NATIONAL SCLERODERMA FOUNDATION: Form 990, tax year 2013

View the entire original 990 at ProPublica ↗

Organization
NATIONAL SCLERODERMA FOUNDATION (EIN 52-1375827)
Tax period
2013-07-01 to 2014-06-30
Filed
2014-11-13
IRS object ID
201403179349303815
Schema version
2013v3.0
Source
Download XML · Original 990 at ProPublica

Every field in the e-filed return. Faint text is the IRS element name, for citing.

Return header ReturnHeader

FieldValueIRS element (for citing)
Return2014-11-13T13:31:59-06:00ReturnTs
Tax Period End2014-06-30TaxPeriodEndDt

Preparer Firm PreparerFirmGrp

FieldValueIRS element (for citing)
Preparer Firm EIN043077056PreparerFirmEIN

Preparer Firm Name PreparerFirmName

FieldValueIRS element (for citing)
Business Name Line1MOODY FAMIGLIETTI & ANDRONICO LLPBusinessNameLine1

Preparer US Address PreparerUSAddress

FieldValueIRS element (for citing)
Address Line11 HIGHWOOD DRIVEAddressLine1
CityTEWKSBURYCity
StateMAState
ZIP Code01876ZIPCode
FieldValueIRS element (for citing)
Return Type990ReturnTypeCd
Tax Period Begin2013-07-01TaxPeriodBeginDt

Filer Filer

FieldValueIRS element (for citing)
EIN521375827EIN

Business Name BusinessName

FieldValueIRS element (for citing)
Business Name Line1SCLERODERMA FOUNDATION INCBusinessNameLine1
FieldValueIRS element (for citing)
Business Name ControlSCLEBusinessNameControlTxt
Phone8007224673PhoneNum

US Address USAddress

FieldValueIRS element (for citing)
Address Line1300 ROSEWOOD DRIVE NO 105AddressLine1
CityDANVERSCity
StateMAState
ZIP Code01923ZIPCode

Business Officer BusinessOfficerGrp

FieldValueIRS element (for citing)
PersonROBERT J RIGGSPersonNm
Person TitleCHIEF EXECUTIVE OFFICERPersonTitleTxt
Phone8007224673PhoneNum
Signature2014-11-12SignatureDt
Discuss With Paid PreparerYes (1)DiscussWithPaidPreparerInd

Preparer Person PreparerPersonGrp

FieldValueIRS element (for citing)
Preparer PersonJOYCE RIPIANZI CPAPreparerPersonNm
PTINP00548581PTIN
Phone9785575300PhoneNum
FieldValueIRS element (for citing)
Tax2013TaxYr
Build TS2015-11-30 17:44:51ZBuildTS

Form 990 IRS990

FieldValueIRS element (for citing)
Principal OfficerROBERT J RIGGSPrincipalOfficerNm

US Address USAddress

FieldValueIRS element (for citing)
Address Line1300 ROSEWOOD DRIVE NO 105AddressLine1
CityDANVERSCity
StateMAState
ZIP Code01923ZIPCode
FieldValueIRS element (for citing)
Gross Receipts$9,521,994GrossReceiptsAmt
Group Return For Affiliates0GroupReturnForAffiliatesInd
Organization501c3Yes (X)Organization501c3Ind
Website AddressWWW.SCLERODERMA.ORGWebsiteAddressTxt
Type Of Organization CorpYes (X)TypeOfOrganizationCorpInd
Formation1993FormationYr
Legal Domicile StateILLegalDomicileStateCd
Activity Or MissionSCLERODERMA FOUNDATION, INC. IS A NONPROFIT ORGANIZATION DEDICATED TO THE CONCERNS OF PEOPLE WHOSE LIVES HAVE BEEN IMPACTED BY THE AUTOIMMUNE DISEASE SCLERODERMA (A.K.A. SYSTEMIC SCLEROSIS), AND RELATED CONDITIONS. ITS THREE FOLD MISSION OF SUPPORT, EDUCATION AND RESEARCH GUIDES THE ORGANIZATION'S WORK IN PROVIDING EDUCATION PROGRAMS FOR PATIENTS AND THEIR FAMILIES, PEER-TO-PEER SUPPORT THROUGH ITS NATIONWIDE NETWORK OF CHAPTERS AND SUPPORT GROUPS, AND ADVOCACY EFFORTS TO INCREASE AWARENESS OF THE DISEASE AMONG THE GENERAL PUBLIC AND MEDICAL COMMUNITY. THE ORGANIZATION ALSO HAS A RESEARCH PROGRAM THAT FUNDS CLINICAL AND BENCH RESEARCH TO FIND TREATMENT MODALITIES, THE CAUSE, AND HOPEFULLY THE CURE FOR SCLERODERMA AND RELATED CONDITIONS.ActivityOrMissionDesc
Voting Members Governing Body10VotingMembersGoverningBodyCnt
Voting Members Independent10VotingMembersIndependentCnt
Total Employee25TotalEmployeeCnt
Total Volunteers675TotalVolunteersCnt
Total Gross UBI$0TotalGrossUBIAmt
Net Unrelated Bus Txbl Incm$0NetUnrelatedBusTxblIncmAmt
PY Contributions Grants$4,202,914PYContributionsGrantsAmt
CY Contributions Grants$3,977,474CYContributionsGrantsAmt
PY Program Service Revenue$73,399PYProgramServiceRevenueAmt
CY Program Service Revenue$102,752CYProgramServiceRevenueAmt
PY Investment Income$274,032PYInvestmentIncomeAmt
CY Investment Income$766,323CYInvestmentIncomeAmt
PY Other Revenue$0PYOtherRevenueAmt
CY Other Revenue$2,161CYOtherRevenueAmt
PY Total Revenue$4,550,345PYTotalRevenueAmt
CY Total Revenue$4,848,710CYTotalRevenueAmt
PY Grants And Similar Paid$1,538,182PYGrantsAndSimilarPaidAmt
CY Grants And Similar Paid$1,005,977CYGrantsAndSimilarPaidAmt
PY Benefits Paid To Members$0PYBenefitsPaidToMembersAmt
CY Benefits Paid To Members$0CYBenefitsPaidToMembersAmt
PY Salaries Comp Emp Bnft Paid$963,181PYSalariesCompEmpBnftPaidAmt
CY Salaries Comp Emp Bnft Paid$1,017,488CYSalariesCompEmpBnftPaidAmt
PY Total Prof Fndrsng Expns$0PYTotalProfFndrsngExpnsAmt
CY Total Prof Fndrsng Expns$0CYTotalProfFndrsngExpnsAmt
CY Total Fundraising Expense$196,330CYTotalFundraisingExpenseAmt
PY Other Expenses$1,568,360PYOtherExpensesAmt
CY Other Expenses$2,307,600CYOtherExpensesAmt
PY Total Expenses$4,069,723PYTotalExpensesAmt
CY Total Expenses$4,331,065CYTotalExpensesAmt
PY Revenues Less Expenses$480,622PYRevenuesLessExpensesAmt
CY Revenues Less Expenses$517,645CYRevenuesLessExpensesAmt
Total Assets BOY$11,639,084TotalAssetsBOYAmt
Total Assets EOY$12,465,186TotalAssetsEOYAmt
Total Liabilities BOY$1,621,659TotalLiabilitiesBOYAmt
Total Liabilities EOY$1,492,517TotalLiabilitiesEOYAmt
Net Assets Or Fund Balances BOY$10,017,425NetAssetsOrFundBalancesBOYAmt
Net Assets Or Fund Balances EOY$10,972,669NetAssetsOrFundBalancesEOYAmt
Info In Schedule O Part IIIYes (X)InfoInScheduleOPartIIIInd
MissionSCLERODERMA FOUNDATION, INC. IS A NONPROFIT ORGANIZATION DEDICATED TO THE CONCERNS OF PEOPLE WHOSE LIVES HAVE BEEN IMPACTED BY THE AUTOIMMUNE DISEASE SCLERODERMA (A.K.A. SYSTEMIC SCLEROSIS), AND RELATED CONDITIONS. ITS THREE FOLD MISSION OF SUPPORT, EDUCATION AND RESEARCH GUIDES THE ORGANIZATION'S WORK IN PROVIDING EDUCATION PROGRAMS FOR PATIENTS AND THEIR FAMILIES, PEER-TO-PEER SUPPORT THROUGH ITS NATIONWIDE NETWORK OF CHAPTERS AND SUPPORT GROUPS, AND ADVOCACY EFFORTS TO INCREASE AWARENESS OF THE DISEASE AMONG THE GENERAL PUBLIC AND MEDICAL COMMUNITY. THE ORGANIZATION ALSO HAS A RESEARCH PROGRAM THAT FUNDS CLINICAL AND BENCH RESEARCH TO FIND TREATMENT MODALITIES, THE CAUSE, AND HOPEFULLY THE CURE FOR SCLERODERMA AND RELATED CONDITIONS.MissionDesc
Significant New Program Srvc0SignificantNewProgramSrvcInd
Significant Change0SignificantChangeInd
Expense$1,041,108ExpenseAmt
Grant$1,005,977GrantAmt
DescRESEARCH:A. THE SCLERODERMA FOUNDATION PROVIDES FUNDS FOR CLINICAL AND BENCH RESEARCH FOCUSED ON SCLERODERMA/SYSTEMIC SCLEROSIS AND COMORBID CONDITIONS THROUGH A PEER REVIEW RESEARCH PROGRAM MODELED ON PROTOCOLS SET FORTH BY THE NATIONAL INSTITUTES OF HEALTH. B. THE SCLERODERMA FOUNDATION ALSO PROVIDES MENTORING OPPORTUNITIES FOR YOUNG INVESTIGATORS ENTERING THE FIELD OF SCLERODERMA RESEARCHDesc

