NATIONAL FRAGILE X FOUNDATION: Form 990, tax year 2017
View the entire original 990 at ProPublica ↗
- Organization
- NATIONAL FRAGILE X FOUNDATION (EIN 84-0960471)
- Tax period
- 2017-01-01 to 2017-12-31
- Filed
- 2018-06-12
- IRS object ID
- 201821639349300547
- Schema version
- 2017v2.2
- Source
- Download XML · Original 990 at ProPublica
Every field in the e-filed return. Faint text is the IRS element name, for citing.
Return header ReturnHeader
| Field | Value | IRS element (for citing) |
|---|---|---|
| Return | 2018-06-12T14:34:46-05:00 | ReturnTs |
| Tax Period End | 2017-12-31 | TaxPeriodEndDt |
Preparer Firm PreparerFirmGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Preparer Firm EIN | 582676261 | PreparerFirmEIN |
Preparer Firm Name PreparerFirmName
| Field | Value | IRS element (for citing) |
|---|---|---|
| Business Name Line1 | Rogers & Company PLLC | BusinessNameLine1Txt |
Preparer US Address PreparerUSAddress
| Field | Value | IRS element (for citing) |
|---|---|---|
| Address Line1 | 8300 Boone Boulevard Suite 600 | AddressLine1Txt |
| City | Vienna | CityNm |
| State Abbreviation | VA | StateAbbreviationCd |
| ZIP | 22182 | ZIPCd |
| Field | Value | IRS element (for citing) |
|---|---|---|
| Return Type | 990 | ReturnTypeCd |
| Tax Period Begin | 2017-01-01 | TaxPeriodBeginDt |
Filer Filer
| Field | Value | IRS element (for citing) |
|---|---|---|
| EIN | 840960471 | EIN |
Business Name BusinessName
| Field | Value | IRS element (for citing) |
|---|---|---|
| Business Name Line1 | The National Fragile X Foundation | BusinessNameLine1Txt |
| Field | Value | IRS element (for citing) |
|---|---|---|
| Business Name Control | NATI | BusinessNameControlTxt |
| Phone | 8006888765 | PhoneNum |
US Address USAddress
| Field | Value | IRS element (for citing) |
|---|---|---|
| Address Line1 | 1861 International Drive No 200 | AddressLine1Txt |
| City | McLean | CityNm |
| State Abbreviation | VA | StateAbbreviationCd |
| ZIP | 22102 | ZIPCd |
Business Officer BusinessOfficerGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Person | Tony Ferlenda | PersonNm |
| Person Title | Executive Director | PersonTitleTxt |
| Phone | 8006888765 | PhoneNum |
| Signature | 2018-06-12 | SignatureDt |
| Discuss With Paid Preparer | Yes (1) | DiscussWithPaidPreparerInd |
Preparer Person PreparerPersonGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Preparer Person | Nicole M Prince CPA | PreparerPersonNm |
| PTIN | P01315245 | PTIN |
| Phone | 7038930300 | PhoneNum |
| Preparation | 2018-06-11 | PreparationDt |
| Field | Value | IRS element (for citing) |
|---|---|---|
| Tax | 2017 | TaxYr |
| Build TS | 2022-09-23 18:48:47Z | BuildTS |
Form 990 IRS990
| Field | Value | IRS element (for citing) |
|---|---|---|
| Principal Officer | Linda Sorensen | PrincipalOfficerNm |
US Address USAddress
| Field | Value | IRS element (for citing) |
|---|---|---|
| Address Line1 | 1861 International Drive No 200 | AddressLine1Txt |
| City | McLean | CityNm |
| State Abbreviation | VA | StateAbbreviationCd |
| ZIP | 22102 | ZIPCd |
| Field | Value | IRS element (for citing) |
|---|---|---|
| Gross Receipts | $1,764,222 | GrossReceiptsAmt |
| Group Return For Affiliates | 0 | GroupReturnForAffiliatesInd |
| Organization501c3 | Yes (X) | Organization501c3Ind |
| Website Address | www.fragilex.org | WebsiteAddressTxt |
| Type Of Organization Corp | Yes (X) | TypeOfOrganizationCorpInd |
| Formation | 2001 | FormationYr |
| Legal Domicile State | CA | LegalDomicileStateCd |
| Activity Or Mission | The National Fragile X Foundation unites the Fragile X community to enrich lives through educational and emotional support, promote public and professional awareness, and advance research toward improved treatments and a cure for Fragile X. | ActivityOrMissionDesc |
| Voting Members Governing Body | 14 | VotingMembersGoverningBodyCnt |
| Voting Members Independent | 14 | VotingMembersIndependentCnt |
| Total Employee | 9 | TotalEmployeeCnt |
| Total Volunteers | 50 | TotalVolunteersCnt |
| Total Gross UBI | $0 | TotalGrossUBIAmt |
| Net Unrelated Bus Txbl Incm | $0 | NetUnrelatedBusTxblIncmAmt |
| PY Contributions Grants | $1,456,833 | PYContributionsGrantsAmt |
| CY Contributions Grants | $1,734,963 | CYContributionsGrantsAmt |
| PY Program Service Revenue | $487,266 | PYProgramServiceRevenueAmt |
| CY Program Service Revenue | $12,840 | CYProgramServiceRevenueAmt |
| PY Investment Income | $797 | PYInvestmentIncomeAmt |
| CY Investment Income | $1,800 | CYInvestmentIncomeAmt |
| PY Other Revenue | $7,900 | PYOtherRevenueAmt |
| CY Other Revenue | $3,250 | CYOtherRevenueAmt |
| PY Total Revenue | $1,952,796 | PYTotalRevenueAmt |
| CY Total Revenue | $1,752,853 | CYTotalRevenueAmt |
| PY Grants And Similar Paid | $67,491 | PYGrantsAndSimilarPaidAmt |
| CY Grants And Similar Paid | $81,328 | CYGrantsAndSimilarPaidAmt |
| PY Benefits Paid To Members | $0 | PYBenefitsPaidToMembersAmt |
