NATIONAL FRAGILE X FOUNDATION: Form 990, tax year 2022

View the entire original 990 at ProPublica ↗

Organization
NATIONAL FRAGILE X FOUNDATION (EIN 84-0960471)
Tax period
2022-01-01 to 2022-12-31
Filed
2023-06-16
IRS object ID
202311679349300506
Schema version
2022v5.0
Source
Download XML · Original 990 at ProPublica

Every field in the e-filed return. Faint text is the IRS element name, for citing.

Return header ReturnHeader

FieldValueIRS element (for citing)
Return2023-06-16T07:22:17-05:00ReturnTs
Tax Period End2022-12-31TaxPeriodEndDt

Preparer Firm PreparerFirmGrp

FieldValueIRS element (for citing)
Preparer Firm EIN470900880PreparerFirmEIN

Preparer Firm Name PreparerFirmName

FieldValueIRS element (for citing)
Business Name Line1CALIBRE CPA GROUP PLLCBusinessNameLine1Txt

Preparer US Address PreparerUSAddress

FieldValueIRS element (for citing)
Address Line17501 WISCONSIN AVENUE SUITE 1200AddressLine1Txt
Address Line2WESTAddressLine2Txt
CityBETHESDACityNm
State AbbreviationMDStateAbbreviationCd
ZIP20814ZIPCd
FieldValueIRS element (for citing)
Return Type990ReturnTypeCd
Tax Period Begin2022-01-01TaxPeriodBeginDt

Filer Filer

FieldValueIRS element (for citing)
EIN840960471EIN

Business Name BusinessName

FieldValueIRS element (for citing)
Business Name Line1THE NATIONAL FRAGILE X FOUNDATIONBusinessNameLine1Txt
FieldValueIRS element (for citing)
Business Name ControlNATIBusinessNameControlTxt
Phone8006888765PhoneNum

US Address USAddress

FieldValueIRS element (for citing)
Address Line11012 14TH ST NW 500AddressLine1Txt
CityWASHINGTONCityNm
State AbbreviationDCStateAbbreviationCd
ZIP20005ZIPCd

Business Officer BusinessOfficerGrp

FieldValueIRS element (for citing)
PersonHILARY ROSSELOTPersonNm
Person TitleEXECUTIVE DIRECTORPersonTitleTxt
Phone8006888765PhoneNum
Signature2023-06-16SignatureDt
Discuss With Paid PreparerYes (1)DiscussWithPaidPreparerInd

Signing Officer SigningOfficerGrp

Person Full Name PersonFullName

FieldValueIRS element (for citing)
Person FirstHILARYPersonFirstNm
Person LastROSSELOTPersonLastNm
FieldValueIRS element (for citing)
SSN999009999SSN
FieldValueIRS element (for citing)
IRS Responsible Prty Info Curr0IRSResponsiblePrtyInfoCurrInd

Preparer Person PreparerPersonGrp

FieldValueIRS element (for citing)
Preparer PersonERIN CRANMERPreparerPersonNm
PTINP01712644PTIN
Phone2023319880PhoneNum

Additional Filer Information AdditionalFilerInformation

Trusted Customer TrustedCustomerGrp

FieldValueIRS element (for citing)
Trusted Customer2TrustedCustomerCd
Authentication Assurance LevelAAL1AuthenticationAssuranceLevelCd
Identity Assurance LevelIAL1IdentityAssuranceLevelCd
FieldValueIRS element (for citing)
Tax2022TaxYr
Build TS2023-04-26 12:10:37ZBuildTS

Form 990 IRS990

FieldValueIRS element (for citing)
Principal OfficerHILARY ROSSELOTPrincipalOfficerNm

