NATIONAL TUBEROUS SCLEROSIS ASSOCIATION INC: Form 990, tax year 2017

View the entire original 990 at ProPublica ↗

Organization: NATIONAL TUBEROUS SCLEROSIS ASSOCIATION INC (EIN 95-3018799)
Tax period: 2017-01-01 to 2017-12-31
Filed: 2018-04-09
IRS object ID: 201800999349300410
Schema version: 2017v2.3
Source: Download XML · Original 990 at ProPublica

Every field in the e-filed return. Faint text is the IRS element name, for citing.

Return header
Form 990
Schedule A
Schedule B
Schedule C
Schedule D
Schedule F
Schedule G
Schedule I
Schedule J
Schedule M
Schedule O
Schedule R

Return header ReturnHeader

Field	Value	IRS element (for citing)
Return	2018-04-09T10:27:59-05:00	ReturnTs
Tax Period End	2017-12-31	TaxPeriodEndDt

Preparer Firm PreparerFirmGrp

Preparer Firm Name PreparerFirmName

Field	Value	IRS element (for citing)
Business Name Line1	WITHUMSMITHBROWNPC	BusinessNameLine1Txt

Preparer US Address PreparerUSAddress

Field	Value	IRS element (for citing)
Address Line1	4600 EAST WEST HWY 900	AddressLine1Txt
City	BETHESDA	CityNm
State Abbreviation	MD	StateAbbreviationCd
ZIP	208143423	ZIPCd

Field	Value	IRS element (for citing)
Return Type	990	ReturnTypeCd
Tax Period Begin	2017-01-01	TaxPeriodBeginDt

Filer Filer

Field	Value	IRS element (for citing)
EIN	953018799	EIN

Business Name BusinessName

Field	Value	IRS element (for citing)
Business Name Line1	NATIONAL TUBEROUS SCLEROSIS ASSOCIATION	BusinessNameLine1Txt
Business Name Line2	INC	BusinessNameLine2Txt

Field	Value	IRS element (for citing)
In Care Of	% THE ORGANIZATION	InCareOfNm
Business Name Control	NATI	BusinessNameControlTxt
Phone	3015629890	PhoneNum

US Address USAddress

Field	Value	IRS element (for citing)
Address Line1	801 ROEDER ROAD Suite 750	AddressLine1Txt
City	SILVER SPRING	CityNm
State Abbreviation	MD	StateAbbreviationCd
ZIP	20910	ZIPCd

Business Officer BusinessOfficerGrp

Field	Value	IRS element (for citing)
Person	KARI L ROSBECK	PersonNm
Person Title	PRESIDENT AND CEO	PersonTitleTxt
Phone	3015629890	PhoneNum
Signature	2018-04-04	SignatureDt
Discuss With Paid Preparer	Yes (true)	DiscussWithPaidPreparerInd

Preparer Person PreparerPersonGrp

Field	Value	IRS element (for citing)
Preparer Person	JOEL C SUSCO	PreparerPersonNm
PTIN	P00189961	PTIN
Phone	3012726000	PhoneNum

Field	Value	IRS element (for citing)
Tax	2017	TaxYr
Build TS	2022-09-23 18:48:47Z	BuildTS

Form 990 IRS990

Doing Business As Name DoingBusinessAsName

Field	Value	IRS element (for citing)
Business Name Line1	TUBEROUS SCLEROSIS ALLIANCE	BusinessNameLine1Txt

Field	Value	IRS element (for citing)
Principal Officer	KARI L ROSBECK	PrincipalOfficerNm

US Address USAddress

Field	Value	IRS element (for citing)
Address Line1	801 ROEDER ROAD STE 750	AddressLine1Txt
City	SILVER SPRING	CityNm
State Abbreviation	MD	StateAbbreviationCd
ZIP	20910	ZIPCd

Field	Value	IRS element (for citing)
Gross Receipts	$5,018,382	GrossReceiptsAmt
Group Return For Affiliates	false	GroupReturnForAffiliatesInd
Organization501c3	Yes (X)	Organization501c3Ind
Website Address	WWW.TSALLIANCE.ORG	WebsiteAddressTxt
Type Of Organization Corp	Yes (X)	TypeOfOrganizationCorpInd
Formation	1975	FormationYr
Legal Domicile State	CA	LegalDomicileStateCd
Activity Or Mission	THE TS ALLIANCE IS DEDICATED TO FINDING A CURE FOR TUBEROUS SCLEROSIS COMPLEX WHILE IMPROVING THE LIVES OF THOSE AFFECTED.	ActivityOrMissionDesc
Voting Members Governing Body	20	VotingMembersGoverningBodyCnt
Voting Members Independent	20	VotingMembersIndependentCnt
Total Employee	19	TotalEmployeeCnt
Total Volunteers	1667	TotalVolunteersCnt
Total Gross UBI	$0	TotalGrossUBIAmt
PY Contributions Grants	$4,517,826	PYContributionsGrantsAmt
CY Contributions Grants	$3,949,953	CYContributionsGrantsAmt
PY Program Service Revenue	$629,254	PYProgramServiceRevenueAmt
CY Program Service Revenue	$824,241	CYProgramServiceRevenueAmt
PY Investment Income	$13,638	PYInvestmentIncomeAmt
CY Investment Income	$10,221	CYInvestmentIncomeAmt
PY Other Revenue	$46,841	PYOtherRevenueAmt
CY Other Revenue	-$41,611	CYOtherRevenueAmt
PY Total Revenue	$5,207,559	PYTotalRevenueAmt
CY Total Revenue	$4,742,804	CYTotalRevenueAmt
PY Grants And Similar Paid	$940,040	PYGrantsAndSimilarPaidAmt
CY Grants And Similar Paid	$535,454	CYGrantsAndSimilarPaidAmt
PY Benefits Paid To Members	$0	PYBenefitsPaidToMembersAmt
CY Benefits Paid To Members	$0	CYBenefitsPaidToMembersAmt
PY Salaries Comp Emp Bnft Paid	$1,650,060	PYSalariesCompEmpBnftPaidAmt
CY Salaries Comp Emp Bnft Paid	$1,809,048	CYSalariesCompEmpBnftPaidAmt
PY Total Prof Fndrsng Expns	$0	PYTotalProfFndrsngExpnsAmt
CY Total Prof Fndrsng Expns	$0	CYTotalProfFndrsngExpnsAmt
CY Total Fundraising Expense	$733,834	CYTotalFundraisingExpenseAmt
PY Other Expenses	$2,302,337	PYOtherExpensesAmt
CY Other Expenses	$2,976,795	CYOtherExpensesAmt
PY Total Expenses	$4,892,437	PYTotalExpensesAmt
CY Total Expenses	$5,321,297	CYTotalExpensesAmt
PY Revenues Less Expenses	$315,122	PYRevenuesLessExpensesAmt
CY Revenues Less Expenses	-$578,493	CYRevenuesLessExpensesAmt
Total Assets BOY	$10,004,341	TotalAssetsBOYAmt
Total Assets EOY	$9,757,301	TotalAssetsEOYAmt
Total Liabilities BOY	$738,137	TotalLiabilitiesBOYAmt
Total Liabilities EOY	$700,521	TotalLiabilitiesEOYAmt
Net Assets Or Fund Balances BOY	$9,266,204	NetAssetsOrFundBalancesBOYAmt
Net Assets Or Fund Balances EOY	$9,056,780	NetAssetsOrFundBalancesEOYAmt
Info In Schedule O Part III	Yes (X)	InfoInScheduleOPartIIIInd
Mission	THE NATIONAL TUBEROUS SCLEROSIS ASSOCIATION, INC., D/B/A TUBEROUS SCLEROSIS ALLIANCE, IS DEDICATED TO FINDING A CURE FOR TUBEROUS SCLEROSIS COMPLEX WHILE IMPROVING THE LIVES OF THOSE AFFECTED.	MissionDesc
Significant New Program Srvc	false	SignificantNewProgramSrvcInd
Significant Change	false	SignificantChangeInd
Expense	$2,752,226	ExpenseAmt
Grant	$535,454	GrantAmt
Revenue	$796,617	RevenueAmt
Desc	RESEARCH PROGRAM - SEE SCHEDULE O PAGE 54	Desc

Prog Srvc Accom Acty2 ProgSrvcAccomActy2Grp

Field	Value	IRS element (for citing)
Expense	$773,653	ExpenseAmt
Revenue	$9,774	RevenueAmt
Desc	SUPPORT SERVICES - SEE SCHEDULE O PAGE 59	Desc

Prog Srvc Accom Acty3 ProgSrvcAccomActy3Grp

Field	Value	IRS element (for citing)
Expense	$322,284	ExpenseAmt
Revenue	$2,600	RevenueAmt
Desc	PUBLIC HEALTH EDUCATION - SEE SCHEDULE O PAGE 62	Desc

