2023-05-02T11:13:40-00:00 2022-12-31 363614997 Eder Casella & Co 5400 W Elm Street Suite 203 McHenry IL 60050 990 2022-01-01 364253176 Citizens United for Research in Epilepsy CITI 3122551801 420 N Wabash Ave STE 650 Chicago IL 60611 Beth Dean CEO 3122551801 2023-05-02 true Beth Dean 999009999 Cheryden Juergensen P01252676 8153441300 2023-05-02 AAL1 IAL1 2022 2023-04-26 12:10:37Z CURE Epilepsy Beth Dean 420 N Wabash Ave STE 650 Chicago IL 60611 9748461 false X www.cureepilepsy.org X 1998 IL To find a cure for epilepsy by promoting and funding patient focused research. 14 14 19 250 0 6172734 5937146 0 124018 846777 -253061 -552547 6043691 6231376 3021455 2804485 0 1948967 2174207 0 460931 871115 814421 5841537 5793113 202154 438263 10496452 10154743 3124713 4004057 7371739 6150686 To find a cure for epilepsy by promoting and funding patient focused research. false false 3943069 Since its inception in 1998, CURE Epilepsy has raised more than 90 million to fund epilepsy research and other initiatives that will lead the way to cures for the epilepsies. CURE Epilepsy awards grants for novel research projects to prevent epilepsy related to pediatric epilepsy, post-traumatic epilepsy, treatment resistant epilepsies, sudden unexplained death in epilepsy SUDEP, and sleep and epilepsy advancing the search for a cure, eliminating treatment side effects, and reversing deficits caused by frequent seizures, CURE Epilepsy funds grants for young and established investigators and todate has awarded more than 280 grants in 17 countries around the world. 1064639 CURE Epilepsy believes that awareness is a critical vehicle to increase the amount of funding for epilepsy research and to share key learnings and opportunities for those impacted by epilepsy. CURE Epilepsy creates, sponsors and levers our website, webinars, seminars, podcasts, educational events and other digital communication to drive this critical awareness. 5007708 true true false true false false false false false false true false false false true true true false false false true true false false true false false true false true false false false false false false false false true false false false false false false false false true 20 0 true 19 true false false false false false true true false false false false false false X 14 14 false false false false false false false true true false false true true true true true true true false false AL AR CA CT FL GA HI IL KS KY MA MD MI MN MS NH NJ NM NY OK OR PA RI SC TN TX WI WV X X X John Anderluh 3122551801 420 N Wabash Ave Suite 650 Chicago IL 60611 Beth Dean CEO 037.50 X 299086 0 36965 Laura Lubbers Chief Scientific Officer 037.50 X 295325 0 17105 Debby Hecht Sr. Director, Market Coms 037.50 X 162707 0 6346 Alysha Biehl Sr. Director Development 037.50 X 149182 0 14528 Priya Balasubramanian Assoc Director of Research 037.50 X 115032 0 25035 John Anderluh CFO 037.50 X 110734 0 27352 Lauren Harte-Hargrove DOD, Assoc Director of Res 037.50 X 120690 0 4111 Kelly Cervantes Chair 004.00 X X 0 0 0 Lisa Cotton Chair Elect 003.00 X X 0 0 0 Shalee Cunneen Secretary 003.00 X X 0 0 0 Kathy McKenna Treasurer 004.00 X X 0 0 0 Steve Austin Director 002.00 X 0 0 0 Mike Axelrod Director 002.00 X 0 0 0 Kim Borden Director 002.00 X 0 0 0 Marilynn Gardner Director 002.00 X 0 0 0 Carrie Garman Director 002.00 X 0 0 0 Justin Gover Director 002.00 X 0 0 0 David Reifman Director 002.00 X 0 0 0 Tina Sacks Director 002.00 X 0 0 0 Matt Schneider Director 003.00 X 0 0 0 Hannah Whitten Director 002.00 X 0 0 0 1252756 131442 7 false true false Wasserman Music LLC 10900 Wilshire Blvd Suite 1200 Los Angeles CA 90024 Music for Benefit 120000 1 2638271 538439 2760436 772767 5937146 140351 3610814 2904388 706426 706426 60150 2638271 612697 -552547 6231376 2155773 2155773 0 648712 648712 0 1276512 923032 148076 205404 0 555921 304794 71591 179536 0 221020 148880 25909 46231 120754 79565 15923 25266 0 0 26592 23085 3507 0 15951 15951 43726 42422 1304 0 61189 53569 7620 126590 118522 8068 0 81386 69027 12359 39882 34652 5230 0 58870 58870 0 0 20997 13997 2506 4494 10935 9274 1661 Advocacy and Awareness 296901 296901 Other Expenses 18321 15538 2783 State registrations 9951 8440 1511 Supplies 3130 2655 475 0 5793113 5007708 324474 460931 3228731 814141 7987 1254046 635571 42012 41357 271418 211495 54310 59923 5899366 8153627 10000 450124 10496452 10154743 187023 143881 2145433 3045280 792257 316546 498350 3124713 4004057 X 6049122 5094243 1322617 1056443 7371739 6150686 10496452 10154743 438263 -1659316 X false true X true false X 7555195 7599997 6964176 6172734 5937146 34229248 7555195 7599997 6964176 6172734 5937146 34229248 904519 33324729 71470 175964 105918 124018 140351 617721 34846969 387603 0.95630 0.95490 X RESTRICTED RESTRICTED RESTRICTED RESTRICTED RESTRICTED RESTRICTED RESTRICTED RESTRICTED 