2022-04-27T11:06:57-05:00 2021-12-31 521446779 JOHNSON LAMBERT LLP 4242 SIX FORKS ROAD SUITE 1500 RALEIGH NC 27609 990 2021-01-01 364253176 CITIZENS UNITED FOR RESEARCH IN EPILEPSY CITI 3122551801 420 N WABASH AVE 650 CHICAGO IL 60611 BETH LEWIN DEAN CHIEF EXECUTIVE OFFICER 3122551801 2022-04-27 1 BETH LEWIN DEAN 999009999 J CALVIN MARKS P01226973 9197196400 3 AAL1 IAL1 2021 2022-09-23 18:48:47Z CURE EPILEPSY BETH LEWIN DEAN 420 N WABASH AVE 650 CHICAGO IL 60611 6298913 0 X WWW.CUREEPILEPSY.ORG X 1998 IL TO FIND A CURE FOR EPILEPSY BY PROMOTING AND FUNDING PATIENT FOCUSED RESEARCH. 12 12 16 250 0 0 6964176 6172734 0 0 509703 124018 -130043 -253061 7343836 6043691 4747582 3021455 0 0 1928861 1948967 0 0 483432 873359 871115 7549802 5841537 -205966 202154 10595195 10496452 4018911 3124713 6576284 7371739 THE MISSION OF CURE EPILEPSY IS TO FIND A CURE FOR EPILEPSY BY PROMOTING AND FUNDING PATIENT FOCUSED RESEARCH. WE IDENTIFY AND FUND CUTTING-EDGE RESEARCH, CHALLENGING SCIENTISTS WORLDWIDE TO COLLABORATE AND INNOVATE IN PURSUIT OF A CURE FOR EPILEPSY 0 0 4048805 2971455 SINCE ITS INCEPTION IN 1998, CURE EPILEPSY HAS RAISED MORE THAN $85 MILLION TO FUND EPILEPSY RESEARCH AND OTHER INITIATIVES THAT WILL LEAD THE WAY TO CURES FOR THE EPILEPSIES. CURE EPILEPSY AWARDS GRANTS FOR NOVEL RESEARCH PROJECTS TO PREVENT EPILEPSY RELATED TO PEDIATRIC EPILEPSY, POST-TRAUMATIC EPILEPSY, TREATMENT-RESISTANT EPILEPSIES, SUDDEN UNEXPLAINED DEATH IN EPILEPSY (SUDEP), AND SLEEP AND EPILEPSY ADVANCING THE SEARCH FOR A CURE, ELIMINATING TREATMENT SIDE EFFECTS, AND REVERSING DEFICITS CAUSED BY FREQUENT SEIZURES. CURE EPILEPSY FUNDS GRANTS FOR YOUNG AND ESTABLISHED INVESTIGATORS AND TODATE HAS AWARDED MORE THAN 270 CUTTING-EDGE PROJECTS IN 17 COUNTRIES AROUND THE WORLD. 944103 0 CURE EPILEPSY BELIEVES THAT AWARENESS IS A CRITICAL VEHICLE TO INCREASE THE AMOUNT OF FUNDING FOR EPILEPSY RESEARCH AND TO SHARE KEY LEARNINGS AND OPPORTUNITIES FOR THOSE IMPACTED BY EPILEPSY. CURE EPILEPSY CREATES, SPONSORS AND LEVERS OUR WEBSITE, WEBINARS, SEMINARS, PODCASTS, EDUCATIONAL EVENTS AND OTHER DIGITAL COMMUNICATION TO DRIVE THIS CRITICAL AWARENESS. 50000 50000 CURE EPILEPSY FUNDS AN ANNUAL EDUCATION ENRICHMENT SCHOLARSHIP. THIS PROGRAM IS A ONE-TIME SCHOLARSHIP (UP TO $5,000) FOR THOSE LIVING WITH EPILEPSY, THEIR FAMILY MEMBERS OR THEIR CAREGIVERS. THESE SCHOLARSHIPS SUPPORT COURSEWORK IN SCHOLARS' CHOSEN FIELDS, SO THEY CAN USE THEIR KNOWLEDGE AND SKILLS TO BECOME AGENTS OF CHANGE IN THE EPILEPSY COMMUNITY. 