NATIONAL FRAGILE X FOUNDATION
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Cite this
Plain text NATIONAL FRAGILE X FOUNDATION. furp.org, nonprofit organization profile, tax years 2012–2025. https://furp.org/org/national-fragile-x-foundation-840960471. Retrieved 2026-11-07.
APA furp.org. (n.d.). NATIONAL FRAGILE X FOUNDATION [Nonprofit organization profile; tax years 2012–2025]. Retrieved November 7, 2026, from https://furp.org/org/national-fragile-x-foundation-840960471
MLA “NATIONAL FRAGILE X FOUNDATION.” furp.org, tax years 2012–2025, https://furp.org/org/national-fragile-x-foundation-840960471. Accessed 7 Nov. 2026.
Retrieved 2026-11-07; covers tax years 2012–2025. Data: furp.org (index © the FURP Alliance; the records are public domain).
2025 · Form 990 · revenue $2.3M · expenses $2.2M · assets $4.0M
- EIN
- 84-0960471
- Address
- 1012 14TH ST NW STE 500, WASHINGTON, DC 20005-3406
- Website
- WWW.FRAGILEX.ORG
- NTEE code
- H20 Birth Defects, Genetic Diseases Research (Medical Research) published (IRS Business Master File)
- Exempt type
- 501(c)(3): charitable, religious, educational, scientific or literary (corporation)
- Ruling date
- August 1983 (when the IRS recognized its exemption)
- IRS status
- Exempt (unconditional) (IRS Business Master File) IRS data ↗
- Tax-deductible donations
- Yes: listed in IRS Publication 78 (public charity) Pub 78 ↗
- Foundation status
- Public charity, 509(a)(2)
- Cross-check
- ProPublica Nonprofit Explorer
Mission
THE NATIONAL FRAGILE X FOUNDATION SERVES THE ENTIRE FRAGILE X COMMUNITY TO LIVE THEIR BEST LIVES BY PROVIDING THE KNOWLEDGE, RESOURCES, AND TOOLS UNTIL, AND EVEN AFTER, MORE EFFECTIVE TREATMENTS AND A CURE ARE ACHIEVED.
Each tax year counts once: when a return was amended, only the latest return for that period is used below (superseded returns stay listed, greyed, under Finances).
People paid by the organization
7 people paid across every filing: current people first, then by total pay from this organization. Organizations counts every nonprofit each person appears on.
| Name | Latest title | Years | Latest year pay | Total pay from here | Organizations |
|---|---|---|---|---|---|
| Hilary Rosselot | EXECUTIVE DIRECTOR | 2022-2025 | $160,298 | $620,676 | 1 |
| Kristin Bogart | SENIOR DIRECTOR, DEVELOPMENT & COMMUNICATION | 2022-2025 | $124,204 | $378,704 | 1 |
| Linda Sorensen (former) | EXECUTIVE DIRECTOR | 2012-2021 | $164,226 | $1,254,683 | 1 |
| Tony Ferlenda (former) | CEO | 2015-2017 | $185,737 | $468,508 | 1 |
| Robert Miller (former) | Former Exec Director | 2012-2014 | $58,692 | $291,798 | 1 |
| Jeffrey Cohen (former) | Exec Director | 2013 | $102,080 | $102,080 | 1 |
| Linda Sorenson (former) | EXECUTIVE DIRECTOR | 2022 | $92,134 | $92,134 | 1 |
Officers and directors, no compensation reported
58 people listed on the returns with $0 (or no amount) in every compensation column: current people first. Hours are as filed on the latest return each person appears on.
| Name | Latest title | Years | Hrs/wk (latest) | Compensation | Organizations |
|---|---|---|---|---|---|
| Laurie Bridges | BOARD MEMBER | 2020-2025 | 0 | $0 reported | 1 |
| Kara Frech | BOARD VICE-PRESIDENT | 2021-2025 | 0 | $0 reported | 1 |
| Denny Haugen | BOARD MEMBER | 2022-2025 | 0 | $0 reported | 1 |
| Tamaro Hudson | BOARD MEMBER | 2023-2025 | 0 | $0 reported | 1 |
| David Tillman | BOARD MEMBER | 2023-2025 | 0 | $0 reported | 1 |
| Susan Howell | BOARD MEMBER | 2023-2025 | 0 | $0 reported | 1 |
| Jordan Crody | BOARD TREASURER | 2025 | 0 | $0 reported | 1 |
| Peggy Flanigan | BOARD SECRETARY | 2025 | 0 | $0 reported | 1 |
| Jacquelyn Colemna | BOARD MEMBER | 2025 | 0 | $0 reported | 1 |
| Jill Dolan | BOARD MEMBER | 2025 | 0 | $0 reported | 1 |
| Michele Kaplan | BOARD MEMBER | 2025 | 0 | $0 reported | 1 |
| Rebecca Shaffer | BOARD MEMBER | 2025 | 0 | $0 reported | 1 |
| Kerry Stedke | BOARD MEMBER | 2025 | 0 | $0 reported | 1 |
| Vicki Wilkens | BOARD MEMBER | 2025 | 0 | $0 reported | 1 |
| Reymundo Lazano | BOARD MEMBER | 2025 | 0 | $0 reported | 1 |
| Jordan Crotty (former) | BOARD TREASURER | 2024 | 2 | $0 reported | 1 |
| Abby Gaunt (former) | BOARD SECRETARY | 2018-2024 | 2 | $0 reported | 1 |
| Reymundo Lozano (former) | BOARD MEMBER | 2019-2024 | 1 | $0 reported | 1 |
| Rebecca Schaeffer (former) | BOARD MEMBER | 2022-2024 | 1 | $0 reported | 1 |
| Shari Silver (former) | BOARD MEMBER | 2021-2024 | 1 | $0 reported | 1 |
| Victoria Wilkins (former) | BOARD MEMBER | 2022-2024 | 1 | $0 reported | 1 |
| Jacquelyn Coleman (former) | BOARD MEMBER | 2023-2024 | 1 | $0 reported | 1 |
| Peggy Flanagan (former) | BOARD MEMBER | 2023-2024 | 1 | $0 reported | 1 |
| Anthony Fasciano (former) | BOARD TREASURER | 2021-2023 | 1 | $0 reported | 1 |
| Abby Gaurnt (former) | BOARD SECRETARY | 2023 | 2 | $0 reported | 1 |
| Joe Garera (former) | BOARD MEMBER | 2018-2023 | 1 | $0 reported | 1 |
| Jed Seifert (former) | BOARD MEMBER | 2021-2023 | 1 | $0 reported | 1 |
| Victoria Wilkin (former) | BOARD MEMBER | 2023 | 1 | $0 reported | 1 |
| Emily Mack (former) | BOARD PRESIDENT | 2016-2022 | 2 | $0 reported | 1 |
| Evan Davis (former) | BOARD VICE-PRESIDENT | 2015-2022 | 2 | $0 reported | 1 |
| Rajat Sarup (former) | BOARD TREASURER | 2016-2022 | 2 | $0 reported | 1 |
| Emily Borg (former) | DIRECTOR | 2018-2021 | 1 | $0 reported | 1 |
| Larry Krantz (former) | DIRECTOR | 2015-2021 | 1 | $0 reported | 1 |
| Charles Mitchell (former) | DIRECTOR | 2018-2021 | 1 | $0 reported | 1 |
| Howard Pollock (former) | DIRECTOR | 2015-2021 | 1 | $0 reported | 1 |
| Stephanie Sherman (former) | DIRECTOR | 2015-2021 | 1 | $0 reported | 1 |
| Paula Fasciano (former) | DIRECTOR | 2014-2020 | 1 | $0 reported | 1 |
| Brenda Finucane (former) | DIRECTOR | 2014-2020 | 1 | $0 reported | 1 |
| Jay Souder (former) | PAST PRESIDENT | 2013-2020 | 1 | $0 reported | 1 |
| Don Schalk (former) | DIRECTOR | 2016-2018 | 1 | $0 reported | 1 |
| Brian Silver (former) | PAST PRESIDENT | 2013-2018 | 1 | $0 reported | 1 |
| Carolyn Tomberlin (former) | DIRECTOR | 2014-2018 | 1 | $0 reported | 1 |
| Mike Makris (former) | Treasurer | 2012-2017 | 2 | $0 reported | 1 |
| Brenda Finucane MS LGC (former) | Board Member | 2016-2017 | 1 | $0 reported | 1 |
| Mark Gershenson (former) | Board Member | 2015-2017 | 1 | $0 reported | 1 |
| Rick Reynolds (former) | Board Member | 2014-2017 | 1 | $0 reported | 1 |
| Jimi Grande (former) | Board Member | 2012-2016 | 2 | $0 reported | 1 |
| Jennifer Silverton (former) | President | 2012-2015 | 4 | $0 reported | 1 |
| David Justus (former) | Treasurer | 2012-2015 | 4 | $0 reported | 1 |
| Mark Dissette (former) | Director | 2012-2015 | 2 | $0 reported | 1 |
