CITIZENS UNITED FOR RESEARCH IN EPILEPSY: Form 990, tax year 2013
View the entire original 990 at ProPublica ↗
- Organization
- CITIZENS UNITED FOR RESEARCH IN EPILEPSY (EIN 36-4253176)
- Tax period
- 2013-01-01 to 2013-12-31
- Filed
- 2014-06-05
- IRS object ID
- 201401569349300205
- Schema version
- 2013v3.0
- Source
- Download XML · Original 990 at ProPublica
Every field in the e-filed return. Faint text is the IRS element name, for citing.
- Return header
- Form 990
- Schedule A
- Schedule B
- Schedule C
- Schedule D
- Schedule F
- Schedule G
- Schedule I
- Schedule J
- Schedule O
Return header ReturnHeader
| Field | Value | IRS element (for citing) |
|---|---|---|
| Return | 2014-06-05T09:57:43-05:00 | ReturnTs |
| Tax Period End | 2013-12-31 | TaxPeriodEndDt |
Preparer Firm PreparerFirmGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Preparer Firm EIN | 521446779 | PreparerFirmEIN |
Preparer Firm Name PreparerFirmName
| Field | Value | IRS element (for citing) |
|---|---|---|
| Business Name Line1 | JOHNSON LAMBERT LLP | BusinessNameLine1 |
Preparer US Address PreparerUSAddress
| Field | Value | IRS element (for citing) |
|---|---|---|
| Address Line1 | 700 SPRING FOREST RD STE 115 | AddressLine1 |
| City | RALEIGH | City |
| State | NC | State |
| ZIP Code | 27609 | ZIPCode |
| Field | Value | IRS element (for citing) |
|---|---|---|
| Return Type | 990 | ReturnTypeCd |
| Tax Period Begin | 2013-01-01 | TaxPeriodBeginDt |
Filer Filer
| Field | Value | IRS element (for citing) |
|---|---|---|
| EIN | 364253176 | EIN |
Business Name BusinessName
| Field | Value | IRS element (for citing) |
|---|---|---|
| Business Name Line1 | CITIZENS UNITED FOR RESEARCH IN EPILEPSY | BusinessNameLine1 |
| Field | Value | IRS element (for citing) |
|---|---|---|
| Business Name Control | CITI | BusinessNameControlTxt |
| Phone | 8007657118 | PhoneNum |
US Address USAddress
| Field | Value | IRS element (for citing) |
|---|---|---|
| Address Line1 | 430 W ERIE NO 210 | AddressLine1 |
| City | CHICAGO | City |
| State | IL | State |
| ZIP Code | 60654 | ZIPCode |
Business Officer BusinessOfficerGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Person | ROBIN HARDING | PersonNm |
| Person Title | INTERIM EXECUTIVE DIRECTOR | PersonTitleTxt |
| Phone | 8007657118 | PhoneNum |
| Signature | 2014-06-05 | SignatureDt |
| Discuss With Paid Preparer | Yes (1) | DiscussWithPaidPreparerInd |
Preparer Person PreparerPersonGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Preparer Person | JOHN HUSKINS | PreparerPersonNm |
| PTIN | P01081531 | PTIN |
| Phone | 9197196400 | PhoneNum |
| Preparation | 2014-06-05 | PreparationDt |
| Field | Value | IRS element (for citing) |
|---|---|---|
| Tax | 2013 | TaxYr |
| Build TS | 2015-11-30 17:44:51Z | BuildTS |
Form 990 IRS990
| Field | Value | IRS element (for citing) |
|---|---|---|
| Address Change | Yes (X) | AddressChangeInd |
| Principal Officer | ROBIN HARDING | PrincipalOfficerNm |
US Address USAddress
| Field | Value | IRS element (for citing) |
|---|---|---|
| Address Line1 | 430 W ERIE NO 210 | AddressLine1 |
| City | CHICAGO | City |
| State | IL | State |
| ZIP Code | 60654 | ZIPCode |
| Field | Value | IRS element (for citing) |
|---|---|---|
| Gross Receipts | $8,591,759 | GrossReceiptsAmt |
| Group Return For Affiliates | 0 | GroupReturnForAffiliatesInd |
| Organization501c3 | Yes (X) | Organization501c3Ind |
| Website Address | WWW.CUREEPILEPSY.ORG | WebsiteAddressTxt |
| Type Of Organization Corp | Yes (X) | TypeOfOrganizationCorpInd |
| Formation | 1998 | FormationYr |
| Legal Domicile State | IL | LegalDomicileStateCd |
| Activity Or Mission | TO PROVIDE FUNDING FOR RESEARCH TO FIND A CURE FOR EPILEPSY. | ActivityOrMissionDesc |
| Voting Members Governing Body | 14 | VotingMembersGoverningBodyCnt |
| Voting Members Independent | 14 | VotingMembersIndependentCnt |
| Total Employee | 14 | TotalEmployeeCnt |
| Total Volunteers | 370 | TotalVolunteersCnt |
| Total Gross UBI | $0 | TotalGrossUBIAmt |
| Net Unrelated Bus Txbl Incm | $0 | NetUnrelatedBusTxblIncmAmt |
| PY Contributions Grants | $5,517,115 | PYContributionsGrantsAmt |
| CY Contributions Grants | $4,584,975 | CYContributionsGrantsAmt |
| PY Program Service Revenue | $0 | PYProgramServiceRevenueAmt |
| CY Program Service Revenue | $0 | CYProgramServiceRevenueAmt |
| PY Investment Income | $159,182 | PYInvestmentIncomeAmt |
| CY Investment Income | $365,014 | CYInvestmentIncomeAmt |
| PY Other Revenue | -$88,331 | PYOtherRevenueAmt |
| CY Other Revenue | -$140,787 | CYOtherRevenueAmt |
| PY Total Revenue | $5,587,966 | PYTotalRevenueAmt |
| CY Total Revenue | $4,809,202 | CYTotalRevenueAmt |
| PY Grants And Similar Paid | $3,405,292 | PYGrantsAndSimilarPaidAmt |
| CY Grants And Similar Paid | $2,792,588 | CYGrantsAndSimilarPaidAmt |
| PY Benefits Paid To Members | $0 | PYBenefitsPaidToMembersAmt |
| CY Benefits Paid To Members | $0 | CYBenefitsPaidToMembersAmt |
| PY Salaries Comp Emp Bnft Paid | $669,317 | PYSalariesCompEmpBnftPaidAmt |
| CY Salaries Comp Emp Bnft Paid | $865,470 | CYSalariesCompEmpBnftPaidAmt |
| PY Total Prof Fndrsng Expns | $0 | PYTotalProfFndrsngExpnsAmt |
| CY Total Prof Fndrsng Expns | $0 | CYTotalProfFndrsngExpnsAmt |
| CY Total Fundraising Expense | $488,903 | CYTotalFundraisingExpenseAmt |
| PY Other Expenses | $933,812 | PYOtherExpensesAmt |
| CY Other Expenses | $872,559 | CYOtherExpensesAmt |
| PY Total Expenses | $5,008,421 | PYTotalExpensesAmt |
| CY Total Expenses | $4,530,617 | CYTotalExpensesAmt |
| PY Revenues Less Expenses | $579,545 | PYRevenuesLessExpensesAmt |
| CY Revenues Less Expenses | $278,585 | CYRevenuesLessExpensesAmt |
| Total Assets BOY | $11,308,591 | TotalAssetsBOYAmt |
| Total Assets EOY | $10,417,108 | TotalAssetsEOYAmt |
| Total Liabilities BOY | $3,118,509 | TotalLiabilitiesBOYAmt |
| Total Liabilities EOY | $2,028,100 | TotalLiabilitiesEOYAmt |
| Net Assets Or Fund Balances BOY | $8,190,082 | NetAssetsOrFundBalancesBOYAmt |