5042908 1 1 0 1 0 0 0 0 0 0 1 0 0 0 0 1 1 0 0 0 1 1 0 0 1 0 0 1 0 1 0 0 0 0 0 0 0 0 1 0 0 0 0 0 0 0 0 1 10 0 1 16 1 0 0 0 0 0 0 0 0 0 0 0 0 X 12 12 0 0 0 0 0 0 0 1 1 0 0 1 1 1 1 1 1 1 0 0 AL AR CA CT FL GA HI IL KS KY OK MA MD MI MN MS NH NJ NM NY OR PA RI SC TN TX WI WV X X JOHN ANDERLUH 3122551801 420 N WABASH AVE NO 650 CHICAGO IL 60611 BETH LEWIN DEAN CEO 37.50 X 283988 0 34668 LAURA LUBBERS CHIEF SCIENTIFIC OFFICER 37.50 X 290347 0 15843 DEBBY HECHT SR DIRECTOR, MARKET & COMS 37.50 X 156135 0 6364 ALSYHA BIEHL SR DIRECTOR, DEVELOPMENT 37.50 X 143152 0 13859 PRIYA BALASUBRAMANIAN ASSOC DIRECTOR OF RESEARCH 37.50 X 110492 0 24231 JOHN ANDERLUH CFO 37.50 X 106154 0 26314 LAUREN HARTE DOD, ASSOC DIRECTOR OF RES 37.50 X 110274 0 2872 KELLY CERVANTES CHAIR 1.00 X X 0 0 0 STACEY PIGOTT IMMEDIATE PAST CHAIR 1.00 X X 0 0 0 KATHY MCKENNA TREASURER 1.00 X X 0 0 0 MIKE AXELROD SECRETARY 1.00 X X 0 0 0 KIMBERLY BORDEN DIRECTOR 1.00 X 0 0 0 LISA COTTON DIRECTOR 1.00 X 0 0 0 SHALEE CUNNEEN DIRECTOR 1.00 X 0 0 0 MARILYNN GARDNER DIRECTOR 1.00 X 0 0 0 CARRIE GARMAN DIRECTOR 1.00 X 0 0 0 BRIAN GORCZYNSKI DIRECTOR 1.00 X 0 0 0 DAVID REIFMAN DIRECTOR 1.00 X 0 0 0 MATT SCHNEIDER DIRECTOR (FROM JUN' 21) 1.00 X 0 0 0 1200542 0 124151 7 0 1 0 LONG STORY SHORT MEDIA 2830 GEORGIA AVE NW WASHINGTON DC 20001 MEDIA PRODUCTION 147036 1 2320053 1584100 2268581 305166 6172734 124018 124018 2161 2320053 255222 -253061 -253061 6043691 0 0 -129043 2333868 2333868 687587 687587 757313 487962 93979 175372 956441 687356 131484 137601 27193 17439 3561 6193 93519 59974 12247 21298 114501 74181 14038 26282 33400 27796 756 4848 40000 40000 16157 16157 91814 69698 2985 19131 282794 282794 82256 38607 7317 36332 93096 58983 11706 22407 106592 68717 13145 24730 19930 18304 644 982 52732 52313 419 18589 11984 2292 4313 13105 8449 1616 3040 LICENSES & FEES 12811 8259 1580 2972 DUES & SUBSCRIPTIONS 4275 3028 83 1164 3564 5609 1188 -3233 5841537 5042908 315197 483432 3396662 3228731 1124490 7987 1530744 1254046 43199 42012 244808 190498 57472 54310 4432628 5899366 10000 10000 10595195 10496452 134299 187023 1798527 2145433 1849485 792257 236600 0 4018911 3124713 