NATIONAL TUBEROUS SCLEROSIS ASSOCIATION INC
Cite this
Plain text NATIONAL TUBEROUS SCLEROSIS ASSOCIATION INC. furp.org, nonprofit organization profile, tax years 2011–2025. https://furp.org/org/national-tuberous-sclerosis-association-inc-953018799. Retrieved 2026-11-01.
APA furp.org. (n.d.). NATIONAL TUBEROUS SCLEROSIS ASSOCIATION INC [Nonprofit organization profile; tax years 2011–2025]. Retrieved November 1, 2026, from https://furp.org/org/national-tuberous-sclerosis-association-inc-953018799
MLA “NATIONAL TUBEROUS SCLEROSIS ASSOCIATION INC.” furp.org, tax years 2011–2025, https://furp.org/org/national-tuberous-sclerosis-association-inc-953018799. Accessed 1 Nov. 2026.
Retrieved 2026-11-01; covers tax years 2011–2025. Data: furp.org, CC BY 4.0.
2025 · Form 990 · revenue $9.8M · expenses $9.1M · assets $18.0M
- Also known as
- TSC ALLIANCE
- EIN
- 95-3018799
- Address
- 8737 COLESVILLE RD, SILVER SPRING, MD 20910-3928
- Website
- WWW.TSCALLIANCE.ORG
- NTEE code
- G030
- Exempt type
- 501(c)(3): charitable, religious, educational, scientific or literary (corporation)
- Ruling date
- October 1975 (when the IRS recognized its exemption)
- IRS status
- Exempt (unconditional) (IRS Business Master File) IRS data ↗
- Tax-deductible donations
- Yes: listed in IRS Publication 78 (public charity) Pub 78 ↗
- Foundation status
- Public charity supported by the public (170(b)(1)(a)(vi))
- Cross-check
- ProPublica Nonprofit Explorer
Mission
TO IMPROVE QUALITY OF LIFE FOR EVERYONE AFFECTED BY TUBEROUS SCLEROSIS COMPLEX BY CATALYZING NEW TREATMENTS, DRIVING RESEARCH TOWARD A CURE AND EXPANDING ACCESS TO LIFELONG SUPPORT.
Each tax year counts once: when a return was amended, only the latest return for that period is used below (superseded returns stay listed, greyed, under Finances).
People paid by the organization
14 people paid across every filing: current people first, then by total pay from this organization. Organizations counts every nonprofit each person appears on.
| Name | Latest title | Years | Latest year pay | Total pay from here | Organizations |
|---|---|---|---|---|---|
| Steven Roberds | CHIEF SCIENTIFIC OFFICER | 2012-2025 | $287,347 | $3,274,941 | 1 |
| Kari Luther Rosbeck | PRESIDENT & CEO | 2011-2025 | $287,368 | $2,912,651 | 2 |
| Dean Rager-Aguiar | VICE PRESIDENT, TRANSLATIO | 2019-2025 | $225,306 | $1,370,494 | 1 |
| Lisa Moss | VICE PRESIDENT, DONOR RELA | 2017-2025 | $164,847 | $1,258,151 | 1 |
| Jamie Saylor | CHIEF FINANCIAL OFFICER | 2025 | $148,811 | $148,811 | 2 |
| Heather Radtke | DIRECTOR, CLINICAL PROGRAMS | 2025 | $135,437 | $135,437 | 1 |
| Gail Saunders | DIRECTOR, COMMUNITY PROGRAMS | 2025 | $118,717 | $118,717 | 1 |
| Richard Gollub (former) | CHIEF FINANCIAL OFFICER | 2015-2022 | $93,619 | $1,292,290 | 2 |
| Jaye Isham (former) | CHIEF OUTREACH OFFICER | 2016-2024 | $159,958 | $1,136,861 | 1 |
| Cynthia Arcuri (former) | CHIEF FINANCIAL OFFICER | 2022-2024 | $201,902 | $565,545 | 2 |
| Mary Jane Perraut (former) | CFO (UNTIL APR 15) | 2012-2015 | $69,504 | $479,299 | 2 |
| Kari L Rosebeck (former) | PRESIDENT & CEO | 2016-2017 | $220,748 | $418,105 | 1 |
| Ashley Pounders (former) | DIRECTOR OF MEDICAL AFFAIRS | 2021-2023 | $128,448 | $366,822 | 1 |
| April Cooper (former) | VICE PRESIDENT, COMMUNITY PROGRAMS | 2015-2022 | $139,668 | $363,695 | 1 |
Officers and directors, no compensation reported
96 people listed on the returns with $0 (or no amount) in every compensation column: current people first. Hours are as filed on the latest return each person appears on.
| Name | Latest title | Years | Hrs/wk (latest) | Compensation | Organizations |
|---|---|---|---|---|---|
| Brittany Smith | VICE CHAIR | 2022-2025 | 5 | $0 reported | 2 |
| David Johnston | DIRECTOR | 2025 | 2 | $0 reported | 2 |
| Paul Waxlax | BOARD CHAIR | 2020-2025 | 5 | $0 reported | 2 |
| Lesley Holmes | DIRECTOR | 2022-2025 | 2 | $0 reported | 1 |
| Derek Bauer | DIRECTOR | 2021-2025 | 2 | $0 reported | 1 |
| Frances Briones | DIRECTOR | 2024-2025 | 2 | $0 reported | 1 |
| Julie Blum | DIRECTOR | 2011-2025 | 2 | $0 reported | 1 |
| Chip Burkhalter | DIRECTOR | 2023-2025 | 2 | $0 reported | 1 |
| Lisa Carlton | DIRECTOR | 2022-2025 | 2 | $0 reported | 1 |
| Mark Carroll | DIRECTOR | 2011-2025 | 2 | $0 reported | 2 |
| Tanjala Gipson | DIRECTOR | 2021-2025 | 2 | $0 reported | 1 |
| Jonathan Goldstein | DIRECTOR | 2023-2025 | 2 | $0 reported | 1 |
| Shafali Jeste | DIRECTOR | 2023-2025 | 2 | $0 reported | 1 |
| Jessica Krefting | DIRECTOR | 2021-2025 | 2 | $0 reported | 1 |
| Patroski Lawson | DIRECTOR | 2022-2025 | 2 | $0 reported | 1 |
| Kristi Lengyel | SECRETARY | 2022-2025 | 2 | $0 reported | 1 |
| Laura Marks | DIRECTOR | 2020-2025 | 2 | $0 reported | 1 |
| Andrew Sperling | DIRECTOR | 2024-2025 | 2 | $0 reported | 1 |
| Mark Spotts | TREASURER | 2024-2025 | 5 | $0 reported | 1 |
| Vanessa Vazquez | DIRECTOR | 2020-2025 | 2 | $0 reported | 1 |
| Angelique Bordey | DIRECTOR | 2025 | 2 | $0 reported | 1 |
| Sara Chieffo | DIRECTOR | 2017-2025 | 2 | $0 reported | 1 |
| Danielle Clark | DIRECTOR | 2025 | 2 | $0 reported | 1 |
| Andrew Duffy | DIRECTOR | 2025 | 2 | $0 reported | 1 |
| Juian Gangolli | DIRECTOR | 2025 | 2 | $0 reported | 1 |
| Rich Gollub | DIRECTOR | 2025 | 2 | $0 reported | 1 |
| Lisa Henske | DIRECTOR | 2025 | 2 | $0 reported | 1 |
| Bill Joseph | DIRECTOR | 2025 | 2 | $0 reported | 1 |
| Jim O'Heir | DIRECTOR | 2025 | 2 | $0 reported | 1 |
| Noor Panjwani | DIRECTOR | 2025 | 2 | $0 reported | 1 |
| William Joseph (former) | BOARD CHAIR | 2020-2024 | 5 | $0 reported | 2 |
| Matt Bolger (former) | DIRECTOR | 2011-2024 | 2 | $0 reported | 1 |
| Julian Gangolli (former) | DIRECTOR | 2022-2024 | 2 | $0 reported | 1 |
| Steven Goldstein (former) | DIRECTOR | 2011-2024 | 2 | $0 reported | 2 |
| Darcy Krueger (former) | DIRECTOR | 2019-2024 | 2 | $0 reported | 1 |
| Heather Lens (former) | DIRECTOR | 2019-2024 | 2 | $0 reported | 1 |
| Mustafa Sahin (former) | DIRECTOR | 2019-2024 | 2 | $0 reported | 1 |
| Sean Shillinger (former) | DIRECTOR | 2019-2024 | 2 | $0 reported | 1 |
| Peter Crino (former) | IMMEDIATE PAST CHAIR | 2011-2023 | 2 | $0 reported | 1 |
| David Coit (former) | BOARD MEMBER | 2018-2023 | 2 | $0 reported | 1 |
| Rob Grandia (former) | BOARD MEMBER | 2018-2023 | 2 | $0 reported | 1 |
| Dana Holinka (former) | BOARD MEMBER | 2018-2023 | 2 | $0 reported | 1 |
| Diane Mcswain (former) | BOARD MEMBER | 2019-2023 | 2 | $0 reported | 1 |
| Tara Zimmerman (former) | BOARD MEMBER | 2018-2023 | 2 | $0 reported | 1 |
| Edward Burkhalter (former) | BOARD MEMBER | 2021-2022 | 2 | $0 reported | 1 |
| Margaret Cox (former) | BOARD MEMBER | 2017-2022 | 2 | $0 reported | 1 |
| Jim Maginn (former) | BOARD MEMBER | 2016-2021 | 2 | $0 reported | 2 |
| Chris Russell (former) | IMMEDIATE PAST CHAIR | 2018-2021 | 5 | $0 reported | 1 |
| Sarah Chieffo (former) | BOARD MEMBER | 2021 | 2 | $0 reported | 1 |
| Timothy Dills (former) | BOARD MEMBER | 2021 | 2 | $0 reported | 1 |
| Bonnie Hogue Duffy (former) | BOARD MEMBER | 2016-2021 | 2 | $0 reported | 1 |
| Robert Grandia (former) | BOARD MEMBER | 2021 | 2 | $0 reported | 1 |
| Matthew Simonian (former) | BOARD MEMBER | 2016-2021 | 2 | $0 reported | 1 |
| Tim Dills (former) | IMMEDIATE PAST CHAIR | 2016-2020 | 5 | $0 reported | 2 |
| Cassandra Carroll (former) | BOARD MEMBER | 2015-2020 | 2 | $0 reported | 1 |
| Judy Shoulak (former) | BOARD MEMBER | 2019-2020 | 2 | $0 reported | 1 |
| Darren Miles (former) | TREASURER | 2014-2019 | 5 | $0 reported | 2 |
| Beth Dean (former) | CHAIR (TIL 7/2019) | 2015-2019 | 5 | $0 reported | 1 |
| John J Bissler Md (former) | BOARD MEMBER | 2014-2019 | 2 | $0 reported | 1 |
| Tom Gwinn (former) | BOARD MEMBER | 2017-2019 | 2 | $0 reported | 1 |
| Brendan D Manning Phd (former) | BOARD MEMBER | 2014-2019 | 2 | $0 reported | 1 |
| Adolfo Orive (former) | BOARD MEMBER (TIL 5/2019) | 2018-2019 | 2 | $0 reported | 1 |
| Martina Bebin Md Mpa (former) | BOARD MEMBER | 2016-2018 | 2 | $0 reported | 1 |
| Michael Caggiano (former) | BOARD MEMBER | 2016-2018 | 2 | $0 reported | 1 |
| David Fitzmaurice (former) | BOARD MEMBER | 2013-2018 | 2 | $0 reported | 1 |
| Laura S Lubbers (former) | BOARD MEMBER | 2013-2018 | 2 | $0 reported | 1 |
| Rebecca Anhang Price (former) | BOARD MEMBER | 2012-2018 | 2 | $0 reported | 1 |
| David Michaels (former) | BOARD MEMBER | 2012-2017 | 2 | $0 reported | 2 |
| Debora L Moritz (former) | BOARD MEMBER | 2012-2017 | 5 | $0 reported | 1 |
| Julie Scroggins (former) | BOARD MEMBER | 2017 | 2 | $0 reported | 1 |
| Keith A Hall (former) | BOARD MEMBER | 2011-2016 | 2 | $0 reported | 1 |
| Theodore Mastroianni (former) | BOARD MEMBER | 2011-2016 | 2 | $0 reported | 1 |
| Rita Didomenico (former) | BOARD MEMBER | 2011-2015 | 2 | $0 reported | 2 |
| Martina Bebin (former) | BOARD MEMBER | 2013-2015 | 2 | $0 reported | 1 |
| Colleen Johns (former) | BOARD MEMBER | 2015 | 2 | $0 reported | 1 |
| Courtney O'Malley (former) | BOARD MEMBER | 2011-2015 | 2 | $0 reported | 1 |
| David Parkes (former) | BOARD MEMBER | 2011-2015 | 2 | $0 reported | 1 |
| Henry Shapiro (former) | BOARD MEMBER | 2011-2015 | 2 | $0 reported | 1 |
| Elizabeth Thiele Md Phd (former) | BOARD MEMBER | 2011-2015 | 2 | $0 reported | 1 |
| Reiko Donato (former) | BOARD MEMBER | 2011-2014 | 2 | $0 reported | 1 |
| Celia Mastbaum (former) | BOARD MEMBER | 2011-2014 | 2 | $0 reported | 1 |
| Linda Jackson (former) | BOARD MEMBER | 2011-2014 | 2 | $0 reported | 1 |
| John Nicholson Jr Md (former) | BOARD MEMBER | 2014 | 2 | $0 reported | 1 |
| Judith Shoulak (former) | BOARD MEMBER | 2011-2014 | 2 | $0 reported | 1 |
| Jennifer Glassman (former) | BOARD MEMBER | 2011-2013 | 2 | $0 reported | 1 |
| Ron Heffron (former) | BOARD MEMBER | 2011-2013 | 2 | $0 reported | 1 |
| Alan Marshall (former) | BOARD MEMBER | 2011-2013 | 2 | $0 reported | 1 |
| John Nicholson (former) | BOARD MEMBER | 2011-2013 | 2 | $0 reported | 1 |
| William Ford (former) | BOARD MEMBER | 2011-2012 | 2 | $0 reported | 2 |
| Rob Moss (former) | BOARD MEMBER | 2012 | 2 | $0 reported | 1 |
| Elizabeth Henske Md (former) | BOARD MEMBER | 2011-2012 | 2 | $0 reported | 1 |
| Will Cooper Sr (former) | BOARD MEMBER | 2011 | 4 | $0 reported | 1 |
| Janie Frost Rn (former) | BOARD MEMBER | 2011 | 2 | $0 reported | 1 |
| Cathy Krinsky (former) | BOARD MEMBER | 2011 | 2 | $0 reported | 1 |
| Kathy Mayrsohn (former) | BOARD MEMBER | 2011 | 2 | $0 reported | 1 |
| David Schenkein Md (former) | BOARD MEMBER | 2011 | 2 | $0 reported | 1 |
People by year
2025 · 37 people listed · 7 paid, $1.4M · 26 employees · 385 volunteers
| Name | Title | Hrs/wk | From org | From related | Other | Total | Orgs |
|---|---|---|---|---|---|---|---|
| KARI LUTHER ROSBECK | PRESIDENT & CEO | 54 | $254,957 | $0 | $32,411 | $287,368 | 2 |
| STEVEN ROBERDS | CHIEF SCIENTIFIC OFFICER | 45 | $256,275 | $0 | $31,072 | $287,347 | 1 |
