NATIONAL SCLERODERMA FOUNDATION

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Cite this

Plain text NATIONAL SCLERODERMA FOUNDATION. furp.org, nonprofit organization profile, tax years 2011–2024. https://furp.org/org/national-scleroderma-foundation-521375827. Retrieved 2026-11-15.

APA furp.org. (n.d.). NATIONAL SCLERODERMA FOUNDATION [Nonprofit organization profile; tax years 2011–2024]. Retrieved November 15, 2026, from https://furp.org/org/national-scleroderma-foundation-521375827

MLA “NATIONAL SCLERODERMA FOUNDATION.” furp.org, tax years 2011–2024, https://furp.org/org/national-scleroderma-foundation-521375827. Accessed 15 Nov. 2026.

Retrieved 2026-11-15; covers tax years 2011–2024. Data: furp.org (index © the FURP Alliance; the records are public domain).

2024 · Form 990 · revenue $6.6M ($6.8M in 2025 dollars) · expenses $6.8M · assets $11.3M

EIN: 52-1375827
Address: 55 FERNCROFT RD STE 315, DANVERS, MA 01923-4001
Website: WWW.SCLERODERMA.ORG
NTEE code: H40 Diseases of Specific Organ Research (Medical Research) published (IRS Business Master File, as H400)
FURP topic: men: issues · science: research education · women: issues (from its 990 text; the topic index)
Exempt type: 501(c)(3): charitable, religious, educational, scientific or literary (corporation)
Ruling date: January 1985 (when the IRS recognized its exemption)
IRS status: Exempt (unconditional) (IRS Business Master File) IRS data ↗
Tax-deductible donations: Yes: listed in IRS Publication 78 (public charity) Pub 78 ↗
Foundation status: Public charity supported by the public (170(b)(1)(a)(vi))
Cross-check: ProPublica Nonprofit Explorer

Mission

THE NATIONAL SCLERODERMA FOUNDATION'S MISSION IS TO ADVANCE MEDICAL RESEARCH, PROMOTE DISEASE AWARENESS, AND PROVIDE SUPPORT AND EDUCATION TO PEOPLE WITH SCLERODERMA, THEIR FAMILIES AND SUPPORT NETWORKS.

Each tax year counts once: when a return was amended, only the latest return for that period is used below (superseded returns stay listed, greyed, under Finances).

People paid by the organization

7 people paid across every filing: current people first, then by total pay from this organization. Organizations counts every nonprofit each person appears on.

Name	Latest title	Years	Latest year pay	Total pay from here	Organizations
Mary J Wheatley	CEO	2021-2024	$278,003	$882,986	1
Michael B Hyde	VP OF FINANCE	2020-2024	$168,658	$849,629	1
Ashley M Pruett	VP OF COMMUNITY ENGAGEMENT	2023-2024	$170,039	$319,758	1
Catherine M Anastasia	SENIOR DIRECTOR, MISSION DELIVERY	2024	$128,330	$128,330	1
Elizabeth J Mulroy	SENIOR DIRECTOR, CHAPTER OPERATIONS	2024	$117,472	$117,472	1
Robert J Riggs (former)	CEO (UNTIL DEC 2021)	2011-2021	$94,974	$1,310,033	1
Kerri Connolly (former)	NAT. DIRECTOR OF PROGRAMS & SERV.	2020	$115,573	$115,573	1

Officers and directors, no compensation reported

40 people listed on the returns with $0 (or no amount) in every compensation column: current people first. Hours are as filed on the latest return each person appears on.

Name	Latest title	Years	Hrs/wk (latest)	Compensation	Organizations
Cos Mallozzi	DIRECTOR	2011-2024	2	$0 reported	1
Courtney Caliendo Esq	DIRECTOR	2020-2024	2	$0 reported	1
Christina Loccke	DIRECTOR	2019-2024	2	$0 reported	1
Mary Blades	DIRECTOR	2011-2024	2	$0 reported	1
Mark Orozco Iii Mba	DIRECTOR	2022-2024	2	$0 reported	1
Linda Bornstein Baum Od	DIRECTOR	2022-2024	2	$0 reported	1
Marcia Walker	SECRETARY	2018-2024	2	$0 reported	1
Zeba Hyder	DIRECTOR	2022-2024	2	$0 reported	1
Nancy Waltermire	DIRECTOR	2023-2024	2	$0 reported	1
Aj Nahmad	DIRECTOR	2023-2024	2	$0 reported	1
Jane Ladas	DIRECTOR	2016-2024	2	$0 reported	2
Kevin Boyanowski	CHAIR	2016-2024	2	$0 reported	1
Carol Feghali-Bostwick Ph D	VICE CHAIR	2022-2024	2	$0 reported	1
J Michael Levengood Esq	DIRECTOR	2023-2024	2	$0 reported	1
Blake Embree	TREASURER	2023-2024	2	$0 reported	1
Tera Carter	DIRECTOR	2024	2	$0 reported	1
Scott Ceresnak Md	DIRECTOR	2024	2	$0 reported	1
Tracy Porter Med Sphr	DIRECTOR	2024	2	$0 reported	1
Peggy Collins	DIRECTOR	2024	2	$0 reported	1
Tracy Porter (former)	DIRECTOR	2023	2	$0 reported	1
Jeanne Theissen (former)	DIRECTOR	2021-2022	2	$0 reported	1
Michael Pursel (former)	DIRECTOR	2022	2	$0 reported	1
Mike Levengood Esq (former)	SECRETARY	2016-2022	2	$0 reported	1
Cyndy Besselievre Cpa (former)	TREASURER	2019-2022	2	$0 reported	1
Mark Orozco (former)	DIRECTOR	2016-2021	2	$0 reported	1
Linda Baum (former)	DIRECTOR	2018-2021	2	$0 reported	1
Carol Feghali-Bostwick Phd (former)	VICE CHAIR	2011-2021	2	$0 reported	1
Greg Marion (former)	TREASURER (UNTIL JUL 2021)	2011-2021	2	$0 reported	1
Mary Beth Tourbin (former)	DIRECTOR (UNTIL NOV '20)	2019-2020	2	$0 reported	1
Bill Martin (former)	DIRECTOR	2015-2018	2	$0 reported	1
Katayun Jaffari (former)	DIRECTOR	2015-2018	2	$0 reported	1
Robert Kacick (former)	DIRECTOR	2011-2015	2	$0 reported	1
Lee Roy Jones (former)	DIRECTOR	2011-2015	2	$0 reported	1
Robert Slappey (former)	DIRECTOR	2015	2	$0 reported	1
Bruce Cowan (former)	SECRETARY	2015	2	$0 reported	1
Marie Coyle (former)	DIRECTOR	2011-2014	2	$0 reported	2
Joseph P Camerino Phd (former)	CHAIR	2011-2014	2	$0 reported	1
James Evans (former)	DIRECTOR	2012-2014	2	$0 reported	1
Bob Slappey (former)	DIRECTOR	2011-2014	2	$0 reported	1
Kerry Hall (former)	DIRECTOR	2011	2	$0 reported	1

People by year

2024 · 24 people listed · 5 paid, $863K · 33 employees · 275 volunteers

Name	Title	Hrs/wk	From org	From related	Other	Total	Orgs
MARY J WHEATLEY	CEO	37	$253,027	$0	$24,976	$278,003	1
ASHLEY M PRUETT	VP OF COMMUNITY ENGAGEMENT	37	$144,410	$0	$25,629	$170,039	1
MICHAEL B HYDE	VP OF FINANCE	37	$131,092	$0	$37,566	$168,658	1
CATHERINE M ANASTASIA	SENIOR DIRECTOR, MISSION DELIVERY	37	$113,309	$0	$15,021	$128,330	1
ELIZABETH J MULROY	SENIOR DIRECTOR, CHAPTER OPERATIONS	37	$113,580	$0	$3,892	$117,472	1
KEVIN BOYANOWSKI	CHAIR	2	$0	$0	$0	$0	1
CAROL FEGHALI-BOSTWICK PH D	VICE CHAIR	2	$0	$0	$0	$0	1
BLAKE EMBREE	TREASURER	2	$0	$0	$0	$0	1
MARCIA WALKER	SECRETARY	2	$0	$0	$0	$0	1
LINDA BORNSTEIN BAUM OD	DIRECTOR	2	$0	$0	$0	$0	1
MARY BLADES	DIRECTOR	2	$0	$0	$0	$0	1
COURTNEY CALIENDO ESQ	DIRECTOR	2	$0	$0	$0	$0	1
TERA CARTER	DIRECTOR	2	$0	$0	$0	$0	1
SCOTT CERESNAK MD	DIRECTOR	2	$0	$0	$0	$0	1
ZEBA HYDER	DIRECTOR	2	$0	$0	$0	$0	1
AJ NAHMAD	DIRECTOR	2	$0	$0	$0	$0	1
TRACY PORTER MED SPHR	DIRECTOR	2	$0	$0	$0	$0	1
NANCY WALTERMIRE	DIRECTOR	2	$0	$0	$0	$0	1
CHRISTINA LOCCKE	DIRECTOR	2	$0	$0	$0	$0	1
JANE LADAS	DIRECTOR	2	$0	$0	$0	$0	2
COS MALLOZZI	DIRECTOR	2	$0	$0	$0	$0	1
MARK OROZCO III MBA	DIRECTOR	2	$0	$0	$0	$0	1
J MICHAEL LEVENGOOD ESQ	DIRECTOR	2	$0	$0	$0	$0	1
PEGGY COLLINS	DIRECTOR	2	$0	$0	$0	$0	1

2023 · 19 people listed · 3 paid, $595K · 35 employees · 225 volunteers

Name	Title	Hrs/wk	From org	From related	Other	Total	Orgs
MARY J WHEATLEY	CEO	40	$235,945	$0	$17,580	$253,525	1
MICHAEL B HYDE	VP OF FINANCE	40	$158,406	$0	$33,748	$192,154	1
ASHLEY M PRUETT	VP OF COMMUNITY ENGAGEMENT	40	$127,832	$0	$21,887	$149,719	1
COS MALLOZZI	DIRECTOR	2	$0	$0	$0	$0	1
COURTNEY CALIENDO	DIRECTOR	2	$0	$0	$0	$0	1
CHRISTINA LOCCKE	DIRECTOR	2	$0	$0	$0	$0	1
MARY BLADES	DIRECTOR	2	$0	$0	$0	$0	1
TRACY PORTER	DIRECTOR	2	$0	$0	$0	$0	1
MARK OROZCO III MBA	DIRECTOR	2	$0	$0	$0	$0	1
LINDA BORNSTEIN BAUM OD	DIRECTOR	2	$0	$0	$0	$0	1
MARCIA WALKER	DIRECTOR	2	$0	$0	$0	$0	1
ZEBA HYDER	DIRECTOR	2	$0	$0	$0	$0	1
NANCY WALTERMIRE	DIRECTOR	2	$0	$0	$0	$0	1
AJ NAHMAD	DIRECTOR	2	$0	$0	$0	$0	1
JANE LADAS	DIRECTOR	2	$0	$0	$0	$0	2
KEVIN BOYANOWSKI	CHAIR (INTERIM TREAS JUL 23-APR 24)	2	$0	$0	$0	$0	1
CAROL FEGHALI-BOSTWICK PH D	VICE CHAIR	2	$0	$0	$0	$0	1
J MICHAEL LEVENGOOD ESQ	SECRETARY	2	$0	$0	$0	$0	1
BLAKE EMBREE	TREASURER (SINCE APR '24)	2	$0	$0	$0	$0	1