Prog Srvc Accom Acty2 ProgSrvcAccomActy2Grp

FieldValueIRS element (for citing)
Expense$2,557,901ExpenseAmt
Revenue$102,752RevenueAmt
DescEDUCATION AND SUPPORT:1. SUPPORT: A. THE SCLERODERMA PROVIDES INFORMATIONAL AND EMOTIONAL SUPPORT TO THOSE WHOSE LIVES HAVE BEEN IMPACTED BY THIS DISEASE THROUGH A VARIETY OF SERVICES INCLUDING:I. A NATION-WIDE NETWORK OF ACTIVE SUPPORT GROUPSII. A TOLL-FREE HELPLINE WHERE PATIENTS CAN CONNECT WITH TRAINED STAFF TO ASSIST WITH QUESTIONSIII. REFERRALS TO PHYSICIANS AND OTHER MEDICAL PROFESSIONALS WHO ARE EXPERT IN SCLERODERMA-RELATED ISSUESIV. ONLINE FORUMS FOR PEER-TO-PEER SUPPORT AND INFORMATION EXCHANGESV. WEEKLY AND QUARTERLY PUBLICATIONS FOCUSED ON ISSUES OF CONCERN AND IMPORTANCE TO THE SCLERODERMA COMMUNITY2. EDUCATION: A. THE SCLERODERMA FOUNDATION PROVIDES EDUCATIONAL OPPORTUNITIES TO PATIENTS AND FAMILY MEMBERS FOCUSED ON DISEASE MANAGEMENT, AND BEST PRACTICES TO ENSURE THE HIGHEST POSSIBLE QUALITY OF LIFE WHILE COPING WITH A CHRONIC AND DEBILITATING DISEASE. EDUCATIONAL PROGRAMS INCLUDE:I. NATIONAL AND REGIONAL CONFERENCES AND SYMPOSIAII. CONTINUOUSLY UPDATED LITERATURE ON A RANGE OF TOPICS AND ISSUES RELATED TO SCLERODERMA DISEASE MANAGEMENT VIA PRINT AND WEBIII. ONLINE FORUMS AND WEBINARSB. THE SCLERODERMA FOUNDATION ENGAGES IN OUTREACH AND EDUCATION INITIATIVES TO THE MEDICAL COMMUNITY TO ENHANCE AWARENESS AND UNDERSTANDING AMONG MEDCIAL AND ALLIED HEALTHCARE PROFESSIONALS, INCLUDING:I. CONTINUING MEDICAL EDUCATION PROGRAMSII. CONTINUING NURSE EDUCATION PROGRAMSIII. PARTICIPATION AT KEY MEDICAL/SCIENTIFIC CONFERENCEIV. SUPPORTING NATIONAL AND INTERNATIONAL MEDICAL/SCIENTIFIC MEETINGS FOCUSED ON RESEARCH AND TREATMENT OF SCLERODERMA AND COMORBID CONDITIONSDesc
FieldValueIRS element (for citing)
Total Program Service Expenses$3,599,009TotalProgramServiceExpensesAmt
Described In Section501c3Yes (1)DescribedInSection501c3Ind
Schedule B RequiredYes (1)ScheduleBRequiredInd
Political Campaign Acty0PoliticalCampaignActyInd
Lobbying Activities0LobbyingActivitiesInd
Subject To Proxy Tax0SubjectToProxyTaxInd
Donor Advised Fund0DonorAdvisedFundInd
Conservation Easements0ConservationEasementsInd
Collections Of Art0CollectionsOfArtInd
Credit Counseling0CreditCounselingInd
Temp Or Permanent EndowmentsYes (1)TempOrPermanentEndowmentsInd
Report Land Building EquipmentYes (1)ReportLandBuildingEquipmentInd
Report Investments Other Sec0ReportInvestmentsOtherSecInd
Report Program Related Invst0ReportProgramRelatedInvstInd
Report Other Assets0ReportOtherAssetsInd
Report Other LiabilitiesYes (1)ReportOtherLiabilitiesInd
Include FIN48 FootnoteYes (1)IncludeFIN48FootnoteInd
Independent Audit Fincl StmtYes (1)IndependentAuditFinclStmtInd
Consolidated Audit Fincl Stmt0ConsolidatedAuditFinclStmtInd
School Operating0SchoolOperatingInd
Foreign Office0ForeignOfficeInd
Foreign Activities0ForeignActivitiesInd
More Than5000 K To Org0MoreThan5000KToOrgInd
More Than5000 K To Individuals0MoreThan5000KToIndividualsInd
Professional Fundraising0ProfessionalFundraisingInd
Fundraising ActivitiesYes (1)FundraisingActivitiesInd
Gaming Activities0GamingActivitiesInd
Operate Hospital0OperateHospitalInd
Grants To OrganizationsYes (1)GrantsToOrganizationsInd
Grants To IndividualsYes (1)GrantsToIndividualsInd
Schedule J Required0ScheduleJRequiredInd
Tax Exempt Bonds0TaxExemptBondsInd
Engaged In Excess Benefit Trans0EngagedInExcessBenefitTransInd
PY Excess Benefit Trans0PYExcessBenefitTransInd
Loan Outstanding0LoanOutstandingInd
Grant To Related Person0GrantToRelatedPersonInd
Business Rln With Org Mem0BusinessRlnWithOrgMemInd
Business Rln With Fam Mem0BusinessRlnWithFamMemInd
Business Rln With Officer Ent0BusinessRlnWithOfficerEntInd
Deductible Non Cash Contri0DeductibleNonCashContriInd
Deductible Art Contribution0DeductibleArtContributionInd
Terminate Operations0TerminateOperationsInd
Partial Liquidation0PartialLiquidationInd
Disregarded Entity0DisregardedEntityInd
Related Entity0RelatedEntityInd
Related Organization Ctrl Ent0RelatedOrganizationCtrlEntInd
Trnsfr Exmpt Non Chrtbl Rltd Org0TrnsfrExmptNonChrtblRltdOrgInd
Activities Conducted Prtshp0ActivitiesConductedPrtshpInd
Schedule O RequiredYes (1)ScheduleORequiredInd
IRP Document12IRPDocumentCnt
IRP Document W2 G0IRPDocumentW2GCnt
Backup Wthld ComplianceYes (1)BackupWthldComplianceInd
Employee25EmployeeCnt
Employment Tax Returns FiledYes (1)EmploymentTaxReturnsFiledInd
Unrelated Bus Incm Over Limit0UnrelatedBusIncmOverLimitInd
