CITIZENS UNITED FOR RESEARCH IN EPILEPSY: Form 990, tax year 2021
View the entire original 990 at ProPublica ↗
- Organization
- CITIZENS UNITED FOR RESEARCH IN EPILEPSY (EIN 36-4253176)
- Tax period
- 2021-01-01 to 2021-12-31
- Filed
- 2022-04-27
- IRS object ID
- 202201179349300335
- Schema version
- 2021v4.2
- Source
- Download XML · Original 990 at ProPublica
Every field in the e-filed return. Faint text is the IRS element name, for citing.
- Return header
- Form 990
- Schedule A
- Schedule B
- Schedule C
- Schedule D
- Schedule F
- Schedule G
- Schedule I
- Schedule J
- Schedule M
- Schedule O
Return header ReturnHeader
| Field | Value | IRS element (for citing) |
|---|---|---|
| Return | 2022-04-27T11:06:57-05:00 | ReturnTs |
| Tax Period End | 2021-12-31 | TaxPeriodEndDt |
Preparer Firm PreparerFirmGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Preparer Firm EIN | 521446779 | PreparerFirmEIN |
Preparer Firm Name PreparerFirmName
| Field | Value | IRS element (for citing) |
|---|---|---|
| Business Name Line1 | JOHNSON LAMBERT LLP | BusinessNameLine1Txt |
Preparer US Address PreparerUSAddress
| Field | Value | IRS element (for citing) |
|---|---|---|
| Address Line1 | 4242 SIX FORKS ROAD SUITE 1500 | AddressLine1Txt |
| City | RALEIGH | CityNm |
| State Abbreviation | NC | StateAbbreviationCd |
| ZIP | 27609 | ZIPCd |
| Field | Value | IRS element (for citing) |
|---|---|---|
| Return Type | 990 | ReturnTypeCd |
| Tax Period Begin | 2021-01-01 | TaxPeriodBeginDt |
Filer Filer
| Field | Value | IRS element (for citing) |
|---|---|---|
| EIN | 364253176 | EIN |
Business Name BusinessName
| Field | Value | IRS element (for citing) |
|---|---|---|
| Business Name Line1 | CITIZENS UNITED FOR RESEARCH IN EPILEPSY | BusinessNameLine1Txt |
| Field | Value | IRS element (for citing) |
|---|---|---|
| Business Name Control | CITI | BusinessNameControlTxt |
| Phone | 3122551801 | PhoneNum |
US Address USAddress
| Field | Value | IRS element (for citing) |
|---|---|---|
| Address Line1 | 420 N WABASH AVE 650 | AddressLine1Txt |
| City | CHICAGO | CityNm |
| State Abbreviation | IL | StateAbbreviationCd |
| ZIP | 60611 | ZIPCd |
Business Officer BusinessOfficerGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Person | BETH LEWIN DEAN | PersonNm |
| Person Title | CHIEF EXECUTIVE OFFICER | PersonTitleTxt |
| Phone | 3122551801 | PhoneNum |
| Signature | 2022-04-27 | SignatureDt |
| Discuss With Paid Preparer | Yes (1) | DiscussWithPaidPreparerInd |
Signing Officer SigningOfficerGrp
Person Full Name PersonFullName
| Field | Value | IRS element (for citing) |
|---|---|---|
| Person First | BETH | PersonFirstNm |
| Person Last | LEWIN DEAN | PersonLastNm |
| Field | Value | IRS element (for citing) |
|---|---|---|
| SSN | 999009999 | SSN |
Preparer Person PreparerPersonGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Preparer Person | J CALVIN MARKS | PreparerPersonNm |
| PTIN | P01226973 | PTIN |
| Phone | 9197196400 | PhoneNum |
Additional Filer Information AdditionalFilerInformation
Trusted Customer TrustedCustomerGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Trusted Customer | 3 | TrustedCustomerCd |
| Authentication Assurance Level | AAL1 | AuthenticationAssuranceLevelCd |
| Identity Assurance Level | IAL1 | IdentityAssuranceLevelCd |
| Field | Value | IRS element (for citing) |
|---|---|---|
| Tax | 2021 | TaxYr |
| Build TS | 2022-09-23 18:48:47Z | BuildTS |
Form 990 IRS990
Doing Business As Name DoingBusinessAsName
| Field | Value | IRS element (for citing) |
|---|---|---|
| Business Name Line1 | CURE EPILEPSY | BusinessNameLine1Txt |
| Field | Value | IRS element (for citing) |
|---|---|---|
| Principal Officer | BETH LEWIN DEAN | PrincipalOfficerNm |
US Address USAddress
| Field | Value | IRS element (for citing) |
|---|---|---|
| Address Line1 | 420 N WABASH AVE 650 | AddressLine1Txt |
| City | CHICAGO | CityNm |
| State Abbreviation | IL | StateAbbreviationCd |
| ZIP | 60611 | ZIPCd |
| Field | Value | IRS element (for citing) |
|---|---|---|
| Gross Receipts | $6,298,913 | GrossReceiptsAmt |
| Group Return For Affiliates | 0 | GroupReturnForAffiliatesInd |
| Organization501c3 | Yes (X) | Organization501c3Ind |
| Website Address | WWW.CUREEPILEPSY.ORG | WebsiteAddressTxt |
| Type Of Organization Corp | Yes (X) | TypeOfOrganizationCorpInd |
| Formation | 1998 | FormationYr |
| Legal Domicile State | IL | LegalDomicileStateCd |
| Activity Or Mission | TO FIND A CURE FOR EPILEPSY BY PROMOTING AND FUNDING PATIENT FOCUSED RESEARCH. | ActivityOrMissionDesc |
| Voting Members Governing Body | 12 | VotingMembersGoverningBodyCnt |
| Voting Members Independent | 12 | VotingMembersIndependentCnt |
| Total Employee | 16 | TotalEmployeeCnt |
| Total Volunteers | 250 | TotalVolunteersCnt |
| Total Gross UBI | $0 | TotalGrossUBIAmt |
| Net Unrelated Bus Txbl Incm | $0 | NetUnrelatedBusTxblIncmAmt |
| PY Contributions Grants | $6,964,176 | PYContributionsGrantsAmt |
| CY Contributions Grants | $6,172,734 | CYContributionsGrantsAmt |
| PY Program Service Revenue | $0 | PYProgramServiceRevenueAmt |
| CY Program Service Revenue | $0 | CYProgramServiceRevenueAmt |
| PY Investment Income | $509,703 | PYInvestmentIncomeAmt |
| CY Investment Income | $124,018 | CYInvestmentIncomeAmt |
| PY Other Revenue | -$130,043 | PYOtherRevenueAmt |
| CY Other Revenue | -$253,061 | CYOtherRevenueAmt |
| PY Total Revenue | $7,343,836 | PYTotalRevenueAmt |
| CY Total Revenue | $6,043,691 | CYTotalRevenueAmt |
| PY Grants And Similar Paid | $4,747,582 | PYGrantsAndSimilarPaidAmt |
| CY Grants And Similar Paid | $3,021,455 | CYGrantsAndSimilarPaidAmt |
| PY Benefits Paid To Members | $0 | PYBenefitsPaidToMembersAmt |
| CY Benefits Paid To Members | $0 | CYBenefitsPaidToMembersAmt |
| PY Salaries Comp Emp Bnft Paid | $1,928,861 | PYSalariesCompEmpBnftPaidAmt |
| CY Salaries Comp Emp Bnft Paid | $1,948,967 | CYSalariesCompEmpBnftPaidAmt |
| PY Total Prof Fndrsng Expns | $0 | PYTotalProfFndrsngExpnsAmt |
| CY Total Prof Fndrsng Expns | $0 | CYTotalProfFndrsngExpnsAmt |
| CY Total Fundraising Expense | $483,432 | CYTotalFundraisingExpenseAmt |
| PY Other Expenses | $873,359 | PYOtherExpensesAmt |
| CY Other Expenses | $871,115 | CYOtherExpensesAmt |
| PY Total Expenses | $7,549,802 | PYTotalExpensesAmt |
| CY Total Expenses | $5,841,537 | CYTotalExpensesAmt |
| PY Revenues Less Expenses | -$205,966 | PYRevenuesLessExpensesAmt |
| CY Revenues Less Expenses | $202,154 | CYRevenuesLessExpensesAmt |
| Total Assets BOY | $10,595,195 | TotalAssetsBOYAmt |