Field	Value	IRS element (for citing)
Total Other Prog Srvc Expense	$230,179	TotalOtherProgSrvcExpenseAmt
Total Other Prog Srvc Revenue	$15,250	TotalOtherProgSrvcRevenueAmt
Total Program Service Expenses	$4,078,342	TotalProgramServiceExpensesAmt
Described In Section501c3	Yes (true)	DescribedInSection501c3Ind
Schedule B Required	Yes (true)	ScheduleBRequiredInd
Political Campaign Acty	false	PoliticalCampaignActyInd
Lobbying Activities	Yes (true)	LobbyingActivitiesInd
Subject To Proxy Tax	false	SubjectToProxyTaxInd
Donor Advised Fund	false	DonorAdvisedFundInd
Conservation Easements	false	ConservationEasementsInd
Collections Of Art	false	CollectionsOfArtInd
Credit Counseling	false	CreditCounselingInd
Temp Or Permanent Endowments	Yes (true)	TempOrPermanentEndowmentsInd
Report Land Building Equipment	Yes (true)	ReportLandBuildingEquipmentInd
Report Investments Other Sec	false	ReportInvestmentsOtherSecInd
Report Program Related Invst	false	ReportProgramRelatedInvstInd
Report Other Assets	Yes (true)	ReportOtherAssetsInd
Report Other Liabilities	Yes (true)	ReportOtherLiabilitiesInd
Include FIN48 Footnote	Yes (true)	IncludeFIN48FootnoteInd
Independent Audit Fincl Stmt	false	IndependentAuditFinclStmtInd
Consolidated Audit Fincl Stmt	Yes (true)	ConsolidatedAuditFinclStmtInd
School Operating	false	SchoolOperatingInd
Foreign Office	false	ForeignOfficeInd
Foreign Activities	Yes (true)	ForeignActivitiesInd
More Than5000 K To Org	Yes (true)	MoreThan5000KToOrgInd
More Than5000 K To Individuals	false	MoreThan5000KToIndividualsInd
Professional Fundraising	false	ProfessionalFundraisingInd
Fundraising Activities	Yes (true)	FundraisingActivitiesInd
Gaming Activities	false	GamingActivitiesInd
Operate Hospital	false	OperateHospitalInd
Grants To Organizations	Yes (true)	GrantsToOrganizationsInd
Grants To Individuals	false	GrantsToIndividualsInd
Schedule J Required	Yes (true)	ScheduleJRequiredInd
Tax Exempt Bonds	false	TaxExemptBondsInd
Engaged In Excess Benefit Trans	false	EngagedInExcessBenefitTransInd
PY Excess Benefit Trans	false	PYExcessBenefitTransInd
Loan Outstanding	false	LoanOutstandingInd
Grant To Related Person	false	GrantToRelatedPersonInd
Business Rln With Org Mem	false	BusinessRlnWithOrgMemInd
Business Rln With Fam Mem	false	BusinessRlnWithFamMemInd
Business Rln With Officer Ent	false	BusinessRlnWithOfficerEntInd
Deductible Non Cash Contri	Yes (true)	DeductibleNonCashContriInd
Deductible Art Contribution	false	DeductibleArtContributionInd
Terminate Operations	false	TerminateOperationsInd
Partial Liquidation	false	PartialLiquidationInd
Disregarded Entity	false	DisregardedEntityInd
Related Entity	Yes (true)	RelatedEntityInd
Related Organization Ctrl Ent	false	RelatedOrganizationCtrlEntInd
Trnsfr Exmpt Non Chrtbl Rltd Org	false	TrnsfrExmptNonChrtblRltdOrgInd
Activities Conducted Prtshp	false	ActivitiesConductedPrtshpInd
Schedule O Required	Yes (true)	ScheduleORequiredInd
IRP Document	40	IRPDocumentCnt
IRP Document W2 G	0	IRPDocumentW2GCnt
Backup Wthld Compliance	Yes (true)	BackupWthldComplianceInd
Employee	19	EmployeeCnt
Employment Tax Returns Filed	Yes (true)	EmploymentTaxReturnsFiledInd
Unrelated Bus Incm Over Limit	false	UnrelatedBusIncmOverLimitInd
Foreign Financial Account	false	ForeignFinancialAccountInd
Prohibited Tax Shelter Trans	false	ProhibitedTaxShelterTransInd
Taxable Party Notification	false	TaxablePartyNotificationInd
Nondeductible Contributions	false	NondeductibleContributionsInd
Quid Pro Quo Contributions	Yes (true)	QuidProQuoContributionsInd
Quid Pro Quo Contri Discl	Yes (true)	QuidProQuoContriDisclInd
Form8282 Property Disposed Of	false	Form8282PropertyDisposedOfInd
Rcv Fnds To Pay Prsnl Bnft Cntrct	false	RcvFndsToPayPrsnlBnftCntrctInd
Pay Premiums Prsnl Bnft Cntrct	false	PayPremiumsPrsnlBnftCntrctInd
Indoor Tanning Services	false	IndoorTanningServicesInd
Info In Schedule O Part VI	Yes (X)	InfoInScheduleOPartVIInd
Governing Body Voting Members	20	GoverningBodyVotingMembersCnt
Independent Voting Member	20	IndependentVotingMemberCnt
Family Or Business Rln	false	FamilyOrBusinessRlnInd
Delegation Of Mgmt Duties	false	DelegationOfMgmtDutiesInd
Change To Org Documents	Yes (true)	ChangeToOrgDocumentsInd
Material Diversion Or Misuse	false	MaterialDiversionOrMisuseInd
Members Or Stockholders	Yes (true)	MembersOrStockholdersInd
Election Of Board Members	Yes (true)	ElectionOfBoardMembersInd
Decisions Subject To Approva	false	DecisionsSubjectToApprovaInd
Minutes Of Governing Body	Yes (true)	MinutesOfGoverningBodyInd
Minutes Of Committees	Yes (true)	MinutesOfCommitteesInd
Officer Mailing Address	false	OfficerMailingAddressInd
Local Chapters	Yes (true)	LocalChaptersInd
Policies Reference Chapters	Yes (true)	PoliciesReferenceChaptersInd
Form990 Provided To Gvrn Body	Yes (true)	Form990ProvidedToGvrnBodyInd
Conflict Of Interest Policy	Yes (true)	ConflictOfInterestPolicyInd
Annual Disclosure Covered Prsn	Yes (true)	AnnualDisclosureCoveredPrsnInd
Regular Monitoring Enfrc	Yes (true)	RegularMonitoringEnfrcInd
Whistleblower Policy	Yes (true)	WhistleblowerPolicyInd
Document Retention Policy	Yes (true)	DocumentRetentionPolicyInd
Compensation Process CEO	Yes (true)	CompensationProcessCEOInd
Compensation Process Other	Yes (true)	CompensationProcessOtherInd
Investment In Joint Venture	false	InvestmentInJointVentureInd
States Where Copy Of Return Is Fld	AL	StatesWhereCopyOfReturnIsFldCd
States Where Copy Of Return Is Fld	AK	StatesWhereCopyOfReturnIsFldCd
States Where Copy Of Return Is Fld	AR	StatesWhereCopyOfReturnIsFldCd
States Where Copy Of Return Is Fld	CA	StatesWhereCopyOfReturnIsFldCd
States Where Copy Of Return Is Fld	CT	StatesWhereCopyOfReturnIsFldCd
States Where Copy Of Return Is Fld	FL	StatesWhereCopyOfReturnIsFldCd
States Where Copy Of Return Is Fld	GA	StatesWhereCopyOfReturnIsFldCd
States Where Copy Of Return Is Fld	IL	StatesWhereCopyOfReturnIsFldCd
States Where Copy Of Return Is Fld	IN	StatesWhereCopyOfReturnIsFldCd
States Where Copy Of Return Is Fld	KS	StatesWhereCopyOfReturnIsFldCd
States Where Copy Of Return Is Fld	KY	StatesWhereCopyOfReturnIsFldCd
States Where Copy Of Return Is Fld	MD	StatesWhereCopyOfReturnIsFldCd
States Where Copy Of Return Is Fld	MA	StatesWhereCopyOfReturnIsFldCd
States Where Copy Of Return Is Fld	MI	StatesWhereCopyOfReturnIsFldCd
States Where Copy Of Return Is Fld	MN	StatesWhereCopyOfReturnIsFldCd
States Where Copy Of Return Is Fld	MS	StatesWhereCopyOfReturnIsFldCd
States Where Copy Of Return Is Fld	NH	StatesWhereCopyOfReturnIsFldCd
States Where Copy Of Return Is Fld	NJ	StatesWhereCopyOfReturnIsFldCd
States Where Copy Of Return Is Fld	NM	StatesWhereCopyOfReturnIsFldCd
States Where Copy Of Return Is Fld	NY	StatesWhereCopyOfReturnIsFldCd
States Where Copy Of Return Is Fld	NC	StatesWhereCopyOfReturnIsFldCd
States Where Copy Of Return Is Fld	OK	StatesWhereCopyOfReturnIsFldCd
States Where Copy Of Return Is Fld	OR	StatesWhereCopyOfReturnIsFldCd
States Where Copy Of Return Is Fld	PA	StatesWhereCopyOfReturnIsFldCd
States Where Copy Of Return Is Fld	RI	StatesWhereCopyOfReturnIsFldCd
States Where Copy Of Return Is Fld	SC	StatesWhereCopyOfReturnIsFldCd
States Where Copy Of Return Is Fld	TN	StatesWhereCopyOfReturnIsFldCd
States Where Copy Of Return Is Fld	UT	StatesWhereCopyOfReturnIsFldCd
States Where Copy Of Return Is Fld	VA	StatesWhereCopyOfReturnIsFldCd
States Where Copy Of Return Is Fld	WV	StatesWhereCopyOfReturnIsFldCd
States Where Copy Of Return Is Fld	WI	StatesWhereCopyOfReturnIsFldCd
Own Website	Yes (X)	OwnWebsiteInd
Other Website	Yes (X)	OtherWebsiteInd
Upon Request	Yes (X)	UponRequestInd

Books In Care Of Detail BooksInCareOfDetail

Field	Value	IRS element (for citing)
Person	THE ORGANIZATION	PersonNm
Phone	3015629890	PhoneNum

US Address USAddress

Field	Value	IRS element (for citing)
Address Line1	801 ROEDER ROAD STE 750	AddressLine1Txt
City	SILVER SPRING	CityNm
State Abbreviation	MD	StateAbbreviationCd
ZIP	20910	ZIPCd

Field	Value	IRS element (for citing)
Info In Schedule O Part VII	Yes (X)	InfoInScheduleOPartVIIInd

Form990 Part VII Section A Form990PartVIISectionAGrp (25 entries)

TitleTitleTxt	Average Hours Per WeekAverageHoursPerWeekRt	Average Hours Per Week Rltd OrgAverageHoursPerWeekRltdOrgRt	Individual Trustee Or DirectorIndividualTrusteeOrDirectorInd	OfficerOfficerInd	Reportable Comp From OrgReportableCompFromOrgAmt	Reportable Comp From Rltd OrgReportableCompFromRltdOrgAmt	Other CompensationOtherCompensationAmt	Key EmployeeKeyEmployeeInd	Highest Compensated EmployeeHighestCompensatedEmployeeInd
TIM DILLS
CHAIR	5.0	0.0	Yes (X)	Yes (X)	$0	$0	$0
BETH DEAN
VICE CHAIR	5.0	0.0	Yes (X)	Yes (X)	$0	$0	$0
DAVID FITZMAURICE
IMMEDIATE PAST CHAIR	5.0	0.0	Yes (X)	Yes (X)	$0	$0	$0
REBECCA ANHANG PRICE
SECRETARY	5.0	0.0	Yes (X)	Yes (X)	$0	$0	$0
JIM MAGINN
TREASURER	5.0	0.0	Yes (X)	Yes (X)	$0	$0	$0
MARTINA BEBIN MD MPA
BOARD MEMBER	2.0	0.0	Yes (X)		$0	$0	$0
JOHN J BISSLER MD
BOARD MEMBER	2.0	0.0	Yes (X)		$0	$0	$0
MICHAEL CAGGIANO
BOARD MEMBER	2.0	0.0	Yes (X)		$0	$0	$0
CASSANDRA CARROLL
BOARD MEMBER	2.0	0.0	Yes (X)		$0	$0	$0
SARA CHIEFFO
BOARD MEMBER	2.0	0.0	Yes (X)		$0	$0	$0
MARGARET COX
BOARD MEMBER	2.0	0.0	Yes (X)		$0	$0	$0
BONNIE HOGUE DUFFY
BOARD MEMBER	2.0	0.0	Yes (X)		$0	$0	$0
TOM GWINN
BOARD MEMBER	2.0	0.0	Yes (X)		$0	$0	$0
LAURA S LUBBERS
BOARD MEMBER	2.0	0.0	Yes (X)		$0	$0	$0
BRENDAN D MANNING PHD
BOARD MEMBER	2.0	0.0	Yes (X)		$0	$0	$0
DAVID MICHAELS
BOARD MEMBER	2.0	0.0	Yes (X)		$0	$0	$0
DARREN MILES
BOARD MEMBER	2.0	0.0	Yes (X)		$0	$0	$0
DEBORA L MORITZ
BOARD MEMBER	5.0	0.0	Yes (X)		$0	$0	$0
JULIE SCROGGINS
BOARD MEMBER	2.0	0.0	Yes (X)		$0	$0	$0
MATTHEW SIMONIAN
BOARD MEMBER	2.0	0.0	Yes (X)		$0	$0	$0
KARI L ROSEBECK
PRESIDENT & CEO	54.0	1.0		Yes (X)	$192,244	$0	$28,504
RICHARD A GOLLUB
CONTROLLER & CFO	46.5	3.5		Yes (X)	$147,524	$0	$33,575
STEVEN L ROBERDS
CHIEF SCIENTIFIC OFFICER	45.0	0.0			$201,086	$0	$31,043	Yes (X)
JAYE D ISHAM
VP, COMMUNICATIONS STRATEGY	45.0	0.0			$105,665	$0	$4,406		Yes (X)
LISA MOSS
SR DIRECTOR OF DONOR RELATIONS	45.0	0.0			$101,755	$0	$23,366		Yes (X)

Field	Value	IRS element (for citing)
Total Reportable Comp From Org	$748,274	TotalReportableCompFromOrgAmt
Tot Reportable Comp Rltd Org	$0	TotReportableCompRltdOrgAmt
Total Other Compensation	$120,894	TotalOtherCompensationAmt
Indiv Rcvd Greater Than100 K	5	IndivRcvdGreaterThan100KCnt
Former Ofcr Employees Listed	false	FormerOfcrEmployeesListedInd
Total Comp Greater Than150 K	Yes (true)	TotalCompGreaterThan150KInd
Compensation From Other Srcs	false	CompensationFromOtherSrcsInd

Contractor Compensation ContractorCompensationGrp (2 entries)

Address Line1ContractorAddress/USAddress/AddressLine1Txt	CityContractorAddress/USAddress/CityNm	State AbbreviationContractorAddress/USAddress/StateAbbreviationCd	ZIPContractorAddress/USAddress/ZIPCd	ServicesServicesDesc	CompensationCompensationAmt
PSYCHOGENICS INC
20 GRAMERCY PARK SOUTH	NEW YORK	NY	10003	RESEARCH LAB SVCS	$901,513
VAN ANDEL RESEARCH INSTITUTE
333 BOSTWICK AVE NE	GRAND RAPIDS	MI	49503	RESEARCH	$133,575