2022 · 16 people listed · 2 paid, $426K · 33 employees · 300 volunteers

Name	Title	Hrs/wk	From org	From related	Other	Total	Orgs
MARY J WHEATLEY	CEO	40	$226,252	$0	$17,160	$243,412	1
MICHAEL B HYDE	COO/CFO	40	$150,589	$0	$31,671	$182,260	1
COS MALLOZZI	DIRECTOR	2	$0	$0	$0	$0	1
COURTNEY CALIENDO	DIRECTOR	2	$0	$0	$0	$0	1
CHRISTINA LOCCKE	DIRECTOR	2	$0	$0	$0	$0	1
MARY BLADES	DIRECTOR	2	$0	$0	$0	$0	1
JEANNE THEISSEN	DIRECTOR	2	$0	$0	$0	$0	1
MARK OROZCO III MBA	DIRECTOR	2	$0	$0	$0	$0	1
LINDA BORNSTEIN BAUM OD	DIRECTOR	2	$0	$0	$0	$0	1
MARCIA WALKER	DIRECTOR	2	$0	$0	$0	$0	1
ZEBA HYDER	DIRECTOR	2	$0	$0	$0	$0	1
MICHAEL PURSEL	DIRECTOR	2	$0	$0	$0	$0	1
KEVIN BOYANOWSKI	CHAIR	2	$0	$0	$0	$0	1
CAROL FEGHALI-BOSTWICK PH D	VICE CHAIR	2	$0	$0	$0	$0	1
MIKE LEVENGOOD ESQ	SECRETARY	2	$0	$0	$0	$0	1
CYNDY BESSELIEVRE CPA	TREASURER	2	$0	$0	$0	$0	1

2021 · 16 people listed · 3 paid, $362K · 0 employees · 0 volunteers

Name	Title	Hrs/wk	From org	From related	Other	Total	Orgs
MICHAEL B HYDE	COO/CFO	40	$129,165	$0	$30,215	$159,380	1
MARY J WHEATLEY	CEO (SINCE JULY 1, 2021)	40	$101,145	$0	$6,901	$108,046	1
ROBERT J RIGGS	CEO (UNTIL DEC 2021)	40	$83,028	$0	$11,946	$94,974	1
KEVIN BOYANOWSKI	DIRECTOR	2	$0	$0	$0	$0	1
COURTNEY CALIENDO	DIRECTOR	2	$0	$0	$0	$0	1
CHRISTINA LOCCKE	DIRECTOR	2	$0	$0	$0	$0	1
MARY BLADES	DIRECTOR	2	$0	$0	$0	$0	1
JEANNE THEISSEN	DIRECTOR (SINCE JUL 2021)	2	$0	$0	$0	$0	1
MARK OROZCO	DIRECTOR	2	$0	$0	$0	$0	1
LINDA BAUM	DIRECTOR	2	$0	$0	$0	$0	1
MARCIA WALKER	DIRECTOR	2	$0	$0	$0	$0	1
COS MALLOZZI	CHAIR	2	$0	$0	$0	$0	1
CAROL FEGHALI-BOSTWICK PHD	VICE CHAIR	2	$0	$0	$0	$0	1
MIKE LEVENGOOD	SECRETARY	2	$0	$0	$0	$0	1
CYNDY BESSELIEVRE	TREASURER (SINCE JUL 2021)	2	$0	$0	$0	$0	1
GREG MARION	TREASURER (UNTIL JUL 2021)	2	$0	$0	$0	$0	1

2020 · 16 people listed · 3 paid, $397K · 24 employees · 450 volunteers

Name	Title	Hrs/wk	From org	From related	Other	Total	Orgs
MICHAEL B HYDE	COO/CFO	40	$119,808	$0	$27,369	$147,177	1
ROBERT J RIGGS	CEO	40	$119,708	$0	$14,323	$134,031	1
KERRI CONNOLLY	NAT. DIRECTOR OF PROGRAMS & SERV.	40	$102,480	$0	$13,093	$115,573	1
KEVIN BOYANOWSKI	DIRECTOR	2	$0	$0	$0	$0	1
COURTNEY CALIENDO	DIRECTOR	2	$0	$0	$0	$0	1
CHRISTINA LOCCKE	DIRECTOR	2	$0	$0	$0	$0	1
MARY BLADES	DIRECTOR	2	$0	$0	$0	$0	1
MARY BETH TOURBIN	DIRECTOR (UNTIL NOV '20)	2	$0	$0	$0	$0	1
MARK OROZCO	DIRECTOR	2	$0	$0	$0	$0	1
LINDA BAUM	DIRECTOR	2	$0	$0	$0	$0	1
MARCIA WALKER	DIRECTOR	2	$0	$0	$0	$0	1
CYNDY BESSELIEVRE	DIRECTOR	2	$0	$0	$0	$0	1
COS MALLOZZI	CHAIR	2	$0	$0	$0	$0	1
CAROL FEGHALI-BOSTWICK PHD	VICE CHAIR	2	$0	$0	$0	$0	1
MIKE LEVENGOOD	SECRETARY	2	$0	$0	$0	$0	1
GREG MARION	TREASURER	2	$0	$0	$0	$0	1

2019 · 14 people listed · 1 paid, $129K · 24 employees · 713 volunteers

Name	Title	Hrs/wk	From org	From related	Other	Total	Orgs
ROBERT J RIGGS	CEO	40	$115,042	$0	$13,897	$128,939	1
KEVIN BOYANOWSKI	DIRECTOR	2	$0	$0	$0	$0	1
JANE LADAS	DIRECTOR	2	$0	$0	$0	$0	2
CHRISTINA LOCCKE	DIRECTOR	2	$0	$0	$0	$0	1
MARY BLADES	DIRECTOR	2	$0	$0	$0	$0	1
MARY BETH TOURBIN	DIRECTOR	2	$0	$0	$0	$0	1
MARK OROZCO	DIRECTOR	2	$0	$0	$0	$0	1
LINDA BAUM	DIRECTOR	2	$0	$0	$0	$0	1
MARCIA WALKER	DIRECTOR	2	$0	$0	$0	$0	1
CYNDY BESSELIEVRE	DIRECTOR	2	$0	$0	$0	$0	1
COS MALLOZZI	CHAIR	2	$0	$0	$0	$0	1
CAROL FEGHALI-BOSTWICK PHD	VICE CHAIR	2	$0	$0	$0	$0	1
MIKE LEVENGOOD	SECRETARY	2	$0	$0	$0	$0	1
GREG MARION	TREASURER	2	$0	$0	$0	$0	1

2018 · 13 people listed · 1 paid, $125K · 28 employees · 981 volunteers

Name	Title	Hrs/wk	From org	From related	Other	Total	Orgs
ROBERT J RIGGS	CEO	40	$112,008	$0	$13,026	$125,034	1
KEVIN BOYANOWSKI	DIRECTOR	2	$0	$0	$0	$0	1
JANE LADAS	DIRECTOR	2	$0	$0	$0	$0	2
BILL MARTIN	DIRECTOR	2	$0	$0	$0	$0	1
MARY BLADES	DIRECTOR	2	$0	$0	$0	$0	1
KATAYUN JAFFARI	DIRECTOR	2	$0	$0	$0	$0	1
MARK OROZCO	DIRECTOR	2	$0	$0	$0	$0	1
LINDA BAUM	DIRECTOR	2	$0	$0	$0	$0	1
MARCIA WALKER	DIRECTOR	2	$0	$0	$0	$0	1
COS MALLOZZI	CHAIR	2	$0	$0	$0	$0	1
CAROL FEGHALI-BOSTWICK PHD	VICE CHAIR	2	$0	$0	$0	$0	1
MIKE LEVENGOOD	SECRETARY	2	$0	$0	$0	$0	1
GREG MARION	TREASURER	2	$0	$0	$0	$0	1

2017 · 11 people listed · 1 paid, $123K · 26 employees · 914 volunteers

Name	Title	Hrs/wk	From org	From related	Other	Total	Orgs
ROBERT J RIGGS	CEO	40	$110,261	$0	$12,380	$122,641	1
KEVIN BOYANOWSKI	DIRECTOR	2	$0	$0	$0	$0	1
JANE LADAS	DIRECTOR	2	$0	$0	$0	$0	2
MIKE LEVENGOOD	DIRECTOR	2	$0	$0	$0	$0	1
MARY BLADES	DIRECTOR	2	$0	$0	$0	$0	1
KATAYUN JAFFARI	DIRECTOR	2	$0	$0	$0	$0	1
MARK OROZCO	DIRECTOR	2	$0	$0	$0	$0	1
COS MALLOZZI	CHAIR	2	$0	$0	$0	$0	1
CAROL FEGHALI-BOSTWICK PHD	VICE CHAIR	2	$0	$0	$0	$0	1
BILL MARTIN	SECRETARY	2	$0	$0	$0	$0	1
GREG MARION	TREASURER	2	$0	$0	$0	$0	1

2016 · 11 people listed · 1 paid, $122K · 30 employees · 711 volunteers

Name	Title	Hrs/wk	From org	From related	Other	Total	Orgs
ROBERT J RIGGS	CEO	40	$110,230	$0	$12,099	$122,329	1
KEVIN BOYANOWSKI	DIRECTOR	2	$0	$0	$0	$0	1
JANE LADAS	DIRECTOR	2	$0	$0	$0	$0	2
MIKE LEVENGOOD	DIRECTOR	2	$0	$0	$0	$0	1
MARY BLADES	DIRECTOR	2	$0	$0	$0	$0	1
KATAYUN JAFFARI	DIRECTOR	2	$0	$0	$0	$0	1
MARK OROZCO	DIRECTOR	2	$0	$0	$0	$0	1
COS MALLOZZI	CHAIR	2	$0	$0	$0	$0	1
CAROL FEGHALI-BOSTWICK PHD	VICE CHAIR	2	$0	$0	$0	$0	1
BILL MARTIN	SECRETARY	2	$0	$0	$0	$0	1
GREG MARION	TREASURER	2	$0	$0	$0	$0	1