| DEAN RAGER-AGUIAR | VICE PRESIDENT, TRANSLATIO | 45 | $191,780 | $0 | $33,526 | $225,306 | 1 |
| LISA MOSS | VICE PRESIDENT, DONOR RELA | 45 | $136,007 | $0 | $28,840 | $164,847 | 1 |
| JAMIE SAYLOR | CHIEF FINANCIAL OFFICER | 45 | $143,473 | $0 | $5,338 | $148,811 | 2 |
| HEATHER RADTKE | DIRECTOR, CLINICAL PROGRAMS | 45 | $119,764 | $0 | $15,673 | $135,437 | 1 |
| GAIL SAUNDERS | DIRECTOR, COMMUNITY PROGRAMS | 45 | $103,236 | $0 | $15,481 | $118,717 | 1 |
| PAUL WAXLAX | BOARD CHAIR | 5 | $0 | $0 | $0 | $0 | 2 |
| BRITTANY SMITH | VICE CHAIR | 5 | $0 | $0 | $0 | $0 | 2 |
| MARK SPOTTS | TREASURER | 5 | $0 | $0 | $0 | $0 | 1 |
| KRISTI LENGYEL | SECRETARY | 2 | $0 | $0 | $0 | $0 | 1 |
| DEREK BAUER | DIRECTOR | 2 | $0 | $0 | $0 | $0 | 1 |
| JULIE BLUM | DIRECTOR | 2 | $0 | $0 | $0 | $0 | 1 |
| ANGELIQUE BORDEY | DIRECTOR | 2 | $0 | $0 | $0 | $0 | 1 |
| FRANCES BRIONES | DIRECTOR | 2 | $0 | $0 | $0 | $0 | 1 |
| CHIP BURKHALTER | DIRECTOR | 2 | $0 | $0 | $0 | $0 | 1 |
| LISA CARLTON | DIRECTOR | 2 | $0 | $0 | $0 | $0 | 1 |
| MARK CARROLL | DIRECTOR | 2 | $0 | $0 | $0 | $0 | 2 |
| SARA CHIEFFO | DIRECTOR | 2 | $0 | $0 | $0 | $0 | 1 |
| DANIELLE CLARK | DIRECTOR | 2 | $0 | $0 | $0 | $0 | 1 |
| ANDREW DUFFY | DIRECTOR | 2 | $0 | $0 | $0 | $0 | 1 |
| JUIAN GANGOLLI | DIRECTOR | 2 | $0 | $0 | $0 | $0 | 1 |
| TANJALA GIPSON | DIRECTOR | 2 | $0 | $0 | $0 | $0 | 1 |
| JONATHAN GOLDSTEIN | DIRECTOR | 2 | $0 | $0 | $0 | $0 | 1 |
| RICH GOLLUB | DIRECTOR | 2 | $0 | $0 | $0 | $0 | 1 |
| LISA HENSKE | DIRECTOR | 2 | $0 | $0 | $0 | $0 | 1 |
| LESLEY HOLMES | DIRECTOR | 2 | $0 | $0 | $0 | $0 | 1 |
| SHAFALI JESTE | DIRECTOR | 2 | $0 | $0 | $0 | $0 | 1 |
| DAVID JOHNSTON | DIRECTOR | 2 | $0 | $0 | $0 | $0 | 2 |
| BILL JOSEPH | DIRECTOR | 2 | $0 | $0 | $0 | $0 | 1 |
| JESSICA KREFTING | DIRECTOR | 2 | $0 | $0 | $0 | $0 | 1 |
| PATROSKI LAWSON | DIRECTOR | 2 | $0 | $0 | $0 | $0 | 1 |
| LAURA MARKS | DIRECTOR | 2 | $0 | $0 | $0 | $0 | 1 |
| JIM O'HEIR | DIRECTOR | 2 | $0 | $0 | $0 | $0 | 1 |
| NOOR PANJWANI | DIRECTOR | 2 | $0 | $0 | $0 | $0 | 1 |
| ANDREW SPERLING | DIRECTOR | 2 | $0 | $0 | $0 | $0 | 1 |
| VANESSA VAZQUEZ | DIRECTOR | 2 | $0 | $0 | $0 | $0 | 1 |
2024 · 33 people listed · 6 paid, $1.3M · 26 employees · 373 volunteers
| Name | Title | Hrs/wk | From org | From related | Other | Total | Orgs |
|---|---|---|---|---|---|---|---|
| STEVEN ROBERDS | CHIEF SCIENTIFIC OFFICER | 45 | $243,817 | $0 | $28,877 | $272,694 | 1 |
| KARI LUTHER ROSBECK | PRESIDENT & CEO | 54 | $229,751 | $2,321 | $29,822 | $261,894 | 2 |
| DEAN RAGER-AGUIAR | VICE PRESIDENT, TRANSLATIO | 45 | $183,132 | $0 | $31,118 | $214,250 | 1 |
| CYNTHIA ARCURI | CHIEF FINANCIAL OFFICER | 45 | $184,176 | $9,693 | $8,033 | $201,902 | 2 |
| JAYE ISHAM | CHIEF OUTREACH OFFICER | 45 | $154,028 | $0 | $5,930 | $159,958 | 1 |
| LISA MOSS | VICE PRESIDENT, DONOR RELA | 45 | $129,161 | $0 | $26,747 | $155,908 | 1 |
| WILLIAM JOSEPH | BOARD CHAIR | 5 | $0 | $0 | $0 | $0 | 2 |
| PAUL WAXLAX | VICE CHAIR | 5 | $0 | $0 | $0 | $0 | 2 |
| BRITTANY SMITH | TREASURER | 5 | $0 | $0 | $0 | $0 | 2 |
| LESLEY HOLMES | SECRETARY | 5 | $0 | $0 | $0 | $0 | 1 |
| DEREK BAUER | DIRECTOR | 2 | $0 | $0 | $0 | $0 | 1 |
| FRANCES BRIONES | DIRECTOR | 2 | $0 | $0 | $0 | $0 | 1 |
| JULIE BLUM | DIRECTOR | 2 | $0 | $0 | $0 | $0 | 1 |
| MATT BOLGER | DIRECTOR | 2 | $0 | $0 | $0 | $0 | 1 |
| CHIP BURKHALTER | DIRECTOR | 2 | $0 | $0 | $0 | $0 | 1 |
| LISA CARLTON | DIRECTOR | 2 | $0 | $0 | $0 | $0 | 1 |
| MARK CARROLL | DIRECTOR | 2 | $0 | $0 | $0 | $0 | 2 |
| JULIAN GANGOLLI | DIRECTOR | 2 | $0 | $0 | $0 | $0 | 1 |
| TANJALA GIPSON | DIRECTOR | 2 | $0 | $0 | $0 | $0 | 1 |
| JONATHAN GOLDSTEIN | DIRECTOR | 2 | $0 | $0 | $0 | $0 | 1 |
| STEVEN GOLDSTEIN | DIRECTOR | 2 | $0 | $0 | $0 | $0 | 2 |
| SHAFALI JESTE | DIRECTOR | 2 | $0 | $0 | $0 | $0 | 1 |
| JESSICA KREFTING | DIRECTOR | 2 | $0 | $0 | $0 | $0 | 1 |
| DARCY KRUEGER | DIRECTOR | 2 | $0 | $0 | $0 | $0 | 1 |
| PATROSKI LAWSON | DIRECTOR | 2 | $0 | $0 | $0 | $0 | 1 |
| KRISTI LENGYEL | DIRECTOR | 2 | $0 | $0 | $0 | $0 | 1 |
| HEATHER LENS | DIRECTOR | 2 | $0 | $0 | $0 | $0 | 1 |
| LAURA MARKS | DIRECTOR | 2 | $0 | $0 | $0 | $0 | 1 |
| MUSTAFA SAHIN | DIRECTOR | 2 | $0 | $0 | $0 | $0 | 1 |
| SEAN SHILLINGER | DIRECTOR | 2 | $0 | $0 | $0 | $0 | 1 |
| ANDREW SPERLING | DIRECTOR | 2 | $0 | $0 | $0 | $0 | 1 |
| MARK SPOTTS | DIRECTOR | 2 | $0 | $0 | $0 | $0 | 1 |
| VANESSA VAZQUEZ | DIRECTOR | 2 | $0 | $0 | $0 | $0 | 1 |
2023 · 37 people listed · 7 paid, $1.3M · 26 employees · 2,234 volunteers
| Name | Title | Hrs/wk | From org | From related | Other | Total | Orgs |
|---|---|---|---|---|---|---|---|
| STEVEN ROBERDS | CHIEF SCIENTIFIC OFFICER | 45 | $237,208 | $0 | $26,563 | $263,771 | 1 |
| KARI LUTHER ROSBECK | PRESIDENT & CEO | 54 | $223,746 | $2,260 | $29,417 | $255,423 | 2 |
| DEAN RAGER-AGUIAR | VICE PRESIDENT, TRANSLATIONAL RESEARCH | 45 | $177,725 | $0 | $28,091 | $205,816 | 1 |
| CYNTHIA ARCURI | CHIEF FINANCIAL OFFICER | 42 | $176,989 | $9,315 | $9,482 | $195,786 | 2 |
| LISA MOSS | VICE PRESIDENT, DONOR RELATIONS | 45 | $124,914 | $0 | $24,144 | $149,058 | 1 |
| JAYE ISHAM | CHIEF OUTREACH OFFICER | 45 | $137,218 | $0 | $5,426 | $142,644 | 1 |
| ASHLEY POUNDERS | DIRECTOR OF MEDICAL AFFAIRS | 45 | $115,372 | $0 | $13,076 | $128,448 | 1 |
| WILLIAM JOSEPH | CHAIR | 5 | $0 | $0 | $0 | $0 | 2 |
| PAUL WAXLAX | VICE-CHAIR | 5 | $0 | $0 | $0 | $0 | 2 |
| BRITTANY SMITH | TREASURER | 5 | $0 | $0 | $0 | $0 | 2 |
| LESLEY HOLMES | SECRETARY | 2 | $0 | $0 | $0 | $0 | 1 |
| PETER CRINO | IMMEDIATE PAST CHAIR | 2 | $0 | $0 | $0 | $0 | 1 |
| DEREK BAUER | BOARD MEMBER | 2 | $0 | $0 | $0 | $0 | 1 |
| JULIE BLUM | BOARD MEMBER | 2 | $0 | $0 | $0 | $0 | 1 |
| MATT BOLGER | BOARD MEMBER | 2 | $0 | $0 | $0 | $0 | 1 |
| CHIP BURKHALTER | BOARD MEMBER | 2 | $0 | $0 | $0 | $0 | 1 |
| LISA CARLTON | BOARD MEMBER | 2 | $0 | $0 | $0 | $0 | 1 |
| DAVID COIT | BOARD MEMBER | 2 | $0 | $0 | $0 | $0 | 1 |
| MARK CARROLL | BOARD MEMBER | 2 | $0 | $0 | $0 | $0 | 2 |
| JULIAN GANGOLLI | BOARD MEMBER | 2 | $0 | $0 | $0 | $0 | 1 |
| TANJALA GIPSON | BOARD MEMBER | 2 | $0 | $0 | $0 | $0 | 1 |
| JONATHAN GOLDSTEIN | BOARD MEMBER | 2 | $0 | $0 | $0 | $0 | 1 |
| STEVEN GOLDSTEIN | BOARD MEMBER | 2 | $0 | $0 | $0 | $0 | 2 |
| ROB GRANDIA | BOARD MEMBER | 2 | $0 | $0 | $0 | $0 | 1 |
| DANA HOLINKA | BOARD MEMBER | 2 | $0 | $0 | $0 | $0 | 1 |
| SHAFALI JESTE | BOARD MEMBER | 2 | $0 | $0 | $0 | $0 | 1 |
| JESSICA KREFTING | BOARD MEMBER | 2 | $0 | $0 | $0 | $0 | 1 |
| DARCY KRUEGER | BOARD MEMBER | 2 | $0 | $0 | $0 | $0 | 1 |
| PATROSKI LAWSON | BOARD MEMBER | 2 | $0 | $0 | $0 | $0 | 1 |
| KRISTI LENGYEL | BOARD MEMBER | 2 | $0 | $0 | $0 | $0 | 1 |
| HEATHER LENS | BOARD MEMBER | 2 | $0 | $0 | $0 | $0 | 1 |
| LAURA MARKS | BOARD MEMBER | 2 | $0 | $0 | $0 | $0 | 1 |
| DIANE MCSWAIN | BOARD MEMBER | 2 | $0 | $0 | $0 | $0 | 1 |
| MUSTAFA SAHIN | BOARD MEMBER | 2 | $0 | $0 | $0 | $0 | 1 |
| SEAN SHILLINGER | BOARD MEMBER | 2 | $0 | $0 | $0 | $0 | 1 |
| VANESSA VAZQUEZ | BOARD MEMBER | 2 | $0 | $0 | $0 | $0 | 1 |
| TARA ZIMMERMAN | BOARD MEMBER | 2 | $0 | $0 | $0 | $0 | 1 |
2022 · 39 people listed · 9 paid, $1.5M · 27 employees · 2,534 volunteers
| Name | Title | Hrs/wk | From org | From related | Other | Total | Orgs |
|---|---|---|---|---|---|---|---|
| STEVEN ROBERDS | CHIEF SCIENTIFIC OFFICER | 45 | $233,206 | $0 | $26,309 | $259,515 | 1 |
| KARI LUTHER ROSBECK | PRESIDENT & CEO | 54 | $217,716 | $2,756 | $28,910 | $249,382 | 2 |
| DEAN RAGER-AGUIAR | VICE PRESIDENT, TRANSLATIONAL RESEARCH | 45 | $164,261 | $0 | $27,214 | $191,475 | 1 |
| CYNTHIA ARCURI | CHIEF FINANCIAL OFFICER | 42 | $146,692 | $11,324 | $9,841 | $167,857 | 2 |
| LISA MOSS | VICE PRESIDENT, DONOR RELATIONS | 45 | $122,204 | $0 | $23,858 | $146,062 | 1 |
| APRIL COOPER | VICE PRESIDENT, COMMUNITY PROGRAMS | 45 | $114,370 | $0 | $25,298 | $139,668 | 1 |
| JAYE ISHAM | SENIOR VICE PRESIDENT, STRATEGIC COMMUNICATIONS | 45 | $133,868 | $0 | $4,136 | $138,004 | 1 |
| ASHLEY POUNDERS | DIRECTOR OF MEDICAL AFFAIRS | 45 | $111,519 | $0 | $13,976 | $125,495 | 1 |
| RICHARD GOLLUB | CHIEF FINANCIAL OFFICER | 42 | $80,583 | $4,241 | $8,795 | $93,619 | 2 |
| PETER CRINO MD PHD | CHAIR | 5 | $0 | $0 | $0 | $0 | 1 |
| WILLIAM JOSEPH | VICE CHAIR | 5 | $0 | $0 | $0 | $0 | 2 |
| PAUL WAXLAX | TREASURER | 5 | $0 | $0 | $0 | $0 | 2 |
| JESSICA KREFTING | SECRETARY | 5 | $0 | $0 | $0 | $0 | 1 |
| DEREK BAUER | BOARD MEMBER | 2 | $0 | $0 | $0 | $0 | 1 |
| JULIE BLUM | BOARD MEMBER | 2 | $0 | $0 | $0 | $0 | 1 |
| MATT BOLGER | BOARD MEMBER | 2 | $0 | $0 | $0 | $0 | 1 |
| EDWARD BURKHALTER | BOARD MEMBER | 2 | $0 | $0 | $0 | $0 | 1 |
| LISA CARLTON | BOARD MEMBER | 2 | $0 | $0 | $0 | $0 | 1 |
| MARK CARROLL | BOARD MEMBER | 2 | $0 | $0 | $0 | $0 | 2 |
| SARA CHIEFFO | BOARD MEMBER | 2 | $0 | $0 | $0 | $0 | 1 |
| DAVID COIT | BOARD MEMBER | 2 | $0 | $0 | $0 | $0 | 1 |
| MARGARET COX | BOARD MEMBER | 2 | $0 | $0 | $0 | $0 | 1 |
| JULIAN GANGOLLI | BOARD MEMBER | 2 | $0 | $0 | $0 | $0 | 1 |
| TANJALA GIPSON | BOARD MEMBER | 2 | $0 | $0 | $0 | $0 | 1 |
| STEVEN GOLDSTEIN | BOARD MEMBER | 2 | $0 | $0 | $0 | $0 | 2 |
| ROB GRANDIA | BOARD MEMBER | 2 | $0 | $0 | $0 | $0 | 1 |
| DANA HOLINKA | BOARD MEMBER | 2 | $0 | $0 | $0 | $0 | 1 |
| LESLEY HOLMES | BOARD MEMBER | 2 | $0 | $0 | $0 | $0 | 1 |
| DARCY KRUEGER | BOARD MEMBER | 2 | $0 | $0 | $0 | $0 | 1 |
| PATROSKI LAWSON | BOARD MEMBER | 2 | $0 | $0 | $0 | $0 | 1 |
| KRISTI LENGYEL | BOARD MEMBER | 2 | $0 | $0 | $0 | $0 | 1 |
| HEATHER LENS | BOARD MEMBER | 2 | $0 | $0 | $0 | $0 | 1 |
| LAURA MARKS | BOARD MEMBER | 2 | $0 | $0 | $0 | $0 | 1 |
| DIANE MCSWAIN | BOARD MEMBER | 2 | $0 | $0 | $0 | $0 | 1 |
| MUSTAFA SAHIN | BOARD MEMBER | 2 | $0 | $0 | $0 | $0 | 1 |
| SEAN SHILLINGER | BOARD MEMBER | 2 | $0 | $0 | $0 | $0 | 1 |
| BRITTANY SMITH | BOARD MEMBER | 2 | $0 | $0 | $0 | $0 | 2 |
| VANESSA VAZQUEZ | BOARD MEMBER | 2 | $0 | $0 | $0 | $0 | 1 |
| TARA ZIMMERMAN | BOARD MEMBER | 2 | $0 | $0 | $0 | $0 | 1 |
2021 · 37 people listed · 8 paid, $1.4M · 22 employees · 2,234 volunteers
| Name | Title | Hrs/wk | From org | From related | Other | Total | Orgs |
|---|---|---|---|---|---|---|---|
| STEVEN L ROBERDS | CHIEF SCIENTIFIC OFFICER | 45 | $228,854 | $0 | $26,998 | $255,852 | 1 |
| KARI L ROSBECK | PRESIDENT & CEO | 54 | $214,608 | $3,974 | $33,232 | $251,814 | 2 |
| RICHARD GOLLUB | CFO | 47 | $156,734 | $10,004 | $32,878 | $199,616 | 2 |
| DEAN RAGER-AGUIAR | DIRECTOR, PRECLINICAL RESEARCH | 45 | $163,695 | $0 | $32,110 | $195,805 | 1 |
| LISA M MOSS | SR. DIRECTOR, DONOR RELATIONS | 45 | $109,646 | $0 | $26,893 | $136,539 | 1 |
| JAYE D ISHAM | VP, COMMUNICATIONS STRATEGY | 45 | $121,765 | $0 | $4,244 | $126,009 | 1 |
| ASHLEY POUNDERS | DIRECTOR, MEDICAL AFFAIRS | 45 | $101,208 | $0 | $11,671 | $112,879 | 1 |
| APRIL COOPER | DIRECTOR, COMMUNITY PROGRAMS | 45 | $108,589 | $0 | $3,418 | $112,007 | 1 |