X 4800489 6049122 1775795 1322617 6576284 7371739 10595195 10496452 X 202154 330583 262718 X 0 1 X 1 1 1 X 4103518 7555195 7599997 6964176 6172734 32395620 4103518 7555195 7599997 6964176 6172734 32395620 835701 31559919 182025 71470 175964 105918 124018 659395 -5722 -5722 33049293 480861 0.95490 0.95380 X RESTRICTED RESTRICTED RESTRICTED RESTRICTED RESTRICTED RESTRICTED RESTRICTED RESTRICTED 40000 40000 5801537 5841537 442077 110519 0 0 427783 463172 527490 442077 1860522 2790783 40000 40000 106946 115793 131873 110519 465131 697697 100519 74064 26455 144289 116434 27855 54310 X 6679791 330583 58956 22507 240211 652257 6027534 16157 16157 6043691 5884336 58956 58956 5825380 16157 16157 5841537 PART X, LINE 2: MANAGEMENT HAS CONCLUDED THAT CURE EPILEPSY HAS PROPERLY MAINTAINED ITS EXEMPT STATUS. THE PREVIOUS THREE TAX YEARS ARE SUBJECT TO EXAMINATION BY FEDERAL AUTHORITIES, THERE ARE CURRENTLY NO EXAMINATIONS BEING CONDUCTED. PART XI, LINE 2D - OTHER ADJUSTMENTS: GRANT WRITE-OFFS 240,211. 1 EUROPE 0 0 GRANTS TO RECIPIENTS IN REGION 681590 MIDDLE EAST & NORTH AFRICA 0 0 GRANT TO RECIPIENT IN REGION 5997 0 0 0 0 0 0 687587 0 687587 EUROPE CURE EPILEPSY 250000 WIRE 0 EUROPE CURE EPILEPSY 249816 WIRE 0 EUROPE CATALYST 181774 WIRE 0 MIDDLE EAST & NORTH AFRICA RESEARCH CONFERENCE GRANT 5997 WIRE 0 3 1 0 0 0 0 0 0 PART I, LINE 2: GRANTEES ARE REQUIRED TO MAKE PERIODIC PROGRESS REPORTS. PART III ACCOUNTING METHOD: VIRTUAL BENEFIT 1837690 1837690 994 84 250 182736 CHAMPION 380909 380909 1035 9994 57969 1 103615 101454 2161 300 700 1160 2322214 2320053 2161 2029 10078 300 950 241865 255222 -253061 1 VIRGINIA POLYTECHNIC INST & STATE UNIVERSITY 800 WASHINGTON ST SW STE 150 BLACKSBURG VA 24061 546001805 115 667200 0 DOD AWARD EMORY UNIVERSITY 201 DOWMAN DR ATLANTA GA 30322 580566256 501(C)(3) 250000 0 CURE EPILEPSY UNIVERSITY OF KENTUCKY 10 FUNKERHOUSE BLDG LEXINGTON KY 40506 616001218 115 250000 0 CATALYST RESEARCH FOUNDATION OF THE STATE OF NY PO BOX 9 ALBANY NY 12201 141368361 501(C)(3) 250000 0 CURE EPILEPSY COGNIZANCE BIOMARKERS LLC 3160 CHESTNUT ST STE 200 PHILADELPHIA PA 19104 452496245 OTHER 238050 0 CATALYST UNIVERSITY OF WASHINGTON 1400 NE CAMPUS PKWY SEATTLE WA 98195 916001537 115 141154 0 CATALYST TRUSTEES OF UNIVERSITY OF PENNSYLVANIA 3451 WALNUT ST PHILADELPHIA PA 19104 231352685 501(C)(3) 