NATIONAL SCLERODERMA FOUNDATION: Form 990, tax year 2024

View the entire original 990 at ProPublica ↗

Organization
NATIONAL SCLERODERMA FOUNDATION (EIN 52-1375827)
Tax period
2024-07-01 to 2025-06-30
Filed
2026-02-18
IRS object ID
202600499349300540
Schema version
2024v5.5
Source
Download XML · Original 990 at ProPublica

Every field in the e-filed return. Faint text is the IRS element name, for citing.

Return header ReturnHeader

FieldValueIRS element (for citing)
Return2026-02-18T15:12:36-06:00ReturnTs
Tax Period End2025-06-30TaxPeriodEndDt

Preparer Firm PreparerFirmGrp

FieldValueIRS element (for citing)
Preparer Firm EIN390859910PreparerFirmEIN

Preparer Firm Name PreparerFirmName

FieldValueIRS element (for citing)
Business Name Line1BAKER TILLY ADVISORY GROUP LPBusinessNameLine1Txt

Preparer US Address PreparerUSAddress

FieldValueIRS element (for citing)
Address Line11500 RXR PLAZA WEST TOWERAddressLine1Txt
CityUNIONDALECityNm
State AbbreviationNYStateAbbreviationCd
ZIP11556ZIPCd
FieldValueIRS element (for citing)
Return Type990ReturnTypeCd
Tax Period Begin2024-07-01TaxPeriodBeginDt

Filer Filer

FieldValueIRS element (for citing)
EIN521375827EIN

Business Name BusinessName

FieldValueIRS element (for citing)
Business Name Line1NATIONAL SCLERODERMA FOUNDATION INCBusinessNameLine1Txt
FieldValueIRS element (for citing)
Business Name ControlNATIBusinessNameControlTxt
Phone8007224673PhoneNum

US Address USAddress

FieldValueIRS element (for citing)
Address Line155 FERNCROFT ROAD 315AddressLine1Txt
CityDANVERSCityNm
State AbbreviationMAStateAbbreviationCd
ZIP01923ZIPCd

Business Officer BusinessOfficerGrp

FieldValueIRS element (for citing)
PersonMARY J WHEATLEY IOM CAEPersonNm
Person TitleCHIEF EXECUTIVE OFFICERPersonTitleTxt
Phone8007224673PhoneNum
Signature2026-02-12SignatureDt
Discuss With Paid PreparerYes (1)DiscussWithPaidPreparerInd
FieldValueIRS element (for citing)
IRS Responsible Prty Info Curr0IRSResponsiblePrtyInfoCurrInd
Form8822 B AttachedYes (X)Form8822BAttachedInd

Preparer Person PreparerPersonGrp

FieldValueIRS element (for citing)
Preparer PersonCATHERINE PETERCSAKPreparerPersonNm
PTINP01357092PTIN
Phone5167472000PhoneNum
Preparation2026-02-12PreparationDt
FieldValueIRS element (for citing)
Tax2024TaxYr
Build TS2025-03-06 01:10:19ZBuildTS

Form 990 IRS990

FieldValueIRS element (for citing)
Address ChangeYes (X)AddressChangeInd
Principal OfficerMARY J WHEATLEYPrincipalOfficerNm

US Address USAddress

FieldValueIRS element (for citing)
Address Line155 FERNCROFT ROAD 315AddressLine1Txt
CityDANVERSCityNm
State AbbreviationMAStateAbbreviationCd
ZIP01923ZIPCd
FieldValueIRS element (for citing)
Gross Receipts$8,835,153GrossReceiptsAmt
Group Return For Affiliates0GroupReturnForAffiliatesInd
Organization501c3Yes (X)Organization501c3Ind
Website AddressWWW.SCLERODERMA.ORGWebsiteAddressTxt
Type Of Organization CorpYes (X)TypeOfOrganizationCorpInd
Formation1993FormationYr
Legal Domicile StateILLegalDomicileStateCd
Activity Or MissionTHE NATIONAL SCLERODERMA FOUNDATION'S MISSION IS TO ADVANCE MEDICAL RESEARCH, PROMOTE DISEASE AWARENESS, AND PROVIDE SUPPORT AND EDUCATION TO PEOPLE WITH SCLERODERMA, THEIR FAMILIES AND SUPPORT NETWORKS.ActivityOrMissionDesc
Voting Members Governing Body19VotingMembersGoverningBodyCnt
Voting Members Independent19VotingMembersIndependentCnt
Total Employee33TotalEmployeeCnt
Total Volunteers275TotalVolunteersCnt
Total Gross UBI$0TotalGrossUBIAmt
Net Unrelated Bus Txbl Incm$0NetUnrelatedBusTxblIncmAmt
PY Contributions Grants$3,912,611PYContributionsGrantsAmt
CY Contributions Grants$5,597,175CYContributionsGrantsAmt
PY Program Service Revenue$0PYProgramServiceRevenueAmt
CY Program Service Revenue$0CYProgramServiceRevenueAmt
PY Investment Income$970,638PYInvestmentIncomeAmt
CY Investment Income$1,165,141CYInvestmentIncomeAmt
PY Other Revenue$58,473PYOtherRevenueAmt
CY Other Revenue-$133,664CYOtherRevenueAmt
PY Total Revenue$4,941,722PYTotalRevenueAmt
CY Total Revenue$6,628,652CYTotalRevenueAmt
PY Grants And Similar Paid$1,453,529PYGrantsAndSimilarPaidAmt
CY Grants And Similar Paid$1,199,988CYGrantsAndSimilarPaidAmt
PY Benefits Paid To Members$0PYBenefitsPaidToMembersAmt
CY Benefits Paid To Members$0CYBenefitsPaidToMembersAmt
PY Salaries Comp Emp Bnft Paid$2,844,993PYSalariesCompEmpBnftPaidAmt
CY Salaries Comp Emp Bnft Paid$3,255,131CYSalariesCompEmpBnftPaidAmt
PY Total Prof Fndrsng Expns$0PYTotalProfFndrsngExpnsAmt
CY Total Prof Fndrsng Expns$0CYTotalProfFndrsngExpnsAmt
CY Total Fundraising Expense$1,297,685CYTotalFundraisingExpenseAmt
PY Other Expenses$2,658,330PYOtherExpensesAmt
CY Other Expenses$2,328,155CYOtherExpensesAmt
PY Total Expenses$6,956,852PYTotalExpensesAmt
CY Total Expenses$6,783,274CYTotalExpensesAmt
PY Revenues Less Expenses-$2,015,130PYRevenuesLessExpensesAmt
CY Revenues Less Expenses-$154,622CYRevenuesLessExpensesAmt
Total Assets BOY$11,162,466TotalAssetsBOYAmt
Total Assets EOY$11,259,408TotalAssetsEOYAmt
Total Liabilities BOY$2,809,269TotalLiabilitiesBOYAmt
Total Liabilities EOY$2,926,793TotalLiabilitiesEOYAmt
Net Assets Or Fund Balances BOY$8,353,197NetAssetsOrFundBalancesBOYAmt
Net Assets Or Fund Balances EOY$8,332,615NetAssetsOrFundBalancesEOYAmt
Info In Schedule O Part IIIYes (X)InfoInScheduleOPartIIIInd
MissionTHE NATIONAL SCLERODERMA FOUNDATION'S MISSION IS TO ADVANCE MEDICAL RESEARCH, PROMOTE DISEASE AWARENESS, AND PROVIDE SUPPORT AND EDUCATION TO PEOPLE WITH SCLERODERMA, THEIR FAMILIES AND SUPPORT NETWORKS.MissionDesc
Significant New Program Srvc0SignificantNewProgramSrvcInd
Significant Change0SignificantChangeInd
Expense$2,737,760ExpenseAmt
DescA RELENTLESS FORCE IN FINDING A CURE AND IMPROVING THE LIVES OF PEOPLE AFFECTED BY SCLERODERMA, THE NATIONAL SCLERODERMA FOUNDATION ADVANCES MEDICAL RESEARCH, PROMOTES DISEASE AWARENESS, AND PROVIDES SUPPORT AND EDUCATION TO PEOPLE WITH SCLERODERMA, THEIR FAMILIES AND SUPPORT NETWORKS. SUPPORTED BY A NETWORK OF THOUSANDS OF INDIVIDUALS ACROSS THE UNITED STATES, THE FOUNDATION IS THE LEADING NONPROFIT FUNDER OF PEER-REVIEWED RESEARCH TO DISCOVER THE CAUSE, UNDERSTAND THE MECHANISMS, AND OVERCOME SCLERODERMA FOREVER. SUPPORT: THE FOUNDATION SERVES PEOPLE LIVING WITH SCLERODERMA, AS WELL AS THEIR CAREGIVERS AND FAMILY MEMBERS BY PROVIDING ACCESS TO SUPPORT GROUPS. IN THE WAKE OF THE PANDEMIC, THE FOUNDATION PIVOTED FROM IN-PERSON TO VIRTUAL COMMUNITY SUPPORT, ALLOWING MEMBERS OF THE SCLERODERMA COMMUNITY TO CONNECT NO MATTER WHERE THEY WERE IN THE COUNTRY. THIS ALSO ALLOWED FOR THE CREATION OF MORE TARGETED, TOPICAL SUPPORT GROUPS SUCH AS ONE FOR MEN, WHICH MAKE UP JUST 20% OF THE POPULATION IMPACTED BY SCLERODERMA, AND BIPOC, AS WELL AS YOUNG ADULTS. EDUCATION: THE FOUNDATION PROVIDES EDUCATION ABOUT HOW TO LIVE BETTER WITH SCLERODERMA FOR THOSE AFFECTED BY THE DISEASE, AS WELL AS THEIR CAREGIVERS, FAMILIES AND SUPPORT NETWORKS. THE FOUNDATION IS ALSO A CME AND CNE PROVIDER, EDUCATING HEALTHCARE PROVIDERS ABOUT SIGNS AND SYMPTOMS, TIMELY DIAGNOSIS, AND CUTTING-EDGE TREATMENTS AND THERAPIES. THE NATIONAL SCLERODERMA CONFERENCE ATTRACTS MORE THAN 400 PARTICIPANTS ANNUALLY AND PROVIDES COMMUNITY SUPPORT, WORLD CLASS EDUCATION, AND NETWORKING OPPORTUNITIES FOR PEOPLE LIVING WITH SCLERODERMA, CAREGIVERS, FAMILY MEMBERS, AND FRIENDS. THE SEMINARS SERVE AS AN EXCELLENT RESOURCE FOR PHYSICIANS AND OTHER HEALTHCARE PROFESSIONALS, WHO ALSO NEED COMPREHENSIVE INFORMATION ABOUT THE DISEASE.Desc