US Address USAddress

FieldValueIRS element (for citing)
Address Line11012 14TH ST NW 500AddressLine1Txt
CityWASHINGTONCityNm
State AbbreviationDCStateAbbreviationCd
ZIP20005ZIPCd
FieldValueIRS element (for citing)
Gross Receipts$3,240,795GrossReceiptsAmt
Group Return For Affiliates0GroupReturnForAffiliatesInd
Organization501c3Yes (X)Organization501c3Ind
Website AddressWWW.FRAGILEX.ORGWebsiteAddressTxt
Type Of Organization CorpYes (X)TypeOfOrganizationCorpInd
Formation2001FormationYr
Legal Domicile StateCALegalDomicileStateCd
Activity Or MissionTO PROVIDE UNWAVERING SUPPORT FOR EVERY FAMILY AFFECTED BY FRAGILE X WHILE RELENTLESSLY PURSUING A CURE.ActivityOrMissionDesc
Voting Members Governing Body14VotingMembersGoverningBodyCnt
Voting Members Independent14VotingMembersIndependentCnt
Total Employee8TotalEmployeeCnt
Total Volunteers0TotalVolunteersCnt
Total Gross UBI$0TotalGrossUBIAmt
Net Unrelated Bus Txbl Incm$0NetUnrelatedBusTxblIncmAmt
PY Contributions Grants$1,385,797PYContributionsGrantsAmt
CY Contributions Grants$2,562,898CYContributionsGrantsAmt
PY Program Service Revenue$253,483PYProgramServiceRevenueAmt
CY Program Service Revenue$665,887CYProgramServiceRevenueAmt
PY Investment Income$844PYInvestmentIncomeAmt
CY Investment Income$1,762CYInvestmentIncomeAmt
PY Other Revenue$12,594PYOtherRevenueAmt
CY Other Revenue$10,248CYOtherRevenueAmt
PY Total Revenue$1,652,718PYTotalRevenueAmt
CY Total Revenue$3,240,795CYTotalRevenueAmt
PY Grants And Similar Paid$19,025PYGrantsAndSimilarPaidAmt
CY Grants And Similar Paid$156,514CYGrantsAndSimilarPaidAmt
PY Benefits Paid To Members$0PYBenefitsPaidToMembersAmt
CY Benefits Paid To Members$0CYBenefitsPaidToMembersAmt
PY Salaries Comp Emp Bnft Paid$753,654PYSalariesCompEmpBnftPaidAmt
CY Salaries Comp Emp Bnft Paid$738,153CYSalariesCompEmpBnftPaidAmt
PY Total Prof Fndrsng Expns$0PYTotalProfFndrsngExpnsAmt
CY Total Prof Fndrsng Expns$0CYTotalProfFndrsngExpnsAmt
CY Total Fundraising Expense$203,852CYTotalFundraisingExpenseAmt
PY Other Expenses$733,970PYOtherExpensesAmt
CY Other Expenses$1,196,875CYOtherExpensesAmt
PY Total Expenses$1,506,649PYTotalExpensesAmt
CY Total Expenses$2,091,542CYTotalExpensesAmt
PY Revenues Less Expenses$146,069PYRevenuesLessExpensesAmt
CY Revenues Less Expenses$1,149,253CYRevenuesLessExpensesAmt
Total Assets BOY$1,539,237TotalAssetsBOYAmt
Total Assets EOY$2,775,189TotalAssetsEOYAmt
Total Liabilities BOY$222,894TotalLiabilitiesBOYAmt
Total Liabilities EOY$304,549TotalLiabilitiesEOYAmt
Net Assets Or Fund Balances BOY$1,316,343NetAssetsOrFundBalancesBOYAmt
Net Assets Or Fund Balances EOY$2,470,640NetAssetsOrFundBalancesEOYAmt
MissionTHE NATIONAL FRAGILE X FOUNDATION UNITES THE FRAGILE X COMMUNITY TO ENRICH LIVES THROUGH EDUCATIONAL AND EMOTIONAL SUPPORT, PROMOTES PUBLIC AND PROFESSIONAL AWARENESS, AND ADVANCES RESEARCH TOWARD IMPROVED TREATMENTS AND A CURE FOR FRAGILE X.MissionDesc
Significant New Program Srvc0SignificantNewProgramSrvcInd
Significant Change0SignificantChangeInd
Expense$954,532ExpenseAmt
Grant$23,965GrantAmt
Revenue$23,765RevenueAmt
DescEDUCATION AND SUPPORT - THE NFXF PROVIDES PERSONALIZED SUPPORT, RESOURCES AND REFERRALS TO INDIVIDUALS AND FAMILIES ON THE MULTITUDE OF ISSUES THEY FACE, INCLUDING DIAGNOSIS, GENETICS, BEHAVIOR, TREATMENTS, EDUCATIONAL PLANNING, EMPLOYMENT AND ADULT ISSUES. THE NFXF ORGANIZES EDUCATIONAL CONENT INCLUDING RESOURCES, WEBINARS, VIRUTAL EVENTS, AND EDUCATIONAL CONFERENCES FOR FAMILIES AND PROFESSIONALS ABOUT FRAGILE X SYNDROME AND THE ASSOCIATED CONDITIONS AND DISORDERS TO PROVIDE HOPE AND HELP FAMILIES OVERCOME THE DAILY CHALLENGES OF LIVING WITH FX.Desc

Prog Srvc Accom Acty2 ProgSrvcAccomActy2Grp

FieldValueIRS element (for citing)
Expense$671,119ExpenseAmt
Grant$132,549GrantAmt
Revenue$648,313RevenueAmt
DescRESEARCH GRANTS - THE NFXF FACILITATES SEVERAL MAJOR RESEARCH STRATEGIES. THE NFXF DATA REPOSITORY, WHICH LEVERAGES PREVIOUSLY COLLECTED DATA FOR NEW PROOF-OF-CONCEPT DRUG TREAMTENT, OUTCOME MEASURE DEVELOPMENT, AND OTHER MEANINGFUL SCIENTIFIC WORK. THE NFXF ALSO FUNDS SUMMER SCHOLAR RESEARCH AWARDS TO PROMOTE THE DEVELOPMENT OF YOUNGER SCIENTISTS IN THE FIELD. THE NFXF ALSO ENABLES A RESEARCH READINESS PROGRAM, A COLLABORATIVE PIPELINE SUPPORTING THE DEVELOPMENT AND EXECUTION OF SCIENTIFICALLY-SOUND, RELEVANT, PATIENT-CENTRIC RESEARCH FROM INITIAL PROGRAM DEVELOPMENT THROUGH RESULTS DISSEMINATION.Desc