| Total Assets EOY | $10,496,452 | TotalAssetsEOYAmt |
| Total Liabilities BOY | $4,018,911 | TotalLiabilitiesBOYAmt |
| Total Liabilities EOY | $3,124,713 | TotalLiabilitiesEOYAmt |
| Net Assets Or Fund Balances BOY | $6,576,284 | NetAssetsOrFundBalancesBOYAmt |
| Net Assets Or Fund Balances EOY | $7,371,739 | NetAssetsOrFundBalancesEOYAmt |
| Mission | THE MISSION OF CURE EPILEPSY IS TO FIND A CURE FOR EPILEPSY BY PROMOTING AND FUNDING PATIENT FOCUSED RESEARCH. WE IDENTIFY AND FUND CUTTING-EDGE RESEARCH, CHALLENGING SCIENTISTS WORLDWIDE TO COLLABORATE AND INNOVATE IN PURSUIT OF A CURE FOR EPILEPSY | MissionDesc |
| Significant New Program Srvc | 0 | SignificantNewProgramSrvcInd |
| Significant Change | 0 | SignificantChangeInd |
| Expense | $4,048,805 | ExpenseAmt |
| Grant | $2,971,455 | GrantAmt |
| Desc | SINCE ITS INCEPTION IN 1998, CURE EPILEPSY HAS RAISED MORE THAN $85 MILLION TO FUND EPILEPSY RESEARCH AND OTHER INITIATIVES THAT WILL LEAD THE WAY TO CURES FOR THE EPILEPSIES. CURE EPILEPSY AWARDS GRANTS FOR NOVEL RESEARCH PROJECTS TO PREVENT EPILEPSY RELATED TO PEDIATRIC EPILEPSY, POST-TRAUMATIC EPILEPSY, TREATMENT-RESISTANT EPILEPSIES, SUDDEN UNEXPLAINED DEATH IN EPILEPSY (SUDEP), AND SLEEP AND EPILEPSY ADVANCING THE SEARCH FOR A CURE, ELIMINATING TREATMENT SIDE EFFECTS, AND REVERSING DEFICITS CAUSED BY FREQUENT SEIZURES. CURE EPILEPSY FUNDS GRANTS FOR YOUNG AND ESTABLISHED INVESTIGATORS AND TODATE HAS AWARDED MORE THAN 270 CUTTING-EDGE PROJECTS IN 17 COUNTRIES AROUND THE WORLD. | Desc |
Prog Srvc Accom Acty2 ProgSrvcAccomActy2Grp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Expense | $944,103 | ExpenseAmt |
| Grant | $0 | GrantAmt |
| Desc | CURE EPILEPSY BELIEVES THAT AWARENESS IS A CRITICAL VEHICLE TO INCREASE THE AMOUNT OF FUNDING FOR EPILEPSY RESEARCH AND TO SHARE KEY LEARNINGS AND OPPORTUNITIES FOR THOSE IMPACTED BY EPILEPSY. CURE EPILEPSY CREATES, SPONSORS AND LEVERS OUR WEBSITE, WEBINARS, SEMINARS, PODCASTS, EDUCATIONAL EVENTS AND OTHER DIGITAL COMMUNICATION TO DRIVE THIS CRITICAL AWARENESS. | Desc |
Prog Srvc Accom Acty3 ProgSrvcAccomActy3Grp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Expense | $50,000 | ExpenseAmt |
| Grant | $50,000 | GrantAmt |
| Desc | CURE EPILEPSY FUNDS AN ANNUAL EDUCATION ENRICHMENT SCHOLARSHIP. THIS PROGRAM IS A ONE-TIME SCHOLARSHIP (UP TO $5,000) FOR THOSE LIVING WITH EPILEPSY, THEIR FAMILY MEMBERS OR THEIR CAREGIVERS. THESE SCHOLARSHIPS SUPPORT COURSEWORK IN SCHOLARS' CHOSEN FIELDS, SO THEY CAN USE THEIR KNOWLEDGE AND SKILLS TO BECOME AGENTS OF CHANGE IN THE EPILEPSY COMMUNITY. | Desc |
| Field | Value | IRS element (for citing) |
|---|---|---|
| Total Program Service Expenses | $5,042,908 | TotalProgramServiceExpensesAmt |
| Described In Section501c3 | Yes (1) | DescribedInSection501c3Ind |
| Schedule B Required | Yes (1) | ScheduleBRequiredInd |
| Political Campaign Acty | 0 | PoliticalCampaignActyInd |
| Lobbying Activities | Yes (1) | LobbyingActivitiesInd |
| Subject To Proxy Tax | 0 | SubjectToProxyTaxInd |
| Donor Advised Fund | 0 | DonorAdvisedFundInd |
| Conservation Easements | 0 | ConservationEasementsInd |
| Collections Of Art | 0 | CollectionsOfArtInd |
| Credit Counseling | 0 | CreditCounselingInd |
| Donor Rstr Or Quasi Endowments | 0 | DonorRstrOrQuasiEndowmentsInd |
| Report Land Building Equipment | Yes (1) | ReportLandBuildingEquipmentInd |
| Report Investments Other Sec | 0 | ReportInvestmentsOtherSecInd |
| Report Program Related Invst | 0 | ReportProgramRelatedInvstInd |
| Report Other Assets | 0 | ReportOtherAssetsInd |
| Report Other Liabilities | 0 | ReportOtherLiabilitiesInd |
| Include FIN48 Footnote | Yes (1) | IncludeFIN48FootnoteInd |
| Independent Audit Fincl Stmt | Yes (1) | IndependentAuditFinclStmtInd |
| Consolidated Audit Fincl Stmt | 0 | ConsolidatedAuditFinclStmtInd |
| School Operating | 0 | SchoolOperatingInd |
| Foreign Office | 0 | ForeignOfficeInd |
| Foreign Activities | Yes (1) | ForeignActivitiesInd |
| More Than5000 K To Org | Yes (1) | MoreThan5000KToOrgInd |
| More Than5000 K To Individuals | 0 | MoreThan5000KToIndividualsInd |
| Professional Fundraising | 0 | ProfessionalFundraisingInd |
| Fundraising Activities | Yes (1) | FundraisingActivitiesInd |
| Gaming Activities | 0 | GamingActivitiesInd |
| Operate Hospital | 0 | OperateHospitalInd |
| Grants To Organizations | Yes (1) | GrantsToOrganizationsInd |
| Grants To Individuals | 0 | GrantsToIndividualsInd |
| Schedule J Required | Yes (1) | ScheduleJRequiredInd |
| Tax Exempt Bonds | 0 | TaxExemptBondsInd |
| Engaged In Excess Benefit Trans | 0 | EngagedInExcessBenefitTransInd |
| PY Excess Benefit Trans | 0 | PYExcessBenefitTransInd |
| Loan Outstanding | 0 | LoanOutstandingInd |
| Grant To Related Person | 0 | GrantToRelatedPersonInd |
| Business Rln With Org Mem | 0 | BusinessRlnWithOrgMemInd |
| Business Rln With Fam Mem | 0 | BusinessRlnWithFamMemInd |
| Business Rln With35 Ctrl Ent | 0 | BusinessRlnWith35CtrlEntInd |
| Deductible Non Cash Contri | Yes (1) | DeductibleNonCashContriInd |
| Deductible Art Contribution | 0 | DeductibleArtContributionInd |
| Terminate Operations | 0 | TerminateOperationsInd |
| Partial Liquidation | 0 | PartialLiquidationInd |
| Disregarded Entity | 0 | DisregardedEntityInd |
| Related Entity | 0 | RelatedEntityInd |
| Related Organization Ctrl Ent | 0 | RelatedOrganizationCtrlEntInd |
| Trnsfr Exmpt Non Chrtbl Rltd Org | 0 | TrnsfrExmptNonChrtblRltdOrgInd |
| Activities Conducted Prtshp | 0 | ActivitiesConductedPrtshpInd |
| Schedule O Required | Yes (1) | ScheduleORequiredInd |
| IRP Document | 10 | IRPDocumentCnt |
| IRP Document W2 G | 0 | IRPDocumentW2GCnt |
| Backup Wthld Compliance | Yes (1) | BackupWthldComplianceInd |
| Employee | 16 | EmployeeCnt |
| Employment Tax Returns Filed | Yes (1) | EmploymentTaxReturnsFiledInd |
| Unrelated Bus Incm Over Limit | 0 | UnrelatedBusIncmOverLimitInd |
| Foreign Financial Account | 0 | ForeignFinancialAccountInd |
| Prohibited Tax Shelter Trans | 0 | ProhibitedTaxShelterTransInd |
| Taxable Party Notification | 0 | TaxablePartyNotificationInd |
| Nondeductible Contributions | 0 | NondeductibleContributionsInd |
| Quid Pro Quo Contributions | 0 | QuidProQuoContributionsInd |
| Form8282 Property Disposed Of | 0 | Form8282PropertyDisposedOfInd |
| Rcv Fnds To Pay Prsnl Bnft Cntrct | 0 | RcvFndsToPayPrsnlBnftCntrctInd |
| Pay Premiums Prsnl Bnft Cntrct | 0 | PayPremiumsPrsnlBnftCntrctInd |
| Indoor Tanning Services | 0 | IndoorTanningServicesInd |
| Subj To Tax Rmnrtn Ex Prcht Pymt | 0 | SubjToTaxRmnrtnExPrchtPymtInd |
