CITIZENS UNITED FOR RESEARCH IN EPILEPSY
Cite this
Plain text CITIZENS UNITED FOR RESEARCH IN EPILEPSY. furp.org, nonprofit organization profile, tax years 2012–2025. https://furp.org/org/citizens-united-for-research-in-epilepsy-364253176. Retrieved 2026-11-01.
APA furp.org. (n.d.). CITIZENS UNITED FOR RESEARCH IN EPILEPSY [Nonprofit organization profile; tax years 2012–2025]. Retrieved November 1, 2026, from https://furp.org/org/citizens-united-for-research-in-epilepsy-364253176
MLA “CITIZENS UNITED FOR RESEARCH IN EPILEPSY.” furp.org, tax years 2012–2025, https://furp.org/org/citizens-united-for-research-in-epilepsy-364253176. Accessed 1 Nov. 2026.
Retrieved 2026-11-01; covers tax years 2012–2025. Data: furp.org, CC BY 4.0.
2025 · Form 990 · revenue $5.0M · expenses $5.5M · assets $10.4M
- Also known as
- CURE Epilepsy
- EIN
- 36-4253176
- Address
- 420 N WABASH AVE STE 650, CHICAGO, IL 60611-3589
- Website
- www.cureepilepsy.org
- NTEE code
- H125
- Exempt type
- 501(c)(3): charitable, religious, educational, scientific or literary (corporation)
- Ruling date
- March 1999 (when the IRS recognized its exemption)
- IRS status
- Exempt (unconditional) (IRS Business Master File) IRS data ↗
- Tax-deductible donations
- Yes: listed in IRS Publication 78 (public charity) Pub 78 ↗
- Foundation status
- Public charity supported by the public (170(b)(1)(a)(vi))
- Cross-check
- ProPublica Nonprofit Explorer
Mission
To find a cure for epilepsy by promoting and funding patient focused research.
Each tax year counts once: when a return was amended, only the latest return for that period is used below (superseded returns stay listed, greyed, under Finances).
People paid by the organization
22 people paid across every filing: current people first, then by total pay from this organization. Organizations counts every nonprofit each person appears on.
| Name | Latest title | Years | Latest year pay | Total pay from here | Organizations |
|---|---|---|---|---|---|
| Laura Lubbers | CSO | 2017-2025 | $343,883 | $2,844,522 | 1 |
| Beth Dean | CEO | 2019-2025 | $344,007 | $2,223,615 | 1 |
| John Anderluh | CFO | 2019-2025 | $106,400 | $790,547 | 1 |
| Alysha Biehl | Director of Development | 2022-2025 | $170,346 | $683,407 | 1 |
| Dana Vielmetti | Director of Marketing and Communications | 2023-2025 | $164,251 | $314,172 | 1 |
| Priya Balasurbramanian | Director of Research | 2025 | $138,007 | $138,007 | 1 |
| Elaine O'Loughlin | Associate Director of Research Initiatives | 2025 | $134,338 | $134,338 | 1 |
| Angela Mota | Director of Major Gifts | 2025 | $100,904 | $100,904 | 1 |
| Robin Harding (former) | INTERIM COO (TO MAR '19) | 2013-2019 | $89,899 | $920,138 | 1 |
| Priya Balasubramanian (former) | Assoc Director of Research | 2019-2023 | $146,620 | $681,938 | 1 |
| Debby Hecht (former) | Sr. Director, Market Coms | 2020-2022 | $169,053 | $491,598 | 1 |
| Bogdan Ewendt (former) | EXECUTIVE DIRECTOR (TO NOV '13) | 2012-2013 | $240,157 | $390,597 | 1 |
| Lauren Harte (former) | DOD, ASSOC DIRECTOR OF RES | 2019-2021 | $113,146 | $329,810 | 1 |
| Brenda Aranda (former) | DIRECTOR, MARKETING & COMM | 2016-2017 | $164,856 | $298,611 | 1 |
| Kathleen Carr (former) | CHIEF EXECUTIVE OFFICER (TO APR '18) | 2017-2018 | $139,938 | $293,056 | 1 |
| Alsyha Biehl (former) | SR DIRECTOR, DEVELOPMENT | 2020-2021 | $157,011 | $270,539 | 1 |
| Julie Milder (former) | ASSOCIATE DIRECTOR, RESEARCH | 2014-2016 | $125,384 | $241,197 | 1 |
| Lauren Harte-Hargrove (former) | DOD, Assoc Director of Res | 2022 | $124,801 | $124,801 | 1 |
| Michael Organ (former) | INTERIM DIRECTOR OF MARKETING | 2018 | $124,597 | $124,597 | 1 |
| Margaret Schneider (former) | DIRECTOR OF DEVELOPMENT | 2013 | $118,949 | $118,949 | 1 |
| Carmita Vaughn (former) | CEO (TO MAY '12) | 2012 | $104,269 | $104,269 | 1 |
| Meghan Jorgensen (former) | DIRECTOR OF DEVELOPMENT | 2018 | $102,147 | $102,147 | 1 |
Officers and directors, no compensation reported
48 people listed on the returns with $0 (or no amount) in every compensation column: current people first. Hours are as filed on the latest return each person appears on.
| Name | Latest title | Years | Hrs/wk (latest) | Compensation | Organizations |
|---|---|---|---|---|---|
| Lisa Cotton | Immediate Past Chair | 2018-2025 | 4 | $0 reported | 1 |
| Shalee Cunneen | Secretary | 2021-2025 | 4 | $0 reported | 1 |
| Steve Austin | Director | 2022-2025 | 2 | $0 reported | 1 |
| Irina Colon | Director | 2023-2025 | 1 | $0 reported | 1 |
| Kim Borden | Director | 2022-2025 | 2 | $0 reported | 1 |
| Roger Heldman | Treasurer | 2024-2025 | 4 | $0 reported | 4 |
| Carrie Garman | Director | 2020-2025 | 1 | $0 reported | 1 |
| Maureen Flood Rabus | Director | 2024-2025 | 1 | $0 reported | 1 |
| David Reifman | Director | 2019-2025 | 1 | $0 reported | 1 |
| Walter Kelly | Director | 2024-2025 | 1 | $0 reported | 1 |
| Matt Schneider | Director | 2021-2025 | 4 | $0 reported | 1 |
| Kelly Cervantes | Director | 2017-2025 | 4 | $0 reported | 1 |
| Justin Gover | Chair | 2022-2025 | 6 | $0 reported | 1 |
| Michael Alexrod | Director | 2024-2025 | 1 | $0 reported | 1 |
| Greg Mayes | Director | 2025 | 1 | $0 reported | 4 |
| Jonathan Tuteur | Director | 2025 | 4 | $0 reported | 1 |
| Kathy McKenna (former) | Treasurer | 2019-2024 | 4 | $0 reported | 1 |
| Hannah Whitten (former) | Director | 2022-2024 | 2 | $0 reported | 1 |
| Mike Axelrod (former) | Director | 2018-2023 | 2 | $0 reported | 1 |
| Marilynn Gardner (former) | Director | 2018-2023 | 2 | $0 reported | 1 |
| Tina Sacks (former) | Director | 2022-2023 | 2 | $0 reported | 1 |
| Stacey Pigott (former) | IMMEDIATE PAST CHAIR | 2016-2021 | 1 | $0 reported | 1 |
| Kimberly Borden (former) | DIRECTOR | 2020-2021 | 1 | $0 reported | 1 |
| Brian Gorczynski (former) | DIRECTOR | 2020-2021 | 1 | $0 reported | 1 |
| Ann Benschoter (former) | PAST CHAIR (TO OCT '20) | 2012-2020 | 1 | $0 reported | 1 |
| Blake Cunneen (former) | DIRECTOR | 2015-2020 | 1 | $0 reported | 1 |
| Celia Huber (former) | DIRECTOR (TO OCT '20) | 2016-2020 | 1 | $0 reported | 1 |
| Paul Heldman (former) | SECRETARY (TO SEP '19) | 2013-2019 | 1 | $0 reported | 1 |
| Susan Axelrod (former) | FOUNDING CHAIR (TO SEP '18) | 2012-2018 | 1 | $0 reported | 1 |
| Sharon O'Keefe (former) | IMMEDIATE PAST CHAIR (TO SEP '18) | 2012-2018 | 1 | $0 reported | 1 |
| Scott Copeland (former) | DIRECTOR (TO SEP '18) | 2016-2018 | 1 | $0 reported | 1 |
| Lynn Fleisher (former) | DIRECTOR (TO SEP '18) | 2015-2018 | 1 | $0 reported | 1 |
| Scott Leisher (former) | DIRECTOR (TO SEP '18) | 2012-2018 | 1 | $0 reported | 1 |
| Phil Emery (former) | DIRECTOR (TO SEP '17) | 2014-2017 | 1 | $0 reported | 1 |
| Carol Fulp (former) | DIRECTOR | 2013-2017 | 1 | $0 reported | 1 |
| Evelyn Nussenbaum (former) | DIRECTOR (TO SEP '17) | 2012-2017 | 1 | $0 reported | 1 |
| C Renzi Stone (former) | DIRECTOR | 2013-2017 | 1 | $0 reported | 1 |
| Gardiner Lapham (former) | IMMEDIATE PAST CHAIR (TO SEP '16) | 2012-2016 | 1 | $0 reported | 1 |
| Greg Lewis (former) | DIRECTOR (TO SEP '16) | 2012-2016 | 1 | $0 reported | 1 |
| Connie Milstein (former) | DIRECTOR (TO SEP '16) | 2012-2016 | 1 | $0 reported | 1 |
| Joel Marcus (former) | DIRECTOR | 2013-2015 | 1 | $0 reported | 1 |
| Thomas Hynes (former) | TREASURER (TO SEP '14) | 2012-2014 | 1 | $0 reported | 1 |
| Craig Albert (former) | DIRECTOR (TO JAN '14) | 2012-2014 | 1 | $0 reported | 1 |
| Randolph Siegel (former) | DIRECTOR (TO SEP '13) | 2012-2013 | 1 | $0 reported | 2 |
| Jeanne Donalty (former) | DIRECTOR (TO SEP '13) | 2012-2013 | 1 | $0 reported | 1 |
| Barbara Kelly (former) | DIRECTOR (TO SEP '13) | 2012-2013 | 1 | $0 reported | 1 |
| Seth Wohlberg (former) | DIRECTOR (TO MAR '13) | 2012-2013 | 1 | $0 reported | 1 |
| Leann Brigido (former) | DIRECTOR (TO SEP '12) | 2012 | 1 | $0 reported | 1 |
People by year
2025 · 24 people listed · 8 paid, $1.5M · 20 employees · 330 volunteers
| Name | Title | Hrs/wk | From org | From related | Other | Total | Orgs |
|---|---|---|---|---|---|---|---|
| Beth Dean | CEO | 37 | $344,007 | $0 | $0 | $344,007 | 1 |
| Laura Lubbers | CSO | 37 | $343,883 | $0 | $0 | $343,883 | 1 |
| Alysha Biehl | Director of Development | 37 | $170,346 | $0 | $0 | $170,346 | 1 |
| Dana Vielmetti | Director of Marketing and Communications | 37 | $164,251 | $0 | $0 | $164,251 | 1 |
| Priya Balasurbramanian | Director of Research | 37 | $138,007 | $0 | $0 | $138,007 | 1 |