| CY Benefits Paid To Members | $0 | CYBenefitsPaidToMembersAmt |
| PY Salaries Comp Emp Bnft Paid | $622,351 | PYSalariesCompEmpBnftPaidAmt |
| CY Salaries Comp Emp Bnft Paid | $776,996 | CYSalariesCompEmpBnftPaidAmt |
| PY Total Prof Fndrsng Expns | $0 | PYTotalProfFndrsngExpnsAmt |
| CY Total Prof Fndrsng Expns | $0 | CYTotalProfFndrsngExpnsAmt |
| CY Total Fundraising Expense | $103,364 | CYTotalFundraisingExpenseAmt |
| PY Other Expenses | $892,383 | PYOtherExpensesAmt |
| CY Other Expenses | $795,782 | CYOtherExpensesAmt |
| PY Total Expenses | $1,582,225 | PYTotalExpensesAmt |
| CY Total Expenses | $1,654,106 | CYTotalExpensesAmt |
| PY Revenues Less Expenses | $370,571 | PYRevenuesLessExpensesAmt |
| CY Revenues Less Expenses | $98,747 | CYRevenuesLessExpensesAmt |
| Total Assets BOY | $1,067,742 | TotalAssetsBOYAmt |
| Total Assets EOY | $1,227,026 | TotalAssetsEOYAmt |
| Total Liabilities BOY | $60,205 | TotalLiabilitiesBOYAmt |
| Total Liabilities EOY | $117,684 | TotalLiabilitiesEOYAmt |
| Net Assets Or Fund Balances BOY | $1,007,537 | NetAssetsOrFundBalancesBOYAmt |
| Net Assets Or Fund Balances EOY | $1,109,342 | NetAssetsOrFundBalancesEOYAmt |
| Mission | Fragile X is a family of genetic conditions which can impact individuals and families in various ways. These genetic conditions are related in that they are all caused by changes in the same DNA material known as the FMR1 gene. | MissionDesc |
| Significant New Program Srvc | 0 | SignificantNewProgramSrvcInd |
| Significant Change | 0 | SignificantChangeInd |
| Expense | $1,037,815 | ExpenseAmt |
| Grant | $32,061 | GrantAmt |
| Revenue | $12,840 | RevenueAmt |
| Desc | Education and Support: The NFXF provides personalized support, information and referrals to individuals and families on the multitude of issues they face including diagnosis, genetics, behavior, treatments, educational planning, employment & adult issues. The NFXF organizes regional,international educational conferences & webinars for families and professionals about FX disorders to help families cope and overcome the daily challenges of living with FX. | Desc |
Prog Srvc Accom Acty2 ProgSrvcAccomActy2Grp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Expense | $44,000 | ExpenseAmt |
| Grant | $44,000 | GrantAmt |
| Desc | Research grants: The NFXF funds two major research strategies - The NFXF Biobank whereby biological samples collected from volunteer participants living with Fragile X. These samples, combined with clinical data from these same participants will be used to create unique NFXF Research Ready Materials. Researchers can then use these materials to identify correlations between behavior and medical conditions, known as biomarkers, allowing pharmaceuticals to target the underlying biological mechanism for treatment or cures. The NFXF also funds Summer Student Fellowships to promote the development of younger scientists in the field. | Desc |
Prog Srvc Accom Acty3 ProgSrvcAccomActy3Grp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Expense | $111,537 | ExpenseAmt |
| Grant | $5,267 | GrantAmt |
| Desc | Community Support Network: The NFXF organizes and supports a vibrant & dedicated network of volunteer-led chapters across the US. These chapters deliver the NFXF mission on a local level. Finalized a written chapter agreement to formally affiliate volunteer groups as NFXF Chapters effective January 2018. | Desc |
| Field | Value | IRS element (for citing) |
|---|---|---|
| Total Program Service Expenses | $1,193,352 | TotalProgramServiceExpensesAmt |
| Described In Section501c3 | Yes (1) | DescribedInSection501c3Ind |
| Schedule B Required | Yes (1) | ScheduleBRequiredInd |
| Political Campaign Acty | 0 | PoliticalCampaignActyInd |
| Lobbying Activities | 0 | LobbyingActivitiesInd |
| Subject To Proxy Tax | 0 | SubjectToProxyTaxInd |
| Donor Advised Fund | 0 | DonorAdvisedFundInd |
| Conservation Easements | 0 | ConservationEasementsInd |
| Collections Of Art | 0 | CollectionsOfArtInd |
| Credit Counseling | 0 | CreditCounselingInd |
| Temp Or Permanent Endowments | 0 | TempOrPermanentEndowmentsInd |
| Report Land Building Equipment | Yes (1) | ReportLandBuildingEquipmentInd |
| Report Investments Other Sec | 0 | ReportInvestmentsOtherSecInd |
| Report Program Related Invst | 0 | ReportProgramRelatedInvstInd |
| Report Other Assets | 0 | ReportOtherAssetsInd |
| Report Other Liabilities | 0 | ReportOtherLiabilitiesInd |
| Include FIN48 Footnote | Yes (1) | IncludeFIN48FootnoteInd |
| Independent Audit Fincl Stmt | Yes (1) | IndependentAuditFinclStmtInd |
| Consolidated Audit Fincl Stmt | 0 | ConsolidatedAuditFinclStmtInd |
| School Operating | 0 | SchoolOperatingInd |
| Foreign Office | 0 | ForeignOfficeInd |
| Foreign Activities | 0 | ForeignActivitiesInd |
| More Than5000 K To Org | 0 | MoreThan5000KToOrgInd |
| More Than5000 K To Individuals | 0 | MoreThan5000KToIndividualsInd |
| Professional Fundraising | 0 | ProfessionalFundraisingInd |
