CITIZENS UNITED FOR RESEARCH IN EPILEPSY: Form 990, tax year 2012
View the entire original 990 at ProPublica ↗
- Organization
- CITIZENS UNITED FOR RESEARCH IN EPILEPSY (EIN 36-4253176)
- Tax period
- 2012-01-01 to 2012-12-31
- Filed
- 2013-05-13
- IRS object ID
- 201311339349304351
- Schema version
- 2012v2.1
- Source
- Download XML · Original 990 at ProPublica
Every field in the e-filed return. Faint text is the IRS element name, for citing.
- Return header
- Form 990
- Schedule A
- Schedule B
- Schedule C
- Schedule D
- Schedule F
- Schedule G
- Schedule I
- Schedule J
- Schedule M
- Schedule O
Return header ReturnHeader
| Field | Value | IRS element (for citing) |
|---|---|---|
| Timestamp | 2013-05-13T16:00:36-05:00 | Timestamp |
| Tax Period End Date | 2012-12-31 | TaxPeriodEndDate |
Preparer Firm PreparerFirm
| Field | Value | IRS element (for citing) |
|---|---|---|
| EIN | 521446779 | EIN |
Preparer Firm Business Name PreparerFirmBusinessName
| Field | Value | IRS element (for citing) |
|---|---|---|
| Business Name Line1 | JOHNSON LAMBERT LLP | BusinessNameLine1 |
Preparer Firm US Address PreparerFirmUSAddress
| Field | Value | IRS element (for citing) |
|---|---|---|
| Address Line1 | 700 SPRING FOREST RD STE 115 | AddressLine1 |
| City | RALEIGH | City |
| State | NC | State |
| ZIP Code | 27609 | ZIPCode |
| Field | Value | IRS element (for citing) |
|---|---|---|
| Return Type | 990 | ReturnType |
| Tax Period Begin Date | 2012-01-01 | TaxPeriodBeginDate |
Filer Filer
| Field | Value | IRS element (for citing) |
|---|---|---|
| EIN | 364253176 | EIN |
Name Name
| Field | Value | IRS element (for citing) |
|---|---|---|
| Business Name Line1 | CITIZENS UNITED FOR RESEARCH IN EPILEPSY | BusinessNameLine1 |
| Field | Value | IRS element (for citing) |
|---|---|---|
| Name Control | CITI | NameControl |
| Phone | 8007657118 | Phone |
US Address USAddress
| Field | Value | IRS element (for citing) |
|---|---|---|
| Address Line1 | 223 W ERIE NO 2SW | AddressLine1 |
| City | CHICAGO | City |
| State | IL | State |
| ZIP Code | 60654 | ZIPCode |
Officer Officer
| Field | Value | IRS element (for citing) |
|---|---|---|
| Name | BOGDAN EWENDT | Name |
| Title | EXECUTIVE DIRECTOR | Title |
| Phone | 8007657118 | Phone |
| Date Signed | 2013-05-09 | DateSigned |
| Authorize Third Party | 1 | AuthorizeThirdParty |
Preparer Preparer
| Field | Value | IRS element (for citing) |
|---|---|---|
| Name | JOHN HUSKINS | Name |
| PTIN | P01081531 | PTIN |
| Phone | 9197196400 | Phone |
| Date Prepared | 2013-05-13 | DatePrepared |
| Field | Value | IRS element (for citing) |
|---|---|---|
| Tax Year | 2012 | TaxYear |
| Build TS | 2016-02-25 16:41:14Z | BuildTS |
Form 990 IRS990
| Field | Value | IRS element (for citing) |
|---|---|---|
| Name Of Principal Officer Person | BOGDAN EWENDT | NameOfPrincipalOfficerPerson |
Address Principal Officer US AddressPrincipalOfficerUS
| Field | Value | IRS element (for citing) |
|---|---|---|
| Address Line1 | 223 W ERIE NO 2SW | AddressLine1 |
| City | CHICAGO | City |
| State | IL | State |
| ZIP Code | 60654 | ZIPCode |
| Field | Value | IRS element (for citing) |
|---|---|---|
| Gross Receipts | 5954729 | GrossReceipts |
| Group Return For Affiliates | 0 | GroupReturnForAffiliates |
| Organization501c3 | X | Organization501c3 |
| Web Site | WWW.CUREEPILEPSY.ORG | WebSite |
| Type Of Organization Corporation | X | TypeOfOrganizationCorporation |
| Year Formation | 1998 | YearFormation |
| State Legal Domicile | IL | StateLegalDomicile |
| Activity Or Mission Description | TO PROVIDE FUNDING FOR RESEARCH TO FIND A CURE FOR EPILEPSY. | ActivityOrMissionDescription |
| Nbr Voting Members Governing Body | 14 | NbrVotingMembersGoverningBody |
| Nbr Independent Voting Members | 14 | NbrIndependentVotingMembers |
| Total Nbr Employees | 14 | TotalNbrEmployees |
| Total Nbr Volunteers | 370 | TotalNbrVolunteers |
| Total Gross UBI | 0 | TotalGrossUBI |
| Net Unrelated Business Txbl Income | 0 | NetUnrelatedBusinessTxblIncome |
| Contributions Grants Prior Year | 2000856 | ContributionsGrantsPriorYear |
| Contributions Grants Current Year | 5517115 | ContributionsGrantsCurrentYear |
| Program Service Revenue Prior Year | 0 | ProgramServiceRevenuePriorYear |
| Program Service Revenue CY | 0 | ProgramServiceRevenueCY |
| Investment Income Prior Year | 209590 | InvestmentIncomePriorYear |
| Investment Income Current Year | 159182 | InvestmentIncomeCurrentYear |
| Other Revenue Prior Year | 1990467 | OtherRevenuePriorYear |
| Other Revenue Current Year | -88331 | OtherRevenueCurrentYear |
| Total Revenue Prior Year | 4200913 | TotalRevenuePriorYear |
| Total Revenue Current Year | 5587966 | TotalRevenueCurrentYear |
| Grants And Similar Amnts Prior Year | 1814000 | GrantsAndSimilarAmntsPriorYear |
| Grants And Similar Amnts CY | 3405292 | GrantsAndSimilarAmntsCY |
| Benefits Paid To Members Prior Year | 0 | BenefitsPaidToMembersPriorYear |
| Benefits Paid To Members CY | 0 | BenefitsPaidToMembersCY |
| Salaries Etc Prior Year | 474052 | SalariesEtcPriorYear |
| Salaries Etc Current Year | 669317 | SalariesEtcCurrentYear |
| Total Prof Fundrsng Exp Prior Year | 0 | TotalProfFundrsngExpPriorYear |
| Total Prof Fundrsng Exp CY | 0 | TotalProfFundrsngExpCY |
| Total Fundrsng Exp Current Year | 678552 | TotalFundrsngExpCurrentYear |
| Other Expense Prior Year | 442075 | OtherExpensePriorYear |
| Other Expenses Current Year | 933812 | OtherExpensesCurrentYear |
| Total Expenses Prior Year | 2730127 | TotalExpensesPriorYear |
| Total Expenses Current Year | 5008421 | TotalExpensesCurrentYear |