Field	Value	IRS element (for citing)
Cntrct Rcvd Greater Than100 K	2	CntrctRcvdGreaterThan100KCnt
Info In Schedule O Part VIII	Yes (X)	InfoInScheduleOPartVIIIInd
Federated Campaigns	$37,803	FederatedCampaignsAmt
Membership Dues	$47,932	MembershipDuesAmt
Fundraising	$1,344,269	FundraisingAmt
Related Organizations	$403,000	RelatedOrganizationsAmt
All Other Contributions	$2,116,949	AllOtherContributionsAmt
Noncash Contributions	$115,787	NoncashContributionsAmt
Total Contributions	$3,949,953	TotalContributionsAmt

Program Service Revenue ProgramServiceRevenueGrp

Field	Value	IRS element (for citing)
Desc	CONTRACT REVENUE	Desc
Business	900099	BusinessCd
Total Revenue Column	$824,241	TotalRevenueColumnAmt
Related Or Exempt Func Income	$824,241	RelatedOrExemptFuncIncomeAmt

Field	Value	IRS element (for citing)
Total Program Service Revenue	$824,241	TotalProgramServiceRevenueAmt

Investment Income InvestmentIncomeGrp

Field	Value	IRS element (for citing)
Total Revenue Column	$10,150	TotalRevenueColumnAmt
Exclusion	$10,150	ExclusionAmt

Incm From Invest Bond Proceeds IncmFromInvestBondProceedsGrp

Field	Value	IRS element (for citing)
Total Revenue Column	$0	TotalRevenueColumnAmt

Royalties Revenue RoyaltiesRevenueGrp

Field	Value	IRS element (for citing)
Total Revenue Column	$243	TotalRevenueColumnAmt
Exclusion	$243	ExclusionAmt

Rental Income Or Loss RentalIncomeOrLossGrp

Field	Value	IRS element (for citing)
Real	$0	RealAmt
Personal	$0	PersonalAmt

Net Rental Income Or Loss NetRentalIncomeOrLossGrp

Field	Value	IRS element (for citing)
Total Revenue Column	$0	TotalRevenueColumnAmt

Gross Amount Sales Assets GrossAmountSalesAssetsGrp

Field	Value	IRS element (for citing)
Securities	$115,040	SecuritiesAmt

Less Cost Oth Basis Sales Expnss LessCostOthBasisSalesExpnssGrp

Field	Value	IRS element (for citing)
Securities	$114,969	SecuritiesAmt

Gain Or Loss GainOrLossGrp

Field	Value	IRS element (for citing)
Securities	$71	SecuritiesAmt

Net Gain Or Loss Investments NetGainOrLossInvestmentsGrp

Field	Value	IRS element (for citing)
Total Revenue Column	$71	TotalRevenueColumnAmt
Exclusion	$71	ExclusionAmt

Field	Value	IRS element (for citing)
Fundraising Gross Income	$118,113	FundraisingGrossIncomeAmt
Contri Rpt Fundraising Event	$1,344,269	ContriRptFundraisingEventAmt
Fundraising Direct Expenses	$160,609	FundraisingDirectExpensesAmt

Net Incm From Fundraising Evt NetIncmFromFundraisingEvtGrp

Field	Value	IRS element (for citing)
Total Revenue Column	-$42,496	TotalRevenueColumnAmt
Exclusion	-$42,496	ExclusionAmt

Field	Value	IRS element (for citing)
Gaming Gross Income	$0	GamingGrossIncomeAmt
Gaming Direct Expenses	$0	GamingDirectExpensesAmt

Net Income From Gaming NetIncomeFromGamingGrp

Field	Value	IRS element (for citing)
Total Revenue Column	$0	TotalRevenueColumnAmt

Field	Value	IRS element (for citing)
Gross Sales Of Inventory	$0	GrossSalesOfInventoryAmt
Cost Of Goods Sold	$0	CostOfGoodsSoldAmt

Net Income Or Loss NetIncomeOrLossGrp

Field	Value	IRS element (for citing)
Total Revenue Column	$0	TotalRevenueColumnAmt

Other Revenue Misc OtherRevenueMiscGrp

Field	Value	IRS element (for citing)
Desc	MISCELLANEOUS	Desc
Business	900099	BusinessCd
Total Revenue Column	$642	TotalRevenueColumnAmt
Exclusion	$642	ExclusionAmt

Field	Value	IRS element (for citing)
Other Revenue Total	$642	OtherRevenueTotalAmt

Total Revenue TotalRevenueGrp

Field	Value	IRS element (for citing)
Total Revenue Column	$4,742,804	TotalRevenueColumnAmt
Related Or Exempt Func Income	$824,241	RelatedOrExemptFuncIncomeAmt
Exclusion	-$31,390	ExclusionAmt

Grants To Domestic Orgs GrantsToDomesticOrgsGrp

Field	Value	IRS element (for citing)
Total	$461,145	TotalAmt
Program Services	$461,145	ProgramServicesAmt

Grants To Domestic Individuals GrantsToDomesticIndividualsGrp

Field	Value	IRS element (for citing)
Total	$0	TotalAmt

Foreign Grants ForeignGrantsGrp

Field	Value	IRS element (for citing)
Total	$74,309	TotalAmt
Program Services	$74,309	ProgramServicesAmt

Benefits To Members BenefitsToMembersGrp

Field	Value	IRS element (for citing)
Total	$0	TotalAmt

Comp Current Ofcr Directors CompCurrentOfcrDirectorsGrp

Field	Value	IRS element (for citing)
Total	$638,990	TotalAmt
Program Services	$347,872	ProgramServicesAmt
Management And General	$219,346	ManagementAndGeneralAmt
Fundraising	$71,772	FundraisingAmt

Comp Disqual Persons CompDisqualPersonsGrp

Field	Value	IRS element (for citing)
Total	$0	TotalAmt

Other Salaries And Wages OtherSalariesAndWagesGrp

Field	Value	IRS element (for citing)
Total	$932,810	TotalAmt
Program Services	$552,836	ProgramServicesAmt
Management And General	$109,302	ManagementAndGeneralAmt
Fundraising	$270,672	FundraisingAmt

Pension Plan Contributions PensionPlanContributionsGrp

Field	Value	IRS element (for citing)
Total	$27,991	TotalAmt
Program Services	$17,634	ProgramServicesAmt
Management And General	$2,391	ManagementAndGeneralAmt
Fundraising	$7,966	FundraisingAmt

Other Employee Benefits OtherEmployeeBenefitsGrp

Field	Value	IRS element (for citing)
Total	$105,088	TotalAmt
Program Services	$67,352	ProgramServicesAmt
Management And General	$1,074	ManagementAndGeneralAmt
Fundraising	$36,662	FundraisingAmt

Payroll Taxes PayrollTaxesGrp

Field	Value	IRS element (for citing)
Total	$104,169	TotalAmt
Program Services	$59,589	ProgramServicesAmt
Management And General	$19,944	ManagementAndGeneralAmt
Fundraising	$24,636	FundraisingAmt

Fees For Services Management FeesForServicesManagementGrp

Field	Value	IRS element (for citing)
Total	$0	TotalAmt

Fees For Services Legal FeesForServicesLegalGrp

Field	Value	IRS element (for citing)
Total	$78,839	TotalAmt
Program Services	$57,607	ProgramServicesAmt
Management And General	$21,232	ManagementAndGeneralAmt

Fees For Services Accounting FeesForServicesAccountingGrp

Field	Value	IRS element (for citing)
Total	$19,500	TotalAmt
Management And General	$19,500	ManagementAndGeneralAmt

Fees For Services Lobbying FeesForServicesLobbyingGrp

Field	Value	IRS element (for citing)
Total	$105,960	TotalAmt
Program Services	$105,960	ProgramServicesAmt

Fees For Services Prof Fundraising FeesForServicesProfFundraising

Field	Value	IRS element (for citing)
Total	$0	TotalAmt

Fees For Srvc Invst Mgmnt Fees FeesForSrvcInvstMgmntFeesGrp

Field	Value	IRS element (for citing)
Total	$0	TotalAmt

Fees For Services Other FeesForServicesOtherGrp

Field	Value	IRS element (for citing)
Total	$171,240	TotalAmt
Program Services	$99,105	ProgramServicesAmt
Management And General	$25,717	ManagementAndGeneralAmt
Fundraising	$46,418	FundraisingAmt

Advertising AdvertisingGrp

Field	Value	IRS element (for citing)
Total	$0	TotalAmt

Office Expenses OfficeExpensesGrp

Field	Value	IRS element (for citing)
Total	$317,408	TotalAmt
Program Services	$120,073	ProgramServicesAmt
Management And General	$67,225	ManagementAndGeneralAmt
Fundraising	$130,110	FundraisingAmt

Information Technology InformationTechnologyGrp

Field	Value	IRS element (for citing)
Total	$129,324	TotalAmt
Program Services	$43,735	ProgramServicesAmt
Management And General	$85,589	ManagementAndGeneralAmt

Royalties RoyaltiesGrp

Field	Value	IRS element (for citing)
Total	$0	TotalAmt

Occupancy OccupancyGrp

Field	Value	IRS element (for citing)
Total	$94,281	TotalAmt
Program Services	$285	ProgramServicesAmt
Management And General	$93,712	ManagementAndGeneralAmt
Fundraising	$284	FundraisingAmt

Travel TravelGrp

Field	Value	IRS element (for citing)
Total	$272,085	TotalAmt
Program Services	$227,893	ProgramServicesAmt
Management And General	$3,047	ManagementAndGeneralAmt
Fundraising	$41,145	FundraisingAmt

Pymt Travel Entrtnmnt Pub Ofcl PymtTravelEntrtnmntPubOfclGrp

Field	Value	IRS element (for citing)
Total	$0	TotalAmt

Conferences Meetings ConferencesMeetingsGrp

Field	Value	IRS element (for citing)
Total	$242,361	TotalAmt
Program Services	$198,367	ProgramServicesAmt
Management And General	$34,708	ManagementAndGeneralAmt
Fundraising	$9,286	FundraisingAmt

Interest InterestGrp

Field	Value	IRS element (for citing)
Total	$0	TotalAmt

Payments To Affiliates PaymentsToAffiliatesGrp

Field	Value	IRS element (for citing)
Total	$0	TotalAmt

Depreciation Depletion DepreciationDepletionGrp

Field	Value	IRS element (for citing)
Total	$69,095	TotalAmt
Program Services	$35,516	ProgramServicesAmt
Management And General	$29,965	ManagementAndGeneralAmt
Fundraising	$3,614	FundraisingAmt

Insurance InsuranceGrp

Field	Value	IRS element (for citing)
Total	$8,025	TotalAmt
Program Services	$150	ProgramServicesAmt
Management And General	$7,716	ManagementAndGeneralAmt
Fundraising	$159	FundraisingAmt

Other Expenses OtherExpensesGrp (4 entries)

DescDesc	TotalTotalAmt	Program ServicesProgramServicesAmt	Management And GeneralManagementAndGeneralAmt	FundraisingFundraisingAmt
PRECLINICAL CONSORTIUM	$1,042,919	$1,042,919
NATURAL HISTORY DATABASE	$222,524	$222,524
BIOSAMPLE REPOSITORY	$120,771	$120,771
OVERHEAD ALLOCATION		$175,714	-$248,016	$72,302

All Other Expenses AllOtherExpensesGrp

Field	Value	IRS element (for citing)
Total	$82,463	TotalAmt
Program Services	$46,986	ProgramServicesAmt
Management And General	$16,669	ManagementAndGeneralAmt
Fundraising	$18,808	FundraisingAmt

Total Functional Expenses TotalFunctionalExpensesGrp

Field	Value	IRS element (for citing)
Total	$5,321,297	TotalAmt
Program Services	$4,078,342	ProgramServicesAmt
Management And General	$509,121	ManagementAndGeneralAmt
Fundraising	$733,834	FundraisingAmt

