NATIONAL TUBEROUS SCLEROSIS ASSOCIATION INC: Form 990, tax year 2015
View the entire original 990 at ProPublica ↗
- Organization
- NATIONAL TUBEROUS SCLEROSIS ASSOCIATION INC (EIN 95-3018799)
- Tax period
- 2015-01-01 to 2015-12-31
- Filed
- 2016-04-04
- IRS object ID
- 201630959349300888
- Schema version
- 2015v2.1
- Source
- Download XML · Original 990 at ProPublica
Every field in the e-filed return. Faint text is the IRS element name, for citing.
- Return header
- Form 990
- Schedule A
- Schedule B
- Schedule C
- Schedule D
- Schedule F
- Schedule G
- Schedule I
- Schedule J
- Schedule M
- Schedule O
- Schedule R
Return header ReturnHeader
| Field | Value | IRS element (for citing) |
|---|---|---|
| Return | 2016-04-04T15:55:00-05:00 | ReturnTs |
| Tax Period End | 2015-12-31 | TaxPeriodEndDt |
Preparer Firm PreparerFirmGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Preparer Firm EIN | 521855942 | PreparerFirmEIN |
Preparer Firm Name PreparerFirmName
| Field | Value | IRS element (for citing) |
|---|---|---|
| Business Name Line1 | TATE & TRYON | BusinessNameLine1Txt |
Preparer US Address PreparerUSAddress
| Field | Value | IRS element (for citing) |
|---|---|---|
| Address Line1 | 2021 L STREET NW | AddressLine1Txt |
| City | WASHINGTON | CityNm |
| State Abbreviation | DC | StateAbbreviationCd |
| ZIP | 20036 | ZIPCd |
| Field | Value | IRS element (for citing) |
|---|---|---|
| Return Type | 990 | ReturnTypeCd |
| Tax Period Begin | 2015-01-01 | TaxPeriodBeginDt |
Filer Filer
| Field | Value | IRS element (for citing) |
|---|---|---|
| EIN | 953018799 | EIN |
Business Name BusinessName
| Field | Value | IRS element (for citing) |
|---|---|---|
| Business Name Line1 | NATIONAL TUBEROUS SCLEROSIS ASSOCIATION | BusinessNameLine1Txt |
| Business Name Line2 | INC | BusinessNameLine2Txt |
| Field | Value | IRS element (for citing) |
|---|---|---|
| Business Name Control | NATI | BusinessNameControlTxt |
| Phone | 3015629890 | PhoneNum |
US Address USAddress
| Field | Value | IRS element (for citing) |
|---|---|---|
| Address Line1 | 801 Roeder Road No 750 | AddressLine1Txt |
| City | silver spring | CityNm |
| State Abbreviation | MD | StateAbbreviationCd |
| ZIP | 20910 | ZIPCd |
Business Officer BusinessOfficerGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Person | KARI L ROSBECK | PersonNm |
| Person Title | President and CEO | PersonTitleTxt |
| Phone | 3015629890 | PhoneNum |
| Signature | 2016-04-04 | SignatureDt |
| Discuss With Paid Preparer | Yes (1) | DiscussWithPaidPreparerInd |
Preparer Person PreparerPersonGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Preparer Person | Elizabeth Heller | PreparerPersonNm |
| PTIN | P00397829 | PTIN |
| Phone | 2022932200 | PhoneNum |
| Field | Value | IRS element (for citing) |
|---|---|---|
| Tax | 2015 | TaxYr |
| Build TS | 2016-09-27 15:27:22Z | BuildTS |
Form 990 IRS990
Doing Business As Name DoingBusinessAsName
| Field | Value | IRS element (for citing) |
|---|---|---|
| Business Name Line1 | TUBEROUS SCLEROSIS ALLIANCE | BusinessNameLine1Txt |
| Field | Value | IRS element (for citing) |
|---|---|---|
| Principal Officer | KARI L ROSBECK | PrincipalOfficerNm |
US Address USAddress
| Field | Value | IRS element (for citing) |
|---|---|---|
| Address Line1 | 801 Roeder Road No 750 | AddressLine1Txt |
| City | silver spring | CityNm |
| State Abbreviation | MD | StateAbbreviationCd |
| ZIP | 20910 | ZIPCd |
| Field | Value | IRS element (for citing) |
|---|---|---|
| Gross Receipts | $4,204,121 | GrossReceiptsAmt |
| Group Return For Affiliates | 0 | GroupReturnForAffiliatesInd |
| Organization501c3 | Yes (X) | Organization501c3Ind |
| Website Address | www.tsalliance.org | WebsiteAddressTxt |
| Type Of Organization Corp | Yes (X) | TypeOfOrganizationCorpInd |
| Formation | 1975 | FormationYr |
| Legal Domicile State | CA | LegalDomicileStateCd |
| Activity Or Mission | THE NATIONAL TUBEROUS SCLEROSIS ASSOCIATION, D/B/A TUBEROUS SCLEROSIS ALLIANCE, IS DEDICATED TO FINDING A CURE FOR TUBEROUS SCLEROSIS COMPLEX WHILE IMPROVING THE LIVES OF THOSE AFFECTED. | ActivityOrMissionDesc |
| Voting Members Governing Body | 20 | VotingMembersGoverningBodyCnt |
| Voting Members Independent | 20 | VotingMembersIndependentCnt |
| Total Employee | 21 | TotalEmployeeCnt |
| Total Volunteers | 1638 | TotalVolunteersCnt |
| Total Gross UBI | $0 | TotalGrossUBIAmt |
| Net Unrelated Bus Txbl Incm | $0 | NetUnrelatedBusTxblIncmAmt |
| PY Contributions Grants | $3,124,386 | PYContributionsGrantsAmt |
| CY Contributions Grants | $3,514,873 | CYContributionsGrantsAmt |
| PY Program Service Revenue | $1,237,559 | PYProgramServiceRevenueAmt |
| CY Program Service Revenue | $478,813 | CYProgramServiceRevenueAmt |
| PY Investment Income | $10,654 | PYInvestmentIncomeAmt |
| CY Investment Income | $13,679 | CYInvestmentIncomeAmt |
| PY Other Revenue | $6,348 | PYOtherRevenueAmt |
| CY Other Revenue | $1,071 | CYOtherRevenueAmt |
| PY Total Revenue | $4,378,947 | PYTotalRevenueAmt |
| CY Total Revenue | $4,008,436 | CYTotalRevenueAmt |
| PY Grants And Similar Paid | $457,520 | PYGrantsAndSimilarPaidAmt |
| CY Grants And Similar Paid | $488,698 | CYGrantsAndSimilarPaidAmt |
| PY Benefits Paid To Members | $0 | PYBenefitsPaidToMembersAmt |
| CY Benefits Paid To Members | $0 | CYBenefitsPaidToMembersAmt |
| PY Salaries Comp Emp Bnft Paid | $1,529,944 | PYSalariesCompEmpBnftPaidAmt |
| CY Salaries Comp Emp Bnft Paid | $1,544,461 | CYSalariesCompEmpBnftPaidAmt |
| PY Total Prof Fndrsng Expns | $16,500 | PYTotalProfFndrsngExpnsAmt |
| CY Total Prof Fndrsng Expns | $0 | CYTotalProfFndrsngExpnsAmt |
| CY Total Fundraising Expense | $587,943 | CYTotalFundraisingExpenseAmt |
| PY Other Expenses | $2,267,797 | PYOtherExpensesAmt |
| CY Other Expenses | $1,877,431 | CYOtherExpensesAmt |
| PY Total Expenses | $4,271,761 | PYTotalExpensesAmt |
| CY Total Expenses | $3,910,590 | CYTotalExpensesAmt |
| PY Revenues Less Expenses | $107,186 | PYRevenuesLessExpensesAmt |
| CY Revenues Less Expenses | $97,846 | CYRevenuesLessExpensesAmt |
| Total Assets BOY | $8,933,439 | TotalAssetsBOYAmt |
| Total Assets EOY | $8,707,847 | TotalAssetsEOYAmt |
| Total Liabilities BOY | $312,893 | TotalLiabilitiesBOYAmt |
| Total Liabilities EOY | $287,236 | TotalLiabilitiesEOYAmt |
| Net Assets Or Fund Balances BOY | $8,620,546 | NetAssetsOrFundBalancesBOYAmt |
| Net Assets Or Fund Balances EOY | $8,420,611 | NetAssetsOrFundBalancesEOYAmt |
| Info In Schedule O Part III | Yes (X) | InfoInScheduleOPartIIIInd |
| Mission | THE TS ALLIANCE IS DEDICATED TO FINDING A CURE FOR TUBEROUS SCLEROSIS COMPLEX WHILE IMPROVING THE LIVES OF THOSE AFFECTED. | MissionDesc |
| Significant New Program Srvc | Yes (1) | SignificantNewProgramSrvcInd |
| Significant Change | 0 | SignificantChangeInd |
| Expense | $1,706,806 | ExpenseAmt |
| Grant | $486,198 | GrantAmt |
| Revenue | $477,197 | RevenueAmt |
| Desc | Research Program stimulates and supports basic, translational, and clinical research on the various manifestations of tuberous sclerosis complex (TSC) to further the development of clinical therapies and, ultimately, a cure for TSC. The TS Alliance has funded $18.8 million in research on TSC since 1984. Directed by Steven L. Roberds, Ph.D., Chief Scientific Officer, the TS Alliance research grants program funds research focused on TSC proposed by researchers and aligned with the research priorities of the TS Alliance. Collaborations between basic and clinical researchers are encouraged and fostered, for example, by biennial International TSC Research Conferences. Through the TS Alliance research grants program, applications can be submitted for postdoctoral fellowships, research grants, and Rothberg Courage Awards. Grants are reviewed in a three-step process: (1) all grant applications are reviewed by a committee comprised of scientists knowledgeable about the topic area for scientific merit and of adults affected by TSC for potential impact on the lives of those affected by TSC, (2) the Science and Medical Committee of the Board of Directors evaluates the grant review committee's recommendations and the relevance of the applications to the TS Alliance's funding priorities, and (3) the Board of Directors then reviews the recommendations of the Science and Medical Committee and makes final approval for funding.A total of 11 research awards were funded during 2015 for $486,198. The TS Alliance continued to support eight research grants awarded in previous years. Additionally, three new research awards were funded beginning in 2015 to: (1) Dr. Brendan Manning (Harvard School of Public Health) to study the repurposing of inhibitors of purine synthesis for TSC treatment, (2) Dr. Polina Kosillo (University of California, Berkeley) for a postdoctoral fellowship to study the impact of TSC1 gene deletion on dopamine neurons, and (3) Dr. Mustafa Sahin (Boston Children's Hospital) to study the "hedgehog" gene and ciliary signaling in TSC. Implemented in 2006, the TSC Natural History Database captures clinical data to document the impact of the disease on a person's health over his or her lifetime. As of December 2015, 1,849 people with tuberous sclerosis complex were enrolled in the project from among 18 U.S.