| Net Assets Or Fund Balances EOY | $8,389,008 | NetAssetsOrFundBalancesEOYAmt |
| Info In Schedule O Part III | Yes (X) | InfoInScheduleOPartIIIInd |
| Mission | CITIZENS UNITED FOR RESEARCH IN EPILEPSY IS DEDICATED TO FINDING A CURE FO EPILEPSY BY RAISING FUNDS FOR RESEARCH AND BY INCREASING AWARENESS OF THE PREVALENCE AND DEVASTATION OF THIS DISEASE. | MissionDesc |
| Significant New Program Srvc | 0 | SignificantNewProgramSrvcInd |
| Significant Change | 0 | SignificantChangeInd |
| Expense | $3,298,554 | ExpenseAmt |
| Grant | $2,792,588 | GrantAmt |
| Desc | ISSUING OF GRANTS TO FUND RESEARCH FOR A CURE FOR EPILEPSY. SINCE ITS INCEPTION IN 1998, CURE HAS RAISED MORE THAN $26 MILLION TO FUND EPILEPSY RESEARCH PROJECTS AND OTHER INITIATIVES THAT WILL LEAD THE WAY TO A CURE. CURE AWARDS SEED GRANTS FOR NOVEL RESEARCH PROJECTS THAT ADDRESS THE GOALS OF "NO SEIZURES, NO SIDE EFFECTS." THESE GRANTS ALLOW NEW AND ESTABLISHED INVESTIGATORS TO EXPLORE NEW INNOVATIVE AREAS AND COLLECT THE DATA NECESSARY TO APPLY FOR FURTHER FUNDING BY THE NATIONAL INSTITUTES OF HEALTH (NIH). TO DATE, CURE HAS AWARDED FUNDING FOR OVER 165 CUTTING EDGE PROJECTS. CURE ALSO SPONSORS SCIENTIFIC CONFERENCES THAT ARE WORKING TO BRING THE BRIGHTEST MINDS TOGETHER TO DISCUSS SOME OF OUR BIGGEST AND MOST IMPORTANT ISSUES. | Desc |
Prog Srvc Accom Acty2 ProgSrvcAccomActy2Grp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Expense | $518,567 | ExpenseAmt |
| Desc | INCREASING THE AWARENESS OF THE PREVALENCE AND DEVASTATION OF EPILEPSY. CURE BELIEVES THAT AWARENESS IS A NECESSARY VEHICLE TO INCREASE THE AMOUNT OF FUNDING FOR BASIC RESEARCH TOWARD A CURE FOR EPILEPSY. CURE HAS RECEIVED EXTENSIVE MEDIA COVERAGE FOR EPILEPSY. THIS HAS INCLUDED A FEATURED SEGMENT ON 60 MINUTES WITH KATIE COURIC, A BOSTON GLOBE EDITORIAL ON THE GRAVE UNDERFUNDING OF EPILEPSY RESEARCH, INTERVIEWS AND COVERAGE ON MSNCB'S MORNING JOE, CNN'S PIERS MORGAN, FRANK FONTANA'S DOWN AND DIRTY WITH FRANK FONTANA, A NEW YORK TIMES ARTICLE ON ONE CURE FAMILY'S STRUGGLES WITH EPILEPSY, AND FOX NEWS' SEGMENT ON EPILEPSY AND CURE - FEATURING SUSAN, DAVID, AND LAUREN AXELROD. CURE'S AWARENESS AND ADVOCACY EFFORTS WERE RECOGNIZED BY THE AMERICAN EPILEPSY SOCIETY, AS WELL AS THE INTERNATIONAL LEAGUE AGAINST EPILEPSY, AND THE INTERNATIONAL BUREAU FOR EPILEPSY, AND BY CHICAGO MAGAZINE, WHICH NAMED FOUNDER SUSAN AXELROD A "CHICAGOAN OF THE YEAR." | Desc |
| Field | Value | IRS element (for citing) |
|---|---|---|
| Total Program Service Expenses | $3,817,121 | TotalProgramServiceExpensesAmt |
| Described In Section501c3 | Yes (1) | DescribedInSection501c3Ind |
| Schedule B Required | Yes (1) | ScheduleBRequiredInd |
| Political Campaign Acty | 0 | PoliticalCampaignActyInd |
| Lobbying Activities | Yes (1) | LobbyingActivitiesInd |
| Subject To Proxy Tax | 0 | SubjectToProxyTaxInd |
| Donor Advised Fund | 0 | DonorAdvisedFundInd |
| Conservation Easements | 0 | ConservationEasementsInd |
| Collections Of Art | 0 | CollectionsOfArtInd |
| Credit Counseling | 0 | CreditCounselingInd |
| Temp Or Permanent Endowments | 0 | TempOrPermanentEndowmentsInd |
| Report Land Building Equipment | Yes (1) | ReportLandBuildingEquipmentInd |
| Report Investments Other Sec | 0 | ReportInvestmentsOtherSecInd |
| Report Program Related Invst | 0 | ReportProgramRelatedInvstInd |
| Report Other Assets | 0 | ReportOtherAssetsInd |
| Report Other Liabilities | 0 | ReportOtherLiabilitiesInd |
| Include FIN48 Footnote | 0 | IncludeFIN48FootnoteInd |
| Independent Audit Fincl Stmt | Yes (1) | IndependentAuditFinclStmtInd |
| Consolidated Audit Fincl Stmt | 0 | ConsolidatedAuditFinclStmtInd |
| School Operating | 0 | SchoolOperatingInd |
| Foreign Office | 0 | ForeignOfficeInd |
| Foreign Activities | Yes (1) | ForeignActivitiesInd |
| More Than5000 K To Org | Yes (1) | MoreThan5000KToOrgInd |
| More Than5000 K To Individuals | 0 | MoreThan5000KToIndividualsInd |
| Professional Fundraising | 0 | ProfessionalFundraisingInd |
| Fundraising Activities | Yes (1) | FundraisingActivitiesInd |
| Gaming Activities | 0 | GamingActivitiesInd |
| Operate Hospital | 0 | OperateHospitalInd |
| Grants To Organizations | Yes (1) | GrantsToOrganizationsInd |
| Grants To Individuals | 0 | GrantsToIndividualsInd |
| Schedule J Required | Yes (1) | ScheduleJRequiredInd |
| Tax Exempt Bonds | 0 | TaxExemptBondsInd |
| Engaged In Excess Benefit Trans | 0 | EngagedInExcessBenefitTransInd |
| PY Excess Benefit Trans | 0 | PYExcessBenefitTransInd |
| Loan Outstanding | 0 | LoanOutstandingInd |
| Grant To Related Person | 0 | GrantToRelatedPersonInd |
| Business Rln With Org Mem | 0 | BusinessRlnWithOrgMemInd |
| Business Rln With Fam Mem | 0 | BusinessRlnWithFamMemInd |
| Business Rln With Officer Ent | 0 | BusinessRlnWithOfficerEntInd |
| Deductible Non Cash Contri | 0 | DeductibleNonCashContriInd |
| Deductible Art Contribution | 0 | DeductibleArtContributionInd |
| Terminate Operations | 0 | TerminateOperationsInd |
| Partial Liquidation | 0 | PartialLiquidationInd |
| Disregarded Entity | 0 | DisregardedEntityInd |
| Related Entity | 0 | RelatedEntityInd |
| Related Organization Ctrl Ent | 0 | RelatedOrganizationCtrlEntInd |
| Trnsfr Exmpt Non Chrtbl Rltd Org | 0 | TrnsfrExmptNonChrtblRltdOrgInd |
| Activities Conducted Prtshp | 0 | ActivitiesConductedPrtshpInd |
| Schedule O Required | Yes (1) | ScheduleORequiredInd |
| IRP Document | 11 | IRPDocumentCnt |
| IRP Document W2 G | 0 | IRPDocumentW2GCnt |
| Backup Wthld Compliance | Yes (1) | BackupWthldComplianceInd |
| Employee | 14 | EmployeeCnt |
| Employment Tax Returns Filed | Yes (1) | EmploymentTaxReturnsFiledInd |
| Unrelated Bus Incm Over Limit | 0 | UnrelatedBusIncmOverLimitInd |
| Foreign Financial Account | 0 | ForeignFinancialAccountInd |
| Prohibited Tax Shelter Trans | 0 | ProhibitedTaxShelterTransInd |
| Taxable Party Notification | 0 | TaxablePartyNotificationInd |
| Nondeductible Contributions | 0 | NondeductibleContributionsInd |