| Fundraising Activities | Yes (1) | FundraisingActivitiesInd |
| Gaming Activities | 0 | GamingActivitiesInd |
| Operate Hospital | 0 | OperateHospitalInd |
| Grants To Organizations | 0 | GrantsToOrganizationsInd |
| Grants To Individuals | Yes (1) | GrantsToIndividualsInd |
| Schedule J Required | Yes (1) | ScheduleJRequiredInd |
| Tax Exempt Bonds | 0 | TaxExemptBondsInd |
| Engaged In Excess Benefit Trans | 0 | EngagedInExcessBenefitTransInd |
| PY Excess Benefit Trans | 0 | PYExcessBenefitTransInd |
| Loan Outstanding | 0 | LoanOutstandingInd |
| Grant To Related Person | 0 | GrantToRelatedPersonInd |
| Business Rln With Org Mem | 0 | BusinessRlnWithOrgMemInd |
| Business Rln With Fam Mem | 0 | BusinessRlnWithFamMemInd |
| Business Rln With Officer Ent | 0 | BusinessRlnWithOfficerEntInd |
| Deductible Non Cash Contri | 0 | DeductibleNonCashContriInd |
| Deductible Art Contribution | 0 | DeductibleArtContributionInd |
| Terminate Operations | 0 | TerminateOperationsInd |
| Partial Liquidation | 0 | PartialLiquidationInd |
| Disregarded Entity | 0 | DisregardedEntityInd |
| Related Entity | 0 | RelatedEntityInd |
| Related Organization Ctrl Ent | 0 | RelatedOrganizationCtrlEntInd |
| Trnsfr Exmpt Non Chrtbl Rltd Org | 0 | TrnsfrExmptNonChrtblRltdOrgInd |
| Activities Conducted Prtshp | 0 | ActivitiesConductedPrtshpInd |
| Schedule O Required | Yes (1) | ScheduleORequiredInd |
| IRP Document | 6 | IRPDocumentCnt |
| IRP Document W2 G | 0 | IRPDocumentW2GCnt |
| Backup Wthld Compliance | Yes (1) | BackupWthldComplianceInd |
| Employee | 9 | EmployeeCnt |
| Employment Tax Returns Filed | Yes (1) | EmploymentTaxReturnsFiledInd |
| Unrelated Bus Incm Over Limit | 0 | UnrelatedBusIncmOverLimitInd |
| Foreign Financial Account | 0 | ForeignFinancialAccountInd |
| Prohibited Tax Shelter Trans | 0 | ProhibitedTaxShelterTransInd |
| Taxable Party Notification | 0 | TaxablePartyNotificationInd |
| Nondeductible Contributions | 0 | NondeductibleContributionsInd |
| Quid Pro Quo Contributions | 0 | QuidProQuoContributionsInd |
| Form8282 Property Disposed Of | 0 | Form8282PropertyDisposedOfInd |
| Rcv Fnds To Pay Prsnl Bnft Cntrct | 0 | RcvFndsToPayPrsnlBnftCntrctInd |
| Pay Premiums Prsnl Bnft Cntrct | 0 | PayPremiumsPrsnlBnftCntrctInd |
| Indoor Tanning Services | 0 | IndoorTanningServicesInd |
| Info In Schedule O Part VI | Yes (X) | InfoInScheduleOPartVIInd |
| Governing Body Voting Members | 14 | GoverningBodyVotingMembersCnt |
| Independent Voting Member | 14 | IndependentVotingMemberCnt |
| Family Or Business Rln | 0 | FamilyOrBusinessRlnInd |
| Delegation Of Mgmt Duties | 0 | DelegationOfMgmtDutiesInd |
| Change To Org Documents | 0 | ChangeToOrgDocumentsInd |
| Material Diversion Or Misuse | 0 | MaterialDiversionOrMisuseInd |
| Members Or Stockholders | 0 | MembersOrStockholdersInd |
| Election Of Board Members | 0 | ElectionOfBoardMembersInd |
| Decisions Subject To Approva | 0 | DecisionsSubjectToApprovaInd |
| Minutes Of Governing Body | Yes (1) | MinutesOfGoverningBodyInd |
| Minutes Of Committees | Yes (1) | MinutesOfCommitteesInd |
| Officer Mailing Address | 0 | OfficerMailingAddressInd |
| Local Chapters | Yes (1) | LocalChaptersInd |
| Policies Reference Chapters | Yes (1) | PoliciesReferenceChaptersInd |
| Form990 Provided To Gvrn Body | Yes (1) | Form990ProvidedToGvrnBodyInd |
| Conflict Of Interest Policy | Yes (1) | ConflictOfInterestPolicyInd |
| Annual Disclosure Covered Prsn | Yes (1) | AnnualDisclosureCoveredPrsnInd |
| Regular Monitoring Enfrc | Yes (1) | RegularMonitoringEnfrcInd |
| Whistleblower Policy | Yes (1) | WhistleblowerPolicyInd |
| Document Retention Policy | Yes (1) | DocumentRetentionPolicyInd |
| Compensation Process CEO | Yes (1) | CompensationProcessCEOInd |
| Compensation Process Other | Yes (1) | CompensationProcessOtherInd |
| Investment In Joint Venture | 0 | InvestmentInJointVentureInd |
| States Where Copy Of Return Is Fld | CA | StatesWhereCopyOfReturnIsFldCd |
| States Where Copy Of Return Is Fld | DC | StatesWhereCopyOfReturnIsFldCd |
| Own Website | Yes (X) | OwnWebsiteInd |
| Upon Request | Yes (X) | UponRequestInd |
Books In Care Of Detail BooksInCareOfDetail
| Field | Value | IRS element (for citing) |
|---|---|---|
| Person | NeoSystems Inc | PersonNm |
| Phone | 2027476202 | PhoneNum |
US Address USAddress
| Field | Value | IRS element (for citing) |
|---|---|---|
| Address Line1 | 1861 International Drive No 200 | AddressLine1Txt |
| City | McLean | CityNm |
| State Abbreviation | VA | StateAbbreviationCd |
| ZIP | 22102 | ZIPCd |
Form990 Part VII Section A Form990PartVIISectionAGrp (17 entries)
| TitleTitleTxt | Average Hours Per WeekAverageHoursPerWeekRt | Individual Trustee Or DirectorIndividualTrusteeOrDirectorInd | OfficerOfficerInd | Reportable Comp From OrgReportableCompFromOrgAmt | Reportable Comp From Rltd OrgReportableCompFromRltdOrgAmt | Other CompensationOtherCompensationAmt |
|---|---|---|---|---|---|---|
| Brian Silver | ||||||
