CITIZENS UNITED FOR RESEARCH IN EPILEPSY: Form 990, tax year 2022
View the entire original 990 at ProPublica ↗
- Organization
- CITIZENS UNITED FOR RESEARCH IN EPILEPSY (EIN 36-4253176)
- Tax period
- 2022-01-01 to 2022-12-31
- Filed
- 2023-05-02
- IRS object ID
- 202341229349300214
- Schema version
- 2022v5.0
- Source
- Download XML · Original 990 at ProPublica
Every field in the e-filed return. Faint text is the IRS element name, for citing.
- Return header
- Form 990
- Schedule A
- Schedule B
- Schedule C
- Schedule D
- Schedule F
- Schedule G
- Schedule I
- Schedule J
- Schedule M
- Schedule O
Return header ReturnHeader
| Field | Value | IRS element (for citing) |
|---|---|---|
| Return | 2023-05-02T11:13:40-00:00 | ReturnTs |
| Tax Period End | 2022-12-31 | TaxPeriodEndDt |
Preparer Firm PreparerFirmGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Preparer Firm EIN | 363614997 | PreparerFirmEIN |
Preparer Firm Name PreparerFirmName
| Field | Value | IRS element (for citing) |
|---|---|---|
| Business Name Line1 | Eder Casella & Co | BusinessNameLine1Txt |
Preparer US Address PreparerUSAddress
| Field | Value | IRS element (for citing) |
|---|---|---|
| Address Line1 | 5400 W Elm Street Suite 203 | AddressLine1Txt |
| City | McHenry | CityNm |
| State Abbreviation | IL | StateAbbreviationCd |
| ZIP | 60050 | ZIPCd |
| Field | Value | IRS element (for citing) |
|---|---|---|
| Return Type | 990 | ReturnTypeCd |
| Tax Period Begin | 2022-01-01 | TaxPeriodBeginDt |
Filer Filer
| Field | Value | IRS element (for citing) |
|---|---|---|
| EIN | 364253176 | EIN |
Business Name BusinessName
| Field | Value | IRS element (for citing) |
|---|---|---|
| Business Name Line1 | Citizens United for Research in Epilepsy | BusinessNameLine1Txt |
| Field | Value | IRS element (for citing) |
|---|---|---|
| Business Name Control | CITI | BusinessNameControlTxt |
| Phone | 3122551801 | PhoneNum |
US Address USAddress
| Field | Value | IRS element (for citing) |
|---|---|---|
| Address Line1 | 420 N Wabash Ave STE 650 | AddressLine1Txt |
| City | Chicago | CityNm |
| State Abbreviation | IL | StateAbbreviationCd |
| ZIP | 60611 | ZIPCd |
Business Officer BusinessOfficerGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Person | Beth Dean | PersonNm |
| Person Title | CEO | PersonTitleTxt |
| Phone | 3122551801 | PhoneNum |
| Signature | 2023-05-02 | SignatureDt |
| Discuss With Paid Preparer | Yes (true) | DiscussWithPaidPreparerInd |
Signing Officer SigningOfficerGrp
Person Full Name PersonFullName
| Field | Value | IRS element (for citing) |
|---|---|---|
| Person First | Beth | PersonFirstNm |
| Person Last | Dean | PersonLastNm |
| Field | Value | IRS element (for citing) |
|---|---|---|
| SSN | 999009999 | SSN |
Preparer Person PreparerPersonGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Preparer Person | Cheryden Juergensen | PreparerPersonNm |
| PTIN | P01252676 | PTIN |
| Phone | 8153441300 | PhoneNum |
| Preparation | 2023-05-02 | PreparationDt |
Additional Filer Information AdditionalFilerInformation
Trusted Customer TrustedCustomerGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Authentication Assurance Level | AAL1 | AuthenticationAssuranceLevelCd |
| Identity Assurance Level | IAL1 | IdentityAssuranceLevelCd |
| Field | Value | IRS element (for citing) |
|---|---|---|
| Tax | 2022 | TaxYr |
| Build TS | 2023-04-26 12:10:37Z | BuildTS |
Form 990 IRS990
Doing Business As Name DoingBusinessAsName
| Field | Value | IRS element (for citing) |
|---|---|---|
| Business Name Line1 | CURE Epilepsy | BusinessNameLine1Txt |
| Field | Value | IRS element (for citing) |
|---|---|---|
| Principal Officer | Beth Dean | PrincipalOfficerNm |
US Address USAddress
| Field | Value | IRS element (for citing) |
|---|---|---|
| Address Line1 | 420 N Wabash Ave STE 650 | AddressLine1Txt |
| City | Chicago | CityNm |
| State Abbreviation | IL | StateAbbreviationCd |
| ZIP | 60611 | ZIPCd |
| Field | Value | IRS element (for citing) |
|---|---|---|
| Gross Receipts | $9,748,461 | GrossReceiptsAmt |
| Group Return For Affiliates | false | GroupReturnForAffiliatesInd |
| Organization501c3 | Yes (X) | Organization501c3Ind |
| Website Address | www.cureepilepsy.org | WebsiteAddressTxt |
| Type Of Organization Corp | Yes (X) | TypeOfOrganizationCorpInd |
| Formation | 1998 | FormationYr |
| Legal Domicile State | IL | LegalDomicileStateCd |
| Activity Or Mission | To find a cure for epilepsy by promoting and funding patient focused research. | ActivityOrMissionDesc |
| Voting Members Governing Body | 14 | VotingMembersGoverningBodyCnt |
| Voting Members Independent | 14 | VotingMembersIndependentCnt |
| Total Employee | 19 | TotalEmployeeCnt |
| Total Volunteers | 250 | TotalVolunteersCnt |
| Total Gross UBI | $0 | TotalGrossUBIAmt |
| PY Contributions Grants | $6,172,734 | PYContributionsGrantsAmt |
| CY Contributions Grants | $5,937,146 | CYContributionsGrantsAmt |
| CY Program Service Revenue | $0 | CYProgramServiceRevenueAmt |
| PY Investment Income | $124,018 | PYInvestmentIncomeAmt |
| CY Investment Income | $846,777 | CYInvestmentIncomeAmt |
| PY Other Revenue | -$253,061 | PYOtherRevenueAmt |
| CY Other Revenue | -$552,547 | CYOtherRevenueAmt |
| PY Total Revenue | $6,043,691 | PYTotalRevenueAmt |
| CY Total Revenue | $6,231,376 | CYTotalRevenueAmt |
| PY Grants And Similar Paid | $3,021,455 | PYGrantsAndSimilarPaidAmt |
| CY Grants And Similar Paid | $2,804,485 | CYGrantsAndSimilarPaidAmt |
| CY Benefits Paid To Members | $0 | CYBenefitsPaidToMembersAmt |
| PY Salaries Comp Emp Bnft Paid | $1,948,967 | PYSalariesCompEmpBnftPaidAmt |
| CY Salaries Comp Emp Bnft Paid | $2,174,207 | CYSalariesCompEmpBnftPaidAmt |
| CY Total Prof Fndrsng Expns | $0 | CYTotalProfFndrsngExpnsAmt |
| CY Total Fundraising Expense | $460,931 | CYTotalFundraisingExpenseAmt |
| PY Other Expenses | $871,115 | PYOtherExpensesAmt |
| CY Other Expenses | $814,421 | CYOtherExpensesAmt |
| PY Total Expenses | $5,841,537 | PYTotalExpensesAmt |
| CY Total Expenses | $5,793,113 | CYTotalExpensesAmt |
| PY Revenues Less Expenses | $202,154 | PYRevenuesLessExpensesAmt |
| CY Revenues Less Expenses | $438,263 | CYRevenuesLessExpensesAmt |
| Total Assets BOY | $10,496,452 | TotalAssetsBOYAmt |
| Total Assets EOY | $10,154,743 | TotalAssetsEOYAmt |
| Total Liabilities BOY | $3,124,713 | TotalLiabilitiesBOYAmt |
