EPILEPSY FOUNDATION OF AMERICA: Form 990, tax year 2023
View the entire original 990 at ProPublica ↗
- Organization
- EPILEPSY FOUNDATION OF AMERICA (EIN 52-0856660)
- Tax period
- 2023-07-01 to 2024-06-30
- Filed
- 2025-05-09
- IRS object ID
- 202541299349302999
- Schema version
- 2023v6.0
- Source
- Download XML · Original 990 at ProPublica
Every field in the e-filed return. Faint text is the IRS element name, for citing.
- Return header
- Form 990
- Schedule A
- Schedule B
- Schedule C
- Schedule D
- Schedule F
- Schedule G
- Schedule I
- Schedule J
- Schedule M
- Schedule O
- Schedule R
Return header ReturnHeader
| Field | Value | IRS element (for citing) |
|---|---|---|
| Return | 2025-05-09T13:53:27-05:00 | ReturnTs |
| Tax Period End | 2024-06-30 | TaxPeriodEndDt |
Preparer Firm PreparerFirmGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Preparer Firm EIN | 520982413 | PreparerFirmEIN |
Preparer Firm Name PreparerFirmName
| Field | Value | IRS element (for citing) |
|---|---|---|
| Business Name Line1 | GROSS MENDELSOHN & ASSOCIATES PA | BusinessNameLine1Txt |
Preparer US Address PreparerUSAddress
| Field | Value | IRS element (for citing) |
|---|---|---|
| Address Line1 | 1801 PORTER STREET SUITE 500 | AddressLine1Txt |
| City | BALTIMORE | CityNm |
| State Abbreviation | MD | StateAbbreviationCd |
| ZIP | 21230 | ZIPCd |
| Field | Value | IRS element (for citing) |
|---|---|---|
| Return Type | 990 | ReturnTypeCd |
| Tax Period Begin | 2023-07-01 | TaxPeriodBeginDt |
Filer Filer
| Field | Value | IRS element (for citing) |
|---|---|---|
| EIN | 520856660 | EIN |
Business Name BusinessName
| Field | Value | IRS element (for citing) |
|---|---|---|
| Business Name Line1 | EPILEPSY FOUNDATION OF AMERICA | BusinessNameLine1Txt |
| Field | Value | IRS element (for citing) |
|---|---|---|
| Business Name Control | EPIL | BusinessNameControlTxt |
| Phone | 8003321000 | PhoneNum |
US Address USAddress
| Field | Value | IRS element (for citing) |
|---|---|---|
| Address Line1 | 3540 CRAIN HIGHWAY 675 | AddressLine1Txt |
| City | BOWIE | CityNm |
| State Abbreviation | MD | StateAbbreviationCd |
| ZIP | 20716 | ZIPCd |
Business Officer BusinessOfficerGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Person | WANDA COOK | PersonNm |
| Person Title | CFO | PersonTitleTxt |
| Phone | 3019183702 | PhoneNum |
| Signature | 2025-05-09 | SignatureDt |
| Discuss With Paid Preparer | Yes (1) | DiscussWithPaidPreparerInd |
| Field | Value | IRS element (for citing) |
|---|---|---|
| IRS Responsible Prty Info Curr | 0 | IRSResponsiblePrtyInfoCurrInd |
Preparer Person PreparerPersonGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Preparer Person | LISA JOHNSON | PreparerPersonNm |
| PTIN | P01250416 | PTIN |
| Phone | 4106855512 | PhoneNum |
| Preparation | 2025-05-08 | PreparationDt |
| Field | Value | IRS element (for citing) |
|---|---|---|
| Tax | 2023 | TaxYr |
| Build TS | 2025-03-06 01:10:19Z | BuildTS |
Form 990 IRS990
| Field | Value | IRS element (for citing) |
|---|---|---|
| Principal Officer | WANDA COOK | PrincipalOfficerNm |
US Address USAddress
| Field | Value | IRS element (for citing) |
|---|---|---|
| Address Line1 | 3540 CRAIN HIGHWAY 675 | AddressLine1Txt |
| City | BOWIE | CityNm |
| State Abbreviation | MD | StateAbbreviationCd |
| ZIP | 20716 | ZIPCd |
| Field | Value | IRS element (for citing) |
|---|---|---|
| Gross Receipts | $21,641,641 | GrossReceiptsAmt |
| Group Return For Affiliates | 0 | GroupReturnForAffiliatesInd |
| Organization501c3 | Yes (X) | Organization501c3Ind |
| Website Address | WWW.EPILEPSY.COM | WebsiteAddressTxt |
| Type Of Organization Corp | Yes (X) | TypeOfOrganizationCorpInd |
| Formation | 1967 | FormationYr |
| Legal Domicile State | DE | LegalDomicileStateCd |
| Activity Or Mission | TO IMPROVE THE LIVES OF PEOPLES AFFECTED BY EPILEPSY THROUGH EDUCATION, ADVOCACY, RESEARCH, AND CONNECTION. | ActivityOrMissionDesc |
| Voting Members Governing Body | 19 | VotingMembersGoverningBodyCnt |
| Voting Members Independent | 19 | VotingMembersIndependentCnt |
| Total Employee | 94 | TotalEmployeeCnt |
| Total Volunteers | 1000 | TotalVolunteersCnt |
| Total Gross UBI | $0 | TotalGrossUBIAmt |
| Net Unrelated Bus Txbl Incm | $0 | NetUnrelatedBusTxblIncmAmt |
| PY Contributions Grants | $18,834,892 | PYContributionsGrantsAmt |
| CY Contributions Grants | $15,124,954 | CYContributionsGrantsAmt |
| PY Program Service Revenue | $703,581 | PYProgramServiceRevenueAmt |
| CY Program Service Revenue | $593,198 | CYProgramServiceRevenueAmt |
| PY Investment Income | -$954,167 | PYInvestmentIncomeAmt |
| CY Investment Income | $393,154 | CYInvestmentIncomeAmt |
| PY Other Revenue | -$743,092 | PYOtherRevenueAmt |
| CY Other Revenue | -$517,807 | CYOtherRevenueAmt |
| PY Total Revenue | $17,841,214 | PYTotalRevenueAmt |
| CY Total Revenue | $15,593,499 | CYTotalRevenueAmt |
| PY Grants And Similar Paid | $356,078 | PYGrantsAndSimilarPaidAmt |
| CY Grants And Similar Paid | $433,621 | CYGrantsAndSimilarPaidAmt |
| PY Benefits Paid To Members | $0 | PYBenefitsPaidToMembersAmt |
| CY Benefits Paid To Members | $0 | CYBenefitsPaidToMembersAmt |
| PY Salaries Comp Emp Bnft Paid | $8,224,389 | PYSalariesCompEmpBnftPaidAmt |
| CY Salaries Comp Emp Bnft Paid | $8,723,158 | CYSalariesCompEmpBnftPaidAmt |
| PY Total Prof Fndrsng Expns | $234,025 | PYTotalProfFndrsngExpnsAmt |
| CY Total Prof Fndrsng Expns | $236,421 | CYTotalProfFndrsngExpnsAmt |
| CY Total Fundraising Expense | $2,172,943 | CYTotalFundraisingExpenseAmt |
| PY Other Expenses | $7,166,841 | PYOtherExpensesAmt |
| CY Other Expenses | $7,120,982 | CYOtherExpensesAmt |
| PY Total Expenses | $15,981,333 | PYTotalExpensesAmt |
| CY Total Expenses | $16,514,182 | CYTotalExpensesAmt |
| PY Revenues Less Expenses | $1,859,881 | PYRevenuesLessExpensesAmt |
| CY Revenues Less Expenses | -$920,683 | CYRevenuesLessExpensesAmt |
| Total Assets BOY | $21,649,278 | TotalAssetsBOYAmt |
| Total Assets EOY | $21,279,936 | TotalAssetsEOYAmt |
| Total Liabilities BOY | $1,740,500 | TotalLiabilitiesBOYAmt |
| Total Liabilities EOY | $1,457,307 | TotalLiabilitiesEOYAmt |
| Net Assets Or Fund Balances BOY | $19,908,778 | NetAssetsOrFundBalancesBOYAmt |
| Net Assets Or Fund Balances EOY | $19,822,629 | NetAssetsOrFundBalancesEOYAmt |
| Mission | TO IMPROVE THE LIVES OF PEOPLES AFFECTED BY EPILEPSY THROUGH EDUCATION, ADVOCACY, RESEARCH, AND CONNECTION. | MissionDesc |
| Significant New Program Srvc | 0 | SignificantNewProgramSrvcInd |
| Significant Change | 0 | SignificantChangeInd |
| Expense | $9,096,709 | ExpenseAmt |
| Revenue | $393,174 | RevenueAmt |
| Desc | ADVOCACY AND SERVICES FOR INDIVIDUALS, FAMILIES, AND COMMUNITIES - DESIGNED TO ENSURE THAT ALL PEOPLE LIVING WITH EPILEPSY AND SEIZURE DISORDERS, AND THIER FAMILIES AND COMMUNITIES, RECEIVE THE BEST POSSIBLE SERVICES AND CARE. THE FOUNDATION DEVELOPS NATIONWIDE PROGRAMS AVAILABLE THROUGH ITS NETWORK OF NEARLY FIFTY LOCAL EPILEPSY FOUNDATIONS AND CAN ALSO BE FOUND ON EPILEPSY.COM. PROGRAMS AND INITIATIVES FOCUS ON ENGAGING PARENTS, CHILDREN AND ADULTS ON IMPROVING THEIR QUALITY OF LIFE. THE FOUNDATION ALSO HAS PROGRAMS DEDICATED TO ENDING EARLY DEATH FROM EPILEPSY AND IMPROVING OVERALL WELLNESS. THE PROGRAMS ARE DESIGNED TO BE CULTURALLY AND ETHNICALLY DIVERSE. THE FOUNDATION AND ITS GRASSROOTS VOLUNTEERS ACROSS THE COUNTRY ADVOCATE AT THE FEDERAL AND STATE LEVELS TO SECURE FUNDING FOR EPILEPSY PROGRAMS. | Desc |
Prog Srvc Accom Acty2 ProgSrvcAccomActy2Grp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Expense | $1,993,152 | ExpenseAmt |
| Revenue | $200,024 | RevenueAmt |
| Desc | PUBLIC HEALTH, EDUCATION, AND AWARENESS - PROVIDES EDUCATIONAL AND SUPPORTING SERVICES THAT CREATE AND PROMOTE PUBLIC AWARENESS SURROUNDING EPILEPSY. THE PROGRAM UTILIZES TRADITIONAL AND DIGITAL MEDIA CHANNELS INCLUDING SOCIAL MEDIA AND THROUGH THE DIRECT MAIL PROGRAM WHICH SERVE THE DUAL PURPOSE OF RAISING FUNDS FOR THE FOUNDATION AND INCREASING AWARENESS OF THE FOUNDATION'S CAUSE. THE FOUNDATION EDUCATES THROUGH ENGAGEMENT WITH MEDIA SOURCES, AND PARTNERSHIPS WITH OTHER NON-PROFITS AND PROFESSIONAL AND GOVERNMENT ORGANIZATIONS. IN ADDITION, THE FOUNDATION ESTABLISHED THE EPILEPSY LEARNING HEALTHCARE SYSTEM (ELHS) NETWORK, WHICH IS A PUBLIC HEALTH INITIATIVE TO DRIVE QUALITY HEALTH SERVICES RESEARCH TO IMPROVE MEDICAL OUTCOMES FOR PEOPLE WITH EPILEPSY. | Desc |