| President | 5.00 | Yes (X) | Yes (X) | $0 | $0 | $0 |
| Larry Krantz | ||||||
| Vice President | 2.00 | Yes (X) | Yes (X) | $0 | $0 | $0 |
| Emily Mack | ||||||
| Secretary | 2.00 | Yes (X) | Yes (X) | $0 | $0 | $0 |
| Mike Makris | ||||||
| Treasurer | 2.00 | Yes (X) | Yes (X) | $0 | $0 | $0 |
| Evan Davis | ||||||
| Board Member | 1.00 | Yes (X) | $0 | $0 | $0 | |
| Paula Fasciano | ||||||
| Board Member | 1.00 | Yes (X) | $0 | $0 | $0 | |
| Brenda Finucane MS LGC | ||||||
| Board Member | 1.00 | Yes (X) | $0 | $0 | $0 | |
| Mark Gershenson | ||||||
| Board Member | 1.00 | Yes (X) | $0 | $0 | $0 | |
| Carolyn Tomberlin | ||||||
| Board Member | 1.00 | Yes (X) | $0 | $0 | $0 | |
| Howard Pollock | ||||||
| Board Member | 1.00 | Yes (X) | $0 | $0 | $0 | |
| Rick Reynolds | ||||||
| Board Member | 1.00 | Yes (X) | $0 | $0 | $0 | |
| Rajat Sarup | ||||||
| Board Member | 1.00 | Yes (X) | $0 | $0 | $0 | |
| Don Schalk | ||||||
| Board Member | 1.00 | Yes (X) | $0 | $0 | $0 | |
| Stephanie Sherman | ||||||
| Board Member | 1.00 | Yes (X) | $0 | $0 | $0 | |
| Jay Souder | ||||||
| Dev. Chair | 2.00 | Yes (X) | $0 | $0 | $0 | |
| Linda Sorensen | ||||||
| COO/Executive Director | 40.00 | Yes (X) | $106,790 | $0 | $0 | |
| Tony Ferlenda | ||||||
| CEO | 40.00 | Yes (X) | $174,237 | $0 | $11,500 | |
| Field | Value | IRS element (for citing) |
|---|---|---|
| Total Reportable Comp From Org | $281,027 | TotalReportableCompFromOrgAmt |
| Tot Reportable Comp Rltd Org | $0 | TotReportableCompRltdOrgAmt |
| Total Other Compensation | $11,500 | TotalOtherCompensationAmt |
| Indiv Rcvd Greater Than100 K | 2 | IndivRcvdGreaterThan100KCnt |
| Former Ofcr Employees Listed | 0 | FormerOfcrEmployeesListedInd |
| Total Comp Greater Than150 K | Yes (1) | TotalCompGreaterThan150KInd |
| Compensation From Other Srcs | 0 | CompensationFromOtherSrcsInd |
| Cntrct Rcvd Greater Than100 K | 0 | CntrctRcvdGreaterThan100KCnt |
| Fundraising | $68,935 | FundraisingAmt |
| All Other Contributions | $1,666,028 | AllOtherContributionsAmt |
| Total Contributions | $1,734,963 | TotalContributionsAmt |
Program Service Revenue ProgramServiceRevenueGrp (3 entries)
| DescDesc | BusinessBusinessCd | Total Revenue ColumnTotalRevenueColumnAmt | Related Or Exempt Func IncomeRelatedOrExemptFuncIncomeAmt |
|---|---|---|---|
| Service Fees | 900999 | $4,771 | $4,771 |
| Conferences/Meetings | 900099 | $4,475 | $4,475 |
| Educational Sales | 452000 | $3,594 | $3,594 |
| Field | Value | IRS element (for citing) |
|---|---|---|
| Total Program Service Revenue | $12,840 | TotalProgramServiceRevenueAmt |
Investment Income InvestmentIncomeGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Total Revenue Column | $1,800 | TotalRevenueColumnAmt |
| Exclusion | $1,800 | ExclusionAmt |
| Field | Value | IRS element (for citing) |
|---|---|---|
| Fundraising Gross Income | $11,369 | FundraisingGrossIncomeAmt |
| Contri Rpt Fundraising Event | $68,935 | ContriRptFundraisingEventAmt |
| Fundraising Direct Expenses | $11,369 | FundraisingDirectExpensesAmt |
Net Incm From Fundraising Evt NetIncmFromFundraisingEvtGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Total Revenue Column | $0 | TotalRevenueColumnAmt |
Other Revenue Misc OtherRevenueMiscGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Desc | Rebates | Desc |
| Business | 900099 | BusinessCd |
| Total Revenue Column | $3,250 | TotalRevenueColumnAmt |
| Exclusion | $3,250 | ExclusionAmt |
| Field | Value | IRS element (for citing) |
|---|---|---|
| Other Revenue Total | $3,250 | OtherRevenueTotalAmt |
Total Revenue TotalRevenueGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Total Revenue Column | $1,752,853 | TotalRevenueColumnAmt |
| Related Or Exempt Func Income | $12,840 | RelatedOrExemptFuncIncomeAmt |
| Unrelated Business Revenue | $0 | UnrelatedBusinessRevenueAmt |
| Exclusion | $5,050 | ExclusionAmt |
| Field | Value | IRS element (for citing) |
|---|---|---|
| Info In Schedule O Part IX | Yes (X) | InfoInScheduleOPartIXInd |
Grants To Domestic Orgs GrantsToDomesticOrgsGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Total | $56,500 | TotalAmt |
| Program Services | $56,500 | ProgramServicesAmt |
Grants To Domestic Individuals GrantsToDomesticIndividualsGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Total | $24,828 | TotalAmt |
| Program Services | $24,828 | ProgramServicesAmt |
Comp Current Ofcr Directors CompCurrentOfcrDirectorsGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Total | $292,527 | TotalAmt |
| Program Services | $234,022 | ProgramServicesAmt |
| Management And General | $43,879 | ManagementAndGeneralAmt |
| Fundraising | $14,626 | FundraisingAmt |
Other Salaries And Wages OtherSalariesAndWagesGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Total | $409,195 | TotalAmt |
| Program Services | $327,356 | ProgramServicesAmt |
| Management And General | $61,379 | ManagementAndGeneralAmt |
| Fundraising | $20,460 | FundraisingAmt |