| Revenues Less Expenses Prior Year | 1470786 | RevenuesLessExpensesPriorYear |
| Revenues Less Expenses CY | 579545 | RevenuesLessExpensesCY |
| Total Assets BOY | 9178806 | TotalAssetsBOY |
| Total Assets EOY | 11308591 | TotalAssetsEOY |
| Total Liabilities BOY | 1873059 | TotalLiabilitiesBOY |
| Total Liabilities EOY | 3118509 | TotalLiabilitiesEOY |
| Net Assets Or Fund Balances BOY | 7305747 | NetAssetsOrFundBalancesBOY |
| Net Assets Or Fund Balances EOY | 8190082 | NetAssetsOrFundBalancesEOY |
| Info In Schedule O Part III | X | InfoInScheduleOPartIII |
| Mission Description | CITIZENS UNITED FOR RESEARCH IN EPILEPSY IS DEDICATED TO FINDING A CURE FO EPILEPSY BY RAISING FUNDS FOR RESEARCH AND BY INCREASING AWARENESS OF THE PREVALENCE AND DEVASTATION OF THIS DISEASE. | MissionDescription |
| Significant New Program Services | 0 | SignificantNewProgramServices |
| Significant Change | 0 | SignificantChange |
| Expense | 3729380 | Expense |
| Grants | 3405292 | Grants |
| Description | ISSUING OF GRANTS TO FUND RESEARCH FOR A CURE FOR EPILEPSY. SINCE ITS INCEPTION IN 1998, CURE HAS RAISED MORE THAN $26 MILLION TO FUND EPILEPSY RESEARCH PROJECTS AND OTHER INITIATIVES THAT WILL LEAD THE WAY TO A CURE. CURE AWARDS SEED GRANTS FOR NOVEL RESEARCH PROJECTS THAT ADDRESS THE GOALS OF "NO SEIZURES, NO SIDE EFFECTS." THESE GRANTS ALLOW NEW AND ESTABLISHED INVESTIGATORS TO EXPLORE NEW INNOVATIVE AREAS AND COLLECT THE DATA NECESSARY TO APPLY FOR FURTHER FUNDING BY THE NATIONAL INSTITUTES OF HEALTH (NIH). TO DATE, CURE HAS AWARDED FUNDING FOR OVER 137 CUTTING EDGE PROJECTS. CURE ALSO SPONSORS SCIENTIFIC CONFERENCES THAT ARE WORKING TO BRING THE BRIGHTEST MINDS TOGETHER TO DISCUSS SOME OF OUR BIGGEST AND MOST IMPORTANT ISSUES. | Description |
Activity2 Activity2
| Field | Value | IRS element (for citing) |
|---|---|---|
| Expense | 420580 | Expense |
| Description | INCREASING THE AWARENESS OF THE PREVALENCE AND DEVASTATION OF EPILEPSY. CURE BELIEVES THAT AWARENESS IS A NECESSARY VEHICLE TO INCREASE THE AMOUNT OF FUNDING FOR BASIC RESEARCH TOWARD A CURE FOR EPILEPSY. CURE HAS RECEIVED EXTENSIVE MEDIA COVERAGE FOR EPILEPSY. THIS HAS INCLUDED A FEATURED SEGMENT ON 60 MINUTES WITH KATIE COURIC, A BOSTON GLOBE EDITORIAL ON THE GRAVE UNDERFUNDING OF EPILEPSY RESEARCH, INTERVIEWS AND COVERAGE ON MSNCB'S MORNING JOE, CNN'S PIERS MORGAN, FRANK FONTANA'S DOWN AND DIRTY WITH FRANK FONTANA, A NEW YORK TIMES ARTICLE ON ONE CURE FAMILY'S STRUGGLES WITH EPILEPSY, AND FOX NEWS' SEGMENT ON EPILEPSY AND CURE - FEATURING SUSAN, DAVID, AND LAUREN AXELROD. CURE'S AWARENESS AND ADVOCACY EFFORTS WERE RECOGNIZED BY THE AMERICAN EPILEPSY SOCIETY, AS WELL AS THE INTERNATIONAL LEAGUE AGAINST EPILEPSY, AND THE INTERNATIONAL BUREAU FOR EPILEPSY, AND BY CHICAGO MAGAZINE, WHICH NAMED FOUNDER SUSAN AXELROD A "CHICAGOAN OF THE YEAR." | Description |
| Field | Value | IRS element (for citing) |
|---|---|---|
| Total Program Service Expense | 4149960 | TotalProgramServiceExpense |
| Described In501 C3 | 1 | DescribedIn501C3 |
| Schedule B Required | 1 | ScheduleBRequired |
| Political Activities | 0 | PoliticalActivities |
| Lobbying Activities | 1 | LobbyingActivities |
| Subject To Proxy Tax | 0 | SubjectToProxyTax |
| Donor Advised Funds | 0 | DonorAdvisedFunds |
| Conservation Easements | 0 | ConservationEasements |
| Collections Of Art | 0 | CollectionsOfArt |
| Credit Counseling | 0 | CreditCounseling |
| Term Or Permanent Endowments | 0 | TermOrPermanentEndowments |
| Report Land Bldg Equip | 1 | ReportLandBldgEquip |
| Report Invest Oth Securities | 0 | ReportInvestOthSecurities |
| Report Prog Rel Invest | 0 | ReportProgRelInvest |
| Report Other Assets | 0 | ReportOtherAssets |
| Report Other Liabilities | 0 | ReportOtherLiabilities |
| Report Fin48 Footnote | 0 | ReportFin48Footnote |
| Independent Audit Financial Stmt | 1 | IndependentAuditFinancialStmt |
| Consolidated Audit Financial Stmt | 0 | ConsolidatedAuditFinancialStmt |
| School | 0 | School |
| Foreign Office | 0 | ForeignOffice |
| Foreign Activities | 1 | ForeignActivities |
| More Than5000 K To Organizations | 1 | MoreThan5000KToOrganizations |
| More Than5000 K To Individuals | 0 | MoreThan5000KToIndividuals |
| Professional Fundraising | 0 | ProfessionalFundraising |
| Fundraising Activities | 1 | FundraisingActivities |
| Gaming | 0 | Gaming |
| Hospital | 0 | Hospital |
| Grants To Organizations | 1 | GrantsToOrganizations |
| Grants To Individuals | 0 | GrantsToIndividuals |
| Schedule J Required | 1 | ScheduleJRequired |
| Tax Exempt Bonds | 0 | TaxExemptBonds |
| Excess Benefit Transaction | 0 | ExcessBenefitTransaction |
| Prior Excess Benefit Transaction | 0 | PriorExcessBenefitTransaction |
| Loan To Officer Or DQP | 0 | LoanToOfficerOrDQP |
| Grant To Related Person | 0 | GrantToRelatedPerson |
| Bsnss Rltnshp With Organization | 0 | BsnssRltnshpWithOrganization |
| Bsnss Rltnshp Thru Family Member | 0 | BsnssRltnshpThruFamilyMember |
| Officer Entity With Bsnss Rltnshp | 0 | OfficerEntityWithBsnssRltnshp |
| Deductible Non Cash Contributions | 1 | DeductibleNonCashContributions |
| Deductible Contributions Of Art | 0 | DeductibleContributionsOfArt |
| Terminated | 0 | Terminated |
| Partial Liquidation | 0 | PartialLiquidation |
| Disregarded Entity | 0 | DisregardedEntity |
| Related Entity | 0 | RelatedEntity |
| Related Org Controlled Entity | 0 | RelatedOrgControlledEntity |
| Transfers To Exempt Non Chrtbl Org | 0 | TransfersToExemptNonChrtblOrg |
| Activities Conducted Partnership | 0 | ActivitiesConductedPartnership |
