CYSTIC FIBROSIS FOUNDATION: Form 990, tax year 2015

View the entire original 990 at ProPublica ↗

Organization: CYSTIC FIBROSIS FOUNDATION (EIN 13-1930701)
Tax period: 2015-01-01 to 2015-12-31
Filed: 2016-08-05
IRS object ID: 201602189349300115
Schema version: 2015v2.1
Source: Download XML · Original 990 at ProPublica

Every field in the e-filed return. Faint text is the IRS element name, for citing.

Return header
Form 990
Schedule A
Schedule B
Schedule C
Schedule D
Schedule F
Schedule G
Schedule I
Schedule J
Schedule O
Schedule R

Return header ReturnHeader

Field	Value	IRS element (for citing)
Return	2016-08-05T08:11:49-05:00	ReturnTs
Tax Period End	2015-12-31	TaxPeriodEndDt

Preparer Firm PreparerFirmGrp

Preparer Firm Name PreparerFirmName

Field	Value	IRS element (for citing)
Business Name Line1	KPMG LLP	BusinessNameLine1Txt

Preparer US Address PreparerUSAddress

Field	Value	IRS element (for citing)
Address Line1	1676 International Drive	AddressLine1Txt
City	McLean	CityNm
State Abbreviation	VA	StateAbbreviationCd
ZIP	22102	ZIPCd

Field	Value	IRS element (for citing)
Return Type	990	ReturnTypeCd
Tax Period Begin	2015-01-01	TaxPeriodBeginDt

Filer Filer

Field	Value	IRS element (for citing)
EIN	131930701	EIN

Business Name BusinessName

Field	Value	IRS element (for citing)
Business Name Line1	CYSTIC FIBROSIS FOUNDATION- HEADQUARTERS	BusinessNameLine1Txt

Field	Value	IRS element (for citing)
In Care Of	% PRESTON W CAMPBELL MD	InCareOfNm
Business Name Control	CYST	BusinessNameControlTxt
Phone	3019514422	PhoneNum

US Address USAddress

Field	Value	IRS element (for citing)
Address Line1	6931 ARLINGTON ROAD Suite 200	AddressLine1Txt
City	BETHESDA	CityNm
State Abbreviation	MD	StateAbbreviationCd
ZIP	20814	ZIPCd

Business Officer BusinessOfficerGrp

Field	Value	IRS element (for citing)
Person	PRESTON W CAMPBELL MD	PersonNm
Person Title	PRESIDENT & CEO	PersonTitleTxt
Phone	3019514422	PhoneNum
Signature	2016-08-02	SignatureDt
Discuss With Paid Preparer	Yes (true)	DiscussWithPaidPreparerInd

Preparer Person PreparerPersonGrp

Field	Value	IRS element (for citing)
Preparer Person	JOCELYNE C MILLER	PreparerPersonNm
PTIN	P00634378	PTIN
Phone	7032868000	PhoneNum

Field	Value	IRS element (for citing)
Tax	2015	TaxYr
Build TS	2016-12-15 16:53:06Z	BuildTS

Form 990 IRS990

Field	Value	IRS element (for citing)
Principal Officer	PRESTON W CAMPBELL MD	PrincipalOfficerNm

US Address USAddress

Field	Value	IRS element (for citing)
Address Line1	6931 ARLINGTON ROAD STE 200	AddressLine1Txt
City	BETHESDA	CityNm
State Abbreviation	MD	StateAbbreviationCd
ZIP	20814	ZIPCd

Field	Value	IRS element (for citing)
Gross Receipts	$2,726,701,281	GrossReceiptsAmt
Group Return For Affiliates	false	GroupReturnForAffiliatesInd
Organization501c3	Yes (X)	Organization501c3Ind
Website Address	WWW.CFF.ORG	WebsiteAddressTxt
Type Of Organization Corp	Yes (X)	TypeOfOrganizationCorpInd
Formation	1955	FormationYr
Legal Domicile State	DE	LegalDomicileStateCd
Activity Or Mission	THE MISSION IS TO CURE CYSTIC FIBROSIS AND TO PROVIDE ALL PEOPLE WITH THE DISEASE THE OPPORTUNITY TO LEAD FULL, PRODUCTIVE LIVES.	ActivityOrMissionDesc
Voting Members Governing Body	19	VotingMembersGoverningBodyCnt
Voting Members Independent	18	VotingMembersIndependentCnt
Total Employee	315	TotalEmployeeCnt
Total Volunteers	250000	TotalVolunteersCnt
Total Gross UBI	-$1,476	TotalGrossUBIAmt
Net Unrelated Bus Txbl Incm	-$9,131	NetUnrelatedBusTxblIncmAmt
PY Contributions Grants	$3,285,132,614	PYContributionsGrantsAmt
CY Contributions Grants	$95,908,297	CYContributionsGrantsAmt
PY Program Service Revenue	$2,155,742	PYProgramServiceRevenueAmt
CY Program Service Revenue	$2,216,198	CYProgramServiceRevenueAmt
PY Investment Income	$55,016,588	PYInvestmentIncomeAmt
CY Investment Income	$41,305,390	CYInvestmentIncomeAmt
PY Other Revenue	$6,708,116	PYOtherRevenueAmt
CY Other Revenue	$9,029,211	CYOtherRevenueAmt
PY Total Revenue	$3,349,013,060	PYTotalRevenueAmt
CY Total Revenue	$148,459,096	CYTotalRevenueAmt
PY Grants And Similar Paid	$32,902,431	PYGrantsAndSimilarPaidAmt
CY Grants And Similar Paid	$132,612,012	CYGrantsAndSimilarPaidAmt
PY Benefits Paid To Members	$0	PYBenefitsPaidToMembersAmt
CY Benefits Paid To Members	$0	CYBenefitsPaidToMembersAmt
PY Salaries Comp Emp Bnft Paid	$25,951,581	PYSalariesCompEmpBnftPaidAmt
CY Salaries Comp Emp Bnft Paid	$32,239,198	CYSalariesCompEmpBnftPaidAmt
PY Total Prof Fndrsng Expns	$192,000	PYTotalProfFndrsngExpnsAmt
CY Total Prof Fndrsng Expns	$192,000	CYTotalProfFndrsngExpnsAmt
CY Total Fundraising Expense	$9,120,691	CYTotalFundraisingExpenseAmt
PY Other Expenses	$20,975,426	PYOtherExpensesAmt
CY Other Expenses	$27,943,551	CYOtherExpensesAmt
PY Total Expenses	$80,021,438	PYTotalExpensesAmt
CY Total Expenses	$192,986,761	CYTotalExpensesAmt
PY Revenues Less Expenses	$3,268,991,622	PYRevenuesLessExpensesAmt
CY Revenues Less Expenses	-$44,527,665	CYRevenuesLessExpensesAmt
Total Assets BOY	$3,922,688,693	TotalAssetsBOYAmt
Total Assets EOY	$3,803,485,303	TotalAssetsEOYAmt
Total Liabilities BOY	$108,325,747	TotalLiabilitiesBOYAmt
Total Liabilities EOY	$124,060,775	TotalLiabilitiesEOYAmt
Net Assets Or Fund Balances BOY	$3,814,362,946	NetAssetsOrFundBalancesBOYAmt
Net Assets Or Fund Balances EOY	$3,679,424,528	NetAssetsOrFundBalancesEOYAmt
Info In Schedule O Part III	Yes (X)	InfoInScheduleOPartIIIInd
Mission	THE MISSION OF THE CYSTIC FIBROSIS FOUNDATION IS TO CURE CYSTIC FIBROSIS AND TO PROVIDE ALL PEOPLE WITH THE DISEASE THE OPPORTUNITY TO LEAD FULL, PRODUCTIVE LIVES BY FUNDING RESEARCH AND DRUG DEVELOPMENT, PROMOTING INDIVIDUALIZED TREATMENT, AND ENSURING ACCESS TO HIGH QUALITY, SPECIALIZED CARE. A LIFE-SHORTENING GENETIC DISEASE, CF AFFECTS THE LUNGS AND DIGESTIVE SYSTEMS OF MORE THAN 30,000 PEOPLE IN THE U.S. CURRENTLY, THERE IS NO CURE.	MissionDesc
Significant New Program Srvc	false	SignificantNewProgramSrvcInd
Significant Change	false	SignificantChangeInd
Expense	$146,593,554	ExpenseAmt
Grant	$128,220,285	GrantAmt
Revenue	$2,216,198	RevenueAmt
Desc	MEDICAL PROGRAMS SINCE 1955, THE CYSTIC FIBROSIS FOUNDATION HAS BEEN DEDICATED TO CURING AND CONTROLLING CYSTIC FIBROSIS (CF). THE CYSTIC FIBROSIS FOUNDATION IS THE WORLDS LEADER IN THE SEARCH FOR A CURE FOR CYSTIC FIBROSIS, A LIFE-THREATENING GENETIC DISEASE THAT AFFECTS MORE THAN 30,000 PEOPLE IN THE UNITED STATES, AND 70,000 PEOPLE WORLDWIDE. THE TREATMENT AND CARE PROTOCOLS DEVELOPED BY THE CF FOUNDATION ARE HELPING TENS OF THOUSANDS OF PEOPLE WITH THE DISEASE LIVE LONGER, HEALTHIER LIVES. TO SUPPORT ITS MISSION, THE FOUNDATION FUNDS AND ACCREDITS A NATIONWIDE NETWORK OF 120 CARE CENTERS. THE CARE CENTER NETWORK PROVIDES THE BEST CARE FOR PEOPLE WITH CF AND HAS BEEN RECOGNIZED BY THE NATIONAL INSTITUTES OF HEALTH AS A MODEL OF CARE FOR A CHRONIC DISEASE. BREAKTHROUGH TREATMENTS HAVE ADDED YEARS TO THE LIVES OF PEOPLE WITH CYSTIC FIBROSIS. TODAY THE MEDIAN PREDICTED SURVIVAL AGE IS CLOSE TO 40. THIS IS A DRAMATIC IMPROVEMENT FROM THE 1950S, WHEN A CHILD WITH CF RARELY LIVED LONG ENOUGH TO ATTEND ELEMENTARY SCHOOL. THE FOUNDATION PROVIDES MUCH-NEEDED SUPPORT FOR PATIENTS AND THEIR FAMILIES AS THEY MANAGE THE DIFFICULT CONSEQUENCES OF THE DISEASE FROM SUPPORTING SPECIALIZED, QUALITY CF CARE TO PROVIDING INFORMATION AND SUPPORT TO HELP PEOPLE WITH CF ACCESS THAT CARE. THE FOUNDATIONS PATIENT REGISTRY COLLECTS INFORMATION ON THE HEALTH STATUS OF MORE THAN 28,900 PEOPLE WITH CF PROVIDING CAREGIVERS AND RESEARCHERS CRITICAL INFORMATION TO HELP IDENTIFY NEW HEALTH TRENDS AND EFFECTIVE TREATMENTS AND IMPROVE THE QUALITY OF CF CARE. THE PATIENT REGISTRY IS AN INTERNATIONALLY RECOGNIZED MODEL FOR OTHER NONPROFIT HEALTH ORGANIZATIONS, INCLUDING CF ADVOCACY GROUPS. MEDICAL PROGRAMS CONSIST OF APPROXIMATELY 527 GRANTS AND OTHER COSTS TO SUPPORT SCIENTIFIC STUDIES/INVESTIGATIONS AND CYSTIC FIBROSIS CENTERS. APPROXIMATELY 307 GRANTS TOTALING $22.5 MILLION WERE AWARDED TO CYSTIC FIBROSIS CARE CENTERS SERVING APPROXIMATELY 28,900 PATIENTS.	Desc

Prog Srvc Accom Acty2 ProgSrvcAccomActy2Grp

Field	Value	IRS element (for citing)
Expense	$8,089,310	ExpenseAmt
Grant	$4,391,727	GrantAmt
Desc	LACK OF ADEQUATE INSURANCE COVERAGE FOR CF MEDICATIONS HAS BEEN A CONSISTENT CONCERN FOR THOSE LIVING WITH THE DISEASE AND THEIR FAMILIES. THE PATIENT ASSISTANCE RESOURCE CENTER (PARC) IS A HIGHLY PERSONALIZED SERVICE TAILORED TO AN INDIVIDUALS CIRCUMSTANCES RELATED TO COMPLEX INSURANCE, FINANCIAL, LEGAL AND OTHER ISSUES THAT CAN PREVENT ACCESS TO MUCH-NEEDED CF THERAPIES AND CARE. IN 2015, SKILLED CASE MANAGERS HELPED MORE THAN 1,700 PEOPLE WITH CF AND THEIR FAMILIES UNDERSTAND AND MAXIMIZE THEIR INSURANCE COVERAGE AND BENEFITS. CASE MANAGERS ALSO ASSISTED MANY OTHERS WITH FINDING RESOURCES FOR ISSUES RELATED TO LIFE WITH CF THAT CAN AFFECT ACCESS, INCLUDING BASIC LIVING AND FOOD EXPENSES. CYSTIC FIBROSIS PATIENT ASSISTANCE FOUNDATION CLOSED ITS PROGRAM AS OF DECEMBER 31, 2015. STAFF HELPED MORE THAN 1,200 PEOPLE SUCCESSFULLY TRANSITION TO A NEW PROVIDER TO ENSURE THAT THOSE INDIVIDUALS MAINTAINED ACCESS TO FINANCIAL ASSISTANCE TO HELP WITH MEDICATION COPAYS.	Desc

Prog Srvc Accom Acty3 ProgSrvcAccomActy3Grp

Field	Value	IRS element (for citing)
Expense	$12,455,800	ExpenseAmt
Desc	PUBLIC AND PROFESSIONAL INFORMATION AND EDUCATION TO BROADEN ITS REACH AND TO SUPPORT ITS MISSION, THE CF FOUNDATION HAS PROGRAMS DESIGNED TO IMPROVE THE KNOWLEDGE OF PEOPLE WITH CF AND THEIR FAMILIES, MEDICAL PROFESSIONALS AND THE GENERAL PUBLIC REGARDING THE DISEASE. IN 2015, THERE WERE 10 PUBLICATIONS AND 50 VIDEOS PRODUCED AND MADE AVAILABLE FOR PEOPLE WITH CF, FAMILIES, MEDICAL PROFESSIONALS, AND THE GENERAL PUBLIC. YEAR-ROUND, MEETINGS AND CONFERENCES PROVIDE UPDATES FOR CF RESEARCHERS, PHYSICIANS AND ALLIED HEALTH PROFESSIONALS AND OPPORTUNITIES FOR COLLABORATION ON FUTURE CF RESEARCH PROJECTS AND TREATMENT/CARE EFFORTS. IN 2015, OVER 2,902,412 UNIQUE VISITORS CAME TO THE CF FOUNDATIONS WEBSITE. FORM 990, PART III - PROGRAM SERVICE, LINE 4D COMMUNITY SERVICES THE CYSTIC FIBROSIS FOUNDATION PROVIDES YEAR-ROUND EFFORTS TO EDUCATE, INFORM AND EMPOWER INDIVIDUALS WITH CF AND THEIR FAMILIES ABOUT THE LATEST DEVELOPMENTS IN TREATMENT AND CARE. THE PROGRAMS ARE DESIGNED TO HELP THE GENERAL PUBLIC IN THE DETECTION OF THE DISEASE BY PROVIDING A REFERRAL SERVICE AND HANDLING INQUIRIES CONCERNING CYSTIC FIBROSIS. APPROXIMATELY 28,900 PEOPLE WITH CF WERE SERVED IN 2015, INCLUDING APPROXIMATELY 850 INDIVIDUALS WHO WERE NEWLY DIAGNOSED.	Desc

Field	Value	IRS element (for citing)
Total Other Prog Srvc Expense	$3,451,951	TotalOtherProgSrvcExpenseAmt
Total Program Service Expenses	$170,590,615	TotalProgramServiceExpensesAmt
Described In Section501c3	Yes (true)	DescribedInSection501c3Ind
Schedule B Required	Yes (true)	ScheduleBRequiredInd
Political Campaign Acty	false	PoliticalCampaignActyInd
Lobbying Activities	Yes (true)	LobbyingActivitiesInd
Subject To Proxy Tax	false	SubjectToProxyTaxInd
Donor Advised Fund	false	DonorAdvisedFundInd
Conservation Easements	false	ConservationEasementsInd
Collections Of Art	false	CollectionsOfArtInd
Credit Counseling	false	CreditCounselingInd
Temp Or Permanent Endowments	false	TempOrPermanentEndowmentsInd
Report Land Building Equipment	Yes (true)	ReportLandBuildingEquipmentInd
Report Investments Other Sec	Yes (true)	ReportInvestmentsOtherSecInd
Report Program Related Invst	false	ReportProgramRelatedInvstInd
Report Other Assets	false	ReportOtherAssetsInd
Report Other Liabilities	Yes (true)	ReportOtherLiabilitiesInd
Include FIN48 Footnote	Yes (true)	IncludeFIN48FootnoteInd
Independent Audit Fincl Stmt	false	IndependentAuditFinclStmtInd
Consolidated Audit Fincl Stmt	Yes (true)	ConsolidatedAuditFinclStmtInd
School Operating	false	SchoolOperatingInd
Foreign Office	false	ForeignOfficeInd
Foreign Activities	Yes (true)	ForeignActivitiesInd
More Than5000 K To Org	Yes (true)	MoreThan5000KToOrgInd
More Than5000 K To Individuals	false	MoreThan5000KToIndividualsInd
Professional Fundraising	Yes (true)	ProfessionalFundraisingInd
Fundraising Activities	false	FundraisingActivitiesInd
Gaming Activities	false	GamingActivitiesInd
Operate Hospital	false	OperateHospitalInd
Grants To Organizations	Yes (true)	GrantsToOrganizationsInd
Grants To Individuals	Yes (true)	GrantsToIndividualsInd
Schedule J Required	Yes (true)	ScheduleJRequiredInd
Tax Exempt Bonds	false	TaxExemptBondsInd
Engaged In Excess Benefit Trans	false	EngagedInExcessBenefitTransInd
PY Excess Benefit Trans	false	PYExcessBenefitTransInd
Loan Outstanding	false	LoanOutstandingInd
Grant To Related Person	false	GrantToRelatedPersonInd
Business Rln With Org Mem	false	BusinessRlnWithOrgMemInd
Business Rln With Fam Mem	false	BusinessRlnWithFamMemInd
Business Rln With Officer Ent	false	BusinessRlnWithOfficerEntInd
Deductible Non Cash Contri	false	DeductibleNonCashContriInd
Deductible Art Contribution	false	DeductibleArtContributionInd
Terminate Operations	false	TerminateOperationsInd
Partial Liquidation	false	PartialLiquidationInd
Disregarded Entity	Yes (true)	DisregardedEntityInd
Related Entity	Yes (true)	RelatedEntityInd
Related Organization Ctrl Ent	Yes (true)	RelatedOrganizationCtrlEntInd
Transaction With Control Ent	Yes (true)	TransactionWithControlEntInd
Trnsfr Exmpt Non Chrtbl Rltd Org	false	TrnsfrExmptNonChrtblRltdOrgInd
Activities Conducted Prtshp	false	ActivitiesConductedPrtshpInd
Schedule O Required	Yes (true)	ScheduleORequiredInd
IRP Document	238	IRPDocumentCnt
IRP Document W2 G	0	IRPDocumentW2GCnt
Backup Wthld Compliance	Yes (true)	BackupWthldComplianceInd
Employee	315	EmployeeCnt
Employment Tax Returns Filed	Yes (true)	EmploymentTaxReturnsFiledInd
Unrelated Bus Incm Over Limit	Yes (true)	UnrelatedBusIncmOverLimitInd
Form990 T Filed	Yes (true)	Form990TFiledInd
Foreign Financial Account	false	ForeignFinancialAccountInd
Prohibited Tax Shelter Trans	false	ProhibitedTaxShelterTransInd
Taxable Party Notification	false	TaxablePartyNotificationInd
Nondeductible Contributions	false	NondeductibleContributionsInd
Quid Pro Quo Contributions	false	QuidProQuoContributionsInd
Form8282 Property Disposed Of	false	Form8282PropertyDisposedOfInd
Rcv Fnds To Pay Prsnl Bnft Cntrct	false	RcvFndsToPayPrsnlBnftCntrctInd
Pay Premiums Prsnl Bnft Cntrct	false	PayPremiumsPrsnlBnftCntrctInd
Indoor Tanning Services	false	IndoorTanningServicesInd
Info In Schedule O Part VI	Yes (X)	InfoInScheduleOPartVIInd
Governing Body Voting Members	19	GoverningBodyVotingMembersCnt
Independent Voting Member	18	IndependentVotingMemberCnt
Family Or Business Rln	false	FamilyOrBusinessRlnInd
Delegation Of Mgmt Duties	false	DelegationOfMgmtDutiesInd
Change To Org Documents	Yes (true)	ChangeToOrgDocumentsInd
Material Diversion Or Misuse	false	MaterialDiversionOrMisuseInd
Members Or Stockholders	false	MembersOrStockholdersInd
Election Of Board Members	false	ElectionOfBoardMembersInd
Decisions Subject To Approva	false	DecisionsSubjectToApprovaInd
Minutes Of Governing Body	Yes (true)	MinutesOfGoverningBodyInd
Minutes Of Committees	Yes (true)	MinutesOfCommitteesInd
Officer Mailing Address	false	OfficerMailingAddressInd
Local Chapters	Yes (true)	LocalChaptersInd
Policies Reference Chapters	Yes (true)	PoliciesReferenceChaptersInd
Form990 Provided To Gvrn Body	Yes (true)	Form990ProvidedToGvrnBodyInd
Conflict Of Interest Policy	Yes (true)	ConflictOfInterestPolicyInd
Annual Disclosure Covered Prsn	Yes (true)	AnnualDisclosureCoveredPrsnInd
Regular Monitoring Enfrc	Yes (true)	RegularMonitoringEnfrcInd
Whistleblower Policy	Yes (true)	WhistleblowerPolicyInd
Document Retention Policy	Yes (true)	DocumentRetentionPolicyInd
Compensation Process CEO	Yes (true)	CompensationProcessCEOInd
Compensation Process Other	Yes (true)	CompensationProcessOtherInd
Investment In Joint Venture	false	InvestmentInJointVentureInd
States Where Copy Of Return Is Fld	AL	StatesWhereCopyOfReturnIsFldCd
States Where Copy Of Return Is Fld	AK	StatesWhereCopyOfReturnIsFldCd
States Where Copy Of Return Is Fld	AR	StatesWhereCopyOfReturnIsFldCd
States Where Copy Of Return Is Fld	CA	StatesWhereCopyOfReturnIsFldCd
States Where Copy Of Return Is Fld	CT	StatesWhereCopyOfReturnIsFldCd
States Where Copy Of Return Is Fld	FL	StatesWhereCopyOfReturnIsFldCd
States Where Copy Of Return Is Fld	GA	StatesWhereCopyOfReturnIsFldCd
States Where Copy Of Return Is Fld	HI	StatesWhereCopyOfReturnIsFldCd
States Where Copy Of Return Is Fld	IL	StatesWhereCopyOfReturnIsFldCd
States Where Copy Of Return Is Fld	IN	StatesWhereCopyOfReturnIsFldCd
States Where Copy Of Return Is Fld	KS	StatesWhereCopyOfReturnIsFldCd
States Where Copy Of Return Is Fld	KY	StatesWhereCopyOfReturnIsFldCd
States Where Copy Of Return Is Fld	MD	StatesWhereCopyOfReturnIsFldCd
States Where Copy Of Return Is Fld	MA	StatesWhereCopyOfReturnIsFldCd
States Where Copy Of Return Is Fld	MI	StatesWhereCopyOfReturnIsFldCd
States Where Copy Of Return Is Fld	MN	StatesWhereCopyOfReturnIsFldCd
States Where Copy Of Return Is Fld	MS	StatesWhereCopyOfReturnIsFldCd
States Where Copy Of Return Is Fld	NH	StatesWhereCopyOfReturnIsFldCd
States Where Copy Of Return Is Fld	NJ	StatesWhereCopyOfReturnIsFldCd
States Where Copy Of Return Is Fld	NM	StatesWhereCopyOfReturnIsFldCd
States Where Copy Of Return Is Fld	NY	StatesWhereCopyOfReturnIsFldCd
States Where Copy Of Return Is Fld	OK	StatesWhereCopyOfReturnIsFldCd
States Where Copy Of Return Is Fld	OR	StatesWhereCopyOfReturnIsFldCd
States Where Copy Of Return Is Fld	PA	StatesWhereCopyOfReturnIsFldCd
States Where Copy Of Return Is Fld	RI	StatesWhereCopyOfReturnIsFldCd
States Where Copy Of Return Is Fld	SC	StatesWhereCopyOfReturnIsFldCd
States Where Copy Of Return Is Fld	TN	StatesWhereCopyOfReturnIsFldCd
States Where Copy Of Return Is Fld	UT	StatesWhereCopyOfReturnIsFldCd
States Where Copy Of Return Is Fld	VA	StatesWhereCopyOfReturnIsFldCd
States Where Copy Of Return Is Fld	WA	StatesWhereCopyOfReturnIsFldCd
States Where Copy Of Return Is Fld	WV	StatesWhereCopyOfReturnIsFldCd
States Where Copy Of Return Is Fld	WI	StatesWhereCopyOfReturnIsFldCd
Own Website	Yes (X)	OwnWebsiteInd
Upon Request	Yes (X)	UponRequestInd