| Al Blount (former) | Director | 2012-2014 | 2 | $0 reported | 1 |
| Brad Whitus (former) | President | 2012-2013 | 4 | $0 reported | 1 |
| Joey Christoff (former) | Secretary | 2012-2013 | 4 | $0 reported | 1 |
| Michael Kelley (former) | Past President | 2012-2013 | 4 | $0 reported | 1 |
| Ted Coutilish (former) | Director | 2012-2013 | 2 | $0 reported | 1 |
| Juan-Carlos Planas (former) | Director | 2012-2013 | 2 | $0 reported | 1 |
| Katherine Roeders (former) | Director | 2012 | 2 | $0 reported | 1 |
| Elizabeth Berry-Kravis MD Phd (former) | Director | 2012 | 2 | $0 reported | 1 |
People by year
2025 · 17 people listed · 2 paid, $285K · 8 employees · 0 volunteers
| Name | Title | Hrs/wk | From org | From related | Other | Total | Orgs |
|---|---|---|---|---|---|---|---|
| HILARY ROSSELOT | EXECUTIVE DIRECTOR | 40 | $158,158 | $0 | $2,140 | $160,298 | 1 |
| KRISTIN BOGART | SENIOR DIRECTOR, DEVELOPMENT & COMMUNICATION | 40 | $109,382 | $0 | $14,822 | $124,204 | 1 |
| JORDAN CRODY | BOARD TREASURER | 0 | $0 | $0 | $0 | $0 | 1 |
| PEGGY FLANIGAN | BOARD SECRETARY | 0 | $0 | $0 | $0 | $0 | 1 |
| JACQUELYN COLEMNA | BOARD MEMBER | 0 | $0 | $0 | $0 | $0 | 1 |
| JILL DOLAN | BOARD MEMBER | 0 | $0 | $0 | $0 | $0 | 1 |
| DENNY HAUGEN | BOARD MEMBER | 0 | $0 | $0 | $0 | $0 | 1 |
| SUSAN HOWELL | BOARD MEMBER | 0 | $0 | $0 | $0 | $0 | 1 |
| TAMARO HUDSON | BOARD MEMBER | 0 | $0 | $0 | $0 | $0 | 1 |
| MICHELE KAPLAN | BOARD MEMBER | 0 | $0 | $0 | $0 | $0 | 1 |
| REBECCA SHAFFER | BOARD MEMBER | 0 | $0 | $0 | $0 | $0 | 1 |
| KERRY STEDKE | BOARD MEMBER | 0 | $0 | $0 | $0 | $0 | 1 |
| DAVID TILLMAN | BOARD MEMBER | 0 | $0 | $0 | $0 | $0 | 1 |
| VICKI WILKENS | BOARD MEMBER | 0 | $0 | $0 | $0 | $0 | 1 |
| REYMUNDO LAZANO | BOARD MEMBER | 0 | $0 | $0 | $0 | $0 | 1 |
| LAURIE BRIDGES | BOARD MEMBER | 0 | $0 | $0 | $0 | $0 | 1 |
| KARA FRECH | BOARD VICE-PRESIDENT | 0 | $0 | $0 | $0 | $0 | 1 |
2024 · 16 people listed · 2 paid, $275K · 0 employees · 0 volunteers
| Name | Title | Hrs/wk | From org | From related | Other | Total | Orgs |
|---|---|---|---|---|---|---|---|
| HILARY ROSSELOT | EXECUTIVE DIRECTOR | 40 | $143,381 | $0 | $0 | $143,381 | 1 |
| KRISTIN BOGART | SENIOR DIRECTOR, DEVELOPMENT & COMMUNICATION | 40 | $117,823 | $0 | $13,424 | $131,247 | 1 |
| LAURIE BRIDGES | BOARD PRESIDENT | 2 | $0 | $0 | $0 | $0 | 1 |
| KARA FRECH | BOARD VICE-PRESIDENT | 2 | $0 | $0 | $0 | $0 | 1 |
| JORDAN CROTTY | BOARD TREASURER | 2 | $0 | $0 | $0 | $0 | 1 |
| ABBY GAUNT | BOARD SECRETARY | 2 | $0 | $0 | $0 | $0 | 1 |
| REYMUNDO LOZANO | BOARD MEMBER | 1 | $0 | $0 | $0 | $0 | 1 |
| DENNY HAUGEN | BOARD MEMBER | 1 | $0 | $0 | $0 | $0 | 1 |
| REBECCA SCHAEFFER | BOARD MEMBER | 1 | $0 | $0 | $0 | $0 | 1 |
| SHARI SILVER | BOARD MEMBER | 1 | $0 | $0 | $0 | $0 | 1 |
| VICTORIA WILKINS | BOARD MEMBER | 1 | $0 | $0 | $0 | $0 | 1 |
| TAMARO HUDSON | BOARD MEMBER | 1 | $0 | $0 | $0 | $0 | 1 |
| DAVID TILLMAN | BOARD MEMBER | 1 | $0 | $0 | $0 | $0 | 1 |
| JACQUELYN COLEMAN | BOARD MEMBER | 1 | $0 | $0 | $0 | $0 | 1 |
| SUSAN HOWELL | BOARD MEMBER | 1 | $0 | $0 | $0 | $0 | 1 |
| PEGGY FLANAGAN | BOARD MEMBER | 1 | $0 | $0 | $0 | $0 | 1 |
2023 · 17 people listed · 1 paid, $168K · 9 employees · 0 volunteers
| Name | Title | Hrs/wk | From org | From related | Other | Total | Orgs |
|---|---|---|---|---|---|---|---|
| HILARY ROSSELOT | EXECUTIVE DIRECTOR | 40 | $149,120 | $0 | $19,287 | $168,407 | 1 |
| LAURIE BRIDGES | BOARD MEMBER | 2 | $0 | $0 | $0 | $0 | 1 |
| KARA FRECH | BOARD VICE-PRESIDENT | 2 | $0 | $0 | $0 | $0 | 1 |
| ANTHONY FASCIANO | BOARD TREASURER | 1 | $0 | $0 | $0 | $0 | 1 |
| ABBY GAURNT | BOARD SECRETARY | 2 | $0 | $0 | $0 | $0 | 1 |
| JOE GARERA | BOARD MEMBER | 1 | $0 | $0 | $0 | $0 | 1 |
| DENNY HAUGEN | BOARD SECRETARY | 2 | $0 | $0 | $0 | $0 | 1 |
| REYMUNDO LOZANO | BOARD MEMBER | 1 | $0 | $0 | $0 | $0 | 1 |
| JED SEIFERT | BOARD MEMBER | 1 | $0 | $0 | $0 | $0 | 1 |
| REBECCA SCHAEFFER | BOARD MEMBER | 1 | $0 | $0 | $0 | $0 | 1 |
| SHARI SILVER | BOARD MEMBER | 1 | $0 | $0 | $0 | $0 | 1 |
| VICTORIA WILKIN | BOARD MEMBER | 1 | $0 | $0 | $0 | $0 | 1 |
| TAMARO HUDSON | BOARD MEMBER | 1 | $0 | $0 | $0 | $0 | 1 |
| DAVID TILLMAN | BOARD MEMBER | 1 | $0 | $0 | $0 | $0 | 1 |
| JACQUELYN COLEMAN | BOARD MEMBER | 1 | $0 | $0 | $0 | $0 | 1 |
| SUSAN HOWELL | BOARD MEMBER | 40 | $0 | $0 | $0 | $0 | 1 |
| PEGGY FLANAGAN | BOARD MEMBER | 0 | $0 | $0 | $0 | $0 | 1 |
2022 · 17 people listed · 3 paid, $364K · 8 employees · 0 volunteers
| Name | Title | Hrs/wk | From org | From related | Other | Total | Orgs |
|---|---|---|---|---|---|---|---|
| HILARY ROSSELOT | EXECUTIVE DIRECTOR | 40 | $129,303 | $0 | $19,287 | $148,590 | 1 |
| KRISTIN BOGART | SENIOR DIRECTOR, DEVELOPMENT & COMMUNICATION | 40 | $107,381 | $0 | $15,872 | $123,253 | 1 |
| LINDA SORENSON | EXECUTIVE DIRECTOR | 40 | $86,940 | $0 | $5,194 | $92,134 | 1 |
| EMILY MACK | BOARD PRESIDENT | 2 | $0 | $0 | $0 | $0 | 1 |
| EVAN DAVIS | BOARD VICE-PRESIDENT | 2 | $0 | $0 | $0 | $0 | 1 |
| ANTHONY FASCIANO | BOARD MEMBER | 1 | $0 | $0 | $0 | $0 | 1 |
| RAJAT SARUP | BOARD TREASURER | 2 | $0 | $0 | $0 | $0 | 1 |
| KARA FRECH | BOARD MEMBER | 1 | $0 | $0 | $0 | $0 | 1 |
| ABBY GAUNT | BOARD SECRETARY | 2 | $0 | $0 | $0 | $0 | 1 |
| JOE GARERA | BOARD MEMBER | 1 | $0 | $0 | $0 | $0 | 1 |
| REYMUNDO LOZANO | BOARD MEMBER | 1 | $0 | $0 | $0 | $0 | 1 |
| DENNY HAUGEN | BOARD MEMBER | 1 | $0 | $0 | $0 | $0 | 1 |
| JED SEIFERT | BOARD MEMBER | 1 | $0 | $0 | $0 | $0 | 1 |
| REBECCA SCHAEFFER | BOARD MEMBER | 1 | $0 | $0 | $0 | $0 | 1 |
| SHARI SILVER | BOARD MEMBER | 1 | $0 | $0 | $0 | $0 | 1 |
| LAURIE BRIDGES | BOARD MEMBER | 1 | $0 | $0 | $0 | $0 | 1 |
| VICTORIA WILKINS | BOARD MEMBER | 1 | $0 | $0 | $0 | $0 | 1 |
2021 · 17 people listed · 1 paid, $164K · 8 employees · 0 volunteers
| Name | Title | Hrs/wk | From org | From related | Other | Total | Orgs |
|---|---|---|---|---|---|---|---|
| LINDA SORENSEN | EXECUTIVE DIRECTOR | 40 | $164,032 | $0 | $194 | $164,226 | 1 |
| EMILY MACK | PRESIDENT | 2 | $0 | $0 | $0 | $0 | 1 |
| EVAN DAVIS | VICE PRESIDENT | 2 | $0 | $0 | $0 | $0 | 1 |
| ABBY GAUNT | SECRETARY | 2 | $0 | $0 | $0 | $0 | 1 |
| RAJAT SARUP | TREASURER | 2 | $0 | $0 | $0 | $0 | 1 |
| EMILY BORG | DIRECTOR | 1 | $0 | $0 | $0 | $0 | 1 |
| ANTHONY FASCIANO | DIRECTOR | 1 | $0 | $0 | $0 | $0 | 1 |
| JOE GARERA | DIRECTOR | 1 | $0 | $0 | $0 | $0 | 1 |
| LARRY KRANTZ | DIRECTOR | 1 | $0 | $0 | $0 | $0 | 1 |
| CHARLES MITCHELL | DIRECTOR | 1 | $0 | $0 | $0 | $0 | 1 |
| HOWARD POLLOCK | DIRECTOR | 1 | $0 | $0 | $0 | $0 | 1 |
| STEPHANIE SHERMAN | DIRECTOR | 1 | $0 | $0 | $0 | $0 | 1 |
| REYMUNDO LOZANO | DIRECTOR | 1 | $0 | $0 | $0 | $0 | 1 |
| LAURIE BRIDGES | DIRECTOR | 1 | $0 | $0 | $0 | $0 | 1 |