| Total Liabilities EOY | $4,004,057 | TotalLiabilitiesEOYAmt |
| Net Assets Or Fund Balances BOY | $7,371,739 | NetAssetsOrFundBalancesBOYAmt |
| Net Assets Or Fund Balances EOY | $6,150,686 | NetAssetsOrFundBalancesEOYAmt |
| Mission | To find a cure for epilepsy by promoting and funding patient focused research. | MissionDesc |
| Significant New Program Srvc | false | SignificantNewProgramSrvcInd |
| Significant Change | false | SignificantChangeInd |
| Expense | $3,943,069 | ExpenseAmt |
| Desc | Since its inception in 1998, CURE Epilepsy has raised more than 90 million to fund epilepsy research and other initiatives that will lead the way to cures for the epilepsies. CURE Epilepsy awards grants for novel research projects to prevent epilepsy related to pediatric epilepsy, post-traumatic epilepsy, treatment resistant epilepsies, sudden unexplained death in epilepsy SUDEP, and sleep and epilepsy advancing the search for a cure, eliminating treatment side effects, and reversing deficits caused by frequent seizures, CURE Epilepsy funds grants for young and established investigators and todate has awarded more than 280 grants in 17 countries around the world. | Desc |
Prog Srvc Accom Acty2 ProgSrvcAccomActy2Grp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Expense | $1,064,639 | ExpenseAmt |
| Desc | CURE Epilepsy believes that awareness is a critical vehicle to increase the amount of funding for epilepsy research and to share key learnings and opportunities for those impacted by epilepsy. CURE Epilepsy creates, sponsors and levers our website, webinars, seminars, podcasts, educational events and other digital communication to drive this critical awareness. | Desc |
| Field | Value | IRS element (for citing) |
|---|---|---|
| Total Program Service Expenses | $5,007,708 | TotalProgramServiceExpensesAmt |
| Described In Section501c3 | Yes (true) | DescribedInSection501c3Ind |
| Schedule B Required | Yes (true) | ScheduleBRequiredInd |
| Political Campaign Acty | false | PoliticalCampaignActyInd |
| Lobbying Activities | Yes (true) | LobbyingActivitiesInd |
| Subject To Proxy Tax | false | SubjectToProxyTaxInd |
| Donor Advised Fund | false | DonorAdvisedFundInd |
| Conservation Easements | false | ConservationEasementsInd |
| Collections Of Art | false | CollectionsOfArtInd |
| Credit Counseling | false | CreditCounselingInd |
| Donor Rstr Or Quasi Endowments | false | DonorRstrOrQuasiEndowmentsInd |
| Report Land Building Equipment | Yes (true) | ReportLandBuildingEquipmentInd |
| Report Investments Other Sec | false | ReportInvestmentsOtherSecInd |
| Report Program Related Invst | false | ReportProgramRelatedInvstInd |
| Report Other Assets | false | ReportOtherAssetsInd |
| Report Other Liabilities | Yes (true) | ReportOtherLiabilitiesInd |
| Include FIN48 Footnote | Yes (true) | IncludeFIN48FootnoteInd |
| Independent Audit Fincl Stmt | Yes (true) | IndependentAuditFinclStmtInd |
| Consolidated Audit Fincl Stmt | false | ConsolidatedAuditFinclStmtInd |
| School Operating | false | SchoolOperatingInd |
| Foreign Office | false | ForeignOfficeInd |
| Foreign Activities | Yes (true) | ForeignActivitiesInd |
| More Than5000 K To Org | Yes (true) | MoreThan5000KToOrgInd |
| More Than5000 K To Individuals | false | MoreThan5000KToIndividualsInd |
| Professional Fundraising | false | ProfessionalFundraisingInd |
| Fundraising Activities | Yes (true) | FundraisingActivitiesInd |
| Gaming Activities | false | GamingActivitiesInd |
| Operate Hospital | false | OperateHospitalInd |
| Grants To Organizations | Yes (true) | GrantsToOrganizationsInd |
| Grants To Individuals | false | GrantsToIndividualsInd |
| Schedule J Required | Yes (true) | ScheduleJRequiredInd |
| Tax Exempt Bonds | false | TaxExemptBondsInd |
| Engaged In Excess Benefit Trans | false | EngagedInExcessBenefitTransInd |
| PY Excess Benefit Trans | false | PYExcessBenefitTransInd |
| Loan Outstanding | false | LoanOutstandingInd |
| Grant To Related Person | false | GrantToRelatedPersonInd |
| Business Rln With Org Mem | false | BusinessRlnWithOrgMemInd |
| Business Rln With Fam Mem | false | BusinessRlnWithFamMemInd |
| Business Rln With35 Ctrl Ent | false | BusinessRlnWith35CtrlEntInd |
| Deductible Non Cash Contri | Yes (true) | DeductibleNonCashContriInd |
| Deductible Art Contribution | false | DeductibleArtContributionInd |
| Terminate Operations | false | TerminateOperationsInd |
| Partial Liquidation | false | PartialLiquidationInd |
| Disregarded Entity | false | DisregardedEntityInd |
| Related Entity | false | RelatedEntityInd |
| Related Organization Ctrl Ent | false | RelatedOrganizationCtrlEntInd |
| Trnsfr Exmpt Non Chrtbl Rltd Org | false | TrnsfrExmptNonChrtblRltdOrgInd |
| Activities Conducted Prtshp | false | ActivitiesConductedPrtshpInd |
| Schedule O Required | Yes (true) | ScheduleORequiredInd |
| IRP Document | 20 | IRPDocumentCnt |
| IRP Document W2 G | 0 | IRPDocumentW2GCnt |
| Backup Wthld Compliance | Yes (true) | BackupWthldComplianceInd |
| Employee | 19 | EmployeeCnt |
| Employment Tax Returns Filed | Yes (true) | EmploymentTaxReturnsFiledInd |
| Unrelated Bus Incm Over Limit | false | UnrelatedBusIncmOverLimitInd |
| Foreign Financial Account | false | ForeignFinancialAccountInd |
| Prohibited Tax Shelter Trans | false | ProhibitedTaxShelterTransInd |
| Taxable Party Notification | false | TaxablePartyNotificationInd |
| Nondeductible Contributions | false | NondeductibleContributionsInd |
| Quid Pro Quo Contributions | Yes (true) | QuidProQuoContributionsInd |
| Quid Pro Quo Contri Discl | Yes (true) | QuidProQuoContriDisclInd |
| Form8282 Property Disposed Of | false | Form8282PropertyDisposedOfInd |
| Rcv Fnds To Pay Prsnl Bnft Cntrct | false | RcvFndsToPayPrsnlBnftCntrctInd |
| Pay Premiums Prsnl Bnft Cntrct | false | PayPremiumsPrsnlBnftCntrctInd |
| Indoor Tanning Services | false | IndoorTanningServicesInd |
| Subj To Tax Rmnrtn Ex Prcht Pymt | false | SubjToTaxRmnrtnExPrchtPymtInd |
| Subject To Excs Tax Net Invst Inc | false | SubjectToExcsTaxNetInvstIncInd |
| Info In Schedule O Part VI | Yes (X) | InfoInScheduleOPartVIInd |
| Governing Body Voting Members | 14 | GoverningBodyVotingMembersCnt |
| Independent Voting Member | 14 | IndependentVotingMemberCnt |
| Family Or Business Rln | false | FamilyOrBusinessRlnInd |
| Delegation Of Mgmt Duties | false | DelegationOfMgmtDutiesInd |