Prog Srvc Accom Acty3 ProgSrvcAccomActy3Grp

FieldValueIRS element (for citing)
Expense$77,151ExpenseAmt
Revenue$4,057RevenueAmt
DescADVOCACY - THE NFXF ORGANIZES AND SUPPORTS A VARIETY OF PERSONAL AND LEGISLATIVE ADVOCACY INITIATIVES. THIS INCLUDES THE VIBRANT AND DEDICATED NETWORK OF VOLUNTEER-LED CHAPTERS ACROSS THE U.S., THE COMMUNITY SUPPORT NETWORK, THESE CHAPTERS DELIVER THE NFXF MISSION ON A LOCAL LEVEL. THE NFXF FACILITATES A YEAR-ROUND LEGISLATIVE ADVOCACY PROGRAM THAT INCLUES AN ANNUAL FLY IN FOR FAMILIES LIVING WITH FRAGILE X TO ADVOCATE FOR RESEARCH FUNDIN-G FOR FRAGILE X AND LEGISLATION THAT POSITIVELY IMPACTS THE COMMUNITY.Desc
FieldValueIRS element (for citing)
Total Program Service Expenses$1,702,802TotalProgramServiceExpensesAmt
Described In Section501c3Yes (1)DescribedInSection501c3Ind
Schedule B RequiredYes (1)ScheduleBRequiredInd
Political Campaign Acty0PoliticalCampaignActyInd
Lobbying ActivitiesYes (1)LobbyingActivitiesInd
Subject To Proxy Tax0SubjectToProxyTaxInd
Donor Advised Fund0DonorAdvisedFundInd
Conservation Easements0ConservationEasementsInd
Collections Of Art0CollectionsOfArtInd
Credit Counseling0CreditCounselingInd
Donor Rstr Or Quasi Endowments0DonorRstrOrQuasiEndowmentsInd
Report Land Building EquipmentYes (1)ReportLandBuildingEquipmentInd
Report Investments Other Sec0ReportInvestmentsOtherSecInd
Report Program Related Invst0ReportProgramRelatedInvstInd
Report Other Assets0ReportOtherAssetsInd
Report Other LiabilitiesYes (1)ReportOtherLiabilitiesInd
Include FIN48 FootnoteYes (1)IncludeFIN48FootnoteInd
Independent Audit Fincl StmtYes (1)IndependentAuditFinclStmtInd
Consolidated Audit Fincl Stmt0ConsolidatedAuditFinclStmtInd
School Operating0SchoolOperatingInd
Foreign Office0ForeignOfficeInd
Foreign Activities0ForeignActivitiesInd
More Than5000 K To Org0MoreThan5000KToOrgInd
More Than5000 K To Individuals0MoreThan5000KToIndividualsInd
Professional Fundraising0ProfessionalFundraisingInd
Fundraising Activities0FundraisingActivitiesInd
Gaming Activities0GamingActivitiesInd
Operate Hospital0OperateHospitalInd
Grants To OrganizationsYes (1)GrantsToOrganizationsInd
Grants To IndividualsYes (1)GrantsToIndividualsInd
Schedule J Required0ScheduleJRequiredInd
Tax Exempt Bonds0TaxExemptBondsInd
Engaged In Excess Benefit Trans0EngagedInExcessBenefitTransInd
PY Excess Benefit Trans0PYExcessBenefitTransInd
Loan Outstanding0LoanOutstandingInd
Grant To Related Person0GrantToRelatedPersonInd
Business Rln With Org Mem0BusinessRlnWithOrgMemInd
Business Rln With Fam Mem0BusinessRlnWithFamMemInd
Business Rln With35 Ctrl Ent0BusinessRlnWith35CtrlEntInd
Deductible Non Cash ContriYes (1)DeductibleNonCashContriInd
Deductible Art Contribution0DeductibleArtContributionInd
Terminate Operations0TerminateOperationsInd
Partial Liquidation0PartialLiquidationInd
Disregarded Entity0DisregardedEntityInd
Related Entity0RelatedEntityInd
Related Organization Ctrl Ent0RelatedOrganizationCtrlEntInd
Trnsfr Exmpt Non Chrtbl Rltd Org0TrnsfrExmptNonChrtblRltdOrgInd
Activities Conducted Prtshp0ActivitiesConductedPrtshpInd
Schedule O RequiredYes (1)ScheduleORequiredInd
IRP Document3IRPDocumentCnt
IRP Document W2 G0IRPDocumentW2GCnt
Backup Wthld ComplianceYes (1)BackupWthldComplianceInd
Employee8EmployeeCnt
Employment Tax Returns FiledYes (1)EmploymentTaxReturnsFiledInd
Unrelated Bus Incm Over Limit0UnrelatedBusIncmOverLimitInd
Foreign Financial Account0ForeignFinancialAccountInd
Prohibited Tax Shelter Trans0ProhibitedTaxShelterTransInd
Taxable Party Notification0TaxablePartyNotificationInd
Nondeductible Contributions0NondeductibleContributionsInd
Quid Pro Quo Contributions0QuidProQuoContributionsInd
Form8282 Property Disposed Of0Form8282PropertyDisposedOfInd
Rcv Fnds To Pay Prsnl Bnft Cntrct0RcvFndsToPayPrsnlBnftCntrctInd
Pay Premiums Prsnl Bnft Cntrct0PayPremiumsPrsnlBnftCntrctInd
Indoor Tanning Services0IndoorTanningServicesInd
Subj To Tax Rmnrtn Ex Prcht Pymt0SubjToTaxRmnrtnExPrchtPymtInd
Subject To Excs Tax Net Invst Inc0SubjectToExcsTaxNetInvstIncInd
Info In Schedule O Part VIYes (X)InfoInScheduleOPartVIInd
Governing Body Voting Members14GoverningBodyVotingMembersCnt
Independent Voting Member14IndependentVotingMemberCnt
Family Or Business Rln0FamilyOrBusinessRlnInd
Delegation Of Mgmt Duties0DelegationOfMgmtDutiesInd
Change To Org Documents0ChangeToOrgDocumentsInd
Material Diversion Or Misuse0MaterialDiversionOrMisuseInd
Members Or Stockholders0MembersOrStockholdersInd
Election Of Board Members0ElectionOfBoardMembersInd
Decisions Subject To Approva0DecisionsSubjectToApprovaInd
Minutes Of Governing BodyYes (1)MinutesOfGoverningBodyInd
Minutes Of CommitteesYes (1)MinutesOfCommitteesInd
Officer Mailing Address0OfficerMailingAddressInd
Local ChaptersYes (1)LocalChaptersInd
Policies Reference ChaptersYes (1)PoliciesReferenceChaptersInd
Form990 Provided To Gvrn BodyYes (1)Form990ProvidedToGvrnBodyInd
Conflict Of Interest PolicyYes (1)ConflictOfInterestPolicyInd
Annual Disclosure Covered PrsnYes (1)AnnualDisclosureCoveredPrsnInd
Regular Monitoring EnfrcYes (1)RegularMonitoringEnfrcInd
Whistleblower PolicyYes (1)WhistleblowerPolicyInd
Document Retention PolicyYes (1)DocumentRetentionPolicyInd
Compensation Process CEOYes (1)CompensationProcessCEOInd
Compensation Process Other0CompensationProcessOtherInd
Investment In Joint Venture0InvestmentInJointVentureInd
States Where Copy Of Return Is FldCAStatesWhereCopyOfReturnIsFldCd
Own WebsiteYes (X)OwnWebsiteInd
Upon RequestYes (X)UponRequestInd

Books In Care Of Detail BooksInCareOfDetail

Business Name BusinessName

FieldValueIRS element (for citing)
Business Name Line1NEOSYSTEMSBusinessNameLine1Txt
FieldValueIRS element (for citing)
Phone2027476202PhoneNum

US Address USAddress

FieldValueIRS element (for citing)
Address Line111107 SUNSET HILLS RD STE 100AddressLine1Txt
CityRESTONCityNm
State AbbreviationVAStateAbbreviationCd
ZIP20190ZIPCd

Form990 Part VII Section A Form990PartVIISectionAGrp (17 entries)