100000 0 TAKING FLIGHT UNIVERSITY OF UTAH 201 PRESIDENTS CIR SALT LAKE CITY UT 84112 876000525 115 100000 0 TAKING FLIGHT MASSACHUSETTS GENERAL HOSPITAL 55 FRUIT ST BOSTON MA 02114 041564655 501(C)(3) 99999 0 TAKING FLIGHT UNIVERSITY OF SOUTHERN CALIFORNIA UNIVERSITY GARDENS UGB203 LOS ANGELES CA 90089 951642394 501(C)(3) 88621 0 DOD AWARD UNIVERSITY OF FLORIDA BOARD OF TRUSTEES UNIVERSITY OF FLORIDA GAINESVILLE FL 32611 596002052 115 61409 0 DOD AWARD AMERICAN EPILEPSY SOCIETY 135 S LASALLE ST NO 2850 CHICAGO IL 60603 046112600 501(C)(3) 12750 0 RESEARCH CONFERENCE GRANTS GORDON RESEARCH CONFERENCES 512 LIBERTY LN WEST KINGSTON RI 02892 260150662 501(C)(3) 9700 0 RESEARCH CONFERENCE GRANTS 12 1 PART I, LINE 2: GRANTEES ARE REQUIRED TO MAKE PERIODIC PROGRESS REPORTS. X X X X X 0 0 0 0 0 0 0 0 0 BETH LEWIN DEAN CEO 256178 0 27810 0 0 0 7960 0 26708 0 318656 0 0 0 LAURA LUBBERS CHIEF SCIENTIFIC OFFICER 261099 0 29248 0 0 0 8049 0 7794 0 306190 0 0 0 DEBBY HECHT SR DIRECTOR, MARKET & COMS 156135 0 0 0 0 0 4691 0 1673 0 162499 0 0 0 ALSYHA BIEHL SR DIRECTOR, DEVELOPMENT 143152 0 0 0 0 0 4361 0 9498 0 157011 0 0 0 X 10 304466 FMV X TICKETS FOR FUNDRAISER 2 700 FMV 0 0 1 PART I, COLUMN (B): THE NUMBER OF CONTRIBUTIONS RECEIVED, RATHER THAN THE NUMBER OF STOCK SHARES RECEIVED, ARE BEING REPORTED FOR SCHEDULE M PURPOSES. THE NUMBER OF TICKETS RECEIVED IS ALSO BEING REPORTED ON SCHEDULE M. PART I, LINE 32B: THE ORGANIZATION DISPOSES OF DONATED SECURITIES THROUGH AN INVESTMENT BROKER UPON RECEIPT. FORM 990, PART VI, SECTION B, LINE 11B FORM 990 IS REVIEWED BY THE FINANCE MANAGER, TREASURER, AND CHIEF EXECUTIVE OFFICER. WHEN THE DRAFT IS APPROVED, IT IS SENT TO THE ENTIRE BOARD. FORM 990, PART VI, SECTION B, LINE 12C EACH BOARD MEMBER SIGNS IT ANNUALLY AND EXPECTS TO SELF-MONITOR. CONFLICTS ARE DEALT WITH ON A CASE-BY-CASE BASIS. FORM 990, PART VI, SECTION B, LINE 15A COMPARABLE SALARY INFORMATION IS OBTAINED AND REVIEWED USING AN OUTSIDE EXECUTIVE SEARCH FIRM. THE BOARD OF DIRECTORS HAS FINAL APPROVAL, AND REVIEWS COMPENSATION ANNUALLY. FORM 990, PART VI, SECTION C, LINE 19 GOVERNING DOCUMENTS AND CONFLICT OF INTEREST POLICY ARE NOT GENERALLY AVAILABLE TO THE PUBLIC. THE ORGANIZATION'S FINANCIAL STATEMENTS ARE AVAILABLE ON ITS WEBSITE. FORM 990, PART XI, LINE 9: GRANTS RETURNED & WRITTEN OFF 262,718.