CITIZENS UNITED FOR RESEARCH IN EPILEPSY: Form 990, tax year 2014
View the entire original 990 at ProPublica ↗
- Organization
- CITIZENS UNITED FOR RESEARCH IN EPILEPSY (EIN 36-4253176)
- Tax period
- 2014-01-01 to 2014-12-31
- Filed
- 2015-06-11
- IRS object ID
- 201531629349300203
- Schema version
- 2014v5.0
- Source
- Download XML · Original 990 at ProPublica
Every field in the e-filed return. Faint text is the IRS element name, for citing.
- Return header
- Form 990
- Schedule A
- Schedule B
- Schedule C
- Schedule D
- Schedule F
- Schedule G
- Schedule I
- Schedule O
Return header ReturnHeader
| Field | Value | IRS element (for citing) |
|---|---|---|
| Return | 2015-06-11T08:31:59-05:00 | ReturnTs |
| Tax Period End | 2014-12-31 | TaxPeriodEndDt |
Preparer Firm PreparerFirmGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Preparer Firm EIN | 521446779 | PreparerFirmEIN |
Preparer Firm Name PreparerFirmName
| Field | Value | IRS element (for citing) |
|---|---|---|
| Business Name Line1 | JOHNSON LAMBERT LLP | BusinessNameLine1Txt |
Preparer US Address PreparerUSAddress
| Field | Value | IRS element (for citing) |
|---|---|---|
| Address Line1 | 700 SPRING FOREST ROAD STE 115 | AddressLine1Txt |
| City | RALEIGH | CityNm |
| State Abbreviation | NC | StateAbbreviationCd |
| ZIP | 27609 | ZIPCd |
| Field | Value | IRS element (for citing) |
|---|---|---|
| Return Type | 990 | ReturnTypeCd |
| Tax Period Begin | 2014-01-01 | TaxPeriodBeginDt |
Filer Filer
| Field | Value | IRS element (for citing) |
|---|---|---|
| EIN | 364253176 | EIN |
Business Name BusinessName
| Field | Value | IRS element (for citing) |
|---|---|---|
| Business Name Line1 | CITIZENS UNITED FOR RESEARCH IN EPILEPSY | BusinessNameLine1Txt |
| Field | Value | IRS element (for citing) |
|---|---|---|
| Business Name Control | CITI | BusinessNameControlTxt |
| Phone | 3122551801 | PhoneNum |
US Address USAddress
| Field | Value | IRS element (for citing) |
|---|---|---|
| Address Line1 | 430 W ERIE NO 210 | AddressLine1Txt |
| City | CHICAGO | CityNm |
| State Abbreviation | IL | StateAbbreviationCd |
| ZIP | 60654 | ZIPCd |
Business Officer BusinessOfficerGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Person | ROBIN HARDING | PersonNm |
| Person Title | CHIEF EXECUTIVE OFFICER | PersonTitleTxt |
| Phone | 3122551801 | PhoneNum |
| Signature | 2015-06-10 | SignatureDt |
| Discuss With Paid Preparer | Yes (1) | DiscussWithPaidPreparerInd |
Preparer Person PreparerPersonGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Preparer Person | JOHN HUSKINS | PreparerPersonNm |
| PTIN | P01081531 | PTIN |
| Phone | 9197196400 | PhoneNum |
| Preparation | 2015-06-11 | PreparationDt |
| Field | Value | IRS element (for citing) |
|---|---|---|
| Tax | 2014 | TaxYr |
| Build TS | 2016-02-25 16:41:14Z | BuildTS |
Form 990 IRS990
| Field | Value | IRS element (for citing) |
|---|---|---|
| Principal Officer | ROBIN HARDING | PrincipalOfficerNm |
US Address USAddress
| Field | Value | IRS element (for citing) |
|---|---|---|
| Address Line1 | 430 W ERIE NO 210 | AddressLine1Txt |
| City | CHICAGO | CityNm |
| State Abbreviation | IL | StateAbbreviationCd |
| ZIP | 60654 | ZIPCd |
| Field | Value | IRS element (for citing) |
|---|---|---|
| Gross Receipts | $8,289,112 | GrossReceiptsAmt |
| Group Return For Affiliates | 0 | GroupReturnForAffiliatesInd |
| Organization501c3 | Yes (X) | Organization501c3Ind |
| Website Address | WWW.CUREEPILEPSY.ORG | WebsiteAddressTxt |
| Type Of Organization Corp | Yes (X) | TypeOfOrganizationCorpInd |
| Formation | 1998 | FormationYr |
| Legal Domicile State | IL | LegalDomicileStateCd |
| Activity Or Mission | CURE'S MISSION IS TO CURE EPILEPSY, TRANSFORMING AND SAVING MILLIONS OF LIVES. WE IDENTIFY AND FUND CUTTING-EDGE RESEARCH, CHALLENGING SCIENTISTS WORLDWIDE TO COLLABORATE AND INNOVATE IN PURSUIT OF THIS GOAL. OUR COMMITMENT IS UNRELENTING. | ActivityOrMissionDesc |
| Voting Members Governing Body | 13 | VotingMembersGoverningBodyCnt |
| Voting Members Independent | 13 | VotingMembersIndependentCnt |
| Total Employee | 12 | TotalEmployeeCnt |
| Total Volunteers | 370 | TotalVolunteersCnt |
| Total Gross UBI | $0 | TotalGrossUBIAmt |
| Net Unrelated Bus Txbl Incm | $0 | NetUnrelatedBusTxblIncmAmt |
| PY Contributions Grants | $4,584,975 | PYContributionsGrantsAmt |
| CY Contributions Grants | $5,533,358 | CYContributionsGrantsAmt |
| PY Program Service Revenue | $0 | PYProgramServiceRevenueAmt |
| CY Program Service Revenue | $0 | CYProgramServiceRevenueAmt |
| PY Investment Income | $365,014 | PYInvestmentIncomeAmt |
| CY Investment Income | $186,204 | CYInvestmentIncomeAmt |
| PY Other Revenue | -$140,787 | PYOtherRevenueAmt |
| CY Other Revenue | -$329,404 | CYOtherRevenueAmt |
| PY Total Revenue | $4,809,202 | PYTotalRevenueAmt |
| CY Total Revenue | $5,390,158 | CYTotalRevenueAmt |
| PY Grants And Similar Paid | $2,792,588 | PYGrantsAndSimilarPaidAmt |
| CY Grants And Similar Paid | $4,832,430 | CYGrantsAndSimilarPaidAmt |
| PY Benefits Paid To Members | $0 | PYBenefitsPaidToMembersAmt |
| CY Benefits Paid To Members | $0 | CYBenefitsPaidToMembersAmt |
| PY Salaries Comp Emp Bnft Paid | $865,470 | PYSalariesCompEmpBnftPaidAmt |
| CY Salaries Comp Emp Bnft Paid | $752,661 | CYSalariesCompEmpBnftPaidAmt |
| PY Total Prof Fndrsng Expns | $0 | PYTotalProfFndrsngExpnsAmt |
| CY Total Prof Fndrsng Expns | $0 | CYTotalProfFndrsngExpnsAmt |
| CY Total Fundraising Expense | $283,442 | CYTotalFundraisingExpenseAmt |
| PY Other Expenses | $872,559 | PYOtherExpensesAmt |
| CY Other Expenses | $1,114,187 | CYOtherExpensesAmt |
| PY Total Expenses | $4,530,617 | PYTotalExpensesAmt |
| CY Total Expenses | $6,699,278 | CYTotalExpensesAmt |
| PY Revenues Less Expenses | $278,585 | PYRevenuesLessExpensesAmt |
| CY Revenues Less Expenses | -$1,309,120 | CYRevenuesLessExpensesAmt |
| Total Assets BOY | $10,417,108 | TotalAssetsBOYAmt |
| Total Assets EOY | $9,967,864 | TotalAssetsEOYAmt |
| Total Liabilities BOY | $2,028,100 | TotalLiabilitiesBOYAmt |
| Total Liabilities EOY | $2,952,799 | TotalLiabilitiesEOYAmt |
| Net Assets Or Fund Balances BOY | $8,389,008 | NetAssetsOrFundBalancesBOYAmt |