Prog Srvc Accom Acty2 ProgSrvcAccomActy2Grp

FieldValueIRS element (for citing)
Expense$1,545,164ExpenseAmt
Grant$1,199,988GrantAmt
DescRESEARCH: IN FY 2025, THE FOUNDATION MADE A COMMITMENT OF $1.2 MILLION TO FUND RESEARCH. THIS FUNDING AIMS TO STIMULATE AND SUPPORT INVESTIGATIONS INTO BETTER UNDERSTANDING THE MECHANISMS THAT CAUSE THE DISEASE, HOW TO PREVENT AND ACCURATELY DIAGNOSIS AND TREAT THE DISEASE, AND ULTIMATELY FIND A CURE FOR SCLERODERMA. EACH AWARD IS $200,000 SPREAD OVER MULTIPLE YEARS. IN FY 2025, FOUR AWARDS WERE TWO-YEAR ESTABLISHED INVESTIGATOR AWARDS, AND TWO AWARDS WERE THREE-YEAR NEW INVESTIGATOR AWARDS. NEW INVESTIGATOR AWARDS ARE INTENDED TO HELP EMERGING SCIENTISTS GATHER SUFFICIENT DATA TO DEMONSTRATE THE VALUE OF THEIR AREA OF INVESTIGATION AND ATTRACT LARGER FUNDING FROM OTHER SOURCES. THE FOUNDATION'S PEER REVIEWED RESEARCH GRANTS PROGRAM PRIORITIZES SCIENTIFIC MERIT AND IS ADMINISTERED BY THE FOUNDATION'S RESEARCH COMMITTEE. THIS COMMITTEE, COMPOSED OF SCLERODERMA EXPERTS FROM ACROSS THE COUNTRY, MAKES FUNDING RECOMMENDATIONS TO THE BOARD OF DIRECTORS ANNUALLY AFTER A RIGOROUS PEER REVIEW PROCESS.THE PEER-REVIEW RESEARCH COMMITTEE IS COMPOSED OF HIGHLY RESPECTED SCIENTIFIC EXPERTS WHO REVIEW, CRITIQUE, AND RANK ALL APPLICATIONS BASED ON THE NATIONAL INSTITUTES OF HEALTH'S RANKING SYSTEM. ONLY PROJECTS OF SIGNIFICANT SCIENTIFIC MERIT ARE FUNDED. EACH GRANT APPLICATION CONTAINS VERY SPECIFIC ELIGIBILITY AND REVIEW CRITERIA. DETAILS REGARDING THESE REQUIREMENTS ARE AVAILABLE AT WWW.SCLERODERMA.ORG. ALL APPLICATIONS UNDERGO RIGOROUS PEER REVIEW AND ARE SCORED AND RANKED ACCORDING TO THE REVIEW CRITERIA AND OVERALL MERIT OF THE PROPOSAL. PEER REVIEW RANKINGS ARE SENT TO THE FOUNDATION'S RESEARCH COMMITTEE FOR QUALIFICATION BEFORE BEING PRESENTED TO THE FOUNDATION BOARD OF DIRECTORS FOR FINAL APPROVAL OF FUNDING. AFTER THE AWARDS ARE MADE, ALL RECIPIENTS ARE REQUIRED TO COMPLETE FUNDING CONTRACTS WITH INSTITUTIONAL SIGN-OFF AND MUST ALSO SUBMIT ANNUAL REPORTS ON THEIR PROGRESS. ALL REPORTS ARE REVIEWED BY THE FOUNDATION'S RESEARCH COMMITTEE TO ENSURE COMPLIANCE WITH PROGRAMMATIC, SCIENTIFIC, AND FISCAL AND ADMINISTRATIVE POLICES AND REQUIREMENTS.Desc
FieldValueIRS element (for citing)
Total Program Service Expenses$4,282,924TotalProgramServiceExpensesAmt
Described In Section501c3Yes (1)DescribedInSection501c3Ind
Schedule B RequiredYes (1)ScheduleBRequiredInd
Political Campaign Acty0PoliticalCampaignActyInd
Lobbying Activities0LobbyingActivitiesInd
Subject To Proxy Tax0SubjectToProxyTaxInd
Donor Advised Fund0DonorAdvisedFundInd
Conservation Easements0ConservationEasementsInd
Collections Of Art0CollectionsOfArtInd
Credit Counseling0CreditCounselingInd
Donor Rstr Or Quasi EndowmentsYes (1)DonorRstrOrQuasiEndowmentsInd
Report Land Building EquipmentYes (1)ReportLandBuildingEquipmentInd
Report Investments Other Sec0ReportInvestmentsOtherSecInd
Report Program Related Invst0ReportProgramRelatedInvstInd
Report Other Assets0ReportOtherAssetsInd
Report Other LiabilitiesYes (1)ReportOtherLiabilitiesInd
Include FIN48 FootnoteYes (1)IncludeFIN48FootnoteInd
Independent Audit Fincl StmtYes (1)IndependentAuditFinclStmtInd
Consolidated Audit Fincl Stmt0ConsolidatedAuditFinclStmtInd
School Operating0SchoolOperatingInd
Foreign Office0ForeignOfficeInd
Foreign Activities0ForeignActivitiesInd
More Than5000 K To Org0MoreThan5000KToOrgInd
More Than5000 K To Individuals0MoreThan5000KToIndividualsInd
Professional Fundraising0ProfessionalFundraisingInd
Fundraising ActivitiesYes (1)FundraisingActivitiesInd
Gaming Activities0GamingActivitiesInd
Operate Hospital0OperateHospitalInd
Grants To OrganizationsYes (1)GrantsToOrganizationsInd
Grants To Individuals0GrantsToIndividualsInd
Schedule J RequiredYes (1)ScheduleJRequiredInd
Tax Exempt Bonds0TaxExemptBondsInd
Engaged In Excess Benefit Trans0EngagedInExcessBenefitTransInd
PY Excess Benefit Trans0PYExcessBenefitTransInd
Loan Outstanding0LoanOutstandingInd
Grant To Related Person0GrantToRelatedPersonInd
Business Rln With Org Mem0BusinessRlnWithOrgMemInd
Business Rln With Fam Mem0BusinessRlnWithFamMemInd
Business Rln With35 Ctrl Ent0BusinessRlnWith35CtrlEntInd
Deductible Non Cash Contri0DeductibleNonCashContriInd
Deductible Art Contribution0DeductibleArtContributionInd
Terminate Operations0TerminateOperationsInd
Partial Liquidation0PartialLiquidationInd
Disregarded Entity0DisregardedEntityInd
Related Entity0RelatedEntityInd
Related Organization Ctrl Ent0RelatedOrganizationCtrlEntInd
Trnsfr Exmpt Non Chrtbl Rltd Org0TrnsfrExmptNonChrtblRltdOrgInd
Activities Conducted Prtshp0ActivitiesConductedPrtshpInd
Schedule O RequiredYes (1)ScheduleORequiredInd
IRP Document16IRPDocumentCnt
IRP Document W2 G0IRPDocumentW2GCnt
Employee33EmployeeCnt
Employment Tax Returns FiledYes (1)EmploymentTaxReturnsFiledInd
Unrelated Bus Incm Over Limit0UnrelatedBusIncmOverLimitInd