Foreign Financial Account0ForeignFinancialAccountInd
Prohibited Tax Shelter Trans0ProhibitedTaxShelterTransInd
Taxable Party Notification0TaxablePartyNotificationInd
Nondeductible Contributions0NondeductibleContributionsInd
Quid Pro Quo Contributions0QuidProQuoContributionsInd
Form8282 Property Disposed Of0Form8282PropertyDisposedOfInd
Rcv Fnds To Pay Prsnl Bnft Cntrct0RcvFndsToPayPrsnlBnftCntrctInd
Pay Premiums Prsnl Bnft Cntrct0PayPremiumsPrsnlBnftCntrctInd
Indoor Tanning Services0IndoorTanningServicesInd
Info In Schedule O Part VIYes (X)InfoInScheduleOPartVIInd
Governing Body Voting Members10GoverningBodyVotingMembersCnt
Independent Voting Member10IndependentVotingMemberCnt
Family Or Business Rln0FamilyOrBusinessRlnInd
Delegation Of Mgmt Duties0DelegationOfMgmtDutiesInd
Change To Org Documents0ChangeToOrgDocumentsInd
Material Diversion Or Misuse0MaterialDiversionOrMisuseInd
Members Or Stockholders0MembersOrStockholdersInd
Election Of Board Members0ElectionOfBoardMembersInd
Decisions Subject To Approva0DecisionsSubjectToApprovaInd
Minutes Of Governing BodyYes (1)MinutesOfGoverningBodyInd
Minutes Of CommitteesYes (1)MinutesOfCommitteesInd
Officer Mailing Address0OfficerMailingAddressInd
Local ChaptersYes (1)LocalChaptersInd
Policies Reference ChaptersYes (1)PoliciesReferenceChaptersInd
Form990 Provided To Gvrn BodyYes (1)Form990ProvidedToGvrnBodyInd
Conflict Of Interest PolicyYes (1)ConflictOfInterestPolicyInd
Annual Disclosure Covered PrsnYes (1)AnnualDisclosureCoveredPrsnInd
Regular Monitoring EnfrcYes (1)RegularMonitoringEnfrcInd
Whistleblower PolicyYes (1)WhistleblowerPolicyInd
Document Retention PolicyYes (1)DocumentRetentionPolicyInd
Compensation Process CEOYes (1)CompensationProcessCEOInd
Compensation Process OtherYes (1)CompensationProcessOtherInd
Investment In Joint Venture0InvestmentInJointVentureInd
States Where Copy Of Return Is FldALStatesWhereCopyOfReturnIsFldCd
States Where Copy Of Return Is FldAKStatesWhereCopyOfReturnIsFldCd
States Where Copy Of Return Is FldAZStatesWhereCopyOfReturnIsFldCd
States Where Copy Of Return Is FldARStatesWhereCopyOfReturnIsFldCd
States Where Copy Of Return Is FldCAStatesWhereCopyOfReturnIsFldCd
States Where Copy Of Return Is FldCOStatesWhereCopyOfReturnIsFldCd
States Where Copy Of Return Is FldCTStatesWhereCopyOfReturnIsFldCd
States Where Copy Of Return Is FldFLStatesWhereCopyOfReturnIsFldCd
States Where Copy Of Return Is FldGAStatesWhereCopyOfReturnIsFldCd
States Where Copy Of Return Is FldHIStatesWhereCopyOfReturnIsFldCd
States Where Copy Of Return Is FldILStatesWhereCopyOfReturnIsFldCd
States Where Copy Of Return Is FldKSStatesWhereCopyOfReturnIsFldCd
States Where Copy Of Return Is FldKYStatesWhereCopyOfReturnIsFldCd
States Where Copy Of Return Is FldMEStatesWhereCopyOfReturnIsFldCd
States Where Copy Of Return Is FldMDStatesWhereCopyOfReturnIsFldCd
States Where Copy Of Return Is FldMAStatesWhereCopyOfReturnIsFldCd
States Where Copy Of Return Is FldMIStatesWhereCopyOfReturnIsFldCd
States Where Copy Of Return Is FldMNStatesWhereCopyOfReturnIsFldCd
States Where Copy Of Return Is FldMSStatesWhereCopyOfReturnIsFldCd
States Where Copy Of Return Is FldMOStatesWhereCopyOfReturnIsFldCd
States Where Copy Of Return Is FldNHStatesWhereCopyOfReturnIsFldCd
States Where Copy Of Return Is FldNJStatesWhereCopyOfReturnIsFldCd
States Where Copy Of Return Is FldNMStatesWhereCopyOfReturnIsFldCd
States Where Copy Of Return Is FldNYStatesWhereCopyOfReturnIsFldCd
States Where Copy Of Return Is FldNCStatesWhereCopyOfReturnIsFldCd
States Where Copy Of Return Is FldNDStatesWhereCopyOfReturnIsFldCd
States Where Copy Of Return Is FldOHStatesWhereCopyOfReturnIsFldCd
States Where Copy Of Return Is FldOKStatesWhereCopyOfReturnIsFldCd
States Where Copy Of Return Is FldORStatesWhereCopyOfReturnIsFldCd
States Where Copy Of Return Is FldPAStatesWhereCopyOfReturnIsFldCd
States Where Copy Of Return Is FldRIStatesWhereCopyOfReturnIsFldCd
States Where Copy Of Return Is FldSCStatesWhereCopyOfReturnIsFldCd
States Where Copy Of Return Is FldTNStatesWhereCopyOfReturnIsFldCd
States Where Copy Of Return Is FldUTStatesWhereCopyOfReturnIsFldCd
States Where Copy Of Return Is FldVAStatesWhereCopyOfReturnIsFldCd
States Where Copy Of Return Is FldWAStatesWhereCopyOfReturnIsFldCd
States Where Copy Of Return Is FldWVStatesWhereCopyOfReturnIsFldCd
States Where Copy Of Return Is FldWIStatesWhereCopyOfReturnIsFldCd
Own WebsiteYes (X)OwnWebsiteInd
Upon RequestYes (X)UponRequestInd