| Subject To Excs Tax Net Invst Inc | 0 | SubjectToExcsTaxNetInvstIncInd |
| Info In Schedule O Part VI | Yes (X) | InfoInScheduleOPartVIInd |
| Governing Body Voting Members | 12 | GoverningBodyVotingMembersCnt |
| Independent Voting Member | 12 | IndependentVotingMemberCnt |
| Family Or Business Rln | 0 | FamilyOrBusinessRlnInd |
| Delegation Of Mgmt Duties | 0 | DelegationOfMgmtDutiesInd |
| Change To Org Documents | 0 | ChangeToOrgDocumentsInd |
| Material Diversion Or Misuse | 0 | MaterialDiversionOrMisuseInd |
| Members Or Stockholders | 0 | MembersOrStockholdersInd |
| Election Of Board Members | 0 | ElectionOfBoardMembersInd |
| Decisions Subject To Approva | 0 | DecisionsSubjectToApprovaInd |
| Minutes Of Governing Body | Yes (1) | MinutesOfGoverningBodyInd |
| Minutes Of Committees | Yes (1) | MinutesOfCommitteesInd |
| Officer Mailing Address | 0 | OfficerMailingAddressInd |
| Local Chapters | 0 | LocalChaptersInd |
| Form990 Provided To Gvrn Body | Yes (1) | Form990ProvidedToGvrnBodyInd |
| Conflict Of Interest Policy | Yes (1) | ConflictOfInterestPolicyInd |
| Annual Disclosure Covered Prsn | Yes (1) | AnnualDisclosureCoveredPrsnInd |
| Regular Monitoring Enfrc | Yes (1) | RegularMonitoringEnfrcInd |
| Whistleblower Policy | Yes (1) | WhistleblowerPolicyInd |
| Document Retention Policy | Yes (1) | DocumentRetentionPolicyInd |
| Compensation Process CEO | Yes (1) | CompensationProcessCEOInd |
| Compensation Process Other | 0 | CompensationProcessOtherInd |
| Investment In Joint Venture | 0 | InvestmentInJointVentureInd |
| States Where Copy Of Return Is Fld | AL | StatesWhereCopyOfReturnIsFldCd |
| States Where Copy Of Return Is Fld | AR | StatesWhereCopyOfReturnIsFldCd |
| States Where Copy Of Return Is Fld | CA | StatesWhereCopyOfReturnIsFldCd |
| States Where Copy Of Return Is Fld | CT | StatesWhereCopyOfReturnIsFldCd |
| States Where Copy Of Return Is Fld | FL | StatesWhereCopyOfReturnIsFldCd |
| States Where Copy Of Return Is Fld | GA | StatesWhereCopyOfReturnIsFldCd |
| States Where Copy Of Return Is Fld | HI | StatesWhereCopyOfReturnIsFldCd |
| States Where Copy Of Return Is Fld | IL | StatesWhereCopyOfReturnIsFldCd |
| States Where Copy Of Return Is Fld | KS | StatesWhereCopyOfReturnIsFldCd |
| States Where Copy Of Return Is Fld | KY | StatesWhereCopyOfReturnIsFldCd |
| States Where Copy Of Return Is Fld | OK | StatesWhereCopyOfReturnIsFldCd |
| States Where Copy Of Return Is Fld | MA | StatesWhereCopyOfReturnIsFldCd |
| States Where Copy Of Return Is Fld | MD | StatesWhereCopyOfReturnIsFldCd |
| States Where Copy Of Return Is Fld | MI | StatesWhereCopyOfReturnIsFldCd |
| States Where Copy Of Return Is Fld | MN | StatesWhereCopyOfReturnIsFldCd |
| States Where Copy Of Return Is Fld | MS | StatesWhereCopyOfReturnIsFldCd |
| States Where Copy Of Return Is Fld | NH | StatesWhereCopyOfReturnIsFldCd |
| States Where Copy Of Return Is Fld | NJ | StatesWhereCopyOfReturnIsFldCd |
| States Where Copy Of Return Is Fld | NM | StatesWhereCopyOfReturnIsFldCd |
| States Where Copy Of Return Is Fld | NY | StatesWhereCopyOfReturnIsFldCd |
| States Where Copy Of Return Is Fld | OR | StatesWhereCopyOfReturnIsFldCd |
| States Where Copy Of Return Is Fld | PA | StatesWhereCopyOfReturnIsFldCd |
| States Where Copy Of Return Is Fld | RI | StatesWhereCopyOfReturnIsFldCd |
| States Where Copy Of Return Is Fld | SC | StatesWhereCopyOfReturnIsFldCd |
| States Where Copy Of Return Is Fld | TN | StatesWhereCopyOfReturnIsFldCd |
| States Where Copy Of Return Is Fld | TX | StatesWhereCopyOfReturnIsFldCd |
| States Where Copy Of Return Is Fld | WI | StatesWhereCopyOfReturnIsFldCd |
| States Where Copy Of Return Is Fld | WV | StatesWhereCopyOfReturnIsFldCd |
| Own Website | Yes (X) | OwnWebsiteInd |
| Upon Request | Yes (X) | UponRequestInd |
Books In Care Of Detail BooksInCareOfDetail
Business Name BusinessName
| Field | Value | IRS element (for citing) |
|---|---|---|
| Business Name Line1 | JOHN ANDERLUH | BusinessNameLine1Txt |
| Field | Value | IRS element (for citing) |
|---|---|---|
| Phone | 3122551801 | PhoneNum |
US Address USAddress
| Field | Value | IRS element (for citing) |
|---|---|---|
| Address Line1 | 420 N WABASH AVE NO 650 | AddressLine1Txt |
| City | CHICAGO | CityNm |
| State Abbreviation | IL | StateAbbreviationCd |
| ZIP | 60611 | ZIPCd |
Form990 Part VII Section A Form990PartVIISectionAGrp (19 entries)
| TitleTitleTxt | Average Hours Per WeekAverageHoursPerWeekRt | OfficerOfficerInd | Reportable Comp From OrgReportableCompFromOrgAmt | Reportable Comp From Rltd OrgReportableCompFromRltdOrgAmt | Other CompensationOtherCompensationAmt | Key EmployeeKeyEmployeeInd | Highest Compensated EmployeeHighestCompensatedEmployeeInd | Individual Trustee Or DirectorIndividualTrusteeOrDirectorInd |
|---|---|---|---|---|---|---|---|---|
| BETH LEWIN DEAN | ||||||||
| CEO | 37.50 | Yes (X) | $283,988 | $0 | $34,668 | |||
| LAURA LUBBERS | ||||||||
| CHIEF SCIENTIFIC OFFICER | 37.50 | $290,347 | $0 | $15,843 | Yes (X) | |||
| DEBBY HECHT | ||||||||
| SR DIRECTOR, MARKET & COMS | 37.50 | $156,135 | $0 | $6,364 | Yes (X) | |||
| ALSYHA BIEHL | ||||||||
| SR DIRECTOR, DEVELOPMENT | 37.50 | $143,152 | $0 | $13,859 | Yes (X) | |||
| PRIYA BALASUBRAMANIAN | ||||||||
| ASSOC DIRECTOR OF RESEARCH | 37.50 | $110,492 | $0 | $24,231 | Yes (X) | |||
| JOHN ANDERLUH | ||||||||
| CFO | 37.50 | Yes (X) | $106,154 | $0 | $26,314 | |||
| LAUREN HARTE | ||||||||
| DOD, ASSOC DIRECTOR OF RES | 37.50 | $110,274 | $0 | $2,872 | Yes (X) | |||
| KELLY CERVANTES | ||||||||
| CHAIR | 1.00 | Yes (X) | $0 | $0 | $0 | Yes (X) | ||
| STACEY PIGOTT | ||||||||
| IMMEDIATE PAST CHAIR | 1.00 | Yes (X) | $0 | $0 | $0 | Yes (X) | ||
| KATHY MCKENNA | ||||||||
| TREASURER | 1.00 | Yes (X) | $0 | $0 | $0 | Yes (X) | ||
| MIKE AXELROD | ||||||||
| SECRETARY | 1.00 | Yes (X) | $0 | $0 | $0 | Yes (X) | ||
| KIMBERLY BORDEN | ||||||||
| DIRECTOR | 1.00 | $0 | $0 | $0 | Yes (X) | |||
| LISA COTTON | ||||||||
| DIRECTOR | 1.00 | $0 | $0 | $0 | Yes (X) | |||
| SHALEE CUNNEEN | ||||||||
| DIRECTOR | 1.00 | $0 | $0 | $0 | Yes (X) | |||
| MARILYNN GARDNER | ||||||||
| DIRECTOR | 1.00 | $0 | $0 | $0 | Yes (X) | |||
| CARRIE GARMAN | ||||||||
| DIRECTOR | 1.00 | $0 | $0 | $0 | Yes (X) | |||
| BRIAN GORCZYNSKI | ||||||||
| DIRECTOR | 1.00 | $0 | $0 | $0 | Yes (X) | |||
| DAVID REIFMAN | ||||||||
| DIRECTOR | 1.00 | $0 | $0 | $0 | Yes (X) | |||
| MATT SCHNEIDER | ||||||||
| DIRECTOR (FROM JUN' 21) | 1.00 | $0 | $0 | $0 | Yes (X) | |||
| Field | Value | IRS element (for citing) |