| Quid Pro Quo Contributions | Yes (1) | QuidProQuoContributionsInd |
| Quid Pro Quo Contri Discl | Yes (1) | QuidProQuoContriDisclInd |
| Form8282 Property Disposed Of | 0 | Form8282PropertyDisposedOfInd |
| Rcv Fnds To Pay Prsnl Bnft Cntrct | 0 | RcvFndsToPayPrsnlBnftCntrctInd |
| Pay Premiums Prsnl Bnft Cntrct | 0 | PayPremiumsPrsnlBnftCntrctInd |
| Indoor Tanning Services | 0 | IndoorTanningServicesInd |
| Info In Schedule O Part VI | Yes (X) | InfoInScheduleOPartVIInd |
| Governing Body Voting Members | 14 | GoverningBodyVotingMembersCnt |
| Independent Voting Member | 14 | IndependentVotingMemberCnt |
| Family Or Business Rln | 0 | FamilyOrBusinessRlnInd |
| Delegation Of Mgmt Duties | 0 | DelegationOfMgmtDutiesInd |
| Change To Org Documents | Yes (1) | ChangeToOrgDocumentsInd |
| Material Diversion Or Misuse | 0 | MaterialDiversionOrMisuseInd |
| Members Or Stockholders | 0 | MembersOrStockholdersInd |
| Election Of Board Members | 0 | ElectionOfBoardMembersInd |
| Decisions Subject To Approva | 0 | DecisionsSubjectToApprovaInd |
| Minutes Of Governing Body | Yes (1) | MinutesOfGoverningBodyInd |
| Minutes Of Committees | Yes (1) | MinutesOfCommitteesInd |
| Officer Mailing Address | 0 | OfficerMailingAddressInd |
| Local Chapters | 0 | LocalChaptersInd |
| Form990 Provided To Gvrn Body | Yes (1) | Form990ProvidedToGvrnBodyInd |
| Conflict Of Interest Policy | Yes (1) | ConflictOfInterestPolicyInd |
| Annual Disclosure Covered Prsn | Yes (1) | AnnualDisclosureCoveredPrsnInd |
| Regular Monitoring Enfrc | Yes (1) | RegularMonitoringEnfrcInd |
| Whistleblower Policy | Yes (1) | WhistleblowerPolicyInd |
| Document Retention Policy | Yes (1) | DocumentRetentionPolicyInd |
| Compensation Process CEO | Yes (1) | CompensationProcessCEOInd |
| Compensation Process Other | 0 | CompensationProcessOtherInd |
| Investment In Joint Venture | 0 | InvestmentInJointVentureInd |
| States Where Copy Of Return Is Fld | AL | StatesWhereCopyOfReturnIsFldCd |
| States Where Copy Of Return Is Fld | AK | StatesWhereCopyOfReturnIsFldCd |
| States Where Copy Of Return Is Fld | AR | StatesWhereCopyOfReturnIsFldCd |
| States Where Copy Of Return Is Fld | CA | StatesWhereCopyOfReturnIsFldCd |
| States Where Copy Of Return Is Fld | CT | StatesWhereCopyOfReturnIsFldCd |
| States Where Copy Of Return Is Fld | FL | StatesWhereCopyOfReturnIsFldCd |
| States Where Copy Of Return Is Fld | GA | StatesWhereCopyOfReturnIsFldCd |
| States Where Copy Of Return Is Fld | HI | StatesWhereCopyOfReturnIsFldCd |
| States Where Copy Of Return Is Fld | KS | StatesWhereCopyOfReturnIsFldCd |
| States Where Copy Of Return Is Fld | KY | StatesWhereCopyOfReturnIsFldCd |
| States Where Copy Of Return Is Fld | MD | StatesWhereCopyOfReturnIsFldCd |
| States Where Copy Of Return Is Fld | MA | StatesWhereCopyOfReturnIsFldCd |
| States Where Copy Of Return Is Fld | MI | StatesWhereCopyOfReturnIsFldCd |
| States Where Copy Of Return Is Fld | MN | StatesWhereCopyOfReturnIsFldCd |
| States Where Copy Of Return Is Fld | MS | StatesWhereCopyOfReturnIsFldCd |
| States Where Copy Of Return Is Fld | NH | StatesWhereCopyOfReturnIsFldCd |
| States Where Copy Of Return Is Fld | NJ | StatesWhereCopyOfReturnIsFldCd |
| States Where Copy Of Return Is Fld | NM | StatesWhereCopyOfReturnIsFldCd |
| States Where Copy Of Return Is Fld | NC | StatesWhereCopyOfReturnIsFldCd |
| States Where Copy Of Return Is Fld | OK | StatesWhereCopyOfReturnIsFldCd |
| States Where Copy Of Return Is Fld | OR | StatesWhereCopyOfReturnIsFldCd |
| States Where Copy Of Return Is Fld | PA | StatesWhereCopyOfReturnIsFldCd |
| States Where Copy Of Return Is Fld | RI | StatesWhereCopyOfReturnIsFldCd |
| States Where Copy Of Return Is Fld | SC | StatesWhereCopyOfReturnIsFldCd |
| States Where Copy Of Return Is Fld | TN | StatesWhereCopyOfReturnIsFldCd |
| States Where Copy Of Return Is Fld | UT | StatesWhereCopyOfReturnIsFldCd |
| States Where Copy Of Return Is Fld | VA | StatesWhereCopyOfReturnIsFldCd |
| States Where Copy Of Return Is Fld | WA | StatesWhereCopyOfReturnIsFldCd |
| States Where Copy Of Return Is Fld | WI | StatesWhereCopyOfReturnIsFldCd |
| States Where Copy Of Return Is Fld | WV | StatesWhereCopyOfReturnIsFldCd |
| Upon Request | Yes (X) | UponRequestInd |
Books In Care Of Detail BooksInCareOfDetail
Business Name BusinessName
| Field | Value | IRS element (for citing) |
|---|---|---|
| Business Name Line1 | ROBIN HARDING | BusinessNameLine1 |
| Field | Value | IRS element (for citing) |
|---|---|---|
| Phone | 8007657118 | PhoneNum |
US Address USAddress
| Field | Value | IRS element (for citing) |
|---|---|---|
| Address Line1 | 430 W ERIE NO 210 | AddressLine1 |
| City | CHICAGO | City |
| State | IL | State |
| ZIP Code | 60654 | ZIPCode |
Form990 Part VII Section A Form990PartVIISectionAGrp (21 entries)
| TitleTitleTxt | Average Hours Per WeekAverageHoursPerWeekRt | Individual Trustee Or DirectorIndividualTrusteeOrDirectorInd | OfficerOfficerInd | Reportable Comp From OrgReportableCompFromOrgAmt | Reportable Comp From Rltd OrgReportableCompFromRltdOrgAmt | Other CompensationOtherCompensationAmt | Highest Compensated EmployeeHighestCompensatedEmployeeInd |
|---|---|---|---|---|---|---|---|
| SUSAN AXELROD | |||||||
| FOUNDING CHAIR | 1.00 | Yes (X) | Yes (X) | $0 | $0 | $0 | |
| GARDINER LAPHAM | |||||||
| CHAIR | 1.00 | Yes (X) | Yes (X) | $0 | $0 | $0 | |
| GREG LEWIS | |||||||
| SECRETARY | 1.00 | Yes (X) | Yes (X) | $0 | $0 | $0 | |
| THOMAS HYNES | |||||||
| TREASURER | 1.00 | Yes (X) | Yes (X) | $0 | $0 | $0 | |
| CRAIG ALBERT | |||||||
| DIRECTOR | 1.00 | Yes (X) | $0 | $0 | $0 | ||
| ANN BENSCHOTER | |||||||
| DIRECTOR | 1.00 | Yes (X) | $0 | $0 | $0 | ||
| JEANNE DONALTY | |||||||
| DIRECTOR (TO SEP '13) | 1.00 | Yes (X) | $0 | $0 | $0 | ||
| CAROL FULP | |||||||
| DIRECTOR (FROM SEP '13) | 1.00 | Yes (X) | $0 | $0 | $0 | ||
| PAUL HELDMAN | |||||||
| DIRECTOR (FROM SEP '13) | 1.00 | Yes (X) | $0 | $0 | $0 | ||
| BARBARA KELLY | |||||||