| KARA FRECH | DIRECTOR | 1 | $0 | $0 | $0 | $0 | 1 |
| JED SEIFERT | DIRECTOR | 1 | $0 | $0 | $0 | $0 | 1 |
| SHARI SILVER | DIRECTOR | 1 | $0 | $0 | $0 | $0 | 1 |
2020 · 16 people listed · 1 paid, $172K · 7 employees · 50 volunteers
| Name | Title | Hrs/wk | From org | From related | Other | Total | Orgs |
|---|---|---|---|---|---|---|---|
| LINDA SORENSEN | EXECUTIVE DIRECTOR | 40 | $171,100 | $0 | $1,300 | $172,400 | 1 |
| EMILY BORG | SECRETARY | 2 | $0 | $0 | $0 | $0 | 1 |
| EVAN DAVIS | VICE PRESIDENT | 2 | $0 | $0 | $0 | $0 | 1 |
| PAULA FASCIANO | DIRECTOR | 1 | $0 | $0 | $0 | $0 | 1 |
| BRENDA FINUCANE | DIRECTOR | 1 | $0 | $0 | $0 | $0 | 1 |
| ABBY GAUNT | DIRECTOR | 1 | $0 | $0 | $0 | $0 | 1 |
| JOE GARERA | DIRECTOR | 1 | $0 | $0 | $0 | $0 | 1 |
| LARRY KRANTZ | DIRECTOR | 1 | $0 | $0 | $0 | $0 | 1 |
| EMILY MACK | PRESIDENT | 2 | $0 | $0 | $0 | $0 | 1 |
| CHARLES MITCHELL | DIRECTOR | 1 | $0 | $0 | $0 | $0 | 1 |
| HOWARD POLLOCK | DIRECTOR | 1 | $0 | $0 | $0 | $0 | 1 |
| RAJAT SARUP | TREASURER | 2 | $0 | $0 | $0 | $0 | 1 |
| STEPHANIE SHERMAN | DIRECTOR | 1 | $0 | $0 | $0 | $0 | 1 |
| JAY SOUDER | PAST PRESIDENT | 1 | $0 | $0 | $0 | $0 | 1 |
| REYMUNDO LOZANO | DIRECTOR | 1 | $0 | $0 | $0 | $0 | 1 |
| LAURIE BRIDGES | DIRECTOR | 1 | $0 | $0 | $0 | $0 | 1 |
2019 · 15 people listed · 1 paid, $184K · 8 employees · 50 volunteers
| Name | Title | Hrs/wk | From org | From related | Other | Total | Orgs |
|---|---|---|---|---|---|---|---|
| LINDA SORENSEN | EXECUTIVE DIRECTOR | 40 | $184,480 | $0 | $0 | $184,480 | 1 |
| EMILY BORG | DIRECTOR | 1 | $0 | $0 | $0 | $0 | 1 |
| EVAN DAVIS | DIRECTOR | 1 | $0 | $0 | $0 | $0 | 1 |
| PAULA FASCIANO | DIRECTOR | 1 | $0 | $0 | $0 | $0 | 1 |
| BRENDA FINUCANE | DIRECTOR | 1 | $0 | $0 | $0 | $0 | 1 |
| ABBY GAUNT | DIRECTOR | 1 | $0 | $0 | $0 | $0 | 1 |
| JOE GARERA | DIRECTOR | 1 | $0 | $0 | $0 | $0 | 1 |
| LARRY KRANTZ | VICE-PRESIDENT | 2 | $0 | $0 | $0 | $0 | 1 |
| EMILY MACK | SECRETARY | 2 | $0 | $0 | $0 | $0 | 1 |
| CHARLES MITCHELL | DIRECTOR | 1 | $0 | $0 | $0 | $0 | 1 |
| HOWARD POLLOCK | DIRECTOR | 1 | $0 | $0 | $0 | $0 | 1 |
| RAJAT SARUP | TREASURER | 2 | $0 | $0 | $0 | $0 | 1 |
| STEPHANIE SHERMAN | DIRECTOR | 1 | $0 | $0 | $0 | $0 | 1 |
| JAY SOUDER | PRESIDENT | 5 | $0 | $0 | $0 | $0 | 1 |
| REYMUNDO LOZANO | DIRECTOR | 1 | $0 | $0 | $0 | $0 | 1 |
2018 · 17 people listed · 1 paid, $165K · 10 employees · 50 volunteers
| Name | Title | Hrs/wk | From org | From related | Other | Total | Orgs |
|---|---|---|---|---|---|---|---|
| LINDA SORENSEN | EXECUTIVE DIRECTOR | 40 | $165,480 | $0 | $0 | $165,480 | 1 |
| EMILY BORG | DIRECTOR | 1 | $0 | $0 | $0 | $0 | 1 |
| EVAN DAVIS | DIRECTOR | 1 | $0 | $0 | $0 | $0 | 1 |
| PAULA FASCIANO | DIRECTOR | 1 | $0 | $0 | $0 | $0 | 1 |
| BRENDA FINUCANE | DIRECTOR | 1 | $0 | $0 | $0 | $0 | 1 |
| ABBY GAUNT | DIRECTOR | 1 | $0 | $0 | $0 | $0 | 1 |
| JOE GARERA | DIRECTOR | 1 | $0 | $0 | $0 | $0 | 1 |
| LARRY KRANTZ | VICE-PRESIDENT | 2 | $0 | $0 | $0 | $0 | 1 |
| EMILY MACK | SECRETARY | 2 | $0 | $0 | $0 | $0 | 1 |
| CHARLES MITCHELL | DIRECTOR | 1 | $0 | $0 | $0 | $0 | 1 |
| HOWARD POLLOCK | DIRECTOR | 1 | $0 | $0 | $0 | $0 | 1 |
| RAJAT SARUP | TREASURER | 2 | $0 | $0 | $0 | $0 | 1 |
| DON SCHALK | DIRECTOR | 1 | $0 | $0 | $0 | $0 | 1 |
| STEPHANIE SHERMAN | DIRECTOR | 1 | $0 | $0 | $0 | $0 | 1 |
| BRIAN SILVER | PAST PRESIDENT | 1 | $0 | $0 | $0 | $0 | 1 |
| JAY SOUDER | PRESIDENT | 5 | $0 | $0 | $0 | $0 | 1 |
| CAROLYN TOMBERLIN | DIRECTOR | 1 | $0 | $0 | $0 | $0 | 1 |
2017 · 17 people listed · 2 paid, $293K · 9 employees · 50 volunteers
| Name | Title | Hrs/wk | From org | From related | Other | Total | Orgs |
|---|---|---|---|---|---|---|---|
| Tony Ferlenda | CEO | 40 | $174,237 | $0 | $11,500 | $185,737 | 1 |
| Linda Sorensen | COO/Executive Director | 40 | $106,790 | $0 | $0 | $106,790 | 1 |
| Brian Silver | President | 5 | $0 | $0 | $0 | $0 | 1 |
| Larry Krantz | Vice President | 2 | $0 | $0 | $0 | $0 | 1 |
| Emily Mack | Secretary | 2 | $0 | $0 | $0 | $0 | 1 |
| Mike Makris | Treasurer | 2 | $0 | $0 | $0 | $0 | 1 |
| Evan Davis | Board Member | 1 | $0 | $0 | $0 | $0 | 1 |
| Paula Fasciano | Board Member | 1 | $0 | $0 | $0 | $0 | 1 |
| Brenda Finucane MS LGC | Board Member | 1 | $0 | $0 | $0 | $0 | 1 |
| Mark Gershenson | Board Member | 1 | $0 | $0 | $0 | $0 | 1 |
| Carolyn Tomberlin | Board Member | 1 | $0 | $0 | $0 | $0 | 1 |
| Howard Pollock | Board Member | 1 | $0 | $0 | $0 | $0 | 1 |
| Rick Reynolds | Board Member | 1 | $0 | $0 | $0 | $0 | 1 |
| Rajat Sarup | Board Member | 1 | $0 | $0 | $0 | $0 | 1 |
| Don Schalk | Board Member | 1 | $0 | $0 | $0 | $0 | 1 |
| Stephanie Sherman | Board Member | 1 | $0 | $0 | $0 | $0 | 1 |
| Jay Souder | Dev. Chair | 2 | $0 | $0 | $0 | $0 | 1 |
2016 · 18 people listed · 2 paid, $237K · 8 employees · 70 volunteers
| Name | Title | Hrs/wk | From org | From related | Other | Total | Orgs |
|---|---|---|---|---|---|---|---|
| Tony Ferlenda | CEO | 40 | $135,971 | $0 | $9,096 | $145,067 | 1 |
| Linda Sorensen | COO | 40 | $91,791 | $0 | $0 | $91,791 | 1 |
| Brian Silver | President | 5 | $0 | $0 | $0 | $0 | 1 |
| Larry Krantz | Vice President | 5 | $0 | $0 | $0 | $0 | 1 |
| Emily Mack | Secretary | 5 | $0 | $0 | $0 | $0 | 1 |
| Mike Makris | Treasurer | 5 | $0 | $0 | $0 | $0 | 1 |
| Evan Davis | Board Member | 2 | $0 | $0 | $0 | $0 | 1 |
| Paula Fasciano | Board Member | 2 | $0 | $0 | $0 | $0 | 1 |
| Brenda Finucane MS LGC | Board Member | 2 | $0 | $0 | $0 | $0 | 1 |
| Mark Gershenson | Board Member | 2 | $0 | $0 | $0 | $0 | 1 |
| Jimi Grande | Board Member | 2 | $0 | $0 | $0 | $0 | 1 |
| Howard Pollock | Board Member | 2 | $0 | $0 | $0 | $0 | 1 |
| Rick Reynolds | Board Member | 2 | $0 | $0 | $0 | $0 | 1 |
| Rajat Sarup | Board Member | 2 | $0 | $0 | $0 | $0 | 1 |
| Don Schalk | Board Member | 2 | $0 | $0 | $0 | $0 | 1 |
| Stephanie Sherman | Board Member | 2 | $0 | $0 | $0 | $0 | 1 |
| Jay Souder | Board Member | 2 | $0 | $0 | $0 | $0 | 1 |
| Carolyn Tomberlin | Board Member | 2 | $0 | $0 | $0 | $0 | 1 |
2015 · 18 people listed · 2 paid, $228K · 11 employees
| Name | Title | Hrs/wk | From org | From related | Other | Total | Orgs |
|---|---|---|---|---|---|---|---|
| Tony Ferlenda | CEO | 40 | $137,704 | $0 | $0 | $137,704 | 1 |
| Linda Sorensen | COO | 40 | $90,634 | $0 | $0 | $90,634 | 1 |
| Jennifer Silverton | President | 4 | $0 | $0 | $0 | $0 | 1 |
| Brian Silver | Vice President | 4 | $0 | $0 | $0 | $0 | 1 |
| Mike Makris | Secretary | 4 | $0 | $0 | $0 | $0 | 1 |
| David Justus | Treasurer | 4 | $0 | $0 | $0 | $0 | 1 |
| Evan Davis | Director | 2 | $0 | $0 | $0 | $0 | 1 |
| Mark Dissette | Director | 2 | $0 | $0 | $0 | $0 | 1 |
| Paula Fasciano | Director | 2 | $0 | $0 | $0 | $0 | 1 |