|---|---|---|
| Total Reportable Comp From Org | $1,200,542 | TotalReportableCompFromOrgAmt |
| Tot Reportable Comp Rltd Org | $0 | TotReportableCompRltdOrgAmt |
| Total Other Compensation | $124,151 | TotalOtherCompensationAmt |
| Indiv Rcvd Greater Than100 K | 7 | IndivRcvdGreaterThan100KCnt |
| Former Ofcr Employees Listed | 0 | FormerOfcrEmployeesListedInd |
| Total Comp Greater Than150 K | Yes (1) | TotalCompGreaterThan150KInd |
| Compensation From Other Srcs | 0 | CompensationFromOtherSrcsInd |
Contractor Compensation ContractorCompensationGrp
Contractor Name ContractorName
Business Name BusinessName
| Field | Value | IRS element (for citing) |
|---|---|---|
| Business Name Line1 | LONG STORY SHORT MEDIA | BusinessNameLine1Txt |
Contractor Address ContractorAddress
US Address USAddress
| Field | Value | IRS element (for citing) |
|---|---|---|
| Address Line1 | 2830 GEORGIA AVE NW | AddressLine1Txt |
| City | WASHINGTON | CityNm |
| State Abbreviation | DC | StateAbbreviationCd |
| ZIP | 20001 | ZIPCd |
| Field | Value | IRS element (for citing) |
|---|---|---|
| Services | MEDIA PRODUCTION | ServicesDesc |
| Compensation | $147,036 | CompensationAmt |
| Field | Value | IRS element (for citing) |
|---|---|---|
| Cntrct Rcvd Greater Than100 K | 1 | CntrctRcvdGreaterThan100KCnt |
| Fundraising | $2,320,053 | FundraisingAmt |
| Government Grants | $1,584,100 | GovernmentGrantsAmt |
| All Other Contributions | $2,268,581 | AllOtherContributionsAmt |
| Noncash Contributions | $305,166 | NoncashContributionsAmt |
| Total Contributions | $6,172,734 | TotalContributionsAmt |
Investment Income InvestmentIncomeGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Total Revenue Column | $124,018 | TotalRevenueColumnAmt |
| Exclusion | $124,018 | ExclusionAmt |
| Field | Value | IRS element (for citing) |
|---|---|---|
| Fundraising Gross Income | $2,161 | FundraisingGrossIncomeAmt |
| Contri Rpt Fundraising Event | $2,320,053 | ContriRptFundraisingEventAmt |
| Fundraising Direct Expenses | $255,222 | FundraisingDirectExpensesAmt |
Net Incm From Fundraising Evt NetIncmFromFundraisingEvtGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Total Revenue Column | -$253,061 | TotalRevenueColumnAmt |
| Exclusion | -$253,061 | ExclusionAmt |
Total Revenue TotalRevenueGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Total Revenue Column | $6,043,691 | TotalRevenueColumnAmt |
| Related Or Exempt Func Income | $0 | RelatedOrExemptFuncIncomeAmt |
| Unrelated Business Revenue | $0 | UnrelatedBusinessRevenueAmt |
| Exclusion | -$129,043 | ExclusionAmt |
Grants To Domestic Orgs GrantsToDomesticOrgsGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Total | $2,333,868 | TotalAmt |
| Program Services | $2,333,868 | ProgramServicesAmt |
Foreign Grants ForeignGrantsGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Total | $687,587 | TotalAmt |
| Program Services | $687,587 | ProgramServicesAmt |
Comp Current Ofcr Directors CompCurrentOfcrDirectorsGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Total | $757,313 | TotalAmt |
| Program Services | $487,962 | ProgramServicesAmt |
| Management And General | $93,979 | ManagementAndGeneralAmt |
| Fundraising | $175,372 | FundraisingAmt |
Other Salaries And Wages OtherSalariesAndWagesGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Total | $956,441 | TotalAmt |
| Program Services | $687,356 | ProgramServicesAmt |
| Management And General | $131,484 | ManagementAndGeneralAmt |
| Fundraising | $137,601 | FundraisingAmt |
Pension Plan Contributions PensionPlanContributionsGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Total | $27,193 | TotalAmt |
| Program Services | $17,439 | ProgramServicesAmt |
| Management And General | $3,561 | ManagementAndGeneralAmt |
| Fundraising | $6,193 | FundraisingAmt |
Other Employee Benefits OtherEmployeeBenefitsGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Total | $93,519 | TotalAmt |
| Program Services | $59,974 | ProgramServicesAmt |
| Management And General | $12,247 | ManagementAndGeneralAmt |
| Fundraising | $21,298 | FundraisingAmt |
Payroll Taxes PayrollTaxesGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Total | $114,501 | TotalAmt |
| Program Services | $74,181 | ProgramServicesAmt |
| Management And General | $14,038 | ManagementAndGeneralAmt |
| Fundraising | $26,282 | FundraisingAmt |
Fees For Services Accounting FeesForServicesAccountingGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Total | $33,400 | TotalAmt |
| Program Services | $27,796 | ProgramServicesAmt |
| Management And General | $756 | ManagementAndGeneralAmt |
| Fundraising | $4,848 | FundraisingAmt |
Fees For Services Lobbying FeesForServicesLobbyingGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Total | $40,000 | TotalAmt |
| Program Services | $40,000 | ProgramServicesAmt |
Fees For Srvc Invst Mgmnt Fees FeesForSrvcInvstMgmntFeesGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Total | $16,157 | TotalAmt |
| Management And General | $16,157 | ManagementAndGeneralAmt |
Fees For Services Other FeesForServicesOtherGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Total | $91,814 | TotalAmt |
| Program Services | $69,698 | ProgramServicesAmt |
| Management And General | $2,985 | ManagementAndGeneralAmt |
| Fundraising | $19,131 | FundraisingAmt |
Advertising AdvertisingGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Total | $282,794 | TotalAmt |
| Program Services | $282,794 | ProgramServicesAmt |
Office Expenses OfficeExpensesGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Total | $82,256 | TotalAmt |
| Program Services | $38,607 | ProgramServicesAmt |
| Management And General | $7,317 | ManagementAndGeneralAmt |
| Fundraising | $36,332 | FundraisingAmt |
Information Technology InformationTechnologyGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Total | $93,096 | TotalAmt |
| Program Services | $58,983 | ProgramServicesAmt |
| Management And General | $11,706 | ManagementAndGeneralAmt |
| Fundraising | $22,407 | FundraisingAmt |
Occupancy OccupancyGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Total | $106,592 | TotalAmt |
| Program Services | $68,717 | ProgramServicesAmt |
| Management And General | $13,145 | ManagementAndGeneralAmt |
| Fundraising | $24,730 | FundraisingAmt |
Travel TravelGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Total | $19,930 | TotalAmt |
| Program Services | $18,304 | ProgramServicesAmt |
| Management And General | $644 | ManagementAndGeneralAmt |
| Fundraising | $982 | FundraisingAmt |
