2016-08-05T08:11:49-05:00 2015-12-31 KPMG LLP 1676 International Drive McLean VA 22102 990 2015-01-01 131930701 CYSTIC FIBROSIS FOUNDATION- HEADQUARTERS % PRESTON W CAMPBELL MD CYST 3019514422 6931 ARLINGTON ROAD Suite 200 BETHESDA MD 20814 PRESTON W CAMPBELL MD PRESIDENT & CEO 3019514422 2016-08-02 true JOCELYNE C MILLER P00634378 7032868000 2015 2016-12-15 16:53:06Z PRESTON W CAMPBELL MD 6931 ARLINGTON ROAD STE 200 BETHESDA MD 20814 2726701281 false X WWW.CFF.ORG X 1955 DE THE MISSION IS TO CURE CYSTIC FIBROSIS AND TO PROVIDE ALL PEOPLE WITH THE DISEASE THE OPPORTUNITY TO LEAD FULL, PRODUCTIVE LIVES. 19 18 315 250000 -1476 -9131 3285132614 95908297 2155742 2216198 55016588 41305390 6708116 9029211 3349013060 148459096 32902431 132612012 0 0 25951581 32239198 192000 192000 9120691 20975426 27943551 80021438 192986761 3268991622 -44527665 3922688693 3803485303 108325747 124060775 3814362946 3679424528 X THE MISSION OF THE CYSTIC FIBROSIS FOUNDATION IS TO CURE CYSTIC FIBROSIS AND TO PROVIDE ALL PEOPLE WITH THE DISEASE THE OPPORTUNITY TO LEAD FULL, PRODUCTIVE LIVES BY FUNDING RESEARCH AND DRUG DEVELOPMENT, PROMOTING INDIVIDUALIZED TREATMENT, AND ENSURING ACCESS TO HIGH QUALITY, SPECIALIZED CARE. A LIFE-SHORTENING GENETIC DISEASE, CF AFFECTS THE LUNGS AND DIGESTIVE SYSTEMS OF MORE THAN 30,000 PEOPLE IN THE U.S. CURRENTLY, THERE IS NO CURE. false false 146593554 128220285 2216198 MEDICAL PROGRAMS SINCE 1955, THE CYSTIC FIBROSIS FOUNDATION HAS BEEN DEDICATED TO CURING AND CONTROLLING CYSTIC FIBROSIS (CF). THE CYSTIC FIBROSIS FOUNDATION IS THE WORLDS LEADER IN THE SEARCH FOR A CURE FOR CYSTIC FIBROSIS, A LIFE-THREATENING GENETIC DISEASE THAT AFFECTS MORE THAN 30,000 PEOPLE IN THE UNITED STATES, AND 70,000 PEOPLE WORLDWIDE. THE TREATMENT AND CARE PROTOCOLS DEVELOPED BY THE CF FOUNDATION ARE HELPING TENS OF THOUSANDS OF PEOPLE WITH THE DISEASE LIVE LONGER, HEALTHIER LIVES. TO SUPPORT ITS MISSION, THE FOUNDATION FUNDS AND ACCREDITS A NATIONWIDE NETWORK OF 120 CARE CENTERS. THE CARE CENTER NETWORK PROVIDES THE BEST CARE FOR PEOPLE WITH CF AND HAS BEEN RECOGNIZED BY THE NATIONAL INSTITUTES OF HEALTH AS A MODEL OF CARE FOR A CHRONIC DISEASE. BREAKTHROUGH TREATMENTS HAVE ADDED YEARS TO THE LIVES OF PEOPLE WITH CYSTIC FIBROSIS. TODAY THE MEDIAN PREDICTED SURVIVAL AGE IS CLOSE TO 40. THIS IS A DRAMATIC IMPROVEMENT FROM THE 1950S, WHEN A CHILD WITH CF RARELY LIVED LONG ENOUGH TO ATTEND ELEMENTARY SCHOOL. THE FOUNDATION PROVIDES MUCH-NEEDED SUPPORT FOR PATIENTS AND THEIR FAMILIES AS THEY MANAGE THE DIFFICULT CONSEQUENCES OF THE DISEASE FROM SUPPORTING SPECIALIZED, QUALITY CF CARE TO PROVIDING INFORMATION AND SUPPORT TO HELP PEOPLE WITH CF ACCESS THAT CARE. THE FOUNDATIONS PATIENT REGISTRY COLLECTS INFORMATION ON THE HEALTH STATUS OF MORE THAN 28,900 PEOPLE WITH CF PROVIDING CAREGIVERS AND RESEARCHERS CRITICAL INFORMATION TO HELP IDENTIFY NEW HEALTH TRENDS AND EFFECTIVE TREATMENTS AND IMPROVE THE QUALITY OF CF CARE. THE PATIENT REGISTRY IS AN INTERNATIONALLY RECOGNIZED MODEL FOR OTHER NONPROFIT HEALTH ORGANIZATIONS, INCLUDING CF ADVOCACY GROUPS. MEDICAL PROGRAMS CONSIST OF APPROXIMATELY 527 GRANTS AND OTHER COSTS TO SUPPORT SCIENTIFIC STUDIES/INVESTIGATIONS AND CYSTIC FIBROSIS CENTERS. APPROXIMATELY 307 GRANTS TOTALING $22.5 MILLION WERE AWARDED TO CYSTIC FIBROSIS CARE CENTERS SERVING APPROXIMATELY 28,900 PATIENTS. 8089310 4391727 LACK OF ADEQUATE INSURANCE COVERAGE FOR CF MEDICATIONS HAS BEEN A CONSISTENT CONCERN FOR THOSE LIVING WITH THE DISEASE AND THEIR FAMILIES. THE PATIENT ASSISTANCE RESOURCE CENTER (PARC) IS A HIGHLY PERSONALIZED SERVICE TAILORED TO AN INDIVIDUALS CIRCUMSTANCES RELATED TO COMPLEX INSURANCE, FINANCIAL, LEGAL AND OTHER ISSUES THAT CAN PREVENT ACCESS TO MUCH-NEEDED CF THERAPIES AND CARE. IN 2015, SKILLED CASE MANAGERS HELPED MORE THAN 1,700 PEOPLE WITH CF AND THEIR FAMILIES UNDERSTAND AND MAXIMIZE THEIR INSURANCE COVERAGE AND BENEFITS. CASE MANAGERS ALSO ASSISTED MANY OTHERS WITH FINDING RESOURCES FOR ISSUES RELATED TO LIFE WITH CF THAT CAN AFFECT ACCESS, INCLUDING BASIC LIVING AND FOOD EXPENSES. CYSTIC FIBROSIS PATIENT ASSISTANCE FOUNDATION CLOSED ITS PROGRAM AS OF DECEMBER 31, 2015. STAFF HELPED MORE THAN 1,200 PEOPLE SUCCESSFULLY TRANSITION TO A NEW PROVIDER TO ENSURE THAT THOSE INDIVIDUALS MAINTAINED ACCESS TO FINANCIAL ASSISTANCE TO HELP WITH MEDICATION COPAYS. 12455800 PUBLIC AND PROFESSIONAL INFORMATION AND EDUCATION TO BROADEN ITS REACH AND TO SUPPORT ITS MISSION, THE CF FOUNDATION HAS PROGRAMS DESIGNED TO IMPROVE THE KNOWLEDGE OF PEOPLE WITH CF AND THEIR FAMILIES, MEDICAL PROFESSIONALS AND THE GENERAL PUBLIC REGARDING THE DISEASE. IN 2015, THERE WERE 10 PUBLICATIONS AND 50 VIDEOS PRODUCED AND MADE AVAILABLE FOR PEOPLE WITH CF, FAMILIES, MEDICAL PROFESSIONALS, AND THE GENERAL PUBLIC. YEAR-ROUND, MEETINGS AND CONFERENCES PROVIDE UPDATES FOR CF RESEARCHERS, PHYSICIANS AND ALLIED HEALTH PROFESSIONALS AND OPPORTUNITIES FOR COLLABORATION ON FUTURE CF RESEARCH PROJECTS AND TREATMENT/CARE EFFORTS. IN 2015, OVER 2,902,412 UNIQUE VISITORS CAME TO THE CF FOUNDATIONS WEBSITE. FORM 990, PART III - PROGRAM SERVICE, LINE 4D COMMUNITY SERVICES THE CYSTIC FIBROSIS FOUNDATION PROVIDES YEAR-ROUND EFFORTS TO EDUCATE, INFORM AND EMPOWER INDIVIDUALS WITH CF AND THEIR FAMILIES ABOUT THE LATEST DEVELOPMENTS IN TREATMENT AND CARE. THE PROGRAMS ARE DESIGNED TO HELP THE GENERAL PUBLIC IN THE DETECTION OF THE DISEASE BY PROVIDING A REFERRAL SERVICE AND HANDLING INQUIRIES CONCERNING CYSTIC FIBROSIS. APPROXIMATELY 28,900 PEOPLE WITH CF WERE SERVED IN 2015, INCLUDING APPROXIMATELY 850 INDIVIDUALS WHO WERE NEWLY DIAGNOSED. 3451951 170590615 true true false true false false false false false false true true false false true true false true false false true true false true false false false true true true false false false false false false false false false false false false true true true true false false true 238 0 true 315 true true true false false false false false false false false false X 19 18 false false true false false false false true true false true true true true true true true true true true false AL AK AR CA CT FL GA HI IL IN KS KY MD MA MI MN MS NH NJ NM NY OK OR PA RI SC TN UT VA WA WV WI X X PRESTON W CAMPBELL MD 3019514422 6931 ARLINGTON ROAD BETHESDA MD 20814 X MICHAEL L BEATTY ESQ TRUSTEE 3.0 3.0 X 0 0 0 RICHARD L DANDURAND VICE CHAIRMAN 5.0 3.0 X 0 0 0 LOUIS DEFALCO TRUSTEE 3.0 3.0 X 0 0 0 RICHARD J GRAY ESQ VICE CHAIRMAN 5.0 3.0 X 0 0 0 CAROLE B GRIEGO MD TRUSTEE 3.0 3.0 X 0 0 0 SUSAN L HOOK TRUSTEE 5.0 3.0 X 0 0 0 CATHERINE C MCLOUD CHAIR 8.0 6.0 X 0 0 0 CHAD T MOORE TRUSTEE 3.0 3.0 X 0 0 0 DAVID A MOUNT TREASURER 3.0 3.0 X 0 0 0 ROBERT H NIEHAUS TRUSTEE 3.0 3.0 X 0 0 0 ERIC OLSON PHD TRUSTEE 3.0 3.0 X 0 0 0 GRAY B SABIN VICE CHAIRMAN 5.0 3.0 X 0 0 0 STEVEN SHAK MD TRUSTEE 3.0 6.0 X 0 0 0 CHARLES J THAYER TRUSTEE 3.0 3.0 X 0 0 0 THEODORE J TORPHY PHD TRUSTEE 3.0 8.0 X 0 0 0 AMY S WEINBERG TRUSTEE 3.0 3.0 X 0 0 0 PAUL W WHETSELL EXECUTIVE VICE CHAIRMAN 5.0 3.0 X 0 0 0 KC BRYAN WHITE TRUSTEE 5.0 3.0 X 0 0 0 PRESTON CAMPBELL MD PRESIDENT & CEO (AS OF 10/1) 36.0 24.0 X X 496970 245571 212541 ROBERT BEALL PHD PRESIDENT & CEO (UNTIL 9/30) 36.0 24.0 X X 1575208 779230 108896 C RICHARD MATTINGLY EXEC VP & COO 50.0 10.0 X 2718373 0 68546 VERA H TWIGG EXECUTIVE VP, CFO & SECRETARY 50.0 10.0 X 499672 0 107968 MAUREEN FRASER VP OF FIELD MANAGEMENT 50.0 0.0 X 275519 0 45385 DAVID MCLOUGHLIN SR. VP OF OPERATIONS 35.0 15.0 X 253478 108101 60349 AMY DEMARIA SR. VP OF COMMUNICATIONS 50.0 0.0 X 275520 0 40990 CHRIS PENLAND PHD VICE PRESIDENT OF RESEARCH 35.0 15.0 X 139511 122427 53304 WILLIAM SKACH MD SR. VP OF RESEARCH AFFAIRS 12.0 38.0 X 74887 233504 48493 MARY DWIGHT SVP POLICY & PATIENT ASSIST. 50.0 0.0 X 265074 0 66399 BRUCE MARSHALL MD SR. VP OF CLINICAL AFFAIRS 15.0 35.0 X 129754 314135 32060 6703966 1802968 844931 80 false true false SUFIAN PASSAMANO 712 MAIN STREET SUITE 2130 HOUSTON TX 77002 HOTLINE/PATIENT ASSI 1380875 ARAMARK AVENTURA CATERING 100 NORTH 3RD ST PHOENIX AZ 85004 CONFERENCE CATERING 1122753 SCHANER LUBITZ PLLC 6931 ARLINGTON ROAD BETHESDA MD 20814 LEGAL/TRANSACTION 994427 THREESPOT MEDIA LLC 806 7TH ST NW WASHINGTON DC 20001 CONSULTING 911468 GRANTMAIL DIRECT LTD A01-01 15F WORLD TRADE CENTER NINGBO 0 CH PRINTING 652384 59 86659882 9248415 95908297 SCIENTIFIC CONFERENCE 611600 2060699 2060699 TRANSITION SERVICES 541610 155499 155499 2216198 67810170 -1476 67811646 0 7230863 7230863 0 0 0 2551737405 2578239249 2936 -26501844 -2936 -26504780 -26504780 0 0 0 LIST RENTAL 533110 249439 249439 INSURANCE CLAIM PROCEEDS 900099 983127 983127 REFUNDED OR CANCELLED GRANTS 900099 565782 565782 1798348 148459096 2781980 -1476 49770295 X 130036670 130036670 1839565 1839565 735777 735777 0 6449238 4163714 1290927 994597 0 20235358 12827875 4362801 3044682 1018805 662520 207263 149022 2984036 1909154 617667 457215 1551761 959736 324237 267788 0 720995 649960 71035 299022 30991 268031 469844 469844 192000 192000 5013975 5013975 4157288 3640198 142745 374345 6706 3889 872 1945 818560 590087 123600 104873 3867178 3349834 112539 404805 0 1138748 841192 169822 127734 885874 762884 51620 71370 0 4122590 3848113 80947 193530 0 0 500221 342076 91462 66683 355238 264491 58986 31761 DIRECT MAIL PRINTING 1890346 536858 1353488 DIRECT MAIL