| PETER CRINO MD PHD | CHAIR | 5 | $0 | $0 | $0 | $0 | 1 |
| WILLIAM JOSEPH | VICE CHAIR | 5 | $0 | $0 | $0 | $0 | 2 |
| CHRIS RUSSELL | IMMEDIATE PAST CHAIR | 5 | $0 | $0 | $0 | $0 | 1 |
| LAURA MARKS | SECRETARY | 5 | $0 | $0 | $0 | $0 | 1 |
| PAUL WAXLAX | TREASURER | 5 | $0 | $0 | $0 | $0 | 2 |
| DEREK BAUER | BOARD MEMBER | 2 | $0 | $0 | $0 | $0 | 1 |
| JULIE BLUM | BOARD MEMBER | 2 | $0 | $0 | $0 | $0 | 1 |
| MATT BOLGER | BOARD MEMBER | 2 | $0 | $0 | $0 | $0 | 1 |
| EDWARD BURKHALTER | BOARD MEMBER | 2 | $0 | $0 | $0 | $0 | 1 |
| MARK CARROLL | BOARD MEMBER | 2 | $0 | $0 | $0 | $0 | 2 |
| SARAH CHIEFFO | BOARD MEMBER | 2 | $0 | $0 | $0 | $0 | 1 |
| DAVID COIT | BOARD MEMBER | 2 | $0 | $0 | $0 | $0 | 1 |
| MARGARET COX | BOARD MEMBER | 2 | $0 | $0 | $0 | $0 | 1 |
| TIMOTHY DILLS | BOARD MEMBER | 2 | $0 | $0 | $0 | $0 | 1 |
| BONNIE HOGUE DUFFY | BOARD MEMBER | 2 | $0 | $0 | $0 | $0 | 1 |
| TANJALA GIPSON | BOARD MEMBER | 2 | $0 | $0 | $0 | $0 | 1 |
| STEVEN GOLDSTEIN | BOARD MEMBER | 2 | $0 | $0 | $0 | $0 | 2 |
| ROBERT GRANDIA | BOARD MEMBER | 2 | $0 | $0 | $0 | $0 | 1 |
| DANA HOLINKA | BOARD MEMBER | 2 | $0 | $0 | $0 | $0 | 1 |
| JESSICA KREFTING | BOARD MEMBER | 2 | $0 | $0 | $0 | $0 | 1 |
| DARCY KRUEGER | BOARD MEMBER | 2 | $0 | $0 | $0 | $0 | 1 |
| HEATHER LENS | BOARD MEMBER | 2 | $0 | $0 | $0 | $0 | 1 |
| JIM MAGINN | BOARD MEMBER | 2 | $0 | $0 | $0 | $0 | 2 |
| DIANE MCSWAIN | BOARD MEMBER | 2 | $0 | $0 | $0 | $0 | 1 |
| MUSTAFA SAHIN | BOARD MEMBER | 2 | $0 | $0 | $0 | $0 | 1 |
| SEAN SHILLINGER | BOARD MEMBER | 2 | $0 | $0 | $0 | $0 | 1 |
| MATTHEW SIMONIAN | BOARD MEMBER | 2 | $0 | $0 | $0 | $0 | 1 |
| VANESSA VAZQUEZ | BOARD MEMBER | 2 | $0 | $0 | $0 | $0 | 1 |
| TARA ZIMMERMAN | BOARD MEMBER | 2 | $0 | $0 | $0 | $0 | 1 |
2020 · 34 people listed · 7 paid, $1.2M · 22 employees · 2,284 volunteers
| Name | Title | Hrs/wk | From org | From related | Other | Total | Orgs |
|---|---|---|---|---|---|---|---|
| STEVEN L ROBERDS | CHIEF SCIENTIFIC OFFICER | 45 | $208,882 | $0 | $21,307 | $230,189 | 1 |
| KARI L ROSBECK | PRESIDENT & CEO | 54 | $194,307 | $3,598 | $22,457 | $220,362 | 2 |
| RICHARD GOLLUB | CFO | 47 | $143,807 | $9,180 | $24,213 | $177,200 | 2 |
| DEAN RAGER-AGUIAR | DIR. PRECLINICAL RESEARCH | 45 | $147,083 | $0 | $21,593 | $168,676 | 1 |
| LISA M MOSS | SR. DIR. DONOR RELATIONS | 45 | $109,573 | $0 | $18,518 | $128,091 | 1 |
| JAYE D ISHAM | VP, COMMUNICATIONS STRATEGY | 45 | $119,879 | $0 | $4,398 | $124,277 | 1 |
| APRIL COOPER | DIR. COMMUNITY PROGRAMS | 45 | $107,298 | $0 | $4,722 | $112,020 | 1 |
| CHRIS RUSSELL | CHAIR | 5 | $0 | $0 | $0 | $0 | 1 |
| PETER CRINO MD PHD | VICE CHAIR | 5 | $0 | $0 | $0 | $0 | 1 |
| TIM DILLS | IMMEDIATE PAST CHAIR | 5 | $0 | $0 | $0 | $0 | 2 |
| LAURA MARKS | SECRETARY | 5 | $0 | $0 | $0 | $0 | 1 |
| WILLIAM JOSEPH | TREASURER | 5 | $0 | $0 | $0 | $0 | 2 |
| JULIE BLUM | BOARD MEMBER | 2 | $0 | $0 | $0 | $0 | 1 |
| MATT BOLGER | BOARD MEMBER | 2 | $0 | $0 | $0 | $0 | 1 |
| CASSANDRA CARROLL | BOARD MEMBER | 2 | $0 | $0 | $0 | $0 | 1 |
| MARK CARROLL | BOARD MEMBER | 2 | $0 | $0 | $0 | $0 | 2 |
| SARA CHIEFFO | BOARD MEMBER | 2 | $0 | $0 | $0 | $0 | 1 |
| DAVID COIT | BOARD MEMBER | 2 | $0 | $0 | $0 | $0 | 1 |
| MARGARET COX | BOARD MEMBER | 2 | $0 | $0 | $0 | $0 | 1 |
| BONNIE HOGUE DUFFY | BOARD MEMBER | 2 | $0 | $0 | $0 | $0 | 1 |
| STEVEN GOLDSTEIN | BOARD MEMBER | 2 | $0 | $0 | $0 | $0 | 2 |
| ROB GRANDIA | BOARD MEMBER | 2 | $0 | $0 | $0 | $0 | 1 |
| DANA HOLINKA | BOARD MEMBER | 2 | $0 | $0 | $0 | $0 | 1 |
| DARCY A KRUEGER | BOARD MEMBER | 2 | $0 | $0 | $0 | $0 | 1 |
| HEATHER LENS | BOARD MEMBER | 2 | $0 | $0 | $0 | $0 | 1 |
| JIM MAGINN | BOARD MEMBER | 2 | $0 | $0 | $0 | $0 | 2 |
| DIANE MCSWAIN | BOARD MEMBER | 2 | $0 | $0 | $0 | $0 | 1 |
| MUSTAFA SAHIN | BOARD MEMBER | 2 | $0 | $0 | $0 | $0 | 1 |
| SEAN SHILLINGER | BOARD MEMBER | 2 | $0 | $0 | $0 | $0 | 1 |
| JUDY SHOULAK | BOARD MEMBER | 2 | $0 | $0 | $0 | $0 | 1 |
| MATTHEW SIMONIAN | BOARD MEMBER | 2 | $0 | $0 | $0 | $0 | 1 |
| VANESSA VAZQUEZ | BOARD MEMBER | 2 | $0 | $0 | $0 | $0 | 1 |
| PAUL WAXLAX | BOARD MEMBER | 2 | $0 | $0 | $0 | $0 | 2 |
| TARA ZIMMERMAN | BOARD MEMBER | 2 | $0 | $0 | $0 | $0 | 1 |
2019 · 33 people listed · 6 paid, $1.1M · 22 employees · 2,122 volunteers
| Name | Title | Hrs/wk | From org | From related | Other | Total | Orgs |
|---|---|---|---|---|---|---|---|
| STEVEN L ROBERDS | CHIEF SCIENTIFIC OFFICER | 45 | $209,520 | $0 | $28,079 | $237,599 | 1 |
| KARI L ROSBECK | PRESIDENT & CEO | 54 | $195,071 | $3,612 | $33,181 | $231,864 | 2 |
| RICHARD GOLLUB | CFO | 47 | $146,474 | $9,350 | $29,692 | $185,516 | 2 |
| DEAN RAGER-AGUIAR | DIRECTOR, PRECLINICAL RESEARCH | 45 | $142,036 | $0 | $27,130 | $169,166 | 1 |
| LISA M MOSS | SR DIRECTOR OF DONOR RELATIONS | 45 | $104,957 | $0 | $23,739 | $128,696 | 1 |
| JAYE D ISHAM | VP, COMMUNICATIONS STRATEGY | 45 | $113,018 | $0 | $4,626 | $117,644 | 1 |
| CHRIS RUSSELL | CHAIR (FROM 7/2019) | 5 | $0 | $0 | $0 | $0 | 1 |
| BETH DEAN | CHAIR (TIL 7/2019) | 5 | $0 | $0 | $0 | $0 | 1 |
| CASSANDRA CARROLL | VICE CHAIR | 5 | $0 | $0 | $0 | $0 | 1 |
| TIM DILLS | IMMEDIATE PAST CHAIR | 5 | $0 | $0 | $0 | $0 | 2 |
| TARA ZIMMERMAN | SECRETARY | 5 | $0 | $0 | $0 | $0 | 1 |
| DARREN MILES | TREASURER | 5 | $0 | $0 | $0 | $0 | 2 |
| JOHN J BISSLER MD | BOARD MEMBER | 2 | $0 | $0 | $0 | $0 | 1 |
| MATT BOLGER | BOARD MEMBER | 2 | $0 | $0 | $0 | $0 | 1 |
| SARA CHIEFFO | BOARD MEMBER | 2 | $0 | $0 | $0 | $0 | 1 |
| DAVID COIT | BOARD MEMBER | 2 | $0 | $0 | $0 | $0 | 1 |
| MARGARET COX | BOARD MEMBER | 2 | $0 | $0 | $0 | $0 | 1 |
| PETER CRINO MD PHD | BOARD MEMBER | 2 | $0 | $0 | $0 | $0 | 1 |
| BONNIE HOGUE DUFFY | BOARD MEMBER | 2 | $0 | $0 | $0 | $0 | 1 |
| STEVEN GOLDSTEIN | BOARD MEMBER | 2 | $0 | $0 | $0 | $0 | 2 |
| ROB GRANDIA | BOARD MEMBER | 2 | $0 | $0 | $0 | $0 | 1 |
| TOM GWINN | BOARD MEMBER | 2 | $0 | $0 | $0 | $0 | 1 |
| DANA HOLINKA | BOARD MEMBER | 2 | $0 | $0 | $0 | $0 | 1 |
| DARCY A KRUEGER | BOARD MEMBER | 2 | $0 | $0 | $0 | $0 | 1 |
| HEATHER LENS | BOARD MEMBER | 2 | $0 | $0 | $0 | $0 | 1 |
| JIM MAGINN | BOARD MEMBER | 2 | $0 | $0 | $0 | $0 | 2 |
| BRENDAN D MANNING PHD | BOARD MEMBER | 2 | $0 | $0 | $0 | $0 | 1 |
| DIANE MCSWAIN | BOARD MEMBER (FROM 12/2019) | 2 | $0 | $0 | $0 | $0 | 1 |
| ADOLFO ORIVE | BOARD MEMBER (TIL 5/2019) | 2 | $0 | $0 | $0 | $0 | 1 |
| MUSTAFA SAHIN | BOARD MEMBER | 2 | $0 | $0 | $0 | $0 | 1 |
| SEAN SHILLINGER | BOARD MEMBER | 2 | $0 | $0 | $0 | $0 | 1 |
| JUDY SHOULAK | BOARD MEMBER (FROM 8/2019) | 2 | $0 | $0 | $0 | $0 | 1 |
| MATTHEW SIMONIAN | BOARD MEMBER | 2 | $0 | $0 | $0 | $0 | 1 |
2018 · 29 people listed · 5 paid, $867K · 23 employees · 2,947 volunteers
| Name | Title | Hrs/wk | From org | From related | Other | Total | Orgs |
|---|---|---|---|---|---|---|---|
| STEVEN L ROBERDS | CHIEF SCIENTIFIC OFFICER | 45 | $199,841 | $0 | $29,403 | $229,244 | 1 |
| KARI L ROSBECK | PRESIDENT & CEO | 54 | $186,994 | $3,463 | $31,736 | $222,193 | 2 |
| RICHARD A GOLLUB | CONTROLLER & CFO | 47 | $138,939 | $8,869 | $30,755 | $178,563 | 2 |
| LISA MOSS | SR DIRECTOR OF DONOR RELATIONS | 45 | $100,873 | $0 | $22,956 | $123,829 | 1 |
| JAYE D ISHAM | VP, COMMUNICATIONS STRATEGY | 45 | $109,148 | $0 | $4,510 | $113,658 | 1 |
| BETH DEAN | CHAIR | 5 | $0 | $0 | $0 | $0 | 1 |
| CHRIS RUSSELL | VICE CHAIR | 5 | $0 | $0 | $0 | $0 | 1 |
| TIM DILLS | IMMEDIATE PAST CHAIR | 5 | $0 | $0 | $0 | $0 | 2 |
| CASSANDRA CARROLL | SECRETARY | 5 | $0 | $0 | $0 | $0 | 1 |
| JIM MAGINN | TREASURER | 5 | $0 | $0 | $0 | $0 | 2 |
| MARTINA BEBIN MD MPA | BOARD MEMBER | 2 | $0 | $0 | $0 | $0 | 1 |
| JOHN J BISSLER MD | BOARD MEMBER | 2 | $0 | $0 | $0 | $0 | 1 |
| MICHAEL CAGGIANO | BOARD MEMBER | 2 | $0 | $0 | $0 | $0 | 1 |
| SARA CHIEFFO | BOARD MEMBER | 2 | $0 | $0 | $0 | $0 | 1 |
| DAVID COIT | BOARD MEMBER | 2 | $0 | $0 | $0 | $0 | 1 |
| MARGARET COX | BOARD MEMBER | 2 | $0 | $0 | $0 | $0 | 1 |
| PETER CRINO MD PHD | BOARD MEMBER | 2 | $0 | $0 | $0 | $0 | 1 |
| BONNIE HOGUE DUFFY | BOARD MEMBER | 2 | $0 | $0 | $0 | $0 | 1 |
| DAVID FITZMAURICE | BOARD MEMBER | 2 | $0 | $0 | $0 | $0 | 1 |
| ROB GRANDIA | BOARD MEMBER | 2 | $0 | $0 | $0 | $0 | 1 |
| TOM GWINN | BOARD MEMBER | 2 | $0 | $0 | $0 | $0 | 1 |
| DANA HOLINKA | BOARD MEMBER | 2 | $0 | $0 | $0 | $0 | 1 |
| LAURA S LUBBERS | BOARD MEMBER | 2 | $0 | $0 | $0 | $0 | 1 |
| BRENDAN D MANNING PHD | BOARD MEMBER | 2 | $0 | $0 | $0 | $0 | 1 |
| DARREN MILES | BOARD MEMBER | 2 | $0 | $0 | $0 | $0 | 2 |
| ADOLFO ORIVE | BOARD MEMBER | 2 | $0 | $0 | $0 | $0 | 1 |
| REBECCA ANHANG PRICE | BOARD MEMBER | 2 | $0 | $0 | $0 | $0 | 1 |
| MATTHEW SIMONIAN | BOARD MEMBER | 2 | $0 | $0 | $0 | $0 | 1 |
| TARA ZIMMERMAN | BOARD MEMBER | 2 | $0 | $0 | $0 | $0 | 1 |
2017 · 25 people listed · 5 paid, $869K · 19 employees · 1,667 volunteers
| Name | Title | Hrs/wk | From org | From related | Other | Total | Orgs |
|---|---|---|---|---|---|---|---|
| STEVEN L ROBERDS | CHIEF SCIENTIFIC OFFICER | 45 | $201,086 | $0 | $31,043 | $232,129 | 1 |
| KARI L ROSEBECK | PRESIDENT & CEO | 54 | $192,244 | $0 | $28,504 | $220,748 | 1 |
| RICHARD A GOLLUB | CONTROLLER & CFO | 46 | $147,524 | $0 | $33,575 | $181,099 | 2 |
| LISA MOSS | SR DIRECTOR OF DONOR RELATIONS | 45 | $101,755 | $0 | $23,366 | $125,121 | 1 |
| JAYE D ISHAM | VP, COMMUNICATIONS STRATEGY | 45 | $105,665 | $0 | $4,406 | $110,071 | 1 |
| TIM DILLS | CHAIR | 5 | $0 | $0 | $0 | $0 | 2 |
| BETH DEAN | VICE CHAIR | 5 | $0 | $0 | $0 | $0 | 1 |
| DAVID FITZMAURICE | IMMEDIATE PAST CHAIR | 5 | $0 | $0 | $0 | $0 | 1 |
| REBECCA ANHANG PRICE | SECRETARY | 5 | $0 | $0 | $0 | $0 | 1 |
| JIM MAGINN | TREASURER | 5 | $0 | $0 | $0 | $0 | 2 |
| MARTINA BEBIN MD MPA | BOARD MEMBER | 2 | $0 | $0 | $0 | $0 | 1 |
| JOHN J BISSLER MD | BOARD MEMBER | 2 | $0 | $0 | $0 | $0 | 1 |
| MICHAEL CAGGIANO | BOARD MEMBER | 2 | $0 | $0 | $0 | $0 | 1 |
| CASSANDRA CARROLL | BOARD MEMBER | 2 | $0 | $0 | $0 | $0 | 1 |
| SARA CHIEFFO | BOARD MEMBER | 2 | $0 | $0 | $0 | $0 | 1 |
| MARGARET COX | BOARD MEMBER | 2 | $0 | $0 | $0 | $0 | 1 |
| BONNIE HOGUE DUFFY | BOARD MEMBER | 2 | $0 | $0 | $0 | $0 | 1 |
| TOM GWINN | BOARD MEMBER | 2 | $0 | $0 | $0 | $0 | 1 |
| LAURA S LUBBERS | BOARD MEMBER | 2 | $0 | $0 | $0 | $0 | 1 |
| BRENDAN D MANNING PHD | BOARD MEMBER | 2 | $0 | $0 | $0 | $0 | 1 |
| DAVID MICHAELS | BOARD MEMBER | 2 | $0 | $0 | $0 | $0 | 2 |
| DARREN MILES | BOARD MEMBER | 2 | $0 | $0 | $0 | $0 | 2 |
| DEBORA L MORITZ | BOARD MEMBER | 5 | $0 | $0 | $0 | $0 | 1 |
| JULIE SCROGGINS | BOARD MEMBER | 2 | $0 | $0 | $0 | $0 | 1 |
| MATTHEW SIMONIAN | BOARD MEMBER | 2 | $0 | $0 | $0 | $0 | 1 |
2016 · 23 people listed · 4 paid, $679K · 17 employees · 1,566 volunteers
| Name | Title | Hrs/wk | From org | From related | Other | Total | Orgs |
|---|---|---|---|---|---|---|---|
| STEVEN L ROBERDS | CHIEF SCIENTIFIC OFFICER | 45 | $184,985 | $0 | $29,172 | $214,157 | 1 |