Books In Care Of Detail BooksInCareOfDetail

Field	Value	IRS element (for citing)
Person	PRESTON W CAMPBELL MD	PersonNm
Phone	3019514422	PhoneNum

US Address USAddress

Field	Value	IRS element (for citing)
Address Line1	6931 ARLINGTON ROAD	AddressLine1Txt
City	BETHESDA	CityNm
State Abbreviation	MD	StateAbbreviationCd
ZIP	20814	ZIPCd

Field	Value	IRS element (for citing)
Info In Schedule O Part VII	Yes (X)	InfoInScheduleOPartVIIInd

Form990 Part VII Section A Form990PartVIISectionAGrp (29 entries)

TitleTitleTxt	Average Hours Per WeekAverageHoursPerWeekRt	Average Hours Per Week Rltd OrgAverageHoursPerWeekRltdOrgRt	Individual Trustee Or DirectorIndividualTrusteeOrDirectorInd	Reportable Comp From OrgReportableCompFromOrgAmt	Reportable Comp From Rltd OrgReportableCompFromRltdOrgAmt	Other CompensationOtherCompensationAmt	OfficerOfficerInd	Key EmployeeKeyEmployeeInd	Highest Compensated EmployeeHighestCompensatedEmployeeInd
MICHAEL L BEATTY ESQ
TRUSTEE	3.0	3.0	Yes (X)	$0	$0	$0
RICHARD L DANDURAND
VICE CHAIRMAN	5.0	3.0	Yes (X)	$0	$0	$0
LOUIS DEFALCO
TRUSTEE	3.0	3.0	Yes (X)	$0	$0	$0
RICHARD J GRAY ESQ
VICE CHAIRMAN	5.0	3.0	Yes (X)	$0	$0	$0
CAROLE B GRIEGO MD
TRUSTEE	3.0	3.0	Yes (X)	$0	$0	$0
SUSAN L HOOK
TRUSTEE	5.0	3.0	Yes (X)	$0	$0	$0
CATHERINE C MCLOUD
CHAIR	8.0	6.0	Yes (X)	$0	$0	$0
CHAD T MOORE
TRUSTEE	3.0	3.0	Yes (X)	$0	$0	$0
DAVID A MOUNT
TREASURER	3.0	3.0	Yes (X)	$0	$0	$0
ROBERT H NIEHAUS
TRUSTEE	3.0	3.0	Yes (X)	$0	$0	$0
ERIC OLSON PHD
TRUSTEE	3.0	3.0	Yes (X)	$0	$0	$0
GRAY B SABIN
VICE CHAIRMAN	5.0	3.0	Yes (X)	$0	$0	$0
STEVEN SHAK MD
TRUSTEE	3.0	6.0	Yes (X)	$0	$0	$0
CHARLES J THAYER
TRUSTEE	3.0	3.0	Yes (X)	$0	$0	$0
THEODORE J TORPHY PHD
TRUSTEE	3.0	8.0	Yes (X)	$0	$0	$0
AMY S WEINBERG
TRUSTEE	3.0	3.0	Yes (X)	$0	$0	$0
PAUL W WHETSELL
EXECUTIVE VICE CHAIRMAN	5.0	3.0	Yes (X)	$0	$0	$0
KC BRYAN WHITE
TRUSTEE	5.0	3.0	Yes (X)	$0	$0	$0
PRESTON CAMPBELL MD
PRESIDENT & CEO (AS OF 10/1)	36.0	24.0	Yes (X)	$496,970	$245,571	$212,541	Yes (X)
ROBERT BEALL PHD
PRESIDENT & CEO (UNTIL 9/30)	36.0	24.0	Yes (X)	$1,575,208	$779,230	$108,896	Yes (X)
C RICHARD MATTINGLY
EXEC VP & COO	50.0	10.0		$2,718,373	$0	$68,546	Yes (X)
VERA H TWIGG
EXECUTIVE VP, CFO & SECRETARY	50.0	10.0		$499,672	$0	$107,968	Yes (X)
MAUREEN FRASER
VP OF FIELD MANAGEMENT	50.0	0.0		$275,519	$0	$45,385		Yes (X)
DAVID MCLOUGHLIN
SR. VP OF OPERATIONS	35.0	15.0		$253,478	$108,101	$60,349		Yes (X)
AMY DEMARIA
SR. VP OF COMMUNICATIONS	50.0	0.0		$275,520	$0	$40,990			Yes (X)
CHRIS PENLAND PHD
VICE PRESIDENT OF RESEARCH	35.0	15.0		$139,511	$122,427	$53,304			Yes (X)
WILLIAM SKACH MD
SR. VP OF RESEARCH AFFAIRS	12.0	38.0		$74,887	$233,504	$48,493			Yes (X)
MARY DWIGHT
SVP POLICY & PATIENT ASSIST.	50.0	0.0		$265,074	$0	$66,399			Yes (X)
BRUCE MARSHALL MD
SR. VP OF CLINICAL AFFAIRS	15.0	35.0		$129,754	$314,135	$32,060			Yes (X)

Field	Value	IRS element (for citing)
Total Reportable Comp From Org	$6,703,966	TotalReportableCompFromOrgAmt
Tot Reportable Comp Rltd Org	$1,802,968	TotReportableCompRltdOrgAmt
Total Other Compensation	$844,931	TotalOtherCompensationAmt
Indiv Rcvd Greater Than100 K	80	IndivRcvdGreaterThan100KCnt
Former Ofcr Employees Listed	false	FormerOfcrEmployeesListedInd
Total Comp Greater Than150 K	Yes (true)	TotalCompGreaterThan150KInd
Compensation From Other Srcs	false	CompensationFromOtherSrcsInd

Contractor Compensation ContractorCompensationGrp (5 entries)

Address Line1ContractorAddress/USAddress/AddressLine1Txt	CityContractorAddress/USAddress/CityNm	State AbbreviationContractorAddress/USAddress/StateAbbreviationCd	ZIPContractorAddress/USAddress/ZIPCd	ServicesServicesDesc	CompensationCompensationAmt	Address Line1ContractorAddress/ForeignAddress/AddressLine1Txt	CityContractorAddress/ForeignAddress/CityNm	Province Or StateContractorAddress/ForeignAddress/ProvinceOrStateNm	CountryContractorAddress/ForeignAddress/CountryCd
SUFIAN PASSAMANO
712 MAIN STREET SUITE 2130	HOUSTON	TX	77002	HOTLINE/PATIENT ASSI	$1,380,875
ARAMARK AVENTURA CATERING
100 NORTH 3RD ST	PHOENIX	AZ	85004	CONFERENCE CATERING	$1,122,753
SCHANER LUBITZ PLLC
6931 ARLINGTON ROAD	BETHESDA	MD	20814	LEGAL/TRANSACTION	$994,427
THREESPOT MEDIA LLC
806 7TH ST NW	WASHINGTON	DC	20001	CONSULTING	$911,468
GRANTMAIL DIRECT LTD
				PRINTING	$652,384	A01-01 15F WORLD TRADE CENTER	NINGBO	0	CH

Field	Value	IRS element (for citing)
Cntrct Rcvd Greater Than100 K	59	CntrctRcvdGreaterThan100KCnt
Related Organizations	$86,659,882	RelatedOrganizationsAmt
All Other Contributions	$9,248,415	AllOtherContributionsAmt
Total Contributions	$95,908,297	TotalContributionsAmt

Program Service Revenue ProgramServiceRevenueGrp (2 entries)

DescDesc	BusinessBusinessCd	Total Revenue ColumnTotalRevenueColumnAmt	Related Or Exempt Func IncomeRelatedOrExemptFuncIncomeAmt
SCIENTIFIC CONFERENCE	611600	$2,060,699	$2,060,699
TRANSITION SERVICES	541610	$155,499	$155,499

Field	Value	IRS element (for citing)
Total Program Service Revenue	$2,216,198	TotalProgramServiceRevenueAmt

Investment Income InvestmentIncomeGrp

Field	Value	IRS element (for citing)
Total Revenue Column	$67,810,170	TotalRevenueColumnAmt
Unrelated Business Revenue	-$1,476	UnrelatedBusinessRevenueAmt
Exclusion	$67,811,646	ExclusionAmt

Incm From Invest Bond Proceeds IncmFromInvestBondProceedsGrp

Field	Value	IRS element (for citing)
Total Revenue Column	$0	TotalRevenueColumnAmt

Royalties Revenue RoyaltiesRevenueGrp

Field	Value	IRS element (for citing)
Total Revenue Column	$7,230,863	TotalRevenueColumnAmt
Exclusion	$7,230,863	ExclusionAmt

Rental Income Or Loss RentalIncomeOrLossGrp

Field	Value	IRS element (for citing)
Real	$0	RealAmt
Personal	$0	PersonalAmt

Net Rental Income Or Loss NetRentalIncomeOrLossGrp

Field	Value	IRS element (for citing)
Total Revenue Column	$0	TotalRevenueColumnAmt

Gross Amount Sales Assets GrossAmountSalesAssetsGrp

Field	Value	IRS element (for citing)
Securities	$2,551,737,405	SecuritiesAmt

Less Cost Oth Basis Sales Expnss LessCostOthBasisSalesExpnssGrp

Field	Value	IRS element (for citing)
Securities	$2,578,239,249	SecuritiesAmt
Other	$2,936	OtherAmt

Gain Or Loss GainOrLossGrp

Field	Value	IRS element (for citing)
Securities	-$26,501,844	SecuritiesAmt
Other	-$2,936	OtherAmt

Net Gain Or Loss Investments NetGainOrLossInvestmentsGrp

Field	Value	IRS element (for citing)
Total Revenue Column	-$26,504,780	TotalRevenueColumnAmt
Exclusion	-$26,504,780	ExclusionAmt

Net Incm From Fundraising Evt NetIncmFromFundraisingEvtGrp

Field	Value	IRS element (for citing)
Total Revenue Column	$0	TotalRevenueColumnAmt

Net Income From Gaming NetIncomeFromGamingGrp

Field	Value	IRS element (for citing)
Total Revenue Column	$0	TotalRevenueColumnAmt

Net Income Or Loss NetIncomeOrLossGrp

Field	Value	IRS element (for citing)
Total Revenue Column	$0	TotalRevenueColumnAmt

Other Revenue Misc OtherRevenueMiscGrp (3 entries)

DescDesc	BusinessBusinessCd	Total Revenue ColumnTotalRevenueColumnAmt	ExclusionExclusionAmt	Related Or Exempt Func IncomeRelatedOrExemptFuncIncomeAmt
LIST RENTAL	533110	$249,439	$249,439
INSURANCE CLAIM PROCEEDS	900099	$983,127	$983,127
REFUNDED OR CANCELLED GRANTS	900099	$565,782		$565,782

Field	Value	IRS element (for citing)
Other Revenue Total	$1,798,348	OtherRevenueTotalAmt

Total Revenue TotalRevenueGrp

Field	Value	IRS element (for citing)
Total Revenue Column	$148,459,096	TotalRevenueColumnAmt
Related Or Exempt Func Income	$2,781,980	RelatedOrExemptFuncIncomeAmt
Unrelated Business Revenue	-$1,476	UnrelatedBusinessRevenueAmt
Exclusion	$49,770,295	ExclusionAmt

Field	Value	IRS element (for citing)
Info In Schedule O Part IX	Yes (X)	InfoInScheduleOPartIXInd

Grants To Domestic Orgs GrantsToDomesticOrgsGrp

Field	Value	IRS element (for citing)
Total	$130,036,670	TotalAmt
Program Services	$130,036,670	ProgramServicesAmt

Grants To Domestic Individuals GrantsToDomesticIndividualsGrp

Field	Value	IRS element (for citing)
Total	$1,839,565	TotalAmt
Program Services	$1,839,565	ProgramServicesAmt

Foreign Grants ForeignGrantsGrp

Field	Value	IRS element (for citing)
Total	$735,777	TotalAmt
Program Services	$735,777	ProgramServicesAmt

Benefits To Members BenefitsToMembersGrp

Field	Value	IRS element (for citing)
Total	$0	TotalAmt

Comp Current Ofcr Directors CompCurrentOfcrDirectorsGrp

Field	Value	IRS element (for citing)
Total	$6,449,238	TotalAmt
Program Services	$4,163,714	ProgramServicesAmt
Management And General	$1,290,927	ManagementAndGeneralAmt
Fundraising	$994,597	FundraisingAmt

Comp Disqual Persons CompDisqualPersonsGrp

Field	Value	IRS element (for citing)
Total	$0	TotalAmt

Other Salaries And Wages OtherSalariesAndWagesGrp

Field	Value	IRS element (for citing)
Total	$20,235,358	TotalAmt
Program Services	$12,827,875	ProgramServicesAmt
Management And General	$4,362,801	ManagementAndGeneralAmt
Fundraising	$3,044,682	FundraisingAmt

Pension Plan Contributions PensionPlanContributionsGrp

Field	Value	IRS element (for citing)
Total	$1,018,805	TotalAmt
Program Services	$662,520	ProgramServicesAmt
Management And General	$207,263	ManagementAndGeneralAmt
Fundraising	$149,022	FundraisingAmt

Other Employee Benefits OtherEmployeeBenefitsGrp

Field	Value	IRS element (for citing)
Total	$2,984,036	TotalAmt
Program Services	$1,909,154	ProgramServicesAmt
Management And General	$617,667	ManagementAndGeneralAmt
Fundraising	$457,215	FundraisingAmt

Payroll Taxes PayrollTaxesGrp

Field	Value	IRS element (for citing)
Total	$1,551,761	TotalAmt
Program Services	$959,736	ProgramServicesAmt
Management And General	$324,237	ManagementAndGeneralAmt
Fundraising	$267,788	FundraisingAmt

Fees For Services Management FeesForServicesManagementGrp

Field	Value	IRS element (for citing)
Total	$0	TotalAmt

Fees For Services Legal FeesForServicesLegalGrp

Field	Value	IRS element (for citing)
Total	$720,995	TotalAmt
Program Services	$649,960	ProgramServicesAmt
Management And General	$71,035	ManagementAndGeneralAmt

Fees For Services Accounting FeesForServicesAccountingGrp

Field	Value	IRS element (for citing)
Total	$299,022	TotalAmt
Program Services	$30,991	ProgramServicesAmt
Management And General	$268,031	ManagementAndGeneralAmt

Fees For Services Lobbying FeesForServicesLobbyingGrp

Field	Value	IRS element (for citing)
Total	$469,844	TotalAmt
Program Services	$469,844	ProgramServicesAmt

Fees For Services Prof Fundraising FeesForServicesProfFundraising

Field	Value	IRS element (for citing)
Total	$192,000	TotalAmt
Fundraising	$192,000	FundraisingAmt

Fees For Srvc Invst Mgmnt Fees FeesForSrvcInvstMgmntFeesGrp

Field	Value	IRS element (for citing)
Total	$5,013,975	TotalAmt
Management And General	$5,013,975	ManagementAndGeneralAmt

Fees For Services Other FeesForServicesOtherGrp

Field	Value	IRS element (for citing)
Total	$4,157,288	TotalAmt
Program Services	$3,640,198	ProgramServicesAmt
Management And General	$142,745	ManagementAndGeneralAmt
Fundraising	$374,345	FundraisingAmt

Advertising AdvertisingGrp

Field	Value	IRS element (for citing)
Total	$6,706	TotalAmt
Program Services	$3,889	ProgramServicesAmt
Management And General	$872	ManagementAndGeneralAmt
Fundraising	$1,945	FundraisingAmt

Office Expenses OfficeExpensesGrp

Field	Value	IRS element (for citing)
Total	$818,560	TotalAmt
Program Services	$590,087	ProgramServicesAmt
Management And General	$123,600	ManagementAndGeneralAmt
Fundraising	$104,873	FundraisingAmt

Information Technology InformationTechnologyGrp

Field	Value	IRS element (for citing)
Total	$3,867,178	TotalAmt
Program Services	$3,349,834	ProgramServicesAmt
Management And General	$112,539	ManagementAndGeneralAmt
Fundraising	$404,805	FundraisingAmt

Royalties RoyaltiesGrp

Field	Value	IRS element (for citing)
Total	$0	TotalAmt

Occupancy OccupancyGrp

Field	Value	IRS element (for citing)
Total	$1,138,748	TotalAmt
Program Services	$841,192	ProgramServicesAmt
Management And General	$169,822	ManagementAndGeneralAmt
Fundraising	$127,734	FundraisingAmt

Travel TravelGrp

Field	Value	IRS element (for citing)
Total	$885,874	TotalAmt
Program Services	$762,884	ProgramServicesAmt
Management And General	$51,620	ManagementAndGeneralAmt
Fundraising	$71,370	FundraisingAmt

Pymt Travel Entrtnmnt Pub Ofcl PymtTravelEntrtnmntPubOfclGrp

Field	Value	IRS element (for citing)
Total	$0	TotalAmt

Conferences Meetings ConferencesMeetingsGrp

Field	Value	IRS element (for citing)
Total	$4,122,590	TotalAmt
Program Services	$3,848,113	ProgramServicesAmt
Management And General	$80,947	ManagementAndGeneralAmt
Fundraising	$193,530	FundraisingAmt

Interest InterestGrp

Field	Value	IRS element (for citing)
Total	$0	TotalAmt

Payments To Affiliates PaymentsToAffiliatesGrp

Field	Value	IRS element (for citing)
Total	$0	TotalAmt

Depreciation Depletion DepreciationDepletionGrp

Field	Value	IRS element (for citing)
Total	$500,221	TotalAmt
Program Services	$342,076	ProgramServicesAmt
Management And General	$91,462	ManagementAndGeneralAmt
Fundraising	$66,683	FundraisingAmt

Insurance InsuranceGrp

Field	Value	IRS element (for citing)
Total	$355,238	TotalAmt
Program Services	$264,491	ProgramServicesAmt
Management And General	$58,986	ManagementAndGeneralAmt
Fundraising	$31,761	FundraisingAmt

Other Expenses OtherExpensesGrp (4 entries)

DescDesc	TotalTotalAmt	Program ServicesProgramServicesAmt	FundraisingFundraisingAmt	Management And GeneralManagementAndGeneralAmt
DIRECT MAIL PRINTING	$1,890,346	$536,858	$1,353,488
DIRECT MAIL POSTAGE	$1,301,504	$369,627	$931,877
MEDICAL QUALITY IMPROVEMENT	$802,991	$802,991
TRAINING	$510,125	$310,454	$122,621	$77,050

All Other Expenses AllOtherExpensesGrp

Field	Value	IRS element (for citing)
Total	$1,082,346	TotalAmt
Program Services	$642,115	ProgramServicesAmt
Management And General	$209,876	ManagementAndGeneralAmt
Fundraising	$230,355	FundraisingAmt

Total Functional Expenses TotalFunctionalExpensesGrp

Field	Value	IRS element (for citing)
Total	$192,986,761	TotalAmt
Program Services	$170,590,615	ProgramServicesAmt
Management And General	$13,275,455	ManagementAndGeneralAmt
Fundraising	$9,120,691	FundraisingAmt

Field	Value	IRS element (for citing)
Joint Costs	Yes (X)	JointCostsInd

Total Joint Costs TotalJointCostsGrp

Field	Value	IRS element (for citing)
Total	$4,854,387	TotalAmt
Program Services	$1,378,646	ProgramServicesAmt
Fundraising	$3,475,741	FundraisingAmt

Field	Value	IRS element (for citing)
Info In Schedule O Part X	Yes (X)	InfoInScheduleOPartXInd

Cash Non Interest Bearing CashNonInterestBearingGrp

Field	Value	IRS element (for citing)
BOY	$0	BOYAmt
EOY	$0	EOYAmt

Savings And Temp Cash Invst SavingsAndTempCashInvstGrp

Field	Value	IRS element (for citing)
BOY	$200,542,178	BOYAmt
EOY	$284,143,149	EOYAmt

Pledges And Grants Receivable PledgesAndGrantsReceivableGrp

Field	Value	IRS element (for citing)
BOY	$10,323,508	BOYAmt
EOY	$10,867,532	EOYAmt

Accounts Receivable AccountsReceivableGrp

Field	Value	IRS element (for citing)
BOY	$50,121,025	BOYAmt
EOY	$11,119,153	EOYAmt

Receivables From Officers Etc ReceivablesFromOfficersEtcGrp

Field	Value	IRS element (for citing)
BOY	$0	BOYAmt
EOY	$0	EOYAmt

Rcvbl From Disqualified Prsn RcvblFromDisqualifiedPrsnGrp

Field	Value	IRS element (for citing)
BOY	$0	BOYAmt
EOY	$0	EOYAmt

Oth Notes Loans Receivable Net OthNotesLoansReceivableNetGrp

Field	Value	IRS element (for citing)
BOY	$0	BOYAmt
EOY	$0	EOYAmt

Inventories For Sale Or Use InventoriesForSaleOrUseGrp

Field	Value	IRS element (for citing)
BOY	$265,490	BOYAmt
EOY	$212,895	EOYAmt

Prepaid Expenses Defrd Charges PrepaidExpensesDefrdChargesGrp

Field	Value	IRS element (for citing)
BOY	$923,653	BOYAmt
EOY	$956,650	EOYAmt

Field	Value	IRS element (for citing)
Land Bldg Equip Cost Or Other Bss	$7,611,994	LandBldgEquipCostOrOtherBssAmt
Land Bldg Equip Accum Deprec	$4,459,392	LandBldgEquipAccumDeprecAmt