| Change To Org Documents | false | ChangeToOrgDocumentsInd |
| Material Diversion Or Misuse | false | MaterialDiversionOrMisuseInd |
| Members Or Stockholders | false | MembersOrStockholdersInd |
| Election Of Board Members | false | ElectionOfBoardMembersInd |
| Decisions Subject To Approva | false | DecisionsSubjectToApprovaInd |
| Minutes Of Governing Body | Yes (true) | MinutesOfGoverningBodyInd |
| Minutes Of Committees | Yes (true) | MinutesOfCommitteesInd |
| Officer Mailing Address | false | OfficerMailingAddressInd |
| Local Chapters | false | LocalChaptersInd |
| Form990 Provided To Gvrn Body | Yes (true) | Form990ProvidedToGvrnBodyInd |
| Conflict Of Interest Policy | Yes (true) | ConflictOfInterestPolicyInd |
| Annual Disclosure Covered Prsn | Yes (true) | AnnualDisclosureCoveredPrsnInd |
| Regular Monitoring Enfrc | Yes (true) | RegularMonitoringEnfrcInd |
| Whistleblower Policy | Yes (true) | WhistleblowerPolicyInd |
| Document Retention Policy | Yes (true) | DocumentRetentionPolicyInd |
| Compensation Process CEO | Yes (true) | CompensationProcessCEOInd |
| Compensation Process Other | false | CompensationProcessOtherInd |
| Investment In Joint Venture | false | InvestmentInJointVentureInd |
| States Where Copy Of Return Is Fld | AL | StatesWhereCopyOfReturnIsFldCd |
| States Where Copy Of Return Is Fld | AR | StatesWhereCopyOfReturnIsFldCd |
| States Where Copy Of Return Is Fld | CA | StatesWhereCopyOfReturnIsFldCd |
| States Where Copy Of Return Is Fld | CT | StatesWhereCopyOfReturnIsFldCd |
| States Where Copy Of Return Is Fld | FL | StatesWhereCopyOfReturnIsFldCd |
| States Where Copy Of Return Is Fld | GA | StatesWhereCopyOfReturnIsFldCd |
| States Where Copy Of Return Is Fld | HI | StatesWhereCopyOfReturnIsFldCd |
| States Where Copy Of Return Is Fld | IL | StatesWhereCopyOfReturnIsFldCd |
| States Where Copy Of Return Is Fld | KS | StatesWhereCopyOfReturnIsFldCd |
| States Where Copy Of Return Is Fld | KY | StatesWhereCopyOfReturnIsFldCd |
| States Where Copy Of Return Is Fld | MA | StatesWhereCopyOfReturnIsFldCd |
| States Where Copy Of Return Is Fld | MD | StatesWhereCopyOfReturnIsFldCd |
| States Where Copy Of Return Is Fld | MI | StatesWhereCopyOfReturnIsFldCd |
| States Where Copy Of Return Is Fld | MN | StatesWhereCopyOfReturnIsFldCd |
| States Where Copy Of Return Is Fld | MS | StatesWhereCopyOfReturnIsFldCd |
| States Where Copy Of Return Is Fld | NH | StatesWhereCopyOfReturnIsFldCd |
| States Where Copy Of Return Is Fld | NJ | StatesWhereCopyOfReturnIsFldCd |
| States Where Copy Of Return Is Fld | NM | StatesWhereCopyOfReturnIsFldCd |
| States Where Copy Of Return Is Fld | NY | StatesWhereCopyOfReturnIsFldCd |
| States Where Copy Of Return Is Fld | OK | StatesWhereCopyOfReturnIsFldCd |
| States Where Copy Of Return Is Fld | OR | StatesWhereCopyOfReturnIsFldCd |
| States Where Copy Of Return Is Fld | PA | StatesWhereCopyOfReturnIsFldCd |
| States Where Copy Of Return Is Fld | RI | StatesWhereCopyOfReturnIsFldCd |
| States Where Copy Of Return Is Fld | SC | StatesWhereCopyOfReturnIsFldCd |
| States Where Copy Of Return Is Fld | TN | StatesWhereCopyOfReturnIsFldCd |
| States Where Copy Of Return Is Fld | TX | StatesWhereCopyOfReturnIsFldCd |
| States Where Copy Of Return Is Fld | WI | StatesWhereCopyOfReturnIsFldCd |
| States Where Copy Of Return Is Fld | WV | StatesWhereCopyOfReturnIsFldCd |
| Own Website | Yes (X) | OwnWebsiteInd |
| Other Website | Yes (X) | OtherWebsiteInd |
| Upon Request | Yes (X) | UponRequestInd |
Books In Care Of Detail BooksInCareOfDetail
| Field | Value | IRS element (for citing) |
|---|---|---|
| Person | John Anderluh | PersonNm |
| Phone | 3122551801 | PhoneNum |
US Address USAddress
| Field | Value | IRS element (for citing) |
|---|---|---|
| Address Line1 | 420 N Wabash Ave Suite 650 | AddressLine1Txt |
| City | Chicago | CityNm |
| State Abbreviation | IL | StateAbbreviationCd |
| ZIP | 60611 | ZIPCd |
Form990 Part VII Section A Form990PartVIISectionAGrp (21 entries)
| TitleTitleTxt | Average Hours Per WeekAverageHoursPerWeekRt | OfficerOfficerInd | Reportable Comp From OrgReportableCompFromOrgAmt | Reportable Comp From Rltd OrgReportableCompFromRltdOrgAmt | Other CompensationOtherCompensationAmt | Key EmployeeKeyEmployeeInd | Highest Compensated EmployeeHighestCompensatedEmployeeInd | Individual Trustee Or DirectorIndividualTrusteeOrDirectorInd |
|---|---|---|---|---|---|---|---|---|
| Beth Dean | ||||||||
| CEO | 037.50 | Yes (X) | $299,086 | $0 | $36,965 | |||
| Laura Lubbers | ||||||||
| Chief Scientific Officer | 037.50 | $295,325 | $0 | $17,105 | Yes (X) | |||
| Debby Hecht | ||||||||
| Sr. Director, Market Coms | 037.50 | $162,707 | $0 | $6,346 | Yes (X) | |||
| Alysha Biehl | ||||||||
| Sr. Director Development | 037.50 | $149,182 | $0 | $14,528 | Yes (X) | |||
| Priya Balasubramanian | ||||||||
| Assoc Director of Research | 037.50 | $115,032 | $0 | $25,035 | Yes (X) | |||
| John Anderluh | ||||||||
| CFO | 037.50 | Yes (X) | $110,734 | $0 | $27,352 | |||
| Lauren Harte-Hargrove | ||||||||
| DOD, Assoc Director of Res | 037.50 | $120,690 | $0 | $4,111 | Yes (X) | |||
| Kelly Cervantes | ||||||||
| Chair | 004.00 | Yes (X) | $0 | $0 | $0 | Yes (X) | ||
| Lisa Cotton | ||||||||
| Chair Elect | 003.00 | Yes (X) | $0 | $0 | $0 | Yes (X) | ||
| Shalee Cunneen | ||||||||
| Secretary | 003.00 | Yes (X) | $0 | $0 | $0 | Yes (X) | ||
| Kathy McKenna | ||||||||
| Treasurer | 004.00 | Yes (X) | $0 | $0 | $0 | Yes (X) | ||
| Steve Austin | ||||||||
| Director | 002.00 | $0 | $0 | $0 | Yes (X) | |||
| Mike Axelrod | ||||||||
| Director | 002.00 | $0 | $0 | $0 | Yes (X) | |||
| Kim Borden | ||||||||
| Director | 002.00 | $0 | $0 | $0 | Yes (X) | |||
| Marilynn Gardner | ||||||||
| Director | 002.00 | $0 | $0 | $0 | Yes (X) | |||
| Carrie Garman | ||||||||
| Director | 002.00 | $0 | $0 | $0 | Yes (X) | |||
| Justin Gover | ||||||||
| Director | 002.00 | $0 | $0 | $0 | Yes (X) | |||
| David Reifman | ||||||||
| Director | 002.00 | $0 | $0 | $0 | Yes (X) | |||
| Tina Sacks | ||||||||
| Director | 002.00 | $0 | $0 | $0 | Yes (X) | |||
| Matt Schneider | ||||||||
| Director | 003.00 | $0 | $0 | $0 | Yes (X) | |||
| Hannah Whitten | ||||||||
| Director | 002.00 | $0 | $0 | $0 | Yes (X) | |||
| Field | Value | IRS element (for citing) |
|---|---|---|
| Total Reportable Comp From Org | $1,252,756 | TotalReportableCompFromOrgAmt |