| Net Assets Or Fund Balances EOY | $7,015,065 | NetAssetsOrFundBalancesEOYAmt |
| Mission | CITIZENS UNITED FOR RESEARCH IN EPILEPSY IS DEDICATED TO FINDING A CURE FOR EPILEPSY BY RAISING FUNDS FOR RESEARCH AND BY INCREASING AWARENESS OF THE PREVALENCE AND DEVASTATION OF THIS DISEASE. | MissionDesc |
| Significant New Program Srvc | 0 | SignificantNewProgramSrvcInd |
| Significant Change | 0 | SignificantChangeInd |
| Expense | $5,638,813 | ExpenseAmt |
| Grant | $4,832,430 | GrantAmt |
| Desc | ISSUING OF GRANTS TO FUND RESEARCH FOR A CURE FOR EPILEPSY. SINCE ITS INCEPTION IN 1998, CURE HAS RAISED MORE THAN $32 MILLION TO FUND EPILEPSY RESEARCH PROJECTS AND OTHER INITIATIVES THAT WILL LEAD THE WAY TO A CURE. CURE AWARDS SEED GRANTS FOR NOVEL RESEARCH PROJECTS THAT ADDRESS THE GOALS OF "NO SEIZURES, NO SIDE EFFECTS." THESE GRANTS ALLOW NEW AND ESTABLISHED INVESTIGATORS TO EXPLORE NEW INNOVATIVE AREAS AND COLLECT THE DATA NECESSARY TO APPLY FOR FURTHER FUNDING BY THE NATIONAL INSTITUTES OF HEALTH (NIH). TO DATE, CURE HAS AWARDED FUNDING FOR OVER 165 CUTTING EDGE PROJECTS. | Desc |
Prog Srvc Accom Acty2 ProgSrvcAccomActy2Grp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Expense | $410,805 | ExpenseAmt |
| Desc | CURE SPONSORS SCIENTIFIC CONFERENCES THAT ARE WORKING TO BRING THE BRIGHTEST MINDS TOGETHER TO DISCUSS SOME OF OUR BIGGEST AND MOST IMPORTANT ISSUES, DRIVING AWARENESS OF THE PREVALENCE AND DEVASTATION OF EPILEPSY THROUGH THE FRONTIERS IN RESEARCH SEMINAR SERIES. CURE BELIEVES THAT AWARENESS IS A NECESSARY VEHICLE TO INCREASE THE AMOUNT OF FUNDING FOR BASIC RESEARCH TOWARD A CURE FOR EPILEPSY. | Desc |
| Field | Value | IRS element (for citing) |
|---|---|---|
| Total Program Service Expenses | $6,049,618 | TotalProgramServiceExpensesAmt |
| Described In Section501c3 | Yes (1) | DescribedInSection501c3Ind |
| Schedule B Required | Yes (1) | ScheduleBRequiredInd |
| Political Campaign Acty | 0 | PoliticalCampaignActyInd |
| Lobbying Activities | Yes (1) | LobbyingActivitiesInd |
| Subject To Proxy Tax | 0 | SubjectToProxyTaxInd |
| Donor Advised Fund | 0 | DonorAdvisedFundInd |
| Conservation Easements | 0 | ConservationEasementsInd |
| Collections Of Art | 0 | CollectionsOfArtInd |
| Credit Counseling | 0 | CreditCounselingInd |
| Temp Or Permanent Endowments | 0 | TempOrPermanentEndowmentsInd |
| Report Land Building Equipment | Yes (1) | ReportLandBuildingEquipmentInd |
| Report Investments Other Sec | 0 | ReportInvestmentsOtherSecInd |
| Report Program Related Invst | 0 | ReportProgramRelatedInvstInd |
| Report Other Assets | 0 | ReportOtherAssetsInd |
| Report Other Liabilities | 0 | ReportOtherLiabilitiesInd |
| Include FIN48 Footnote | 0 | IncludeFIN48FootnoteInd |
| Independent Audit Fincl Stmt | Yes (1) | IndependentAuditFinclStmtInd |
| Consolidated Audit Fincl Stmt | 0 | ConsolidatedAuditFinclStmtInd |
| School Operating | 0 | SchoolOperatingInd |
| Foreign Office | 0 | ForeignOfficeInd |
| Foreign Activities | Yes (1) | ForeignActivitiesInd |
| More Than5000 K To Org | Yes (1) | MoreThan5000KToOrgInd |
| More Than5000 K To Individuals | 0 | MoreThan5000KToIndividualsInd |
| Professional Fundraising | 0 | ProfessionalFundraisingInd |
| Fundraising Activities | Yes (1) | FundraisingActivitiesInd |
| Gaming Activities | 0 | GamingActivitiesInd |
| Operate Hospital | 0 | OperateHospitalInd |
| Grants To Organizations | Yes (1) | GrantsToOrganizationsInd |
| Grants To Individuals | 0 | GrantsToIndividualsInd |
| Schedule J Required | 0 | ScheduleJRequiredInd |
| Tax Exempt Bonds | 0 | TaxExemptBondsInd |
| Engaged In Excess Benefit Trans | 0 | EngagedInExcessBenefitTransInd |
| PY Excess Benefit Trans | 0 | PYExcessBenefitTransInd |
| Loan Outstanding | 0 | LoanOutstandingInd |
| Grant To Related Person | 0 | GrantToRelatedPersonInd |
| Business Rln With Org Mem | 0 | BusinessRlnWithOrgMemInd |
| Business Rln With Fam Mem | 0 | BusinessRlnWithFamMemInd |
| Business Rln With Officer Ent | 0 | BusinessRlnWithOfficerEntInd |
| Deductible Non Cash Contri | 0 | DeductibleNonCashContriInd |
| Deductible Art Contribution | 0 | DeductibleArtContributionInd |
| Terminate Operations | 0 | TerminateOperationsInd |
| Partial Liquidation | 0 | PartialLiquidationInd |
| Disregarded Entity | 0 | DisregardedEntityInd |
| Related Entity | 0 | RelatedEntityInd |
| Related Organization Ctrl Ent | 0 | RelatedOrganizationCtrlEntInd |
| Trnsfr Exmpt Non Chrtbl Rltd Org | 0 | TrnsfrExmptNonChrtblRltdOrgInd |
| Activities Conducted Prtshp | 0 | ActivitiesConductedPrtshpInd |
| Schedule O Required | Yes (1) | ScheduleORequiredInd |
| IRP Document | 12 | IRPDocumentCnt |
| IRP Document W2 G | 0 | IRPDocumentW2GCnt |
| Backup Wthld Compliance | Yes (1) | BackupWthldComplianceInd |
| Employee | 12 | EmployeeCnt |
| Employment Tax Returns Filed | Yes (1) | EmploymentTaxReturnsFiledInd |
| Unrelated Bus Incm Over Limit | 0 | UnrelatedBusIncmOverLimitInd |
| Foreign Financial Account | 0 | ForeignFinancialAccountInd |
| Prohibited Tax Shelter Trans | 0 | ProhibitedTaxShelterTransInd |
| Taxable Party Notification | 0 | TaxablePartyNotificationInd |
| Nondeductible Contributions | 0 | NondeductibleContributionsInd |
| Quid Pro Quo Contributions | Yes (1) | QuidProQuoContributionsInd |
| Quid Pro Quo Contri Discl | Yes (1) | QuidProQuoContriDisclInd |
| Form8282 Property Disposed Of | 0 | Form8282PropertyDisposedOfInd |
| Rcv Fnds To Pay Prsnl Bnft Cntrct | 0 | RcvFndsToPayPrsnlBnftCntrctInd |
| Pay Premiums Prsnl Bnft Cntrct | 0 | PayPremiumsPrsnlBnftCntrctInd |
| Indoor Tanning Services | 0 | IndoorTanningServicesInd |
| Info In Schedule O Part VI | Yes (X) | InfoInScheduleOPartVIInd |
| Governing Body Voting Members | 13 | GoverningBodyVotingMembersCnt |
| Independent Voting Member | 13 | IndependentVotingMemberCnt |
| Family Or Business Rln | 0 | FamilyOrBusinessRlnInd |
| Delegation Of Mgmt Duties | 0 | DelegationOfMgmtDutiesInd |
| Change To Org Documents | 0 | ChangeToOrgDocumentsInd |
| Material Diversion Or Misuse | 0 | MaterialDiversionOrMisuseInd |
| Members Or Stockholders | 0 | MembersOrStockholdersInd |
| Election Of Board Members | 0 | ElectionOfBoardMembersInd |