| Schedule O Required | 1 | ScheduleORequired |
| Number Forms Transmitted With1096 | 15 | NumberFormsTransmittedWith1096 |
| Number W2 G Included | 0 | NumberW2GIncluded |
| Compliance With Backup Witholding | 1 | ComplianceWithBackupWitholding |
| Number Of Employees | 14 | NumberOfEmployees |
| Employment Tax Returns Filed | 1 | EmploymentTaxReturnsFiled |
| Unrelated Business Income | 0 | UnrelatedBusinessIncome |
| Foreign Financial Account | 0 | ForeignFinancialAccount |
| Prohibited Tax Shelter Trans | 0 | ProhibitedTaxShelterTrans |
| Taxable Party Notification | 0 | TaxablePartyNotification |
| Non Deductible Contributions | 0 | NonDeductibleContributions |
| Quid Pro Quo Contributions | 1 | QuidProQuoContributions |
| Quid Pro Quo Disclosure | 1 | QuidProQuoDisclosure |
| Form8282 Property Disposed Of | 0 | Form8282PropertyDisposedOf |
| Funds To Pay Premiums | 0 | FundsToPayPremiums |
| Premiums Paid | 0 | PremiumsPaid |
| Indoor Tanning Services | 0 | IndoorTanningServices |
| Info In Schedule O Part VI | X | InfoInScheduleOPartVI |
| Nbr Voting Governing Body Members | 14 | NbrVotingGoverningBodyMembers |
| Number Independent Voting Members | 14 | NumberIndependentVotingMembers |
| Family Or Business Relationship | 0 | FamilyOrBusinessRelationship |
| Delegation Of Management Duties | 0 | DelegationOfManagementDuties |
| Changes To Organizing Docs | 0 | ChangesToOrganizingDocs |
| Material Diversion Or Misuse | 0 | MaterialDiversionOrMisuse |
| Members Or Stockholders | 0 | MembersOrStockholders |
| Election Of Board Members | 0 | ElectionOfBoardMembers |
| Decisions Subject To Approval | 0 | DecisionsSubjectToApproval |
| Minutes Of Governing Body | 1 | MinutesOfGoverningBody |
| Minutes Of Committees | 1 | MinutesOfCommittees |
| Officer Mailing Address | 0 | OfficerMailingAddress |
| Local Chapters | 0 | LocalChapters |
| Form990 Provided To Governing Body | 1 | Form990ProvidedToGoverningBody |
| Conflict Of Interest Policy | 1 | ConflictOfInterestPolicy |
| Annual Disclosure Covered Persons | 1 | AnnualDisclosureCoveredPersons |
| Regular Monitoring Enforcement | 1 | RegularMonitoringEnforcement |
| Whistleblower Policy | 1 | WhistleblowerPolicy |
| Document Retention Policy | 1 | DocumentRetentionPolicy |
| Compensation Process CEO | 1 | CompensationProcessCEO |
| Compensation Process Other | 0 | CompensationProcessOther |
| Investment In Joint Venture | 0 | InvestmentInJointVenture |
| States Where Copy Of Return Is Filed | IL | StatesWhereCopyOfReturnIsFiled |
| States Where Copy Of Return Is Filed | NY | StatesWhereCopyOfReturnIsFiled |
| Upon Request | X | UponRequest |
The Books Are In Care Of TheBooksAreInCareOf
Name Business NameBusiness
| Field | Value | IRS element (for citing) |
|---|---|---|
| Business Name Line1 | BOGDAN EWENDT | BusinessNameLine1 |
| Field | Value | IRS element (for citing) |
|---|---|---|
| Telephone Number | 8007657118 | TelephoneNumber |
Address US AddressUS
| Field | Value | IRS element (for citing) |
|---|---|---|
| Address Line1 | 223 W ERIE NO 2SW | AddressLine1 |
| City | CHICAGO | City |
| State | IL | State |
| ZIP Code | 60654 | ZIPCode |
Form990 Part VII Section A Form990PartVIISectionA (17 entries)
| TitleTitle | Average Hours Per WeekAverageHoursPerWeek | Individual Trustee Or DirectorIndividualTrusteeOrDirector | OfficerOfficer | Reportable Comp From OrganizationReportableCompFromOrganization | Reportable Comp From Related OrgsReportableCompFromRelatedOrgs | Other CompensationOtherCompensation |
|---|---|---|---|---|---|---|
| SUSAN AXELROD | ||||||
| CHAIR | 1.00 | X | X | 0 | 0 | 0 |
| GREG LEWIS | ||||||
| SECRETARY | 1.00 | X | X | 0 | 0 | 0 |
| THOMAS HYNES | ||||||
| TREASURER | 1.00 | X | X | 0 | 0 | 0 |
| GARDINER LAPHAM | ||||||
| CHAIR-ELECT | 1.00 | X | 0 | 0 | 0 | |
| JEANNE DONALTY | ||||||
| DIRECTOR | 1.00 | X | 0 | 0 | 0 | |
| BARBARA KELLY | ||||||
| DIRECTOR | 1.00 | X | 0 | 0 | 0 | |
| CRAIG ALBERT | ||||||
| DIRECTOR | 1.00 | X | 0 | 0 | 0 | |
| ANN BENSCHOTER | ||||||
| DIRECTOR (FROM SEP '12) | 1.00 | X | 0 | 0 | 0 | |
| LEANN BRIGIDO | ||||||
| DIRECTOR (TO SEP '12) | 1.00 | X | 0 | 0 | 0 | |
| SCOTT LEISHER | ||||||
| DIRECTOR (FROM SEP '12) | 1.00 | X | 0 | 0 | 0 | |
| CONNIE MILSTEIN | ||||||
| DIRECTOR | 1.00 | X | 0 | 0 | 0 | |
| EVELYN NUSSENBAUM | ||||||
| DIRECTOR | 1.00 | X | 0 | 0 | 0 | |
| SHARON O'KEEFE | ||||||
| DIRECTOR (FROM SEP '12) | 1.00 | X | 0 | 0 | 0 | |
| RANDOLPH SIEGEL | ||||||
| DIRECTOR | 1.00 | X | 0 | 0 | 0 | |
| SETH WOHLBERG | ||||||
| DIRECTOR (FROM SEP '12) | 1.00 | X | 0 | 0 | 0 | |
| CARMITA VAUGHN | ||||||
| CEO (TO MAY '12) | 37.50 | X | 99599 | 0 | 4670 | |
| BOGDAN EWENDT | ||||||
| EXECUTIVE DIRECTOR | 37.50 | X | 141828 | 0 | 8612 | |
| Field | Value | IRS element (for citing) |
|---|---|---|
| Total Reportable Comp From Org | 241427 | TotalReportableCompFromOrg |
| Total Reportable Comp Frm Rltd Orgs | 0 | TotalReportableCompFrmRltdOrgs |
| Total Other Compensation | 13282 | TotalOtherCompensation |
| Number Individuals GT100 K | 1 | NumberIndividualsGT100K |
| Formers Listed | 0 | FormersListed |
| Total Comp GT150 K | 1 | TotalCompGT150K |
| Compensation From Other Sources | 0 | CompensationFromOtherSources |
| Number Of Contractors GT100 K | 0 | NumberOfContractorsGT100K |
| Fundraising Events | 1000700 | FundraisingEvents |
| All Other Contributions | 4516415 | AllOtherContributions |
| Noncash Contributions | 60327 | NoncashContributions |
| Total Contributions | 5517115 | TotalContributions |
Investment Income InvestmentIncome
| Field | Value | IRS element (for citing) |