Conferences Meetings ConferencesMeetingsGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Total | $52,732 | TotalAmt |
| Program Services | $52,313 | ProgramServicesAmt |
| Management And General | $419 | ManagementAndGeneralAmt |
Depreciation Depletion DepreciationDepletionGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Total | $18,589 | TotalAmt |
| Program Services | $11,984 | ProgramServicesAmt |
| Management And General | $2,292 | ManagementAndGeneralAmt |
| Fundraising | $4,313 | FundraisingAmt |
Insurance InsuranceGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Total | $13,105 | TotalAmt |
| Program Services | $8,449 | ProgramServicesAmt |
| Management And General | $1,616 | ManagementAndGeneralAmt |
| Fundraising | $3,040 | FundraisingAmt |
Other Expenses OtherExpensesGrp (2 entries)
| DescDesc | TotalTotalAmt | Program ServicesProgramServicesAmt | Management And GeneralManagementAndGeneralAmt | FundraisingFundraisingAmt |
|---|---|---|---|---|
| LICENSES & FEES | $12,811 | $8,259 | $1,580 | $2,972 |
| DUES & SUBSCRIPTIONS | $4,275 | $3,028 | $83 | $1,164 |
All Other Expenses AllOtherExpensesGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Total | $3,564 | TotalAmt |
| Program Services | $5,609 | ProgramServicesAmt |
| Management And General | $1,188 | ManagementAndGeneralAmt |
| Fundraising | -$3,233 | FundraisingAmt |
Total Functional Expenses TotalFunctionalExpensesGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Total | $5,841,537 | TotalAmt |
| Program Services | $5,042,908 | ProgramServicesAmt |
| Management And General | $315,197 | ManagementAndGeneralAmt |
| Fundraising | $483,432 | FundraisingAmt |
Cash Non Interest Bearing CashNonInterestBearingGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| BOY | $3,396,662 | BOYAmt |
| EOY | $3,228,731 | EOYAmt |
Savings And Temp Cash Invst SavingsAndTempCashInvstGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| BOY | $1,124,490 | BOYAmt |
| EOY | $7,987 | EOYAmt |
Pledges And Grants Receivable PledgesAndGrantsReceivableGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| BOY | $1,530,744 | BOYAmt |
| EOY | $1,254,046 | EOYAmt |
Prepaid Expenses Defrd Charges PrepaidExpensesDefrdChargesGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| BOY | $43,199 | BOYAmt |
| EOY | $42,012 | EOYAmt |
| Field | Value | IRS element (for citing) |
|---|---|---|
| Land Bldg Equip Cost Or Other Bss | $244,808 | LandBldgEquipCostOrOtherBssAmt |
| Land Bldg Equip Accum Deprec | $190,498 | LandBldgEquipAccumDeprecAmt |
Land Bldg Equip Basis Net LandBldgEquipBasisNetGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| BOY | $57,472 | BOYAmt |
| EOY | $54,310 | EOYAmt |
Investments Pub Traded Sec InvestmentsPubTradedSecGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| BOY | $4,432,628 | BOYAmt |
| EOY | $5,899,366 | EOYAmt |
Other Assets Total OtherAssetsTotalGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| BOY | $10,000 | BOYAmt |
| EOY | $10,000 | EOYAmt |
Total Assets TotalAssetsGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| BOY | $10,595,195 | BOYAmt |
| EOY | $10,496,452 | EOYAmt |
Accounts Payable Accr Expnss AccountsPayableAccrExpnssGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| BOY | $134,299 | BOYAmt |
| EOY | $187,023 | EOYAmt |
Grants Payable GrantsPayableGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| BOY | $1,798,527 | BOYAmt |
| EOY | $2,145,433 | EOYAmt |
Deferred Revenue DeferredRevenueGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| BOY | $1,849,485 | BOYAmt |
| EOY | $792,257 | EOYAmt |
Unsecured Notes Loans Payable UnsecuredNotesLoansPayableGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| BOY | $236,600 | BOYAmt |
| EOY | $0 | EOYAmt |
Total Liabilities TotalLiabilitiesGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| BOY | $4,018,911 | BOYAmt |
| EOY | $3,124,713 | EOYAmt |
| Field | Value | IRS element (for citing) |
|---|---|---|
| Organization Follows FASB117 | Yes (X) | OrganizationFollowsFASB117Ind |
No Donor Restriction Net Assets NoDonorRestrictionNetAssetsGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| BOY | $4,800,489 | BOYAmt |
| EOY | $6,049,122 | EOYAmt |
Donor Restriction Net Assets DonorRestrictionNetAssetsGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| BOY | $1,775,795 | BOYAmt |
| EOY | $1,322,617 | EOYAmt |
Total Net Assets Fund Balance TotalNetAssetsFundBalanceGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| BOY | $6,576,284 | BOYAmt |
| EOY | $7,371,739 | EOYAmt |
Tot Liab Net Assets Fund Balance TotLiabNetAssetsFundBalanceGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| BOY | $10,595,195 | BOYAmt |
| EOY | $10,496,452 | EOYAmt |
| Field | Value | IRS element (for citing) |
|---|---|---|
| Info In Schedule O Part XI | Yes (X) | InfoInScheduleOPartXIInd |
| Reconcilation Revenue Expnss | $202,154 | ReconcilationRevenueExpnssAmt |
| Net Unrlzd Gains Losses Invst | $330,583 | NetUnrlzdGainsLossesInvstAmt |
| Other Changes In Net Assets | $262,718 | OtherChangesInNetAssetsAmt |
| Method Of Accounting Accrual | Yes (X) | MethodOfAccountingAccrualInd |
| Accountant Compile Or Review | 0 | AccountantCompileOrReviewInd |
| FS Audited | Yes (1) | FSAuditedInd |
FS Audited Basis FSAuditedBasisGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Separate Basis Fincl Stmt | Yes (X) | SeparateBasisFinclStmtInd |
| Field | Value | IRS element (for citing) |
|---|---|---|
| Audit Committee | Yes (1) | AuditCommitteeInd |
| Federal Grant Audit Required | Yes (1) | FederalGrantAuditRequiredInd |
| Federal Grant Audit Performed | Yes (1) | FederalGrantAuditPerformedInd |
Schedule A IRS990ScheduleA
| Field | Value | IRS element (for citing) |
|---|---|---|
| Public Organization170 | Yes (X) | PublicOrganization170Ind |
Gifts Grants Contri Rcvd170 GiftsGrantsContriRcvd170Grp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Current Tax Year Minus4 Years | $4,103,518 | CurrentTaxYearMinus4YearsAmt |
| Current Tax Year Minus3 Years | $7,555,195 | CurrentTaxYearMinus3YearsAmt |
| Current Tax Year Minus2 Years | $7,599,997 | CurrentTaxYearMinus2YearsAmt |
| Current Tax Year Minus1 Year | $6,964,176 | CurrentTaxYearMinus1YearAmt |
| Current Tax Year | $6,172,734 | CurrentTaxYearAmt |
| Total | $32,395,620 | TotalAmt |
Total Calendar Year170 TotalCalendarYear170Grp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Current Tax Year Minus4 Years | $4,103,518 | CurrentTaxYearMinus4YearsAmt |
| Current Tax Year Minus3 Years | $7,555,195 | CurrentTaxYearMinus3YearsAmt |