-based sites. The TS Alliance provides funding to participating clinics to perform data entry, monitors the integrity of the database, and makes data available to investigators to answer specific research questions and identify potential participants for clinical trials and studies. In 2015, the TS Alliance invested $467,608 in the TSC Database and designed a sub-project on epilepsy to address detailed questions about epilepsy in TSC. A contract with Novartis executed in November 2012 continued to provide TS Alliance with funding to enhance and grow the TSC Database through 2015. The TSC Biosample Repository is a TS Alliance-directed project initiated in 2014 that will impact research over the next ten years or more. High-quality biosamples such as blood, DNA, and tissues linked to detailed clinical data are required for researchers to understand why TSC is so different from person to person. Such samples are currently unavailable, and the TS Alliance's Science and Medical Committee identified this as a gap that can only be filled effectively with leadership of the TS Alliance, guided by a steering committee of clinicians and researchers. The TS Alliance contracted with the Van Andel Research Institute in Grand Rapids, Michigan, to host and distribute biosamples. Samples in the repository will be available to qualified researchers worldwide and will be associated with detailed clinical data, such as that found in our existing TSC Natural History Database. The Biosample Repository also houses samples collected as part of the TSC Clinical Research Consortium's Rare Disease Clinical Research Network project that launched in 2015. The TS Alliance launched a new TSC Preclinical Consortium in 2015, which will enable prioritization of candidate drugs or compounds based on comparing head-to-head data using consistent animal models and rigorous testing procedures. The TS Alliance is ideally positioned to drive this collaboration-with input from academic, regulatory, and industry stakeholders-by maintaining constant focus on the needs of people with TSC. To drive this project, the TS Alliance contracted with Dr. Daniela Brunner, who has more than 20 years of experience validating in vivo experimental protocols and testing drugs in many animal models of developmental, psychiatric, and neurodegenerative diseases. The TS Alliance has negotiated a license with Brigham and Women's Hospital to use specific mice developed at that institution for experiments done by the TSC Preclinical Consortium. The TS Alliance is also finalizing agreements for use of other TSC mouse models from other institutions and has solicited proposals for breeding of mice and performing epilepsy-related experiments. These proposals will be reviewed to select laboratories best suited for conducting breeding and experiments. Several small and large pharmaceutical companies have expressed interest in the consortium, and all mouse license agreements include the rights for the TS Alliance to perform experiments under contract for commercial entities.The TS Alliance continued to be a key part of the TSC Clinical Research Consortium although only a small amount of TS Alliance financial support was required because of the consortium's success in obtaining NIH funding. The five clinics comprising this consortium received NIH grants to conduct two clinical studies initiated in 2013. These two clinical studies will (1) determine what early signs or tests can identify infants with TSC at highest risk of developing autism by age three, and (2) measure the ability of EEG and brain imaging to assess the risk of newly diagnosed infants with TSC to develop infantile spasms. The biomarkers resulting from studies will have a major impact on our ability to intervene very early to prevent some of the most devastating manifestations of TSC. An interim analysis of the EEG study demonstrated that, indeed, specific abnormal EEG findings can predict that an infant will progress to develop clinical seizures. Additionally, the coordinated work to execute both of these studies has developed infrastructure and processes to form the basis of an ongoing and growing TSC Clinical Research Network. The TS Alliance continued supporting Dr. Mustafa Sahin (Boston Children's Hospital) and his research of imaging analysis in the rare diseases clinical research network. The consortium submitted an additional NIH grant application that, if funded, will add two additional clinical sites and enable the first clinical trial to prevent the development of epilepsy in infants diagnosed with TSC. As the TSC Preclinical Consortium and translational research in TSC produces additional ideas for clinical studies, the efficient initiation and conduct of future clinical trials will benefit from having this infrastructure in place to enable investigators to quickly and affordably execute studies. The TS Alliance's Chief Scientific Officer is on the leadership team of the consortium. The TS Alliance co-sponsored with the Tuberous Sclerosis Association in the UK the 2015 International TSC Research Conference: From Treatment to Prevention, held in Windsor, UK. Approximately 260 attendees from 30 countries participated in the conference featuring oral presentations, a poster session, and ancillary meetings including TSC International and TSCure, a working group of clinical researchers tackling issues necessary to plan clinical trials of very early treatments to prevent manifestations of TSC and LAM. This conference was supported by a grant from Novartis, while The Rothberg Institute for Childhood Diseases was a presenting sponsor. Support was also provided by the Brian O'Brien Family, GW Pharmaceuticals, Bcureful, the Castle Hotel Windsor, the National Institutes of Health, the National Institute of Neurological Disorders and Stroke, and the Nation Center for Advancing Translational Sciences. | Desc |
Prog Srvc Accom Acty2 ProgSrvcAccomActy2Grp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Expense | $608,533 | ExpenseAmt |
| Grant | $2,500 | GrantAmt |
| Revenue | $1,616 | RevenueAmt |
| Desc | Family Services develops programs and services that provide individuals with TSC direct access to information, resources, and specialists experienced in the diagnosis, treatment and management of TSC. The Family Services Department provided support and resources to 2,905 individuals and families dealing with TSC throughout 2015. The Vice President of Outreach attended 39 school meetings (IEPs, Evaluation Team Meetings, 504 Plan Meetings, Resolution Meetings, and Mediations) in person, through SKYPE or Facetime, and via conference calls to support families in attaining educational services for their children throughout the country. In 2015, 24 Educational Liaison volunteers worked in 24 states to connect families to free educational advocacy trainings in collaboration with the states' Parent Training and Information Centers. As a result, more than 1,885 free parent trainings/webinars on educational advocacy were offered to families dealing with educational issues for their children. In addition, the Educator Mentor Program supported 89 school systems in understanding the learning needs of children with TSC. Through a network of 35 volunteer branches of the organization, called Community Alliances, local education and support group meetings were held throughout the country. Through these Community Alliances, the TS Alliance hosted 76 educational meetings and gatherings. Among these 76 meetings was a 13-meeting Town Hall educational series. The series title was New Clinical Research in Epilepsy and Infantile Spasms. These Town Hall meetings were hosted in TSC clinics and other venues across the United States to educate TSC individuals and families about new research in epilepsy and infantile spasms with 160 people attending. One new Community Alliance, the TS Alliance of Kentucky/West Virginia, was added in 2015. The TS Alliance facilitated 7,413 peer-to-peer supports from Adult Regional Coordinators, Clinic Ambassadors, Dependent Adult Transition Resource Coordinators and through Community Alliance meetings.In 2015, the TS Alliance hosted three Regional TSC Conferences held in St. Paul, MN; Stanford, CA; and Winston-Salem, NC with 180 combined attendees. These conferences brought together individuals, parents, caregivers and members of the medical community to provide the most up-to-date information so parents and adults with TSC can make informed decisions when evaluating treatment options. These one-day symposiums offered educational outreach, information on the latest treatments in TSC, research updates, and support options. They featured the region's top experts and provided attendees the opportunity to ask questions in an open panel session with these experts in a nurturing, supportive environment. Regional TSC Conferences provide much-needed forums for the growing number of people facing the daily challenges of TSC. | Desc |
Prog Srvc Accom Acty3 ProgSrvcAccomActy3Grp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Expense | $364,102 | ExpenseAmt |
| Desc | Public Health Education heightens awareness of TSC throughout the general public to broaden the scope of support and understanding beyond TSC individuals and their families. During 2015, the TS Alliance produced three issues of its national magazine, Perspective, which is mailed to 15,000-plus constituents as well as posted on the website. The TS Alliance's website increases awareness and provides extensive education via 1 million-plus hits monthly from an average of more than 38,000 unique visitors. The TS Alliance also relies heavily on social media to educate constituents and promote new resources and events. Its Facebook Group boasts more than 7,000 members, while its Twitter account has 1,400-plus followers. To increase public awareness, the TS Alliance introduced a new public awareness campaign called #IAMTSC. This effort includes a dedicated website at IAMTSC.org, which garnered 21,912 page views from 10,788 unique visitors through December 31. Public service announcements were also filmed and throughout 2015 played 3,807 times on TV stations across the United States, reaching a potential audience of more than 21 million. The TS Alliance once again participated in TSC Global Awareness Day on May 15, where the #IAMTSC theme was leveraged heavily on social media and in a satellite media tour, sponsored by Novartis, featuring the TS Alliance President & CEO and the #IAMTSC campaign's creator-a dad whose daughter has TSC. This media tour reached 4.8 million people. In 2015, the TS Alliance also heavily promoted Infantile Spasms Awareness by producing four new videos for parents whose children with TSC experience these types of seizures; these videos were viewed 1,879 times by December 31. The TS Alliance, in partnership with the Child Neurology Foundation, planned and executed Infantile Spasms Awareness Week, December 1-7. The TS Alliance public awareness campaign included social media, paid advertising to first line physicians and media tour. Facebook advertising to reach misdiagnosed or those seeking a diagnosis reached 31,547 people. Advertising to first line physicians included American College of Emergency Physicians (ACEP) Now Website banner ad with 5,279 impressions, ACEP online newsletter with 21,061 subscribers, and the American Academy of Pediatrics Gateway with 50,000 impressions. The Satellite media tour with 15 aired interviews (3 TV/12 radio) reached a total audience of 2,727,039 (61,023 broadcast; 2,665,966 radio). | Desc |
Prog Srvc Accom Acty Other ProgSrvcAccomActyOtherGrp (2 entries)