| Total Other Compensation | $131,442 | TotalOtherCompensationAmt |
| Indiv Rcvd Greater Than100 K | 7 | IndivRcvdGreaterThan100KCnt |
| Former Ofcr Employees Listed | false | FormerOfcrEmployeesListedInd |
| Total Comp Greater Than150 K | Yes (true) | TotalCompGreaterThan150KInd |
| Compensation From Other Srcs | false | CompensationFromOtherSrcsInd |
Contractor Compensation ContractorCompensationGrp
Contractor Name ContractorName
| Field | Value | IRS element (for citing) |
|---|---|---|
| Person | Wasserman Music LLC | PersonNm |
Contractor Address ContractorAddress
US Address USAddress
| Field | Value | IRS element (for citing) |
|---|---|---|
| Address Line1 | 10900 Wilshire Blvd Suite 1200 | AddressLine1Txt |
| City | Los Angeles | CityNm |
| State Abbreviation | CA | StateAbbreviationCd |
| ZIP | 90024 | ZIPCd |
| Field | Value | IRS element (for citing) |
|---|---|---|
| Services | Music for Benefit | ServicesDesc |
| Compensation | $120,000 | CompensationAmt |
| Field | Value | IRS element (for citing) |
|---|---|---|
| Cntrct Rcvd Greater Than100 K | 1 | CntrctRcvdGreaterThan100KCnt |
| Fundraising | $2,638,271 | FundraisingAmt |
| Government Grants | $538,439 | GovernmentGrantsAmt |
| All Other Contributions | $2,760,436 | AllOtherContributionsAmt |
| Noncash Contributions | $772,767 | NoncashContributionsAmt |
| Total Contributions | $5,937,146 | TotalContributionsAmt |
Investment Income InvestmentIncomeGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Total Revenue Column | $140,351 | TotalRevenueColumnAmt |
Gross Amount Sales Assets GrossAmountSalesAssetsGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Securities | $3,610,814 | SecuritiesAmt |
Less Cost Oth Basis Sales Expnss LessCostOthBasisSalesExpnssGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Securities | $2,904,388 | SecuritiesAmt |
Gain Or Loss GainOrLossGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Securities | $706,426 | SecuritiesAmt |
Net Gain Or Loss Investments NetGainOrLossInvestmentsGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Total Revenue Column | $706,426 | TotalRevenueColumnAmt |
| Field | Value | IRS element (for citing) |
|---|---|---|
| Fundraising Gross Income | $60,150 | FundraisingGrossIncomeAmt |
| Contri Rpt Fundraising Event | $2,638,271 | ContriRptFundraisingEventAmt |
| Fundraising Direct Expenses | $612,697 | FundraisingDirectExpensesAmt |
Net Incm From Fundraising Evt NetIncmFromFundraisingEvtGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Total Revenue Column | -$552,547 | TotalRevenueColumnAmt |
Total Revenue TotalRevenueGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Total Revenue Column | $6,231,376 | TotalRevenueColumnAmt |
Grants To Domestic Orgs GrantsToDomesticOrgsGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Total | $2,155,773 | TotalAmt |
| Program Services | $2,155,773 | ProgramServicesAmt |
Grants To Domestic Individuals GrantsToDomesticIndividualsGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Total | $0 | TotalAmt |
Foreign Grants ForeignGrantsGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Total | $648,712 | TotalAmt |
| Program Services | $648,712 | ProgramServicesAmt |
Benefits To Members BenefitsToMembersGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Total | $0 | TotalAmt |
Comp Current Ofcr Directors CompCurrentOfcrDirectorsGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Total | $1,276,512 | TotalAmt |
| Program Services | $923,032 | ProgramServicesAmt |
| Management And General | $148,076 | ManagementAndGeneralAmt |
| Fundraising | $205,404 | FundraisingAmt |
Comp Disqual Persons CompDisqualPersonsGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Total | $0 | TotalAmt |
Other Salaries And Wages OtherSalariesAndWagesGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Total | $555,921 | TotalAmt |
| Program Services | $304,794 | ProgramServicesAmt |
| Management And General | $71,591 | ManagementAndGeneralAmt |
| Fundraising | $179,536 | FundraisingAmt |
Pension Plan Contributions PensionPlanContributionsGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Total | $0 | TotalAmt |
Other Employee Benefits OtherEmployeeBenefitsGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Total | $221,020 | TotalAmt |
| Program Services | $148,880 | ProgramServicesAmt |
| Management And General | $25,909 | ManagementAndGeneralAmt |
| Fundraising | $46,231 | FundraisingAmt |
Payroll Taxes PayrollTaxesGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Total | $120,754 | TotalAmt |
| Program Services | $79,565 | ProgramServicesAmt |
| Management And General | $15,923 | ManagementAndGeneralAmt |
| Fundraising | $25,266 | FundraisingAmt |
Fees For Services Management FeesForServicesManagementGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Total | $0 | TotalAmt |
Fees For Services Legal FeesForServicesLegalGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Total | $0 | TotalAmt |
Fees For Services Accounting FeesForServicesAccountingGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Total | $26,592 | TotalAmt |
| Program Services | $23,085 | ProgramServicesAmt |
| Management And General | $3,507 | ManagementAndGeneralAmt |
Fees For Services Lobbying FeesForServicesLobbyingGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Total | $0 | TotalAmt |
| Field | Value | IRS element (for citing) |
|---|---|---|
| Fees For Services Prof Fundraising | FeesForServicesProfFundraising |
Fees For Srvc Invst Mgmnt Fees FeesForSrvcInvstMgmntFeesGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Total | $15,951 | TotalAmt |
| Management And General | $15,951 | ManagementAndGeneralAmt |
Fees For Services Other FeesForServicesOtherGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Total | $43,726 | TotalAmt |
| Program Services | $42,422 | ProgramServicesAmt |
| Management And General | $1,304 | ManagementAndGeneralAmt |
Advertising AdvertisingGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Total | $0 | TotalAmt |
Office Expenses OfficeExpensesGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Total | $61,189 | TotalAmt |
| Program Services | $53,569 | ProgramServicesAmt |
| Management And General | $7,620 | ManagementAndGeneralAmt |
Information Technology InformationTechnologyGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Total | $126,590 | TotalAmt |
| Program Services | $118,522 | ProgramServicesAmt |