Foreign Financial Account0ForeignFinancialAccountInd
Prohibited Tax Shelter Trans0ProhibitedTaxShelterTransInd
Taxable Party Notification0TaxablePartyNotificationInd
Nondeductible Contributions0NondeductibleContributionsInd
Quid Pro Quo ContributionsYes (1)QuidProQuoContributionsInd
Quid Pro Quo Contri Discl0QuidProQuoContriDisclInd
Form8282 Property Disposed Of0Form8282PropertyDisposedOfInd
Rcv Fnds To Pay Prsnl Bnft Cntrct0RcvFndsToPayPrsnlBnftCntrctInd
Pay Premiums Prsnl Bnft Cntrct0PayPremiumsPrsnlBnftCntrctInd
Indoor Tanning Services0IndoorTanningServicesInd
Subj To Tax Rmnrtn Ex Prcht Pymt0SubjToTaxRmnrtnExPrchtPymtInd
Subject To Excs Tax Net Invst Inc0SubjectToExcsTaxNetInvstIncInd
Info In Schedule O Part VIYes (X)InfoInScheduleOPartVIInd
Governing Body Voting Members19GoverningBodyVotingMembersCnt
Independent Voting Member19IndependentVotingMemberCnt
Family Or Business Rln0FamilyOrBusinessRlnInd
Delegation Of Mgmt Duties0DelegationOfMgmtDutiesInd
Change To Org Documents0ChangeToOrgDocumentsInd
Material Diversion Or Misuse0MaterialDiversionOrMisuseInd
Members Or Stockholders0MembersOrStockholdersInd
Election Of Board Members0ElectionOfBoardMembersInd
Decisions Subject To Approva0DecisionsSubjectToApprovaInd
Minutes Of Governing BodyYes (1)MinutesOfGoverningBodyInd
Minutes Of CommitteesYes (1)MinutesOfCommitteesInd
Officer Mailing Address0OfficerMailingAddressInd
Local ChaptersYes (1)LocalChaptersInd
Policies Reference ChaptersYes (1)PoliciesReferenceChaptersInd
Form990 Provided To Gvrn BodyYes (1)Form990ProvidedToGvrnBodyInd
Conflict Of Interest PolicyYes (1)ConflictOfInterestPolicyInd
Annual Disclosure Covered PrsnYes (1)AnnualDisclosureCoveredPrsnInd
Regular Monitoring EnfrcYes (1)RegularMonitoringEnfrcInd
Whistleblower PolicyYes (1)WhistleblowerPolicyInd
Document Retention PolicyYes (1)DocumentRetentionPolicyInd
Compensation Process CEOYes (1)CompensationProcessCEOInd
Compensation Process OtherYes (1)CompensationProcessOtherInd
Investment In Joint Venture0InvestmentInJointVentureInd
States Where Copy Of Return Is FldALStatesWhereCopyOfReturnIsFldCd
States Where Copy Of Return Is FldAKStatesWhereCopyOfReturnIsFldCd
States Where Copy Of Return Is FldARStatesWhereCopyOfReturnIsFldCd
States Where Copy Of Return Is FldCAStatesWhereCopyOfReturnIsFldCd
States Where Copy Of Return Is FldCOStatesWhereCopyOfReturnIsFldCd
States Where Copy Of Return Is FldCTStatesWhereCopyOfReturnIsFldCd
States Where Copy Of Return Is FldFLStatesWhereCopyOfReturnIsFldCd
States Where Copy Of Return Is FldGAStatesWhereCopyOfReturnIsFldCd
States Where Copy Of Return Is FldHIStatesWhereCopyOfReturnIsFldCd
States Where Copy Of Return Is FldILStatesWhereCopyOfReturnIsFldCd
States Where Copy Of Return Is FldKSStatesWhereCopyOfReturnIsFldCd
States Where Copy Of Return Is FldKYStatesWhereCopyOfReturnIsFldCd
States Where Copy Of Return Is FldMEStatesWhereCopyOfReturnIsFldCd
States Where Copy Of Return Is FldMDStatesWhereCopyOfReturnIsFldCd
States Where Copy Of Return Is FldMAStatesWhereCopyOfReturnIsFldCd
States Where Copy Of Return Is FldMIStatesWhereCopyOfReturnIsFldCd
States Where Copy Of Return Is FldMNStatesWhereCopyOfReturnIsFldCd
States Where Copy Of Return Is FldMSStatesWhereCopyOfReturnIsFldCd
States Where Copy Of Return Is FldNHStatesWhereCopyOfReturnIsFldCd
States Where Copy Of Return Is FldNJStatesWhereCopyOfReturnIsFldCd
States Where Copy Of Return Is FldNMStatesWhereCopyOfReturnIsFldCd
States Where Copy Of Return Is FldNYStatesWhereCopyOfReturnIsFldCd
States Where Copy Of Return Is FldNCStatesWhereCopyOfReturnIsFldCd
States Where Copy Of Return Is FldNDStatesWhereCopyOfReturnIsFldCd
States Where Copy Of Return Is FldOHStatesWhereCopyOfReturnIsFldCd
States Where Copy Of Return Is FldOKStatesWhereCopyOfReturnIsFldCd
States Where Copy Of Return Is FldORStatesWhereCopyOfReturnIsFldCd
States Where Copy Of Return Is FldPAStatesWhereCopyOfReturnIsFldCd
States Where Copy Of Return Is FldRIStatesWhereCopyOfReturnIsFldCd
States Where Copy Of Return Is FldSCStatesWhereCopyOfReturnIsFldCd
States Where Copy Of Return Is FldTNStatesWhereCopyOfReturnIsFldCd
States Where Copy Of Return Is FldUTStatesWhereCopyOfReturnIsFldCd
States Where Copy Of Return Is FldVAStatesWhereCopyOfReturnIsFldCd
States Where Copy Of Return Is FldWAStatesWhereCopyOfReturnIsFldCd
States Where Copy Of Return Is FldWVStatesWhereCopyOfReturnIsFldCd
States Where Copy Of Return Is FldWIStatesWhereCopyOfReturnIsFldCd
States Where Copy Of Return Is FldNVStatesWhereCopyOfReturnIsFldCd
Own WebsiteYes (X)OwnWebsiteInd
Upon RequestYes (X)UponRequestInd

Books In Care Of Detail BooksInCareOfDetail

FieldValueIRS element (for citing)
PersonMICHAEL B HYDE VP OF FINANCEPersonNm
Phone8007224673PhoneNum

US Address USAddress

FieldValueIRS element (for citing)
Address Line155 FERNCROFT ROAD SUITE 315AddressLine1Txt
CityDANVERSCityNm
State AbbreviationMAStateAbbreviationCd
ZIP01923ZIPCd