Books In Care Of Detail BooksInCareOfDetail

Business Name BusinessName

FieldValueIRS element (for citing)
Business Name Line1THE ORGANIZATIONBusinessNameLine1
FieldValueIRS element (for citing)
Phone8007224673PhoneNum

US Address USAddress

FieldValueIRS element (for citing)
Address Line1300 ROSEWOOD DRIVE NO 105AddressLine1
CityDANVERSCity
StateMAState
ZIP Code01923ZIPCode

Form990 Part VII Section A Form990PartVIISectionAGrp (11 entries)

TitleTitleTxtAverage Hours Per WeekAverageHoursPerWeekRtIndividual Trustee Or DirectorIndividualTrusteeOrDirectorIndOfficerOfficerIndReportable Comp From OrgReportableCompFromOrgAmtReportable Comp From Rltd OrgReportableCompFromRltdOrgAmtOther CompensationOtherCompensationAmt
JOSEPH P CAMERINO PHD
CHAIR2.00Yes (X)Yes (X)$0$0$0
CAROL FEGHALI-BOSTWICK PHD
VICE CHAIR & ACTING SECRET2.00Yes (X)Yes (X)$0$0$0
COS MALLOZZI
DIRECTOR2.00Yes (X)$0$0$0
JAMES EVANS
DIRECTOR2.00Yes (X)$0$0$0
ROBERT KACICK
DIRECTOR2.00Yes (X)$0$0$0
LEE ROY JONES
DIRECTOR2.00Yes (X)$0$0$0
GREG MARION
DIRECTOR2.00Yes (X)$0$0$0
MARY BLADES
DIRECTOR2.00Yes (X)$0$0$0
MARIE COYLE
DIRECTOR2.00Yes (X)$0$0$0
BOB SLAPPEY
DIRECTOR2.00Yes (X)$0$0$0
ROBERT J RIGGS
CEO40.00Yes (X)$99,986$0$17,159
FieldValueIRS element (for citing)
Total Reportable Comp From Org$99,986TotalReportableCompFromOrgAmt
Tot Reportable Comp Rltd Org$0TotReportableCompRltdOrgAmt
Total Other Compensation$17,159TotalOtherCompensationAmt
Indiv Rcvd Greater Than100 K0IndivRcvdGreaterThan100KCnt
Former Ofcr Employees Listed0FormerOfcrEmployeesListedInd
Total Comp Greater Than150 K0TotalCompGreaterThan150KInd
Compensation From Other Srcs0CompensationFromOtherSrcsInd
Cntrct Rcvd Greater Than100 K0CntrctRcvdGreaterThan100KCnt
Fundraising$824,445FundraisingAmt
All Other Contributions$3,153,029AllOtherContributionsAmt
Total Contributions$3,977,474TotalContributionsAmt

Program Service Revenue ProgramServiceRevenueGrp

FieldValueIRS element (for citing)
DescREGISTRATION FEESDesc
Business611710BusinessCd
Total Revenue Column$102,752TotalRevenueColumnAmt
Related Or Exempt Func Income$102,752RelatedOrExemptFuncIncomeAmt
FieldValueIRS element (for citing)
Total Program Service Revenue$102,752TotalProgramServiceRevenueAmt

Investment Income InvestmentIncomeGrp

FieldValueIRS element (for citing)
Total Revenue Column$186,027TotalRevenueColumnAmt
Exclusion$186,027ExclusionAmt

Gross Amount Sales Assets GrossAmountSalesAssetsGrp

FieldValueIRS element (for citing)
Securities$5,004,587SecuritiesAmt

Less Cost Oth Basis Sales Expnss LessCostOthBasisSalesExpnssGrp

FieldValueIRS element (for citing)
Securities$4,424,291SecuritiesAmt

Gain Or Loss GainOrLossGrp

FieldValueIRS element (for citing)
Securities$580,296SecuritiesAmt

Net Gain Or Loss Investments NetGainOrLossInvestmentsGrp

FieldValueIRS element (for citing)
Total Revenue Column$580,296TotalRevenueColumnAmt
Exclusion$580,296ExclusionAmt
FieldValueIRS element (for citing)
Fundraising Gross Income$248,993FundraisingGrossIncomeAmt
Contri Rpt Fundraising Event$824,445ContriRptFundraisingEventAmt
Fundraising Direct Expenses$248,993FundraisingDirectExpensesAmt

Net Incm From Fundraising Evt NetIncmFromFundraisingEvtGrp

FieldValueIRS element (for citing)
Total Revenue Column$0TotalRevenueColumnAmt

Other Revenue Misc OtherRevenueMiscGrp

FieldValueIRS element (for citing)
DescRETURNED GRANT AWARDSDesc
Business900099BusinessCd
Total Revenue Column$2,161TotalRevenueColumnAmt
Exclusion$2,161ExclusionAmt
FieldValueIRS element (for citing)
Other Revenue Total$2,161OtherRevenueTotalAmt

Total Revenue TotalRevenueGrp

FieldValueIRS element (for citing)
Total Revenue Column$4,848,710TotalRevenueColumnAmt
Related Or Exempt Func Income$102,752RelatedOrExemptFuncIncomeAmt
Unrelated Business Revenue$0UnrelatedBusinessRevenueAmt
Exclusion$768,484ExclusionAmt

Grants To Domestic Orgs GrantsToDomesticOrgsGrp

FieldValueIRS element (for citing)
Total$955,798TotalAmt
Program Services$955,798ProgramServicesAmt

Grants To Domestic Individuals GrantsToDomesticIndividualsGrp

FieldValueIRS element (for citing)
Total$50,179TotalAmt
Program Services$50,179ProgramServicesAmt

Comp Current Ofcr Directors CompCurrentOfcrDirectorsGrp

FieldValueIRS element (for citing)
Total$115,747TotalAmt
Program Services$67,133ProgramServicesAmt
Management And General$37,039ManagementAndGeneralAmt
Fundraising$11,575FundraisingAmt

Other Salaries And Wages OtherSalariesAndWagesGrp

FieldValueIRS element (for citing)
Total$739,127TotalAmt
Program Services$513,058ProgramServicesAmt
Management And General$173,492ManagementAndGeneralAmt
Fundraising$52,577FundraisingAmt

Pension Plan Contributions PensionPlanContributionsGrp

FieldValueIRS element (for citing)
Total$9,522TotalAmt
Program Services$5,733ProgramServicesAmt
Management And General$2,900ManagementAndGeneralAmt
Fundraising$889FundraisingAmt

Other Employee Benefits OtherEmployeeBenefitsGrp

FieldValueIRS element (for citing)
Total$78,827TotalAmt
Program Services$47,066ProgramServicesAmt
Management And General$24,383ManagementAndGeneralAmt
Fundraising$7,378FundraisingAmt

Payroll Taxes PayrollTaxesGrp

FieldValueIRS element (for citing)
Total$74,265TotalAmt
Program Services$51,157ProgramServicesAmt
Management And General$17,713ManagementAndGeneralAmt
Fundraising$5,395FundraisingAmt