Land Bldg Equip Basis Net LandBldgEquipBasisNetGrp

Field	Value	IRS element (for citing)
BOY	$2,887,521	BOYAmt
EOY	$3,152,602	EOYAmt

Investments Pub Traded Sec InvestmentsPubTradedSecGrp

Field	Value	IRS element (for citing)
BOY	$2,473,908,461	BOYAmt
EOY	$1,769,524,290	EOYAmt

Investments Other Securities InvestmentsOtherSecuritiesGrp

Field	Value	IRS element (for citing)
BOY	$1,176,671,743	BOYAmt
EOY	$1,716,447,700	EOYAmt

Investments Program Related InvestmentsProgramRelatedGrp

Field	Value	IRS element (for citing)
BOY	$0	BOYAmt
EOY	$0	EOYAmt

Intangible Assets IntangibleAssetsGrp

Field	Value	IRS element (for citing)
BOY	$0	BOYAmt
EOY	$0	EOYAmt

Other Assets Total OtherAssetsTotalGrp

Field	Value	IRS element (for citing)
BOY	$7,045,114	BOYAmt
EOY	$7,061,332	EOYAmt

Total Assets TotalAssetsGrp

Field	Value	IRS element (for citing)
BOY	$3,922,688,693	BOYAmt
EOY	$3,803,485,303	EOYAmt

Accounts Payable Accr Expnss AccountsPayableAccrExpnssGrp

Field	Value	IRS element (for citing)
BOY	$16,831,621	BOYAmt
EOY	$18,195,708	EOYAmt

Grants Payable GrantsPayableGrp

Field	Value	IRS element (for citing)
BOY	$28,741,961	BOYAmt
EOY	$44,046,759	EOYAmt

Deferred Revenue DeferredRevenueGrp

Field	Value	IRS element (for citing)
BOY	$3,325,808	BOYAmt
EOY	$3,422,898	EOYAmt

Tax Exempt Bond Liabilities TaxExemptBondLiabilitiesGrp

Field	Value	IRS element (for citing)
BOY	$0	BOYAmt
EOY	$0	EOYAmt

Escrow Account Liability EscrowAccountLiabilityGrp

Field	Value	IRS element (for citing)
BOY	$0	BOYAmt
EOY	$0	EOYAmt

Loans From Officers Directors LoansFromOfficersDirectorsGrp

Field	Value	IRS element (for citing)
BOY	$0	BOYAmt
EOY	$0	EOYAmt

Mortg Notes Pybl Scrd Invst Prop MortgNotesPyblScrdInvstPropGrp

Field	Value	IRS element (for citing)
BOY	$0	BOYAmt
EOY	$0	EOYAmt

Unsecured Notes Loans Payable UnsecuredNotesLoansPayableGrp

Field	Value	IRS element (for citing)
BOY	$0	BOYAmt
EOY	$0	EOYAmt

Other Liabilities OtherLiabilitiesGrp

Field	Value	IRS element (for citing)
BOY	$59,426,357	BOYAmt
EOY	$58,395,410	EOYAmt

Total Liabilities TotalLiabilitiesGrp

Field	Value	IRS element (for citing)
BOY	$108,325,747	BOYAmt
EOY	$124,060,775	EOYAmt

Field	Value	IRS element (for citing)
Organization Follows SFAS117	Yes (X)	OrganizationFollowsSFAS117Ind

Unrestricted Net Assets UnrestrictedNetAssetsGrp

Field	Value	IRS element (for citing)
BOY	$3,796,361,145	BOYAmt
EOY	$3,664,492,149	EOYAmt

Temporarily Rstr Net Assets TemporarilyRstrNetAssetsGrp

Field	Value	IRS element (for citing)
BOY	$14,083,576	BOYAmt
EOY	$11,255,303	EOYAmt

Permanently Rstr Net Assets PermanentlyRstrNetAssetsGrp

Field	Value	IRS element (for citing)
BOY	$3,918,225	BOYAmt
EOY	$3,677,076	EOYAmt

Total Net Assets Fund Balance TotalNetAssetsFundBalanceGrp

Field	Value	IRS element (for citing)
BOY	$3,814,362,946	BOYAmt
EOY	$3,679,424,528	EOYAmt

Tot Liab Net Assets Fund Balance TotLiabNetAssetsFundBalanceGrp

Field	Value	IRS element (for citing)
BOY	$3,922,688,693	BOYAmt
EOY	$3,803,485,303	EOYAmt

Field	Value	IRS element (for citing)
Reconcilation Revenue Expnss	-$44,527,665	ReconcilationRevenueExpnssAmt
Net Unrlzd Gains Losses Invst	-$90,410,753	NetUnrlzdGainsLossesInvstAmt
Method Of Accounting Accrual	Yes (X)	MethodOfAccountingAccrualInd
Accountant Compile Or Review	false	AccountantCompileOrReviewInd
FS Audited	Yes (true)	FSAuditedInd

FS Audited Basis FSAuditedBasisGrp

Field	Value	IRS element (for citing)
Consolidated Basis Fincl Stmt	Yes (X)	ConsolidatedBasisFinclStmtInd

Field	Value	IRS element (for citing)
Audit Committee	Yes (true)	AuditCommitteeInd
Federal Grant Audit Required	false	FederalGrantAuditRequiredInd

Schedule A IRS990ScheduleA

Field	Value	IRS element (for citing)
Public Organization170	Yes (X)	PublicOrganization170Ind

Gifts Grants Contri Rcvd170 GiftsGrantsContriRcvd170Grp

Field	Value	IRS element (for citing)
Current Tax Year Minus4 Years	$101,016,043	CurrentTaxYearMinus4YearsAmt
Current Tax Year Minus3 Years	$193,893,253	CurrentTaxYearMinus3YearsAmt
Current Tax Year Minus2 Years	$279,115,653	CurrentTaxYearMinus2YearsAmt
Current Tax Year Minus1 Year	$3,285,132,614	CurrentTaxYearMinus1YearAmt
Current Tax Year	$95,908,297	CurrentTaxYearAmt
Total	$3,955,065,860	TotalAmt

Tax Rev Levied Orgnztnl Bnft170 TaxRevLeviedOrgnztnlBnft170Grp

Field	Value	IRS element (for citing)
Total	$0	TotalAmt

Govt Furn Srvc Fclts Vl170 GovtFurnSrvcFcltsVl170Grp

Field	Value	IRS element (for citing)
Total	$0	TotalAmt

Total Calendar Year170 TotalCalendarYear170Grp

Field	Value	IRS element (for citing)
Current Tax Year Minus4 Years	$101,016,043	CurrentTaxYearMinus4YearsAmt
Current Tax Year Minus3 Years	$193,893,253	CurrentTaxYearMinus3YearsAmt
Current Tax Year Minus2 Years	$279,115,653	CurrentTaxYearMinus2YearsAmt
Current Tax Year Minus1 Year	$3,285,132,614	CurrentTaxYearMinus1YearAmt
Current Tax Year	$95,908,297	CurrentTaxYearAmt
Total	$3,955,065,860	TotalAmt

Field	Value	IRS element (for citing)
Substantial Contributors Tot	$0	SubstantialContributorsTotAmt
Public Support Total170	$3,955,065,860	PublicSupportTotal170Amt

Gross Investment Income170 GrossInvestmentIncome170Grp

Field	Value	IRS element (for citing)
Current Tax Year Minus4 Years	$4,888,930	CurrentTaxYearMinus4YearsAmt
Current Tax Year Minus3 Years	$14,145,772	CurrentTaxYearMinus3YearsAmt
Current Tax Year Minus2 Years	$17,054,431	CurrentTaxYearMinus2YearsAmt
Current Tax Year Minus1 Year	$54,160,127	CurrentTaxYearMinus1YearAmt
Current Tax Year	$75,041,033	CurrentTaxYearAmt
Total	$165,290,293	TotalAmt

Unrelated Business Net Incm170 UnrelatedBusinessNetIncm170Grp

Field	Value	IRS element (for citing)
Total	$0	TotalAmt

Other Income170 OtherIncome170Grp

Field	Value	IRS element (for citing)
Current Tax Year Minus4 Years	$576,265	CurrentTaxYearMinus4YearsAmt
Current Tax Year Minus3 Years	$480,632	CurrentTaxYearMinus3YearsAmt
Current Tax Year Minus2 Years	$449,051	CurrentTaxYearMinus2YearsAmt
Current Tax Year Minus1 Year	$341,467	CurrentTaxYearMinus1YearAmt
Current Tax Year	$1,232,566	CurrentTaxYearAmt
Total	$3,079,981	TotalAmt

Field	Value	IRS element (for citing)
Total Support	$4,123,436,134	TotalSupportAmt
Gross Receipts Rltd Activities	$63,484,498	GrossReceiptsRltdActivitiesAmt
Public Support CY170	0.95917	PublicSupportCY170Pct
Public Support PY170	0.97650	PublicSupportPY170Pct
Thirty Thr Pct Suprt Tests CY170	Yes (X)	ThirtyThrPctSuprtTestsCY170Ind

Form990 Schedule A Part VI Form990ScheduleAPartVIGrp

Field	Value	IRS element (for citing)
Form And Line Reference	SCHEDULE A, PART II - OTHER INCOME	FormAndLineReferenceDesc
Explanation	THE FOUNDATION FOSTERS COLLABORATION WITHIN THE SCIENTIFIC COMMUNITY BY HOSTING A LARGE SCIENTIFIC CONFERENCE PROVIDING A FORUM FOR RESEARCHERS AND CAREGIVERS TO SHARE THEIR PRACTICES AND INVESTIGATE RESULTS WITH ONE ANOTHER. FEES FOR ATTENDANCE AT THIS CONFERENCE ARE REPORTED ON LINE 12. TRANSITION SERVICES AMOUNT REPRESENTS FEES EARNED FOR TEMPORARY INFORMATION TECHNOLOGY AND TELECOMMUNICATIONS SERVICES PROVIDED BY THE FOUNDATION IN CONNECTION WITH THE SALE OF PHARMACY OPERATIONS IN DECEMBER 2012.	ExplanationTxt

Schedule B IRS990ScheduleB

Contributor Information ContributorInformationGrp

Field	Value	IRS element (for citing)
Contributor	RESTRICTED	ContributorNum

Contributor Business Name ContributorBusinessName

Field	Value	IRS element (for citing)
Business Name Line1	RESTRICTED	BusinessNameLine1

Contributor US Address ContributorUSAddress

Field	Value	IRS element (for citing)
Address Line1	RESTRICTED	AddressLine1
Address Line2	RESTRICTED	AddressLine2
City	RESTRICTED	City
State	RESTRICTED	State
ZIP Code	RESTRICTED	ZIPCode

Field	Value	IRS element (for citing)
Total Contributions	RESTRICTED	TotalContributionsAmt

Schedule C IRS990ScheduleC

Field	Value	IRS element (for citing)
Total Grassroots Lobbying		TotalGrassrootsLobbyingGrp
Total Direct Lobbying		TotalDirectLobbyingGrp
Total Lobbying Expend		TotalLobbyingExpendGrp
Other Exempt Purpose Expend		OtherExemptPurposeExpendGrp
Total Exempt Purpose Expend		TotalExemptPurposeExpendGrp
Lobbying Nontaxable Amount		LobbyingNontaxableAmountGrp
Grassroots Nontaxable		GrassrootsNontaxableGrp
Tot Lbbyng Grassroot Mns Non Tx		TotLbbyngGrassrootMnsNonTxGrp
Tot Lbby Expend Mns Lbbyng Non Tx		TotLbbyExpendMnsLbbyngNonTxGrp
Volunteers	Yes (true)	VolunteersInd
Paid Staff Or Management	Yes (true)	PaidStaffOrManagementInd
Media Advertisements	false	MediaAdvertisementsInd
Mailings Members	Yes (true)	MailingsMembersInd
Mailings Members	$54,000	MailingsMembersAmt
Publications Or Broadcast	false	PublicationsOrBroadcastInd
Grants Other Organizations	false	GrantsOtherOrganizationsInd
Direct Contact Legislators	Yes (true)	DirectContactLegislatorsInd
Direct Contact Legislators	$793,824	DirectContactLegislatorsAmt
Rallies Demonstrations	false	RalliesDemonstrationsInd
Other Activities	false	OtherActivitiesInd
Total Lobbying Expenditures	$847,824	TotalLobbyingExpendituresAmt
Not Described Section501c3	false	NotDescribedSection501c3Ind

Supplemental Information Detail SupplementalInformationDetail

Field	Value	IRS element (for citing)
Form And Line Reference	LOBBYING ACTIVITY	FormAndLineReferenceDesc
Explanation	THE CYSTIC FIBROSIS FOUNDATION IS FOCUSED ON CURING CYSTIC FIBROSIS AND ENSURING ALL PEOPLE WITH THE DISEASE HAVE THE OPPORTUNITY TO LEAD FULL, PRODUCTIVE LIVES. IN ADDITION TO FUNDING CYSTIC FIBROSIS RESEARCH, THE FOUNDATION ADVOCATES FOR POLICIES THAT ADVANCE BASIC, TRANSLATIONAL AND CLINICAL RESEARCH AND DEVELOPMENT OF TREATMENTS FOR RARE DISEASES LIKE CYSTIC FIBROSIS AND STRATEGIES THAT GIVE ALL PEOPLE WITH THE DISEASE ACCESS TO HIGH QUALITY, SPECIALIZED CYSTIC FIBROSIS CARE. ADVOCACY ACTIVITIES INCLUDE EMAIL COMMUNICATION ENCOURAGING GRASSROOTS ADVOCATES TO CONTACT THEIR LEGISLATORS, ANNUAL EVENTS WHERE VOLUNTEERS MEET WITH MEMBERS OF CONGRESS TO DISCUSS ISSUES CRITICAL TO THE CYSTIC FIBROSIS COMMUNITY, AS WELL AS COMMUNICATING REGULARLY WITH FEDERAL LEGISLATORS AND AGENCIES.	ExplanationTxt

Schedule D IRS990ScheduleD

Field	Value	IRS element (for citing)
Art Public Exhibition Amounts		ArtPublicExhibitionAmountsGrp
Held Works Art		HeldWorksArtGrp
CY Minus3 Yr Endwmt Fund		CYMinus3YrEndwmtFundGrp
CY Minus4 Yr Endwmt Fund		CYMinus4YrEndwmtFundGrp
Land		LandGrp
Buildings		BuildingsGrp

Leasehold Improvements LeaseholdImprovementsGrp

Field	Value	IRS element (for citing)
Other Cost Or Other Basis	$1,553,944	OtherCostOrOtherBasisAmt
Depreciation	$739,641	DepreciationAmt
Book Value	$814,303	BookValueAmt

Equipment EquipmentGrp

Field	Value	IRS element (for citing)
Other Cost Or Other Basis	$6,058,050	OtherCostOrOtherBasisAmt
Depreciation	$3,719,751	DepreciationAmt
Book Value	$2,338,299	BookValueAmt

Field	Value	IRS element (for citing)
Other Land Buildings		OtherLandBuildingsGrp
Total Book Value Land Buildings	$3,152,602	TotalBookValueLandBuildingsAmt
Financial Derivatives		FinancialDerivativesGrp
Closely Held Equity Interests		CloselyHeldEquityInterestsGrp

Other Securities OtherSecuritiesGrp (11 entries)

DescDesc	Book ValueBookValueAmt	Method ValuationMethodValuationCd
US GOVERNMENT TREASURY SEC	$139,950,688	F
CORPORATE DEBT SECURITIES	$100,346,121	F
US GOVERNMENT AGENCY ASSET	$26,573,141	F
COMMERCIAL AND OTHER ASSET	$49,625,087	F
FIXED INCOME INDEX COMMINGLED	$121,683,775	F
PUBLIC EQUITY COMMINGLED	$815,609,324	F
OTHER PUBLIC EQUITY BASED	$101,139,800	F
HEDGED STRATEGIES	$316,136,265	F
PVT EQTY & OTHR ILLIQUID FUNDS	$41,260,923	F
OTHR. GLOBAL EQTY. SECURITIES	$445,500	F
PERPETUAL TRUSTS	$3,677,076	F

Field	Value	IRS element (for citing)
Total Book Value Securities	$1,716,447,700	TotalBookValueSecuritiesAmt
Federal Income Tax Liability	$0	FederalIncomeTaxLiabilityAmt

Other Liabilities Org OtherLiabilitiesOrgGrp

Field	Value	IRS element (for citing)
Desc	INTERCOMPANY PAYABLE	Desc
Amt	$58,395,410	Amt

Field	Value	IRS element (for citing)
Total Liability	$58,395,410	TotalLiabilityAmt
Footnote Text	Yes (X)	FootnoteTextInd

Supplemental Information Detail SupplementalInformationDetail

Field	Value	IRS element (for citing)
Form And Line Reference	SCHEDULE D, PART X	FormAndLineReferenceDesc
Explanation	FIN 48 FOOTNOTE THE FOUNDATION, CFFT, AND CFPAF ARE NOT-FOR-PROFIT VOLUNTARY HEALTH ORGANIZATIONS EXEMPT FROM FEDERAL INCOME TAXES UNDER 501(C)(3) OF THE INTERNAL REVENUE CODE (THE CODE) AND FROM STATE TAXES AND HAVE BEEN CLASSIFIED AS ORGANIZATIONS THAT ARE NOT PRIVATE FOUNDATIONS UNDER SECTION 509(A) OF THE CODE. THE FOUNDATION DOES NOT HAVE ANY UNRELATED BUSINESS INCOME TAX LIABILITY AS OF DECEMBER 31, 2015 AND 2014. CONTRIBUTIONS TO THE FOUNDATION QUALIFY FOR THE CHARITABLE CONTRIBUTIONS DEDUCTION TO THE EXTENT PROVIDED BY SECTION 170 OF THE CODE. CFPAF IS ORGANIZED AS A SINGLE MEMBER LIMITED LIABILITY COMPANY THAT IS A DISREGARDED ENTITY FOR FEDERAL TAX PURPOSES. THE SOLE MEMBER OF CFPAF IS THE FOUNDATION. THE FOUNDATION IS NOT AWARE OF ANY TAX POSITION TAKEN THAT REQUIRES DISCLOSURE BASED ON CURRENT FACTS AND CIRCUMSTANCES. THE FOUNDATION ANNUALLY REVIEWS ITS TAX POSITIONS AND HAS DETERMINED THAT THERE ARE NO MATERIAL UNCERTAIN TAX POSITIONS THAT REQUIRE RECOGNITION OR DISCLOSURE IN THE FINANCIAL STATEMENTS.	ExplanationTxt

Schedule F IRS990ScheduleF

Field	Value	IRS element (for citing)
Grant Records Maintained	Yes (true)	GrantRecordsMaintainedInd

Account Activities Outside US AccountActivitiesOutsideUSGrp (8 entries)

RegionRegionTxt	Type Of Activities ConductedTypeOfActivitiesConductedTxt	Specific Services ProvidedSpecificServicesProvidedTxt	Region Total ExpendituresRegionTotalExpendituresAmt
North America	Grantmaking	NONE	$141,777
Europe (Including Iceland and Greenland)	Grantmaking	NONE	$324,000
East Asia and the Pacific	Grantmaking	NONE	$162,000
Middle East and North Africa	Grantmaking	NONE	$108,000
Central America and the Caribbean	Investments		$456,095,000
East Asia and the Pacific	Investments		$932,000
Europe (Including Iceland and Greenland)	Investments		$105,879,000
North America	Investments		$2,181,000

Field	Value	IRS element (for citing)
Subtotal Spent	$565,822,777	SubtotalSpentAmt
Total Spent	$565,822,777	TotalSpentAmt

Grants To Org Outside US GrantsToOrgOutsideUSGrp (8 entries)

RegionRegionTxt	Purpose Of GrantPurposeOfGrantTxt	Cash GrantCashGrantAmt	Manner Of Cash DisbursementMannerOfCashDisbursementTxt
North America	PILOT STUDY	$97,077	CHECK
North America	PILOT STUDY	$43,200	CHECK
Europe (Including Iceland and Greenland)	RESEARCH	$108,000	WIRE
Europe (Including Iceland and Greenland)	RESEARCH	$108,000	WIRE
Europe (Including Iceland and Greenland)	RESEARCH	$108,000	WIRE
East Asia and the Pacific	PILOT STUDY	$54,000	WIRE
East Asia and the Pacific	RESEARCH	$108,000	WIRE
Middle East and North Africa	RESEARCH	$108,000	WIRE

Field	Value	IRS element (for citing)
Total501c3 Org	8	Total501c3OrgCnt
Transfer To Foreign Corp	Yes (true)	TransferToForeignCorpInd
Interest In Foreign Trust	Yes (true)	InterestInForeignTrustInd
Foreign Corp Ownership	Yes (true)	ForeignCorpOwnershipInd
Passive Foreign Investmest Co	Yes (true)	PassiveForeignInvestmestCoInd
Foreign Partnership	Yes (true)	ForeignPartnershipInd
Boycott Countries	false	BoycottCountriesInd

Supplemental Information Detail SupplementalInformationDetail (2 entries)

Form And Line ReferenceFormAndLineReferenceDesc

ExplanationExplanationTxt

PROCEDURES FOR MONITORING GRANT FUNDS OUTSIDE OF THE U.S.

THE ORGANIZATION HAS PROCEDURES IN PLACE TO MONITOR THE SCIENTIFIC PROGRESS AND FINANCIAL ASPECTS OF GRANTS AWARDED TO ENTITIES OUTSIDE OF THE UNITED STATES. THE ORGANIZATION FOLLOWS THE U.S. DEPARTMENT OF TREASURY ANTI-TERRORIST FINANCING VOLUNTARY BEST PRACTICES GUIDELINES FOR CHARITIES. IN COMPLIANCE WITH THE BEST PRACTICES, THE ORGANIZATION COLLECTS AND REVIEWS INFORMATION ABOUT THE PROSPECTIVE GRANTEES AND CONDUCTS A VETTING PROCESS TO ENSURE THEY ARE NOT SUSPECTED OF ACTIVITIES RELATED TO TERRORISM. ONCE A GRANT IS APPROVED, A WRITTEN AGREEMENT IS SIGNED BY BOTH THE ORGANIZATION AND THE GRANTEE. FUNDING IS INCREMENTAL AND SPONSORED INSTITUTIONS ARE REQUIRED TO SUBMIT ANNUAL REPORTS OF EXPENDITURES AS WELL AS SCIENTIFIC PROGRESS REPORTS. SCIENTIFIC REPORTS ARE REVIEWED BY THE ORGANIZATION'S SCIENTIFIC STAFF TO DETERMINE PROGRESS. THE FINAL GRANT PAYMENT IS CONTINGENT UPON RECEIPT AND APPROVAL OF THE REPORT OF EXPENDITURES. REPORTS OF EXPENDITURES ARE REVIEWED AND APPROVED BY STAFF TO ENSURE INCURRED COSTS ARE APPROPRIATE. THE CF FOUNDATION'S INTERNAL AUDITORS CONDUCT AUDITS ON SAMPLES OF GRANT EXPENDITURE REPORTS BY EXAMINING SUPPORTING RECORDS FROM THE SPONSORED INSTITUTIONS. THE GRANT TO THE MIDDLE EAST/NORTH AFRICA REGION WAS MADE TO WEIZMANN INSTITUTE OF SCIENCE IN ISRAEL.

FOREIGN FORMS

THE ACTIVITIES REFERENCED IN SCHEDULE F PART IV ARE LIMITED TO CERTAIN OF THE FOUNDATION'S INVESTMENTS.