2015 · 11 people listed · 1 paid, $118K · 24 employees · 625 volunteers

Name	Title	Hrs/wk	From org	From related	Other	Total	Orgs
ROBERT J RIGGS	CEO	40	$106,255	$0	$11,702	$117,957	1
ROBERT KACICK	DIRECTOR	2	$0	$0	$0	$0	1
LEE ROY JONES	DIRECTOR	2	$0	$0	$0	$0	1
MARY BLADES	DIRECTOR	2	$0	$0	$0	$0	1
KATAYUN JAFFARI	DIRECTOR	2	$0	$0	$0	$0	1
ROBERT SLAPPEY	DIRECTOR	2	$0	$0	$0	$0	1
BILL MARTIN	DIRECTOR	2	$0	$0	$0	$0	1
COS MALLOZZI	CHAIR	2	$0	$0	$0	$0	1
CAROL FEGHALI-BOSTWICK PHD	VICE CHAIR	2	$0	$0	$0	$0	1
BRUCE COWAN	SECRETARY	2	$0	$0	$0	$0	1
GREG MARION	TREASURER	2	$0	$0	$0	$0	1

2014 · 11 people listed · 1 paid, $113K · 24 employees · 675 volunteers

Name	Title	Hrs/wk	From org	From related	Other	Total	Orgs
ROBERT J RIGGS	CEO	40	$101,870	$0	$11,316	$113,186	1
JOSEPH P CAMERINO PHD	CHAIR	2	$0	$0	$0	$0	1
CAROL FEGHALI-BOSTWICK PHD	VICE CHAIR & ACTING SECRET	2	$0	$0	$0	$0	1
COS MALLOZZI	DIRECTOR	2	$0	$0	$0	$0	1
JAMES EVANS	DIRECTOR	2	$0	$0	$0	$0	1
ROBERT KACICK	DIRECTOR	2	$0	$0	$0	$0	1
LEE ROY JONES	DIRECTOR	2	$0	$0	$0	$0	1
GREG MARION	DIRECTOR	2	$0	$0	$0	$0	1
MARY BLADES	DIRECTOR	2	$0	$0	$0	$0	1
MARIE COYLE	DIRECTOR	2	$0	$0	$0	$0	2
BOB SLAPPEY	DIRECTOR	2	$0	$0	$0	$0	1

2013 · 11 people listed · 1 paid, $117K · 25 employees · 675 volunteers

Name	Title	Hrs/wk	From org	From related	Other	Total	Orgs
ROBERT J RIGGS	CEO	40	$99,986	$0	$17,159	$117,145	1
JOSEPH P CAMERINO PHD	CHAIR	2	$0	$0	$0	$0	1
CAROL FEGHALI-BOSTWICK PHD	VICE CHAIR & ACTING SECRET	2	$0	$0	$0	$0	1
COS MALLOZZI	DIRECTOR	2	$0	$0	$0	$0	1
JAMES EVANS	DIRECTOR	2	$0	$0	$0	$0	1
ROBERT KACICK	DIRECTOR	2	$0	$0	$0	$0	1
LEE ROY JONES	DIRECTOR	2	$0	$0	$0	$0	1
GREG MARION	DIRECTOR	2	$0	$0	$0	$0	1
MARY BLADES	DIRECTOR	2	$0	$0	$0	$0	1
MARIE COYLE	DIRECTOR	2	$0	$0	$0	$0	2
BOB SLAPPEY	DIRECTOR	2	$0	$0	$0	$0	1

2012 · 11 people listed · 1 paid, $115K · 27 employees · 675 volunteers

Name	Title	Hrs/wk	From org	From related	Other	Total	Orgs
ROBERT J RIGGS	CEO	40	$97,997	$0	$17,136	$115,133	1
JOSEPH P CAMERINO PHD	CHAIR	2	$0	$0	$0	$0	1
CAROL FEGHALI-BOSTWICK PHD	VICE CHAIR & ACTING SECRET	2	$0	$0	$0	$0	1
COS MALLOZZI	TREASURER	2	$0	$0	$0	$0	1
JAMES EVANS	DIRECTOR	2	$0	$0	$0	$0	1
ROBERT KACICK	DIRECTOR	2	$0	$0	$0	$0	1
LEE ROY JONES	DIRECTOR	2	$0	$0	$0	$0	1
GREG MARION	DIRECTOR	2	$0	$0	$0	$0	1
MARY BLADES	DIRECTOR	2	$0	$0	$0	$0	1
MARIE COYLE	DIRECTOR	2	$0	$0	$0	$0	2
BOB SLAPPEY	DIRECTOR	2	$0	$0	$0	$0	1

2011 · 11 people listed · 1 paid, $119K · 31 employees · 650 volunteers

Name	Title	Hrs/wk	From org	From related	Other	Total	Orgs
ROBERT J RIGGS	CEO	40	$101,030	$0	$17,634	$118,664	1
JOSEPH P CAMERINO PHD	CHAIR	2	$0	$0	$0	$0	1
CAROL FEGHALI-BOSTWICK PHD	VICE CHAIR & ACTING SECRETARY	2	$0	$0	$0	$0	1
COS MALLOZZI	TREASURER	2	$0	$0	$0	$0	1
KERRY HALL	DIRECTOR	2	$0	$0	$0	$0	1
ROBERT KACICK	DIRECTOR	2	$0	$0	$0	$0	1
LEE ROY JONES	DIRECTOR	2	$0	$0	$0	$0	1
GREG MARION	DIRECTOR	2	$0	$0	$0	$0	1
MARY BLADES	DIRECTOR	2	$0	$0	$0	$0	1
MARIE COYLE	DIRECTOR	2	$0	$0	$0	$0	2
BOB SLAPPEY	DIRECTOR	2	$0	$0	$0	$0	1

Highest-paid independent contractors

2024 · 1 contractor · $155K

Name	Location	Service	Paid
1PATH MANAGED SERVICES LLC	ATLANTA, GA	IT SERVICES	$154,829

2023 · 1 contractor · $107K

Name	Location	Service	Paid
COMMUNITY COUNSELING SERVICE CO LLC	PHILADELPHIA, PA	PROFESSIONAL SERVICES	$106,791

2022 · 1 contractor · $116K

Name	Location	Service	Paid
MARKSTEIN CONSULTING LLC	BIRMINGHAM, AL	STRATEGY & COMMUNICATIONS	$116,415

2021 · 2 contractors · $338K

Name	Location	Service	Paid
BLACKBAUD INC	ATLANTA, GA	WEBSITE SUPPORT	$205,065
ROBERT HALFACCOUNTEMPS	CHICAGO, IL	TEMPORARY STAFFING SERVICES	$132,631

2020 · 3 contractors · $486K

Name	Location	Service	Paid
COPLEY RAFF	BOSTON, MA	ORGANIZATIONAL CONSULTANTS	$181,409
BLACKBAUD INC	ATLANTA, GA	WEBSITE SUPPORT	$175,471
BROGAN & PARTNERS	BIRMINGHAM, MI	EVENT & EDUCATION SERVICES	$129,167

2019 · 2 contractors · $249K

Name	Location	Service	Paid
BLACKBAUD INC	ATLANTA, GA	WEBSITE SUPPORT	$128,020
BROGAN & PARTNERS	FERNDALE, MI	EVENT & EDUCATION SERVICES	$121,000

2018 · 1 contractor · $126K

Name	Location	Service	Paid
BLACKBAUD INC	ATLANTA, GA	WEBSITE SUPPORT	$125,752

2017 · 2 contractors · $258K

Name	Location	Service	Paid
BROGRAN & PARTNERS	BIRMINGHAM, MI	EVENT AND EDUCATION SERVICES	$137,600
BLACKBAUD INC	ATLANTA, GA	WEBSITE SUPPORT	$120,240

2016 · 1 contractor · $191K

Name	Location	Service	Paid
BLACKBAUD INC	ATLANTA, GA	WEBSITE SUPPORT	$191,024

2015 · 1 contractor · $128K

Name	Location	Service	Paid
BLACKBAUD INC	ATLANTA, GA	WEBSITE SUPPORT	$128,500

2014 · 1 contractor · $112K

Name	Location	Service	Paid
BLACKBAUD INC	ATLANTA, GA	WEBSITE SUPPORT	$112,438

Who the money went to

Grants this organization reported paying: Schedule I Part II of the Form 990, or the grants-paid list on the 990-PF. Open a year for every recipient. Recipients link to their own page when the grant names an EIN we have (990-PF grants list no EIN, so those link only on an exact, unique name and state). Grants to individuals are counted; their names are not shown.

2024 · 6 grants to organizations · $1.2M

Show every grant for 2024 · CSV

2023 · 6 grants to organizations · $1.2M

Listed grants add up to $1,200,000; the return's “grants paid” expense line says $1,453,529. Returns can differ here (grants paid vs. accrued, items listed elsewhere); check the filing.

Show every grant for 2023 · CSV

2022 · 8 grants to organizations · $1.6M

Listed grants add up to $1,600,000; the return's “grants paid” expense line says $1,812,000. Returns can differ here (grants paid vs. accrued, items listed elsewhere); check the filing.

Show every grant for 2022 · CSV

2021 · 13 grants to organizations · $2.4M

Show every grant for 2021 · CSV

2020 · 7 grants to organizations · $1.1M

Listed grants add up to $1,050,000; the return's “grants paid” expense line says $1,216,546. Returns can differ here (grants paid vs. accrued, items listed elsewhere); check the filing.

Show every grant for 2020 · CSV

2019 · 8 grants to organizations · $1.2M

Show every grant for 2019 · CSV

2018 · 8 grants to organizations · $1.1M

Listed grants add up to $1,150,000; the return's “grants paid” expense line says $1,242,545. Returns can differ here (grants paid vs. accrued, items listed elsewhere); check the filing.

Show every grant for 2018 · CSV

2017 · 8 grants to organizations · $1.2M

Listed grants add up to $1,200,000; the return's “grants paid” expense line says $1,227,842. Returns can differ here (grants paid vs. accrued, items listed elsewhere); check the filing.

Show every grant for 2017 · CSV

2016 · 8 grants to organizations · $1.5M

Listed grants add up to $1,522,909; the return's “grants paid” expense line says $1,581,496. Returns can differ here (grants paid vs. accrued, items listed elsewhere); check the filing.

Show every grant for 2016 · CSV

2015 · 6 grants to organizations · $1.6M

Listed grants add up to $1,550,000; the return's “grants paid” expense line says $1,649,990. Returns can differ here (grants paid vs. accrued, items listed elsewhere); check the filing.

Show every grant for 2015 · CSV

2014 · 9 grants to organizations · $2.0M

Listed grants add up to $1,960,000; the return's “grants paid” expense line says $2,145,957. Returns can differ here (grants paid vs. accrued, items listed elsewhere); check the filing.

Show every grant for 2014 · CSV

2013 · 6 grants to organizations · $925K

Listed grants add up to $925,066; the return's “grants paid” expense line says $1,005,977. Returns can differ here (grants paid vs. accrued, items listed elsewhere); check the filing.

Show every grant for 2013 · CSV

2012 · 14 grants to organizations · $1.4M

Listed grants add up to $1,367,144; the return's “grants paid” expense line says $1,538,182. Returns can differ here (grants paid vs. accrued, items listed elsewhere); check the filing.