| Decisions Subject To Approva | 0 | DecisionsSubjectToApprovaInd |
| Minutes Of Governing Body | Yes (1) | MinutesOfGoverningBodyInd |
| Minutes Of Committees | Yes (1) | MinutesOfCommitteesInd |
| Officer Mailing Address | 0 | OfficerMailingAddressInd |
| Local Chapters | 0 | LocalChaptersInd |
| Form990 Provided To Gvrn Body | Yes (1) | Form990ProvidedToGvrnBodyInd |
| Conflict Of Interest Policy | Yes (1) | ConflictOfInterestPolicyInd |
| Annual Disclosure Covered Prsn | Yes (1) | AnnualDisclosureCoveredPrsnInd |
| Regular Monitoring Enfrc | Yes (1) | RegularMonitoringEnfrcInd |
| Whistleblower Policy | Yes (1) | WhistleblowerPolicyInd |
| Document Retention Policy | Yes (1) | DocumentRetentionPolicyInd |
| Compensation Process CEO | Yes (1) | CompensationProcessCEOInd |
| Compensation Process Other | 0 | CompensationProcessOtherInd |
| Investment In Joint Venture | 0 | InvestmentInJointVentureInd |
| States Where Copy Of Return Is Fld | AL | StatesWhereCopyOfReturnIsFldCd |
| States Where Copy Of Return Is Fld | AK | StatesWhereCopyOfReturnIsFldCd |
| States Where Copy Of Return Is Fld | AR | StatesWhereCopyOfReturnIsFldCd |
| States Where Copy Of Return Is Fld | CA | StatesWhereCopyOfReturnIsFldCd |
| States Where Copy Of Return Is Fld | CO | StatesWhereCopyOfReturnIsFldCd |
| States Where Copy Of Return Is Fld | CT | StatesWhereCopyOfReturnIsFldCd |
| States Where Copy Of Return Is Fld | FL | StatesWhereCopyOfReturnIsFldCd |
| States Where Copy Of Return Is Fld | GA | StatesWhereCopyOfReturnIsFldCd |
| States Where Copy Of Return Is Fld | HI | StatesWhereCopyOfReturnIsFldCd |
| States Where Copy Of Return Is Fld | IL | StatesWhereCopyOfReturnIsFldCd |
| States Where Copy Of Return Is Fld | KS | StatesWhereCopyOfReturnIsFldCd |
| States Where Copy Of Return Is Fld | KY | StatesWhereCopyOfReturnIsFldCd |
| States Where Copy Of Return Is Fld | MD | StatesWhereCopyOfReturnIsFldCd |
| States Where Copy Of Return Is Fld | MA | StatesWhereCopyOfReturnIsFldCd |
| States Where Copy Of Return Is Fld | MI | StatesWhereCopyOfReturnIsFldCd |
| States Where Copy Of Return Is Fld | MN | StatesWhereCopyOfReturnIsFldCd |
| States Where Copy Of Return Is Fld | MS | StatesWhereCopyOfReturnIsFldCd |
| States Where Copy Of Return Is Fld | NH | StatesWhereCopyOfReturnIsFldCd |
| States Where Copy Of Return Is Fld | NJ | StatesWhereCopyOfReturnIsFldCd |
| States Where Copy Of Return Is Fld | NM | StatesWhereCopyOfReturnIsFldCd |
| States Where Copy Of Return Is Fld | NY | StatesWhereCopyOfReturnIsFldCd |
| States Where Copy Of Return Is Fld | NC | StatesWhereCopyOfReturnIsFldCd |
| States Where Copy Of Return Is Fld | OH | StatesWhereCopyOfReturnIsFldCd |
| States Where Copy Of Return Is Fld | OK | StatesWhereCopyOfReturnIsFldCd |
| States Where Copy Of Return Is Fld | OR | StatesWhereCopyOfReturnIsFldCd |
| States Where Copy Of Return Is Fld | PA | StatesWhereCopyOfReturnIsFldCd |
| States Where Copy Of Return Is Fld | RI | StatesWhereCopyOfReturnIsFldCd |
| States Where Copy Of Return Is Fld | SC | StatesWhereCopyOfReturnIsFldCd |
| States Where Copy Of Return Is Fld | TN | StatesWhereCopyOfReturnIsFldCd |
| States Where Copy Of Return Is Fld | UT | StatesWhereCopyOfReturnIsFldCd |
| States Where Copy Of Return Is Fld | VA | StatesWhereCopyOfReturnIsFldCd |
| States Where Copy Of Return Is Fld | WA | StatesWhereCopyOfReturnIsFldCd |
| States Where Copy Of Return Is Fld | WI | StatesWhereCopyOfReturnIsFldCd |
| States Where Copy Of Return Is Fld | WV | StatesWhereCopyOfReturnIsFldCd |
| Upon Request | Yes (X) | UponRequestInd |
Books In Care Of Detail BooksInCareOfDetail
Business Name BusinessName
| Field | Value | IRS element (for citing) |
|---|---|---|
| Business Name Line1 | ROBIN HARDING | BusinessNameLine1Txt |
| Field | Value | IRS element (for citing) |
|---|---|---|
| Phone | 3122551801 | PhoneNum |
US Address USAddress
| Field | Value | IRS element (for citing) |
|---|---|---|
| Address Line1 | 430 W ERIE NO 210 | AddressLine1Txt |
| City | CHICAGO | CityNm |
| State Abbreviation | IL | StateAbbreviationCd |
| ZIP | 60654 | ZIPCd |
Form990 Part VII Section A Form990PartVIISectionAGrp (17 entries)
| TitleTitleTxt | Average Hours Per WeekAverageHoursPerWeekRt | Individual Trustee Or DirectorIndividualTrusteeOrDirectorInd | OfficerOfficerInd | Reportable Comp From OrgReportableCompFromOrgAmt | Reportable Comp From Rltd OrgReportableCompFromRltdOrgAmt | Other CompensationOtherCompensationAmt | Highest Compensated EmployeeHighestCompensatedEmployeeInd |
|---|---|---|---|---|---|---|---|
| SUSAN AXELROD | |||||||
| FOUNDING CHAIR | 1.00 | Yes (X) | Yes (X) | $0 | $0 | $0 | |
| GARDINER LAPHAM | |||||||
| CHAIR | 1.00 | Yes (X) | Yes (X) | $0 | $0 | $0 | |
| SHARON O'KEEFE | |||||||
| CHAIR-ELECT | 1.00 | Yes (X) | Yes (X) | $0 | $0 | $0 | |
| ANN BENSCHOTER | |||||||
| SECRETARY | 1.00 | Yes (X) | Yes (X) | $0 | $0 | $0 | |
| THOMAS HYNES | |||||||
| TREASURER (TO SEP '14) | 1.00 | Yes (X) | Yes (X) | $0 | $0 | $0 | |
| PAUL HELDMAN | |||||||
| TREASURER | 1.00 | Yes (X) | Yes (X) | $0 | $0 | $0 | |
| CRAIG ALBERT | |||||||
| DIRECTOR (TO JAN '14) | 1.00 | Yes (X) | $0 | $0 | $0 | ||
| PHIL EMERY | |||||||
| DIRECTOR (FROM SEP '14) | 1.00 | Yes (X) | $0 | $0 | $0 | ||
| CAROL FULP | |||||||
| DIRECTOR | 1.00 | Yes (X) | $0 | $0 | $0 | ||
| SCOTT LEISHER | |||||||
| DIRECTOR | 1.00 | Yes (X) | $0 | $0 | $0 | ||
| GREG LEWIS | |||||||
| DIRECTOR | 1.00 | Yes (X) | $0 | $0 | $0 | ||
| JOEL MARCUS | |||||||
| DIRECTOR | 1.00 | Yes (X) | $0 | $0 | $0 | ||
| CONNIE MILSTEIN | |||||||
| DIRECTOR | 1.00 | Yes (X) | $0 | $0 | $0 | ||
| EVELYN NUSSENBAUM | |||||||
| DIRECTOR | 1.00 | Yes (X) | $0 | $0 | $0 | ||
| C RENZI STONE | |||||||
| DIRECTOR | 1.00 | Yes (X) | $0 | $0 | $0 | ||
| ROBIN HARDING | |||||||
| CHIEF EXECUTIVE OFFICER | 37.50 | Yes (X) | $118,303 | $0 | $3,981 | ||
| JULIE MILDER | |||||||
| ASSOC RESEARCH DIRECTOR | 37.50 | $100,903 | $0 | $14,910 | Yes (X) | ||
| Field | Value | IRS element (for citing) |
|---|---|---|
| Total Reportable Comp From Org | $219,206 | TotalReportableCompFromOrgAmt |
| Tot Reportable Comp Rltd Org | $0 | TotReportableCompRltdOrgAmt |