|---|---|---|
| Total Revenue Column | 150303 | TotalRevenueColumn |
| Exclusion | $150,303 | ExclusionAmount |
Gross Amount Sales Assets GrossAmountSalesAssets
| Field | Value | IRS element (for citing) |
|---|---|---|
| Securities | 198394 | Securities |
Less Cost Oth Basis Sales Expenses LessCostOthBasisSalesExpenses
| Field | Value | IRS element (for citing) |
|---|---|---|
| Securities | 189515 | Securities |
Gain Or Loss GainOrLoss
| Field | Value | IRS element (for citing) |
|---|---|---|
| Securities | 8879 | Securities |
Net Gain Or Loss Investments NetGainOrLossInvestments
| Field | Value | IRS element (for citing) |
|---|---|---|
| Total Revenue Column | 8879 | TotalRevenueColumn |
| Exclusion | $8,879 | ExclusionAmount |
| Field | Value | IRS element (for citing) |
|---|---|---|
| Gross Income Fundraising Events | 83500 | GrossIncomeFundraisingEvents |
| Cntrbtns Rprtd Fundraising Events | 1000700 | CntrbtnsRprtdFundraisingEvents |
| Fundraising Direct Expenses | 177248 | FundraisingDirectExpenses |
Net Income From Fundraising Events NetIncomeFromFundraisingEvents
| Field | Value | IRS element (for citing) |
|---|---|---|
| Total Revenue Column | -93748 | TotalRevenueColumn |
| Exclusion | -$93,748 | ExclusionAmount |
Other Revenue Misc OtherRevenueMisc
| Field | Value | IRS element (for citing) |
|---|---|---|
| Description | OTHER | Description |
| Business Code | 900099 | BusinessCode |
| Total Revenue Column | 5417 | TotalRevenueColumn |
| Exclusion | $5,417 | ExclusionAmount |
| Field | Value | IRS element (for citing) |
|---|---|---|
| Total Other Revenue | 5417 | TotalOtherRevenue |
Total Revenue TotalRevenue
| Field | Value | IRS element (for citing) |
|---|---|---|
| Total Revenue Column | 5587966 | TotalRevenueColumn |
| Related Or Exempt Function Income | 0 | RelatedOrExemptFunctionIncome |
| Unrelated Business Revenue | 0 | UnrelatedBusinessRevenue |
| Exclusion | $70,851 | ExclusionAmount |
Grants To Domestic Orgs GrantsToDomesticOrgs
| Field | Value | IRS element (for citing) |
|---|---|---|
| Total | 3207276 | Total |
| Program Services | 3207276 | ProgramServices |
Foreign Grants ForeignGrants
| Field | Value | IRS element (for citing) |
|---|---|---|
| Total | 198016 | Total |
| Program Services | 198016 | ProgramServices |
Comp Current Officers Directors CompCurrentOfficersDirectors
| Field | Value | IRS element (for citing) |
|---|---|---|
| Total | 254709 | Total |
| Program Services | 128418 | ProgramServices |
| Management And General | 62614 | ManagementAndGeneral |
| Fundraising | 63677 | Fundraising |
Other Salaries And Wages OtherSalariesAndWages
| Field | Value | IRS element (for citing) |
|---|---|---|
| Total | 315992 | Total |
| Program Services | 213622 | ProgramServices |
| Management And General | 6704 | ManagementAndGeneral |
| Fundraising | 95666 | Fundraising |
Pension Plan Contributions PensionPlanContributions
| Field | Value | IRS element (for citing) |
|---|---|---|
| Total | 5520 | Total |
| Program Services | 2957 | ProgramServices |
| Management And General | 805 | ManagementAndGeneral |
| Fundraising | 1758 | Fundraising |
Other Employee Benefits OtherEmployeeBenefits
| Field | Value | IRS element (for citing) |
|---|---|---|
| Total | 49191 | Total |
| Program Services | 27149 | ProgramServices |
| Management And General | 9476 | ManagementAndGeneral |
| Fundraising | 12566 | Fundraising |
Payroll Taxes PayrollTaxes
| Field | Value | IRS element (for citing) |
|---|---|---|
| Total | 43905 | Total |
| Program Services | 26223 | ProgramServices |
| Management And General | 5445 | ManagementAndGeneral |
| Fundraising | 12237 | Fundraising |
Fees For Services Accounting FeesForServicesAccounting
| Field | Value | IRS element (for citing) |
|---|---|---|
| Total | 7500 | Total |
| Management And General | 7500 | ManagementAndGeneral |
Fees For Services Other FeesForServicesOther
| Field | Value | IRS element (for citing) |
|---|---|---|
| Total | 182878 | Total |
| Program Services | 99454 | ProgramServices |
| Management And General | 10918 | ManagementAndGeneral |
| Fundraising | 72506 | Fundraising |
Advertising Advertising
| Field | Value | IRS element (for citing) |
|---|---|---|
| Total | 16540 | Total |
| Program Services | 16540 | ProgramServices |
Office Expenses OfficeExpenses
| Field | Value | IRS element (for citing) |
|---|---|---|
| Total | 134402 | Total |
| Program Services | 45836 | ProgramServices |
| Management And General | 40471 | ManagementAndGeneral |
| Fundraising | 48095 | Fundraising |
Information Technology InformationTechnology
| Field | Value | IRS element (for citing) |
|---|---|---|
| Total | 93920 | Total |
| Program Services | 62513 | ProgramServices |
| Management And General | 535 | ManagementAndGeneral |
| Fundraising | 30872 | Fundraising |
Occupancy Occupancy
| Field | Value | IRS element (for citing) |
|---|---|---|
| Total | 48468 | Total |
| Program Services | 27587 | ProgramServices |
| Management And General | 7935 | ManagementAndGeneral |
| Fundraising | 12946 | Fundraising |
Travel Travel
| Field | Value | IRS element (for citing) |
|---|---|---|
| Total | 114689 | Total |
| Program Services | 69588 | ProgramServices |
| Management And General | 20090 | ManagementAndGeneral |
| Fundraising | 25011 | Fundraising |
Conferences Meetings ConferencesMeetings
| Field | Value | IRS element (for citing) |
|---|---|---|
| Total | 305104 | Total |
| Program Services | 12149 | ProgramServices |
| Fundraising | 292955 | Fundraising |
Depreciation Depletion DepreciationDepletion
| Field | Value | IRS element (for citing) |