| Current Tax Year Minus2 Years | $7,599,997 | CurrentTaxYearMinus2YearsAmt |
| Current Tax Year Minus1 Year | $6,964,176 | CurrentTaxYearMinus1YearAmt |
| Current Tax Year | $6,172,734 | CurrentTaxYearAmt |
| Total | $32,395,620 | TotalAmt |
| Field | Value | IRS element (for citing) |
|---|---|---|
| Substantial Contributors Tot | $835,701 | SubstantialContributorsTotAmt |
| Public Support Total170 | $31,559,919 | PublicSupportTotal170Amt |
Gross Investment Income170 GrossInvestmentIncome170Grp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Current Tax Year Minus4 Years | $182,025 | CurrentTaxYearMinus4YearsAmt |
| Current Tax Year Minus3 Years | $71,470 | CurrentTaxYearMinus3YearsAmt |
| Current Tax Year Minus2 Years | $175,964 | CurrentTaxYearMinus2YearsAmt |
| Current Tax Year Minus1 Year | $105,918 | CurrentTaxYearMinus1YearAmt |
| Current Tax Year | $124,018 | CurrentTaxYearAmt |
| Total | $659,395 | TotalAmt |
Other Income170 OtherIncome170Grp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Current Tax Year Minus1 Year | -$5,722 | CurrentTaxYearMinus1YearAmt |
| Total | -$5,722 | TotalAmt |
| Field | Value | IRS element (for citing) |
|---|---|---|
| Total Support | $33,049,293 | TotalSupportAmt |
| Gross Receipts Rltd Activities | $480,861 | GrossReceiptsRltdActivitiesAmt |
| Public Support CY170 | 0.95490 | PublicSupportCY170Pct |
| Public Support PY170 | 0.95380 | PublicSupportPY170Pct |
| Thirty Thr Pct Suprt Tests CY170 | Yes (X) | ThirtyThrPctSuprtTestsCY170Ind |
Schedule B IRS990ScheduleB
Contributor Information ContributorInformationGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Contributor | RESTRICTED | ContributorNum |
Contributor Business Name ContributorBusinessName
| Field | Value | IRS element (for citing) |
|---|---|---|
| Business Name Line1 | RESTRICTED | BusinessNameLine1 |
Contributor US Address ContributorUSAddress
| Field | Value | IRS element (for citing) |
|---|---|---|
| Address Line1 | RESTRICTED | AddressLine1 |
| Address Line2 | RESTRICTED | AddressLine2 |
| City | RESTRICTED | City |
| State | RESTRICTED | State |
| ZIP Code | RESTRICTED | ZIPCode |
| Field | Value | IRS element (for citing) |
|---|---|---|
| Total Contributions | RESTRICTED | TotalContributionsAmt |
Schedule C IRS990ScheduleC
Total Direct Lobbying TotalDirectLobbyingGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Filing Organizations Total | $40,000 | FilingOrganizationsTotalAmt |
Total Lobbying Expend TotalLobbyingExpendGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Filing Organizations Total | $40,000 | FilingOrganizationsTotalAmt |
Other Exempt Purpose Expend OtherExemptPurposeExpendGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Filing Organizations Total | $5,801,537 | FilingOrganizationsTotalAmt |
Total Exempt Purpose Expend TotalExemptPurposeExpendGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Filing Organizations Total | $5,841,537 | FilingOrganizationsTotalAmt |
Lobbying Nontaxable Amount LobbyingNontaxableAmountGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Filing Organizations Total | $442,077 | FilingOrganizationsTotalAmt |
Grassroots Nontaxable GrassrootsNontaxableGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Filing Organizations Total | $110,519 | FilingOrganizationsTotalAmt |
Tot Lbbyng Grassroot Mns Non Tx TotLbbyngGrassrootMnsNonTxGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Filing Organizations Total | $0 | FilingOrganizationsTotalAmt |
Tot Lbby Expend Mns Lbbyng Non Tx TotLbbyExpendMnsLbbyngNonTxGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Filing Organizations Total | $0 | FilingOrganizationsTotalAmt |
Avg Lobbying Nontaxable Amount AvgLobbyingNontaxableAmountGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Current Year Minus3 | $427,783 | CurrentYearMinus3Amt |
| Current Year Minus2 | $463,172 | CurrentYearMinus2Amt |
| Current Year Minus1 | $527,490 | CurrentYearMinus1Amt |
| Current Year | $442,077 | CurrentYearAmt |
| Total | $1,860,522 | TotalAmt |
| Field | Value | IRS element (for citing) |
|---|---|---|
| Lobbying Ceiling | $2,790,783 | LobbyingCeilingAmt |
Avg Total Lobbying Expend AvgTotalLobbyingExpendGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Current Year | $40,000 | CurrentYearAmt |
| Total | $40,000 | TotalAmt |
Avg Grassroots Nontaxable AvgGrassrootsNontaxableGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Current Year Minus3 | $106,946 | CurrentYearMinus3Amt |
| Current Year Minus2 | $115,793 | CurrentYearMinus2Amt |
| Current Year Minus1 | $131,873 | CurrentYearMinus1Amt |
| Current Year | $110,519 | CurrentYearAmt |
| Total | $465,131 | TotalAmt |
| Field | Value | IRS element (for citing) |
|---|---|---|
| Grassroots Ceiling | $697,697 | GrassrootsCeilingAmt |
Schedule D IRS990ScheduleD
Leasehold Improvements LeaseholdImprovementsGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Other Cost Or Other Basis | $100,519 | OtherCostOrOtherBasisAmt |
| Depreciation | $74,064 | DepreciationAmt |
| Book Value | $26,455 | BookValueAmt |
Equipment EquipmentGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Other Cost Or Other Basis | $144,289 | OtherCostOrOtherBasisAmt |
| Depreciation | $116,434 | DepreciationAmt |
| Book Value | $27,855 | BookValueAmt |
| Field | Value | IRS element (for citing) |
|---|---|---|
| Total Book Value Land Buildings | $54,310 | TotalBookValueLandBuildingsAmt |
| Footnote Text | Yes (X) | FootnoteTextInd |
| Total Rev Etc Audited Fincl Stmt | $6,679,791 | TotalRevEtcAuditedFinclStmtAmt |
| Net Unrealized Gains Invst | $330,583 | NetUnrealizedGainsInvstAmt |
| Donated Services And Use Fclts | $58,956 | DonatedServicesAndUseFcltsAmt |
| Recoveries Prior Year Grants | $22,507 | RecoveriesPriorYearGrantsAmt |
| Other Revenue | $240,211 | OtherRevenueAmt |
| Revenue Not Reported | $652,257 | RevenueNotReportedAmt |
| Revenue Subtotal | $6,027,534 | RevenueSubtotalAmt |
| Investment Expenses Not Incld | $16,157 | InvestmentExpensesNotIncldAmt |
| Revenue Not Reported Fincl Stmt | $16,157 | RevenueNotReportedFinclStmtAmt |
| Total Revenue Per Form990 | $6,043,691 | TotalRevenuePerForm990Amt |
| Tot Expns Etc Audited Fincl Stmt | $5,884,336 | TotExpnsEtcAuditedFinclStmtAmt |
| Donated Services Use Fclts | $58,956 | DonatedServicesUseFcltsAmt |
| Expenses Not Reported | $58,956 | ExpensesNotReportedAmt |
| Expenses Subtotal | $5,825,380 | ExpensesSubtotalAmt |
| Investment Expenses Not Incld2 | $16,157 | InvestmentExpensesNotIncld2Amt |