| Management And General | $8,068 | ManagementAndGeneralAmt |
Royalties RoyaltiesGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Total | $0 | TotalAmt |
Occupancy OccupancyGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Total | $81,386 | TotalAmt |
| Program Services | $69,027 | ProgramServicesAmt |
| Management And General | $12,359 | ManagementAndGeneralAmt |
Travel TravelGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Total | $39,882 | TotalAmt |
| Program Services | $34,652 | ProgramServicesAmt |
| Management And General | $5,230 | ManagementAndGeneralAmt |
Pymt Travel Entrtnmnt Pub Ofcl PymtTravelEntrtnmntPubOfclGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Total | $0 | TotalAmt |
Conferences Meetings ConferencesMeetingsGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Total | $58,870 | TotalAmt |
| Program Services | $58,870 | ProgramServicesAmt |
Interest InterestGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Total | $0 | TotalAmt |
Payments To Affiliates PaymentsToAffiliatesGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Total | $0 | TotalAmt |
Depreciation Depletion DepreciationDepletionGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Total | $20,997 | TotalAmt |
| Program Services | $13,997 | ProgramServicesAmt |
| Management And General | $2,506 | ManagementAndGeneralAmt |
| Fundraising | $4,494 | FundraisingAmt |
Insurance InsuranceGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Total | $10,935 | TotalAmt |
| Program Services | $9,274 | ProgramServicesAmt |
| Management And General | $1,661 | ManagementAndGeneralAmt |
Other Expenses OtherExpensesGrp (4 entries)
| DescDesc | TotalTotalAmt | Program ServicesProgramServicesAmt | Management And GeneralManagementAndGeneralAmt |
|---|---|---|---|
| Advocacy and Awareness | $296,901 | $296,901 | |
| Other Expenses | $18,321 | $15,538 | $2,783 |
| State registrations | $9,951 | $8,440 | $1,511 |
| Supplies | $3,130 | $2,655 | $475 |
All Other Expenses AllOtherExpensesGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Total | $0 | TotalAmt |
Total Functional Expenses TotalFunctionalExpensesGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Total | $5,793,113 | TotalAmt |
| Program Services | $5,007,708 | ProgramServicesAmt |
| Management And General | $324,474 | ManagementAndGeneralAmt |
| Fundraising | $460,931 | FundraisingAmt |
Cash Non Interest Bearing CashNonInterestBearingGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| BOY | $3,228,731 | BOYAmt |
| EOY | $814,141 | EOYAmt |
Savings And Temp Cash Invst SavingsAndTempCashInvstGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| BOY | $7,987 | BOYAmt |
Pledges And Grants Receivable PledgesAndGrantsReceivableGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| BOY | $1,254,046 | BOYAmt |
| EOY | $635,571 | EOYAmt |
Prepaid Expenses Defrd Charges PrepaidExpensesDefrdChargesGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| BOY | $42,012 | BOYAmt |
| EOY | $41,357 | EOYAmt |
| Field | Value | IRS element (for citing) |
|---|---|---|
| Land Bldg Equip Cost Or Other Bss | $271,418 | LandBldgEquipCostOrOtherBssAmt |
| Land Bldg Equip Accum Deprec | $211,495 | LandBldgEquipAccumDeprecAmt |
Land Bldg Equip Basis Net LandBldgEquipBasisNetGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| BOY | $54,310 | BOYAmt |
| EOY | $59,923 | EOYAmt |
Investments Pub Traded Sec InvestmentsPubTradedSecGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| BOY | $5,899,366 | BOYAmt |
| EOY | $8,153,627 | EOYAmt |
Other Assets Total OtherAssetsTotalGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| BOY | $10,000 | BOYAmt |
| EOY | $450,124 | EOYAmt |
Total Assets TotalAssetsGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| BOY | $10,496,452 | BOYAmt |
| EOY | $10,154,743 | EOYAmt |
Accounts Payable Accr Expnss AccountsPayableAccrExpnssGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| BOY | $187,023 | BOYAmt |
| EOY | $143,881 | EOYAmt |
Grants Payable GrantsPayableGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| BOY | $2,145,433 | BOYAmt |
| EOY | $3,045,280 | EOYAmt |
Deferred Revenue DeferredRevenueGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| BOY | $792,257 | BOYAmt |
| EOY | $316,546 | EOYAmt |
Other Liabilities OtherLiabilitiesGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| EOY | $498,350 | EOYAmt |
Total Liabilities TotalLiabilitiesGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| BOY | $3,124,713 | BOYAmt |
| EOY | $4,004,057 | EOYAmt |
| Field | Value | IRS element (for citing) |
|---|---|---|
| Organization Follows FASB117 | Yes (X) | OrganizationFollowsFASB117Ind |
No Donor Restriction Net Assets NoDonorRestrictionNetAssetsGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| BOY | $6,049,122 | BOYAmt |
| EOY | $5,094,243 | EOYAmt |
Donor Restriction Net Assets DonorRestrictionNetAssetsGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| BOY | $1,322,617 | BOYAmt |
| EOY | $1,056,443 | EOYAmt |
Total Net Assets Fund Balance TotalNetAssetsFundBalanceGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| BOY | $7,371,739 | BOYAmt |
| EOY | $6,150,686 | EOYAmt |
Tot Liab Net Assets Fund Balance TotLiabNetAssetsFundBalanceGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| BOY | $10,496,452 | BOYAmt |
| EOY | $10,154,743 | EOYAmt |
| Field | Value | IRS element (for citing) |
|---|---|---|
| Reconcilation Revenue Expnss | $438,263 | ReconcilationRevenueExpnssAmt |
| Net Unrlzd Gains Losses Invst | -$1,659,316 | NetUnrlzdGainsLossesInvstAmt |
| Method Of Accounting Accrual | Yes (X) | MethodOfAccountingAccrualInd |
| Accountant Compile Or Review | false | AccountantCompileOrReviewInd |
| FS Audited | Yes (true) | FSAuditedInd |
FS Audited Basis FSAuditedBasisGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Separate Basis Fincl Stmt | Yes (X) | SeparateBasisFinclStmtInd |
| Field | Value | IRS element (for citing) |
|---|---|---|
| Audit Committee | Yes (true) | AuditCommitteeInd |
| Federal Grant Audit Required | false | FederalGrantAuditRequiredInd |
Schedule A IRS990ScheduleA
| Field | Value | IRS element (for citing) |
|---|---|---|
| Public Organization170 | Yes (X) | PublicOrganization170Ind |
Gifts Grants Contri Rcvd170 GiftsGrantsContriRcvd170Grp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Current Tax Year Minus4 Years | $7,555,195 | CurrentTaxYearMinus4YearsAmt |