Prog Srvc Accom Acty3 ProgSrvcAccomActy3Grp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Expense | $1,106,867 | ExpenseAmt |
| Grant | $433,621 | GrantAmt |
| Desc | RESEARCH, INNOVATION, AND NEW THERAPIES - ACCELERATES THE DEVELOPMENT OF INNOVATIVE THERAPIES, PREVENTION, AND CURES FOR ALL FORMS OF EPILEPSIES, AND SEEKS TO ADDRESS THE GAP IN THE RESEARCH AND COMMERCIALIZATION CONTINUUM. THE MAIN OBJECTIVE IS TO DEVELOP AN EPILEPSY RESEARCH ECOSYSTEM THAT COVERS ALL PARTS OF THERAPY, FROM IDEA TO MARKET. THE FOUNDATION'S RESEARCH INITIATIVES INCLUDE: INNOVATION PROGRAMS THAT TEST NEW IDEAS AND FOLLOW NEW RESEARCH LEADS AND ENGAGEMENT PROGRAMS THAT IMPROVE COMMUNICATION BETWEEN PEOPLE WITH EPILEPSY, THEIR FAMILIES, ADVOCATES, RESEARCHERS, AND INVESTORS. DIGITAL TOOLS THAT SUPPORT RESEARCH INFRASTRUCTURE. FUNDING THAT SUPPORTS YOUNG RESEARCHERS TO BRING THEIR IDEAS TO LIFE. PRACTICE SOLUTIONS TO ERADICATE SUDDEN AND UNEXPECTED DEATH IN EPILEPSY (SUDEP). | Desc |
| Field | Value | IRS element (for citing) |
|---|---|---|
| Total Program Service Expenses | $12,196,728 | TotalProgramServiceExpensesAmt |
| Described In Section501c3 | Yes (1) | DescribedInSection501c3Ind |
| Schedule B Required | Yes (1) | ScheduleBRequiredInd |
| Political Campaign Acty | 0 | PoliticalCampaignActyInd |
| Lobbying Activities | Yes (1) | LobbyingActivitiesInd |
| Subject To Proxy Tax | 0 | SubjectToProxyTaxInd |
| Donor Advised Fund | 0 | DonorAdvisedFundInd |
| Conservation Easements | 0 | ConservationEasementsInd |
| Collections Of Art | 0 | CollectionsOfArtInd |
| Credit Counseling | 0 | CreditCounselingInd |
| Donor Rstr Or Quasi Endowments | Yes (1) | DonorRstrOrQuasiEndowmentsInd |
| Report Land Building Equipment | Yes (1) | ReportLandBuildingEquipmentInd |
| Report Investments Other Sec | 0 | ReportInvestmentsOtherSecInd |
| Report Program Related Invst | 0 | ReportProgramRelatedInvstInd |
| Report Other Assets | Yes (1) | ReportOtherAssetsInd |
| Report Other Liabilities | Yes (1) | ReportOtherLiabilitiesInd |
| Include FIN48 Footnote | Yes (1) | IncludeFIN48FootnoteInd |
| Independent Audit Fincl Stmt | 0 | IndependentAuditFinclStmtInd |
| Consolidated Audit Fincl Stmt | Yes (1) | ConsolidatedAuditFinclStmtInd |
| School Operating | 0 | SchoolOperatingInd |
| Foreign Office | 0 | ForeignOfficeInd |
| Foreign Activities | Yes (1) | ForeignActivitiesInd |
| More Than5000 K To Org | Yes (1) | MoreThan5000KToOrgInd |
| More Than5000 K To Individuals | 0 | MoreThan5000KToIndividualsInd |
| Professional Fundraising | Yes (1) | ProfessionalFundraisingInd |
| Fundraising Activities | Yes (1) | FundraisingActivitiesInd |
| Gaming Activities | 0 | GamingActivitiesInd |
| Operate Hospital | 0 | OperateHospitalInd |
| Grants To Organizations | Yes (1) | GrantsToOrganizationsInd |
| Grants To Individuals | 0 | GrantsToIndividualsInd |
| Schedule J Required | Yes (1) | ScheduleJRequiredInd |
| Tax Exempt Bonds | 0 | TaxExemptBondsInd |
| Engaged In Excess Benefit Trans | 0 | EngagedInExcessBenefitTransInd |
| PY Excess Benefit Trans | 0 | PYExcessBenefitTransInd |
| Loan Outstanding | 0 | LoanOutstandingInd |
| Grant To Related Person | 0 | GrantToRelatedPersonInd |
| Business Rln With Org Mem | 0 | BusinessRlnWithOrgMemInd |
| Business Rln With Fam Mem | 0 | BusinessRlnWithFamMemInd |
| Business Rln With35 Ctrl Ent | 0 | BusinessRlnWith35CtrlEntInd |
| Deductible Non Cash Contri | Yes (1) | DeductibleNonCashContriInd |
| Deductible Art Contribution | 0 | DeductibleArtContributionInd |
| Terminate Operations | 0 | TerminateOperationsInd |
| Partial Liquidation | 0 | PartialLiquidationInd |
| Disregarded Entity | Yes (1) | DisregardedEntityInd |
| Related Entity | Yes (1) | RelatedEntityInd |
| Related Organization Ctrl Ent | 0 | RelatedOrganizationCtrlEntInd |
| Trnsfr Exmpt Non Chrtbl Rltd Org | 0 | TrnsfrExmptNonChrtblRltdOrgInd |
| Activities Conducted Prtshp | 0 | ActivitiesConductedPrtshpInd |
| Schedule O Required | Yes (1) | ScheduleORequiredInd |
| IRP Document | 59 | IRPDocumentCnt |
| IRP Document W2 G | 0 | IRPDocumentW2GCnt |
| Backup Wthld Compliance | Yes (1) | BackupWthldComplianceInd |
| Employee | 94 | EmployeeCnt |
| Employment Tax Returns Filed | Yes (1) | EmploymentTaxReturnsFiledInd |
| Unrelated Bus Incm Over Limit | 0 | UnrelatedBusIncmOverLimitInd |
| Foreign Financial Account | 0 | ForeignFinancialAccountInd |
| Prohibited Tax Shelter Trans | 0 | ProhibitedTaxShelterTransInd |
| Taxable Party Notification | 0 | TaxablePartyNotificationInd |
| Nondeductible Contributions | 0 | NondeductibleContributionsInd |
| Quid Pro Quo Contributions | 0 | QuidProQuoContributionsInd |
| Form8282 Property Disposed Of | 0 | Form8282PropertyDisposedOfInd |
| Indoor Tanning Services | 0 | IndoorTanningServicesInd |
| Subj To Tax Rmnrtn Ex Prcht Pymt | 0 | SubjToTaxRmnrtnExPrchtPymtInd |
| Subject To Excs Tax Net Invst Inc | 0 | SubjectToExcsTaxNetInvstIncInd |
| Info In Schedule O Part VI | Yes (X) | InfoInScheduleOPartVIInd |
| Governing Body Voting Members | 19 | GoverningBodyVotingMembersCnt |
| Independent Voting Member | 19 | IndependentVotingMemberCnt |
| Family Or Business Rln | 0 | FamilyOrBusinessRlnInd |
| Delegation Of Mgmt Duties | Yes (1) | DelegationOfMgmtDutiesInd |
| Change To Org Documents | 0 | ChangeToOrgDocumentsInd |
| Material Diversion Or Misuse | 0 | MaterialDiversionOrMisuseInd |
| Members Or Stockholders | 0 | MembersOrStockholdersInd |
| Election Of Board Members | 0 | ElectionOfBoardMembersInd |
| Decisions Subject To Approva | 0 | DecisionsSubjectToApprovaInd |
| Minutes Of Governing Body | Yes (1) | MinutesOfGoverningBodyInd |
| Minutes Of Committees | Yes (1) | MinutesOfCommitteesInd |
| Officer Mailing Address | 0 | OfficerMailingAddressInd |
| Local Chapters | Yes (1) | LocalChaptersInd |
| Policies Reference Chapters | Yes (1) | PoliciesReferenceChaptersInd |
| Form990 Provided To Gvrn Body | Yes (1) | Form990ProvidedToGvrnBodyInd |
| Conflict Of Interest Policy | Yes (1) | ConflictOfInterestPolicyInd |
| Annual Disclosure Covered Prsn | Yes (1) | AnnualDisclosureCoveredPrsnInd |
| Regular Monitoring Enfrc | Yes (1) | RegularMonitoringEnfrcInd |
| Whistleblower Policy | Yes (1) | WhistleblowerPolicyInd |
| Document Retention Policy | Yes (1) | DocumentRetentionPolicyInd |
| Compensation Process CEO | Yes (1) | CompensationProcessCEOInd |
| Compensation Process Other | Yes (1) | CompensationProcessOtherInd |
| Investment In Joint Venture | 0 | InvestmentInJointVentureInd |
| States Where Copy Of Return Is Fld | AR | StatesWhereCopyOfReturnIsFldCd |
| States Where Copy Of Return Is Fld | AL | StatesWhereCopyOfReturnIsFldCd |
| States Where Copy Of Return Is Fld | CA | StatesWhereCopyOfReturnIsFldCd |
| States Where Copy Of Return Is Fld | FL | StatesWhereCopyOfReturnIsFldCd |
| States Where Copy Of Return Is Fld | GA | StatesWhereCopyOfReturnIsFldCd |
| States Where Copy Of Return Is Fld | HI | StatesWhereCopyOfReturnIsFldCd |
| States Where Copy Of Return Is Fld | IL | StatesWhereCopyOfReturnIsFldCd |
| States Where Copy Of Return Is Fld | KS | StatesWhereCopyOfReturnIsFldCd |
| States Where Copy Of Return Is Fld | KY | StatesWhereCopyOfReturnIsFldCd |
| States Where Copy Of Return Is Fld | MD | StatesWhereCopyOfReturnIsFldCd |
| States Where Copy Of Return Is Fld | MA | StatesWhereCopyOfReturnIsFldCd |
| States Where Copy Of Return Is Fld | MI | StatesWhereCopyOfReturnIsFldCd |
| States Where Copy Of Return Is Fld | MN | StatesWhereCopyOfReturnIsFldCd |
| States Where Copy Of Return Is Fld | MS | StatesWhereCopyOfReturnIsFldCd |
| States Where Copy Of Return Is Fld | NH | StatesWhereCopyOfReturnIsFldCd |
| States Where Copy Of Return Is Fld | NJ | StatesWhereCopyOfReturnIsFldCd |
| States Where Copy Of Return Is Fld | NM | StatesWhereCopyOfReturnIsFldCd |
| States Where Copy Of Return Is Fld | NY | StatesWhereCopyOfReturnIsFldCd |
| States Where Copy Of Return Is Fld | NC | StatesWhereCopyOfReturnIsFldCd |
| States Where Copy Of Return Is Fld | OR | StatesWhereCopyOfReturnIsFldCd |
| States Where Copy Of Return Is Fld | PA | StatesWhereCopyOfReturnIsFldCd |
| States Where Copy Of Return Is Fld | RI | StatesWhereCopyOfReturnIsFldCd |
| States Where Copy Of Return Is Fld | SC | StatesWhereCopyOfReturnIsFldCd |
| States Where Copy Of Return Is Fld | TN | StatesWhereCopyOfReturnIsFldCd |
| States Where Copy Of Return Is Fld | UT | StatesWhereCopyOfReturnIsFldCd |