Field	Value	IRS element (for citing)
Joint Costs	Yes (X)	JointCostsInd

Total Joint Costs TotalJointCostsGrp

Field	Value	IRS element (for citing)
Total	$78,960	TotalAmt
Program Services	$39,480	ProgramServicesAmt
Fundraising	$39,480	FundraisingAmt

Cash Non Interest Bearing CashNonInterestBearingGrp

Field	Value	IRS element (for citing)
BOY	$1,840,325	BOYAmt
EOY	$1,079,000	EOYAmt

Savings And Temp Cash Invst SavingsAndTempCashInvstGrp

Field	Value	IRS element (for citing)
BOY	$779,808	BOYAmt
EOY	$1,231,098	EOYAmt

Pledges And Grants Receivable PledgesAndGrantsReceivableGrp

Field	Value	IRS element (for citing)
BOY	$1,480,988	BOYAmt
EOY	$989,299	EOYAmt

Accounts Receivable AccountsReceivableGrp

Field	Value	IRS element (for citing)
BOY	$262,025	BOYAmt
EOY	$278,373	EOYAmt

Receivables From Officers Etc ReceivablesFromOfficersEtcGrp

Field	Value	IRS element (for citing)
BOY	$0	BOYAmt
EOY	$0	EOYAmt

Rcvbl From Disqualified Prsn RcvblFromDisqualifiedPrsnGrp

Field	Value	IRS element (for citing)
BOY	$0	BOYAmt
EOY	$0	EOYAmt

Oth Notes Loans Receivable Net OthNotesLoansReceivableNetGrp

Field	Value	IRS element (for citing)
BOY	$0	BOYAmt
EOY	$0	EOYAmt

Inventories For Sale Or Use InventoriesForSaleOrUseGrp

Field	Value	IRS element (for citing)
BOY	$0	BOYAmt
EOY	$0	EOYAmt

Prepaid Expenses Defrd Charges PrepaidExpensesDefrdChargesGrp

Field	Value	IRS element (for citing)
BOY	$182,942	BOYAmt
EOY	$344,133	EOYAmt

Field	Value	IRS element (for citing)
Land Bldg Equip Cost Or Other Bss	$372,051	LandBldgEquipCostOrOtherBssAmt
Land Bldg Equip Accum Deprec	$186,050	LandBldgEquipAccumDeprecAmt

Land Bldg Equip Basis Net LandBldgEquipBasisNetGrp

Field	Value	IRS element (for citing)
BOY	$190,332	BOYAmt
EOY	$186,001	EOYAmt

Investments Pub Traded Sec InvestmentsPubTradedSecGrp

Field	Value	IRS element (for citing)
BOY	$0	BOYAmt
EOY	$10,970	EOYAmt

Investments Other Securities InvestmentsOtherSecuritiesGrp

Field	Value	IRS element (for citing)
BOY	$0	BOYAmt
EOY	$0	EOYAmt

Investments Program Related InvestmentsProgramRelatedGrp

Field	Value	IRS element (for citing)
BOY	$0	BOYAmt
EOY	$0	EOYAmt

Intangible Assets IntangibleAssetsGrp

Field	Value	IRS element (for citing)
BOY	$0	BOYAmt
EOY	$0	EOYAmt

Other Assets Total OtherAssetsTotalGrp

Field	Value	IRS element (for citing)
BOY	$5,267,921	BOYAmt
EOY	$5,638,427	EOYAmt

Total Assets TotalAssetsGrp

Field	Value	IRS element (for citing)
BOY	$10,004,341	BOYAmt
EOY	$9,757,301	EOYAmt

Accounts Payable Accr Expnss AccountsPayableAccrExpnssGrp

Field	Value	IRS element (for citing)
BOY	$523,259	BOYAmt
EOY	$472,644	EOYAmt

Grants Payable GrantsPayableGrp

Field	Value	IRS element (for citing)
BOY	$0	BOYAmt
EOY	$0	EOYAmt

Deferred Revenue DeferredRevenueGrp

Field	Value	IRS element (for citing)
BOY	$131,976	BOYAmt
EOY	$167,293	EOYAmt

Tax Exempt Bond Liabilities TaxExemptBondLiabilitiesGrp

Field	Value	IRS element (for citing)
BOY	$0	BOYAmt
EOY	$0	EOYAmt

Escrow Account Liability EscrowAccountLiabilityGrp

Field	Value	IRS element (for citing)
BOY	$0	BOYAmt
EOY	$0	EOYAmt

Loans From Officers Directors LoansFromOfficersDirectorsGrp

Field	Value	IRS element (for citing)
BOY	$0	BOYAmt
EOY	$0	EOYAmt

Mortg Notes Pybl Scrd Invst Prop MortgNotesPyblScrdInvstPropGrp

Field	Value	IRS element (for citing)
BOY	$0	BOYAmt
EOY	$0	EOYAmt

Unsecured Notes Loans Payable UnsecuredNotesLoansPayableGrp

Field	Value	IRS element (for citing)
BOY	$0	BOYAmt
EOY	$0	EOYAmt

Other Liabilities OtherLiabilitiesGrp

Field	Value	IRS element (for citing)
BOY	$82,902	BOYAmt
EOY	$60,584	EOYAmt

Total Liabilities TotalLiabilitiesGrp

Field	Value	IRS element (for citing)
BOY	$738,137	BOYAmt
EOY	$700,521	EOYAmt

Field	Value	IRS element (for citing)
Organization Follows SFAS117	Yes (X)	OrganizationFollowsSFAS117Ind

Unrestricted Net Assets UnrestrictedNetAssetsGrp

Field	Value	IRS element (for citing)
BOY	$5,303,111	BOYAmt
EOY	$5,975,949	EOYAmt

Temporarily Rstr Net Assets TemporarilyRstrNetAssetsGrp

Field	Value	IRS element (for citing)
BOY	$3,083,649	BOYAmt
EOY	$2,201,387	EOYAmt

Permanently Rstr Net Assets PermanentlyRstrNetAssetsGrp

Field	Value	IRS element (for citing)
BOY	$879,444	BOYAmt
EOY	$879,444	EOYAmt

Total Net Assets Fund Balance TotalNetAssetsFundBalanceGrp

Field	Value	IRS element (for citing)
BOY	$9,266,204	BOYAmt
EOY	$9,056,780	EOYAmt

Tot Liab Net Assets Fund Balance TotLiabNetAssetsFundBalanceGrp

Field	Value	IRS element (for citing)
BOY	$10,004,341	BOYAmt
EOY	$9,757,301	EOYAmt

Field	Value	IRS element (for citing)
Info In Schedule O Part XI	Yes (X)	InfoInScheduleOPartXIInd
Reconcilation Revenue Expnss	-$578,493	ReconcilationRevenueExpnssAmt
Net Unrlzd Gains Losses Invst	$792	NetUnrlzdGainsLossesInvstAmt
Other Changes In Net Assets	$368,277	OtherChangesInNetAssetsAmt
Method Of Accounting Accrual	Yes (X)	MethodOfAccountingAccrualInd
Accountant Compile Or Review	false	AccountantCompileOrReviewInd
FS Audited	Yes (true)	FSAuditedInd

FS Audited Basis FSAuditedBasisGrp

Field	Value	IRS element (for citing)
Consolidated Basis Fincl Stmt	Yes (X)	ConsolidatedBasisFinclStmtInd

Field	Value	IRS element (for citing)
Audit Committee	Yes (true)	AuditCommitteeInd
Federal Grant Audit Required	false	FederalGrantAuditRequiredInd

Schedule A IRS990ScheduleA

Field	Value	IRS element (for citing)
Public Organization170	Yes (X)	PublicOrganization170Ind

Gifts Grants Contri Rcvd170 GiftsGrantsContriRcvd170Grp

Field	Value	IRS element (for citing)
Current Tax Year Minus4 Years	$3,239,048	CurrentTaxYearMinus4YearsAmt
Current Tax Year Minus3 Years	$3,124,386	CurrentTaxYearMinus3YearsAmt
Current Tax Year Minus2 Years	$3,514,873	CurrentTaxYearMinus2YearsAmt
Current Tax Year Minus1 Year	$4,517,826	CurrentTaxYearMinus1YearAmt
Current Tax Year	$3,949,953	CurrentTaxYearAmt
Total	$18,346,086	TotalAmt

Tax Rev Levied Orgnztnl Bnft170 TaxRevLeviedOrgnztnlBnft170Grp

Field	Value	IRS element (for citing)
Total	$0	TotalAmt

Govt Furn Srvc Fclts Vl170 GovtFurnSrvcFcltsVl170Grp

Field	Value	IRS element (for citing)
Total	$0	TotalAmt

Total Calendar Year170 TotalCalendarYear170Grp

Field	Value	IRS element (for citing)
Current Tax Year Minus4 Years	$3,239,048	CurrentTaxYearMinus4YearsAmt
Current Tax Year Minus3 Years	$3,124,386	CurrentTaxYearMinus3YearsAmt
Current Tax Year Minus2 Years	$3,514,873	CurrentTaxYearMinus2YearsAmt
Current Tax Year Minus1 Year	$4,517,826	CurrentTaxYearMinus1YearAmt
Current Tax Year	$3,949,953	CurrentTaxYearAmt
Total	$18,346,086	TotalAmt

Field	Value	IRS element (for citing)
Substantial Contributors Tot	$2,725,455	SubstantialContributorsTotAmt
Public Support Total170	$15,620,631	PublicSupportTotal170Amt

Gross Investment Income170 GrossInvestmentIncome170Grp

Field	Value	IRS element (for citing)
Current Tax Year Minus4 Years	$13,335	CurrentTaxYearMinus4YearsAmt
Current Tax Year Minus3 Years	$13,455	CurrentTaxYearMinus3YearsAmt
Current Tax Year Minus2 Years	$16,038	CurrentTaxYearMinus2YearsAmt
Current Tax Year Minus1 Year	$15,431	CurrentTaxYearMinus1YearAmt
Current Tax Year	$10,393	CurrentTaxYearAmt
Total	$68,652	TotalAmt

Unrelated Business Net Incm170 UnrelatedBusinessNetIncm170Grp

Field	Value	IRS element (for citing)
Current Tax Year Minus1 Year	$44,490	CurrentTaxYearMinus1YearAmt
Total	$44,490	TotalAmt

Other Income170 OtherIncome170Grp

Field	Value	IRS element (for citing)
Current Tax Year Minus4 Years	$5,984	CurrentTaxYearMinus4YearsAmt
Current Tax Year Minus3 Years	$9,351	CurrentTaxYearMinus3YearsAmt
Current Tax Year Minus2 Years	$1,401	CurrentTaxYearMinus2YearsAmt
Current Tax Year Minus1 Year	$1,683	CurrentTaxYearMinus1YearAmt
Current Tax Year	$642	CurrentTaxYearAmt
Total	$19,061	TotalAmt

Field	Value	IRS element (for citing)
Total Support	$18,478,289	TotalSupportAmt
Gross Receipts Rltd Activities	$4,152,994	GrossReceiptsRltdActivitiesAmt
Public Support CY170	0.84535	PublicSupportCY170Pct
Public Support PY170	0.81282	PublicSupportPY170Pct
Thirty Thr Pct Suprt Tests CY170	Yes (X)	ThirtyThrPctSuprtTestsCY170Ind

Schedule B IRS990ScheduleB

Contributor Information ContributorInformationGrp

Field	Value	IRS element (for citing)
Contributor	RESTRICTED	ContributorNum

Contributor Business Name ContributorBusinessName

Field	Value	IRS element (for citing)
Business Name Line1	RESTRICTED	BusinessNameLine1

Contributor US Address ContributorUSAddress

Field	Value	IRS element (for citing)
Address Line1	RESTRICTED	AddressLine1
Address Line2	RESTRICTED	AddressLine2
City	RESTRICTED	City
State	RESTRICTED	State
ZIP Code	RESTRICTED	ZIPCode

Field	Value	IRS element (for citing)
Total Contributions	RESTRICTED	TotalContributionsAmt

Schedule C IRS990ScheduleC

Total Grassroots Lobbying TotalGrassrootsLobbyingGrp

Field	Value	IRS element (for citing)
Filing Organizations Total	$1,797	FilingOrganizationsTotalAmt