| ExpenseExpenseAmt | DescDesc |
|---|---|
| $126,441 | Government Relations focuses on educating members of Congress about TSC to further TSC research, awareness and clinical care. The annual TS Alliance March on Capitol Hill to advocate for federal funding for the Tuberous Sclerosis Complex Research Program (TSCRP) at the Department of Defense's (DoD) Congressionally Directed Medical Research Program (CDMRP) took place in early March 2015. More than 80 members of the TSC community participated, asking their senators and representatives to sign onto Dear Colleague letters in support of TSC research. In the House, 27% or 117 Democratic and Republican Representatives signed onto a bipartisan Dear Colleague letter of support from Representatives Loretta Sanchez (D-CA) and Mike Fitzpatrick (R-PA). The number of signatures secured for the Sanchez-Fitzpatrick letter greatly exceeds the numbers set in previous years. The Senate letter was sponsored by Senators Chris Murphy (D-CT) and Johnny Isakson (R-GA) and included 22 signatures. In FY2016, the TSC Research Program at the CDMRP received a $6 million appropriation, bringing the cumulative funding to $65 million since 2002 as a result of our successful grassroots efforts. Research done through this program has recently led to additional clinical trials including: determining if imatinib, a drug FDA-approved for cancer, can safely improve levels of VEGF-D, a biomarker of lymphangioleiomyomatosis (LAM), a life-threatening lung manifestation of TSC, funded in FY2013 (the most recent year for which awards have been announced); testing a combination of two drugs to treat LAM funded in FY2012; a multi-site clinical trial testing the efficacy of an experimental topical rapamycin cream to treat the disfiguring facial tumors, facial angiofibromas, caused by TSC funded in FY2010; a clinical research network was created to test potential new therapies, to validate biomarkers, and to learn the natural history of leading to a clinical trial funded in FY2012. Building upon FY2010-funded research on glutamate receptors (mGluR5), several companies are now looking at developing drugs to link cognitive impairments in TSC to autism, anxiety, and other mental disorders. The TSCRP has also funded research to develop animal models of TSC that have seizures, enabling a better understanding of the etiology of TSC. In 2013 an industry-sponsored clinical trial began to test mTOR inhibitors to treat epilepsy in individuals with TSC. None of this progress would have been possible without the critical support provided through the TSCRP.Additional Government Relations efforts included a Congressional Briefing on Capitol Hill to commemorate TSC Global Awareness Day on May 15, 2015. Congressional staff and key members of the TSC research and grassroots communities attended the event. |
| $40,042 | Professional Education expands programs to target researchers and healthcare providers caring for individuals with TSC, medical students, genetic counselors and educators to minimize the consequences of ignorance and misinformation. The TS Alliance also participated in and presented at 32 professional meetings including: The Child Neurology Society Meeting; LAMposium - The LAM Foundation Conference; Congressional Showcase with the Coalition for Imaging and Bioengineering Research (CIBR); Association of Clinical Research Professionals Conference; Interagency Collaborative To Advance Research In Epilepsy (ICARE); Clinical Trials Transformation Initiative; Rare Disease Day at NIH; The NINDS Nonprofit Forum; NORD Annual Conference on Rare Diseases and Orphan Products; DIA Rare Diseases Workshop; ExL's 2nd Rare Disease Collaboration Summit; CBI's Evidence for Value-Based Programs; Society for the Study of Behavioral Phenotypes; 2015 BIO Patient and Health Advocacy Summit; NORD Summit; Translational Neuroscience Symposium; and the American Thoracic Society. In addition, at the American Epilepsy Society (AES) annual meeting, the TS Alliance hosted an Infantile Spasms Awareness Innovation Pavilion exhibit and a TSC reception for more than 100 researchers, clinicians, and community members. The TS Alliance also participated in two Special Interest Group scientific sessions, one on TSC and another on research resources, made available by non-profit organizations advocating for rare disorders that involve epilepsy. Further, the Vice President of Outreach has ongoing collaboration with national educational networks, such as the Association for Middle Level Education (AMLE). She also collaborates with Parent Training Information Centers (PTIs) throughout the country. Providing children with appropriate education is one key to individuals having a good quality of life. |
| Field | Value | IRS element (for citing) |
|---|---|---|
| Total Other Prog Srvc Expense | $166,483 | TotalOtherProgSrvcExpenseAmt |
| Total Program Service Expenses | $2,845,924 | TotalProgramServiceExpensesAmt |
| Described In Section501c3 | Yes (1) | DescribedInSection501c3Ind |
| Schedule B Required | Yes (1) | ScheduleBRequiredInd |
| Political Campaign Acty | 0 | PoliticalCampaignActyInd |
| Lobbying Activities | Yes (1) | LobbyingActivitiesInd |
| Subject To Proxy Tax | 0 | SubjectToProxyTaxInd |
| Donor Advised Fund | 0 | DonorAdvisedFundInd |
| Conservation Easements | 0 | ConservationEasementsInd |
| Collections Of Art | 0 | CollectionsOfArtInd |
| Credit Counseling | 0 | CreditCounselingInd |
| Temp Or Permanent Endowments | Yes (1) | TempOrPermanentEndowmentsInd |
| Report Land Building Equipment | Yes (1) | ReportLandBuildingEquipmentInd |
| Report Investments Other Sec | 0 | ReportInvestmentsOtherSecInd |
| Report Program Related Invst | 0 | ReportProgramRelatedInvstInd |
| Report Other Assets | Yes (1) | ReportOtherAssetsInd |
| Report Other Liabilities | 0 | ReportOtherLiabilitiesInd |
| Include FIN48 Footnote | 0 | IncludeFIN48FootnoteInd |
| Independent Audit Fincl Stmt | 0 | IndependentAuditFinclStmtInd |
| Consolidated Audit Fincl Stmt | Yes (1) | ConsolidatedAuditFinclStmtInd |
| School Operating | 0 | SchoolOperatingInd |
| Foreign Office | 0 | ForeignOfficeInd |
| Foreign Activities | Yes (1) | ForeignActivitiesInd |
| More Than5000 K To Org | Yes (1) | MoreThan5000KToOrgInd |
| More Than5000 K To Individuals | 0 | MoreThan5000KToIndividualsInd |
| Professional Fundraising | 0 | ProfessionalFundraisingInd |
| Fundraising Activities | Yes (1) | FundraisingActivitiesInd |
| Gaming Activities | 0 | GamingActivitiesInd |
| Operate Hospital | 0 | OperateHospitalInd |
| Grants To Organizations | Yes (1) | GrantsToOrganizationsInd |
| Grants To Individuals | 0 | GrantsToIndividualsInd |
| Schedule J Required | Yes (1) | ScheduleJRequiredInd |
| Tax Exempt Bonds | 0 | TaxExemptBondsInd |
| Engaged In Excess Benefit Trans | 0 | EngagedInExcessBenefitTransInd |
| PY Excess Benefit Trans | 0 | PYExcessBenefitTransInd |
| Loan Outstanding | 0 | LoanOutstandingInd |
| Grant To Related Person | 0 | GrantToRelatedPersonInd |
| Business Rln With Org Mem | 0 | BusinessRlnWithOrgMemInd |
| Business Rln With Fam Mem | 0 | BusinessRlnWithFamMemInd |
| Business Rln With Officer Ent | 0 | BusinessRlnWithOfficerEntInd |
| Deductible Non Cash Contri | Yes (1) | DeductibleNonCashContriInd |
| Deductible Art Contribution | 0 | DeductibleArtContributionInd |
| Terminate Operations | 0 | TerminateOperationsInd |
| Partial Liquidation | 0 | PartialLiquidationInd |
| Disregarded Entity | 0 | DisregardedEntityInd |
| Related Entity | Yes (1) | RelatedEntityInd |
| Related Organization Ctrl Ent | 0 | RelatedOrganizationCtrlEntInd |
| Trnsfr Exmpt Non Chrtbl Rltd Org | 0 | TrnsfrExmptNonChrtblRltdOrgInd |
| Activities Conducted Prtshp | 0 | ActivitiesConductedPrtshpInd |
| Schedule O Required | Yes (1) | ScheduleORequiredInd |
| IRP Document | 40 | IRPDocumentCnt |
| IRP Document W2 G | 0 | IRPDocumentW2GCnt |
| Backup Wthld Compliance | Yes (1) | BackupWthldComplianceInd |
| Employee | 21 | EmployeeCnt |
| Employment Tax Returns Filed | Yes (1) | EmploymentTaxReturnsFiledInd |
| Unrelated Bus Incm Over Limit | 0 | UnrelatedBusIncmOverLimitInd |
| Foreign Financial Account | 0 | ForeignFinancialAccountInd |
| Prohibited Tax Shelter Trans | 0 | ProhibitedTaxShelterTransInd |
| Taxable Party Notification | 0 | TaxablePartyNotificationInd |
| Nondeductible Contributions | 0 | NondeductibleContributionsInd |
| Quid Pro Quo Contributions | Yes (1) | QuidProQuoContributionsInd |
| Quid Pro Quo Contri Discl | Yes (1) | QuidProQuoContriDisclInd |
| Form8282 Property Disposed Of | 0 | Form8282PropertyDisposedOfInd |
| Rcv Fnds To Pay Prsnl Bnft Cntrct | 0 | RcvFndsToPayPrsnlBnftCntrctInd |
| Pay Premiums Prsnl Bnft Cntrct | 0 | PayPremiumsPrsnlBnftCntrctInd |
| Indoor Tanning Services | 0 | IndoorTanningServicesInd |
| Info In Schedule O Part VI | Yes (X) | InfoInScheduleOPartVIInd |
| Governing Body Voting Members | 20 | GoverningBodyVotingMembersCnt |
| Independent Voting Member | 20 | IndependentVotingMemberCnt |
| Family Or Business Rln | 0 | FamilyOrBusinessRlnInd |
| Delegation Of Mgmt Duties | 0 | DelegationOfMgmtDutiesInd |
| Change To Org Documents | 0 | ChangeToOrgDocumentsInd |
| Material Diversion Or Misuse | 0 | MaterialDiversionOrMisuseInd |
| Members Or Stockholders | Yes (1) | MembersOrStockholdersInd |
| Election Of Board Members | Yes (1) | ElectionOfBoardMembersInd |
| Decisions Subject To Approva | 0 | DecisionsSubjectToApprovaInd |
| Minutes Of Governing Body | Yes (1) | MinutesOfGoverningBodyInd |
| Minutes Of Committees | Yes (1) | MinutesOfCommitteesInd |
| Officer Mailing Address | 0 | OfficerMailingAddressInd |
| Local Chapters | Yes (1) | LocalChaptersInd |
| Policies Reference Chapters | Yes (1) | PoliciesReferenceChaptersInd |
| Form990 Provided To Gvrn Body | Yes (1) | Form990ProvidedToGvrnBodyInd |
| Conflict Of Interest Policy | Yes (1) | ConflictOfInterestPolicyInd |
| Annual Disclosure Covered Prsn | Yes (1) | AnnualDisclosureCoveredPrsnInd |
| Regular Monitoring Enfrc | Yes (1) | RegularMonitoringEnfrcInd |
| Whistleblower Policy | Yes (1) | WhistleblowerPolicyInd |
| Document Retention Policy | Yes (1) | DocumentRetentionPolicyInd |
| Compensation Process CEO | Yes (1) | CompensationProcessCEOInd |
| Compensation Process Other | Yes (1) | CompensationProcessOtherInd |
| Investment In Joint Venture | 0 | InvestmentInJointVentureInd |
| States Where Copy Of Return Is Fld | MD | StatesWhereCopyOfReturnIsFldCd |