Schedule G IRS990ScheduleG

Field	Value	IRS element (for citing)
Mail Solicitations	Yes (X)	MailSolicitationsInd
Email Solicitations	Yes (X)	EmailSolicitationsInd
Phone Solicitations	Yes (X)	PhoneSolicitationsInd
In Person Solicitations	Yes (X)	InPersonSolicitationsInd
Solicitation Of Non Govt Grants	Yes (X)	SolicitationOfNonGovtGrantsInd
Agrmt Prof Fundraising Acty	Yes (true)	AgrmtProfFundraisingActyInd

Fundraiser Activity Info FundraiserActivityInfoGrp

Field	Value	IRS element (for citing)
Person	NNE MARKETING	PersonNm
Activity	MAIL COUNSEL	ActivityTxt
Fundraiser Control Of Funds	false	FundraiserControlOfFundsInd
Gross Receipts	$7,622,757	GrossReceiptsAmt
Retained By Contractor	$368,000	RetainedByContractorAmt
Net To Organization	$7,254,757	NetToOrganizationAmt

Field	Value	IRS element (for citing)
Total Gross Receipts	$7,622,757	TotalGrossReceiptsAmt
Total Retained By Contractors	$368,000	TotalRetainedByContractorsAmt
Total Net To Organization	$7,254,757	TotalNetToOrganizationAmt
Licensed States	AL	LicensedStatesCd
Licensed States	AK	LicensedStatesCd
Licensed States	AZ	LicensedStatesCd
Licensed States	AR	LicensedStatesCd
Licensed States	CA	LicensedStatesCd
Licensed States	CO	LicensedStatesCd
Licensed States	CT	LicensedStatesCd
Licensed States	DE	LicensedStatesCd
Licensed States	FL	LicensedStatesCd
Licensed States	GA	LicensedStatesCd
Licensed States	HI	LicensedStatesCd
Licensed States	ID	LicensedStatesCd
Licensed States	IL	LicensedStatesCd
Licensed States	IN	LicensedStatesCd
Licensed States	IA	LicensedStatesCd
Licensed States	KS	LicensedStatesCd
Licensed States	KY	LicensedStatesCd
Licensed States	LA	LicensedStatesCd
Licensed States	ME	LicensedStatesCd
Licensed States	MD	LicensedStatesCd
Licensed States	MA	LicensedStatesCd
Licensed States	MI	LicensedStatesCd
Licensed States	MN	LicensedStatesCd
Licensed States	MS	LicensedStatesCd
Licensed States	MO	LicensedStatesCd
Licensed States	MT	LicensedStatesCd
Licensed States	NE	LicensedStatesCd
Licensed States	NV	LicensedStatesCd
Licensed States	NH	LicensedStatesCd
Licensed States	NJ	LicensedStatesCd
Licensed States	NM	LicensedStatesCd
Licensed States	NY	LicensedStatesCd
Licensed States	NC	LicensedStatesCd
Licensed States	ND	LicensedStatesCd
Licensed States	OH	LicensedStatesCd
Licensed States	OK	LicensedStatesCd
Licensed States	OR	LicensedStatesCd
Licensed States	PA	LicensedStatesCd
Licensed States	RI	LicensedStatesCd
Licensed States	SC	LicensedStatesCd
Licensed States	SD	LicensedStatesCd
Licensed States	TN	LicensedStatesCd
Licensed States	TX	LicensedStatesCd
Licensed States	UT	LicensedStatesCd
Licensed States	VT	LicensedStatesCd
Licensed States	VA	LicensedStatesCd
Licensed States	WA	LicensedStatesCd
Licensed States	WV	LicensedStatesCd
Licensed States	WI	LicensedStatesCd
Licensed States	WY	LicensedStatesCd

Supplemental Information Detail SupplementalInformationDetail

Field	Value	IRS element (for citing)
Form And Line Reference	PROFESSIONAL FUNDRAISING SERVICES	FormAndLineReferenceDesc
Explanation	SCHEDULE G, PART I, LINE 2B CFF HAD A WRITTEN CONTRACT WITH NNE MARKETING TO CONSULT ON ITS DIRECT MARKETING EFFORTS. THE EXPENSE FOR THE PROJECT IS $16,000 PER MONTH OR $192,000 PER YEAR, PLUS CREATIVE DEVELOPMENT, WHICH IS BILLED SEPARATELY AND ACCOUNTS FOR THE DIFFERENCE IN THE TOTAL AMOUNT PAID AND THOSE CONSULTING ACTIVITIES THAT MAY BE CONSIDERED PROFESSIONAL FUNDRAISING SERVICES. ALL DONATIONS FROM MAIL, WHICH NNE ASSISTS WITH, ARE MADE PAYABLE DIRECTLY TO THE FOUNDATION.	ExplanationTxt

Schedule I IRS990ScheduleI

Field	Value	IRS element (for citing)
Grant Records Maintained	Yes (true)	GrantRecordsMaintainedInd

Recipient Table RecipientTable (335 entries)