| States Where Copy Of Return Is Fld | VA | StatesWhereCopyOfReturnIsFldCd |
| States Where Copy Of Return Is Fld | WV | StatesWhereCopyOfReturnIsFldCd |
| States Where Copy Of Return Is Fld | WI | StatesWhereCopyOfReturnIsFldCd |
| Own Website | Yes (X) | OwnWebsiteInd |
| Upon Request | Yes (X) | UponRequestInd |
Books In Care Of Detail BooksInCareOfDetail
Business Name BusinessName
| Field | Value | IRS element (for citing) |
|---|---|---|
| Business Name Line1 | WANDA COOK | BusinessNameLine1Txt |
| Field | Value | IRS element (for citing) |
|---|---|---|
| Phone | 3019183702 | PhoneNum |
US Address USAddress
| Field | Value | IRS element (for citing) |
|---|---|---|
| Address Line1 | 3540 CRAIN HIGHWAY 675 | AddressLine1Txt |
| City | BOWIE | CityNm |
| State Abbreviation | MD | StateAbbreviationCd |
| ZIP | 20716 | ZIPCd |
Form990 Part VII Section A Form990PartVIISectionAGrp (29 entries)
| TitleTitleTxt | Average Hours Per WeekAverageHoursPerWeekRt | Average Hours Per Week Rltd OrgAverageHoursPerWeekRltdOrgRt | Individual Trustee Or DirectorIndividualTrusteeOrDirectorInd | OfficerOfficerInd | Reportable Comp From OrgReportableCompFromOrgAmt | Reportable Comp From Rltd OrgReportableCompFromRltdOrgAmt | Other CompensationOtherCompensationAmt | Highest Compensated EmployeeHighestCompensatedEmployeeInd |
|---|---|---|---|---|---|---|---|---|
| JEFFREY PARENT | ||||||||
| CHAIR | 1.00 | 0.00 | Yes (X) | Yes (X) | $0 | $0 | $0 | |
| MARK THEEUWES | ||||||||
| SECRETARY | 1.00 | 0.00 | Yes (X) | Yes (X) | $0 | $0 | $0 | |
| DAVID HAWK | ||||||||
| TREASURER | 1.00 | 0.00 | Yes (X) | Yes (X) | $0 | $0 | $0 | |
| COURTNEY WATSON | ||||||||
| VICE CHAIR | 1.00 | 0.00 | Yes (X) | Yes (X) | $0 | $0 | $0 | |
| GREG MAYES | ||||||||
| DIRECTOR | 1.00 | 0.00 | Yes (X) | $0 | $0 | $0 | ||
| ELI CORBETT | ||||||||
| DIRECTOR | 1.00 | 0.00 | Yes (X) | $0 | $0 | $0 | ||
| SUSAN LINN | ||||||||
| DIRECTOR | 1.00 | 0.00 | Yes (X) | $0 | $0 | $0 | ||
| JEN GURTCHEFF | ||||||||
| DIRECTOR | 1.00 | 0.00 | Yes (X) | $0 | $0 | $0 | ||
| JOHN LANNEN | ||||||||
| DIRECTOR | 1.00 | 0.00 | Yes (X) | $0 | $0 | $0 | ||
| NOAH RICHMOND | ||||||||
| DIRECTOR | 1.00 | 0.00 | Yes (X) | $0 | $0 | $0 | ||
| JAMES MCALPIN | ||||||||
| DIRECTOR | 1.00 | 0.00 | Yes (X) | $0 | $0 | $0 | ||
| MICHAEL MCDONNELL | ||||||||
| DIRECTOR | 1.00 | 0.00 | Yes (X) | $0 | $0 | $0 | ||
| MARIA MARTINEZ | ||||||||
| DIRECTOR | 1.00 | 0.00 | Yes (X) | $0 | $0 | $0 | ||
| WASIM MALIK | ||||||||
| DIRECTOR | 1.00 | 0.00 | Yes (X) | $0 | $0 | $0 | ||
| ABRAHAM GLASER | ||||||||
| DIRECTOR | 1.00 | 0.00 | Yes (X) | $0 | $0 | $0 | ||
| DAVID MOORE | ||||||||
| DIRECTOR | 1.00 | 0.00 | Yes (X) | $0 | $0 | $0 | ||
| MARY WELDON | ||||||||
| DIRECTOR | 1.00 | 0.00 | Yes (X) | $0 | $0 | $0 | ||
| JOSH GOLDEN | ||||||||
| DIRECTOR | 1.00 | 0.00 | Yes (X) | $0 | $0 | $0 | ||
| ANGELICA ROIZ | ||||||||
| DIRECTOR | 1.00 | 0.00 | Yes (X) | $0 | $0 | $0 | ||
| BERNICE LEE | ||||||||
| CHIEF EXECUTIVE OFFICER (BEG 7/23) | 35.00 | 0.10 | Yes (X) | $182,273 | $0 | $9,445 | ||
| RAHEL ROSNER | ||||||||
| CFOO (THROUGH 9/24) | 35.00 | 0.10 | Yes (X) | $301,448 | $0 | $35,654 | ||
| BRANDY FUREMAN | ||||||||
| CHIEF OUTCOMES OFFICER | 35.00 | 0.10 | Yes (X) | $252,896 | $0 | $32,370 | ||
| LAURA WEIDNER | ||||||||
| CHIEF ADVOCACY AND GOV RELATIONS OFFICER | 35.00 | 0.10 | Yes (X) | $201,362 | $0 | $22,502 | ||
| ALISON ZETTERQUIST | ||||||||
| INTERIM CEO (THROUGH 6/23) | 35.00 | 0.10 | Yes (X) | $131,000 | $0 | $0 | ||
| DANIELLE SOLOMON | ||||||||
| VP, HUMAN RESOURCES | 35.00 | 0.10 | $155,625 | $0 | $19,030 | Yes (X) | ||
| NATHAN DEVAULT | ||||||||
| VP, MARKETING AND COMMUNICATIONS | 35.00 | 0.10 | $171,695 | $0 | $32,626 | Yes (X) | ||
| JACQUELINE AKER | ||||||||
| SENIOR DIRECTOR OF PUBLIC RELATIONS | 35.00 | 0.10 | $124,535 | $0 | $28,274 | Yes (X) | ||
| GREGG FORT | ||||||||
| VP REGIONAL TEAMS | 35.00 | 0.10 | $142,275 | $0 | $21,533 | Yes (X) | ||
| KATHLEEN FARRELL | ||||||||
| VP PUBLIC HEALTH & OUTCOMES | 35.00 | 0.10 | $135,498 | $0 | $43,142 | Yes (X) | ||
| Field | Value | IRS element (for citing) |
|---|---|---|
| Total Reportable Comp From Org | $1,798,607 | TotalReportableCompFromOrgAmt |
| Tot Reportable Comp Rltd Org | $0 | TotReportableCompRltdOrgAmt |
| Total Other Compensation | $244,576 | TotalOtherCompensationAmt |
| Indiv Rcvd Greater Than100 K | 10 | IndivRcvdGreaterThan100KCnt |
| Former Ofcr Employees Listed | 0 | FormerOfcrEmployeesListedInd |
| Total Comp Greater Than150 K | Yes (1) | TotalCompGreaterThan150KInd |
| Compensation From Other Srcs | 0 | CompensationFromOtherSrcsInd |
Contractor Compensation ContractorCompensationGrp (5 entries)
| Address Line1ContractorAddress/USAddress/AddressLine1Txt | CityContractorAddress/USAddress/CityNm | State AbbreviationContractorAddress/USAddress/StateAbbreviationCd | ZIPContractorAddress/USAddress/ZIPCd | ServicesServicesDesc | CompensationCompensationAmt |
|---|---|---|---|---|---|
| CITIZENS UNITED FOR RESEARCH IN EPILEPSY | |||||
| 420 N WABASH SUITE 650 | CHICAGO | IL | 60611 | CONSULTING SERVICES | $250,000 |
| HH ASSOCIATES US INC | |||||
| 203 N LASALLE | CHICAGO | IL | 60601 | FUNDRAISING CONSULTANT | $238,181 |
| BENEFACTOR GROUP | |||||
| 450 SOUTH FRONT STREET | COLUMBUS | OH | 43215 | CONSULTING SERVICES | $181,939 |
| PERFICIENT INC | |||||
| 555 MARYVILLE UNIVERSITY DRIVE SUI | ST LOUIS | MO | 63141 | CONSULTING SERVICES | $167,594 |
| AMAZON WEB SERVICES INC (AWS) | |||||
| PO BOX 84023 | SEATTLE | WA | 98124 | CONSULTING SERVICES | $122,773 |
| Field | Value | IRS element (for citing) |
|---|---|---|
| Cntrct Rcvd Greater Than100 K | 10 | CntrctRcvdGreaterThan100KCnt |
| Fundraising | $2,182,772 | FundraisingAmt |
| Government Grants | $3,414,064 | GovernmentGrantsAmt |
| All Other Contributions | $9,528,118 | AllOtherContributionsAmt |
| Noncash Contributions | $730,675 | NoncashContributionsAmt |
| Total Contributions | $15,124,954 | TotalContributionsAmt |
Program Service Revenue ProgramServiceRevenueGrp (2 entries)
| DescDesc | BusinessBusinessCd | Total Revenue ColumnTotalRevenueColumnAmt | Related Or Exempt Func IncomeRelatedOrExemptFuncIncomeAmt |
|---|---|---|---|
| AFFILIATE FEES | 900099 | $393,174 | $393,174 |
| ELHS MEMBERSHIP | 900099 | $200,024 | $200,024 |
| Field | Value | IRS element (for citing) |
|---|---|---|
| Total Program Service Revenue | $593,198 | TotalProgramServiceRevenueAmt |
Investment Income InvestmentIncomeGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Total Revenue Column | $482,410 | TotalRevenueColumnAmt |
| Exclusion | $482,410 | ExclusionAmt |
Royalties Revenue RoyaltiesRevenueGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Total Revenue Column | $108 | TotalRevenueColumnAmt |
| Exclusion | $108 | ExclusionAmt |
Gross Amount Sales Assets GrossAmountSalesAssetsGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Securities | $5,407,323 | SecuritiesAmt |
Less Cost Oth Basis Sales Expnss LessCostOthBasisSalesExpnssGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Securities | $5,496,579 | SecuritiesAmt |
Gain Or Loss GainOrLossGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Securities | -$89,256 | SecuritiesAmt |
Net Gain Or Loss Investments NetGainOrLossInvestmentsGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Total Revenue Column | -$89,256 | TotalRevenueColumnAmt |
| Exclusion | -$89,256 | ExclusionAmt |
| Field | Value | IRS element (for citing) |
|---|---|---|
| Fundraising Gross Income | $0 | FundraisingGrossIncomeAmt |
| Contri Rpt Fundraising Event | $2,182,772 | ContriRptFundraisingEventAmt |
| Fundraising Direct Expenses | $551,563 | FundraisingDirectExpensesAmt |
Net Incm From Fundraising Evt NetIncmFromFundraisingEvtGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Total Revenue Column | -$551,563 | TotalRevenueColumnAmt |
| Exclusion | -$551,563 | ExclusionAmt |
Other Revenue Misc OtherRevenueMiscGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Desc | MISCELLANEOUS REVENUE | Desc |
| Business | 900099 | BusinessCd |
| Total Revenue Column | $33,648 | TotalRevenueColumnAmt |
| Exclusion | $33,648 | ExclusionAmt |
| Field | Value | IRS element (for citing) |
|---|---|---|
| Other Revenue Total | $33,648 | OtherRevenueTotalAmt |
Total Revenue TotalRevenueGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Total Revenue Column | $15,593,499 | TotalRevenueColumnAmt |