| Brenda Finucane | Director | 2 | $0 | $0 | $0 | $0 | 1 |
| Mark Gershenson | Director | 2 | $0 | $0 | $0 | $0 | 1 |
| Jimi Grande | Director | 2 | $0 | $0 | $0 | $0 | 1 |
| Larry Krantz | Director | 2 | $0 | $0 | $0 | $0 | 1 |
| Howard Pollock | Director | 2 | $0 | $0 | $0 | $0 | 1 |
| Rick Reynolds | Director | 2 | $0 | $0 | $0 | $0 | 1 |
| Stephanie Sherman | Director | 2 | $0 | $0 | $0 | $0 | 1 |
| Jay Souder | Director | 2 | $0 | $0 | $0 | $0 | 1 |
| Carolyn Tomberlin | Director | 2 | $0 | $0 | $0 | $0 | 1 |
2014 · 14 people listed · 2 paid, $171K · 10 employees
| Name | Title | Hrs/wk | From org | From related | Other | Total | Orgs |
|---|---|---|---|---|---|---|---|
| Linda Sorensen | Associate Dir | 40 | $112,226 | $0 | $0 | $112,226 | 1 |
| Robert Miller | Former Exec Director | 40 | $58,692 | $0 | $0 | $58,692 | 1 |
| Jennifer Silverton | President | 4 | $0 | $0 | $0 | $0 | 1 |
| Brian Silver | Vice President | 4 | $0 | $0 | $0 | $0 | 1 |
| Mike Makris | Secretary | 4 | $0 | $0 | $0 | $0 | 1 |
| David Justus | Treasurer | 4 | $0 | $0 | $0 | $0 | 1 |
| Al Blount | Director | 2 | $0 | $0 | $0 | $0 | 1 |
| Mark Dissette | Director | 2 | $0 | $0 | $0 | $0 | 1 |
| Paula Fasciano | Director | 2 | $0 | $0 | $0 | $0 | 1 |
| Brenda Finucane | Director | 2 | $0 | $0 | $0 | $0 | 1 |
| Jimi Grande | Director | 2 | $0 | $0 | $0 | $0 | 1 |
| Rick Reynolds | Director | 2 | $0 | $0 | $0 | $0 | 1 |
| Jay Souder | Director | 2 | $0 | $0 | $0 | $0 | 1 |
| Carolyn Tomberlin | Director | 2 | $0 | $0 | $0 | $0 | 1 |
2013 · 16 people listed · 3 paid, $302K · 10 employees
| Name | Title | Hrs/wk | From org | From related | Other | Total | Orgs |
|---|---|---|---|---|---|---|---|
| Robert Miller | Former Exec Director | 40 | $114,737 | $0 | $0 | $114,737 | 1 |
| Jeffrey Cohen | Exec Director | 40 | $102,080 | $0 | $0 | $102,080 | 1 |
| Linda Sorensen | Associate Director | 40 | $85,126 | $0 | $0 | $85,126 | 1 |
| Brad Whitus | President | 4 | $0 | $0 | $0 | $0 | 1 |
| Al Blount | Treasurer | 4 | $0 | $0 | $0 | $0 | 1 |
| Joey Christoff | Secretary | 4 | $0 | $0 | $0 | $0 | 1 |
| Michael Kelley | Past President | 4 | $0 | $0 | $0 | $0 | 1 |
| Jennifer Silverton | Secretary | 4 | $0 | $0 | $0 | $0 | 1 |
| Ted Coutilish | Director | 2 | $0 | $0 | $0 | $0 | 1 |
| Mark Dissette | Director | 2 | $0 | $0 | $0 | $0 | 1 |
| Jimi Grande | Director | 2 | $0 | $0 | $0 | $0 | 1 |
| David Justus | Director | 2 | $0 | $0 | $0 | $0 | 1 |
| Mike Makris | Director | 2 | $0 | $0 | $0 | $0 | 1 |
| Juan-Carlos Planas | Director | 2 | $0 | $0 | $0 | $0 | 1 |
| Brian Silver | Director | 2 | $0 | $0 | $0 | $0 | 1 |
| Jay Souder | Director | 2 | $0 | $0 | $0 | $0 | 1 |
2012 · 15 people listed · 2 paid, $200K · 10 employees
| Name | Title | Hrs/wk | From org | From related | Other | Total | Orgs |
|---|---|---|---|---|---|---|---|
| Robert Miller | Exec Director | 0 | $114,737 | $0 | $3,632 | $118,369 | 1 |
| Linda Sorensen | Associate Director | 0 | $81,530 | $0 | $0 | $81,530 | 1 |
| Katherine Roeders | Director | 2 | $0 | $0 | $0 | $0 | 1 |
| Juan-Carlos Planas | Director | 2 | $0 | $0 | $0 | $0 | 1 |
| Mike Makris | Director | 2 | $0 | $0 | $0 | $0 | 1 |
| David Justus | Director | 2 | $0 | $0 | $0 | $0 | 1 |
| Jimi Grande | Director | 2 | $0 | $0 | $0 | $0 | 1 |
| Mark Dissette | Director | 2 | $0 | $0 | $0 | $0 | 1 |
| Ted Coutilish | Director | 2 | $0 | $0 | $0 | $0 | 1 |
| Elizabeth Berry-Kravis MD Phd | Director | 2 | $0 | $0 | $0 | $0 | 1 |
| Jennifer Silverton | Secretary | 4 | $0 | $0 | $0 | $0 | 1 |
| Michael Kelley | Past President | 4 | $0 | $0 | $0 | $0 | 1 |
| Joey Christoff | Secretary | 4 | $0 | $0 | $0 | $0 | 1 |
| Al Blount | Treasurer | 4 | $0 | $0 | $0 | $0 | 1 |
| Brad Whitus | President | 4 | $0 | $0 | $0 | $0 | 1 |
Highest-paid independent contractors
2025 · 1 contractor · $136K
| Name | Location | Service | Paid |
|---|---|---|---|
| PROVEN | PRINCETON, NJ | CONSULTING | $136,200 |
2022 · 2 contractors · $216K
| Name | Location | Service | Paid |
|---|---|---|---|
| PRI INC | MANALAPAN, NJ | WEBSITE CONTENT AND MAINTENANCE | $110,544 |
| TOWN AND COUNTRY RESORT | NORTH SAN DIEGO, CA | HOTEL | $105,927 |
2021 · 2 contractors · $213K
| Name | Location | Service | Paid |
|---|---|---|---|
| PRI INC | MANALAPAN, NJ | WEBSITE CONTENT AND MAINTENANCE | $110,544 |
| NEOSYSTEMS | MCLEAN, VA | ACCOUNTING AND MANAGEMENT | $102,642 |
Who the money went to
Grants this organization reported paying: Schedule I Part II of the Form 990, or the grants-paid list on the 990-PF. Open a year for every recipient. Recipients link to their own page when the grant names an EIN we have (990-PF grants list no EIN, so those link only on an exact, unique name and state). Grants to individuals are counted; their names are not shown.
2025 · 4 grants to organizations · $136K
Listed grants add up to $135,959; the return's “grants paid” expense line says $200,146. Returns can differ here (grants paid vs. accrued, items listed elsewhere); check the filing.
2024 · 4 grants to organizations · $114K
Listed grants add up to $114,352; the return's “grants paid” expense line says $161,470. Returns can differ here (grants paid vs. accrued, items listed elsewhere); check the filing.
2023 · 4 grants to organizations · $113K
Listed grants add up to $112,916; the return's “grants paid” expense line says $159,325. Returns can differ here (grants paid vs. accrued, items listed elsewhere); check the filing.
2022 · 4 grants to organizations · $120K
Listed grants add up to $119,959; the return's “grants paid” expense line says $156,514. Returns can differ here (grants paid vs. accrued, items listed elsewhere); check the filing.
2014 · 2 grants to organizations · $18K
Listed grants add up to $17,500; the return's “grants paid” expense line says $30,189. Returns can differ here (grants paid vs. accrued, items listed elsewhere); check the filing.
2012 · 3 grants to organizations · $125K
Listed grants add up to $125,000; the return's “grants paid” expense line says $133,065. Returns can differ here (grants paid vs. accrued, items listed elsewhere); check the filing.
Negative amounts are returned or refunded grants; they are listed last and left out of the totals of grants paid.
Who gave
Contributor names are not public for this form type.
Public charities filing Form 990 or 990-EZ report large donors on Schedule B, but the IRS withholds their names and addresses from public copies. Private foundations (990-PF) are different: their contributors are public.
Finances
Newest first. Each filing: its name on one row, its figures on the row beneath. Greyed filings are superseded by a later return for the same period and are left out everywhere else on this page.