Show every grant for 2012 · CSV

2011 · 16 grants to organizations · $1.7M

Listed grants add up to $1,706,041; the return's “grants paid” expense line says $1,727,178. Returns can differ here (grants paid vs. accrued, items listed elsewhere); check the filing.

Show every grant for 2011 · CSV

Negative amounts are returned or refunded grants; they are listed last and left out of the totals of grants paid.

Who gave

Contributor names are not public for this form type.

Public charities filing Form 990 or 990-EZ report large donors on Schedule B, but the IRS withholds their names and addresses from public copies. Private foundations (990-PF) are different: their contributors are public.

Finances

Newest first. Each filing: its name on one row, its figures on the row beneath. Greyed filings are superseded by a later return for the same period and are left out everywhere else on this page.

Revenue	Expenses	Assets	Net assets	Contributions	Program revenue	Officer pay	Employees	Volunteers
2024 · Form 990 period ending 2025-06-30 · view filing · original 990 ↗
$6,628,652	$6,783,274	$11,259,408	$8,332,615	$5,597,175	$0	$549,811	33	275
2023 · Form 990 period ending 2024-06-30 · view filing · original 990 ↗
$4,941,722	$6,956,852	$11,162,466	$8,353,197	$3,912,611	$0	$444,242	35	225
2022 · Form 990 period ending 2023-06-30 · view filing · original 990 ↗
$6,915,898	$6,461,742	$12,897,422	$9,811,236	$6,057,608	$0	$454,933	33	300
2021 · Form 990 period ending 2022-06-30 · view filing · original 990 ↗
$4,581,467	$6,210,712	$11,463,074	$8,549,621	$4,462,430	$0	$419,642	0	0
2020 · Form 990 period ending 2021-06-30 · view filing · original 990 ↗
$4,188,631	$4,468,676	$13,492,271	$11,398,690	$3,976,045	$0	$298,613	24	450
2019 · Form 990 period ending 2020-06-30 · view filing · original 990 ↗
$3,811,707	$5,012,061	$11,612,013	$9,514,379	$3,405,450	$128,846	$131,114	24	713
2018 · Form 990 period ending 2019-06-30 · view filing · original 990 ↗
$4,729,306	$4,798,303	$12,200,138	$10,418,622	$4,326,448	$114,876	$128,190	28	981
2017 · Form 990 period ending 2018-06-30 · view filing · original 990 ↗
$4,939,002	$5,001,317	$11,983,494	$10,071,672	$4,193,403	$89,020	$122,641	26	914
2016 · Form 990 period ending 2017-06-30 · view filing · original 990 ↗
$5,165,236	$5,211,320	$12,288,226	$10,068,668	$4,581,460	$106,806	$122,329	30	711
2015 · Form 990 period ending 2016-06-30 · view filing · original 990 ↗
$4,338,344	$4,935,756	$12,011,971	$9,651,497	$3,939,641	$91,015	$117,957	24	625
2014 · Form 990 period ending 2015-06-30 · view filing · original 990 ↗
$5,222,808	$5,627,220	$12,755,110	$10,417,973	$4,662,117	$95,672	$114,316	24	675
2013 · Form 990 period ending 2014-06-30 · view filing · original 990 ↗
$4,848,710	$4,331,065	$12,465,186	$10,972,669	$3,977,474	$102,752	$115,747	25	675
2012 · Form 990 period ending 2013-06-30 · view filing · original 990 ↗
$4,550,345	$4,069,723	$11,639,084	$10,017,425	$4,202,914	$73,399	$119,060	27	675
2011 · Form 990 period ending 2012-06-30 · view filing · original 990 ↗
$4,433,016	$4,446,158	$10,615,606	$9,182,832	$4,193,311	$70,765	$116,270	31	650

Connected to

Organizations that list some of the same people on their returns (officers, directors, key employees on this organization’s latest return), and related organizations it lists on Schedule R.

SCLERODERMA FOUNDATION NEW ENGLAND INC Topsfield, MA · 1 person in common (Jane Ladas)

Funders of this organization

89 grantors reported grants to this organization, $6,699,016 in all, tax years 2009 to 2025; the 25 largest shown (all 89). Exact: the grantor wrote this organization's EIN. Fuzzy: the grantor wrote only a name (foundations' 990-PF has no EIN field), matched to the same or a near-identical name in the same state; the name as filed is shown. From the latest return for each grantor and year, so amended returns aren't counted twice. CSV

Grantor	Total given	Grants	Latest year's amount	Latest year	Years given	Type	Match	Grants
SCLERODERMA FOUNDATION OF GREATER CHICAGO	$2,937,111	14	$83,780	2023	2010-2023	Public charity	Exact	show
SCLERODERMA FOUNDATION NEW ENGLAND INC	$703,052	10	$19,845	2021	2012-2021	Public charity	Exact	show
SCLERODERMA FOUNDATION	$438,239	4	$176,264	2023	2015-2017, 2023	Public charity	Exact	show
SCLERODERMA FOUNDATION OF THE DELAWARE VALLEY	$430,320	3	$199,762	2016	2014-2016	Public charity	Exact	show
THE SCLERODERMA FOUNDATION OF CALIFORNIA	$291,841	8	$14,402	2021	2013, 2015-2021	Public charity	Exact	show
FIDELITY INVESTMENTS CHARITABLE GIFT FUND	$278,340	8	$43,897	2024	2017-2024	DAF sponsor	Exact	show
ALBERT H & JANE D NAHMAD FOUNDATION INC	$250,000	4	$125,000	2025	2022-2025	Private foundation	Fuzzy filed as “NATIONAL SCLERODERMA FOUNDATION INC”	show
AMERICAN ONLINE GIVING FOUNDATION INC	$219,232	7	$41,432	2025	2019-2025	DAF sponsor	Exact	show
DONOR ADVISED CHARITABLE GIVING	$138,675	8	$34,950	2024	2015-2017, 2020-2024	DAF sponsor	Exact	show
TRIANGLE COMMUNITY FOUNDATION	$100,000	1	$100,000	2014	2014	DAF sponsor	Exact	show
COLORADO GIVES FOUNDATION	$88,988	10	$5,790	2022	2013-2022	DAF sponsor	Exact	show
FORGOOD INC	$88,499	3	$15,763	2019	2017-2019	DAF sponsor	Exact	show
COMMUNITY FOUNDATION FOR SOUTHEAST MICHIGAN	$50,540	5	$10,924	2024	2020-2024	DAF sponsor	Exact	show
HAROLD JUANITA DAVID DENNIS & GARY KOON FAMILY CHARITABLE FOUNDATION	$50,000	1	$50,000	2025	2025	Private foundation	Fuzzy filed as “National Scleroderma Foundation”	show
PAYPAL CHARITABLE GIVING FUND	$47,718	2	$35,322	2024	2023-2024	DAF sponsor	Exact	show
AMERICAN ENDOWMENT FOUNDATION	$46,985	6	$5,500	2024	2016, 2019-2022, 2024	DAF sponsor	Exact	show
VANGUARD CHARITABLE ENDOWMENT PROGRAM	$40,000	3	$6,250	2022	2020-2022	DAF sponsor	Exact	show
NATIONAL CHRISTIAN CHARITABLE FOUNDATION	$39,050	10	$6,100	2022	2012-2014, 2016-2017, 2020-2022	DAF sponsor	Exact	show
GLOBAL IMPACT	$33,748	3	$8,301	2012	2009, 2011-2012	DAF sponsor	Exact	show
THE BLACKBAUD GIVING FUND	$33,335	4	$10,906	2025	2022-2025	DAF sponsor	Exact	show
MEDICAL RESEARCH CHARITIES INC	$26,333	2	$10,282	2018	2017-2018	Public charity	Exact	show
A CHANCE FOR PROGRESS INC	$25,000	1	$25,000	2025	2025	Private foundation	Fuzzy filed as “NATIONAL SCLERODERMA FOUNDATION”	show
MORGAN STANLEY GLOBAL IMPACT FUNDING TRUST INC	$25,000	3	$10,000	2024	2022-2024	DAF sponsor	Exact	show
HITTMAN FAMILY FOUNDATION INC	$20,000	1	$20,000	2024	2024	Private foundation	Fuzzy filed as “National Scleroderma Foundation”	show
PLEDGELING FOUNDATION	$16,601	2	$10,910	2024	2023-2024	DAF sponsor	Exact	show

Nearby + Similar BETA

Organizations like this one: what they do and who they are linked to

Organizations like this one

Same category: NTEE code and revenue

Ranked without any AI: same NTEE code first, then the same NTEE group; then revenue within 2x, 5x or 10x; then the same state; then similar name and mission text. NTEE: the IRS’s code when it lists one, otherwise FURP’s inferred code. Same state only · More (100)