| Elaine O'Loughlin | Associate Director of Research Initiatives | 37 | $134,338 | $0 | $0 | $134,338 | 1 |
| John Anderluh | CFO | 30 | $106,400 | $0 | $0 | $106,400 | 1 |
| Angela Mota | Director of Major Gifts | 37 | $100,904 | $0 | $0 | $100,904 | 1 |
| Lisa Cotton | Immediate Past Chair | 4 | $0 | $0 | $0 | $0 | 1 |
| Shalee Cunneen | Secretary | 4 | $0 | $0 | $0 | $0 | 1 |
| Steve Austin | Director | 2 | $0 | $0 | $0 | $0 | 1 |
| Irina Colon | Director | 1 | $0 | $0 | $0 | $0 | 1 |
| Kim Borden | Director | 2 | $0 | $0 | $0 | $0 | 1 |
| Roger Heldman | Treasurer | 4 | $0 | $0 | $0 | $0 | 4 |
| Carrie Garman | Director | 1 | $0 | $0 | $0 | $0 | 1 |
| Maureen Flood Rabus | Director | 1 | $0 | $0 | $0 | $0 | 1 |
| David Reifman | Director | 1 | $0 | $0 | $0 | $0 | 1 |
| Walter Kelly | Director | 1 | $0 | $0 | $0 | $0 | 1 |
| Matt Schneider | Director | 4 | $0 | $0 | $0 | $0 | 1 |
| Kelly Cervantes | Director | 4 | $0 | $0 | $0 | $0 | 1 |
| Michael Alexrod | Director | 1 | $0 | $0 | $0 | $0 | 1 |
| Greg Mayes | Director | 1 | $0 | $0 | $0 | $0 | 4 |
| Jonathan Tuteur | Director | 4 | $0 | $0 | $0 | $0 | 1 |
| Justin Gover | Chair | 6 | $0 | $0 | $0 | $0 | 1 |
2024 · 20 people listed · 4 paid, $1.0M · 22 employees · 285 volunteers
| Name | Title | Hrs/wk | From org | From related | Other | Total | Orgs |
|---|---|---|---|---|---|---|---|
| Beth Dean | CEO | 37 | $329,727 | $0 | $39,754 | $369,481 | 1 |
| Laura Lubbers | CSO | 37 | $330,864 | $0 | $18,085 | $348,949 | 1 |
| Alysha BIehl | Director of Development | 37 | $164,737 | $0 | $13,101 | $177,838 | 1 |
| John Anderluh | CFO | 37 | $115,356 | $0 | $3,884 | $119,240 | 1 |
| Lisa Cotton | Chair | 4 | $0 | $0 | $0 | $0 | 1 |
| Shalee Cunneen | Secretary | 3 | $0 | $0 | $0 | $0 | 1 |
| Kathy McKenna | Treasurer | 4 | $0 | $0 | $0 | $0 | 1 |
| Steve Austin | Director | 2 | $0 | $0 | $0 | $0 | 1 |
| Irina Colon | Director | 2 | $0 | $0 | $0 | $0 | 1 |
| Kim Borden | Director | 2 | $0 | $0 | $0 | $0 | 1 |
| Roger Heldman | Director | 2 | $0 | $0 | $0 | $0 | 4 |
| Carrie Garman | Director | 2 | $0 | $0 | $0 | $0 | 1 |
| Maureen Flood Rabus | Director | 2 | $0 | $0 | $0 | $0 | 1 |
| David Reifman | Director | 2 | $0 | $0 | $0 | $0 | 1 |
| Walter Kelly | Director | 2 | $0 | $0 | $0 | $0 | 1 |
| Matt Schneider | Director | 2 | $0 | $0 | $0 | $0 | 1 |
| Hannah Whitten | Director | 2 | $0 | $0 | $0 | $0 | 1 |
| Kelly Cervantes | Director | 2 | $0 | $0 | $0 | $0 | 1 |
| Justin Gover | Chair Elect | 2 | $0 | $0 | $0 | $0 | 1 |
| Michael Alexrod | Director | 2 | $0 | $0 | $0 | $0 | 1 |
2023 · 21 people listed · 6 paid, $1.3M · 19 employees · 275 volunteers
| Name | Title | Hrs/wk | From org | From related | Other | Total | Orgs |
|---|---|---|---|---|---|---|---|
| Beth Dean | CEO | 37 | $314,565 | $0 | $38,569 | $353,134 | 1 |
| Laura Lubbers | Chief Scientific Officer | 37 | $316,541 | $0 | $17,360 | $333,901 | 1 |
| Alysha Biehl | Sr. Director Development | 37 | $156,866 | $0 | $14,647 | $171,513 | 1 |
| Dana Vielmetti | Director, Marketing | 37 | $146,627 | $0 | $3,294 | $149,921 | 1 |
| Priya Balasubramanian | Assoc Director of Research | 37 | $120,444 | $0 | $26,176 | $146,620 | 1 |
| John Anderluh | CFO | 37 | $116,125 | $0 | $28,915 | $145,040 | 1 |
| Lisa Cotton | Chair | 4 | $0 | $0 | $0 | $0 | 1 |
| Shalee Cunneen | Secretary | 3 | $0 | $0 | $0 | $0 | 1 |
| Kathy McKenna | Treasurer | 4 | $0 | $0 | $0 | $0 | 1 |
| Steve Austin | Director | 2 | $0 | $0 | $0 | $0 | 1 |
| Mike Axelrod | Director | 2 | $0 | $0 | $0 | $0 | 1 |
| Kim Borden | Director | 2 | $0 | $0 | $0 | $0 | 1 |
| Marilynn Gardner | Director | 2 | $0 | $0 | $0 | $0 | 1 |
| Carrie Garman | Director | 2 | $0 | $0 | $0 | $0 | 1 |
| Justin Gover | Director | 2 | $0 | $0 | $0 | $0 | 1 |
| David Reifman | Director | 2 | $0 | $0 | $0 | $0 | 1 |
| Tina Sacks | Director | 2 | $0 | $0 | $0 | $0 | 1 |
| Matt Schneider | Director | 3 | $0 | $0 | $0 | $0 | 1 |
| Hannah Whitten | Director | 2 | $0 | $0 | $0 | $0 | 1 |
| Irina Colon | Director | 2 | $0 | $0 | $0 | $0 | 1 |
| Kelly Cervantes | Director | 2 | $0 | $0 | $0 | $0 | 1 |
2022 · 21 people listed · 7 paid, $1.4M · 19 employees · 250 volunteers
| Name | Title | Hrs/wk | From org | From related | Other | Total | Orgs |
|---|---|---|---|---|---|---|---|
| Beth Dean | CEO | 37 | $299,086 | $0 | $36,965 | $336,051 | 1 |
| Laura Lubbers | Chief Scientific Officer | 37 | $295,325 | $0 | $17,105 | $312,430 | 1 |
| Debby Hecht | Sr. Director, Market Coms | 37 | $162,707 | $0 | $6,346 | $169,053 | 1 |
| Alysha Biehl | Sr. Director Development | 37 | $149,182 | $0 | $14,528 | $163,710 | 1 |
| Priya Balasubramanian | Assoc Director of Research | 37 | $115,032 | $0 | $25,035 | $140,067 | 1 |
| John Anderluh | CFO | 37 | $110,734 | $0 | $27,352 | $138,086 | 1 |
| Lauren Harte-Hargrove | DOD, Assoc Director of Res | 37 | $120,690 | $0 | $4,111 | $124,801 | 1 |
| Kelly Cervantes | Chair | 4 | $0 | $0 | $0 | $0 | 1 |
| Lisa Cotton | Chair Elect | 3 | $0 | $0 | $0 | $0 | 1 |
| Shalee Cunneen | Secretary | 3 | $0 | $0 | $0 | $0 | 1 |
| Kathy McKenna | Treasurer | 4 | $0 | $0 | $0 | $0 | 1 |
| Steve Austin | Director | 2 | $0 | $0 | $0 | $0 | 1 |
| Mike Axelrod | Director | 2 | $0 | $0 | $0 | $0 | 1 |
| Kim Borden | Director | 2 | $0 | $0 | $0 | $0 | 1 |
| Marilynn Gardner | Director | 2 | $0 | $0 | $0 | $0 | 1 |
| Carrie Garman | Director | 2 | $0 | $0 | $0 | $0 | 1 |
| Justin Gover | Director | 2 | $0 | $0 | $0 | $0 | 1 |
| David Reifman | Director | 2 | $0 | $0 | $0 | $0 | 1 |
| Tina Sacks | Director | 2 | $0 | $0 | $0 | $0 | 1 |
| Matt Schneider | Director | 3 | $0 | $0 | $0 | $0 | 1 |
| Hannah Whitten | Director | 2 | $0 | $0 | $0 | $0 | 1 |
2021 · 19 people listed · 7 paid, $1.3M · 16 employees · 250 volunteers
| Name | Title | Hrs/wk | From org | From related | Other | Total | Orgs |
|---|---|---|---|---|---|---|---|
| BETH LEWIN DEAN | CEO | 37 | $283,988 | $0 | $34,668 | $318,656 | 1 |
| LAURA LUBBERS | CHIEF SCIENTIFIC OFFICER | 37 | $290,347 | $0 | $15,843 | $306,190 | 1 |
| DEBBY HECHT | SR DIRECTOR, MARKET & COMS | 37 | $156,135 | $0 | $6,364 | $162,499 | 1 |
| ALSYHA BIEHL | SR DIRECTOR, DEVELOPMENT | 37 | $143,152 | $0 | $13,859 | $157,011 | 1 |
| PRIYA BALASUBRAMANIAN | ASSOC DIRECTOR OF RESEARCH | 37 | $110,492 | $0 | $24,231 | $134,723 | 1 |
| JOHN ANDERLUH | CFO | 37 | $106,154 | $0 | $26,314 | $132,468 | 1 |
| LAUREN HARTE | DOD, ASSOC DIRECTOR OF RES | 37 | $110,274 | $0 | $2,872 | $113,146 | 1 |
| KELLY CERVANTES | CHAIR | 1 | $0 | $0 | $0 | $0 | 1 |
| STACEY PIGOTT | IMMEDIATE PAST CHAIR | 1 | $0 | $0 | $0 | $0 | 1 |
| KATHY MCKENNA | TREASURER | 1 | $0 | $0 | $0 | $0 | 1 |
| MIKE AXELROD | SECRETARY | 1 | $0 | $0 | $0 | $0 | 1 |
| KIMBERLY BORDEN | DIRECTOR | 1 | $0 | $0 | $0 | $0 | 1 |
| LISA COTTON | DIRECTOR | 1 | $0 | $0 | $0 | $0 | 1 |
| SHALEE CUNNEEN | DIRECTOR | 1 | $0 | $0 | $0 | $0 | 1 |
| MARILYNN GARDNER | DIRECTOR | 1 | $0 | $0 | $0 | $0 | 1 |
| CARRIE GARMAN | DIRECTOR | 1 | $0 | $0 | $0 | $0 | 1 |
| BRIAN GORCZYNSKI | DIRECTOR | 1 | $0 | $0 | $0 | $0 | 1 |
| DAVID REIFMAN | DIRECTOR | 1 | $0 | $0 | $0 | $0 | 1 |
| MATT SCHNEIDER | DIRECTOR (FROM JUN' 21) | 1 | $0 | $0 | $0 | $0 | 1 |
2020 · 20 people listed · 7 paid, $1.2M · 18 employees · 250 volunteers
| Name | Title | Hrs/wk | From org | From related | Other | Total | Orgs |
|---|---|---|---|---|---|---|---|
| LAURA LUBBERS | CHIEF SCIENTIFIC OFFICER | 37 | $285,888 | $0 | $19,220 | $305,108 | 1 |
| BETH LEWIN DEAN | CEO | 37 | $261,453 | $0 | $34,338 | $295,791 | 1 |
| DEBBY HECHT | SR DIRECTOR, MARKETING & COMM | 37 | $152,717 | $0 | $7,329 | $160,046 | 1 |
| PRIYA BALASUBRAMANIAN | ASSOC DIRECTOR OF RESEARCH | 37 | $107,013 | $0 | $27,816 | $134,829 | 1 |
| JOHN ANDERLUH | CFO | 37 | $105,219 | $0 | $24,403 | $129,622 | 1 |
| ALSYHA BIEHL | SR DIRECTOR, DEVELOPMENT | 37 | $104,283 | $0 | $9,245 | $113,528 | 1 |
| LAUREN HARTE | DOD, ASSOC DIRECTOR OF RESEARCH | 37 | $106,935 | $0 | $3,616 | $110,551 | 1 |
| STACEY PIGOTT | CHAIR | 1 | $0 | $0 | $0 | $0 | 1 |
| KELLY CERVANTES | CHAIR ELECT | 1 | $0 | $0 | $0 | $0 | 1 |
| ANN BENSCHOTER | PAST CHAIR (TO OCT '20) | 1 | $0 | $0 | $0 | $0 | 1 |
| KATHY MCKENNA | TREASURER | 1 | $0 | $0 | $0 | $0 | 1 |
| MIKE AXELROD | SECRETARY | 1 | $0 | $0 | $0 | $0 | 1 |
| KIMBERLY BORDEN | DIRECTOR (FROM OCT'20) | 1 | $0 | $0 | $0 | $0 | 1 |
| LISA COTTON | DIRECTOR | 1 | $0 | $0 | $0 | $0 | 1 |
| BLAKE CUNNEEN | DIRECTOR | 1 | $0 | $0 | $0 | $0 | 1 |