POSTAGE 1301504 369627 931877 MEDICAL QUALITY IMPROVEMENT 802991 802991 TRAINING 510125 310454 77050 122621 1082346 642115 209876 230355 192986761 170590615 13275455 9120691 X 4854387 1378646 3475741 X 0 0 200542178 284143149 10323508 10867532 50121025 11119153 0 0 0 0 0 0 265490 212895 923653 956650 7611994 4459392 2887521 3152602 2473908461 1769524290 1176671743 1716447700 0 0 0 0 7045114 7061332 3922688693 3803485303 16831621 18195708 28741961 44046759 3325808 3422898 0 0 0 0 0 0 0 0 0 0 59426357 58395410 108325747 124060775 X 3796361145 3664492149 14083576 11255303 3918225 3677076 3814362946 3679424528 3922688693 3803485303 -44527665 -90410753 X false true X true false X 101016043 193893253 279115653 3285132614 95908297 3955065860 0 0 101016043 193893253 279115653 3285132614 95908297 3955065860 0 3955065860 4888930 14145772 17054431 54160127 75041033 165290293 0 576265 480632 449051 341467 1232566 3079981 4123436134 63484498 0.95917 0.97650 X SCHEDULE A, PART II - OTHER INCOME THE FOUNDATION FOSTERS COLLABORATION WITHIN THE SCIENTIFIC COMMUNITY BY HOSTING A LARGE SCIENTIFIC CONFERENCE PROVIDING A FORUM FOR RESEARCHERS AND CAREGIVERS TO SHARE THEIR PRACTICES AND INVESTIGATE RESULTS WITH ONE ANOTHER. FEES FOR ATTENDANCE AT THIS CONFERENCE ARE REPORTED ON LINE 12. TRANSITION SERVICES AMOUNT REPRESENTS FEES EARNED FOR TEMPORARY INFORMATION TECHNOLOGY AND TELECOMMUNICATIONS SERVICES PROVIDED BY THE FOUNDATION IN CONNECTION WITH THE SALE OF PHARMACY OPERATIONS IN DECEMBER 2012. RESTRICTED RESTRICTED RESTRICTED RESTRICTED RESTRICTED RESTRICTED RESTRICTED RESTRICTED true true false true 54000 false false true 793824 false false 847824 false LOBBYING ACTIVITY THE CYSTIC FIBROSIS FOUNDATION IS FOCUSED ON CURING CYSTIC FIBROSIS AND ENSURING ALL PEOPLE WITH THE DISEASE HAVE THE OPPORTUNITY TO LEAD FULL, PRODUCTIVE LIVES. IN ADDITION TO FUNDING CYSTIC FIBROSIS RESEARCH, THE FOUNDATION ADVOCATES FOR POLICIES THAT ADVANCE BASIC, TRANSLATIONAL AND CLINICAL RESEARCH AND DEVELOPMENT OF TREATMENTS FOR RARE DISEASES LIKE CYSTIC FIBROSIS AND STRATEGIES THAT GIVE ALL PEOPLE WITH THE DISEASE ACCESS TO HIGH QUALITY, SPECIALIZED CYSTIC FIBROSIS CARE. ADVOCACY ACTIVITIES INCLUDE EMAIL COMMUNICATION ENCOURAGING GRASSROOTS ADVOCATES TO CONTACT THEIR LEGISLATORS, ANNUAL EVENTS WHERE VOLUNTEERS MEET WITH MEMBERS OF CONGRESS TO DISCUSS ISSUES CRITICAL TO THE CYSTIC FIBROSIS COMMUNITY, AS WELL AS COMMUNICATING REGULARLY WITH FEDERAL LEGISLATORS AND AGENCIES. 1553944 739641 814303 6058050 3719751 2338299 3152602 US GOVERNMENT TREASURY SEC 139950688 F CORPORATE DEBT SECURITIES 100346121 F US GOVERNMENT AGENCY ASSET 26573141 F COMMERCIAL AND OTHER ASSET 49625087 F FIXED INCOME INDEX COMMINGLED 121683775 F PUBLIC EQUITY COMMINGLED 815609324 F OTHER PUBLIC EQUITY BASED 101139800 F HEDGED STRATEGIES 316136265 F PVT EQTY & OTHR ILLIQUID FUNDS 41260923 F OTHR. GLOBAL EQTY. SECURITIES 445500 F PERPETUAL TRUSTS 3677076 F 1716447700 0 INTERCOMPANY PAYABLE 58395410 58395410 X SCHEDULE D, PART X FIN 48 FOOTNOTE THE FOUNDATION, CFFT, AND CFPAF ARE NOT-FOR-PROFIT VOLUNTARY HEALTH ORGANIZATIONS EXEMPT FROM FEDERAL INCOME TAXES UNDER 501(C)(3) OF THE INTERNAL REVENUE CODE (THE CODE) AND FROM STATE TAXES AND HAVE BEEN CLASSIFIED AS ORGANIZATIONS THAT ARE NOT PRIVATE FOUNDATIONS UNDER SECTION 509(A) OF THE CODE. THE FOUNDATION DOES NOT HAVE ANY UNRELATED BUSINESS INCOME TAX LIABILITY AS OF DECEMBER 31, 2015 AND 2014. CONTRIBUTIONS TO THE FOUNDATION QUALIFY FOR THE CHARITABLE CONTRIBUTIONS DEDUCTION TO THE EXTENT PROVIDED BY SECTION 170 OF THE CODE. CFPAF IS ORGANIZED AS A SINGLE MEMBER LIMITED LIABILITY COMPANY THAT IS A DISREGARDED ENTITY FOR FEDERAL TAX PURPOSES. THE SOLE MEMBER OF CFPAF IS THE FOUNDATION. THE FOUNDATION IS NOT AWARE OF ANY TAX POSITION TAKEN THAT REQUIRES DISCLOSURE BASED ON CURRENT FACTS AND CIRCUMSTANCES. THE FOUNDATION ANNUALLY REVIEWS ITS TAX POSITIONS AND HAS DETERMINED THAT THERE ARE NO MATERIAL UNCERTAIN TAX POSITIONS THAT REQUIRE RECOGNITION OR DISCLOSURE IN THE FINANCIAL STATEMENTS. true North America Grantmaking NONE 141777 Europe (Including Iceland and Greenland) Grantmaking NONE 324000 East Asia and the Pacific Grantmaking NONE 162000 Middle East and North Africa Grantmaking NONE 108000 Central America and the Caribbean Investments 456095000 East Asia and the Pacific Investments 932000 Europe (Including Iceland and Greenland) Investments 105879000 North America Investments 2181000 565822777 565822777 North America PILOT STUDY 97077 CHECK North America PILOT STUDY 43200 CHECK Europe (Including Iceland and Greenland) RESEARCH 108000 WIRE Europe (Including Iceland and Greenland) RESEARCH 108000 WIRE Europe (Including Iceland and Greenland) RESEARCH 108000 WIRE East Asia and the Pacific PILOT STUDY 54000 WIRE East Asia and the Pacific RESEARCH 108000 WIRE Middle East and North Africa RESEARCH 108000 WIRE 8 true true true true true false PROCEDURES FOR MONITORING GRANT FUNDS OUTSIDE OF THE U.S. THE ORGANIZATION HAS PROCEDURES IN PLACE TO MONITOR THE SCIENTIFIC PROGRESS AND FINANCIAL ASPECTS OF GRANTS AWARDED TO ENTITIES OUTSIDE OF THE UNITED STATES. THE ORGANIZATION FOLLOWS THE U.S. DEPARTMENT OF TREASURY ANTI-TERRORIST FINANCING VOLUNTARY BEST PRACTICES GUIDELINES FOR CHARITIES. IN COMPLIANCE WITH THE BEST PRACTICES, THE ORGANIZATION COLLECTS AND REVIEWS INFORMATION ABOUT THE PROSPECTIVE GRANTEES AND CONDUCTS A VETTING PROCESS TO ENSURE THEY ARE NOT SUSPECTED OF ACTIVITIES RELATED TO TERRORISM. ONCE A GRANT IS APPROVED, A WRITTEN AGREEMENT IS SIGNED BY BOTH THE ORGANIZATION AND THE GRANTEE. FUNDING IS INCREMENTAL AND SPONSORED INSTITUTIONS ARE REQUIRED TO SUBMIT ANNUAL REPORTS OF EXPENDITURES AS WELL AS SCIENTIFIC PROGRESS REPORTS. SCIENTIFIC REPORTS ARE REVIEWED BY THE ORGANIZATION'S SCIENTIFIC STAFF TO DETERMINE PROGRESS. THE FINAL GRANT PAYMENT IS CONTINGENT UPON RECEIPT AND APPROVAL OF THE REPORT OF EXPENDITURES. REPORTS OF EXPENDITURES ARE REVIEWED AND APPROVED BY STAFF TO ENSURE INCURRED COSTS ARE APPROPRIATE. THE CF FOUNDATION'S INTERNAL AUDITORS CONDUCT AUDITS ON SAMPLES OF GRANT EXPENDITURE REPORTS BY EXAMINING SUPPORTING RECORDS FROM THE SPONSORED INSTITUTIONS. THE GRANT TO THE MIDDLE EAST/NORTH AFRICA REGION WAS MADE TO WEIZMANN INSTITUTE OF SCIENCE IN ISRAEL. FOREIGN FORMS THE ACTIVITIES REFERENCED IN SCHEDULE F PART IV ARE LIMITED TO CERTAIN OF THE FOUNDATION'S INVESTMENTS. X X X X X true NNE MARKETING MAIL COUNSEL false 7622757 368000 7254757 7622757 368000 7254757 AL AK AZ AR CA CO CT DE FL GA HI ID IL IN IA KS KY LA ME MD MA MI MN MS MO MT NE NV NH NJ NM NY NC ND OH OK OR PA RI SC SD TN TX UT VT VA WA WV WI WY PROFESSIONAL FUNDRAISING SERVICES SCHEDULE G, PART I, LINE 2B CFF HAD A WRITTEN CONTRACT WITH NNE MARKETING TO CONSULT ON ITS DIRECT MARKETING EFFORTS. THE EXPENSE FOR THE PROJECT IS $16,000 PER MONTH OR $192,000 PER YEAR, PLUS CREATIVE DEVELOPMENT, WHICH IS BILLED SEPARATELY AND ACCOUNTS FOR THE DIFFERENCE IN THE TOTAL AMOUNT PAID AND THOSE CONSULTING ACTIVITIES THAT MAY BE CONSIDERED PROFESSIONAL FUNDRAISING SERVICES. ALL DONATIONS FROM MAIL, WHICH NNE ASSISTS WITH, ARE MADE PAYABLE DIRECTLY TO THE FOUNDATION. true ADVOCATE HOPE CHILDREN'S HOSPITAL 4440 WEST 95TH STREET OAK LAWN IL 60453 362169147 501C(3) 29160 CF CARE CENTER ADVOCATE HOPE CHILDREN'S HOSPITAL 4440 WEST 95TH STREET OAK LAWN IL 60453 362169147 501C(3) 36445 RESEARCH ADVOCATE MEDICAL GROUP 701 LEE ST DES PLAINES IL 60016 362169147 501C(3) 23220 CF CARE CENTER ALBANY MEDICAL COLLEGE ELSMERE A-107 ALBANY NY 12208 141338310 501C(3) 241529 CF CARE CENTER ALFRED I DUPONT INSTITUTE OF THE NEMOURS FOUNDATI 1600 ROCKLAND ROAD PO BOX 269 WILMINGTON DE 19899 590634433 501C(3) 57540 CF CARE CENTER ALL CHILDREN'S HOSPITAL DEPT 9010 PO BOX 31020 ST PETERSBURG FL 33731 590683252 501C(3) 171598 CF CARE CENTER ANN AND ROBERT H LURIE CHILDREN'S HOSPITAL OF CHI 2300 CHILDRENS PLAZA - BOX 205 CHICAGO IL 60614 362170833 501C(3) 196771 CF CARE CENTER ANN AND ROBERT H LURIE CHILDREN'S HOSPITAL OF CHI 2300 CHILDRENS PLAZA - BOX 205 CHICAGO IL 60614 362170833 501C(3) 43200 PILOT STUDY ANN AND ROBERT H LURIE CHILDREN'S HOSPITAL OF CHI 2300 CHILDRENS PLAZA - BOX 205 CHICAGO IL 60614 362170833 501C(3) 118800 QUALITY IMPROVEMENT ANN AND ROBERT H LURIE CHILDREN'S HOSPITAL OF CHI 2300 CHILDRENS PLAZA - BOX 205 CHICAGO IL 60614 362170833 501C(3) 122433 RESEARCH ARIZONA BOARD OF REGENTS UNIVERSITY OF ARIZONA 888 N EUCLID ROOM 510 TUCSON AZ 857223308 742652689 IRC 115 91411 CF CARE CENTER ARIZONA BOARD OF REGENTS UNIVERSITY OF ARIZONA 888 N EUCLID ROOM 510 TUCSON AZ 857223308 742652689 IRC 115 17280 QUALITY IMPROVEMENT ARKANSAS CHILDREN'S HOSPITAL RESEARCH INSTITUTE I 800 MARSHALL STREET SLOT 512-17 LITTLE ROCK AR 72202 710694931 501C(3) 95226 CF CARE CENTER ASTHMA AND ALLERGY SPECIALISTS PA 411 BILLINGS ROAD SUITE 104 CHARLOTTE NC 28211 561913043 C CORP 58541 CF CARE CENTER ATLANTIC HEALTH SYSTEM 100 MADISON AVENUE MORRISTOWN NJ 07962 521958352 501C(3) 58994 CF CARE CENTER ATLANTIC HEALTH SYSTEM 100 MADISON AVENUE MORRISTOWN NJ 07962 521958352 501C(3) 50122 PILOT STUDY ATLANTIC HEALTH SYSTEM 100 MADISON AVENUE MORRISTOWN NJ 07962 521958352 501C(3) 39383 RESEARCH STUDY BAYLOR COLLEGE OF MEDICINE PO BOX 1 HOUSTON TX 77212 741613878 501C(3) 32379 ADULT CARE BAYLOR COLLEGE OF MEDICINE PO BOX 