Form990 Part VII Section A Form990PartVIISectionAGrp (24 entries)

TitleTitleTxtAverage Hours Per WeekAverageHoursPerWeekRtIndividual Trustee Or DirectorIndividualTrusteeOrDirectorIndOfficerOfficerIndReportable Comp From OrgReportableCompFromOrgAmtReportable Comp From Rltd OrgReportableCompFromRltdOrgAmtOther CompensationOtherCompensationAmtHighest Compensated EmployeeHighestCompensatedEmployeeInd
KEVIN BOYANOWSKI
CHAIR2.00Yes (X)Yes (X)$0$0$0
CAROL FEGHALI-BOSTWICK PH D
VICE CHAIR2.00Yes (X)Yes (X)$0$0$0
BLAKE EMBREE
TREASURER2.00Yes (X)Yes (X)$0$0$0
MARCIA WALKER
SECRETARY2.00Yes (X)Yes (X)$0$0$0
LINDA BORNSTEIN BAUM OD
DIRECTOR2.00Yes (X)$0$0$0
MARY BLADES
DIRECTOR2.00Yes (X)$0$0$0
COURTNEY CALIENDO ESQ
DIRECTOR2.00Yes (X)$0$0$0
TERA CARTER
DIRECTOR2.00Yes (X)$0$0$0
SCOTT CERESNAK MD
DIRECTOR2.00Yes (X)$0$0$0
ZEBA HYDER
DIRECTOR2.00Yes (X)$0$0$0
AJ NAHMAD
DIRECTOR2.00Yes (X)$0$0$0
TRACY PORTER MED SPHR
DIRECTOR2.00Yes (X)$0$0$0
NANCY WALTERMIRE
DIRECTOR2.00Yes (X)$0$0$0
CHRISTINA LOCCKE
DIRECTOR2.00Yes (X)$0$0$0
JANE LADAS
DIRECTOR2.00Yes (X)$0$0$0
COS MALLOZZI
DIRECTOR2.00Yes (X)$0$0$0
MARK OROZCO III MBA
DIRECTOR2.00Yes (X)$0$0$0
J MICHAEL LEVENGOOD ESQ
DIRECTOR2.00Yes (X)$0$0$0
PEGGY COLLINS
DIRECTOR2.00Yes (X)$0$0$0
MARY J WHEATLEY
CEO37.50Yes (X)$253,027$0$24,976
MICHAEL B HYDE
VP OF FINANCE37.50Yes (X)$131,092$0$37,566
ASHLEY M PRUETT
VP OF COMMUNITY ENGAGEMENT37.50$144,410$0$25,629Yes (X)
CATHERINE M ANASTASIA
SENIOR DIRECTOR, MISSION DELIVERY37.50$113,309$0$15,021Yes (X)
ELIZABETH J MULROY
SENIOR DIRECTOR, CHAPTER OPERATIONS37.50$113,580$0$3,892Yes (X)
FieldValueIRS element (for citing)
Total Reportable Comp From Org$755,418TotalReportableCompFromOrgAmt
Tot Reportable Comp Rltd Org$0TotReportableCompRltdOrgAmt
Total Other Compensation$107,084TotalOtherCompensationAmt
Indiv Rcvd Greater Than100 K5IndivRcvdGreaterThan100KCnt
Former Ofcr Employees Listed0FormerOfcrEmployeesListedInd
Total Comp Greater Than150 KYes (1)TotalCompGreaterThan150KInd
Compensation From Other Srcs0CompensationFromOtherSrcsInd

Contractor Compensation ContractorCompensationGrp

Contractor Name ContractorName

Business Name BusinessName

FieldValueIRS element (for citing)
Business Name Line11PATH MANAGED SERVICES LLCBusinessNameLine1Txt

Contractor Address ContractorAddress

US Address USAddress

FieldValueIRS element (for citing)
Address Line12300 WINDY RIDGE PKWY SE 685 SAddressLine1Txt
CityATLANTACityNm
State AbbreviationGAStateAbbreviationCd
ZIP30339ZIPCd
FieldValueIRS element (for citing)
ServicesIT SERVICESServicesDesc
Compensation$154,829CompensationAmt
FieldValueIRS element (for citing)
Cntrct Rcvd Greater Than100 K1CntrctRcvdGreaterThan100KCnt
Fundraising$946,703FundraisingAmt
All Other Contributions$4,650,472AllOtherContributionsAmt
Total Contributions$5,597,175TotalContributionsAmt

Investment Income InvestmentIncomeGrp

FieldValueIRS element (for citing)
Total Revenue Column$233,654TotalRevenueColumnAmt
Exclusion$233,654ExclusionAmt

Gross Amount Sales Assets GrossAmountSalesAssetsGrp

FieldValueIRS element (for citing)
Securities$2,863,632SecuritiesAmt

Less Cost Oth Basis Sales Expnss LessCostOthBasisSalesExpnssGrp

FieldValueIRS element (for citing)
Securities$1,932,145SecuritiesAmt

Gain Or Loss GainOrLossGrp

FieldValueIRS element (for citing)
Securities$931,487SecuritiesAmt

Net Gain Or Loss Investments NetGainOrLossInvestmentsGrp

FieldValueIRS element (for citing)
Total Revenue Column$931,487TotalRevenueColumnAmt
Exclusion$931,487ExclusionAmt
FieldValueIRS element (for citing)
Fundraising Gross Income$140,692FundraisingGrossIncomeAmt
Contri Rpt Fundraising Event$946,703ContriRptFundraisingEventAmt
Fundraising Direct Expenses$274,356FundraisingDirectExpensesAmt

Net Incm From Fundraising Evt NetIncmFromFundraisingEvtGrp

FieldValueIRS element (for citing)
Total Revenue Column-$133,664TotalRevenueColumnAmt
Exclusion-$133,664ExclusionAmt

Total Revenue TotalRevenueGrp

FieldValueIRS element (for citing)
Total Revenue Column$6,628,652TotalRevenueColumnAmt
Related Or Exempt Func Income$0RelatedOrExemptFuncIncomeAmt
Unrelated Business Revenue$0UnrelatedBusinessRevenueAmt
Exclusion$1,031,477ExclusionAmt

Grants To Domestic Orgs GrantsToDomesticOrgsGrp

FieldValueIRS element (for citing)
Total$1,199,988TotalAmt
Program Services$1,199,988ProgramServicesAmt

Comp Current Ofcr Directors CompCurrentOfcrDirectorsGrp

FieldValueIRS element (for citing)
Total$549,811TotalAmt
Program Services$186,921ProgramServicesAmt
Management And General$330,662ManagementAndGeneralAmt
Fundraising$32,228FundraisingAmt

Other Salaries And Wages OtherSalariesAndWagesGrp

FieldValueIRS element (for citing)
Total$2,056,745TotalAmt
Program Services$1,505,378ProgramServicesAmt
Management And General$380,079ManagementAndGeneralAmt
Fundraising$171,288FundraisingAmt

Pension Plan Contributions PensionPlanContributionsGrp

FieldValueIRS element (for citing)
Total$46,451TotalAmt
Program Services$34,414ProgramServicesAmt
Management And General$8,145ManagementAndGeneralAmt
Fundraising$3,892FundraisingAmt

Other Employee Benefits OtherEmployeeBenefitsGrp

FieldValueIRS element (for citing)
Total$386,932TotalAmt
Program Services$279,647ProgramServicesAmt
Management And General$74,538ManagementAndGeneralAmt
Fundraising$32,747FundraisingAmt

Payroll Taxes PayrollTaxesGrp

FieldValueIRS element (for citing)
Total$215,192TotalAmt
Program Services$142,027ProgramServicesAmt
Management And General$56,165ManagementAndGeneralAmt
Fundraising$17,000FundraisingAmt

Fees For Services Legal FeesForServicesLegalGrp

FieldValueIRS element (for citing)
Total$26,158TotalAmt
Program Services$15,694ProgramServicesAmt
Management And General$5,232ManagementAndGeneralAmt
Fundraising$5,232FundraisingAmt