| MARILYNN GARDNER | DIRECTOR | 1 | $0 | $0 | $0 | $0 | 1 |
| CARRIE GARMAN | (DIRECTOR (FROM JUN '20) | 1 | $0 | $0 | $0 | $0 | 1 |
| BRIAN GORCZYNSKI | (DIRECTOR (FROM DEC '20) | 1 | $0 | $0 | $0 | $0 | 1 |
| CELIA HUBER | DIRECTOR (TO OCT '20) | 1 | $0 | $0 | $0 | $0 | 1 |
| DAVID REIFMAN | DIRECTOR | 1 | $0 | $0 | $0 | $0 | 1 |
2019 · 17 people listed · 6 paid, $840K · 21 employees · 250 volunteers
| Name | Title | Hrs/wk | From org | From related | Other | Total | Orgs |
|---|---|---|---|---|---|---|---|
| LAURA LUBBERS | CHIEF SCIENTIFIC OFFICER | 37 | $277,064 | $0 | $15,402 | $292,466 | 1 |
| BETH LEWIN DEAN | CEO (FROM APR '19) | 37 | $183,370 | $0 | $23,125 | $206,495 | 1 |
| PRIYA BALASUBRAMANIAN | ASSOC DIRECTOR OF RESEARCH | 37 | $100,545 | $0 | $25,154 | $125,699 | 1 |
| LAUREN HARTE | ASSOC DIRECTOR OF RESEARCH | 37 | $103,150 | $0 | $2,963 | $106,113 | 1 |
| ROBIN HARDING | INTERIM COO (TO MAR '19) | 37 | $89,899 | $0 | $0 | $89,899 | 1 |
| JOHN ANDERLUH | CFO (FROM OCT '19) | 37 | $18,206 | $0 | $1,485 | $19,691 | 1 |
| STACEY PIGOTT | CHAIR | 1 | $0 | $0 | $0 | $0 | 1 |
| KATHY MCKENNA | TREASURER (FROM JUN '19) | 1 | $0 | $0 | $0 | $0 | 1 |
| KELLY CERVANTES | SECRETARY | 1 | $0 | $0 | $0 | $0 | 1 |
| PAUL HELDMAN | SECRETARY (TO SEP '19) | 1 | $0 | $0 | $0 | $0 | 1 |
| ANN BENSCHOTER | PAST CHAIR | 1 | $0 | $0 | $0 | $0 | 1 |
| MIKE AXELROD | DIRECTOR | 1 | $0 | $0 | $0 | $0 | 1 |
| LISA COTTON | DIRECTOR | 1 | $0 | $0 | $0 | $0 | 1 |
| BLAKE CUNNEEN | DIRECTOR | 1 | $0 | $0 | $0 | $0 | 1 |
| MARILYNN GARDNER | DIRECTOR | 1 | $0 | $0 | $0 | $0 | 1 |
| CELIA HUBER | DIRECTOR | 1 | $0 | $0 | $0 | $0 | 1 |
| DAVID REIFMAN | DIRECTOR FROM DEC '19) | 1 | $0 | $0 | $0 | $0 | 1 |
2018 · 19 people listed · 4 paid, $692K · 18 employees · 370 volunteers
| Name | Title | Hrs/wk | From org | From related | Other | Total | Orgs |
|---|---|---|---|---|---|---|---|
| LAURA LUBBERS | CHIEF SCIENTIFIC OFFICER | 37 | $310,523 | $0 | $14,964 | $325,487 | 1 |
| KATHLEEN CARR | CHIEF EXECUTIVE OFFICER (TO APR '18) | 37 | $133,237 | $0 | $6,701 | $139,938 | 1 |
| MICHAEL ORGAN | INTERIM DIRECTOR OF MARKETING | 37 | $124,597 | $0 | $0 | $124,597 | 1 |
| MEGHAN JORGENSEN | DIRECTOR OF DEVELOPMENT | 37 | $100,058 | $0 | $2,089 | $102,147 | 1 |
| SUSAN AXELROD | FOUNDING CHAIR (TO SEP '18) | 1 | $0 | $0 | $0 | $0 | 1 |
| ANN BENSCHOTER | CHAIR | 1 | $0 | $0 | $0 | $0 | 1 |
| BLAKE CUNNEEN | TREASURER | 1 | $0 | $0 | $0 | $0 | 1 |
| PAUL HELDMAN | SECRETARY | 1 | $0 | $0 | $0 | $0 | 1 |
| SHARON O'KEEFE | IMMEDIATE PAST CHAIR (TO SEP '18) | 1 | $0 | $0 | $0 | $0 | 1 |
| MIKE AXELROD | DIRECTOR (FROM SEP '18) | 1 | $0 | $0 | $0 | $0 | 1 |
| KELLY CERVANTES | DIRECTOR | 1 | $0 | $0 | $0 | $0 | 1 |
| SCOTT COPELAND | DIRECTOR (TO SEP '18) | 1 | $0 | $0 | $0 | $0 | 1 |
| LISA COTTON | DIRECTOR (FROM SEP '18) | 1 | $0 | $0 | $0 | $0 | 1 |
| LYNN FLEISHER | DIRECTOR (TO SEP '18) | 1 | $0 | $0 | $0 | $0 | 1 |
| MARILYNN KELLY GARDNER | DIRECTOR (FROM JUN '18) | 1 | $0 | $0 | $0 | $0 | 1 |
| CELIA HUBER | DIRECTOR | 1 | $0 | $0 | $0 | $0 | 1 |
| SCOTT LEISHER | DIRECTOR (TO SEP '18) | 1 | $0 | $0 | $0 | $0 | 1 |
| STACEY PIGOTT | DIRECTOR | 1 | $0 | $0 | $0 | $0 | 1 |
| ROBIN HARDING | INTERIM COO (FROM APR '18) | 37 | $0 | $0 | $0 | $0 | 1 |
2017 · 19 people listed · 4 paid, $755K · 20 employees · 370 volunteers
| Name | Title | Hrs/wk | From org | From related | Other | Total | Orgs |
|---|---|---|---|---|---|---|---|
| LAURA LUBBERS | CHIEF SCIENTIFIC OFFICER | 37 | $263,400 | $0 | $12,708 | $276,108 | 1 |
| BRENDA ARANDA | DIRECTOR, MARKETING & COMM | 37 | $150,330 | $0 | $14,526 | $164,856 | 1 |
| ROBIN HARDING | CHIEF EXECUTIVE OFFICER (TO JUN '17) | 37 | $153,820 | $0 | $7,166 | $160,986 | 1 |
| KATHLEEN CARR | CHIEF EXECUTIVE OFFICER (FROM JUL '17) | 37 | $145,063 | $0 | $8,055 | $153,118 | 1 |
| SUSAN AXELROD | FOUNDING CHAIR | 1 | $0 | $0 | $0 | $0 | 1 |
| ANN BENSCHOTER | CHAIR | 1 | $0 | $0 | $0 | $0 | 1 |
| SHARON O'KEEFE | IMMEDIATE PAST CHAIR | 1 | $0 | $0 | $0 | $0 | 1 |
| KELLY CERVANTES | DIRECTOR (FROM SEP '17) | 1 | $0 | $0 | $0 | $0 | 1 |
| SCOTT COPELAND | DIRECTOR | 1 | $0 | $0 | $0 | $0 | 1 |
| BLAKE CUNNEEN | DIRECTOR | 1 | $0 | $0 | $0 | $0 | 1 |
| PHIL EMERY | DIRECTOR (TO SEP '17) | 1 | $0 | $0 | $0 | $0 | 1 |
| LYNN FLEISHER | DIRECTOR | 1 | $0 | $0 | $0 | $0 | 1 |
| CAROL FULP | DIRECTOR | 1 | $0 | $0 | $0 | $0 | 1 |
| PAUL HELDMAN | DIRECTOR | 1 | $0 | $0 | $0 | $0 | 1 |
| CELIA HUBER | DIRECTOR | 1 | $0 | $0 | $0 | $0 | 1 |
| SCOTT LEISHER | DIRECTOR | 1 | $0 | $0 | $0 | $0 | 1 |
| STACEY PIGOTT | DIRECTOR | 1 | $0 | $0 | $0 | $0 | 1 |
| EVELYN NUSSENBAUM | DIRECTOR (TO SEP '17) | 1 | $0 | $0 | $0 | $0 | 1 |
| C RENZI STONE | DIRECTOR | 1 | $0 | $0 | $0 | $0 | 1 |
2016 · 20 people listed · 3 paid, $544K · 19 employees · 370 volunteers
| Name | Title | Hrs/wk | From org | From related | Other | Total | Orgs |
|---|---|---|---|---|---|---|---|
| ROBIN HARDING | CHIEF EXECUTIVE OFFICER | 37 | $262,114 | $0 | $23,061 | $285,175 | 1 |
| BRENDA ARANDA | DIRECTOR, MARKETING & COMMUNICATION | 37 | $127,266 | $0 | $6,489 | $133,755 | 1 |
| JULIE MILDER | ASSOCIATE DIRECTOR, RESEARCH | 37 | $103,385 | $0 | $21,999 | $125,384 | 1 |
| SUSAN AXELROD | FOUNDING CHAIR | 1 | $0 | $0 | $0 | $0 | 1 |
| SHARON O'KEEFE | CHAIR | 1 | $0 | $0 | $0 | $0 | 1 |
| ANN BENSCHOTER | CHAIR ELECT | 1 | $0 | $0 | $0 | $0 | 1 |
| GARDINER LAPHAM | IMMEDIATE PAST CHAIR (TO SEP '16) | 1 | $0 | $0 | $0 | $0 | 1 |
| SCOTT COPELAND | DIRECTOR (FROM SEP '16) | 1 | $0 | $0 | $0 | $0 | 1 |
| BLAKE CUNNEEN | DIRECTOR | 1 | $0 | $0 | $0 | $0 | 1 |
| PHIL EMERY | DIRECTOR | 1 | $0 | $0 | $0 | $0 | 1 |
| LYNN FLEISHER | DIRECTOR | 1 | $0 | $0 | $0 | $0 | 1 |
| CAROL FULP | DIRECTOR | 1 | $0 | $0 | $0 | $0 | 1 |
| PAUL HELDMAN | DIRECTOR | 1 | $0 | $0 | $0 | $0 | 1 |
| CELIA HUBER | DIRECTOR (FROM SEP '16) | 1 | $0 | $0 | $0 | $0 | 1 |
| SCOTT LEISHER | DIRECTOR | 1 | $0 | $0 | $0 | $0 | 1 |
| GREG LEWIS | DIRECTOR (TO SEP '16) | 1 | $0 | $0 | $0 | $0 | 1 |
| STACEY PIGOTT | DIRECTOR (FROM SEP '16) | 1 | $0 | $0 | $0 | $0 | 1 |
| CONNIE MILSTEIN | DIRECTOR (TO SEP '16) | 1 | $0 | $0 | $0 | $0 | 1 |
| EVELYN NUSSENBAUM | DIRECTOR | 1 | $0 | $0 | $0 | $0 | 1 |
| C RENZI STONE | DIRECTOR | 1 | $0 | $0 | $0 | $0 | 1 |
2015 · 16 people listed · 1 paid, $262K · 17 employees · 370 volunteers
| Name | Title | Hrs/wk | From org | From related | Other | Total | Orgs |
|---|---|---|---|---|---|---|---|
| ROBIN HARDING | CHIEF EXECUTIVE OFFICER | 37 | $244,507 | $0 | $17,287 | $261,794 | 1 |
| SUSAN AXELROD | FOUNDING CHAIR | 1 | $0 | $0 | $0 | $0 | 1 |
| SHARON O'KEEFE | CHAIR | 1 | $0 | $0 | $0 | $0 | 1 |
| GARDINER LAPHAM | IMMEDIATE PAST CHAIR | 1 | $0 | $0 | $0 | $0 | 1 |
| ANN BENSCHOTER | SECRETARY | 1 | $0 | $0 | $0 | $0 | 1 |
| PAUL HELDMAN | TREASURER | 1 | $0 | $0 | $0 | $0 | 1 |
| BLAKE CUNNEEN | DIRECTOR (FROM SEP '15) | 1 | $0 | $0 | $0 | $0 | 1 |
| PHIL EMERY | DIRECTOR | 1 | $0 | $0 | $0 | $0 | 1 |
| LYNN FLEISHER | DIRECTOR (FROM SEP '15) | 1 | $0 | $0 | $0 | $0 | 1 |
| CAROL FULP | DIRECTOR | 1 | $0 | $0 | $0 | $0 | 1 |
| SCOTT LEISHER | DIRECTOR | 1 | $0 | $0 | $0 | $0 | 1 |
| GREG LEWIS | DIRECTOR | 1 | $0 | $0 | $0 | $0 | 1 |
| JOEL MARCUS | DIRECTOR | 1 | $0 | $0 | $0 | $0 | 1 |
| CONNIE MILSTEIN | DIRECTOR | 1 | $0 | $0 | $0 | $0 | 1 |
| EVELYN NUSSENBAUM | DIRECTOR | 1 | $0 | $0 | $0 | $0 | 1 |
| C RENZI STONE | DIRECTOR | 1 | $0 | $0 | $0 | $0 | 1 |
2014 · 17 people listed · 2 paid, $238K · 12 employees · 370 volunteers
| Name | Title | Hrs/wk | From org | From related | Other | Total | Orgs |
|---|---|---|---|---|---|---|---|
| ROBIN HARDING | CHIEF EXECUTIVE OFFICER | 37 | $118,303 | $0 | $3,981 | $122,284 | 1 |
| JULIE MILDER | ASSOC RESEARCH DIRECTOR | 37 | $100,903 | $0 | $14,910 | $115,813 | 1 |
| SUSAN AXELROD | FOUNDING CHAIR | 1 | $0 | $0 | $0 | $0 | 1 |
| GARDINER LAPHAM | CHAIR | 1 | $0 | $0 | $0 | $0 | 1 |
| SHARON O'KEEFE | CHAIR-ELECT | 1 | $0 | $0 | $0 | $0 | 1 |
| ANN BENSCHOTER | SECRETARY | 1 | $0 | $0 | $0 | $0 | 1 |
| THOMAS HYNES | TREASURER (TO SEP '14) | 1 | $0 | $0 | $0 | $0 | 1 |
| PAUL HELDMAN | TREASURER | 1 | $0 | $0 | $0 | $0 | 1 |
| CRAIG ALBERT | DIRECTOR (TO JAN '14) | 1 | $0 | $0 | $0 | $0 | 1 |
| PHIL EMERY | DIRECTOR (FROM SEP '14) | 1 | $0 | $0 | $0 | $0 | 1 |
| CAROL FULP | DIRECTOR | 1 | $0 | $0 | $0 | $0 | 1 |
| SCOTT LEISHER | DIRECTOR | 1 | $0 | $0 | $0 | $0 | 1 |