Fees For Services Legal FeesForServicesLegalGrp

FieldValueIRS element (for citing)
Total$1,825TotalAmt
Program Services$1,533ProgramServicesAmt
Management And General$227ManagementAndGeneralAmt
Fundraising$65FundraisingAmt

Fees For Services Accounting FeesForServicesAccountingGrp

FieldValueIRS element (for citing)
Total$29,000TotalAmt
Program Services$24,364ProgramServicesAmt
Management And General$3,600ManagementAndGeneralAmt
Fundraising$1,036FundraisingAmt

Fees For Srvc Invst Mgmnt Fees FeesForSrvcInvstMgmntFeesGrp

FieldValueIRS element (for citing)
Total$47,661TotalAmt
Management And General$47,661ManagementAndGeneralAmt

Fees For Services Other FeesForServicesOtherGrp

FieldValueIRS element (for citing)
Total$213,851TotalAmt
Program Services$179,664ProgramServicesAmt
Management And General$26,545ManagementAndGeneralAmt
Fundraising$7,642FundraisingAmt

Advertising AdvertisingGrp

FieldValueIRS element (for citing)
Total$19,693TotalAmt
Program Services$19,693ProgramServicesAmt

Office Expenses OfficeExpensesGrp

FieldValueIRS element (for citing)
Total$276,229TotalAmt
Program Services$179,379ProgramServicesAmt
Management And General$28,523ManagementAndGeneralAmt
Fundraising$68,327FundraisingAmt

Information Technology InformationTechnologyGrp

FieldValueIRS element (for citing)
Total$124,323TotalAmt
Program Services$73,089ProgramServicesAmt
Management And General$39,273ManagementAndGeneralAmt
Fundraising$11,961FundraisingAmt

Occupancy OccupancyGrp

FieldValueIRS element (for citing)
Total$126,977TotalAmt
Program Services$85,308ProgramServicesAmt
Management And General$31,943ManagementAndGeneralAmt
Fundraising$9,726FundraisingAmt

Travel TravelGrp

FieldValueIRS element (for citing)
Total$128,937TotalAmt
Program Services$98,444ProgramServicesAmt
Management And General$21,725ManagementAndGeneralAmt
Fundraising$8,768FundraisingAmt

Conferences Meetings ConferencesMeetingsGrp

FieldValueIRS element (for citing)
Total$577,689TotalAmt
Program Services$576,678ProgramServicesAmt
Management And General$1,011ManagementAndGeneralAmt

Payments To Affiliates PaymentsToAffiliatesGrp

FieldValueIRS element (for citing)
Total$429,058TotalAmt
Program Services$429,058ProgramServicesAmt

Depreciation Depletion DepreciationDepletionGrp

FieldValueIRS element (for citing)
Total$28,481TotalAmt
Program Services$16,859ProgramServicesAmt
Management And General$8,909ManagementAndGeneralAmt
Fundraising$2,713FundraisingAmt

Insurance InsuranceGrp

FieldValueIRS element (for citing)
Total$76,806TotalAmt
Program Services$45,155ProgramServicesAmt
Management And General$24,263ManagementAndGeneralAmt
Fundraising$7,388FundraisingAmt

Other Expenses OtherExpensesGrp (3 entries)

DescDescTotalTotalAmtProgram ServicesProgramServicesAmtManagement And GeneralManagementAndGeneralAmt
ADVOCACY$112,553$112,553
OUTREACH$39,079$39,079
BANK CHARGES AND WEB DO$26,455$1,383$25,072

All Other Expenses AllOtherExpensesGrp

FieldValueIRS element (for citing)
Total$48,983TotalAmt
Program Services$26,646ProgramServicesAmt
Management And General$21,447ManagementAndGeneralAmt
Fundraising$890FundraisingAmt

Total Functional Expenses TotalFunctionalExpensesGrp

FieldValueIRS element (for citing)
Total$4,331,065TotalAmt
Program Services$3,599,009ProgramServicesAmt
Management And General$535,726ManagementAndGeneralAmt
Fundraising$196,330FundraisingAmt

Cash Non Interest Bearing CashNonInterestBearingGrp

FieldValueIRS element (for citing)
BOY$1,154,109BOYAmt
EOY$1,522,935EOYAmt

Savings And Temp Cash Invst SavingsAndTempCashInvstGrp

FieldValueIRS element (for citing)
BOY$961,313BOYAmt
EOY$373,993EOYAmt

Pledges And Grants Receivable PledgesAndGrantsReceivableGrp

FieldValueIRS element (for citing)
BOY$70,000BOYAmt
EOY$478,970EOYAmt

Accounts Receivable AccountsReceivableGrp

FieldValueIRS element (for citing)
BOY$4,725BOYAmt
EOY$31,856EOYAmt

Prepaid Expenses Defrd Charges PrepaidExpensesDefrdChargesGrp

FieldValueIRS element (for citing)
BOY$118,529BOYAmt
EOY$215,659EOYAmt
FieldValueIRS element (for citing)
Land Bldg Equip Cost Or Other Bss$144,838LandBldgEquipCostOrOtherBssAmt
Land Bldg Equip Accum Deprec$132,232LandBldgEquipAccumDeprecAmt

Land Bldg Equip Basis Net LandBldgEquipBasisNetGrp

FieldValueIRS element (for citing)
BOY$18,835BOYAmt
EOY$12,606EOYAmt

Investments Pub Traded Sec InvestmentsPubTradedSecGrp

FieldValueIRS element (for citing)
BOY$8,870,272BOYAmt
EOY$9,601,916EOYAmt

Other Assets Total OtherAssetsTotalGrp

FieldValueIRS element (for citing)
BOY$441,301BOYAmt
EOY$227,251EOYAmt

Total Assets TotalAssetsGrp

FieldValueIRS element (for citing)
BOY$11,639,084BOYAmt
EOY$12,465,186EOYAmt

Accounts Payable Accr Expnss AccountsPayableAccrExpnssGrp

FieldValueIRS element (for citing)
BOY$149,180BOYAmt
EOY$126,911EOYAmt

Grants Payable GrantsPayableGrp

FieldValueIRS element (for citing)
BOY$1,297,500BOYAmt
EOY$1,177,500EOYAmt

Deferred Revenue DeferredRevenueGrp

FieldValueIRS element (for citing)
BOY$45,685BOYAmt
EOY$67,980EOYAmt

Other Liabilities OtherLiabilitiesGrp

FieldValueIRS element (for citing)
BOY$129,294BOYAmt
EOY$120,126EOYAmt

Total Liabilities TotalLiabilitiesGrp

FieldValueIRS element (for citing)
BOY$1,621,659BOYAmt
EOY$1,492,517EOYAmt
FieldValueIRS element (for citing)
Organization Follows SFAS117Yes (X)OrganizationFollowsSFAS117Ind