Organization	State	NTEE	Latest revenue	Latest expenses	Top-paid title	Top pay	Why similar
TERMEER INSTITUTE INC	MA	H40	$2,105,285	$2,276,741	CEO	$372,268	Same NTEE code H40, revenue within 5x, same state
NATIONAL PANCREAS FOUNDATION	MD	H40	$1,385,003	$1,812,108	EXECUTIVE DIRECTOR	$174,384	Same NTEE code H40, revenue within 5x, similar name
PCD KS FOUNDATION	MN	H40	$1,994,370	$1,650,828	EXEC DIR, PR	$185,000	Same NTEE code H40, revenue within 5x
NATIONAL STEM CELL FOUNDATION INC	KY	H40	$2,468,330	$2,402,380	CEO	$100,000	Same NTEE code H40, revenue within 5x, similar name
INTERNATIONAL PSORIASIS COUNCIL	FL	H40	$2,044,205	$1,738,558	CHIEF EXECUTIVE OFFICER	$246,506	Same NTEE code H40, revenue within 5x
BARUCH S BLUMBERG INSTITUTE	PA	H40	$14,540,516	$14,985,904	CEO/SECRETARY	$355,270	Same NTEE code H40, revenue within 5x
GROUP FOR RESEARCH AND ASSESSMENT OF PSORIASIS AND PSORIATIC ARTHRIT	WA	H40	$1,617,167	$1,881,527	AT LRAGE	$0	Same NTEE code H40, revenue within 5x
USHER 1F COLLABORATIVE INC	MA	H40	$743,572	$885,485	Chair and Trustee	$0	Same NTEE code H40, revenue within 10x, same state
RETINA RESEARCH & DEVELOPMENT FOUNDATION	MO	H40	$1,068,145	$126,870	TRUSTEE	$0	Same NTEE code H40, revenue within 10x
HEALTHCARETN	TN	H40	$803,631	$696,609	CEO	$175,815	Same NTEE code H40, revenue within 10x
PROSTATE CANCER FOUNDATION OF CHICAGO	IL	H40	$427,055	$427,404	VICE PRESIDE	$0	Same NTEE code H40, revenue differs more than 10x, similar mission
DEFY FOUNDATION	PA	H40	$2,388	$7,922	PRESIDENT	$0	Same NTEE code H40, revenue differs more than 10x
SALGI ESOPHAGEAL CANCER RESEARCH FOUNDATION	RI	H40	$152,543	$276,393	VICE PRESIDENT	$9,600	Same NTEE code H40, revenue differs more than 10x
FOUNDATION FOR REPRODUCTIVE MEDICINE	NY	H40	$337,254	$366,908	PRESIDEN/DIRECTOR	$0	Same NTEE code H40, revenue differs more than 10x
BLADDER CANCER RESEARCH FOUNDATION	AZ	H40	$76,443	$33,684	TREASURER	$20,592	Same NTEE code H40, revenue differs more than 10x
IAN BURKHART FOUNDATION	OH	H40	$99,941	$71,320	EXEC. DIRECT	$15,600	Same NTEE code H40, revenue differs more than 10x
L-CMD RESEARCH FOUNDATION	TX	H40	$332,804	$406,910	PRESIDENT	$0	Same NTEE code H40, revenue differs more than 10x
OVERCOMING MULTIPLE SCLEROSIS USA INC	NY	H40	$6,022	$5,183	BOARD MEMBER	$0	Same NTEE code H40, revenue differs more than 10x
COMMUNITY MERCANTILE EDUCATIONAL FOUNDATION INC	KS	H40	$48,214	$47,922	Executive Director CEO	$20,937	Same NTEE code H40, revenue differs more than 10x
NEURO-OPTOMETRIC REHABILITATION ASC INC	TX	H40	$273,821	$317,470	EXECUTIVE DIRECTOR	$62,883	Same NTEE code H40, revenue differs more than 10x
ORGAN PRESERVATION ALLIANCE INCORPORATED	CA	H40	-$40,578	$425,329	Pres/CSO	$176,535	Same NTEE code H40, revenue differs more than 10x
CHARITABLE UNION FOR THE RESEARCH AND EDUCATION OF PEYRONIES DISEASE	UT	H40	$165,893	$324,561	President and Chair	$0	Same NTEE code H40, revenue differs more than 10x
COALITION OF SKIN DISEASES	DC	H40	$524,547	$421,067	EXECUTIVE DI	$111,708	Same NTEE code H40, revenue differs more than 10x
NATIONAL FEDERATION OF THE BLIND OF FLORIDA INC	FL	H40	$61,045	$66,600	President	$0	Same NTEE code H40, revenue differs more than 10x
NORTH AMERICAN HAIR RESEARCH SOCIETY	IL	H40	$446,711	$520,875	President	$0	Same NTEE code H40, revenue differs more than 10x

Who funds organizations like this

Grantors that funded the 100 most similar organizations. Ranked by total given to them. Foundations (990-PF) and donor-advised fund sponsors only. Same matching as Funders above (by EIN, or by name for foundations).

Grantor	Total given	Grants	Organizations funded	Type	Years	Which ones
FIDELITY INVESTMENTS CHARITABLE GIFT FUND funds this one	$29,576,574	265	47	DAF sponsor	2016–2024	JETT FOUNDATION INC; LIFE SCIENCE CARES INC; FOOD ALLERGY SCIENCE INITIATIVE INC; SCLERODERMA RESEARCH FOUNDATION and 43 more
GS DONOR ADVISED PHILANTHROPY FUND FOR WEALTH MANAGEMENT INC	$21,764,136	28	10	DAF sponsor	2017–2024	COUNT ME IN INC; TERMEER INSTITUTE INC; PREECLAMPSIA FOUNDATION; LIFE SCIENCE CARES INC and 6 more
DONOR ADVISED CHARITABLE GIVING funds this one	$20,080,205	236	41	DAF sponsor	2014–2024	STRAUB FOUNDATION; PHARE BIO INC; HEALTH EFFECTS INSTITUTE; ANGELMAN SYNDROME FOUNDATION INC and 37 more
COMBINED JEWISH PHILANTHROPIES OF GREATER BOSTON INC	$13,158,945	19	5	DAF sponsor	2009–2024	FOOD ALLERGY SCIENCE INITIATIVE INC; SILENT SPRING INSTITUTE INC; ADVANCED MEDICAL RESEARCH FOUNDATION INC; PREECLAMPSIA FOUNDATION and 1 more
TU FOUNDATION	$8,683,062	3	1	Private foundation	2022–2024	GLOBAL GIFTED FOUNDATION
AMERICAN ONLINE GIVING FOUNDATION INC funds this one	$7,637,325	148	31	DAF sponsor	2019–2025	RARE VILLAGE FOUNDATION; PREVENT CANCER FOUNDATION; HAYMAKERS FOR HOPE INC; INTERNATIONAL RETT SYNDROME FOUNDATION and 27 more
GATES FOUNDATION	$6,394,207	18	5	Private foundation	2011–2024	TEXAS BIOMEDICAL RESEARCH INSTITUTE; VIVLI INC; NATIONAL ALOPECIA AREATA FOUNDATION; PREECLAMPSIA FOUNDATION and 1 more
NATIONAL PHILANTHROPIC TR funds this one	$5,625,406	100	28	DAF sponsor	2014–2024	LIFE SCIENCE CARES INC; DERMATOLOGY FOUNDATION; TERMEER INSTITUTE INC; HEARING HEALTH FOUNDATION and 24 more
J E AND L E MABEE FOUNDATION INC	$4,200,000	3	1	Private foundation	2012–2022	TEXAS BIOMEDICAL RESEARCH INSTITUTE
BETTY STIEREN KELSO FOUNDATION	$4,123,221	9	1	Private foundation	2016–2024	TEXAS BIOMEDICAL RESEARCH INSTITUTE
UNIVERSITY OF NOTRE DAME DU LAC	$3,799,013	8	1	DAF sponsor	2017–2024	TEXAS BIOMEDICAL RESEARCH INSTITUTE
FLATLEY FOUNDATION	$3,150,000	5	1	Private foundation	2020–2024	JETT FOUNDATION INC
KAO FAMILY FOUNDATION	$3,120,323	9	1	Private foundation	2015–2024	SCLERODERMA RESEARCH FOUNDATION
WASHINGTON UNIVERSITY	$2,989,218	11	4	DAF sponsor	2013–2024	TEXAS BIOMEDICAL RESEARCH INSTITUTE; VETERANS HEALTH FOUNDATION; DERMATOLOGY FOUNDATION; ORTHOPAEDIC RESEARCH AND EDUCATION FOUNDATION
ROSTREVOR FOUNDATION INC	$2,975,746	7	1	Private foundation	2014–2020	NATIONAL STEM CELL FOUNDATION INC

The full list · all similar organizations

Where the money went

Every expense line on each return, biggest first: Form 990 Part IX (with its program, management and fundraising columns), 990-EZ Part I, or 990-PF Part I. Event marks lines the organization itself describes as events. “Events” in each summary adds those lines, conferences and meetings, and the direct costs of fundraising events. Unusual is not the same as improper. Many of these patterns have ordinary explanations. Check the filing.

2024 · Form 990 · $6,783,274 spent · pay $3,255,131 · grants $1,199,988 · events $823,227

Line	As described	Total	Program	Management	Fundraising	Share
Other salaries and wages		$2,056,745	$1,505,378	$380,079	$171,288	30.3%
Grants to US organizations and governments		$1,199,988	$1,199,988	-	-	17.7%
Pay: officers, directors, trustees, key employees		$549,811	$186,921	$330,662	$32,228	8.1%
Conferences, conventions and meetings		$548,871	$64,351	$18,660	$465,860	8.1%
Information technology		$414,034	$248,420	$82,807	$82,807	6.1%
Other employee benefits		$386,932	$279,647	$74,538	$32,747	5.7%
Fees: other services		$347,443	$173,944	$36,663	$136,836	5.1%
Payroll taxes		$215,192	$142,027	$56,165	$17,000	3.2%
Travel		$192,716	$117,696	$37,510	$37,510	2.8%
Other (as described)	FEES AND LICENSES	$178,742	$86,701	$29,441	$62,600	2.6%
Office expenses		$178,126	$27,889	$9,045	$141,192	2.6%
Occupancy		$177,362	$101,509	$33,284	$42,569	2.6%
Insurance		$84,705	$50,823	$16,941	$16,941	1.2%
Fees: investment management		$67,652	-	$67,652	-	1.0%
Fees: accounting		$47,800	$28,680	$9,560	$9,560	0.7%
Pension plan contributions		$46,451	$34,414	$8,145	$3,892	0.7%
Other (as described)	OUTREACH	$32,254	-	-	$32,254	0.5%
Depreciation and depletion		$28,704	$17,222	$5,741	$5,741	0.4%
Fees: legal		$26,158	$15,694	$5,232	$5,232	0.4%
Advertising and promotion		$3,588	$1,620	$540	$1,428	0.1%
Fundraising events Event	direct expenses; gross income $140,692	$274,356				reported apart
Total		$6,783,274				100%

View the filing

2023 · Form 990 · $6,956,852 spent · pay $2,844,993 · grants $1,453,529 · events $822,313

Line	As described	Total	Program	Management	Fundraising	Share
Other salaries and wages		$1,882,036	$1,358,744	$368,142	$155,150	27.1%
Grants to US organizations and governments		$1,241,529	$1,241,529	-	-	17.8%
Conferences, conventions and meetings		$583,727	$238,108	$88,706	$256,913	8.4%
Fees: other services		$498,753	$364,147	$26,916	$107,690	7.2%
Pay: officers, directors, trustees, key employees		$444,242	$152,542	$265,400	$26,300	6.4%
Information technology		$436,946	$262,168	$87,389	$87,389	6.3%
Other employee benefits		$281,398	$206,394	$50,648	$24,356	4.0%
Travel		$229,770	$166,566	$31,602	$31,602	3.3%
Office expenses		$218,727	$52,528	$16,696	$149,503	3.1%
Occupancy		$211,870	$118,422	$37,471	$55,977	3.0%
Other (as described)	FEES AND LICENSES	$202,627	$101,444	$33,851	$67,332	2.9%
Grants outside the US		$200,000	$200,000	-	-	2.9%
Payroll taxes		$199,701	$131,803	$52,122	$15,776	2.9%
Insurance		$79,170	$47,502	$15,834	$15,834	1.1%
Fees: investment management		$55,852	-	$55,852	-	0.8%
Fees: accounting		$45,500	-	$45,500	-	0.7%
Pension plan contributions		$37,616	$28,213	$6,231	$3,172	0.5%
Fees: legal		$35,274	-	$35,274	-	0.5%
Depreciation and depletion		$23,920	$14,144	$4,888	$4,888	0.3%
Other (as described)	OUTREACH	$22,440	$6,932	$3,466	$12,042	0.3%
Advertising and promotion		$13,754	$8,254	$2,750	$2,750	0.2%
Grants to US individuals		$12,000	$12,000	-	-	0.2%
Fundraising events Event	direct expenses; gross income $238,586	$238,586				reported apart
Total		$6,956,852				100%

View the filing

2022 · Form 990 · $6,461,742 spent · pay $2,783,041 · grants $1,812,000 · events $283,172