| Total Other Compensation | $18,891 | TotalOtherCompensationAmt |
| Indiv Rcvd Greater Than100 K | 2 | IndivRcvdGreaterThan100KCnt |
| Former Ofcr Employees Listed | 0 | FormerOfcrEmployeesListedInd |
| Total Comp Greater Than150 K | 0 | TotalCompGreaterThan150KInd |
| Compensation From Other Srcs | 0 | CompensationFromOtherSrcsInd |
| Cntrct Rcvd Greater Than100 K | 0 | CntrctRcvdGreaterThan100KCnt |
| Fundraising | $2,945,985 | FundraisingAmt |
| All Other Contributions | $2,587,373 | AllOtherContributionsAmt |
| Total Contributions | $5,533,358 | TotalContributionsAmt |
Investment Income InvestmentIncomeGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Total Revenue Column | $181,509 | TotalRevenueColumnAmt |
| Exclusion | $181,509 | ExclusionAmt |
Gross Amount Sales Assets GrossAmountSalesAssetsGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Securities | $2,343,596 | SecuritiesAmt |
Less Cost Oth Basis Sales Expnss LessCostOthBasisSalesExpnssGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Securities | $2,338,901 | SecuritiesAmt |
Gain Or Loss GainOrLossGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Securities | $4,695 | SecuritiesAmt |
Net Gain Or Loss Investments NetGainOrLossInvestmentsGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Total Revenue Column | $4,695 | TotalRevenueColumnAmt |
| Exclusion | $4,695 | ExclusionAmt |
| Field | Value | IRS element (for citing) |
|---|---|---|
| Fundraising Gross Income | $222,550 | FundraisingGrossIncomeAmt |
| Contri Rpt Fundraising Event | $2,945,985 | ContriRptFundraisingEventAmt |
| Fundraising Direct Expenses | $560,053 | FundraisingDirectExpensesAmt |
Net Incm From Fundraising Evt NetIncmFromFundraisingEvtGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Total Revenue Column | -$337,503 | TotalRevenueColumnAmt |
| Exclusion | -$337,503 | ExclusionAmt |
Other Revenue Misc OtherRevenueMiscGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Desc | OTHER | Desc |
| Business | 900099 | BusinessCd |
| Total Revenue Column | $8,099 | TotalRevenueColumnAmt |
| Exclusion | $8,099 | ExclusionAmt |
| Field | Value | IRS element (for citing) |
|---|---|---|
| Other Revenue Total | $8,099 | OtherRevenueTotalAmt |
Total Revenue TotalRevenueGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Total Revenue Column | $5,390,158 | TotalRevenueColumnAmt |
| Related Or Exempt Func Income | $0 | RelatedOrExemptFuncIncomeAmt |
| Unrelated Business Revenue | $0 | UnrelatedBusinessRevenueAmt |
| Exclusion | -$143,200 | ExclusionAmt |
Grants To Domestic Orgs GrantsToDomesticOrgsGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Total | $3,833,143 | TotalAmt |
| Program Services | $3,833,143 | ProgramServicesAmt |
Foreign Grants ForeignGrantsGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Total | $999,287 | TotalAmt |
| Program Services | $999,287 | ProgramServicesAmt |
Comp Current Ofcr Directors CompCurrentOfcrDirectorsGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Total | $122,284 | TotalAmt |
| Program Services | $61,142 | ProgramServicesAmt |
| Management And General | $30,571 | ManagementAndGeneralAmt |
| Fundraising | $30,571 | FundraisingAmt |
Other Salaries And Wages OtherSalariesAndWagesGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Total | $519,493 | TotalAmt |
| Program Services | $399,274 | ProgramServicesAmt |
| Management And General | $59,541 | ManagementAndGeneralAmt |
| Fundraising | $60,678 | FundraisingAmt |
Pension Plan Contributions PensionPlanContributionsGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Total | $10,645 | TotalAmt |
| Program Services | $7,605 | ProgramServicesAmt |
| Management And General | $1,478 | ManagementAndGeneralAmt |
| Fundraising | $1,562 | FundraisingAmt |
Other Employee Benefits OtherEmployeeBenefitsGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Total | $52,063 | TotalAmt |
| Program Services | $38,249 | ProgramServicesAmt |
| Management And General | $6,963 | ManagementAndGeneralAmt |
| Fundraising | $6,851 | FundraisingAmt |
Payroll Taxes PayrollTaxesGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Total | $48,176 | TotalAmt |
| Program Services | $34,689 | ProgramServicesAmt |
| Management And General | $6,727 | ManagementAndGeneralAmt |
| Fundraising | $6,760 | FundraisingAmt |
Fees For Services Accounting FeesForServicesAccountingGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Total | $62,128 | TotalAmt |
| Management And General | $62,128 | ManagementAndGeneralAmt |
Fees For Services Other FeesForServicesOtherGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Total | $294,360 | TotalAmt |
| Program Services | $185,278 | ProgramServicesAmt |
| Management And General | $80,170 | ManagementAndGeneralAmt |
| Fundraising | $28,912 | FundraisingAmt |
Advertising AdvertisingGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Total | $8,557 | TotalAmt |
| Program Services | $7,553 | ProgramServicesAmt |
| Fundraising | $1,004 | FundraisingAmt |
Office Expenses OfficeExpensesGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Total | $119,341 | TotalAmt |
| Program Services | $60,075 | ProgramServicesAmt |
| Management And General | $35,982 | ManagementAndGeneralAmt |
| Fundraising | $23,284 | FundraisingAmt |
Information Technology InformationTechnologyGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Total | $108,752 | TotalAmt |
| Program Services | $70,490 | ProgramServicesAmt |
| Management And General | $23,164 | ManagementAndGeneralAmt |
| Fundraising | $15,098 | FundraisingAmt |
Occupancy OccupancyGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Total | $65,364 | TotalAmt |
| Program Services | $47,075 | ProgramServicesAmt |
| Management And General | $9,135 | ManagementAndGeneralAmt |
| Fundraising | $9,154 | FundraisingAmt |
Travel TravelGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Total | $98,757 | TotalAmt |
| Program Services | $65,375 | ProgramServicesAmt |
| Management And General | $26,995 | ManagementAndGeneralAmt |
| Fundraising | $6,387 | FundraisingAmt |
Conferences Meetings ConferencesMeetingsGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Total | $301,723 | TotalAmt |