Unrestricted Net Assets UnrestrictedNetAssetsGrp

FieldValueIRS element (for citing)
BOY$8,099,431BOYAmt
EOY$9,119,805EOYAmt

Temporarily Rstr Net Assets TemporarilyRstrNetAssetsGrp

FieldValueIRS element (for citing)
BOY$375,619BOYAmt
EOY$310,489EOYAmt

Permanently Rstr Net Assets PermanentlyRstrNetAssetsGrp

FieldValueIRS element (for citing)
BOY$1,542,375BOYAmt
EOY$1,542,375EOYAmt

Total Net Assets Fund Balance TotalNetAssetsFundBalanceGrp

FieldValueIRS element (for citing)
BOY$10,017,425BOYAmt
EOY$10,972,669EOYAmt

Tot Liab Net Assets Fund Balance TotLiabNetAssetsFundBalanceGrp

FieldValueIRS element (for citing)
BOY$11,639,084BOYAmt
EOY$12,465,186EOYAmt
FieldValueIRS element (for citing)
Reconcilation Revenue Expnss$517,645ReconcilationRevenueExpnssAmt
Net Unrlzd Gains Losses Invst$437,599NetUnrlzdGainsLossesInvstAmt
Other Changes In Net Assets$0OtherChangesInNetAssetsAmt
Info In Schedule O Part XIIYes (X)InfoInScheduleOPartXIIInd
Method Of Accounting AccrualYes (X)MethodOfAccountingAccrualInd
Accountant Compile Or Review0AccountantCompileOrReviewInd
FS AuditedYes (1)FSAuditedInd

FS Audited Basis FSAuditedBasisGrp

FieldValueIRS element (for citing)
Separate Basis Fincl StmtYes (X)SeparateBasisFinclStmtInd
FieldValueIRS element (for citing)
Audit CommitteeYes (1)AuditCommitteeInd
Federal Grant Audit Required0FederalGrantAuditRequiredInd

Schedule A IRS990ScheduleA

FieldValueIRS element (for citing)
Public Organization170Yes (X)PublicOrganization170Ind

Gifts Grants Contri Rcvd170 GiftsGrantsContriRcvd170Grp

FieldValueIRS element (for citing)
Current Tax Year Minus4 Years$4,284,391CurrentTaxYearMinus4YearsAmt
Current Tax Year Minus3 Years$5,488,506CurrentTaxYearMinus3YearsAmt
Current Tax Year Minus2 Years$4,191,501CurrentTaxYearMinus2YearsAmt
Current Tax Year Minus1 Year$4,202,914CurrentTaxYearMinus1YearAmt
Current Tax Year$4,005,291CurrentTaxYearAmt
Total$22,172,603TotalAmt

Total Calendar Year170 TotalCalendarYear170Grp

FieldValueIRS element (for citing)
Current Tax Year Minus4 Years$4,284,391CurrentTaxYearMinus4YearsAmt
Current Tax Year Minus3 Years$5,488,506CurrentTaxYearMinus3YearsAmt
Current Tax Year Minus2 Years$4,191,501CurrentTaxYearMinus2YearsAmt
Current Tax Year Minus1 Year$4,202,914CurrentTaxYearMinus1YearAmt
Current Tax Year$4,005,291CurrentTaxYearAmt
Total$22,172,603TotalAmt
FieldValueIRS element (for citing)
Substantial Contributors Tot$3,178,032SubstantialContributorsTotAmt
Public Support Total170$18,994,571PublicSupportTotal170Amt

Gross Investment Income170 GrossInvestmentIncome170Grp

FieldValueIRS element (for citing)
Current Tax Year Minus4 Years$204,709CurrentTaxYearMinus4YearsAmt
Current Tax Year Minus3 Years$109,160CurrentTaxYearMinus3YearsAmt
Current Tax Year Minus2 Years$166,728CurrentTaxYearMinus2YearsAmt
Current Tax Year Minus1 Year$168,470CurrentTaxYearMinus1YearAmt
Current Tax Year$186,027CurrentTaxYearAmt
Total$835,094TotalAmt

Other Income170 OtherIncome170Grp

FieldValueIRS element (for citing)
Current Tax Year Minus3 Years$524CurrentTaxYearMinus3YearsAmt
Current Tax Year Minus2 Years$115CurrentTaxYearMinus2YearsAmt
Current Tax Year$2,161CurrentTaxYearAmt
Total$2,800TotalAmt
FieldValueIRS element (for citing)
Total Support$23,010,497TotalSupportAmt
Gross Receipts Rltd Activities$277,396GrossReceiptsRltdActivitiesAmt
Public Support CY1700.82550PublicSupportCY170Pct
Public Support PY1700.81810PublicSupportPY170Pct
Thirty Thr Pct Suprt Tests CY170Yes (X)ThirtyThrPctSuprtTestsCY170Ind

Schedule B IRS990ScheduleB

Contributor Information ContributorInformationGrp

FieldValueIRS element (for citing)
ContributorRESTRICTEDContributorNum

Contributor Business Name ContributorBusinessName

FieldValueIRS element (for citing)
Business Name Line1RESTRICTEDBusinessNameLine1

Contributor US Address ContributorUSAddress

FieldValueIRS element (for citing)
Address Line1RESTRICTEDAddressLine1
Address Line2RESTRICTEDAddressLine2
CityRESTRICTEDCity
StateRESTRICTEDState
ZIP CodeRESTRICTEDZIPCode
FieldValueIRS element (for citing)
Total ContributionsRESTRICTEDTotalContributionsAmt

Schedule D IRS990ScheduleD

CY Endwmt Fund CYEndwmtFundGrp

FieldValueIRS element (for citing)
Beginning Year Balance$1,885,727BeginningYearBalanceAmt
Investment Earnings Or Losses$165,578InvestmentEarningsOrLossesAmt
End Year Balance$2,051,305EndYearBalanceAmt

CY Minus1 Yr Endwmt Fund CYMinus1YrEndwmtFundGrp

FieldValueIRS element (for citing)
Beginning Year Balance$1,819,237BeginningYearBalanceAmt
Investment Earnings Or Losses$66,490InvestmentEarningsOrLossesAmt
End Year Balance$1,885,727EndYearBalanceAmt

CY Minus2 Yr Endwmt Fund CYMinus2YrEndwmtFundGrp

FieldValueIRS element (for citing)
Beginning Year Balance$1,814,793BeginningYearBalanceAmt
Investment Earnings Or Losses$4,444InvestmentEarningsOrLossesAmt
End Year Balance$1,819,237EndYearBalanceAmt

CY Minus3 Yr Endwmt Fund CYMinus3YrEndwmtFundGrp

FieldValueIRS element (for citing)
Beginning Year Balance$1,542,375BeginningYearBalanceAmt
Investment Earnings Or Losses$272,418InvestmentEarningsOrLossesAmt
End Year Balance$1,814,793EndYearBalanceAmt

CY Minus4 Yr Endwmt Fund CYMinus4YrEndwmtFundGrp

FieldValueIRS element (for citing)
Beginning Year Balance$1,542,375BeginningYearBalanceAmt
End Year Balance$1,542,375EndYearBalanceAmt
FieldValueIRS element (for citing)
Board Designated Balance EOY0.13760BoardDesignatedBalanceEOYPct
Prmnnt Endowment Balance EOY0.11050PrmnntEndowmentBalanceEOYPct
Term Endowment Balance EOY0.75190TermEndowmentBalanceEOYPct
Endowments Held Unrelated Org0EndowmentsHeldUnrelatedOrgInd
Endowments Held Related Org0EndowmentsHeldRelatedOrgInd

Land LandGrp

FieldValueIRS element (for citing)
Other Cost Or Other Basis$2,000OtherCostOrOtherBasisAmt
Book Value$2,000BookValueAmt

Leasehold Improvements LeaseholdImprovementsGrp

FieldValueIRS element (for citing)
Other Cost Or Other Basis$8,393OtherCostOrOtherBasisAmt
Depreciation$8,393DepreciationAmt
Book Value$0BookValueAmt