| Related Or Exempt Func Income | $593,198 | RelatedOrExemptFuncIncomeAmt |
| Unrelated Business Revenue | $0 | UnrelatedBusinessRevenueAmt |
| Exclusion | -$124,653 | ExclusionAmt |
| Field | Value | IRS element (for citing) |
|---|---|---|
| Info In Schedule O Part IX | Yes (X) | InfoInScheduleOPartIXInd |
Grants To Domestic Orgs GrantsToDomesticOrgsGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Total | $283,621 | TotalAmt |
| Program Services | $283,621 | ProgramServicesAmt |
Foreign Grants ForeignGrantsGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Total | $150,000 | TotalAmt |
| Program Services | $150,000 | ProgramServicesAmt |
Comp Current Ofcr Directors CompCurrentOfcrDirectorsGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Total | $1,282,311 | TotalAmt |
| Program Services | $956,513 | ProgramServicesAmt |
| Management And General | $227,355 | ManagementAndGeneralAmt |
| Fundraising | $98,443 | FundraisingAmt |
Other Salaries And Wages OtherSalariesAndWagesGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Total | $6,122,244 | TotalAmt |
| Program Services | $4,587,925 | ProgramServicesAmt |
| Management And General | $692,450 | ManagementAndGeneralAmt |
| Fundraising | $841,869 | FundraisingAmt |
Pension Plan Contributions PensionPlanContributionsGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Total | $291,570 | TotalAmt |
| Program Services | $218,511 | ProgramServicesAmt |
| Management And General | $32,754 | ManagementAndGeneralAmt |
| Fundraising | $40,305 | FundraisingAmt |
Other Employee Benefits OtherEmployeeBenefitsGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Total | $690,218 | TotalAmt |
| Program Services | $517,052 | ProgramServicesAmt |
| Management And General | $81,564 | ManagementAndGeneralAmt |
| Fundraising | $91,602 | FundraisingAmt |
Payroll Taxes PayrollTaxesGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Total | $336,815 | TotalAmt |
| Program Services | $252,219 | ProgramServicesAmt |
| Management And General | $41,533 | ManagementAndGeneralAmt |
| Fundraising | $43,063 | FundraisingAmt |
Fees For Services Legal FeesForServicesLegalGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Total | $53,455 | TotalAmt |
| Program Services | $39,246 | ProgramServicesAmt |
| Management And General | $6,613 | ManagementAndGeneralAmt |
| Fundraising | $7,596 | FundraisingAmt |
Fees For Services Accounting FeesForServicesAccountingGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Total | $86,668 | TotalAmt |
| Program Services | $63,630 | ProgramServicesAmt |
| Management And General | $10,722 | ManagementAndGeneralAmt |
| Fundraising | $12,316 | FundraisingAmt |
Fees For Services Prof Fundraising FeesForServicesProfFundraising
| Field | Value | IRS element (for citing) |
|---|---|---|
| Total | $236,421 | TotalAmt |
| Fundraising | $236,421 | FundraisingAmt |
Fees For Srvc Invst Mgmnt Fees FeesForSrvcInvstMgmntFeesGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Total | $60,155 | TotalAmt |
| Management And General | $60,155 | ManagementAndGeneralAmt |
Fees For Services Other FeesForServicesOtherGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Total | $4,466,838 | TotalAmt |
| Program Services | $3,453,053 | ProgramServicesAmt |
| Management And General | $581,842 | ManagementAndGeneralAmt |
| Fundraising | $431,943 | FundraisingAmt |
Office Expenses OfficeExpensesGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Total | $925,517 | TotalAmt |
| Program Services | $455,507 | ProgramServicesAmt |
| Management And General | $217,193 | ManagementAndGeneralAmt |
| Fundraising | $252,817 | FundraisingAmt |
Occupancy OccupancyGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Total | $113,318 | TotalAmt |
| Program Services | $110,122 | ProgramServicesAmt |
| Management And General | $1,598 | ManagementAndGeneralAmt |
| Fundraising | $1,598 | FundraisingAmt |
Travel TravelGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Total | $775,533 | TotalAmt |
| Program Services | $630,449 | ProgramServicesAmt |
| Management And General | $65,423 | ManagementAndGeneralAmt |
| Fundraising | $79,661 | FundraisingAmt |
Payments To Affiliates PaymentsToAffiliatesGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Total | $371,304 | TotalAmt |
| Program Services | $371,304 | ProgramServicesAmt |
Depreciation Depletion DepreciationDepletionGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Total | $45,925 | TotalAmt |
| Program Services | $27,555 | ProgramServicesAmt |
| Management And General | $9,185 | ManagementAndGeneralAmt |
| Fundraising | $9,185 | FundraisingAmt |
Insurance InsuranceGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Total | $132,269 | TotalAmt |
| Program Services | $80,021 | ProgramServicesAmt |
| Management And General | $26,124 | ManagementAndGeneralAmt |
| Fundraising | $26,124 | FundraisingAmt |
Other Expenses OtherExpensesGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Desc | CREDIT LOSS EXPENSE | Desc |
| Total | $90,000 | TotalAmt |
| Management And General | $90,000 | ManagementAndGeneralAmt |
Total Functional Expenses TotalFunctionalExpensesGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Total | $16,514,182 | TotalAmt |
| Program Services | $12,196,728 | ProgramServicesAmt |
| Management And General | $2,144,511 | ManagementAndGeneralAmt |
| Fundraising | $2,172,943 | FundraisingAmt |
Cash Non Interest Bearing CashNonInterestBearingGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| BOY | $4,242,331 | BOYAmt |
| EOY | $1,992,628 | EOYAmt |
Savings And Temp Cash Invst SavingsAndTempCashInvstGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| BOY | $313,172 | BOYAmt |
| EOY | $166,430 | EOYAmt |
Pledges And Grants Receivable PledgesAndGrantsReceivableGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| BOY | $408,246 | BOYAmt |
| EOY | $287,746 | EOYAmt |
Accounts Receivable AccountsReceivableGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| BOY | $386,238 | BOYAmt |
| EOY | $277,284 | EOYAmt |
Oth Notes Loans Receivable Net OthNotesLoansReceivableNetGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| BOY | $83,222 | BOYAmt |
| EOY | $7,603 | EOYAmt |
Prepaid Expenses Defrd Charges PrepaidExpensesDefrdChargesGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| BOY | $583,843 | BOYAmt |
| EOY | $600,787 | EOYAmt |
| Field | Value | IRS element (for citing) |
|---|---|---|
| Land Bldg Equip Cost Or Other Bss | $579,051 | LandBldgEquipCostOrOtherBssAmt |
| Land Bldg Equip Accum Deprec | $551,527 | LandBldgEquipAccumDeprecAmt |
Land Bldg Equip Basis Net LandBldgEquipBasisNetGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| BOY | $73,450 | BOYAmt |
| EOY | $27,524 | EOYAmt |
Investments Pub Traded Sec InvestmentsPubTradedSecGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| BOY | $12,077,261 | BOYAmt |
| EOY | $13,901,746 | EOYAmt |
Investments Other Securities InvestmentsOtherSecuritiesGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| BOY | $250,000 | BOYAmt |
| EOY | $295,054 | EOYAmt |
Other Assets Total OtherAssetsTotalGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| BOY | $3,231,515 | BOYAmt |
| EOY | $3,723,134 | EOYAmt |
Total Assets TotalAssetsGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| BOY | $21,649,278 | BOYAmt |
| EOY | $21,279,936 | EOYAmt |
Accounts Payable Accr Expnss AccountsPayableAccrExpnssGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| BOY | $1,175,850 | BOYAmt |
| EOY | $1,270,845 | EOYAmt |
Deferred Revenue DeferredRevenueGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| BOY | $120,024 | BOYAmt |
| EOY | $154,165 | EOYAmt |
Other Liabilities OtherLiabilitiesGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| BOY | $444,626 | BOYAmt |
| EOY | $32,297 | EOYAmt |
Total Liabilities TotalLiabilitiesGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| BOY | $1,740,500 | BOYAmt |
| EOY | $1,457,307 | EOYAmt |
| Field | Value | IRS element (for citing) |
|---|---|---|
| Organization Follows FASB117 | Yes (X) | OrganizationFollowsFASB117Ind |
No Donor Restriction Net Assets NoDonorRestrictionNetAssetsGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| BOY | $14,405,813 | BOYAmt |
| EOY | $13,562,818 | EOYAmt |
Donor Restriction Net Assets DonorRestrictionNetAssetsGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| BOY | $5,502,965 | BOYAmt |