TitleTitleTxtAverage Hours Per WeekAverageHoursPerWeekRtIndividual Trustee Or DirectorIndividualTrusteeOrDirectorIndOfficerOfficerIndReportable Comp From OrgReportableCompFromOrgAmtReportable Comp From Rltd OrgReportableCompFromRltdOrgAmtOther CompensationOtherCompensationAmtHighest Compensated EmployeeHighestCompensatedEmployeeInd
EMILY MACK
BOARD PRESIDENT2.00Yes (X)Yes (X)$0$0$0
EVAN DAVIS
BOARD VICE-PRESIDENT2.00Yes (X)Yes (X)$0$0$0
ANTHONY FASCIANO
BOARD MEMBER1.00Yes (X)$0$0$0
RAJAT SARUP
BOARD TREASURER2.00Yes (X)Yes (X)$0$0$0
KARA FRECH
BOARD MEMBER1.00Yes (X)$0$0$0
ABBY GAUNT
BOARD SECRETARY2.00Yes (X)Yes (X)$0$0$0
JOE GARERA
BOARD MEMBER1.00Yes (X)$0$0$0
REYMUNDO LOZANO
BOARD MEMBER1.00Yes (X)$0$0$0
DENNY HAUGEN
BOARD MEMBER1.00Yes (X)$0$0$0
JED SEIFERT
BOARD MEMBER1.00Yes (X)$0$0$0
REBECCA SCHAEFFER
BOARD MEMBER1.00Yes (X)$0$0$0
SHARI SILVER
BOARD MEMBER1.00Yes (X)$0$0$0
LAURIE BRIDGES
BOARD MEMBER1.00Yes (X)$0$0$0
VICTORIA WILKINS
BOARD MEMBER1.00Yes (X)$0$0$0
HILARY ROSSELOT
EXECUTIVE DIRECTOR40.00Yes (X)$129,303$0$19,287
LINDA SORENSON
EXECUTIVE DIRECTOR40.00Yes (X)$86,940$0$5,194
KRISTIN BOGART
SENIOR DIRECTOR, DEVELOPMENT & COMMUNICATION40.00$107,381$0$15,872Yes (X)
FieldValueIRS element (for citing)
Total Reportable Comp From Org$323,624TotalReportableCompFromOrgAmt
Tot Reportable Comp Rltd Org$0TotReportableCompRltdOrgAmt
Total Other Compensation$40,353TotalOtherCompensationAmt
Indiv Rcvd Greater Than100 K2IndivRcvdGreaterThan100KCnt
Former Ofcr Employees Listed0FormerOfcrEmployeesListedInd
Total Comp Greater Than150 K0TotalCompGreaterThan150KInd
Compensation From Other Srcs0CompensationFromOtherSrcsInd

Contractor Compensation ContractorCompensationGrp (2 entries)

Address Line1ContractorAddress/USAddress/AddressLine1TxtCityContractorAddress/USAddress/CityNmState AbbreviationContractorAddress/USAddress/StateAbbreviationCdZIPContractorAddress/USAddress/ZIPCdServicesServicesDescCompensationCompensationAmt
PRI INC
222 PARK AVENUEMANALAPANNJ07726WEBSITE CONTENT AND MAINTENANCE$110,544
TOWN AND COUNTRY RESORT
500 HOTEL CIRCLENORTH SAN DIEGOCA92108HOTEL$105,927
FieldValueIRS element (for citing)
Cntrct Rcvd Greater Than100 K2CntrctRcvdGreaterThan100KCnt
All Other Contributions$2,562,898AllOtherContributionsAmt
Noncash Contributions$76,480NoncashContributionsAmt
Total Contributions$2,562,898TotalContributionsAmt

Program Service Revenue ProgramServiceRevenueGrp (3 entries)

DescDescBusinessBusinessCdTotal Revenue ColumnTotalRevenueColumnAmtRelated Or Exempt Func IncomeRelatedOrExemptFuncIncomeAmt
CONFERENCES AND MEETIN900099$635,847$635,847
SERVICE FEES900099$27,510$27,510
OTHER PROGRAM REVENUE900099$2,530$2,530
FieldValueIRS element (for citing)
Total Program Service Revenue$665,887TotalProgramServiceRevenueAmt

Investment Income InvestmentIncomeGrp

FieldValueIRS element (for citing)
Total Revenue Column$1,762TotalRevenueColumnAmt
Exclusion$1,762ExclusionAmt
FieldValueIRS element (for citing)
Gross Sales Of Inventory$10,248GrossSalesOfInventoryAmt
Cost Of Goods Sold$0CostOfGoodsSoldAmt

Net Income Or Loss NetIncomeOrLossGrp

FieldValueIRS element (for citing)
Total Revenue Column$10,248TotalRevenueColumnAmt
Related Or Exempt Func Income$10,248RelatedOrExemptFuncIncomeAmt

Total Revenue TotalRevenueGrp

FieldValueIRS element (for citing)
Total Revenue Column$3,240,795TotalRevenueColumnAmt
Related Or Exempt Func Income$676,135RelatedOrExemptFuncIncomeAmt
Unrelated Business Revenue$0UnrelatedBusinessRevenueAmt
Exclusion$1,762ExclusionAmt
FieldValueIRS element (for citing)
Info In Schedule O Part IXYes (X)InfoInScheduleOPartIXInd

Grants To Domestic Orgs GrantsToDomesticOrgsGrp

FieldValueIRS element (for citing)
Total$119,959TotalAmt
Program Services$119,959ProgramServicesAmt

Grants To Domestic Individuals GrantsToDomesticIndividualsGrp

FieldValueIRS element (for citing)
Total$36,555TotalAmt
Program Services$36,555ProgramServicesAmt

Comp Current Ofcr Directors CompCurrentOfcrDirectorsGrp

FieldValueIRS element (for citing)
Total$240,723TotalAmt
Program Services$192,579ProgramServicesAmt
Management And General$24,072ManagementAndGeneralAmt
Fundraising$24,072FundraisingAmt

Other Salaries And Wages OtherSalariesAndWagesGrp

FieldValueIRS element (for citing)
Total$420,585TotalAmt
Program Services$308,648ProgramServicesAmt
Fundraising$111,937FundraisingAmt