| Revenue | Expenses | Assets | Net assets | Contributions | Program revenue | Officer pay | Employees | Volunteers |
|---|---|---|---|---|---|---|---|---|
| 2025 · Form 990 | ||||||||
| $2,291,142 | $2,187,406 | $4,034,589 | $2,594,030 | $2,128,834 | $104,143 | $162,160 | 8 | 0 |
| 2024 · Form 990 | ||||||||
| $2,134,157 | $2,124,722 | $3,843,116 | $2,491,170 | $1,570,715 | $469,180 | $143,381 | 0 | 0 |
| 2023 · Form 990 | ||||||||
| $1,802,073 | $1,800,882 | $3,572,020 | $2,490,461 | $1,507,800 | $252,970 | $149,120 | 9 | 0 |
| 2022 · Form 990 | ||||||||
| $3,240,795 | $2,091,542 | $2,775,189 | $2,470,640 | $2,562,898 | $665,887 | $240,723 | 8 | 0 |
| 2021 · Form 990 | ||||||||
| $1,652,718 | $1,506,649 | $1,539,237 | $1,316,343 | $1,385,797 | $253,483 | $164,226 | 8 | 0 |
| 2020 · Form 990 | ||||||||
| $1,500,226 | $1,460,086 | $1,458,448 | $1,184,074 | $1,233,854 | $254,757 | $172,711 | 7 | 50 |
| 2019 · Form 990 | ||||||||
| $1,467,262 | $1,454,731 | $1,201,001 | $1,143,934 | $1,429,398 | $29,378 | $184,480 | 8 | 50 |
| 2018 · Form 990 | ||||||||
| $1,780,480 | $1,741,386 | $1,243,520 | $1,131,403 | $1,261,367 | $513,659 | $165,480 | 10 | 50 |
| 2017 · Form 990 | ||||||||
| $1,752,853 | $1,654,106 | $1,227,026 | $1,109,342 | $1,734,963 | $12,840 | $292,527 | 9 | 50 |
| 2016 · Form 990 | ||||||||
| $1,952,796 | $1,582,225 | $1,067,742 | $1,007,537 | $1,456,833 | $487,266 | $236,858 | 8 | 70 |
| 2015 · Form 990 | ||||||||
| $1,252,938 | $1,271,958 | $677,132 | $357,109 | $1,078,697 | $126,079 | $228,338 | 11 | - |
| 2014 · Form 990 | ||||||||
| $1,917,363 | $1,990,816 | $613,438 | $376,129 | $992,118 | $682,554 | $112,226 | 10 | - |
| 2013 · Form 990 | ||||||||
| $1,404,829 | $1,402,781 | $668,769 | $449,582 | $1,292,012 | $111,183 | $301,943 | 10 | - |
| 2012 · Form 990 | ||||||||
| $1,689,691 | $1,732,427 | $653,284 | $447,534 | $944,092 | $744,609 | $199,899 | 10 | - |
Funders of this organization
48 grantors reported grants to this organization, $2,017,542 in all, tax years 2010 to 2025; the 25 largest shown (all 48). Exact: the grantor wrote this organization's EIN. Fuzzy: the grantor wrote only a name (foundations' 990-PF has no EIN field), matched to the same or a near-identical name in the same state; the name as filed is shown. From the latest return for each grantor and year, so amended returns aren't counted twice. CSV
| Grantor | Total given | Grants | Latest year's amount | Latest year | Years given | Type | Match | Grants |
|---|---|---|---|---|---|---|---|---|
| FIDELITY INVESTMENTS CHARITABLE GIFT FUND | $557,136 | 9 | $61,862 | 2024 | 2016-2024 | DAF sponsor | Exact | show |
| AMERICAN ONLINE GIVING FOUNDATION INC | $258,419 | 7 | $27,267 | 2025 | 2019-2025 | DAF sponsor | Exact | show |
| FORGOOD INC | $183,097 | 5 | $10,086 | 2018 | 2013-2014, 2016-2018 | DAF sponsor | Exact | show |
| DONOR ADVISED CHARITABLE GIVING | $171,358 | 10 | $17,800 | 2024 | 2015-2024 | DAF sponsor | Exact | show |
| FAMILIES FOR FRAGILE X INC | $120,000 | 2 | $70,000 | 2024 | 2022, 2024 | Public charity | Exact | show |
| SEAN AND CHRISTINE YU PRIVATE FOUNDATION | $111,000 | 5 | $25,000 | 2019 | 2015-2019 | Private foundation | Fuzzy filed as “National Fragile X Foundation” | show |
| NATIONAL PHILANTHROPIC TR | $106,500 | 6 | $12,500 | 2024 | 2019-2024 | DAF sponsor | Exact | show |
| SUNRISE FOUNDATION | $90,000 | 3 | $50,000 | 2025 | 2016, 2022, 2025 | Private foundation | Fuzzy filed as “NATIONAL FRAGILE X FOUNDATION” | show |
| JEROME G & ANNETTE S ZIMMERMAN FOUNDATION INC | $85,000 | 3 | $25,000 | 2025 | 2022, 2024-2025 | Private foundation | Fuzzy filed as “NATIONAL FRAGILE X FOUNDATION” | show |
| CASCADE FOUNDATION | $80,000 | 1 | $80,000 | 2024 | 2024 | Private foundation | Fuzzy filed as “NATIONAL FRAGILE X FOUNDATION” | show |
| CHILDRENS HOSPITAL MEDICAL CENTER | $40,000 | 2 | $20,000 | 2017 | 2016-2017 | Public charity | Exact | show |
| PAYPAL CHARITABLE GIVING FUND | $28,560 | 2 | $17,090 | 2024 | 2023-2024 | DAF sponsor | Exact | show |
| MCGOWAN FAMILY FOUNDATION INC | $25,000 | 3 | $7,500 | 2022 | 2020-2022 | Public charity | Exact | show |
| NATIONAL CHRISTIAN CHARITABLE FOUNDATION | $20,200 | 2 | $20,000 | 2016 | 2014, 2016 | DAF sponsor | Exact | show |
| LIVJOY FOUNDATION INC | $20,000 | 2 | $10,000 | 2025 | 2024-2025 | Private foundation | Fuzzy filed as “NATIONAL FRAGILE X FOUNDATION” | show |
| AMERICAS CHARITIES | $14,092 | 2 | $5,460 | 2015 | 2014-2015 | Public charity | Exact | show |
| T ROWE PRICE PROGRAM FOR CHARITABLE GIVING INC | $14,000 | 2 | $5,750 | 2024 | 2022, 2024 | DAF sponsor | Exact | show |
| The Bay and Paul Foundations Inc | $10,000 | 2 | $5,000 | 2023 | 2022-2023 | Private foundation | Fuzzy filed as “NATIONAL FRAGILE X FOUNDATION” | show |
| TEN TALENTS FOUNDATION INC | $10,000 | 2 | $5,000 | 2022 | 2020, 2022 | Private foundation | Fuzzy filed as “NATIONAL FRAGILE X FOUNDATION” | show |
| THE BILL BASS FOUNDATION | $10,000 | 2 | $5,000 | 2021 | 2014, 2021 | Private foundation | Fuzzy filed as “NATIONAL FRAGILE X FOUNDATION” | show |
| KAISER FOUNDATION HOSPITALS | $10,000 | 1 | $10,000 | 2010 | 2010 | Public charity | Exact | show |
| AMAZONSMILE FOUNDATION | $8,949 | 2 | $3,790 | 2023 | 2022-2023 | Private foundation | Fuzzy filed as “NATIONAL FRAGILE X FOUNDATION” | show |
| THE BLACKBAUD GIVING FUND | $8,643 | 1 | $8,643 | 2022 | 2022 | DAF sponsor | Exact | show |
| CHARITIES AID FOUNDATION AMERICA | $8,487 | 1 | $8,487 | 2024 | 2024 | DAF sponsor | Exact | show |
| THE WILLIAM AND MILDRED KAPLAN FOUNDATION INC | $7,000 | 3 | $2,000 | 2024 | 2022-2024 | Private foundation | Fuzzy filed as “NATIONAL FRAGILE X FOUNDATION” | show |
Nearby + Similar BETA
Organizations like this one: what they do and who they are linked to
Same category: NTEE code and revenue
Ranked without any AI: same NTEE code first, then the same NTEE group; then revenue within 2x, 5x or 10x; then the same state; then similar name and mission text. Same state only · More (100)
| Organization | State | NTEE | Latest revenue | Latest expenses | Top-paid title | Top pay | Why similar |
|---|---|---|---|---|---|---|---|
| HUNTINGTON S DISEASE FOUNDATION | NY | H20 | $4,081,669 | $4,326,391 | DIR. OF RESEARCH PROGRAMS | $216,927 | Same NTEE code H20, revenue within 2x |
| CEREBRAL PALSY ALLIANCE RESEARCH FOUNDATION | NY | H20 | $1,980,845 | $1,628,629 | EXECUTIVE DIRECTOR | $264,200 | Same NTEE code H20, revenue within 2x |
| GLOMCON FOUNDATION | DE | H20 | $2,090,584 | $1,114,846 | Board Member | $0 | Same NTEE code H20, revenue within 2x |
| INTERNATIONAL SOCIETY FOR AUTISM | MO | H20 | $1,236,560 | $1,265,346 | PRESIDENT | $0 | Same NTEE code H20, revenue within 2x |
| SPINAL RESEARCH FOUNDATION | VA | H20 | $1,887,546 | $2,362,317 | CEO | $261,823 | Same NTEE code H20, revenue within 2x |
| FINDING HOPE FOR FRRS1L | CO | H20 | $2,543,539 | $2,394,640 | Vice President | $0 | Same NTEE code H20, revenue within 2x |
| CENTER FOR HUMAN GENETICS INC | MA | H20 | $3,179,113 | $3,373,349 | TREASURER | $424,268 | Same NTEE code H20, revenue within 2x |
| THE CAMERON AND HAYDEN LORD FOUNDATION | NY | H20 | $1,618,596 | $2,236,872 | Director | $0 | Same NTEE code H20, revenue within 2x |
| WORLD MOLECULAR IMAGING SOCIETY | CA | H20 | $1,450,951 | $1,723,562 | CHIEF EXECUTIVE OFFICER | $240,790 | Same NTEE code H20, revenue within 2x |
| ALSTROM ANGELS CORP | TX | H20 | $1,222,674 | $972,411 | President | $43,073 | Same NTEE code H20, revenue within 2x |
| HAUPTMAN-WOODWARD MEDICAL RESEARCH INSTITUTE INC | NY | H20 | $3,944,553 | $4,437,661 | VP (until 3/31/25) | $105,190 | Same NTEE code H20, revenue within 2x |
| MAS SAJADY INC | CA | H20 | $1,970,887 | $1,794,246 | PRESIDENT, DIRECTOR | $339,588 | Same NTEE code H20, revenue within 2x |
| PORTER HILLS HOME HEALTH WEST | MI | H20 | $3,051,045 | $3,472,961 | President & CEO | $552,720 | Same NTEE code H20, revenue within 2x |
| HEARING HEALTH FOUNDATION | NY | H20 | $4,678,817 | $4,922,908 | PRESIDENT & CEO | $307,955 | Same NTEE code H20, revenue within 5x |
| CHASE RICHARDS FOUNDATION | CA | H20 | $748,353 | $756,156 | TREASURER | $37,332 | Same NTEE code H20, revenue within 5x |
| RILITE FOUNDATION | VA | H20 | $475,539 | $546,832 | CEO | $0 | Same NTEE code H20, revenue within 5x |
| THE KAT6A FOUNDATION INC | NY | H20 | $545,829 | $215,907 | Treasurer | $0 | Same NTEE code H20, revenue within 5x |
| CHILDRENS AIRWAY FIRST FOUNDATION | TX | H20 | $1,029,297 | $484,270 | Director and President | $120,000 | Same NTEE code H20, revenue within 5x |
| NATIONAL OVARIAN CANCER COALITION INC | TX | H20 | $5,376,100 | $5,365,375 | CEO | $225,691 | Same NTEE code H20, revenue within 5x |
| INTERNATIONAL ZEBRAFISH SOCIETY INC | WI | H20 | $845,766 | $670,074 | EXECUTIVE DIRECTOR | $0 | Same NTEE code H20, revenue within 5x |
| TEXAS HEALTH RESEARCH & EDUCATION INSTITUTE | TX | H20 | $4,905,286 | $6,411,115 | President/Trustee | $2,459,823 | Same NTEE code H20, revenue within 5x |
| AMERICAN SOCIETY FOR TRANSPLANTATION & CELLULAR THERAPY | IL | H20 | $8,492,524 | $8,522,855 | UNTIL 2/2024, THEN PRES ELECT | $30,500 | Same NTEE code H20, revenue within 5x |
| EVERYONE READING INC | NY | H20 | $1,126,950 | $1,106,825 | Director | $0 | Same NTEE code H20, revenue within 5x |
| RALSTON VOLUNTEER FIRE DEPARTMENT AND RESCUE SQUAD INC | NE | H20 | $568,222 | $581,591 | President | $7,028 | Same NTEE code H20, revenue within 5x |
| PACHYONYCHIA CONGENITA FUND | UT | H20 | $816,533 | $743,239 | EXECUTIVE DI | $0 | Same NTEE code H20, revenue within 5x |
Who funds organizations like this
Grantors that funded the 100 most similar organizations. Ranked by total given to them. Foundations (990-PF) and donor-advised fund sponsors only. Same matching as Funders above (by EIN, or by name for foundations).
