ReferenceFormAndLineReferenceDesc	ExplanationExplanationTxt
FORM 990, PART VI, SECTION B, LINE 11B	REVIEW OF 990 BY GOVERNING BODY THE CYSTIC FIBROSIS FOUNDATION BOARD OF TRUSTEES RECEIVES A DRAFT OF THE FORM 990 PRIOR TO ITS BEING FILED, WITH SUFFICIENT TIME FOR REVIEW AND COMMENT ALLOWED. THE COMPENSATION COMMITTEE OF THE BOARD OF TRUSTEES AND THE FOUNDATION'S ERISA ATTORNEYS REVIEW THE EXECUTIVE COMPENSATION SECTIONS OF THE FORM 990. THE AUDIT COMMITTEE OF THE BOARD OF TRUSTEES ALSO REVIEWS THE FORM 990 AS PART OF ITS CHARTERED RESPONSIBILITIES. IN ALL CASES THE CYSTIC FIBROSIS FOUNDATION BOARD OF TRUSTEES RECEIVES A COMPLETE COPY OF THE FINAL FORM 990 BEFORE IT IS FILED.
FORM 990, PART VI, SECTION B, LINE 12C	CONFLICT OF INTEREST MONITORING A CONFLICT OF INTEREST DISCLOSURE STATEMENT IS COMPLETED ANNUALLY BY EACH BOARD MEMBER, OFFICER, AND KEY EMPLOYEE. POTENTIAL CONFLICTS ARE REPORTED TO THE GOVERNANCE COMMITTEE OR THE BOARD OF TRUSTEES. WHEN ANY MATTER IS DEEMED A POTENTIAL CONFLICT OF INTEREST AND REQUIRES ACTION BY THE BOARD OF TRUSTEES, THE INTERESTED TRUSTEE OR OFFICER IS REQUIRED TO RETIRE FROM THE ROOM IN WHICH THE BOARD OR ITS COMMITTEE IS MEETING, MAY NOT PARTICIPATE IN THE FINAL DELIBERATION OF THE MATTER, AND MAY NOT VOTE ON THE MATTER. THE ORGANIZATION ENFORCED THE POLICY DURING 2020 AND HAD NO UNRESOLVED CONFLICTS OF INTEREST.
FORM 990, PART VI, SECTION B, LINE 15	DETERMINING COMPENSATION: LINE 15A AND 15B THE TOTAL COMPENSATION OF EXECUTIVES AT THE CYSTIC FIBROSIS FOUNDATION IS SPECIFICALLY DESIGNED TO ATTRACT AND RETAIN THE HIGHEST QUALIFIED EXECUTIVE AND MEDICAL TALENT TO FULFILL THE CRITICALLY IMPORTANT MISSION OF CURING CYSTIC FIBROSIS AND PROVIDING ALL PEOPLE WITH THE DISEASE THE OPPORTUNITY TO LEAD FULL, PRODUCTIVE LIVES. THE INDEPENDENT COMPENSATION COMMITTEE OF THE CF FOUNDATION'S BOARD OF TRUSTEES FOLLOWS THE PROCESS DESCRIBED IN THE IRS INTERMEDIATE SANCTIONS RULES WHEN DETERMINING COMPENSATION. SPECIFICALLY, THE COMMITTEE: (1) IS COMPOSED ENTIRELY OF NON-EMPLOYEE VOLUNTEER DIRECTORS WHO HAVE NO FAMILIAL, BUSINESS OR SIGNIFICANT PERSONAL RELATIONSHIPS WITH THE CF FOUNDATION OR ITS EXECUTIVES. (2) ASSESSES THE SHORT-TERM AND LONG-TERM CONTRIBUTION AND PERFORMANCE OF EACH EXECUTIVE IN MEETING VERY DEFINITIVE AND QUANTIFIABLE OBJECTIVES FOCUSED ON THE CF FOUNDATION'S MISSION SUCCESS. (3) ENGAGES AN INDEPENDENT COMPENSATION CONSULTING FIRM TO COMPILE APPROPRIATE COMPARABILITY DATA (INCLUDING COMPENSATION MARKET INFORMATION FOR PEERS WITH WHOM THE CF FOUNDATION COMPETES FOR EXECUTIVE TALENT) FOR COMMITTEE RELIANCE. THE COMMITTEE MEETS WITH REPRESENTATIVES OF THE CONSULTING FIRM TO REVIEW THIS DATA IN DETAIL. (4) REVIEWS ALL ELEMENTS OF EACH EXECUTIVE'S TOTAL COMPENSATION, INCLUDING BUT NOT LIMITED TO BASE SALARY, BONUSES, PERQUISITES, FRINGE BENEFITS, AND INCENTIVE AND DEFERRED COMPENSATION ARRANGEMENTS. UPON THE EXECUTIVE'S HIRE, AND AT EACH POINT IN TIME THEREAFTER AT WHICH A NEW OR REVISED COMPENSATION ARRANGEMENT IS UNDER CONSIDERATION WITH RESPECT TO THE EXECUTIVE, THE COMMITTEE MEETS WITH ITS INDEPENDENT COMPENSATION CONSULTING FIRM BEFORE THE ARRANGEMENT IS IMPLEMENTED TO EVALUATE THE REASONABLENESS OF THE ARRANGEMENT BY COMPARING BOTH THE ARRANGEMENT ITSELF AND THE EXECUTIVE'S ENTIRE COMPENSATION PACKAGE TO COMPENSATION PACKAGES PAID BY SIMILARLY SITUATED ORGANIZATIONS FOR FUNCTIONALLY COMPARABLE POSITIONS. (5) DOCUMENTS, CONCURRENTLY WITH ITS DETERMINATION, THE BASIS FOR ITS DETERMINATION IN THE MINUTES OF ITS MEETING. THESE MINUTES ARE REVIEWED, REVISED IF NECESSARY AND APPROVED AT THE FOLLOWING MEETING OF THE COMMITTEE. (6) OBTAINS A WRITTEN LEGAL OPINION CONCERNING THE COMMITTEE'S COMPLIANCE WITH THE IRS INTERMEDIATE SANCTIONS RULES. THE PROCESS DESCRIBED ABOVE WAS USED TO ESTABLISH COMPENSATION FOR THE FOLLOWING OFFICERS OR KEY EMPLOYEES OF THE ORGANIZATION: PRESIDENT & CEO EXECUTIVE VICE PRESIDENT, COO AND SECRETARY EXECUTIVE VICE PRESIDENT AND CFO CHIEF INVESTMENT OFFICER SENIOR VP, THERAPEUTICS DEVELOPMENT EXECUTIVE VICE PRESIDENT & CHIEF SCIENTIFIC OFFICER EXECUTIVE VICE PRESIDENT & CHIEF MEDICAL OFFICER THE PROCESS WAS LAST UNDERTAKEN IN 2019 WITH RESPECT TO COMPENSATION TO BE PAID IN 2020 TO ALL THE OFFICERS/KEY EMPLOYEES NAMED ABOVE.
FORM 990, PART VI, SECTION C, LINE 19	PUBLIC INSPECTION FORMS 1023 AND 990-T FOR THE ORGANIZATION WERE AVAILABLE ON ITS WEBSITE, CFF.ORG AND THE ORGANIZATION'S WEBSITE PROVIDED A DIRECT LINK TO ITS FORM 990 ON GUIDESTAR.ORG. THE FOUNDATION'S GOVERNING DOCUMENTS (BYLAWS AND ARTICLES OF INCORPORATION) WERE AVAILABLE UPON REQUEST BY CONTACTING THE NATIONAL OFFICE OF THE CYSTIC FIBROSIS FOUNDATION IN WRITING OR BY PHONE. INFORMATION ON HOW TO OBTAIN THE GOVERNING DOCUMENTS WAS AVAILABLE ON THE FOUNDATION'S WEBSITE, WWW.CFF.ORG, DURING 2020. THE BOARD AND OFFICER CONFLICT OF INTEREST POLICY AND THE AUDITED FINANCIAL STATEMENTS WERE AVAILABLE ON THE FOUNDATION'S WEBSITE, WWW.CFF.ORG, DURING 2020.
FORM 990, PART VI, LINE 10B:	CYSTIC FIBROSIS FOUNDATION HAS NUMEROUS OFFICES LOCATED ACROSS THE UNITED STATES WHICH ADHERE TO THE POLICIES AND PROCEDURES OF THE ORGANIZATION.