| DIRECTOR (TO SEP '13) | 1.00 | Yes (X) | $0 | $0 | $0 | ||
| SCOTT LEISHER | |||||||
| DIRECTOR | 1.00 | Yes (X) | $0 | $0 | $0 | ||
| JOEL MARCUS | |||||||
| DIRECTOR (FROM SEP '13) | 1.00 | Yes (X) | $0 | $0 | $0 | ||
| CONNIE MILSTEIN | |||||||
| DIRECTOR | 1.00 | Yes (X) | $0 | $0 | $0 | ||
| EVELYN NUSSENBAUM | |||||||
| DIRECTOR | 1.00 | Yes (X) | $0 | $0 | $0 | ||
| SHARON O'KEEFE | |||||||
| DIRECTOR | 1.00 | Yes (X) | $0 | $0 | $0 | ||
| RANDOLPH SIEGEL | |||||||
| DIRECTOR (TO SEP '13) | 1.00 | Yes (X) | $0 | $0 | $0 | ||
| C RENZI STONE | |||||||
| DIRECTOR (FROM SEP '13) | 1.00 | Yes (X) | $0 | $0 | $0 | ||
| SETH WOHLBERG | |||||||
| DIRECTOR (TO MAR '13) | 1.00 | Yes (X) | $0 | $0 | $0 | ||
| BOGDAN EWENDT | |||||||
| EXECUTIVE DIRECTOR (TO NOV '13) | 37.50 | Yes (X) | $224,403 | $0 | $15,754 | ||
| ROBIN HARDING | |||||||
| INTERIM EXECUTIVE DIRECTOR (FROM NOV '13) | 37.50 | Yes (X) | $0 | $0 | $0 | ||
| MARGARET SCHNEIDER | |||||||
| DIRECTOR OF DEVELOPMENT | 37.50 | $105,977 | $0 | $12,972 | Yes (X) | ||
| Field | Value | IRS element (for citing) |
|---|---|---|
| Total Reportable Comp From Org | $330,380 | TotalReportableCompFromOrgAmt |
| Tot Reportable Comp Rltd Org | $0 | TotReportableCompRltdOrgAmt |
| Total Other Compensation | $28,726 | TotalOtherCompensationAmt |
| Indiv Rcvd Greater Than100 K | 2 | IndivRcvdGreaterThan100KCnt |
| Former Ofcr Employees Listed | 0 | FormerOfcrEmployeesListedInd |
| Total Comp Greater Than150 K | Yes (1) | TotalCompGreaterThan150KInd |
| Compensation From Other Srcs | 0 | CompensationFromOtherSrcsInd |
| Cntrct Rcvd Greater Than100 K | 0 | CntrctRcvdGreaterThan100KCnt |
| Fundraising | $1,297,881 | FundraisingAmt |
| All Other Contributions | $3,287,094 | AllOtherContributionsAmt |
| Total Contributions | $4,584,975 | TotalContributionsAmt |
Investment Income InvestmentIncomeGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Total Revenue Column | $186,840 | TotalRevenueColumnAmt |
| Exclusion | $186,840 | ExclusionAmt |
Gross Amount Sales Assets GrossAmountSalesAssetsGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Securities | $3,713,951 | SecuritiesAmt |
Less Cost Oth Basis Sales Expnss LessCostOthBasisSalesExpnssGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Securities | $3,535,777 | SecuritiesAmt |
Gain Or Loss GainOrLossGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Securities | $178,174 | SecuritiesAmt |
Net Gain Or Loss Investments NetGainOrLossInvestmentsGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Total Revenue Column | $178,174 | TotalRevenueColumnAmt |
| Exclusion | $178,174 | ExclusionAmt |
| Field | Value | IRS element (for citing) |
|---|---|---|
| Fundraising Gross Income | $100,700 | FundraisingGrossIncomeAmt |
| Contri Rpt Fundraising Event | $1,297,881 | ContriRptFundraisingEventAmt |
| Fundraising Direct Expenses | $246,780 | FundraisingDirectExpensesAmt |
Net Incm From Fundraising Evt NetIncmFromFundraisingEvtGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Total Revenue Column | -$146,080 | TotalRevenueColumnAmt |
| Exclusion | -$146,080 | ExclusionAmt |
Other Revenue Misc OtherRevenueMiscGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Desc | OTHER | Desc |
| Business | 900099 | BusinessCd |
| Total Revenue Column | $5,293 | TotalRevenueColumnAmt |
| Exclusion | $5,293 | ExclusionAmt |
| Field | Value | IRS element (for citing) |
|---|---|---|
| Other Revenue Total | $5,293 | OtherRevenueTotalAmt |
Total Revenue TotalRevenueGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Total Revenue Column | $4,809,202 | TotalRevenueColumnAmt |
| Related Or Exempt Func Income | $0 | RelatedOrExemptFuncIncomeAmt |
| Unrelated Business Revenue | $0 | UnrelatedBusinessRevenueAmt |
| Exclusion | $224,227 | ExclusionAmt |
Grants To Domestic Orgs GrantsToDomesticOrgsGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Total | $2,543,290 | TotalAmt |
| Program Services | $2,543,290 | ProgramServicesAmt |
Foreign Grants ForeignGrantsGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Total | $249,298 | TotalAmt |
| Program Services | $249,298 | ProgramServicesAmt |
Comp Current Ofcr Directors CompCurrentOfcrDirectorsGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Total | $240,157 | TotalAmt |
| Program Services | $120,984 | ProgramServicesAmt |
| Management And General | $59,134 | ManagementAndGeneralAmt |
| Fundraising | $60,039 | FundraisingAmt |
Other Salaries And Wages OtherSalariesAndWagesGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Total | $509,346 | TotalAmt |
| Program Services | $345,206 | ProgramServicesAmt |
| Management And General | $31,811 | ManagementAndGeneralAmt |
| Fundraising | $132,329 | FundraisingAmt |
Pension Plan Contributions PensionPlanContributionsGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Total | $4,088 | TotalAmt |
| Program Services | $2,410 | ProgramServicesAmt |
| Management And General | $616 | ManagementAndGeneralAmt |
| Fundraising | $1,062 | FundraisingAmt |
Other Employee Benefits OtherEmployeeBenefitsGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Total | $59,061 | TotalAmt |
| Program Services | $36,981 | ProgramServicesAmt |
| Management And General | $8,409 | ManagementAndGeneralAmt |
| Fundraising | $13,671 | FundraisingAmt |
Payroll Taxes PayrollTaxesGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Total | $52,818 | TotalAmt |
| Program Services | $32,933 | ProgramServicesAmt |
| Management And General | $6,251 | ManagementAndGeneralAmt |
| Fundraising | $13,634 | FundraisingAmt |
Fees For Services Accounting FeesForServicesAccountingGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Total | $12,700 | TotalAmt |
| Management And General | $12,700 | ManagementAndGeneralAmt |
Fees For Services Other FeesForServicesOtherGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Total | $178,121 | TotalAmt |
| Program Services | $105,535 | ProgramServicesAmt |
| Management And General | $2,919 | ManagementAndGeneralAmt |