Address Line1USAddress/AddressLine1Txt	CityUSAddress/CityNm	State AbbreviationUSAddress/StateAbbreviationCd	ZIPUSAddress/ZIPCd	Recipient EINRecipientEIN	IRC SectionIRCSectionDesc	Cash GrantCashGrantAmt	Purpose Of GrantPurposeOfGrantTxt
ADVOCATE HOPE CHILDREN'S HOSPITAL
4440 WEST 95TH STREET	OAK LAWN	IL	60453	362169147	501C(3)	$29,160	CF CARE CENTER
ADVOCATE HOPE CHILDREN'S HOSPITAL
4440 WEST 95TH STREET	OAK LAWN	IL	60453	362169147	501C(3)	$36,445	RESEARCH
ADVOCATE MEDICAL GROUP
701 LEE ST	DES PLAINES	IL	60016	362169147	501C(3)	$23,220	CF CARE CENTER
ALBANY MEDICAL COLLEGE
ELSMERE A-107	ALBANY	NY	12208	141338310	501C(3)	$241,529	CF CARE CENTER
ALFRED I DUPONT INSTITUTE OF THE NEMOURS FOUNDATI
1600 ROCKLAND ROAD PO BOX 269	WILMINGTON	DE	19899	590634433	501C(3)	$57,540	CF CARE CENTER
ALL CHILDREN'S HOSPITAL
DEPT 9010 PO BOX 31020	ST PETERSBURG	FL	33731	590683252	501C(3)	$171,598	CF CARE CENTER
ANN AND ROBERT H LURIE CHILDREN'S HOSPITAL OF CHI
2300 CHILDRENS PLAZA - BOX 205	CHICAGO	IL	60614	362170833	501C(3)	$196,771	CF CARE CENTER
ANN AND ROBERT H LURIE CHILDREN'S HOSPITAL OF CHI
2300 CHILDRENS PLAZA - BOX 205	CHICAGO	IL	60614	362170833	501C(3)	$43,200	PILOT STUDY
ANN AND ROBERT H LURIE CHILDREN'S HOSPITAL OF CHI
2300 CHILDRENS PLAZA - BOX 205	CHICAGO	IL	60614	362170833	501C(3)	$118,800	QUALITY IMPROVEMENT
ANN AND ROBERT H LURIE CHILDREN'S HOSPITAL OF CHI
2300 CHILDRENS PLAZA - BOX 205	CHICAGO	IL	60614	362170833	501C(3)	$122,433	RESEARCH
ARIZONA BOARD OF REGENTS UNIVERSITY OF ARIZONA
888 N EUCLID ROOM 510	TUCSON	AZ	857223308	742652689	IRC 115	$91,411	CF CARE CENTER
ARIZONA BOARD OF REGENTS UNIVERSITY OF ARIZONA
888 N EUCLID ROOM 510	TUCSON	AZ	857223308	742652689	IRC 115	$17,280	QUALITY IMPROVEMENT
ARKANSAS CHILDREN'S HOSPITAL RESEARCH INSTITUTE I
800 MARSHALL STREET SLOT 512-17	LITTLE ROCK	AR	72202	710694931	501C(3)	$95,226	CF CARE CENTER
ASTHMA AND ALLERGY SPECIALISTS PA
411 BILLINGS ROAD SUITE 104	CHARLOTTE	NC	28211	561913043	C CORP	$58,541	CF CARE CENTER
ATLANTIC HEALTH SYSTEM
100 MADISON AVENUE	MORRISTOWN	NJ	07962	521958352	501C(3)	$58,994	CF CARE CENTER
ATLANTIC HEALTH SYSTEM
100 MADISON AVENUE	MORRISTOWN	NJ	07962	521958352	501C(3)	$50,122	PILOT STUDY
ATLANTIC HEALTH SYSTEM
100 MADISON AVENUE	MORRISTOWN	NJ	07962	521958352	501C(3)	$39,383	RESEARCH STUDY
BAYLOR COLLEGE OF MEDICINE
PO BOX 1	HOUSTON	TX	77212	741613878	501C(3)	$32,379	ADULT CARE
BAYLOR COLLEGE OF MEDICINE
PO BOX 1	HOUSTON	TX	77212	741613878	501C(3)	$393,780	CF CARE CENTER
BAYSTATE MEDICAL CENTER (95-196)
759 CHESTNUT STREET	SPRINGFIELD	MA	01199	042790311	501C(3)	$48,221	CF CARE CENTER
BETH ISRAEL MEDICAL CENTER
160 WATER STREET 24TH FLOOR	NEW YORK	NY	10038	135564934	501C(3)	$135,875	CF CARE CENTER
BETH ISRAEL MEDICAL CENTER
160 WATER STREET 24TH FLOOR	NEW YORK	NY	10038	135564934	501C(3)	$21,460	QUALITY IMPROVEMENT
BILLINGS CLINIC
2800 10TH AVENUE NORTH	BILLINGS	MT	59107	810231784	501C(3)	$78,664	CF CARE CENTER
BOARD OF REGENTS OF THE UNIVERSITY OF WISCONSIN SY
750 UNIVERSITY AVENUE	MADISON	WI	53706	396006492	IRC 115	$191,092	CF CARE CENTER
BOARD OF REGENTS OF THE UNIVERSITY OF WISCONSIN SY
750 UNIVERSITY AVENUE	MADISON	WI	53706	396006492	IRC 115	$17,280	QUALITY IMPROVEMENT
BOARD OF TRUSTEES OF SOUTHERN ILLINOIS UNIVERSITY
PO BOX 19636	SPRINGFIELD	IL	62794	376005961	501C(3)	$21,190	CF CARE CENTER
BOARD OF TRUSTEES OF THE LELAND STANFORD JUNIOR UN
651 SERRA STREET SUITE 220	STANFORD	CA	943056215	941156365	501C(3)	$322,016	CF CARE CENTER
BOARD OF TRUSTEES OF THE LELAND STANFORD JUNIOR UN
651 SERRA STREET SUITE 220	STANFORD	CA	943056215	941156365	501C(3)	$68,750	TRAINING
BOWLING GREEN STATE UNIVERSITY
106 UNIVERSITY HALL	BOWLING GREEN	OH	43403	346402018	IRC 115	$54,000	CF CARE CENTER
BRIGHAM AND WOMEN'S HOSPITAL BOSTON
10 VINING STREET	BOSTON	MA	02115	042312909	501C(3)	$32,385	QUALITY IMPROVEMENT
BRIGHAM AND WOMEN'S HOSPITAL BOSTON
10 VINING STREET	BOSTON	MA	02115	042312909	501C(3)	$97,200	RESEARCH
CALIFORNIA PACIFIC MEDICAL CENTER RESEARCH INSTITU
2200 WEBSTER STREET ROOM 405	SAN FRANCISCO	CA	94115	940562680	501C(3)	$33,386	CF CARE CENTER
CAMC HEALTH EDUCATION AND RESEARCH INSTITUTE
PO BOX 765	CHARLESTON	WV	25323	550753754	501C(3)	$53,546	CF CARE CENTER
CARLE FOUNDATION HOSPITAL
611 W PARK STREET	URBANA	IL	61801	371119538	501C(3)	$33,945	CF CARE CENTER
CASE WESTERN RESERVE UNIVERSITY
10900 EUCLID AVENUE	CLEVELAND	OH	441067037	341018992	501C(3)	$194,916	PILOT STUDY
CASE WESTERN RESERVE UNIVERSITY
10900 EUCLID AVENUE	CLEVELAND	OH	441067037	341018992	501C(3)	$518,400	RESEARCH
CASE WESTERN RESERVE UNIVERSITY
10900 EUCLID AVENUE	CLEVELAND	OH	441067037	341018992	501C(3)	$923,133	RESEARCH CENTER
CASE WESTERN RESERVE UNIVERSITY
10900 EUCLID AVENUE	CLEVELAND	OH	441067037	341018992	501C(3)	$46,250	RESEARCH STUDY
CASE WESTERN RESERVE UNIVERSITY
10900 EUCLID AVENUE	CLEVELAND	OH	441067037	341018992	501C(3)	$100,000	TRAINING
CENTER FOR MEDICAL TECHNOLOGY POLICY
401 EAST PRATT STREET SUITE 631	BALTIMORE	MD	21202	271203017	501C(3)	$150,418	QUALITY IMPROVEMENT
CENTRAL FLORIDA PULMONARY GROUP
326 NORTH MILLS AVENUE	ORLANDO	FL	32803	591760017	C CORP	$73,916	CF CARE CENTER
CHEST MEDICINE ASSOCIATES
100 FODEN ROAD	SOUTH PORTLAND	ME	04106	010461391	C CORP	$27,000	QUALITY IMPROVEMENT
CHILDREN'S & WOMEN'S PHYSICIANS OF WESTCHESTER
40 SUNSHINE COTTAGE ROAD SKLYLINE	VALHALLA	NY	10595	133956599	LLP	$89,654	CF CARE CENTER
CHILDREN'S HEALTH CARE
2525 CHICAGO AVENUE SOUTH	MINNEAPOLIS	MN	55404	411754276	501C(3)	$114,819	CF CARE CENTER
CHILDREN'S HEALTHCARE OF ATLANTA
1001 JOHNSON FERRY ROAD NORTH	ATLANTA	GA	30342	582367819	501C(3)	$105,579	CF CARE CENTER
CHILDREN'S HOSPITAL & RESEARCH CENTER AT OAKLAND
747 52ND STREET	OAKLAND	CA	94609	940382330	501C(3)	$40,432	CF CARE CENTER
CHILDREN'S HOSPITAL & RESEARCH CENTER AT OAKLAND
747 52ND STREET	OAKLAND	CA	94609	940382330	501C(3)	$125,000	RESEARCH
CHILDREN'S HOSPITAL CENTRAL CALIFORNIA
9300 VALLEY CHILDRENS PLACE	MADERA	CA	93638	941294954	501C(3)	$87,067	CF CARE CENTER
CHILDREN'S HOSPITAL CORPORATION (BOSTON CHILDREN'S
300 LONGWOOD AVE	BOSTON	MA	021155737	042774441	501C(3)	$32,200	ADULT CARE
CHILDREN'S HOSPITAL CORPORATION (BOSTON CHILDREN'S
300 LONGWOOD AVE	BOSTON	MA	021155737	042774441	501C(3)	$414,097	CF CARE CENTER
CHILDREN'S HOSPITAL CORPORATION (BOSTON CHILDREN'S
300 LONGWOOD AVE	BOSTON	MA	021155737	042774441	501C(3)	$33,264	QUALITY IMPROVEMENT
CHILDREN'S HOSPITAL CORPORATION (BOSTON CHILDREN'S
300 LONGWOOD AVE	BOSTON	MA	021155737	042774441	501C(3)	$235,000	TRAINING
CHILDREN'S HOSPITAL MEDICAL CENTER
RESEARCH ACCOUNTING	CINCINNATI	OH	45229	310833936	501C(3)	$197,897	CF CARE CENTER
CHILDREN'S HOSPITAL MEDICAL CENTER
RESEARCH ACCOUNTING	CINCINNATI	OH	45229	310833936	501C(3)	$470,000	RESEARCH CENTER
CHILDREN'S HOSPITAL MEDICAL CENTER
RESEARCH ACCOUNTING	CINCINNATI	OH	45229	310833936	501C(3)	$127,500	TRAINING
CHILDREN'S HOSPITAL MEDICAL CENTER AKRON
ONE PERKINS SQUARE	AKRON	OH	443081062	340714357	501C(3)	$237,827	CF CARE CENTER
CHILDREN'S HOSPITAL OF MICHIGAN
3663 WOODWARD AVE S STE 200	DETROIT	MI	48201	381357994	501C(3)	$79,423	CF CARE CENTER
CHILDREN'S HOSPITAL OF ORANGE COUNTY
PO BOX 5700	ORANGE	CA	926135700	952321786	501C(3)	$127,743	CF CARE CENTER
CHILDREN'S HOSPITAL OF ORANGE COUNTY
PO BOX 5700	ORANGE	CA	926135700	952321786	501C(3)	$17,280	QUALITY IMPROVEMENT
CHILDREN'S HOSPITAL OF PITTSBURGH
3705 FIFTH AVENUE	PITTSBURGH	PA	15213	250402510	501C(3)	$370,914	CF CARE CENTER
CHILDREN'S HOSPITAL LOS ANGELES
4650 SUNSET BLVD	LOS ANGELES	CA	90027	951690977	501C(3)	$135,628	CF CARE CENTER
CHILDREN'S LUNG SPECIALISTS
3838 MEADOWS LANE	LAS VEGAS	NV	89107	880271963	C-CORP	$105,565	CF CARE CENTER
CHILDREN'S MEDICAL CENTER
ONE CHILDRENS PLAZA	DAYTON	OH	454041815	310672132	501C(3)	$99,563	CF CARE CENTER
CHILDREN'S MERCY HOSPITAL
2401 GILLHAM ROAD	KANSAS CITY	MO	64108	440605373	501C(3)	$149,817	CF CARE CENTER
CHILDREN'S MERCY HOSPITAL
2401 GILLHAM ROAD	KANSAS CITY	MO	64108	440605373	501C(3)	$17,280	QUALITY IMPROVEMENT
CHILDREN'S NATIONAL MEDICAL CENTER
111 MICHIGAN AVENUE NW	WASHINGTON	DC	20010	521640403	501C(3)	$117,654	CF CARE CENTER
CHILDREN'S RESEARCH INSTITUTE (AT CNMC)
111 MICHIGAN AVENUE NW	WASHINGTON	DC	20010	521654453	501C(3)	$108,000	RESEARCH
CHILDREN'S SPECIALTY GROUP PLLC
811 REDGATE AVE	NORFOLK	VA	23507	541871633	LLC	$95,676	CF CARE CENTER
CHRISTUS SANTA ROSA HEALTHCARE
333 NORTH SANTA ROSA	SAN ANTONIO	TX	78207	741109665	501C(3)	$24,410	CF CARE CENTER
CONNECTICUT CHILDREN'S MEDICAL CENTER
282 WASHINGTON STREET	HARTFORD	CT	06106	060646755	501C(3)	$56,059	CF CARE CENTER
COOK CHILDREN'S MEDICAL CENTER CF CENTER
801 SEVENTH AVENUE	FT WORTH	TX	76104	752051646	501C(3)	$184,912	CF CARE CENTER
DAUGHTERS OF CHARITY HEALTH SERVICES OF AUSTIN
PO BOX 1	HOUSTON	TX	77212	741109643	501C(3)	$218,074	CF CARE CENTER
PHILADELPHIA HEALTH & EDUCATION CORPORATION
3201 ARCH STREET SUITE 420	PHILADELPHIA	PA	19104	232979433	501C(3)	$185,068	CF CARE CENTER
DUKE UNIVERSITY
BOX 104025	DURHAM	NC	27710	560532129	501C(3)	$116,829	CF CARE CENTER
EAST TENNESSEE CHILDREN'S HOSPITAL ASSOCIATION IN
2100 CLINCH AVENUE 310	KNOXVILLE	TN	37916	626002604	501C(3)	$158,780	CF CARE CENTER
EASTERN MAINE MEDICAL CENTER
417 STATE STREET SUITE 305	BANGOR	ME	04401	010211501	501C(3)	$39,461	CF CARE CENTER
EASTERN VIRGINIA MEDICAL SCHOOL
601 CHILDRENS LANE	NORFOLK	VA	23507	546055378	501C(3)	$54,000	QUALITY IMPROVEMENT
EMORY UNIVERSITY
1380 SOUTH OXFORD ROAD	ATLANTA	GA	30322	580566256	501C(3)	$59,400	ADULT CARE
EMORY UNIVERSITY
1380 SOUTH OXFORD ROAD	ATLANTA	GA	30322	580566256	501C(3)	$317,678	CF CARE CENTER
EMORY UNIVERSITY
1380 SOUTH OXFORD ROAD	ATLANTA	GA	30322	580566256	501C(3)	$97,200	RESEARCH
EMORY UNIVERSITY
1380 SOUTH OXFORD ROAD	ATLANTA	GA	30322	580566256	501C(3)	$562,333	RESEARCH CENTER
EMORY UNIVERSITY
1380 SOUTH OXFORD ROAD	ATLANTA	GA	30322	580566256	501C(3)	$46,250	RESEARCH STUDY
EMORY UNIVERSITY
1380 SOUTH OXFORD ROAD	ATLANTA	GA	30322	580566256	501C(3)	$62,750	TRAINING
ERLANGER HEALTH SYSTEM
975 EAST THIRD STREET	CHATTANOOGA	TN	37403	626000101	501C(3)	$46,560	CF CARE CENTER
FACULTY PHYSICIANS & SURGEONS OF LLUSM
PO BOX 2000	LOMA LINDA	CA	92350	330672915	501C(3)	$59,711	CF CARE CENTER
FAIRFAX NEONATAL ASSOCIATES PC DBAPEDIATRIC LUNG
2730-B PROSPERITY AVENUE	FAIRFAX	VA	22031	541110106	C CORP	$32,671	CF CARE CENTER
FLETCHER ALLEN HEALTH CARE
111 COLCHESTER AVE	BURLINGTON	VT	05401	030219309	501C(3)	$32,157	ADULT CARE
FLETCHER ALLEN HEALTH CARE
111 COLCHESTER AVE	BURLINGTON	VT	05401	030219309	501C(3)	$162,935	CF CARE CENTER
GEISINGER MEDICAL CENTER
N ACADEMY DRIVE	DANVILLE	PA	17822	236291113	501C(3)	$73,805	CF CARE CENTER
GEORGIA HEALTH SCIENCES UNIVERSITY
1120 15TH STREET	AUGUSTA	GA	309128300	586002053	501C(3)	$180,013	CF CARE CENTER
GLYCOMIMETICS INC
401 PROFESSIONAL DRIVE SUITE 250	GAITHERSBURG	MD	20879	061686563	C CORP	$70,750	RESEARCH
GOOD SAMARITAN HOSPITAL
1000 MONTAUK HIGHWAY	NEW YORK	NY	11795	111888924	501C(3)	$15,540	CF CARE CENTER
GREENVILLE HOSPITAL SYSTEM
701 GROVE ROAD	GREENVILLE	SC	29605	576007863	501C(3)	$44,149	CF CARE CENTER
GUNDERSEN LUTHERAN MEDICAL FOUNDATION
1900 SOUTH AVENUE	LA CROSSE	WI	54601	391249705	501C(3)	$21,840	CF CARE CENTER
HARTFORD HOSPITAL (CENTRAL CONNECTICUT CYSTIC FIBR
80 SEYMOUR STREET	HARTFORD	CT	06102	060646668	501C(3)	$121,777	CF CARE CENTER
HARTFORD HOSPITAL (CENTRAL CONNECTICUT CYSTIC FIBR
80 SEYMOUR STREET	HARTFORD	CT	06102	060646668	501C(3)	$17,280	QUALITY IMPROVEMENT
HENRY M JACKSON FOUNDATION FOR THE ADVANCEMENT OF
1404 ROCKVILLE PIKE SUITE 600	ROCKVILLE	MD	20852	521317896	501C(3)	$38,505	CF CARE CENTER
HENRY M JACKSON FOUNDATION FOR THE ADVANCEMENT OF
1404 ROCKVILLE PIKE SUITE 600	ROCKVILLE	MD	20852	521317896	501C(3)	$86,400	PILOT STUDY
IOWA HEALTH FOUNDATION (BLANK CHILDREN'S CF CENTER
1440 INGERSOLL AVENUE	DES MOINES	IA	50309	421467682	501C(3)	$63,993	CF CARE CENTER
KAISER FOUNDATION RESEARCH INSTITUTE
1800 HARRISON STREET 16TH FLOOR	OAKLAND	CA	94612	941105628	501C(3)	$229,679	CF CARE CENTER
KAISER FOUNDATION RESEARCH INSTITUTE
1800 HARRISON STREET 16TH FLOOR	OAKLAND	CA	94612	941105628	501C(3)	$17,280	QUALITY IMPROVEMENT
KALEIDA HEALTH
219 BRYANT STREET	BUFFALO	NY	14209	161533232	501C(3)	$78,280	CF CARE CENTER
LANDON PEDIATRIC FOUNDATION
3291 LOMA VISTA ROAD	VENTURA	CA	93003	931097216	501C(3)	$32,742	CF CARE CENTER
LEE MEMORIAL HEALTH SYSTEM FOUNDATION INC
16451 HEALTHPARK COMMONS 200	FT MYERS	FL	339083630	650645343	501C(3)	$26,589	CF CARE CENTER
LEHIGH VALLEY HOSPITAL
2545 SCHOENERSVILLE ROAD	BETHLEHEM	PA	18017	231689692	501C(3)	$23,665	CF CARE CENTER
LIFE SCIENCES RESEARCH FOUNDATION
3520 SAN MARTIN DRIVE	BALTIMORE	MD	212182440	521231801	501C(3)	$61,000	RESEARCH
LONG BEACH MEMORIAL MEDICAL CENTER
2801 ATLANTIC AVENUE	LONG BEACH	CA	90806	953527031	501C(3)	$27,000	ADULT CARE
LONG ISLAND JEWISH MEDICAL CENTER
972 BRUSHHOLLOW ROAD	WESTBURY	NY	11590	112241326	501C(3)	$165,240	CF CARE CENTER
LONG ISLAND JEWISH MEDICAL CENTER
972 BRUSHHOLLOW ROAD	WESTBURY	NY	11590	112241326	501C(3)	$241,952	QUALITY IMPROVEMENT
LOYOLA UNIVERSITY OF CHICAGO
2160 S FIRST AVENUE	MAYWOOD	IL	60153	361408475	501C(3)	$57,082	CF CARE CENTER
LSUMC - SHREVEPORT
P O BOX 33932	SHREVEPORT	LA	71130	720702002	501C(3)	$89,853	CF CARE CENTER
LUTHERAN HOSPITAL OF INDIANA
7950 WEST JEFFERSON BOULEVARD	FT WAYNE	IN	46804	351963748	C CORP	$47,047	RESEARCH
MAINE MEDICAL CENTER
22 BRAMHALL STREET	PORTLAND	ME	04102	010238552	501C(3)	$189,931	CF CARE CENTER
MARSHFIELD CLINIC RESEARCH FOUNDATION
1000 NORTH OAK AVENUE	MARSHFIELD	WI	54449	390452970	501C(3)	$29,666	CF CARE CENTER
MARY BRIDGE CHILDREN'S FOUNDATION
311 SOUTH L STREET	TACOMA	WA	98405	943030039	501C(3)	$48,527	CF CARE CENTER
UCLA DEPARTMENT OF PEDIATRIC GROUP PRACTICE
10833 LE CONTE AVE MDCC 22-412	LOS ANGELES	CA	90095	954372298	501C(3)	$5,069	CF CARE CENTER
MAYO CLINIC ROCHESTER
200 FIRST STREET SW PLUMMER 5	ROCHESTER	MN	55905	416011702	501C(3)	$55,271	CF CARE CENTER
MEDICAL UNIVERSITY OF SOUTH CAROLINA
PO BOX 997	CHARLESTON	SC	29402	576000722	115	$119,607	CF CARE CENTER
MEMORIAL MEDICAL CENTER FOUNDATION
2801 ATLANTIC AVENUE	LONG BEACH	CA	908011428	956105984	501C(3)	$151,209	CF CARE CENTER
MIAMI CHILDREN'S HOSPITAL
3200 SW 60TH COURT	MIAMI	FL	33155	590638499	501C(3)	$58,617	CF CARE CENTER
MICHIGAN STATE UNIVERSITY
301 ADMINISTRATION BLDG	EAST LANSING	MI	488241046	386005984	501C(3)	$52,040	CF CARE CENTER
MICHIGAN STATE UNIVERSITY
301 ADMINISTRATION BLDG	EAST LANSING	MI	488241046	386005984	501C(3)	$21,882	CF CARE CENTER
WESTERN MICHIGAN UNIVERSITY SCHOOL OF MEDICINE
1000 OAKLAND DRIVE	KALAMAZOO	MI	49001	454135256	501C(3)	$24,860	CF CARE CENTER
MISSION HEALTHCARE FOUNDATION INC
980 HENDERSONVILLE ROAD	ASHEVILLE	NC	28803	561881331	501C(3)	$10,388	CF CARE CENTER
MONMOUTH MEDICAL CENTER FOUNDATION
300 SECOND AVENUE	LONG BRANCH	NJ	07740	222456079	501C(3)	$128,004	CF CARE CENTER
NATIONAL JEWISH MEDICAL AND RESEARCH CENTER
1400 JACKSON STREET	DENVER	CO	80206	742044647	501C(3)	$210,500	CF CARE CENTER
NATIONAL JEWISH MEDICAL AND RESEARCH CENTER
1400 JACKSON STREET	DENVER	CO	80206	742044647	501C(3)	$17,280	QUALITY IMPROVEMENT
NATIONAL JEWISH MEDICAL AND RESEARCH CENTER
1400 JACKSON STREET	DENVER	CO	80206	742044647	501C(3)	$291,600	RESEARCH
NATIONAL JEWISH MEDICAL AND RESEARCH CENTER
1400 JACKSON STREET	DENVER	CO	80206	742044647	501C(3)	$525,000	RESEARCH CENTER
NEMOURS CHILDREN'S CLINIC JACKSONVILLE
807 NIRA STREET	JACKSONVILLE	FL	32207	590634433	501C(3)	$32,400	ADULT CARE
NEMOURS CHILDREN'S CLINIC JACKSONVILLE
807 NIRA STREET	JACKSONVILLE	FL	32207	590634433	501C(3)	$74,356	CF CARE CENTER
NEMOURS CHILDREN'S CLINIC ORLANDO
496 S DELANEY AVENUE SUITE 408	ORLANDO	FL	32801	590634433	501C(3)	$47,070	CF CARE CENTER
NEMOURS CHILDREN'S CLINIC ORLANDO
496 S DELANEY AVENUE SUITE 408	ORLANDO	FL	32801	590634433	501C(3)	$13,230	QUALITY IMPROVEMENT
NEMOURS CHILDREN'S CLINIC PENSACOLA
5153 NORTH 9TH AVENUE	PENSACOLA	FL	32504	590634433	501C(3)	$53,761	CF CARE CENTER
NEW YORK UNIVERSITY SCHOOL OF MEDICINE
550 FIRST AVENUE	NEW YORK	NY	10016	135562308	501C(3)	$27,000	ADULT CARE
NEW YORK UNIVERSITY SCHOOL OF MEDICINE
550 FIRST AVENUE	NEW YORK	NY	10016	135562308	501C(3)	$116,580	CF CARE CENTER
NEW YORK UNIVERSITY SCHOOL OF MEDICINE
550 FIRST AVENUE	NEW YORK	NY	10016	135562308	501C(3)	$21,600	QUALITY IMPROVEMENT
NORTH SUBURBAN PULMONARY
8780 W GOLF ROAD SUITE 102	NILES	IL	60714	364393017	C CORP	$21,750	CF CARE CENTER
NORTHWESTERN UNIVERSITY
750 N LAKE SHORE DRIVE	CHICAGO	IL	606113008	362167817	501C(3)	$79,547	CF CARE CENTER
NORTHWESTERN UNIVERSITY
750 N LAKE SHORE DRIVE	CHICAGO	IL	606113008	362167817	501C(3)	$54,000	PILOT STUDY
OREGON HEALTH & SCIENCE UNIVERSITY
0690 SW BANCROFT STREET	PORTLAND	OR	97239	237083114	501C(3)	$32,400	ADULT CARE
OREGON HEALTH & SCIENCE UNIVERSITY
0690 SW BANCROFT STREET	PORTLAND	OR	97239	237083114	501C(3)	$314,635	CF CARE CENTER
OREGON HEALTH & SCIENCE UNIVERSITY
0690 SW BANCROFT STREET	PORTLAND	OR	97239	237083114	501C(3)	$32,400	QUALITY IMPROVEMENT
ORLANDO HEALTH FOUNDATION
3160 SOUTHGATE COMMERCE BLVD	ORLANDO	FL	32806	592244943	501C(3)	$60,522	CF CARE CENTER
ORLANDO HEALTH FOUNDATION
3160 SOUTHGATE COMMERCE BLVD	ORLANDO	FL	32806	592244943	501C(3)	$17,280	QUALITY IMPROVEMENT
OSF SAINT FRANCIS MEDICAL CENTER
530 NE GLEN OAK AVENUE	PEORIA	IL	61637	370662569	501C(3)	$62,455	QUALITY IMPROVEMENT
PENNSYLVANIA STATE UNIVERSITY
OFFICE OF RESEARCH AFFAIRS H138	HERSHEY	PA	17033	246000376	IRC 115	$76,116	CF CARE CENTER
PENNSYLVANIA STATE UNIVERSITY
OFFICE OF RESEARCH AFFAIRS H138	HERSHEY	PA	17033	246000376	IRC 115	$79,713	QUALITY IMPROVEMENT
PHOENIX CHILDREN'S HOSPITAL
1300 NORTH 12TH STREET	PHOENIX	AZ	85006	860422559	501C(3)	$258,524	CF CARE CENTER
PROVIDENCE ALASKA MEDICAL CENTER
3200 PROVIDENCE DRIVE	ANCHORAGE	AK	995196604	920016429	501C(3)	$36,053	QUALITY IMPROVEMENT
PROVIDENCE PHYSICIAN SERVICE
101 W 8TH AVE	SPOKANE	WA	99204	911216033	C CORP	$87,207	TRAINING
REGENTS OF THE UNIVERSITY OF COLORADO AT DENVER
F428 FITZSIMONS BUILDING 500	AURORA	CO	800450508	846000555	501C(3)	$248,497	CF CARE CENTER
REGENTS OF THE UNIVERSITY OF COLORADO AT DENVER
F428 FITZSIMONS BUILDING 500	AURORA	CO	800450508	846000555	501C(3)	$32,376	QUALITY IMPROVEMENT
RENOWN HEALTH FOUNDATION
1155 MILL ST Z-5	RENO	NV	89502	942872749	501C(3)	$23,430	CF CARE CENTER
RHODE ISLAND HOSPITAL
593 EDDY STREET	PROVIDENCE	RI	02903	050258954	501C(3)	$50,758	ADULT CARE
RHODE ISLAND HOSPITAL
593 EDDY STREET	PROVIDENCE	RI	02903	050258954	501C(3)	$71,248	CF CARE CENTER
RUSH UNIVERSITY MEDICAL CENTER ST LUKE'S MEDICA
1725 WEST HARRISON SUITE 718	CHICAGO	IL	60612	362174823	501C(3)	$27,000	ADULT CARE
RUSH UNIVERSITY MEDICAL CENTER ST LUKE'S MEDICA
1725 WEST HARRISON SUITE 718	CHICAGO	IL	60612	362174823	501C(3)	$87,915	CF CARE CENTER
RUSH UNIVERSITY MEDICAL CENTER ST LUKE'S MEDICA
1725 WEST HARRISON SUITE 718	CHICAGO	IL	60612	362174823	501C(3)	$33,264	QUALITY IMPROVEMENT
RUTGERS THE STATE UNIVERSITY OF NEW JERSEY
58 BEVIER ROAD	PISCATAWAY	NJ	088548010	462354111	IRC 115	$71,717	CF CARE CENTER
RUTGERS THE STATE UNIVERSITY OF NEW JERSEY
58 BEVIER ROAD	PISCATAWAY	NJ	088548010	462354111	IRC 115	$54,000	PILOT STUDY
SAINT BARNABAS MEDICAL CENTER
200 SOUTH ORANGE AVENUE	LIVINGSTON	NJ	07039	221494440	501C(3)	$26,578	CF CARE CENTER
SAINT JOSEPH'S HOSPITAL AND MEDICAL CENTER
703 MAIN STREET	PATERSON	NJ	07503	221487602	501C(3)	$75,733	CF CARE CENTER
SAMARITAN MEDICAL CENTER
513 WASHINGTON STREET	WATERTOWN	NY	13601	150533577	501C(3)	$8,797	CF CARE CENTER
SANFORD CHILDREN'S SPECIALTY CLINIC
1305 W 18TH STREET	SIOUX FALLS	SD	571175039	460447693	501C(3)	$83,337	CF CARE CENTER
SANTA BARBARA COTTAGE HOSPITAL
2405 DE LA VINA STREET	SANTA BARBARA	CA	93105	951644629	501C(3)	$13,853	CF CARE CENTER
SCOTT & WHITE MEMORIAL HOSPITAL
2401 SOUTH 31ST STREET	TEMPLE	TX	76508	741166904	501C(3)	$29,875	CF CARE CENTER
SEATTLE CHILDREN'S HOSPITAL
4800 SAND POINT WAY NE MS T-0111	SEATTLE	WA	98105	910564748	501C(3)	$30,200	QUALITY IMPROVEMENT
SEATTLE CHILDREN'S HOSPITAL
4800 SAND POINT WAY NE MS T-0111	SEATTLE	WA	98105	910564748	501C(3)	$181,203	CF CARE CENTER
SOUTH BROWARD HOSPITAL DISTRICT
CYSTIC FIBROSIS CLINIC	HOLLYWOOD	FL	33321	596014973	501C(3)	$144,432	CF CARE CENTER
SPECTRUM HEALTH FOUNDATION