| Current Tax Year Minus3 Years | $7,599,997 | CurrentTaxYearMinus3YearsAmt |
| Current Tax Year Minus2 Years | $6,964,176 | CurrentTaxYearMinus2YearsAmt |
| Current Tax Year Minus1 Year | $6,172,734 | CurrentTaxYearMinus1YearAmt |
| Current Tax Year | $5,937,146 | CurrentTaxYearAmt |
| Total | $34,229,248 | TotalAmt |
Total Calendar Year170 TotalCalendarYear170Grp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Current Tax Year Minus4 Years | $7,555,195 | CurrentTaxYearMinus4YearsAmt |
| Current Tax Year Minus3 Years | $7,599,997 | CurrentTaxYearMinus3YearsAmt |
| Current Tax Year Minus2 Years | $6,964,176 | CurrentTaxYearMinus2YearsAmt |
| Current Tax Year Minus1 Year | $6,172,734 | CurrentTaxYearMinus1YearAmt |
| Current Tax Year | $5,937,146 | CurrentTaxYearAmt |
| Total | $34,229,248 | TotalAmt |
| Field | Value | IRS element (for citing) |
|---|---|---|
| Substantial Contributors Tot | $904,519 | SubstantialContributorsTotAmt |
| Public Support Total170 | $33,324,729 | PublicSupportTotal170Amt |
Gross Investment Income170 GrossInvestmentIncome170Grp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Current Tax Year Minus4 Years | $71,470 | CurrentTaxYearMinus4YearsAmt |
| Current Tax Year Minus3 Years | $175,964 | CurrentTaxYearMinus3YearsAmt |
| Current Tax Year Minus2 Years | $105,918 | CurrentTaxYearMinus2YearsAmt |
| Current Tax Year Minus1 Year | $124,018 | CurrentTaxYearMinus1YearAmt |
| Current Tax Year | $140,351 | CurrentTaxYearAmt |
| Total | $617,721 | TotalAmt |
| Field | Value | IRS element (for citing) |
|---|---|---|
| Total Support | $34,846,969 | TotalSupportAmt |
| Gross Receipts Rltd Activities | $387,603 | GrossReceiptsRltdActivitiesAmt |
| Public Support CY170 | 0.95630 | PublicSupportCY170Pct |
| Public Support PY170 | 0.95490 | PublicSupportPY170Pct |
| Thirty Thr Pct Suprt Tests CY170 | Yes (X) | ThirtyThrPctSuprtTestsCY170Ind |
Schedule B IRS990ScheduleB
Contributor Information ContributorInformationGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Contributor | RESTRICTED | ContributorNum |
Contributor Business Name ContributorBusinessName
| Field | Value | IRS element (for citing) |
|---|---|---|
| Business Name Line1 | RESTRICTED | BusinessNameLine1 |
Contributor US Address ContributorUSAddress
| Field | Value | IRS element (for citing) |
|---|---|---|
| Address Line1 | RESTRICTED | AddressLine1 |
| Address Line2 | RESTRICTED | AddressLine2 |
| City | RESTRICTED | City |
| State | RESTRICTED | State |
| ZIP Code | RESTRICTED | ZIPCode |
| Field | Value | IRS element (for citing) |
|---|---|---|
| Total Contributions | RESTRICTED | TotalContributionsAmt |
Schedule C IRS990ScheduleC
Total Direct Lobbying TotalDirectLobbyingGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Filing Organizations Total | $10,000 | FilingOrganizationsTotalAmt |
Total Lobbying Expend TotalLobbyingExpendGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Filing Organizations Total | $10,000 | FilingOrganizationsTotalAmt |
Other Exempt Purpose Expend OtherExemptPurposeExpendGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Filing Organizations Total | $5,783,113 | FilingOrganizationsTotalAmt |
Total Exempt Purpose Expend TotalExemptPurposeExpendGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Filing Organizations Total | $5,793,113 | FilingOrganizationsTotalAmt |
Lobbying Nontaxable Amount LobbyingNontaxableAmountGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Filing Organizations Total | $439,656 | FilingOrganizationsTotalAmt |
Grassroots Nontaxable GrassrootsNontaxableGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Filing Organizations Total | $109,914 | FilingOrganizationsTotalAmt |
Avg Lobbying Nontaxable Amount AvgLobbyingNontaxableAmountGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Current Year Minus3 | $463,172 | CurrentYearMinus3Amt |
| Current Year Minus2 | $527,490 | CurrentYearMinus2Amt |
| Current Year Minus1 | $442,077 | CurrentYearMinus1Amt |
| Current Year | $439,656 | CurrentYearAmt |
| Total | $1,872,395 | TotalAmt |
| Field | Value | IRS element (for citing) |
|---|---|---|
| Lobbying Ceiling | $2,808,593 | LobbyingCeilingAmt |
Avg Total Lobbying Expend AvgTotalLobbyingExpendGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Current Year Minus1 | $40,000 | CurrentYearMinus1Amt |
| Current Year | $10,000 | CurrentYearAmt |
| Total | $50,000 | TotalAmt |
Avg Grassroots Nontaxable AvgGrassrootsNontaxableGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Current Year Minus3 | $115,793 | CurrentYearMinus3Amt |
| Current Year Minus2 | $131,873 | CurrentYearMinus2Amt |
| Current Year Minus1 | $110,519 | CurrentYearMinus1Amt |
| Current Year | $109,914 | CurrentYearAmt |
| Total | $468,099 | TotalAmt |
| Field | Value | IRS element (for citing) |
|---|---|---|
| Grassroots Ceiling | $702,149 | GrassrootsCeilingAmt |
Schedule D IRS990ScheduleD
| Field | Value | IRS element (for citing) |
|---|---|---|
| Incl Escrow Custodial Acct Liab | false | InclEscrowCustodialAcctLiabInd |
Leasehold Improvements LeaseholdImprovementsGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Other Cost Or Other Basis | $100,519 | OtherCostOrOtherBasisAmt |
| Depreciation | $77,359 | DepreciationAmt |
| Book Value | $23,160 | BookValueAmt |
Equipment EquipmentGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Other Cost Or Other Basis | $170,899 | OtherCostOrOtherBasisAmt |
| Depreciation | $134,136 | DepreciationAmt |
| Book Value | $36,763 | BookValueAmt |
| Field | Value | IRS element (for citing) |
|---|---|---|
| Total Book Value Land Buildings | $59,923 | TotalBookValueLandBuildingsAmt |
Other Securities OtherSecuritiesGrp (2 entries)
| DescDesc |
|---|
| Financial derivatives and other financial products |
| Closely-held equity interests |
Other Liabilities Org OtherLiabilitiesOrgGrp (2 entries)
| DescDesc | AmtAmt |
|---|---|
| Federal income taxes | |
| Operating Lease Liabilities | $498,350 |
| Field | Value | IRS element (for citing) |
|---|---|---|
| Total Liability | $498,350 | TotalLiabilityAmt |
| Footnote Text | Yes (X) | FootnoteTextInd |
| Total Rev Etc Audited Fincl Stmt | $4,588,422 | TotalRevEtcAuditedFinclStmtAmt |
| Net Unrealized Gains Invst | -$1,659,316 | NetUnrealizedGainsInvstAmt |
| Donated Services And Use Fclts | $32,313 | DonatedServicesAndUseFcltsAmt |
| Revenue Not Reported | -$1,627,003 | RevenueNotReportedAmt |