| Fundraising | $69,667 | FundraisingAmt |
Advertising AdvertisingGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Total | $16,911 | TotalAmt |
| Program Services | $16,911 | ProgramServicesAmt |
Office Expenses OfficeExpensesGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Total | $178,759 | TotalAmt |
| Program Services | $100,084 | ProgramServicesAmt |
| Management And General | $47,731 | ManagementAndGeneralAmt |
| Fundraising | $30,944 | FundraisingAmt |
Information Technology InformationTechnologyGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Total | $84,617 | TotalAmt |
| Program Services | $61,359 | ProgramServicesAmt |
| Management And General | $1,675 | ManagementAndGeneralAmt |
| Fundraising | $21,583 | FundraisingAmt |
Occupancy OccupancyGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Total | $56,226 | TotalAmt |
| Program Services | $33,954 | ProgramServicesAmt |
| Management And General | $9,239 | ManagementAndGeneralAmt |
| Fundraising | $13,033 | FundraisingAmt |
Travel TravelGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Total | $120,546 | TotalAmt |
| Program Services | $70,469 | ProgramServicesAmt |
| Management And General | $35,735 | ManagementAndGeneralAmt |
| Fundraising | $14,342 | FundraisingAmt |
Conferences Meetings ConferencesMeetingsGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Total | $136,616 | TotalAmt |
| Program Services | $30,790 | ProgramServicesAmt |
| Fundraising | $105,826 | FundraisingAmt |
Depreciation Depletion DepreciationDepletionGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Total | $6,070 | TotalAmt |
| Management And General | $6,070 | ManagementAndGeneralAmt |
Insurance InsuranceGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Total | $6,222 | TotalAmt |
| Program Services | $3,289 | ProgramServicesAmt |
| Management And General | $1,070 | ManagementAndGeneralAmt |
| Fundraising | $1,863 | FundraisingAmt |
Other Expenses OtherExpensesGrp (2 entries)
| DescDesc | TotalTotalAmt | Program ServicesProgramServicesAmt | Management And GeneralManagementAndGeneralAmt | FundraisingFundraisingAmt |
|---|---|---|---|---|
| LICENSES & FEES | $13,614 | $6,594 | $329 | $6,691 |
| DUES & SUBSCRIPTIONS | $3,864 | $2,960 | $904 | $0 |
All Other Expenses AllOtherExpensesGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Total | $58,293 | TotalAmt |
| Program Services | $54,074 | ProgramServicesAmt |
| Fundraising | $4,219 | FundraisingAmt |
Total Functional Expenses TotalFunctionalExpensesGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Total | $4,530,617 | TotalAmt |
| Program Services | $3,817,121 | ProgramServicesAmt |
| Management And General | $224,593 | ManagementAndGeneralAmt |
| Fundraising | $488,903 | FundraisingAmt |
Cash Non Interest Bearing CashNonInterestBearingGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| BOY | $727,563 | BOYAmt |
| EOY | $680,137 | EOYAmt |
Savings And Temp Cash Invst SavingsAndTempCashInvstGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| BOY | $4,520,518 | BOYAmt |
| EOY | $4,650,789 | EOYAmt |
Pledges And Grants Receivable PledgesAndGrantsReceivableGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| BOY | $166,666 | BOYAmt |
| EOY | $250,000 | EOYAmt |
Accounts Receivable AccountsReceivableGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| BOY | $220,880 | BOYAmt |
| EOY | $279,039 | EOYAmt |
Prepaid Expenses Defrd Charges PrepaidExpensesDefrdChargesGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| BOY | $39,576 | BOYAmt |
| EOY | $60,009 | EOYAmt |
| Field | Value | IRS element (for citing) |
|---|---|---|
| Land Bldg Equip Cost Or Other Bss | $43,943 | LandBldgEquipCostOrOtherBssAmt |
| Land Bldg Equip Accum Deprec | $18,327 | LandBldgEquipAccumDeprecAmt |
Land Bldg Equip Basis Net LandBldgEquipBasisNetGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| BOY | $23,188 | BOYAmt |
| EOY | $25,616 | EOYAmt |
Investments Pub Traded Sec InvestmentsPubTradedSecGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| BOY | $5,602,629 | BOYAmt |
| EOY | $4,452,854 | EOYAmt |
Other Assets Total OtherAssetsTotalGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| BOY | $7,571 | BOYAmt |
| EOY | $18,664 | EOYAmt |
Total Assets TotalAssetsGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| BOY | $11,308,591 | BOYAmt |
| EOY | $10,417,108 | EOYAmt |
Accounts Payable Accr Expnss AccountsPayableAccrExpnssGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| BOY | $102,467 | BOYAmt |
| EOY | $74,605 | EOYAmt |
Grants Payable GrantsPayableGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| BOY | $3,016,042 | BOYAmt |
| EOY | $1,953,495 | EOYAmt |
Total Liabilities TotalLiabilitiesGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| BOY | $3,118,509 | BOYAmt |
| EOY | $2,028,100 | EOYAmt |
| Field | Value | IRS element (for citing) |
|---|---|---|
| Organization Follows SFAS117 | Yes (X) | OrganizationFollowsSFAS117Ind |
Unrestricted Net Assets UnrestrictedNetAssetsGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| BOY | $7,673,416 | BOYAmt |
| EOY | $8,139,008 | EOYAmt |
Temporarily Rstr Net Assets TemporarilyRstrNetAssetsGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| BOY | $516,666 | BOYAmt |
| EOY | $250,000 | EOYAmt |
Total Net Assets Fund Balance TotalNetAssetsFundBalanceGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| BOY | $8,190,082 | BOYAmt |
| EOY | $8,389,008 | EOYAmt |
Tot Liab Net Assets Fund Balance TotLiabNetAssetsFundBalanceGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| BOY | $11,308,591 | BOYAmt |
| EOY | $10,417,108 | EOYAmt |
| Field | Value | IRS element (for citing) |
|---|---|---|
| Reconcilation Revenue Expnss | $278,585 | ReconcilationRevenueExpnssAmt |
| Net Unrlzd Gains Losses Invst | -$79,659 | NetUnrlzdGainsLossesInvstAmt |
| Other Changes In Net Assets | $0 | OtherChangesInNetAssetsAmt |
| Method Of Accounting Accrual | Yes (X) | MethodOfAccountingAccrualInd |