1 HOUSTON TX 77212 741613878 501C(3) 393780 CF CARE CENTER BAYSTATE MEDICAL CENTER (95-196) 759 CHESTNUT STREET SPRINGFIELD MA 01199 042790311 501C(3) 48221 CF CARE CENTER BETH ISRAEL MEDICAL CENTER 160 WATER STREET 24TH FLOOR NEW YORK NY 10038 135564934 501C(3) 135875 CF CARE CENTER BETH ISRAEL MEDICAL CENTER 160 WATER STREET 24TH FLOOR NEW YORK NY 10038 135564934 501C(3) 21460 QUALITY IMPROVEMENT BILLINGS CLINIC 2800 10TH AVENUE NORTH BILLINGS MT 59107 810231784 501C(3) 78664 CF CARE CENTER BOARD OF REGENTS OF THE UNIVERSITY OF WISCONSIN SY 750 UNIVERSITY AVENUE MADISON WI 53706 396006492 IRC 115 191092 CF CARE CENTER BOARD OF REGENTS OF THE UNIVERSITY OF WISCONSIN SY 750 UNIVERSITY AVENUE MADISON WI 53706 396006492 IRC 115 17280 QUALITY IMPROVEMENT BOARD OF TRUSTEES OF SOUTHERN ILLINOIS UNIVERSITY PO BOX 19636 SPRINGFIELD IL 62794 376005961 501C(3) 21190 CF CARE CENTER BOARD OF TRUSTEES OF THE LELAND STANFORD JUNIOR UN 651 SERRA STREET SUITE 220 STANFORD CA 943056215 941156365 501C(3) 322016 CF CARE CENTER BOARD OF TRUSTEES OF THE LELAND STANFORD JUNIOR UN 651 SERRA STREET SUITE 220 STANFORD CA 943056215 941156365 501C(3) 68750 TRAINING BOWLING GREEN STATE UNIVERSITY 106 UNIVERSITY HALL BOWLING GREEN OH 43403 346402018 IRC 115 54000 CF CARE CENTER BRIGHAM AND WOMEN'S HOSPITAL BOSTON 10 VINING STREET BOSTON MA 02115 042312909 501C(3) 32385 QUALITY IMPROVEMENT BRIGHAM AND WOMEN'S HOSPITAL BOSTON 10 VINING STREET BOSTON MA 02115 042312909 501C(3) 97200 RESEARCH CALIFORNIA PACIFIC MEDICAL CENTER RESEARCH INSTITU 2200 WEBSTER STREET ROOM 405 SAN FRANCISCO CA 94115 940562680 501C(3) 33386 CF CARE CENTER CAMC HEALTH EDUCATION AND RESEARCH INSTITUTE PO BOX 765 CHARLESTON WV 25323 550753754 501C(3) 53546 CF CARE CENTER CARLE FOUNDATION HOSPITAL 611 W PARK STREET URBANA IL 61801 371119538 501C(3) 33945 CF CARE CENTER CASE WESTERN RESERVE UNIVERSITY 10900 EUCLID AVENUE CLEVELAND OH 441067037 341018992 501C(3) 194916 PILOT STUDY CASE WESTERN RESERVE UNIVERSITY 10900 EUCLID AVENUE CLEVELAND OH 441067037 341018992 501C(3) 518400 RESEARCH CASE WESTERN RESERVE UNIVERSITY 10900 EUCLID AVENUE CLEVELAND OH 441067037 341018992 501C(3) 923133 RESEARCH CENTER CASE WESTERN RESERVE UNIVERSITY 10900 EUCLID AVENUE CLEVELAND OH 441067037 341018992 501C(3) 46250 RESEARCH STUDY CASE WESTERN RESERVE UNIVERSITY 10900 EUCLID AVENUE CLEVELAND OH 441067037 341018992 501C(3) 100000 TRAINING CENTER FOR MEDICAL TECHNOLOGY POLICY 401 EAST PRATT STREET SUITE 631 BALTIMORE MD 21202 271203017 501C(3) 150418 QUALITY IMPROVEMENT CENTRAL FLORIDA PULMONARY GROUP 326 NORTH MILLS AVENUE ORLANDO FL 32803 591760017 C CORP 73916 CF CARE CENTER CHEST MEDICINE ASSOCIATES 100 FODEN ROAD SOUTH PORTLAND ME 04106 010461391 C CORP 27000 QUALITY IMPROVEMENT CHILDREN'S & WOMEN'S PHYSICIANS OF WESTCHESTER 40 SUNSHINE COTTAGE ROAD SKLYLINE VALHALLA NY 10595 133956599 LLP 89654 CF CARE CENTER CHILDREN'S HEALTH CARE 2525 CHICAGO AVENUE SOUTH MINNEAPOLIS MN 55404 411754276 501C(3) 114819 CF CARE CENTER CHILDREN'S HEALTHCARE OF ATLANTA 1001 JOHNSON FERRY ROAD NORTH ATLANTA GA 30342 582367819 501C(3) 105579 CF CARE CENTER CHILDREN'S HOSPITAL & RESEARCH CENTER AT OAKLAND 747 52ND STREET OAKLAND CA 94609 940382330 501C(3) 40432 CF CARE CENTER CHILDREN'S HOSPITAL & RESEARCH CENTER AT OAKLAND 747 52ND STREET OAKLAND CA 94609 940382330 501C(3) 125000 RESEARCH CHILDREN'S HOSPITAL CENTRAL CALIFORNIA 9300 VALLEY CHILDRENS PLACE MADERA CA 93638 941294954 501C(3) 87067 CF CARE CENTER CHILDREN'S HOSPITAL CORPORATION (BOSTON CHILDREN'S 300 LONGWOOD AVE BOSTON MA 021155737 042774441 501C(3) 32200 ADULT CARE CHILDREN'S HOSPITAL CORPORATION (BOSTON CHILDREN'S 300 LONGWOOD AVE BOSTON MA 021155737 042774441 501C(3) 414097 CF CARE CENTER CHILDREN'S HOSPITAL CORPORATION (BOSTON CHILDREN'S 300 LONGWOOD AVE BOSTON MA 021155737 042774441 501C(3) 33264 QUALITY IMPROVEMENT CHILDREN'S HOSPITAL CORPORATION (BOSTON CHILDREN'S 300 LONGWOOD AVE BOSTON MA 021155737 042774441 501C(3) 235000 TRAINING CHILDREN'S HOSPITAL MEDICAL CENTER RESEARCH ACCOUNTING CINCINNATI OH 45229 310833936 501C(3) 197897 CF CARE CENTER CHILDREN'S HOSPITAL MEDICAL CENTER RESEARCH ACCOUNTING CINCINNATI OH 45229 310833936 501C(3) 470000 RESEARCH CENTER CHILDREN'S HOSPITAL MEDICAL CENTER RESEARCH ACCOUNTING CINCINNATI OH 45229 310833936 501C(3) 127500 TRAINING CHILDREN'S HOSPITAL MEDICAL CENTER AKRON ONE PERKINS SQUARE AKRON OH 443081062 340714357 501C(3) 237827 CF CARE CENTER CHILDREN'S HOSPITAL OF MICHIGAN 3663 WOODWARD AVE S STE 200 DETROIT MI 48201 381357994 501C(3) 79423 CF CARE CENTER CHILDREN'S HOSPITAL OF ORANGE COUNTY PO BOX 5700 ORANGE CA 926135700 952321786 501C(3) 127743 CF CARE CENTER CHILDREN'S HOSPITAL OF ORANGE COUNTY PO BOX 5700 ORANGE CA 926135700 952321786 501C(3) 17280 QUALITY IMPROVEMENT CHILDREN'S HOSPITAL OF PITTSBURGH 3705 FIFTH AVENUE PITTSBURGH PA 15213 250402510 501C(3) 370914 CF CARE CENTER CHILDREN'S HOSPITAL LOS ANGELES 4650 SUNSET BLVD LOS ANGELES CA 90027 951690977 501C(3) 135628 CF CARE CENTER CHILDREN'S LUNG SPECIALISTS 3838 MEADOWS LANE LAS VEGAS NV 89107 880271963 C-CORP 105565 CF CARE CENTER CHILDREN'S MEDICAL CENTER ONE CHILDRENS PLAZA DAYTON OH 454041815 310672132 501C(3) 99563 CF CARE CENTER CHILDREN'S MERCY HOSPITAL 2401 GILLHAM ROAD KANSAS CITY MO 64108 440605373 501C(3) 149817 CF CARE CENTER CHILDREN'S MERCY HOSPITAL 2401 GILLHAM ROAD KANSAS CITY MO 64108 440605373 501C(3) 17280 QUALITY IMPROVEMENT CHILDREN'S NATIONAL MEDICAL CENTER 111 MICHIGAN AVENUE NW WASHINGTON DC 20010 521640403 501C(3) 117654 CF CARE CENTER CHILDREN'S RESEARCH INSTITUTE (AT CNMC) 111 MICHIGAN AVENUE NW WASHINGTON DC 20010 521654453 501C(3) 108000 RESEARCH CHILDREN'S SPECIALTY GROUP PLLC 811 REDGATE AVE NORFOLK VA 23507 541871633 LLC 95676 CF CARE CENTER CHRISTUS SANTA ROSA HEALTHCARE 333 NORTH SANTA ROSA SAN ANTONIO TX 78207 741109665 501C(3) 24410 CF CARE CENTER CONNECTICUT CHILDREN'S MEDICAL CENTER 282 WASHINGTON STREET HARTFORD CT 06106 060646755 501C(3) 56059 CF CARE CENTER COOK CHILDREN'S MEDICAL CENTER CF CENTER 801 SEVENTH AVENUE FT WORTH TX 76104 752051646 501C(3) 184912 CF CARE CENTER DAUGHTERS OF CHARITY HEALTH SERVICES OF AUSTIN PO BOX 1 HOUSTON TX 77212 741109643 501C(3) 218074 CF CARE CENTER PHILADELPHIA HEALTH & EDUCATION CORPORATION 3201 ARCH STREET SUITE 420 PHILADELPHIA PA 19104 232979433 501C(3) 185068 CF CARE CENTER DUKE UNIVERSITY BOX 104025 DURHAM NC 27710 560532129 501C(3) 116829 CF CARE CENTER EAST TENNESSEE CHILDREN'S HOSPITAL ASSOCIATION IN 2100 CLINCH AVENUE 310 KNOXVILLE TN 37916 626002604 501C(3) 158780 CF CARE CENTER EASTERN MAINE MEDICAL CENTER 417 STATE STREET SUITE 305 BANGOR ME 04401 010211501 501C(3) 39461 CF CARE CENTER EASTERN VIRGINIA MEDICAL SCHOOL 601 CHILDRENS LANE NORFOLK VA 23507 546055378 501C(3) 54000 QUALITY IMPROVEMENT EMORY UNIVERSITY 1380 SOUTH OXFORD ROAD ATLANTA GA 30322 580566256 501C(3) 59400 ADULT CARE EMORY UNIVERSITY 1380 SOUTH OXFORD ROAD ATLANTA GA 30322 580566256 501C(3) 317678 CF CARE CENTER EMORY UNIVERSITY 1380 SOUTH OXFORD ROAD ATLANTA GA 30322 580566256 501C(3) 97200 RESEARCH EMORY UNIVERSITY 1380 SOUTH OXFORD ROAD ATLANTA GA 30322 580566256 501C(3) 562333 RESEARCH CENTER EMORY UNIVERSITY 1380 SOUTH OXFORD ROAD ATLANTA GA 30322 580566256 501C(3) 46250 RESEARCH STUDY EMORY UNIVERSITY 1380 SOUTH OXFORD ROAD ATLANTA GA 30322 580566256 501C(3) 62750 TRAINING ERLANGER HEALTH SYSTEM 975 EAST THIRD STREET CHATTANOOGA TN 37403 626000101 501C(3) 46560 CF CARE CENTER FACULTY PHYSICIANS & SURGEONS OF LLUSM PO BOX 2000 LOMA LINDA CA 92350 330672915 501C(3) 59711 CF CARE CENTER FAIRFAX NEONATAL ASSOCIATES PC DBAPEDIATRIC LUNG 2730-B PROSPERITY AVENUE FAIRFAX VA 22031 541110106 C CORP 32671 CF CARE CENTER FLETCHER ALLEN HEALTH CARE 111 COLCHESTER AVE BURLINGTON VT 05401 030219309 501C(3) 32157 ADULT CARE FLETCHER ALLEN HEALTH CARE 111 COLCHESTER AVE BURLINGTON VT 05401 030219309 501C(3) 162935 CF CARE CENTER GEISINGER MEDICAL CENTER N ACADEMY DRIVE DANVILLE PA 17822 236291113 501C(3) 73805 CF CARE CENTER GEORGIA HEALTH SCIENCES UNIVERSITY 1120 15TH STREET AUGUSTA GA 309128300 586002053 501C(3) 180013 CF CARE CENTER GLYCOMIMETICS INC 401 PROFESSIONAL DRIVE SUITE 250 GAITHERSBURG MD 20879 061686563 C CORP 70750 RESEARCH GOOD SAMARITAN HOSPITAL 1000 MONTAUK HIGHWAY NEW YORK NY 11795 111888924 501C(3) 15540 CF CARE CENTER GREENVILLE HOSPITAL SYSTEM 701 GROVE ROAD GREENVILLE SC 29605 576007863 501C(3) 44149 CF CARE CENTER GUNDERSEN LUTHERAN MEDICAL FOUNDATION 1900 SOUTH AVENUE LA CROSSE WI 54601 391249705 501C(3) 21840 CF CARE CENTER HARTFORD HOSPITAL (CENTRAL CONNECTICUT CYSTIC FIBR 80 SEYMOUR STREET HARTFORD CT 06102 060646668 501C(3) 121777 CF CARE CENTER HARTFORD HOSPITAL (CENTRAL CONNECTICUT CYSTIC FIBR 80 SEYMOUR STREET HARTFORD CT 06102 060646668 501C(3) 17280 QUALITY IMPROVEMENT HENRY M JACKSON FOUNDATION FOR THE ADVANCEMENT OF 1404 ROCKVILLE PIKE SUITE 600 ROCKVILLE MD 20852 521317896 501C(3) 38505 CF CARE CENTER HENRY M JACKSON FOUNDATION FOR THE ADVANCEMENT OF 1404 ROCKVILLE PIKE SUITE 600 ROCKVILLE MD 20852 521317896 501C(3) 86400 PILOT STUDY IOWA HEALTH FOUNDATION (BLANK CHILDREN'S CF CENTER 1440 INGERSOLL AVENUE DES MOINES IA 50309 421467682 501C(3) 63993 CF CARE CENTER KAISER FOUNDATION RESEARCH INSTITUTE 1800 HARRISON STREET 16TH FLOOR OAKLAND CA 94612 941105628 501C(3) 