| KARI L ROSEBECK | PRESIDENT & CEO | 54 | $170,716 | $0 | $26,641 | $197,357 | 1 |
| RICHARD A GOLLUB | CONTROLLER & CFO | 46 | $132,717 | $0 | $30,661 | $163,378 | 2 |
| JAYE D ISHAM | VP, COMMUNICATIONS STRATEGY | 45 | $100,926 | $0 | $3,670 | $104,596 | 1 |
| DAVID FITZMAURICE | CHAIR | 5 | $0 | $0 | $0 | $0 | 1 |
| TIM DILLS | VICE CHAIR | 5 | $0 | $0 | $0 | $0 | 2 |
| LAURA S LUBBERS | IMMEDIATE PAST CHAIR | 5 | $0 | $0 | $0 | $0 | 1 |
| BETH DEAN | SECRETARY | 5 | $0 | $0 | $0 | $0 | 1 |
| DARREN MILES | TREASURER | 5 | $0 | $0 | $0 | $0 | 2 |
| REBECCA ANHANG PRICE | BOARD MEMBER | 2 | $0 | $0 | $0 | $0 | 1 |
| MARTINA BEBIN MD MPA | BOARD MEMBER | 2 | $0 | $0 | $0 | $0 | 1 |
| JOHN J BISSLER MD | BOARD MEMBER | 2 | $0 | $0 | $0 | $0 | 1 |
| MICHAEL CAGGIANO | BOARD MEMBER | 2 | $0 | $0 | $0 | $0 | 1 |
| CASSANDRA CARROLL | BOARD MEMBER | 2 | $0 | $0 | $0 | $0 | 1 |
| APRIL COOPER | BOARD MEMBER | 2 | $0 | $0 | $0 | $0 | 1 |
| BONNIE HOGUE DUFFY | BOARD MEMBER | 2 | $0 | $0 | $0 | $0 | 1 |
| KEITH A HALL | BOARD MEMBER | 2 | $0 | $0 | $0 | $0 | 1 |
| JIM MAGINN | BOARD MEMBER | 2 | $0 | $0 | $0 | $0 | 2 |
| BRENDAN D MANNING PHD | BOARD MEMBER | 2 | $0 | $0 | $0 | $0 | 1 |
| THEODORE MASTROIANNI | BOARD MEMBER | 2 | $0 | $0 | $0 | $0 | 1 |
| DAVID MICHAELS | BOARD MEMBER | 2 | $0 | $0 | $0 | $0 | 2 |
| DEBORA L MORITZ | BOARD MEMBER | 2 | $0 | $0 | $0 | $0 | 1 |
| MATTHEW SIMONIAN | BOARD MEMBER | 2 | $0 | $0 | $0 | $0 | 1 |
2015 · 25 people listed · 4 paid, $582K · 21 employees · 1,638 volunteers
| Name | Title | Hrs/wk | From org | From related | Other | Total | Orgs |
|---|---|---|---|---|---|---|---|
| STEVEN L ROBERDS | CHIEF SCIENTIFIC OFFICER | 45 | $182,854 | $0 | $25,253 | $208,107 | 1 |
| KARI L ROSBECK | PRESIDENT & CEO | 54 | $164,915 | $3,366 | $22,606 | $190,887 | 2 |
| RICHARD A GOLLUB | CONTROLLER & CFO (FROM MAR 15) | 46 | $89,652 | $6,956 | $16,691 | $113,299 | 2 |
| MARY JANE PERRAUT | CFO (UNTIL APR 15) | 49 | $63,153 | $1,289 | $5,062 | $69,504 | 2 |
| LAURA LUBBERS | CHAIR | 5 | $0 | $0 | $0 | $0 | 1 |
| DAVID FITZMAURICE | VICE CHAIR | 5 | $0 | $0 | $0 | $0 | 1 |
| KEITH HALL | IMMEDIATE PAST CHAIR | 5 | $0 | $0 | $0 | $0 | 1 |
| REBECCA ANHANG PRICE | SECRETARY | 5 | $0 | $0 | $0 | $0 | 1 |
| DARREN MILES | TREASURER | 5 | $0 | $0 | $0 | $0 | 2 |
| MARTINA BEBIN | BOARD MEMBER | 2 | $0 | $0 | $0 | $0 | 1 |
| JOHN BISSLER MD | BOARD MEMBER | 2 | $0 | $0 | $0 | $0 | 1 |
| Cassandra Carroll | bOARD MEMBER | 2 | $0 | $0 | $0 | $0 | 1 |
| April Cooper | BOARD MEMBER | 2 | $0 | $0 | $0 | $0 | 1 |
| Beth Dean | BOARD MEMBER | 2 | $0 | $0 | $0 | $0 | 1 |
| RITA DIDOMENICO | BOARD MEMBER | 2 | $0 | $0 | $0 | $0 | 2 |
| STEVEN GOLDSTEIN | boARD MEMBER | 2 | $0 | $0 | $0 | $0 | 2 |
| Colleen Johns | BOARD MEMBER | 2 | $0 | $0 | $0 | $0 | 1 |
| BRENDAN MANNING PHD | BOARD MEMBER | 2 | $0 | $0 | $0 | $0 | 1 |
| THEODORE MASTROIANNI | BOARD MEMBER | 2 | $0 | $0 | $0 | $0 | 1 |
| DAVID MICHAELS | BOARD MEMBER | 2 | $0 | $0 | $0 | $0 | 2 |
| DEBORA MORITZ | bOARD MEMBER | 5 | $0 | $0 | $0 | $0 | 1 |
| COURTNEY O'MALLEY | BOARD MEMBER | 2 | $0 | $0 | $0 | $0 | 1 |
| DAVID PARKES | BOARD MEMBER | 2 | $0 | $0 | $0 | $0 | 1 |
| HENRY SHAPIRO | BOARD MEMBER | 2 | $0 | $0 | $0 | $0 | 1 |
| ELIZABETH THIELE MD PHD | BOARD MEMBER | 2 | $0 | $0 | $0 | $0 | 1 |
2014 · 27 people listed · 3 paid, $569K · 20 employees · 2,000 volunteers
| Name | Title | Hrs/wk | From org | From related | Other | Total | Orgs |
|---|---|---|---|---|---|---|---|
| STEVEN L ROBERDS | CHIEF SCIENTIFIC OFFICER | 45 | $177,610 | $0 | $30,064 | $207,674 | 1 |
| KARI L ROSBECK | PRESIDENT & CEO | 50 | $149,894 | $14,989 | $37,209 | $202,092 | 2 |
| MARY JANE PERRAUT | CHIEF FINANCIAL OFFICER | 40 | $114,746 | $14,343 | $29,989 | $159,078 | 2 |
| KEITH HALL | CHAIR | 5 | $0 | $0 | $0 | $0 | 1 |
| LAURA LUBBERS | VICE CHAIR | 5 | $0 | $0 | $0 | $0 | 1 |
| MATT BOLGER | IMMEDIATE PAST CHAIR | 5 | $0 | $0 | $0 | $0 | 1 |
| DAVID MICHAELS | TREASURER | 5 | $0 | $0 | $0 | $0 | 2 |
| DAVID FITZMAURICE | SECRETARY | 5 | $0 | $0 | $0 | $0 | 1 |
| HENRY SHAPIRO | BOARD MEMBER | 2 | $0 | $0 | $0 | $0 | 1 |
| REIKO DONATO | BOARD MEMBER | 2 | $0 | $0 | $0 | $0 | 1 |
| MARTINA BEBIN | BOARD MEMBER | 2 | $0 | $0 | $0 | $0 | 1 |
| DAVID PARKES | BOARD MEMBER | 2 | $0 | $0 | $0 | $0 | 1 |
| CELIA MASTBAUM | BOARD MEMBER | 2 | $0 | $0 | $0 | $0 | 1 |
| JULIE BLUM | BOARD MEMBER | 3 | $0 | $0 | $0 | $0 | 1 |
| RITA DIDOMENICO | BOARD MEMBER | 2 | $0 | $0 | $0 | $0 | 2 |
| JOHN BISSLER MD | BOARD MEMBER | 2 | $0 | $0 | $0 | $0 | 1 |
| STEVEN GOLDSTEIN | BOARD MEMBER | 2 | $0 | $0 | $0 | $0 | 2 |
| LINDA JACKSON | BOARD MEMBER | 2 | $0 | $0 | $0 | $0 | 1 |
| DARREN MILES | BOARD MEMBER | 2 | $0 | $0 | $0 | $0 | 2 |
| BRENDAN MANNING PHD | BOARD MEMBER | 2 | $0 | $0 | $0 | $0 | 1 |
| DEBORA MORITZ | BOARD MEMBER | 5 | $0 | $0 | $0 | $0 | 1 |
| THEODORE MASTROIANNI | BOARD MEMBER | 2 | $0 | $0 | $0 | $0 | 1 |
| COURTNEY O'MALLEY | BOARD MEMBER | 2 | $0 | $0 | $0 | $0 | 1 |
| JOHN NICHOLSON JR MD | BOARD MEMBER | 2 | $0 | $0 | $0 | $0 | 1 |
| REBECCA ANHANG PRICE | BOARD MEMBER | 2 | $0 | $0 | $0 | $0 | 1 |
| JUDITH SHOULAK | BOARD MEMBER | 2 | $0 | $0 | $0 | $0 | 1 |
| ELIZABETH THIELE MD PHD | BOARD MEMBER | 2 | $0 | $0 | $0 | $0 | 1 |
2013 · 29 people listed · 3 paid, $500K · 15 employees · 2,000 volunteers
| Name | Title | Hrs/wk | From org | From related | Other | Total | Orgs |
|---|---|---|---|---|---|---|---|
| STEVEN L ROBERDS | CHIEF SCIENTIFIC OFFICER | 45 | $163,642 | $0 | $27,013 | $190,655 | 1 |
| KARI L ROSBECK | PRESIDENT & CEO | 50 | $137,053 | $13,705 | $26,627 | $177,385 | 2 |
| MARY JANE PERRAUT | CHIEF FINANCIAL OFFICER | 40 | $107,852 | $13,481 | $10,895 | $132,228 | 2 |
| MATT BOLGER | CHAIR | 5 | $0 | $0 | $0 | $0 | 1 |
| KEITH HALL | VICE CHAIR | 5 | $0 | $0 | $0 | $0 | 1 |
| HENRY SHAPIRO | IMMEDIATE PAST CHAIR | 5 | $0 | $0 | $0 | $0 | 1 |
| DAVID MICHAELS | TREASURER | 5 | $0 | $0 | $0 | $0 | 2 |
| REIKO DONATO | SECRETARY | 5 | $0 | $0 | $0 | $0 | 1 |
| MARTINA BEBIN | BOARD MEMBER | 2 | $0 | $0 | $0 | $0 | 1 |
| DAVID PARKES | BOARD MEMBER | 2 | $0 | $0 | $0 | $0 | 1 |
| CELIA MASTBAUM | BOARD MEMBER | 2 | $0 | $0 | $0 | $0 | 1 |
| JULIE BLUM | BOARD MEMBER | 3 | $0 | $0 | $0 | $0 | 1 |
| MARK CARROLL | BOARD MEMBER | 2 | $0 | $0 | $0 | $0 | 2 |
| RITA DIDOMENICO | BOARD MEMBER | 2 | $0 | $0 | $0 | $0 | 2 |
| PETER CRINO MD PHD | BOARD MEMBER | 2 | $0 | $0 | $0 | $0 | 1 |
| DAVID FITZMAURICE | BOARD MEMBER | 2 | $0 | $0 | $0 | $0 | 1 |
| JENNIFER GLASSMAN | BOARD MEMBER | 2 | $0 | $0 | $0 | $0 | 1 |
| STEVEN GOLDSTEIN | BOARD MEMBER | 2 | $0 | $0 | $0 | $0 | 2 |
| RON HEFFRON | BOARD MEMBER | 2 | $0 | $0 | $0 | $0 | 1 |
| LINDA JACKSON | BOARD MEMBER | 2 | $0 | $0 | $0 | $0 | 1 |
| LAURA LUBBERS | BOARD MEMBER | 2 | $0 | $0 | $0 | $0 | 1 |
| DEBORA MORITZ | BOARD MEMBER | 5 | $0 | $0 | $0 | $0 | 1 |
| THEODORE MASTROIANNI | BOARD MEMBER | 2 | $0 | $0 | $0 | $0 | 1 |
| ALAN MARSHALL | BOARD MEMBER | 2 | $0 | $0 | $0 | $0 | 1 |
| COURTNEY O'MALLEY | BOARD MEMBER | 2 | $0 | $0 | $0 | $0 | 1 |
| JOHN NICHOLSON | BOARD MEMBER | 2 | $0 | $0 | $0 | $0 | 1 |
| REBECCA ANHANG PRICE | BOARD MEMBER | 2 | $0 | $0 | $0 | $0 | 1 |
| JUDITH SHOULAK | BOARD MEMBER | 2 | $0 | $0 | $0 | $0 | 1 |
| ELIZABETH THIELE MD PHD | BOARD MEMBER | 2 | $0 | $0 | $0 | $0 | 1 |
2012 · 29 people listed · 3 paid, $491K · 16 employees · 2,000 volunteers
| Name | Title | Hrs/wk | From org | From related | Other | Total | Orgs |
|---|---|---|---|---|---|---|---|
| KARI L ROSBECK | PRESIDENT & CEO | 50 | $138,889 | $13,889 | $34,200 | $186,978 | 2 |
| STEVEN L ROBERDS | CHIEF SCIENTIFIC OFFICER | 45 | $158,107 | $0 | $27,901 | $186,008 | 1 |
| MARY JANE PERRAUT | CHIEF FINANCIAL OFFICER | 45 | $95,260 | $11,907 | $11,322 | $118,489 | 2 |
| HENRY SHAPIRO | CHAIR | 5 | $0 | $0 | $0 | $0 | 1 |
| MATT BOLGER | VICE CHAIR | 5 | $0 | $0 | $0 | $0 | 1 |
| DAVID PARKES | IMMEDIATE PAST CHAIR | 5 | $0 | $0 | $0 | $0 | 1 |
| CELIA MASTBAUM | TREASURER | 5 | $0 | $0 | $0 | $0 | 1 |
| KEITH HALL | SECRETARY | 5 | $0 | $0 | $0 | $0 | 1 |
| JULIE BLUM | BOARD MEMBER | 3 | $0 | $0 | $0 | $0 | 1 |
| MARK CARROLL | BOARD MEMBER | 2 | $0 | $0 | $0 | $0 | 2 |
| RITA DIDOMENICO | BOARD MEMBER | 2 | $0 | $0 | $0 | $0 | 2 |
| PETER CRINO MD PHD | BOARD MEMBER | 2 | $0 | $0 | $0 | $0 | 1 |
| REIKO DONATO | BOARD MEMBER | 4 | $0 | $0 | $0 | $0 | 1 |
| WILLIAM FORD | BOARD MEMBER | 2 | $0 | $0 | $0 | $0 | 2 |
| JENNIFER GLASSMAN | BOARD MEMBER | 2 | $0 | $0 | $0 | $0 | 1 |
| STEVEN GOLDSTEIN | BOARD MEMBER | 2 | $0 | $0 | $0 | $0 | 2 |
| ROB MOSS | BOARD MEMBER | 2 | $0 | $0 | $0 | $0 | 1 |
| RON HEFFRON | BOARD MEMBER | 2 | $0 | $0 | $0 | $0 | 1 |
| ELIZABETH HENSKE MD | BOARD MEMBER | 2 | $0 | $0 | $0 | $0 | 1 |
| LINDA JACKSON | BOARD MEMBER | 2 | $0 | $0 | $0 | $0 | 1 |
| DEBORA MORITZ | BOARD MEMBER | 4 | $0 | $0 | $0 | $0 | 1 |
| THEODORE MASTROIANNI | BOARD MEMBER | 2 | $0 | $0 | $0 | $0 | 1 |
| ALAN MARSHALL | BOARD MEMBER | 2 | $0 | $0 | $0 | $0 | 1 |
| DAVID MICHAELS | BOARD MEMBER | 2 | $0 | $0 | $0 | $0 | 2 |
| COURTNEY O'MALLEY | BOARD MEMBER | 2 | $0 | $0 | $0 | $0 | 1 |
| JOHN NICHOLSON | BOARD MEMBER | 2 | $0 | $0 | $0 | $0 | 1 |
| REBECCA ANHANG PRICE | BOARD MEMBER | 2 | $0 | $0 | $0 | $0 | 1 |
| JUDITH SHOULAK | BOARD MEMBER | 2 | $0 | $0 | $0 | $0 | 1 |
| ELIZABETH THIELE MD PHD | BOARD MEMBER | 2 | $0 | $0 | $0 | $0 | 1 |
2011 · 28 people listed · 1 paid, $175K · 13 employees · 2,000 volunteers
| Name | Title | Hrs/wk | From org | From related | Other | Total | Orgs |
|---|---|---|---|---|---|---|---|
| KARI L ROSBECK | PRESIDENT & CEO | 50 | $141,328 | $2,884 | $30,797 | $175,009 | 2 |
| CELIA MASTBAUM | IMMEDIATE PAST CHAIR | 5 | $0 | $0 | $0 | $0 | 1 |
| DAVID PARKES | CHAIR | 5 | $0 | $0 | $0 | $0 | 1 |
| HENRY SHAPIRO | VICE CHAIR | 5 | $0 | $0 | $0 | $0 | 1 |
| MATT BOLGER | SECRETARY | 5 | $0 | $0 | $0 | $0 | 1 |
| RITA DIDOMENICO | TREASURER | 5 | $0 | $0 | $0 | $0 | 2 |
| JULIE BLUM | BOARD MEMBER | 3 | $0 | $0 | $0 | $0 | 1 |
| MARK CARROLL | BOARD MEMBER | 2 | $0 | $0 | $0 | $0 | 2 |
| WILL COOPER SR | BOARD MEMBER | 4 | $0 | $0 | $0 | $0 | 1 |
| PETER CRINO MD PHD | BOARD MEMBER | 2 | $0 | $0 | $0 | $0 | 1 |
| REIKO DONATO | BOARD MEMBER | 4 | $0 | $0 | $0 | $0 | 1 |
| WILLIAM FORD | BOARD MEMBER | 2 | $0 | $0 | $0 | $0 | 2 |
| JANIE FROST RN | BOARD MEMBER | 2 | $0 | $0 | $0 | $0 | 1 |
| JENNIFER GLASSMAN | BOARD MEMBER | 2 | $0 | $0 | $0 | $0 | 1 |
| STEVEN GOLDSTEIN | BOARD MEMBER | 2 | $0 | $0 | $0 | $0 | 2 |
| KEITH HALL | BOARD MEMBER | 2 | $0 | $0 | $0 | $0 | 1 |
| RON HEFFRON | BOARD MEMBER | 2 | $0 | $0 | $0 | $0 | 1 |
| ELIZABETH HENSKE MD | BOARD MEMBER | 2 | $0 | $0 | $0 | $0 | 1 |
| LINDA JACKSON | BOARD MEMBER | 2 | $0 | $0 | $0 | $0 | 1 |
| CATHY KRINSKY | BOARD MEMBER | 2 | $0 | $0 | $0 | $0 | 1 |
| THEODORE MASTROIANNI | BOARD MEMBER | 2 | $0 | $0 | $0 | $0 | 1 |