| EOY | $6,259,811 | EOYAmt |
Total Net Assets Fund Balance TotalNetAssetsFundBalanceGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| BOY | $19,908,778 | BOYAmt |
| EOY | $19,822,629 | EOYAmt |
Tot Liab Net Assets Fund Balance TotLiabNetAssetsFundBalanceGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| BOY | $21,649,278 | BOYAmt |
| EOY | $21,279,936 | EOYAmt |
| Field | Value | IRS element (for citing) |
|---|---|---|
| Info In Schedule O Part XI | Yes (X) | InfoInScheduleOPartXIInd |
| Reconcilation Revenue Expnss | -$920,683 | ReconcilationRevenueExpnssAmt |
| Net Unrlzd Gains Losses Invst | $612,036 | NetUnrlzdGainsLossesInvstAmt |
| Other Changes In Net Assets | $222,498 | OtherChangesInNetAssetsAmt |
| Method Of Accounting Accrual | Yes (X) | MethodOfAccountingAccrualInd |
| Accountant Compile Or Review | 0 | AccountantCompileOrReviewInd |
| FS Audited | Yes (1) | FSAuditedInd |
FS Audited Basis FSAuditedBasisGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Consolidated Basis Fincl Stmt | Yes (X) | ConsolidatedBasisFinclStmtInd |
| Field | Value | IRS element (for citing) |
|---|---|---|
| Audit Committee | Yes (1) | AuditCommitteeInd |
| Federal Grant Audit Required | Yes (1) | FederalGrantAuditRequiredInd |
| Federal Grant Audit Performed | Yes (1) | FederalGrantAuditPerformedInd |
Schedule A IRS990ScheduleA
| Field | Value | IRS element (for citing) |
|---|---|---|
| Public Organization170 | Yes (X) | PublicOrganization170Ind |
Gifts Grants Contri Rcvd170 GiftsGrantsContriRcvd170Grp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Current Tax Year Minus4 Years | $28,581,224 | CurrentTaxYearMinus4YearsAmt |
| Current Tax Year Minus3 Years | $18,909,147 | CurrentTaxYearMinus3YearsAmt |
| Current Tax Year Minus2 Years | $20,369,605 | CurrentTaxYearMinus2YearsAmt |
| Current Tax Year Minus1 Year | $18,834,892 | CurrentTaxYearMinus1YearAmt |
| Current Tax Year | $15,124,954 | CurrentTaxYearAmt |
| Total | $101,819,822 | TotalAmt |
Total Calendar Year170 TotalCalendarYear170Grp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Current Tax Year Minus4 Years | $28,581,224 | CurrentTaxYearMinus4YearsAmt |
| Current Tax Year Minus3 Years | $18,909,147 | CurrentTaxYearMinus3YearsAmt |
| Current Tax Year Minus2 Years | $20,369,605 | CurrentTaxYearMinus2YearsAmt |
| Current Tax Year Minus1 Year | $18,834,892 | CurrentTaxYearMinus1YearAmt |
| Current Tax Year | $15,124,954 | CurrentTaxYearAmt |
| Total | $101,819,822 | TotalAmt |
| Field | Value | IRS element (for citing) |
|---|---|---|
| Substantial Contributors Tot | $12,014,282 | SubstantialContributorsTotAmt |
| Public Support Total170 | $89,805,540 | PublicSupportTotal170Amt |
Gross Investment Income170 GrossInvestmentIncome170Grp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Current Tax Year Minus4 Years | $266,329 | CurrentTaxYearMinus4YearsAmt |
| Current Tax Year Minus3 Years | $299,873 | CurrentTaxYearMinus3YearsAmt |
| Current Tax Year Minus2 Years | $88 | CurrentTaxYearMinus2YearsAmt |
| Current Tax Year Minus1 Year | $430,345 | CurrentTaxYearMinus1YearAmt |
| Current Tax Year | $482,518 | CurrentTaxYearAmt |
| Total | $1,479,153 | TotalAmt |
Other Income170 OtherIncome170Grp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Current Tax Year Minus4 Years | $28,735 | CurrentTaxYearMinus4YearsAmt |
| Current Tax Year Minus3 Years | $11,325 | CurrentTaxYearMinus3YearsAmt |
| Current Tax Year Minus2 Years | $125,457 | CurrentTaxYearMinus2YearsAmt |
| Current Tax Year Minus1 Year | $53,550 | CurrentTaxYearMinus1YearAmt |
| Current Tax Year | $33,648 | CurrentTaxYearAmt |
| Total | $252,715 | TotalAmt |
| Field | Value | IRS element (for citing) |
|---|---|---|
| Total Support | $103,551,690 | TotalSupportAmt |
| Public Support CY170 | 0.86730 | PublicSupportCY170Pct |
| Public Support PY170 | 0.98550 | PublicSupportPY170Pct |
| Thirty Thr Pct Suprt Tests CY170 | Yes (X) | ThirtyThrPctSuprtTestsCY170Ind |
Schedule B IRS990ScheduleB
Contributor Information ContributorInformationGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Contributor | RESTRICTED | ContributorNum |
Contributor Business Name ContributorBusinessName
| Field | Value | IRS element (for citing) |
|---|---|---|
| Business Name Line1 | RESTRICTED | BusinessNameLine1 |
Contributor US Address ContributorUSAddress
| Field | Value | IRS element (for citing) |
|---|---|---|
| Address Line1 | RESTRICTED | AddressLine1 |
| Address Line2 | RESTRICTED | AddressLine2 |
| City | RESTRICTED | City |
| State | RESTRICTED | State |
| ZIP Code | RESTRICTED | ZIPCode |
| Field | Value | IRS element (for citing) |
|---|---|---|
| Total Contributions | RESTRICTED | TotalContributionsAmt |
Schedule C IRS990ScheduleC
Total Grassroots Lobbying TotalGrassrootsLobbyingGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Filing Organizations Total | $60,808 | FilingOrganizationsTotalAmt |
Total Direct Lobbying TotalDirectLobbyingGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Filing Organizations Total | $301,384 | FilingOrganizationsTotalAmt |
Total Lobbying Expend TotalLobbyingExpendGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Filing Organizations Total | $362,192 | FilingOrganizationsTotalAmt |
Other Exempt Purpose Expend OtherExemptPurposeExpendGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Filing Organizations Total | $16,151,990 | FilingOrganizationsTotalAmt |
Total Exempt Purpose Expend TotalExemptPurposeExpendGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Filing Organizations Total | $16,514,182 | FilingOrganizationsTotalAmt |
Lobbying Nontaxable Amount LobbyingNontaxableAmountGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Filing Organizations Total | $975,709 | FilingOrganizationsTotalAmt |
Grassroots Nontaxable GrassrootsNontaxableGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Filing Organizations Total | $243,927 | FilingOrganizationsTotalAmt |
Tot Lbbyng Grassroot Mns Non Tx TotLbbyngGrassrootMnsNonTxGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Filing Organizations Total | $0 | FilingOrganizationsTotalAmt |
Tot Lbby Expend Mns Lbbyng Non Tx TotLbbyExpendMnsLbbyngNonTxGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Filing Organizations Total | $0 | FilingOrganizationsTotalAmt |
Avg Lobbying Nontaxable Amount AvgLobbyingNontaxableAmountGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Current Year Minus3 | $1,000,000 | CurrentYearMinus3Amt |
| Current Year Minus2 | $1,000,000 | CurrentYearMinus2Amt |
| Current Year Minus1 | $949,067 | CurrentYearMinus1Amt |
| Current Year | $975,709 | CurrentYearAmt |
| Total | $3,924,776 | TotalAmt |
| Field | Value | IRS element (for citing) |
|---|---|---|
| Lobbying Ceiling | $5,887,164 | LobbyingCeilingAmt |
Avg Total Lobbying Expend AvgTotalLobbyingExpendGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Current Year Minus3 | $186,571 | CurrentYearMinus3Amt |
| Current Year Minus2 | $411,729 | CurrentYearMinus2Amt |
| Current Year Minus1 | $253,548 | CurrentYearMinus1Amt |
| Current Year | $362,192 | CurrentYearAmt |
| Total | $1,214,040 | TotalAmt |
Avg Grassroots Nontaxable AvgGrassrootsNontaxableGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Current Year Minus3 | $250,000 | CurrentYearMinus3Amt |
| Current Year Minus2 | $250,000 | CurrentYearMinus2Amt |
| Current Year Minus1 | $237,267 | CurrentYearMinus1Amt |
| Current Year | $243,927 | CurrentYearAmt |
| Total | $981,194 | TotalAmt |
| Field | Value | IRS element (for citing) |
|---|---|---|
| Grassroots Ceiling | $1,471,791 | GrassrootsCeilingAmt |
Avg Grassroots Lobbying Expend AvgGrassrootsLobbyingExpendGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Current Year Minus3 | $46,276 | CurrentYearMinus3Amt |
| Current Year Minus2 | $49,458 | CurrentYearMinus2Amt |
| Current Year Minus1 | $13,165 | CurrentYearMinus1Amt |
| Current Year | $60,808 | CurrentYearAmt |
| Total | $169,707 | TotalAmt |
Schedule D IRS990ScheduleD
CY Endwmt Fund CYEndwmtFundGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Beginning Year Balance | $4,257,574 | BeginningYearBalanceAmt |
| Investment Earnings Or Losses | $257,258 | InvestmentEarningsOrLossesAmt |
| Other Expenditures | $34,760 | OtherExpendituresAmt |
| End Year Balance | $4,480,072 | EndYearBalanceAmt |
CY Minus1 Yr Endwmt Fund CYMinus1YrEndwmtFundGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Beginning Year Balance | $4,349,419 | BeginningYearBalanceAmt |