229679 CF CARE CENTER KAISER FOUNDATION RESEARCH INSTITUTE 1800 HARRISON STREET 16TH FLOOR OAKLAND CA 94612 941105628 501C(3) 17280 QUALITY IMPROVEMENT KALEIDA HEALTH 219 BRYANT STREET BUFFALO NY 14209 161533232 501C(3) 78280 CF CARE CENTER LANDON PEDIATRIC FOUNDATION 3291 LOMA VISTA ROAD VENTURA CA 93003 931097216 501C(3) 32742 CF CARE CENTER LEE MEMORIAL HEALTH SYSTEM FOUNDATION INC 16451 HEALTHPARK COMMONS 200 FT MYERS FL 339083630 650645343 501C(3) 26589 CF CARE CENTER LEHIGH VALLEY HOSPITAL 2545 SCHOENERSVILLE ROAD BETHLEHEM PA 18017 231689692 501C(3) 23665 CF CARE CENTER LIFE SCIENCES RESEARCH FOUNDATION 3520 SAN MARTIN DRIVE BALTIMORE MD 212182440 521231801 501C(3) 61000 RESEARCH LONG BEACH MEMORIAL MEDICAL CENTER 2801 ATLANTIC AVENUE LONG BEACH CA 90806 953527031 501C(3) 27000 ADULT CARE LONG ISLAND JEWISH MEDICAL CENTER 972 BRUSHHOLLOW ROAD WESTBURY NY 11590 112241326 501C(3) 165240 CF CARE CENTER LONG ISLAND JEWISH MEDICAL CENTER 972 BRUSHHOLLOW ROAD WESTBURY NY 11590 112241326 501C(3) 241952 QUALITY IMPROVEMENT LOYOLA UNIVERSITY OF CHICAGO 2160 S FIRST AVENUE MAYWOOD IL 60153 361408475 501C(3) 57082 CF CARE CENTER LSUMC - SHREVEPORT P O BOX 33932 SHREVEPORT LA 71130 720702002 501C(3) 89853 CF CARE CENTER LUTHERAN HOSPITAL OF INDIANA 7950 WEST JEFFERSON BOULEVARD FT WAYNE IN 46804 351963748 C CORP 47047 RESEARCH MAINE MEDICAL CENTER 22 BRAMHALL STREET PORTLAND ME 04102 010238552 501C(3) 189931 CF CARE CENTER MARSHFIELD CLINIC RESEARCH FOUNDATION 1000 NORTH OAK AVENUE MARSHFIELD WI 54449 390452970 501C(3) 29666 CF CARE CENTER MARY BRIDGE CHILDREN'S FOUNDATION 311 SOUTH L STREET TACOMA WA 98405 943030039 501C(3) 48527 CF CARE CENTER UCLA DEPARTMENT OF PEDIATRIC GROUP PRACTICE 10833 LE CONTE AVE MDCC 22-412 LOS ANGELES CA 90095 954372298 501C(3) 5069 CF CARE CENTER MAYO CLINIC ROCHESTER 200 FIRST STREET SW PLUMMER 5 ROCHESTER MN 55905 416011702 501C(3) 55271 CF CARE CENTER MEDICAL UNIVERSITY OF SOUTH CAROLINA PO BOX 997 CHARLESTON SC 29402 576000722 115 119607 CF CARE CENTER MEMORIAL MEDICAL CENTER FOUNDATION 2801 ATLANTIC AVENUE LONG BEACH CA 908011428 956105984 501C(3) 151209 CF CARE CENTER MIAMI CHILDREN'S HOSPITAL 3200 SW 60TH COURT MIAMI FL 33155 590638499 501C(3) 58617 CF CARE CENTER MICHIGAN STATE UNIVERSITY 301 ADMINISTRATION BLDG EAST LANSING MI 488241046 386005984 501C(3) 52040 CF CARE CENTER MICHIGAN STATE UNIVERSITY 301 ADMINISTRATION BLDG EAST LANSING MI 488241046 386005984 501C(3) 21882 CF CARE CENTER WESTERN MICHIGAN UNIVERSITY SCHOOL OF MEDICINE 1000 OAKLAND DRIVE KALAMAZOO MI 49001 454135256 501C(3) 24860 CF CARE CENTER MISSION HEALTHCARE FOUNDATION INC 980 HENDERSONVILLE ROAD ASHEVILLE NC 28803 561881331 501C(3) 10388 CF CARE CENTER MONMOUTH MEDICAL CENTER FOUNDATION 300 SECOND AVENUE LONG BRANCH NJ 07740 222456079 501C(3) 128004 CF CARE CENTER NATIONAL JEWISH MEDICAL AND RESEARCH CENTER 1400 JACKSON STREET DENVER CO 80206 742044647 501C(3) 210500 CF CARE CENTER NATIONAL JEWISH MEDICAL AND RESEARCH CENTER 1400 JACKSON STREET DENVER CO 80206 742044647 501C(3) 17280 QUALITY IMPROVEMENT NATIONAL JEWISH MEDICAL AND RESEARCH CENTER 1400 JACKSON STREET DENVER CO 80206 742044647 501C(3) 291600 RESEARCH NATIONAL JEWISH MEDICAL AND RESEARCH CENTER 1400 JACKSON STREET DENVER CO 80206 742044647 501C(3) 525000 RESEARCH CENTER NEMOURS CHILDREN'S CLINIC JACKSONVILLE 807 NIRA STREET JACKSONVILLE FL 32207 590634433 501C(3) 32400 ADULT CARE NEMOURS CHILDREN'S CLINIC JACKSONVILLE 807 NIRA STREET JACKSONVILLE FL 32207 590634433 501C(3) 74356 CF CARE CENTER NEMOURS CHILDREN'S CLINIC ORLANDO 496 S DELANEY AVENUE SUITE 408 ORLANDO FL 32801 590634433 501C(3) 47070 CF CARE CENTER NEMOURS CHILDREN'S CLINIC ORLANDO 496 S DELANEY AVENUE SUITE 408 ORLANDO FL 32801 590634433 501C(3) 13230 QUALITY IMPROVEMENT NEMOURS CHILDREN'S CLINIC PENSACOLA 5153 NORTH 9TH AVENUE PENSACOLA FL 32504 590634433 501C(3) 53761 CF CARE CENTER NEW YORK UNIVERSITY SCHOOL OF MEDICINE 550 FIRST AVENUE NEW YORK NY 10016 135562308 501C(3) 27000 ADULT CARE NEW YORK UNIVERSITY SCHOOL OF MEDICINE 550 FIRST AVENUE NEW YORK NY 10016 135562308 501C(3) 116580 CF CARE CENTER NEW YORK UNIVERSITY SCHOOL OF MEDICINE 550 FIRST AVENUE NEW YORK NY 10016 135562308 501C(3) 21600 QUALITY IMPROVEMENT NORTH SUBURBAN PULMONARY 8780 W GOLF ROAD SUITE 102 NILES IL 60714 364393017 C CORP 21750 CF CARE CENTER NORTHWESTERN UNIVERSITY 750 N LAKE SHORE DRIVE CHICAGO IL 606113008 362167817 501C(3) 79547 CF CARE CENTER NORTHWESTERN UNIVERSITY 750 N LAKE SHORE DRIVE CHICAGO IL 606113008 362167817 501C(3) 54000 PILOT STUDY OREGON HEALTH & SCIENCE UNIVERSITY 0690 SW BANCROFT STREET PORTLAND OR 97239 237083114 501C(3) 32400 ADULT CARE OREGON HEALTH & SCIENCE UNIVERSITY 0690 SW BANCROFT STREET PORTLAND OR 97239 237083114 501C(3) 314635 CF CARE CENTER OREGON HEALTH & SCIENCE UNIVERSITY 0690 SW BANCROFT STREET PORTLAND OR 97239 237083114 501C(3) 32400 QUALITY IMPROVEMENT ORLANDO HEALTH FOUNDATION 3160 SOUTHGATE COMMERCE BLVD ORLANDO FL 32806 592244943 501C(3) 60522 CF CARE CENTER ORLANDO HEALTH FOUNDATION 3160 SOUTHGATE COMMERCE BLVD ORLANDO FL 32806 592244943 501C(3) 17280 QUALITY IMPROVEMENT OSF SAINT FRANCIS MEDICAL CENTER 530 NE GLEN OAK AVENUE PEORIA IL 61637 370662569 501C(3) 62455 QUALITY IMPROVEMENT PENNSYLVANIA STATE UNIVERSITY OFFICE OF RESEARCH AFFAIRS H138 HERSHEY PA 17033 246000376 IRC 115 76116 CF CARE CENTER PENNSYLVANIA STATE UNIVERSITY OFFICE OF RESEARCH AFFAIRS H138 HERSHEY PA 17033 246000376 IRC 115 79713 QUALITY IMPROVEMENT PHOENIX CHILDREN'S HOSPITAL 1300 NORTH 12TH STREET PHOENIX AZ 85006 860422559 501C(3) 258524 CF CARE CENTER PROVIDENCE ALASKA MEDICAL CENTER 3200 PROVIDENCE DRIVE ANCHORAGE AK 995196604 920016429 501C(3) 36053 QUALITY IMPROVEMENT PROVIDENCE PHYSICIAN SERVICE 101 W 8TH AVE SPOKANE WA 99204 911216033 C CORP 87207 TRAINING REGENTS OF THE UNIVERSITY OF COLORADO AT DENVER F428 FITZSIMONS BUILDING 500 AURORA CO 800450508 846000555 501C(3) 248497 CF CARE CENTER REGENTS OF THE UNIVERSITY OF COLORADO AT DENVER F428 FITZSIMONS BUILDING 500 AURORA CO 800450508 846000555 501C(3) 32376 QUALITY IMPROVEMENT RENOWN HEALTH FOUNDATION 1155 MILL ST Z-5 RENO NV 89502 942872749 501C(3) 23430 CF CARE CENTER RHODE ISLAND HOSPITAL 593 EDDY STREET PROVIDENCE RI 02903 050258954 501C(3) 50758 ADULT CARE RHODE ISLAND HOSPITAL 593 EDDY STREET PROVIDENCE RI 02903 050258954 501C(3) 71248 CF CARE CENTER RUSH UNIVERSITY MEDICAL CENTER ST LUKE'S MEDICA 1725 WEST HARRISON SUITE 718 CHICAGO IL 60612 362174823 501C(3) 27000 ADULT CARE RUSH UNIVERSITY MEDICAL CENTER ST LUKE'S MEDICA 1725 WEST HARRISON SUITE 718 CHICAGO IL 60612 362174823 501C(3) 87915 CF CARE CENTER RUSH UNIVERSITY MEDICAL CENTER ST LUKE'S MEDICA 1725 WEST HARRISON SUITE 718 CHICAGO IL 60612 362174823 501C(3) 33264 QUALITY IMPROVEMENT RUTGERS THE STATE UNIVERSITY OF NEW JERSEY 58 BEVIER ROAD PISCATAWAY NJ 088548010 462354111 IRC 115 71717 CF CARE CENTER RUTGERS THE STATE UNIVERSITY OF NEW JERSEY 58 BEVIER ROAD PISCATAWAY NJ 088548010 462354111 IRC 115 54000 PILOT STUDY SAINT BARNABAS MEDICAL CENTER 200 SOUTH ORANGE AVENUE LIVINGSTON NJ 07039 221494440 501C(3) 26578 CF CARE CENTER SAINT JOSEPH'S HOSPITAL AND MEDICAL CENTER 703 MAIN STREET PATERSON NJ 07503 221487602 501C(3) 75733 CF CARE CENTER SAMARITAN MEDICAL CENTER 513 WASHINGTON STREET WATERTOWN NY 13601 150533577 501C(3) 8797 CF CARE CENTER SANFORD CHILDREN'S SPECIALTY CLINIC 1305 W 18TH STREET SIOUX FALLS SD 571175039 460447693 501C(3) 83337 CF CARE CENTER SANTA BARBARA COTTAGE HOSPITAL 2405 DE LA VINA STREET SANTA BARBARA CA 93105 951644629 501C(3) 13853 CF CARE CENTER SCOTT & WHITE MEMORIAL HOSPITAL 2401 SOUTH 31ST STREET TEMPLE TX 76508 741166904 501C(3) 29875 CF CARE CENTER SEATTLE CHILDREN'S HOSPITAL 4800 SAND POINT WAY NE MS T-0111 SEATTLE WA 98105 910564748 501C(3) 30200 QUALITY IMPROVEMENT SEATTLE CHILDREN'S HOSPITAL 4800 SAND POINT WAY NE MS T-0111 SEATTLE WA 98105 910564748 501C(3) 181203 CF CARE CENTER SOUTH BROWARD HOSPITAL DISTRICT CYSTIC FIBROSIS CLINIC HOLLYWOOD FL 33321 596014973 501C(3) 144432 CF CARE CENTER SPECTRUM HEALTH FOUNDATION 100 MICHIGAN STREET NE MC 004 GRAND RAPIDS MI 49503 382752328 501C(3) 229641 CF CARE CENTER ST ALEXIUS MEDICAL CENTER PO BOX 5510 BISMARCK ND 585065510 450226711 501C(3) 29433 CF CARE CENTER ST JOSEPH'S REGIONAL MEDICAL CENTER INC 611 EAST CEDAR STREET SUITE 405 MISHAWAKA IN 465451468 351568821 501C(3) 31007 CF CARE CENTER ST LOUIS UNIVERSITY 3500 LINDELL BLVD ST LOUIS MO 63103 430654872 501C(3) 111319 CF CARE CENTER ST LUKE'S REGIONAL MEDICAL CENTER 100 EAST IDAHO SUITE 200 BOISE ID 83712 820161600 501C(3) 177516 CF CARE CENTER THE RESEARCH FOUNDATION FOR THE STATE UNIVERSITY O PO BOX 9 ALBANY NY 122010009 141368361 501C(3) 17280 QUALITY IMPROVEMENT THE RESEARCH FOUNDATION FOR THE STATE UNIVERSITY O PO BOX 9 ALBANY NY 122010009 141368361 501C(3) 187191 CF CARE CENTER SUTTER MEDICAL CENTER SACRAMENTO 5609 J STREET SUITE C SACRAMENTO CA 95819 941156621 501C(3) 54864 CF CARE CENTER SYNEDGEN INC 1420 CLAREMONT BLVD SUITE 105D CLAREMONT CA 91711 800384893 C CORP 236299 RESEARCH TENET ST MARY'S INC CYSTIC FIBROSIS CENTER PO BOX 24620 901 45TH STREET WEST PALM BEACH FL 33407 752932830 C CORP 50705 CF CARE CENTER TENET ST MARY'S INC CYSTIC FIBROSIS CENTER PO BOX 24620 901 45TH STREET WEST PALM BEACH FL 33407 752932830 C