| Program Services | $221,207 | ProgramServicesAmt |
| Fundraising | $80,516 | FundraisingAmt |
Depreciation Depletion DepreciationDepletionGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Total | $15,315 | TotalAmt |
| Management And General | $15,315 | ManagementAndGeneralAmt |
Insurance InsuranceGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Total | $10,717 | TotalAmt |
| Program Services | $7,578 | ProgramServicesAmt |
| Management And General | $1,659 | ManagementAndGeneralAmt |
| Fundraising | $1,480 | FundraisingAmt |
Other Expenses OtherExpensesGrp (3 entries)
| DescDesc | TotalTotalAmt | Program ServicesProgramServicesAmt | Management And GeneralManagementAndGeneralAmt | FundraisingFundraisingAmt |
|---|---|---|---|---|
| LICENSES & FEES | $15,435 | $7,490 | $10 | $7,935 |
| DUES & SUBSCRIPTIONS | $10,855 | $3,520 | $4,085 | $3,250 |
| MISCELLANEOUS | $2,883 | $588 | $2,295 |
Total Functional Expenses TotalFunctionalExpensesGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Total | $6,699,278 | TotalAmt |
| Program Services | $6,049,618 | ProgramServicesAmt |
| Management And General | $366,218 | ManagementAndGeneralAmt |
| Fundraising | $283,442 | FundraisingAmt |
Cash Non Interest Bearing CashNonInterestBearingGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| BOY | $680,137 | BOYAmt |
| EOY | $1,094,588 | EOYAmt |
Savings And Temp Cash Invst SavingsAndTempCashInvstGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| BOY | $4,650,789 | BOYAmt |
| EOY | $3,638,131 | EOYAmt |
Pledges And Grants Receivable PledgesAndGrantsReceivableGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| BOY | $250,000 | BOYAmt |
| EOY | $420,000 | EOYAmt |
Accounts Receivable AccountsReceivableGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| BOY | $279,039 | BOYAmt |
| EOY | $78,086 | EOYAmt |
Prepaid Expenses Defrd Charges PrepaidExpensesDefrdChargesGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| BOY | $60,009 | BOYAmt |
| EOY | $40,602 | EOYAmt |
| Field | Value | IRS element (for citing) |
|---|---|---|
| Land Bldg Equip Cost Or Other Bss | $59,196 | LandBldgEquipCostOrOtherBssAmt |
| Land Bldg Equip Accum Deprec | $13,858 | LandBldgEquipAccumDeprecAmt |
Land Bldg Equip Basis Net LandBldgEquipBasisNetGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| BOY | $25,616 | BOYAmt |
| EOY | $45,338 | EOYAmt |
Investments Pub Traded Sec InvestmentsPubTradedSecGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| BOY | $4,452,854 | BOYAmt |
| EOY | $4,632,455 | EOYAmt |
Other Assets Total OtherAssetsTotalGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| BOY | $18,664 | BOYAmt |
| EOY | $18,664 | EOYAmt |
Total Assets TotalAssetsGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| BOY | $10,417,108 | BOYAmt |
| EOY | $9,967,864 | EOYAmt |
Accounts Payable Accr Expnss AccountsPayableAccrExpnssGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| BOY | $74,605 | BOYAmt |
| EOY | $132,851 | EOYAmt |
Grants Payable GrantsPayableGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| BOY | $1,953,495 | BOYAmt |
| EOY | $2,819,948 | EOYAmt |
Total Liabilities TotalLiabilitiesGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| BOY | $2,028,100 | BOYAmt |
| EOY | $2,952,799 | EOYAmt |
| Field | Value | IRS element (for citing) |
|---|---|---|
| Organization Follows SFAS117 | Yes (X) | OrganizationFollowsSFAS117Ind |
Unrestricted Net Assets UnrestrictedNetAssetsGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| BOY | $8,139,008 | BOYAmt |
| EOY | $6,245,065 | EOYAmt |
Temporarily Rstr Net Assets TemporarilyRstrNetAssetsGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| BOY | $250,000 | BOYAmt |
| EOY | $770,000 | EOYAmt |
Total Net Assets Fund Balance TotalNetAssetsFundBalanceGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| BOY | $8,389,008 | BOYAmt |
| EOY | $7,015,065 | EOYAmt |
Tot Liab Net Assets Fund Balance TotLiabNetAssetsFundBalanceGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| BOY | $10,417,108 | BOYAmt |
| EOY | $9,967,864 | EOYAmt |
| Field | Value | IRS element (for citing) |
|---|---|---|
| Reconcilation Revenue Expnss | -$1,309,120 | ReconcilationRevenueExpnssAmt |
| Net Unrlzd Gains Losses Invst | -$64,823 | NetUnrlzdGainsLossesInvstAmt |
| Other Changes In Net Assets | $0 | OtherChangesInNetAssetsAmt |
| Method Of Accounting Accrual | Yes (X) | MethodOfAccountingAccrualInd |
| Accountant Compile Or Review | 0 | AccountantCompileOrReviewInd |
| FS Audited | Yes (1) | FSAuditedInd |
FS Audited Basis FSAuditedBasisGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Separate Basis Fincl Stmt | Yes (X) | SeparateBasisFinclStmtInd |
| Field | Value | IRS element (for citing) |
|---|---|---|
| Audit Committee | Yes (1) | AuditCommitteeInd |
| Federal Grant Audit Required | 0 | FederalGrantAuditRequiredInd |
Schedule A IRS990ScheduleA
| Field | Value | IRS element (for citing) |
|---|---|---|
| Public Organization170 | Yes (X) | PublicOrganization170Ind |
Gifts Grants Contri Rcvd170 GiftsGrantsContriRcvd170Grp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Current Tax Year Minus4 Years | $1,983,520 | CurrentTaxYearMinus4YearsAmt |
| Current Tax Year Minus3 Years | $2,000,856 | CurrentTaxYearMinus3YearsAmt |
| Current Tax Year Minus2 Years | $5,517,115 | CurrentTaxYearMinus2YearsAmt |
| Current Tax Year Minus1 Year | $4,584,975 | CurrentTaxYearMinus1YearAmt |
| Current Tax Year | $5,533,358 | CurrentTaxYearAmt |
| Total | $19,619,824 | TotalAmt |
Total Calendar Year170 TotalCalendarYear170Grp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Current Tax Year Minus4 Years | $1,983,520 | CurrentTaxYearMinus4YearsAmt |
| Current Tax Year Minus3 Years | $2,000,856 | CurrentTaxYearMinus3YearsAmt |
| Current Tax Year Minus2 Years | $5,517,115 | CurrentTaxYearMinus2YearsAmt |
| Current Tax Year Minus1 Year | $4,584,975 | CurrentTaxYearMinus1YearAmt |
| Current Tax Year | $5,533,358 | CurrentTaxYearAmt |
| Total | $19,619,824 | TotalAmt |
| Field | Value | IRS element (for citing) |
|---|---|---|
| Substantial Contributors Tot | $458,730 | SubstantialContributorsTotAmt |