Other Employee Benefits OtherEmployeeBenefitsGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Total | $18,154 | TotalAmt |
| Program Services | $14,523 | ProgramServicesAmt |
| Management And General | $2,723 | ManagementAndGeneralAmt |
| Fundraising | $908 | FundraisingAmt |
Payroll Taxes PayrollTaxesGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Total | $57,120 | TotalAmt |
| Program Services | $45,696 | ProgramServicesAmt |
| Management And General | $8,568 | ManagementAndGeneralAmt |
| Fundraising | $2,856 | FundraisingAmt |
Fees For Services Accounting FeesForServicesAccountingGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Total | $68,311 | TotalAmt |
| Management And General | $68,311 | ManagementAndGeneralAmt |
Fees For Services Other FeesForServicesOtherGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Total | $358,560 | TotalAmt |
| Program Services | $277,173 | ProgramServicesAmt |
| Management And General | $81,387 | ManagementAndGeneralAmt |
Advertising AdvertisingGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Total | $55,679 | TotalAmt |
| Program Services | $80 | ProgramServicesAmt |
| Fundraising | $55,599 | FundraisingAmt |
Office Expenses OfficeExpensesGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Total | $47,108 | TotalAmt |
| Program Services | $26,431 | ProgramServicesAmt |
| Management And General | $19,761 | ManagementAndGeneralAmt |
| Fundraising | $916 | FundraisingAmt |
Information Technology InformationTechnologyGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Total | $26,149 | TotalAmt |
| Program Services | $796 | ProgramServicesAmt |
| Management And General | $25,353 | ManagementAndGeneralAmt |
Travel TravelGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Total | $93,611 | TotalAmt |
| Program Services | $56,559 | ProgramServicesAmt |
| Management And General | $29,578 | ManagementAndGeneralAmt |
| Fundraising | $7,474 | FundraisingAmt |
Conferences Meetings ConferencesMeetingsGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Total | $119,671 | TotalAmt |
| Program Services | $119,671 | ProgramServicesAmt |
Depreciation Depletion DepreciationDepletionGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Total | $2,961 | TotalAmt |
| Management And General | $2,961 | ManagementAndGeneralAmt |
Insurance InsuranceGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Total | $5,728 | TotalAmt |
| Program Services | $4,583 | ProgramServicesAmt |
| Management And General | $859 | ManagementAndGeneralAmt |
| Fundraising | $286 | FundraisingAmt |
Other Expenses OtherExpensesGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Desc | Miscellaneous | Desc |
| Total | $18,004 | TotalAmt |
| Program Services | $5,134 | ProgramServicesAmt |
| Management And General | $12,631 | ManagementAndGeneralAmt |
| Fundraising | $239 | FundraisingAmt |
Total Functional Expenses TotalFunctionalExpensesGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Total | $1,654,106 | TotalAmt |
| Program Services | $1,193,352 | ProgramServicesAmt |
| Management And General | $357,390 | ManagementAndGeneralAmt |
| Fundraising | $103,364 | FundraisingAmt |
Cash Non Interest Bearing CashNonInterestBearingGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| BOY | $94,244 | BOYAmt |
| EOY | $621,377 | EOYAmt |
Savings And Temp Cash Invst SavingsAndTempCashInvstGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| BOY | $607,918 | BOYAmt |
| EOY | $155,483 | EOYAmt |
Pledges And Grants Receivable PledgesAndGrantsReceivableGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| BOY | $311,213 | BOYAmt |
| EOY | $392,596 | EOYAmt |
Accounts Receivable AccountsReceivableGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| BOY | $47,820 | BOYAmt |
| EOY | $31,341 | EOYAmt |
Prepaid Expenses Defrd Charges PrepaidExpensesDefrdChargesGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| BOY | $2,623 | BOYAmt |
| EOY | $10,831 | EOYAmt |
| Field | Value | IRS element (for citing) |
|---|---|---|
| Land Bldg Equip Cost Or Other Bss | $20,229 | LandBldgEquipCostOrOtherBssAmt |
| Land Bldg Equip Accum Deprec | $4,831 | LandBldgEquipAccumDeprecAmt |
Land Bldg Equip Basis Net LandBldgEquipBasisNetGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| BOY | $3,924 | BOYAmt |
| EOY | $15,398 | EOYAmt |
Total Assets TotalAssetsGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| BOY | $1,067,742 | BOYAmt |
| EOY | $1,227,026 | EOYAmt |
Accounts Payable Accr Expnss AccountsPayableAccrExpnssGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| BOY | $60,205 | BOYAmt |
| EOY | $102,739 | EOYAmt |
Deferred Revenue DeferredRevenueGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| EOY | $14,945 | EOYAmt |
Total Liabilities TotalLiabilitiesGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| BOY | $60,205 | BOYAmt |
| EOY | $117,684 | EOYAmt |
| Field | Value | IRS element (for citing) |
|---|---|---|
| Organization Follows SFAS117 | Yes (X) | OrganizationFollowsSFAS117Ind |