| GREG LEWIS | DIRECTOR | 1 | $0 | $0 | $0 | $0 | 1 |
| JOEL MARCUS | DIRECTOR | 1 | $0 | $0 | $0 | $0 | 1 |
| CONNIE MILSTEIN | DIRECTOR | 1 | $0 | $0 | $0 | $0 | 1 |
| EVELYN NUSSENBAUM | DIRECTOR | 1 | $0 | $0 | $0 | $0 | 1 |
| C RENZI STONE | DIRECTOR | 1 | $0 | $0 | $0 | $0 | 1 |
2013 · 21 people listed · 2 paid, $359K · 14 employees · 370 volunteers
| Name | Title | Hrs/wk | From org | From related | Other | Total | Orgs |
|---|---|---|---|---|---|---|---|
| BOGDAN EWENDT | EXECUTIVE DIRECTOR (TO NOV '13) | 37 | $224,403 | $0 | $15,754 | $240,157 | 1 |
| MARGARET SCHNEIDER | DIRECTOR OF DEVELOPMENT | 37 | $105,977 | $0 | $12,972 | $118,949 | 1 |
| SUSAN AXELROD | FOUNDING CHAIR | 1 | $0 | $0 | $0 | $0 | 1 |
| GARDINER LAPHAM | CHAIR | 1 | $0 | $0 | $0 | $0 | 1 |
| GREG LEWIS | SECRETARY | 1 | $0 | $0 | $0 | $0 | 1 |
| THOMAS HYNES | TREASURER | 1 | $0 | $0 | $0 | $0 | 1 |
| CRAIG ALBERT | DIRECTOR | 1 | $0 | $0 | $0 | $0 | 1 |
| ANN BENSCHOTER | DIRECTOR | 1 | $0 | $0 | $0 | $0 | 1 |
| JEANNE DONALTY | DIRECTOR (TO SEP '13) | 1 | $0 | $0 | $0 | $0 | 1 |
| CAROL FULP | DIRECTOR (FROM SEP '13) | 1 | $0 | $0 | $0 | $0 | 1 |
| PAUL HELDMAN | DIRECTOR (FROM SEP '13) | 1 | $0 | $0 | $0 | $0 | 1 |
| BARBARA KELLY | DIRECTOR (TO SEP '13) | 1 | $0 | $0 | $0 | $0 | 1 |
| SCOTT LEISHER | DIRECTOR | 1 | $0 | $0 | $0 | $0 | 1 |
| JOEL MARCUS | DIRECTOR (FROM SEP '13) | 1 | $0 | $0 | $0 | $0 | 1 |
| CONNIE MILSTEIN | DIRECTOR | 1 | $0 | $0 | $0 | $0 | 1 |
| EVELYN NUSSENBAUM | DIRECTOR | 1 | $0 | $0 | $0 | $0 | 1 |
| SHARON O'KEEFE | DIRECTOR | 1 | $0 | $0 | $0 | $0 | 1 |
| RANDOLPH SIEGEL | DIRECTOR (TO SEP '13) | 1 | $0 | $0 | $0 | $0 | 2 |
| C RENZI STONE | DIRECTOR (FROM SEP '13) | 1 | $0 | $0 | $0 | $0 | 1 |
| SETH WOHLBERG | DIRECTOR (TO MAR '13) | 1 | $0 | $0 | $0 | $0 | 1 |
| ROBIN HARDING | INTERIM EXECUTIVE DIRECTOR (FROM NOV '13) | 37 | $0 | $0 | $0 | $0 | 1 |
2012 · 17 people listed · 2 paid, $255K · 14 employees · 370 volunteers
| Name | Title | Hrs/wk | From org | From related | Other | Total | Orgs |
|---|---|---|---|---|---|---|---|
| BOGDAN EWENDT | EXECUTIVE DIRECTOR | 37 | $141,828 | $0 | $8,612 | $150,440 | 1 |
| CARMITA VAUGHN | CEO (TO MAY '12) | 37 | $99,599 | $0 | $4,670 | $104,269 | 1 |
| SUSAN AXELROD | CHAIR | 1 | $0 | $0 | $0 | $0 | 1 |
| GREG LEWIS | SECRETARY | 1 | $0 | $0 | $0 | $0 | 1 |
| THOMAS HYNES | TREASURER | 1 | $0 | $0 | $0 | $0 | 1 |
| GARDINER LAPHAM | CHAIR-ELECT | 1 | $0 | $0 | $0 | $0 | 1 |
| JEANNE DONALTY | DIRECTOR | 1 | $0 | $0 | $0 | $0 | 1 |
| BARBARA KELLY | DIRECTOR | 1 | $0 | $0 | $0 | $0 | 1 |
| CRAIG ALBERT | DIRECTOR | 1 | $0 | $0 | $0 | $0 | 1 |
| ANN BENSCHOTER | DIRECTOR (FROM SEP '12) | 1 | $0 | $0 | $0 | $0 | 1 |
| LEANN BRIGIDO | DIRECTOR (TO SEP '12) | 1 | $0 | $0 | $0 | $0 | 1 |
| SCOTT LEISHER | DIRECTOR (FROM SEP '12) | 1 | $0 | $0 | $0 | $0 | 1 |
| CONNIE MILSTEIN | DIRECTOR | 1 | $0 | $0 | $0 | $0 | 1 |
| EVELYN NUSSENBAUM | DIRECTOR | 1 | $0 | $0 | $0 | $0 | 1 |
| SHARON O'KEEFE | DIRECTOR (FROM SEP '12) | 1 | $0 | $0 | $0 | $0 | 1 |
| RANDOLPH SIEGEL | DIRECTOR | 1 | $0 | $0 | $0 | $0 | 2 |
| SETH WOHLBERG | DIRECTOR (FROM SEP '12) | 1 | $0 | $0 | $0 | $0 | 1 |
Highest-paid independent contractors
2023 · 1 contractor · $100K
| Name | Location | Service | Paid |
|---|---|---|---|
| William Morris Endeavor Ent LLC | Los Angeles, CA | Music for Benefit | $100,000 |
2022 · 1 contractor · $120K
| Name | Location | Service | Paid |
|---|---|---|---|
| Wasserman Music LLC | Los Angeles, CA | Music for Benefit | $120,000 |
2021 · 1 contractor · $147K
| Name | Location | Service | Paid |
|---|---|---|---|
| LONG STORY SHORT MEDIA | WASHINGTON, DC | MEDIA PRODUCTION | $147,036 |
2019 · 2 contractors · $291K
| Name | Location | Service | Paid |
|---|---|---|---|
| PATINA SOLUTIONS GROUP INC | BROOKEFIELD, WI | OUTSOURCED EXECUTIVE | $150,935 |
| MENLO PARK, CA | ADVERTISING | $140,496 |
2018 · 2 contractors · $301K
| Name | Location | Service | Paid |
|---|---|---|---|
| CHICAGO SIGNITURE SERVICES | CHICAGO, IL | EVENT SERVICES | $154,879 |
| RAFANELLI EVENTS MANAGEMENT INC | BOSTON, MA | EVENT SERVICES | $146,391 |
Paid as a vendor by
Other organizations that listed this one among their highest-paid independent contractors. Contractor lists give no EIN, so these are matched on name and address; check the filing.
| Year | Paid by | Service | Paid | Filing |
|---|---|---|---|---|
| 2023 | EPILEPSY FOUNDATION OF AMERICA | CONSULTING SERVICES | $250,000 | view vendor page |
Who the money went to
Grants this organization reported paying: Schedule I Part II of the Form 990, or the grants-paid list on the 990-PF. Open a year for every recipient. Recipients link to their own page when the grant names an EIN we have (990-PF grants list no EIN, so those link only on an exact, unique name and state). Grants to individuals are counted; their names are not shown.
2025 · 14 grants to organizations · $1.3M
Listed grants add up to $1,289,863; the return's “grants paid” expense line says $2,274,098. Returns can differ here (grants paid vs. accrued, items listed elsewhere); check the filing.
2024 · 13 grants to organizations · $2.0M
Listed grants add up to $2,010,562; the return's “grants paid” expense line says $2,900,590. Returns can differ here (grants paid vs. accrued, items listed elsewhere); check the filing.
2023 · 18 grants to organizations · $1.9M
Listed grants add up to $1,878,201; the return's “grants paid” expense line says $2,759,409. Returns can differ here (grants paid vs. accrued, items listed elsewhere); check the filing.
2022 · 17 grants to organizations · $2.1M
Listed grants add up to $2,148,769; the return's “grants paid” expense line says $2,804,485. Returns can differ here (grants paid vs. accrued, items listed elsewhere); check the filing.
2021 · 13 grants to organizations · $2.3M
Listed grants add up to $2,268,883; the return's “grants paid” expense line says $3,021,455. Returns can differ here (grants paid vs. accrued, items listed elsewhere); check the filing.
2020 · 25 grants to organizations · $4.5M
Listed grants add up to $4,477,199; the return's “grants paid” expense line says $4,747,582. Returns can differ here (grants paid vs. accrued, items listed elsewhere); check the filing.
2019 · 17 grants to organizations · $3.0M
Listed grants add up to $2,995,639; the return's “grants paid” expense line says $3,260,536. Returns can differ here (grants paid vs. accrued, items listed elsewhere); check the filing.
2018 · 8 grants to organizations · $3.1M
Listed grants add up to $3,131,800; the return's “grants paid” expense line says $3,205,929. Returns can differ here (grants paid vs. accrued, items listed elsewhere); check the filing.
2017 · 13 grants to organizations · $1.8M
Listed grants add up to $1,757,613; the return's “grants paid” expense line says $1,839,338. Returns can differ here (grants paid vs. accrued, items listed elsewhere); check the filing.
2016 · 16 grants to organizations · $2.9M
Listed grants add up to $2,931,067; the return's “grants paid” expense line says $3,369,674. Returns can differ here (grants paid vs. accrued, items listed elsewhere); check the filing.
2015 · 13 grants to organizations · $3.5M
Listed grants add up to $3,541,244; the return's “grants paid” expense line says $4,452,139. Returns can differ here (grants paid vs. accrued, items listed elsewhere); check the filing.
2014 · 23 grants to organizations · $3.8M
Listed grants add up to $3,834,435; the return's “grants paid” expense line says $4,832,430. Returns can differ here (grants paid vs. accrued, items listed elsewhere); check the filing.
2013 · 15 grants to organizations · $2.3M
Listed grants add up to $2,277,561; the return's “grants paid” expense line says $2,792,588. Returns can differ here (grants paid vs. accrued, items listed elsewhere); check the filing.
2012 · 21 grants to organizations · $3.2M
Listed grants add up to $3,183,136; the return's “grants paid” expense line says $3,405,292. Returns can differ here (grants paid vs. accrued, items listed elsewhere); check the filing.
Negative amounts are returned or refunded grants; they are listed last and left out of the totals of grants paid.
Who gave
Contributor names are not public for this form type.
Public charities filing Form 990 or 990-EZ report large donors on Schedule B, but the IRS withholds their names and addresses from public copies. Private foundations (990-PF) are different: their contributors are public.