The full list · all similar organizations
Where the money went
Every expense line on each return, biggest first: Form 990 Part IX (with its program, management and fundraising columns), 990-EZ Part I, or 990-PF Part I. Event marks lines the organization itself describes as events. “Events” in each summary adds those lines, conferences and meetings, and the direct costs of fundraising events. Unusual is not the same as improper. Many of these patterns have ordinary explanations. Check the filing.
2025 · Form 990 · $2,187,406 spent · pay $795,017 · grants $200,146 · events $71,264
| Line | As described | Total | Program | Management | Fundraising | Share |
|---|---|---|---|---|---|---|
| Fees: other services | $636,394 | $375,221 | $256,613 | $4,560 | 29.1% | |
| Other salaries and wages | $495,175 | $327,314 | $76,272 | $91,589 | 22.6% | |
| Other (as described) | CLINIC COMPENSATION | $288,598 | $288,598 | - | - | 13.2% |
| Pay: officers, directors, trustees, key employees | $162,160 | $129,728 | $16,216 | $16,216 | 7.4% | |
| Grants to US organizations and governments | $135,959 | $135,959 | - | - | 6.2% | |
| Other employee benefits | $74,145 | $48,762 | $12,280 | $13,103 | 3.4% | |
| Grants to US individuals | $64,187 | $64,187 | - | - | 2.9% | |
| Payroll taxes | $63,537 | $46,779 | $7,738 | $9,020 | 2.9% | |
| Conferences, conventions and meetings | $52,896 | $43,263 | $8,298 | $1,335 | 2.4% | |
| Fees: accounting | $43,324 | - | $43,324 | - | 2.0% | |
| Travel | $32,008 | $16,949 | $15,059 | - | 1.5% | |
| Information technology | $27,029 | $96 | $13,867 | $13,066 | 1.2% | |
| Depreciation and depletion | $26,455 | - | $26,455 | - | 1.2% | |
| Other (as described) | MISCELLANEOUS | $21,620 | $57 | $21,063 | $500 | 1.0% |
| Office expenses | $19,976 | $13,701 | $5,759 | $516 | 0.9% | |
| Other (as described) | BANK AND CREDIT CARD FE | $15,002 | $676 | $252 | $14,074 | 0.7% |
| Advertising and promotion | $13,685 | - | - | $13,685 | 0.6% | |
| Insurance | $11,105 | - | $11,105 | - | 0.5% | |
| Other (as described) | BAD DEBT | $3,600 | - | $3,600 | - | 0.2% |
| All other expenses | $551 | $551 | - | - | 0.0% | |
| Fundraising events Event | direct expenses; gross income $0 | $18,368 | reported apart | |||
| Total | $2,187,406 | 100% |
2024 · Form 990 · $2,124,722 spent · pay $746,798 · grants $161,470 · events $329,035
| Line | As described | Total | Program | Management | Fundraising | Share |
|---|---|---|---|---|---|---|
| Fees: other services | $535,004 | $519,864 | $10,180 | $4,960 | 25.2% | |
| Other salaries and wages | $489,094 | $347,110 | $63,373 | $78,611 | 23.0% | |
| Conferences, conventions and meetings | $325,736 | $314,544 | $11,192 | - | 15.3% | |
| Other (as described) | CLINIC COMPENSATION | $148,550 | $148,550 | $0 | $0 | 7.0% |
| Pay: officers, directors, trustees, key employees | $143,381 | $114,705 | $14,338 | $14,338 | 6.7% | |
| Grants to US organizations and governments | $114,352 | $114,352 | - | - | 5.4% | |
| Payroll taxes | $60,077 | $43,866 | $7,382 | $8,829 | 2.8% | |
| Other employee benefits | $54,246 | $38,585 | $7,074 | $8,587 | 2.6% | |
| Grants to US individuals | $47,118 | $47,118 | - | - | 2.2% | |
| Fees: lobbying | $40,000 | $40,000 | - | - | 1.9% | |
| Information technology | $31,545 | $9,377 | $11,229 | $10,939 | 1.5% | |
| Fees: accounting | $23,116 | - | $23,116 | - | 1.1% | |
| Office expenses | $18,943 | $10,512 | $7,211 | $1,220 | 0.9% | |
| Other (as described) | MISCELLANEOUS | $18,351 | $585 | $17,766 | $0 | 0.9% |
| Depreciation and depletion | $15,575 | $15,069 | $506 | - | 0.7% | |
| Insurance | $15,237 | - | $15,237 | - | 0.7% | |
| Other (as described) | BANK AND CREDIT CARD FE | $14,415 | $4,804 | $193 | $9,418 | 0.7% |
| Travel | $13,927 | $9,231 | $2,923 | $1,773 | 0.7% | |
| Advertising and promotion | $12,745 | $250 | - | $12,495 | 0.6% | |
| Other (as described) | CSN GROUPS | $3,310 | $3,310 | $0 | $0 | 0.2% |
| Fundraising events Event | direct expenses; gross income $0 | $3,299 | reported apart | |||
| Total | $2,124,722 | 100% |
2023 · Form 990 · $1,800,882 spent · pay $739,211 · grants $159,325 · events $57,539
| Line | As described | Total | Program | Management | Fundraising | Share |
|---|---|---|---|---|---|---|
| Other salaries and wages | $485,662 | $345,359 | $59,876 | $80,427 | 27.0% | |
| Fees: other services | $463,865 | $375,699 | $80,710 | $7,456 | 25.8% | |
| Pay: officers, directors, trustees, key employees | $149,120 | $119,296 | $14,912 | $14,912 | 8.3% | |
| Grants to US organizations and governments | $129,362 | $129,362 | - | - | 7.2% | |
| Other (as described) | CLINIC COMPENSATION | $117,646 | $117,646 | - | - | 6.5% |
| Fees: lobbying | $60,000 | $60,000 | - | - | 3.3% | |
| Payroll taxes | $53,538 | $39,185 | $6,309 | $8,044 | 3.0% | |
| Conferences, conventions and meetings | $51,071 | $37,064 | $14,007 | - | 2.8% | |
| Other employee benefits | $50,891 | $37,199 | $6,010 | $7,682 | 2.8% | |
| All other expenses | $35,231 | $1,851 | $30,962 | $2,418 | 2.0% | |
| Advertising and promotion | $30,773 | $7,747 | $84 | $22,942 | 1.7% | |
| Grants to US individuals | $29,963 | $29,963 | - | - | 1.7% | |
| Information technology | $26,296 | $7,376 | $7,880 | $11,040 | 1.5% | |
| Travel | $26,220 | $6,483 | $19,448 | $289 | 1.5% | |
| Other (as described) | BAD DEBTS | $25,750 | - | $25,750 | - | 1.4% |
| Office expenses | $25,365 | $20,155 | $5,119 | $91 | 1.4% | |
| Other (as described) | BANK AND CREDIT CARD FE | $14,894 | $1,525 | $707 | $12,662 | 0.8% |
| Insurance | $14,739 | - | $14,739 | - | 0.8% | |
| Other (as described) | CSN GROUPS | $9,451 | $9,451 | - | - | 0.5% |
| Depreciation and depletion | $1,045 | - | $1,045 | - | 0.1% | |
| Fundraising events Event | direct expenses; gross income $0 | $6,468 | reported apart | |||
| Total | $1,800,882 | 100% |
2022 · Form 990 · $2,091,542 spent · pay $738,153 · grants $156,514 · events $222,020
| Line | As described | Total | Program | Management | Fundraising | Share |
|---|---|---|---|---|---|---|
| Fees: other services | $590,600 | $524,303 | $46,482 | $19,815 | 28.2% | |
| Other salaries and wages | $420,585 | $308,648 | - | $111,937 | 20.1% | |
| Pay: officers, directors, trustees, key employees | $240,723 | $192,579 | $24,072 | $24,072 | 11.5% | |
| Conferences, conventions and meetings | $222,020 | $222,020 | - | - | 10.6% | |
| Grants to US organizations and governments | $119,959 | $119,959 | - | - | 5.7% | |
| Fees: accounting | $72,880 | - | $72,880 | - | 3.5% | |
| Fees: lobbying | $60,000 | $60,000 | - | - | 2.9% | |
| Advertising and promotion | $53,520 | $30,452 | - | $23,068 | 2.6% | |
| Payroll taxes | $50,602 | $37,994 | $1,757 | $10,851 | 2.4% | |
| Travel | $47,875 | $47,875 | - | - | 2.3% | |
| Grants to US individuals | $36,555 | $36,555 | - | - | 1.7% | |
| Information technology | $27,803 | $22,242 | $2,781 | $2,780 | 1.3% | |
| Other (as described) | BANK AND CREDIT CARD FE | $27,744 | - | $27,744 | - | 1.3% |
| All other expenses | $27,446 | $20,180 | $5,470 | $1,796 | 1.3% | |
| Other employee benefits | $26,243 | $20,413 | - | $5,830 | 1.3% | |
| Office expenses | $25,727 | $22,971 | $1,378 | $1,378 | 1.2% | |
| Other (as described) | PRINTING AND POSTAGE | $15,183 | $13,705 | $739 | $739 | 0.7% |
| Insurance | $14,257 | $11,406 | $1,425 | $1,426 | 0.7% | |
| Other (as described) | BAD DEBTS | $8,500 | $8,500 | - | - | 0.4% |
| Other (as described) | CSN GROUPS | $1,719 | $1,719 | - | - | 0.1% |
| Depreciation and depletion | $1,601 | $1,281 | $160 | $160 | 0.1% | |
| Total | $2,091,542 | 100% |
2021 · Form 990 · $1,506,649 spent · pay $753,654 · grants $19,025 · events $1,204
| Line | As described | Total | Program | Management | Fundraising | Share |
|---|---|---|---|---|---|---|
| Other salaries and wages | $493,111 | $366,843 | - | $126,268 | 32.7% | |
| Fees: other services | $419,610 | $338,119 | $39,898 | $41,593 | 27.9% | |
| Pay: officers, directors, trustees, key employees | $164,226 | $131,380 | $16,423 | $16,423 | 10.9% | |
| Fees: accounting | $98,557 | - | $98,557 | - | 6.5% | |
| Fees: lobbying | $60,000 | $60,000 | - | - | 4.0% | |
| Payroll taxes | $53,225 | $40,346 | $1,321 | $11,558 | 3.5% | |
| Other employee benefits | $43,092 | $32,086 | $1,789 | $9,217 | 2.9% | |
| Advertising and promotion | $30,746 | $29,246 | - | $1,500 | 2.0% | |
| Other (as described) | MISCELLANEOUS | $24,695 | $21,138 | $1,565 | $1,992 | 1.6% |
| Grants to US individuals | $16,525 | $16,525 | - | - | 1.1% | |