Other Employee Benefits OtherEmployeeBenefitsGrp

FieldValueIRS element (for citing)
Total$26,243TotalAmt
Program Services$20,413ProgramServicesAmt
Fundraising$5,830FundraisingAmt

Payroll Taxes PayrollTaxesGrp

FieldValueIRS element (for citing)
Total$50,602TotalAmt
Program Services$37,994ProgramServicesAmt
Management And General$1,757ManagementAndGeneralAmt
Fundraising$10,851FundraisingAmt

Fees For Services Accounting FeesForServicesAccountingGrp

FieldValueIRS element (for citing)
Total$72,880TotalAmt
Management And General$72,880ManagementAndGeneralAmt

Fees For Services Lobbying FeesForServicesLobbyingGrp

FieldValueIRS element (for citing)
Total$60,000TotalAmt
Program Services$60,000ProgramServicesAmt

Fees For Services Other FeesForServicesOtherGrp

FieldValueIRS element (for citing)
Total$590,600TotalAmt
Program Services$524,303ProgramServicesAmt
Management And General$46,482ManagementAndGeneralAmt
Fundraising$19,815FundraisingAmt

Advertising AdvertisingGrp

FieldValueIRS element (for citing)
Total$53,520TotalAmt
Program Services$30,452ProgramServicesAmt
Fundraising$23,068FundraisingAmt

Office Expenses OfficeExpensesGrp

FieldValueIRS element (for citing)
Total$25,727TotalAmt
Program Services$22,971ProgramServicesAmt
Management And General$1,378ManagementAndGeneralAmt
Fundraising$1,378FundraisingAmt

Information Technology InformationTechnologyGrp

FieldValueIRS element (for citing)
Total$27,803TotalAmt
Program Services$22,242ProgramServicesAmt
Management And General$2,781ManagementAndGeneralAmt
Fundraising$2,780FundraisingAmt

Travel TravelGrp

FieldValueIRS element (for citing)
Total$47,875TotalAmt
Program Services$47,875ProgramServicesAmt

Conferences Meetings ConferencesMeetingsGrp

FieldValueIRS element (for citing)
Total$222,020TotalAmt
Program Services$222,020ProgramServicesAmt

Depreciation Depletion DepreciationDepletionGrp

FieldValueIRS element (for citing)
Total$1,601TotalAmt
Program Services$1,281ProgramServicesAmt
Management And General$160ManagementAndGeneralAmt
Fundraising$160FundraisingAmt

Insurance InsuranceGrp

FieldValueIRS element (for citing)
Total$14,257TotalAmt
Program Services$11,406ProgramServicesAmt
Management And General$1,425ManagementAndGeneralAmt
Fundraising$1,426FundraisingAmt

Other Expenses OtherExpensesGrp (4 entries)

DescDescTotalTotalAmtManagement And GeneralManagementAndGeneralAmtProgram ServicesProgramServicesAmtFundraisingFundraisingAmt
BANK AND CREDIT CARD FE$27,744$27,744
PRINTING AND POSTAGE$15,183$739$13,705$739
BAD DEBTS$8,500$8,500
CSN GROUPS$1,719$1,719

All Other Expenses AllOtherExpensesGrp

FieldValueIRS element (for citing)
Total$27,446TotalAmt
Program Services$20,180ProgramServicesAmt
Management And General$5,470ManagementAndGeneralAmt
Fundraising$1,796FundraisingAmt

Total Functional Expenses TotalFunctionalExpensesGrp

FieldValueIRS element (for citing)
Total$2,091,542TotalAmt
Program Services$1,702,802ProgramServicesAmt
Management And General$184,888ManagementAndGeneralAmt
Fundraising$203,852FundraisingAmt

Cash Non Interest Bearing CashNonInterestBearingGrp

FieldValueIRS element (for citing)
BOY$837,137BOYAmt
EOY$2,111,774EOYAmt

Savings And Temp Cash Invst SavingsAndTempCashInvstGrp

FieldValueIRS element (for citing)
BOY$250,460BOYAmt
EOY$251,926EOYAmt

Pledges And Grants Receivable PledgesAndGrantsReceivableGrp

FieldValueIRS element (for citing)
BOY$146,576BOYAmt
EOY$109,508EOYAmt

Accounts Receivable AccountsReceivableGrp

FieldValueIRS element (for citing)
BOY$5,000BOYAmt

Inventories For Sale Or Use InventoriesForSaleOrUseGrp

FieldValueIRS element (for citing)
BOY$4,820BOYAmt

Prepaid Expenses Defrd Charges PrepaidExpensesDefrdChargesGrp

FieldValueIRS element (for citing)
BOY$13,456BOYAmt
EOY$14,298EOYAmt
FieldValueIRS element (for citing)
Land Bldg Equip Cost Or Other Bss$62,647LandBldgEquipCostOrOtherBssAmt
Land Bldg Equip Accum Deprec$61,095LandBldgEquipAccumDeprecAmt

Land Bldg Equip Basis Net LandBldgEquipBasisNetGrp

FieldValueIRS element (for citing)
BOY$3,153BOYAmt
EOY$1,552EOYAmt

Investments Pub Traded Sec InvestmentsPubTradedSecGrp

FieldValueIRS element (for citing)
BOY$278,635BOYAmt
EOY$286,131EOYAmt

Total Assets TotalAssetsGrp

FieldValueIRS element (for citing)
BOY$1,539,237BOYAmt
EOY$2,775,189EOYAmt

Accounts Payable Accr Expnss AccountsPayableAccrExpnssGrp

FieldValueIRS element (for citing)
BOY$61,863BOYAmt
EOY$76,158EOYAmt

Deferred Revenue DeferredRevenueGrp

FieldValueIRS element (for citing)
BOY$10,877BOYAmt
EOY$88,694EOYAmt

Unsecured Notes Loans Payable UnsecuredNotesLoansPayableGrp

FieldValueIRS element (for citing)
BOY$150,000BOYAmt
EOY$139,543EOYAmt

Other Liabilities OtherLiabilitiesGrp

FieldValueIRS element (for citing)
BOY$154BOYAmt
EOY$154EOYAmt

Total Liabilities TotalLiabilitiesGrp

FieldValueIRS element (for citing)
BOY$222,894BOYAmt
EOY$304,549EOYAmt
FieldValueIRS element (for citing)
Organization Follows FASB117Yes (X)OrganizationFollowsFASB117Ind