Total Direct Lobbying TotalDirectLobbyingGrp

Field	Value	IRS element (for citing)
Filing Organizations Total	$146,199	FilingOrganizationsTotalAmt

Total Lobbying Expend TotalLobbyingExpendGrp

Field	Value	IRS element (for citing)
Filing Organizations Total	$147,996	FilingOrganizationsTotalAmt

Other Exempt Purpose Expend OtherExemptPurposeExpendGrp

Field	Value	IRS element (for citing)
Filing Organizations Total	$5,173,301	FilingOrganizationsTotalAmt

Total Exempt Purpose Expend TotalExemptPurposeExpendGrp

Field	Value	IRS element (for citing)
Filing Organizations Total	$5,321,297	FilingOrganizationsTotalAmt

Lobbying Nontaxable Amount LobbyingNontaxableAmountGrp

Field	Value	IRS element (for citing)
Filing Organizations Total	$416,065	FilingOrganizationsTotalAmt

Grassroots Nontaxable GrassrootsNontaxableGrp

Field	Value	IRS element (for citing)
Filing Organizations Total	$104,016	FilingOrganizationsTotalAmt

Field	Value	IRS element (for citing)
Tot Lbbyng Grassroot Mns Non Tx		TotLbbyngGrassrootMnsNonTxGrp
Tot Lbby Expend Mns Lbbyng Non Tx		TotLbbyExpendMnsLbbyngNonTxGrp

Avg Lobbying Nontaxable Amount AvgLobbyingNontaxableAmountGrp

Field	Value	IRS element (for citing)
Current Year Minus3	$362,797	CurrentYearMinus3Amt
Current Year Minus2	$364,719	CurrentYearMinus2Amt
Current Year Minus1	$394,622	CurrentYearMinus1Amt
Current Year	$416,065	CurrentYearAmt
Total	$1,538,203	TotalAmt

Field	Value	IRS element (for citing)
Lobbying Ceiling	$2,307,305	LobbyingCeilingAmt

Avg Total Lobbying Expend AvgTotalLobbyingExpendGrp

Field	Value	IRS element (for citing)
Current Year Minus3	$178,975	CurrentYearMinus3Amt
Current Year Minus2	$126,441	CurrentYearMinus2Amt
Current Year Minus1	$145,927	CurrentYearMinus1Amt
Current Year	$146,199	CurrentYearAmt
Total	$597,542	TotalAmt

Avg Grassroots Nontaxable AvgGrassrootsNontaxableGrp

Field	Value	IRS element (for citing)
Current Year Minus3	$90,699	CurrentYearMinus3Amt
Current Year Minus2	$91,180	CurrentYearMinus2Amt
Current Year Minus1	$98,656	CurrentYearMinus1Amt
Current Year	$104,016	CurrentYearAmt
Total	$384,551	TotalAmt

Field	Value	IRS element (for citing)
Grassroots Ceiling	$576,827	GrassrootsCeilingAmt

Avg Grassroots Lobbying Expend AvgGrassrootsLobbyingExpendGrp

Field	Value	IRS element (for citing)
Current Year Minus3	$905	CurrentYearMinus3Amt
Current Year Minus2	$5,047	CurrentYearMinus2Amt
Current Year Minus1	$986	CurrentYearMinus1Amt
Current Year	$1,797	CurrentYearAmt
Total	$8,735	TotalAmt

Schedule D IRS990ScheduleD

Field	Value	IRS element (for citing)
Art Public Exhibition Amounts		ArtPublicExhibitionAmountsGrp
Held Works Art		HeldWorksArtGrp

CY Endwmt Fund CYEndwmtFundGrp

Field	Value	IRS element (for citing)
Beginning Year Balance	$5,293,989	BeginningYearBalanceAmt
Contributions	$92,635	ContributionsAmt
Investment Earnings Or Losses	$739,072	InvestmentEarningsOrLossesAmt
Other Expenditures	$403,000	OtherExpendituresAmt
Administrative Expenses	$67,141	AdministrativeExpensesAmt
End Year Balance	$5,655,555	EndYearBalanceAmt

CY Minus1 Yr Endwmt Fund CYMinus1YrEndwmtFundGrp

Field	Value	IRS element (for citing)
Beginning Year Balance	$4,763,517	BeginningYearBalanceAmt
Contributions	$58,749	ContributionsAmt
Investment Earnings Or Losses	$525,868	InvestmentEarningsOrLossesAmt
Administrative Expenses	$54,145	AdministrativeExpensesAmt
End Year Balance	$5,293,989	EndYearBalanceAmt

CY Minus2 Yr Endwmt Fund CYMinus2YrEndwmtFundGrp

Field	Value	IRS element (for citing)
Beginning Year Balance	$5,061,299	BeginningYearBalanceAmt
Contributions	$29,940	ContributionsAmt
Investment Earnings Or Losses	$93,294	InvestmentEarningsOrLossesAmt
Other Expenditures	$202,000	OtherExpendituresAmt
Administrative Expenses	$32,428	AdministrativeExpensesAmt
End Year Balance	$4,950,105	EndYearBalanceAmt

CY Minus3 Yr Endwmt Fund CYMinus3YrEndwmtFundGrp

Field	Value	IRS element (for citing)
Beginning Year Balance	$4,994,766	BeginningYearBalanceAmt
Contributions	$47,153	ContributionsAmt
Investment Earnings Or Losses	$179,553	InvestmentEarningsOrLossesAmt
Other Expenditures	$97,500	OtherExpendituresAmt
Administrative Expenses	$62,673	AdministrativeExpensesAmt
End Year Balance	$5,061,299	EndYearBalanceAmt

CY Minus4 Yr Endwmt Fund CYMinus4YrEndwmtFundGrp

Field	Value	IRS element (for citing)
Beginning Year Balance	$4,457,365	BeginningYearBalanceAmt
Contributions	$42,690	ContributionsAmt
Investment Earnings Or Losses	$718,381	InvestmentEarningsOrLossesAmt
Other Expenditures	$197,200	OtherExpendituresAmt
Administrative Expenses	$26,470	AdministrativeExpensesAmt
End Year Balance	$4,994,766	EndYearBalanceAmt

Field	Value	IRS element (for citing)
Board Designated Balance EOY	0.84450	BoardDesignatedBalanceEOYPct
Prmnnt Endowment Balance EOY	0.15550	PrmnntEndowmentBalanceEOYPct
Endowments Held Unrelated Org	false	EndowmentsHeldUnrelatedOrgInd
Endowments Held Related Org	Yes (true)	EndowmentsHeldRelatedOrgInd
Related Org List Sch R	Yes (true)	RelatedOrgListSchRInd
Land		LandGrp
Buildings		BuildingsGrp

Leasehold Improvements LeaseholdImprovementsGrp

Field	Value	IRS element (for citing)
Other Cost Or Other Basis	$156,545	OtherCostOrOtherBasisAmt
Depreciation	$106,502	DepreciationAmt
Book Value	$50,043	BookValueAmt

Equipment EquipmentGrp

Field	Value	IRS element (for citing)
Other Cost Or Other Basis	$71,461	OtherCostOrOtherBasisAmt
Depreciation	$19,279	DepreciationAmt
Book Value	$52,182	BookValueAmt

Other Land Buildings OtherLandBuildingsGrp

Field	Value	IRS element (for citing)
Other Cost Or Other Basis	$144,045	OtherCostOrOtherBasisAmt
Depreciation	$60,269	DepreciationAmt
Book Value	$83,776	BookValueAmt

Field	Value	IRS element (for citing)
Total Book Value Land Buildings	$186,001	TotalBookValueLandBuildingsAmt

Other Assets Org OtherAssetsOrgGrp (2 entries)

DescDesc	Book ValueBookValueAmt
INTEREST IN NET ASSETS OF AFFI	$5,655,555
DUE FROM AFFILIATE	-$17,128

Field	Value	IRS element (for citing)
Total Book Value Other Assets	$5,638,427	TotalBookValueOtherAssetsAmt
Federal Income Tax Liability	$0	FederalIncomeTaxLiabilityAmt

Other Liabilities Org OtherLiabilitiesOrgGrp

Field	Value	IRS element (for citing)
Desc	DEFERRED RENT & LEASE INCENTIV	Desc
Amt	$60,584	Amt

Field	Value	IRS element (for citing)
Total Liability	$60,584	TotalLiabilityAmt
Footnote Text	Yes (X)	FootnoteTextInd
Total Rev Etc Audited Fincl Stmt	$5,186,056	TotalRevEtcAuditedFinclStmtAmt
Net Unrealized Gains Invst	$792	NetUnrealizedGainsInvstAmt
Donated Services And Use Fclts	$22,186	DonatedServicesAndUseFcltsAmt
Other Revenue	$823,274	OtherRevenueAmt
Revenue Not Reported	$846,252	RevenueNotReportedAmt
Revenue Subtotal	$4,339,804	RevenueSubtotalAmt
Other Revenues Not Included	$403,000	OtherRevenuesNotIncludedAmt
Revenue Not Reported Fincl Stmt	$403,000	RevenueNotReportedFinclStmtAmt
Total Revenue Per Form990	$4,742,804	TotalRevenuePerForm990Amt
Tot Expns Etc Audited Fincl Stmt	$5,395,480	TotExpnsEtcAuditedFinclStmtAmt
Donated Services Use Fclts	$22,186	DonatedServicesUseFcltsAmt
Other Expenses Included	$58,708	OtherExpensesIncludedAmt
Expenses Not Reported	$80,894	ExpensesNotReportedAmt
Expenses Subtotal	$5,314,586	ExpensesSubtotalAmt
Other Expenses Not Included	$6,711	OtherExpensesNotIncludedAmt
Expenses Not Rpt Fincl Stmt	$6,711	ExpensesNotRptFinclStmtAmt
Total Expenses Per Form990	$5,321,297	TotalExpensesPerForm990Amt

Supplemental Information Detail SupplementalInformationDetail (6 entries)

Form And Line ReferenceFormAndLineReferenceDesc	ExplanationExplanationTxt
PART V, LINE 4:	THE ALLIANCE'S ENDOWMENTS CONSIST OF TWO FUNDS ESTABLISHED FOR DIFFERENT PURPOSES. THE ALLIANCE'S ENDOWMENT INCLUDE ONE TRADITIONAL DONOR-RESTRICTED ENDOWMENT FUNDS AND ONE BOARD-DESIGNATED ENDOWMENT FUND. THE BOARD-DESIGNATED ENDOWMENT FUND SOLELY CONSISTS OF THE ENDOWMENT FUND'S UNRESTRICTED NET ASSET BALANCE.
PART X, LINE 2:	Accounting principles generally accepted in the United States of America require management to evaluate income tax positions taken and accrue an income tax liability if the organization has taken an uncertain position that more likely than not would not be sustained upon examination by the Internal Revenue Service. Management has evaluated the income tax positions taken and concluded that as of December 31, 2017 there are no uncertain positions taken or expected to be taken that would require accrual of a liability in the consolidated financial statements. The Alliance is subject to routine audits by taxing jurisdictions; however, there are currently no audits in progress for any tax periods. As of December 31, 2017 the statute of limitations for tax years 2014 through 2016 remains open with the U.S. federal jurisdiction or the various states and local jurisdictions in which the Alliance files tax returns.
PART XI, LINE 2D - OTHER ADJUSTMENTS:	$823,274 REVENUES FROM RELATED ORGANIZATION
PART XI, LINE 4B - OTHER ADJUSTMENTS:	$403,000 RELATED ORGANIZATION GRANT ELIMINATED FOR CONSOLIDATED FINANCIAL STATEMENT.
PART XII, LINE 2D - OTHER ADJUSTMENTS:	$ 461,708 EXPENSES FROM RELATED ORGANIZATION $(403,000) GRANT FROM RELATED ORGANIZATION ELIMINATED FOR FS PURPOSES --------- $ 58,708 =========
PART XII, LINE 4B - OTHER ADJUSTMENTS:	$6,711 RETURNED GRANT FROM PRIOR YEAR