Schedule R IRS990ScheduleR

Id Related Tax Exempt Org IdRelatedTaxExemptOrgGrp

Disregarded Entity Name DisregardedEntityName

Field	Value	IRS element (for citing)
Business Name Line1	CYSTIC FIBROSIS FOUNDATION THERAPEUTICS INC	BusinessNameLine1Txt

US Address USAddress

Field	Value	IRS element (for citing)
Address Line1	4550 MONTGOMERY AVE STE 110	AddressLine1Txt
City	BETHESDA	CityNm
State Abbreviation	MD	StateAbbreviationCd
ZIP	20814	ZIPCd

Field	Value	IRS element (for citing)
EIN	912059167	EIN
Primary Activities	RESEARCH	PrimaryActivitiesTxt
Legal Domicile State	MD	LegalDomicileStateCd
Exempt Code Section	501(C)(3)	ExemptCodeSectionTxt
Public Charity Status	LINE 12A, I	PublicCharityStatusTxt

Direct Controlling Entity Name DirectControllingEntityName

Field	Value	IRS element (for citing)
Business Name Line1	CFF	BusinessNameLine1Txt

Field	Value	IRS element (for citing)
Controlled Organization	Yes (1)	ControlledOrganizationInd

Id Related Org Txbl Partnership IdRelatedOrgTxblPartnershipGrp (3 entries)