| Expenses Not Rpt Fincl Stmt | $16,157 | ExpensesNotRptFinclStmtAmt |
| Total Expenses Per Form990 | $5,841,537 | TotalExpensesPerForm990Amt |
Supplemental Information Detail SupplementalInformationDetail (2 entries)
| Form And Line ReferenceFormAndLineReferenceDesc | ExplanationExplanationTxt |
|---|---|
| PART X, LINE 2: | MANAGEMENT HAS CONCLUDED THAT CURE EPILEPSY HAS PROPERLY MAINTAINED ITS EXEMPT STATUS. THE PREVIOUS THREE TAX YEARS ARE SUBJECT TO EXAMINATION BY FEDERAL AUTHORITIES, THERE ARE CURRENTLY NO EXAMINATIONS BEING CONDUCTED. |
| PART XI, LINE 2D - OTHER ADJUSTMENTS: | GRANT WRITE-OFFS 240,211. |
Schedule F IRS990ScheduleF
| Field | Value | IRS element (for citing) |
|---|---|---|
| Grant Records Maintained | Yes (1) | GrantRecordsMaintainedInd |
Account Activities Outside US AccountActivitiesOutsideUSGrp (2 entries)
| RegionRegionTxt | OfficesOfficesCnt | EmployeeEmployeeCnt | Type Of Activities ConductedTypeOfActivitiesConductedTxt | Region Total ExpendituresRegionTotalExpendituresAmt |
|---|---|---|---|---|
| EUROPE | 0 | 0 | GRANTS TO RECIPIENTS IN REGION | $681,590 |
| MIDDLE EAST & NORTH AFRICA | 0 | 0 | GRANT TO RECIPIENT IN REGION | $5,997 |
| Field | Value | IRS element (for citing) |
|---|---|---|
| Subtotal Offices | 0 | SubtotalOfficesCnt |
| Subtotal Employees | 0 | SubtotalEmployeesCnt |
| Continuation Total Office | 0 | ContinuationTotalOfficeCnt |
| Continuation Total Employee | 0 | ContinuationTotalEmployeeCnt |
| Total Office | 0 | TotalOfficeCnt |
| Total Employee | 0 | TotalEmployeeCnt |
| Subtotal Spent | $687,587 | SubtotalSpentAmt |
| Continuation Spent | $0 | ContinuationSpentAmt |
| Total Spent | $687,587 | TotalSpentAmt |
Grants To Org Outside US GrantsToOrgOutsideUSGrp (4 entries)
| RegionRegionTxt | Purpose Of GrantPurposeOfGrantTxt | Cash GrantCashGrantAmt | Manner Of Cash DisbursementMannerOfCashDisbursementTxt | Non Cash AssistanceNonCashAssistanceAmt |
|---|---|---|---|---|
| EUROPE | CURE EPILEPSY | $250,000 | WIRE | $0 |
| EUROPE | CURE EPILEPSY | $249,816 | WIRE | $0 |
| EUROPE | CATALYST | $181,774 | WIRE | $0 |
| MIDDLE EAST & NORTH AFRICA | RESEARCH CONFERENCE GRANT | $5,997 | WIRE | $0 |
| Field | Value | IRS element (for citing) |
|---|---|---|
| Total501c3 Org | 3 | Total501c3OrgCnt |
| Total Other Org | 1 | TotalOtherOrgCnt |
| Transfer To Foreign Corp | 0 | TransferToForeignCorpInd |
| Interest In Foreign Trust | 0 | InterestInForeignTrustInd |
| Foreign Corp Ownership | 0 | ForeignCorpOwnershipInd |
| Passive Foreign Investmest Co | 0 | PassiveForeignInvestmestCoInd |
| Foreign Partnership | 0 | ForeignPartnershipInd |
| Boycott Countries | 0 | BoycottCountriesInd |
Supplemental Information Detail SupplementalInformationDetail (2 entries)
| Form And Line ReferenceFormAndLineReferenceDesc | ExplanationExplanationTxt |
|---|---|
| PART I, LINE 2: | GRANTEES ARE REQUIRED TO MAKE PERIODIC PROGRESS REPORTS. |
| PART III ACCOUNTING METHOD: |
Schedule G IRS990ScheduleG
Fundraising Event Information FundraisingEventInformationGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Event1 | VIRTUAL BENEFIT | Event1Nm |
| Gross Receipts Event1 | $1,837,690 | GrossReceiptsEvent1Amt |
| Charitable Contri Event1 | $1,837,690 | CharitableContriEvent1Amt |
| Non Cash Prizes Event1 | $994 | NonCashPrizesEvent1Amt |
| Rent Facility Costs Event1 | $84 | RentFacilityCostsEvent1Amt |
| Entertainment Event1 | $250 | EntertainmentEvent1Amt |
| Other Direct Expenses Event1 | $182,736 | OtherDirectExpensesEvent1Amt |
| Event2 | CHAMPION | Event2Nm |
| Gross Receipts Event2 | $380,909 | GrossReceiptsEvent2Amt |
| Charitable Contri Event2 | $380,909 | CharitableContriEvent2Amt |
| Non Cash Prizes Event2 | $1,035 | NonCashPrizesEvent2Amt |
| Rent Facility Costs Event2 | $9,994 | RentFacilityCostsEvent2Amt |
| Other Direct Expenses Event2 | $57,969 | OtherDirectExpensesEvent2Amt |
| Other Events Total | 1 | OtherEventsTotalCnt |
| Gross Receipts Other Events | $103,615 | GrossReceiptsOtherEventsAmt |
| Charitable Contri Other Events | $101,454 | CharitableContriOtherEventsAmt |
| Gross Revenue Other Events | $2,161 | GrossRevenueOtherEventsAmt |
| Food And Beverage Other Events | $300 | FoodAndBeverageOtherEventsAmt |
| Entertainment Other Events | $700 | EntertainmentOtherEventsAmt |
| Oth Direct Expnss Other Events | $1,160 | OthDirectExpnssOtherEventsAmt |
| Gross Receipts Total | $2,322,214 | GrossReceiptsTotalAmt |
| Charitable Contributions Tot | $2,320,053 | CharitableContributionsTotAmt |
| Gross Revenue Total Events | $2,161 | GrossRevenueTotalEventsAmt |
| Non Cash Prizes Total Events | $2,029 | NonCashPrizesTotalEventsAmt |
| Rent Fclty Costs Total Events | $10,078 | RentFcltyCostsTotalEventsAmt |
| Food And Beverage Total Events | $300 | FoodAndBeverageTotalEventsAmt |
| Entertainment Total Events | $950 | EntertainmentTotalEventsAmt |
| Oth Direct Expnss Total Events | $241,865 | OthDirectExpnssTotalEventsAmt |
| Direct Expense Summary Events | $255,222 | DirectExpenseSummaryEventsAmt |
| Net Income Summary | -$253,061 | NetIncomeSummaryAmt |
Schedule I IRS990ScheduleI
| Field | Value | IRS element (for citing) |
|---|---|---|
| Grant Records Maintained | Yes (1) | GrantRecordsMaintainedInd |
Recipient Table RecipientTable (13 entries)
| Address Line1USAddress/AddressLine1Txt | CityUSAddress/CityNm | State AbbreviationUSAddress/StateAbbreviationCd | ZIPUSAddress/ZIPCd | Recipient EINRecipientEIN | IRC SectionIRCSectionDesc | Cash GrantCashGrantAmt | Non Cash AssistanceNonCashAssistanceAmt | Purpose Of GrantPurposeOfGrantTxt |
|---|---|---|---|---|---|---|---|---|
| VIRGINIA POLYTECHNIC INST & STATE UNIVERSITY | ||||||||
| 800 WASHINGTON ST SW STE 150 | BLACKSBURG | VA | 24061 | 546001805 | 115 | $667,200 | $0 | DOD AWARD |
| EMORY UNIVERSITY | ||||||||
| 201 DOWMAN DR | ATLANTA | GA | 30322 | 580566256 | 501(C)(3) | $250,000 | $0 | CURE EPILEPSY |
| UNIVERSITY OF KENTUCKY | ||||||||
| 10 FUNKERHOUSE BLDG | LEXINGTON | KY | 40506 | 616001218 | 115 | $250,000 | $0 | CATALYST |
| RESEARCH FOUNDATION OF THE STATE OF NY | ||||||||
| PO BOX 9 | ALBANY | NY | 12201 | 141368361 | 501(C)(3) | $250,000 | $0 | CURE EPILEPSY |
| COGNIZANCE BIOMARKERS LLC | ||||||||
| 3160 CHESTNUT ST STE 200 | PHILADELPHIA | PA | 19104 | 452496245 | OTHER | $238,050 | $0 | CATALYST |
| UNIVERSITY OF WASHINGTON | ||||||||
| 1400 NE CAMPUS PKWY | SEATTLE | WA | 98195 | 916001537 | 115 | $141,154 | $0 | CATALYST |
| TRUSTEES OF UNIVERSITY OF PENNSYLVANIA | ||||||||
| 3451 WALNUT ST | PHILADELPHIA | PA | 19104 | 231352685 | 501(C)(3) | $100,000 | $0 | TAKING FLIGHT |