| Insurance | $15,643 | $12,515 | $1,564 | $1,564 | 1.0% | |
| Office expenses | $14,159 | $11,665 | $1,247 | $1,247 | 0.9% | |
| Travel | $14,029 | $14,029 | - | - | 0.9% | |
| Depreciation and depletion | $13,493 | $10,794 | $1,350 | $1,349 | 0.9% | |
| Other (as described) | CSN GROUPS | $12,358 | $12,358 | - | - | 0.8% |
| Information technology | $11,520 | $9,216 | $792 | $1,512 | 0.8% | |
| Other (as described) | BANK AND CREDIT CARD FE | $10,684 | $2,084 | $265 | $8,335 | 0.7% |
| Other (as described) | PRINTING AND POSTAGE | $7,272 | $5,954 | $659 | $659 | 0.5% |
| Grants to US organizations and governments | $2,500 | $2,500 | - | - | 0.2% | |
| Conferences, conventions and meetings | $1,204 | $1,204 | - | - | 0.1% | |
| Total | $1,506,649 | 100% |
2020 · Form 990 · $1,460,086 spent · pay $742,582 · grants $9,149 · events $19,025
| Line | As described | Total | Program | Management | Fundraising | Share |
|---|---|---|---|---|---|---|
| Other salaries and wages | $504,438 | $389,101 | - | $115,337 | 34.5% | |
| Fees: other services | $395,406 | $331,982 | $20,700 | $42,724 | 27.1% | |
| Pay: officers, directors, trustees, key employees | $172,711 | $138,180 | $17,422 | $17,109 | 11.8% | |
| Fees: accounting | $83,090 | - | $83,090 | - | 5.7% | |
| Fees: lobbying | $60,000 | $60,000 | - | - | 4.1% | |
| Payroll taxes | $50,751 | $39,497 | $1,308 | $9,946 | 3.5% | |
| Information technology | $27,980 | $22,384 | $2,798 | $2,798 | 1.9% | |
| Other (as described) | MISCELLANEOUS | $22,273 | $18,916 | $1,680 | $1,677 | 1.5% |
| Conferences, conventions and meetings | $19,025 | $19,025 | - | - | 1.3% | |
| Depreciation and depletion | $17,726 | $14,181 | $1,772 | $1,773 | 1.2% | |
| Travel | $17,702 | $15,338 | $1,182 | $1,182 | 1.2% | |
| Other (as described) | BANK AND CREDIT CARD FE | $15,932 | $2,849 | $13,083 | - | 1.1% |
| Other employee benefits | $14,682 | $11,138 | $412 | $3,132 | 1.0% | |
| Office expenses | $14,677 | $11,839 | $2,838 | - | 1.0% | |
| Insurance | $12,779 | - | $12,779 | - | 0.9% | |
| Other (as described) | PRINTING AND POSTAGE | $10,507 | $4,675 | $453 | $5,379 | 0.7% |
| Other (as described) | CSN GROUPS | $9,578 | $9,578 | - | - | 0.7% |
| Grants to US individuals | $9,149 | $9,149 | - | - | 0.6% | |
| All other expenses | $1,680 | - | $1,680 | - | 0.1% | |
| Total | $1,460,086 | 100% |
2019 · Form 990 · $1,454,731 spent · pay $623,539 · grants $36,792 · events $75,688
| Line | As described | Total | Program | Management | Fundraising | Share |
|---|---|---|---|---|---|---|
| Fees: other services | $464,500 | $303,263 | $124,142 | $37,095 | 31.9% | |
| Other salaries and wages | $361,496 | $304,397 | $3,542 | $53,557 | 24.8% | |
| Pay: officers, directors, trustees, key employees | $184,480 | $50,820 | $81,300 | $52,360 | 12.7% | |
| Conferences, conventions and meetings | $75,688 | $75,688 | - | - | 5.2% | |
| Travel | $59,220 | $58,092 | $1,128 | - | 4.1% | |
| Payroll taxes | $42,307 | $27,174 | $7,031 | $8,102 | 2.9% | |
| Other (as described) | BAD DEBTS | $40,500 | - | $40,500 | - | 2.8% |
| Other (as described) | CSN GROUPS | $37,260 | $37,260 | - | - | 2.6% |
| Grants to US individuals | $36,792 | $36,792 | - | - | 2.5% | |
| Other employee benefits | $35,256 | - | $35,256 | - | 2.4% | |
| Office expenses | $21,484 | $14,079 | $7,405 | - | 1.5% | |
| Depreciation and depletion | $19,617 | $15,694 | $1,961 | $1,962 | 1.3% | |
| Insurance | $16,965 | - | $16,965 | - | 1.2% | |
| Other (as described) | MISCELLANEOUS | $16,752 | $4,162 | $12,590 | - | 1.2% |
| Information technology | $16,433 | $8,284 | $8,149 | - | 1.1% | |
| Other (as described) | BANK AND CREDIT CARD FE | $13,442 | - | $375 | $13,067 | 0.9% |
| All other expenses | $12,539 | $11,223 | $1,316 | - | 0.9% | |
| Total | $1,454,731 | 100% |
2018 · Form 990 · $1,741,386 spent · pay $648,101 · grants $59,375 · events $364,100
| Line | As described | Total | Program | Management | Fundraising | Share |
|---|---|---|---|---|---|---|
| Fees: other services | $417,706 | $321,453 | $43,726 | $52,527 | 24.0% | |
| Other salaries and wages | $415,321 | $343,455 | $12,736 | $59,130 | 23.9% | |
| Conferences, conventions and meetings | $324,183 | $324,183 | - | - | 18.6% | |
| Pay: officers, directors, trustees, key employees | $165,480 | $132,384 | $16,548 | $16,548 | 9.5% | |
| Fees: accounting | $79,144 | - | $79,144 | - | 4.5% | |
| Travel | $45,359 | $43,103 | $1,128 | $1,128 | 2.6% | |
| Grants to US organizations and governments | $45,167 | $45,167 | - | - | 2.6% | |
| Other (as described) | CSN GROUPS | $42,516 | $42,516 | - | - | 2.4% |
| Payroll taxes | $41,978 | $34,391 | $2,117 | $5,470 | 2.4% | |
| Office expenses | $28,803 | $20,082 | $8,721 | - | 1.7% | |
| Other (as described) | BANK AND CREDIT CARD FE | $26,011 | $16,153 | $192 | $9,666 | 1.5% |
| Information technology | $25,955 | $21,264 | $2,345 | $2,346 | 1.5% | |
| Other employee benefits | $25,322 | $20,746 | $1,277 | $3,299 | 1.5% | |
| Other (as described) | MISCELLANEOUS | $20,779 | $8,461 | $12,318 | - | 1.2% |
| Insurance | $15,095 | - | $15,095 | - | 0.9% | |
| Grants to US individuals | $14,208 | $14,208 | - | - | 0.8% | |
| Depreciation and depletion | $7,087 | $5,670 | $708 | $709 | 0.4% | |
| Fees: legal | $1,272 | - | $1,272 | - | 0.1% | |
| Fundraising events Event | direct expenses; gross income $29,170 | $39,917 | reported apart | |||
| Total | $1,741,386 | 100% |
2017 · Form 990 · $1,654,106 spent · pay $776,996 · grants $81,328 · events $131,040
| Line | As described | Total | Program | Management | Fundraising | Share |
|---|---|---|---|---|---|---|
| Other salaries and wages | $409,195 | $327,356 | $61,379 | $20,460 | 24.7% | |
| Fees: other services | $358,560 | $277,173 | $81,387 | - | 21.7% | |
| Pay: officers, directors, trustees, key employees | $292,527 | $234,022 | $43,879 | $14,626 | 17.7% | |
| Conferences, conventions and meetings | $119,671 | $119,671 | - | - | 7.2% | |
| Travel | $93,611 | $56,559 | $29,578 | $7,474 | 5.7% | |
| Fees: accounting | $68,311 | - | $68,311 | - | 4.1% | |
| Payroll taxes | $57,120 | $45,696 | $8,568 | $2,856 | 3.5% | |
| Grants to US organizations and governments | $56,500 | $56,500 | - | - | 3.4% | |
| Advertising and promotion | $55,679 | $80 | - | $55,599 | 3.4% | |
| Office expenses | $47,108 | $26,431 | $19,761 | $916 | 2.8% | |
| Information technology | $26,149 | $796 | $25,353 | - | 1.6% | |
| Grants to US individuals | $24,828 | $24,828 | - | - | 1.5% | |
| Other employee benefits | $18,154 | $14,523 | $2,723 | $908 | 1.1% | |
| Other (as described) | Miscellaneous | $18,004 | $5,134 | $12,631 | $239 | 1.1% |
| Insurance | $5,728 | $4,583 | $859 | $286 | 0.3% | |
| Depreciation and depletion | $2,961 | - | $2,961 | - | 0.2% | |
| Fundraising events Event | direct expenses; gross income $11,369 | $11,369 | reported apart | |||
| Total | $1,654,106 | 100% |
2016 · Form 990 · $1,582,225 spent · pay $622,351 · grants $67,491 · events $481,483
| Line | As described | Total | Program | Management | Fundraising | Share |
|---|---|---|---|---|---|---|
| Conferences, conventions and meetings | $380,558 | $372,990 | $7,568 | - | 24.1% | |
| Other salaries and wages | $337,818 | $270,254 | $50,673 | $16,891 | 21.4% | |
| Pay: officers, directors, trustees, key employees | $236,858 | $189,486 | $35,529 | $11,843 | 15.0% | |
| Fees: other services | $210,893 | $183,670 | $27,223 | - | 13.3% | |
| Travel | $85,240 | $63,356 | $21,884 | - | 5.4% | |
| Grants to US organizations and governments | $58,000 | $58,000 | - | - | 3.7% | |
| Fees: accounting | $54,670 | - | $54,670 | - | 3.5% | |
| Office expenses | $50,824 | $35,330 | $14,738 | $756 | 3.2% | |
| Advertising and promotion | $41,920 | - | - | $41,920 | 2.6% | |
| Payroll taxes | $40,233 | $32,186 | $6,035 | $2,012 | 2.5% | |
| Information technology | $38,237 | $17,358 | $16,814 | $4,065 | 2.4% | |
| Other (as described) | Miscellaneous | $14,539 | $3,104 | $11,241 | $194 | 0.9% |
| Insurance | $10,302 | $8,242 | $1,545 | $515 | 0.7% | |
| Grants to US individuals | $9,491 | $9,491 | - | - | 0.6% | |
| Other employee benefits | $7,442 | $5,954 | $1,116 | $372 | 0.5% | |
| Depreciation and depletion | $5,200 | - | $5,200 | - | 0.3% | |
| Fundraising events Event | direct expenses; gross income $100,925 | $100,925 | reported apart | |||
| Total | $1,582,225 | 100% |
2015 · Form 990 · $1,271,958 spent · pay $590,917 · grants $19,135 · events $74,756
| Line | As described | Total | Program | Management | Fundraising | Share |
|---|---|---|---|---|---|---|