Equipment EquipmentGrp

FieldValueIRS element (for citing)
Other Cost Or Other Basis$63,755OtherCostOrOtherBasisAmt
Depreciation$53,149DepreciationAmt
Book Value$10,606BookValueAmt

Other Land Buildings OtherLandBuildingsGrp

FieldValueIRS element (for citing)
Other Cost Or Other Basis$70,690OtherCostOrOtherBasisAmt
Depreciation$70,690DepreciationAmt
Book Value$0BookValueAmt
FieldValueIRS element (for citing)
Total Book Value Land Buildings$12,606TotalBookValueLandBuildingsAmt

Other Liabilities Org OtherLiabilitiesOrgGrp

FieldValueIRS element (for citing)
DescDUE TO AFFILIATESDesc
Amt$120,126Amt
FieldValueIRS element (for citing)
Total Liability$120,126TotalLiabilityAmt
Footnote TextYes (X)FootnoteTextInd
Total Rev Etc Audited Fincl Stmt$5,286,309TotalRevEtcAuditedFinclStmtAmt
Net Unrealized Gains Invst$437,599NetUnrealizedGainsInvstAmt
Revenue Not Reported$437,599RevenueNotReportedAmt
Revenue Subtotal$4,848,710RevenueSubtotalAmt
Revenue Not Reported Fincl Stmt$0RevenueNotReportedFinclStmtAmt
Total Revenue Per Form990$4,848,710TotalRevenuePerForm990Amt
Tot Expns Etc Audited Fincl Stmt$4,331,065TotExpnsEtcAuditedFinclStmtAmt
Expenses Not Reported$0ExpensesNotReportedAmt
Expenses Subtotal$4,331,065ExpensesSubtotalAmt
Expenses Not Rpt Fincl Stmt$0ExpensesNotRptFinclStmtAmt
Total Expenses Per Form990$4,331,065TotalExpensesPerForm990Amt

Supplemental Information Detail SupplementalInformationDetail (2 entries)

Form And Line ReferenceFormAndLineReferenceDescExplanationExplanationTxt
PART V, LINE 4:THE ENDOWMENT CONSISTS OF A PERMANENTLY RESTRICTED FUND ESTABLISHED IN 2007. THE ENDOWMENT IS TO SUPPORT RESEARCH FOR THE DISEASE SCLERODERMA.
PART X, LINE 2:THE ORGANIZATION IS A NONPROFIT CORPORATION AS DESCRIBED IN SECTION 501(C)(3) OF THE INTERNAL REVENUE CODE AND IS EXEMPT FROM FEDERAL AND STATE INCOME TAXES ON TRADE OR BUSINESS PROFITS GENERATED BY ACTIVITIES RELATED TO THE ORGANIZATION'S EXEMPT FUNCTION. THE ORGANIZATION MAY BE SUBJECT TO FEDERAL AND STATE INCOME TAXES FOR PROFITS GENERATED FROM UNRELATED TRADE OR BUSINESS INCOME. THE ORGANIZATION HAS DETERMINED THAT IT DOES NOT HAVE ANY LIABILITIES ASSOCIATED WITH UNRELATED TRADE OR BUSINESS INCOME AND AS A RESULT, NO PROVISION FOR INCOME TAXES IS PRESENTED IN THESE FINANCIAL STATEMENTS. THE ORGANIZATION ASSESSES THE RECORDING OF UNCERTAIN TAX POSITIONS BY EVALUATING THE MINIMUM RECOGNITION THRESHOLD AND MEASUREMENT REQUIREMENTS A TAX POSITION MUST MEET BEFORE BEING RECOGNIZED AS A BENEFIT IN THE FINANCIAL STATEMENTS. THE ORGANIZATION'S POLICY IS TO RECOGNIZE INTEREST AND PENALTIES ACCRUED ON ANY UNCERTAIN TAX POSITIONS AS A COMPONENT OF INCOME TAX EXPENSE, IF ANY, IN ITS STATEMENT OF ACTIVITIES. THE ORGANIZATION HAS NOT RECOGNIZED ANY LIABILITIES FOR UNCERTAIN TAX POSITIONS OR UNRECOGNIZED BENEFITS AS OF JUNE 30, 2014. THE ORGANIZATION DOES NOT EXPECT ANY MATERIAL CHANGES IN UNCERTAIN TAX BENEFITS WITHIN THE NEXT TWELVE MONTHS. AS OF JUNE 30, 2014, THE ORGANIZATION IS NOT CURRENTLY UNDER EXAMINATION BY ANY TAXING AUTHORITIES AND IS GENERALLY OPEN FOR EXAMINATION FOR THREE YEARS FROM THE DATE OF FILING.

Schedule G IRS990ScheduleG

Fundraising Event Information FundraisingEventInformationGrp

FieldValueIRS element (for citing)
Name Of Event1STEPPING OUT WALKNameOfEvent1Amt
Gross Receipts Event1$180,133GrossReceiptsEvent1Amt
Charitable Contri Event1$153,587CharitableContriEvent1Amt
Gross Revenue Event1$26,546GrossRevenueEvent1Amt
Other Direct Expenses Event1$26,546OtherDirectExpensesEvent1Amt
Name Of Event2STEPPING OUT WALKNameOfEvent2Amt
Gross Receipts Event2$79,728GrossReceiptsEvent2Amt
Charitable Contri Event2$71,773CharitableContriEvent2Amt
Gross Revenue Event2$7,955GrossRevenueEvent2Amt
Other Direct Expenses Event2$7,955OtherDirectExpensesEvent2Amt
Other Events Total25OtherEventsTotalCnt
Gross Receipts Other Events$813,577GrossReceiptsOtherEventsAmt
Charitable Contri Other Events$599,085CharitableContriOtherEventsAmt
Gross Revenue Other Events$214,492GrossRevenueOtherEventsAmt
Oth Direct Expnss Other Events$214,492OthDirectExpnssOtherEventsAmt
Gross Receipts Total$1,073,438GrossReceiptsTotalAmt
Charitable Contributions Tot$824,445CharitableContributionsTotAmt
Gross Revenue Total Events$248,993GrossRevenueTotalEventsAmt
Oth Direct Expnss Total Events$248,993OthDirectExpnssTotalEventsAmt
Direct Expense Summary Events$248,993DirectExpenseSummaryEventsAmt
Net Income Summary$0NetIncomeSummaryAmt

Schedule I IRS990ScheduleI

FieldValueIRS element (for citing)
Grant Records Maintained0GrantRecordsMaintainedInd

Recipient Table RecipientTable (6 entries)

Address Line1USAddress/AddressLine1CityUSAddress/CityStateUSAddress/StateZIP CodeUSAddress/ZIPCodeRecipient EINRecipientEINIRC SectionIRCSectionDescCash GrantCashGrantAmtPurpose Of GrantPurposeOfGrantTxtAddress Line2USAddress/AddressLine2
BALTIMORE RESEARCH AND EDUCATION FOUNDATION
10 N GREENE ST ROOM 3D150BALTIMOREMD21201521705976501(C)3$150,000RESEARCH
UNIVERSITY OF TENNESSEE HEALTH SCIENCE CENTER
956 COURT AVENUE SUITE G326MEMPHISTN38103626001636501(C)3$150,000RESEARCH
WASHINGTON UNIVERSITY
660 S EUCLID AVENUE MPRB 6 BOX 8208ST LOUISMO63110430653611501(C)3$150,000RESEARCH8208
BOSTON UNIVERSITY SCHOOL OF MEDICINE
72 EAST CONCORD STBOSTONMA02118043314093501(C)3$300,000RESEARCH
THE UNIVERSITY OF TEXAS HEALTH SCIENCE CENTER
6431 FANNIN STHOUSTONTX77030741761309501(C)3$150,000RESEARCH
PULMONARY HYPERTENSION ASSOCIATION
801 ROEDER RD SUITE 1000SILVER SPRINGMD20910650880021501(C)3$25,066RESEARCH AND ADVOCACY
FieldValueIRS element (for citing)
Total501c3 Org7Total501c3OrgCnt
Total Other Org0TotalOtherOrgCnt