CORP 17280 QUALITY IMPROVEMENT TENET ST MARY'S INC CYSTIC FIBROSIS CENTER PO BOX 24620 901 45TH STREET WEST PALM BEACH FL 33407 752932830 C CORP 54000 RESEARCH TENNESSEE DEPARTMENT OF HEALTHLAB SERVICES 710 JAMES ROBERTSON PARKWAY 6TH FL NASHVILLE TN 37243 626001445 OTHER GOV'T 20000 CF CARE CENTER TEXAS TECH UNIVERSITY HEALTH SCIENCES CENTER 3601 4TH STREET LUBBOCK TX 79430 752668014 IRC 115 27178 CF CARE CENTER THE ADULT CYSTIC FIBROSIS CENTER OF JACKSONVILLE 425 N LEE STREET SUITE 202 JACKSONVILLE FL 32204 204055796 501C(3) 26305 CF CARE CENTER THE CHILDREN'S HOSPITAL OF PHILADELPHIA 3516 CIVIC CENTER BLVD PHILADELPHIA PA 191044318 231352166 501C(3) 32400 ADULT CARE THE CHILDREN'S HOSPITAL OF PHILADELPHIA 3516 CIVIC CENTER BLVD PHILADELPHIA PA 191044318 231352166 501C(3) 244895 CF CARE CENTER THE CHILDREN'S HOSPITAL OF PHILADELPHIA 3516 CIVIC CENTER BLVD PHILADELPHIA PA 191044318 231352166 501C(3) 100000 RESEARCH THE CURATORS OF THE UNIVERSITY OF MISSOURI 310 JESSE HALL COLUMBIA MO 65211 436003859 IRC 115 26998 ADULT CARE THE CURATORS OF THE UNIVERSITY OF MISSOURI 310 JESSE HALL COLUMBIA MO 65211 436003859 IRC 115 172980 CF CARE CENTER THE CURATORS OF THE UNIVERSITY OF MISSOURI 310 JESSE HALL COLUMBIA MO 65211 436003859 IRC 115 54000 PILOT STUDY THE CURATORS OF THE UNIVERSITY OF MISSOURI 310 JESSE HALL COLUMBIA MO 65211 436003859 IRC 115 33264 QUALITY IMPROVEMENT THE CURATORS OF THE UNIVERSITY OF MISSOURI 310 JESSE HALL COLUMBIA MO 65211 436003859 IRC 115 216000 RESEARCH THE GENERAL HOSPITAL CORPORATION (MASSACHUSETTS GE PO BOX 414876 BOSTON MA 02114 042697983 501C(3) 192638 CF CARE CENTER THE GENERAL HOSPITAL CORPORATION (MASSACHUSETTS GE PO BOX 414876 BOSTON MA 02114 042697983 501C(3) 95932 RESEARCH STUDY THE GENERAL HOSPITAL CORPORATION (MASSACHUSETTS GE PO BOX 414876 BOSTON MA 02114 042697983 501C(3) 227500 TRAINING THE HITCHCOCK FOUNDATION ONE MEDICAL CENTER DRIVE LEBANON NH 03756 020222139 501C(3) 194670 CF CARE CENTER THE JOHNS HOPKINS UNIVERSITY 600 N WOLFE STREET PARK 316 BALTIMORE MD 21205 520595110 501C(3) 344986 CF CARE CENTER THE JOHNS HOPKINS UNIVERSITY 600 N WOLFE STREET PARK 316 BALTIMORE MD 21205 520595110 501C(3) 43200 PILOT STUDY THE JOHNS HOPKINS UNIVERSITY 600 N WOLFE STREET PARK 316 BALTIMORE MD 21205 520595110 501C(3) 108000 RESEARCH THE MEDICAL COLLEGE OF WISCONSIN 8701 WATERTOWN PLANK ROAD MILWAUKEE WI 53226 390806261 501C(3) 301404 CF CARE CENTER THE MEDICAL COLLEGE OF WISCONSIN 8701 WATERTOWN PLANK ROAD MILWAUKEE WI 53226 390806261 501C(3) 81000 QUALITY IMPROVEMENT THE OHIO STATE UNIVERSITY 1960 KENNY ROAD COLUMBUS OH 43210 316025986 IRC 115 54000 ADULT CARE THE OHIO STATE UNIVERSITY 1960 KENNY ROAD COLUMBUS OH 43210 316025986 IRC 115 97200 CF CARE CENTER THE OHIO STATE UNIVERSITY 1960 KENNY ROAD COLUMBUS OH 43210 316025986 IRC 115 46250 RESEARCH STUDY THE PRESIDENT & FELLOWS OF HARVARD COLLEGE 25 SHATTUCK STREET BOSTON MA 02115 042103580 501C(3) 47930 RESEARCH STUDY THE RECTOR AND VISITORS OF THE UNIVERSITY OF VIRGI PO BOX 400195 CHARLOTTESVILLE VA 229044195 546001796 501C(3) 247972 CF CARE CENTER THE RECTOR AND VISITORS OF THE UNIVERSITY OF VIRGI PO BOX 400195 CHARLOTTESVILLE VA 229044195 546001796 501C(3) 26460 QUALITY IMPROVEMENT THE REGENTS OF THE UNIVERSITY OF CALIFORNIA DAVIS ONE SHIELDS AVENUE DAVIS CA 95616 946036494 501C(3) 90381 CF CARE CENTER THE REGENTS OF THE UNIVERSITY OF CALIFORNIA SAN D 9500 GILMAN DRIVE DEPT 0934 LA JOLLA CA 920930954 956006144 501C(3) 172247 CF CARE CENTER THE REGENTS OF THE UNIVERSITY OF CALIFORNIA SAN F 3333 CALIFORNIA STREET SUITE 315 SAN FRANCISCO CA 941430962 946036493 501C(3) 64800 ADULT CARE THE REGENTS OF THE UNIVERSITY OF CALIFORNIA SAN F 3333 CALIFORNIA STREET SUITE 315 SAN FRANCISCO CA 941430962 946036493 501C(3) 158730 CF CARE CENTER THE REGENTS OF THE UNIVERSITY OF CALIFORNIA SAN F 3333 CALIFORNIA STREET SUITE 315 SAN FRANCISCO CA 941430962 946036493 501C(3) 54000 PILOT STUDY THE REGENTS OF THE UNIVERSITY OF CALIFORNIA SAN F 3333 CALIFORNIA STREET SUITE 315 SAN FRANCISCO CA 941430962 946036493 501C(3) 430000 RESEARCH CENTER THE REGENTS OF THE UNIVERSITY OF CALIFORNIA SAN F 3333 CALIFORNIA STREET SUITE 315 SAN FRANCISCO CA 941430962 946036493 501C(3) 196750 TRAINING THE REGENTS OF THE UNIVERSITY OF MICHIGAN 3003 SOUTH STATE STREET ROOM 3089 ANN ARBOR MI 481091274 386006309 501C(3) 32400 ADULT CARE THE REGENTS OF THE UNIVERSITY OF MICHIGAN 3003 SOUTH STATE STREET ROOM 3089 ANN ARBOR MI 481091274 386006309 501C(3) 391989 CF CARE CENTER THE REGENTS OF THE UNIVERSITY OF MICHIGAN 3003 SOUTH STATE STREET ROOM 3089 ANN ARBOR MI 481091274 386006309 501C(3) 54000 PILOT STUDY THE REGENTS OF THE UNIVERSITY OF MICHIGAN 3003 SOUTH STATE STREET ROOM 3089 ANN ARBOR MI 481091274 386006309 501C(3) 32400 QUALITY IMPROVEMENT THE REGENTS OF THE UNIVERSITY OF MICHIGAN 3003 SOUTH STATE STREET ROOM 3089 ANN ARBOR MI 481091274 386006309 501C(3) 233000 RESEARCH THE REGENTS OF THE UNIVERSITY OF MICHIGAN 3003 SOUTH STATE STREET ROOM 3089 ANN ARBOR MI 481091274 386006309 501C(3) 61250 TRAINING THE REGENTS OF THE UNIVERSITY OF MINNESOTA 200 OAK ST SE MINNEAPOLIS MN 554552070 416007513 IRC 115 32400 ADULT CARE THE REGENTS OF THE UNIVERSITY OF MINNESOTA 200 OAK ST SE MINNEAPOLIS MN 554552070 416007513 IRC 115 339509 CF CARE CENTER THE REGENTS OF THE UNIVERSITY OF MINNESOTA 200 OAK ST SE MINNEAPOLIS MN 554552070 416007513 IRC 115 161250 TRAINING THE RESEARCH INSTITUTE AT NATIONWIDE CHILDREN'S HO HUNTINGTON NATIONAL BANK COLUMBUS OH 43260 316056230 501C(3) 43200 PILOT STUDY THE RESEARCH INSTITUTE AT NATIONWIDE CHILDREN'S HO 700 CHILDRENS DRIVE COLUMBUS OH 43260 316056230 501C(3) 33264 QUALITY IMPROVEMENT THE RESEARCH INSTITUTE AT NATIONWIDE CHILDREN'S HO 700 CHILDRENS DRIVE COLUMBUS OH 43260 316056230 501C(3) 284495 CF CARE CENTER THE TAMPA GENERAL HOSPITAL FOUNDATION PO BOX 1289 TAMPA FL 33601 237354477 501C(3) 110492 CF CARE CENTER THE TRUSTEES OF COLUMBIA UNIVERSITY IN THE CITY OF 351 ENGINEERING TERRACE NEW YORK NY 10027 135598093 501C(3) 32400 ADULT CARE THE TRUSTEES OF COLUMBIA UNIVERSITY IN THE CITY OF 351 ENGINEERING 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IOWA B 5 JESSUP HALL IOWA CITY IA 52242 426004813 IRC 115 97200 PILOT STUDY UNIVERSITY OF IOWA B 5 JESSUP HALL IOWA CITY IA 52242 426004813 IRC 115 600000 RESEARCH CENTER UNIVERSITY OF IOWA B 5 JESSUP HALL IOWA CITY IA 52242 426004813 IRC 115 61250 TRAINING UNIVERSITY OF KANSAS MEDICAL CENTER RESEARCH INSTI 3901 RAINBOW BOULEVARD MSN 1039 KANSAS CITY KS 661032937 481108830 501C(3) 27000 ADULT CARE UNIVERSITY OF KANSAS MEDICAL CENTER RESEARCH INSTI 3901 RAINBOW BOULEVARD MSN 1039 KANSAS CITY KS 661032937 481108830 501C(3) 186117 CF CARE CENTER UNIVERSITY OF KENTUCKY RESEARCH FOUNDATION 740 SOUTH LIMESTONE LEXINGTON KY 405360284 616033693 501C(3) 163858 CF CARE CENTER UNIVERSITY OF LOUISVILLE RESEARCH FOUNDATION INC JOUETT HALL BELKNAP CAMPUS LOUISVILLE KY 40292 611029626 501C(3) 145765 CF CARE CENTER UNIVERSITY OF MARYLAND 650 W BALTIMORE ST - 8 SOUTH BALTIMORE MD 21201 526002033 IRC 115 43200 ADULT CARE UNIVERSITY OF MASSACHUSETTS MEDICAL CENTER 55 LAKE AVENUE WORCESTER MA 10655 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CENTER PO BOX 26901 OKLAHOMA CITY OK 73190 736017987 IRC 115 99213 CF CARE CENTER UNIVERSITY OF OKLAHOMA HEALTH SCIENCES CENTER PO BOX 26901 OKLAHOMA CITY OK 73190 736017987 IRC 115 112692 PILOT STUDY UNIVERSITY OF PITTSBURGH 350 THACKERAY HALL PITTSBURGH PA 15260 250965591 501C(3) 27000 ADULT CARE UNIVERSITY OF PITTSBURGH 350 THACKERAY HALL PITTSBURGH PA 15260 250965591 501C(3) 139508 QUALITY IMPROVEMENT UNIVERSITY OF PITTSBURGH 350 THACKERAY HALL PITTSBURGH PA 15260 250965591 501C(3) 194400 RESEARCH UNIVERSITY OF PITTSBURGH 350 THACKERAY HALL PITTSBURGH PA 15260 250965591 501C(3) 500000 RESEARCH CENTER UNIVERSITY OF PITTSBURGH 350 THACKERAY HALL PITTSBURGH PA 15260 250965591 501C(3) 46250 RESEARCH STUDY UNIVERSITY OF PITTSBURGH 350 THACKERAY HALL PITTSBURGH PA 15260 250965591 501C(3) 124370 TRAINING UNIVERSITY OF ROCHESTER 1325 MT HOPE AVENUE SUITE 260 ROCHESTER NY 14642 160743209 501C(3) 165281 CF CARE CENTER UNIVERSITY OF SOUTH CAROLINA RESEARCH FOUNDATION 901 SUMTER STREET SUITE 501 COLUMBIA SC 29208 570967350 501C(3) 48928 CF CARE CENTER UNIVERSITY OF SOUTH FLORIDA 17 DAVIS BOULEVARD SUITE 200 TAMPA FL 33606 593102112 IRC 115 28676 CF CARE CENTER UNIVERSITY OF SOUTHERN CALIFORNIA 1540 ALCAZAR STREET LOS ANGELES CA 900339002 951642394 501C(3) 95280 RESEARCH UNIVERSITY OF SOUTHERN CALIFORNIA KECK SCHOOL OF M 1540 ALCAZAR STREET CHP-100 LOS ANGELES CA 90033 951642394 501C(3) 167216 CF CARE CENTER UNIVERSITY OF TENNESSEE 62 S DUNLAP MEMPHIS TN 38163 626001636 IRC 115 97449 CF CARE CENTER UNIVERSITY OF TENNESSEE MEDICAL CENTER 1940 ALCOA HWY SUITE E-110 KNOXVILLE TN 37920 311626179 501C(3) 40500 CF CARE CENTER UNIVERSITY OF TENNESSEE MEDICAL CENTER 1940 ALCOA HWY SUITE E-110 KNOXVILLE TN 37920 311626179 501C(3) 40204 PILOT STUDY UNIVERSITY OF TEXAS HEALTH SCIENCE CENTER AT SAN A 7703 FLOYD CURL DRIVE SAN ANTONIO TX 782293900 741586031 IRC 115 27000 ADULT CARE UNIVERSITY OF TEXAS HEALTH SCIENCE CENTER AT SAN A 7703 FLOYD CURL DRIVE SAN ANTONIO TX 782293900 741586031 IRC 115 64362 CF CARE CENTER UNIVERSITY OF TEXAS HEALTH SCIENCE CENTER AT SAN A 7703 FLOYD CURL DRIVE SAN ANTONIO TX 