| States Where Copy Of Return Is Fld | CA | StatesWhereCopyOfReturnIsFldCd |
| States Where Copy Of Return Is Fld | AK | StatesWhereCopyOfReturnIsFldCd |
| States Where Copy Of Return Is Fld | RI | StatesWhereCopyOfReturnIsFldCd |
| States Where Copy Of Return Is Fld | PA | StatesWhereCopyOfReturnIsFldCd |
| States Where Copy Of Return Is Fld | MA | StatesWhereCopyOfReturnIsFldCd |
| States Where Copy Of Return Is Fld | NH | StatesWhereCopyOfReturnIsFldCd |
| States Where Copy Of Return Is Fld | NY | StatesWhereCopyOfReturnIsFldCd |
| States Where Copy Of Return Is Fld | NC | StatesWhereCopyOfReturnIsFldCd |
| States Where Copy Of Return Is Fld | OR | StatesWhereCopyOfReturnIsFldCd |
| States Where Copy Of Return Is Fld | VA | StatesWhereCopyOfReturnIsFldCd |
| States Where Copy Of Return Is Fld | CT | StatesWhereCopyOfReturnIsFldCd |
| States Where Copy Of Return Is Fld | GA | StatesWhereCopyOfReturnIsFldCd |
| States Where Copy Of Return Is Fld | AR | StatesWhereCopyOfReturnIsFldCd |
| States Where Copy Of Return Is Fld | HI | StatesWhereCopyOfReturnIsFldCd |
| States Where Copy Of Return Is Fld | IL | StatesWhereCopyOfReturnIsFldCd |
| States Where Copy Of Return Is Fld | KS | StatesWhereCopyOfReturnIsFldCd |
| States Where Copy Of Return Is Fld | KY | StatesWhereCopyOfReturnIsFldCd |
| States Where Copy Of Return Is Fld | TN | StatesWhereCopyOfReturnIsFldCd |
| States Where Copy Of Return Is Fld | MI | StatesWhereCopyOfReturnIsFldCd |
| States Where Copy Of Return Is Fld | NJ | StatesWhereCopyOfReturnIsFldCd |
| States Where Copy Of Return Is Fld | NM | StatesWhereCopyOfReturnIsFldCd |
| States Where Copy Of Return Is Fld | UT | StatesWhereCopyOfReturnIsFldCd |
| States Where Copy Of Return Is Fld | MN | StatesWhereCopyOfReturnIsFldCd |
| States Where Copy Of Return Is Fld | WV | StatesWhereCopyOfReturnIsFldCd |
| States Where Copy Of Return Is Fld | OK | StatesWhereCopyOfReturnIsFldCd |
| States Where Copy Of Return Is Fld | FL | StatesWhereCopyOfReturnIsFldCd |
| States Where Copy Of Return Is Fld | AL | StatesWhereCopyOfReturnIsFldCd |
| States Where Copy Of Return Is Fld | SC | StatesWhereCopyOfReturnIsFldCd |
| States Where Copy Of Return Is Fld | WI | StatesWhereCopyOfReturnIsFldCd |
| States Where Copy Of Return Is Fld | MS | StatesWhereCopyOfReturnIsFldCd |
| States Where Copy Of Return Is Fld | IN | StatesWhereCopyOfReturnIsFldCd |
| Own Website | Yes (X) | OwnWebsiteInd |
| Other Website | Yes (X) | OtherWebsiteInd |
| Upon Request | Yes (X) | UponRequestInd |
Books In Care Of Detail BooksInCareOfDetail
Business Name BusinessName
| Field | Value | IRS element (for citing) |
|---|---|---|
| Business Name Line1 | the organization | BusinessNameLine1Txt |
| Field | Value | IRS element (for citing) |
|---|---|---|
| Phone | 3015629890 | PhoneNum |
US Address USAddress
| Field | Value | IRS element (for citing) |
|---|---|---|
| Address Line1 | 801 Roeder Road No 750 | AddressLine1Txt |
| City | silver spring | CityNm |
| State Abbreviation | MD | StateAbbreviationCd |
| ZIP | 20910 | ZIPCd |
Form990 Part VII Section A Form990PartVIISectionAGrp (25 entries)
| TitleTitleTxt | Average Hours Per WeekAverageHoursPerWeekRt | Average Hours Per Week Rltd OrgAverageHoursPerWeekRltdOrgRt | Individual Trustee Or DirectorIndividualTrusteeOrDirectorInd | OfficerOfficerInd | Reportable Comp From OrgReportableCompFromOrgAmt | Reportable Comp From Rltd OrgReportableCompFromRltdOrgAmt | Other CompensationOtherCompensationAmt | Key EmployeeKeyEmployeeInd |
|---|---|---|---|---|---|---|---|---|
| LAURA LUBBERS | ||||||||
| CHAIR | 5.00 | 0.00 | Yes (X) | Yes (X) | $0 | $0 | $0 | |
| DAVID FITZMAURICE | ||||||||
| VICE CHAIR | 5.00 | 0.00 | Yes (X) | Yes (X) | $0 | $0 | $0 | |
| KEITH HALL | ||||||||
| IMMEDIATE PAST CHAIR | 5.00 | 0.00 | Yes (X) | Yes (X) | $0 | $0 | $0 | |
| REBECCA ANHANG PRICE | ||||||||
| SECRETARY | 5.00 | 0.00 | Yes (X) | Yes (X) | $0 | $0 | $0 | |
| DARREN MILES | ||||||||
| TREASURER | 5.00 | 0.00 | Yes (X) | Yes (X) | $0 | $0 | $0 | |
| MARTINA BEBIN | ||||||||
| BOARD MEMBER | 2.00 | 0.00 | Yes (X) | $0 | $0 | $0 | ||
| JOHN BISSLER MD | ||||||||
| BOARD MEMBER | 2.00 | 0.00 | Yes (X) | $0 | $0 | $0 | ||
| Cassandra Carroll | ||||||||
| bOARD MEMBER | 2.00 | 0.00 | Yes (X) | $0 | $0 | $0 | ||
| April Cooper | ||||||||
| BOARD MEMBER | 2.00 | 0.00 | Yes (X) | $0 | $0 | $0 | ||
| Beth Dean | ||||||||
| BOARD MEMBER | 2.00 | 0.00 | Yes (X) | $0 | $0 | $0 | ||
| RITA DIDOMENICO | ||||||||
| BOARD MEMBER | 2.00 | 2.00 | Yes (X) | $0 | $0 | $0 | ||
| STEVEN GOLDSTEIN | ||||||||
| boARD MEMBER | 2.00 | 1.00 | Yes (X) | $0 | $0 | $0 | ||
| Colleen Johns | ||||||||
| BOARD MEMBER | 2.00 | 0.00 | Yes (X) | $0 | $0 | $0 | ||
| BRENDAN MANNING PHD | ||||||||
| BOARD MEMBER | 2.00 | 0.00 | Yes (X) | $0 | $0 | $0 | ||
| THEODORE MASTROIANNI | ||||||||
| BOARD MEMBER | 2.00 | 0.00 | Yes (X) | $0 | $0 | $0 | ||
| DAVID MICHAELS | ||||||||
| BOARD MEMBER | 2.00 | 1.00 | Yes (X) | $0 | $0 | $0 | ||
| DEBORA MORITZ | ||||||||
| bOARD MEMBER | 5.00 | 0.00 | Yes (X) | $0 | $0 | $0 | ||
| COURTNEY O'MALLEY | ||||||||
| BOARD MEMBER | 2.00 | 0.00 | Yes (X) | $0 | $0 | $0 | ||
| DAVID PARKES | ||||||||
| BOARD MEMBER | 2.00 | 0.00 | Yes (X) | $0 | $0 | $0 | ||
| HENRY SHAPIRO | ||||||||
| BOARD MEMBER | 2.00 | 0.00 | Yes (X) | $0 | $0 | $0 | ||
| ELIZABETH THIELE MD PHD | ||||||||
| BOARD MEMBER | 2.00 | 0.00 | Yes (X) | $0 | $0 | $0 | ||
| KARI L ROSBECK | ||||||||
| PRESIDENT & CEO | 54.00 | 1.00 | Yes (X) | $164,915 | $3,366 | $22,606 | ||
| RICHARD A GOLLUB | ||||||||
| CONTROLLER & CFO (FROM MAR 15) | 46.50 | 3.50 | Yes (X) | $89,652 | $6,956 | $16,691 | ||
| MARY JANE PERRAUT | ||||||||
| CFO (UNTIL APR 15) | 49.00 | 1.00 | Yes (X) | $63,153 | $1,289 | $5,062 | ||
| STEVEN L ROBERDS | ||||||||
| CHIEF SCIENTIFIC OFFICER | 45.00 | 0.00 | $182,854 | $0 | $25,253 | Yes (X) | ||
| Field | Value | IRS element (for citing) |
|---|---|---|
| Total Reportable Comp From Org | $500,574 | TotalReportableCompFromOrgAmt |
| Tot Reportable Comp Rltd Org | $11,611 | TotReportableCompRltdOrgAmt |
| Total Other Compensation | $69,612 | TotalOtherCompensationAmt |
| Indiv Rcvd Greater Than100 K | 2 | IndivRcvdGreaterThan100KCnt |
| Former Ofcr Employees Listed | 0 | FormerOfcrEmployeesListedInd |
| Total Comp Greater Than150 K | Yes (1) | TotalCompGreaterThan150KInd |
| Compensation From Other Srcs | 0 | CompensationFromOtherSrcsInd |
Contractor Compensation ContractorCompensationGrp
Contractor Name ContractorName
Business Name BusinessName
| Field | Value | IRS element (for citing) |
|---|---|---|
| Business Name Line1 | Cavarocchi Ruscio Dennis Associates | BusinessNameLine1Txt |
Contractor Address ContractorAddress
US Address USAddress
| Field | Value | IRS element (for citing) |
|---|---|---|
| Address Line1 | 600 Maryland AveSW Ste 835W | AddressLine1Txt |
| City | Washington | CityNm |
| State Abbreviation | DC | StateAbbreviationCd |
| ZIP | 20024 | ZIPCd |
| Field | Value | IRS element (for citing) |
|---|---|---|
| Services | Government Relations Consulting | ServicesDesc |
| Compensation | $101,844 | CompensationAmt |
| Field | Value | IRS element (for citing) |
|---|---|---|
| Cntrct Rcvd Greater Than100 K | 1 | CntrctRcvdGreaterThan100KCnt |
| Federated Campaigns | $46,963 | FederatedCampaignsAmt |
| Membership Dues | $28,136 | MembershipDuesAmt |
| Fundraising | $1,435,044 | FundraisingAmt |
| Related Organizations | $202,000 | RelatedOrganizationsAmt |
| All Other Contributions | $1,802,730 | AllOtherContributionsAmt |
| Noncash Contributions | $70,958 | NoncashContributionsAmt |
| Total Contributions | $3,514,873 | TotalContributionsAmt |
Program Service Revenue ProgramServiceRevenueGrp (2 entries)
| DescDesc | BusinessBusinessCd | Total Revenue ColumnTotalRevenueColumnAmt | Related Or Exempt Func IncomeRelatedOrExemptFuncIncomeAmt |
|---|---|---|---|
| CONTRACT REVENUE | 900099 | $380,405 | $380,405 |
| CONFERENCE REVENUE | 900099 | $98,408 | $98,408 |
| Field | Value | IRS element (for citing) |
|---|---|---|
| Total Program Service Revenue | $478,813 | TotalProgramServiceRevenueAmt |
Investment Income InvestmentIncomeGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Total Revenue Column | $16,038 | TotalRevenueColumnAmt |
| Exclusion | $16,038 | ExclusionAmt |
Gross Amount Sales Assets GrossAmountSalesAssetsGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Securities | $62,425 | SecuritiesAmt |
Less Cost Oth Basis Sales Expnss LessCostOthBasisSalesExpnssGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Securities | $64,784 | SecuritiesAmt |
Gain Or Loss GainOrLossGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Securities | -$2,359 | SecuritiesAmt |
Net Gain Or Loss Investments NetGainOrLossInvestmentsGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Total Revenue Column | -$2,359 | TotalRevenueColumnAmt |
| Exclusion | -$2,359 | ExclusionAmt |
| Field | Value | IRS element (for citing) |
|---|---|---|
| Fundraising Gross Income | $130,568 | FundraisingGrossIncomeAmt |
| Contri Rpt Fundraising Event | $1,435,044 | ContriRptFundraisingEventAmt |
| Fundraising Direct Expenses | $130,901 | FundraisingDirectExpensesAmt |
Net Incm From Fundraising Evt NetIncmFromFundraisingEvtGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Total Revenue Column | -$333 | TotalRevenueColumnAmt |
| Exclusion | -$333 | ExclusionAmt |
Other Revenue Misc OtherRevenueMiscGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Desc | OTHER | Desc |
| Business | 900099 | BusinessCd |
| Total Revenue Column | $1,404 | TotalRevenueColumnAmt |
| Exclusion | $1,404 | ExclusionAmt |
| Field | Value | IRS element (for citing) |
|---|---|---|
| Other Revenue Total | $1,404 | OtherRevenueTotalAmt |
Total Revenue TotalRevenueGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Total Revenue Column | $4,008,436 | TotalRevenueColumnAmt |
| Related Or Exempt Func Income | $478,813 | RelatedOrExemptFuncIncomeAmt |
| Unrelated Business Revenue | $0 | UnrelatedBusinessRevenueAmt |
| Exclusion | $14,750 | ExclusionAmt |
| Field | Value | IRS element (for citing) |
|---|---|---|
| Info In Schedule O Part IX | Yes (X) | InfoInScheduleOPartIXInd |
Grants To Domestic Orgs GrantsToDomesticOrgsGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Total | $406,419 | TotalAmt |
| Program Services | $406,419 | ProgramServicesAmt |