100 MICHIGAN STREET NE MC 004	GRAND RAPIDS	MI	49503	382752328	501C(3)	$229,641	CF CARE CENTER
ST ALEXIUS MEDICAL CENTER
PO BOX 5510	BISMARCK	ND	585065510	450226711	501C(3)	$29,433	CF CARE CENTER
ST JOSEPH'S REGIONAL MEDICAL CENTER INC
611 EAST CEDAR STREET SUITE 405	MISHAWAKA	IN	465451468	351568821	501C(3)	$31,007	CF CARE CENTER
ST LOUIS UNIVERSITY
3500 LINDELL BLVD	ST LOUIS	MO	63103	430654872	501C(3)	$111,319	CF CARE CENTER
ST LUKE'S REGIONAL MEDICAL CENTER
100 EAST IDAHO SUITE 200	BOISE	ID	83712	820161600	501C(3)	$177,516	CF CARE CENTER
THE RESEARCH FOUNDATION FOR THE STATE UNIVERSITY O
PO BOX 9	ALBANY	NY	122010009	141368361	501C(3)	$17,280	QUALITY IMPROVEMENT
THE RESEARCH FOUNDATION FOR THE STATE UNIVERSITY O
PO BOX 9	ALBANY	NY	122010009	141368361	501C(3)	$187,191	CF CARE CENTER
SUTTER MEDICAL CENTER SACRAMENTO
5609 J STREET SUITE C	SACRAMENTO	CA	95819	941156621	501C(3)	$54,864	CF CARE CENTER
SYNEDGEN INC
1420 CLAREMONT BLVD SUITE 105D	CLAREMONT	CA	91711	800384893	C CORP	$236,299	RESEARCH
TENET ST MARY'S INC CYSTIC FIBROSIS CENTER
PO BOX 24620 901 45TH STREET	WEST PALM BEACH	FL	33407	752932830	C CORP	$50,705	CF CARE CENTER
TENET ST MARY'S INC CYSTIC FIBROSIS CENTER
PO BOX 24620 901 45TH STREET	WEST PALM BEACH	FL	33407	752932830	C CORP	$17,280	QUALITY IMPROVEMENT
TENET ST MARY'S INC CYSTIC FIBROSIS CENTER
PO BOX 24620 901 45TH STREET	WEST PALM BEACH	FL	33407	752932830	C CORP	$54,000	RESEARCH
TENNESSEE DEPARTMENT OF HEALTHLAB SERVICES
710 JAMES ROBERTSON PARKWAY 6TH FL	NASHVILLE	TN	37243	626001445	OTHER GOV'T	$20,000	CF CARE CENTER
TEXAS TECH UNIVERSITY HEALTH SCIENCES CENTER
3601 4TH STREET	LUBBOCK	TX	79430	752668014	IRC 115	$27,178	CF CARE CENTER
THE ADULT CYSTIC FIBROSIS CENTER OF JACKSONVILLE
425 N LEE STREET SUITE 202	JACKSONVILLE	FL	32204	204055796	501C(3)	$26,305	CF CARE CENTER
THE CHILDREN'S HOSPITAL OF PHILADELPHIA
3516 CIVIC CENTER BLVD	PHILADELPHIA	PA	191044318	231352166	501C(3)	$32,400	ADULT CARE
THE CHILDREN'S HOSPITAL OF PHILADELPHIA
3516 CIVIC CENTER BLVD	PHILADELPHIA	PA	191044318	231352166	501C(3)	$244,895	CF CARE CENTER
THE CHILDREN'S HOSPITAL OF PHILADELPHIA
3516 CIVIC CENTER BLVD	PHILADELPHIA	PA	191044318	231352166	501C(3)	$100,000	RESEARCH
THE CURATORS OF THE UNIVERSITY OF MISSOURI
310 JESSE HALL	COLUMBIA	MO	65211	436003859	IRC 115	$26,998	ADULT CARE
THE CURATORS OF THE UNIVERSITY OF MISSOURI
310 JESSE HALL	COLUMBIA	MO	65211	436003859	IRC 115	$172,980	CF CARE CENTER
THE CURATORS OF THE UNIVERSITY OF MISSOURI
310 JESSE HALL	COLUMBIA	MO	65211	436003859	IRC 115	$54,000	PILOT STUDY
THE CURATORS OF THE UNIVERSITY OF MISSOURI
310 JESSE HALL	COLUMBIA	MO	65211	436003859	IRC 115	$33,264	QUALITY IMPROVEMENT
THE CURATORS OF THE UNIVERSITY OF MISSOURI
310 JESSE HALL	COLUMBIA	MO	65211	436003859	IRC 115	$216,000	RESEARCH
THE GENERAL HOSPITAL CORPORATION (MASSACHUSETTS GE
PO BOX 414876	BOSTON	MA	02114	042697983	501C(3)	$192,638	CF CARE CENTER
THE GENERAL HOSPITAL CORPORATION (MASSACHUSETTS GE
PO BOX 414876	BOSTON	MA	02114	042697983	501C(3)	$95,932	RESEARCH STUDY
THE GENERAL HOSPITAL CORPORATION (MASSACHUSETTS GE
PO BOX 414876	BOSTON	MA	02114	042697983	501C(3)	$227,500	TRAINING
THE HITCHCOCK FOUNDATION
ONE MEDICAL CENTER DRIVE	LEBANON	NH	03756	020222139	501C(3)	$194,670	CF CARE CENTER
THE JOHNS HOPKINS UNIVERSITY
600 N WOLFE STREET PARK 316	BALTIMORE	MD	21205	520595110	501C(3)	$344,986	CF CARE CENTER
THE JOHNS HOPKINS UNIVERSITY
600 N WOLFE STREET PARK 316	BALTIMORE	MD	21205	520595110	501C(3)	$43,200	PILOT STUDY
THE JOHNS HOPKINS UNIVERSITY
600 N WOLFE STREET PARK 316	BALTIMORE	MD	21205	520595110	501C(3)	$108,000	RESEARCH
THE MEDICAL COLLEGE OF WISCONSIN
8701 WATERTOWN PLANK ROAD	MILWAUKEE	WI	53226	390806261	501C(3)	$301,404	CF CARE CENTER
THE MEDICAL COLLEGE OF WISCONSIN
8701 WATERTOWN PLANK ROAD	MILWAUKEE	WI	53226	390806261	501C(3)	$81,000	QUALITY IMPROVEMENT
THE OHIO STATE UNIVERSITY
1960 KENNY ROAD	COLUMBUS	OH	43210	316025986	IRC 115	$54,000	ADULT CARE
THE OHIO STATE UNIVERSITY
1960 KENNY ROAD	COLUMBUS	OH	43210	316025986	IRC 115	$97,200	CF CARE CENTER
THE OHIO STATE UNIVERSITY
1960 KENNY ROAD	COLUMBUS	OH	43210	316025986	IRC 115	$46,250	RESEARCH STUDY
THE PRESIDENT & FELLOWS OF HARVARD COLLEGE
25 SHATTUCK STREET	BOSTON	MA	02115	042103580	501C(3)	$47,930	RESEARCH STUDY
THE RECTOR AND VISITORS OF THE UNIVERSITY OF VIRGI
PO BOX 400195	CHARLOTTESVILLE	VA	229044195	546001796	501C(3)	$247,972	CF CARE CENTER
THE RECTOR AND VISITORS OF THE UNIVERSITY OF VIRGI
PO BOX 400195	CHARLOTTESVILLE	VA	229044195	546001796	501C(3)	$26,460	QUALITY IMPROVEMENT
THE REGENTS OF THE UNIVERSITY OF CALIFORNIA DAVIS
ONE SHIELDS AVENUE	DAVIS	CA	95616	946036494	501C(3)	$90,381	CF CARE CENTER
THE REGENTS OF THE UNIVERSITY OF CALIFORNIA SAN D
9500 GILMAN DRIVE DEPT 0934	LA JOLLA	CA	920930954	956006144	501C(3)	$172,247	CF CARE CENTER
THE REGENTS OF THE UNIVERSITY OF CALIFORNIA SAN F
3333 CALIFORNIA STREET SUITE 315	SAN FRANCISCO	CA	941430962	946036493	501C(3)	$64,800	ADULT CARE
THE REGENTS OF THE UNIVERSITY OF CALIFORNIA SAN F
3333 CALIFORNIA STREET SUITE 315	SAN FRANCISCO	CA	941430962	946036493	501C(3)	$158,730	CF CARE CENTER
THE REGENTS OF THE UNIVERSITY OF CALIFORNIA SAN F
3333 CALIFORNIA STREET SUITE 315	SAN FRANCISCO	CA	941430962	946036493	501C(3)	$54,000	PILOT STUDY
THE REGENTS OF THE UNIVERSITY OF CALIFORNIA SAN F
3333 CALIFORNIA STREET SUITE 315	SAN FRANCISCO	CA	941430962	946036493	501C(3)	$430,000	RESEARCH CENTER
THE REGENTS OF THE UNIVERSITY OF CALIFORNIA SAN F
3333 CALIFORNIA STREET SUITE 315	SAN FRANCISCO	CA	941430962	946036493	501C(3)	$196,750	TRAINING
THE REGENTS OF THE UNIVERSITY OF MICHIGAN
3003 SOUTH STATE STREET ROOM 3089	ANN ARBOR	MI	481091274	386006309	501C(3)	$32,400	ADULT CARE
THE REGENTS OF THE UNIVERSITY OF MICHIGAN
3003 SOUTH STATE STREET ROOM 3089	ANN ARBOR	MI	481091274	386006309	501C(3)	$391,989	CF CARE CENTER
THE REGENTS OF THE UNIVERSITY OF MICHIGAN
3003 SOUTH STATE STREET ROOM 3089	ANN ARBOR	MI	481091274	386006309	501C(3)	$54,000	PILOT STUDY
THE REGENTS OF THE UNIVERSITY OF MICHIGAN
3003 SOUTH STATE STREET ROOM 3089	ANN ARBOR	MI	481091274	386006309	501C(3)	$32,400	QUALITY IMPROVEMENT
THE REGENTS OF THE UNIVERSITY OF MICHIGAN
3003 SOUTH STATE STREET ROOM 3089	ANN ARBOR	MI	481091274	386006309	501C(3)	$233,000	RESEARCH
THE REGENTS OF THE UNIVERSITY OF MICHIGAN
3003 SOUTH STATE STREET ROOM 3089	ANN ARBOR	MI	481091274	386006309	501C(3)	$61,250	TRAINING
THE REGENTS OF THE UNIVERSITY OF MINNESOTA
200 OAK ST SE	MINNEAPOLIS	MN	554552070	416007513	IRC 115	$32,400	ADULT CARE
THE REGENTS OF THE UNIVERSITY OF MINNESOTA
200 OAK ST SE	MINNEAPOLIS	MN	554552070	416007513	IRC 115	$339,509	CF CARE CENTER
THE REGENTS OF THE UNIVERSITY OF MINNESOTA
200 OAK ST SE	MINNEAPOLIS	MN	554552070	416007513	IRC 115	$161,250	TRAINING
THE RESEARCH INSTITUTE AT NATIONWIDE CHILDREN'S HO
HUNTINGTON NATIONAL BANK	COLUMBUS	OH	43260	316056230	501C(3)	$43,200	PILOT STUDY
THE RESEARCH INSTITUTE AT NATIONWIDE CHILDREN'S HO
700 CHILDRENS DRIVE	COLUMBUS	OH	43260	316056230	501C(3)	$33,264	QUALITY IMPROVEMENT
THE RESEARCH INSTITUTE AT NATIONWIDE CHILDREN'S HO
700 CHILDRENS DRIVE	COLUMBUS	OH	43260	316056230	501C(3)	$284,495	CF CARE CENTER
THE TAMPA GENERAL HOSPITAL FOUNDATION
PO BOX 1289	TAMPA	FL	33601	237354477	501C(3)	$110,492	CF CARE CENTER
THE TRUSTEES OF COLUMBIA UNIVERSITY IN THE CITY OF
351 ENGINEERING TERRACE	NEW YORK	NY	10027	135598093	501C(3)	$32,400	ADULT CARE
THE TRUSTEES OF COLUMBIA UNIVERSITY IN THE CITY OF
351 ENGINEERING TERRACE	NEW YORK	NY	10027	135598093	501C(3)	$185,030	CF CARE CENTER
THE TRUSTEES OF COLUMBIA UNIVERSITY IN THE CITY OF
351 ENGINEERING TERRACE	NEW YORK	NY	10027	135598093	501C(3)	$33,264	QUALITY IMPROVEMENT
THE TRUSTEES OF COLUMBIA UNIVERSITY IN THE CITY OF
351 ENGINEERING TERRACE	NEW YORK	NY	10027	135598093	501C(3)	$66,250	TRAINING
THE UNIVERSITY OF ALABAMA AT BIRMINGHAM
1530 3RD AVE S THT422	BIRMINGHAM	AL	352940006	636005396	501C(3)	$327,460	CF CARE CENTER
THE UNIVERSITY OF ALABAMA AT BIRMINGHAM
1530 3RD AVE S THT422	BIRMINGHAM	AL	352940006	636005396	501C(3)	$42,966	QUALITY IMPROVEMENT
THE UNIVERSITY OF ALABAMA AT BIRMINGHAM
1530 3RD AVE S THT422	BIRMINGHAM	AL	352940006	636005396	501C(3)	$108,000	RESEARCH
THE UNIVERSITY OF ALABAMA AT BIRMINGHAM
1530 3RD AVE S THT422	BIRMINGHAM	AL	352940006	636005396	501C(3)	$525,000	RESEARCH CENTER
THE UNIVERSITY OF ALABAMA AT BIRMINGHAM
1530 3RD AVE S THT422	BIRMINGHAM	AL	352940006	636005396	501C(3)	$47,930	RESEARCH STUDY
THE UNIVERSITY OF CHICAGO
5801 S ELLIS AVENUE	CHICAGO	IL	60637	362177139	501C(3)	$82,149	CF CARE CENTER
THE UNIVERSITY OF NORTH CAROLINA AT CHAPEL HILL
OFFICE OF SPONSORED RESEARCH	CHAPEL HILL	NC	275991350	566001393	501C(3)	$421,387	CF CARE CENTER
THE UNIVERSITY OF NORTH CAROLINA AT CHAPEL HILL
OFFICE OF SPONSORED RESEARCH	CHAPEL HILL	NC	275991350	566001393	501C(3)	$97,200	PILOT STUDY
THE UNIVERSITY OF NORTH CAROLINA AT CHAPEL HILL
OFFICE OF SPONSORED RESEARCH	CHAPEL HILL	NC	275991350	566001393	501C(3)	$42,727	QUALITY IMPROVEMENT
THE UNIVERSITY OF NORTH CAROLINA AT CHAPEL HILL
OFFICE OF SPONSORED RESEARCH	CHAPEL HILL	NC	275991350	566001393	501C(3)	$305,200	RESEARCH
THE UNIVERSITY OF NORTH CAROLINA AT CHAPEL HILL
OFFICE OF SPONSORED RESEARCH	CHAPEL HILL	NC	275991350	566001393	501C(3)	$600,000	RESEARCH CENTER
THE UNIVERSITY OF NORTH CAROLINA AT CHAPEL HILL
OFFICE OF SPONSORED RESEARCH	CHAPEL HILL	NC	275991350	566001393	501C(3)	$94,180	RESEARCH STUDY
THE UNIVERSITY OF NORTH CAROLINA AT CHAPEL HILL
OFFICE OF SPONSORED RESEARCH	CHAPEL HILL	NC	275991350	566001393	501C(3)	$127,500	TRAINING
THE UNIVERSITY OF NORTH CAROLINA AT CHARLOTTE
9201 UNIVERSITY CITY BLVD	CHARLOTTE	NC	282230001	560791228	501C(3)	$47,930	RESEARCH STUDY
THE UNIVERSITY OF TEXAS AT AUSTIN
P O BOX 7726	AUSTIN	TX	787137726	746000203	IRC 115	$43,567	RESEARCH STUDY
TOLEDO CHILDREN'S HOSPITAL
2142 N COVE BLVD	TOLEDO	OH	43606	344428256	501C(3)	$106,198	CF CARE CENTER
TRUSTEES OF DARTMOUTH COLLEGE
11 ROPE FERRY ROAD 6210	HANOVER	NH	037551404	020222111	501C(3)	$868,198	QUALITY IMPROVEMENT
TRUSTEES OF DARTMOUTH COLLEGE
11 ROPE FERRY ROAD 6210	HANOVER	NH	037551404	020222111	501C(3)	$520,000	RESEARCH CENTER
TRUSTEES OF INDIANA UNIVERSITY
PO BOX 66057	BLOOMINGTON	IN	462666057	356001673	501C(3)	$32,400	ADULT CARE
TRUSTEES OF INDIANA UNIVERSITY
PO BOX 66057	BLOOMINGTON	IN	462666057	356001673	501C(3)	$341,021	CF CARE CENTER
TRUSTEES OF INDIANA UNIVERSITY
PO BOX 66057	BLOOMINGTON	IN	462666057	356001673	501C(3)	$21,600	QUALITY IMPROVEMENT
TRUSTEES OF INDIANA UNIVERSITY
PO BOX 66057	BLOOMINGTON	IN	462666057	356001673	501C(3)	$227,500	TRAINING
TRUSTEES OF THE UNIVERSITY OF PENNSYLVANIA
133 SOUTH 36TH STREET MEZZANINE	PHILADELPHIA	PA	191043246	231352685	501C(3)	$27,000	ADULT CARE
TRUSTEES OF THE UNIVERSITY OF PENNSYLVANIA
133 SOUTH 36TH STREET MEZZANINE	PHILADELPHIA	PA	191043246	231352685	501C(3)	$54,000	PILOT STUDY
TRUSTEES OF THE UNIVERSITY OF PENNSYLVANIA (ON BEH
3451 WALNUT STREET	PHILADELPHIA	PA	19104	231352685	501C(3)	$166,458	CF CARE CENTER
TULANE UNIVERSITY MEDICAL SCHOOL
6401 FRERET ST	NEW ORLEANS	LA	70118	720423889	501C(3)	$32,400	ADULT CARE
TULANE UNIVERSITY MEDICAL SCHOOL
6401 FRERET ST	NEW ORLEANS	LA	70118	720423889	501C(3)	$251,489	CF CARE CENTER
UNIVERSITY AT BUFFALO PEDIATRIC ASSOCIATES
219 BRYANT STREET	BUFFALO	NY	14222	161238821	501C(3)	$80,223	PILOT STUDY
UNIVERSITY HOSPITALS OF CLEVELAND RAINBOW BABIES
2074 ABINGDON ROAD	CLEVELAND	OH	44106	340714775	501C(3)	$26,336	ADULT CARE
UNIVERSITY HOSPITALS OF CLEVELAND RAINBOW BABIES
2074 ABINGDON ROAD	CLEVELAND	OH	44106	340714775	501C(3)	$217,059	CF CARE CENTER
UNIVERSITY OF ARKANSAS FOR MEDICAL SCIENCES
4301 WEST MARKHAM STREET	LITTLE ROCK	AR	72205	716046242	IRC 115	$62,063	CF CARE CENTER
UNIVERSITY OF CENTRAL FLORIDA
12201 RESEARCH PARKWAY SUITE 501	ORLANDO	FL	32826	593086453	501C(3)	$108,000	CF CARE CENTER
UNIVERSITY OF CINCINNATI PHYSICIANS COMPANY
231 ALBERT SABIN WAY	CINCINNATI	OH	452670564	311435820	501C(3)	$162,305	CF CARE CENTER
UNIVERSITY OF CINCINNATI PHYSICIANS COMPANY
231 ALBERT SABIN WAY	CINCINNATI	OH	452670564	311435820	501C(3)	$92,161	QUALITY IMPROVEMENT
UNIVERSITY OF COLORADO HEALTH SCIENCES CENTER
4200 E 9TH AVENUE	DENVER	CO	80262	846000555	501C(3)	$127,500	TRAINING
UNIVERSITY OF FLORIDA
1600 SW ARCHER RD SUITE D2-15	GAINESVILLE	FL	32610	596002052	IRC 115	$104,670	CF CARE CENTER
UNIVERSITY OF FLORIDA
1600 SW ARCHER RD SUITE D2-15	GAINESVILLE	FL	32610	596002052	IRC 115	$55,109	RESEARCH STUDY
UNIVERSITY OF IOWA
B 5 JESSUP HALL	IOWA CITY	IA	52242	426004813	IRC 115	$181,163	CF CARE CENTER
UNIVERSITY OF IOWA
B 5 JESSUP HALL	IOWA CITY	IA	52242	426004813	IRC 115	$97,200	PILOT STUDY
UNIVERSITY OF IOWA
B 5 JESSUP HALL	IOWA CITY	IA	52242	426004813	IRC 115	$600,000	RESEARCH CENTER
UNIVERSITY OF IOWA
B 5 JESSUP HALL	IOWA CITY	IA	52242	426004813	IRC 115	$61,250	TRAINING
UNIVERSITY OF KANSAS MEDICAL CENTER RESEARCH INSTI
3901 RAINBOW BOULEVARD MSN 1039	KANSAS CITY	KS	661032937	481108830	501C(3)	$27,000	ADULT CARE
UNIVERSITY OF KANSAS MEDICAL CENTER RESEARCH INSTI
3901 RAINBOW BOULEVARD MSN 1039	KANSAS CITY	KS	661032937	481108830	501C(3)	$186,117	CF CARE CENTER
UNIVERSITY OF KENTUCKY RESEARCH FOUNDATION
740 SOUTH LIMESTONE	LEXINGTON	KY	405360284	616033693	501C(3)	$163,858	CF CARE CENTER
UNIVERSITY OF LOUISVILLE RESEARCH FOUNDATION INC
JOUETT HALL BELKNAP CAMPUS	LOUISVILLE	KY	40292	611029626	501C(3)	$145,765	CF CARE CENTER
UNIVERSITY OF MARYLAND
650 W BALTIMORE ST - 8 SOUTH	BALTIMORE	MD	21201	526002033	IRC 115	$43,200	ADULT CARE
UNIVERSITY OF MASSACHUSETTS MEDICAL CENTER
55 LAKE AVENUE	WORCESTER	MA	10655	043167352	IRC 115	$25,240	CF CARE CENTER
UNIVERSITY OF MASSACHUSETTS MEDICAL CENTER
55 LAKE AVENUE	WORCESTER	MA	10655	043167352	IRC 115	$84,954	PILOT STUDY
UNIVERSITY OF MIAMI
1601 NW 12TH AVENUE	MIAMI	FL	33136	590624458	501C(3)	$145,129	CF CARE CENTER
UNIVERSITY OF MIAMI
1601 NW 12TH AVENUE	MIAMI	FL	33136	590624458	501C(3)	$445,025	QUALITY IMPROVEMENT
UNIVERSITY OF MIAMI
1601 NW 12TH AVENUE	MIAMI	FL	33136	590624458	501C(3)	$97,200	RESEARCH
UNIVERSITY OF MISSISSIPPI MEDICAL CENTER
2500 NORTH STATE STREET	JACKSON	MS	392164505	646008520	501C(3)	$171,258	CF CARE CENTER
UNIVERSITY OF NEBRASKA MEDICAL CENTER
985100 NEBRASKA MEDICAL CENTER	OMAHA	NE	681987835	470049123	501C(3)	$27,000	ADULT CARE
UNIVERSITY OF NEBRASKA MEDICAL CENTER
985100 NEBRASKA MEDICAL CENTER	OMAHA	NE	681987835	470049123	501C(3)	$193,275	CF CARE CENTER
UNIVERSITY OF NEW MEXICO HEALTH SCIENCES CENTER
HEALTH SCIENCES AND SERVICES BLDG	ALBUQUERQUE	NM	871315041	856000642	IRC 115	$94,328	CF CARE CENTER
UNIVERSITY OF OKLAHOMA HEALTH SCIENCES CENTER
PO BOX 26901	OKLAHOMA CITY	OK	73190	736017987	IRC 115	$99,213	CF CARE CENTER
UNIVERSITY OF OKLAHOMA HEALTH SCIENCES CENTER
PO BOX 26901	OKLAHOMA CITY	OK	73190	736017987	IRC 115	$112,692	PILOT STUDY
UNIVERSITY OF PITTSBURGH
350 THACKERAY HALL	PITTSBURGH	PA	15260	250965591	501C(3)	$27,000	ADULT CARE
UNIVERSITY OF PITTSBURGH
350 THACKERAY HALL	PITTSBURGH	PA	15260	250965591	501C(3)	$139,508	QUALITY IMPROVEMENT
UNIVERSITY OF PITTSBURGH
350 THACKERAY HALL	PITTSBURGH	PA	15260	250965591	501C(3)	$194,400	RESEARCH
UNIVERSITY OF PITTSBURGH
350 THACKERAY HALL	PITTSBURGH	PA	15260	250965591	501C(3)	$500,000	RESEARCH CENTER
UNIVERSITY OF PITTSBURGH
350 THACKERAY HALL	PITTSBURGH	PA	15260	250965591	501C(3)	$46,250	RESEARCH STUDY
UNIVERSITY OF PITTSBURGH
350 THACKERAY HALL	PITTSBURGH	PA	15260	250965591	501C(3)	$124,370	TRAINING
UNIVERSITY OF ROCHESTER
1325 MT HOPE AVENUE SUITE 260	ROCHESTER	NY	14642	160743209	501C(3)	$165,281	CF CARE CENTER
UNIVERSITY OF SOUTH CAROLINA RESEARCH FOUNDATION
901 SUMTER STREET SUITE 501	COLUMBIA	SC	29208	570967350	501C(3)	$48,928	CF CARE CENTER
UNIVERSITY OF SOUTH FLORIDA
17 DAVIS BOULEVARD SUITE 200	TAMPA	FL	33606	593102112	IRC 115	$28,676	CF CARE CENTER
UNIVERSITY OF SOUTHERN CALIFORNIA
1540 ALCAZAR STREET	LOS ANGELES	CA	900339002	951642394	501C(3)	$95,280	RESEARCH
UNIVERSITY OF SOUTHERN CALIFORNIA KECK SCHOOL OF M
1540 ALCAZAR STREET CHP-100	LOS ANGELES	CA	90033	951642394	501C(3)	$167,216	CF CARE CENTER
UNIVERSITY OF TENNESSEE
62 S DUNLAP	MEMPHIS	TN	38163	626001636	IRC 115	$97,449	CF CARE CENTER
UNIVERSITY OF TENNESSEE MEDICAL CENTER
1940 ALCOA HWY SUITE E-110	KNOXVILLE	TN	37920	311626179	501C(3)	$40,500	CF CARE CENTER
UNIVERSITY OF TENNESSEE MEDICAL CENTER
1940 ALCOA HWY SUITE E-110	KNOXVILLE	TN	37920	311626179	501C(3)	$40,204	PILOT STUDY
UNIVERSITY OF TEXAS HEALTH SCIENCE CENTER AT SAN A
7703 FLOYD CURL DRIVE	SAN ANTONIO	TX	782293900	741586031	IRC 115	$27,000	ADULT CARE
UNIVERSITY OF TEXAS HEALTH SCIENCE CENTER AT SAN A
7703 FLOYD CURL DRIVE	SAN ANTONIO	TX	782293900	741586031	IRC 115	$64,362	CF CARE CENTER
UNIVERSITY OF TEXAS HEALTH SCIENCE CENTER AT SAN A
7703 FLOYD CURL DRIVE	SAN ANTONIO	TX	782293900	741586031	IRC 115	$17,280	QUALITY IMPROVEMENT
UNIVERSITY OF TEXAS HEALTH SCIENCE CENTER AT TYLER
11937 US HWY 271	TYLER	TX	75708	756001354	IRC 115	$92,775	CF CARE CENTER
UNIVERSITY OF TEXAS MD ANDERSON CANCER CENTER
1515 HOLCOMBE BLVD	HOUSTON	TX	77030	746001118	IRC 115	$35,000	RESEARCH
UNIVERSITY OF UTAH
406 PARK BLDG	SALT LAKE CITY	UT	84112	876000525	501C(3)	$127,313	PATIENT REGISTRY
UNIVERSITY OF UTAH
406 PARK BLDG	SALT LAKE CITY	UT	84112	876000525	501C(3)	$284,909	CF CARE CENTER
UNIVERSITY OF WASHINGTON
4333 BROOKLYN AVENUE NE BOX 359472	SEATTLE	WA	981959472	916001537	IRC 115	$396,137	CF CARE CENTER
UNIVERSITY OF WASHINGTON
4333 BROOKLYN AVENUE NE BOX 359472	SEATTLE	WA	981959472	916001537	IRC 115	$647,930	RESEARCH
UNIVERSITY OF WASHINGTON
4333 BROOKLYN AVENUE NE BOX 359472	SEATTLE	WA	981959472	916001537	IRC 115	$195,161	RESEARCH STUDY
UT SOUTHWESTERN MEDICAL CENTER AT DALLAS
5323 HARRY HINES BLVD	DALLAS	TX	753909040	756002868	IRC 115	$178,397	ADULT CARE
UT SOUTHWESTERN MEDICAL CENTER AT DALLAS
5323 HARRY HINES BLVD	DALLAS	TX	753909040	756002868	IRC 115	$337,785	CF CARE CENTER
UT SOUTHWESTERN MEDICAL CENTER AT DALLAS
5323 HARRY HINES BLVD	DALLAS	TX	753909040	756002868	IRC 115	$53,835	QUALITY IMPROVEMENT
UT SOUTHWESTERN MEDICAL CENTER AT DALLAS
5323 HARRY HINES BLVD	DALLAS	TX	753909040	756002868	IRC 115	$46,250	RESEARCH STUDY
UTAH DEPARTMENT OF HEALTH
44 MARIO CAPECCHI DRIVE	SALT LAKE CITY	UT	84114	876000545	OTHER'GOV'T	$15,377	CF CARE CENTER
VANDERBILT UNIVERSITY
PO BOX 30195	NASHVILLE	TN	372410195	620476822	501C(3)	$246,237	CF CARE CENTER
VANDERBILT UNIVERSITY
PO BOX 30195	NASHVILLE	TN	372410195	620476822	501C(3)	$100,000	TRAINING
VIA CHRISTI REGIONAL MEDICAL CENTER CF CLINIC
3311 EAST MURDOCK STREET	WICHITA	KS	67218	481172106	501C(3)	$68,572	CF CARE CENTER
VIRGINIA COMMONWEALTH UNIVERSITY
BOX 2506 - VCU STATION	RICHMOND	VA	232842506	546001758	IRC 115	$54,000	ADULT CARE
VIRGINIA COMMONWEALTH UNIVERSITY
BOX 2506 - VCU STATION	RICHMOND	VA	232842506	546001758	IRC 115	$138,725	CF CARE CENTER
WAKE FOREST UNIVERSITY HEALTH SCIENCES
MEDICAL CENTER BLVD	WINSTONSALEM	NC	271571064	223849199	501C(3)	$87,375	CF CARE CENTER
WAKE FOREST UNIVERSITY HEALTH SCIENCES
MEDICAL CENTER BLVD	WINSTONSALEM	NC	271571064	223849199	501C(3)	$43,200	PILOT STUDY
WAKE FOREST UNIVERSITY HEALTH SCIENCES
MEDICAL CENTER BLVD	WINSTONSALEM	NC	271571064	223849199	501C(3)	$92,016	RESEARCH
WASHINGTON UNIVERSITY
700 ROSEDALE AVENUE	ST LOUIS	MO	631121408	430653611	501C(3)	$310,130	CF CARE CENTER
WAYNE STATE UNIVERSITY
GRANTS CONTRACTS OFFICE III	DETROIT	MI	48201	386028425	501C(3)	$51,820	CF CARE CENTER
WEST VIRGINIA UNIVERSITY RESEARCH CORPORATION
PO BOX 6001	MORGANTOWN	WV	265066001	550665758	501C(3)	$129,385	CF CARE CENTER
YALE UNIVERSITY
47 COLLEGE STREET SUITE 203	NEW HAVEN	CT	065208047	060646973	501C(3)	$59,309	ADULT CARE
YALE UNIVERSITY
47 COLLEGE STREET SUITE 203	NEW HAVEN	CT	065208047	060646973	501C(3)	$173,041	CF CARE CENTER
YALE UNIVERSITY
47 COLLEGE STREET SUITE 203	NEW HAVEN	CT	065208047	060646973	501C(3)	$43,200	PILOT STUDY
YALE UNIVERSITY
47 COLLEGE STREET SUITE 203	NEW HAVEN	CT	065208047	060646973	501C(3)	$222,200	RESEARCH
HEALTHWELL FOUNDATION
PO BOX 4133	GAITHERSBURG	MD	20885	200413676	501C(3)	$2,574,502	PATIENT ASSISTANCE
CYSTIC FIBROSIS FOUNDATION THERAPEUTICS INC
6931 ARLINGTON ROAD SUITE 200	BETHESDA	MD	20814	912059167	501C(3)	$86,230,120	GENERAL SUPPORT