| Public Support Total170 | $19,161,094 | PublicSupportTotal170Amt |
Gross Investment Income170 GrossInvestmentIncome170Grp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Current Tax Year Minus4 Years | $289,204 | CurrentTaxYearMinus4YearsAmt |
| Current Tax Year Minus3 Years | $204,428 | CurrentTaxYearMinus3YearsAmt |
| Current Tax Year Minus2 Years | $150,303 | CurrentTaxYearMinus2YearsAmt |
| Current Tax Year Minus1 Year | $186,840 | CurrentTaxYearMinus1YearAmt |
| Current Tax Year | $181,509 | CurrentTaxYearAmt |
| Total | $1,012,284 | TotalAmt |
Other Income170 OtherIncome170Grp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Current Tax Year Minus4 Years | $8,413 | CurrentTaxYearMinus4YearsAmt |
| Current Tax Year Minus3 Years | $1,482 | CurrentTaxYearMinus3YearsAmt |
| Current Tax Year Minus2 Years | $5,417 | CurrentTaxYearMinus2YearsAmt |
| Current Tax Year Minus1 Year | $5,293 | CurrentTaxYearMinus1YearAmt |
| Current Tax Year | $8,099 | CurrentTaxYearAmt |
| Total | $28,704 | TotalAmt |
| Field | Value | IRS element (for citing) |
|---|---|---|
| Total Support | $20,660,812 | TotalSupportAmt |
| Gross Receipts Rltd Activities | $5,722,753 | GrossReceiptsRltdActivitiesAmt |
| Public Support CY170 | 0.92740 | PublicSupportCY170Pct |
| Public Support PY170 | 0.92570 | PublicSupportPY170Pct |
| Thirty Thr Pct Suprt Tests CY170 | Yes (X) | ThirtyThrPctSuprtTestsCY170Ind |
Schedule B IRS990ScheduleB
Contributor Information ContributorInformationGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Contributor | RESTRICTED | ContributorNum |
Contributor Business Name ContributorBusinessName
| Field | Value | IRS element (for citing) |
|---|---|---|
| Business Name Line1 | RESTRICTED | BusinessNameLine1 |
Contributor US Address ContributorUSAddress
| Field | Value | IRS element (for citing) |
|---|---|---|
| Address Line1 | RESTRICTED | AddressLine1 |
| Address Line2 | RESTRICTED | AddressLine2 |
| City | RESTRICTED | City |
| State | RESTRICTED | State |
| ZIP Code | RESTRICTED | ZIPCode |
| Field | Value | IRS element (for citing) |
|---|---|---|
| Total Contributions | RESTRICTED | TotalContributionsAmt |
Schedule C IRS990ScheduleC
Total Grassroots Lobbying TotalGrassrootsLobbyingGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Filing Organizations Total | $0 | FilingOrganizationsTotalAmt |
Total Direct Lobbying TotalDirectLobbyingGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Filing Organizations Total | $0 | FilingOrganizationsTotalAmt |
Total Lobbying Expend TotalLobbyingExpendGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Filing Organizations Total | $0 | FilingOrganizationsTotalAmt |
Other Exempt Purpose Expend OtherExemptPurposeExpendGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Filing Organizations Total | $6,699,278 | FilingOrganizationsTotalAmt |
Total Exempt Purpose Expend TotalExemptPurposeExpendGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Filing Organizations Total | $6,699,278 | FilingOrganizationsTotalAmt |
Lobbying Nontaxable Amount LobbyingNontaxableAmountGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Filing Organizations Total | $484,964 | FilingOrganizationsTotalAmt |
Grassroots Nontaxable GrassrootsNontaxableGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Filing Organizations Total | $121,241 | FilingOrganizationsTotalAmt |
Tot Lbbyng Grassroot Mns Non Tx TotLbbyngGrassrootMnsNonTxGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Filing Organizations Total | $0 | FilingOrganizationsTotalAmt |
Tot Lbby Expend Mns Lbbyng Non Tx TotLbbyExpendMnsLbbyngNonTxGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Filing Organizations Total | $0 | FilingOrganizationsTotalAmt |
Avg Lobbying Nontaxable Amount AvgLobbyingNontaxableAmountGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Current Year Minus3 | $286,506 | CurrentYearMinus3Amt |
| Current Year Minus2 | $400,421 | CurrentYearMinus2Amt |
| Current Year Minus1 | $376,531 | CurrentYearMinus1Amt |
| Current Year | $484,964 | CurrentYearAmt |
| Total | $1,548,422 | TotalAmt |
| Field | Value | IRS element (for citing) |
|---|---|---|
| Lobbying Ceiling | $2,322,633 | LobbyingCeilingAmt |
Avg Total Lobbying Expend AvgTotalLobbyingExpendGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Current Year Minus3 | $0 | CurrentYearMinus3Amt |
| Current Year Minus2 | $0 | CurrentYearMinus2Amt |
| Current Year Minus1 | $0 | CurrentYearMinus1Amt |
| Current Year | $0 | CurrentYearAmt |
Avg Grassroots Nontaxable AvgGrassrootsNontaxableGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Current Year Minus3 | $71,627 | CurrentYearMinus3Amt |
| Current Year Minus2 | $100,105 | CurrentYearMinus2Amt |
| Current Year Minus1 | $94,133 | CurrentYearMinus1Amt |
| Current Year | $121,241 | CurrentYearAmt |
| Total | $387,106 | TotalAmt |
| Field | Value | IRS element (for citing) |
|---|---|---|
| Grassroots Ceiling | $580,659 | GrassrootsCeilingAmt |
Avg Grassroots Lobbying Expend AvgGrassrootsLobbyingExpendGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Current Year Minus3 | $0 | CurrentYearMinus3Amt |
| Current Year Minus2 | $0 | CurrentYearMinus2Amt |
| Current Year Minus1 | $0 | CurrentYearMinus1Amt |
| Current Year | $0 | CurrentYearAmt |
Schedule D IRS990ScheduleD
Leasehold Improvements LeaseholdImprovementsGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Other Cost Or Other Basis | $13,795 | OtherCostOrOtherBasisAmt |
| Depreciation | $1,639 | DepreciationAmt |
| Book Value | $12,156 | BookValueAmt |
Equipment EquipmentGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Other Cost Or Other Basis | $45,401 | OtherCostOrOtherBasisAmt |
| Depreciation | $12,219 | DepreciationAmt |
| Book Value | $33,182 | BookValueAmt |
| Field | Value | IRS element (for citing) |
|---|---|---|
| Total Book Value Land Buildings | $45,338 | TotalBookValueLandBuildingsAmt |
| Total Rev Etc Audited Fincl Stmt | $5,346,505 | TotalRevEtcAuditedFinclStmtAmt |
| Net Unrealized Gains Invst | -$64,823 | NetUnrealizedGainsInvstAmt |
| Donated Services And Use Fclts | $123,448 | DonatedServicesAndUseFcltsAmt |
| Revenue Not Reported | $58,625 | RevenueNotReportedAmt |