Finances
Newest first. Each filing: its name on one row, its figures on the row beneath. Greyed filings are superseded by a later return for the same period and are left out everywhere else on this page.
| Revenue | Expenses | Assets | Net assets | Contributions | Program revenue | Officer pay | Employees | Volunteers |
|---|---|---|---|---|---|---|---|---|
| 2025 · Form 990 | ||||||||
| $4,989,172 | $5,529,185 | $10,409,120 | $6,694,871 | $4,941,461 | $0 | $379,849 | 20 | 330 |
| 2024 · Form 990 | ||||||||
| $6,050,647 | $6,196,609 | $10,689,964 | $6,996,108 | $6,067,462 | $0 | $445,083 | 22 | 285 |
| 2023 · Form 990 | ||||||||
| $6,183,163 | $5,993,350 | $10,587,072 | $6,959,952 | $6,403,752 | $0 | $747,231 | 19 | 275 |
| 2022 · Form 990 | ||||||||
| $6,231,376 | $5,793,113 | $10,154,743 | $6,150,686 | $5,937,146 | $0 | $1,276,512 | 19 | 250 |
| 2021 · Form 990 | ||||||||
| $6,043,691 | $5,841,537 | $10,496,452 | $7,371,739 | $6,172,734 | $0 | $757,313 | 16 | 250 |
| 2020 · Form 990 | ||||||||
| $7,343,836 | $7,549,802 | $10,595,195 | $6,576,284 | $6,964,176 | $0 | $730,520 | 18 | 250 |
| 2019 · Form 990 | ||||||||
| $7,484,913 | $6,263,446 | $11,158,995 | $6,880,437 | $7,599,997 | $0 | $608,551 | 21 | 250 |
| 2018 · Form 990 | ||||||||
| $7,450,862 | $5,969,013 | $6,395,235 | $5,290,994 | $7,555,195 | $0 | $567,571 | 18 | 370 |
| 2017 · Form 990 | ||||||||
| $4,137,230 | $4,549,237 | $6,635,801 | $4,013,173 | $4,103,518 | $0 | $590,213 | 20 | 370 |
| 2016 · Form 990 | ||||||||
| $4,432,583 | $6,070,422 | $8,107,165 | $4,122,170 | $4,560,949 | $0 | $285,176 | 19 | 370 |
| 2015 · Form 990 | ||||||||
| $5,635,424 | $6,919,066 | $8,986,158 | $5,258,121 | $5,734,565 | $0 | $261,794 | 17 | 370 |
| 2014 · Form 990 | ||||||||
| $5,390,158 | $6,699,278 | $9,967,864 | $7,015,065 | $5,533,358 | $0 | $122,284 | 12 | 370 |
| 2013 · Form 990 | ||||||||
| $4,809,202 | $4,530,617 | $10,417,108 | $8,389,008 | $4,584,975 | $0 | $240,157 | 14 | 370 |
| 2012 · Form 990 | ||||||||
| $5,587,966 | $5,008,421 | $11,308,591 | $8,190,082 | $5,517,115 | $0 | $254,709 | 14 | 370 |
Connected to
Organizations that list some of the same people on their returns (officers, directors, key employees on this organization’s latest return), and related organizations it lists on Schedule R.
- EPILEPSY FOUNDATION OF AMERICA Bowie, MD · 2 people in common (Greg Mayes, Roger Heldman)
- EPILEPSY SERVICES OF WEST CENTRAL FLORIDA INC Brandon, FL · 2 people in common (Greg Mayes, Roger Heldman)
- EPILEPSY RESEARCH FOUNDATION Bowie, MD · 2 people in common (Greg Mayes, Roger Heldman)
Funders of this organization
131 grantors reported grants to this organization, $12,437,542 in all, tax years 2009 to 2025; the 25 largest shown (all 131). Exact: the grantor wrote this organization's EIN. Fuzzy: the grantor wrote only a name (foundations' 990-PF has no EIN field), matched to the same or a near-identical name in the same state; the name as filed is shown. From the latest return for each grantor and year, so amended returns aren't counted twice. CSV
| Grantor | Type | Match | Years given | Grants | Total | Latest year | Latest year's amount | Grants |
|---|---|---|---|---|---|---|---|---|
| NATIONAL PHILANTHROPIC TR | DAF sponsor | Exact | 2014-2024 | 11 | $2,647,600 | 2024 | $228,250 | show |
| FIDELITY INVESTMENTS CHARITABLE GIFT FUND | DAF sponsor | Exact | 2016-2024 | 9 | $1,818,218 | 2024 | $169,492 | show |
| JEWISH COMMUNAL FUND | DAF sponsor | Exact | 2009-2015 | 7 | $1,132,702 | 2015 | $101,000 | show |
| DONOR ADVISED CHARITABLE GIVING | DAF sponsor | Exact | 2014-2024 | 11 | $871,112 | 2024 | $121,385 | show |
| GREATER CINCINNATI FOUNDATION | DAF sponsor | Exact | 2010-2021, 2023-2024 | 14 | $807,325 | 2024 | $40,000 | show |
| VANGUARD CHARITABLE ENDOWMENT PROGRAM | DAF sponsor | Exact | 2020-2024 | 5 | $641,025 | 2024 | $132,500 | show |
| AMERICAN ONLINE GIVING FOUNDATION INC | DAF sponsor | Exact | 2019-2025 | 7 | $367,323 | 2025 | $89,350 | show |
| THE CHICAGO COMMUNITY TRUST | DAF sponsor | Exact | 2016-2024 | 9 | $289,500 | 2024 | $31,500 | show |
| BOSTON FOUNDATION INC | DAF sponsor | Exact | 2014, 2018-2020, 2022-2024 | 7 | $260,000 | 2024 | $35,000 | show |
| SELECT EQUITY GROUP FOUNDATION | Private foundation | Fuzzy filed as “Citizens United for Research in Epilepsy”, “CITIZENS UNITED FOR RESEARCH IN EPILEPSY” | 2015-2021 | 12 | $216,656 | 2021 | $10,000 | show |
| JOSEPH GOMOLL FOUNDATION INC | Public charity | Exact | 2023-2024 | 2 | $210,000 | 2024 | $160,000 | show |
| MASS GENERAL BRIGHAM INCORPORATED | Public charity | Exact | 2010-2012, 2014, 2017, 2020 | 6 | $190,000 | 2020 | $25,000 | show |
| BAND FOUNDATION | Private foundation | Fuzzy filed as “CITIZENS UNITED FOR RESEARCH IN EPILEPSY” | 2022-2023 | 2 | $157,339 | 2023 | $97,527 | show |
| FORGOOD INC | DAF sponsor | Exact | 2012-2013, 2016-2017, 2019 | 5 | $143,655 | 2019 | $10,611 | show |
| GS DONOR ADVISED PHILANTHROPY FUND FOR WEALTH MANAGEMENT INC | DAF sponsor | Exact | 2017-2019, 2021-2024 | 7 | $117,417 | 2024 | $12,500 | show |
| CHARITIES AID FOUNDATION AMERICA | DAF sponsor | Exact | 2017-2018, 2020-2024 | 8 | $115,695 | 2024 | $18,332 | show |
| AMERICAN ENDOWMENT FOUNDATION | DAF sponsor | Exact | 2016, 2018-2021, 2024 | 6 | $107,568 | 2024 | $6,250 | show |
| HENRYS HEROES FOUNDATION INC | Public charity | Exact | 2025 | 1 | $101,308 | 2025 | $101,308 | show |
| CAFARO-LIVINGSTON CHARITABLE TR | Private foundation | Fuzzy filed as “CITIZENS UNITED FOR RESEARCH IN EPILEPSY” | 2020 | 1 | $100,000 | 2020 | $100,000 | show |
| THE DONALD J TRUMP FOUNDATION | Private foundation | Fuzzy filed as “CITIZENS UNITED FOR RESEARCH IN EPILEPSY” | 2012 | 1 | $100,000 | 2012 | $100,000 | show |
| THE BLACKBAUD GIVING FUND | DAF sponsor | Exact | 2022-2023, 2025 | 3 | $90,916 | 2025 | $9,781 | show |
| UNIVERSITY OF CHICAGO MEDICAL CENTER | Public charity | Exact | 2021-2022, 2024 | 3 | $90,025 | 2024 | $30,000 | show |
| EAST TEXAS COMMUNTIES FOUNDATION INC | DAF sponsor | Exact | 2015-2019, 2021-2023 | 8 | $90,000 | 2023 | $10,000 | show |
| GREATER KANSAS CITY COMMUNITY FOUNDATION | DAF sponsor | Exact | 2010-2011, 2013-2015, 2017 | 6 | $89,550 | 2017 | $10,750 | show |
| SUFFOLK CARES CHARITABLE FOUNDATION INC | Private foundation | Fuzzy filed as “CITIZENS UNITED FOR RESEARCH IN EPILEPSY”, “CITIZENS UNITED FOR RESEARCH IN EPILEPSY (CURE)” | 2017, 2020-2021 | 3 | $85,000 | 2021 | $10,000 | show |
Nearby + Similar BETA
Organizations like this one: what they do and who they are linked to
Same category: NTEE code and revenue
Ranked without any AI: same NTEE code first, then the same NTEE group; then revenue within 2x, 5x or 10x; then the same state; then similar name and mission text. Same state only · More (100)
| Organization | State | NTEE | Latest revenue | Latest expenses | Top-paid title | Top pay | Why similar |
|---|---|---|---|---|---|---|---|
| LEUKEMIA RESEARCH FOUNDATION INC | IL | H12 | $6,035,635 | $3,212,486 | EXECUTIVE DIRECTOR | $176,513 | Same NTEE code H12, revenue within 2x, same state, similar mission |
| PARTNERSHIP FOR CURES | IL | H12 | $3,881,316 | $1,310,247 | President and CEO | $213,533 | Same NTEE code H12, revenue within 2x, same state |
| FOUNDATION FOR RESEARCH | NV | H12 | $6,556,157 | $7,047,376 | Trustee, President | $785,428 | Same NTEE code H12, revenue within 2x |
| WINGS FOR LIFE USA - SPINAL CORD RESEARCH FOUNDATION INC | CA | H12 | $7,156,526 | $2,184,156 | Chair/President | $0 | Same NTEE code H12, revenue within 2x |
| COALITION FOR NATIONAL TRAUMA RESEARCH | TX | H12 | $2,524,205 | $2,002,228 | Executive Director | $230,112 | Same NTEE code H12, revenue within 2x |
| THE PROGERIA RESEARCH FOUNDATION INC | MA | H12 | $4,458,016 | $4,163,643 | CHIEF BUSINESS OFFICER | $319,523 | Same NTEE code H12, revenue within 2x |
| CANCER FREE KIDS PEDIATRIC CANCER RESEARCH ALLIANCE | OH | H12 | $2,620,809 | $2,505,427 | Executive Director | $150,288 | Same NTEE code H12, revenue within 2x |
| FLORIDA BREAST CANCER COALITION RESEARCH FOUNDATION | FL | H12 | $3,857,492 | $2,422,769 | PRESIDENT | $133,677 | Same NTEE code H12, revenue within 2x |
| THE IGA NEPHROPATHY FOUNDATION OF AMERICA INC | NJ | H12 | $3,995,717 | $2,971,092 | EXECUTIVE DIRECTOR | $187,200 | Same NTEE code H12, revenue within 2x |
| UROLOGY CARE FOUNDATION INC | MD | H12 | $9,577,107 | $3,639,613 | EXECUTIVE DIRECTOR | $963,431 | Same NTEE code H12, revenue within 2x |
| HOPE FOR DEPRESSION RESEARCH FOUNDATION | NY | H12 | $3,352,342 | $7,276,738 | EXECUTIVE DIRECTOR | $301,810 | Same NTEE code H12, revenue within 2x |
| INTERNATIONAL RETT SYNDROME FOUNDATION | OH | H12 | $4,265,935 | $5,190,108 | CHIEF EXECUTIVE OFFICER - START 4/25 | $178,813 | Same NTEE code H12, revenue within 2x |
| COMING TOGETHER FOR A CURE INC | KS | H12 | $4,005,322 | $4,037,324 | DIRECTOR OF STRATEGIC INITIATIVES | $78,500 | Same NTEE code H12, revenue within 2x |
| T J MARTELL FOUNDATION | NY | H12 | $3,536,897 | $2,038,418 | CHIEF EXECUTIVE OFFICER | $162,500 | Same NTEE code H12, revenue within 2x |
| OPEN MEDICINE FOUNDATION INC | CA | H12 | $5,487,605 | $4,573,645 | CEO/PRESIDENT | $308,699 | Same NTEE code H12, revenue within 2x |
| MORGAN ADAMS FOUNDATION | CO | H12 | $3,011,334 | $2,641,332 | EXEC DIR AND CO-FOUNDER | $130,000 | Same NTEE code H12, revenue within 2x |
| HAYMAKERS FOR HOPE INC | MA | H12 | $4,610,827 | $4,924,496 | EXECUTIVE DIRECTOR | $293,500 | Same NTEE code H12, revenue within 2x |
| RARE VILLAGE FOUNDATION | TX | H12 | $3,660,787 | $2,368,236 | VICE PRESIDENT SECRETARY DIRECTOR | $0 | Same NTEE code H12, revenue within 2x |
| MACULAR DEGENERATION ASSOCIATION | FL | H12 | $4,633,596 | $2,816,514 | Chairman of the Board | $397,516 | Same NTEE code H12, revenue within 2x |
| UNIVERSITY OF TOKYO NEW YORK OFFICE INC | NY | H12 | $2,735,367 | $593,932 | PRESIDENT | $0 | Same NTEE code H12, revenue within 2x |
| PSFC | CA | H12 | $3,836,963 | $5,737,156 | Head of Field Building | $433,800 | Same NTEE code H12, revenue within 2x |
| THE CURETIVITY FOUNDATION | CT | H12 | $4,396,120 | $4,393,089 | EXECUTIVE DIR. & SECRETARY | $164,583 | Same NTEE code H12, revenue within 2x |
| JETT FOUNDATION INC | MA | H12 | $7,446,726 | $3,650,266 | PRESIDENT AND CEO | $261,462 | Same NTEE code H12, revenue within 2x |
| PROJECT PURPLE INC | CT | H12 | $2,996,848 | $3,149,439 | FOUNDER AND | $214,662 | Same NTEE code H12, revenue within 2x |
| FRATERNAL ORDER OF EAGLES FOUNDATION | OH | H12 | $5,161,252 | $3,406,319 | CFO | $288,489 | Same NTEE code H12, revenue within 2x |
Who funds organizations like this
Grantors that funded the 100 most similar organizations. Ranked by total given to them. Foundations (990-PF) and donor-advised fund sponsors only. Same matching as Funders above (by EIN, or by name for foundations).