| Revenue Subtotal | $6,215,425 | RevenueSubtotalAmt |
| Investment Expenses Not Incld | $15,951 | InvestmentExpensesNotIncldAmt |
| Revenue Not Reported Fincl Stmt | $15,951 | RevenueNotReportedFinclStmtAmt |
| Total Revenue Per Form990 | $6,231,376 | TotalRevenuePerForm990Amt |
| Tot Expns Etc Audited Fincl Stmt | $5,809,475 | TotExpnsEtcAuditedFinclStmtAmt |
| Donated Services Use Fclts | $32,313 | DonatedServicesUseFcltsAmt |
| Expenses Not Reported | $32,313 | ExpensesNotReportedAmt |
| Expenses Subtotal | $5,777,162 | ExpensesSubtotalAmt |
| Investment Expenses Not Incld2 | $15,951 | InvestmentExpensesNotIncld2Amt |
| Expenses Not Rpt Fincl Stmt | $15,951 | ExpensesNotRptFinclStmtAmt |
| Total Expenses Per Form990 | $5,793,113 | TotalExpensesPerForm990Amt |
Supplemental Information Detail SupplementalInformationDetail
| Field | Value | IRS element (for citing) |
|---|---|---|
| Form And Line Reference | X 2 | FormAndLineReferenceDesc |
| Explanation | The Organization is a nonprofit corporation that is exempt from income taxes under Section 501c3 of the Internal Revenue Code as an entity that is not a private foundation within the meaning of section 509a and qualifies for deductible contributions as provided in section 170b1aVI. Management represents that the organization has no unrelated business income for the year ended December 31, 2022. | ExplanationTxt |
Schedule F IRS990ScheduleF
| Field | Value | IRS element (for citing) |
|---|---|---|
| Grant Records Maintained | Yes (true) | GrantRecordsMaintainedInd |
Account Activities Outside US AccountActivitiesOutsideUSGrp (2 entries)
| RegionRegionTxt | Type Of Activities ConductedTypeOfActivitiesConductedTxt | Region Total ExpendituresRegionTotalExpendituresAmt |
|---|---|---|
| Europe Including Iceland and Greenland | Grants to recipients in region | $550,912 |
| North America | Grants to recipients in region | $97,800 |
| Field | Value | IRS element (for citing) |
|---|---|---|
| Subtotal Spent | $648,712 | SubtotalSpentAmt |
| Total Spent | $648,712 | TotalSpentAmt |
Grants To Org Outside US GrantsToOrgOutsideUSGrp (6 entries)
| RegionRegionTxt | Purpose Of GrantPurposeOfGrantTxt | Cash GrantCashGrantAmt | Manner Of Cash DisbursementMannerOfCashDisbursementTxt |
|---|---|---|---|
| Europe Including Iceland and Greenland | Catalyst | $249,952 | Wire |
| Europe Including Iceland and Greenland | Rare Epilepsy Research | $96,160 | Wire |
| Europe Including Iceland and Greenland | Rare Epilepsy Research | $98,000 | Wire |
| Europe Including Iceland and Greenland | Research Conference Grant | $6,800 | Wire |
| Europe Including Iceland and Greenland | Taking Flight Research | $100,000 | Wire |
| North America | Taking Flight Research | $97,800 | Wire |
| Field | Value | IRS element (for citing) |
|---|---|---|
| Total Other Org | 6 | TotalOtherOrgCnt |
| Transfer To Foreign Corp | false | TransferToForeignCorpInd |
| Interest In Foreign Trust | false | InterestInForeignTrustInd |
| Foreign Corp Ownership | false | ForeignCorpOwnershipInd |
| Passive Foreign Investmest Co | false | PassiveForeignInvestmestCoInd |
| Foreign Partnership | false | ForeignPartnershipInd |
| Boycott Countries | false | BoycottCountriesInd |
Supplemental Information Detail SupplementalInformationDetail
| Field | Value | IRS element (for citing) |
|---|---|---|
| Form And Line Reference | Part I Line 2 | FormAndLineReferenceDesc |
| Explanation | Grantees are required to make periodic progress reports. | ExplanationTxt |
Schedule G IRS990ScheduleG
Fundraising Event Information FundraisingEventInformationGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Event1 | Chicago Benefit | Event1Nm |
| Gross Receipts Event1 | $1,939,900 | GrossReceiptsEvent1Amt |
| Charitable Contri Event1 | $1,879,750 | CharitableContriEvent1Amt |
| Gross Revenue Event1 | $60,150 | GrossRevenueEvent1Amt |
| Rent Facility Costs Event1 | $97,028 | RentFacilityCostsEvent1Amt |
| Food And Beverage Event1 | $91,466 | FoodAndBeverageEvent1Amt |
| Entertainment Event1 | $120,000 | EntertainmentEvent1Amt |
| Other Direct Expenses Event1 | $168,550 | OtherDirectExpensesEvent1Amt |
| Event2 | Unite Virtual Event | Event2Nm |
| Gross Receipts Event2 | $230,068 | GrossReceiptsEvent2Amt |
| Charitable Contri Event2 | $230,068 | CharitableContriEvent2Amt |
| Other Direct Expenses Event2 | $89,459 | OtherDirectExpensesEvent2Amt |
| Other Events Total | 1 | OtherEventsTotalCnt |
| Gross Receipts Other Events | $528,453 | GrossReceiptsOtherEventsAmt |
| Charitable Contri Other Events | $528,453 | CharitableContriOtherEventsAmt |
| Rent Fclty Costs Other Events | $6,274 | RentFcltyCostsOtherEventsAmt |
| Oth Direct Expnss Other Events | $39,920 | OthDirectExpnssOtherEventsAmt |
| Gross Receipts Total | $2,698,421 | GrossReceiptsTotalAmt |
| Charitable Contributions Tot | $2,638,271 | CharitableContributionsTotAmt |
| Gross Revenue Total Events | $60,150 | GrossRevenueTotalEventsAmt |
| Rent Fclty Costs Total Events | $103,302 | RentFcltyCostsTotalEventsAmt |
| Food And Beverage Total Events | $91,466 | FoodAndBeverageTotalEventsAmt |
| Entertainment Total Events | $120,000 | EntertainmentTotalEventsAmt |
| Oth Direct Expnss Total Events | $297,929 | OthDirectExpnssTotalEventsAmt |
| Direct Expense Summary Events | $612,697 | DirectExpenseSummaryEventsAmt |
| Net Income Summary | -$552,547 | NetIncomeSummaryAmt |
Schedule I IRS990ScheduleI
| Field | Value | IRS element (for citing) |
|---|---|---|
| Grant Records Maintained | Yes (true) | GrantRecordsMaintainedInd |
Recipient Table RecipientTable (17 entries)
| Address Line1USAddress/AddressLine1Txt | CityUSAddress/CityNm | State AbbreviationUSAddress/StateAbbreviationCd | ZIPUSAddress/ZIPCd | Recipient EINRecipientEIN | IRC SectionIRCSectionDesc | Cash GrantCashGrantAmt | Purpose Of GrantPurposeOfGrantTxt |
|---|---|---|---|---|---|---|---|
| Alliance for Epilepsy Research | |||||||
| 3635 S Downs St | Dexter | MI | 48130 | 431760017 | 501C3 | $5,671 | Research Conference Grant |
| American Epilepsy Society | |||||||
| 135 W Lasalle St | Chicago | IL | 60603 | 046112600 | 501C3 | $17,500 | Research Conference Grant |
| Axonis Therapeutics Inc | |||||||
| 75 Kneeland St | Boston | MA | 01222 | 272454388 | S-Corp | $249,150 | Catalyst |
| Brandeis University | |||||||
| 415 South St | Waltham | MA | 02453 | 042103552 | 501C3 | $250,000 | Catalyst |