|---|---|---|
| Total | 4850 | Total |
| Management And General | 4850 | ManagementAndGeneral |
Insurance Insurance
| Field | Value | IRS element (for citing) |
|---|---|---|
| Total | 5655 | Total |
| Program Services | 2975 | ProgramServices |
| Management And General | 976 | ManagementAndGeneral |
| Fundraising | 1704 | Fundraising |
Other Expenses OtherExpenses (2 entries)
| DescriptionDescription | TotalTotal | Program ServicesProgramServices | Management And GeneralManagementAndGeneral | FundraisingFundraising |
|---|---|---|---|---|
| LICENSES & FEES | 15051 | 7103 | 28 | 7920 |
| DUES & SUBSCRIPTIONS | 4430 | 2554 | 1562 | 314 |
All Other Expenses AllOtherExpenses
| Field | Value | IRS element (for citing) |
|---|---|---|
| Total | 325 | Total |
| Fundraising | 325 | Fundraising |
Total Functional Expenses TotalFunctionalExpenses
| Field | Value | IRS element (for citing) |
|---|---|---|
| Total | 5008421 | Total |
| Program Services | 4149960 | ProgramServices |
| Management And General | 179909 | ManagementAndGeneral |
| Fundraising | 678552 | Fundraising |
Cash Non Interest Bearing CashNonInterestBearing
| Field | Value | IRS element (for citing) |
|---|---|---|
| BOY | 936690 | BOY |
| EOY | 727563 | EOY |
Savings And Temp Cash Investments SavingsAndTempCashInvestments
| Field | Value | IRS element (for citing) |
|---|---|---|
| BOY | 2092727 | BOY |
| EOY | 4520518 | EOY |
Pledges And Grants Receivable PledgesAndGrantsReceivable
| Field | Value | IRS element (for citing) |
|---|---|---|
| BOY | 961438 | BOY |
| EOY | 166666 | EOY |
Accounts Receivable AccountsReceivable
| Field | Value | IRS element (for citing) |
|---|---|---|
| BOY | 44754 | BOY |
| EOY | 220880 | EOY |
Prepaid Expenses Deferred Charges PrepaidExpensesDeferredCharges
| Field | Value | IRS element (for citing) |
|---|---|---|
| BOY | 25685 | BOY |
| EOY | 39576 | EOY |
| Field | Value | IRS element (for citing) |
|---|---|---|
| Land Buildings Equipment Basis | 35445 | LandBuildingsEquipmentBasis |
| Land Bldg Equipment Accum Deprec | 12257 | LandBldgEquipmentAccumDeprec |
Land Buildings Equipment Basis Net LandBuildingsEquipmentBasisNet
| Field | Value | IRS element (for citing) |
|---|---|---|
| BOY | 20715 | BOY |
| EOY | 23188 | EOY |
Investments Pub Traded Securities InvestmentsPubTradedSecurities
| Field | Value | IRS element (for citing) |
|---|---|---|
| BOY | 5088476 | BOY |
| EOY | 5602629 | EOY |
Other Assets Total OtherAssetsTotal
| Field | Value | IRS element (for citing) |
|---|---|---|
| BOY | 8321 | BOY |
| EOY | 7571 | EOY |
Total Assets TotalAssets
| Field | Value | IRS element (for citing) |
|---|---|---|
| BOY | 9178806 | BOY |
| EOY | 11308591 | EOY |
Accounts Payable Accrued Expenses AccountsPayableAccruedExpenses
| Field | Value | IRS element (for citing) |
|---|---|---|
| BOY | 46720 | BOY |
| EOY | 102467 | EOY |
Grants Payable GrantsPayable
| Field | Value | IRS element (for citing) |
|---|---|---|
| BOY | 1826339 | BOY |
| EOY | 3016042 | EOY |
Total Liabilities TotalLiabilities
| Field | Value | IRS element (for citing) |
|---|---|---|
| BOY | 1873059 | BOY |
| EOY | 3118509 | EOY |
| Field | Value | IRS element (for citing) |
|---|---|---|
| Follow SFAS117 | X | FollowSFAS117 |
Unrestricted Net Assets UnrestrictedNetAssets
| Field | Value | IRS element (for citing) |
|---|---|---|
| BOY | 6172414 | BOY |
| EOY | 7673416 | EOY |
Temporarily Restricted Net Assets TemporarilyRestrictedNetAssets
| Field | Value | IRS element (for citing) |
|---|---|---|
| BOY | 1133333 | BOY |
| EOY | 516666 | EOY |
Total Net Assets Fund Balances TotalNetAssetsFundBalances
| Field | Value | IRS element (for citing) |
|---|---|---|
| BOY | 7305747 | BOY |
| EOY | 8190082 | EOY |
Total Liab Net Assets Fund Balances TotalLiabNetAssetsFundBalances
| Field | Value | IRS element (for citing) |
|---|---|---|
| BOY | 9178806 | BOY |
| EOY | 11308591 | EOY |
| Field | Value | IRS element (for citing) |
|---|---|---|
| Reconcilation Revenue Expenses | 579545 | ReconcilationRevenueExpenses |
| Reconciliation Unrealized Invest | 304790 | ReconciliationUnrealizedInvest |
| Reconcilation Other Changes | 0 | ReconcilationOtherChanges |
| Method Of Accounting Accrual | X | MethodOfAccountingAccrual |
| Accountant Compile Or Review | 0 | AccountantCompileOrReview |
| FS Audited | 1 | FSAudited |
FS Audited Basis FSAuditedBasis
| Field | Value | IRS element (for citing) |
|---|---|---|
| Financial Statement Separate | X | FinancialStatementSeparate |
| Field | Value | IRS element (for citing) |
|---|---|---|
| Audit Committee | 1 | AuditCommittee |
| Federal Grant Audit Required | 0 | FederalGrantAuditRequired |
Schedule A IRS990ScheduleA
| Field | Value | IRS element (for citing) |
|---|---|---|
| Publicly Supported Org170b1 Avi | X | PubliclySupportedOrg170b1Avi |
Gifts Grants Contrib Received170 GiftsGrantsContribReceived170
| Field | Value | IRS element (for citing) |
|---|---|---|
| Current Tax Year Minus4 Years | 596938 | CurrentTaxYearMinus4Years |
| Current Tax Year Minus3 Years | 2661656 | CurrentTaxYearMinus3Years |
| Current Tax Year Minus2 Years | 1983520 | CurrentTaxYearMinus2Years |
| Current Tax Year Minus1 Year | 2000856 | CurrentTaxYearMinus1Year |
| Current Tax Year | 5517115 | CurrentTaxYear |
| Total | 12760085 | Total |
Total170 Total170
| Field | Value | IRS element (for citing) |
|---|---|---|
| Current Tax Year Minus4 Years | 596938 | CurrentTaxYearMinus4Years |
| Current Tax Year Minus3 Years | 2661656 | CurrentTaxYearMinus3Years |
| Current Tax Year Minus2 Years | 1983520 | CurrentTaxYearMinus2Years |