782293900 741586031 IRC 115 17280 QUALITY IMPROVEMENT UNIVERSITY OF TEXAS HEALTH SCIENCE CENTER AT TYLER 11937 US HWY 271 TYLER TX 75708 756001354 IRC 115 92775 CF CARE CENTER UNIVERSITY OF TEXAS MD ANDERSON CANCER CENTER 1515 HOLCOMBE BLVD HOUSTON TX 77030 746001118 IRC 115 35000 RESEARCH UNIVERSITY OF UTAH 406 PARK BLDG SALT LAKE CITY UT 84112 876000525 501C(3) 127313 PATIENT REGISTRY UNIVERSITY OF UTAH 406 PARK BLDG SALT LAKE CITY UT 84112 876000525 501C(3) 284909 CF CARE CENTER UNIVERSITY OF WASHINGTON 4333 BROOKLYN AVENUE NE BOX 359472 SEATTLE WA 981959472 916001537 IRC 115 396137 CF CARE CENTER UNIVERSITY OF WASHINGTON 4333 BROOKLYN AVENUE NE BOX 359472 SEATTLE WA 981959472 916001537 IRC 115 647930 RESEARCH UNIVERSITY OF WASHINGTON 4333 BROOKLYN AVENUE NE BOX 359472 SEATTLE WA 981959472 916001537 IRC 115 195161 RESEARCH STUDY UT SOUTHWESTERN MEDICAL CENTER AT DALLAS 5323 HARRY HINES BLVD DALLAS TX 753909040 756002868 IRC 115 178397 ADULT CARE UT SOUTHWESTERN MEDICAL CENTER AT DALLAS 5323 HARRY HINES BLVD DALLAS TX 753909040 756002868 IRC 115 337785 CF CARE CENTER UT SOUTHWESTERN MEDICAL CENTER AT DALLAS 5323 HARRY HINES BLVD DALLAS TX 753909040 756002868 IRC 115 53835 QUALITY IMPROVEMENT UT SOUTHWESTERN MEDICAL CENTER AT DALLAS 5323 HARRY HINES BLVD DALLAS TX 753909040 756002868 IRC 115 46250 RESEARCH STUDY UTAH DEPARTMENT OF HEALTH 44 MARIO CAPECCHI DRIVE SALT LAKE CITY UT 84114 876000545 OTHER'GOV'T 15377 CF CARE CENTER VANDERBILT UNIVERSITY PO BOX 30195 NASHVILLE TN 372410195 620476822 501C(3) 246237 CF CARE CENTER VANDERBILT UNIVERSITY PO BOX 30195 NASHVILLE TN 372410195 620476822 501C(3) 100000 TRAINING VIA CHRISTI REGIONAL MEDICAL CENTER CF CLINIC 3311 EAST MURDOCK STREET WICHITA KS 67218 481172106 501C(3) 68572 CF CARE CENTER VIRGINIA COMMONWEALTH UNIVERSITY BOX 2506 - VCU STATION RICHMOND VA 232842506 546001758 IRC 115 54000 ADULT CARE VIRGINIA COMMONWEALTH UNIVERSITY BOX 2506 - VCU STATION RICHMOND VA 232842506 546001758 IRC 115 138725 CF CARE CENTER WAKE FOREST UNIVERSITY HEALTH SCIENCES MEDICAL CENTER BLVD WINSTONSALEM NC 271571064 223849199 501C(3) 87375 CF CARE CENTER WAKE FOREST UNIVERSITY HEALTH SCIENCES MEDICAL CENTER BLVD WINSTONSALEM NC 271571064 223849199 501C(3) 43200 PILOT STUDY WAKE FOREST UNIVERSITY HEALTH SCIENCES MEDICAL CENTER BLVD WINSTONSALEM NC 271571064 223849199 501C(3) 92016 RESEARCH WASHINGTON UNIVERSITY 700 ROSEDALE AVENUE ST LOUIS MO 631121408 430653611 501C(3) 310130 CF CARE CENTER WAYNE STATE UNIVERSITY GRANTS CONTRACTS OFFICE III DETROIT MI 48201 386028425 501C(3) 51820 CF CARE CENTER WEST VIRGINIA UNIVERSITY RESEARCH CORPORATION PO BOX 6001 MORGANTOWN WV 265066001 550665758 501C(3) 129385 CF CARE CENTER YALE UNIVERSITY 47 COLLEGE STREET SUITE 203 NEW HAVEN CT 065208047 060646973 501C(3) 59309 ADULT CARE YALE UNIVERSITY 47 COLLEGE STREET SUITE 203 NEW HAVEN CT 065208047 060646973 501C(3) 173041 CF CARE CENTER YALE UNIVERSITY 47 COLLEGE STREET SUITE 203 NEW HAVEN CT 065208047 060646973 501C(3) 43200 PILOT STUDY YALE UNIVERSITY 47 COLLEGE STREET SUITE 203 NEW HAVEN CT 065208047 060646973 501C(3) 222200 RESEARCH HEALTHWELL FOUNDATION PO BOX 4133 GAITHERSBURG MD 20885 200413676 501C(3) 2574502 PATIENT ASSISTANCE CYSTIC FIBROSIS FOUNDATION THERAPEUTICS INC 6931 ARLINGTON ROAD SUITE 200 BETHESDA MD 20814 912059167 501C(3) 86230120 GENERAL SUPPORT 177 13 PATIENT ASSISTANCE PROGRAM 1016 1817226 FELLOWSHIPS 4 22339 PROCEDURES FOR MONITORING GRANT FUNDS INSIDE OF THE U.S. PART I, LINE 2 THE ORGANIZATION HAS PROCEDURES IN PLACE TO MONITOR THE SCIENTIFIC PROGRESS AND FINANCIAL ASPECTS OF GRANT FUNDS AWARDED TO ENTITIES INSIDE OF THE U.S. SPONSORED INSTITUTIONS ARE REQUIRED TO SUBMIT ANNUAL REPORTS OF EXPENDITURES AS WELL AS SCIENTIFIC PROGRESS REPORTS. SCIENTIFIC REPORTS ARE REVIEWED BY THE ORGANIZATION'S SCIENTIFIC STAFF TO ENSURE PROGRESS HAS BEEN ATTAINED. THE FINAL GRANT PAYMENT IS CONTINGENT UPON RECEIPT AND APPROVAL OF THE REPORT OF EXPENDITURES. REPORTS OF EXPENDITURES ARE REVIEWED AND APPROVED BY STAFF TO ENSURE INCURRED COSTS ARE APPROPRIATE. THE CF FOUNDATION'S INTERNAL AUDITORS CONDUCT AUDITS ON SAMPLES OF GRANT EXPENDITURE REPORTS BY EXAMINING SUPPORTING RECORDS FROM THE SPONSORED INSTITUTION. FOR GRANTS TO FOR-PROFIT ORGANIZATIONS THE CF FOUNDATION HAS PROCEDURES IN PLACE TO 1) SEE THAT THE GRANT FUNDS AWARDED ARE SPENT ONLY FOR THE PURPOSE FOR WHICH THE GRANT IS MADE AND 2) OBTAIN FULL AND COMPLETE REPORTS FROM THE GRANTEE ORGANIZATION ON HOW THE FUNDS ARE SPENT CONSISTENT WITH IRS GUIDELINES FOR EXPENDITURE RESPONSIBILITY. THE ORGANIZATION PERFORMS PRE-GRANT INQUIRIES DEALING WITH MATTERS SUCH AS THE IDENTITY, HISTORY, ACTIVITIES, AND PRACTICES OF THE GRANTEE TO GAIN REASONABLE ASSURANCE THAT THEY WILL USE THE GRANT FUNDS FOR THE PURPOSE FOR WHICH RECEIVED. ONCE A GRANT IS APPROVED, A WRITTEN AGREEMENT IS SIGNED BY BOTH THE ORGANIZATION AND THE GRANTEE THAT INCLUDES THE FOLLOWING AGREEMENTS: ANY AMOUNTS NOT USED FOR PURPOSES OF THE GRANT WILL BE REPAID, THE GRANTEE WILL KEEP RECORDS OF RECEIPTS AND EXPENDITURES AND MAKE THEM AVAILABLE TO THE GRANTOR AT REASONABLE TIMES, AND FUNDS CANNOT BE USED TO INFLUENCE LEGISLATION OR UNDERTAKE ANY NONEXEMPT ACTIVITY. SCHEDULE I, PART III CFF PERFORMS EXTENSIVE MONITORING OF PATIENT ASSISTANCE GRANTS IN ACCORDANCE WITH DHHS OIG REGULATIONS. FELLOWSHIPS ARE AWARDED TO INVESTIGATORS CONDUCTING RESEARCH RELATED TO GRANTS REPORTED IN PART II. SEE SUPPLEMENTAL INFORMATION FOR PART I, LINE 2 FOR PROCEDURES USED TO MONITOR THESE GRANTS. PRIOR TO MAKING FELLOWSHIP PAYMENTS, SUPPORTING DOCUMENTATION OF EXPENDITURES ARE REVIEWED AND APPROVED BY STAFF TO ENSURE INCURRED COSTS ARE APPROPRIATE. X X X X X X true true false false false false false true false PRESTON CAMPBELL MD PRESIDENT & CEO (AS OF 10/1) 284125 144690 189461 93316 23384 7565 131869 51623 29049 0 657888 297194 62015 30544 ROBERT BEALL PHD PRESIDENT & CEO (UNTIL 9/30) 412228 206690 276031 135956 886949 436584 67754 20043 21099 0 1664061 799273 215564 106173 C RICHARD MATTINGLY EXEC VP & COO 316273 0 273763 0 2128337 0 61263 0 7283 0 2786919 0 682855 0 VERA H TWIGG EXECUTIVE VP, CFO & SECRETARY 309865 0 167491 0 22316 0 78919 0 29049 0 607640 0 39236 0 MAUREEN FRASER VP OF FIELD MANAGEMENT 238124 0 36699 0 696 0 30611 0 14774 0 320904 0 0 0 AMY DEMARIA SR. VP OF COMMUNICATIONS 222528 0 52295 0 697 0 32060 0 8930 0 316510 0 0 0 CHRIS PENLAND PHD VICE PRESIDENT OF RESEARCH 110143 110143 28664 12284 704 0 27060 0 26244 0 192815 122427 0 0 DAVID MCLOUGHLIN SR. VP OF OPERATIONS 202987 86994 49249 21107 1242 0 32060 0 28289 0 313827 108101 0 0 WILLIAM SKACH MD SR. VP OF RESEARCH AFFAIRS 66816 200449 8071 29498 0 3557 0 20704 0 27789 74887 281997 0 0 MARY DWIGHT SVP POLICY & PATIENT ASSIST. 212091 0 52500 0 483 0 32060 0 34339 0 331473 0 0 0 BRUCE MARSHALL MD SR. VP OF CLINICAL AFFAIRS 116754 233509 13000 77062 0 3564 0 32060 0 0 129754 346195 0 0 PART I, LINE 4A - SEVERANCE PAYMENT MR. MATTINGLY RECEIVED SEVERANCE PAY UPON HIS RETIREMENT AS EXECUTIVE VICE PRESIDENT AND COO. HE HAD EXTRAORDINARY SUCCESSES ACHIEVED OVER HIS 37-YEAR TENURE. THE SEVERANCE WAS REVIEWED AND OPINED ON AS REASONABLE FROM A COMPETITIVE MARKET PERSPECTIVE BY THE BOARDS INDEPENDENT COMPENSATION CONSULTANTS AND REVIEWED IN DETAIL AND APPROVED (IN THE MANNER SPECIFIED IN IRS REGULATIONS) BY THE BOARD'S INDEPENDENT COMPENSATION COMMITTEE. ADDITIONAL INFORMATION, INCLUDING THE DOLLAR AMOUNT OF THE AWARD, IS PROVIDED IN THE ADDITIONAL INFORMATION FOR SCHEDULE J, PART II, BELOW. PART I, LINE 4B - SUPPLEMENTAL NONQUALIFIED RETIREMENT PLAN CERTAIN PERSONS LISTED IN FORM 990, PART VII, SECTION A PARTICIPATE IN A NONQUALIFIED DEFERRED COMPENSATION PLAN, UNDER WHICH INTERESTS ARE FORFEITED BY THE PARTICIPANT IF THE PARTICIPANT VOLUNTARILY TERMINATES EMPLOYMENT PRIOR TO THE DESIGNATED VESTING DATE. FURTHER INFORMATION ABOUT THE NONQUALIFIED DEFERRED COMPENSATION PLAN IN WHICH THOSE PERSONS PARTICIPATE, INCLUDING THE AMOUNT OF ANY PAYMENT MADE BY THE PLAN DURING THE REPORTING YEAR, IS PROVIDED IN THE ADDITIONAL INFORMATION FOR SCHEDULE J, PART II, BELOW. PART I, LINE 7: SEVERAL INDIVIDUALS LISTED IN FORM 990, PART VII, SECTION A, LINE 1A, (WHO ARE IDENTIFIED IN PART II, BELOW) PARTICIPATED IN THE FOUNDATION'S INCENTIVE COMPENSATION PLAN, FROM WHICH NON-FIXED PAYMENTS NOT DESCRIBED IN LINES 5 AND 6 WERE PAID. THE INCENTIVE COMPENSATION PLAN PAYS NON-FIXED PAYMENTS SUBJECT TO, AND BASED ON, THE ACHIEVEMENT OF ANNUAL PERFORMANCE OBJECTIVES ESTABLISHED IN ADVANCE BY THE COMPENSATION COMMITTEE OF THE BOARD OF TRUSTEES. IN ADDITION, THE INCENTIVE COMPENSATION PLAN PAYS NON-FIXED PAYMENTS THAT RELATE TO A THREE-YEAR PERFORMANCE PERIOD, SUBJECT TO, AND BASED ON, THE ACHIEVEMENT OF LONG-TERM PERFORMANCE OBJECTIVES ESTABLISHED IN ADVANCE BY THE COMPENSATION COMMITTEE OF THE BOARD. ANY FINANCIAL PERFORMANCE OBJECTIVES ESTABLISHED UNDER THE INCENTIVE COMPENSATION PLAN DO NOT INCLUDE PROGRAM-RELATED REVENUES (SUCH AS ROYALTY STREAMS, LUMP-SUM PAYMENTS, OTHER PROGRAM-RELATED INCOME, AND SALES PROCEEDS FROM TRANSFER OF THE FOREGOING TO THIRD PARTIES) RELATED TO THE DEVELOPMENT AND APPROVAL OF CF DRUGS. PART II: CYSTIC FIBROSIS FOUNDATION - HEADQUARTERS. EIN 13-1930701. (A) NAME: P. CAMPBELL, M.D.; (B)(I) BASE COMPENSATION: BASE SALARY - $284,125; (B)(II) BONUS & INCENTIVE COMPENSATION: ANNUAL INCENTIVE PLAN BENEFIT (1) $60,446, LONG-TERM INCENTIVE PLAN PAYMENT, WHICH WAS PREVIOUSLY REPORTED (6) - $62,015, LONG-TERM INCENTIVE PLAN TREATMENT AWARD (3) - $67,000; (B)(III) OTHER REPORTABLE COMPENSATION: OTHER BENEFITS INCLUDING TAXABLE GENERAL ORGANIZATION GROUP TERM LIFE INSURANCE PREMIUM - $11,324, SECTION 457(B) PLAN (5) - $12,060; (C) DEFERRED COMPENSATION: RETIREMENT BENEFIT (2) $27,060, LONG-TERM INCENTIVE PLAN BENEFIT (6) - $63,020, SERP (4) - $41,789; (D) NONTAXABLE BENEFITS: EMPLOYER CONTRIBUTION TO GENERAL ORGANIZATION HEALTH PLAN BENEFIT - $19,409, EMPLOYEE CONTRIBUTION TO FLEXIBLE SPENDING ACCOUNT BENEFIT - $2,550, EMPLOYEE CONTRIBUTION TO GENERAL ORGANIZATION HEALTH PLAN BENEFIT - $7,090; (F) COMPENSATION REPORTED IN PRIOR FORM 990 (9) - $62,015. CYSTIC FIBROSIS FOUNDATION THERAPEUTICS, INC. EIN 91-2059167. (A) NAME: P. CAMPBELL, M.D.; (B)(I) BASE COMPENSATION: BASE SALARY - $144,690; (B)(II) BONUS & INCENTIVE COMPENSATION: ANNUAL INCENTIVE PLAN BENEFIT (1) $29,772, LONG-TERM INCENTIVE PLAN PAYMENT, WHICH WAS PREVIOUSLY REPORTED (6) - $30,544, LONG-TERM INCENTIVE PLAN TREATMENT AWARD (3) - $33,000; (B)(III) OTHER REPORTABLE COMPENSATION: OTHER BENEFITS - $1,625, SECTION 457(B) PLAN (5) - $5,940; (C) DEFERRED COMPENSATION: LONG-TERM INCENTIVE PLAN BENEFIT (6) - $31,040, SERP (4) - $20,583; (D) NONTAXABLE BENEFITS: $0; (F) COMPENSATION REPORTED IN PRIOR FORM 990 (9) - $30,544. CYSTIC FIBROSIS FOUNDATION - HEADQUARTERS. EIN 13-1930701. (A) NAME: R. BEALL, PH.D.; (B)(I) BASE COMPENSATION: BASE SALARY - $396,148, 401(K) BONUS $16,080; (B)(II) BONUS & INCENTIVE COMPENSATION: ANNUAL INCENTIVE PLAN BENEFIT (1) $97,988, LONG-TERM INCENTIVE PLAN PAYMENT, WHICH WAS PREVIOUSLY REPORTED (6) - $84,244, LONG-TERM INCENTIVE PLAN TREATMENT AWARD (3) - $93,800; (B)(III) OTHER REPORTABLE COMPENSATION: HEALTH INSURANCE BENEFIT - $3,260, AUTOMOBILE ALLOWANCE - $4,824, OTHER BENEFITS - $8,925, ADDITIONAL AWARD (7) - $670,000, VESTED SERP ACCOUNT (8) $199,939; (C) DEFERRED COMPENSATION: RETIREMENT BENEFIT (2) $27,060, LONG-TERM INCENTIVE PLAN BENEFIT (6) - $40,694 ; (D) NONTAXABLE BENEFITS: EMPLOYER CONTRIBUTION TO GENERAL ORGANIZATION HEALTH PLAN BENEFIT - $13,683, EMPLOYEE CONTRIBUTION TO FLEXIBLE SPENDING ACCOUNT BENEFIT - $2,550, EMPLOYEE CONTRIBUTION TO GENERAL ORGANIZATION HEALTH PLAN BENEFIT - $4,866; (F) COMPENSATION REPORTED IN PRIOR FORM 990 (9) - $215,564. CYSTIC FIBROSIS FOUNDATION THERAPEUTICS, INC. EIN 91-2059167. (A) NAME: R. BEALL, PH.D.; (B)(I) BASE COMPENSATION: BASE SALARY - $198,770, 401(K) BONUS $7,920; (B)(II) BONUS & INCENTIVE COMPENSATION: ANNUAL INCENTIVE PLAN BENEFIT (1) $48,263, LONG-TERM INCENTIVE PLAN PAYMENT, WHICH WAS PREVIOUSLY REPORTED (6) - $41,493, LONG-TERM INCENTIVE PLAN TREATMENT AWARD (3) - $46,200; (B)(III) OTHER REPORTABLE COMPENSATION: HEALTH INSURANCE BENEFIT - $1,606, AUTOMOBILE ALLOWANCE - $2,376, OTHER BENEFITS - $4,125, ADDITIONAL AWARD (7) - $330,000; VESTED SERP ACCOUNT (8) - $98,477; (C) DEFERRED COMPENSATION: LONG-TERM INCENTIVE PLAN BENEFIT (6) - $20,043; (D) NONTAXABLE BENEFITS: $0; (F) COMPENSATION REPORTED IN PRIOR FORM 990 (9) - $106,173. CYSTIC FIBROSIS FOUNDATION - HEADQUARTERS. EIN 13-1930701. (A) NAME: R. MATTINGLY; (B)(I) BASE COMPENSATION: BASE SALARY - $316,273; (B)(II) BONUS & INCENTIVE COMPENSATION: ANNUAL INCENTIVE PLAN BENEFIT (1) $80,081, LONG-TERM INCENTIVE PLAN PAYMENT, WHICH WAS PREVIOUSLY REPORTED (6) - $93,682, LONG-TERM INCENTIVE PLAN TREATMENT AWARD (3) - $100,000; (B)(III) OTHER REPORTABLE COMPENSATION: SECTION 457(B) PLAN (5) - $18,000; OTHER BENEFITS INCLUDING TAXABLE GENERAL ORGANIZATION GROUP TERM LIFE INSURANCE PREMIUM - $4,384; SEVERANCE AWARD (10) - $1,142,587, VESTED SERP ACCOUNT (11) $963,366; (C) DEFERRED COMPENSATION: RETIREMENT BENEFIT (2) $27,060, LONG-TERM INCENTIVE PLAN BENEFIT (6) - $34,203; (D) NONTAXABLE BENEFITS: EMPLOYER CONTRIBUTION TO GENERAL ORGANIZATION HEALTH PLAN BENEFIT - $5,650, EMPLOYEE CONTRIBUTION TO FLEXIBLE SPENDING ACCOUNT BENEFIT - $658, EMPLOYEE CONTRIBUTION TO GENERAL ORGANIZATION HEALTH PLAN BENEFIT - $975; (F) COMPENSATION REPORTED IN PRIOR FORM 990 (9) - $682,855. CYSTIC FIBROSIS FOUNDATION - HEADQUARTERS. EIN 13-1930701. (A) NAME: V. TWIGG; (B)(I) BASE COMPENSATION: BASE SALARY - $309,865; (B)(II) BONUS & INCENTIVE COMPENSATION: ANNUAL INCENTIVE PLAN BENEFIT (1) $58,255, LONG-TERM INCENTIVE PLAN PAYMENT, WHICH WAS PREVIOUSLY REPORTED (6) - $39,236, LONG-TERM INCENTIVE PLAN TREATMENT AWARD (3) - $70,000; (B)(III) OTHER REPORTABLE COMPENSATION: OTHER BENEFITS INCLUDING TAXABLE GENERAL ORGANIZATION GROUP TERM LIFE INSURANCE PREMIUM - $4,316, SECTION 457(B) PLAN (5) - $18,000; (C) DEFERRED COMPENSATION: RETIREMENT BENEFIT (2) $27,060, LONG-TERM INCENTIVE PLAN BENEFIT (6) - $48,153, SERP (4) - $3,706; (D) NONTAXABLE BENEFITS: EMPLOYER CONTRIBUTION TO GENERAL ORGANIZATION HEALTH PLAN BENEFIT - $19,409, EMPLOYEE CONTRIBUTION TO FLEXIBLE SPENDING ACCOUNT BENEFIT - $2,550, EMPLOYEE CONTRIBUTION TO GENERAL ORGANIZATION HEALTH PLAN BENEFIT - $7,090; (F) COMPENSATION REPORTED IN PRIOR FORM 990 (9) - $39,236 (1) THIS IS AN AWARD SUBJECT TO, AND BASED ON, ACHIEVEMENT OF ANNUAL PERFORMANCE STANDARDS ESTABLISHED IN ADVANCE BY THE COMPENSATION COMMITTEE OF THE BOARD. ANY FINANCIAL PERFORMANCE OBJECTIVES ESTABLISHED UNDER THE INCENTIVE COMPENSATION PLAN DO NOT INCLUDE PROGRAM-RELATED REVENUES (SUCH AS ROYALTY STREAMS, LUMP-SUM PAYMENTS, OTHER PROGRAM-RELATED INCOME, AND SALES PROCEEDS FROM TRANSFER OF THE FOREGOING TO THIRD PARTIES) RELATED TO THE DEVELOPMENT AND APPROVAL OF CF DRUGS. (2) THIS IS THE EMPLOYER CONTRIBUTION MADE UNDER THE CYSTIC FIBROSIS FOUNDATION 401(K) PLAN FOR THE 2015 PLAN YEAR. (3) THIS IS AN AWARD UNDER A PLAN THAT PAYS A SPECIFIED DOLLAR AMOUNT ONLY IF AND WHEN THE FDA APPROVES CERTAIN PRE-SPECIFIED TYPES OF THERAPIES. IN THE EVENT THE EMPLOYEE TERMINATES EMPLOYMENT PRIOR TO FDA APPROVAL OF THE SPECIFIED THERAPY TYPE AND PAYMENT OF THE AWARD, THE EMPLOYEE WILL FORFEIT HIS OR HER RIGHT TO RECEIVE PAYMENT, UNLESS TERMINATION IS DUE TO RETIREMENT OR DISABILITY. THE PLAN WILL TERMINATE ON DECEMBER 31, 2018 UNLESS THE FOUNDATION DETERMINES TO EXTEND THE PLAN. PART II - CONTINUED (4) A. THIS IS AN UNVESTED EMPLOYER CONTRIBUTION TO THE SERP. B. SERP INTERESTS ARE FORFEITED BY THE PARTICIPANT IF THE PARTICIPANT VOLUNTARILY TERMINATES EMPLOYMENT PRIOR TO ATTAINING THE VESTING DATE DESIGNATED BY CFF (WHICH IS EITHER A SPECIFIED AGE OR DATE, DEPENDING ON THE PARTICIPANT). C. SERP INTERESTS ARE HELD IN A TRUST SUBJECT TO THE CLAIMS OF CFF'S BANKRUPTCY CREDITORS. IN THE EVENT OF A CFF BANKRUPTCY, PARTICIPANTS WOULD BECOME GENERAL UNSECURED CREDITORS OF CFF. D. THE SERP IS A NONQUALIFIED DEFERRED COMPENSATION PLAN. THIS MEANS THAT PARTICIPANTS DO NOT RECEIVE THE TAX BENEFITS AVAILABLE TO PARTICIPANTS IN TAX QUALIFIED RETIREMENT PLANS. FOR EXAMPLE, UNDER CURRENT LAW, INTERESTS UNDER SERPS ARE REPORTABLE AS TAXABLE COMPENSATION WHEN THEY BECOME VESTED, EVEN IF THOSE AMOUNTS ARE NOT YET PAYABLE TO THE PARTICIPANT (AND EVEN IF THOSE AMOUNTS ARE NEVER PAID TO THE PARTICIPANT). E. THE SERP'S DESIGN WAS REVIEWED AND OPINED UPON AS REASONABLE BY AN INDEPENDENT COMPENSATION CONSULTANT. SERP CONTRIBUTION AMOUNTS WERE DETERMINED BY AN INDEPENDENT ACTUARY. F. CFF RETAINS THE RIGHT TO AMEND OR TERMINATE THE SERP AT ANY TIME. (5) A. THIS IS A VESTED CONTRIBUTION TO THE 457(B) PLAN FOR THE REPORTING PERIOD. B. IN THE EVENT OF A CFF BANKRUPTCY, PARTICIPANTS ARE GENERAL UNSECURED CREDITORS OF CFF. C. DISTRIBUTIONS FROM THE 457(B) PLAN MAY NOT BE ROLLED-OVER TO AN IRA OR QUALIFIED PLAN (BUT MAY ONLY BE ROLLED-OVER TO ANOTHER 457(B) PLAN). D. THE 457(B) PLAN'S DESIGN WAS REVIEWED AND OPINED UPON AS REASONABLE BY AN INDEPENDENT COMPENSATION CONSULTANT. AN INDEPENDENT ACTUARY DEVELOPED THE CONTRIBUTION FORMULA PURSUANT TO WHICH 457(B) CONTRIBUTION AMOUNTS ARE DETERMINED. CONTRIBUTIONS TO THE 457(B) PLAN ARE SUBJECT TO ANNUAL IRS LIMITS (CURRENTLY $18,000). E. CFF RETAINS THE RIGHT TO AMEND OR TERMINATE THE 457(B) PLAN AT ANY TIME. (6) THIS PLAN PROVIDES FOR AWARDS THAT RELATE TO A THREE-YEAR PERFORMANCE PERIOD, SUBJECT TO, AND BASED ON, ACHIEVEMENT OF PERFORMANCE OBJECTIVES ESTABLISHED IN ADVANCE BY THE COMPENSATION COMMITTEE OF THE BOARD. ANY FINANCIAL PERFORMANCE OBJECTIVES ESTABLISHED UNDER THE INCENTIVE COMPENSATION PLAN DO NOT INCLUDE PROGRAM-RELATED REVENUES (SUCH AS ROYALTY STREAMS, LUMP-SUM PAYMENTS, OTHER PROGRAM-RELATED INCOME, AND SALES PROCEEDS FROM TRANSFER OF THE FOREGOING TO THIRD PARTIES) RELATED TO THE DEVELOPMENT AND APPROVAL OF CF DRUGS. EACH YEAR, A NEW THREE-YEAR PERFORMANCE PERIOD BEGINS. AS REQUIRED BY THE FORM 990 INSTRUCTIONS, THE AMOUNTS REPORTED IN COLUMN (C) ON THIS FORM 990 REFLECT AN ESTIMATE OF THE PORTION OF EACH AWARD THAT THE EXECUTIVE ACCRUED UNDER THE PLAN FOR PERFORMANCE IN 2015 (I.E., WITH RESPECT TO THE 2013-2015, 2014-2016 AND THE 2015-2017 PERFORMANCE PERIODS), BUT THE AMOUNTS REPORTED IN COLUMN (C) HAVE NOT BEEN EARNED, AWARDED OR PAID UNDER THE PLAN. THE INDIVIDUAL MUST BE EMPLOYED ON 12/31/15, 12/31/16 AND 12/31/17 TO BE ELIGIBLE TO RECEIVE FULL PAYMENT OF THE AWARD FOR THE 2013-2015, 2014-2016, AND THE 2015-2017 PERFORMANCE PERIODS, RESPECTIVELY. THE AWARD