Unrestricted Net Assets UnrestrictedNetAssetsGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| BOY | $786,974 | BOYAmt |
| EOY | $881,046 | EOYAmt |
Temporarily Rstr Net Assets TemporarilyRstrNetAssetsGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| BOY | $220,563 | BOYAmt |
| EOY | $228,296 | EOYAmt |
Total Net Assets Fund Balance TotalNetAssetsFundBalanceGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| BOY | $1,007,537 | BOYAmt |
| EOY | $1,109,342 | EOYAmt |
Tot Liab Net Assets Fund Balance TotLiabNetAssetsFundBalanceGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| BOY | $1,067,742 | BOYAmt |
| EOY | $1,227,026 | EOYAmt |
| Field | Value | IRS element (for citing) |
|---|---|---|
| Info In Schedule O Part XI | Yes (X) | InfoInScheduleOPartXIInd |
| Reconcilation Revenue Expnss | $98,747 | ReconcilationRevenueExpnssAmt |
| Other Changes In Net Assets | $3,058 | OtherChangesInNetAssetsAmt |
| Method Of Accounting Accrual | Yes (X) | MethodOfAccountingAccrualInd |
| Accountant Compile Or Review | 0 | AccountantCompileOrReviewInd |
| FS Audited | Yes (1) | FSAuditedInd |
FS Audited Basis FSAuditedBasisGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Separate Basis Fincl Stmt | Yes (X) | SeparateBasisFinclStmtInd |
| Field | Value | IRS element (for citing) |
|---|---|---|
| Audit Committee | Yes (1) | AuditCommitteeInd |
| Federal Grant Audit Required | 0 | FederalGrantAuditRequiredInd |
Schedule A IRS990ScheduleA
| Field | Value | IRS element (for citing) |
|---|---|---|
| Public Organization170 | Yes (X) | PublicOrganization170Ind |
Gifts Grants Contri Rcvd170 GiftsGrantsContriRcvd170Grp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Current Tax Year Minus4 Years | $1,291,012 | CurrentTaxYearMinus4YearsAmt |
| Current Tax Year Minus3 Years | $992,118 | CurrentTaxYearMinus3YearsAmt |
| Current Tax Year Minus2 Years | $1,086,993 | CurrentTaxYearMinus2YearsAmt |
| Current Tax Year Minus1 Year | $1,409,862 | CurrentTaxYearMinus1YearAmt |
| Current Tax Year | $1,734,963 | CurrentTaxYearAmt |
| Total | $6,514,948 | TotalAmt |
Total Calendar Year170 TotalCalendarYear170Grp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Current Tax Year Minus4 Years | $1,291,012 | CurrentTaxYearMinus4YearsAmt |
| Current Tax Year Minus3 Years | $992,118 | CurrentTaxYearMinus3YearsAmt |
| Current Tax Year Minus2 Years | $1,086,993 | CurrentTaxYearMinus2YearsAmt |
| Current Tax Year Minus1 Year | $1,409,862 | CurrentTaxYearMinus1YearAmt |
| Current Tax Year | $1,734,963 | CurrentTaxYearAmt |
| Total | $6,514,948 | TotalAmt |
| Field | Value | IRS element (for citing) |
|---|---|---|
| Substantial Contributors Tot | $181,304 | SubstantialContributorsTotAmt |
| Public Support Total170 | $6,333,644 | PublicSupportTotal170Amt |
Gross Investment Income170 GrossInvestmentIncome170Grp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Current Tax Year Minus4 Years | $1,634 | CurrentTaxYearMinus4YearsAmt |
| Current Tax Year Minus3 Years | $5,585 | CurrentTaxYearMinus3YearsAmt |
| Current Tax Year Minus2 Years | -$2,896 | CurrentTaxYearMinus2YearsAmt |
| Current Tax Year Minus1 Year | $797 | CurrentTaxYearMinus1YearAmt |
| Current Tax Year | $1,800 | CurrentTaxYearAmt |
| Total | $6,920 | TotalAmt |
Other Income170 OtherIncome170Grp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Current Tax Year Minus1 Year | $7,900 | CurrentTaxYearMinus1YearAmt |
| Current Tax Year | $3,250 | CurrentTaxYearAmt |
| Total | $11,150 | TotalAmt |
| Field | Value | IRS element (for citing) |
|---|---|---|
| Total Support | $6,533,018 | TotalSupportAmt |
| Gross Receipts Rltd Activities | $1,453,549 | GrossReceiptsRltdActivitiesAmt |
| Public Support CY170 | 0.96950 | PublicSupportCY170Pct |
| Public Support PY170 | 0.86300 | PublicSupportPY170Pct |
| Thirty Thr Pct Suprt Tests CY170 | Yes (X) | ThirtyThrPctSuprtTestsCY170Ind |
Form990 Schedule A Part VI Form990ScheduleAPartVIGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Form And Line Reference | Schedule A, Part II, Line 10, Explanation of Other Income: | FormAndLineReferenceDesc |
| Explanation | Miscellaneous income - 2016 Amount: $ 7,900. Rebates - 2017 Amount: $ 3,250. | ExplanationTxt |
Schedule B IRS990ScheduleB
Contributor Information ContributorInformationGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Contributor | RESTRICTED | ContributorNum |
Contributor Business Name ContributorBusinessName
| Field | Value | IRS element (for citing) |
|---|---|---|
| Business Name Line1 | RESTRICTED | BusinessNameLine1 |
Contributor US Address ContributorUSAddress
| Field | Value | IRS element (for citing) |
|---|---|---|
| Address Line1 | RESTRICTED | AddressLine1 |
| Address Line2 | RESTRICTED | AddressLine2 |
| City | RESTRICTED | City |
| State | RESTRICTED | State |
| ZIP Code | RESTRICTED | ZIPCode |
| Field | Value | IRS element (for citing) |
|---|---|---|
| Total Contributions | RESTRICTED | TotalContributionsAmt |