Field	Value	IRS element (for citing)
Total501c3 Org	177	Total501c3OrgCnt
Total Other Org	13	TotalOtherOrgCnt

Grants Other Asst To Indiv In US GrantsOtherAsstToIndivInUSGrp (2 entries)

Grant TypeGrantTypeTxt	RecipientRecipientCnt	Cash GrantCashGrantAmt
PATIENT ASSISTANCE PROGRAM	1016	$1,817,226
FELLOWSHIPS	4	$22,339

Supplemental Information Detail SupplementalInformationDetail

Field	Value	IRS element (for citing)
Form And Line Reference	PROCEDURES FOR MONITORING GRANT FUNDS INSIDE OF THE U.S.	FormAndLineReferenceDesc
Explanation	PART I, LINE 2 THE ORGANIZATION HAS PROCEDURES IN PLACE TO MONITOR THE SCIENTIFIC PROGRESS AND FINANCIAL ASPECTS OF GRANT FUNDS AWARDED TO ENTITIES INSIDE OF THE U.S. SPONSORED INSTITUTIONS ARE REQUIRED TO SUBMIT ANNUAL REPORTS OF EXPENDITURES AS WELL AS SCIENTIFIC PROGRESS REPORTS. SCIENTIFIC REPORTS ARE REVIEWED BY THE ORGANIZATION'S SCIENTIFIC STAFF TO ENSURE PROGRESS HAS BEEN ATTAINED. THE FINAL GRANT PAYMENT IS CONTINGENT UPON RECEIPT AND APPROVAL OF THE REPORT OF EXPENDITURES. REPORTS OF EXPENDITURES ARE REVIEWED AND APPROVED BY STAFF TO ENSURE INCURRED COSTS ARE APPROPRIATE. THE CF FOUNDATION'S INTERNAL AUDITORS CONDUCT AUDITS ON SAMPLES OF GRANT EXPENDITURE REPORTS BY EXAMINING SUPPORTING RECORDS FROM THE SPONSORED INSTITUTION. FOR GRANTS TO FOR-PROFIT ORGANIZATIONS THE CF FOUNDATION HAS PROCEDURES IN PLACE TO 1) SEE THAT THE GRANT FUNDS AWARDED ARE SPENT ONLY FOR THE PURPOSE FOR WHICH THE GRANT IS MADE AND 2) OBTAIN FULL AND COMPLETE REPORTS FROM THE GRANTEE ORGANIZATION ON HOW THE FUNDS ARE SPENT CONSISTENT WITH IRS GUIDELINES FOR EXPENDITURE RESPONSIBILITY. THE ORGANIZATION PERFORMS PRE-GRANT INQUIRIES DEALING WITH MATTERS SUCH AS THE IDENTITY, HISTORY, ACTIVITIES, AND PRACTICES OF THE GRANTEE TO GAIN REASONABLE ASSURANCE THAT THEY WILL USE THE GRANT FUNDS FOR THE PURPOSE FOR WHICH RECEIVED. ONCE A GRANT IS APPROVED, A WRITTEN AGREEMENT IS SIGNED BY BOTH THE ORGANIZATION AND THE GRANTEE THAT INCLUDES THE FOLLOWING AGREEMENTS: ANY AMOUNTS NOT USED FOR PURPOSES OF THE GRANT WILL BE REPAID, THE GRANTEE WILL KEEP RECORDS OF RECEIPTS AND EXPENDITURES AND MAKE THEM AVAILABLE TO THE GRANTOR AT REASONABLE TIMES, AND FUNDS CANNOT BE USED TO INFLUENCE LEGISLATION OR UNDERTAKE ANY NONEXEMPT ACTIVITY. SCHEDULE I, PART III CFF PERFORMS EXTENSIVE MONITORING OF PATIENT ASSISTANCE GRANTS IN ACCORDANCE WITH DHHS OIG REGULATIONS. FELLOWSHIPS ARE AWARDED TO INVESTIGATORS CONDUCTING RESEARCH RELATED TO GRANTS REPORTED IN PART II. SEE SUPPLEMENTAL INFORMATION FOR PART I, LINE 2 FOR PROCEDURES USED TO MONITOR THESE GRANTS. PRIOR TO MAKING FELLOWSHIP PAYMENTS, SUPPORTING DOCUMENTATION OF EXPENDITURES ARE REVIEWED AND APPROVED BY STAFF TO ENSURE INCURRED COSTS ARE APPROPRIATE.	ExplanationTxt

Schedule J IRS990ScheduleJ

Field	Value	IRS element (for citing)
Compensation Committee	Yes (X)	CompensationCommitteeInd
Independent Consultant	Yes (X)	IndependentConsultantInd
Form990 Of Other Organizations	Yes (X)	Form990OfOtherOrganizationsInd
Written Employment Contract	Yes (X)	WrittenEmploymentContractInd
Compensation Survey	Yes (X)	CompensationSurveyInd
Board Or Committee Approval	Yes (X)	BoardOrCommitteeApprovalInd
Severance Payment	Yes (true)	SeverancePaymentInd
Supplemental Nonqual Rtr Plan	Yes (true)	SupplementalNonqualRtrPlanInd
Equity Based Comp Arrngm	false	EquityBasedCompArrngmInd
Comp Based On Revenue Of Flng Org	false	CompBasedOnRevenueOfFlngOrgInd
Comp Bsd On Rev Related Orgs	false	CompBsdOnRevRelatedOrgsInd
Comp Bsd Net Earns Flng Org	false	CompBsdNetEarnsFlngOrgInd
Comp Bsd Net Earns Rltd Orgs	false	CompBsdNetEarnsRltdOrgsInd
Any Non Fixed Payments	Yes (true)	AnyNonFixedPaymentsInd
Initial Contract Exception	false	InitialContractExceptionInd

Rltd Org Officer Trst Key Empl RltdOrgOfficerTrstKeyEmplGrp (11 entries)

TitleTitleTxt	Base Compensation Filing OrgBaseCompensationFilingOrgAmt	Compensation Based On Rltd OrgsCompensationBasedOnRltdOrgsAmt	Bonus Filing OrganizationBonusFilingOrganizationAmount	Bonus Related OrganizationsBonusRelatedOrganizationsAmt	Other Compensation Filing OrgOtherCompensationFilingOrgAmt	Other Compensation Rltd OrgsOtherCompensationRltdOrgsAmt	Deferred Compensation Flng OrgDeferredCompensationFlngOrgAmt	Deferred Comp Rltd OrgsDeferredCompRltdOrgsAmt	Nontaxable Benefits Filing OrgNontaxableBenefitsFilingOrgAmt	Nontaxable Benefits Rltd OrgsNontaxableBenefitsRltdOrgsAmt	Total Compensation Filing OrgTotalCompensationFilingOrgAmt	Total Compensation Rltd OrgsTotalCompensationRltdOrgsAmt	Comp Report Prior990 Filing OrgCompReportPrior990FilingOrgAmt	Comp Report Prior990 Rltd OrgsCompReportPrior990RltdOrgsAmt
PRESTON CAMPBELL MD
PRESIDENT & CEO (AS OF 10/1)	$284,125	$144,690	$189,461	$93,316	$23,384	$7,565	$131,869	$51,623	$29,049	$0	$657,888	$297,194	$62,015	$30,544
ROBERT BEALL PHD
PRESIDENT & CEO (UNTIL 9/30)	$412,228	$206,690	$276,031	$135,956	$886,949	$436,584	$67,754	$20,043	$21,099	$0	$1,664,061	$799,273	$215,564	$106,173
C RICHARD MATTINGLY
EXEC VP & COO	$316,273	$0	$273,763	$0	$2,128,337	$0	$61,263	$0	$7,283	$0	$2,786,919	$0	$682,855	$0
VERA H TWIGG
EXECUTIVE VP, CFO & SECRETARY	$309,865	$0	$167,491	$0	$22,316	$0	$78,919	$0	$29,049	$0	$607,640	$0	$39,236	$0
MAUREEN FRASER
VP OF FIELD MANAGEMENT	$238,124	$0	$36,699	$0	$696	$0	$30,611	$0	$14,774	$0	$320,904	$0	$0	$0
AMY DEMARIA
SR. VP OF COMMUNICATIONS	$222,528	$0	$52,295	$0	$697	$0	$32,060	$0	$8,930	$0	$316,510	$0	$0	$0
CHRIS PENLAND PHD
VICE PRESIDENT OF RESEARCH	$110,143	$110,143	$28,664	$12,284	$704	$0	$27,060	$0	$26,244	$0	$192,815	$122,427	$0	$0
DAVID MCLOUGHLIN
SR. VP OF OPERATIONS	$202,987	$86,994	$49,249	$21,107	$1,242	$0	$32,060	$0	$28,289	$0	$313,827	$108,101	$0	$0
WILLIAM SKACH MD
SR. VP OF RESEARCH AFFAIRS	$66,816	$200,449	$8,071	$29,498	$0	$3,557	$0	$20,704	$0	$27,789	$74,887	$281,997	$0	$0
MARY DWIGHT
SVP POLICY & PATIENT ASSIST.	$212,091	$0	$52,500	$0	$483	$0	$32,060	$0	$34,339	$0	$331,473	$0	$0	$0
BRUCE MARSHALL MD
SR. VP OF CLINICAL AFFAIRS	$116,754	$233,509	$13,000	$77,062	$0	$3,564	$0	$32,060	$0	$0	$129,754	$346,195	$0	$0

Supplemental Information Detail SupplementalInformationDetail (3 entries)

Form And Line ReferenceFormAndLineReferenceDesc	ExplanationExplanationTxt
PART I, LINE 4A - SEVERANCE PAYMENT	MR. MATTINGLY RECEIVED SEVERANCE PAY UPON HIS RETIREMENT AS EXECUTIVE VICE PRESIDENT AND COO. HE HAD EXTRAORDINARY SUCCESSES ACHIEVED OVER HIS 37-YEAR TENURE. THE SEVERANCE WAS REVIEWED AND OPINED ON AS REASONABLE FROM A COMPETITIVE MARKET PERSPECTIVE BY THE BOARDS INDEPENDENT COMPENSATION CONSULTANTS AND REVIEWED IN DETAIL AND APPROVED (IN THE MANNER SPECIFIED IN IRS REGULATIONS) BY THE BOARD'S INDEPENDENT COMPENSATION COMMITTEE. ADDITIONAL INFORMATION, INCLUDING THE DOLLAR AMOUNT OF THE AWARD, IS PROVIDED IN THE ADDITIONAL INFORMATION FOR SCHEDULE J, PART II, BELOW.
PART I, LINE 4B - SUPPLEMENTAL NONQUALIFIED RETIREMENT PLAN	CERTAIN PERSONS LISTED IN FORM 990, PART VII, SECTION A PARTICIPATE IN A NONQUALIFIED DEFERRED COMPENSATION PLAN, UNDER WHICH INTERESTS ARE FORFEITED BY THE PARTICIPANT IF THE PARTICIPANT VOLUNTARILY TERMINATES EMPLOYMENT PRIOR TO THE DESIGNATED VESTING DATE. FURTHER INFORMATION ABOUT THE NONQUALIFIED DEFERRED COMPENSATION PLAN IN WHICH THOSE PERSONS PARTICIPATE, INCLUDING THE AMOUNT OF ANY PAYMENT MADE BY THE PLAN DURING THE REPORTING YEAR, IS PROVIDED IN THE ADDITIONAL INFORMATION FOR SCHEDULE J, PART II, BELOW. PART I, LINE 7: SEVERAL INDIVIDUALS LISTED IN FORM 990, PART VII, SECTION A, LINE 1A, (WHO ARE IDENTIFIED IN PART II, BELOW) PARTICIPATED IN THE FOUNDATION'S INCENTIVE COMPENSATION PLAN, FROM WHICH NON-FIXED PAYMENTS NOT DESCRIBED IN LINES 5 AND 6 WERE PAID. THE INCENTIVE COMPENSATION PLAN PAYS NON-FIXED PAYMENTS SUBJECT TO, AND BASED ON, THE ACHIEVEMENT OF ANNUAL PERFORMANCE OBJECTIVES ESTABLISHED IN ADVANCE BY THE COMPENSATION COMMITTEE OF THE BOARD OF TRUSTEES. IN ADDITION, THE INCENTIVE COMPENSATION PLAN PAYS NON-FIXED PAYMENTS THAT RELATE TO A THREE-YEAR PERFORMANCE PERIOD, SUBJECT TO, AND BASED ON, THE ACHIEVEMENT OF LONG-TERM PERFORMANCE OBJECTIVES ESTABLISHED IN ADVANCE BY THE COMPENSATION COMMITTEE OF THE BOARD. ANY FINANCIAL PERFORMANCE OBJECTIVES ESTABLISHED UNDER THE INCENTIVE COMPENSATION PLAN DO NOT INCLUDE PROGRAM-RELATED REVENUES (SUCH AS ROYALTY STREAMS, LUMP-SUM PAYMENTS, OTHER PROGRAM-RELATED INCOME, AND SALES PROCEEDS FROM TRANSFER OF THE FOREGOING TO THIRD PARTIES) RELATED TO THE DEVELOPMENT AND APPROVAL OF CF DRUGS. PART II: CYSTIC FIBROSIS FOUNDATION - HEADQUARTERS. EIN 13-1930701. (A) NAME: P. CAMPBELL, M.D.; (B)(I) BASE COMPENSATION: BASE SALARY - $284,125; (B)(II) BONUS & INCENTIVE COMPENSATION: ANNUAL INCENTIVE PLAN BENEFIT (1) $60,446, LONG-TERM INCENTIVE PLAN PAYMENT, WHICH WAS PREVIOUSLY REPORTED (6) - $62,015, LONG-TERM INCENTIVE PLAN TREATMENT AWARD (3) - $67,000; (B)(III) OTHER REPORTABLE COMPENSATION: OTHER BENEFITS INCLUDING TAXABLE GENERAL ORGANIZATION GROUP TERM LIFE INSURANCE PREMIUM - $11,324, SECTION 457(B) PLAN (5) - $12,060; (C) DEFERRED COMPENSATION: RETIREMENT BENEFIT (2) $27,060, LONG-TERM INCENTIVE PLAN BENEFIT (6) - $63,020, SERP (4) - $41,789; (D) NONTAXABLE BENEFITS: EMPLOYER CONTRIBUTION TO GENERAL ORGANIZATION HEALTH PLAN BENEFIT - $19,409, EMPLOYEE CONTRIBUTION TO FLEXIBLE SPENDING ACCOUNT BENEFIT - $2,550, EMPLOYEE CONTRIBUTION TO GENERAL ORGANIZATION HEALTH PLAN BENEFIT - $7,090; (F) COMPENSATION REPORTED IN PRIOR FORM 990 (9) - $62,015. CYSTIC FIBROSIS FOUNDATION THERAPEUTICS, INC. EIN 91-2059167. (A) NAME: P. CAMPBELL, M.D.; (B)(I) BASE COMPENSATION: BASE SALARY - $144,690; (B)(II) BONUS & INCENTIVE COMPENSATION: ANNUAL INCENTIVE PLAN BENEFIT (1) $29,772, LONG-TERM INCENTIVE PLAN PAYMENT, WHICH WAS PREVIOUSLY REPORTED (6) - $30,544, LONG-TERM INCENTIVE PLAN TREATMENT AWARD (3) - $33,000; (B)(III) OTHER REPORTABLE COMPENSATION: OTHER BENEFITS - $1,625, SECTION 457(B) PLAN (5) - $5,940; (C) DEFERRED COMPENSATION: LONG-TERM INCENTIVE PLAN BENEFIT (6) - $31,040, SERP (4) - $20,583; (D) NONTAXABLE BENEFITS: $0; (F) COMPENSATION REPORTED IN PRIOR FORM 990 (9) - $30,544. CYSTIC FIBROSIS FOUNDATION - HEADQUARTERS. EIN 13-1930701. (A) NAME: R. BEALL, PH.D.; (B)(I) BASE COMPENSATION: BASE SALARY - $396,148, 401(K) BONUS $16,080; (B)(II) BONUS & INCENTIVE COMPENSATION: ANNUAL INCENTIVE PLAN BENEFIT (1) $97,988, LONG-TERM INCENTIVE PLAN PAYMENT, WHICH WAS PREVIOUSLY REPORTED (6) - $84,244, LONG-TERM INCENTIVE PLAN TREATMENT AWARD (3) - $93,800; (B)(III) OTHER REPORTABLE COMPENSATION: HEALTH INSURANCE BENEFIT - $3,260, AUTOMOBILE ALLOWANCE - $4,824, OTHER BENEFITS - $8,925, ADDITIONAL AWARD (7) - $670,000, VESTED SERP ACCOUNT (8) $199,939; (C) DEFERRED COMPENSATION: RETIREMENT BENEFIT (2) $27,060, LONG-TERM INCENTIVE PLAN BENEFIT (6) - $40,694 ; (D) NONTAXABLE BENEFITS: EMPLOYER CONTRIBUTION TO GENERAL ORGANIZATION HEALTH PLAN BENEFIT - $13,683, EMPLOYEE CONTRIBUTION TO FLEXIBLE SPENDING ACCOUNT BENEFIT - $2,550, EMPLOYEE CONTRIBUTION TO GENERAL ORGANIZATION HEALTH PLAN BENEFIT - $4,866; (F) COMPENSATION REPORTED IN PRIOR FORM 990 (9) - $215,564. CYSTIC FIBROSIS FOUNDATION THERAPEUTICS, INC. EIN 91-2059167. (A) NAME: R. BEALL, PH.D.; (B)(I) BASE COMPENSATION: BASE SALARY - $198,770, 401(K) BONUS $7,920; (B)(II) BONUS & INCENTIVE COMPENSATION: ANNUAL INCENTIVE PLAN BENEFIT (1) $48,263, LONG-TERM INCENTIVE PLAN PAYMENT, WHICH WAS PREVIOUSLY REPORTED (6) - $41,493, LONG-TERM INCENTIVE PLAN TREATMENT AWARD (3) - $46,200; (B)(III) OTHER REPORTABLE COMPENSATION: HEALTH INSURANCE BENEFIT - $1,606, AUTOMOBILE ALLOWANCE - $2,376, OTHER BENEFITS - $4,125, ADDITIONAL AWARD (7) - $330,000; VESTED SERP ACCOUNT (8) - $98,477; (C) DEFERRED COMPENSATION: LONG-TERM INCENTIVE PLAN BENEFIT (6) - $20,043; (D) NONTAXABLE BENEFITS: $0; (F) COMPENSATION REPORTED IN PRIOR FORM 990 (9) - $106,173. CYSTIC FIBROSIS FOUNDATION - HEADQUARTERS. EIN 13-1930701. (A) NAME: R. MATTINGLY; (B)(I) BASE COMPENSATION: BASE SALARY - $316,273; (B)(II) BONUS & INCENTIVE COMPENSATION: ANNUAL INCENTIVE PLAN BENEFIT (1) $80,081, LONG-TERM INCENTIVE PLAN PAYMENT, WHICH WAS PREVIOUSLY REPORTED (6) - $93,682, LONG-TERM INCENTIVE PLAN TREATMENT AWARD (3) - $100,000; (B)(III) OTHER REPORTABLE COMPENSATION: SECTION 457(B) PLAN (5) - $18,000; OTHER BENEFITS INCLUDING TAXABLE GENERAL ORGANIZATION GROUP TERM LIFE INSURANCE PREMIUM - $4,384; SEVERANCE AWARD (10) - $1,142,587, VESTED SERP ACCOUNT (11) $963,366; (C) DEFERRED COMPENSATION: RETIREMENT BENEFIT (2) $27,060, LONG-TERM INCENTIVE PLAN BENEFIT (6) - $34,203; (D) NONTAXABLE BENEFITS: EMPLOYER CONTRIBUTION TO GENERAL ORGANIZATION HEALTH PLAN BENEFIT - $5,650, EMPLOYEE CONTRIBUTION TO FLEXIBLE SPENDING ACCOUNT BENEFIT - $658, EMPLOYEE CONTRIBUTION TO GENERAL ORGANIZATION HEALTH PLAN BENEFIT - $975; (F) COMPENSATION REPORTED IN PRIOR FORM 990 (9) - $682,855. CYSTIC FIBROSIS FOUNDATION - HEADQUARTERS. EIN 13-1930701. (A) NAME: V. TWIGG; (B)(I) BASE COMPENSATION: BASE SALARY - $309,865; (B)(II) BONUS & INCENTIVE COMPENSATION: ANNUAL INCENTIVE PLAN BENEFIT (1) $58,255, LONG-TERM INCENTIVE PLAN PAYMENT, WHICH WAS PREVIOUSLY REPORTED (6) - $39,236, LONG-TERM INCENTIVE PLAN TREATMENT AWARD (3) - $70,000; (B)(III) OTHER REPORTABLE COMPENSATION: OTHER BENEFITS INCLUDING TAXABLE GENERAL ORGANIZATION GROUP TERM LIFE INSURANCE PREMIUM - $4,316, SECTION 457(B) PLAN (5) - $18,000; (C) DEFERRED COMPENSATION: RETIREMENT BENEFIT (2) $27,060, LONG-TERM INCENTIVE PLAN BENEFIT (6) - $48,153, SERP (4) - $3,706; (D) NONTAXABLE BENEFITS: EMPLOYER CONTRIBUTION TO GENERAL ORGANIZATION HEALTH PLAN BENEFIT - $19,409, EMPLOYEE CONTRIBUTION TO FLEXIBLE SPENDING ACCOUNT BENEFIT - $2,550, EMPLOYEE CONTRIBUTION TO GENERAL ORGANIZATION HEALTH PLAN BENEFIT - $7,090; (F) COMPENSATION REPORTED IN PRIOR FORM 990 (9) - $39,236 (1) THIS IS AN AWARD SUBJECT TO, AND BASED ON, ACHIEVEMENT OF ANNUAL PERFORMANCE STANDARDS ESTABLISHED IN ADVANCE BY THE COMPENSATION COMMITTEE OF THE BOARD. ANY FINANCIAL PERFORMANCE OBJECTIVES ESTABLISHED UNDER THE INCENTIVE COMPENSATION PLAN DO NOT INCLUDE PROGRAM-RELATED REVENUES (SUCH AS ROYALTY STREAMS, LUMP-SUM PAYMENTS, OTHER PROGRAM-RELATED INCOME, AND SALES PROCEEDS FROM TRANSFER OF THE FOREGOING TO THIRD PARTIES) RELATED TO THE DEVELOPMENT AND APPROVAL OF CF DRUGS. (2) THIS IS THE EMPLOYER CONTRIBUTION MADE UNDER THE CYSTIC FIBROSIS FOUNDATION 401(K) PLAN FOR THE 2015 PLAN YEAR. (3) THIS IS AN AWARD UNDER A PLAN THAT PAYS A SPECIFIED DOLLAR AMOUNT ONLY IF AND WHEN THE FDA APPROVES CERTAIN PRE-SPECIFIED TYPES OF THERAPIES. IN THE EVENT THE EMPLOYEE TERMINATES EMPLOYMENT PRIOR TO FDA APPROVAL OF THE SPECIFIED THERAPY TYPE AND PAYMENT OF THE AWARD, THE EMPLOYEE WILL FORFEIT HIS OR HER RIGHT TO RECEIVE PAYMENT, UNLESS TERMINATION IS DUE TO RETIREMENT OR DISABILITY. THE PLAN WILL TERMINATE ON DECEMBER 31, 2018 UNLESS THE FOUNDATION DETERMINES TO EXTEND THE PLAN.
PART II - CONTINUED	(4) A. THIS IS AN UNVESTED EMPLOYER CONTRIBUTION TO THE SERP. B. SERP INTERESTS ARE FORFEITED BY THE PARTICIPANT IF THE PARTICIPANT VOLUNTARILY TERMINATES EMPLOYMENT PRIOR TO ATTAINING THE VESTING DATE DESIGNATED BY CFF (WHICH IS EITHER A SPECIFIED AGE OR DATE, DEPENDING ON THE PARTICIPANT). C. SERP INTERESTS ARE HELD IN A TRUST SUBJECT TO THE CLAIMS OF CFF'S BANKRUPTCY CREDITORS. IN THE EVENT OF A CFF BANKRUPTCY, PARTICIPANTS WOULD BECOME GENERAL UNSECURED CREDITORS OF CFF. D. THE SERP IS A NONQUALIFIED DEFERRED COMPENSATION PLAN. THIS MEANS THAT PARTICIPANTS DO NOT RECEIVE THE TAX BENEFITS AVAILABLE TO PARTICIPANTS IN TAX QUALIFIED RETIREMENT PLANS. FOR EXAMPLE, UNDER CURRENT LAW, INTERESTS UNDER SERPS ARE REPORTABLE AS TAXABLE COMPENSATION WHEN THEY BECOME VESTED, EVEN IF THOSE AMOUNTS ARE NOT YET PAYABLE TO THE PARTICIPANT (AND EVEN IF THOSE AMOUNTS ARE NEVER PAID TO THE PARTICIPANT). E. THE SERP'S DESIGN WAS REVIEWED AND OPINED UPON AS REASONABLE BY AN INDEPENDENT COMPENSATION CONSULTANT. SERP CONTRIBUTION AMOUNTS WERE DETERMINED BY AN INDEPENDENT ACTUARY. F. CFF RETAINS THE RIGHT TO AMEND OR TERMINATE THE SERP AT ANY TIME. (5) A. THIS IS A VESTED CONTRIBUTION TO THE 457(B) PLAN FOR THE REPORTING PERIOD. B. IN THE EVENT OF A CFF BANKRUPTCY, PARTICIPANTS ARE GENERAL UNSECURED CREDITORS OF CFF. C. DISTRIBUTIONS FROM THE 457(B) PLAN MAY NOT BE ROLLED-OVER TO AN IRA OR QUALIFIED PLAN (BUT MAY ONLY BE ROLLED-OVER TO ANOTHER 457(B) PLAN). D. THE 457(B) PLAN'S DESIGN WAS REVIEWED AND OPINED UPON AS REASONABLE BY AN INDEPENDENT COMPENSATION CONSULTANT. AN INDEPENDENT ACTUARY DEVELOPED THE CONTRIBUTION FORMULA PURSUANT TO WHICH 457(B) CONTRIBUTION AMOUNTS ARE DETERMINED. CONTRIBUTIONS TO THE 457(B) PLAN ARE SUBJECT TO ANNUAL IRS LIMITS (CURRENTLY $18,000). E. CFF RETAINS THE RIGHT TO AMEND OR TERMINATE THE 457(B) PLAN AT ANY TIME. (6) THIS PLAN PROVIDES FOR AWARDS THAT RELATE TO A THREE-YEAR PERFORMANCE PERIOD, SUBJECT TO, AND BASED ON, ACHIEVEMENT OF PERFORMANCE OBJECTIVES ESTABLISHED IN ADVANCE BY THE COMPENSATION COMMITTEE OF THE BOARD. ANY FINANCIAL PERFORMANCE OBJECTIVES ESTABLISHED UNDER THE INCENTIVE COMPENSATION PLAN DO NOT INCLUDE PROGRAM-RELATED REVENUES (SUCH AS ROYALTY STREAMS, LUMP-SUM PAYMENTS, OTHER PROGRAM-RELATED INCOME, AND SALES PROCEEDS FROM TRANSFER OF THE FOREGOING TO THIRD PARTIES) RELATED TO THE DEVELOPMENT AND APPROVAL OF CF DRUGS. EACH YEAR, A NEW THREE-YEAR PERFORMANCE PERIOD BEGINS. AS REQUIRED BY THE FORM 990 INSTRUCTIONS, THE AMOUNTS REPORTED IN COLUMN (C) ON THIS FORM 990 REFLECT AN ESTIMATE OF THE PORTION OF EACH AWARD THAT THE EXECUTIVE ACCRUED UNDER THE PLAN FOR PERFORMANCE IN 2015 (I.E., WITH RESPECT TO THE 2013-2015, 2014-2016 AND THE 2015-2017 PERFORMANCE PERIODS), BUT THE AMOUNTS REPORTED IN COLUMN (C) HAVE NOT BEEN EARNED, AWARDED OR PAID UNDER THE PLAN. THE INDIVIDUAL MUST BE EMPLOYED ON 12/31/15, 12/31/16 AND 12/31/17 TO BE ELIGIBLE TO RECEIVE FULL PAYMENT OF THE AWARD FOR THE 2013-2015, 2014-2016, AND THE 2015-2017 PERFORMANCE PERIODS, RESPECTIVELY. THE AWARD RELATING TO THE 3-YEAR PERFORMANCE PERIOD ENDING 12/31/14 WAS PAID IN 2015, AND IS PROPERLY REPORTED AGAIN (AS COMPENSATION IN COLUMN (B)(II)) ON THIS FORM 990 (EVEN THOUGH AN ESTIMATE OF THE PORTION OF THIS AWARD THAT THE EXECUTIVE ACCRUED UNDER THE PLAN FOR PERFORMANCE IN 2014, 2013 AND 2012 WAS REPORTED IN COLUMN (C) OF THE FORM 990 FOR EACH OF THOSE YEARS). (7) THIS WAS AN AWARD PAID TO DR. BEALL UPON HIS RETIREMENT AS CEO OF CFF, FULFILLING THE TERMS OF HIS CONTRACT AND RECOGNIZING THE SIGNIFICANT CONTRIBUTIONS AND YEARS OF SERVICE (21-YEARS AS CEO AND 14-YEARS AS EXECUTIVE VICE PRESIDENT). THE AWARD WAS PAID BY CYSTIC FIBROSIS FOUNDATION THERAPEUTICS, INC. ("CFFT"), A RELATED ORGANIZATION, WITH RESPECT TO HIS SERVICE AS AN OFFICER OF CFFT, AND BY CFF WITH RESPECT TO HIS SERVICE AS AN OFFICER OF CFF. THE AWARD WAS REVIEWED AND OPINED ON AS REASONABLE AND MARKET-COMPETITIVE BY THE CFF BOARDS INDEPENDENT COMPENSATION CONSULTANTS AND REVIEWED IN DETAIL AND APPROVED (IN THE MANNER SPECIFIED IN IRS REGULATIONS) BY THE CFF BOARD'S INDEPENDENT COMPENSATION COMMITTEE. (8) THIS AMOUNT BECAME VESTED AND TAXABLE IN 2015 UNDER THE SERP DESCRIBED IN FOOTNOTE (4) ABOVE, UNDER WHICH DR. BEALL RECEIVED CONTRIBUTIONS FROM 2013-2015. AS REQUIRED, THE CONTRIBUTIONS TO THIS SERP THAT GENERATED THE AMOUNT REPORTED IN COLUMN B(III) OF THIS FORM 990 WERE REPORTED ON PRIOR YEARS' FORM 990S IN COLUMN (C). (9) THIS AMOUNT, ALTHOUGH ALSO INCLUDED IN COLUMN B OF THIS FORM 990, HAS ALREADY BEEN REPORTED AS COMPENSATION ON PRIOR YEARS' FORM 990S, AND THEREFORE (AS REQUIRED BY THE INSTRUCTIONS) IS DOUBLE-REPORTED HERE. (10) THIS WAS SEVERANCE PAID TO MR. MATTINGLY BY CFF UPON HIS RETIREMENT AS EXECUTIVE VICE PRESIDENT AND COO OF CFF, AFTER A 37-YEAR TENURE. THE AWARD WAS REVIEWED AND OPINED ON AS REASONABLE FROM A MARKET-COMPETITIVE STANDPOINT BY THE CFF BOARDS INDEPENDENT COMPENSATION CONSULTANTS AND REVIEWED IN DETAIL AND APPROVED (IN THE MANNER SPECIFIED IN IRS REGULATIONS) BY THE CFF BOARD'S INDEPENDENT COMPENSATION COMMITTEE. (11) THIS AMOUNT BECAME VESTED AND TAXABLE IN 2015 UNDER THE SERP DESCRIBED IN FOOTNOTE (4) ABOVE, UNDER WHICH MR. MATTINGLY RECEIVED CONTRIBUTIONS FROM 2007-2015. AS REQUIRED, THE CONTRIBUTIONS TO THIS SERP THAT GENERATED THE AMOUNT REPORTED IN COLUMN B(III) OF THIS FORM 990 WERE REPORTED ON PRIOR YEARS' FORM 990S IN COLUMN (C).