Grants Other Asst To Indiv In US GrantsOtherAsstToIndivInUSGrp

FieldValueIRS element (for citing)
Grant TypeNATIONAL CONFERENCE SCHOLARSHIPGrantTypeTxt
Recipient50RecipientCnt
Cash Grant$50,179CashGrantAmt

Supplemental Information Detail SupplementalInformationDetail

FieldValueIRS element (for citing)
Form And Line ReferencePART I, LINE 2:FormAndLineReferenceDesc
ExplanationAS PART OF ITS MISSION, THE SCLERODERMA FOUNDATION GIVES GRANTS TO RESEARCHERS WORKING TO FIND BETTER TREATMENTS, THE CAUSE AND, HOPEFULLY, THE CURE FOR SCLERODERMA AND RELATED COMORBID CONDITIONS. THE FOUNDATION FUNDS BOTH CLINICAL AND BENCH RESEARCH FROM NEW AND ESTABLISHED INVESTIGATORS. SPECIFIC CRITERIA HAVE BEEN SET AND MUST BE MET IN THE RESEARCH GRANT PROPOSAL IN ORDER FOR IT TO BE CONSIDERED FOR FUNDING. COMPLETE GUIDELINES ARE AVAILABLE ON THE SCLERODERMA FOUNDATION WEB SITE AT WWW.SCLERODERMA.ORG/RESEARCH. TO HELP ENSURE THAT THE FOUNDATION FUNDS THE MOST PROMISING RESEARCH IN A NON-BIASED MANNER, IT HAS A LONG-STANDING PEER REVIEW PROGRAM THAT MIRRORS THE REVIEW AND FUNDING PROTOCOLS ESTABLISHED BY THE NATIONAL INSTITUTES OF HEALTH (NIH). IN THE PEER REVIEW PROCESS, AN INDEPENDENT PANEL OF EXPERTS IS CREATED THAT REVIEWS, EVALUATES AND SCORES EACH OF THE GRANT SUBMISSIONS. EVERY GRANT APPLICATION HAS A PRIMARY AND SECONDARY PEER REVIEWER WHO INDEPENDENTLY EVALUATES AND SCORES THE GRANT APPLICATION. SCORES RANGE FROM 1 (THE HIGHEST LEVEL) TO 3 (THE LOWEST LEVEL), WITH FRACTIONAL RANGES IN BETWEEN (I.E., SCORES OF 2.5, 2.8, ETC.). THESE TWO SCORES ARE THEN DISCUSSED BY THE ENTIRE PEER REVIEW PANEL OF EXPERTS WHO WEIGH IN ON THE QUALITY OF THE SCIENCE PROPOSED IN THE GRANT REQUEST. SUCCESS OF A GRANT APPLICATION IS BASED ON AN AVERAGE SCORE OF THE PEER REVIEW COMMITTEE. THE SCLERODERMA FOUNDATION'S PEER REVIEW GUIDELINES HAVE ESTABLISHED THAT A SCORE OF 2 OR HIGHER IS REQUIRED TO BE CONSIDERED A FUNDABLE GRANT. THOSE THAT SCORE LOWER THAN A 2 ARE REJECTED. THE SCLERODERMA FOUNDATION ALSO PROVIDES A LIMITED NUMBER OF SCHOLARSHIPS FOR PATIENTS AND CAREGIVERS TO ATTEND ITS ANNUAL NATIONAL PATIENT EDUCATION CONFERENCE. DONORS GIVE SPECIFICALLY TO SUPPORT THE CONFERENCE SCHOLARSHIP FUND AND ALL FUNDS GIVEN FOR THIS PURPOSE ARE USED TO FUND FULL OR PARTIAL SCHOLARSHIPS, BASED ON A DEMONSTRATED FINANCIAL NEED. A CONFIDENTIAL APPLICATION PROCESS FOR APPLYING FOR SCHOLARSHIP FUNDS HAS BEEN ESTABLISHED, THAT INCLUDES THE SUBMISSION OF THE APPLICANTS' MOST RECENT INCOME TAX RETURN TO HELP VERIFY FINANCIAL NEED. AN INDEPENDENT COMMITTEE COMPRISED OF SCLERODERMA PATIENTS, BOARD MEMBERS, AND STAFF REVIEW AND SCORE APPLICATIONS. FULL GUIDELINES FOR THE NATIONAL PATIENT EDUCATION CONFERENCE SCHOLARSHIP FUND CAN BE FOUND ON THE FOUNDATIONS WEB SITE AT WWW.SCLERODERMA.ORG/CONFERENCE.ExplanationTxt

Schedule O IRS990ScheduleO

Supplemental Information Detail SupplementalInformationDetail (5 entries)

Form And Line ReferenceFormAndLineReferenceDescExplanationExplanationTxt
FORM 990, PART VI, SECTION B, LINE 11PRIOR TO FILING, THE FORM 990 IS GIVEN TO ALL BOARD MEMBERS FOR REVIEW. ANY QUESTIONS ARE ANSWERED BY EITHER MANGEMENT OF THE ORGANIZATION OR THE INDEPENDENT AUDITOR.
FORM 990, PART VI, SECTION B, LINE 12CA WRITTEN CONFLICT OF INTEREST POLICY IS ESTABLISHED WHICH DESCRIBES AND PROHIBITS TRANSACTIONS AND/OR RELATIONSHIPS WHICH MIGHT BE CONSTRUED AS A CONFLICT OF INTEREST. BOARD MEMBERS MUST SIGN OFF ON THE CONFLICT OF INTEREST POLICY ON AN ANNUAL BASIS.
FORM 990, PART VI, SECTION B, LINE 15THE BOARD OF DIRECTORS OF THE ORGANIZATION VOTES AND APPROVES THE COMPENSATION OF THE CHIEF EXECUTIVE OFFICER (CEO). THE CEO ESTABLISHES THE COMPENSATION FOR ALL OTHER EMPLOYEES OF THE ORGANIZATION. NO BOARD MEMBERS ARE COMPENSATED.
FORM 990, PART VI, SECTION C, LINE 19THE ORGANIZATION MAKES ITS GOVERNING DOCUMENTS, CONFLICT OF INTEREST POLICY AND FINANCIAL STATEMENTS AVAILABLE TO THE PUBLIC UPON REQUEST. THE ORGANIZATION'S FINANCIAL STATEMENTS ARE ALSO AVAILABLE ON THE ORGANIZATION'S WEBSITE.
FORM 990, PART XII, LINE 2C:DURING THE CURRENT YEAR THE ORGANIZATION HAS NOT MADE ANY CHANGES TO THE AUDIT OVERSIGHT OR SELECTION PROCESS.

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