| Current Tax Year Minus1 Year | 2000856 | CurrentTaxYearMinus1Year |
| Current Tax Year | 5517115 | CurrentTaxYear |
| Total | 12760085 | Total |
| Field | Value | IRS element (for citing) |
|---|---|---|
| Amounts Subst Contributors Total | 546019 | AmountsSubstContributorsTotal |
| Public Support Total170 | 12214066 | PublicSupportTotal170 |
Gross Investment Income170 GrossInvestmentIncome170
| Field | Value | IRS element (for citing) |
|---|---|---|
| Current Tax Year Minus4 Years | 112049 | CurrentTaxYearMinus4Years |
| Current Tax Year Minus3 Years | 23748 | CurrentTaxYearMinus3Years |
| Current Tax Year Minus2 Years | 289204 | CurrentTaxYearMinus2Years |
| Current Tax Year Minus1 Year | 204428 | CurrentTaxYearMinus1Year |
| Current Tax Year | 150303 | CurrentTaxYear |
| Total | 779732 | Total |
Other Income170 OtherIncome170
| Field | Value | IRS element (for citing) |
|---|---|---|
| Current Tax Year Minus4 Years | 9413 | CurrentTaxYearMinus4Years |
| Current Tax Year Minus3 Years | 4493 | CurrentTaxYearMinus3Years |
| Current Tax Year Minus2 Years | 8413 | CurrentTaxYearMinus2Years |
| Current Tax Year Minus1 Year | 1482 | CurrentTaxYearMinus1Year |
| Current Tax Year | 5417 | CurrentTaxYear |
| Total | 29218 | Total |
| Field | Value | IRS element (for citing) |
|---|---|---|
| Total Support | 13569035 | TotalSupport |
| Gross Receipts From Admissions Etc | 8157861 | GrossReceiptsFromAdmissionsEtc |
| Public Support Pertcentage170 | 0.90010 | PublicSupportPertcentage170 |
| Public Support Pertcent Prior Year | 0.45240 | PublicSupportPertcentPriorYear |
| Thirty Three Percnt Tests CY170 | X | ThirtyThreePercntTestsCY170 |
Schedule B IRS990ScheduleB
Contributor Info ContributorInfo
| Field | Value | IRS element (for citing) |
|---|---|---|
| Contributor Number | RESTRICTED | ContributorNumber |
Contributor Name Business ContributorNameBusiness
| Field | Value | IRS element (for citing) |
|---|---|---|
| Business Name Line1 | RESTRICTED | BusinessNameLine1 |
Contributor Address US ContributorAddressUS
| Field | Value | IRS element (for citing) |
|---|---|---|
| Address Line1 | RESTRICTED | AddressLine1 |
| Address Line2 | RESTRICTED | AddressLine2 |
| City | RESTRICTED | City |
| State | RESTRICTED | State |
| ZIP Code | RESTRICTED | ZIPCode |
| Field | Value | IRS element (for citing) |
|---|---|---|
| Aggregate Contributions | RESTRICTED | AggregateContributions |
Schedule C IRS990ScheduleC
Total Lobbying Expenditures TotalLobbyingExpenditures
| Field | Value | IRS element (for citing) |
|---|---|---|
| Filing Organizations Totals | 0 | FilingOrganizationsTotals |
Total Exempt Purpose Expenditures TotalExemptPurposeExpenditures
| Field | Value | IRS element (for citing) |
|---|---|---|
| Filing Organizations Totals | 0 | FilingOrganizationsTotals |
Lobbying Nontaxable LobbyingNontaxableAmount
| Field | Value | IRS element (for citing) |
|---|---|---|
| Filing Organizations Totals | 0 | FilingOrganizationsTotals |
Grassroots Nontaxable GrassrootsNontaxableAmount
| Field | Value | IRS element (for citing) |
|---|---|---|
| Filing Organizations Totals | 0 | FilingOrganizationsTotals |
Lobbying Nontaxable Amount2 LobbyingNontaxableAmount2
| Field | Value | IRS element (for citing) |
|---|---|---|
| Current Year Minus3 | 288602 | CurrentYearMinus3 |
| Total | 288602 | Total |
| Field | Value | IRS element (for citing) |
|---|---|---|
| Lobbying Ceiling | $432,903 | LobbyingCeilingAmount |
Total Lobbying Expenditures2 TotalLobbyingExpenditures2
| Field | Value | IRS element (for citing) |
|---|---|---|
| Current Year Minus3 | 40071 | CurrentYearMinus3 |
| Total | 40071 | Total |
Grassroots Nontaxable Amount2 GrassrootsNontaxableAmount2
| Field | Value | IRS element (for citing) |
|---|---|---|
| Current Year Minus3 | 72151 | CurrentYearMinus3 |
| Total | 72151 | Total |
| Field | Value | IRS element (for citing) |
|---|---|---|
| Grassroots Ceiling | $108,227 | GrassrootsCeilingAmount |
Schedule D IRS990ScheduleD
Leasehold Improvements LeaseholdImprovements
| Field | Value | IRS element (for citing) |
|---|---|---|
| Other Cost Or Other Basis | 3000 | OtherCostOrOtherBasis |
| Depreciation | 484 | Depreciation |
| Book Value | 2516 | BookValue |
Equipment Equipment
| Field | Value | IRS element (for citing) |
|---|---|---|
| Other Cost Or Other Basis | 32445 | OtherCostOrOtherBasis |
| Depreciation | 11773 | Depreciation |
| Book Value | 20672 | BookValue |
| Field | Value | IRS element (for citing) |
|---|---|---|
| Total Of Book Value Land Buildings | 23188 | TotalOfBookValueLandBuildings |
| Tot Revenue Etc Audited Fincl Stmt | 5558495 | TotRevenueEtcAuditedFinclStmt |
| Net Unrealized Gains Investments | 304790 | NetUnrealizedGainsInvestments |
| Donated Srvc And Use Of Facilities | 40000 | DonatedSrvcAndUseOfFacilities |
| Revenue Not Rptd F990 | 344790 | RevenueNotRptdF990 |
| Revenue Subtotal | 5213705 | RevenueSubtotal |
| Other Revenues Not Included | 374261 | OtherRevenuesNotIncluded |
| Revenue Not Rptd On Fin Stmt | 374261 | RevenueNotRptdOnFinStmt |
| Total Revenue Per Form990 | 5587966 | TotalRevenuePerForm990 |
| Tot Expenses Etc Audited Fincl Stmt | 4674160 | TotExpensesEtcAuditedFinclStmt |
| Donated Services Use Of Facilities | 40000 | DonatedServicesUseOfFacilities |
| Expenses Not Rptd F990 | 40000 | ExpensesNotRptdF990 |
| Expenses Subtotal | 4634160 | ExpensesSubtotal |
| Other Expenses Not Included | 374261 | OtherExpensesNotIncluded |
| Expenses Not Rptd On Fin Stmt | 374261 | ExpensesNotRptdOnFinStmt |
| Total Expenses Per Form990 | 5008421 | TotalExpensesPerForm990 |