| ALAN MARSHALL | BOARD MEMBER | 2 | $0 | $0 | $0 | $0 | 1 |
| KATHY MAYRSOHN | BOARD MEMBER | 2 | $0 | $0 | $0 | $0 | 1 |
| JOHN NICHOLSON MD MBA | BOARD MEMBER | 2 | $0 | $0 | $0 | $0 | 1 |
| COURTNEY O'MALLEY | BOARD MEMBER | 2 | $0 | $0 | $0 | $0 | 1 |
| DAVID SCHENKEIN MD | BOARD MEMBER | 2 | $0 | $0 | $0 | $0 | 1 |
| JUDITH SHOULAK | BOARD MEMBER | 2 | $0 | $0 | $0 | $0 | 1 |
| ELIZABETH THIELE MD PHD | BOARD MEMBER | 2 | $0 | $0 | $0 | $0 | 1 |
Highest-paid independent contractors
2025 · 3 contractors · $2.5M
| Name | Location | Service | Paid |
|---|---|---|---|
| PSYCHOGENICS INC | NEW YORK, NY | RESEARCH LAB SERVICES | $2,200,089 |
| VAN ANDEL RESEARCH INSTITUTE | GRAND RAPIDS, MI | RESEARCH LAB SERVICES | $203,994 |
| CAVAROCCHI RUSCIO DENNIS & ASSOCIATES | WASHINGTON, DC | GOVERNMENT RELATIONS | $122,614 |
2024 · 3 contractors · $2.6M
| Name | Location | Service | Paid |
|---|---|---|---|
| PSYCHOGENICS INC | NEW YORK, NY | RESEARCH LAB SERVICES | $2,196,755 |
| VAN ANDEL RESEARCH INSTITUTE | GRAND RAPIDS, MI | RESEARCH LAB SERVICES | $275,408 |
| CAVAROCCHI RUSCIO DENNIS & ASSOCIATES | WASHINGTON, DC | GOVERNMENT RELATIONS | $121,737 |
2023 · 3 contractors · $2.2M
| Name | Location | Service | Paid |
|---|---|---|---|
| PSYCHOGENICS INC | NEW YORK, NY | RESEARCH LAB SERVICES | $1,565,754 |
| VAN ANDEL RESEARCH INSTITUTE | GRAND RAPIDS, MI | RESEARCH LAB SERVICES | $493,453 |
| CAVAROCCHI RUSCIO DENNIS & ASSOCIATES | WASHINGTON, DC | GOVERNMENT RELATIONS | $117,714 |
2022 · 4 contractors · $1.5M
| Name | Location | Service | Paid |
|---|---|---|---|
| PSYCHOGENICS INC | NEW YORK, NY | RESEARCH LAB SERVICES | $1,194,468 |
| MMS HOLDINGS INC | CANTON, MI | RESEARCH LAB SERVICES | $121,387 |
| CAVAROCCHI RUSCIO DENNIS & ASSOCIATES | WASHINGTON, DC | GOVERNMENT RELATIONS | $116,364 |
| GEBEN COMMUNICATIONS | COLUMBUS, OH | MARKING CONSULTING | $102,875 |
2021 · 3 contractors · $1.9M
| Name | Location | Service | Paid |
|---|---|---|---|
| PSYCHOGENICS INC | NEW YORK, NY | RESEARCH LAB SERVICES | $1,564,533 |
| VAN ANDEL RESEARCH INSTITUTE | GRAND RAPIDS, MI | LABORATORY SERVICES | $227,915 |
| CAVAROCCHI RUSCIO DENNIS AND ASSOCIATES | WASHINGTON, DC | GOVERNMENT RELATIONS | $112,980 |
2020 · 4 contractors · $968K
| Name | Location | Service | Paid |
|---|---|---|---|
| PSYCHOGENICS INC | NEW YORK, NY | RESEARCH LAB SERVICES | $601,033 |
| VAN ANDEL RESEARCH INSTITUTE | GRAND RAPIDS, MI | LABORATORY SERVICES | $144,738 |
| CAVAROCCHI RUSCIO DENNIS AND ASSOCIATES | WASHINGTON, DC | GOVERNMENT RELATIONS | $113,547 |
| GRAHAM-PELTON CONSULTING | SUMMIT, NJ | DEVELOPMENT STRATEGY | $109,122 |
2019 · 4 contractors · $581K
| Name | Location | Service | Paid |
|---|---|---|---|
| PSYCHOGENICS INC | NEW YORK, NY | RESEARCH LAB SERVICES | $218,333 |
| PORSOLT SAS | LE GENESTSAINTISLE | RESEARCH LAB SERVICES | $140,155 |
| VAN ANDEL RESEARCH INSTITUTE | GRAND RAPIDS, MI | LABORATORY SERVICES | $119,005 |
| CAVAROCCHI RUSCIO DENNIS AND ASSOCIATES | WASHINGTON, DC | GOVERNMENT RELATIONS | $103,164 |
2018 · 3 contractors · $1.0M
| Name | Location | Service | Paid |
|---|---|---|---|
| PSYCHOGENICS INC | NEW YORK, NY | RESEARCH LAB SVCS | $782,961 |
| PORSOLT SAS | LEGENESTSAINTISLE | RESEARCH LAB SVCS | $122,260 |
| CAVAROCCHI RUSCIO DENNIS & ASSOC LLC | WASH, DC | GOVERNMENT RELATIONS | $116,914 |
2017 · 2 contractors · $1.0M
| Name | Location | Service | Paid |
|---|---|---|---|
| PSYCHOGENICS INC | NEW YORK, NY | RESEARCH LAB SVCS | $901,513 |
| VAN ANDEL RESEARCH INSTITUTE | GRAND RAPIDS, MI | RESEARCH | $133,575 |
2016 · 1 contractor · $104K
| Name | Location | Service | Paid |
|---|---|---|---|
| CAVAROCCHI RUSCIO DENNIS ASSOCIAT | WASHINGTON, DC | GOVT RELATIONS | $103,884 |
2015 · 1 contractor · $102K
| Name | Location | Service | Paid |
|---|---|---|---|
| Cavarocchi Ruscio Dennis Associates | Washington, DC | Government Relations Consulting | $101,844 |
Who the money went to
Grants this organization reported paying: Schedule I Part II of the Form 990, or the grants-paid list on the 990-PF. Open a year for every recipient. Recipients link to their own page when the grant names an EIN we have (990-PF grants list no EIN, so those link only on an exact, unique name and state). Grants to individuals are counted; their names are not shown.
2025 · 11 grants to organizations · $702K
Listed grants add up to $701,695; the return's “grants paid” expense line says $1,040,281. Returns can differ here (grants paid vs. accrued, items listed elsewhere); check the filing.
2024 · 9 grants to organizations · $594K
Listed grants add up to $594,369; the return's “grants paid” expense line says $730,927. Returns can differ here (grants paid vs. accrued, items listed elsewhere); check the filing.
2023 · 13 grants to organizations · $633K
Listed grants add up to $632,808; the return's “grants paid” expense line says $845,292. Returns can differ here (grants paid vs. accrued, items listed elsewhere); check the filing.
2022 · 12 grants to organizations · $658K
Listed grants add up to $657,611; the return's “grants paid” expense line says $1,032,155. Returns can differ here (grants paid vs. accrued, items listed elsewhere); check the filing.
2021 · 12 grants to organizations · $835K
Listed grants add up to $834,756; the return's “grants paid” expense line says $948,236. Returns can differ here (grants paid vs. accrued, items listed elsewhere); check the filing.
2020 · 13 grants to organizations · $623K
Listed grants add up to $623,402; the return's “grants paid” expense line says $685,788. Returns can differ here (grants paid vs. accrued, items listed elsewhere); check the filing.
2019 · 9 grants to organizations · $474K
Listed grants add up to $474,302; the return's “grants paid” expense line says $617,106. Returns can differ here (grants paid vs. accrued, items listed elsewhere); check the filing.
2018 · 8 grants to organizations · $389K
Listed grants add up to $388,585; the return's “grants paid” expense line says $464,190. Returns can differ here (grants paid vs. accrued, items listed elsewhere); check the filing.
2017 · 5 grants to organizations · $456K
Listed grants add up to $456,145; the return's “grants paid” expense line says $535,454. Returns can differ here (grants paid vs. accrued, items listed elsewhere); check the filing.
2016 · 10 grants to organizations · $746K
Listed grants add up to $746,250; the return's “grants paid” expense line says $940,040. Returns can differ here (grants paid vs. accrued, items listed elsewhere); check the filing.
2015 · 8 grants to organizations · $458K
Listed grants add up to $457,551; the return's “grants paid” expense line says $488,698. Returns can differ here (grants paid vs. accrued, items listed elsewhere); check the filing.
2014 · 7 grants to organizations · $368K
Listed grants add up to $368,489; the return's “grants paid” expense line says $457,520. Returns can differ here (grants paid vs. accrued, items listed elsewhere); check the filing.
2013 · 6 grants to organizations · $615K
Listed grants add up to $615,222; the return's “grants paid” expense line says $903,892. Returns can differ here (grants paid vs. accrued, items listed elsewhere); check the filing.
2012 · 8 grants to organizations · $803K · 1 returned · -$40K
Listed grants add up to $762,957; the return's “grants paid” expense line says $839,957. Returns can differ here (grants paid vs. accrued, items listed elsewhere); check the filing.
2011 · 14 grants to organizations · $1.1M
Listed grants add up to $1,141,026; the return's “grants paid” expense line says $1,174,276. Returns can differ here (grants paid vs. accrued, items listed elsewhere); check the filing.
Negative amounts are returned or refunded grants; they are listed last and left out of the totals of grants paid.
Who gave
Contributor names are not public for this form type.
Public charities filing Form 990 or 990-EZ report large donors on Schedule B, but the IRS withholds their names and addresses from public copies. Private foundations (990-PF) are different: their contributors are public.
Finances
Newest first. Each filing: its name on one row, its figures on the row beneath. Greyed filings are superseded by a later return for the same period and are left out everywhere else on this page.
| Revenue | Expenses | Assets | Net assets | Contributions | Program revenue | Officer pay | Employees | Volunteers |
|---|---|---|---|---|---|---|---|---|
| 2025 · Form 990 | ||||||||
| $9,807,320 | $9,133,802 | $18,024,174 | $16,048,406 | $6,133,143 | $2,653,098 | $723,527 | 26 | 385 |
| 2024 · Form 990 | ||||||||
| $10,000,895 | $8,660,018 | $17,254,701 | $15,366,113 | $7,048,334 | $2,105,029 | $724,475 | 26 | 373 |
| 2023 · Form 990 | ||||||||
| $10,016,383 | $8,467,648 | $16,085,768 | $13,997,348 | $6,747,948 | $2,815,353 | $703,405 | 26 | 2,234 |
| 2023 · Form 990 | ||||||||
| $10,016,383 | $8,467,648 | $16,085,768 | $13,997,348 | $6,747,948 | $2,815,353 | $703,405 | 26 | 2,234 |
| 2022 · Form 990 | ||||||||
| $8,909,542 | $8,063,684 | $14,827,937 | $12,454,846 | $7,016,851 | $2,720,317 | $726,880 | 27 | 2,534 |
| 2022 · Form 990 | ||||||||
| $8,909,542 | $8,063,684 | $14,827,937 | $12,454,846 | $7,016,851 | $2,720,317 | $726,880 | 27 | 2,534 |
| 2021 · Form 990 | ||||||||
| $9,015,987 | $6,869,562 | $14,046,866 | $11,608,986 | $5,769,053 | $2,234,262 | $797,701 | 22 | 2,234 |
| 2020 · Form 990 | ||||||||
| $5,128,164 | $5,422,190 | $11,657,873 | $9,462,561 | $4,345,011 | $792,685 | $667,009 | 22 | 2,284 |
| 2019 · Form 990 | ||||||||
| $6,716,234 | $5,639,335 | $10,351,316 | $9,756,587 | $5,527,543 | $461,658 | $672,082 | 22 | 2,122 |
| 2018 · Form 990 | ||||||||
| $5,491,441 | $5,868,533 | $9,281,566 | $8,679,688 | $4,105,376 | $1,884,102 | $647,517 | 23 | 2,947 |
| 2017 · Form 990 | ||||||||
| $4,742,804 | $5,321,297 | $9,757,301 | $9,056,780 | $3,949,953 | $824,241 | $638,990 | 19 | 1,667 |
| 2016 · Form 990 | ||||||||
| $5,207,559 | $4,892,437 | $10,004,341 | $9,266,204 | $4,517,826 | $629,254 | $580,223 | 17 | 1,566 |
| 2015 · Form 990 | ||||||||
| $4,008,436 | $3,910,590 | $8,707,847 | $8,420,611 | $3,514,873 | $478,813 | $600,211 | 21 | 1,638 |
| 2014 · Form 990 | ||||||||
| $4,378,947 | $4,271,761 | $8,933,439 | $8,620,546 | $3,124,386 | $1,237,559 | $583,030 | 20 | 2,000 |
| 2013 · Form 990 | ||||||||
| $4,151,246 | $4,085,981 | $9,171,713 | $8,446,843 | $3,239,048 | $983,127 | $512,765 | 15 | 2,000 |
| 2012 · Form 990 | ||||||||
| $3,344,300 | $3,488,704 | $7,963,191 | $7,844,155 | $3,199,643 | $202,786 | $491,475 | 16 | 2,000 |
| 2011 · Form 990 | ||||||||
| $3,965,417 | $3,634,524 | $7,974,678 | $7,752,365 | $3,875,096 | $212,084 | $175,009 | 13 | 2,000 |
Connected to
Organizations that list some of the same people on their returns (officers, directors, key employees on this organization’s latest return), and related organizations it lists on Schedule R.