The full list · all similar organizations
Where the money went
Every expense line on each return, biggest first: Form 990 Part IX (with its program, management and fundraising columns), 990-EZ Part I, or 990-PF Part I. Event marks lines the organization itself describes as events. “Events” in each summary adds those lines, conferences and meetings, and the direct costs of fundraising events. Unusual is not the same as improper. Many of these patterns have ordinary explanations. Check the filing.
2025 · Form 990 · $5,529,185 spent · pay $2,332,251 · grants $2,274,098 · events $671,489
| Line | As described | Total | Program | Management | Fundraising | Share |
|---|---|---|---|---|---|---|
| Other salaries and wages | $1,541,279 | $1,054,982 | $177,699 | $308,598 | 27.9% | |
| Grants to US organizations and governments | $1,403,086 | $1,403,086 | - | - | 25.4% | |
| Grants outside the US | $871,012 | $871,012 | - | - | 15.8% | |
| Pay: officers, directors, trustees, key employees | $379,849 | $235,506 | $41,783 | $102,560 | 6.9% | |
| Other employee benefits | $274,814 | $167,487 | $33,351 | $73,976 | 5.0% | |
| Other (as described) | Subcontractors | $205,169 | $159,924 | $302 | $44,943 | 3.7% |
| Information technology | $170,814 | $142,678 | $8,950 | $19,186 | 3.1% | |
| Payroll taxes | $136,309 | $83,834 | $14,304 | $38,171 | 2.5% | |
| Other (as described) | Advocacy and Awareness | $123,016 | $123,016 | - | - | 2.2% |
| Occupancy | $113,737 | $73,882 | $10,939 | $28,916 | 2.1% | |
| Conferences, conventions and meetings | $79,242 | $74,239 | - | $5,003 | 1.4% | |
| Travel | $50,898 | $14,740 | $1,553 | $34,605 | 0.9% | |
| Other (as described) | Bank, Merchant, Investment Fees | $38,056 | $24,721 | $3,660 | $9,675 | 0.7% |
| Office expenses | $26,954 | $12,390 | $1,834 | $12,730 | 0.5% | |
| Fees: investment management | $23,059 | - | $23,059 | - | 0.4% | |
| All other expenses | $20,933 | $10,898 | $1,922 | $8,113 | 0.4% | |
| Depreciation and depletion | $19,843 | $12,890 | $1,908 | $5,045 | 0.4% | |
| Fees: accounting | $17,200 | $11,173 | $1,654 | $4,373 | 0.3% | |
| Insurance | $14,250 | $9,256 | $1,371 | $3,623 | 0.3% | |
| Other (as described) | Dues and Subscriptions | $10,119 | $4,313 | $35 | $5,771 | 0.2% |
| Fees: other services | $9,546 | $6,201 | $918 | $2,427 | 0.2% | |
| Fundraising events Event | direct expenses; gross income $72,450 | $592,247 | reported apart | |||
| Total | $5,529,185 | 100% |
2024 · Form 990 · $6,196,609 spent · pay $2,236,039 · grants $2,900,590 · events $778,887
| Line | As described | Total | Program | Management | Fundraising | Share |
|---|---|---|---|---|---|---|
| Grants to US organizations and governments | $2,194,759 | $2,194,759 | - | - | 35.4% | |
| Other salaries and wages | $1,399,976 | $918,637 | $177,336 | $304,003 | 22.6% | |
| Grants outside the US | $705,831 | $705,831 | - | - | 11.4% | |
| Pay: officers, directors, trustees, key employees | $445,083 | $296,447 | $49,408 | $99,228 | 7.2% | |
| Other employee benefits | $258,319 | $156,135 | $29,663 | $72,521 | 4.2% | |
| Other (as described) | Subcontractors | $203,044 | $177,650 | $1,169 | $24,225 | 3.3% |
| Other (as described) | Advocacy and Awareness | $187,708 | $187,708 | - | - | 3.0% |
| Conferences, conventions and meetings | $151,146 | $139,859 | - | $11,287 | 2.4% | |
| Information technology | $150,564 | $125,356 | $9,280 | $15,928 | 2.4% | |
| Payroll taxes | $132,661 | $80,586 | $15,050 | $37,025 | 2.1% | |
| Occupancy | $109,995 | $73,396 | $11,771 | $24,828 | 1.8% | |
| Travel | $58,943 | $22,439 | $2,852 | $33,652 | 1.0% | |
| Other (as described) | Bank, Merchant, Investment Fees | $47,443 | $30,399 | $4,875 | $12,169 | 0.8% |
| Office expenses | $36,721 | $16,707 | $2,295 | $17,719 | 0.6% | |
| Depreciation and depletion | $25,903 | $16,597 | $2,662 | $6,644 | 0.4% | |
| Fees: investment management | $24,029 | - | $24,029 | - | 0.4% | |
| Fees: accounting | $16,275 | $10,429 | $1,672 | $4,174 | 0.3% | |
| All other expenses | $14,235 | $8,346 | $1,339 | $4,550 | 0.2% | |
| Insurance | $12,956 | $8,302 | $1,331 | $3,323 | 0.2% | |
| Other (as described) | Dues and Subscriptions | $10,944 | $4,762 | $45 | $6,137 | 0.2% |
| Fees: other services | $10,074 | $6,454 | $1,036 | $2,584 | 0.2% | |
| Fundraising events Event | direct expenses; gross income $99,390 | $627,741 | reported apart | |||
| Total | $6,196,609 | 100% |
2023 · Form 990 · $5,993,350 spent · pay $2,243,543 · grants $2,759,409 · events $834,572
| Line | As described | Total | Program | Management | Fundraising | Share |
|---|---|---|---|---|---|---|
| Grants to US organizations and governments | $1,975,934 | $1,975,934 | - | - | 33.0% | |
| Other salaries and wages | $1,076,066 | $776,387 | $135,555 | $164,124 | 18.0% | |
| Grants outside the US | $783,475 | $783,475 | - | - | 13.1% | |
| Pay: officers, directors, trustees, key employees | $747,231 | $474,711 | $82,883 | $189,637 | 12.5% | |
| Other employee benefits | $292,153 | $185,287 | $32,845 | $74,021 | 4.9% | |
| Other (as described) | Advocacy and Awareness | $258,811 | $258,811 | - | - | 4.3% |
| Other (as described) | Computer, Web Development and Internet | $174,175 | $145,072 | $8,851 | $20,252 | 2.9% |
| Payroll taxes | $128,093 | $81,675 | $14,270 | $32,148 | 2.1% | |
| Fees: management | $122,594 | $111,753 | $486 | $10,355 | 2.0% | |
| Occupancy | $117,175 | $75,958 | $12,536 | $28,681 | 2.0% | |
| Conferences, conventions and meetings | $61,087 | $61,087 | - | - | 1.0% | |
| Travel | $54,104 | $17,256 | $2,769 | $34,079 | 0.9% | |
| Other (as described) | Bank, Merchant, Investment Fees | $52,928 | $34,311 | $5,662 | $12,955 | 0.9% |
| Office expenses | $47,959 | $18,060 | $2,466 | $27,433 | 0.8% | |
| Depreciation and depletion | $25,494 | $16,527 | $2,727 | $6,240 | 0.4% | |
| Fees: investment management | $20,094 | - | $20,094 | - | 0.3% | |
| Insurance | $18,972 | $12,298 | $2,030 | $4,644 | 0.3% | |
| Fees: accounting | $15,055 | $13,350 | $1,705 | - | 0.3% | |
| Fees: other services | $14,703 | $13,130 | $1,573 | - | 0.2% | |
| Other (as described) | Other Expenses | $7,247 | $2,333 | $1,462 | $3,452 | 0.1% |
| Fundraising events Event | direct expenses; gross income $196,994 | $773,485 | reported apart | |||
| Total | $5,993,350 | 100% |
2022 · Form 990 · $5,793,113 spent · pay $2,174,207 · grants $2,804,485 · events $671,567
| Line | As described | Total | Program | Management | Fundraising | Share |
|---|---|---|---|---|---|---|
| Grants to US organizations and governments | $2,155,773 | $2,155,773 | - | - | 37.2% | |
| Pay: officers, directors, trustees, key employees | $1,276,512 | $923,032 | $148,076 | $205,404 | 22.0% | |
| Grants outside the US | $648,712 | $648,712 | - | - | 11.2% | |
| Other salaries and wages | $555,921 | $304,794 | $71,591 | $179,536 | 9.6% | |
| Other (as described) | Advocacy and Awareness | $296,901 | $296,901 | - | - | 5.1% |
| Other employee benefits | $221,020 | $148,880 | $25,909 | $46,231 | 3.8% | |
| Information technology | $126,590 | $118,522 | $8,068 | - | 2.2% | |
| Payroll taxes | $120,754 | $79,565 | $15,923 | $25,266 | 2.1% | |
| Occupancy | $81,386 | $69,027 | $12,359 | - | 1.4% | |
| Office expenses | $61,189 | $53,569 | $7,620 | - | 1.1% | |
| Conferences, conventions and meetings | $58,870 | $58,870 | - | - | 1.0% | |
| Fees: other services | $43,726 | $42,422 | $1,304 | - | 0.8% | |
| Travel | $39,882 | $34,652 | $5,230 | - | 0.7% | |
| Fees: accounting | $26,592 | $23,085 | $3,507 | - | 0.5% | |
| Depreciation and depletion | $20,997 | $13,997 | $2,506 | $4,494 | 0.4% | |
| Other (as described) | Other Expenses | $18,321 | $15,538 | $2,783 | - | 0.3% |
| Fees: investment management | $15,951 | - | $15,951 | - | 0.3% | |
| Insurance | $10,935 | $9,274 | $1,661 | - | 0.2% | |
| Other (as described) | State registrations | $9,951 | $8,440 | $1,511 | - | 0.2% |
| Other (as described) | Supplies | $3,130 | $2,655 | $475 | - | 0.1% |
| Fundraising events Event | direct expenses; gross income $60,150 | $612,697 | reported apart | |||
| Total | $5,793,113 | 100% |
2021 · Form 990 · $5,841,537 spent · pay $1,948,967 · grants $3,021,455 · events $307,954
| Line | As described | Total | Program | Management | Fundraising | Share |
|---|---|---|---|---|---|---|
| Grants to US organizations and governments | $2,333,868 | $2,333,868 | - | - | 40.0% | |
| Other salaries and wages | $956,441 | $687,356 | $131,484 | $137,601 | 16.4% | |
| Pay: officers, directors, trustees, key employees | $757,313 | $487,962 | $93,979 | $175,372 | 13.0% | |
| Grants outside the US | $687,587 | $687,587 | - | - | 11.8% | |
| Advertising and promotion | $282,794 | $282,794 | - | - | 4.8% | |
| Payroll taxes | $114,501 | $74,181 | $14,038 | $26,282 | 2.0% | |
| Occupancy | $106,592 | $68,717 | $13,145 | $24,730 | 1.8% | |
| Other employee benefits | $93,519 | $59,974 | $12,247 | $21,298 | 1.6% | |
| Information technology | $93,096 | $58,983 | $11,706 | $22,407 | 1.6% | |
| Fees: other services | $91,814 | $69,698 | $2,985 | $19,131 | 1.6% | |
| Office expenses | $82,256 | $38,607 | $7,317 | $36,332 | 1.4% | |
| Conferences, conventions and meetings | $52,732 | $52,313 | $419 | - | 0.9% | |
| Fees: lobbying | $40,000 | $40,000 | - | - | 0.7% | |
| Fees: accounting | $33,400 | $27,796 | $756 | $4,848 | 0.6% | |
| Pension plan contributions | $27,193 | $17,439 | $3,561 | $6,193 | 0.5% | |
| Travel | $19,930 | $18,304 | $644 | $982 | 0.3% | |
| Depreciation and depletion | $18,589 | $11,984 | $2,292 | $4,313 | 0.3% | |
| Fees: investment management | $16,157 | - | $16,157 | - | 0.3% | |
| Insurance | $13,105 | $8,449 | $1,616 | $3,040 | 0.2% | |