No Donor Restriction Net Assets NoDonorRestrictionNetAssetsGrp

FieldValueIRS element (for citing)
BOY$1,076,499BOYAmt
EOY$2,323,178EOYAmt

Donor Restriction Net Assets DonorRestrictionNetAssetsGrp

FieldValueIRS element (for citing)
BOY$239,844BOYAmt
EOY$147,462EOYAmt

Total Net Assets Fund Balance TotalNetAssetsFundBalanceGrp

FieldValueIRS element (for citing)
BOY$1,316,343BOYAmt
EOY$2,470,640EOYAmt

Tot Liab Net Assets Fund Balance TotLiabNetAssetsFundBalanceGrp

FieldValueIRS element (for citing)
BOY$1,539,237BOYAmt
EOY$2,775,189EOYAmt
FieldValueIRS element (for citing)
Reconcilation Revenue Expnss$1,149,253ReconcilationRevenueExpnssAmt
Net Unrlzd Gains Losses Invst-$5,807NetUnrlzdGainsLossesInvstAmt
Prior Period Adjustments$10,851PriorPeriodAdjustmentsAmt
Other Changes In Net Assets$0OtherChangesInNetAssetsAmt
Info In Schedule O Part XIIYes (X)InfoInScheduleOPartXIIInd
Method Of Accounting AccrualYes (X)MethodOfAccountingAccrualInd
Accountant Compile Or Review0AccountantCompileOrReviewInd
FS AuditedYes (1)FSAuditedInd

FS Audited Basis FSAuditedBasisGrp

FieldValueIRS element (for citing)
Separate Basis Fincl StmtYes (X)SeparateBasisFinclStmtInd
FieldValueIRS element (for citing)
Audit CommitteeYes (1)AuditCommitteeInd
Federal Grant Audit Required0FederalGrantAuditRequiredInd

Schedule A IRS990ScheduleA

FieldValueIRS element (for citing)
Public Organization170Yes (X)PublicOrganization170Ind

Gifts Grants Contri Rcvd170 GiftsGrantsContriRcvd170Grp

FieldValueIRS element (for citing)
Current Tax Year Minus4 Years$1,261,376CurrentTaxYearMinus4YearsAmt
Current Tax Year Minus3 Years$1,429,398CurrentTaxYearMinus3YearsAmt
Current Tax Year Minus2 Years$1,233,854CurrentTaxYearMinus2YearsAmt
Current Tax Year Minus1 Year$1,385,797CurrentTaxYearMinus1YearAmt
Current Tax Year$2,562,898CurrentTaxYearAmt
Total$7,873,323TotalAmt

Total Calendar Year170 TotalCalendarYear170Grp

FieldValueIRS element (for citing)
Current Tax Year Minus4 Years$1,261,376CurrentTaxYearMinus4YearsAmt
Current Tax Year Minus3 Years$1,429,398CurrentTaxYearMinus3YearsAmt
Current Tax Year Minus2 Years$1,233,854CurrentTaxYearMinus2YearsAmt
Current Tax Year Minus1 Year$1,385,797CurrentTaxYearMinus1YearAmt
Current Tax Year$2,562,898CurrentTaxYearAmt
Total$7,873,323TotalAmt
FieldValueIRS element (for citing)
Substantial Contributors Tot$1,267,312SubstantialContributorsTotAmt
Public Support Total170$6,606,011PublicSupportTotal170Amt

Gross Investment Income170 GrossInvestmentIncome170Grp

FieldValueIRS element (for citing)
Current Tax Year Minus4 Years$2,851CurrentTaxYearMinus4YearsAmt
Current Tax Year Minus3 Years$2,893CurrentTaxYearMinus3YearsAmt
Current Tax Year Minus2 Years$1,290CurrentTaxYearMinus2YearsAmt
Current Tax Year Minus1 Year$844CurrentTaxYearMinus1YearAmt
Current Tax Year$1,762CurrentTaxYearAmt
Total$9,640TotalAmt

Other Income170 OtherIncome170Grp

FieldValueIRS element (for citing)
Current Tax Year Minus1 Year$447CurrentTaxYearMinus1YearAmt
Current Tax Year$2,530CurrentTaxYearAmt
Total$2,977TotalAmt
FieldValueIRS element (for citing)
Total Support$7,885,940TotalSupportAmt
Gross Receipts Rltd Activities$1,645,936GrossReceiptsRltdActivitiesAmt
Public Support CY1700.83770PublicSupportCY170Pct
Public Support PY1700.95420PublicSupportPY170Pct
Thirty Thr Pct Suprt Tests CY170Yes (X)ThirtyThrPctSuprtTestsCY170Ind

Schedule B IRS990ScheduleB

Contributor Information ContributorInformationGrp

FieldValueIRS element (for citing)
ContributorRESTRICTEDContributorNum

Contributor Business Name ContributorBusinessName

FieldValueIRS element (for citing)
Business Name Line1RESTRICTEDBusinessNameLine1

Contributor US Address ContributorUSAddress

FieldValueIRS element (for citing)
Address Line1RESTRICTEDAddressLine1
Address Line2RESTRICTEDAddressLine2
CityRESTRICTEDCity
StateRESTRICTEDState
ZIP CodeRESTRICTEDZIPCode
FieldValueIRS element (for citing)
Total ContributionsRESTRICTEDTotalContributionsAmt

Schedule C IRS990ScheduleC

FieldValueIRS element (for citing)
Volunteers0VolunteersInd
Paid Staff Or Management0PaidStaffOrManagementInd
Media Advertisements0MediaAdvertisementsInd
Mailings Members0MailingsMembersInd
Publications Or Broadcast0PublicationsOrBroadcastInd
Grants Other Organizations0GrantsOtherOrganizationsInd
Direct Contact LegislatorsYes (1)DirectContactLegislatorsInd
Direct Contact Legislators$60,000DirectContactLegislatorsAmt
Rallies Demonstrations0RalliesDemonstrationsInd
Other Activities0OtherActivitiesInd
Total Lobbying Expenditures$60,000TotalLobbyingExpendituresAmt
Not Described Section501c30NotDescribedSection501c3Ind