Foreign Grants ForeignGrantsGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Total | $82,279 | TotalAmt |
| Program Services | $82,279 | ProgramServicesAmt |
Comp Current Ofcr Directors CompCurrentOfcrDirectorsGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Total | $600,211 | TotalAmt |
| Program Services | $344,247 | ProgramServicesAmt |
| Management And General | $126,537 | ManagementAndGeneralAmt |
| Fundraising | $129,427 | FundraisingAmt |
Other Salaries And Wages OtherSalariesAndWagesGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Total | $750,769 | TotalAmt |
| Program Services | $428,883 | ProgramServicesAmt |
| Management And General | $159,634 | ManagementAndGeneralAmt |
| Fundraising | $162,252 | FundraisingAmt |
Pension Plan Contributions PensionPlanContributionsGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Total | $21,280 | TotalAmt |
| Program Services | $12,488 | ProgramServicesAmt |
| Management And General | $4,262 | ManagementAndGeneralAmt |
| Fundraising | $4,530 | FundraisingAmt |
Other Employee Benefits OtherEmployeeBenefitsGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Total | $77,483 | TotalAmt |
| Program Services | $45,470 | ProgramServicesAmt |
| Management And General | $15,521 | ManagementAndGeneralAmt |
| Fundraising | $16,492 | FundraisingAmt |
Payroll Taxes PayrollTaxesGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Total | $94,718 | TotalAmt |
| Program Services | $55,584 | ProgramServicesAmt |
| Management And General | $18,973 | ManagementAndGeneralAmt |
| Fundraising | $20,161 | FundraisingAmt |
Fees For Services Legal FeesForServicesLegalGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Total | $18,992 | TotalAmt |
| Program Services | $5,864 | ProgramServicesAmt |
| Management And General | $13,128 | ManagementAndGeneralAmt |
Fees For Services Accounting FeesForServicesAccountingGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Total | $28,862 | TotalAmt |
| Management And General | $28,862 | ManagementAndGeneralAmt |
Fees For Services Lobbying FeesForServicesLobbyingGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Total | $100,571 | TotalAmt |
| Program Services | $100,571 | ProgramServicesAmt |
Fees For Services Other FeesForServicesOtherGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Total | $239,238 | TotalAmt |
| Program Services | $177,886 | ProgramServicesAmt |
| Management And General | $12,421 | ManagementAndGeneralAmt |
| Fundraising | $48,931 | FundraisingAmt |
Office Expenses OfficeExpensesGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Total | $289,138 | TotalAmt |
| Program Services | $108,490 | ProgramServicesAmt |
| Management And General | $84,983 | ManagementAndGeneralAmt |
| Fundraising | $95,665 | FundraisingAmt |
Information Technology InformationTechnologyGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Total | $106,681 | TotalAmt |
| Program Services | $25,757 | ProgramServicesAmt |
| Management And General | $80,624 | ManagementAndGeneralAmt |
| Fundraising | $300 | FundraisingAmt |
Occupancy OccupancyGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Total | $86,687 | TotalAmt |
| Program Services | $539 | ProgramServicesAmt |
| Management And General | $85,808 | ManagementAndGeneralAmt |
| Fundraising | $340 | FundraisingAmt |
Travel TravelGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Total | $234,542 | TotalAmt |
| Program Services | $197,818 | ProgramServicesAmt |
| Management And General | $4,222 | ManagementAndGeneralAmt |
| Fundraising | $32,502 | FundraisingAmt |
Conferences Meetings ConferencesMeetingsGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Total | $191,443 | TotalAmt |
| Program Services | $159,308 | ProgramServicesAmt |
| Management And General | $26,972 | ManagementAndGeneralAmt |
| Fundraising | $5,163 | FundraisingAmt |
Depreciation Depletion DepreciationDepletionGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Total | $48,890 | TotalAmt |
| Program Services | $2,777 | ProgramServicesAmt |
| Management And General | $46,113 | ManagementAndGeneralAmt |
Insurance InsuranceGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Total | $7,175 | TotalAmt |
| Management And General | $7,175 | ManagementAndGeneralAmt |
Other Expenses OtherExpensesGrp (4 entries)
| DescDesc | TotalTotalAmt | Program ServicesProgramServicesAmt | Management And GeneralManagementAndGeneralAmt | FundraisingFundraisingAmt |
|---|---|---|---|---|
| naTURAL HISTORY DATABAS | $467,608 | $467,608 | ||
| CLINICAL RESEARCH NETWO | $25,568 | $25,568 | ||
| DUES, FEES & SUBSCRIPTI | $24,864 | $1,699 | $21,658 | $1,507 |
| OVERHEAD ALLOCATION | $0 | $193,757 | -$262,499 | $68,742 |
All Other Expenses AllOtherExpensesGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Total | $7,172 | TotalAmt |
| Program Services | $2,912 | ProgramServicesAmt |
| Management And General | $2,329 | ManagementAndGeneralAmt |
| Fundraising | $1,931 | FundraisingAmt |
Total Functional Expenses TotalFunctionalExpensesGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Total | $3,910,590 | TotalAmt |
| Program Services | $2,845,924 | ProgramServicesAmt |
| Management And General | $476,723 | ManagementAndGeneralAmt |
| Fundraising | $587,943 | FundraisingAmt |
| Field | Value | IRS element (for citing) |
|---|---|---|
| Joint Costs | Yes (X) | JointCostsInd |
Total Joint Costs TotalJointCostsGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Total | $93,520 | TotalAmt |
| Program Services | $46,760 | ProgramServicesAmt |
| Management And General | $0 | ManagementAndGeneralAmt |
| Fundraising | $46,760 | FundraisingAmt |
Cash Non Interest Bearing CashNonInterestBearingGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| BOY | $2,333,085 | BOYAmt |
| EOY | $2,873,836 | EOYAmt |
Savings And Temp Cash Invst SavingsAndTempCashInvstGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| BOY | $590,177 | BOYAmt |
| EOY | $499,163 | EOYAmt |
Pledges And Grants Receivable PledgesAndGrantsReceivableGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| BOY | $417,226 | BOYAmt |
| EOY | $316,197 | EOYAmt |
Accounts Receivable AccountsReceivableGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| BOY | $274,463 | BOYAmt |
| EOY | $2,450 | EOYAmt |
Prepaid Expenses Defrd Charges PrepaidExpensesDefrdChargesGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| BOY | $75,260 | BOYAmt |
| EOY | $107,800 | EOYAmt |
| Field | Value | IRS element (for citing) |
|---|---|---|
| Land Bldg Equip Cost Or Other Bss | $288,659 | LandBldgEquipCostOrOtherBssAmt |
| Land Bldg Equip Accum Deprec | $142,222 | LandBldgEquipAccumDeprecAmt |
Land Bldg Equip Basis Net LandBldgEquipBasisNetGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| BOY | $185,887 | BOYAmt |
| EOY | $146,437 | EOYAmt |
Other Assets Total OtherAssetsTotalGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| BOY | $5,057,341 | BOYAmt |
| EOY | $4,761,964 | EOYAmt |
Total Assets TotalAssetsGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| BOY | $8,933,439 | BOYAmt |
| EOY | $8,707,847 | EOYAmt |
Accounts Payable Accr Expnss AccountsPayableAccrExpnssGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| BOY | $299,920 | BOYAmt |
| EOY | $270,808 | EOYAmt |
Deferred Revenue DeferredRevenueGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| BOY | $12,973 | BOYAmt |
| EOY | $16,428 | EOYAmt |
Total Liabilities TotalLiabilitiesGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| BOY | $312,893 | BOYAmt |
| EOY | $287,236 | EOYAmt |
| Field | Value | IRS element (for citing) |
|---|---|---|
| Organization Follows SFAS117 | Yes (X) | OrganizationFollowsSFAS117Ind |
Unrestricted Net Assets UnrestrictedNetAssetsGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| BOY | $6,117,155 | BOYAmt |
| EOY | $5,643,768 | EOYAmt |
Temporarily Rstr Net Assets TemporarilyRstrNetAssetsGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| BOY | $1,623,947 | BOYAmt |
| EOY | $1,897,399 | EOYAmt |
Permanently Rstr Net Assets PermanentlyRstrNetAssetsGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| BOY | $879,444 | BOYAmt |
| EOY | $879,444 | EOYAmt |
Total Net Assets Fund Balance TotalNetAssetsFundBalanceGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| BOY | $8,620,546 | BOYAmt |
| EOY | $8,420,611 | EOYAmt |
Tot Liab Net Assets Fund Balance TotLiabNetAssetsFundBalanceGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| BOY | $8,933,439 | BOYAmt |
| EOY | $8,707,847 | EOYAmt |
| Field | Value | IRS element (for citing) |
|---|---|---|
| Info In Schedule O Part XI | Yes (X) | InfoInScheduleOPartXIInd |
| Reconcilation Revenue Expnss | $97,846 | ReconcilationRevenueExpnssAmt |
| Other Changes In Net Assets | -$297,781 | OtherChangesInNetAssetsAmt |
| Info In Schedule O Part XII | Yes (X) | InfoInScheduleOPartXIIInd |
| Method Of Accounting Accrual | Yes (X) | MethodOfAccountingAccrualInd |
| Accountant Compile Or Review | 0 | AccountantCompileOrReviewInd |
| FS Audited | Yes (1) | FSAuditedInd |
FS Audited Basis FSAuditedBasisGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Consolidated Basis Fincl Stmt | Yes (X) | ConsolidatedBasisFinclStmtInd |
| Field | Value | IRS element (for citing) |
|---|---|---|
| Audit Committee | Yes (1) | AuditCommitteeInd |
| Federal Grant Audit Required | 0 | FederalGrantAuditRequiredInd |
Schedule A IRS990ScheduleA
| Field | Value | IRS element (for citing) |
|---|---|---|
| Public Organization170 | Yes (X) | PublicOrganization170Ind |
Gifts Grants Contri Rcvd170 GiftsGrantsContriRcvd170Grp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Current Tax Year Minus4 Years | $3,812,563 | CurrentTaxYearMinus4YearsAmt |
| Current Tax Year Minus3 Years | $3,199,643 | CurrentTaxYearMinus3YearsAmt |
| Current Tax Year Minus2 Years | $3,239,048 | CurrentTaxYearMinus2YearsAmt |
| Current Tax Year Minus1 Year | $3,124,386 | CurrentTaxYearMinus1YearAmt |
| Current Tax Year | $3,514,873 | CurrentTaxYearAmt |
| Total | $16,890,513 | TotalAmt |
Total Calendar Year170 TotalCalendarYear170Grp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Current Tax Year Minus4 Years | $3,812,563 | CurrentTaxYearMinus4YearsAmt |
| Current Tax Year Minus3 Years | $3,199,643 | CurrentTaxYearMinus3YearsAmt |
| Current Tax Year Minus2 Years | $3,239,048 | CurrentTaxYearMinus2YearsAmt |
| Current Tax Year Minus1 Year | $3,124,386 | CurrentTaxYearMinus1YearAmt |
| Current Tax Year | $3,514,873 | CurrentTaxYearAmt |