| Other (as described) | LICENSES & FEES | $12,811 | $8,259 | $1,580 | $2,972 | 0.2% |
| Other (as described) | DUES & SUBSCRIPTIONS | $4,275 | $3,028 | $83 | $1,164 | 0.1% |
| All other expenses | $3,564 | $5,609 | $1,188 | -$3,233 | 0.1% | |
| Fundraising events Event | direct expenses; gross income $2,161 | $255,222 | reported apart | |||
| Total | $5,841,537 | 100% |
2020 · Form 990 · $7,549,802 spent · pay $1,928,861 · grants $4,747,582 · events $148,515
| Line | As described | Total | Program | Management | Fundraising | Share |
|---|---|---|---|---|---|---|
| Grants to US organizations and governments | $4,522,948 | $4,522,948 | - | - | 59.9% | |
| Other salaries and wages | $975,002 | $653,596 | $124,535 | $196,871 | 12.9% | |
| Pay: officers, directors, trustees, key employees | $730,520 | $488,698 | $94,041 | $147,781 | 9.7% | |
| Information technology | $232,058 | $198,358 | $10,317 | $23,383 | 3.1% | |
| Grants outside the US | $224,634 | $224,634 | - | - | 3.0% | |
| Advertising and promotion | $168,290 | $168,290 | - | - | 2.2% | |
| Fees: other services | $121,207 | $23,235 | $1,918 | $96,054 | 1.6% | |
| Payroll taxes | $105,711 | $73,516 | $10,633 | $21,562 | 1.4% | |
| Other employee benefits | $96,517 | $64,562 | $12,806 | $19,149 | 1.3% | |
| Office expenses | $93,803 | $50,749 | $9,216 | $33,838 | 1.2% | |
| Occupancy | $90,549 | $60,665 | $11,579 | $18,305 | 1.2% | |
| Fees: accounting | $33,218 | $27,383 | $2,261 | $3,574 | 0.4% | |
| Fees: investment management | $26,567 | - | $26,567 | - | 0.4% | |
| Conferences, conventions and meetings | $24,194 | $2,363 | $122 | $21,709 | 0.3% | |
| Pension plan contributions | $21,111 | $14,121 | $2,801 | $4,189 | 0.3% | |
| Depreciation and depletion | $17,721 | $11,873 | $2,266 | $3,582 | 0.2% | |
| Other (as described) | LICENSES & FEES | $17,282 | $11,578 | $2,210 | $3,494 | 0.2% |
| Insurance | $16,314 | $10,930 | $2,086 | $3,298 | 0.2% | |
| Travel | $15,290 | $8,573 | $3,959 | $2,758 | 0.2% | |
| All other expenses | $9,286 | $6,095 | $961 | $2,230 | 0.1% | |
| Other (as described) | DUES & SUBSCRIPTIONS | $7,580 | $5,323 | $528 | $1,729 | 0.1% |
| Fundraising events Event | direct expenses; gross income $0 | $124,321 | reported apart | |||
| Total | $7,549,802 | 100% |
2019 · Form 990 · $6,263,446 spent · pay $1,719,233 · grants $3,260,536 · events $560,529
| Line | As described | Total | Program | Management | Fundraising | Share |
|---|---|---|---|---|---|---|
| Grants to US organizations and governments | $3,012,890 | $3,012,890 | - | - | 48.1% | |
| Other salaries and wages | $897,981 | $609,433 | $135,253 | $153,295 | 14.3% | |
| Pay: officers, directors, trustees, key employees | $608,551 | $408,237 | $92,168 | $108,146 | 9.7% | |
| Grants outside the US | $247,646 | $247,646 | - | - | 4.0% | |
| Advertising and promotion | $206,539 | $206,539 | - | - | 3.3% | |
| Fees: other services | $183,461 | $160,335 | $22,041 | $1,085 | 2.9% | |
| Office expenses | $182,541 | $111,656 | $22,370 | $48,515 | 2.9% | |
| Conferences, conventions and meetings | $162,418 | $54,528 | $440 | $107,450 | 2.6% | |
| Information technology | $155,342 | $121,893 | $15,679 | $17,770 | 2.5% | |
| Payroll taxes | $105,472 | $71,010 | $15,664 | $18,798 | 1.7% | |
| Fees: accounting | $98,701 | $69,513 | $11,442 | $17,746 | 1.6% | |
| Occupancy | $90,789 | $60,487 | $14,204 | $16,098 | 1.4% | |
| Other employee benefits | $89,787 | $58,426 | $15,405 | $15,956 | 1.4% | |
| Travel | $46,723 | $44,453 | $2,270 | - | 0.7% | |
| All other expenses | $39,388 | $17,760 | $2,265 | $19,363 | 0.6% | |
| Fees: professional fundraisers | $36,574 | - | - | $36,574 | 0.6% | |
| Fees: investment management | $25,920 | $14,515 | $6,740 | $4,665 | 0.4% | |
| Depreciation and depletion | $17,534 | $11,682 | $2,743 | $3,109 | 0.3% | |
| Pension plan contributions | $17,442 | $11,350 | $2,993 | $3,099 | 0.3% | |
| Other (as described) | LICENSES & FEES | $17,270 | $11,506 | $2,702 | $3,062 | 0.3% |
| Insurance | $10,897 | $7,260 | $1,705 | $1,932 | 0.2% | |
| Other (as described) | DUES & SUBSCRIPTIONS | $9,580 | $6,836 | $1,279 | $1,465 | 0.2% |
| Fundraising events Event | direct expenses; gross income $154,550 | $398,111 | reported apart | |||
| Total | $6,263,446 | 100% |
2018 · Form 990 · $5,969,013 spent · pay $1,149,320 · grants $3,205,929 · events $853,560
| Line | As described | Total | Program | Management | Fundraising | Share |
|---|---|---|---|---|---|---|
| Grants to US organizations and governments | $3,152,389 | $3,152,389 | - | - | 52.8% | |
| Pay: officers, directors, trustees, key employees | $567,571 | $373,067 | $53,447 | $141,057 | 9.5% | |
| Conferences, conventions and meetings | $496,729 | $135,667 | $1,089 | $359,973 | 8.3% | |
| Other salaries and wages | $435,500 | $286,966 | $39,948 | $108,586 | 7.3% | |
| Fees: other services | $256,036 | $195,873 | $23,748 | $36,415 | 4.3% | |
| Information technology | $237,983 | $206,321 | $12,498 | $19,164 | 4.0% | |
| Travel | $148,392 | $138,730 | $3,809 | $5,853 | 2.5% | |
| Office expenses | $126,767 | $78,595 | $19,016 | $29,156 | 2.1% | |
| Fees: management | $94,500 | $72,294 | $8,766 | $13,440 | 1.6% | |
| Occupancy | $89,368 | $55,408 | $13,405 | $20,555 | 1.5% | |
| Payroll taxes | $84,014 | $65,085 | $8,332 | $10,597 | 1.4% | |
| Other employee benefits | $54,596 | $33,850 | $8,189 | $12,557 | 0.9% | |
| Grants outside the US | $53,540 | $53,540 | - | - | 0.9% | |
| Other (as described) | EEF | $45,000 | - | - | $45,000 | 0.8% |
| Other (as described) | DUES & SUBSCRIPTIONS | $24,036 | $14,903 | $3,605 | $5,528 | 0.4% |
| Fees: accounting | $21,402 | $16,373 | $1,985 | $3,044 | 0.4% | |
| Depreciation and depletion | $18,923 | $11,733 | $2,838 | $4,352 | 0.3% | |
| All other expenses | $18,888 | $14,384 | $1,778 | $2,726 | 0.3% | |
| Other (as described) | LICENSES & FEES | $16,348 | $10,132 | $2,454 | $3,762 | 0.3% |
| Insurance | $12,269 | $7,607 | $1,840 | $2,822 | 0.2% | |
| Pension plan contributions | $7,639 | $4,736 | $1,146 | $1,757 | 0.1% | |
| Advertising and promotion | $7,123 | $7,123 | - | - | 0.1% | |
| Fundraising events Event | direct expenses; gross income $169,500 | $356,831 | reported apart | |||
| Total | $5,969,013 | 100% |
2017 · Form 990 · $4,549,237 spent · pay $1,717,905 · grants $1,839,338 · events $583,208
| Line | As described | Total | Program | Management | Fundraising | Share |
|---|---|---|---|---|---|---|
| Grants to US organizations and governments | $1,757,613 | $1,757,613 | - | - | 38.6% | |
| Other salaries and wages | $933,360 | $501,463 | $156,647 | $275,250 | 20.5% | |
| Pay: officers, directors, trustees, key employees | $590,213 | $322,205 | $98,279 | $169,729 | 13.0% | |
| Conferences, conventions and meetings | $277,700 | $219,646 | $4,430 | $53,624 | 6.1% | |
| Office expenses | $143,614 | $34,727 | $48,999 | $59,888 | 3.2% | |
| Information technology | $128,260 | $101,000 | $13,630 | $13,630 | 2.8% | |
| Fees: other services | $116,307 | $100,241 | $8,033 | $8,033 | 2.6% | |
| Payroll taxes | $105,268 | $59,542 | $13,043 | $32,683 | 2.3% | |
| Occupancy | $86,633 | $62,377 | $12,128 | $12,128 | 1.9% | |
| Grants outside the US | $81,725 | $81,725 | - | - | 1.8% | |
| Other employee benefits | $81,304 | $58,540 | $11,382 | $11,382 | 1.8% | |
| Travel | $68,925 | $35,628 | $32,522 | $775 | 1.5% | |
| Other (as described) | BAD DEBT | $65,051 | - | $65,051 | - | 1.4% |
| Other (as described) | DUES & SUBSCRIPTIONS | $23,301 | $16,777 | $3,262 | $3,262 | 0.5% |
| Depreciation and depletion | $19,974 | $14,382 | $2,796 | $2,796 | 0.4% | |
| Fees: accounting | $19,081 | $13,739 | $2,671 | $2,671 | 0.4% | |
| Advertising and promotion | $17,033 | $17,033 | - | - | 0.4% | |
| Insurance | $11,002 | $7,922 | $1,540 | $1,540 | 0.2% | |
| Other (as described) | LICENSES & FEES | $10,208 | $5,104 | - | $5,104 | 0.2% |
| Pension plan contributions | $7,760 | $5,586 | $1,087 | $1,087 | 0.2% | |
| All other expenses | $4,905 | - | $4,905 | - | 0.1% | |
| Fundraising events Event | direct expenses; gross income $154,650 | $305,508 | reported apart | |||
| Total | $4,549,237 | 100% |
2016 · Form 990 · $6,070,422 spent · pay $1,547,268 · grants $3,369,674 · events $759,303
| Line | As described | Total | Program | Management | Fundraising | Share |
|---|---|---|---|---|---|---|
| Grants to US organizations and governments | $3,069,774 | $3,069,774 | - | - | 50.6% | |
| Other salaries and wages | $1,054,478 | $759,224 | $147,627 | $147,627 | 17.4% | |
| Conferences, conventions and meetings | $362,689 | $141,232 | $14,696 | $206,761 | 6.0% | |
| Grants outside the US | $299,900 | $299,900 | - | - | 4.9% | |
| Pay: officers, directors, trustees, key employees | $285,176 | $205,326 | $39,925 | $39,925 | 4.7% | |
| Information technology | $193,581 | $163,843 | $14,869 | $14,869 | 3.2% | |
| Fees: other services | $137,243 | $98,815 | $19,214 | $19,214 | 2.3% | |
| Office expenses | $129,820 | $37,078 | $48,598 | $44,144 | 2.1% | |
| Other employee benefits | $107,293 | $77,251 | $15,021 | $15,021 | 1.8% | |
| Travel | $97,936 | $57,297 | $39,864 | $775 | 1.6% | |
| Payroll taxes | $90,769 | $65,353 | $12,708 | $12,708 | 1.5% | |
| Occupancy | $79,845 | $57,490 | $11,178 | $11,177 | 1.3% | |
| Other (as described) | BAD DEBT | $50,000 | - | $50,000 | - | 0.8% |
| Other (as described) | DUES & SUBSCRIPTIONS | $24,341 | $17,525 | $3,408 | $3,408 | 0.4% |
| Depreciation and depletion | $19,149 | $13,787 | $2,681 | $2,681 | 0.3% | |
| Advertising and promotion | $16,263 | $16,263 | - | - | 0.3% | |
| Fees: accounting | $14,005 | $10,083 | $1,961 | $1,961 | 0.2% | |