Line	As described	Total	Program	Management	Fundraising	Share
Other salaries and wages		$1,796,899	$1,312,560	$332,450	$151,889	27.8%
Grants to US organizations and governments		$1,600,000	$1,600,000	-	-	24.8%
Pay: officers, directors, trustees, key employees		$454,933	$150,712	$278,236	$25,985	7.0%
Fees: other services		$435,198	$346,560	-	$88,638	6.7%
Information technology		$326,484	$195,890	$65,297	$65,297	5.1%
Other employee benefits		$295,373	$214,333	$55,378	$25,662	4.6%
Occupancy		$216,633	$135,119	$39,547	$41,967	3.4%
Payroll taxes		$203,452	$134,278	$52,898	$16,276	3.1%
Grants outside the US		$200,000	$200,000	-	-	3.1%
Office expenses		$176,921	$69,939	$17,232	$89,750	2.7%
Other (as described)	FEES AND LICENSES	$176,586	$89,166	$30,706	$56,714	2.7%
Conferences, conventions and meetings		$140,626	$111,068	$10,365	$19,193	2.2%
Travel		$127,272	$82,972	$22,150	$22,150	2.0%
Insurance		$78,906	$47,344	$15,781	$15,781	1.2%
Fees: legal		$44,927	$289	$44,638	-	0.7%
Fees: investment management		$44,153	-	$44,153	-	0.7%
Fees: accounting		$44,000	-	$44,000	-	0.7%
Pension plan contributions		$32,384	$24,924	$4,629	$2,831	0.5%
Depreciation and depletion		$24,280	$14,568	$4,856	$4,856	0.4%
Other (as described)	OUTREACH	$19,023	$1,790	$895	$16,338	0.3%
Grants to US individuals		$12,000	$12,000	-	-	0.2%
Advertising and promotion		$11,472	$6,949	$2,125	$2,398	0.2%
Payments to affiliates		$220	$220	-	-	0.0%
Fundraising events Event	direct expenses; gross income $142,546	$142,546				reported apart
Total		$6,461,742				100%

View the filing

2021 · Form 990 · $6,210,712 spent · pay $2,012,197 · grants $2,425,000 · events $199,550

Line	As described	Total	Program	Management	Fundraising	Share
Grants to US organizations and governments		$2,425,000	$2,425,000	-	-	39.0%
Other salaries and wages		$1,348,328	$999,695	$235,225	$113,408	21.7%
Fees: other services		$456,014	$353,887	-	$102,127	7.3%
Pay: officers, directors, trustees, key employees		$419,642	$145,067	$249,564	$25,011	6.8%
Information technology		$371,766	$223,060	$74,353	$74,353	6.0%
Occupancy		$192,742	$116,058	$38,342	$38,342	3.1%
Office expenses		$172,177	$81,553	$13,857	$76,767	2.8%
Other (as described)	FEES AND LICENSES	$140,247	$68,280	$22,760	$49,207	2.3%
Payroll taxes		$137,959	$91,018	$35,983	$10,958	2.2%
Conferences, conventions and meetings		$113,863	$107,013	$3,488	$3,362	1.8%
Other employee benefits		$89,123	$77,337	$2,919	$8,867	1.4%
Insurance		$77,111	$46,267	$15,422	$15,422	1.2%
Travel		$65,808	$39,500	$13,154	$13,154	1.1%
Fees: legal		$60,000	$7,923	$52,077	-	1.0%
Fees: accounting		$47,550	-	$47,550	-	0.8%
Fees: investment management		$25,203	-	$25,203	-	0.4%
Advertising and promotion		$21,037	$11,756	$1,910	$7,371	0.3%
Pension plan contributions		$17,145	$14,428	$1,137	$1,580	0.3%
Depreciation and depletion		$15,701	$9,421	$3,140	$3,140	0.3%
Other (as described)	OUTREACH	$14,296	$4,445	$0	$9,851	0.2%
Fundraising events Event	direct expenses; gross income $85,687	$85,687				reported apart
Total		$6,210,712				100%

View the filing

2020 · Form 990 · $4,468,676 spent · pay $1,531,865 · grants $1,216,546 · events $124,867

Line	As described	Total	Program	Management	Fundraising	Share
Grants to US organizations and governments		$1,066,546	$1,066,546	-	-	23.9%
Other salaries and wages		$1,022,900	$781,338	$154,321	$87,241	22.9%
Fees: other services		$381,848	$284,768	$67,123	$29,957	8.5%
Payments to affiliates		$366,743	$366,743	-	-	8.2%
Information technology		$301,743	$177,394	$95,321	$29,028	6.8%
Pay: officers, directors, trustees, key employees		$298,613	$78,406	$206,689	$13,518	6.7%
Occupancy		$173,190	$123,386	$38,178	$11,626	3.9%
Grants outside the US		$150,000	$150,000	-	-	3.4%
Office expenses		$122,472	$83,210	$21,633	$17,629	2.7%
Other employee benefits		$100,849	$76,452	$12,534	$11,863	2.3%
Payroll taxes		$96,663	$64,453	$24,691	$7,519	2.2%
Other (as described)	FEES AND LICENSES	$82,299	$48,911	$25,594	$7,794	1.8%
Insurance		$65,247	$38,358	$20,612	$6,277	1.5%
Fees: investment management		$51,953	-	$51,953	-	1.2%
Other (as described)	ADVOCACY	$50,468	$50,468	-	-	1.1%
Conferences, conventions and meetings		$46,269	$45,083	$1,166	$20	1.0%
Fees: accounting		$31,238	-	$31,238	-	0.7%
Depreciation and depletion		$13,544	$8,826	$3,615	$1,103	0.3%
Other (as described)	MISCELLANEOUS	$12,908	$8,271	$3,555	$1,082	0.3%
Pension plan contributions		$12,840	$9,997	$1,311	$1,532	0.3%
Advertising and promotion		$9,362	$7,178	$2,184	-	0.2%
Travel		$8,339	$5,562	$2,777	-	0.2%
Other (as described)	OUTREACH	$2,630	$2,630	-	-	0.1%
Fees: legal		$12	-	$12	-	0.0%
Fundraising events Event	direct expenses; gross income $78,598	$78,598				reported apart
Total		$4,468,676				100%

View the filing

2019 · Form 990 · $5,012,061 spent · pay $1,415,946 · grants $1,200,545 · events $816,212

Line	As described	Total	Program	Management	Fundraising	Share
Grants to US organizations and governments		$1,200,000	$1,200,000	-	-	23.9%
Other salaries and wages		$1,081,941	$731,570	$268,810	$81,561	21.6%
Conferences, conventions and meetings		$658,526	$641,634	$16,611	$281	13.1%
Payments to affiliates		$479,589	$479,589	-	-	9.6%
Fees: other services		$261,994	$215,560	$23,758	$22,676	5.2%
Information technology		$249,148	$146,474	$78,706	$23,968	5.0%
Occupancy		$177,631	$126,550	$39,157	$11,924	3.5%
Office expenses		$159,368	$110,787	$25,534	$23,047	3.2%
Pay: officers, directors, trustees, key employees		$131,114	$76,046	$41,957	$13,111	2.6%
Other employee benefits		$97,618	$58,645	$29,896	$9,077	1.9%
Payroll taxes		$92,479	$61,663	$23,622	$7,194	1.8%
Other (as described)	ADVOCACY	$86,130	$86,130	-	-	1.7%
Travel		$68,227	$45,510	$22,717	-	1.4%
Other (as described)	FEES AND LICENSES	$65,842	$39,131	$20,476	$6,235	1.3%
Insurance		$64,783	$38,085	$20,465	$6,233	1.3%
Fees: investment management		$47,738	-	$47,738	-	1.0%
Fees: accounting		$30,400	-	$30,400	-	0.6%
Fees: legal		$20,307	-	$20,307	-	0.4%
Pension plan contributions		$12,794	$7,724	$3,893	$1,177	0.3%
Other (as described)	MISCELLANEOUS	$8,993	$5,942	$2,339	$712	0.2%
Advertising and promotion		$7,393	$5,668	$1,725	-	0.1%
Depreciation and depletion		$6,943	$4,525	$1,853	$565	0.1%
Other (as described)	OUTREACH	$2,558	$2,558	-	-	0.1%
Grants to US individuals		$545	$545	-	-	0.0%
Fundraising events Event	direct expenses; gross income $157,686	$157,686				reported apart
Total		$5,012,061				100%

View the filing

2018 · Form 990 · $4,798,303 spent · pay $1,362,399 · grants $1,242,545 · events $932,627

Line	As described	Total	Program	Management	Fundraising	Share
Grants to US organizations and governments		$1,200,000	$1,200,000	-	-	25.0%
Other salaries and wages		$1,027,731	$695,228	$255,108	$77,395	21.4%
Conferences, conventions and meetings		$697,513	$678,545	$18,652	$316	14.5%
Payments to affiliates		$331,718	$331,718	-	-	6.9%
Information technology		$282,733	$166,218	$89,316	$27,199	5.9%
Occupancy		$202,269	$144,103	$44,588	$13,578	4.2%
Office expenses		$144,272	$99,183	$24,496	$20,593	3.0%
Pay: officers, directors, trustees, key employees		$128,190	$74,350	$41,021	$12,819	2.7%
Fees: other services		$125,662	$106,343	$8,132	$11,187	2.6%
Payroll taxes		$105,260	$70,186	$26,887	$8,187	2.2%
Other employee benefits		$90,101	$54,133	$27,591	$8,377	1.9%
Travel		$90,085	$60,090	$29,995	-	1.9%
Insurance		$69,679	$40,963	$22,012	$6,704	1.5%
Other (as described)	FEES AND LICENSES	$66,503	$39,523	$20,682	$6,298	1.4%
Other (as described)	ADVOCACY	$57,864	$57,864	-	-	1.2%
Fees: investment management		$46,725	-	$46,725	-	1.0%
Grants to US individuals		$42,545	$42,545	-	-	0.9%
Fees: accounting		$28,604	-	$28,604	-	0.6%
Advertising and promotion		$23,366	$17,915	$5,451	-	0.5%
Other (as described)	MISCELLANEOUS	$20,242	$12,970	$5,575	$1,697	0.4%
Pension plan contributions		$11,117	$6,719	$3,378	$1,020	0.2%
Depreciation and depletion		$5,207	$3,393	$1,390	$424	0.1%
Other (as described)	OUTREACH	$917	$917	-	-	0.0%
Fundraising events Event	direct expenses; gross income $235,114	$235,114				reported apart
Total		$4,798,303				100%

View the filing

2017 · Form 990 · $5,001,317 spent · pay $1,240,891 · grants $1,227,842 · events $945,610

