2013-05-13T16:00:36-05:00 2012-12-31 521446779 JOHNSON LAMBERT LLP 700 SPRING FOREST RD STE 115 RALEIGH NC 27609 990 2012-01-01 364253176 CITIZENS UNITED FOR RESEARCH IN EPILEPSY CITI 8007657118 223 W ERIE NO 2SW CHICAGO IL 60654 BOGDAN EWENDT 8007657118 2013-05-09 1 JOHN HUSKINS P01081531 9197196400 2013-05-13 2012 2016-02-25 16:41:14Z BOGDAN EWENDT 223 W ERIE NO 2SW CHICAGO IL 60654 5954729 0 X WWW.CUREEPILEPSY.ORG X 1998 IL TO PROVIDE FUNDING FOR RESEARCH TO FIND A CURE FOR EPILEPSY. 14 14 14 370 0 0 2000856 5517115 0 0 209590 159182 1990467 -88331 4200913 5587966 1814000 3405292 0 0 474052 669317 0 0 678552 442075 933812 2730127 5008421 1470786 579545 9178806 11308591 1873059 3118509 7305747 8190082 X CITIZENS UNITED FOR RESEARCH IN EPILEPSY IS DEDICATED TO FINDING A CURE FO EPILEPSY BY RAISING FUNDS FOR RESEARCH AND BY INCREASING AWARENESS OF THE PREVALENCE AND DEVASTATION OF THIS DISEASE. 0 0 3729380 3405292 ISSUING OF GRANTS TO FUND RESEARCH FOR A CURE FOR EPILEPSY. SINCE ITS INCEPTION IN 1998, CURE HAS RAISED MORE THAN $26 MILLION TO FUND EPILEPSY RESEARCH PROJECTS AND OTHER INITIATIVES THAT WILL LEAD THE WAY TO A CURE. CURE AWARDS SEED GRANTS FOR NOVEL RESEARCH PROJECTS THAT ADDRESS THE GOALS OF "NO SEIZURES, NO SIDE EFFECTS." THESE GRANTS ALLOW NEW AND ESTABLISHED INVESTIGATORS TO EXPLORE NEW INNOVATIVE AREAS AND COLLECT THE DATA NECESSARY TO APPLY FOR FURTHER FUNDING BY THE NATIONAL INSTITUTES OF HEALTH (NIH). TO DATE, CURE HAS AWARDED FUNDING FOR OVER 137 CUTTING EDGE PROJECTS. CURE ALSO SPONSORS SCIENTIFIC CONFERENCES THAT ARE WORKING TO BRING THE BRIGHTEST MINDS TOGETHER TO DISCUSS SOME OF OUR BIGGEST AND MOST IMPORTANT ISSUES. 420580 INCREASING THE AWARENESS OF THE PREVALENCE AND DEVASTATION OF EPILEPSY. CURE BELIEVES THAT AWARENESS IS A NECESSARY VEHICLE TO INCREASE THE AMOUNT OF FUNDING FOR BASIC RESEARCH TOWARD A CURE FOR EPILEPSY. CURE HAS RECEIVED EXTENSIVE MEDIA COVERAGE FOR EPILEPSY. THIS HAS INCLUDED A FEATURED SEGMENT ON 60 MINUTES WITH KATIE COURIC, A BOSTON GLOBE EDITORIAL ON THE GRAVE UNDERFUNDING OF EPILEPSY RESEARCH, INTERVIEWS AND COVERAGE ON MSNCB'S MORNING JOE, CNN'S PIERS MORGAN, FRANK FONTANA'S DOWN AND DIRTY WITH FRANK FONTANA, A NEW YORK TIMES ARTICLE ON ONE CURE FAMILY'S STRUGGLES WITH EPILEPSY, AND FOX NEWS' SEGMENT ON EPILEPSY AND CURE - FEATURING SUSAN, DAVID, AND LAUREN AXELROD. CURE'S AWARENESS AND ADVOCACY EFFORTS WERE RECOGNIZED BY THE AMERICAN EPILEPSY SOCIETY, AS WELL AS THE INTERNATIONAL LEAGUE AGAINST EPILEPSY, AND THE INTERNATIONAL BUREAU FOR EPILEPSY, AND BY CHICAGO MAGAZINE, WHICH NAMED FOUNDER SUSAN AXELROD A "CHICAGOAN OF THE YEAR." 4149960 1 1 0 1 0 0 0 0 0 0 1 0 0 0 0 0 1 0 0 0 1 1 0 0 1 0 0 1 0 1 0 0 0 0 0 0 0 0 1 0 0 0 0 0 0 0 0 1 15 0 1 14 1 0 0 0 0 0 1 1 0 0 0 0 X 14 14 0 0 0 0 0 0 0 1 1 0 0 1 1 1 1 1 1 1 0 0 IL NY X BOGDAN EWENDT 8007657118 223 W ERIE NO 2SW CHICAGO IL 60654 SUSAN AXELROD 1.00 X X 0 0 0 GREG LEWIS 1.00 X X 0 0 0 THOMAS HYNES 1.00 X X 0 0 0 GARDINER LAPHAM 