Schedule F IRS990ScheduleF

Field	Value	IRS element (for citing)
Grant Records Maintained	Yes (true)	GrantRecordsMaintainedInd

Account Activities Outside US AccountActivitiesOutsideUSGrp (2 entries)

RegionRegionTxt	Type Of Activities ConductedTypeOfActivitiesConductedTxt	Region Total ExpendituresRegionTotalExpendituresAmt	Specific Services ProvidedSpecificServicesProvidedTxt
Europe (Including Iceland and Greenland)	Grantmaking	$74,309
Europe (Including Iceland and Greenland)	Program Services	$34,155	PRECLINICAL TESTING

Field	Value	IRS element (for citing)
Subtotal Spent	$108,464	SubtotalSpentAmt
Total Spent	$108,464	TotalSpentAmt

Grants To Org Outside US GrantsToOrgOutsideUSGrp

Field	Value	IRS element (for citing)
Region	Europe (Including Iceland and Greenland)	RegionTxt
Purpose Of Grant	RESEARCH	PurposeOfGrantTxt
Cash Grant	$74,309	CashGrantAmt
Manner Of Cash Disbursement	WIRE	MannerOfCashDisbursementTxt
Valuation Method Used	CASH	ValuationMethodUsedDesc

Field	Value	IRS element (for citing)
Total501c3 Org	1	Total501c3OrgCnt
Transfer To Foreign Corp	false	TransferToForeignCorpInd
Interest In Foreign Trust	false	InterestInForeignTrustInd
Foreign Corp Ownership	false	ForeignCorpOwnershipInd
Passive Foreign Investmest Co	false	PassiveForeignInvestmestCoInd
Foreign Partnership	false	ForeignPartnershipInd
Boycott Countries	false	BoycottCountriesInd

Supplemental Information Detail SupplementalInformationDetail

Field	Value	IRS element (for citing)
Form And Line Reference	PART I, LINE 2:	FormAndLineReferenceDesc
Explanation	GRANTEE ORGANIZATIONS ARE EXPECTED TO FILE ANNUAL PROGRESS REPORTS TO OUTLINED GRANT GOALS AND MILESTONES. THESE REPORTS ARE REVIEWED BY A COMMITTEE OF PEERS. THIS COMMITTEE MAKES DETERMINATIONS BASED ON QUALITY OF WORK TO GOALS AND IF THE GRANTEE WILL CONTINUE TO RECEIVE FUNDING. A FINAL WRITTEN AND FINANCIAL REPORT IS REQUIRED OF ALL GRANTEES.	ExplanationTxt

Schedule G IRS990ScheduleG

Fundraising Event Information FundraisingEventInformationGrp

Field	Value	IRS element (for citing)
Event1	WALKS	Event1Nm
Gross Receipts Event1	$926,266	GrossReceiptsEvent1Amt
Charitable Contri Event1	$866,266	CharitableContriEvent1Amt
Gross Revenue Event1	$60,000	GrossRevenueEvent1Amt
Non Cash Prizes Event1	$48,476	NonCashPrizesEvent1Amt
Rent Facility Costs Event1	$18,712	RentFacilityCostsEvent1Amt
Food And Beverage Event1	$4,503	FoodAndBeverageEvent1Amt
Entertainment Event1	$4,362	EntertainmentEvent1Amt
Event2	COMEDY FOR CURE	Event2Nm
Gross Receipts Event2	$200,433	GrossReceiptsEvent2Amt
Charitable Contri Event2	$175,972	CharitableContriEvent2Amt
Gross Revenue Event2	$24,461	GrossRevenueEvent2Amt
Non Cash Prizes Event2	$74	NonCashPrizesEvent2Amt
Rent Facility Costs Event2	$11,236	RentFacilityCostsEvent2Amt
Food And Beverage Event2	$26,413	FoodAndBeverageEvent2Amt
Entertainment Event2	$1,500	EntertainmentEvent2Amt
Other Events Total	10	OtherEventsTotalCnt
Gross Receipts Other Events	$335,683	GrossReceiptsOtherEventsAmt
Charitable Contri Other Events	$302,031	CharitableContriOtherEventsAmt
Gross Revenue Other Events	$33,652	GrossRevenueOtherEventsAmt
Non Cash Prizes Other Events	$3,942	NonCashPrizesOtherEventsAmt
Rent Fclty Costs Other Events	$16,729	RentFcltyCostsOtherEventsAmt
Food And Beverage Other Events	$24,356	FoodAndBeverageOtherEventsAmt
Entertainment Other Events	$306	EntertainmentOtherEventsAmt
Gross Receipts Total	$1,462,382	GrossReceiptsTotalAmt
Charitable Contributions Tot	$1,344,269	CharitableContributionsTotAmt
Gross Revenue Total Events	$118,113	GrossRevenueTotalEventsAmt
Non Cash Prizes Total Events	$52,492	NonCashPrizesTotalEventsAmt
Rent Fclty Costs Total Events	$46,677	RentFcltyCostsTotalEventsAmt
Food And Beverage Total Events	$55,272	FoodAndBeverageTotalEventsAmt
Entertainment Total Events	$6,168	EntertainmentTotalEventsAmt
Direct Expense Summary Events	$160,609	DirectExpenseSummaryEventsAmt
Net Income Summary	-$42,496	NetIncomeSummaryAmt

Schedule I IRS990ScheduleI

Field	Value	IRS element (for citing)
Grant Records Maintained	Yes (true)	GrantRecordsMaintainedInd

Recipient Table RecipientTable (5 entries)

Address Line1USAddress/AddressLine1Txt	CityUSAddress/CityNm	State AbbreviationUSAddress/StateAbbreviationCd	ZIPUSAddress/ZIPCd	Recipient EINRecipientEIN	IRC SectionIRCSectionDesc	Cash GrantCashGrantAmt	Purpose Of GrantPurposeOfGrantTxt
BRIGHAM & WOMEN'S HOSPITAL
75 ST FRANCIS STREET	BOSTON	MA	02115	042312909	501(C)(3)	$75,000	RESEARCH GRANTS
UNIVERSITY OF TEXAS SOUTHWESTERN MEDICAL CENTER
5323 HARRY HINES BLVD	DALLAS	TX	75287	756002868	501(C)(3)	$75,000	RESEARCH GRANT
BOSTON CHILDREN'S HOSPITAL
PO BOX 414413	BOSTON	MA	02241	042774441	501(C)(3)	$131,145	RESEARCH GRANTS
PRESIDENT & FELLOWS OF HARVARD COLLEGE
PO BOX 415649	BOSTON	MA	02241	042103580	501(C)(3)	$100,000	RESEARCH GRANT
THE REGENTS OF THE UNIVERSITY OF CALIFORNIA
2150 SHATTUCK AV 300	BERKELEY	CA	94704	946002123	501(C)(3)	$75,000	RESEARCH GRANT

Field	Value	IRS element (for citing)
Total501c3 Org	5	Total501c3OrgCnt

Supplemental Information Detail SupplementalInformationDetail

Field	Value	IRS element (for citing)
Form And Line Reference	PART I, LINE 2:	FormAndLineReferenceDesc
Explanation	THE TS ALLIANCE HAS FUNDED MORE THAN $20.3 MILLION IN RESEARCH ON TSC SINCE 1984. DIRECTED BY STEVEN L. ROBERDS, PH.D, CHIEF SCIENTIFIC OFFICER, THE TS ALLIANCE RESEARCH GRANTS PROGRAM FUNDS RESEARCH FOCUSED ON TSC WITH PRIORITIES SET BY THE RESEARCHERS TOGETHER WITH THE TS ALLIANCE. COLLABORATIONS BETWEEN BASIC AND CLINICAL RESEARCHERS ARE ENCOURAGED AND FOSTERED, AND THE TS ALLIANCE IS WORKING TO INCREASE FUNDING FOR RESEARCH ON TSC. THROUGH THE TS ALLIANCE RESEARCH GRANTS PROGRAM, APPLICATIONS CAN BE SUBMITTED FOR: - POSTDOCTORAL FELLOWSHIPS - TSC RESEARCH GRANTS GRANTS ARE REVIEWED IN A THREE-STEP PROCESS: - A GRANT REVIEW COMMITTEE COMPOSED OF INDIVIDUALS KNOWLEDGEABLE ABOUT THE CLINICAL AND BASIC COMPONENTS OF TSC, REVIEW ALL GRANT APPLICATIONS FOR SCIENTIFIC MERIT, RELEVANCY TO THE FUNDING PRIORITIES OF THE ORGANIZATION AND WITH A FOCUS ON UNDERSTANDING THE MECHANISMS OF TSC AND/OR THE DEVELOPMENT OF TREATMENTS AND THERAPIES FOR THE MANIFESTATIONS OF THE DISEASE. - THE SCIENCE AND MEDICAL COMMITTEE OF THE BOARD OF DIRECTORS THEN REVIEWS THE GRANT REVIEW COMMITTEE'S CONCLUSIONS AND MAKES FUNDING RECOMMENDATIONS TO THE BOARD OF DIRECTORS. - THE BOARD OF DIRECTORS THEN REVIEWS THE RECOMMENDATIONS OF THE SCIENCE AND MEDICAL COMMITTEE AND MAKES FINAL APPROVAL FOR THE FUNDING OF GRANT APPLICATIONS.	ExplanationTxt

Schedule J IRS990ScheduleJ

Field	Value	IRS element (for citing)
Compensation Committee	Yes (X)	CompensationCommitteeInd
Form990 Of Other Organizations	Yes (X)	Form990OfOtherOrganizationsInd
Compensation Survey	Yes (X)	CompensationSurveyInd
Board Or Committee Approval	Yes (X)	BoardOrCommitteeApprovalInd
Severance Payment	false	SeverancePaymentInd
Supplemental Nonqual Rtr Plan	false	SupplementalNonqualRtrPlanInd
Equity Based Comp Arrngm	false	EquityBasedCompArrngmInd
Comp Based On Revenue Of Flng Org	Yes (true)	CompBasedOnRevenueOfFlngOrgInd
Comp Bsd On Rev Related Orgs	false	CompBsdOnRevRelatedOrgsInd
Comp Bsd Net Earns Flng Org	Yes (true)	CompBsdNetEarnsFlngOrgInd
Comp Bsd Net Earns Rltd Orgs	false	CompBsdNetEarnsRltdOrgsInd
Any Non Fixed Payments	false	AnyNonFixedPaymentsInd
Initial Contract Exception	false	InitialContractExceptionInd

Rltd Org Officer Trst Key Empl RltdOrgOfficerTrstKeyEmplGrp (3 entries)

TitleTitleTxt	Base Compensation Filing OrgBaseCompensationFilingOrgAmt	Compensation Based On Rltd OrgsCompensationBasedOnRltdOrgsAmt	Bonus Filing OrganizationBonusFilingOrganizationAmount	Other Compensation Filing OrgOtherCompensationFilingOrgAmt	Deferred Compensation Flng OrgDeferredCompensationFlngOrgAmt	Deferred Comp Rltd OrgsDeferredCompRltdOrgsAmt	Nontaxable Benefits Filing OrgNontaxableBenefitsFilingOrgAmt	Nontaxable Benefits Rltd OrgsNontaxableBenefitsRltdOrgsAmt	Total Compensation Filing OrgTotalCompensationFilingOrgAmt	Total Compensation Rltd OrgsTotalCompensationRltdOrgsAmt	Comp Report Prior990 Filing OrgCompReportPrior990FilingOrgAmt	Comp Report Prior990 Rltd OrgsCompReportPrior990RltdOrgsAmt
KARI L ROSEBECK
PRESIDENT & CEO	$169,094	$0	$23,012	$138	$5,945	$0	$25,248	$0	$223,437	$0	$0	$0
RICHARD A GOLLUB
CONTROLLER & CFO	$129,671	$0	$17,457	$396	$4,647	$0	$31,617	$0	$183,788	$0	$0	$0
STEVEN L ROBERDS
CHIEF SCIENTIFIC OFFICER	$177,431	$0	$23,517	$138	$6,234	$0	$27,498	$0	$234,818	$0	$0	$0

Supplemental Information Detail SupplementalInformationDetail (3 entries)

Form And Line ReferenceFormAndLineReferenceDesc	ExplanationExplanationTxt
PART I, LINE 5A:	KARI LUTHER ROSBECK, RICHARD GOLLUB, STEVE ROBERDS, JAYE ISHAM AND LISA MOSS ALL HAVE INCENTIVE COMPENSATION EQUAL TO A PERCENTAGE OF THEIR SALARIES BASED ON KEY PERFORMANCE OBJECTIVES AS ESTABLISHED BY THE COMPENSATION COMMITTEE.
PART I, LINE 6A:	KARI LUTHER ROSBECK, RICHARD GOLLUB, STEVE ROBERDS, JAYE ISHAM AND LISA MOSS ALL HAVE INCENTIVE COMPENSATION EQUAL TO A PERCENTAGE OF THEIR SALARIES BASED ON KEY PERFORMANCE OBJECTIVES AS ESTABLISHED BY THE COMPENSATION COMMITTEE.
PART I & PART II:	KARI LUTHER ROSBECK AND RICHARD GOLLUB ARE EMPLOYEES OF TUBEROUS SCLEROSIS ALLIANCE AND ARE COMPENSATED THROUGH TS ALLIANCE. THESE INDIVIDUALS SERVE THE ENDOWMENT WITHOUT COMPENSATION.