Fees For Services Accounting FeesForServicesAccountingGrp

FieldValueIRS element (for citing)
Total$47,800TotalAmt
Program Services$28,680ProgramServicesAmt
Management And General$9,560ManagementAndGeneralAmt
Fundraising$9,560FundraisingAmt

Fees For Srvc Invst Mgmnt Fees FeesForSrvcInvstMgmntFeesGrp

FieldValueIRS element (for citing)
Total$67,652TotalAmt
Management And General$67,652ManagementAndGeneralAmt

Fees For Services Other FeesForServicesOtherGrp

FieldValueIRS element (for citing)
Total$347,443TotalAmt
Program Services$173,944ProgramServicesAmt
Management And General$36,663ManagementAndGeneralAmt
Fundraising$136,836FundraisingAmt

Advertising AdvertisingGrp

FieldValueIRS element (for citing)
Total$3,588TotalAmt
Program Services$1,620ProgramServicesAmt
Management And General$540ManagementAndGeneralAmt
Fundraising$1,428FundraisingAmt

Office Expenses OfficeExpensesGrp

FieldValueIRS element (for citing)
Total$178,126TotalAmt
Program Services$27,889ProgramServicesAmt
Management And General$9,045ManagementAndGeneralAmt
Fundraising$141,192FundraisingAmt

Information Technology InformationTechnologyGrp

FieldValueIRS element (for citing)
Total$414,034TotalAmt
Program Services$248,420ProgramServicesAmt
Management And General$82,807ManagementAndGeneralAmt
Fundraising$82,807FundraisingAmt

Occupancy OccupancyGrp

FieldValueIRS element (for citing)
Total$177,362TotalAmt
Program Services$101,509ProgramServicesAmt
Management And General$33,284ManagementAndGeneralAmt
Fundraising$42,569FundraisingAmt

Travel TravelGrp

FieldValueIRS element (for citing)
Total$192,716TotalAmt
Program Services$117,696ProgramServicesAmt
Management And General$37,510ManagementAndGeneralAmt
Fundraising$37,510FundraisingAmt

Conferences Meetings ConferencesMeetingsGrp

FieldValueIRS element (for citing)
Total$548,871TotalAmt
Program Services$64,351ProgramServicesAmt
Management And General$18,660ManagementAndGeneralAmt
Fundraising$465,860FundraisingAmt

Depreciation Depletion DepreciationDepletionGrp

FieldValueIRS element (for citing)
Total$28,704TotalAmt
Program Services$17,222ProgramServicesAmt
Management And General$5,741ManagementAndGeneralAmt
Fundraising$5,741FundraisingAmt

Insurance InsuranceGrp

FieldValueIRS element (for citing)
Total$84,705TotalAmt
Program Services$50,823ProgramServicesAmt
Management And General$16,941ManagementAndGeneralAmt
Fundraising$16,941FundraisingAmt

Other Expenses OtherExpensesGrp (2 entries)

DescDescTotalTotalAmtProgram ServicesProgramServicesAmtManagement And GeneralManagementAndGeneralAmtFundraisingFundraisingAmt
FEES AND LICENSES$178,742$86,701$29,441$62,600
OUTREACH$32,254$32,254

Total Functional Expenses TotalFunctionalExpensesGrp

FieldValueIRS element (for citing)
Total$6,783,274TotalAmt
Program Services$4,282,924ProgramServicesAmt
Management And General$1,202,665ManagementAndGeneralAmt
Fundraising$1,297,685FundraisingAmt

Cash Non Interest Bearing CashNonInterestBearingGrp

FieldValueIRS element (for citing)
BOY$878,390BOYAmt
EOY$404,938EOYAmt

Pledges And Grants Receivable PledgesAndGrantsReceivableGrp

FieldValueIRS element (for citing)
BOY$602,650BOYAmt
EOY$1,686,370EOYAmt

Prepaid Expenses Defrd Charges PrepaidExpensesDefrdChargesGrp

FieldValueIRS element (for citing)
BOY$268,330BOYAmt
EOY$315,284EOYAmt
FieldValueIRS element (for citing)
Land Bldg Equip Cost Or Other Bss$354,368LandBldgEquipCostOrOtherBssAmt
Land Bldg Equip Accum Deprec$280,530LandBldgEquipAccumDeprecAmt

Land Bldg Equip Basis Net LandBldgEquipBasisNetGrp

FieldValueIRS element (for citing)
BOY$48,920BOYAmt
EOY$73,838EOYAmt

Investments Pub Traded Sec InvestmentsPubTradedSecGrp

FieldValueIRS element (for citing)
BOY$9,255,822BOYAmt
EOY$8,454,497EOYAmt

Other Assets Total OtherAssetsTotalGrp

FieldValueIRS element (for citing)
BOY$108,354BOYAmt
EOY$324,481EOYAmt

Total Assets TotalAssetsGrp

FieldValueIRS element (for citing)
BOY$11,162,466BOYAmt
EOY$11,259,408EOYAmt

Accounts Payable Accr Expnss AccountsPayableAccrExpnssGrp

FieldValueIRS element (for citing)
BOY$377,001BOYAmt
EOY$826,364EOYAmt

Grants Payable GrantsPayableGrp

FieldValueIRS element (for citing)
BOY$2,166,680BOYAmt
EOY$1,650,007EOYAmt

Deferred Revenue DeferredRevenueGrp

FieldValueIRS element (for citing)
BOY$174,024BOYAmt
EOY$153,388EOYAmt

Other Liabilities OtherLiabilitiesGrp

FieldValueIRS element (for citing)
BOY$91,564BOYAmt
EOY$297,034EOYAmt

Total Liabilities TotalLiabilitiesGrp

FieldValueIRS element (for citing)
BOY$2,809,269BOYAmt
EOY$2,926,793EOYAmt
FieldValueIRS element (for citing)
Organization Follows FASB117Yes (X)OrganizationFollowsFASB117Ind

No Donor Restriction Net Assets NoDonorRestrictionNetAssetsGrp

FieldValueIRS element (for citing)
BOY$5,825,611BOYAmt
EOY$4,595,071EOYAmt

Donor Restriction Net Assets DonorRestrictionNetAssetsGrp

FieldValueIRS element (for citing)
BOY$2,527,586BOYAmt
EOY$3,737,544EOYAmt

Total Net Assets Fund Balance TotalNetAssetsFundBalanceGrp

FieldValueIRS element (for citing)
BOY$8,353,197BOYAmt
EOY$8,332,615EOYAmt

Tot Liab Net Assets Fund Balance TotLiabNetAssetsFundBalanceGrp

FieldValueIRS element (for citing)
BOY$11,162,466BOYAmt
EOY$11,259,408EOYAmt
FieldValueIRS element (for citing)
Info In Schedule O Part XIYes (X)InfoInScheduleOPartXIInd
Reconcilation Revenue Expnss-$154,622ReconcilationRevenueExpnssAmt
Net Unrlzd Gains Losses Invst-$112,011NetUnrlzdGainsLossesInvstAmt
Other Changes In Net Assets$246,051OtherChangesInNetAssetsAmt
Method Of Accounting AccrualYes (X)MethodOfAccountingAccrualInd
Accountant Compile Or Review0AccountantCompileOrReviewInd
FS AuditedYes (1)FSAuditedInd

FS Audited Basis FSAuditedBasisGrp

FieldValueIRS element (for citing)
Separate Basis Fincl StmtYes (X)SeparateBasisFinclStmtInd
FieldValueIRS element (for citing)
Audit CommitteeYes (1)AuditCommitteeInd
Federal Grant Audit Required0FederalGrantAuditRequiredInd

Schedule A IRS990ScheduleA

FieldValueIRS element (for citing)
Public Organization170Yes (X)PublicOrganization170Ind

Gifts Grants Contri Rcvd170 GiftsGrantsContriRcvd170Grp

FieldValueIRS element (for citing)
Current Tax Year Minus4 Years$3,721,793CurrentTaxYearMinus4YearsAmt
Current Tax Year Minus3 Years$4,462,430CurrentTaxYearMinus3YearsAmt
Current Tax Year Minus2 Years$6,057,608CurrentTaxYearMinus2YearsAmt
Current Tax Year Minus1 Year$3,912,063CurrentTaxYearMinus1YearAmt
Current Tax Year$5,597,175CurrentTaxYearAmt
Total$23,751,069TotalAmt