Line	As described	Total	Program	Management	Fundraising	Share
Grants to US organizations and governments		$1,200,000	$1,200,000	-	-	24.0%
Other salaries and wages		$999,002	$676,761	$247,257	$74,984	20.0%
Conferences, conventions and meetings		$690,193	$670,667	$19,201	$325	13.8%
Payments to affiliates		$391,472	$391,472	-	-	7.8%
Information technology		$277,232	$162,984	$87,578	$26,670	5.5%
Fees: other services		$244,141	$193,289	$30,518	$20,334	4.9%
Office expenses		$236,186	$158,229	$44,387	$33,570	4.7%
Occupancy		$179,858	$128,136	$39,648	$12,074	3.6%
Travel		$147,483	$98,377	$49,106	-	2.9%
Pay: officers, directors, trustees, key employees		$122,641	$71,132	$39,245	$12,264	2.5%
Other employee benefits		$119,248	$71,394	$36,683	$11,171	2.4%
Other (as described)	ADVOCACY	$73,169	$73,169	-	-	1.5%
Other (as described)	MISCELLANEOUS	$67,924	$43,520	$18,707	$5,697	1.4%
Other (as described)	FEES AND LICENSES	$57,909	$34,417	$18,008	$5,484	1.2%
Insurance		$49,072	$28,849	$15,502	$4,721	1.0%
Fees: investment management		$47,778	$28,394	$14,859	$4,525	1.0%
Advertising and promotion		$28,720	$22,020	$6,700	-	0.6%
Grants to US individuals		$27,842	$27,842	-	-	0.6%
Fees: accounting		$27,696	-	$27,696	-	0.6%
Fees: legal		$8,557	-	$8,557	-	0.2%
Depreciation and depletion		$3,192	$2,080	$852	$260	0.1%
Other (as described)	OUTREACH	$2,002	$2,002	-	-	0.0%
Fundraising events Event	direct expenses; gross income $255,417	$255,417				reported apart
Total		$5,001,317				100%

View the filing

2016 · Form 990 · $5,211,320 spent · pay $1,131,853 · grants $1,581,496 · events $971,462

Line	As described	Total	Program	Management	Fundraising	Share
Grants to US organizations and governments		$1,522,909	$1,522,909	-	-	29.2%
Other salaries and wages		$849,864	$574,005	$211,679	$64,180	16.3%
Conferences, conventions and meetings		$680,498	$653,302	$27,187	$9	13.1%
Payments to affiliates		$411,529	$411,529	-	-	7.9%
Information technology		$257,313	$151,274	$81,285	$24,754	4.9%
Fees: other services		$222,243	$173,081	$30,957	$18,205	4.3%
Office expenses		$190,455	$108,102	$46,896	$35,457	3.7%
Occupancy		$175,904	$123,677	$40,035	$12,192	3.4%
Travel		$142,093	$106,335	$33,189	$2,569	2.7%
Pay: officers, directors, trustees, key employees		$122,329	$70,950	$39,145	$12,234	2.3%
Other (as described)	BANK CHARGES AND WEB DO	$99,809	$59,516	$30,887	$9,406	1.9%
Other (as described)	ADVOCACY	$92,926	$92,926	-	-	1.8%
Payroll taxes		$81,396	$54,084	$20,936	$6,376	1.6%
Insurance		$70,136	$41,235	$22,156	$6,745	1.3%
Other employee benefits		$66,816	$40,376	$20,286	$6,154	1.3%
Advertising and promotion		$63,344	$60,975	$1,799	$570	1.2%
Grants to US individuals		$58,587	$58,587	-	-	1.1%
Other (as described)	MISCELLANEOUS	$37,117	$30,004	$5,452	$1,661	0.7%
Fees: accounting		$26,820	-	$26,820	-	0.5%
Depreciation and depletion		$19,284	$11,439	$6,014	$1,831	0.4%
Pension plan contributions		$11,448	$7,886	$2,737	$825	0.2%
Other (as described)	OUTREACH	$6,497	$6,497	-	-	0.1%
Fees: legal		$2,003	-	$2,003	-	0.0%
Fundraising events Event	direct expenses; gross income $290,964	$290,964				reported apart
Total		$5,211,320				100%

View the filing

2015 · Form 990 · $4,935,756 spent · pay $944,258 · grants $1,649,990 · events $747,419

Line	As described	Total	Program	Management	Fundraising	Share
Grants to US organizations and governments		$1,594,018	$1,594,018	-	-	32.3%
Other salaries and wages		$693,316	$474,143	$168,217	$50,956	14.0%
Conferences, conventions and meetings		$526,772	$517,834	$8,595	$343	10.7%
Payments to affiliates		$441,097	$441,097	-	-	8.9%
Fees: other services		$244,024	$227,939	$3,274	$12,811	4.9%
Office expenses		$225,752	$137,631	$13,083	$75,038	4.6%
Information technology		$195,896	$115,167	$61,884	$18,845	4.0%
Occupancy		$159,038	$109,738	$37,792	$11,508	3.2%
Pay: officers, directors, trustees, key employees		$117,957	$68,416	$37,747	$11,794	2.4%
Travel		$115,799	$83,892	$26,794	$5,113	2.3%
Other (as described)	ADVOCACY	$83,900	$83,900	-	-	1.7%
Other (as described)	BANK CHARGES AND WEB DO	$76,632	$45,653	$23,747	$7,232	1.6%
Other (as described)	BAD DEBT	$69,920	$41,106	$22,088	$6,726	1.4%
Insurance		$66,768	$39,253	$21,092	$6,423	1.4%
Payroll taxes		$62,852	$42,115	$15,896	$4,841	1.3%
Other employee benefits		$62,081	$35,602	$21,264	$5,215	1.3%
Grants to US individuals		$55,972	$55,972	-	-	1.1%
Other (as described)	MISCELLANEOUS	$37,256	$29,007	$6,323	$1,926	0.8%
Advertising and promotion		$27,244	$27,244	-	-	0.6%
Fees: accounting		$25,154	-	$25,154	-	0.5%
Depreciation and depletion		$20,948	$12,518	$6,462	$1,968	0.4%
Fees: legal		$13,640	-	$13,640	-	0.3%
All other expenses		$11,668	$11,668	-	-	0.2%
Pension plan contributions		$8,052	$5,686	$1,820	$546	0.2%
Fundraising events Event	direct expenses; gross income $220,647	$220,647				reported apart
Total		$4,935,756				100%

View the filing

2014 · Form 990 · $5,627,220 spent · pay $968,606 · grants $2,145,957 · events $946,002

Line	As described	Total	Program	Management	Fundraising	Share
Grants to US organizations and governments		$1,960,000	$1,960,000	-	-	34.8%
Other salaries and wages		$716,393	$490,814	$173,121	$52,458	12.7%
Conferences, conventions and meetings		$673,698	$658,827	$13,040	$1,831	12.0%
Payments to affiliates		$430,986	$430,986	-	-	7.7%
Fees: other services		$257,209	$235,181	$11,218	$10,810	4.6%
Office expenses		$255,206	$150,609	$19,103	$85,494	4.5%
Occupancy		$171,288	$118,078	$40,789	$12,421	3.0%
Other (as described)	OUTREACH	$156,697	$156,697	-	-	2.8%
Information technology		$153,534	$90,262	$48,502	$14,770	2.7%
Grants outside the US		$139,223	$139,223	-	-	2.5%
Pay: officers, directors, trustees, key employees		$114,316	$66,303	$36,581	$11,432	2.0%
Travel		$78,910	$78,910	-	-	1.4%
Insurance		$77,253	$45,417	$24,404	$7,432	1.4%
Other (as described)	BANK CHARGES AND WEB DO	$76,173	$45,049	$23,858	$7,266	1.4%
Payroll taxes		$68,908	$46,300	$17,331	$5,277	1.2%
Other employee benefits		$55,540	$32,422	$17,737	$5,381	1.0%
Other (as described)	ADVOCACY	$53,815	$53,815	-	-	1.0%
Grants to US individuals		$46,734	$46,734	-	-	0.8%
Royalties		$32,606	-	$25,327	$7,279	0.6%
Other (as described)	MISCELLANEOUS	$32,011	$24,933	$5,425	$1,653	0.6%
Depreciation and depletion		$24,584	$14,555	$7,688	$2,341	0.4%
Fees: accounting		$23,009	-	$23,009	-	0.4%
Advertising and promotion		$14,406	$14,406	-	-	0.3%
Pension plan contributions		$13,449	$9,321	$3,171	$957	0.2%
Fees: legal		$1,272	-	$1,272	-	0.0%
Fundraising events Event	direct expenses; gross income $272,304	$272,304				reported apart
Total		$5,627,220				100%

View the filing

2013 · Form 990 · $4,331,065 spent · pay $1,017,488 · grants $1,005,977 · events $826,682

Line	As described	Total	Program	Management	Fundraising	Share
Grants to US organizations and governments		$955,798	$955,798	-	-	22.1%
Other salaries and wages		$739,127	$513,058	$173,492	$52,577	17.1%
Conferences, conventions and meetings		$577,689	$576,678	$1,011	-	13.3%
Payments to affiliates		$429,058	$429,058	-	-	9.9%
Office expenses		$276,229	$179,379	$28,523	$68,327	6.4%
Fees: other services		$213,851	$179,664	$26,545	$7,642	4.9%
Travel		$128,937	$98,444	$21,725	$8,768	3.0%
Occupancy		$126,977	$85,308	$31,943	$9,726	2.9%
Information technology		$124,323	$73,089	$39,273	$11,961	2.9%
Pay: officers, directors, trustees, key employees		$115,747	$67,133	$37,039	$11,575	2.7%
Other (as described)	ADVOCACY	$112,553	$112,553	-	-	2.6%
Other employee benefits		$78,827	$47,066	$24,383	$7,378	1.8%
Insurance		$76,806	$45,155	$24,263	$7,388	1.8%
Payroll taxes		$74,265	$51,157	$17,713	$5,395	1.7%
Grants to US individuals		$50,179	$50,179	-	-	1.2%
All other expenses		$48,983	$26,646	$21,447	$890	1.1%
Fees: investment management		$47,661	-	$47,661	-	1.1%
Other (as described)	OUTREACH	$39,079	$39,079	-	-	0.9%
Fees: accounting		$29,000	$24,364	$3,600	$1,036	0.7%
Depreciation and depletion		$28,481	$16,859	$8,909	$2,713	0.7%
Other (as described)	BANK CHARGES AND WEB DO	$26,455	$1,383	$25,072	-	0.6%
Advertising and promotion		$19,693	$19,693	-	-	0.5%
Pension plan contributions		$9,522	$5,733	$2,900	$889	0.2%
Fees: legal		$1,825	$1,533	$227	$65	0.0%
Fundraising events Event	direct expenses; gross income $248,993	$248,993				reported apart
Total		$4,331,065				100%

View the filing

2012 · Form 990 · $4,069,723 spent · pay $963,181 · grants $1,538,182 · events $695,857