| Accountant Compile Or Review | 0 | AccountantCompileOrReviewInd |
| FS Audited | Yes (1) | FSAuditedInd |
FS Audited Basis FSAuditedBasisGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Separate Basis Fincl Stmt | Yes (X) | SeparateBasisFinclStmtInd |
| Field | Value | IRS element (for citing) |
|---|---|---|
| Audit Committee | Yes (1) | AuditCommitteeInd |
| Federal Grant Audit Required | 0 | FederalGrantAuditRequiredInd |
Schedule A IRS990ScheduleA
| Field | Value | IRS element (for citing) |
|---|---|---|
| Public Organization170 | Yes (X) | PublicOrganization170Ind |
Gifts Grants Contri Rcvd170 GiftsGrantsContriRcvd170Grp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Current Tax Year Minus4 Years | $2,661,656 | CurrentTaxYearMinus4YearsAmt |
| Current Tax Year Minus3 Years | $1,983,520 | CurrentTaxYearMinus3YearsAmt |
| Current Tax Year Minus2 Years | $2,000,856 | CurrentTaxYearMinus2YearsAmt |
| Current Tax Year Minus1 Year | $5,517,115 | CurrentTaxYearMinus1YearAmt |
| Current Tax Year | $4,584,975 | CurrentTaxYearAmt |
| Total | $16,748,122 | TotalAmt |
Total Calendar Year170 TotalCalendarYear170Grp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Current Tax Year Minus4 Years | $2,661,656 | CurrentTaxYearMinus4YearsAmt |
| Current Tax Year Minus3 Years | $1,983,520 | CurrentTaxYearMinus3YearsAmt |
| Current Tax Year Minus2 Years | $2,000,856 | CurrentTaxYearMinus2YearsAmt |
| Current Tax Year Minus1 Year | $5,517,115 | CurrentTaxYearMinus1YearAmt |
| Current Tax Year | $4,584,975 | CurrentTaxYearAmt |
| Total | $16,748,122 | TotalAmt |
| Field | Value | IRS element (for citing) |
|---|---|---|
| Substantial Contributors Tot | $430,052 | SubstantialContributorsTotAmt |
| Public Support Total170 | $16,318,070 | PublicSupportTotal170Amt |
Gross Investment Income170 GrossInvestmentIncome170Grp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Current Tax Year Minus4 Years | $23,748 | CurrentTaxYearMinus4YearsAmt |
| Current Tax Year Minus3 Years | $289,204 | CurrentTaxYearMinus3YearsAmt |
| Current Tax Year Minus2 Years | $204,428 | CurrentTaxYearMinus2YearsAmt |
| Current Tax Year Minus1 Year | $150,303 | CurrentTaxYearMinus1YearAmt |
| Current Tax Year | $186,840 | CurrentTaxYearAmt |
| Total | $854,523 | TotalAmt |
Other Income170 OtherIncome170Grp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Current Tax Year Minus4 Years | $4,493 | CurrentTaxYearMinus4YearsAmt |
| Current Tax Year Minus3 Years | $8,413 | CurrentTaxYearMinus3YearsAmt |
| Current Tax Year Minus2 Years | $1,482 | CurrentTaxYearMinus2YearsAmt |
| Current Tax Year Minus1 Year | $5,417 | CurrentTaxYearMinus1YearAmt |
| Current Tax Year | $5,293 | CurrentTaxYearAmt |
| Total | $25,098 | TotalAmt |
| Field | Value | IRS element (for citing) |
|---|---|---|
| Total Support | $17,627,743 | TotalSupportAmt |
| Gross Receipts Rltd Activities | $6,879,530 | GrossReceiptsRltdActivitiesAmt |
| Public Support CY170 | 0.92570 | PublicSupportCY170Pct |
| Public Support PY170 | 0.90010 | PublicSupportPY170Pct |
| Thirty Thr Pct Suprt Tests CY170 | Yes (X) | ThirtyThrPctSuprtTestsCY170Ind |
Schedule B IRS990ScheduleB
Contributor Information ContributorInformationGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Contributor | RESTRICTED | ContributorNum |
Contributor Business Name ContributorBusinessName
| Field | Value | IRS element (for citing) |
|---|---|---|
| Business Name Line1 | RESTRICTED | BusinessNameLine1 |
Contributor US Address ContributorUSAddress
| Field | Value | IRS element (for citing) |
|---|---|---|
| Address Line1 | RESTRICTED | AddressLine1 |
| Address Line2 | RESTRICTED | AddressLine2 |
| City | RESTRICTED | City |
| State | RESTRICTED | State |
| ZIP Code | RESTRICTED | ZIPCode |
| Field | Value | IRS element (for citing) |
|---|---|---|
| Total Contributions | RESTRICTED | TotalContributionsAmt |
Schedule C IRS990ScheduleC
Total Lobbying Expend TotalLobbyingExpendGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Filing Organizations Total | $0 | FilingOrganizationsTotalAmt |
Total Exempt Purpose Expend TotalExemptPurposeExpendGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Filing Organizations Total | $0 | FilingOrganizationsTotalAmt |
Lobbying Nontaxable Amount LobbyingNontaxableAmountGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Filing Organizations Total | $0 | FilingOrganizationsTotalAmt |
Grassroots Nontaxable GrassrootsNontaxableGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Filing Organizations Total | $0 | FilingOrganizationsTotalAmt |
Schedule D IRS990ScheduleD
Leasehold Improvements LeaseholdImprovementsGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Other Cost Or Other Basis | $5,146 | OtherCostOrOtherBasisAmt |
| Depreciation | $720 | DepreciationAmt |
| Book Value | $4,426 | BookValueAmt |
Equipment EquipmentGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Other Cost Or Other Basis | $38,797 | OtherCostOrOtherBasisAmt |
| Depreciation | $17,607 | DepreciationAmt |
| Book Value | $21,190 | BookValueAmt |
| Field | Value | IRS element (for citing) |
|---|---|---|
| Total Book Value Land Buildings | $25,616 | TotalBookValueLandBuildingsAmt |
| Total Rev Etc Audited Fincl Stmt | $4,588,949 | TotalRevEtcAuditedFinclStmtAmt |
| Net Unrealized Gains Invst | -$79,659 | NetUnrealizedGainsInvstAmt |
| Donated Services And Use Fclts | $40,000 | DonatedServicesAndUseFcltsAmt |
| Revenue Not Reported | -$39,659 | RevenueNotReportedAmt |
| Revenue Subtotal | $4,628,608 | RevenueSubtotalAmt |
| Other Revenues Not Included | $180,594 | OtherRevenuesNotIncludedAmt |
| Revenue Not Reported Fincl Stmt | $180,594 | RevenueNotReportedFinclStmtAmt |
| Total Revenue Per Form990 | $4,809,202 | TotalRevenuePerForm990Amt |
| Tot Expns Etc Audited Fincl Stmt | $4,390,023 | TotExpnsEtcAuditedFinclStmtAmt |
| Donated Services Use Fclts | $40,000 | DonatedServicesUseFcltsAmt |
| Expenses Not Reported | $40,000 | ExpensesNotReportedAmt |
| Expenses Subtotal | $4,350,023 | ExpensesSubtotalAmt |