| Investment Earnings Or Losses | -$50,705 | InvestmentEarningsOrLossesAmt |
| Other Expenditures | -$41,140 | OtherExpendituresAmt |
| End Year Balance | $4,257,574 | EndYearBalanceAmt |
CY Minus2 Yr Endwmt Fund CYMinus2YrEndwmtFundGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Beginning Year Balance | $4,896,037 | BeginningYearBalanceAmt |
| Investment Earnings Or Losses | -$546,368 | InvestmentEarningsOrLossesAmt |
| Other Expenditures | -$250 | OtherExpendituresAmt |
| End Year Balance | $4,349,919 | EndYearBalanceAmt |
CY Minus3 Yr Endwmt Fund CYMinus3YrEndwmtFundGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Beginning Year Balance | $6,334,076 | BeginningYearBalanceAmt |
| Investment Earnings Or Losses | $781,076 | InvestmentEarningsOrLossesAmt |
| Other Expenditures | $2,219,115 | OtherExpendituresAmt |
| End Year Balance | $4,896,037 | EndYearBalanceAmt |
CY Minus4 Yr Endwmt Fund CYMinus4YrEndwmtFundGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Beginning Year Balance | $6,627,103 | BeginningYearBalanceAmt |
| Investment Earnings Or Losses | -$257,981 | InvestmentEarningsOrLossesAmt |
| Other Expenditures | $35,046 | OtherExpendituresAmt |
| End Year Balance | $6,328,108 | EndYearBalanceAmt |
| Field | Value | IRS element (for citing) |
|---|---|---|
| Prmnnt Endowment Balance EOY | 1.00000 | PrmnntEndowmentBalanceEOYPct |
| Endowments Held Unrelated Org | 0 | EndowmentsHeldUnrelatedOrgInd |
| Endowments Held Related Org | 0 | EndowmentsHeldRelatedOrgInd |
Equipment EquipmentGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Other Cost Or Other Basis | $579,051 | OtherCostOrOtherBasisAmt |
| Depreciation | $551,527 | DepreciationAmt |
| Book Value | $27,524 | BookValueAmt |
| Field | Value | IRS element (for citing) |
|---|---|---|
| Total Book Value Land Buildings | $27,524 | TotalBookValueLandBuildingsAmt |
Other Assets Org OtherAssetsOrgGrp (5 entries)
| DescDesc | Book ValueBookValueAmt |
|---|---|
| DEPOSITS | $5,587 |
| AFFILIATE DUES | $71,208 |
| BENEFICIAL INTEREST IN PERPETUAL TRUST | $3,353,721 |
| OPERATING LEASE RIGHT OF USE ASSETS | $32,251 |
| DUE FROM AFFILIATES | $260,367 |
| Field | Value | IRS element (for citing) |
|---|---|---|
| Total Book Value Other Assets | $3,723,134 | TotalBookValueOtherAssetsAmt |
Other Liabilities Org OtherLiabilitiesOrgGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Desc | OPERATING LEASE RIGHT OF USE LIABILITIES | Desc |
| Amt | $32,297 | Amt |
| Field | Value | IRS element (for citing) |
|---|---|---|
| Total Liability | $32,297 | TotalLiabilityAmt |
| Footnote Text | Yes (X) | FootnoteTextInd |
Supplemental Information Detail SupplementalInformationDetail (3 entries)
| Form And Line ReferenceFormAndLineReferenceDesc | ExplanationExplanationTxt |
|---|---|
| PART V, LINE 4: | THE ENDOWMENT FUNDS INCLUDE PERPETUAL FUNDS HELD BY OUTSIDE INVESTMENT COMPANIES. INCOME IS EITHER FOR THE UNRESTRICTED USE OF THE FOUNDATION OR FOR RESEARCH PURPOSES. |
| PART X, LINE 2: | THE FOUNDATION AND ITS CONSOLIDATED NONPROFIT AFFILIATES ARE CHARITABLE ORGANIZATIONS UNDER SECTION 501(C)(3) OF THE INTERNAL REVENUE CODE AND, AS SUCH, ARE EXEMPT FROM FEDERAL AND STATE INCOME TAXES. EPILEPSY VENTURES FUND IS CONSIDERED A DISREGARDED ENTITY, AND IS THEREFORE NOT REQUIRED TO FILE A SEPARATE INCOME TAX RETURN AS THE REVENUE AND EXPENSES ARE REFLECTED ON THE FOUNDATION'S TAX RETURN. INCOME THAT IS NOT RELATED TO EXEMPT PURPOSES, LESS APPLICABLE DEDUCTIONS, IS SUBJECT TO FEDERAL AND STATE INCOME TAXES. THE FOUNDATION HAD NO UNRELATED BUSINESS INCOME FOR THE YEAR. ACCORDINGLY, NO PROVISION FOR INCOME TAXES IS REFLECTED IN THESE STATEMENTS. THE FOUNDATION'S FEDERAL EXEMPT ORGANIZATION TAX RETURNS ARE SUBJECT TO EXAMINATION BY THE INTERNAL REVENUE SERVICE, GENERALLY FOR A PERIOD OF THREE YEARS AFTER THE RETURNS ARE FILED. |
| SCHEDULE D, PART XIII | THE CHANGE IN SPLIT INTEREST WAS ELIMINATED FOR TAX REPORTING. |
Schedule F IRS990ScheduleF
| Field | Value | IRS element (for citing) |
|---|---|---|
| Grant Records Maintained | Yes (1) | GrantRecordsMaintainedInd |
Account Activities Outside US AccountActivitiesOutsideUSGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Region | NORTH AMERICA | RegionTxt |
| Offices | 0 | OfficesCnt |
| Employee | 0 | EmployeeCnt |
| Type Of Activities Conducted | PROGRAM SERVICES | TypeOfActivitiesConductedTxt |
| Specific Services Provided | CONSULTING | SpecificServicesProvidedTxt |
| Region Total Expenditures | $215,000 | RegionTotalExpendituresAmt |
| Field | Value | IRS element (for citing) |
|---|---|---|
| Subtotal Offices | 0 | SubtotalOfficesCnt |
| Subtotal Employees | 0 | SubtotalEmployeesCnt |
| Continuation Total Office | 0 | ContinuationTotalOfficeCnt |
| Continuation Total Employee | 0 | ContinuationTotalEmployeeCnt |
| Total Office | 0 | TotalOfficeCnt |
| Total Employee | 0 | TotalEmployeeCnt |
| Subtotal Spent | $215,000 | SubtotalSpentAmt |
| Continuation Spent | $0 | ContinuationSpentAmt |
| Total Spent | $215,000 | TotalSpentAmt |
Grants To Org Outside US GrantsToOrgOutsideUSGrp (2 entries)
| RegionRegionTxt | Purpose Of GrantPurposeOfGrantTxt | Cash GrantCashGrantAmt | Non Cash AssistanceNonCashAssistanceAmt |
|---|---|---|---|
| EUROPE (INCLUDING ICELAND & GREENLAND) | 2023 SHARK TANK WINNER | $100,000 | $0 |
| EUROPE (INCLUDING ICELAND & GREENLAND) | 2023 SHARK TANK WINNER | $50,000 | $0 |
| Field | Value | IRS element (for citing) |
|---|---|---|
| Transfer To Foreign Corp | 0 | TransferToForeignCorpInd |
| Interest In Foreign Trust | 0 | InterestInForeignTrustInd |
| Foreign Corp Ownership | 0 | ForeignCorpOwnershipInd |
| Passive Foreign Investmest Co | 0 | PassiveForeignInvestmestCoInd |
| Foreign Partnership | 0 | ForeignPartnershipInd |
| Boycott Countries | 0 | BoycottCountriesInd |
Supplemental Information Detail SupplementalInformationDetail
| Field | Value | IRS element (for citing) |
|---|---|---|
| Form And Line Reference | PART I, LINE 2: | FormAndLineReferenceDesc |
| Explanation | THE ORGANIZATION GENERALLY REQUIRES DOCUMENTATION OF EXPENDITURES AND ACHIEVEMENT OF GOALS OF GRANT. | ExplanationTxt |
Schedule G IRS990ScheduleG
| Field | Value | IRS element (for citing) |
|---|---|---|
| Mail Solicitations | Yes (X) | MailSolicitationsInd |
| Email Solicitations | Yes (X) | EmailSolicitationsInd |
| Phone Solicitations | Yes (X) | PhoneSolicitationsInd |
| In Person Solicitations | Yes (X) | InPersonSolicitationsInd |
| Solicitation Of Non Govt Grants | Yes (X) | SolicitationOfNonGovtGrantsInd |
| Solicitation Of Govt Grants | Yes (X) | SolicitationOfGovtGrantsInd |
| Special Fundraising Events | Yes (X) | SpecialFundraisingEventsInd |
| Agrmt Prof Fundraising Acty | Yes (1) | AgrmtProfFundraisingActyInd |
Fundraiser Activity Info FundraiserActivityInfoGrp
Organization Business Name OrganizationBusinessName
| Field | Value | IRS element (for citing) |
|---|---|---|
| Business Name Line1 | HH GLOBAL | BusinessNameLine1Txt |
US Address USAddress
| Field | Value | IRS element (for citing) |
|---|---|---|
| Address Line1 | 203 N LASALLE | AddressLine1Txt |
| City | CHICAGO | CityNm |
| State Abbreviation | IL | StateAbbreviationCd |
| ZIP | 60601 | ZIPCd |
| Field | Value | IRS element (for citing) |
|---|---|---|
| Activity | FUNDRAISING CONSULTANT | ActivityTxt |
| Fundraiser Control Of Funds | 0 | FundraiserControlOfFundsInd |
| Gross Receipts | $807,445 | GrossReceiptsAmt |
| Retained By Contractor | $236,421 | RetainedByContractorAmt |
| Net To Organization | $571,024 | NetToOrganizationAmt |
| Field | Value | IRS element (for citing) |
|---|---|---|
| Total Gross Receipts | $807,445 | TotalGrossReceiptsAmt |
| Total Retained By Contractors | $236,421 | TotalRetainedByContractorsAmt |
| Total Net To Organization | $571,024 | TotalNetToOrganizationAmt |
| Licensed States | AL | LicensedStatesCd |
| Licensed States | AK | LicensedStatesCd |
| Licensed States | AR | LicensedStatesCd |
| Licensed States | CA | LicensedStatesCd |
| Licensed States | CO | LicensedStatesCd |
| Licensed States | CT | LicensedStatesCd |
| Licensed States | DC | LicensedStatesCd |
| Licensed States | FL | LicensedStatesCd |
| Licensed States | GA | LicensedStatesCd |
| Licensed States | HI | LicensedStatesCd |
| Licensed States | IL | LicensedStatesCd |
| Licensed States | KS | LicensedStatesCd |