| Emory University | |||||||
| PO Box 935084 | Atlanta | GA | 31193 | 582566256 | 501C3 | $250,000 | CURE Epilepsy |
| Gordon Research Conferences | |||||||
| 5568 Post Road G02 | East Greenwich | RI | 02818 | 260150662 | 501C3 | $8,861 | Research Conference Grant |
| Mayo Clinic | |||||||
| PO Box 860334 | Minneapolis | MN | 55486 | 416011702 | 501C3 | $19,078 | Research Conference Grant |
| Mid Adlantic Epilepsy & Sleep Center LLC | |||||||
| 6410 Rockledge Dr | Bethesda | MD | 20817 | 300767458 | S-Corp | $44,510 | DOD Research |
| New York Medical College | |||||||
| 40 Sunshine College Rd | Valhalla | NY | 10595 | 131099420 | 501C3 | $250,000 | Catalyst |
| Northwestern University | |||||||
| 633 Clark Street | Evanston | IL | 60208 | 362167817 | 501C3 | $100,000 | Taking Flight |
| Stanford University | |||||||
| PO Box 884253 | Los Angeles | CA | 90088 | 941156365 | 501C3 | $250,000 | CURE Epilepsy |
| The Children's Hospital of Philadelphia | |||||||
| 3401 Civic Center Blvd | Philadelphia | PA | 19104 | 231352166 | 501C3 | $99,995 | Rare Epilepsy |
| The University of Iowa | |||||||
| 2700 UCC | Iowa City | IA | 52242 | 426004813 | 501C3 | $250,000 | CURE Epilepsy |
| Virginia Tech | |||||||
| 300 Turner St NW | Blacksburg | VA | 24061 | 540721690 | 501C3 | $140,393 | DOD Research |
| University of Pennsylvania | |||||||
| 3451 Walnut St | Philadelphia | PA | 19104 | 231352685 | 501C3 | $30,000 | DOD Research |
| University of Southern California | |||||||
| 3500 South Figueroa St | Los Angeles | CA | 90089 | 951642394 | 501C3 | $83,611 | DOD Research |
| University of Vermont & State Agriculture | |||||||
| 85 South Prospect St | Burlington | VT | 05405 | 030179440 | 501C3 | $100,000 | Taking Flight |
| Field | Value | IRS element (for citing) |
|---|---|---|
| Total501c3 Org | 15 | Total501c3OrgCnt |
| Total Other Org | 2 | TotalOtherOrgCnt |
Supplemental Information Detail SupplementalInformationDetail
| Field | Value | IRS element (for citing) |
|---|---|---|
| Form And Line Reference | Part I Line 2 | FormAndLineReferenceDesc |
| Explanation | Grantees are required to make periodic progress reports | ExplanationTxt |
Schedule J IRS990ScheduleJ
| Field | Value | IRS element (for citing) |
|---|---|---|
| Compensation Committee | Yes (X) | CompensationCommitteeInd |
| Independent Consultant | Yes (X) | IndependentConsultantInd |
| Written Employment Contract | Yes (X) | WrittenEmploymentContractInd |
| Compensation Survey | Yes (X) | CompensationSurveyInd |
| Board Or Committee Approval | Yes (X) | BoardOrCommitteeApprovalInd |
| Severance Payment | false | SeverancePaymentInd |
| Supplemental Nonqual Rtr Plan | false | SupplementalNonqualRtrPlanInd |
| Equity Based Comp Arrngm | false | EquityBasedCompArrngmInd |
| Comp Based On Revenue Of Flng Org | false | CompBasedOnRevenueOfFlngOrgInd |
| Comp Bsd On Rev Related Orgs | false | CompBsdOnRevRelatedOrgsInd |
| Comp Bsd Net Earns Flng Org | false | CompBsdNetEarnsFlngOrgInd |
| Comp Bsd Net Earns Rltd Orgs | false | CompBsdNetEarnsRltdOrgsInd |
| Any Non Fixed Payments | false | AnyNonFixedPaymentsInd |
| Initial Contract Exception | false | InitialContractExceptionInd |
Rltd Org Officer Trst Key Empl RltdOrgOfficerTrstKeyEmplGrp (4 entries)
| TitleTitleTxt | Base Compensation Filing OrgBaseCompensationFilingOrgAmt | Bonus Filing OrganizationBonusFilingOrganizationAmount | Deferred Compensation Flng OrgDeferredCompensationFlngOrgAmt | Nontaxable Benefits Filing OrgNontaxableBenefitsFilingOrgAmt | Total Compensation Filing OrgTotalCompensationFilingOrgAmt |
|---|---|---|---|---|---|
| Beth Dean | |||||
| CEO | $271,073 | $28,013 | $9,175 | $27,790 | $336,051 |
| Laura Lubbers | |||||
| Chief Scientific Officer | $267,555 | $27,770 | $8,915 | $8,190 | $312,430 |
| Debby Hecht | |||||
| Sr. Director, Market Coms | $162,707 | $4,887 | $1,459 | $169,053 | |
| Alysha Biehl | |||||
| Sr. Director Development | $149,182 | $4,546 | $9,982 | $163,710 | |
Schedule M IRS990ScheduleM
Clothing And Household Goods ClothingAndHouseholdGoodsGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Non Cash Checkbox | Yes (X) | NonCashCheckboxInd |
| Noncash Contributions Rpt F990 | $4,500 | NoncashContributionsRptF990Amt |
| Method Of Determining Revenues | FMV | MethodOfDeterminingRevenuesTxt |
Securities Publicly Traded SecuritiesPubliclyTradedGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Non Cash Checkbox | Yes (X) | NonCashCheckboxInd |
| Contribution | 2 | ContributionCnt |
| Noncash Contributions Rpt F990 | $768,267 | NoncashContributionsRptF990Amt |
| Method Of Determining Revenues | FMV | MethodOfDeterminingRevenuesTxt |
| Field | Value | IRS element (for citing) |
|---|---|---|
| Any Property That Must Be Held | false | AnyPropertyThatMustBeHeldInd |
| Review Process Unusual NC Gifts | false | ReviewProcessUnusualNCGiftsInd |
| Third Parties Used | Yes (true) | ThirdPartiesUsedInd |
Supplemental Information Detail SupplementalInformationDetail (2 entries)
| Form And Line ReferenceFormAndLineReferenceDesc | ExplanationExplanationTxt |
|---|---|
| Part I Line b | The number of contributions received, rather than the number of stock shares received, are being reported for Schedule M purposes. |
| Part I Line 32b | The organization disposes of donated securities through an investment broker upon receipt. |
Schedule O IRS990ScheduleO
Supplemental Information Detail SupplementalInformationDetail (4 entries)
| Form And Line ReferenceFormAndLineReferenceDesc | ExplanationExplanationTxt |
|---|---|
| Form 990, Part VI, Section B, Line 11b | Form 990 is reviewed by the finance manager, treasurer and chief executive officer. When the draft is approved, it is sent to the entire board |
| Form 990, Part VI, Section B, Line 12c | Each board member signs it annually and expects to self-monitor. Conflicts are dealt with on a case-by-case basis. |
| Form 990, Part VI, Section C, Line 19 | Governing documents and conflict of interest policy are not generally available to the public. The organizations financial statements are available on its website. |
| Form 990, Part VI, Section B, Line 15a | Comparable salary information is obtained and reviewed using an outside executive search firm. The board of directors has final approval and review compensation annually. |
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