| UNIVERSITY OF UTAH | ||||||||
| 201 PRESIDENTS CIR | SALT LAKE CITY | UT | 84112 | 876000525 | 115 | $100,000 | $0 | TAKING FLIGHT |
| MASSACHUSETTS GENERAL HOSPITAL | ||||||||
| 55 FRUIT ST | BOSTON | MA | 02114 | 041564655 | 501(C)(3) | $99,999 | $0 | TAKING FLIGHT |
| UNIVERSITY OF SOUTHERN CALIFORNIA | ||||||||
| UNIVERSITY GARDENS UGB203 | LOS ANGELES | CA | 90089 | 951642394 | 501(C)(3) | $88,621 | $0 | DOD AWARD |
| UNIVERSITY OF FLORIDA BOARD OF TRUSTEES | ||||||||
| UNIVERSITY OF FLORIDA | GAINESVILLE | FL | 32611 | 596002052 | 115 | $61,409 | $0 | DOD AWARD |
| AMERICAN EPILEPSY SOCIETY | ||||||||
| 135 S LASALLE ST NO 2850 | CHICAGO | IL | 60603 | 046112600 | 501(C)(3) | $12,750 | $0 | RESEARCH CONFERENCE GRANTS |
| GORDON RESEARCH CONFERENCES | ||||||||
| 512 LIBERTY LN | WEST KINGSTON | RI | 02892 | 260150662 | 501(C)(3) | $9,700 | $0 | RESEARCH CONFERENCE GRANTS |
| Field | Value | IRS element (for citing) |
|---|---|---|
| Total501c3 Org | 12 | Total501c3OrgCnt |
| Total Other Org | 1 | TotalOtherOrgCnt |
Supplemental Information Detail SupplementalInformationDetail
| Field | Value | IRS element (for citing) |
|---|---|---|
| Form And Line Reference | PART I, LINE 2: | FormAndLineReferenceDesc |
| Explanation | GRANTEES ARE REQUIRED TO MAKE PERIODIC PROGRESS REPORTS. | ExplanationTxt |
Schedule J IRS990ScheduleJ
| Field | Value | IRS element (for citing) |
|---|---|---|
| Compensation Committee | Yes (X) | CompensationCommitteeInd |
| Independent Consultant | Yes (X) | IndependentConsultantInd |
| Written Employment Contract | Yes (X) | WrittenEmploymentContractInd |
| Compensation Survey | Yes (X) | CompensationSurveyInd |
| Board Or Committee Approval | Yes (X) | BoardOrCommitteeApprovalInd |
| Severance Payment | 0 | SeverancePaymentInd |
| Supplemental Nonqual Rtr Plan | 0 | SupplementalNonqualRtrPlanInd |
| Equity Based Comp Arrngm | 0 | EquityBasedCompArrngmInd |
| Comp Based On Revenue Of Flng Org | 0 | CompBasedOnRevenueOfFlngOrgInd |
| Comp Bsd On Rev Related Orgs | 0 | CompBsdOnRevRelatedOrgsInd |
| Comp Bsd Net Earns Flng Org | 0 | CompBsdNetEarnsFlngOrgInd |
| Comp Bsd Net Earns Rltd Orgs | 0 | CompBsdNetEarnsRltdOrgsInd |
| Any Non Fixed Payments | 0 | AnyNonFixedPaymentsInd |
| Initial Contract Exception | 0 | InitialContractExceptionInd |
Rltd Org Officer Trst Key Empl RltdOrgOfficerTrstKeyEmplGrp (4 entries)
| TitleTitleTxt | Base Compensation Filing OrgBaseCompensationFilingOrgAmt | Compensation Based On Rltd OrgsCompensationBasedOnRltdOrgsAmt | Bonus Filing OrganizationBonusFilingOrganizationAmount | Bonus Related OrganizationsBonusRelatedOrganizationsAmt | Other Compensation Filing OrgOtherCompensationFilingOrgAmt | Other Compensation Rltd OrgsOtherCompensationRltdOrgsAmt | Deferred Compensation Flng OrgDeferredCompensationFlngOrgAmt | Deferred Comp Rltd OrgsDeferredCompRltdOrgsAmt | Nontaxable Benefits Filing OrgNontaxableBenefitsFilingOrgAmt | Nontaxable Benefits Rltd OrgsNontaxableBenefitsRltdOrgsAmt | Total Compensation Filing OrgTotalCompensationFilingOrgAmt | Total Compensation Rltd OrgsTotalCompensationRltdOrgsAmt | Comp Report Prior990 Filing OrgCompReportPrior990FilingOrgAmt | Comp Report Prior990 Rltd OrgsCompReportPrior990RltdOrgsAmt |
|---|---|---|---|---|---|---|---|---|---|---|---|---|---|---|
| BETH LEWIN DEAN | ||||||||||||||
| CEO | $256,178 | $0 | $27,810 | $0 | $0 | $0 | $7,960 | $0 | $26,708 | $0 | $318,656 | $0 | $0 | $0 |
| LAURA LUBBERS | ||||||||||||||
| CHIEF SCIENTIFIC OFFICER | $261,099 | $0 | $29,248 | $0 | $0 | $0 | $8,049 | $0 | $7,794 | $0 | $306,190 | $0 | $0 | $0 |
| DEBBY HECHT | ||||||||||||||
| SR DIRECTOR, MARKET & COMS | $156,135 | $0 | $0 | $0 | $0 | $0 | $4,691 | $0 | $1,673 | $0 | $162,499 | $0 | $0 | $0 |
| ALSYHA BIEHL | ||||||||||||||
| SR DIRECTOR, DEVELOPMENT | $143,152 | $0 | $0 | $0 | $0 | $0 | $4,361 | $0 | $9,498 | $0 | $157,011 | $0 | $0 | $0 |
Schedule M IRS990ScheduleM
Securities Publicly Traded SecuritiesPubliclyTradedGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Non Cash Checkbox | Yes (X) | NonCashCheckboxInd |
| Contribution | 10 | ContributionCnt |
| Noncash Contributions Rpt F990 | $304,466 | NoncashContributionsRptF990Amt |
| Method Of Determining Revenues | FMV | MethodOfDeterminingRevenuesTxt |
Other Non Cash Contri Table OtherNonCashContriTableGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Non Cash Checkbox | Yes (X) | NonCashCheckboxInd |
| Desc | TICKETS FOR FUNDRAISER | Desc |
| Contribution | 2 | ContributionCnt |
| Noncash Contributions Rpt F990 | $700 | NoncashContributionsRptF990Amt |
| Method Of Determining Revenues | FMV | MethodOfDeterminingRevenuesTxt |
| Field | Value | IRS element (for citing) |
|---|---|---|
| Any Property That Must Be Held | 0 | AnyPropertyThatMustBeHeldInd |
| Review Process Unusual NC Gifts | 0 | ReviewProcessUnusualNCGiftsInd |
| Third Parties Used | Yes (1) | ThirdPartiesUsedInd |
Supplemental Information Detail SupplementalInformationDetail (2 entries)
| Form And Line ReferenceFormAndLineReferenceDesc | ExplanationExplanationTxt |
|---|---|
| PART I, COLUMN (B): | THE NUMBER OF CONTRIBUTIONS RECEIVED, RATHER THAN THE NUMBER OF STOCK SHARES RECEIVED, ARE BEING REPORTED FOR SCHEDULE M PURPOSES. THE NUMBER OF TICKETS RECEIVED IS ALSO BEING REPORTED ON SCHEDULE M. |
| PART I, LINE 32B: | THE ORGANIZATION DISPOSES OF DONATED SECURITIES THROUGH AN INVESTMENT BROKER UPON RECEIPT. |
Schedule O IRS990ScheduleO
Supplemental Information Detail SupplementalInformationDetail (5 entries)
| Form And Line ReferenceFormAndLineReferenceDesc | ExplanationExplanationTxt |
|---|---|
| FORM 990, PART VI, SECTION B, LINE 11B | FORM 990 IS REVIEWED BY THE FINANCE MANAGER, TREASURER, AND CHIEF EXECUTIVE OFFICER. WHEN THE DRAFT IS APPROVED, IT IS SENT TO THE ENTIRE BOARD. |
| FORM 990, PART VI, SECTION B, LINE 12C | EACH BOARD MEMBER SIGNS IT ANNUALLY AND EXPECTS TO SELF-MONITOR. CONFLICTS ARE DEALT WITH ON A CASE-BY-CASE BASIS. |
| FORM 990, PART VI, SECTION B, LINE 15A | COMPARABLE SALARY INFORMATION IS OBTAINED AND REVIEWED USING AN OUTSIDE EXECUTIVE SEARCH FIRM. THE BOARD OF DIRECTORS HAS FINAL APPROVAL, AND REVIEWS COMPENSATION ANNUALLY. |
| FORM 990, PART VI, SECTION C, LINE 19 | GOVERNING DOCUMENTS AND CONFLICT OF INTEREST POLICY ARE NOT GENERALLY AVAILABLE TO THE PUBLIC. THE ORGANIZATION'S FINANCIAL STATEMENTS ARE AVAILABLE ON ITS WEBSITE. |
| FORM 990, PART XI, LINE 9: | GRANTS RETURNED & WRITTEN OFF 262,718. |
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