Supplemental Information Detail SupplementalInformationDetail

FieldValueIRS element (for citing)
Form And Line ReferenceSCHEDULE C, PART II-B, LINE 1GFormAndLineReferenceDesc
ExplanationPROFESSIONAL LOBBYING FEES PAID TO AN INDEPENDENT THIRD PARTY TO COMMUNICATE DIRECTLY WITH LEGISLATORS.ExplanationTxt

Schedule D IRS990ScheduleD

Equipment EquipmentGrp

FieldValueIRS element (for citing)
Other Cost Or Other Basis$11,011OtherCostOrOtherBasisAmt
Depreciation$9,459DepreciationAmt
Book Value$1,552BookValueAmt

Other Land Buildings OtherLandBuildingsGrp

FieldValueIRS element (for citing)
Other Cost Or Other Basis$51,636OtherCostOrOtherBasisAmt
Depreciation$51,636DepreciationAmt
Book Value$0BookValueAmt
FieldValueIRS element (for citing)
Total Book Value Land Buildings$1,552TotalBookValueLandBuildingsAmt

Other Liabilities Org OtherLiabilitiesOrgGrp

FieldValueIRS element (for citing)
DescHELD FOR AFFILIATESDesc
Amt$154Amt
FieldValueIRS element (for citing)
Total Liability$154TotalLiabilityAmt
Footnote TextYes (X)FootnoteTextInd
Total Rev Etc Audited Fincl Stmt$3,234,988TotalRevEtcAuditedFinclStmtAmt
Net Unrealized Gains Invst-$5,807NetUnrealizedGainsInvstAmt
Revenue Not Reported-$5,807RevenueNotReportedAmt
Revenue Subtotal$3,240,795RevenueSubtotalAmt
Revenue Not Reported Fincl Stmt$0RevenueNotReportedFinclStmtAmt
Total Revenue Per Form990$3,240,795TotalRevenuePerForm990Amt
Tot Expns Etc Audited Fincl Stmt$2,091,542TotExpnsEtcAuditedFinclStmtAmt
Expenses Not Reported$0ExpensesNotReportedAmt
Expenses Subtotal$2,091,542ExpensesSubtotalAmt
Expenses Not Rpt Fincl Stmt$0ExpensesNotRptFinclStmtAmt
Total Expenses Per Form990$2,091,542TotalExpensesPerForm990Amt

Supplemental Information Detail SupplementalInformationDetail

FieldValueIRS element (for citing)
Form And Line ReferencePART X, LINE 2:FormAndLineReferenceDesc
ExplanationMANAGEMENT HAS EVALUATED THE FOUNDATION'S TAX POSITIONS AND CONCLUDED THAT THERE ARE NO UNCERTAIN TAX POSITIONS THAT REQUIRE ADJUSTMENT TO OR DISCLOSURE IN THE ACCOMPANYING FINANCIAL STATEMENTS.ExplanationTxt

Schedule I IRS990ScheduleI

FieldValueIRS element (for citing)
Grant Records MaintainedYes (1)GrantRecordsMaintainedInd

Recipient Table RecipientTable (4 entries)

Address Line1USAddress/AddressLine1TxtCityUSAddress/CityNmState AbbreviationUSAddress/StateAbbreviationCdZIPUSAddress/ZIPCdRecipient EINRecipientEINIRC SectionIRCSectionDescCash GrantCashGrantAmtNon Cash AssistanceNonCashAssistanceAmtPurpose Of GrantPurposeOfGrantTxt
CINCINNATI CHILDREN'S HOSPITAL MEDICAL CENTER
3333 BURNET AVECINCINNATIOH452293039310833936501(C)(3)$40,078$0SUB AWARD
REGENTS OF THE UNIVERSITY OF MINNESOTA
200 OAK STREET SEMINNEAPOLISMN554552070416007513$32,632$0SUB AWARD
UNIVERSITY OF CALIFORNIA DAVIS
1850 RESEARCH PARK DRIVE SUITE 300DAVISCA956186153946036494$17,178$0SUB AWARD
UNIVERSITY OF COLORADO DENVER
13123 E 16TH AVENUEAURORACO800457106846000555$30,071$0SUB AWARD
FieldValueIRS element (for citing)
Total501c3 Org1Total501c3OrgCnt
Total Other Org3TotalOtherOrgCnt

Grants Other Asst To Indiv In US GrantsOtherAsstToIndivInUSGrp (2 entries)

Grant TypeGrantTypeTxtRecipientRecipientCntCash GrantCashGrantAmt
SCHOLARSHIPS25$24,540
TRAVEL GRANTS15$12,015

Supplemental Information Detail SupplementalInformationDetail

FieldValueIRS element (for citing)
Form And Line ReferencePART I, LINE 2:FormAndLineReferenceDesc
ExplanationNATIONAL FRAGILE X FOUNDATION REQUIRES ONGOING FEEDBACK IN THE FORM OF ORAL AND WRITTEN REPORTS IN ORDER TO MONITOR THE PROGRESS OF EACH GRANT RECIPIENT. THE FOUNDATION ALSO RECEIVES STATUS REPORTS ON ONGOING RESEARCH DEVELOPMENTS.ExplanationTxt

Schedule M IRS990ScheduleM

Securities Publicly Traded SecuritiesPubliclyTradedGrp

FieldValueIRS element (for citing)
Non Cash CheckboxYes (X)NonCashCheckboxInd
Contribution3ContributionCnt
Noncash Contributions Rpt F990$76,480NoncashContributionsRptF990Amt
Method Of Determining RevenuesFAIR MARKET VALUEMethodOfDeterminingRevenuesTxt
FieldValueIRS element (for citing)
Any Property That Must Be Held0AnyPropertyThatMustBeHeldInd
Review Process Unusual NC Gifts0ReviewProcessUnusualNCGiftsInd
Third Parties Used0ThirdPartiesUsedInd