Line	As described	Total	Program	Management	Fundraising	Share
Grants to US organizations and governments		$1,538,182	$1,538,182	-	-	37.8%
Other salaries and wages		$686,303	$484,878	$166,172	$35,253	16.9%
Conferences, conventions and meetings		$443,237	$442,309	$928	-	10.9%
Office expenses		$246,951	$157,434	$49,922	$39,595	6.1%
Information technology		$130,099	$76,486	$41,098	$12,515	3.2%
Travel		$125,011	$96,674	$22,432	$5,905	3.1%
Pay: officers, directors, trustees, key employees		$119,060	$54,767	$35,719	$28,574	2.9%
Occupancy		$116,560	$78,698	$29,024	$8,838	2.9%
Fees: other services		$91,960	$76,014	$12,213	$3,733	2.3%
Other (as described)	OUTREACH	$85,272	$85,272	-	-	2.1%
Payroll taxes		$78,598	$52,320	$20,143	$6,135	1.9%
Other employee benefits		$72,421	$44,885	$22,566	$4,970	1.8%
Insurance		$70,552	$41,478	$22,287	$6,787	1.7%
Other (as described)	ADVOCACY	$49,132	$49,132	-	-	1.2%
Fees: investment management		$44,579	-	$34,620	$9,959	1.1%
All other expenses		$35,590	$15,602	$19,054	$934	0.9%
Fees: accounting		$33,525	$19,713	$10,594	$3,218	0.8%
Fees: legal		$30,547	$17,961	$9,653	$2,933	0.8%
Depreciation and depletion		$26,259	$15,425	$8,310	$2,524	0.6%
Advertising and promotion		$20,120	$20,120	-	-	0.5%
Other (as described)	BANK CHARGES AND WEB DO	$18,966	-	$14,729	$4,237	0.5%
Pension plan contributions		$6,799	$4,457	$2,136	$206	0.2%
Fundraising events Event	direct expenses; gross income -	$252,620				reported apart
Total		$4,069,723				100%

View the filing

2011 · Form 990 · $4,446,158 spent · pay $700,054 · grants $1,727,178 · events $409,855

Line	As described	Total	Program	Management	Fundraising	Share
Grants to US organizations and governments		$1,706,041	$1,706,041	-	-	38.4%
Other (as described)	CHAPTER AND AFFILIATE E	$769,924	$769,924	-	-	17.3%
Other salaries and wages		$455,991	$259,628	$163,986	$32,377	10.3%
Conferences, conventions and meetings		$402,251	$398,682	$2,351	$1,218	9.0%
Office expenses		$192,997	$106,174	$23,482	$63,341	4.3%
Pay: officers, directors, trustees, key employees		$116,270	$53,484	$34,881	$27,905	2.6%
Occupancy		$106,340	$58,357	$37,218	$10,765	2.4%
Travel		$96,364	$65,344	$30,656	$364	2.2%
All other expenses		$66,705	$7,562	$58,222	$921	1.5%
Other (as described)	ADVOCACY	$65,234	$65,234	-	-	1.5%
Other employee benefits		$60,630	$34,519	$21,803	$4,308	1.4%
Payroll taxes		$59,488	$31,752	$21,879	$5,857	1.3%
Information technology		$59,112	$32,493	$20,625	$5,994	1.3%
Insurance		$52,329	$28,916	$18,079	$5,334	1.2%
Fees: accounting		$42,094	$15,141	$20,074	$6,879	0.9%
Fees: investment management		$41,377	-	$41,377	-	0.9%
Other (as described)	BANK CHARGES AND WEB DO	$36,719	$698	$12,678	$23,343	0.8%
Other (as described)	BAD DEBTS	$32,181	$32,181	-	-	0.7%
Fees: other services		$30,208	$26,328	$2,890	$990	0.7%
Grants to US individuals		$21,137	$21,137	-	-	0.5%
Advertising and promotion		$13,925	$13,925	-	-	0.3%
Pension plan contributions		$7,675	$4,488	$2,824	$363	0.2%
Depreciation and depletion		$7,642	$4,201	$2,666	$775	0.2%
Fees: legal		$3,524	$2,042	$1,104	$378	0.1%
Fundraising events Event	direct expenses; gross income -	$7,604				reported apart
Total		$4,446,158				100%

View the filing

State business registration

NATIONAL SCLERODERMA FOUNDATION MA, Employee benefit plan sponsor (Form 5500), Filed for plan year 2024
SCLERODERMA FOUNDATION, INC. FL, Foreign nonprofit corporation (FORNP), Active, formed 2001-04-18

The same business name in the same state, from the state’s official registry data.

Trademarks

6 US trademarks, 6 live.

National Scleroderma Foundation 6 marks, MA EXACT high confidence: identical full name and state

Mark	Serial	Filed	Status	Source
• PICKLEBALL • TO CURE SCLERODERMA	98586067	2024-06-05	Pending application	TRTDXFAP, file of 2026-09-19
STEPPING OUT TO CURE SCLERODERMA	97391172	2022-05-02	Registered	TRTDXFAP, file of 2026-07-23
NATIONAL SCLERODERMA FOUNDATION	97150242	2021-12-01	Registered	TRTDXFAP, file of 2026-07-23
(design)	97070286	2021-10-12	Registered	TRTDXFAP, file of 2026-07-23
SCLERODERMA VOICE	97069966	2021-10-12	Registered	TRTDXFAP, file of 2026-07-23
NATIONAL SCLERODERMA FOUNDATION	97069900	2021-10-12	Registered	TRTDXFAP, file of 2026-07-23

The newest marks of the trademark owners above, matched to this record by name (and state).

In the news

167 news articles name this organization (December 2015 to November 2026); the latest 10:

Targeted News Service
targetednews.com, November 13, 2026
Targeted News Service
targetednews.com, October 31, 2026
Medscape Education Wins "Partner of Hope Award" for Scleroderma Advocacy
pmlive.com, October 30, 2026
Richland County Foundation funds $1.4 million in grants for health & housing needs
richlandsource.com, October 19, 2026
New imaging technique detects subtle skin changes in scleroderma patients
news-medical.net, October 15, 2026
BU Researchers Develop Noninvasive Skin Collagen Test for Scleroderma
miragenews.com, October 14, 2026
National Lung Transplant Awareness Day to Spotlight Lived Experiences and Critical Patient Education on Friday, Oct. 9, 2026
newswise.com, October 8, 2026
/C O R R E C T I O N -- The Galien Foundation/
prnewswire.com, September 15, 2026
Amy Hajari Case, MD, talks ILD Day 2026, precision medicine
healio.com, September 14, 2026
The Galien Foundation Announces Nominees for the Inaugural 2026 Prix Galien Patient First Award in Honor of Michael J. Fox
prnewswire.com, September 10, 2026

News article metadata and links: The GDELT Project (https://www.gdeltproject.org/). Matched by: Exact name match: "national scleroderma foundation". A shared name is not proof of the same organization; how the matching works. Most in the news.

Also on this site Fuzzy

Record	Name as filed	Where	Dataset	Matched by
Business registration	NATIONAL SCLERODERMA FOUNDATION	MA	State business registries	name and state
Business registration	SCLERODERMA FOUNDATION, INC.	MA	State business registries	EIN (EXACT, as the state registration reports it)
Plan sponsor	NATIONAL SCLERODERMA FOUNDATION	MA	Form 5500 (employee benefit plans)	EIN (EXACT)
Trademark owner	National Scleroderma Foundation	MA	Trademarks (USPTO)	name and state

Matched by an identifier (EIN, CIK, CRD), by name and state or city, or by street address; a shared name or address is not proof of the same person or organization. Every link says how it was made; how the cross-referencing works.

Others with the same interests

NTEE code Diseases of Specific Organ Research, MA first:

More with this interest.

In other datasets, the same topic (Medical research) in MA:

Form D issuer: 149 Medical, Inc. (Form D private offerings)

Interests: Diseases of Specific Organ Research · men:issues · science:research_education · women:issues · Medical research

The area Census

County outline, the place (blue), the tract (orange) and the ZIP center (dot).

In Census Tract 2114.02, Essex County, Massachusetts, place (city or town) Danvers, MA, county Essex County, MA, state Massachusetts; placed by its ZIP code (county and tract) and city name (place). The tract is the tract holding most of the record's ZIP code (FURP does not geocode street addresses).

MARY J WHEATLEY was paid $278,003, 2.2 times the median household income in Danvers, MA ($125,395), where 4.8% of residents live in poverty.
Revenue of $6,628,652 is $236 per resident of Danvers, MA (population 28,098).
That revenue equals 0.48% of all household income in Danvers, MA (11,005 households at the median $125,395, about $1,379,971,975).
33 employees is 1.2 per 1,000 residents of Danvers, MA.

Measure	Census tract Census Tract 2114.02, Essex County, Massachusetts	Place (city or town) Danvers, MA	County Essex County, MA	State Massachusetts
Population B01003	5,885	28,098	813,054	7,044,056
Population, 2020 census P1	6,442	28,087	809,829	7,029,917
Median age B01002	43.1	45.3	41.2	40.0
Under 18 B01001	15.7%	17.2%	20.8%	19.4%
65 and over B01001	26.5%	22.6%	18.5%	17.9%
Households B11001	2,573	11,005	313,147	2,785,042
Foreign born B05002	14.1%	9.1%	19.1%	18.0%
Median household income B19013	$140,400	$125,395	$101,883	$103,960
Median family income B19113	$139,158	$139,167	$128,792	$131,675
Per capita income B19301	$63,057	$58,972	$54,665	$57,897
Poverty rate B17001	1.5%	4.8%	9.4%	10.0%
Unemployment rate B23025	4.6%	4.7%	5.1%	5.2%
Civilian labor force B23025	3,749	16,771	448,303	3,911,446
Mean commute (minutes) B08013	28.9	28.4	28.5	29.1
Bachelor's degree or higher B15003	53.2%	48.4%	43.0%	47.3%
Housing units B25001	2,720	11,536	329,776	3,030,406
Owner-occupied B25003	77.7%	69.2%	63.5%	62.5%
Renters B25003	22.3%	30.8%	36.5%	37.5%
Median home value B25077	$597,000	$644,200	$619,100	$562,100
Median gross rent B25064	$2,099	$2,076	$1,756	$1,762
White, not Hispanic B03002	83.2%	87.4%	64.5%	66.6%
Black B03002	0.5%	1.8%	3.5%	6.4%
Hispanic or Latino B03002	8.3%	5.5%	24.1%	13.3%
Asian B03002	3.0%	1.8%	3.5%	7.3%
American Indian and Alaska Native B03002	0.0%	0.0%	0.0%	0.1%

Economy now FRED unemployment 4.3% in Sep 2026 (4.6% a year earlier); per capita personal income $98,700 in 2025, up 27% in five years (+2.3% after inflation); the state; Source: FRED, Federal Reserve Bank of St. Louis.

Data: IPUMS NHGIS (ACS 2020-2024 and the 2020 census); each figure links to its table for that area at data.census.gov. Records are placed by ZIP code and city name, not street address. More: everything FURP has in Census Tract 2114.02, Essex County, Massachusetts.

NATIONAL SCLERODERMA FOUNDATION

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