RELATING TO THE 3-YEAR PERFORMANCE PERIOD ENDING 12/31/14 WAS PAID IN 2015, AND IS PROPERLY REPORTED AGAIN (AS COMPENSATION IN COLUMN (B)(II)) ON THIS FORM 990 (EVEN THOUGH AN ESTIMATE OF THE PORTION OF THIS AWARD THAT THE EXECUTIVE ACCRUED UNDER THE PLAN FOR PERFORMANCE IN 2014, 2013 AND 2012 WAS REPORTED IN COLUMN (C) OF THE FORM 990 FOR EACH OF THOSE YEARS). (7) THIS WAS AN AWARD PAID TO DR. BEALL UPON HIS RETIREMENT AS CEO OF CFF, FULFILLING THE TERMS OF HIS CONTRACT AND RECOGNIZING THE SIGNIFICANT CONTRIBUTIONS AND YEARS OF SERVICE (21-YEARS AS CEO AND 14-YEARS AS EXECUTIVE VICE PRESIDENT). THE AWARD WAS PAID BY CYSTIC FIBROSIS FOUNDATION THERAPEUTICS, INC. ("CFFT"), A RELATED ORGANIZATION, WITH RESPECT TO HIS SERVICE AS AN OFFICER OF CFFT, AND BY CFF WITH RESPECT TO HIS SERVICE AS AN OFFICER OF CFF. THE AWARD WAS REVIEWED AND OPINED ON AS REASONABLE AND MARKET-COMPETITIVE BY THE CFF BOARDS INDEPENDENT COMPENSATION CONSULTANTS AND REVIEWED IN DETAIL AND APPROVED (IN THE MANNER SPECIFIED IN IRS REGULATIONS) BY THE CFF BOARD'S INDEPENDENT COMPENSATION COMMITTEE. (8) THIS AMOUNT BECAME VESTED AND TAXABLE IN 2015 UNDER THE SERP DESCRIBED IN FOOTNOTE (4) ABOVE, UNDER WHICH DR. BEALL RECEIVED CONTRIBUTIONS FROM 2013-2015. AS REQUIRED, THE CONTRIBUTIONS TO THIS SERP THAT GENERATED THE AMOUNT REPORTED IN COLUMN B(III) OF THIS FORM 990 WERE REPORTED ON PRIOR YEARS' FORM 990S IN COLUMN (C). (9) THIS AMOUNT, ALTHOUGH ALSO INCLUDED IN COLUMN B OF THIS FORM 990, HAS ALREADY BEEN REPORTED AS COMPENSATION ON PRIOR YEARS' FORM 990S, AND THEREFORE (AS REQUIRED BY THE INSTRUCTIONS) IS DOUBLE-REPORTED HERE. (10) THIS WAS SEVERANCE PAID TO MR. MATTINGLY BY CFF UPON HIS RETIREMENT AS EXECUTIVE VICE PRESIDENT AND COO OF CFF, AFTER A 37-YEAR TENURE. THE AWARD WAS REVIEWED AND OPINED ON AS REASONABLE FROM A MARKET-COMPETITIVE STANDPOINT BY THE CFF BOARDS INDEPENDENT COMPENSATION CONSULTANTS AND REVIEWED IN DETAIL AND APPROVED (IN THE MANNER SPECIFIED IN IRS REGULATIONS) BY THE CFF BOARD'S INDEPENDENT COMPENSATION COMMITTEE. (11) THIS AMOUNT BECAME VESTED AND TAXABLE IN 2015 UNDER THE SERP DESCRIBED IN FOOTNOTE (4) ABOVE, UNDER WHICH MR. MATTINGLY RECEIVED CONTRIBUTIONS FROM 2007-2015. AS REQUIRED, THE CONTRIBUTIONS TO THIS SERP THAT GENERATED THE AMOUNT REPORTED IN COLUMN B(III) OF THIS FORM 990 WERE REPORTED ON PRIOR YEARS' FORM 990S IN COLUMN (C). SIGNIFICANT CHANGES TO GOVERNING DOCUMENTS PART VI, SECTION A, LINE 4 DURING 2015, THE CYSTIC FIBROSIS FOUNDATION AMENDED ITS BYLAWS TO 1) ADD TWO VOTING "SPECIAL MEMBER" POSITIONS ON THE BOARD FOR INDIVIDUALS WHO HAVE CERTAIN SPECIALIZED SKILLS AND 2) AUTHORIZE THE CHAIRMAN TO DESIGNATE A NON-VOTING ADVISOR(S) TO ANY COMMITTEE. REVIEW OF 990 BY GOVERNING BODY PART VI, SECTION B, LINE 12C The Cystic Fibrosis Foundation Board of Trustees receives a draft of the Form 990 prior to its being filed, with sufficient time for review and comment allowed. The Compensation Committee of the Board of Trustees and the Foundations ERISA attorneys review the executive compensation sections of the Form 990. The Audit Committee of the Board of Trustees also reviews the Form 990 as part of its chartered responsibilities. In all cases the Cystic Fibrosis Foundation Board of Trustees receives a complete copy of the final Form 990 before it is filed. CONFLICT OF INTEREST MONITORING PART VI, SECTION B, LINE 12C A CONFLICT OF INTEREST DISCLOSURE STATEMENT IS COMPLETED ANNUALLY BY EACH BOARD MEMBER, OFFICER, AND KEY EMPLOYEE. DISCLOSURES PROVIDED ARE REPORTED TO THE NOMINATING AND GOVERNANCE COMMITTEE, THE AUDIT COMMITTEE AND THE BOARD OF TRUSTEES. AS REQUIRED WITHIN THE BYLAWS, ANY POTENTIAL CONFLICTS OF INTEREST MUST BE REPORTED TO THE BOARD AS THEY ARISE. WHEN ANY MATTER IS DEEMED A POTENTIAL CONFLICT OF INTEREST AND REQUIRES ACTION BY THE BOARD OF TRUSTEES, THE INTERESTED TRUSTEE OR OFFICER IS REQUIRED TO RETIRE FROM THE ROOM IN WHICH THE BOARD OR ITS COMMITTEE IS MEETING, MAY NOT PARTICIPATE IN THE FINAL DELIBERATION OF THE MATTER, AND MAY NOT VOTE ON THE MATTER. THE ORGANIZATION ENFORCED THE POLICY DURING 2015 AND HAD NO CONFLICTS OF INTEREST AS DEFINED BY THE POLICY. DETERMINING COMPENSATION PART VI, SECTION B, LINE 15A AND 15B THE TOTAL COMPENSATION OF EXECUTIVES AT THE CYSTIC FIBROSIS FOUNDATION IS SPECIFICALLY DESIGNED TO ATTRACT AND RETAIN THE HIGHEST QUALIFIED EXECUTIVE AND MEDICAL TALENT TO FULFILL THE CRITICALLY IMPORTANT MISSION OF CURING CYSTIC FIBROSIS AND PROVIDING ALL PEOPLE WITH THE DISEASE THE OPPORTUNITY TO LEAD FULL, PRODUCTIVE LIVES. THE INDEPENDENT COMPENSATION COMMITTEE OF THE CF FOUNDATION'S BOARD OF TRUSTEES FOLLOWS THE PROCESS DESCRIBED IN THE IRS INTERMEDIATE SANCTIONS RULES WHEN DETERMINING COMPENSATION. SPECIFICALLY, THE COMMITTEE: (1) IS COMPOSED ENTIRELY OF NON-EMPLOYEE VOLUNTEER DIRECTORS WHO HAVE NO FAMILIAL, BUSINESS OR SIGNIFICANT PERSONAL RELATIONSHIPS WITH THE CF FOUNDATION OR ITS EXECUTIVES. (2) ASSESSES THE SHORT-TERM AND LONG-TERM CONTRIBUTION AND PERFORMANCE OF EACH EXECUTIVE IN MEETING VERY DEFINITIVE AND QUANTIFIABLE OBJECTIVES FOCUSED ON THE CF FOUNDATION'S MISSION SUCCESS. (3) ENGAGES AN INDEPENDENT COMPENSATION CONSULTING FIRM TO COMPILE APPROPRIATE COMPARABILITY DATA (INCLUDING COMPENSATION MARKET INFORMATION FOR PEERS WITH WHOM THE CF FOUNDATION COMPETES FOR EXECUTIVE TALENT) FOR COMMITTEE RELIANCE. THE COMMITTEE MEETS WITH REPRESENTATIVES OF THE CONSULTING FIRM TO REVIEW THIS DATA IN DETAIL. (4) REVIEWS ALL ELEMENTS OF EACH EXECUTIVES TOTAL COMPENSATION, INCLUDING BUT NOT LIMITED TO BASE SALARY, BONUSES, PERQUISITES, FRINGE BENEFITS, AND INCENTIVE AND DEFERRED COMPENSATION ARRANGEMENTS. UPON THE EXECUTIVES HIRE, AND AT EACH POINT IN TIME THEREAFTER AT WHICH A NEW OR REVISED COMPENSATION ARRANGEMENT IS UNDER CONSIDERATION WITH RESPECT TO THE EXECUTIVE, THE COMMITTEE MEETS WITH ITS INDEPENDENT COMPENSATION CONSULTING FIRM BEFORE THE ARRANGEMENT IS IMPLEMENTED TO EVALUATE THE REASONABLENESS OF THE ARRANGEMENT BY COMPARING BOTH THE ARRANGEMENT ITSELF AND THE EXECUTIVES ENTIRE COMPENSATION PACKAGE TO COMPENSATION PACKAGES PAID BY SIMILARLY SITUATED ORGANIZATIONS FOR FUNCTIONALLY COMPARABLE POSITIONS. (5) DOCUMENTS, CONCURRENTLY WITH ITS DETERMINATION, THE BASIS FOR ITS DETERMINATION IN THE MINUTES OF ITS MEETING. THESE MINUTES ARE REVIEWED, REVISED IF NECESSARY AND APPROVED AT THE FOLLOWING MEETING OF THE COMMITTEE. (6) OBTAINS A WRITTEN LEGAL OPINION CONCERNING THE COMMITTEES COMPLIANCE WITH THE IRS INTERMEDIATE SANCTIONS RULES. THE PROCESS DESCRIBED ABOVE WAS USED TO ESTABLISH COMPENSATION FOR THE FOLLOWING OFFICERS OR KEY EMPLOYEES OF THE ORGANIZATION: PRESIDENT & CEO EXECUTIVE VICE PRESIDENT & COO EXECUTIVE VICE PRESIDENT, CFO AND SECRETARY VICE PRESIDENT OF FIELD MANAGEMENT SR. VICE PRESIDENT OF OPERATIONS THE PROCESS WAS LAST UNDERTAKEN IN 2014, WITH THE EXCEPTION OF THAT FOR THE CEO POSITION WHICH WAS LAST CONDUCTED IN 2015. PUBLIC INSPECTION PART VI, SECTION C, LINE 19 FORMS 1023 AND 990-T FOR THE ORGANIZATION WERE AVAILABLE ON ITS WEBSITE, CFF.ORG AND THE ORGANIZATION'S WEBSITE PROVIDED A DIRECT LINK TO ITS FORM 990 ON GUIDESTAR.ORG. THE FOUNDATIONS GOVERNING DOCUMENTS (BYLAWS AND ARTICLES OF INCORPORATION) WERE AVAILABLE UPON REQUEST BY CONTACTING THE NATIONAL OFFICE OF THE CYSTIC FIBROSIS FOUNDATION IN WRITING OR BY PHONE. INFORMATION ON HOW TO OBTAIN THE GOVERNING DOCUMENTS WAS AVAILABLE ON THE FOUNDATIONS WEBSITE, WWW.CFF.ORG, DURING 2015. THE BOARD AND OFFICER CONFLICT OF INTEREST POLICY AND THE AUDITED FINANCIAL STATEMENTS WERE AVAILABLE ON THE FOUNDATIONS WEBSITE, WWW.CFF.ORG, DURING 2015. PART VII, SECTION A HOURS FOR RELATED ORGANIZATIONS THE FOLLOWING IS AN ESTIMATE OF THE AVERAGE HOURS PER WEEK DEVOTED TO RELATED ORGANIZATIONS BY THE OFFICERS: CYSTIC FIBROSIS CYSTIC FIBROSIS FOUNDATION GROUP FOUNDATION RETURN FOR THE TITLE THERAPEUTICS, INC CHAPTERS ----- ------------- ---------------------- PRESIDENT & CEO 20 4 EXEC. VICE PRESIDENT & COO 5 5 EXEC. VICE PRESIDENT & CFO 5 5 FORM 990, PART IX ON THE PRIOR YEAR RETURN, EXPENSES THAT TRULY BELONGED ON LINES 11G-14 WERE TRANSPOSED AND LISTED ON LINES 12-15 IN ERROR. THE 2015 FORM 990 ACCURATELY REFLECTS THE CLASSIFICATION OF THESE EXPENSES. FORM 990, PART X, LINE 27 UNRESTRICTED NET ASSETS BOARD DESIGNATED THE FOUNDATIONS UNRESTRICTED NET ASSETS TOTALED $3,664,492,149 AS OF DECEMBER 31, 2015. OF THIS AMOUNT, THE FOUNDATIONS BOARD OF TRUSTEES HAS DESIGNATED $3,300,000,000 TO BE SPENT IN SUPPORT OF THE MISSION OF THE FOUNDATION OVER THE LONG TERM. CYSTIC FIBROSIS PATIENT ASSISTANCE FDN 6931 ARLINGTON RD BETHESDA MD 20814 900350985 PATIENT ASST DE 100000 82068 CFF-HQ CYSTIC FIBROSIS FOUNDATION THERAPEUTICS 6931 ARLINGTON RD BETHESDA MD 20814 912059167 RESEARCH MD 501(c)(3) 11A CFF-HQ true CYSTIC FIBROSIS FOUNDATION GROUP 6931 ARLINGTON RD BETHESDA MD 20814 136161105 EDUCATION DE 501(c)(3) 7 CFF-HQ true false true true false false false false false false false false false false true true false false false false CYSTIC FIBROSIS FOUNDATION THERAPEUTICS B 86230120 FMV CYSTIC FIBROSIS FOUNDATION GROUP C 86659882 FMV CYSTIC FIBROSIS FOUNDATION THERAPEUTICS N 1426717 COST CYSTIC FIBROSIS FOUNDATION THERAPEUTICS O 4638063 COST CYSTIC FIBROSIS FOUNDATION GROUP N 246324 COST CYSTIC FIBROSIS FOUNDATION GROUP O 10336088 COST