| Revenue Subtotal | $5,287,880 | RevenueSubtotalAmt |
| Other Revenues Not Included | $102,278 | OtherRevenuesNotIncludedAmt |
| Revenue Not Reported Fincl Stmt | $102,278 | RevenueNotReportedFinclStmtAmt |
| Total Revenue Per Form990 | $5,390,158 | TotalRevenuePerForm990Amt |
| Tot Expns Etc Audited Fincl Stmt | $6,720,448 | TotExpnsEtcAuditedFinclStmtAmt |
| Donated Services Use Fclts | $123,448 | DonatedServicesUseFcltsAmt |
| Expenses Not Reported | $123,448 | ExpensesNotReportedAmt |
| Expenses Subtotal | $6,597,000 | ExpensesSubtotalAmt |
| Other Expenses Not Included | $102,278 | OtherExpensesNotIncludedAmt |
| Expenses Not Rpt Fincl Stmt | $102,278 | ExpensesNotRptFinclStmtAmt |
| Total Expenses Per Form990 | $6,699,278 | TotalExpensesPerForm990Amt |
Supplemental Information Detail SupplementalInformationDetail (2 entries)
| Form And Line ReferenceFormAndLineReferenceDesc | ExplanationExplanationTxt |
|---|---|
| PART XI, LINE 4B - OTHER ADJUSTMENTS: | FUNDRAISING EXPENSES 102,278. |
| PART XII, LINE 4B - OTHER ADJUSTMENTS: | FUNDRAISING EXPENSES 102,278. |
Schedule F IRS990ScheduleF
| Field | Value | IRS element (for citing) |
|---|---|---|
| Grant Records Maintained | Yes (1) | GrantRecordsMaintainedInd |
Account Activities Outside US AccountActivitiesOutsideUSGrp (3 entries)
| RegionRegionTxt | OfficesOfficesCnt | EmployeeEmployeeCnt | Type Of Activities ConductedTypeOfActivitiesConductedTxt | Region Total ExpendituresRegionTotalExpendituresAmt |
|---|---|---|---|---|
| EUROPE | 0 | 0 | GRANTS TO RECIPIENTS LOCATED IN REGION | $648,287 |
| NORTH AMERICA | 0 | 0 | GRANTS TO RECIPIENTS LOCATED IN REGION | $250,000 |
| MIDDLE EAST & NORTH AFRICA | 0 | 0 | GRANTS TO RECIPIENTS LOCATED IN REGION | $100,000 |
| Field | Value | IRS element (for citing) |
|---|---|---|
| Subtotal Offices | 0 | SubtotalOfficesCnt |
| Subtotal Employees | 0 | SubtotalEmployeesCnt |
| Continutation Total Office | 0 | ContinutationTotalOfficeCnt |
| Continutation Total Employee | 0 | ContinutationTotalEmployeeCnt |
| Total Office | 0 | TotalOfficeCnt |
| Total Employee | 0 | TotalEmployeeCnt |
| Subtotal Spent | $998,287 | SubtotalSpentAmt |
| Continuation Spent | $0 | ContinuationSpentAmt |
| Total Spent | $998,287 | TotalSpentAmt |
Grants To Org Outside US GrantsToOrgOutsideUSGrp (8 entries)
| RegionRegionTxt | Purpose Of GrantPurposeOfGrantTxt | Cash GrantCashGrantAmt |
|---|---|---|
| NORTH AMERICA | GABAERGIC INTERNEURON MIGRATION IMPAIRMENTS IN EPILEPTIC ENCEPHALOPATHIES | $250,000 |
| EUROPE | ENDOSOMAL TOLL-LIKE RECEPTOR (ETLR) TARGETING TO PREVENT/TREAT EPILEPSY: IN VIVO PROOF-OF-CONCEPT | $249,537 |
| EUROPE | GENETIC AND OPTOGENETIC DISSECTION OF SEIZURES IN RETT SYNDROME | $100,000 |
| EUROPE | MODELING EPILEPTIC ENCEPHALOPATHIES IN HUMAN BRAIN ORGANOIDS | $100,000 |
| MIDDLE EAST & NORTH AFRICA | DECIPHERING THE GENE REGULATORY NETWORKS IN HUMAN INHIBITORY INTERNEURONS AND THEIR ROLE IN INFANTILE SPASMS | $100,000 |
| EUROPE | EXCESSIVE NEURONAL INHIBITION CHANGES PHYSIOLOGICAL FUNCTIONS AND INCREASES SUDEP RISK | $99,750 |
| EUROPE | OPTOGENETIC REGULATION OF THE TRANSCRIPTION OF EPILEPSY GENES: AN INNOVATIVE STRATEGY TO CURE DRUG-RESISTANT EPILEPSY | $50,000 |
| EUROPE | PERICYTE PDGFRB SIGNALING DURING SEIZURES | $50,000 |
| Field | Value | IRS element (for citing) |
|---|---|---|
| Total501c3 Org | 8 | Total501c3OrgCnt |
| Transfer To Foreign Corp | 0 | TransferToForeignCorpInd |
| Interest In Foreign Trust | 0 | InterestInForeignTrustInd |
| Foreign Corp Ownership | 0 | ForeignCorpOwnershipInd |
| Passive Foreign Investmest Co | 0 | PassiveForeignInvestmestCoInd |
| Foreign Partnership | 0 | ForeignPartnershipInd |
| Boycott Countries | 0 | BoycottCountriesInd |
Supplemental Information Detail SupplementalInformationDetail
| Field | Value | IRS element (for citing) |
|---|---|---|
| Form And Line Reference | PART I, LINE 2: | FormAndLineReferenceDesc |
| Explanation | GRANTEES ARE REQUIRED TO MAKE PERIODIC PROGRESS REPORTS. | ExplanationTxt |
Schedule G IRS990ScheduleG
Fundraising Event Information FundraisingEventInformationGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Event1 | CHICAGO GALA BENEFIT | Event1Nm |
| Gross Receipts Event1 | $2,179,150 | GrossReceiptsEvent1Amt |
| Charitable Contri Event1 | $2,034,400 | CharitableContriEvent1Amt |
| Gross Revenue Event1 | $144,750 | GrossRevenueEvent1Amt |
| Non Cash Prizes Event1 | $18,150 | NonCashPrizesEvent1Amt |
| Rent Facility Costs Event1 | $30,627 | RentFacilityCostsEvent1Amt |
| Other Direct Expenses Event1 | $287,644 | OtherDirectExpensesEvent1Amt |
| Event2 | BOSTON | Event2Nm |
| Gross Receipts Event2 | $989,385 | GrossReceiptsEvent2Amt |
| Charitable Contri Event2 | $911,585 | CharitableContriEvent2Amt |
| Gross Revenue Event2 | $77,800 | GrossRevenueEvent2Amt |
| Non Cash Prizes Event2 | $1,277 | NonCashPrizesEvent2Amt |
| Other Direct Expenses Event2 | $222,355 | OtherDirectExpensesEvent2Amt |
| Gross Receipts Total | $3,168,535 | GrossReceiptsTotalAmt |
| Charitable Contributions Tot | $2,945,985 | CharitableContributionsTotAmt |
| Gross Revenue Total Events | $222,550 | GrossRevenueTotalEventsAmt |
| Non Cash Prizes Total Events | $19,427 | NonCashPrizesTotalEventsAmt |
| Rent Fclty Costs Total Events | $30,627 | RentFcltyCostsTotalEventsAmt |
| Oth Direct Expnss Total Events | $509,999 | OthDirectExpnssTotalEventsAmt |
| Direct Expense Summary Events | $560,053 | DirectExpenseSummaryEventsAmt |
| Net Income Summary | -$337,503 | NetIncomeSummaryAmt |
Schedule I IRS990ScheduleI
| Field | Value | IRS element (for citing) |
|---|---|---|
| Grant Records Maintained | Yes (1) | GrantRecordsMaintainedInd |
Recipient Table RecipientTable (23 entries)
| Address Line1USAddress/AddressLine1Txt | CityUSAddress/CityNm | State AbbreviationUSAddress/StateAbbreviationCd | ZIPUSAddress/ZIPCd | Recipient EINRecipientEIN | IRC SectionIRCSectionDesc | Cash GrantCashGrantAmt | Purpose Of GrantPurposeOfGrantTxt |
|---|---|---|---|---|---|---|---|
| THE REGENTS OF THE UNIVERSITY OF CALIFORNIA | |||||||