| Licensed States | KY | LicensedStatesCd |
| Licensed States | ME | LicensedStatesCd |
| Licensed States | MD | LicensedStatesCd |
| Licensed States | MA | LicensedStatesCd |
| Licensed States | MI | LicensedStatesCd |
| Licensed States | MN | LicensedStatesCd |
| Licensed States | MS | LicensedStatesCd |
| Licensed States | MO | LicensedStatesCd |
| Licensed States | NV | LicensedStatesCd |
| Licensed States | NH | LicensedStatesCd |
| Licensed States | NJ | LicensedStatesCd |
| Licensed States | NM | LicensedStatesCd |
| Licensed States | NY | LicensedStatesCd |
| Licensed States | NC | LicensedStatesCd |
| Licensed States | OH | LicensedStatesCd |
| Licensed States | OK | LicensedStatesCd |
| Licensed States | OR | LicensedStatesCd |
| Licensed States | PA | LicensedStatesCd |
| Licensed States | RI | LicensedStatesCd |
| Licensed States | SC | LicensedStatesCd |
| Licensed States | TN | LicensedStatesCd |
| Licensed States | UT | LicensedStatesCd |
| Licensed States | VA | LicensedStatesCd |
| Licensed States | WA | LicensedStatesCd |
| Licensed States | WV | LicensedStatesCd |
| Licensed States | WI | LicensedStatesCd |
Fundraising Event Information FundraisingEventInformationGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Event1 | WALK TO END EPILEPSY | Event1Nm |
| Gross Receipts Event1 | $924,709 | GrossReceiptsEvent1Amt |
| Charitable Contri Event1 | $924,709 | CharitableContriEvent1Amt |
| Rent Facility Costs Event1 | $6,247 | RentFacilityCostsEvent1Amt |
| Food And Beverage Event1 | $1,294 | FoodAndBeverageEvent1Amt |
| Entertainment Event1 | $2,050 | EntertainmentEvent1Amt |
| Other Direct Expenses Event1 | $28,881 | OtherDirectExpensesEvent1Amt |
| Event2 | GALA | Event2Nm |
| Gross Receipts Event2 | $296,373 | GrossReceiptsEvent2Amt |
| Charitable Contri Event2 | $296,373 | CharitableContriEvent2Amt |
| Rent Facility Costs Event2 | $33,021 | RentFacilityCostsEvent2Amt |
| Food And Beverage Event2 | $1,343 | FoodAndBeverageEvent2Amt |
| Entertainment Event2 | $52,750 | EntertainmentEvent2Amt |
| Other Direct Expenses Event2 | $22,763 | OtherDirectExpensesEvent2Amt |
| Other Events Total | 20 | OtherEventsTotalCnt |
| Gross Receipts Other Events | $961,690 | GrossReceiptsOtherEventsAmt |
| Charitable Contri Other Events | $961,690 | CharitableContriOtherEventsAmt |
| Oth Direct Expnss Other Events | $403,214 | OthDirectExpnssOtherEventsAmt |
| Gross Receipts Total | $2,182,772 | GrossReceiptsTotalAmt |
| Charitable Contributions Tot | $2,182,772 | CharitableContributionsTotAmt |
| Rent Fclty Costs Total Events | $39,268 | RentFcltyCostsTotalEventsAmt |
| Food And Beverage Total Events | $2,637 | FoodAndBeverageTotalEventsAmt |
| Entertainment Total Events | $54,800 | EntertainmentTotalEventsAmt |
| Oth Direct Expnss Total Events | $454,858 | OthDirectExpnssTotalEventsAmt |
| Direct Expense Summary Events | $551,563 | DirectExpenseSummaryEventsAmt |
| Net Income Summary | -$551,563 | NetIncomeSummaryAmt |
Schedule I IRS990ScheduleI
| Field | Value | IRS element (for citing) |
|---|---|---|
| Grant Records Maintained | Yes (1) | GrantRecordsMaintainedInd |
Recipient Table RecipientTable (3 entries)
| Address Line1USAddress/AddressLine1Txt | CityUSAddress/CityNm | State AbbreviationUSAddress/StateAbbreviationCd | ZIPUSAddress/ZIPCd | Recipient EINRecipientEIN | IRC SectionIRCSectionDesc | Cash GrantCashGrantAmt | Non Cash AssistanceNonCashAssistanceAmt | Purpose Of GrantPurposeOfGrantTxt |
|---|---|---|---|---|---|---|---|---|
| PHASE FOUR FILM LLC | ||||||||
| 12605 S VAN NESS AVE | HAWTHORNE | CA | 90250 | 883783127 | 501(C)(3) | $150,000 | $0 | SUPPORT MEDIA AND PUBLIC AWARENESS FOR SOCIALLY MINDED ORGANIZATIONS |
| AMERICAN EPILEPSY SOCIETY | ||||||||
| 135 S LASSALE ST STE 2850 | CHICAGO | IL | 60603 | 046112600 | 501(C)(3) | $50,000 | $0 | SUPPORT A YOUNG RESEARCHER IN THE FIELD OF EPILEPSY |
| AMERICAN BRAIN FOUNDATION | ||||||||
| 201 CHICAGO AVENUE SOUTH | MINNEAPOLIS | MN | 55415 | 411717098 | 501(C)(3) | $49,917 | $0 | SUPPORT THE CLINICAL RESEARCH TRAINING SCHOLARSHIP |
Supplemental Information Detail SupplementalInformationDetail
| Field | Value | IRS element (for citing) |
|---|---|---|
| Form And Line Reference | PART I, LINE 2: | FormAndLineReferenceDesc |
| Explanation | THE ORGANIZATION GENERALLY REQUIRES DOCUMENTATION OF EXPENDITURES AND ACHIEVEMENT OF GOALS OF GRANTS. | ExplanationTxt |
Schedule J IRS990ScheduleJ
| Field | Value | IRS element (for citing) |
|---|---|---|
| Compensation Committee | Yes (X) | CompensationCommitteeInd |
| Independent Consultant | Yes (X) | IndependentConsultantInd |
| Form990 Of Other Organizations | Yes (X) | Form990OfOtherOrganizationsInd |
| Written Employment Contract | Yes (X) | WrittenEmploymentContractInd |
| Compensation Survey | Yes (X) | CompensationSurveyInd |
| Board Or Committee Approval | Yes (X) | BoardOrCommitteeApprovalInd |
| Severance Payment | Yes (1) | SeverancePaymentInd |
| Supplemental Nonqual Rtr Plan | 0 | SupplementalNonqualRtrPlanInd |
| Equity Based Comp Arrngm | 0 | EquityBasedCompArrngmInd |
| Comp Based On Revenue Of Flng Org | 0 | CompBasedOnRevenueOfFlngOrgInd |
| Comp Bsd On Rev Related Orgs | 0 | CompBsdOnRevRelatedOrgsInd |
| Comp Bsd Net Earns Flng Org | 0 | CompBsdNetEarnsFlngOrgInd |
| Comp Bsd Net Earns Rltd Orgs | 0 | CompBsdNetEarnsRltdOrgsInd |
| Any Non Fixed Payments | 0 | AnyNonFixedPaymentsInd |
| Initial Contract Exception | 0 | InitialContractExceptionInd |
Rltd Org Officer Trst Key Empl RltdOrgOfficerTrstKeyEmplGrp (9 entries)
| TitleTitleTxt | Base Compensation Filing OrgBaseCompensationFilingOrgAmt | Compensation Based On Rltd OrgsCompensationBasedOnRltdOrgsAmt | Bonus Filing OrganizationBonusFilingOrganizationAmount | Bonus Related OrganizationsBonusRelatedOrganizationsAmt | Other Compensation Filing OrgOtherCompensationFilingOrgAmt | Other Compensation Rltd OrgsOtherCompensationRltdOrgsAmt | Deferred Compensation Flng OrgDeferredCompensationFlngOrgAmt | Deferred Comp Rltd OrgsDeferredCompRltdOrgsAmt | Nontaxable Benefits Filing OrgNontaxableBenefitsFilingOrgAmt | Nontaxable Benefits Rltd OrgsNontaxableBenefitsRltdOrgsAmt | Total Compensation Filing OrgTotalCompensationFilingOrgAmt | Total Compensation Rltd OrgsTotalCompensationRltdOrgsAmt | Comp Report Prior990 Filing OrgCompReportPrior990FilingOrgAmt | Comp Report Prior990 Rltd OrgsCompReportPrior990RltdOrgsAmt |
|---|---|---|---|---|---|---|---|---|---|---|---|---|---|---|
| RAHEL ROSNER | ||||||||||||||
| CFOO (THROUGH 9/24) | $266,448 | $0 | $35,000 | $0 | $0 | $0 | $0 | $0 | $35,654 | $0 | $337,102 | $0 | $0 | $0 |
| BRANDY FUREMAN | ||||||||||||||
| CHIEF OUTCOMES OFFICER | $237,896 | $0 | $15,000 | $0 | $0 | $0 | $0 | $0 | $32,370 | $0 | $285,266 | $0 | $0 | $0 |
| LAURA WEIDNER | ||||||||||||||
| CHIEF ADVOCACY AND GOV RELATIONS OFF | $197,862 | $0 | $3,500 | $0 | $0 | $0 | $0 | $0 | $22,502 | $0 | $223,864 | $0 | $0 | $0 |
| NATHAN DEVAULT | ||||||||||||||
| VP, MARKETING AND COMMUNICATIONS | $168,195 | $0 | $3,500 | $0 | $0 | $0 | $0 | $0 | $32,626 | $0 | $204,321 | $0 | $0 | $0 |
| BERNICE LEE | ||||||||||||||
| CHIEF EXECUTIVE OFFICER (BEG 7/23) | $160,416 | $0 | $21,857 | $0 | $0 | $0 | $0 | $0 | $9,445 | $0 | $191,718 | $0 | $0 | $0 |
| KATHLEEN FARRELL | ||||||||||||||
| VP PUBLIC HEALTH & OUTCOMES | $131,998 | $0 | $3,500 | $0 | $0 | $0 | $0 | $0 | $43,142 | $0 | $178,640 | $0 | $0 | $0 |
| DANIELLE SOLOMON | ||||||||||||||
| VP, HUMAN RESOURCES | $152,125 | $0 | $3,500 | $0 | $0 | $0 | $0 | $0 | $19,030 | $0 | $174,655 | $0 | $0 | $0 |
| GREGG FORT | ||||||||||||||
| VP REGIONAL TEAMS | $138,775 | $0 | $3,500 | $0 | $0 | $0 | $0 | $0 | $21,533 | $0 | $163,808 | $0 | $0 | $0 |
| JACQUELINE AKER | ||||||||||||||
| SENIOR DIRECTOR OF PUBLIC RELATIONS | $123,035 | $0 | $1,500 | $0 | $0 | $0 | $0 | $0 | $28,274 | $0 | $152,809 | $0 | $0 | $0 |
Supplemental Information Detail SupplementalInformationDetail
| Field | Value | IRS element (for citing) |
|---|---|---|
| Form And Line Reference | PART I, LINE 4A | FormAndLineReferenceDesc |
| Explanation | RAHEL ROSNER RECEIVED A SEVERANCE PAYMENT OF $34,435 | ExplanationTxt |
Schedule M IRS990ScheduleM
Clothing And Household Goods ClothingAndHouseholdGoodsGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Non Cash Checkbox | Yes (X) | NonCashCheckboxInd |
| Noncash Contributions Rpt F990 | $690,698 | NoncashContributionsRptF990Amt |