| Other salaries and wages | $301,211 | $240,169 | $45,182 | $15,860 | 23.7% | |
| Fees: other services | $278,042 | $278,042 | - | - | 21.9% | |
| Pay: officers, directors, trustees, key employees | $228,338 | $182,670 | $34,251 | $11,417 | 18.0% | |
| Fees: accounting | $91,494 | - | $91,494 | - | 7.2% | |
| Payments to affiliates | $87,431 | $87,431 | - | - | 6.9% | |
| Travel | $83,684 | $62,763 | $20,921 | - | 6.6% | |
| Payroll taxes | $41,420 | $33,936 | $6,213 | $1,271 | 3.3% | |
| Office expenses | $28,275 | $22,620 | $4,241 | $1,414 | 2.2% | |
| Other employee benefits | $19,948 | $15,958 | $2,992 | $998 | 1.6% | |
| All other expenses | $17,470 | $7,666 | $9,440 | $364 | 1.4% | |
| Information technology | $13,350 | $10,679 | $2,003 | $668 | 1.0% | |
| Other (as described) | Software licenses/aintenanace | $12,391 | $12,391 | - | - | 1.0% |
| Other (as described) | Bank and credit card fees | $11,707 | - | $11,707 | - | 0.9% |
| Other (as described) | Miscellaneous | $11,478 | - | $11,478 | - | 0.9% |
| Grants to US organizations and governments | $10,000 | $10,000 | - | - | 0.8% | |
| Other (as described) | Programs | $9,338 | $9,338 | - | - | 0.7% |
| Grants to US individuals | $9,135 | $9,135 | - | - | 0.7% | |
| Insurance | $6,702 | $5,362 | $1,005 | $335 | 0.5% | |
| Depreciation and depletion | $5,473 | - | $5,473 | - | 0.4% | |
| Occupancy | $5,071 | $4,056 | $761 | $254 | 0.4% | |
| Fundraising events Event | direct expenses; gross income $125,814 | $74,756 | reported apart | |||
| Total | $1,271,958 | 100% |
2014 · Form 990 · $1,990,816 spent · pay $568,578 · grants $30,189 · events $406,208
| Line | As described | Total | Program | Management | Fundraising | Share |
|---|---|---|---|---|---|---|
| Fees: other services | $522,396 | $489,320 | $32,166 | $910 | 26.2% | |
| Conferences, conventions and meetings | $406,208 | $406,208 | - | - | 20.4% | |
| Other salaries and wages | $403,506 | $322,805 | $60,525 | $20,176 | 20.3% | |
| Other (as described) | Payments to affiliates | $197,194 | $197,194 | - | - | 9.9% |
| Pay: officers, directors, trustees, key employees | $112,226 | $89,781 | $16,834 | $5,611 | 5.6% | |
| Travel | $49,050 | $35,604 | $13,446 | - | 2.5% | |
| Payroll taxes | $42,016 | $33,613 | $6,302 | $2,101 | 2.1% | |
| Other (as described) | Fundraising and marketing | $40,822 | - | - | $40,822 | 2.1% |
| All other expenses | $33,152 | $17,604 | $15,329 | $219 | 1.7% | |
| Fees: accounting | $31,996 | - | $31,996 | - | 1.6% | |
| Other (as described) | Program projects | $29,343 | $29,343 | - | - | 1.5% |
| Occupancy | $28,404 | $22,723 | $4,261 | $1,420 | 1.4% | |
| Grants to US organizations and governments | $25,000 | $25,000 | - | - | 1.3% | |
| Other (as described) | Printing and Publications | $20,074 | $1,330 | $18,744 | - | 1.0% |
| Information technology | $12,460 | $9,968 | $1,869 | $623 | 0.6% | |
| Other employee benefits | $10,830 | $8,664 | $1,625 | $541 | 0.5% | |
| Depreciation and depletion | $7,640 | - | $7,640 | - | 0.4% | |
| Insurance | $7,437 | $5,950 | $1,115 | $372 | 0.4% | |
| Office expenses | $5,873 | $4,699 | $881 | $293 | 0.3% | |
| Grants to US individuals | $5,189 | $5,189 | - | - | 0.3% | |
| Fundraising events Event | direct expenses; gross income $237,106 | - | reported apart | |||
| Total | $1,990,816 | 100% |
2013 · Form 990 · $1,402,781 spent · pay $507,195 · grants $17,315 · events $66,852
| Line | As described | Total | Program | Management | Fundraising | Share |
|---|---|---|---|---|---|---|
| Fees: other services | $526,868 | $478,969 | $27,290 | $20,609 | 37.6% | |
| Pay: officers, directors, trustees, key employees | $301,943 | $241,555 | $45,291 | $15,097 | 21.5% | |
| Other salaries and wages | $158,504 | $126,819 | $23,776 | $7,909 | 11.3% | |
| Other (as described) Event | Conference & Event Expenses | $66,852 | $66,852 | - | - | 4.8% |
| Other (as described) | Fundraising and marketing | $54,267 | - | - | $54,267 | 3.9% |
| Travel | $39,623 | $25,385 | $14,238 | - | 2.8% | |
| Other (as described) | Program projects | $38,625 | $38,625 | - | - | 2.8% |
| All other expenses | $36,989 | $21,206 | $15,257 | $526 | 2.6% | |
| Payroll taxes | $36,553 | $29,242 | $5,483 | $1,828 | 2.6% | |
| Fees: accounting | $28,508 | - | $28,508 | - | 2.0% | |
| Occupancy | $28,404 | $22,723 | $4,261 | $1,420 | 2.0% | |
| Other (as described) | Printing and Publications | $13,952 | $8,726 | $5,226 | - | 1.0% |
| Information technology | $11,738 | $9,390 | $1,761 | $587 | 0.8% | |
| Depreciation and depletion | $10,495 | - | $10,495 | - | 0.7% | |
| Other employee benefits | $10,195 | $8,140 | $1,529 | $526 | 0.7% | |
| Grants to US organizations and governments | $10,150 | $10,150 | - | - | 0.7% | |
| Insurance | $10,116 | $8,093 | $1,517 | $506 | 0.7% | |
| Office expenses | $9,984 | $7,987 | $1,498 | $499 | 0.7% | |
| Grants to US individuals | $7,165 | $7,165 | - | - | 0.5% | |
| Fees: legal | $1,850 | - | $1,850 | - | 0.1% | |
| Total | $1,402,781 | 100% |
2012 · Form 990 · $1,732,427 spent · pay $533,996 · grants $133,065 · events $496,830
| Line | As described | Total | Program | Management | Fundraising | Share |
|---|---|---|---|---|---|---|
| Other (as described) Event | Conference & Event Expenses | $496,830 | $496,830 | - | - | 28.7% |
| Fees: other services | $285,695 | $244,608 | $41,087 | - | 16.5% | |
| Other salaries and wages | $284,844 | $227,875 | $42,725 | $14,244 | 16.4% | |
| Pay: officers, directors, trustees, key employees | $199,899 | $159,919 | $29,986 | $9,994 | 11.5% | |
| Grants to US organizations and governments | $108,190 | $108,190 | - | - | 6.2% | |
| Other (as described) | Fundraising and marketing | $52,876 | - | - | $52,876 | 3.1% |
| Other (as described) | Printing and Publications | $45,317 | $35,048 | $10,269 | - | 2.6% |
| Payroll taxes | $40,126 | $32,101 | $6,019 | $2,006 | 2.3% | |
| Fees: accounting | $28,425 | - | $28,425 | - | 1.6% | |
| Occupancy | $28,404 | $22,723 | $4,261 | $1,420 | 1.6% | |
| Travel | $26,277 | $21,081 | $5,196 | - | 1.5% | |
| Grants to US individuals | $24,875 | $24,875 | - | - | 1.4% | |
| All other expenses | $21,645 | $8,731 | $11,639 | $1,275 | 1.2% | |
| Fees: professional fundraisers | $20,758 | - | - | $20,758 | 1.2% | |
| Depreciation and depletion | $13,349 | - | $13,349 | - | 0.8% | |
| Other (as described) | Bank and credit card fees | $12,455 | - | $12,455 | - | 0.7% |
| Information technology | $11,622 | $204 | $9,705 | $1,713 | 0.7% | |
| Office expenses | $11,438 | $4,281 | $7,157 | - | 0.7% | |
| Insurance | $10,275 | $8,220 | $1,541 | $514 | 0.6% | |
| Other employee benefits | $9,127 | $7,302 | $1,369 | $456 | 0.5% | |
| Total | $1,732,427 | 100% |
Federal lobbying
Lobbying Disclosure Act reports naming a client or registrant with this organization's name and state. Spent: what lobbying for it cost (firm income plus its own reported expenses). Earned: income it reported as a lobbying firm.
| Year | Spent | Earned | Reports |
|---|---|---|---|
| 2026 | $36,000 | 6 | |
| 2025 | $48,000 | 7 | |
| 2024 | $10,000 | 2 |
Issues: Government Issues, Health Issues, Budget/Appropriations
Firms hired: HARPER & BAILEY GOVERNMENTAL SOLUTIONS LLC, WINNING STRATEGIES WASHINGTON
Federal grants and contracts
Awards from USAspending.gov to a recipient with this organization's name and zip code. Obligations by federal fiscal year (October to September); each award links to its page on usaspending.gov.
| Fiscal year | Grants and other assistance | Contracts | Awards |
|---|---|---|---|
| 2026 | $200,000 | $0 | 1 |
Largest awards · 1 shown
| Year | Agency | Kind | Program | Description | Obligated |
|---|---|---|---|---|---|
| 2026 | Centers for Disease Control and Prevention | Grant or other assistance | DISABILITIES PREVENTION 93.184 | TRANSLATING FRAGILE X KNOWLEDGE INTO ACTION: A NFXF NATIONWIDE DISSEMINATION AND EDUCATION INITIATIVE SUPPORTED BY THE CENTERS FOR DISEASE CONTROL AND PREVENTIO | $200,000 |
State business registration
- NATIONAL FRAGILE X FOUNDATION VA, Employee benefit plan sponsor (Form 5500), Filed for plan year 2021
The same business name in the same state, from the state’s official registry data.
Also on this site Fuzzy
| Record | Name as filed | Where | Dataset | Matched by |
|---|---|---|---|---|
| Plan sponsor | NATIONAL FRAGILE X FOUNDATION | VA | Form 5500 (employee benefit plans) | EIN (EXACT) |
Matched by name (and state) or EIN only; a shared name is not proof of the same person or organization.
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