- TSC ALLIANCE ENDOWMENT FUND INC Silver Spring, MD · 6 people in common (Brittany Smith, David Johnston, Jamie Saylor) · related organization (Schedule R)
Funders of this organization
55 grantors reported grants to this organization, $13,071,128 in all, tax years 2009 to 2025; the 25 largest shown (all 55). Exact: the grantor wrote this organization's EIN. Fuzzy: the grantor wrote only a name (foundations' 990-PF has no EIN field), matched to the same or a near-identical name in the same state; the name as filed is shown. From the latest return for each grantor and year, so amended returns aren't counted twice. CSV
| Grantor | Type | Match | Years given | Grants | Total | Latest year | Latest year's amount | Grants |
|---|---|---|---|---|---|---|---|---|
| TSC ALLIANCE ENDOWMENT FUND INC | Public charity | Exact | 2012-2015, 2017-2025 | 13 | $3,254,200 | 2025 | $246,000 | show |
| ANITA BHATIA FOUNDATION FOR TOMORROW INC | Private foundation | Fuzzy filed as “NATIONAL TUBEROUS SCLEROSIS ASSOCIATION INC” | 2021-2024 | 9 | $2,604,750 | 2024 | $48,000 | show |
| FIDELITY INVESTMENTS CHARITABLE GIFT FUND | DAF sponsor | Exact | 2016-2024 | 9 | $1,966,397 | 2024 | $1,261,194 | show |
| OPL CHARITIES | Public charity | Exact | 2010-2018, 2022-2023 | 11 | $1,175,000 | 2023 | $75,000 | show |
| WORLD LEARNING INC | Public charity | Exact | 2009-2012, 2014-2019 | 10 | $436,905 | 2019 | $52,025 | show |
| COMMUNITY FOUNDATION OF NORTHERN COLORADO | DAF sponsor | Exact | 2021, 2024 | 2 | $433,000 | 2024 | $333,000 | show |
| BNY MELLON CHARITABLE GIFT FUND | DAF sponsor | Exact | 2018-2024 | 7 | $375,000 | 2024 | $50,000 | show |
| THE AYCO CHARITABLE FOUNDATION | DAF sponsor | Exact | 2019-2025 | 7 | $372,500 | 2025 | $45,000 | show |
| AMERICAN ONLINE GIVING FOUNDATION INC | DAF sponsor | Exact | 2019-2025 | 7 | $329,903 | 2025 | $70,516 | show |
| NATIONAL PHILANTHROPIC TR | DAF sponsor | Exact | 2014, 2019, 2021-2024 | 6 | $297,620 | 2024 | $67,000 | show |
| HEALTH FIRST - AMERICA'S CHARITIES | Public charity | Exact | 2010-2021 | 12 | $284,065 | 2021 | $10,189 | show |
| DONOR ADVISED CHARITABLE GIVING | DAF sponsor | Exact | 2018-2024 | 7 | $226,925 | 2024 | $38,275 | show |
| AMERICAN ENDOWMENT FOUNDATION | DAF sponsor | Exact | 2016, 2019-2024 | 7 | $203,943 | 2024 | $65,000 | show |
| MORGAN STANLEY GLOBAL IMPACT FUNDING TRUST INC | DAF sponsor | Exact | 2021-2024 | 5 | $150,000 | 2024 | $50,000 | show |
| THE DALLAS FOUNDATION | DAF sponsor | Exact | 2019, 2022 | 2 | $125,000 | 2022 | $100,000 | show |
| THE LAM FOUNDATION | Public charity | Exact | 2018, 2025 | 2 | $103,290 | 2025 | $43,290 | show |
| ERS CHARITABLE FOUNDATION | Public charity | Exact | 2010, 2014, 2019 | 3 | $95,000 | 2019 | $10,000 | show |
| CHILD NEUROLOGY EDUCATION AND RESEARCH FOUNDATION | Public charity | Exact | 2020-2022 | 3 | $83,375 | 2022 | $41,375 | show |
| PAYPAL CHARITABLE GIVING FUND | DAF sponsor | Exact | 2022-2024 | 3 | $56,126 | 2024 | $33,050 | show |
| GREATER HORIZONS | DAF sponsor | Exact | 2024 | 1 | $50,000 | 2024 | $50,000 | show |
| NATIONAL CHRISTIAN CHARITABLE FOUNDATION | DAF sponsor | Exact | 2012-2019, 2023-2024 | 10 | $46,375 | 2024 | $10,200 | show |
| AMAZONSMILE FOUNDATION | Private foundation | Fuzzy filed as “NATIONAL TUBEROUS SCLEROSIS ASSOCIATION INC” | 2020-2023 | 4 | $40,098 | 2023 | $8,452 | show |
| THE BLACKBAUD GIVING FUND | DAF sponsor | Exact | 2022, 2025 | 2 | $34,728 | 2025 | $20,984 | show |
| SKECHERS FOUNDATION | Public charity | Exact | 2023-2024 | 2 | $31,100 | 2024 | $26,100 | show |
| JEWISH FEDERATION OF METROPOLITAN CHICAGO | DAF sponsor | Exact | 2012, 2016-2017 | 3 | $30,000 | 2017 | $10,000 | show |
Nearby + Similar BETA
Organizations like this one: what they do and who they are linked to
Same category: NTEE code and revenue
Ranked without any AI: same NTEE code first, then the same NTEE group; then revenue within 2x, 5x or 10x; then the same state; then similar name and mission text. Same state only · More (100)
| Organization | State | NTEE | Latest revenue | Latest expenses | Top-paid title | Top pay | Why similar |
|---|---|---|---|---|---|---|---|
| AMERICAN ASSOCIATION OF NEUROSURGEONS INC | IL | G03 | $13,538,149 | $18,788,785 | Chief Executive Officer | $568,507 | Same NTEE code G03, revenue within 2x |
| AMERICAN ASSOCIATION OF NEUROLOGICAL SURGEONS INC | IL | G03 | $5,569,237 | $2,155,084 | CEO | $568,507 | Same NTEE code G03, revenue within 2x |
| INTERNATIONAL SOCIETY OF NEPHROLOGY | NJ | G03 | $12,158,463 | $10,361,778 | PRESIDENT | $0 | Same NTEE code G03, revenue within 2x |
| SOCIETY OF GENERAL INTERNAL MEDICINE | VA | G03 | $5,719,971 | $5,550,525 | DEPUTY CHIEF | $196,852 | Same NTEE code G03, revenue within 2x |
| ACOG FOUNDATION | DC | G03 | $13,246,929 | $10,939,835 | CHIEF CLINICAL PRACTICE (thru 08/24) | $807,643 | Same NTEE code G03, revenue within 2x |
| FEDERATION OF STATE MASSAGE THERAPY BOARDS | KS | G03 | $6,481,874 | $5,684,010 | EXECUTIVE DIRECTOR | $618,466 | Same NTEE code G03, revenue within 2x |
| AMERICAN SOCIETY FOR SURGERY OF THE HAND | IL | G03 | $12,705,880 | $12,504,063 | DEPUTY EXEC VICE PRESIDENT | $339,010 | Same NTEE code G03, revenue within 2x |
| AMERICAN ROENTGEN RAY SOCIETY | VA | G03 | $9,407,427 | $9,856,031 | EXECUTIVE DIRECTOR | $385,603 | Same NTEE code G03, revenue within 2x |
| HOUSECALL PROVIDERS PC | OR | G03 | $11,810,975 | $14,035,503 | BOARD VICE-CHAIR / PRESIDENT | $697,138 | Same NTEE code G03, revenue within 2x |
| AMERICAN ASSOCIATION OF IMMUNOLOGISTS INC | MD | G03 | $20,327,063 | $12,586,246 | CHIEF EXECUTIVE OFFICER | $556,735 | Same NTEE code G03, revenue within 5x, same state |
| ASSOCIATION FOR VALUE-BASED CANCER CARE | NY | G03 | $4,511,973 | $4,213,113 | TRUSTEE | $1,300,000 | Same NTEE code G03, revenue within 5x |
| MULTINATIONAL ASSOCIATION OF SUPPORTIVE CARE IN CANCER | MA | G03 | $2,901,001 | $1,766,043 | EXECUTIVE DIRECTOR | $252,236 | Same NTEE code G03, revenue within 5x |
| PARENTS AS TEACHERS NATIONAL CENTER INC | MO | G03 | $20,500,959 | $21,599,577 | PRESIDENT/CEO | $297,666 | Same NTEE code G03, revenue within 5x |
| ASSOCIATION OF WOMEN IN RHEUMATOLOGY | NC | G03 | $4,858,726 | $5,334,479 | PRESIDENT | $0 | Same NTEE code G03, revenue within 5x |
| NATIONAL ASSOCIATION OF COUNCILS ON DEVELOPMENTAL DISABILITIES | DC | G03 | $2,074,472 | $2,205,105 | EXECUTIVE DIRECTOR/CEO | $215,000 | Same NTEE code G03, revenue within 5x |
| INTERNATIONAL GYNECOLOGIC CANCER SOCIETY INC | KY | G03 | $2,648,564 | $2,140,922 | EX OFFICIO BOARD MEMBER / CEO | $459,782 | Same NTEE code G03, revenue within 5x |
| COALITION OF STATE RHEUMATOLOGY ORGANIZATIONS INC | WI | G03 | $2,376,696 | $2,302,482 | VP, ADVOCACY & GOVT | $86,250 | Same NTEE code G03, revenue within 5x |
| SOCIETY OF INTERVENTIONAL ONCOLOGY INC | DC | G03 | $3,751,897 | $4,384,991 | BOARD MEMBER AS OF JANUARY | $7,750 | Same NTEE code G03, revenue within 5x |
| COALITION FOR HEALTH AI INC | MA | G03 | $2,552,500 | $1,599,801 | President Chief Executive Officer | $316,007 | Same NTEE code G03, revenue within 5x |
| MEDICAL-SURGICAL NURSING CERTIFICATION BOARD INC | IL | G03 | $3,216,752 | $2,778,703 | PRESIDENT | $0 | Same NTEE code G03, revenue within 5x |
| DERMATOLOGY EDUCATION FOUNDATION | CA | G03 | $4,374,573 | $4,623,598 | President & CEO | $0 | Same NTEE code G03, revenue within 5x |
| PEDIATRIC DERMATOLOGY RESEARCH ALLIANCE INC | OR | G03 | $2,470,280 | $2,162,711 | EXECUTIVE DIRECTOR | $216,210 | Same NTEE code G03, revenue within 5x |
| EASTERN ALLERGY CONFERENCE INC | RI | G03 | $3,046,135 | $2,547,200 | DIRECTOR | $68,000 | Same NTEE code G03, revenue within 5x |
| PUBLIC HEALTH ACCREDITATION BOARD | VA | G03 | $24,515,636 | $22,242,007 | President & CEO (To 12/24) | $485,784 | Same NTEE code G03, revenue within 5x |
| AMERICAN ACADEMY OF NEUROLOGY INSTITUTE | MN | G03 | $46,947,665 | $45,459,597 | Chief Executive Officer | $778,817 | Same NTEE code G03, revenue within 5x |
Who funds organizations like this
Grantors that funded the 100 most similar organizations. Ranked by total given to them. Foundations (990-PF) and donor-advised fund sponsors only. Same matching as Funders above (by EIN, or by name for foundations).
The full list · all similar organizations
Where the money went
Every expense line on each return, biggest first: Form 990 Part IX (with its program, management and fundraising columns), 990-EZ Part I, or 990-PF Part I. Event marks lines the organization itself describes as events. “Events” in each summary adds those lines, conferences and meetings, and the direct costs of fundraising events. Unusual is not the same as improper. Many of these patterns have ordinary explanations. Check the filing.
2025 · Form 990 · $9,133,802 spent · pay $3,268,560 · grants $1,040,281 · events $622,520
| Line | As described | Total | Program | Management | Fundraising | Share |
|---|---|---|---|---|---|---|
| Other (as described) | PRECLINICAL CONSORTIUM | $2,373,030 | $2,373,030 | - | - | 26.0% |
| Other salaries and wages | $2,022,696 | $1,261,597 | $327,401 | $433,698 | 22.1% | |
| Pay: officers, directors, trustees, key employees | $723,527 | $451,842 | $104,984 | $166,701 | 7.9% | |
| Grants to US organizations and governments | $703,855 | $703,855 | - | - | 7.7% | |
| Conferences, conventions and meetings | $461,043 | $425,900 | $7,459 | $27,684 | 5.0% | |
| Other (as described) | NHD BIOSAMPLE REPOSITOR | $376,012 | $376,012 | - | - | 4.1% |
| Office expenses | $360,933 | $197,259 | $14,832 | $148,842 | 4.0% | |
| Grants outside the US | $336,426 | $336,426 | - | - | 3.7% | |
| Travel | $280,506 | $229,038 | $3,763 | $47,705 | 3.1% | |
| Other employee benefits | $271,894 | $170,932 | $36,992 | $63,970 | 3.0% | |
| Fees: other services | $259,115 | $155,101 | $25,279 | $78,735 | 2.8% | |
| Payroll taxes | $192,269 | $120,749 | $26,429 | $45,091 | 2.1% | |
| Information technology | $178,549 | $65,884 | $18,022 | $94,643 | 2.0% | |
| Occupancy | $140,054 | $87,701 | $18,782 | $33,571 | 1.5% | |
| Depreciation and depletion | $132,527 | $117,219 | $5,568 | $9,740 | 1.5% | |
| Fees: lobbying | $122,256 | $73,180 | $11,927 | $37,149 | 1.3% | |
| Pension plan contributions | $58,174 | $36,602 | $7,851 | $13,721 | 0.6% | |
| Other (as described) | DUES AND SUBSCRIPTIONS | $48,319 | $30,012 | $11,146 | $7,161 | 0.5% |
| Fees: legal | $32,630 | $19,532 | $3,183 | $9,915 | 0.4% | |
| Fees: accounting | $24,488 | $14,658 | $2,389 | $7,441 | 0.3% | |
| Insurance | $18,434 | $11,568 | $5,896 | $970 | 0.2% | |
| Advertising and promotion | $9,734 | $5,982 | $117 | $3,635 | 0.1% | |
| All other expenses | $7,331 | $3,603 | $638 | $3,090 | 0.1% | |
| Fundraising events Event | direct expenses; gross income $65,736 | $161,477 | reported apart | |||
| Total | $9,133,802 | 100% |
2024 · Form 990 · $8,660,018 spent · pay $3,153,884 · grants $730,927 · events $901,160
| Line | As described | Total | Program | Management | Fundraising | Share |
|---|---|---|---|---|---|---|
| Other (as described) | PRECLINICAL CONSORTIUM | $2,287,598 | $2,287,598 | - | - | 26.4% |
| Other salaries and wages | $1,953,740 | $1,174,594 | $279,508 | $499,638 | 22.6% | |
| Pay: officers, directors, trustees, key employees | $724,475 | $452,435 | $105,121 | $166,919 | 8.4% | |
| Grants to US organizations and governments | $594,369 | $594,369 | - | - | 6.9% | |
| Other (as described) | NHD BIOSAMPLE REPOSIT | $456,639 | $456,639 | - | - | 5.3% |
| Conferences, conventions and meetings | $371,834 | $322,368 | $32,160 | $17,306 | 4.3% | |
| Office expenses | $363,869 | $151,657 | $14,085 | $198,127 | 4.2% | |
| Travel | $316,059 | $239,428 | $8,366 | $68,265 | 3.6% | |
| Fees: other services | $282,498 | $185,960 | $27,854 | $68,684 | 3.3% | |
| Other employee benefits | $229,969 | $143,107 | $24,484 | $62,378 | 2.7% | |
| Occupancy | $189,963 | $116,454 | $20,733 | $52,776 | 2.2% | |
| Payroll taxes | $188,177 | $117,170 | $21,250 | $49,757 | 2.2% | |
| Information technology | $162,481 | $73,818 | $17,754 | $70,909 | 1.9% | |
| Grants outside the US | $136,558 | $136,558 | - | - | 1.6% | |
| Fees: lobbying | $119,856 | $80,816 | $11,264 | $27,776 | 1.4% | |
| Depreciation and depletion | $73,012 | $55,807 | $4,905 | $12,300 | 0.8% | |
| Pension plan contributions | $57,523 | $35,779 | $5,835 | $15,909 | 0.7% | |
| Other (as described) | DUES AND SUBSCRIPTIONS | $34,570 | $12,249 | $12,943 | $9,378 | 0.4% |
| Fees: legal | $29,766 | $20,071 | $2,797 | $6,898 | 0.3% | |
| All other expenses | $29,087 | $23,331 | $401 | $5,355 | 0.3% | |
| Fees: accounting | $23,775 | $16,031 | $2,234 | $5,510 | 0.3% | |
| Insurance | $17,889 | $10,985 | $5,285 | $1,619 | 0.2% | |
| Advertising and promotion | $16,311 | $7,480 | $133 | $8,698 | 0.2% | |
| Fundraising events Event | direct expenses; gross income $379,883 | $529,326 | reported apart | |||
| Total | $8,660,018 | 100% |
2023 · Form 990 · $8,467,648 spent · pay $3,024,376 · grants $845,292 · events $611,371
| Line | As described | Total | Program | Management | Fundraising | Share |
|---|---|---|---|---|---|---|
| Other (as described) | PRECLINICAL CONSORTIUM | $2,321,442 | $2,321,442 | - | - | 27.4% |
| Other salaries and wages | $1,867,712 | $1,166,420 | $271,060 | $430,232 | 22.1% | |
| Pay: officers, directors, trustees, key employees | $703,405 | $439,278 | $102,064 | $162,063 | 8.3% | |
| Grants to US organizations and governments | $696,542 | $696,542 | - | - | 8.2% | |
| Conferences, conventions and meetings | $447,239 | $404,633 | $7,811 | $34,795 | 5.3% | |
| Travel | $352,743 | $294,269 | $5,315 | $53,159 | 4.2% | |
| Other (as described) | NHD BIOSAMPLE REPOSIT | $328,386 | $328,386 | - | - | 3.9% |
| Office expenses | $328,107 | $172,198 | $9,714 | $146,195 | 3.9% | |
| Other employee benefits | $222,386 | $142,119 | $24,273 | $55,994 | 2.6% | |
| Fees: other services | $219,360 | $140,642 | $34,102 | $44,616 | 2.6% | |
| Payroll taxes | $178,343 | $113,532 | $20,556 | $44,255 | 2.1% | |
| Information technology | $161,819 | $80,801 | $15,642 | $65,376 | 1.9% | |
| Grants outside the US | $148,750 | $148,750 | - | - | 1.8% | |
| Occupancy | $144,753 | $91,950 | $16,592 | $36,211 | 1.7% | |
| Fees: lobbying | $116,364 | $74,606 | $18,090 | $23,668 | 1.4% | |
| Depreciation and depletion | $69,312 | $52,790 | $5,255 | $11,267 | 0.8% | |
| Pension plan contributions | $52,530 | $33,680 | $5,461 | $13,389 | 0.6% | |
| Other (as described) | DUES AND SUBSCRIPTIONS | $39,981 | $13,730 | $12,520 | $13,731 | 0.5% |
| Fees: accounting | $23,250 | $14,907 | $3,614 | $4,729 | 0.3% | |
| Fees: legal | $17,690 | $11,342 | $2,750 | $3,598 | 0.2% | |