Total Calendar Year170 TotalCalendarYear170Grp

FieldValueIRS element (for citing)
Current Tax Year Minus4 Years$3,721,793CurrentTaxYearMinus4YearsAmt
Current Tax Year Minus3 Years$4,462,430CurrentTaxYearMinus3YearsAmt
Current Tax Year Minus2 Years$6,057,608CurrentTaxYearMinus2YearsAmt
Current Tax Year Minus1 Year$3,912,063CurrentTaxYearMinus1YearAmt
Current Tax Year$5,597,175CurrentTaxYearAmt
Total$23,751,069TotalAmt
FieldValueIRS element (for citing)
Substantial Contributors Tot$2,262,371SubstantialContributorsTotAmt
Public Support Total170$21,488,698PublicSupportTotal170Amt

Gross Investment Income170 GrossInvestmentIncome170Grp

FieldValueIRS element (for citing)
Current Tax Year Minus4 Years$167,751CurrentTaxYearMinus4YearsAmt
Current Tax Year Minus3 Years$175,431CurrentTaxYearMinus3YearsAmt
Current Tax Year Minus2 Years$203,947CurrentTaxYearMinus2YearsAmt
Current Tax Year Minus1 Year$240,318CurrentTaxYearMinus1YearAmt
Current Tax Year$233,654CurrentTaxYearAmt
Total$1,021,101TotalAmt

Other Income170 OtherIncome170Grp

FieldValueIRS element (for citing)
Current Tax Year Minus2 Years$142,546CurrentTaxYearMinus2YearsAmt
Current Tax Year Minus1 Year$238,586CurrentTaxYearMinus1YearAmt
Current Tax Year$140,692CurrentTaxYearAmt
Total$521,824TotalAmt
FieldValueIRS element (for citing)
Total Support$25,293,994TotalSupportAmt
Public Support CY1700.84960PublicSupportCY170Pct
Public Support PY1700.88670PublicSupportPY170Pct
Thirty Thr Pct Suprt Tests CY170Yes (X)ThirtyThrPctSuprtTestsCY170Ind

Form990 Schedule A Part VI Form990ScheduleAPartVIGrp

FieldValueIRS element (for citing)
Form And Line ReferenceSCHEDULE A, PART II, LINE 10, EXPLANATION OF OTHER INCOME:FormAndLineReferenceDesc
ExplanationSPECIAL EVENT INCOME - 2022 AMOUNT: $ 142,546. 2023 AMOUNT: $ 238,586. 2024 AMOUNT: $ 140,692.ExplanationTxt

Schedule B IRS990ScheduleB

Contributor Information ContributorInformationGrp

FieldValueIRS element (for citing)
ContributorRESTRICTEDContributorNum

Contributor Business Name ContributorBusinessName

FieldValueIRS element (for citing)
Business Name Line1RESTRICTEDBusinessNameLine1

Contributor US Address ContributorUSAddress

FieldValueIRS element (for citing)
Address Line1RESTRICTEDAddressLine1
Address Line2RESTRICTEDAddressLine2
CityRESTRICTEDCity
StateRESTRICTEDState
ZIP CodeRESTRICTEDZIPCode
FieldValueIRS element (for citing)
Total ContributionsRESTRICTEDTotalContributionsAmt

Schedule D IRS990ScheduleD

CY Endwmt Fund CYEndwmtFundGrp

FieldValueIRS element (for citing)
Beginning Year Balance$2,527,586BeginningYearBalanceAmt
Contributions$1,110,000ContributionsAmt
Investment Earnings Or Losses$204,883InvestmentEarningsOrLossesAmt
Other Expenditures$104,925OtherExpendituresAmt
End Year Balance$3,737,544EndYearBalanceAmt

CY Minus1 Yr Endwmt Fund CYMinus1YrEndwmtFundGrp

FieldValueIRS element (for citing)
Beginning Year Balance$2,180,308BeginningYearBalanceAmt
Contributions$200,000ContributionsAmt
Investment Earnings Or Losses$238,530InvestmentEarningsOrLossesAmt
Other Expenditures$91,252OtherExpendituresAmt
End Year Balance$2,527,586EndYearBalanceAmt

CY Minus2 Yr Endwmt Fund CYMinus2YrEndwmtFundGrp

FieldValueIRS element (for citing)
Beginning Year Balance$1,655,912BeginningYearBalanceAmt
Contributions$452,455ContributionsAmt
Investment Earnings Or Losses$159,524InvestmentEarningsOrLossesAmt
Other Expenditures$87,583OtherExpendituresAmt
End Year Balance$2,180,308EndYearBalanceAmt

CY Minus3 Yr Endwmt Fund CYMinus3YrEndwmtFundGrp

FieldValueIRS element (for citing)
Beginning Year Balance$1,881,204BeginningYearBalanceAmt
Investment Earnings Or Losses-$155,307InvestmentEarningsOrLossesAmt
Other Expenditures$69,985OtherExpendituresAmt
End Year Balance$1,655,912EndYearBalanceAmt

CY Minus4 Yr Endwmt Fund CYMinus4YrEndwmtFundGrp

FieldValueIRS element (for citing)
Beginning Year Balance$1,658,720BeginningYearBalanceAmt
Investment Earnings Or Losses$293,349InvestmentEarningsOrLossesAmt
Other Expenditures$70,865OtherExpendituresAmt
End Year Balance$1,881,204EndYearBalanceAmt
FieldValueIRS element (for citing)
Board Designated Balance EOY0.00000BoardDesignatedBalanceEOYPct
Prmnnt Endowment Balance EOY1.00000PrmnntEndowmentBalanceEOYPct
Term Endowment Balance EOY0.00000TermEndowmentBalanceEOYPct
Endowments Held Unrelated Org0EndowmentsHeldUnrelatedOrgInd
Endowments Held Related Org0EndowmentsHeldRelatedOrgInd

Leasehold Improvements LeaseholdImprovementsGrp

FieldValueIRS element (for citing)
Other Cost Or Other Basis$23,606OtherCostOrOtherBasisAmt
Depreciation$21,329DepreciationAmt
Book Value$2,277BookValueAmt

Equipment EquipmentGrp

FieldValueIRS element (for citing)
Other Cost Or Other Basis$203,684OtherCostOrOtherBasisAmt
Depreciation$173,211DepreciationAmt
Book Value$30,473BookValueAmt

Other Land Buildings OtherLandBuildingsGrp

FieldValueIRS element (for citing)
Other Cost Or Other Basis$127,078OtherCostOrOtherBasisAmt
Depreciation$85,990DepreciationAmt
Book Value$41,088BookValueAmt
FieldValueIRS element (for citing)
Total Book Value Land Buildings$73,838TotalBookValueLandBuildingsAmt

Other Liabilities Org OtherLiabilitiesOrgGrp

FieldValueIRS element (for citing)
DescOPERATING LEASE LIABILITIESDesc
Amt$297,034Amt
FieldValueIRS element (for citing)
Total Liability$297,034TotalLiabilityAmt
Footnote TextYes (X)FootnoteTextInd
Total Rev Etc Audited Fincl Stmt$6,695,040TotalRevEtcAuditedFinclStmtAmt
Net Unrealized Gains Invst-$112,011NetUnrealizedGainsInvstAmt
Other Revenue$246,051OtherRevenueAmt
Revenue Not Reported$134,040RevenueNotReportedAmt
Revenue Subtotal$6,561,000RevenueSubtotalAmt
Investment Expenses Not Incld$67,652InvestmentExpensesNotIncldAmt
Revenue Not Reported Fincl Stmt$67,652RevenueNotReportedFinclStmtAmt
Total Revenue Per Form990$6,628,652TotalRevenuePerForm990Amt
Tot Expns Etc Audited Fincl Stmt$6,715,622TotExpnsEtcAuditedFinclStmtAmt
Expenses Not Reported$0ExpensesNotReportedAmt
Expenses Subtotal$6,715,622ExpensesSubtotalAmt
Investment Expenses Not Incld2$67,652InvestmentExpensesNotIncld2Amt
Expenses Not Rpt Fincl Stmt$67,652ExpensesNotRptFinclStmtAmt
Total Expenses Per Form990$6,783,274TotalExpensesPerForm990Amt