| 2195 HEARST AVE | BERKELEY | CA | 94720 | 946002123 | 501(C)(3) | $434,090 | TRANSFORMING GROWTH FACTOR BETA SIGNALING FOLLOWING TRAUMATIC BRAIN INJURY AS A TARGET FOR THE PREVENTION OF ACQUIRED EPILEPSY; INFANTILE SPASMS: CLINICAL AND GENETIC PREDICTORS OF OUTCOMES AND THERAPEUTIC INSIGHTS |
| BAYLOR COLLEGE OF MEDICINE | |||||||
| PO BOX 201361 | HOUSTON | TX | 77216 | 741613878 | 501(C)(3) | $364,098 | INFANTILE SPASMS SYNDROME: FROM GENE TO BEDSIDE, AN ACCELERATED PATH TO NEW THERAPY; IS: MECHANISMS AND CONSEQUENCES AS THERAPEUTIC TARGETS |
| TRUSTEES OF TUFTS UNIVERSITY | |||||||
| 200 HARRISON AVE | BOSTON | MA | 02111 | 042103634 | 501(C)(3) | $317,409 | APC CKO MOUSE AS A NEW MODEL OF INFANTILE SPASMS; RESTORING THE FUNCTION OF THE K+-CI- CONTRANSORTER TO LIMIT PHARMACORESISTANT SEIZURES. |
| UNIVERSITY OF WISCONSIN-MADISON | |||||||
| 21 NORTH PARK ST | MADISON | WI | 53715 | 396006492 | 501(C)(3) | $300,000 | TARGETING EPIGENETICS TO TREAT EPILEPSY IN TUBEROUS SCLEROSIS COMPLEX: AN EPIPHANY FROM PATIENT WHOLE GENOMIC EXPRESSION ANALYSIS; IND-ENABLING PRECLINICAL STUDIES OF 2DG FOR PREVENTION OF POST-TRAUMATIC EPILEPSY IN PLASTICITY-SUSCEPTIBLE RATS |
| ICAHN SCHOOL OF MEDICINE | |||||||
| ONE GUSTAVE L LEVY PL | NEW YORK | NY | 10029 | 136171197 | 501(C)(3) | $250,000 | NON-CODING RNA MEDIATED CONTROL OF NEURONAL EXCITABILITY AND EPILEPSY |
| INDIANA UNIVERSITY | |||||||
| PO BOX 78000 | DETROIT | MI | 48278 | 356001673 | 501(C)(3) | $250,000 | GABAERGIC INTERNEURON MIGRATION IMPAIRMENTS IN EPILEPTIC ENCEPHALOPATHIES |
| THE RECTORVISITORS OF UNIVERSITY OF VIRGINIA | |||||||
| PB BOX 400915 | CHARLOTTESVILLE | VA | 22904 | 546001796 | 501(C)(3) | $250,000 | IDENTIFICATION OF NOVEL THERAPIES FOR INTRACTABLE PEDIATRIC EPILEPSY DUE TO THE CORTICAL DYSPLASIAS. |
| UNIVERSITY OF WASHINGTON | |||||||
| 12455 COLLECTIONS DR | SEATTLE | WA | 60693 | 605799469 | 501(C)(3) | $225,000 | MECHANISM OF ANTI-EPILEPTIC ACTION OF CANNABIDIOL IN A MOUSE MODEL OF DRAVET SYNDROME; EPIGENOMIC APPROACHES TO EPILEPSY |
| ALBERT EINSTEIN COLLEGE | |||||||
| 1300 MORRIS PARK AVE | BRONX | NY | 10461 | 131624225 | 501(C)(3) | $216,797 | IDENTIFYING NEW THERAPIES FOR INFANTILE SPASMS |
| LEGACY EMANUAL HOSPITAL | |||||||
| CENTER-1225 NE 2ND AVE | PORTLAND | OR | 97232 | 930386823 | 501(C)(3) | $187,529 | PREVENTION OF ACQUIRED EPILEPSY THROUGH AN EPIGENETIC INTERVENTION |
| NEW YORK MEDICAL COLLEGE | |||||||
| 40 SUNSHINE COTTAGE RD | VALHALLA | NY | 10595 | 131099420 | 501(C)(3) | $155,000 | DEVELOPING AND TESTING NOVEL TREATMENTS FOR INFANTILE SPASMS |
| BROWN UNIVERSITY | |||||||
| 164 ANGELL ST BOX 1929 | PROVIDENCE | RI | 02912 | 050258809 | 501(C)(3) | $100,000 | AUTONOMOUS SEIZURE PREVENTION USING BIOLUMINESCENCE-DRIVEN OPTOGENETICS (BLOG) |
| SEATTLE CHILDREN'S HOSPITAL | |||||||
| PO BOX 24728 | SEATTLE | WA | 98124 | 910564748 | 501(C)(3) | $100,000 | A COMPARATIVE STUDY OF SUDDEN UNEXPECTED DEATH IN MOUSE MODELS OF FOCAL CORTICAL DYSPLASIA AND DRAVET SYNDROME |
| THE TRUSTUEES OF COLUMBIA UNIVERSITY | |||||||
| PO BOX 28789 | NEW YORK | NY | 10087 | 135598093 | 501(C)(3) | $100,000 | SUDEP RISK AND BIOMARKERS IN THE SURGICAL EPILEPSY POPULATION |
| UNIVERSITY OF CALIFORNIA IRVINE | |||||||
| BIOSCI III SUITE 1400 | IRIVINE | CA | 92697 | 952226406 | 501(C)(3) | $99,928 | ON-DEMAND RESTORATION OF THE DENTATE GATE FOR TEMPORAL LOBE EPILEPSY |
| THE CHILDREN'S HOSPITAL OF PHILADELPHIA | |||||||
| PO BOX 8500 | PHILADELPHIA | PA | 19178 | 231352166 | 501(C)(3) | $98,720 | EPILEPSY TREATMENT IN A MOUSE MODEL USING SPECIFIC SUBSETS OF CORTICAL INTERNEURONS DERIVED FROM EMBRYONIC STEM CELLS |
| YALE UNIVERSITY | |||||||
| PO BOX 1873 | NEW HAVEN | CT | 06508 | 060646973 | 501(C)(3) | $90,000 | EXOMSOMES AS CARRIERS OF CIRCUIT ALTERATONS IN EPILEPSY; HHMI FELLOWS |
| UNIVERSITY OF COLORADO DENVER | |||||||
| PO BOX 910238 | DENVER | CO | 80291 | 846000555 | 501(C)(3) | $55,864 | METABOLOMIC BIOMARKER DISCOVERY IN INFANTILE SPAMS |
| STANFORD UNIVERSITY | |||||||
| PO BOX 44253 | STANFORD | CA | 94144 | 941156365 | 501(C)(3) | $50,000 | MODULATION OF GABAERGIC TRANSMISSION AND ABSENCE SEIZURES BY OPTICAL STIMULATION OF ASTROCYTES |
| UNIVERSITY OF ILLINOIS | |||||||
| PO BOX 4610 | SPRINGFIELD | IL | 62708 | 376000511 | 501(C)(3) | $50,000 | MODULATION OF GABAERGIC TRANSMISSION AND ABSENCE SEIZURES BY OPTICAL STIMULATION OF ASTROCYTES |
| UNIVERSITY OF TEXAS | |||||||
| DEPT 750 PO BOX 660120 | DALLAS | TX | 75266 | 746000949 | 501(C)(3) | $50,000 | TARGET DELIVERY OF CARBAMAZEPINE FOR IMPROVED ANTIEPILEPTIC DRUG THERAPY DURING PREGNANCY |
| WAYNE STATE UNIVERSITY | |||||||
| 5057 WOODWARD 13TH FLOOR | DETROIT | MI | 48202 | 386028429 | 501(C)(3) | $50,000 | IDENTIFICATION OF ABERRANT GENE REGULATORY NETWORKS IN INFANTILE SPASMS |
| REGENTS OF UNIVERSITY OF CALIFORNIA SAN FRAN | |||||||
| UCSF BOX 0248 | SAN FRANCISCO | CA | 94143 | 916036493 | 501(C)(3) | $40,000 | HHMI FELLOWS |
| Field | Value | IRS element (for citing) |
|---|---|---|
| Total501c3 Org | 23 | Total501c3OrgCnt |
Supplemental Information Detail SupplementalInformationDetail
| Field | Value | IRS element (for citing) |
|---|---|---|
| Form And Line Reference | PART I, LINE 2: | FormAndLineReferenceDesc |
| Explanation | GRANTEES ARE REQUIRED TO MAKE PERIODIC PROGRESS REPORTS. | ExplanationTxt |
Schedule O IRS990ScheduleO
Supplemental Information Detail SupplementalInformationDetail (4 entries)
| Form And Line ReferenceFormAndLineReferenceDesc | ExplanationExplanationTxt |
|---|---|
| FORM 990, PART VI, SECTION B, LINE 11 | FORM 990 IS REVIEWED BY THE FINANCE MANAGER, TREASURER, AND CHIEF EXECUTIVE OFFICER. WHEN THE DRAFT IS APPROVED, IT IS SENT TO THE ENTIRE BOARD. |
| FORM 990, PART VI, SECTION B, LINE 12C | EACH BOARD MEMBER SIGNS IT ANNUALLY AND EXPECTS TO SELF-MONITOR. CONFLICTS ARE DEALT WITH ON A CASE-BY-CASE BASIS. |
| FORM 990, PART VI, SECTION B, LINE 15A | COMPARABLE SALARY INFORMATION IS OBTAINED AND REVIEWED USING AN OUTSIDE EXECUTIVE SEARCH FIRM. THE BOARD OF DIRECTORS HAS FINAL APPROVAL, AND REVIEWS COMPENSATION ANNUALLY. |
| FORM 990, PART VI, SECTION C, LINE 19 | GOVERNING DOCUMENTS, CONFLICT OF INTEREST POLICY, AND FINANCIAL STATEMENTS ARE NOT GENERALLY AVAILABLE TO THE PUBLIC. |
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