Schedule D IRS990ScheduleD
Equipment EquipmentGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Other Cost Or Other Basis | $7,729 | OtherCostOrOtherBasisAmt |
| Depreciation | $2,877 | DepreciationAmt |
| Book Value | $4,852 | BookValueAmt |
Other Land Buildings OtherLandBuildingsGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Other Cost Or Other Basis | $12,500 | OtherCostOrOtherBasisAmt |
| Depreciation | $1,954 | DepreciationAmt |
| Book Value | $10,546 | BookValueAmt |
| Field | Value | IRS element (for citing) |
|---|---|---|
| Total Book Value Land Buildings | $15,398 | TotalBookValueLandBuildingsAmt |
| Footnote Text | Yes (X) | FootnoteTextInd |
| Total Rev Etc Audited Fincl Stmt | $1,767,280 | TotalRevEtcAuditedFinclStmtAmt |
| Recoveries Prior Year Grants | $3,058 | RecoveriesPriorYearGrantsAmt |
| Other Revenue | $11,369 | OtherRevenueAmt |
| Revenue Not Reported | $14,427 | RevenueNotReportedAmt |
| Revenue Subtotal | $1,752,853 | RevenueSubtotalAmt |
| Revenue Not Reported Fincl Stmt | $0 | RevenueNotReportedFinclStmtAmt |
| Total Revenue Per Form990 | $1,752,853 | TotalRevenuePerForm990Amt |
| Tot Expns Etc Audited Fincl Stmt | $1,665,475 | TotExpnsEtcAuditedFinclStmtAmt |
| Other Expenses Included | $11,369 | OtherExpensesIncludedAmt |
| Expenses Not Reported | $11,369 | ExpensesNotReportedAmt |
| Expenses Subtotal | $1,654,106 | ExpensesSubtotalAmt |
| Expenses Not Rpt Fincl Stmt | $0 | ExpensesNotRptFinclStmtAmt |
| Total Expenses Per Form990 | $1,654,106 | TotalExpensesPerForm990Amt |
Supplemental Information Detail SupplementalInformationDetail (3 entries)
| Form And Line ReferenceFormAndLineReferenceDesc | ExplanationExplanationTxt |
|---|---|
| Part X, Line 2: | Management has evaluated National Fragile X's tax positions and concluded that National Fragile X's financial statements do not include any uncertain tax positions. |
| Part XI, Line 2d - Other Adjustments: | Direct benefits 11,369. |
| Part XII, Line 2d - Other Adjustments: | Direct benefits 11,369. |
Schedule G IRS990ScheduleG
Fundraising Event Information FundraisingEventInformationGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Event1 | CSN Fundraising Events | Event1Nm |
| Gross Receipts Event1 | $80,304 | GrossReceiptsEvent1Amt |
| Charitable Contri Event1 | $68,935 | CharitableContriEvent1Amt |
| Gross Revenue Event1 | $11,369 | GrossRevenueEvent1Amt |
| Rent Facility Costs Event1 | $6,674 | RentFacilityCostsEvent1Amt |
| Food And Beverage Event1 | $2,505 | FoodAndBeverageEvent1Amt |
| Other Direct Expenses Event1 | $2,190 | OtherDirectExpensesEvent1Amt |
| Gross Receipts Total | $80,304 | GrossReceiptsTotalAmt |
| Charitable Contributions Tot | $68,935 | CharitableContributionsTotAmt |
| Gross Revenue Total Events | $11,369 | GrossRevenueTotalEventsAmt |
| Rent Fclty Costs Total Events | $6,674 | RentFcltyCostsTotalEventsAmt |
| Food And Beverage Total Events | $2,505 | FoodAndBeverageTotalEventsAmt |
| Oth Direct Expnss Total Events | $2,190 | OthDirectExpnssTotalEventsAmt |
| Direct Expense Summary Events | $11,369 | DirectExpenseSummaryEventsAmt |
| Net Income Summary | $0 | NetIncomeSummaryAmt |
Schedule I IRS990ScheduleI
| Field | Value | IRS element (for citing) |
|---|---|---|
| Grant Records Maintained | Yes (1) | GrantRecordsMaintainedInd |
Grants Other Asst To Indiv In US GrantsOtherAsstToIndivInUSGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Grant Type | Summer Student Fellowship | GrantTypeTxt |
| Recipient | 93 | RecipientCnt |
| Cash Grant | $24,828 | CashGrantAmt |
Supplemental Information Detail SupplementalInformationDetail
| Field | Value | IRS element (for citing) |
|---|---|---|
| Form And Line Reference | Part I, Line 2: | FormAndLineReferenceDesc |
| Explanation | National Fragile X Foundation requires ongoing feedback in the form of oral and written reports in order to monitor the progress of each grant recipient. The Foundation also receives status reports on ongoing research developments. | ExplanationTxt |
Schedule J IRS990ScheduleJ
| Field | Value | IRS element (for citing) |
|---|---|---|
| Form990 Of Other Organizations | Yes (X) | Form990OfOtherOrganizationsInd |
| Board Or Committee Approval | Yes (X) | BoardOrCommitteeApprovalInd |
| Severance Payment | 0 | SeverancePaymentInd |
| Supplemental Nonqual Rtr Plan | 0 | SupplementalNonqualRtrPlanInd |
| Equity Based Comp Arrngm | 0 | EquityBasedCompArrngmInd |
| Comp Based On Revenue Of Flng Org | 0 | CompBasedOnRevenueOfFlngOrgInd |
| Comp Bsd On Rev Related Orgs | 0 | CompBsdOnRevRelatedOrgsInd |
| Comp Bsd Net Earns Flng Org | 0 | CompBsdNetEarnsFlngOrgInd |
| Comp Bsd Net Earns Rltd Orgs | 0 | CompBsdNetEarnsRltdOrgsInd |
| Any Non Fixed Payments | 0 | AnyNonFixedPaymentsInd |
| Initial Contract Exception | 0 | InitialContractExceptionInd |
Rltd Org Officer Trst Key Empl RltdOrgOfficerTrstKeyEmplGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Person | Tony Ferlenda | PersonNm |