| Insurance | $13,070 | $8,319 | $1,511 | $3,240 | 0.2% | |
| Advertising and promotion | $8,473 | $5,492 | $9 | $2,972 | 0.1% | |
| All other expenses | $5,991 | $3,565 | $1,625 | $801 | 0.1% | |
| Fundraising events Event | direct expenses; gross income $258,687 | $164,132 | reported apart | |||
| Total | $8,467,648 | 100% |
2022 · Form 990 · $8,063,684 spent · pay $2,896,346 · grants $1,032,155 · events $1,107,616
| Line | As described | Total | Program | Management | Fundraising | Share |
|---|---|---|---|---|---|---|
| Other salaries and wages | $1,744,717 | $1,055,732 | $300,508 | $388,477 | 21.6% | |
| Other (as described) | PRECLINICAL CONSORTIUM | $1,407,092 | $1,407,092 | - | - | 17.4% |
| Conferences, conventions and meetings | $982,138 | $937,141 | $6,214 | $38,783 | 12.2% | |
| Grants to US organizations and governments | $857,545 | $857,545 | - | - | 10.6% | |
| Pay: officers, directors, trustees, key employees | $726,880 | $439,838 | $125,197 | $161,845 | 9.0% | |
| Office expenses | $336,605 | $179,434 | $20,067 | $137,104 | 4.2% | |
| Other (as described) | NHD BIOSAMPLE REPOSIT | $321,369 | $321,369 | - | - | 4.0% |
| Fees: other services | $245,601 | $147,945 | $27,758 | $69,898 | 3.0% | |
| Other employee benefits | $202,902 | $117,658 | $34,771 | $50,473 | 2.5% | |
| Information technology | $201,876 | $107,508 | $26,747 | $67,621 | 2.5% | |
| Travel | $196,970 | $149,622 | $3,105 | $44,243 | 2.4% | |
| Grants outside the US | $174,610 | $174,610 | - | - | 2.2% | |
| Payroll taxes | $174,453 | $102,086 | $29,928 | $42,439 | 2.2% | |
| Occupancy | $132,836 | $78,280 | $23,002 | $31,554 | 1.6% | |
| Fees: lobbying | $116,364 | $70,096 | $13,151 | $33,117 | 1.4% | |
| Depreciation and depletion | $68,866 | $44,740 | $8,315 | $15,811 | 0.9% | |
| Pension plan contributions | $47,394 | $27,339 | $8,117 | $11,938 | 0.6% | |
| Other (as described) | DUES AND SUBSCRIPTIONS | $40,210 | $16,979 | $11,104 | $12,127 | 0.5% |
| Fees: legal | $29,466 | $17,750 | $3,330 | $8,386 | 0.4% | |
| Fees: accounting | $26,964 | $16,243 | $3,047 | $7,674 | 0.3% | |
| Insurance | $11,620 | $6,854 | $2,025 | $2,741 | 0.1% | |
| Advertising and promotion | $8,650 | $5,841 | $19 | $2,790 | 0.1% | |
| All other expenses | $6,057 | $1,109 | $729 | $4,219 | 0.1% | |
| Interest | $2,499 | $3 | $221 | $2,275 | 0.0% | |
| Fundraising events Event | direct expenses; gross income $491,085 | $125,478 | reported apart | |||
| Total | $8,063,684 | 100% |
2021 · Form 990 · $6,869,562 spent · pay $2,455,940 · grants $948,236 · events $122,563
| Line | As described | Total | Program | Management | Fundraising | Share |
|---|---|---|---|---|---|---|
| Other (as described) | PRECLINICAL CONSORTIUM | $1,824,180 | $1,824,180 | - | - | 26.6% |
| Other salaries and wages | $1,242,312 | $792,478 | $103,838 | $345,996 | 18.1% | |
| Grants to US organizations and governments | $833,329 | $833,329 | - | - | 12.1% | |
| Pay: officers, directors, trustees, key employees | $797,701 | $489,000 | $223,016 | $85,685 | 11.6% | |
| Fees: other services | $369,033 | $228,093 | $16,900 | $124,040 | 5.4% | |
| Other employee benefits | $275,780 | $173,018 | $38,279 | $64,483 | 4.0% | |
| Other (as described) | NHD BIOSAMPLE REPOSIT | $266,285 | $266,285 | - | - | 3.9% |
| Office expenses | $256,679 | $140,716 | $8,501 | $107,462 | 3.7% | |
| Information technology | $172,599 | $90,501 | $20,808 | $61,290 | 2.5% | |
| Payroll taxes | $140,147 | $87,925 | $19,453 | $32,769 | 2.0% | |
| Occupancy | $128,139 | $80,284 | $17,669 | $30,186 | 1.9% | |
| Grants outside the US | $114,907 | $114,907 | - | - | 1.7% | |
| Fees: lobbying | $112,980 | $112,980 | - | - | 1.6% | |
| Conferences, conventions and meetings | $76,847 | $76,630 | $55 | $162 | 1.1% | |
| Depreciation and depletion | $73,200 | $50,381 | $6,465 | $16,354 | 1.1% | |
| Other (as described) | DUES AND SUBSCRIPTIONS | $48,878 | $29,979 | $12,767 | $6,132 | 0.7% |
| Fees: legal | $38,838 | $25,875 | $10,766 | $2,197 | 0.6% | |
| Fees: accounting | $26,179 | - | $26,179 | - | 0.4% | |
| Advertising and promotion | $24,836 | $24,608 | - | $228 | 0.4% | |
| Travel | $13,890 | $8,415 | $1,692 | $3,783 | 0.2% | |
| All other expenses | $13,074 | $5,280 | $5,898 | $1,896 | 0.2% | |
| Insurance | $11,222 | $7,040 | $1,558 | $2,624 | 0.2% | |
| Other (as described) | MISCELLANEOUS EXPENSES | $8,527 | $3,443 | $3,848 | $1,236 | 0.1% |
| Fundraising events Event | direct expenses; gross income $234,482 | $45,716 | reported apart | |||
| Total | $6,869,562 | 100% |
2020 · Form 990 · $5,422,190 spent · pay $2,382,792 · grants $685,788 · events $114,882
| Line | As described | Total | Program | Management | Fundraising | Share |
|---|---|---|---|---|---|---|
| Other salaries and wages | $1,374,953 | $906,889 | $115,728 | $352,336 | 25.4% | |
| Other (as described) | PRECLINICAL CONSORTIUM | $815,227 | $815,227 | - | - | 15.0% |
| Pay: officers, directors, trustees, key employees | $667,009 | $335,572 | $232,186 | $99,251 | 12.3% | |
| Grants to US organizations and governments | $633,006 | $633,006 | - | - | 11.7% | |
| Fees: other services | $376,676 | $192,073 | $6,480 | $178,123 | 6.9% | |
| Other (as described) | NHD BIOSAMPLE REPOSIT | $208,188 | $208,188 | - | - | 3.8% |
| Office expenses | $207,621 | $97,144 | $5,374 | $105,103 | 3.8% | |
| Information technology | $169,610 | $110,221 | $26,682 | $32,707 | 3.1% | |
| Other employee benefits | $162,832 | $103,675 | $11,963 | $47,194 | 3.0% | |
| Payroll taxes | $138,470 | $83,373 | $20,023 | $35,074 | 2.6% | |
| Occupancy | $119,343 | $71,577 | $17,454 | $30,312 | 2.2% | |
| Fees: lobbying | $112,980 | $112,980 | - | - | 2.1% | |
| Travel | $109,888 | $100,966 | $664 | $8,258 | 2.0% | |
| Depreciation and depletion | $70,346 | $47,126 | $6,541 | $16,679 | 1.3% | |
| Conferences, conventions and meetings | $63,378 | $53,553 | $9,749 | $76 | 1.2% | |
| Grants outside the US | $52,782 | $52,782 | - | - | 1.0% | |
| Other (as described) | DUES AND SUBSCRIPTIONS | $40,684 | $20,749 | - | $19,935 | 0.8% |
| Pension plan contributions | $39,528 | $25,520 | $2,182 | $11,826 | 0.7% | |
| Fees: accounting | $27,285 | - | $27,285 | - | 0.5% | |
| Fees: legal | $19,257 | $6,482 | $11,733 | $1,042 | 0.4% | |
| Insurance | $8,049 | $4,833 | $1,184 | $2,032 | 0.1% | |
| Other (as described) | MISCELLANEOUS EXPENSES | $5,078 | $2,213 | $1,226 | $1,639 | 0.1% |
| Fundraising events Event | direct expenses; gross income $52,486 | $51,504 | reported apart | |||
| Total | $5,422,190 | 100% |
2019 · Form 990 · $5,639,335 spent · pay $2,223,956 · grants $617,106 · events $547,333
| Line | As described | Total | Program | Management | Fundraising | Share |
|---|---|---|---|---|---|---|
| Other salaries and wages | $1,242,198 | $751,154 | $201,228 | $289,816 | 22.0% | |
| Pay: officers, directors, trustees, key employees | $672,082 | $404,350 | $107,523 | $160,209 | 11.9% | |
| Other (as described) | PRECLINICAL CONSORTIUM | $579,493 | $579,493 | - | - | 10.3% |
| Grants to US organizations and governments | $474,302 | $474,302 | - | - | 8.4% | |
| Other (as described) | NHD BIOSAMPLE REPOSIT | $355,027 | $355,027 | - | - | 6.3% |
| Travel | $341,541 | $283,901 | $3,302 | $54,338 | 6.1% | |
| Office expenses | $340,397 | $145,984 | $21,498 | $172,915 | 6.0% | |
| Conferences, conventions and meetings | $278,816 | $246,936 | $20,440 | $11,440 | 4.9% | |
| Fees: other services | $278,557 | $136,817 | $14,939 | $126,801 | 4.9% | |
| Information technology | $190,555 | $113,335 | $30,054 | $47,166 | 3.4% | |
| Other employee benefits | $150,458 | $88,118 | $22,493 | $39,847 | 2.7% | |
| Grants outside the US | $142,804 | $142,804 | - | - | 2.5% | |
| Payroll taxes | $124,816 | $73,100 | $18,660 | $33,056 | 2.2% | |
| Fees: lobbying | $110,760 | $110,760 | - | - | 2.0% | |
| Depreciation and depletion | $95,440 | $70,843 | $6,521 | $18,076 | 1.7% | |
| Occupancy | $92,966 | $54,001 | $14,790 | $24,175 | 1.6% | |
| Other (as described) | DUES AND SUBSCRIPTIONS | $66,537 | $22,505 | $13,130 | $30,902 | 1.2% |
| Pension plan contributions | $34,402 | $20,148 | $5,143 | $9,111 | 0.6% | |
| Fees: legal | $29,600 | $14,728 | $14,872 | - | 0.5% | |
| Fees: accounting | $24,200 | - | $24,200 | - | 0.4% | |
| Insurance | $8,022 | $4,665 | $1,286 | $2,071 | 0.1% | |
| Other (as described) | MISCELLANEOUS EXPENSES | $6,362 | $2,627 | $2,191 | $1,544 | 0.1% |
| Fundraising events Event | direct expenses; gross income $245,139 | $268,517 | reported apart | |||
| Total | $5,639,335 | 100% |
2018 · Form 990 · $5,868,533 spent · pay $2,013,185 · grants $464,190 · events $772,420
| Line | As described | Total | Program | Management | Fundraising | Share |
|---|---|---|---|---|---|---|
| Other salaries and wages | $1,055,494 | $639,990 | $190,359 | $225,145 | 18.0% | |
| Other (as described) | PRECLINICAL CONSORTIUM | $1,007,978 | $1,007,978 | - | - | 17.2% |
| Pay: officers, directors, trustees, key employees | $647,517 | $390,975 | $116,386 | $140,156 | 11.0% | |
| Conferences, conventions and meetings | $646,435 | $630,084 | $5,900 | $10,451 | 11.0% | |
| Grants to US organizations and governments | $389,085 | $389,085 | - | - | 6.6% | |
| Travel | $316,693 | $281,538 | $4,256 | $30,899 | 5.4% | |
| Office expenses | $284,230 | $126,962 | $21,949 | $135,319 | 4.8% | |
| Information technology | $181,771 | $121,958 | $28,225 | $31,588 | 3.1% | |
| Other (as described) | NATURAL HISTORY DATABAS | $170,893 | $170,893 | - | - | 2.9% |
| Other (as described) | BIOSAMPLE REPOSITORY | $164,328 | $164,328 | - | - | 2.8% |
| Other employee benefits | $163,661 | $96,332 | $28,819 | $38,510 | 2.8% | |
| Fees: other services | $156,635 | $84,446 | $16,062 | $56,127 | 2.7% | |
| Payroll taxes | $116,322 | $68,468 | $20,483 | $27,371 | 2.0% | |
| Fees: lobbying | $108,084 | $108,084 | - | - | 1.8% | |
| Occupancy | $97,207 | $57,361 | $16,886 | $22,960 | 1.7% | |
| Depreciation and depletion | $79,410 | $61,394 | $5,234 | $12,782 | 1.4% | |
| Grants outside the US | $75,105 | $75,105 | - | - | 1.3% | |
| Other (as described) | DUES AND SUBSCRIPTIONS | $56,969 | $23,021 | $11,632 | $22,316 | 1.0% |
| All other expenses | $56,448 | $50,843 | $2,344 | $3,261 | 1.0% | |
| Fees: legal | $36,660 | $24,376 | $12,216 | $68 | 0.6% | |
| Pension plan contributions | $30,191 | $18,306 | $5,445 | $6,440 | 0.5% | |
| Fees: accounting | $19,500 | - | $19,500 | - | 0.3% | |
| Insurance | $7,917 | $4,676 | $1,383 | $1,858 | 0.1% | |
| Fundraising events Event | direct expenses; gross income $76,128 | $125,985 | reported apart | |||
| Total | $5,868,533 | 100% |
2017 · Form 990 · $5,321,297 spent · pay $1,809,048 · grants $535,454 · events $402,970
| Line | As described | Total | Program | Management | Fundraising | Share |
|---|---|---|---|---|---|---|
| Other (as described) | PRECLINICAL CONSORTIUM | $1,042,919 | $1,042,919 | - | - | 19.6% |
| Other salaries and wages | $932,810 | $552,836 | $109,302 | $270,672 | 17.5% | |
| Pay: officers, directors, trustees, key employees | $638,990 | $347,872 | $219,346 | $71,772 | 12.0% | |
| Grants to US organizations and governments | $461,145 | $461,145 | - | - | 8.7% | |
| Office expenses | $317,408 | $120,073 | $67,225 | $130,110 | 6.0% | |
| Travel | $272,085 | $227,893 | $3,047 | $41,145 | 5.1% | |
| Conferences, conventions and meetings | $242,361 | $198,367 | $34,708 | $9,286 | 4.6% | |
| Other (as described) | NATURAL HISTORY DATABASE | $222,524 | $222,524 | - | - | 4.2% |
| Fees: other services | $171,240 | $99,105 | $25,717 | $46,418 | 3.2% | |
| Information technology | $129,324 | $43,735 | $85,589 | - | 2.4% | |
| Other (as described) | BIOSAMPLE REPOSITORY | $120,771 | $120,771 | - | - | 2.3% |
| Fees: lobbying | $105,960 | $105,960 | - | - | 2.0% | |
| Other employee benefits | $105,088 | $67,352 | $1,074 | $36,662 | 2.0% | |
| Payroll taxes | $104,169 | $59,589 | $19,944 | $24,636 | 2.0% | |
| Occupancy | $94,281 | $285 | $93,712 | $284 | 1.8% | |
| All other expenses | $82,463 | $46,986 | $16,669 | $18,808 | 1.5% | |
| Fees: legal | $78,839 | $57,607 | $21,232 | - | 1.5% | |
| Grants outside the US | $74,309 | $74,309 | - | - | 1.4% | |
| Depreciation and depletion | $69,095 | $35,516 | $29,965 | $3,614 | 1.3% | |
| Pension plan contributions | $27,991 | $17,634 | $2,391 | $7,966 | 0.5% | |
| Fees: accounting | $19,500 | - | $19,500 | - | 0.4% | |
| Insurance | $8,025 | $150 | $7,716 | $159 | 0.2% | |
| Other (as described) | OVERHEAD ALLOCATION | - | $175,714 | -$248,016 | $72,302 | 0.0% |
| Fundraising events Event | direct expenses; gross income $118,113 | $160,609 | reported apart | |||
| Total | $5,321,297 | 100% |
2016 · Form 990 · $4,892,437 spent · pay $1,650,060 · grants $940,040 · events $240,585
| Line | As described | Total | Program | Management | Fundraising | Share |
|---|---|---|---|---|---|---|
| Other salaries and wages | $863,353 | $490,279 | $125,398 | $247,676 | 17.6% | |
| Grants to US organizations and governments | $748,650 | $748,650 | - | - | 15.3% | |
| Pay: officers, directors, trustees, key employees | $580,223 | $315,695 | $201,956 | $62,572 | 11.9% | |
| Other (as described) | PRECLINICAL CONSORTIUM | $492,760 | $492,760 | - | - | 10.1% |
| Other (as described) | NATURAL HISTORY DATABASE | $431,054 | $431,054 | - | - | 8.8% |
| Office expenses | $318,858 | $136,411 | $77,990 | $104,457 | 6.5% | |
| Travel | $218,353 | $169,816 | $2,496 | $46,041 | 4.5% | |
| Grants outside the US | $191,390 | $191,390 | - | - | 3.9% | |
| Conferences, conventions and meetings | $135,409 | $105,535 | $27,503 | $2,371 | 2.8% | |
| Information technology | $118,628 | $25,916 | $92,712 | - | 2.4% | |
| Fees: other services | $112,001 | $71,314 | $7,391 | $33,296 | 2.3% | |
| Fees: lobbying | $104,376 | $104,376 | - | - | 2.1% | |
| Payroll taxes | $96,718 | $55,027 | $19,893 | $21,798 | 2.0% | |
| Other (as described) | BIOSAMPLE REPOSITORY | $82,925 | $82,925 | - | - | 1.7% |
| Other employee benefits | $82,706 | $53,411 | $515 | $28,780 | 1.7% | |
| Occupancy | $81,757 | $270 | $81,217 | $270 | 1.7% | |
| All other expenses | $68,807 | $38,679 | $25,820 | $4,308 | 1.4% | |
| Fees: legal | $51,675 | $33,241 | $15,684 | $2,750 | 1.1% | |
| Depreciation and depletion | $50,471 | $3,147 | $47,324 | - | 1.0% | |
| Fees: accounting | $27,915 | - | $27,915 | - | 0.6% | |
| Pension plan contributions | $27,060 | $16,808 | $2,984 | $7,268 | 0.6% | |
| Insurance | $7,348 | - | $7,348 | - | 0.2% | |
| Other (as described) | OVERHEAD ALLOCATION | - | $188,625 | -$262,909 | $74,284 | 0.0% |
| Fundraising events Event | direct expenses; gross income $149,666 | $105,176 | reported apart | |||