| Total | $16,890,513 | TotalAmt |
| Field | Value | IRS element (for citing) |
|---|---|---|
| Substantial Contributors Tot | $2,428,340 | SubstantialContributorsTotAmt |
| Public Support Total170 | $14,462,173 | PublicSupportTotal170Amt |
Gross Investment Income170 GrossInvestmentIncome170Grp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Current Tax Year Minus4 Years | $9,722 | CurrentTaxYearMinus4YearsAmt |
| Current Tax Year Minus3 Years | $9,794 | CurrentTaxYearMinus3YearsAmt |
| Current Tax Year Minus2 Years | $13,335 | CurrentTaxYearMinus2YearsAmt |
| Current Tax Year Minus1 Year | $13,455 | CurrentTaxYearMinus1YearAmt |
| Current Tax Year | $16,038 | CurrentTaxYearAmt |
| Total | $62,344 | TotalAmt |
Other Income170 OtherIncome170Grp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Current Tax Year Minus4 Years | $13,037 | CurrentTaxYearMinus4YearsAmt |
| Current Tax Year Minus3 Years | $23,048 | CurrentTaxYearMinus3YearsAmt |
| Current Tax Year Minus2 Years | $5,984 | CurrentTaxYearMinus2YearsAmt |
| Current Tax Year Minus1 Year | $9,351 | CurrentTaxYearMinus1YearAmt |
| Current Tax Year | $1,401 | CurrentTaxYearAmt |
| Total | $52,821 | TotalAmt |
| Field | Value | IRS element (for citing) |
|---|---|---|
| Total Support | $17,005,678 | TotalSupportAmt |
| Gross Receipts Rltd Activities | $3,167,937 | GrossReceiptsRltdActivitiesAmt |
| Public Support CY170 | 0.85040 | PublicSupportCY170Pct |
| Public Support PY170 | 0.87500 | PublicSupportPY170Pct |
| Thirty Thr Pct Suprt Tests CY170 | Yes (X) | ThirtyThrPctSuprtTestsCY170Ind |
Form990 Schedule A Part VI Form990ScheduleAPartVIGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Form And Line Reference | Schedule A, Part II, Line 10, Explanation of Other Income: | FormAndLineReferenceDesc |
| Explanation | INCOME FROM OTHER PROGRAM RELATED ACTIVITIES - 2011 Amount: $ 13,037. 2012 Amount: $ 23,048. 2013 Amount: $ 5,984. 2014 Amount: $ 9,351. 2015 Amount: $ 1,401. | ExplanationTxt |
Schedule B IRS990ScheduleB
Contributor Information ContributorInformationGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Contributor | RESTRICTED | ContributorNum |
Contributor Business Name ContributorBusinessName
| Field | Value | IRS element (for citing) |
|---|---|---|
| Business Name Line1 | RESTRICTED | BusinessNameLine1 |
Contributor US Address ContributorUSAddress
| Field | Value | IRS element (for citing) |
|---|---|---|
| Address Line1 | RESTRICTED | AddressLine1 |
| Address Line2 | RESTRICTED | AddressLine2 |
| City | RESTRICTED | City |
| State | RESTRICTED | State |
| ZIP Code | RESTRICTED | ZIPCode |
| Field | Value | IRS element (for citing) |
|---|---|---|
| Total Contributions | RESTRICTED | TotalContributionsAmt |
Schedule C IRS990ScheduleC
Total Grassroots Lobbying TotalGrassrootsLobbyingGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Filing Organizations Total | $5,047 | FilingOrganizationsTotalAmt |
Total Direct Lobbying TotalDirectLobbyingGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Filing Organizations Total | $121,394 | FilingOrganizationsTotalAmt |
Total Lobbying Expend TotalLobbyingExpendGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Filing Organizations Total | $126,441 | FilingOrganizationsTotalAmt |
Other Exempt Purpose Expend OtherExemptPurposeExpendGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Filing Organizations Total | $4,167,932 | FilingOrganizationsTotalAmt |
Total Exempt Purpose Expend TotalExemptPurposeExpendGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Filing Organizations Total | $4,294,373 | FilingOrganizationsTotalAmt |
Lobbying Nontaxable Amount LobbyingNontaxableAmountGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Filing Organizations Total | $364,719 | FilingOrganizationsTotalAmt |
Grassroots Nontaxable GrassrootsNontaxableGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Filing Organizations Total | $91,180 | FilingOrganizationsTotalAmt |
Tot Lbbyng Grassroot Mns Non Tx TotLbbyngGrassrootMnsNonTxGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Filing Organizations Total | $0 | FilingOrganizationsTotalAmt |
Tot Lbby Expend Mns Lbbyng Non Tx TotLbbyExpendMnsLbbyngNonTxGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Filing Organizations Total | $0 | FilingOrganizationsTotalAmt |
Avg Lobbying Nontaxable Amount AvgLobbyingNontaxableAmountGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Current Year Minus3 | $323,610 | CurrentYearMinus3Amt |
| Current Year Minus2 | $354,161 | CurrentYearMinus2Amt |
| Current Year Minus1 | $362,797 | CurrentYearMinus1Amt |
| Current Year | $364,719 | CurrentYearAmt |
| Total | $1,405,287 | TotalAmt |
| Field | Value | IRS element (for citing) |
|---|---|---|
| Lobbying Ceiling | $2,107,931 | LobbyingCeilingAmt |
Avg Total Lobbying Expend AvgTotalLobbyingExpendGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Current Year Minus3 | $141,410 | CurrentYearMinus3Amt |
| Current Year Minus2 | $142,520 | CurrentYearMinus2Amt |
| Current Year Minus1 | $178,975 | CurrentYearMinus1Amt |
| Current Year | $126,441 | CurrentYearAmt |
| Total | $589,346 | TotalAmt |
Avg Grassroots Nontaxable AvgGrassrootsNontaxableGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Current Year Minus3 | $80,903 | CurrentYearMinus3Amt |
| Current Year Minus2 | $88,540 | CurrentYearMinus2Amt |
| Current Year Minus1 | $90,699 | CurrentYearMinus1Amt |
| Current Year | $91,180 | CurrentYearAmt |
| Total | $351,322 | TotalAmt |
| Field | Value | IRS element (for citing) |
|---|---|---|
| Grassroots Ceiling | $526,983 | GrassrootsCeilingAmt |
Avg Grassroots Lobbying Expend AvgGrassrootsLobbyingExpendGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Current Year Minus3 | $16,179 | CurrentYearMinus3Amt |
| Current Year Minus2 | $919 | CurrentYearMinus2Amt |
| Current Year Minus1 | $905 | CurrentYearMinus1Amt |
| Current Year | $5,047 | CurrentYearAmt |
| Total | $23,050 | TotalAmt |
Schedule D IRS990ScheduleD
CY Endwmt Fund CYEndwmtFundGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Beginning Year Balance | $5,061,299 | BeginningYearBalanceAmt |
| Contributions | $29,940 | ContributionsAmt |
| Investment Earnings Or Losses | -$93,294 | InvestmentEarningsOrLossesAmt |
| Other Expenditures | $202,000 | OtherExpendituresAmt |
| Administrative Expenses | $32,428 | AdministrativeExpensesAmt |
| End Year Balance | $4,763,517 | EndYearBalanceAmt |
CY Minus1 Yr Endwmt Fund CYMinus1YrEndwmtFundGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Beginning Year Balance | $4,994,766 | BeginningYearBalanceAmt |
| Contributions | $47,153 | ContributionsAmt |
| Investment Earnings Or Losses | $179,553 | InvestmentEarningsOrLossesAmt |
| Other Expenditures | $97,500 | OtherExpendituresAmt |
| Administrative Expenses | $62,673 | AdministrativeExpensesAmt |
| End Year Balance | $5,061,299 | EndYearBalanceAmt |
CY Minus2 Yr Endwmt Fund CYMinus2YrEndwmtFundGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Beginning Year Balance | $4,457,365 | BeginningYearBalanceAmt |
| Contributions | $42,690 | ContributionsAmt |
| Investment Earnings Or Losses | $718,381 | InvestmentEarningsOrLossesAmt |
| Other Expenditures | $197,200 | OtherExpendituresAmt |
| Administrative Expenses | $26,470 | AdministrativeExpensesAmt |
| End Year Balance | $4,994,766 | EndYearBalanceAmt |
CY Minus3 Yr Endwmt Fund CYMinus3YrEndwmtFundGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Beginning Year Balance | $4,221,150 | BeginningYearBalanceAmt |
| Contributions | $43,996 | ContributionsAmt |
| Investment Earnings Or Losses | $420,983 | InvestmentEarningsOrLossesAmt |
| Other Expenditures | $202,000 | OtherExpendituresAmt |
| Administrative Expenses | $26,764 | AdministrativeExpensesAmt |
| End Year Balance | $4,457,365 | EndYearBalanceAmt |
CY Minus4 Yr Endwmt Fund CYMinus4YrEndwmtFundGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Beginning Year Balance | $4,443,045 | BeginningYearBalanceAmt |
| Contributions | $29,825 | ContributionsAmt |
| Investment Earnings Or Losses | -$47,583 | InvestmentEarningsOrLossesAmt |
| Other Expenditures | $175,000 | OtherExpendituresAmt |
| Administrative Expenses | $29,137 | AdministrativeExpensesAmt |
| End Year Balance | $4,221,150 | EndYearBalanceAmt |
| Field | Value | IRS element (for citing) |
|---|---|---|
| Board Designated Balance EOY | 0.81160 | BoardDesignatedBalanceEOYPct |
| Prmnnt Endowment Balance EOY | 0.18460 | PrmnntEndowmentBalanceEOYPct |
| Term Endowment Balance EOY | 0.00380 | TermEndowmentBalanceEOYPct |
| Endowments Held Unrelated Org | 0 | EndowmentsHeldUnrelatedOrgInd |
| Endowments Held Related Org | Yes (1) | EndowmentsHeldRelatedOrgInd |
| Related Org List Sch R | Yes (1) | RelatedOrgListSchRInd |
Leasehold Improvements LeaseholdImprovementsGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Other Cost Or Other Basis | $156,545 | OtherCostOrOtherBasisAmt |
| Depreciation | $61,945 | DepreciationAmt |
| Book Value | $94,600 | BookValueAmt |
Equipment EquipmentGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Other Cost Or Other Basis | $14,829 | OtherCostOrOtherBasisAmt |
| Depreciation | $12,429 | DepreciationAmt |
| Book Value | $2,400 | BookValueAmt |
Other Land Buildings OtherLandBuildingsGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Other Cost Or Other Basis | $117,285 | OtherCostOrOtherBasisAmt |
| Depreciation | $67,848 | DepreciationAmt |
| Book Value | $49,437 | BookValueAmt |
| Field | Value | IRS element (for citing) |
|---|---|---|
| Total Book Value Land Buildings | $146,437 | TotalBookValueLandBuildingsAmt |
Other Assets Org OtherAssetsOrgGrp (2 entries)
| DescDesc | Book ValueBookValueAmt |
|---|---|
| INTEREST IN NET ASSETS OF AFFILIATE | $4,763,518 |
| DUE FROM AFFILIATE | -$1,554 |
| Field | Value | IRS element (for citing) |
|---|---|---|
| Total Book Value Other Assets | $4,761,964 | TotalBookValueOtherAssetsAmt |
| Total Rev Etc Audited Fincl Stmt | $3,714,202 | TotalRevEtcAuditedFinclStmtAmt |
| Donated Services And Use Fclts | $3,547 | DonatedServicesAndUseFcltsAmt |
| Other Revenue | -$297,781 | OtherRevenueAmt |
| Revenue Not Reported | -$294,234 | RevenueNotReportedAmt |
| Revenue Subtotal | $4,008,436 | RevenueSubtotalAmt |
| Revenue Not Reported Fincl Stmt | $0 | RevenueNotReportedFinclStmtAmt |
| Total Revenue Per Form990 | $4,008,436 | TotalRevenuePerForm990Amt |
| Tot Expns Etc Audited Fincl Stmt | $3,914,137 | TotExpnsEtcAuditedFinclStmtAmt |