Supplemental Information Detail SupplementalInformationDetail

FieldValueIRS element (for citing)
Form And Line ReferencePART I, COLUMN (B):FormAndLineReferenceDesc
ExplanationNUMBER OF CONTRIBUTIONS REPORTED IN PART I IS THE COUNT OF CONTRIBUTIONS MADE.ExplanationTxt

Schedule O IRS990ScheduleO

Supplemental Information Detail SupplementalInformationDetail (6 entries)

Form And Line ReferenceFormAndLineReferenceDescExplanationExplanationTxt
FORM 990, PART VI, SECTION B, LINE 11BALL BOARD MEMBERS RECEIVE A COPY OF FORM 990 FOR REVIEW PRIOR TO FILING.
FORM 990, PART VI, SECTION B, LINE 12CMEMBERS OF THE BOARD OF DIRECTORS REVIEW ALL POTENTIAL CONFLICTS OF INTEREST AT LEAST ANNUALLY. THE EXECUTIVE DIRECTOR AND ALL BOARD MEMBERS ARE REQUIRED TO DISCLOSE (IN WRITING) POTENTIAL CONFLICTS AND ANY RELATED THIRD PARTY AFFILIATIONS. LOANS BETWEEN THE ORGANIZATION AND MEMBERS OF MANAGEMENT AND THE BOARD ARE STRICTLY PROHIBITED. THE ORGANIZATION SEEKS FULL TRANSPARENCY ON ALL RELATIONSHIPS. ANY POTENTIAL CONFLICTS OF INTEREST (IN FACT OR APPEARANCE) ARE DISCUSSED OPENLY AND RESOLVED IN ACCORDANCE WITH THE ORGANIZATION'S POLICIES AND PROCEDURES, WHICH ARE AS FOLLOWS. BOARD MEMBERS ARE TO DISCLOSE IN WRITING TO THE ENTIRE BOARD IF THEY, OR ANY MEMBER OF THEIR IMMEDIATE FAMILIES, OR ANY ORGANIZATION WITH WHICH THEY ARE AFFILIATED, PRESENTLY TRANSACT BUSINESS WITH THE NFXF OR MIGHT REASONABLY BE EXPECTED TO DO SO IN THE FUTURE. AN AFFILIATION WITH AN ORGANIZATION WILL BE CONSIDERED TO EXIST WHEN A BOARD MEMBER OR A MEMBER OF HIS OR HER IMMEDIATE FAMILY IS AN OFFICER, DIRECTOR, TRUSTEE, PARTNER, EMPLOYEE, OR AGENT OF THE ORGANIZATION; OR OWNS FIVE PERCENT OF THE VOTING STOCK OR A CONTROLLING INTEREST IN THE ORGANIZATION; OR HAS ANY SUBSTANTIAL INTEREST OR DEALINGS WITH THE ORGANIZATION. BOARD MEMBERS WITH SUCH RELATIONSHIPS WILL NOT BE ELIGIBLE TO VOTE ON MATTERS DIRECTLY PERTAINING TO THE BUSINESS TO BE TRANSACTED WITH THE IDENTIFIED PERSON OR ORGANIZATION OR ON ISSUES THAT MAY RESULT IN ANY BENEFIT INURING TO THE BENEFIT OF THE IDENTIFID PERSON OR ORGANIZATION. MINUTES OF APPROPRIATE MEETINGS ARE TO REFLECT THAT SUCH DISCLOSURE WAS MADE, THAT SUCH BOARD MEMBER ABSTAINED FROM VOTING, AND THAT SUCH BOARD MEMBER WAS NOT COUNTED FOR THE PURPOSE OF DETERMINING A QUORUM. THE FOREGOING REQUIREMENTS, HOWEVER, ARE NOT TO BE CONSTRUED TO PREVENT A PARTICULAR BOARD MEMBER FROM BRIEFLY STATING HIS/HER POSITION ON THE MATTER, NOR FROM ANSWERING PERTINENT QUESTIONS FROM OTHER DIRECTORS BY REASON OF THE FACT THAT PERSONAL KNOWLEDGE OF THE MATTER MAY BE OF ASSISTANCE TO THE OTHER BOARD MEMBERS IN REACHING THEIR DECISION. BOARD MEMBERS MAINTAINING NO SUCH RELATIONSHIPS WILL ATTEST TO THAT FACT IN WRITING AND AGREE TO NOTIFY THE BOARD ABOUT THEIR STATUS CHANGE.
FORM 990, PART VI, SECTION B, LINE 15AMEMBERS OF THE BOARD OF DIRECTORS REVIEW THE COMPENSATION OF ALL HIGH-LEVEL PERSONNEL PERIODICALLY IN ACCORANCE WITH IRS RULES AND REGULATIONS. EFFORTS ARE MADE TO SECURE COMPENSATION DATA FROM INDUSTRY SOURCES IN ORDER TO DETERMINE COMPETITIVENESS AND APPROPRIATENESS OF SALARIES AND ALL RELATED BENEFITS. ALL DECISIONS ARE THEN DOCUMENTED IN PERSONNEL FILES. COMPENSATION OF OTHER HIGH-LEVEL PERSONNEL AND KEY EMPLOYEES IS REVIEWED PERIODICALLY BY MEMBERS OF MANAGEMENT. EFFORTS ARE MADE TO SECURE COMPENSATION DATA FROM INDUSTRY SOURCES IN ORDER TO DETERMINE COMPETITIVENESS AND APPROPRIATENESS OF SALARIES AND ALL RELATED BENEFITS. ALL DECISIONS ARE THEN DOCUMENTED IN PERSONNEL FILES.
FORM 990, PART VI, SECTION C, LINE 19THE ORGANIZATION'S GOVERNING DOCUMENTS AND CONFLICT OF INTEREST POLICY ARE PROVIDED UPON REQUEST. ANNUAL AUDITED FINANCIAL STATEMENTS ARE PUBLISHED ON THE ORGANIZATION'S WEBSITE.
FORM 990, PART IX, LINE 11GCONSULTING: PROGRAM SERVICE EXPENSES 524,303. MANAGEMENT AND GENERAL EXPENSES 46,482. FUNDRAISING EXPENSES 19,815. TOTAL EXPENSES 590,600.
FORM 990: PART XII, LINE 2CTHE PROCESS HAS NOT CHANGED.

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