| Total | $4,892,437 | 100% |
2015 · Form 990 · $3,910,590 spent · pay $1,544,461 · grants $488,698 · events $322,344
| Line | As described | Total | Program | Management | Fundraising | Share |
|---|---|---|---|---|---|---|
| Other salaries and wages | $750,769 | $428,883 | $159,634 | $162,252 | 19.2% | |
| Pay: officers, directors, trustees, key employees | $600,211 | $344,247 | $126,537 | $129,427 | 15.3% | |
| Other (as described) | naTURAL HISTORY DATABAS | $467,608 | $467,608 | - | - | 12.0% |
| Grants to US organizations and governments | $406,419 | $406,419 | - | - | 10.4% | |
| Office expenses | $289,138 | $108,490 | $84,983 | $95,665 | 7.4% | |
| Fees: other services | $239,238 | $177,886 | $12,421 | $48,931 | 6.1% | |
| Travel | $234,542 | $197,818 | $4,222 | $32,502 | 6.0% | |
| Conferences, conventions and meetings | $191,443 | $159,308 | $26,972 | $5,163 | 4.9% | |
| Information technology | $106,681 | $25,757 | $80,624 | $300 | 2.7% | |
| Fees: lobbying | $100,571 | $100,571 | - | - | 2.6% | |
| Payroll taxes | $94,718 | $55,584 | $18,973 | $20,161 | 2.4% | |
| Occupancy | $86,687 | $539 | $85,808 | $340 | 2.2% | |
| Grants outside the US | $82,279 | $82,279 | - | - | 2.1% | |
| Other employee benefits | $77,483 | $45,470 | $15,521 | $16,492 | 2.0% | |
| Depreciation and depletion | $48,890 | $2,777 | $46,113 | - | 1.3% | |
| Fees: accounting | $28,862 | - | $28,862 | - | 0.7% | |
| Other (as described) | CLINICAL RESEARCH NETWO | $25,568 | $25,568 | - | - | 0.7% |
| Other (as described) | DUES, FEES & SUBSCRIPTI | $24,864 | $1,699 | $21,658 | $1,507 | 0.6% |
| Pension plan contributions | $21,280 | $12,488 | $4,262 | $4,530 | 0.5% | |
| Fees: legal | $18,992 | $5,864 | $13,128 | - | 0.5% | |
| Insurance | $7,175 | - | $7,175 | - | 0.2% | |
| All other expenses | $7,172 | $2,912 | $2,329 | $1,931 | 0.2% | |
| Other (as described) | OVERHEAD ALLOCATION | $0 | $193,757 | -$262,499 | $68,742 | 0.0% |
| Fundraising events Event | direct expenses; gross income $130,568 | $130,901 | reported apart | |||
| Total | $3,910,590 | 100% |
2014 · Form 990 · $4,271,761 spent · pay $1,529,944 · grants $457,520 · events $278,941
| Line | As described | Total | Program | Management | Fundraising | Share |
|---|---|---|---|---|---|---|
| Other salaries and wages | $749,407 | $469,154 | $90,140 | $190,113 | 17.5% | |
| Other (as described) | WORLD CONFERENCE | $610,103 | $609,504 | - | $599 | 14.3% |
| Pay: officers, directors, trustees, key employees | $583,030 | $364,214 | $70,187 | $148,629 | 13.6% | |
| Other (as described) | NATURAL HISTORY DATABAS | $487,708 | $487,708 | - | - | 11.4% |
| Grants to US organizations and governments | $426,520 | $426,520 | - | - | 10.0% | |
| Office expenses | $259,887 | $111,177 | $61,617 | $87,093 | 6.1% | |
| Travel | $172,228 | $115,598 | $10,116 | $46,514 | 4.0% | |
| Fees: other services | $122,117 | $85,165 | $25,278 | $11,674 | 2.9% | |
| Information technology | $104,823 | $14,771 | $89,952 | $100 | 2.5% | |
| Fees: lobbying | $103,319 | $103,319 | - | - | 2.4% | |
| Payroll taxes | $89,135 | $55,175 | $10,769 | $23,191 | 2.1% | |
| Other employee benefits | $86,986 | $53,845 | $10,509 | $22,632 | 2.0% | |
| Occupancy | $81,561 | $239 | $81,082 | $240 | 1.9% | |
| Conferences, conventions and meetings | $77,720 | $45,269 | $28,319 | $4,132 | 1.8% | |
| Other (as described) | BANK AND CREDIT CARD FE | $57,445 | $290 | $36,503 | $20,652 | 1.3% |
| Other (as described) | CLINICAL RESEARCH NETWO | $53,068 | $53,068 | - | - | 1.2% |
| Depreciation and depletion | $47,368 | $3,213 | $44,155 | - | 1.1% | |
| All other expenses | $31,330 | $216,806 | -$272,861 | $87,385 | 0.7% | |
| Grants outside the US | $31,000 | $31,000 | - | - | 0.7% | |
| Fees: accounting | $29,740 | $20,979 | $4,289 | $4,472 | 0.7% | |
| Fees: legal | $21,528 | $10,400 | $11,128 | - | 0.5% | |
| Pension plan contributions | $21,386 | $13,238 | $2,584 | $5,564 | 0.5% | |
| Fees: professional fundraisers | $16,500 | - | - | $16,500 | 0.4% | |
| Insurance | $7,852 | - | $7,852 | - | 0.2% | |
| Fundraising events Event | direct expenses; gross income $198,218 | $201,221 | reported apart | |||
| Total | $4,271,761 | 100% |
2013 · Form 990 · $4,085,981 spent · pay $1,438,637 · grants $903,892 · events $268,399
| Line | As described | Total | Program | Management | Fundraising | Share |
|---|---|---|---|---|---|---|
| Grants to US organizations and governments | $855,892 | $855,892 | - | - | 20.9% | |
| Other salaries and wages | $736,109 | $436,773 | $96,553 | $202,783 | 18.0% | |
| Pay: officers, directors, trustees, key employees | $512,765 | $303,716 | $67,489 | $141,560 | 12.5% | |
| Other (as described) | NATURAL HISTORY DATABAS | $484,160 | $484,160 | - | - | 11.8% |
| Office expenses | $271,024 | $138,576 | $60,949 | $71,499 | 6.6% | |
| Travel | $208,463 | $168,588 | $3,066 | $36,809 | 5.1% | |
| Conferences, conventions and meetings | $158,908 | $141,024 | $16,568 | $1,316 | 3.9% | |
| Depreciation and depletion | $110,683 | $90,422 | $20,261 | - | 2.7% | |
| Fees: lobbying | $102,517 | $102,517 | - | - | 2.5% | |
| Information technology | $97,960 | $39,620 | $55,593 | $2,747 | 2.4% | |
| Payroll taxes | $89,867 | $52,693 | $12,060 | $25,114 | 2.2% | |
| Occupancy | $83,642 | $120 | $83,402 | $120 | 2.0% | |
| Other employee benefits | $77,945 | $45,708 | $10,458 | $21,779 | 1.9% | |
| Fees: other services | $60,607 | $32,685 | $12,922 | $15,000 | 1.5% | |
| Other (as described) | BANK AND CREDIT CARD FE | $50,182 | $0 | $35,130 | $15,052 | 1.2% |
| Grants outside the US | $48,000 | $48,000 | - | - | 1.2% | |
| Fees: accounting | $32,440 | - | $32,440 | - | 0.8% | |
| Pension plan contributions | $21,951 | $12,872 | $2,945 | $6,134 | 0.5% | |
| Other (as described) | EQUIPMENT & MAINTENANCE | $20,593 | $697 | $18,959 | $937 | 0.5% |
| Fees: legal | $18,750 | $1,023 | $17,727 | - | 0.5% | |
| All other expenses | $18,602 | $2,781 | $14,654 | $1,167 | 0.5% | |
| Fees: professional fundraisers | $16,500 | - | - | $16,500 | 0.4% | |
| Insurance | $8,421 | - | $8,421 | - | 0.2% | |
| Other (as described) | ALLOCATIONS | $0 | $156,156 | -$229,921 | $73,765 | 0.0% |
| Fundraising events Event | direct expenses; gross income $18,778 | $109,491 | reported apart | |||
| Total | $4,085,981 | 100% |
2012 · Form 990 · $3,488,704 spent · pay $1,253,071 · grants $839,957 · events $198,729
| Line | As described | Total | Program | Management | Fundraising | Share |
|---|---|---|---|---|---|---|
| Grants to US organizations and governments | $762,957 | $762,957 | - | - | 21.9% | |
| Other salaries and wages | $595,250 | $350,687 | $96,291 | $148,272 | 17.1% | |
| Pay: officers, directors, trustees, key employees | $491,475 | $289,424 | $79,422 | $122,629 | 14.1% | |
| Office expenses | $245,670 | $105,992 | $64,256 | $75,422 | 7.0% | |
| Travel | $205,354 | $177,292 | $1,690 | $26,372 | 5.9% | |
| Other (as described) | NATURAL HISTORY DATABAS | $179,725 | $179,725 | - | - | 5.2% |
| Occupancy | $144,950 | - | $144,950 | - | 4.2% | |
| Other (as described) | CLINICAL RESEARCH NETWO | $112,501 | $112,501 | - | - | 3.2% |
| Fees: lobbying | $98,880 | $98,880 | - | - | 2.8% | |
| Conferences, conventions and meetings | $88,911 | $76,693 | $12,113 | $105 | 2.5% | |
| Payroll taxes | $84,156 | $49,438 | $13,520 | $21,198 | 2.4% | |
| Grants outside the US | $77,000 | $77,000 | - | - | 2.2% | |
| Other employee benefits | $65,473 | $38,462 | $10,519 | $16,492 | 1.9% | |
| Information technology | $62,333 | $15,600 | $46,310 | $423 | 1.8% | |
| Fees: other services | $59,342 | $24,319 | $3,202 | $31,821 | 1.7% | |
| Depreciation and depletion | $47,306 | $44,840 | $2,466 | - | 1.4% | |
| Other (as described) | BANK AND CREDIT CARD FE | $39,446 | - | $39,446 | - | 1.1% |
| Fees: legal | $30,133 | $14,246 | $12,232 | $3,655 | 0.9% | |
| Fees: accounting | $29,788 | $16,775 | $5,563 | $7,450 | 0.9% | |
| Pension plan contributions | $16,717 | $9,820 | $2,686 | $4,211 | 0.5% | |
| Fees: professional fundraisers | $16,500 | - | - | $16,500 | 0.5% | |
| Other (as described) | EQUIPMENT & MAINTENANCE | $14,391 | $1,498 | $10,757 | $2,136 | 0.4% |
| All other expenses | $12,197 | $155,069 | -$209,736 | $66,864 | 0.3% | |
| Insurance | $8,249 | - | $8,249 | - | 0.2% | |
| Fundraising events Event | direct expenses; gross income - | $109,818 | reported apart | |||
| Total | $3,488,704 | 100% |
2011 · Form 990 · $3,634,524 spent · pay $1,122,866 · grants $1,174,276 · events $356,283
| Line | As described | Total | Program | Management | Fundraising | Share |
|---|---|---|---|---|---|---|
| Grants to US organizations and governments | $1,141,026 | $1,141,026 | - | - | 31.4% | |
| Other salaries and wages | $768,460 | $428,840 | $110,396 | $229,224 | 21.1% | |
| Office expenses | $222,476 | $114,387 | $43,801 | $64,288 | 6.1% | |
| Pay: officers, directors, trustees, key employees | $175,009 | $97,448 | $25,463 | $52,098 | 4.8% | |
| Conferences, conventions and meetings | $159,976 | $147,414 | $12,562 | - | 4.4% | |
| Travel | $151,852 | $125,893 | $3,474 | $22,485 | 4.2% | |
| Occupancy | $147,924 | $148 | $147,454 | $322 | 4.1% | |
| Fees: other services | $119,658 | $93,029 | $5,669 | $20,960 | 3.3% | |
| Other (as described) | NATURAL HISTORY DATABAS | $112,768 | $112,768 | - | - | 3.1% |
| Fees: lobbying | $98,880 | $98,880 | - | - | 2.7% | |
| Other employee benefits | $78,872 | $43,461 | $12,154 | $23,257 | 2.2% | |
| Payroll taxes | $78,747 | $43,392 | $12,135 | $23,220 | 2.2% | |
| Information technology | $67,756 | $16,325 | $51,261 | $170 | 1.9% | |
| Other (as described) | BANK AND CREDIT CARD FE | $56,902 | $148 | $56,682 | $72 | 1.6% |
| Other (as described) | MISCELLANEOUS EXPENSES | $55,714 | $8,771 | $40,112 | $6,831 | 1.5% |
| Depreciation and depletion | $36,133 | $32,370 | $3,763 | - | 1.0% | |
| Grants outside the US | $33,250 | $33,250 | - | - | 0.9% | |
| Fees: accounting | $29,967 | - | $29,967 | - | 0.8% | |
| Other (as described) | CLINIC EXPENSE | $28,486 | $28,486 | - | - | 0.8% |
| Fees: legal | $23,962 | $14,581 | $9,381 | - | 0.7% | |
| Pension plan contributions | $21,778 | $12,000 | $3,356 | $6,422 | 0.6% | |
| Fees: professional fundraisers | $16,500 | - | - | $16,500 | 0.5% | |
| Insurance | $8,428 | - | $8,428 | - | 0.2% | |
| All other expenses | - | $142,728 | -$219,823 | $77,095 | 0.0% | |
| Fundraising events Event | direct expenses; gross income - | $196,307 | reported apart | |||
| Total | $3,634,524 | 100% |
Federal grants and contracts
Awards from USAspending.gov to a recipient with this organization's name and zip code. Obligations by federal fiscal year (October to September); each award links to its page on usaspending.gov.
| Fiscal year | Grants and other assistance | Contracts | Awards |
|---|---|---|---|
| 2025 | $25,000 | $0 | 2 |
| 2023 | $35,486 | $0 | 1 |
| 2020 | $0 | $0 | 1 |
| 2019 | $39,893 | $0 | 1 |
| 2018 | $0 | $0 | 1 |
| 2017 | $33,000 | $0 | 2 |
| 2015 | $20,000 | $0 | 1 |
| 2013 | $25,500 | $0 | 1 |
| 2011 | $16,000 | $0 | 1 |
| 2009 | $54,000 | $0 | 1 |
| 2007 | $60,000 | $0 | 1 |
Largest awards · 9 shown
| Year | Agency | Kind | Program | Description | Obligated |
|---|---|---|---|---|---|
| 2025 | National Institutes of Health | Grant or other assistance | NATIONAL CENTER FOR ADVANCING TRANSLATIONAL SCIENCES 93.350 | 2025 INTERNATIONAL TSC RESEARCH CONFERENCE - TUBEROUS SCLEROSIS COMPLEX (TSC) IS A RARE, LIFE-THREATENING DISORDER CAUSED BY GERMLINE OR SPORADIC MUTATIONS IN T | $25,000 |
| 2023 | National Institutes of Health | Grant or other assistance | EXTRAMURAL RESEARCH PROGRAMS IN THE NEUROSCIENCES AND NEUROLOGICAL DISORDERS 93.853 | 2023 INTERNATIONAL TSC RESEARCH CONFERENCE - THE GOALS OF THE 2023 INTERNATIONAL TSC RESEARCH CONFERENCE ARE TO (1) INSPIRE NEW RESEARCH DIRECTIONS BY EXPOSING | $35,486 |
| 2019 | National Institutes of Health | Grant or other assistance | EXTRAMURAL RESEARCH PROGRAMS IN THE NEUROSCIENCES AND NEUROLOGICAL DISORDERS 93.853 | 2019 INTERNATIONAL TSC RESEARCH CONFERENCE | $39,893 |
| 2017 | National Institutes of Health | Grant or other assistance | EXTRAMURAL RESEARCH PROGRAMS IN THE NEUROSCIENCES AND NEUROLOGICAL DISORDERS 93.853 | 2017 INTERNATIONAL RESEARCH CONFERENCE ON TSC AND LAM | $33,000 |
| 2015 | National Institutes of Health | Grant or other assistance | EXTRAMURAL RESEARCH PROGRAMS IN THE NEUROSCIENCES AND NEUROLOGICAL DISORDE 93.853 | 2015 INTERNATIONAL TUBEROUS SCLEROSIS COMPLEX RESEARCH CONFERENCE: FROM TREATMENT TO PREVENTION | $20,000 |
| 2013 | National Institutes of Health | Grant or other assistance | EXTRAMURAL RESEARCH PROGRAMS IN THE NEUROSCIENCES AND NEUROLOGICAL DISORDERS 93.853 | 2013 INTERNATIONAL RESEARCH CONFERENCE ON TUBEROUS SCLEROSIS COMPLEX AND RELATED | $25,500 |
| 2011 | National Institutes of Health | Grant or other assistance | EXTRAMURAL RESEARCH PROGRAMS IN THE NEUROSCIENCES AND NEUROLOGICAL DISORDERS 93.853 | SUMMIT ON DRUG DISCOVERY IN TUBEROUS SCLEROSIS COMPLEX AND RELATED DISORDERS | $16,000 |
| 2009 | National Institutes of Health | Grant or other assistance | EXTRAMURAL RESEARCH PROGRAMS IN THE NEUROSCIENCES AND NEUROLOGICAL DISORDERS 93.853 | TSC CONFERENCE: FROM DNA TO HUMAN THERAPIES | $54,000 |
| 2007 | National Institutes of Health | Grant or other assistance | EXTRAMURAL RESEARCH PROGRAMS IN THE NEUROSCIENCES AND NEUROLOGICAL DISORDERS 93.853 | TUBEROUS SCLEROSIS COMPLEX CONFERENCE: FROM GENES TO NEW THERAPEUTICS | $60,000 |
Trademarks
8 US trademarks, 7 live.
- National Tuberous Sclerosis Association, Inc. 8 marks, MD EXACT high confidence: identical full name and state
| Mark | Serial | Filed | Status | Source |
|---|---|---|---|---|
| TSC ALLIANCE | 90461205 | 2021-01-12 | Registered | TRCFECO2, file of 2024-03-27 |
| HOPE NO MATTER HOW COMPLEX | 90301319 | 2020-11-05 | Registered | TRCFECO2, file of 2024-03-27 |
| TSC ALLIANCE | 90012133 | 2020-06-20 | Registered | TRCFECO2, file of 2024-03-27 |
| WE'LL GIVE EVERYTHING. BUT UP. | 86258699 | 2014-04-22 | Abandoned | TRCFECO2, file of 2024-03-27 |
| BCUREFUL | 85554859 | 2012-02-28 | Registered and renewed | TRCFECO2, file of 2024-03-27 |
| COMEDY FOR A CURE | 77129503 | 2007-03-13 | Registered and renewed | TRCFECO2, file of 2024-03-27 |
| STEP FORWARD TO CURE TUBEROUS SCLEROSISCOMPLEX | 77129455 | 2007-03-13 | Registered and renewed | TRCFECO2, file of 2024-03-27 |
| TUBEROUS SCLEROSIS ALLIANCE | 78788499 | 2006-01-10 | Registered and renewed | TRTDXFAP, file of 2026-08-01 |
The newest marks of the trademark owners above, matched to this record by name (and state).
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