| Other (as described) | LICENSES & FEES | $12,938 | $6,469 | - | $6,469 | 0.2% |
| Insurance | $12,583 | $9,059 | $1,762 | $1,762 | 0.2% | |
| Pension plan contributions | $9,552 | $6,878 | $1,337 | $1,337 | 0.2% | |
| All other expenses | $3,087 | - | $3,087 | - | 0.1% | |
| Fundraising events Event | direct expenses; gross income $160,050 | $396,614 | reported apart | |||
| Total | $6,070,422 | 100% |
2015 · Form 990 · $6,919,066 spent · pay $1,307,742 · grants $4,452,139 · events $890,826
| Line | As described | Total | Program | Management | Fundraising | Share |
|---|---|---|---|---|---|---|
| Grants to US organizations and governments | $3,468,939 | $3,468,939 | - | - | 50.1% | |
| Grants outside the US | $983,200 | $983,200 | - | - | 14.2% | |
| Other salaries and wages | $858,616 | $618,202 | $120,207 | $120,207 | 12.4% | |
| Conferences, conventions and meetings | $410,274 | $306,297 | $15,278 | $88,699 | 5.9% | |
| Pay: officers, directors, trustees, key employees | $261,794 | $188,492 | $36,651 | $36,651 | 3.8% | |
| Fees: other services | $256,862 | $184,940 | $35,961 | $35,961 | 3.7% | |
| Office expenses | $151,385 | $66,862 | $43,518 | $41,005 | 2.2% | |
| Other employee benefits | $110,587 | $79,623 | $15,482 | $15,482 | 1.6% | |
| Information technology | $103,550 | $84,188 | $9,681 | $9,681 | 1.5% | |
| Occupancy | $82,902 | $58,106 | $13,498 | $11,298 | 1.2% | |
| Payroll taxes | $67,193 | $48,379 | $9,407 | $9,407 | 1.0% | |
| Travel | $66,836 | $43,696 | $22,703 | $437 | 1.0% | |
| Other (as described) | DUES & SUBSCRIPTIONS | $19,717 | $14,197 | $2,760 | $2,760 | 0.3% |
| Advertising and promotion | $17,920 | $17,920 | - | - | 0.3% | |
| Other (as described) | LICENSES & FEES | $13,636 | $6,818 | $0 | $6,818 | 0.2% |
| Fees: accounting | $13,390 | $9,640 | $1,875 | $1,875 | 0.2% | |
| Depreciation and depletion | $12,769 | $9,193 | $1,788 | $1,788 | 0.2% | |
| Insurance | $9,944 | $7,160 | $1,392 | $1,392 | 0.1% | |
| Pension plan contributions | $9,552 | $6,878 | $1,337 | $1,337 | 0.1% | |
| Fundraising events Event | direct expenses; gross income $198,750 | $480,552 | reported apart | |||
| Total | $6,919,066 | 100% |
2014 · Form 990 · $6,699,278 spent · pay $752,661 · grants $4,832,430 · events $861,776
| Line | As described | Total | Program | Management | Fundraising | Share |
|---|---|---|---|---|---|---|
| Grants to US organizations and governments | $3,833,143 | $3,833,143 | - | - | 57.2% | |
| Grants outside the US | $999,287 | $999,287 | - | - | 14.9% | |
| Other salaries and wages | $519,493 | $399,274 | $59,541 | $60,678 | 7.8% | |
| Conferences, conventions and meetings | $301,723 | $221,207 | - | $80,516 | 4.5% | |
| Fees: other services | $294,360 | $185,278 | $80,170 | $28,912 | 4.4% | |
| Pay: officers, directors, trustees, key employees | $122,284 | $61,142 | $30,571 | $30,571 | 1.8% | |
| Office expenses | $119,341 | $60,075 | $35,982 | $23,284 | 1.8% | |
| Information technology | $108,752 | $70,490 | $23,164 | $15,098 | 1.6% | |
| Travel | $98,757 | $65,375 | $26,995 | $6,387 | 1.5% | |
| Occupancy | $65,364 | $47,075 | $9,135 | $9,154 | 1.0% | |
| Fees: accounting | $62,128 | - | $62,128 | - | 0.9% | |
| Other employee benefits | $52,063 | $38,249 | $6,963 | $6,851 | 0.8% | |
| Payroll taxes | $48,176 | $34,689 | $6,727 | $6,760 | 0.7% | |
| Other (as described) | LICENSES & FEES | $15,435 | $7,490 | $10 | $7,935 | 0.2% |
| Depreciation and depletion | $15,315 | - | $15,315 | - | 0.2% | |
| Other (as described) | DUES & SUBSCRIPTIONS | $10,855 | $3,520 | $4,085 | $3,250 | 0.2% |
| Insurance | $10,717 | $7,578 | $1,659 | $1,480 | 0.2% | |
| Pension plan contributions | $10,645 | $7,605 | $1,478 | $1,562 | 0.2% | |
| Advertising and promotion | $8,557 | $7,553 | - | $1,004 | 0.1% | |
| Other (as described) | MISCELLANEOUS | $2,883 | $588 | $2,295 | - | 0.0% |
| Fundraising events Event | direct expenses; gross income $222,550 | $560,053 | reported apart | |||
| Total | $6,699,278 | 100% |
2013 · Form 990 · $4,530,617 spent · pay $865,470 · grants $2,792,588 · events $383,396
| Line | As described | Total | Program | Management | Fundraising | Share |
|---|---|---|---|---|---|---|
| Grants to US organizations and governments | $2,543,290 | $2,543,290 | - | - | 56.1% | |
| Other salaries and wages | $509,346 | $345,206 | $31,811 | $132,329 | 11.2% | |
| Grants outside the US | $249,298 | $249,298 | - | - | 5.5% | |
| Pay: officers, directors, trustees, key employees | $240,157 | $120,984 | $59,134 | $60,039 | 5.3% | |
| Office expenses | $178,759 | $100,084 | $47,731 | $30,944 | 3.9% | |
| Fees: other services | $178,121 | $105,535 | $2,919 | $69,667 | 3.9% | |
| Conferences, conventions and meetings | $136,616 | $30,790 | - | $105,826 | 3.0% | |
| Travel | $120,546 | $70,469 | $35,735 | $14,342 | 2.7% | |
| Information technology | $84,617 | $61,359 | $1,675 | $21,583 | 1.9% | |
| Other employee benefits | $59,061 | $36,981 | $8,409 | $13,671 | 1.3% | |
| All other expenses | $58,293 | $54,074 | - | $4,219 | 1.3% | |
| Occupancy | $56,226 | $33,954 | $9,239 | $13,033 | 1.2% | |
| Payroll taxes | $52,818 | $32,933 | $6,251 | $13,634 | 1.2% | |
| Advertising and promotion | $16,911 | $16,911 | - | - | 0.4% | |
| Other (as described) | LICENSES & FEES | $13,614 | $6,594 | $329 | $6,691 | 0.3% |
| Fees: accounting | $12,700 | - | $12,700 | - | 0.3% | |
| Insurance | $6,222 | $3,289 | $1,070 | $1,863 | 0.1% | |
| Depreciation and depletion | $6,070 | - | $6,070 | - | 0.1% | |
| Pension plan contributions | $4,088 | $2,410 | $616 | $1,062 | 0.1% | |
| Other (as described) | DUES & SUBSCRIPTIONS | $3,864 | $2,960 | $904 | $0 | 0.1% |
| Fundraising events Event | direct expenses; gross income $100,700 | $246,780 | reported apart | |||
| Total | $4,530,617 | 100% |
2012 · Form 990 · $5,008,421 spent · pay $669,317 · grants $3,405,292 · events $482,352
| Line | As described | Total | Program | Management | Fundraising | Share |
|---|---|---|---|---|---|---|
| Grants to US organizations and governments | $3,207,276 | $3,207,276 | - | - | 64.0% | |
| Other salaries and wages | $315,992 | $213,622 | $6,704 | $95,666 | 6.3% | |
| Conferences, conventions and meetings | $305,104 | $12,149 | - | $292,955 | 6.1% | |
| Pay: officers, directors, trustees, key employees | $254,709 | $128,418 | $62,614 | $63,677 | 5.1% | |
| Grants outside the US | $198,016 | $198,016 | - | - | 4.0% | |
| Fees: other services | $182,878 | $99,454 | $10,918 | $72,506 | 3.7% | |
| Office expenses | $134,402 | $45,836 | $40,471 | $48,095 | 2.7% | |
| Travel | $114,689 | $69,588 | $20,090 | $25,011 | 2.3% | |
| Information technology | $93,920 | $62,513 | $535 | $30,872 | 1.9% | |
| Other employee benefits | $49,191 | $27,149 | $9,476 | $12,566 | 1.0% | |
| Occupancy | $48,468 | $27,587 | $7,935 | $12,946 | 1.0% | |
| Payroll taxes | $43,905 | $26,223 | $5,445 | $12,237 | 0.9% | |
| Advertising and promotion | $16,540 | $16,540 | - | - | 0.3% | |
| Other (as described) | LICENSES & FEES | $15,051 | $7,103 | $28 | $7,920 | 0.3% |
| Fees: accounting | $7,500 | - | $7,500 | - | 0.1% | |
| Insurance | $5,655 | $2,975 | $976 | $1,704 | 0.1% | |
| Pension plan contributions | $5,520 | $2,957 | $805 | $1,758 | 0.1% | |
| Depreciation and depletion | $4,850 | - | $4,850 | - | 0.1% | |
| Other (as described) | DUES & SUBSCRIPTIONS | $4,430 | $2,554 | $1,562 | $314 | 0.1% |
| All other expenses | $325 | - | - | $325 | 0.0% | |
| Fundraising events Event | direct expenses; gross income - | $177,248 | reported apart | |||
| Total | $5,008,421 | 100% |
Federal lobbying
Lobbying Disclosure Act reports naming a client or registrant with this organization's name and state. Spent: what lobbying for it cost (firm income plus its own reported expenses). Earned: income it reported as a lobbying firm.
| Year | Spent | Earned | Reports |
|---|---|---|---|
| 2009 | $60,000 | 5 | |
| 2006 | $60,000 | 4 |
Issues: Budget/Appropriations, Medical/Disease Research/Clinical Labs, Health Issues
Firms hired: MARC ASSOCIATES, INC., CAVAROCCHI RUSCIO DENNIS ASSOCIATES, L.L.C.
Federal grants and contracts
Awards from USAspending.gov to a recipient with this organization's name and zip code. Obligations by federal fiscal year (October to September); each award links to its page on usaspending.gov.
| Fiscal year | Grants and other assistance | Contracts | Awards |
|---|---|---|---|
| 2021 | $0 | $0 | 1 |
Largest awards · 0 shown
| Year | Agency | Kind | Program | Description | Obligated |
|---|
Trademarks
9 US trademarks, 4 live.
- Citizens United for Research in Epilepsy 9 marks, IL EXACT high confidence: identical full name and state
| Mark | Serial | Filed | Status | Source |
|---|---|---|---|---|
| C | 97302332 | 2022-03-09 | Registered | TRTYRAP, file of 2026-04-03 |
| C | 97302330 | 2022-03-09 | Registered | TRTYRAP, file of 2026-04-03 |
| CURE EPILEPSY | 90389344 | 2020-12-17 | Abandoned | TRCFECO2, file of 2024-03-27 |
| CURE EPILEPSY | 90389329 | 2020-12-17 | Abandoned | TRCFECO2, file of 2024-03-27 |
| SEIZING LIFE | 88371990 | 2019-04-04 | Registered | TRTYRAP, file of 2026-04-03 |
| CURE EPILEPSY | 77765807 | 2009-06-23 | Abandoned | TRCFECO2, file of 2024-03-27 |
| CURE CITIZENS UNITED FOR RESEARCH IN EPILEPSY | 77765373 | 2009-06-22 | Registered and renewed | TRTYRAP, file of 2026-04-03 |
| IT'S TIME WE FOUND A CURE | 77765372 | 2009-06-22 | Registration cancelled | TRCFECO2, file of 2024-03-27 |
| CURE (CITIZENS UNITED FOR RESEARCH IN EPILEPSY) | 77602800 | 2008-10-29 | Abandoned | TRCFECO2, file of 2024-03-27 |
The newest marks of the trademark owners above, matched to this record by name (and state).
Comments