1.00 X 0 0 0 JEANNE DONALTY 1.00 X 0 0 0 BARBARA KELLY 1.00 X 0 0 0 CRAIG ALBERT 1.00 X 0 0 0 ANN BENSCHOTER 1.00 X 0 0 0 LEANN BRIGIDO 1.00 X 0 0 0 SCOTT LEISHER 1.00 X 0 0 0 CONNIE MILSTEIN 1.00 X 0 0 0 EVELYN NUSSENBAUM 1.00 X 0 0 0 SHARON O'KEEFE 1.00 X 0 0 0 RANDOLPH SIEGEL 1.00 X 0 0 0 SETH WOHLBERG 1.00 X 0 0 0 CARMITA VAUGHN 37.50 X 99599 0 4670 BOGDAN EWENDT 37.50 X 141828 0 8612 241427 0 13282 1 0 1 0 0 1000700 4516415 60327 5517115 150303 150303 198394 189515 8879 8879 8879 83500 1000700 177248 -93748 -93748 OTHER 900099 5417 5417 5417 5587966 0 0 70851 3207276 3207276 198016 198016 254709 128418 62614 63677 315992 213622 6704 95666 5520 2957 805 1758 49191 27149 9476 12566 43905 26223 5445 12237 7500 7500 182878 99454 10918 72506 16540 16540 134402 45836 40471 48095 93920 62513 535 30872 48468 27587 7935 12946 114689 69588 20090 25011 305104 12149 292955 4850 4850 5655 2975 976 1704 LICENSES & FEES 15051 7103 28 7920 DUES & SUBSCRIPTIONS 4430 2554 1562 314 325 325 5008421 4149960 179909 678552 936690 727563 2092727 4520518 961438 166666 44754 220880 25685 39576 35445 12257 20715 23188 5088476 5602629 8321 7571 9178806 11308591 46720 102467 1826339 3016042 1873059 3118509 X 6172414 7673416 1133333 516666 7305747 8190082 9178806 11308591 579545 304790 0 X 0 1 X 1 0 X 596938 2661656 1983520 2000856 5517115 12760085 596938 2661656 1983520 2000856 5517115 12760085 546019 12214066 112049 23748 289204 204428 150303 779732 9413 4493 8413 1482 5417 29218 13569035 8157861 0.90010 0.45240 X RESTRICTED RESTRICTED RESTRICTED RESTRICTED RESTRICTED RESTRICTED RESTRICTED RESTRICTED 0 0 0 0 288602 288602 432903 40071 40071 72151 72151 108227 3000 484 2516 32445 11773 20672 23188 5558495 304790 40000 344790 5213705 374261 374261 5587966 4674160 40000 40000 4634160 374261 374261 5008421 PART XI, LINE 4B - OTHER ADJUSTMENTS: FUNDRAISING EXPENSES 374,261. PART XII, LINE 4B - OTHER ADJUSTMENTS: FUNDRAISING EXPENSES 374,261. 0 EUROPE (INCLUDING ICELAND & GREENLAND) 0 0 GRANTS TO RECIPIENTS LOCATED IN REGION 98016 EAST ASIA AND THE PACIFIC 0 0 GRANTS TO RECIPIENTS LOCATED IN REGION 100000 0 0 0 0 0 0 198016 0 198016 EAST ASIA AND THE PACIFIC SUDEP 100000 EUROPE (INCLUDING ICELAND & GREENLAND) TAKING FLIGHT 98016 2 0 0 0 0 0 0 CHICAGO GALA BENEFIT 1084200 1000700 83500 132524 44724 1084200 1000700 83500 132524 44724 177248 -93748 1 BAYLOR COLLEGE OF MEDICINE PO BOX 201361 HOUSTON TX 77216 741613878 501(C)(3) 415000 SUDEP; INFANTILE SPASMS THE PENNSYLVANIA STATE UNIVERSITY OFFICE OF SPONSORED PROGRAMS 110 TECHNOLOGY CENTER CHARLOTTESVILLE VA 22904 246000376 501(C)(3) 350000 MULTI-D TRUSTEES OF UNIVERSITY OF PENNSYLVANIA PO BOX 785541 PHILADELPHIA PA 19178 231352685 501(C)(3) 348136 TAKING FLIGHT; MULTI-D LURIE CHILDREN'S 225 EAST CHICAGO AVE- EPILEPSY CTR BOX 29 CHICAGO IL 60611 362170833 501(C)(3) 290000 INFANTILE SPASMS; PERC CONFERENCE UNIVERSITY OF UTAH 201 PRESIDENTS CIRCLE RM 406 SALT LAKE CITY UT 84112 876000525 501(C)(3) 250000 CHALLENGE