Schedule M IRS990ScheduleM

Field	Value	IRS element (for citing)
Works Of Art		WorksOfArtGrp
Art Historical Treasures		ArtHistoricalTreasuresGrp
Art Fractional Interest		ArtFractionalInterestGrp
Books And Publications		BooksAndPublicationsGrp
Clothing And Household Goods		ClothingAndHouseholdGoodsGrp
Cars And Other Vehicles		CarsAndOtherVehiclesGrp
Boats And Planes		BoatsAndPlanesGrp
Intellectual Property		IntellectualPropertyGrp

Securities Publicly Traded SecuritiesPubliclyTradedGrp

Field	Value	IRS element (for citing)
Non Cash Checkbox	Yes (X)	NonCashCheckboxInd
Contribution	11	ContributionCnt
Noncash Contributions Rpt F990	$115,040	NoncashContributionsRptF990Amt
Method Of Determining Revenues	FMV	MethodOfDeterminingRevenuesTxt

Field	Value	IRS element (for citing)
Securities Closely Held Stock		SecuritiesCloselyHeldStockGrp
Secur Prtnrshp Trust Intrsts		SecurPrtnrshpTrustIntrstsGrp
Securities Miscellaneous		SecuritiesMiscellaneousGrp
Qualified Contrib Hist Struct		QualifiedContribHistStructGrp
Qualified Contrib Other		QualifiedContribOtherGrp
Real Estate Residential		RealEstateResidentialGrp
Real Estate Commercial		RealEstateCommercialGrp
Real Estate Other		RealEstateOtherGrp
Collectibles		CollectiblesGrp
Food Inventory		FoodInventoryGrp
Drugs And Medical Supplies		DrugsAndMedicalSuppliesGrp
Taxidermy		TaxidermyGrp
Historical Artifacts		HistoricalArtifactsGrp
Scientific Specimens		ScientificSpecimensGrp
Archaeological Artifacts		ArchaeologicalArtifactsGrp

Other Non Cash Contri Table OtherNonCashContriTableGrp

Field	Value	IRS element (for citing)
Non Cash Checkbox	Yes (X)	NonCashCheckboxInd
Desc	MISCELLANEOUS ITEMS	Desc
Contribution	2	ContributionCnt
Noncash Contributions Rpt F990	$747	NoncashContributionsRptF990Amt
Method Of Determining Revenues	DONOR'S VALUE	MethodOfDeterminingRevenuesTxt

Field	Value	IRS element (for citing)
Any Property That Must Be Held	false	AnyPropertyThatMustBeHeldInd
Review Process Unusual NC Gifts	false	ReviewProcessUnusualNCGiftsInd
Third Parties Used	false	ThirdPartiesUsedInd

Schedule O IRS990ScheduleO

Supplemental Information Detail SupplementalInformationDetail (13 entries)