Address Line1USAddress/AddressLine1Txt	CityUSAddress/CityNm	State AbbreviationUSAddress/StateAbbreviationCd	ZIPUSAddress/ZIPCd	Primary ActivitiesPrimaryActivitiesTxt	Legal Domicile StateLegalDomicileStateCd	Predominant Income TypePredominantIncomeTypeTxt	Share Of Total IncomeShareOfTotalIncomeAmt	Share Of EOY AssetsShareOfEOYAssetsAmt	Disproportionate AllocationsDisproportionateAllocationsInd	General Or Managing PartnerGeneralOrManagingPartnerInd	OwnershipOwnershipPct
NANTAHALA CAPITAL PARTNERS QR LP
130 MAIN ST 2ND FLOOR	NEW CANNAN	CT	06840	INVESTMENTS	CT	EXCLUDED	-$155,610	$187,174,023	0	0	0.98210
LF-CFF INCUBATOR FUND LP
800 BOYLSTON STREET SUITE 1555	BOSTON	MA	02199	INVESTMENTS	DE	EXCLUDED		$160,092	0	0	1.00000
SAGACIA FUND LP
2777 SUMMER STREET SUITE 301	STAMFORD	CT	06905	INVESTMENTS	DE	EXCLUDED	$6,002,724	$177,621,068	0	0	0.56050

Id Related Org Txbl Corp Tr IdRelatedOrgTxblCorpTrGrp (6 entries)

Address Line1ForeignAddress/AddressLine1Txt	CityForeignAddress/CityNm	CountryForeignAddress/CountryCd	Foreign PostalForeignAddress/ForeignPostalCd	Primary ActivitiesPrimaryActivitiesTxt	Legal Domicile Foreign CountryLegalDomicileForeignCountryCd	Direct Controlling NADirectControllingNACd	Entity TypeEntityTypeTxt	Share Of Total IncomeShareOfTotalIncomeAmt	Share Of EOY AssetsShareOfEOYAssetsAmt	OwnershipOwnershipPct	Controlled OrganizationControlledOrganizationInd	Legal Domicile StateLegalDomicileStateCd
TSSP ROTATIONAL CREDIT FEEDER LP
UGLAND HOUSE SOUTH CHURCH ST	GEORGE TOWN	CJ	KY1-1104	INVESTMENTS	CJ	N/A	C	$23,724,123	$134,241,811	1.00000	Yes (1)
CHARITABLE REMAINDER TRUST (2)
				FIDUCIARY		N/A	T				0	CA
CHARITABLE REMAINDER TRUST
				FIDUCIARY		N/A	T				0	TN
CHARITABLE REMAINDER TRUST
				FIDUCIARY		N/A	T				0	NM
PERPETUAL TRUST
				FIDUCIARY		N/A	T				0	MA
WELD CAPITAL OFFSHORE FUND LTD
94 SOLARIS AVENUE BOX 1348	GRAND CAYMAN	CJ	KY1-1108	INVESTMENTS	CJ	N/A	C	-$7,580,970	$93,111,397	0.98380	Yes (1)

Field	Value	IRS element (for citing)
Receipt Of Int Annts Rnts Rylts	0	ReceiptOfIntAnntsRntsRyltsInd
Gift Grnt Or Cap Contri To Oth Org	Yes (1)	GiftGrntOrCapContriToOthOrgInd
Gift Grnt Cap Contri From Oth Org	0	GiftGrntCapContriFromOthOrgInd
Loans Or Guarantees To Other Org	0	LoansOrGuaranteesToOtherOrgInd
Loans Or Guarantees From Oth Org	0	LoansOrGuaranteesFromOthOrgInd
Div Related Organization	0	DivRelatedOrganizationInd
Asset Sale To Other Org	0	AssetSaleToOtherOrgInd
Asset Purchase From Other Org	0	AssetPurchaseFromOtherOrgInd
Asset Exchange	0	AssetExchangeInd
Rental Of Facilities To Oth Org	0	RentalOfFacilitiesToOthOrgInd
Rental Of Fclts From Oth Org	0	RentalOfFcltsFromOthOrgInd
Perform Of Services For Oth Org	0	PerformOfServicesForOthOrgInd
Perform Of Services By Other Org	0	PerformOfServicesByOtherOrgInd
Sharing Of Facilities	0	SharingOfFacilitiesInd
Paid Employees Sharing	0	PaidEmployeesSharingInd
Reimbursement Paid To Other Org	0	ReimbursementPaidToOtherOrgInd
Reimbursement Paid By Other Org	0	ReimbursementPaidByOtherOrgInd
Transfer To Other Org	0	TransferToOtherOrgInd
Transfer From Other Org	0	TransferFromOtherOrgInd

Transactions Related Org TransactionsRelatedOrgGrp (4 entries)

Transaction TypeTransactionTypeTxt	InvolvedInvolvedAmt	Method Of Amount DeterminationMethodOfAmountDeterminationTxt
TSSP ROTATIONAL CREDIT FEEDER LP
B	$58,544,118	CASH
SAGACIA FUND LP
B	$34,000,000	CASH
LF-CFF INCUBATOR FUND LP
B	$432,802	CASH
WELD CAPITAL OFFSHORE FUND LTD
B	$50,000,000	CASH