Supplemental Information Detail SupplementalInformationDetail (3 entries)

Form And Line ReferenceFormAndLineReferenceDescExplanationExplanationTxt
PART V, LINE 4:THE ENDOWMENT CONSISTS OF FUNDS RESTRICTED IN PERPETUITY ESTABLISHED IN 2007 AND BOARD DESIGNATED ENDOWMENT FUNDS. THE ENDOWMENT IS TO SUPPORT SCLERODERMA RESEARCH.
PART X, LINE 2:THE ORGANIZATION IS A NONPROFIT ORGANIZATION AS DESCRIBED IN SECTION 501(C)(3) OF THE INTERNAL REVENUE CODE AND IS EXEMPT FROM FEDERAL AND STATE INCOME TAXES ON TRADE OR BUSINESS PROFITS GENERATED BY ACTIVITIES RELATED TO THE ORGANIZATION'S EXEMPT FUNCTION. THE ORGANIZATION MAY BE SUBJECT TO FEDERAL AND STATE INCOME TAXES FOR PROFITS GENERATED FROM TRADE OR BUSINESS ACTIVITIES UNRELATED TO THE ORGANIZATION'S EXEMPT FUNCTION. AS OF JUNE 30, 2025, MANAGEMENT BELIEVES THAT THE ORGANIZATION HAS NOT GENERATED ANY UNRELATED BUSINESS TAXABLE INCOME. THE ORGANIZATION ASSESSES THE RECORDING OF UNCERTAIN TAX POSITIONS BY EVALUATING THE MINIMUM RECOGNITION THRESHOLD AND MEASUREMENT REQUIREMENTS A TAX POSITION MUST MEET BEFORE BEING RECOGNIZED AS A BENEFIT IN THE FINANCIAL STATEMENTS. THE ORGANIZATION'S POLICY IS TO RECOGNIZE INTEREST AND PENALTIES ACCRUED ON ANY UNCERTAIN TAX POSITIONS AS A COMPONENT OF INCOME TAX EXPENSE, IF ANY, IN ITS STATEMENT OF ACTIVITIES. THE ORGANIZATION HAS NOT RECOGNIZED ANY LIABILITIES FOR UNCERTAIN TAX POSITIONS OR UNRECOGNIZED BENEFITS AS OF JUNE 30, 2025. THE ORGANIZATION DOES NOT EXPECT ANY MATERIAL CHANGE IN UNCERTAIN TAX BENEFITS WITHIN THE NEXT 12 MONTHS.
PART XI, LINE 2D - OTHER ADJUSTMENTS:RETURNED GRANT AWARDS FROM PRIOR YEARS 246,051.

Schedule G IRS990ScheduleG

Fundraising Event Information FundraisingEventInformationGrp

FieldValueIRS element (for citing)
Event1SF NEW ENGLAND GOLF TOURNYEvent1Nm
Gross Receipts Event1$146,724GrossReceiptsEvent1Amt
Charitable Contri Event1$81,554CharitableContriEvent1Amt
Gross Revenue Event1$65,170GrossRevenueEvent1Amt
Rent Facility Costs Event1$60,125RentFacilityCostsEvent1Amt
Food And Beverage Event1$5,045FoodAndBeverageEvent1Amt
Other Direct Expenses Event1$6,561OtherDirectExpensesEvent1Amt
Event2ROCKY MOUNTAIN FOOD FIGHTEvent2Nm
Gross Receipts Event2$61,785GrossReceiptsEvent2Amt
Charitable Contri Event2$40,520CharitableContriEvent2Amt
Gross Revenue Event2$21,265GrossRevenueEvent2Amt
Rent Facility Costs Event2$19,985RentFacilityCostsEvent2Amt
Food And Beverage Event2$1,280FoodAndBeverageEvent2Amt
Other Direct Expenses Event2$24,575OtherDirectExpensesEvent2Amt
Other Events Total32OtherEventsTotalCnt
Gross Receipts Other Events$878,886GrossReceiptsOtherEventsAmt
Charitable Contri Other Events$824,629CharitableContriOtherEventsAmt
Gross Revenue Other Events$54,257GrossRevenueOtherEventsAmt
Rent Fclty Costs Other Events$43,694RentFcltyCostsOtherEventsAmt
Food And Beverage Other Events$10,563FoodAndBeverageOtherEventsAmt
Oth Direct Expnss Other Events$102,528OthDirectExpnssOtherEventsAmt
Gross Receipts Total$1,087,395GrossReceiptsTotalAmt
Charitable Contributions Tot$946,703CharitableContributionsTotAmt
Gross Revenue Total Events$140,692GrossRevenueTotalEventsAmt
Rent Fclty Costs Total Events$123,804RentFcltyCostsTotalEventsAmt
Food And Beverage Total Events$16,888FoodAndBeverageTotalEventsAmt
Oth Direct Expnss Total Events$133,664OthDirectExpnssTotalEventsAmt
Direct Expense Summary Events$274,356DirectExpenseSummaryEventsAmt
Net Income Summary-$133,664NetIncomeSummaryAmt

Schedule I IRS990ScheduleI

FieldValueIRS element (for citing)
Grant Records MaintainedYes (1)GrantRecordsMaintainedInd

Recipient Table RecipientTable (6 entries)

Address Line1USAddress/AddressLine1TxtCityUSAddress/CityNmState AbbreviationUSAddress/StateAbbreviationCdZIPUSAddress/ZIPCdRecipient EINRecipientEINIRC SectionIRCSectionDescCash GrantCashGrantAmtNon Cash AssistanceNonCashAssistanceAmtPurpose Of GrantPurposeOfGrantTxtAddress Line2USAddress/AddressLine2Txt
THE REGENTS OF THE UNIVERSITY OF MICHIGAN
C/O BNY MELLON BOX 223131PITTSBURGHPA15251386006309501(C)3$199,998$0RESEARCH
YALE UNIVERSITY
SPONSORED PROJECTS FINANCIAL ADMINNEW HAVENCT06508060646973501(C)3$199,998$0RESEARCHPO BOX 1873
UNIVERSITY OF WASHINGTON
GRANTS CONTRACTS ACCOUNTING 12455CHICAGOIL60693916001537501(C)3$199,998$0RESEARCHCOLLECTIONS DR
JOHN HOPKINS UNIVERSITY
BANK OF AMERICA CENTRAL LOCKBOXCHICAGOIL60693520595110501(C)3$199,998$0RESEARCH12529 COLLECTIONS CTR DR
YALE UNIVERSITY
SPONSORED PROJECTS FINANCIAL ADMINNEW HAVENCT06508060646973501(C)3$199,998$0RESEARCHPO BOX 1873
TRUSTEES OF DARTMOUTH COLLEGE
SPONSORED PROJECTS OFFICE 11 ROPEHANOVERNH03755020222111501(C)3$199,998$0RESEARCHFERRY RD 6210
FieldValueIRS element (for citing)
Total501c3 Org5Total501c3OrgCnt
Total Other Org0TotalOtherOrgCnt