| Donated Services Use Fclts | $3,547 | DonatedServicesUseFcltsAmt |
| Expenses Not Reported | $3,547 | ExpensesNotReportedAmt |
| Expenses Subtotal | $3,910,590 | ExpensesSubtotalAmt |
| Expenses Not Rpt Fincl Stmt | $0 | ExpensesNotRptFinclStmtAmt |
| Total Expenses Per Form990 | $3,910,590 | TotalExpensesPerForm990Amt |
Supplemental Information Detail SupplementalInformationDetail (2 entries)
| Form And Line ReferenceFormAndLineReferenceDesc | ExplanationExplanationTxt |
|---|---|
| Part V, Line 4: | THE ALLIANCE'S ENDOWMENTS CONSIST OF Two FUNDS ESTABLISHED FOR DIFFERENT PURPOSES. THE ALLIANCE'S ENDOWMENT INCLUDE One TRADITIONAL DONOR-RESTRICTED ENDOWMENT FUNDS AND ONE BOARD-DESIGNATED ENDOWMENT FUND. THE BOARD-DESIGNATED ENDOWMENT FUND SOLELY CONSISTS OF THE ENDOWMENT FUND'S UNRESTRICTED NET ASSET BALANCE. |
| Part XI, Line 2d - Other Adjustments: | CHANGE IN INTEREST IN AFFILIATE -297,781. |
Schedule F IRS990ScheduleF
| Field | Value | IRS element (for citing) |
|---|---|---|
| Grant Records Maintained | Yes (1) | GrantRecordsMaintainedInd |
Account Activities Outside US AccountActivitiesOutsideUSGrp (2 entries)
| RegionRegionTxt | OfficesOfficesCnt | EmployeeEmployeeCnt | Type Of Activities ConductedTypeOfActivitiesConductedTxt | Specific Services ProvidedSpecificServicesProvidedTxt | Region Total ExpendituresRegionTotalExpendituresAmt |
|---|---|---|---|---|---|
| Europe | 0 | 0 | GRANTS TO RECIPIENTS | RESEARCH AWARDS | $79,779 |
| Australia | 0 | 0 | GRANTS TO RECIPIENTS | Grant to Tuberous Sclerosis Australia | $2,500 |
| Field | Value | IRS element (for citing) |
|---|---|---|
| Subtotal Offices | 0 | SubtotalOfficesCnt |
| Subtotal Employees | 0 | SubtotalEmployeesCnt |
| Continutation Total Office | 0 | ContinutationTotalOfficeCnt |
| Continutation Total Employee | 0 | ContinutationTotalEmployeeCnt |
| Total Office | 0 | TotalOfficeCnt |
| Total Employee | 0 | TotalEmployeeCnt |
| Subtotal Spent | $82,279 | SubtotalSpentAmt |
| Continuation Spent | $0 | ContinuationSpentAmt |
| Total Spent | $82,279 | TotalSpentAmt |
Grants To Org Outside US GrantsToOrgOutsideUSGrp (2 entries)
| RegionRegionTxt | Purpose Of GrantPurposeOfGrantTxt | Cash GrantCashGrantAmt | Manner Of Cash DisbursementMannerOfCashDisbursementTxt | Valuation Method UsedValuationMethodUsedDesc |
|---|---|---|---|---|
| europe | research grant | $29,779 | check | cash |
| EUrope | research grant | $50,000 | CHECk | CASH |
| Field | Value | IRS element (for citing) |
|---|---|---|
| Total501c3 Org | 0 | Total501c3OrgCnt |
| Total Other Org | 2 | TotalOtherOrgCnt |
| Transfer To Foreign Corp | 0 | TransferToForeignCorpInd |
| Interest In Foreign Trust | 0 | InterestInForeignTrustInd |
| Foreign Corp Ownership | 0 | ForeignCorpOwnershipInd |
| Passive Foreign Investmest Co | 0 | PassiveForeignInvestmestCoInd |
| Foreign Partnership | 0 | ForeignPartnershipInd |
| Boycott Countries | 0 | BoycottCountriesInd |
Supplemental Information Detail SupplementalInformationDetail
| Field | Value | IRS element (for citing) |
|---|---|---|
| Form And Line Reference | Part I, Line 2: | FormAndLineReferenceDesc |
| Explanation | Grantee organizations are expected to file annual progress reports to outlined grant goals and milestones. These reports are reviewed by a committee of peers. This committee makes determinations based on quality of work to goals if the grantee organization will continue to receive funding. A final written and financial report is required of all grantees. | ExplanationTxt |
Schedule G IRS990ScheduleG
Fundraising Event Information FundraisingEventInformationGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Event1 | walks | Event1Nm |
| Gross Receipts Event1 | $1,095,551 | GrossReceiptsEvent1Amt |
| Charitable Contri Event1 | $993,051 | CharitableContriEvent1Amt |
| Gross Revenue Event1 | $102,500 | GrossRevenueEvent1Amt |
| Other Direct Expenses Event1 | $57,705 | OtherDirectExpensesEvent1Amt |
| Event2 | COMEDY FOR A CURE | Event2Nm |
| Gross Receipts Event2 | $182,813 | GrossReceiptsEvent2Amt |
| Charitable Contri Event2 | $169,383 | CharitableContriEvent2Amt |
| Gross Revenue Event2 | $13,430 | GrossRevenueEvent2Amt |
| Other Direct Expenses Event2 | $37,572 | OtherDirectExpensesEvent2Amt |
| Other Events Total | 11 | OtherEventsTotalCnt |
| Gross Receipts Other Events | $287,248 | GrossReceiptsOtherEventsAmt |
| Charitable Contri Other Events | $272,610 | CharitableContriOtherEventsAmt |
| Gross Revenue Other Events | $14,638 | GrossRevenueOtherEventsAmt |
| Oth Direct Expnss Other Events | $35,624 | OthDirectExpnssOtherEventsAmt |
| Gross Receipts Total | $1,565,612 | GrossReceiptsTotalAmt |
| Charitable Contributions Tot | $1,435,044 | CharitableContributionsTotAmt |
| Gross Revenue Total Events | $130,568 | GrossRevenueTotalEventsAmt |
| Oth Direct Expnss Total Events | $130,901 | OthDirectExpnssTotalEventsAmt |
| Direct Expense Summary Events | $130,901 | DirectExpenseSummaryEventsAmt |
| Net Income Summary | -$333 | NetIncomeSummaryAmt |
Schedule I IRS990ScheduleI
| Field | Value | IRS element (for citing) |
|---|---|---|
| Grant Records Maintained | Yes (1) | GrantRecordsMaintainedInd |
Recipient Table RecipientTable (8 entries)
| Address Line1USAddress/AddressLine1Txt | CityUSAddress/CityNm | State AbbreviationUSAddress/StateAbbreviationCd | ZIPUSAddress/ZIPCd | Recipient EINRecipientEIN | IRC SectionIRCSectionDesc | Cash GrantCashGrantAmt | Purpose Of GrantPurposeOfGrantTxt | Address Line2USAddress/AddressLine2Txt |
|---|---|---|---|---|---|---|---|---|
| Brigham & Women's Hospital | ||||||||
| 75 St Francis Street | Boston | MA | 02115 | 042312909 | 501 (c )(3) | $72,484 | RESEARCH GRANT | |
| Vanderbilt University | ||||||||
| Financial MgmtDept 1236 PO Box | Dallas | TX | 753121236 | 620476822 | 501 (c )(3) | $49,317 | RESEARCH GRANT | 121236 |
| Cornell University | ||||||||
| Weil Medical Col 575 Lexington Ave | New York | NY | 10022 | 131623978 | 501 (c )(3) | $42,000 | RESEARCH GRANT | 9th Fl |
| Yale University | ||||||||
| Grant Contract Admin PO Box 1873 | New Haven | CT | 065081873 | 060646973 | 501 (c )(3) | $75,000 | RESEARCH GRANT | |
| Harvard University School of Public Health | ||||||||
| Pres Fellows of Harvard Col PO Box | Boston | MA | 022415649 | 042103580 | 501 (c )(3) | $75,000 | RESEARCH GRANT | 415649 |
| Children's Hospital Los Angeles | ||||||||
| 4650 Sunset Blvd Mail Stop 97 | Los Angeles | CA | 900275649 | 956121916 | 501 (c )(3) | $75,000 | RESEARCH GRANT | |
| Harvard T H Chan School of Public Health | ||||||||
| Pres Fellows of Harvard Col PO Box | Boston | MA | 022415649 | 042103580 | 501 (c )(3) | $50,000 | RESEARCH GRANT | 415649 |
| Boston Children's Hospital | ||||||||
| Research Finance PO Box 414413 | Boston | MA | 022414413 | 042774441 | 501 (c )(3) | $18,750 | RESEARCH GRANT | |
| Field | Value | IRS element (for citing) |
|---|---|---|
| Total501c3 Org | 8 | Total501c3OrgCnt |
| Total Other Org | 0 | TotalOtherOrgCnt |
Supplemental Information Detail SupplementalInformationDetail (2 entries)
| Form And Line ReferenceFormAndLineReferenceDesc | ExplanationExplanationTxt |
|---|---|
| Part I, Line 2: | THE TS ALLIANCE HAS FUNDED MORE THAN $18.8 MILLION IN RESEARCH ON TSC SINCE 1984. DIRECTED BY STEVEN L. ROBERDS, PH.D, CHIEF SCIENTIFIC OFFICER, THE TS ALLIANCE RESEARCH GRANTS PROGRAM FUNDS RESEARCH FOCUSED ON TSC WITH PRIORITIES SET BY THE RESEARCHERS TOGETHER WITH THE TS ALLIANCE. COLLABORATIONS BETWEEN BASIC AND CLINICAL RESEARCHERS ARE ENCOURAGED AND FOSTERED, AND THE TS ALLIANCE IS WORKING TO INCREASE FUNDING FOR RESEARCH ON TSC. THROUGH THE TS ALLIANCE RESEARCH GRANTS PROGRAM, APPLICATIONS CAN BE SUBMITTED FOR: - POSTDOCTORAL & CLINICAL FELLOWSHIPS - TSC SUPPLEMENTAL FUNDING AWARDS - ROTHBERG COURAGE AWARD - DRUG SCREENING AWARD - CLINICAL RESEARCH NETWORK |
| FORM 990, SCHEDULE I, LINE 2: | GRANTS ARE REVIEWED IN A THREE-STEP PROCESS: - A GRANT REVIEW COMMITTEE COMPOSED OF INDIVIDUALS KNOWLEDGEABLE ABOUT THE CLINICAL AND BASIC COMPONENTS OF TSC, REVIEW ALL GRANT APPLICATIONS FOR SCIENTIFIC MERIT, RELEVANCY TO THE FUNDING PRIORITIES OF THE ORGANIZATION AND WITH A FOCUS ON UNDERSTANDING THE MECHANISMS OF TSC AND/OR THE DEVELOPMENT OF TREATMENTS AND THERAPIES FOR THE MANIFESTATIONS OF THE DISEASE. - THE SCIENCE AND MEDICAL COMMITTEE OF THE BOARD OF DIRECTORS THEN REVIEWS THE RECOMMENDATIONS TO THE BOARD OF DIRECTORS. - THE BOARD OF DIRECTORS THEN REVIEWS THE RECOMMENDATIONS OF THE SCIENCE AND MEDICAL COMMITTEE AND MAKES FINAL APPROVAL FOR THE FUNDING OF GRANT APPLICATIONS. |
Schedule J IRS990ScheduleJ
| Field | Value | IRS element (for citing) |
|---|---|---|
| Compensation Committee | Yes (X) | CompensationCommitteeInd |
| Form990 Of Other Organizations | Yes (X) | Form990OfOtherOrganizationsInd |
| Written Employment Contract | Yes (X) | WrittenEmploymentContractInd |
| Compensation Survey | Yes (X) | CompensationSurveyInd |
| Board Or Committee Approval | Yes (X) | BoardOrCommitteeApprovalInd |
| Severance Payment | 0 | SeverancePaymentInd |
| Supplemental Nonqual Rtr Plan | 0 | SupplementalNonqualRtrPlanInd |
| Equity Based Comp Arrngm | 0 | EquityBasedCompArrngmInd |
| Comp Based On Revenue Of Flng Org | Yes (1) | CompBasedOnRevenueOfFlngOrgInd |
| Comp Bsd On Rev Related Orgs | 0 | CompBsdOnRevRelatedOrgsInd |
| Comp Bsd Net Earns Flng Org | Yes (1) | CompBsdNetEarnsFlngOrgInd |
| Comp Bsd Net Earns Rltd Orgs | 0 | CompBsdNetEarnsRltdOrgsInd |
| Any Non Fixed Payments | 0 | AnyNonFixedPaymentsInd |
| Initial Contract Exception | 0 | InitialContractExceptionInd |
Rltd Org Officer Trst Key Empl RltdOrgOfficerTrstKeyEmplGrp (2 entries)
| TitleTitleTxt | Base Compensation Filing OrgBaseCompensationFilingOrgAmt | Compensation Based On Rltd OrgsCompensationBasedOnRltdOrgsAmt | Bonus Filing OrganizationBonusFilingOrganizationAmount | Bonus Related OrganizationsBonusRelatedOrganizationsAmt | Other Compensation Filing OrgOtherCompensationFilingOrgAmt | Other Compensation Rltd OrgsOtherCompensationRltdOrgsAmt | Deferred Compensation Flng OrgDeferredCompensationFlngOrgAmt | Deferred Comp Rltd OrgsDeferredCompRltdOrgsAmt | Nontaxable Benefits Filing OrgNontaxableBenefitsFilingOrgAmt | Nontaxable Benefits Rltd OrgsNontaxableBenefitsRltdOrgsAmt | Total Compensation Filing OrgTotalCompensationFilingOrgAmt | Total Compensation Rltd OrgsTotalCompensationRltdOrgsAmt | Comp Report Prior990 Filing OrgCompReportPrior990FilingOrgAmt | Comp Report Prior990 Rltd OrgsCompReportPrior990RltdOrgsAmt |