Form990 Schedule D Part XIII Form990ScheduleDPartXIII (2 entries)
| IdentifierIdentifier | ExplanationExplanation |
|---|---|
| PART XI, LINE 4B - OTHER ADJUSTMENTS: | FUNDRAISING EXPENSES 374,261. |
| PART XII, LINE 4B - OTHER ADJUSTMENTS: | FUNDRAISING EXPENSES 374,261. |
Schedule F IRS990ScheduleF
| Field | Value | IRS element (for citing) |
|---|---|---|
| Grant Records Maintained | 0 | GrantRecordsMaintained |
Accts Actvs Out US Table AcctsActvsOutUSTable (2 entries)
| RegionRegion | Number Of OfficesNumberOfOffices | Number Of EmployeesNumberOfEmployees | Type Of Activities ConductedTypeOfActivitiesConducted | Total ExpendituresTotalExpenditures |
|---|---|---|---|---|
| EUROPE (INCLUDING ICELAND & GREENLAND) | 0 | 0 | GRANTS TO RECIPIENTS LOCATED IN REGION | 98016 |
| EAST ASIA AND THE PACIFIC | 0 | 0 | GRANTS TO RECIPIENTS LOCATED IN REGION | 100000 |
| Field | Value | IRS element (for citing) |
|---|---|---|
| Subtotal Number Of Offices | 0 | SubtotalNumberOfOffices |
| Subtotal Number Of Employees | 0 | SubtotalNumberOfEmployees |
| Cont Number Of Offices | 0 | ContNumberOfOffices |
| Cont Number Of Employees | 0 | ContNumberOfEmployees |
| Total Number Of Offices | 0 | TotalNumberOfOffices |
| Total Number Of Employees | 0 | TotalNumberOfEmployees |
| Subtotal Amount Spent | 198016 | SubtotalAmountSpent |
| Cont Amount Spent | 0 | ContAmountSpent |
| Total Amount Spent | 198016 | TotalAmountSpent |
Grants To Orgs Outside US GrantsToOrgsOutsideUS (2 entries)
| RegionRegion | Purpose Of GrantPurposeOfGrant | Amount Of Cash GrantAmountOfCashGrant |
|---|---|---|
| EAST ASIA AND THE PACIFIC | SUDEP | 100000 |
| EUROPE (INCLUDING ICELAND & GREENLAND) | TAKING FLIGHT | 98016 |
| Field | Value | IRS element (for citing) |
|---|---|---|
| Total Number Of501c3 Orgs | 2 | TotalNumberOf501c3Orgs |
| Transfer To Foreign Corp | 0 | TransferToForeignCorp |
| Interest In Foreign Trust | 0 | InterestInForeignTrust |
| Own Foreign Corp | 0 | OwnForeignCorp |
| Passive Foreign Invest Co | 0 | PassiveForeignInvestCo |
| Foreign Partnership | 0 | ForeignPartnership |
| Boycott Countries | 0 | BoycottCountries |
Schedule G IRS990ScheduleG
Events Information EventsInformation
| Field | Value | IRS element (for citing) |
|---|---|---|
| Name Of Event1 | CHICAGO GALA BENEFIT | NameOfEvent1 |
| Gross Receipts Event1 | 1084200 | GrossReceiptsEvent1 |
| Charitable Contributions Event1 | 1000700 | CharitableContributionsEvent1 |
| Gross Revenue Event1 | 83500 | GrossRevenueEvent1 |
| Rent Facility Costs Event1 | 132524 | RentFacilityCostsEvent1 |
| Other Direct Expenses Event1 | 44724 | OtherDirectExpensesEvent1 |
| Gross Receipts Total | 1084200 | GrossReceiptsTotal |
| Charitable Contributions Total | 1000700 | CharitableContributionsTotal |
| Gross Revenue Total Events | 83500 | GrossRevenueTotalEvents |
| Rent Facility Costs Total Events | 132524 | RentFacilityCostsTotalEvents |
| Other Direct Expenses Total Events | 44724 | OtherDirectExpensesTotalEvents |
| Direct Expense Summary Events | 177248 | DirectExpenseSummaryEvents |
| Net Income Summary | -93748 | NetIncomeSummary |
Schedule I IRS990ScheduleI
| Field | Value | IRS element (for citing) |
|---|---|---|
| Records Maintained | 1 | RecordsMaintained |
Recipient Table RecipientTable (21 entries)
| Address Line1AddressUS/AddressLine1 | CityAddressUS/City | StateAddressUS/State | ZIP CodeAddressUS/ZIPCode | EIN Of RecipientEINOfRecipient | IRC SectionIRCSection | Amount Of Cash GrantAmountOfCashGrant | Purpose Of GrantPurposeOfGrant | Address Line2AddressUS/AddressLine2 |
|---|---|---|---|---|---|---|---|---|
| BAYLOR COLLEGE OF MEDICINE | ||||||||
| PO BOX 201361 | HOUSTON | TX | 77216 | 741613878 | 501(C)(3) | 415000 | SUDEP; INFANTILE SPASMS | |
| THE PENNSYLVANIA STATE UNIVERSITY | ||||||||
| OFFICE OF SPONSORED PROGRAMS 110 | CHARLOTTESVILLE | VA | 22904 | 246000376 | 501(C)(3) | 350000 | MULTI-D | TECHNOLOGY CENTER |
| TRUSTEES OF UNIVERSITY OF PENNSYLVANIA | ||||||||
| PO BOX 785541 | PHILADELPHIA | PA | 19178 | 231352685 | 501(C)(3) | 348136 | TAKING FLIGHT; MULTI-D | |
| LURIE CHILDREN'S | ||||||||
| 225 EAST CHICAGO AVE- EPILEPSY CTR | CHICAGO | IL | 60611 | 362170833 | 501(C)(3) | 290000 | INFANTILE SPASMS; PERC CONFERENCE | BOX 29 |
| UNIVERSITY OF UTAH | ||||||||
| 201 PRESIDENTS CIRCLE RM 406 | SALT LAKE CITY | UT | 84112 | 876000525 | 501(C)(3) | 250000 | CHALLENGE | |
| DUKE UNIVERSITY | ||||||||
| OFFICE OF SPONSORED PROGRAMS BOX | DURHAM | NC | 27708 | 560532129 | 501(C)(3) | 200000 | TAKING FLIGHT; SUDEP | 104004 |
| UCSF BENIOFF CHILDREN'S HOSPITAL | ||||||||
| 505 PARNASSUS AVE | SAN FRANCISCO | CA | 94143 | 942829914 | 501(C)(3) | 200000 | INFANTILE SPASMS | |
| ALBERT EINSTEIN COLLEGE OF MEDICINE | ||||||||
| 1300 MORRIS PARK AVE- BELFER BLDG | BRONX | NY | 10461 | 132937352 | 501(C)(3) | 150000 | INFANTILE SPASMS | RM 1108 |
| NEW YORK MEDICAL COLLEGE | ||||||||
| 40 SUNSHINE COTTAGE ROAD | VALHALLA | NY | 10595 | 131099420 | 501(C)(3) | 150000 | INFANTILE SPASMS | |
| TUFTS UNIVERSITY | ||||||||
| 136 HARRISON AVE | BOSTON | MA | 02111 | 042103634 | 501(C)(3) | 150000 | INNOVATOR; INFANTILE SPASMS | |
| VANDERBILT UNIVERSITY MEDICAL CENTER | ||||||||
| ASSOCIATE DIRECTOR DEPT OF FINANCE | ATLANTA | GA | 31192 | 620476822 | 501(C)(3) | 150000 | MULTI-D | AT40303 |
| POLYTECHNIC INSTITUTE OF NYU | ||||||||
| 15 METROTECH 6TH FLOOR | BROOKLYN | NY | 11201 | 111630820 | 501(C)(3) | 100000 | TAKING FLIGHT | |
| THE GENERAL HOSPITAL | ||||||||
| MGH RESEARCH BANK OF AMERICA NA PO | BOSTON | MA | 02241 | 042697983 | 501(C)(3) | 100000 | TAKING FLIGHT | BOX 414876 |