Supplemental Information Detail SupplementalInformationDetail

FieldValueIRS element (for citing)
Form And Line ReferencePART I, LINE 2:FormAndLineReferenceDesc
ExplanationTHE FOUNDATION IS THE LEADING NONPROFIT FUNDING SCLERODERMA RESEARCH IN THE UNITED STATES. THROUGH THIS PROGRAM, THE FOUNDATION IS COMMITTED TO DISCOVERING THE CAUSE OF THIS DISEASE, UNDERSTANDING THE MECHANISMS BEHIND IT, AND OVERCOMING SCLERODERMA FOREVER. SINCE ITS INCEPTION, THE FOUNDATION HAS COMMITTED $30 MILLION TO THIS MISSION PRIORITY. THROUGH ITS PEER REVIEWED RESEARCH GRANTS PROGRAM, THE NATIONAL SCLERODERMA FOUNDATION FOSTERS THE DEVELOPMENT OF INNOVATIVE, HIGH-QUALITY RESEARCH BY NEW AND ESTABLISHED INVESTIGATORS IN FIELDS RELATED TO SCLERODERMA. TO THAT END, THE FOUNDATION OFFERS TWO DISTINCT RESEARCH GRANTS: NATIONAL SCLERODERMA FOUNDATION NEW INVESTIGATOR GRANT AND THE NATIONAL SCLERODERMA FOUNDATION ESTABLISHED INVESTIGATOR GRANT. EACH GRANT APPLICATION DETAILS SPECIFIC ELIGIBILITY AND REVIEW CRITERIA (DETAILS REGARDING THESE REQUIREMENTS ARE AVAILABLE AT WWW.SCLERODERMA.ORG). ALL APPLICATIONS UNDERGO A RIGOROUS PEER REVIEW PROCESS COMPARABLE TO THAT OF THE NIH. THE FOUNDATION'S PEER REVIEWED RESEARCH COMMITTEE IS COMPRISED OF MEDICAL AND RESEARCH EXPERTS FROM ACROSS THE UNITED STATES, WHO USE THE SAME MERIT-BASED SCORING SYSTEM AS THE NATIONAL INSTITUTES OF HEALTH. EACH APPLICATION IS CRITIQUED, SCORED AND RANKED ACCORDING TO THE REVIEW CRITERIA AND OVERALL MERIT OF THE PROPOSED PROJECT. ONCE THE STUDY SECTION HAS REVIEWED, DISCUSSED AND RANKED THE FINAL SLATE, THE COMMITTEE ON RESEARCH PUTS FORTH FUNDING RECOMMENDATIONS TO THE BOARD OF DIRECTORS FOR FINAL APPROVAL. PENDING NOTICE OF AWARD, EACH RECIPIENT IS REQUIRED TO COMPLETE A FUNDING CONTRACT SIGNED BY THEIR SPONSORING ORGANIZATION COMMITTING TO COMPLETE THE PROJECT WITHIN A SPECIFIED PERIOD OF TIME, AND WITH NO SCIENTIFIC OR BUDGETARY OVERLAP. RECIPIENTS MUST ALSO SUBMIT ANNUAL PROGRESS REPORTS AND FINANCIAL RECONCILIATIONS, AND COMPLY WITH FOUNDATION POLICIES.ExplanationTxt

Schedule J IRS990ScheduleJ

FieldValueIRS element (for citing)
Board Or Committee ApprovalYes (X)BoardOrCommitteeApprovalInd
Severance Payment0SeverancePaymentInd
Supplemental Nonqual Rtr Plan0SupplementalNonqualRtrPlanInd
Equity Based Comp Arrngm0EquityBasedCompArrngmInd
Comp Based On Revenue Of Flng Org0CompBasedOnRevenueOfFlngOrgInd
Comp Bsd On Rev Related Orgs0CompBsdOnRevRelatedOrgsInd
Comp Bsd Net Earns Flng Org0CompBsdNetEarnsFlngOrgInd
Comp Bsd Net Earns Rltd Orgs0CompBsdNetEarnsRltdOrgsInd
Any Non Fixed PaymentsYes (1)AnyNonFixedPaymentsInd
Initial Contract Exception0InitialContractExceptionInd

Rltd Org Officer Trst Key Empl RltdOrgOfficerTrstKeyEmplGrp (3 entries)

TitleTitleTxtBase Compensation Filing OrgBaseCompensationFilingOrgAmtCompensation Based On Rltd OrgsCompensationBasedOnRltdOrgsAmtBonus Filing OrganizationBonusFilingOrganizationAmountBonus Related OrganizationsBonusRelatedOrganizationsAmtOther Compensation Filing OrgOtherCompensationFilingOrgAmtOther Compensation Rltd OrgsOtherCompensationRltdOrgsAmtDeferred Compensation Flng OrgDeferredCompensationFlngOrgAmtDeferred Comp Rltd OrgsDeferredCompRltdOrgsAmtNontaxable Benefits Filing OrgNontaxableBenefitsFilingOrgAmtNontaxable Benefits Rltd OrgsNontaxableBenefitsRltdOrgsAmtTotal Compensation Filing OrgTotalCompensationFilingOrgAmtTotal Compensation Rltd OrgsTotalCompensationRltdOrgsAmtComp Report Prior990 Filing OrgCompReportPrior990FilingOrgAmtComp Report Prior990 Rltd OrgsCompReportPrior990RltdOrgsAmt
MARY J WHEATLEY
CEO$234,901$0$18,126$0$0$0$7,318$0$17,658$0$278,003$0$0$0
ASHLEY M PRUETT
VP OF COMMUNITY ENGAGEMENT$142,126$0$2,284$0$0$0$4,603$0$21,026$0$170,039$0$0$0
MICHAEL B HYDE
VP OF FINANCE$128,063$0$3,029$0$0$0$4,003$0$33,563$0$168,658$0$0$0

Supplemental Information Detail SupplementalInformationDetail

FieldValueIRS element (for citing)
Form And Line ReferencePART I, LINE 7FormAndLineReferenceDesc
ExplanationAN ANNUAL INCENTIVE BONUS AMOUNT WILL BE UP TO TEN PERCENT OF BASE SALARY, PER BOARD APPROVAL. A REVIEW OF OVERALL PERFORMANCE WILL BE CONDUCTED ANNUALLY AND A POTENTIAL ANNUAL INCENTIVE BONUS REWARD WILL BE TIED TO COMPILED RESULTS OF THE ANNUAL REVIEW, AND PROGRESS TOWARDS GOALS IDENTIFIED DURING THE PRIOR YEAR'S REVIEW.ExplanationTxt

Schedule O IRS990ScheduleO

Supplemental Information Detail SupplementalInformationDetail (6 entries)

Form And Line ReferenceFormAndLineReferenceDescExplanationExplanationTxt
FORM 990, PART VI, SECTION B, LINE 11BBEFORE IT IS FILED WITH THE IRS, THE FORM 990 IS REVIEWED AND APPROVED BY MANAGEMENT. THE FORM 990 IS THEN GIVEN TO ALL BOARD MEMBERS FOR REVIEW. ANY QUESTIONS ARE ANSWERED BY EITHER MANGEMENT OF THE ORGANIZATION OR THE INDEPENDENT AUDITOR.
FORM 990, PART VI, SECTION B, LINE 12CALL MEMBERS OF THE BOARD OF DIRECTORS SUBMIT ANNUAL DISCLOSURE STATEMENTS, WHICH ARE THEN REVIEWED BY THE COMMITTEE ON CORPORATE GOVERNANCE AND NOMINATIONS AND FILED WITH LEGAL COUNSEL. ANY MEMBER WHO GIVES NOTICE OF POTENTIAL CONFLICT IS ADVISED TO ABSTAIN FROM PARTICIPATING IN ANY ITEM OF BUSINESS RELATED TO THAT CONFLICT(S) WHICH MAY COME BEFORE THE BOARD.
FORM 990, PART VI, SECTION B, LINE 15THE EXECUTIVE COMMITTEE VOTES AND APPROVES THE COMPENSATION OF THE CHIEF EXECUTIVE OFFICER (CEO) AND INFORMS THE BOARD OF DIRECTORS OF THE RESULTS DURING AN EXECUTIVE SESSION. THE CEO ESTABLISHES THE COMPENSATION FOR ALL OTHER EMPLOYEES OF THE ORGANIZATION. ALL DECISIONS REGARDING COMPENSATION ARE DOCUMENTED IN WRITING. NO BOARD MEMBERS ARE COMPENSATED.
FORM 990, PART VI, SECTION C, LINE 19THE ORGANIZATION MAKES ITS GOVERNING DOCUMENTS, CONFLICT OF INTEREST POLICY AND FINANCIAL STATEMENTS AVAILABLE TO THE PUBLIC UPON REQUEST. THE ORGANIZATION'S FINANCIAL STATEMENTS ARE ALSO AVAILABLE ON THE ORGANIZATION'S WEBSITE.
FORM 990, PART XI, LINE 9:RETURN OF PRIOR YEAR GRANT FUNDS GIVEN 246,051.
FORM 990, PART XI, LINE 9:THE ORGANIZATION RECEIVED REFUNDS DURING THE FISCAL YEAR ENDING JUNE 30, 2025 IN THE AMOUNT OF $246,051 FOR PRIOR YEAR GRANT MONIES THAT WERE RETURNED.

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