| Other Expenses Not Included | $180,594 | OtherExpensesNotIncludedAmt |
| Expenses Not Rpt Fincl Stmt | $180,594 | ExpensesNotRptFinclStmtAmt |
| Total Expenses Per Form990 | $4,530,617 | TotalExpensesPerForm990Amt |
Supplemental Information Detail SupplementalInformationDetail (2 entries)
| Form And Line ReferenceFormAndLineReferenceDesc | ExplanationExplanationTxt |
|---|---|
| PART XI, LINE 4B - OTHER ADJUSTMENTS: | FUNDRAISING EXPENSES 180,594. |
| PART XII, LINE 4B - OTHER ADJUSTMENTS: | FUNDRAISING EXPENSES 180,594. |
Schedule F IRS990ScheduleF
| Field | Value | IRS element (for citing) |
|---|---|---|
| Grant Records Maintained | Yes (1) | GrantRecordsMaintainedInd |
Account Activities Outside US AccountActivitiesOutsideUSGrp (2 entries)
| RegionRegionTxt | OfficesOfficesCnt | EmployeeEmployeeCnt | Type Of Activities ConductedTypeOfActivitiesConductedTxt | Region Total ExpendituresRegionTotalExpendituresAmt |
|---|---|---|---|---|
| EUROPE (INCLUDING ICELAND & GREENLAND) - ALBANIA, ANDORRA, AUSTRIA, BELGIUM | 0 | 0 | GRANTS TO RECIPIENTS LOCATED IN REGION | $149,750 |
| EAST ASIA AND THE PACIFIC - AUSTRALIA, BRUNEI, BURMA, CAMBODIA, | 0 | 0 | GRANTS TO RECIPIENTS LOCATED IN REGION | $99,548 |
| Field | Value | IRS element (for citing) |
|---|---|---|
| Subtotal Offices | 0 | SubtotalOfficesCnt |
| Subtotal Employees | 0 | SubtotalEmployeesCnt |
| Continutation Total Office | 0 | ContinutationTotalOfficeCnt |
| Continutation Total Employee | 0 | ContinutationTotalEmployeeCnt |
| Total Office | 0 | TotalOfficeCnt |
| Total Employee | 0 | TotalEmployeeCnt |
| Subtotal Spent | $249,298 | SubtotalSpentAmt |
| Continuation Spent | $0 | ContinuationSpentAmt |
| Total Spent | $249,298 | TotalSpentAmt |
Grants To Org Outside US GrantsToOrgOutsideUSGrp (3 entries)
| RegionRegionTxt | Purpose Of GrantPurposeOfGrantTxt | Cash GrantCashGrantAmt |
|---|---|---|
| EAST ASIA AND THE PACIFIC - AUSTRALIA, BRUNEI, BURMA, CAMBODIA, | DNA METHYLATION IN EPILEPSY | $99,548 |
| EUROPE (INCLUDING ICELAND & GREENLAND) - ALBANIA, ANDORRA, AUSTRIA, BELGIUM | EXCESSIVE NEURONAL INHIBITION CHANGES PHYSIOLOGICAL FUNCTIONS AND INCREASES SUDEP RISK | $99,750 |
| EUROPE | CONVERSION OF REACTIVE GLIA INTO NEURONS IN MTLE: A NEW WAY TO GENERATE GABAERGIC INTERNEURONS AND REDUCE SEIZURE ACTIVITY | $50,000 |
| Field | Value | IRS element (for citing) |
|---|---|---|
| Total501c3 Org | 3 | Total501c3OrgCnt |
| Transfer To Foreign Corp | 0 | TransferToForeignCorpInd |
| Interest In Foreign Trust | 0 | InterestInForeignTrustInd |
| Foreign Corp Ownership | 0 | ForeignCorpOwnershipInd |
| Passive Foreign Investmest Co | 0 | PassiveForeignInvestmestCoInd |
| Foreign Partnership | 0 | ForeignPartnershipInd |
| Boycott Countries | 0 | BoycottCountriesInd |
Supplemental Information Detail SupplementalInformationDetail
| Field | Value | IRS element (for citing) |
|---|---|---|
| Form And Line Reference | PART I, LINE 2: | FormAndLineReferenceDesc |
| Explanation | GRANTEES ARE REQUIRED TO MAKE PERIODIC PROGRESS REPORTS. | ExplanationTxt |
Schedule G IRS990ScheduleG
Fundraising Event Information FundraisingEventInformationGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Name Of Event1 | CHICAGO GALA BENEFIT | NameOfEvent1Amt |
| Gross Receipts Event1 | $1,398,581 | GrossReceiptsEvent1Amt |
| Charitable Contri Event1 | $1,297,881 | CharitableContriEvent1Amt |
| Gross Revenue Event1 | $100,700 | GrossRevenueEvent1Amt |
| Non Cash Prizes Event1 | $1,819 | NonCashPrizesEvent1Amt |
| Rent Facility Costs Event1 | $34,824 | RentFacilityCostsEvent1Amt |
| Other Direct Expenses Event1 | $210,137 | OtherDirectExpensesEvent1Amt |
| Gross Receipts Total | $1,398,581 | GrossReceiptsTotalAmt |
| Charitable Contributions Tot | $1,297,881 | CharitableContributionsTotAmt |
| Gross Revenue Total Events | $100,700 | GrossRevenueTotalEventsAmt |
| Non Cash Prizes Total Events | $1,819 | NonCashPrizesTotalEventsAmt |
| Rent Fclty Costs Total Events | $34,824 | RentFcltyCostsTotalEventsAmt |
| Oth Direct Expnss Total Events | $210,137 | OthDirectExpnssTotalEventsAmt |
| Direct Expense Summary Events | $246,780 | DirectExpenseSummaryEventsAmt |
| Net Income Summary | -$146,080 | NetIncomeSummaryAmt |
Schedule I IRS990ScheduleI
| Field | Value | IRS element (for citing) |
|---|---|---|
| Grant Records Maintained | Yes (1) | GrantRecordsMaintainedInd |
Recipient Table RecipientTable (15 entries)
| Address Line1USAddress/AddressLine1 | CityUSAddress/City | StateUSAddress/State | ZIP CodeUSAddress/ZIPCode | Recipient EINRecipientEIN | IRC SectionIRCSectionDesc | Cash GrantCashGrantAmt | Purpose Of GrantPurposeOfGrantTxt | Address Line2USAddress/AddressLine2 |
|---|---|---|---|---|---|---|---|---|
| CREIGHTON UNIVERSITY | ||||||||
| 2500 CALIFORNIA PLAZA | OMAHA | NE | 68123 | 470376583 | 501(C)(3) | $250,000 | THE CRITICAL ROLE OF PPARGAMMA IN KETOGENIC DIET EFFICACY | |
| STANFORD UNIVERSITY | ||||||||
| PO BOX 44253 | STANFORD | CA | 94144 | 941156365 | 501(C)(3) | $250,000 | CLOSED-LOOP CONTROL OF INJURY-INDUCED AND GENETIC SEIZURES USING TEMPORALLY PRECISE CELL-TYPE-SPECIFIC OPTOGENETIC MANIPULATION | |
| WESLEYAN UNIVERSITY | ||||||||
| 237 HIGH STREET NORTH COLLEGE 3 | MIDDLETOWN | CT | 06459 | 060646959 | 501(C)(3) | $250,000 | GABAERGIC INTERNEURON TRANSPLANTATION FOR CIRCUIT REPAIR AND SEIZURE SUPPRESSION IN TEMPORAL LOBE EPILEPSY | |
| UNIVERSITY OF WASHINGTON | ||||||||
| 12455 COLLECTIONS DRIVE | SEATTLE | WA | 60693 | 605799469 | 501(C)(3) | $249,976 | PREVENTION OF POSTTRAUMATIC EPILEPSY WITH FDA-APPROVED ANTI-INFLAMMATORY DRUGS | |
| LEGACY EMANUEL HOSPITAL & HEALTH CENTER | ||||||||
| 1225 NE 2ND AVENUE | PORTLAND | OR | 97232 | 930386823 | 501(C)(3) | $249,798 | PREVENTION OF ACQUIRED EPILEPSY THROUGH AN EPIGENETIC INTERVENTION | |
| BAYLOR COLLEGE OF MEDICINE | ||||||||
| PO BOX 201361 | HOUSTON | TX | 77216 | 741613878 | 501(C)(3) | $241,787 | TARGETED MOLECULAR THERAPY FOR KCNQ2 ENCEPHALOPATHY | |