| Method Of Determining Revenues | FMV | MethodOfDeterminingRevenuesTxt |
Securities Publicly Traded SecuritiesPubliclyTradedGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Non Cash Checkbox | Yes (X) | NonCashCheckboxInd |
| Contribution | 12 | ContributionCnt |
| Noncash Contributions Rpt F990 | $39,977 | NoncashContributionsRptF990Amt |
| Method Of Determining Revenues | FMV | MethodOfDeterminingRevenuesTxt |
| Field | Value | IRS element (for citing) |
|---|---|---|
| Any Property That Must Be Held | 0 | AnyPropertyThatMustBeHeldInd |
| Review Process Unusual NC Gifts | Yes (1) | ReviewProcessUnusualNCGiftsInd |
| Third Parties Used | Yes (1) | ThirdPartiesUsedInd |
Supplemental Information Detail SupplementalInformationDetail
| Field | Value | IRS element (for citing) |
|---|---|---|
| Form And Line Reference | PART I, LINE 32B: | FormAndLineReferenceDesc |
| Explanation | A SEPARATE COMPANY COLLECTS DONATED ITEMS ON BEHALF OF THE ORGANIZATION AND SELLS SUCH ITEMS ON BEHALF OF THE ORGANIZATION. THE COMPANY THEN REMITS THE FUNDS RECEIVED FROM THE SALE OF THESE ITEMS TO THE ORGANIZATION. | ExplanationTxt |
Schedule O IRS990ScheduleO
Supplemental Information Detail SupplementalInformationDetail (7 entries)
| Form And Line ReferenceFormAndLineReferenceDesc | ExplanationExplanationTxt |
|---|---|
| FORM 990, PART VI, SECTION A, LINE 3 | FROM OCTOBER 2022 THROUGH JUNE 2023, THE ORGANIZATION ENGAGED A CONSULTANT TO PERFORM THE DUTIES OF INTERIM CEO DURING CEO TRANSITION. |
| FORM 990, PART VI, SECTION B, LINE 11B | THE FORM 990 WAS PREPARED BY THE OUTSIDE ACCOUNTANTS AND AN ELECTRONIC COPY OF THE DRAFT FORM 990 WAS SENT TO ALL BOARD MEMBERS BEFORE FILING. |
| FORM 990, PART VI, SECTION B, LINE 12C | THE EPILEPSY FOUNDATION HAS A CONFLICT OF INTEREST POLICY AS PART OF ITS CODE OF ETHICS THAT IS SHARED WITH ALL VOLUNTEERS, BOARD MEMBERS, EMPLOYEES, AND AFFILIATES. BOARD MEMBERS AND STAFF ANNUALLY COMPLETE A WRITTEN CONFLICT OF INTEREST DISCLOSURE STATEMENT, WHICH IS KEPT ON FILE AT FOUNDATION HEADQUARTERS. FOUNDATION POLICY REQUIRES ANYONE WITH A CONFLICT OF INTEREST TO REVEAL THE CONFLICT DURING ANY DISCUSSIONS, DECISIONS, OR ACTIONS THAT TAKE PLACE IN WHICH A CONFLICT MAY ARISE, AND TO RECUSE HIM OR HERSELF FROM THE DECISION MAKING OR ACTION ITEM. THE EXECUTIVE COMMITTEE MAINTAINS AND REVIEWS THE CONFLICT OF INTEREST DISCLOSURE STATEMENTS FROM BOARD MEMBERS. |
| FORM 990, PART VI, SECTION B, LINE 15 | EPILEPSY FOUNDATION HAS A COMPENSATION COMMITTEE THAT SETS COMPENSATION FOR THE PRESIDENT AND CEO. THE COMMITTEE ALSO REVIEWS AND APPROVES ALL COMPENSATION FOR C-SUITE EXECUTIVES (KEY EMPLOYEES). THE CEO IS HIRED AND COMPENSATION TERMS ARE SET BY A CONTRACT WHICH HAS BEEN DEVELOPED BY THE COMPENSATION COMMITTEE OF THE BOARD AND APPROVED BY THE BOARD OF DIRECTORS. THE COMPENSATION COMMITTEE IS MADE UP OF EPILEPSY FOUNDATION OFFICERS AND BOARD MEMBERS, ALL WHO ARE VOLUNTEERS, AND INCLUDES THE CEO AS A NONVOTING MEMBER. DURING THE PROCESS FOR CONTRACT DETERMINATION, THE CEO IS RECUSED FROM ALL MEETINGS OF THE COMPENSATION COMMITTEE THAT CONCERN HIS/HER CONTRACT TERMS. THE CHAIR OF THE FOUNDATION NEGOTIATES THE TERMS OF THE CONTRACT WITH THE CEO UNDER THE DIRECTION AND WITH APPROVAL OF TERMS ESTABLISHED BY THE COMPENSATION COMMITTEE OF THE BOARD. IN ORDER TO DETERMINE AN APPROPRIATE SALARY AND COMPENSATION, THE COMPENSATION COMMITTEE REVIEWS COMPARABLE DATA FROM THE WASHINGTON, DC METRO AREA FOR THE CEO POSITION, AS WELL AS DATA FROM THE NATIONAL HEALTH COUNCIL ON COMPENSATION OF CEOS FOR COMPARABLY SIZED AND SIMILARLY SITUATED NONPROFIT ENTITIES. SOURCES REVIEWED AT LAST CONTRACT NEGOTIATION FOR THE CEO INCLUDED THE NATIONAL HEALTH COUNCIL SURVEY DATA, THE AMERICAN SOCIETY OF ASSOCIATION EXECUTIVES SURVEY FOR THE WASHINGTON, DC METRO AREA, DATA FROM THE AMERICAN RESEARCH COMPANY'S GENERAL SURVEY, AND HEALTH AND DISEASE SEGMENT FOR ALL GEOGRAPHY, FOR THE DC METRO AREA. BASED UPON THIS DATA, A SALARY RANGE IS DETERMINED FOR THE CEO POSITION. MINUTES OF THE COMPENSATION COMMITTEE DELIBERATIONS AND ACTIONS CONCERNING COMPENSATION ARE KEPT AT THE FOUNDATION'S HEADQUARTERS EPILEPSY FOUNDATION OF AMERICA 52-0856660 OFFICE. IN ADDITION, THE SIGNED CONTRACT SETTING SALARY AND COMPENSATION AND ALL TERMS OF EMPLOYMENT FOR THE CEO ARE MAINTAINED IN THE FOUNDATION'S HEADQUARTERS. DOCUMENTATION OF THE DATA SOURCES, THE COMPARATIVE EVALUATIONS MADE, AND THE RESULTS OF THE COMPENSATION COMMITTEE DELIBERATIONS, AND MINUTES OF MEETINGS DURING EXECUTIVE SESSION ARE ALSO INCLUDED IN THESE FILES. ANNUAL REVIEW OF CEO PERFORMANCE IS DONE BY THE COMPENSATION COMMITTEE IN EXECUTIVE SESSION (WITHOUT THE CEO BEING PRESENT), WITH A FORMAL WRITTEN REVIEW REQUIRED. THIS PERFORMANCE REVIEW SERVES AS THE BASIS FOR AN ANNUAL BONUS FOR THE CEO, IF ANY, WITHIN THE TERMS OF THE CEO CONTRACT. |
| FORM 990, PART VI, SECTION C, LINE 19 | THE EPILEPSY FOUNDATION MAKES ITS GOVERNING DOCUMENTS, CONFLICT OF INTEREST POLICY, AND FINANCIAL STATEMENTS AVAILABLE TO THE PUBLIC UPON REQUEST. |
| FORM 990, PART IX, LINE 11G | CONSULTANTS: PROGRAM SERVICE EXPENSES 3,453,053. MANAGEMENT AND GENERAL EXPENSES 581,842. FUNDRAISING EXPENSES 431,943. TOTAL EXPENSES 4,466,838. |
| FORM 990, PART XI, LINE 9: | CHANGE IN SPLIT INTEREST 222,498. |
Schedule R IRS990ScheduleR
Id Disregarded Entities IdDisregardedEntitiesGrp
Disregarded Entity Name DisregardedEntityName
| Field | Value | IRS element (for citing) |
|---|---|---|
| Business Name Line1 | EPILEPSY VENTURES FUND LLC | BusinessNameLine1Txt |
US Address USAddress
| Field | Value | IRS element (for citing) |
|---|---|---|
| Address Line1 | 3540 CRAIN HIGHWAY STE 675 | AddressLine1Txt |
| City | BOWIE | CityNm |
| State Abbreviation | MD | StateAbbreviationCd |
| ZIP | 20716 | ZIPCd |
| Field | Value | IRS element (for citing) |
|---|---|---|
| Primary Activities | EPILEPSY INVESTMENTS | PrimaryActivitiesTxt |
| Legal Domicile State | DE | LegalDomicileStateCd |
Direct Controlling Entity Name DirectControllingEntityName
| Field | Value | IRS element (for citing) |
|---|---|---|
| Business Name Line1 | EPILEPSY FOUNDATION OF AMERICA | BusinessNameLine1Txt |
Id Related Tax Exempt Org IdRelatedTaxExemptOrgGrp (2 entries)
| Address Line1USAddress/AddressLine1Txt | CityUSAddress/CityNm | State AbbreviationUSAddress/StateAbbreviationCd | ZIPUSAddress/ZIPCd | EINEIN | Primary ActivitiesPrimaryActivitiesTxt | Legal Domicile StateLegalDomicileStateCd | Exempt Code SectionExemptCodeSectionTxt | Public Charity StatusPublicCharityStatusTxt | Business Name Line1DirectControllingEntityName/BusinessNameLine1Txt | Controlled OrganizationControlledOrganizationInd |
|---|---|---|---|---|---|---|---|---|---|---|
| EPILEPSY REASEARCH FOUNDATION | ||||||||||
| 3540 CRAIN HIGHWAY STE 675 | BOWIE | MD | 20716 | 562369930 | RESEARCH | MD | 501(C)(3) | LINE 12A, I | EPILEPSY FOUNDATION OF AMERICA | 0 |
| EPILEPSY SERVICES OF WEST CENTRAL FLORIDA | ||||||||||
| 1046 EAST BRANDON BOULEVARD STE 3 | BRANDON | FL | 33511 | 593151484 | RESEARCH | FL | 501(C)(3) | LINE 7 | EPILEPSY FOUNDATION OF AMERICA | 0 |
| Field | Value | IRS element (for citing) |
|---|---|---|
| Receipt Of Int Annts Rnts Rylts | 0 | ReceiptOfIntAnntsRntsRyltsInd |
| Gift Grnt Or Cap Contri To Oth Org | 0 | GiftGrntOrCapContriToOthOrgInd |
| Gift Grnt Cap Contri From Oth Org | 0 | GiftGrntCapContriFromOthOrgInd |
| Loans Or Guarantees To Other Org | 0 | LoansOrGuaranteesToOtherOrgInd |
| Loans Or Guarantees From Oth Org | 0 | LoansOrGuaranteesFromOthOrgInd |
| Div Related Organization | 0 | DivRelatedOrganizationInd |
| Asset Sale To Other Org | 0 | AssetSaleToOtherOrgInd |
| Asset Purchase From Other Org | 0 | AssetPurchaseFromOtherOrgInd |
| Asset Exchange | 0 | AssetExchangeInd |
| Rental Of Facilities To Oth Org | 0 | RentalOfFacilitiesToOthOrgInd |
| Rental Of Fclts From Oth Org | 0 | RentalOfFcltsFromOthOrgInd |
| Perform Of Services For Oth Org | 0 | PerformOfServicesForOthOrgInd |
| Perform Of Services By Other Org | 0 | PerformOfServicesByOtherOrgInd |
| Sharing Of Facilities | Yes (1) | SharingOfFacilitiesInd |
| Paid Employees Sharing | Yes (1) | PaidEmployeesSharingInd |
| Reimbursement Paid To Other Org | 0 | ReimbursementPaidToOtherOrgInd |
| Reimbursement Paid By Other Org | 0 | ReimbursementPaidByOtherOrgInd |
| Transfer To Other Org | 0 | TransferToOtherOrgInd |
| Transfer From Other Org | 0 | TransferFromOtherOrgInd |
Comments