| THE REGENTS OF UNIVERSITY OF CALIFORNIA- SF | ||||||||
| 1855 FOLSUM ST STE 425 | SAN FRANCISCO | CA | 94143 | 946036493 | 501(C)(3) | 100000 | TAKING FLIGHT | |
| THE CLEVELAND CLINIC FOUNDATION | ||||||||
| PO BOX 931531 | CLEVELAND | OH | 44193 | 340714585 | 501(C)(3) | 50000 | INNOVATOR | |
| THE REGENTS OF UNIVERSITY OF WISCONSIN SYSTEM | ||||||||
| DRAWER 538 | MILWAUKEE | WI | 53278 | 396006492 | 501(C)(3) | 50000 | INNOVATOR | |
| UNIVERSITY OF COLORADO DENVER | ||||||||
| PO BOX 238 | DENVER | CO | 80291 | 846000555 | 501(C)(3) | 50000 | INFANTILE SPASMS | |
| AMERICAN EPILEPSY SOCIETY | ||||||||
| PO BOX 485 | LAGRANGE | IL | 60525 | 046112600 | 501(C)(3) | 30000 | PAME CONFERENCE | |
| GORDON RESEARCH CONFERENCE | ||||||||
| 512 LIBERTY LANE | W KINGSTON | RI | 02892 | 260150662 | 501(C)(3) | 25000 | 2012 MECHANISMS OF EPILEPSY CONFERENCE | |
| INTERNATIONAL LEAGUE AGAINST EPILEPSY | ||||||||
| 342 NORTH MAIN ST | WEST HARTFORD | CT | 06117 | 521298610 | 501(C)(3) | 10000 | AES/ILAE LONDON WORKSHOP | |
| STANFORD UNIVERSITY | ||||||||
| 300 PASTUER DRIVE EDWARDS BLDG R321 | STANFORD | CA | 94305 | 941156365 | 501(C)(3) | 15000 | ALISOMAR CONFERENCE | |
| Field | Value | IRS element (for citing) |
|---|---|---|
| Total Nbr Of501 C3 And Govt Grants | 21 | TotalNbrOf501C3AndGovtGrants |
Form990 Schedule I Part IV Form990ScheduleIPartIV
| Field | Value | IRS element (for citing) |
|---|---|---|
| Identifier | PROCEDURE FOR MONITORING GRANTS IN THE U.S.: | Identifier |
| Return Reference | PART I, LINE 2: | ReturnReference |
| Explanation | SCHEDULE I, PART I, LINE 2: GRANTEES ARE REQUIRED TO MAKE PERIODIC PROGRESS REPORTS. | Explanation |
Schedule J IRS990ScheduleJ
| Field | Value | IRS element (for citing) |
|---|---|---|
| Form990 Of Other Organizations | X | Form990OfOtherOrganizations |
| Written Employment Contract | X | WrittenEmploymentContract |
| Board Or Committee Approval | X | BoardOrCommitteeApproval |
| Severance Payment | 0 | SeverancePayment |
| Supplemental Nonqual Retire Plan | 0 | SupplementalNonqualRetirePlan |
| Equity Based Comp Arrangement | 0 | EquityBasedCompArrangement |
| Comp Based On Revenue Of Filing Org | 0 | CompBasedOnRevenueOfFilingOrg |
| Comp Based On Revenue Related Orgs | 0 | CompBasedOnRevenueRelatedOrgs |
| Comp Based Net Earnings Filing Org | 0 | CompBasedNetEarningsFilingOrg |
| Comp Based Net Earnings Relate Orgs | 0 | CompBasedNetEarningsRelateOrgs |
| Any Non Fixed Payments | 0 | AnyNonFixedPayments |
| Initial Contract Exception | 0 | InitialContractException |
Form990 Schedule J Part II Form990ScheduleJPartII
| Field | Value | IRS element (for citing) |
|---|---|---|
| Name Person | BOGDAN EWENDT | NamePerson |
| Title | EXECUTIVE DIRECTOR | Title |
| Base Compensation Filing Org | 141828 | BaseCompensationFilingOrg |
| Comp Based On Related Orgs | 0 | CompBasedOnRelatedOrgs |
| Bonus Filing Org | 0 | BonusFilingOrg |
| Bonus Related Orgs | 0 | BonusRelatedOrgs |
| Other Compensation Filing Org | 0 | OtherCompensationFilingOrg |
| Other Compensation Related Orgs | 0 | OtherCompensationRelatedOrgs |
| Deferred Comp Filing Org | 4090 | DeferredCompFilingOrg |
| Deferred Comp Related Orgs | 0 | DeferredCompRelatedOrgs |
| Nontaxable Benefits Filing Org | 4522 | NontaxableBenefitsFilingOrg |
| Nontaxable Benefits Related Orgs | 0 | NontaxableBenefitsRelatedOrgs |
| Total Compensation Filing Org | 150440 | TotalCompensationFilingOrg |
| Total Compensation Related Orgs | 0 | TotalCompensationRelatedOrgs |
| Comp Report Prior990 Filing Org | 0 | CompReportPrior990FilingOrg |
| Comp Report Prior990 Related Orgs | 0 | CompReportPrior990RelatedOrgs |
Schedule M IRS990ScheduleM
Securities Publicly Traded SecuritiesPubliclyTraded
| Field | Value | IRS element (for citing) |
|---|---|---|
| Non Cash Checkbox | X | NonCashCheckbox |
| Number Of Contributions | 3 | NumberOfContributions |
| Noncash Contribs Rptd F990 | 60327 | NoncashContribsRptdF990 |
| Method Of Determining Revenues | FMV | MethodOfDeterminingRevenues |
| Field | Value | IRS element (for citing) |
|---|---|---|
| Any Property That Must Be Held | 0 | AnyPropertyThatMustBeHeld |
| Review Process Unusual NC Gifts | 0 | ReviewProcessUnusualNCGifts |
| Third Parties Used | 1 | ThirdPartiesUsed |
Form990 Schedule M Part II Form990ScheduleMPartII
| Field | Value | IRS element (for citing) |
|---|---|---|
| Identifier | THIRD PARTY USE: | Identifier |
| Return Reference | PART I, LINE 32B: | ReturnReference |
| Explanation | USE OF A STOCK BROKERAGE ACCOUNT TO SELL PUBLICLY TRADED SECURITIES THAT ARE CONTRIBUTED. | Explanation |
Schedule O IRS990ScheduleO
General Explanation GeneralExplanation (4 entries)
| Return ReferenceReturnReference | ExplanationExplanation |
|---|---|
| FORM 990, PART VI, SECTION B, LINE 11 | FORM 990 IS REVIEWED BY THE DIRECTOR OF FINANCE & ADMINISTRATION, TREASURER, AND CHIEF EXECUTIVE OFFICER. WHEN THE DRAFT IS APPROVED, IT IS SENT TO THE ENTIRE BOARD. |
| FORM 990, PART VI, SECTION B, LINE 12C | EACH BOARD MEMBER SIGNS IT ANNUALLY AND EXPECTS TO SELF-MONITOR. CONFLICTS ARE DEALT WITH ON A CASE-BY-CASE BASIS. |
| FORM 990, PART VI, SECTION B, LINE 15A | COMPARABLE SALARY INFORMATION IS OBTAINED AND REVIEWED USING AN OUTSIDE EXECUTIVE SEARCH FIRM. THE BOARD OF DIRECTORS HAS FINAL APPROVAL, AND REVIEWS COMPENSATION ANNUALLY. |
| FORM 990, PART VI, SECTION C, LINE 19 | GOVERNING DOCUMENTS, CONFLICT OF INTEREST POLICY, AND FINANCIAL STATEMENTS ARE NOT GENERALLY AVAILABLE TO THE PUBLIC. |
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