| TRUSTEES OF BOSTON UNIVERSITY BU MEDICAL CAMPUS | ||||||||
| 25 BUICK STREET | BOSTON | MA | 02215 | 042103547 | 501(C)(3) | $137,000 | DEVELOPMENT OF NOVEL JAK/STAT INHIBITORS FOR DISEASE MODIFICATION IN EPILEPSY | |
| YALE SCHOOL OF MEDICINE | ||||||||
| PO BOX 1873 | NEW HAVEN | CT | 06508 | 060646973 | 501(C)(3) | $100,000 | ROLE OF VIGILANCE STATE AND CIRCADIAN PHASE IN SEIZURE-RELATED DEATH | |
| BOSTON CHILDREN'S HOSPITAL | ||||||||
| PO BOX 441413 | BOSTON | MA | 02241 | 042774441 | 501(C)(3) | $100,000 | SEARCHING FOR COMMON GENE VARIANTS IN SUDDEN DEATH IN CHILDHOOD WITH FEBRILE SEIZURES, SIDS, & SUDEP | |
| LEHIGH UNIVERSITY | ||||||||
| 526 BRODHEAD AVE | BETHLEHEM | PA | 18015 | 240795445 | 501(C)(3) | $100,000 | IGF-1 SIGNALING IN POSTTRAUMATIC EPILEPTOGENESIS | |
| MAX PLANCK FLORIDA CORPORATION | ||||||||
| ONE MAX PLANCK WAY | JUPITER | FL | 33458 | 262117502 | 501(C)(3) | $100,000 | TOWARDS A CHANDELIER CELL-BASED CURE FOR EPILEPSY | |
| THE TRUSTEES OF THE UNIVERSITY OF PENNSYLVANIA | ||||||||
| PO BOX 785541 | PHILADELPHIA | PA | 19178 | 231352685 | 501(C)(3) | $99,816 | NETWORK AND AXONAL MECHANISMS UNDERLYING THE TRANSITION TO POST-TRAUMATIC EPILEPSY FOLLOWING REPETITIVE MILD TBI (CONCUSSION) | |
| JOHNS HOPKINS UNIVERSITY BLOOMBERG SCHOOL OF PUBLIC HEALTH | ||||||||
| 615 N WOLFE ST | BALTIMORE | MD | 21205 | 520595110 | 501(C)(3) | $50,000 | AUTOPHAGY DEFECT IN EPILEPSY | |
| UNIVERSITY OF WISCONSIN-MADISON | ||||||||
| RESEARCH SPONSORED PROGRAMS 21 | MADISON | WI | 53715 | 396006492 | 501(C)(3) | $50,000 | BRAIN AGING IN PERSONS WITH CHILDHOOD ONSET EPILEPSY: A POPULATION BASED INVESTIGATION | NORTH PARK STREET SUITE 6401 MADISO |
| UNIVERSITY OF NORTH CAROLINA AT CHAPEL HILL | ||||||||
| 125 MACNIDER HALL | CHAPEL HILL | NC | 27599 | 566001393 | 501(C)(3) | $49,184 | AN ESSENTIAL ELEMENT FOR NOVEL, ASTROCYTE FOCUSED EPILEPSY THERAPIES: THE CREATION OF A CHIMERIC, ASTROCYTE SELECTIVE ADENO-ASSOCIATED VIRUS VECTOR | |
| Field | Value | IRS element (for citing) |
|---|---|---|
| Total501c3 Org | 15 | Total501c3OrgCnt |
Supplemental Information Detail SupplementalInformationDetail
| Field | Value | IRS element (for citing) |
|---|---|---|
| Form And Line Reference | PART I, LINE 2: | FormAndLineReferenceDesc |
| Explanation | GRANTEES ARE REQUIRED TO MAKE PERIODIC PROGRESS REPORTS. | ExplanationTxt |
Schedule J IRS990ScheduleJ
| Field | Value | IRS element (for citing) |
|---|---|---|
| Form990 Of Other Organizations | Yes (X) | Form990OfOtherOrganizationsInd |
| Written Employment Contract | Yes (X) | WrittenEmploymentContractInd |
| Board Or Committee Approval | Yes (X) | BoardOrCommitteeApprovalInd |
| Severance Payment | Yes (1) | SeverancePaymentInd |
| Supplemental Nonqual Rtr Plan | 0 | SupplementalNonqualRtrPlanInd |
| Equity Based Comp Arrngm | 0 | EquityBasedCompArrngmInd |
| Comp Based On Revenue Of Flng Org | 0 | CompBasedOnRevenueOfFlngOrgInd |
| Comp Bsd On Rev Related Orgs | 0 | CompBsdOnRevRelatedOrgsInd |
| Comp Bsd Net Earns Flng Org | 0 | CompBsdNetEarnsFlngOrgInd |
| Comp Bsd Net Earns Rltd Orgs | 0 | CompBsdNetEarnsRltdOrgsInd |
| Any Non Fixed Payments | 0 | AnyNonFixedPaymentsInd |
| Initial Contract Exception | 0 | InitialContractExceptionInd |
Rltd Org Officer Trst Key Empl RltdOrgOfficerTrstKeyEmplGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Person | BOGDAN EWENDT | PersonNm |
| Title | EXECUTIVE DIRECTOR (TO NOV '13) | TitleTxt |
| Base Compensation Filing Org | $224,403 | BaseCompensationFilingOrgAmt |
| Compensation Based On Rltd Orgs | $0 | CompensationBasedOnRltdOrgsAmt |
| Bonus Filing Organization | $0 | BonusFilingOrganizationAmount |
| Bonus Related Organizations | $0 | BonusRelatedOrganizationsAmt |
| Other Compensation Filing Org | $0 | OtherCompensationFilingOrgAmt |
| Other Compensation Rltd Orgs | $0 | OtherCompensationRltdOrgsAmt |
| Deferred Compensation Flng Org | $6,038 | DeferredCompensationFlngOrgAmt |
| Deferred Comp Rltd Orgs | $0 | DeferredCompRltdOrgsAmt |
| Nontaxable Benefits Filing Org | $9,716 | NontaxableBenefitsFilingOrgAmt |
| Nontaxable Benefits Rltd Orgs | $0 | NontaxableBenefitsRltdOrgsAmt |
| Total Compensation Filing Org | $240,157 | TotalCompensationFilingOrgAmt |
| Total Compensation Rltd Orgs | $0 | TotalCompensationRltdOrgsAmt |
| Comp Report Prior990 Filing Org | $0 | CompReportPrior990FilingOrgAmt |
| Comp Report Prior990 Rltd Orgs | $0 | CompReportPrior990RltdOrgsAmt |
Supplemental Information Detail SupplementalInformationDetail
| Field | Value | IRS element (for citing) |
|---|---|---|
| Form And Line Reference | PART I, LINE 4A | FormAndLineReferenceDesc |
| Explanation | BOGDAN EWENDT: $39,813 | ExplanationTxt |
Schedule O IRS990ScheduleO
Supplemental Information Detail SupplementalInformationDetail (5 entries)
| Form And Line ReferenceFormAndLineReferenceDesc | ExplanationExplanationTxt |
|---|---|
| FORM 990, PART VI, SECTION A, LINE 4 | THE ORGANIZATION'S BYLAWS WERE AMENDED IN THE FOLLOWING WAYS: -THE POSITIONS OF "FOUNDING CHAIR" AND "CHAIR-ELECT" WERE CREATED -THE POSITION OF CHAIR WILL BE TERM LIMITED -THE COMPOSITION OF THE EXECUTIVE COMMITTEE WAS REDUCED -THE MAXIMUM SIZE OF THE BOARD OF DIRECTORS WAS INCREASED |
| FORM 990, PART VI, SECTION B, LINE 11 | FORM 990 IS REVIEWED BY THE DIRECTOR OF FINANCE & ADMINISTRATION, TREASURER, AND CHIEF EXECUTIVE OFFICER. WHEN THE DRAFT IS APPROVED, IT IS SENT TO THE ENTIRE BOARD. |
| FORM 990, PART VI, SECTION B, LINE 12C | EACH BOARD MEMBER SIGNS IT ANNUALLY AND EXPECTS TO SELF-MONITOR. CONFLICTS ARE DEALT WITH ON A CASE-BY-CASE BASIS. |
| FORM 990, PART VI, SECTION B, LINE 15A | COMPARABLE SALARY INFORMATION IS OBTAINED AND REVIEWED USING AN OUTSIDE EXECUTIVE SEARCH FIRM. THE BOARD OF DIRECTORS HAS FINAL APPROVAL, AND REVIEWS COMPENSATION ANNUALLY. |
| FORM 990, PART VI, SECTION C, LINE 19 | GOVERNING DOCUMENTS, CONFLICT OF INTEREST POLICY, AND FINANCIAL STATEMENTS ARE NOT GENERALLY AVAILABLE TO THE PUBLIC. |
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