Schedule O IRS990ScheduleO

Supplemental Information Detail SupplementalInformationDetail (8 entries)

Form And Line ReferenceFormAndLineReferenceDesc	ExplanationExplanationTxt
SIGNIFICANT CHANGES TO GOVERNING DOCUMENTS	PART VI, SECTION A, LINE 4 DURING 2015, THE CYSTIC FIBROSIS FOUNDATION AMENDED ITS BYLAWS TO 1) ADD TWO VOTING "SPECIAL MEMBER" POSITIONS ON THE BOARD FOR INDIVIDUALS WHO HAVE CERTAIN SPECIALIZED SKILLS AND 2) AUTHORIZE THE CHAIRMAN TO DESIGNATE A NON-VOTING ADVISOR(S) TO ANY COMMITTEE.
REVIEW OF 990 BY GOVERNING BODY	PART VI, SECTION B, LINE 12C The Cystic Fibrosis Foundation Board of Trustees receives a draft of the Form 990 prior to its being filed, with sufficient time for review and comment allowed. The Compensation Committee of the Board of Trustees and the Foundations ERISA attorneys review the executive compensation sections of the Form 990. The Audit Committee of the Board of Trustees also reviews the Form 990 as part of its chartered responsibilities. In all cases the Cystic Fibrosis Foundation Board of Trustees receives a complete copy of the final Form 990 before it is filed.
CONFLICT OF INTEREST MONITORING	PART VI, SECTION B, LINE 12C A CONFLICT OF INTEREST DISCLOSURE STATEMENT IS COMPLETED ANNUALLY BY EACH BOARD MEMBER, OFFICER, AND KEY EMPLOYEE. DISCLOSURES PROVIDED ARE REPORTED TO THE NOMINATING AND GOVERNANCE COMMITTEE, THE AUDIT COMMITTEE AND THE BOARD OF TRUSTEES. AS REQUIRED WITHIN THE BYLAWS, ANY POTENTIAL CONFLICTS OF INTEREST MUST BE REPORTED TO THE BOARD AS THEY ARISE. WHEN ANY MATTER IS DEEMED A POTENTIAL CONFLICT OF INTEREST AND REQUIRES ACTION BY THE BOARD OF TRUSTEES, THE INTERESTED TRUSTEE OR OFFICER IS REQUIRED TO RETIRE FROM THE ROOM IN WHICH THE BOARD OR ITS COMMITTEE IS MEETING, MAY NOT PARTICIPATE IN THE FINAL DELIBERATION OF THE MATTER, AND MAY NOT VOTE ON THE MATTER. THE ORGANIZATION ENFORCED THE POLICY DURING 2015 AND HAD NO CONFLICTS OF INTEREST AS DEFINED BY THE POLICY.
DETERMINING COMPENSATION	PART VI, SECTION B, LINE 15A AND 15B THE TOTAL COMPENSATION OF EXECUTIVES AT THE CYSTIC FIBROSIS FOUNDATION IS SPECIFICALLY DESIGNED TO ATTRACT AND RETAIN THE HIGHEST QUALIFIED EXECUTIVE AND MEDICAL TALENT TO FULFILL THE CRITICALLY IMPORTANT MISSION OF CURING CYSTIC FIBROSIS AND PROVIDING ALL PEOPLE WITH THE DISEASE THE OPPORTUNITY TO LEAD FULL, PRODUCTIVE LIVES. THE INDEPENDENT COMPENSATION COMMITTEE OF THE CF FOUNDATION'S BOARD OF TRUSTEES FOLLOWS THE PROCESS DESCRIBED IN THE IRS INTERMEDIATE SANCTIONS RULES WHEN DETERMINING COMPENSATION. SPECIFICALLY, THE COMMITTEE: (1) IS COMPOSED ENTIRELY OF NON-EMPLOYEE VOLUNTEER DIRECTORS WHO HAVE NO FAMILIAL, BUSINESS OR SIGNIFICANT PERSONAL RELATIONSHIPS WITH THE CF FOUNDATION OR ITS EXECUTIVES. (2) ASSESSES THE SHORT-TERM AND LONG-TERM CONTRIBUTION AND PERFORMANCE OF EACH EXECUTIVE IN MEETING VERY DEFINITIVE AND QUANTIFIABLE OBJECTIVES FOCUSED ON THE CF FOUNDATION'S MISSION SUCCESS. (3) ENGAGES AN INDEPENDENT COMPENSATION CONSULTING FIRM TO COMPILE APPROPRIATE COMPARABILITY DATA (INCLUDING COMPENSATION MARKET INFORMATION FOR PEERS WITH WHOM THE CF FOUNDATION COMPETES FOR EXECUTIVE TALENT) FOR COMMITTEE RELIANCE. THE COMMITTEE MEETS WITH REPRESENTATIVES OF THE CONSULTING FIRM TO REVIEW THIS DATA IN DETAIL. (4) REVIEWS ALL ELEMENTS OF EACH EXECUTIVES TOTAL COMPENSATION, INCLUDING BUT NOT LIMITED TO BASE SALARY, BONUSES, PERQUISITES, FRINGE BENEFITS, AND INCENTIVE AND DEFERRED COMPENSATION ARRANGEMENTS. UPON THE EXECUTIVES HIRE, AND AT EACH POINT IN TIME THEREAFTER AT WHICH A NEW OR REVISED COMPENSATION ARRANGEMENT IS UNDER CONSIDERATION WITH RESPECT TO THE EXECUTIVE, THE COMMITTEE MEETS WITH ITS INDEPENDENT COMPENSATION CONSULTING FIRM BEFORE THE ARRANGEMENT IS IMPLEMENTED TO EVALUATE THE REASONABLENESS OF THE ARRANGEMENT BY COMPARING BOTH THE ARRANGEMENT ITSELF AND THE EXECUTIVES ENTIRE COMPENSATION PACKAGE TO COMPENSATION PACKAGES PAID BY SIMILARLY SITUATED ORGANIZATIONS FOR FUNCTIONALLY COMPARABLE POSITIONS. (5) DOCUMENTS, CONCURRENTLY WITH ITS DETERMINATION, THE BASIS FOR ITS DETERMINATION IN THE MINUTES OF ITS MEETING. THESE MINUTES ARE REVIEWED, REVISED IF NECESSARY AND APPROVED AT THE FOLLOWING MEETING OF THE COMMITTEE. (6) OBTAINS A WRITTEN LEGAL OPINION CONCERNING THE COMMITTEES COMPLIANCE WITH THE IRS INTERMEDIATE SANCTIONS RULES. THE PROCESS DESCRIBED ABOVE WAS USED TO ESTABLISH COMPENSATION FOR THE FOLLOWING OFFICERS OR KEY EMPLOYEES OF THE ORGANIZATION: PRESIDENT & CEO EXECUTIVE VICE PRESIDENT & COO EXECUTIVE VICE PRESIDENT, CFO AND SECRETARY VICE PRESIDENT OF FIELD MANAGEMENT SR. VICE PRESIDENT OF OPERATIONS THE PROCESS WAS LAST UNDERTAKEN IN 2014, WITH THE EXCEPTION OF THAT FOR THE CEO POSITION WHICH WAS LAST CONDUCTED IN 2015.
PUBLIC INSPECTION	PART VI, SECTION C, LINE 19 FORMS 1023 AND 990-T FOR THE ORGANIZATION WERE AVAILABLE ON ITS WEBSITE, CFF.ORG AND THE ORGANIZATION'S WEBSITE PROVIDED A DIRECT LINK TO ITS FORM 990 ON GUIDESTAR.ORG. THE FOUNDATIONS GOVERNING DOCUMENTS (BYLAWS AND ARTICLES OF INCORPORATION) WERE AVAILABLE UPON REQUEST BY CONTACTING THE NATIONAL OFFICE OF THE CYSTIC FIBROSIS FOUNDATION IN WRITING OR BY PHONE. INFORMATION ON HOW TO OBTAIN THE GOVERNING DOCUMENTS WAS AVAILABLE ON THE FOUNDATIONS WEBSITE, WWW.CFF.ORG, DURING 2015. THE BOARD AND OFFICER CONFLICT OF INTEREST POLICY AND THE AUDITED FINANCIAL STATEMENTS WERE AVAILABLE ON THE FOUNDATIONS WEBSITE, WWW.CFF.ORG, DURING 2015.
PART VII, SECTION A	HOURS FOR RELATED ORGANIZATIONS THE FOLLOWING IS AN ESTIMATE OF THE AVERAGE HOURS PER WEEK DEVOTED TO RELATED ORGANIZATIONS BY THE OFFICERS: CYSTIC FIBROSIS CYSTIC FIBROSIS FOUNDATION GROUP FOUNDATION RETURN FOR THE TITLE THERAPEUTICS, INC CHAPTERS ----- ------------- ---------------------- PRESIDENT & CEO 20 4 EXEC. VICE PRESIDENT & COO 5 5 EXEC. VICE PRESIDENT & CFO 5 5
FORM 990, PART IX	ON THE PRIOR YEAR RETURN, EXPENSES THAT TRULY BELONGED ON LINES 11G-14 WERE TRANSPOSED AND LISTED ON LINES 12-15 IN ERROR. THE 2015 FORM 990 ACCURATELY REFLECTS THE CLASSIFICATION OF THESE EXPENSES.
FORM 990, PART X, LINE 27	UNRESTRICTED NET ASSETS BOARD DESIGNATED THE FOUNDATIONS UNRESTRICTED NET ASSETS TOTALED $3,664,492,149 AS OF DECEMBER 31, 2015. OF THIS AMOUNT, THE FOUNDATIONS BOARD OF TRUSTEES HAS DESIGNATED $3,300,000,000 TO BE SPENT IN SUPPORT OF THE MISSION OF THE FOUNDATION OVER THE LONG TERM.

Schedule R IRS990ScheduleR

Id Disregarded Entities IdDisregardedEntitiesGrp

Disregarded Entity Name DisregardedEntityName

Field	Value	IRS element (for citing)
Business Name Line1	CYSTIC FIBROSIS PATIENT ASSISTANCE FDN	BusinessNameLine1Txt

US Address USAddress

Field	Value	IRS element (for citing)
Address Line1	6931 ARLINGTON RD	AddressLine1Txt
City	BETHESDA	CityNm
State Abbreviation	MD	StateAbbreviationCd
ZIP	20814	ZIPCd

Field	Value	IRS element (for citing)
EIN	900350985	EIN
Primary Activities	PATIENT ASST	PrimaryActivitiesTxt
Legal Domicile State	DE	LegalDomicileStateCd
Total Income	$100,000	TotalIncomeAmt
End Of Year Assets	$82,068	EndOfYearAssetsAmt

Direct Controlling Entity Name DirectControllingEntityName

Field	Value	IRS element (for citing)
Business Name Line1	CFF-HQ	BusinessNameLine1Txt

Id Related Tax Exempt Org IdRelatedTaxExemptOrgGrp (2 entries)

Address Line1USAddress/AddressLine1Txt	CityUSAddress/CityNm	State AbbreviationUSAddress/StateAbbreviationCd	ZIPUSAddress/ZIPCd	EINEIN	Primary ActivitiesPrimaryActivitiesTxt	Legal Domicile StateLegalDomicileStateCd	Exempt Code SectionExemptCodeSectionTxt	Public Charity StatusPublicCharityStatusTxt	Business Name Line1DirectControllingEntityName/BusinessNameLine1Txt	Controlled OrganizationControlledOrganizationInd
CYSTIC FIBROSIS FOUNDATION THERAPEUTICS
6931 ARLINGTON RD	BETHESDA	MD	20814	912059167	RESEARCH	MD	501(c)(3)	11A	CFF-HQ	Yes (true)
CYSTIC FIBROSIS FOUNDATION GROUP
6931 ARLINGTON RD	BETHESDA	MD	20814	136161105	EDUCATION	DE	501(c)(3)	7	CFF-HQ	Yes (true)

Field	Value	IRS element (for citing)
Receipt Of Int Annts Rnts Rylts	false	ReceiptOfIntAnntsRntsRyltsInd
Gift Grnt Or Cap Contri To Oth Org	Yes (true)	GiftGrntOrCapContriToOthOrgInd
Gift Grnt Cap Contri From Oth Org	Yes (true)	GiftGrntCapContriFromOthOrgInd
Loans Or Guarantees To Other Org	false	LoansOrGuaranteesToOtherOrgInd
Loans Or Guarantees From Oth Org	false	LoansOrGuaranteesFromOthOrgInd
Div Related Organization	false	DivRelatedOrganizationInd
Asset Sale To Other Org	false	AssetSaleToOtherOrgInd
Asset Purchase From Other Org	false	AssetPurchaseFromOtherOrgInd
Asset Exchange	false	AssetExchangeInd
Rental Of Facilities To Oth Org	false	RentalOfFacilitiesToOthOrgInd
Rental Of Fclts From Oth Org	false	RentalOfFcltsFromOthOrgInd
Perform Of Services For Oth Org	false	PerformOfServicesForOthOrgInd
Perform Of Services By Other Org	false	PerformOfServicesByOtherOrgInd
Sharing Of Facilities	Yes (true)	SharingOfFacilitiesInd
Paid Employees Sharing	Yes (true)	PaidEmployeesSharingInd
Reimbursement Paid To Other Org	false	ReimbursementPaidToOtherOrgInd
Reimbursement Paid By Other Org	false	ReimbursementPaidByOtherOrgInd
Transfer To Other Org	false	TransferToOtherOrgInd
Transfer From Other Org	false	TransferFromOtherOrgInd

Transactions Related Org TransactionsRelatedOrgGrp (6 entries)

Transaction TypeTransactionTypeTxt	InvolvedInvolvedAmt	Method Of Amount DeterminationMethodOfAmountDeterminationTxt
CYSTIC FIBROSIS FOUNDATION THERAPEUTICS
B	$86,230,120	FMV
CYSTIC FIBROSIS FOUNDATION GROUP
C	$86,659,882	FMV
CYSTIC FIBROSIS FOUNDATION THERAPEUTICS
N	$1,426,717	COST
CYSTIC FIBROSIS FOUNDATION THERAPEUTICS
O	$4,638,063	COST
CYSTIC FIBROSIS FOUNDATION GROUP
N	$246,324	COST
CYSTIC FIBROSIS FOUNDATION GROUP
O	$10,336,088	COST