| Title | CEO | TitleTxt |
| Base Compensation Filing Org | $148,987 | BaseCompensationFilingOrgAmt |
| Compensation Based On Rltd Orgs | $0 | CompensationBasedOnRltdOrgsAmt |
| Bonus Filing Organization | $20,000 | BonusFilingOrganizationAmount |
| Bonus Related Organizations | $0 | BonusRelatedOrganizationsAmt |
| Other Compensation Filing Org | $5,250 | OtherCompensationFilingOrgAmt |
| Other Compensation Rltd Orgs | $0 | OtherCompensationRltdOrgsAmt |
| Deferred Compensation Flng Org | $0 | DeferredCompensationFlngOrgAmt |
| Deferred Comp Rltd Orgs | $0 | DeferredCompRltdOrgsAmt |
| Nontaxable Benefits Filing Org | $11,500 | NontaxableBenefitsFilingOrgAmt |
| Nontaxable Benefits Rltd Orgs | $0 | NontaxableBenefitsRltdOrgsAmt |
| Total Compensation Filing Org | $185,737 | TotalCompensationFilingOrgAmt |
| Total Compensation Rltd Orgs | $0 | TotalCompensationRltdOrgsAmt |
| Comp Report Prior990 Filing Org | $0 | CompReportPrior990FilingOrgAmt |
| Comp Report Prior990 Rltd Orgs | $0 | CompReportPrior990RltdOrgsAmt |
Schedule O IRS990ScheduleO
Supplemental Information Detail SupplementalInformationDetail (6 entries)
| Form And Line ReferenceFormAndLineReferenceDesc | ExplanationExplanationTxt |
|---|---|
| Form 990, Part VI, Section B, line 11b | All board members receive a copy of the 990 for review prior to filing. |
| Form 990, Part VI, Section B, line 12c | Members of the board of directors review all potential conflicts of interest at least annually. The Executive Director and all board members are required to disclose (in writing) potential conflicts and any related party affiliations. Loans between the organization and members of management and the board are strictly prohibited. The organization seeks full transparency on all relationships. Any potential conflicts of interest (in fact or appearance) are discussed openly and resolved in accordance with the organization's policies and procedures, which is reproduced here: Board members are to disclose in writing to the entire board if they, or any member of their immediate families, or any organization with which they are affiliated, presently transact business with the NFXF or might reasonably be expected to do so in the future. An affiliation with an organization will be considered to exist when a board member or a member of his or her immediate family is an officer, director, trustee, partner, employee, or agent of the organization; or owns five percent of the voting stock of controlling interest in the organization; or has any substantial interest or dealings with the organization. Board members with such relationships will not be eligible to vote on matters directly pertaining to the business to be transacted with the identified person or organization or on issues that may result in any benefit inuring to the benefit of the identified person or organization. Minutes or appropriate meetings are to reflect that such disclosure was made, that such board member abstained from voting, and that such board member was not counted for the purpose of determining a quorum. The foregoing requirements, however, are not to be construed to prevent a particular board member from briefly stating his/her position on the matter, nor from answering pertinent questions or other directors by reason of the fact that personal knowledge of on the matter may be of assistance to the other board members in reaching their decision. Board members maintaining no such relationships will attest to that fact in writing and agree to notify the board should their status change. |
| Form 990, Part VI, Section B, line 15 | Members of the board of directors review the compensation of all high-level personnel periodically in accordance with IRS rules and regulations. Efforts are made to secure compensation data from industry sources in order to determine competitiveness and appropriateness of salaries and all related benefits. All decisions are then documented in personnel files. Compensation of other high-level personnel and key employees is reviewed periodically by members of management. Efforts are made to secure compensation data from industry sources in order to determine competitiveness and appropriateness of salaries and all related benefits. All decisions are then documented in personnel files. |
| Form 990, Part VI, Section C, line 19 | Audited financials and 990 are posted on website annually. |
| Form 990, Part IX, line 11g | Contracted labor: Program service expenses 182,641. Management and general expenses 81,387. Fundraising expenses 0. Total expenses 264,028. Research: Program service expenses 78,332. Management and general expenses 0. Fundraising expenses 0. Total expenses 78,332. Advocacy: Program service expenses 16,200. Management and general expenses 0. Fundraising expenses 0. Total expenses 16,200. |
| Form 990, Part XI, line 9: | Return of grants made in prior year. 3,058. |
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