10000 10000 5783113 5793113 439656 109914 463172 527490 442077 439656 1872395 2808593 40000 10000 50000 115793 131873 110519 109914 468099 702149 false 100519 77359 23160 170899 134136 36763 59923 Financial derivatives and other financial products Closely-held equity interests Federal income taxes Operating Lease Liabilities 498350 498350 X 4588422 -1659316 32313 -1627003 6215425 15951 15951 6231376 5809475 32313 32313 5777162 15951 15951 5793113 X 2 The Organization is a nonprofit corporation that is exempt from income taxes under Section 501c3 of the Internal Revenue Code as an entity that is not a private foundation within the meaning of section 509a and qualifies for deductible contributions as provided in section 170b1aVI. Management represents that the organization has no unrelated business income for the year ended December 31, 2022. true Europe Including Iceland and Greenland Grants to recipients in region 550912 North America Grants to recipients in region 97800 648712 648712 Europe Including Iceland and Greenland Catalyst 249952 Wire Europe Including Iceland and Greenland Rare Epilepsy Research 96160 Wire Europe Including Iceland and Greenland Rare Epilepsy Research 98000 Wire Europe Including Iceland and Greenland Research Conference Grant 6800 Wire Europe Including Iceland and Greenland Taking Flight Research 100000 Wire North America Taking Flight Research 97800 Wire 6 false false false false false false Part I Line 2 Grantees are required to make periodic progress reports. Chicago Benefit 1939900 1879750 60150 97028 91466 120000 168550 Unite Virtual Event 230068 230068 89459 1 528453 528453 6274 39920 2698421 2638271 60150 103302 91466 120000 297929 612697 -552547 true Alliance for Epilepsy Research 3635 S Downs St Dexter MI 48130 431760017 501C3 5671 Research Conference Grant American Epilepsy Society 135 W Lasalle St Chicago IL 60603 046112600 501C3 17500 Research Conference Grant Axonis Therapeutics Inc 75 Kneeland St Boston MA 01222 272454388 S-Corp 249150 Catalyst Brandeis University 415 South St Waltham MA 02453 042103552 501C3 250000 Catalyst Emory University PO Box 935084 Atlanta GA 31193 582566256 501C3 250000 CURE Epilepsy Gordon Research Conferences 5568 Post Road G02 East Greenwich RI 02818 260150662 501C3 8861 Research Conference Grant Mayo Clinic PO Box 860334 Minneapolis MN 55486 416011702 501C3 19078 Research Conference Grant Mid Adlantic Epilepsy & Sleep Center LLC 6410 Rockledge Dr Bethesda MD 20817 300767458 S-Corp 44510 DOD Research New York Medical College 40 Sunshine College Rd Valhalla NY 10595 131099420 501C3 250000 Catalyst Northwestern University 633 Clark Street Evanston IL 60208 362167817 501C3 100000 Taking Flight Stanford University PO Box 884253 Los Angeles CA 90088 941156365 501C3 250000 CURE Epilepsy The Children's Hospital of Philadelphia 3401 Civic Center Blvd Philadelphia PA 19104 231352166 501C3 99995 Rare Epilepsy The University of Iowa 2700 UCC Iowa City IA 52242 426004813 501C3 250000 CURE Epilepsy Virginia Tech 300 Turner St NW Blacksburg VA 24061 540721690 501C3 140393 DOD Research University of Pennsylvania 3451 Walnut St Philadelphia PA 19104 231352685 501C3 30000 DOD Research University of Southern California 3500 South Figueroa St Los Angeles CA 90089 951642394 501C3 83611 DOD Research University of Vermont & State Agriculture 85 South Prospect St Burlington VT 05405 030179440 501C3 100000 Taking Flight 15 2 Part I Line 2 Grantees are required to make periodic progress reports X X X X X false false false false false false false false false Beth Dean CEO 271073 28013 9175 27790 336051 Laura Lubbers Chief Scientific Officer 267555 27770 8915 8190 312430 Debby Hecht Sr. Director, Market Coms 162707 4887 1459 169053 Alysha Biehl Sr. Director Development 149182 4546 9982 163710 X 4500 FMV X 2 768267 FMV false false true Part I Line b The number of contributions received, rather than the number of stock shares received, are being reported for Schedule M purposes. Part I Line 32b The organization disposes of donated securities through an investment broker upon receipt. Form 990, Part VI, Section B, Line 11b Form 990 is reviewed by the finance manager, treasurer and chief executive officer. When the draft is approved, it is sent to the entire board Form 990, Part VI, Section B, Line 12c Each board member signs it annually and expects to self-monitor. Conflicts are dealt with on a case-by-case basis. Form 990, Part VI, Section C, Line 19 Governing documents and conflict of interest policy are not generally available to the public. The organizations financial statements are available on its website. Form 990, Part VI, Section B, Line 15a Comparable salary information is obtained and reviewed using an outside executive search firm. The board of directors has final approval and review compensation annually.