|---|---|---|---|---|---|---|---|---|---|---|---|---|---|---|
| KARI L ROSBECK | ||||||||||||||
| PRESIDENT & CEO | $153,756 | $3,138 | $11,159 | $228 | $0 | $0 | $5,117 | $104 | $22,464 | $458 | $192,496 | $3,928 | $0 | $0 |
| STEVEN L ROBERDS | ||||||||||||||
| CHIEF SCIENTIFIC OFFICER | $170,320 | $0 | $12,534 | $0 | $0 | $0 | $5,676 | $0 | $25,114 | $0 | $213,644 | $0 | $0 | $0 |
Supplemental Information Detail SupplementalInformationDetail (3 entries)
| Form And Line ReferenceFormAndLineReferenceDesc | ExplanationExplanationTxt |
|---|---|
| Part I, Line 5 | KARI LUTHER ROSBECK, RICHARD GOLLUB, MARY JANE PERRAUT, AND STEVE ROBERDS ALL HAVE INCENTIVE COMPENSATION EQUAL TO A PERCENTAGE OF THEIR SALARIES BASED ON KEY PERFORMANCE OBJECTIVES AS ESTABLISHED BY THE COMPENSATION COMMITTEE. |
| Part I, Line 6 | KARI LUTHER ROSBECK, RICHARD GOLLUB, MARY JANE PERRAUT, AND STEVE ROBERDS ALL HAVE INCENTIVE COMPENSATION EQUAL TO A PERCENTAGE OF THEIR SALARIES BASED ON KEY PERFORMANCE OBJECTIVES AS ESTABLISHED BY THE COMPENSATION COMMITTEE. |
| FORM 990, SCHEDULE J: | KARI LUTHER ROSBECK, RICHARD GOLLUB, AND MARY JANE PERRAUT ARE EMPLOYEES OF TUBEROUS SCLEROSIS ALLIANCE AND ARE COMPENSATED THROUGH TS ALLIANCE. THESE INDIVIDUALS SERVE THE ENDOWMENT WITHOUT COMPENSATION. |
Schedule M IRS990ScheduleM
Securities Publicly Traded SecuritiesPubliclyTradedGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Non Cash Checkbox | Yes (X) | NonCashCheckboxInd |
| Contribution | 10 | ContributionCnt |
| Noncash Contributions Rpt F990 | $64,784 | NoncashContributionsRptF990Amt |
| Method Of Determining Revenues | FMV | MethodOfDeterminingRevenuesTxt |
Other Non Cash Contri Table OtherNonCashContriTableGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Non Cash Checkbox | Yes (X) | NonCashCheckboxInd |
| Desc | FOOD, BEVERAGE, AND OTHER EVENT SUPPLIES | Desc |
| Contribution | 8 | ContributionCnt |
| Noncash Contributions Rpt F990 | $6,174 | NoncashContributionsRptF990Amt |
| Method Of Determining Revenues | FMV | MethodOfDeterminingRevenuesTxt |
| Field | Value | IRS element (for citing) |
|---|---|---|
| Any Property That Must Be Held | 0 | AnyPropertyThatMustBeHeldInd |
| Review Process Unusual NC Gifts | 0 | ReviewProcessUnusualNCGiftsInd |
| Third Parties Used | 0 | ThirdPartiesUsedInd |
Schedule O IRS990ScheduleO
Supplemental Information Detail SupplementalInformationDetail (10 entries)
| Form And Line ReferenceFormAndLineReferenceDesc | ExplanationExplanationTxt |
|---|---|
| Form 990, Part III, line 2 | The TS Alliance launched a new TSC Preclinical Consortium in 2015, which will enable prioritization of candidate treatments based on comparing head-to-head data using consistent animal models and rigorous testing procedures. |
| Form 990, Part VI, Section A, line 6 | Membership is available to any person who subscribes to the purposes and objectives of the corporation, without regard to race, religion, gender, sexual orientation, age, color, national origin or mental or physical handicap or disability. There shall be no limit to the number of members in the Corporation. 1) There may be one or more classes of membership as determined by the Board. 2) Membership is not transferable or assignable. |
| Form 990, Part VI, Section A, line 7a | The TS Alliance is a membership-based organization, which means members help elect the Board of Directors. The TS Alliance membership program in 2015 was composed of several levels from complimentary basic members to gold level at $1,000. |
| Form 990, Part VI, Section B, line 11 | THE FORM 990 IS REVIEWED, IN DETAIL, BY THE BOARD OF DIRECTORS AUDIT AND FINANCE COMMITTEES. RECOMMENDATIONS ARE MADE BY THE COMMITTEE MEMBERS FOR ANY CHANGES/EDITS/ADDITIONS. AFTER THOSE HAVE BEEN INCORPORATED BOTH COMMITTEES VOTE WHETHER TO APPROVE AND THEN FORWARD THE 990 TO THE EXECUTIVE COMMITTEE. THE EXECUTIVE COMMITTEE PERFORMS THE FINAL REVIEW AND THEN VOTES WHETHER TO APPROVE ON BEHALF OF THE BOARD OF DIRECTORS. A COPY OF THE APPROVED 990 IS SHARED WITH THE ENTIRE BOARD. |
| Form 990, Part VI, Section B, line 12c | Annually each member of the board of directors will receive notice of the organization's conflict of interest statement. Each member will be provided with a statement to make disclosure of any potential conflict of interest. If during the course of the year a potential conflict of interest arises that has not previously been disclosed, the board members will make written notice of a potential conflict of interest and recuse himself or herself from any discussions and votes in connection with the issue identified. Any time a member is recused from discussion on an issue, the minutes of committee meeting and board meeting will duly record such actions. The following potential conflicts of interest were disclosed for 2015: BOARD MEMBER BRENDAN MANNING, PH.D., IS EMPLOYED AT HARVARD COLLEGE, WHICH RECEIVED A $50,000 ROTHBERG COURAGE AWARD GRANT TO STUDY THE REPURPOSING OF CLINICALLY APPROVED IMMUNOSUPPRESSANTS AS A SAFE AND EFFECTIVE TREATMENT FOR TSC. BOARD MEMBER ELIZABETH THIELE, M.D., PH.D., IS EMPLOYED AT MASSACHUSETTS GENERAL HOSPITAL, WHICH RECEIVED $33,700 FOR HER WORK ON THE TSC NATURAL HISTORY DATABASE. |
| Form 990, Part VI, Section B, line 15 | The Compensation Committee reviews and approves the salaries of the President/CEO, Chief Scientific Officer, Controller & CFO, and any employee appearing on the Form 990, in accordance with the Tuberous Sclerosis Alliance Bylaws. Such review and approval occurs initially upon hiring, upon annual reviews and whenever modified. The Organization's executive remuneration has been structured to ensure that it: is reasonable; provides a competitive compensation program to retain, attract and reward key employees and achieves clear alignment between total remuneration and delivered business and personal performance over the short and long-terms. The compensation is reviewed by the Compensation Committee to ensure: - Comparability, - Proper review, and - Substantiation in setting the compensation. |
| Form 990, Part VI, Section C, line 19 | All governing documents, conflict of interest policy and financial statements are available upon written request. |
| Part IX | In 2015, the TS Alliance invested time and funds in the search for a new Controller and CFO. The board felt it was vital to make this investment for the continuity and success of organizational infrastructure. We also experienced the unplanned, sudden death of the Director of Special Events and Corporate Partnerships, leading to a nationwide search for a replacement. Simultaneously, the TS Alliance was building new research tools, the Biosample Repository and the Preclinical Consortium. Although the foundation of a very strong program was built for exponential growth in 2016, the Biosample Repository did not collect samples as quickly as planned and the Preclinical Consortium did not enter the testing phase that was anticipated in 2015. As a result of all of these circumstances, the expense ratios for administration and fundraising are heavier than planned at 27% and program expenses lower than planned at 73%. |
| Form 990, Part XI, line 9: | change in interest in affiliate -297,781. |
| FORM 990, PART XII, LINE 2C | THE AUDIT REVIEW PROCESS HAS REMAINED UNCHANGED FROM THE PRIOR YEAR. |
Schedule R IRS990ScheduleR
Id Related Tax Exempt Org IdRelatedTaxExemptOrgGrp
Disregarded Entity Name DisregardedEntityName
| Field | Value | IRS element (for citing) |
|---|---|---|
| Business Name Line1 | TUBEROUS SCLEROSIS ALLIANCE ENDOWMENT FUND | BusinessNameLine1Txt |
US Address USAddress
| Field | Value | IRS element (for citing) |
|---|---|---|
| Address Line1 | 801 ROEDER ROAD 750 | AddressLine1Txt |
| City | SILVER SPRING | CityNm |
| State Abbreviation | MD | StateAbbreviationCd |
| ZIP | 20910 | ZIPCd |
| Field | Value | IRS element (for citing) |
|---|---|---|
| EIN | 521926919 | EIN |
| Primary Activities | TO RECEIVE GIFTS THAT WILL BE INVESTED TO GENERATE INCOME FOR TSA | PrimaryActivitiesTxt |
| Legal Domicile State | MD | LegalDomicileStateCd |
| Exempt Code Section | 501(c)(3) | ExemptCodeSectionTxt |
| Public Charity Status | Line 11b, II | PublicCharityStatusTxt |
Direct Controlling Entity Name DirectControllingEntityName
| Field | Value | IRS element (for citing) |
|---|---|---|
| Business Name Line1 | National tuberous sclerosis association (TSA) | BusinessNameLine1Txt |
| Field | Value | IRS element (for citing) |
|---|---|---|
| Controlled Organization | 0 | ControlledOrganizationInd |
| Field | Value | IRS element (for citing) |
|---|---|---|
| Receipt Of Int Annts Rnts Rylts | 0 | ReceiptOfIntAnntsRntsRyltsInd |
| Gift Grnt Or Cap Contri To Oth Org | 0 | GiftGrntOrCapContriToOthOrgInd |
| Gift Grnt Cap Contri From Oth Org | Yes (1) | GiftGrntCapContriFromOthOrgInd |
| Loans Or Guarantees To Other Org | 0 | LoansOrGuaranteesToOtherOrgInd |
| Loans Or Guarantees From Oth Org | 0 | LoansOrGuaranteesFromOthOrgInd |
| Div Related Organization | 0 | DivRelatedOrganizationInd |
| Asset Sale To Other Org | 0 | AssetSaleToOtherOrgInd |
| Asset Purchase From Other Org | 0 | AssetPurchaseFromOtherOrgInd |
| Asset Exchange | 0 | AssetExchangeInd |
| Rental Of Facilities To Oth Org | 0 | RentalOfFacilitiesToOthOrgInd |
| Rental Of Fclts From Oth Org | 0 | RentalOfFcltsFromOthOrgInd |
| Perform Of Services For Oth Org | 0 | PerformOfServicesForOthOrgInd |
| Perform Of Services By Other Org | 0 | PerformOfServicesByOtherOrgInd |
| Sharing Of Facilities | Yes (1) | SharingOfFacilitiesInd |
| Paid Employees Sharing | Yes (1) | PaidEmployeesSharingInd |
| Reimbursement Paid To Other Org | 0 | ReimbursementPaidToOtherOrgInd |
| Reimbursement Paid By Other Org | 0 | ReimbursementPaidByOtherOrgInd |
| Transfer To Other Org | 0 | TransferToOtherOrgInd |
| Transfer From Other Org | 0 | TransferFromOtherOrgInd |
Transactions Related Org TransactionsRelatedOrgGrp
Other Organization Name OtherOrganizationName
| Field | Value | IRS element (for citing) |
|---|---|---|
| Business Name Line1 | tuberous sclerosis alliance endowment fund | BusinessNameLine1Txt |
| Field | Value | IRS element (for citing) |
|---|---|---|
| Transaction Type | C | TransactionTypeTxt |
| Involved | $202,000 | InvolvedAmt |
| Method Of Amount Determination | cash | MethodOfAmountDeterminationTxt |
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