DUKE UNIVERSITY OFFICE OF SPONSORED PROGRAMS BOX 104004 DURHAM NC 27708 560532129 501(C)(3) 200000 TAKING FLIGHT; SUDEP UCSF BENIOFF CHILDREN'S HOSPITAL 505 PARNASSUS AVE SAN FRANCISCO CA 94143 942829914 501(C)(3) 200000 INFANTILE SPASMS ALBERT EINSTEIN COLLEGE OF MEDICINE 1300 MORRIS PARK AVE- BELFER BLDG RM 1108 BRONX NY 10461 132937352 501(C)(3) 150000 INFANTILE SPASMS NEW YORK MEDICAL COLLEGE 40 SUNSHINE COTTAGE ROAD VALHALLA NY 10595 131099420 501(C)(3) 150000 INFANTILE SPASMS TUFTS UNIVERSITY 136 HARRISON AVE BOSTON MA 02111 042103634 501(C)(3) 150000 INNOVATOR; INFANTILE SPASMS VANDERBILT UNIVERSITY MEDICAL CENTER ASSOCIATE DIRECTOR DEPT OF FINANCE AT40303 ATLANTA GA 31192 620476822 501(C)(3) 150000 MULTI-D POLYTECHNIC INSTITUTE OF NYU 15 METROTECH 6TH FLOOR BROOKLYN NY 11201 111630820 501(C)(3) 100000 TAKING FLIGHT THE GENERAL HOSPITAL MGH RESEARCH BANK OF AMERICA NA PO BOX 414876 BOSTON MA 02241 042697983 501(C)(3) 100000 TAKING FLIGHT THE REGENTS OF UNIVERSITY OF CALIFORNIA- SF 1855 FOLSUM ST STE 425 SAN FRANCISCO CA 94143 946036493 501(C)(3) 100000 TAKING FLIGHT THE CLEVELAND CLINIC FOUNDATION PO BOX 931531 CLEVELAND OH 44193 340714585 501(C)(3) 50000 INNOVATOR THE REGENTS OF UNIVERSITY OF WISCONSIN SYSTEM DRAWER 538 MILWAUKEE WI 53278 396006492 501(C)(3) 50000 INNOVATOR UNIVERSITY OF COLORADO DENVER PO BOX 238 DENVER CO 80291 846000555 501(C)(3) 50000 INFANTILE SPASMS AMERICAN EPILEPSY SOCIETY PO BOX 485 LAGRANGE IL 60525 046112600 501(C)(3) 30000 PAME CONFERENCE GORDON RESEARCH CONFERENCE 512 LIBERTY LANE W KINGSTON RI 02892 260150662 501(C)(3) 25000 2012 MECHANISMS OF EPILEPSY CONFERENCE INTERNATIONAL LEAGUE AGAINST EPILEPSY 342 NORTH MAIN ST WEST HARTFORD CT 06117 521298610 501(C)(3) 10000 AES/ILAE LONDON WORKSHOP STANFORD UNIVERSITY 300 PASTUER DRIVE EDWARDS BLDG R321 STANFORD CA 94305 941156365 501(C)(3) 15000 ALISOMAR CONFERENCE 21 PROCEDURE FOR MONITORING GRANTS IN THE U.S.: PART I, LINE 2: SCHEDULE I, PART I, LINE 2: GRANTEES ARE REQUIRED TO MAKE PERIODIC PROGRESS REPORTS. X X X 0 0 0 0 0 0 0 0 0 BOGDAN EWENDT 141828 0 0 0 0 0 4090 0 4522 0 150440 0 0 0 X 3 60327 FMV 0 0 1 THIRD PARTY USE: PART I, LINE 32B: USE OF A STOCK BROKERAGE ACCOUNT TO SELL PUBLICLY TRADED SECURITIES THAT ARE CONTRIBUTED. FORM 990, PART VI, SECTION B, LINE 11 FORM 990 IS REVIEWED BY THE DIRECTOR OF FINANCE & ADMINISTRATION, TREASURER, AND CHIEF EXECUTIVE OFFICER. WHEN THE DRAFT IS APPROVED, IT IS SENT TO THE ENTIRE BOARD. FORM 990, PART VI, SECTION B, LINE 12C EACH BOARD MEMBER SIGNS IT ANNUALLY AND EXPECTS TO SELF-MONITOR. CONFLICTS ARE DEALT WITH ON A CASE-BY-CASE BASIS. FORM 990, PART VI, SECTION B, LINE 15A COMPARABLE SALARY INFORMATION IS OBTAINED AND REVIEWED USING AN OUTSIDE EXECUTIVE SEARCH FIRM. THE BOARD OF DIRECTORS HAS FINAL APPROVAL, AND REVIEWS COMPENSATION ANNUALLY. FORM 990, PART VI, SECTION C, LINE 19 GOVERNING DOCUMENTS, CONFLICT OF INTEREST POLICY, AND FINANCIAL STATEMENTS ARE NOT GENERALLY AVAILABLE TO THE PUBLIC.