Form And Line ReferenceFormAndLineReferenceDesc	ExplanationExplanationTxt
FORM 990, PART III, LINE 4A, RESEARCH PROGRAM:	Research Program stimulates and supports basic, translational, and clinical research on the various manifestations of tuberous sclerosis complex (TSC) to further the development of clinical therapies and, ultimately, a cure for TSC. Directed by Steven L. Roberds, PhD, Chief Scientific Officer, the TS Alliance research program funds research focused on TSC proposed by researchers and aligned with the research priorities of the TS Alliance. Collaborations between basic and clinical researchers are encouraged and fostered, for example, by biennial International TSC Research Conferences. The TS Alliance has funded more than $20.3 million in research grants on TSC since 1984. Through the TS Alliance research grants program, applications can be submitted for postdoctoral fellowships and research grants. Grants are reviewed in a three-step process: (1) all grant applications are reviewed by a committee comprised of scientists knowledgeable about the topic area for scientific merit and of adults affected by TSC for potential impact on the lives of those affected by TSC; (2) the Science and Medical Committee of the Board of Directors evaluates the grant review committees recommendations and the relevance of the applications to the TS Alliances funding priorities; and (3) the Board of Directors then reviews the recommendations of the Science and Medical Committee and makes final approval for funding. A total of 8 research awards were funded during 2017. In 2016, Dr. Peter Davis (Boston Childrens Hospital) was awarded one year of funding to study brain network biomarkers of epilepsy in TSC to identify those at highest risk of developing seizures. In 2017, he applied for and was granted an additional year of funding to extend his work to correlate EEG network biomarkers with epilepsy severity and treatment response. The Board of Directors approved funding to begin in 2018 for three additional projects. Also in 2017, we continued to support six research grants awarded in previous years. Implemented in 2006, the TSC Natural History Database captures clinical data to document the impact of the disease on a persons health over their lifetime. As of December 2017, 2,124 people with TSC were enrolled in the project from among 18 U.S.-based sites. The TS Alliance provides funding to participating clinics to perform data entry, monitors the integrity of the database, and makes data available to investigators to answer specific research questions and identify potential participants for clinical trials and studies. In 2017, the TS Alliance invested $222,524 in the TSC Natural History Database and implemented sub-projects on TAND and epilepsy while continuing sub-projects on renal angiomyolipomas and subepyndymal giant cell astrocytomas to address detailed questions about these life-threatening manifestations of TSC. A contract with Novartis executed in November 2012 provided TS Alliance with funding to enhance and grow the depth of data in the TSC Natural History Database through 2018. The TSC Biosample Repository is a TS Alliance-directed project initiated in 2014 that will impact research over the next ten years or more. High-quality biosamples such as blood, DNA, and tissues linked to detailed clinical data are required for researchers to understand why TSC is so different from person to person. The TS Alliances Science and Medical Committee identified this as a gap that can only be filled effectively with leadership of the TS Alliance, guided by a steering committee of clinicians and researchers. The TSC Biosample Repository ended 2017 with 397 biosamples: 251 blood, buccal cell, or tissue samples from individuals with TSC enrolled in the TSC Natural History Database, and an additional 146 samples from the Rare Disease Clinical Research Networks Developmental Synaptopathies Consortium and the Preventing Epilepsy Using Vigabatrin in Infants with Tuberous Sclerosis Complex (PREVeNT) clinical trial. Samples in the repository are linked to detailed clinical data in our existing TSC Natural History Database and are available to qualified researchers worldwide. Samples are housed at and distributed from the Van Andel Institute in Grand Rapids, Michigan, under control of the TS Alliance. The TS Alliance launched the TSC Preclinical Consortium in 2015, which enables prioritization of candidate treatments based on comparing head-to-head data using consistent animal models and rigorous testing procedures. The TS Alliance is ideally positioned to drive this collaboration - with input from academic, regulatory, and industry stakeholders - by maintaining constant focus on the needs of people with TSC. To drive this project, the TS Alliance contracted with Dr. Daniela Brunner, who has more than 20 years of experience validating in vivo experimental protocols and testing drugs in many animal models of developmental, psychiatric, and neurodegenerative diseases. The TS Alliance has licenses to use specific TSC mouse models for experiments carried out by the Preclinical Consortium, and all mouse license agreements include the rights for the TS Alliance to perform experiments under contract for commercial entities. This ensures data generated by the Preclinical Consortium can be used to accelerate the development of new treatments by commercial entities as well as academic investigators. The consortium began running epilepsy experiments in August 2016 at PsychoGenics, a contract research organization. Tumor experiments began in August 2017 at Porsolt, another contract research organization. Three pharmaceutical companies joined the Preclinical Consortium in 2017, bringing the total to six industry partners. The TSC Preclinical Research Consortium ran ten studies in 2017, compared to just four in 2016. Some of the consortiums early results were shared by TS Alliance and PsychoGenics scientists at the National Organization for Rare Disorders conference, the Society for Neuroscience annual meeting, and the American Epilepsy Society annual meeting in Washington, DC. The TS Alliance continued to be a key part of the TSC Clinical Research Consortium although only a small amount of TS Alliance financial support was required because of the consortiums success in obtaining NIH funding. Now consisting of seven sites - Boston Childrens Hospital, Cincinnati Childrens Hospital, the University of Alabama at Birmingham, the University of Texas Health Science Center at Houston, UCLA, Stanford University, and Minnesota Epilepsy Group - the consortium has received $29 million in competitive grant funding from the National Institutes of Health (NIH) to support clinical studies in TSC. The Clinical Research Consortium is making history with the PREVeNT trial - preventing epilepsy using vigabatrin in infants with tuberous sclerosis complex. PREVeNT is the first preventative trial for any form of epilepsy in the US and began enrolling participants in December 2016. The PREVeNT trial builds directly upon the Consortiums first clinical study from which interim results have been published (www.ncbi.nlm.nih.gov/pubmed/26498039) showing that all infants who developed abnormal activity on EEGs went on to develop seizures. This trial will determine whether treatment with vigabatrin prior to the onset of clinical seizures in TSC is beneficial to childrens developmental and neurologic outcomes. The TS Alliances Chief Scientific Officer serves on the consortiums leadership team. The TS Alliance and The LAM Foundation jointly sponsored the 2017 International Research Conference on TSC and LAM: Innovating through Partnerships, held June 22-24, 2017, at the Hyatt Regency Capitol Hill in Washington, DC. More than 200 people, including 183 professional attendees from 27 countries, participated in scientific sessions featuring oral presentations, a poster session, and working groups of researchers tackling specific issues related to genetic, multidisciplinary clinical care, and translational research strategies. The conference concluded with a joint session including individuals and families affected by tuberous sclerosis complex (TSC) and lymphangioleiomyomatosis (LAM). This session highlighted how quickly the fields of TSC and LAM treatment are moving and emphasized the need for further collaboration between individuals with TSC or LAM and their families, clinicians and researchers to accelerate the development of greatly improved treatments for these disorders. EXPENSES $2,752,226. INCLUDING GRANTS OF $535,454 REVENUES $796,617.
FORM 990, PART III, LINE 4B, SUPPORT SERVICES:	Support Services develops programs and services that provide individuals with TSC direct access to information, resources, and specialists experienced in the diagnosis, treatment and management of TSC. The Support Services Department provided support and resources to 3,547 individuals and families dealing with TSC throughout 2017. The Vice President, Support Services attended 74 school meetings (IEPs, Evaluation Team Meetings, 504 Plan Meetings, Resolution Meetings, and Mediations) in person, through SKYPE or Facetime, and via conference calls to support families in attaining educational services for their children throughout the country. Through collaborations with the Parent Training and Information Centers in 2017, 3,005 free parent trainings/webinars on educational advocacy were offered to families in 32 states dealing with educational issues for their children. In addition, 128 school systems offered the support of the Educator Mentor Program in 2017. The Vice President, Support Services provided four school systems with training on "TSC and Learning" to hlep provide better educational outcomes for students with TSC. Through a network of 37 volunteer branches of the organization, called Community Alliances, local education and support group meetings were held throughout the country. Through these Community Alliances, the TS Alliance hosted 57 educational meetings and gatherings throughout the year. In 2017, the TS Alliance of Maryland was launched, and the TS Alliance of DC Metro and TS Alliance of Virginia were merged to reflect the overlapping constituencies. The TS Alliance facilitated 20,247 peer-to-peer supports from Adult Regional Coordinators, Clinic Ambassadors, Dependent Adult Transition Resource Coordinators, and through the Community Alliances. In 2017, the TS Alliance hosted two Regional TSC and LAM Conferences in Houston, TX and Washington, DC with 118 combined attendees. These conferences, co-hosted by The LAM Foundation, brought together individuals, parents, caregivers and members of the medical community to provide the most up-to-date information so parents and adults with TSC and LAM can make informed decisions when evaluating treatment options. These one-day symposiums offered educational outreach, information on the latest treatments in TSC and LAM, research updates, and support options. Regional TSC and LAM Conferences provide much-needed forums for the growing number of people facing the daily challenges of TSC. The TS Alliance also held two Transition Workshops in New York, NY and San Diego, CA. The combine dattendance at these workshops was 58. The goal of these all-day transition workshops was to give parents and caregivers tangible resources to empower them with resources, clear timelines and next steps to develop an effective transition plan for their children. The TS Alliance partnered with Arc USA, Child Neurology Foundation and Mass Mutual because these organizations have pre-existing tools and best practices to assist through different aspects of the transition plan, and their expertise was vital to families in attendance. Global Outreach works to address unmet needs within the global TSC community. The program provides the opportunity for the TS Alliance to share experiences and assist in the start-up of support of TSC-related organizations in other countries. A global alliance is a structured group of empowered and caring volunteers who work closely with the TS Alliance to facilitate local connections for individuals and families affected by TSC, and raise revenue and awareness while supporting the mission of the organization. In 2017, the TS Alliance signed a global agreement with the Hungarian Foundation for Tuberous Sclerosis. The TS Alliance now has five global partnerships, including: TS Alliance of Israel, TS Canada ST, TS Alliance of Mexico, TS Alliance Foundation (in Thailand) and the Hungarian Foundation for Tuberous Sclerosis. EXPENSES $773,653. INCLUDING GRANTS OF $-0- REVENUES $9,774.
FORM 990, PART III, LINE 4C, PUBLIC HEALTH EDUCATION:	Public Health Education heightens awareness of TSC throughout the general public to broaden the scope of support and understanding beyond TSC individuals and their families. During 2017, the TS Alliance produced three issues of its national magazine, Perspective, which is mailed to almost 17,000 constituents as well as posted on the website. The TS Alliances website increases awareness and provides extensive education through an average of more than 30,000 unique visitors each month. The TS Alliance also relies heavily on social media to educate constituents and promote new resources and events. Its Facebook Group boasts more than 8,600 members, while its Twitter account has 1,800-plus followers. To increase public awareness, the TS Alliance once again participated in TSC Global Awareness Day on May 15 as well as TSC Awareness Month thoughout May; a TSC Global Awareness Day news release garnered 12.1 million impressions. The TS Alliance again heavily promoted Infantile Spasms Awareness Week, December 1 to 7. This awareness campaign included targeted social media outreach and a satellite media tour, which gained coverage from 16 media outlets reaching a potential of 1.2 million. A news release about the TS Alliance's "Voice of the Patient Report" being submitted to the FDA resulted in 18.8 million media impressions. EXPENSES $322,284. INCLUDING GRANTS OF $-0- REVENUES $2,600.
FORM 990, PART III, LINE 4D, OTHER PROGRAM SERVICES:	Government Relations focuses on educating members of Congress about TSC to further TSC research, awareness and clinical care. The annual TS Alliance March on Capitol Hill to advocate for federal funding for the Tuberous Sclerosis Complex Research Program (TSCRP) at the Department of Defenses (DoD) Congressionally Directed Medical Research Program (CDMRP) took place in late February 2017. More than 100 members of the TSC community participated and asked their senators and representatives to sign onto Dear Colleague letters in support of the TSCRP. Many other advocates who were not able to travel to Washington, DC met with their senators and representatives in their home states to make the case for continued funding. In the House, 160 Democratic and Republican Representatives signed a bipartisan Dear Colleague letter of support from Representatives Dave Loebsack (D-IA) and Ileana Ros-Lehtinen (R-FL). The Senate letter was sponsored by Senators Chris Murphy (D-CT) and Johnny Isakson (R-GA) and ended with 24 signatures. In FY2017, the TSC Research Program at the CDMRP received a $6 million appropriation, bringing the cumulative funding to $71 million since 2002 as a result of our successful grassroots efforts. Funding for FY2018 is pending on Congress passing the FY2018 budget but is currently included in the Houses 2018 Defense Appropriations Act at $6 million. Research performed through this program has recently led to additional clinical trials including determining if imatinib, a drug FDA-approved for cancer, can safely improve levels of VEGF-D, a biomarker of lymphangioleiomyomatosis (LAM), a life-threatening lung manifestation of TSC, funded in FY2013; testing a combination of two drugs to treat LAM funded in FY2012; a multi-site clinical trial testing the efficacy of an experimental topical rapamycin cream to treat the disfiguring facial tumors, called facial angiofibromas, caused by TSC funded in FY2010; a clinical research network was created to test potential new therapies, to validate biomarkers, and to learn the natural history of leading to a clinical trial funded in FY2012. Building upon FY2010-funded research on glutamate receptors (mGluR5), several companies are now looking at the link between cognitive impairments in TSC to autism, anxiety, and other mental disorders. The TSCRP has also funded research to develop animal models of TSC that have seizures, enabling a better understanding of the etiology of TSC. Based on data from TSCRP-funded animal models of TSC that have seizures and share pathology related to that of traumatic brain injury, an industry-sponsored clinical trial demonstrated the effectiveness the mTOR inhibitor, everolimus, at treating epilepsy in many individuals with TSC. None of this progress would have been possible without the critical support provided through the TSCRP. Additional Government Relations efforts included a Congressional Briefing, in partnership with the Infantile Spasms Action Network, on Capitol Hill on December 5, 2017. Congressional staff and key members of the TSC research and grassroots communities attended the event. Professional Education expands programs to target researchers and healthcare providers caring for individuals with TSC, medical students, genetic counselors and educators to minimize the consequences of ignorance and misinformation. The TS Alliance participated in and presented at 36 professional meetings including: American Thoracic Society and the ATS Leadership Summit; Child Neurology Society; Society for Neuroscience; National Arc Convention; Global Geners; NINDS Biomarkers Workshop; NICHD Workshop "Looking to the Future: The Next 50 Years of Intellectual and Developmental Disabilities Research Trans-NIH TSC meeting; Health Research Alliance members meetings; Research Roundtable in Epilepsy; Association of Clinical Research Professionals; Externally-Led Patient Focused Drug Development Meeting on TSC and LAM; International Research Conference on TSC and LAM; TSC/LAM Regional Conference in Houston; PKD Foundation; ICARE (Interagency Collaborative to Advance Research in Epilepsy); NINDS Nonprofit Forum; NCATS Toolkit for Patient-Focused Therapy Development; FDA CDER Public Workshop: Strategies, Tools, and Best Practices for Effective Advocacy in Rare Diseases Drug Development; Children's Tumor Foundation Research Consortium; Epilepsy Foundations Cannabinoid Signaling in Epilepsy workshop; World Orphan Drug Congress; NORD Orphan Products and Breakthrough Summit; Simons Foundation workshop on patient registries for neurodevelopmental disorders; Open Research Funders Group; BIO Patient Health and Advocacy Summit; the Arc National Convention; Infantile Spasms Action Network; REN Outcomes in Epilepsy Workshop; Refractory Epilepsy in Children at Sourasky Medical Center in Israel; LGS Family Conference; and The LAM Foundation Patient Benefit Conference and LAMposium LA. In addition, at the American Epilepsy Society meeting the TS Alliance presented in the Discovery Center and the poster session, and hosted more than 100 guests at a reception for TSC researchers. At the conference the TS Alliance also participated in a Special Interest Group meeting on TSC. In addition, the Vice President, Support Services continues to collaborate with national educational networks, including The Arc USA, Parent Training Information Centers across the country and the Association for Middle Level Education. EXPENSES $230,179. INCLUDING GRANTS OF $-0- REVENUES $15,250.
FORM 990, PART VI, SECTION A, LINE 4:	THE BYLAWS OF NATIONAL TUBEROUS SCLEROSIS ASSOCIATION, INC. WERE AMENDED AS OF OCTOBER 2017 FOR THE FOLLOWING: 1. UPDATED THE LANGUAGE REGARDING ESTABLISHMENT AND TERMS OF MEMBERSHIP IN THE ORGANIZATION, THE RENEWAL PROCESS FOR MEMBERSHIP AND THAT "LIFETIME MEMBERS" ARE NOT REQUIRED TO SUBMIT MEMBERSHIP RE-APPLICATIONS. 2. CREATED NEW SECTION UNDER ORGANIZATION AND MEMBERSHIP TO RECLASS THE MANNER OF MEMBER VOTING AND EXPANDED THE LANGUAGE ON THE VOTING PROCESS. 3. CREATED NEW SECTION UNDER ORGANIZATION AND MEMBERSHIP FOR MEETINGS CONDUCTED BY ELECTRONIC TRANSMISSION.
FORM 990, PART VI, SECTION A, LINE 6:	MEMBERSHIP IS AVAILABLE TO ANY PERSON WHO SUBSCRIBES TO THE PURPOSES AND OBJECTIVES OF THE CORPORATION, WITHOUT REGARD TO RACE, RELIGION, GENDER, SEXUAL ORIENTATION, AGE, COLOR, NATIONAL ORIGIN OR MENTAL OR PHYSICAL HANDICAP OR DISABILITY. THERE SHALL BE NO LIMIT TO THE NUMBER OF MEMBERS IN THE CORPORATION. 1) THERE MAY BE ONE OR MORE CLASSES OF MEMBERSHIP AS DETERMINED BY THE BOARD. 2) MEMBERSHIP IS NOT TRANSFERABLE OR ASSIGNABLE.
FORM 990, PART VI, SECTION A, LINE 7A:	THE TS ALLIANCE IS A MEMBERSHIP-BASED ORGANIZATION, WHICH MEANS MEMBERS HELP ELECT THE BOARD OF DIRECTORS. THE TS ALLIANCE MEMBERSHIP PROGRAM ALLOWED INDIVIDUALS TO STATE THEIR INTENT TO BE A MEMBER FOR THE PURPOSE OF GOVERNANCE. THERE WERE NO LEVELS TO MEMBERSHIP IN 2017. ANYONE CAN BE A MEMBER AT NO COST.
FORM 990, PART VI, SECTION B, LINE 11:	THE FORM 990 IS REVIEWED, IN DETAIL, BY THE BOARD OF DIRECTORS' AUDIT COMMITTEE. RECOMMENDATIONS ARE MADE BY THE COMMITTEE MEMBERS FOR ANY CHANGES/EDITS/ADDITIONS. AFTER THOSE HAVE BEEN INCORPORATED, THE AUDIT COMMITTEE VOTES WHETHER TO APPROVE AND THEN FORWARD THE 990 TO THE FINANCE AND EXECUTIVE COMMITTEES. THE FINANCE AND EXECUTIVE COMMITTEES PERFORM THE FINAL REVIEW AND THEN VOTE WHETHER TO APPROVE ON BEHALF OF THE BOARD OF DIRECTORS. A COPY OF THE APPROVED 990 IS SHARED WITH THE ENTIRE BOARD.
FORM 990, PART VI, SECTION B, LINE 12C:	ANNUALLY EACH MEMBER OF THE BOARD OF DIRECTORS WILL RECEIVE NOTICE OF THE ORGANIZATION'S CONFLICT OF INTEREST STATEMENT. EACH MEMBER WILL BE PROVIDED WITH A STATEMENT TO MAKE DISCLOSURE OF ANY POTENTIAL CONFLICT OF INTEREST. IF DURING THE COURSE OF THE YEAR A POTENTIAL CONFLICT OF INTEREST ARISES THAT HAS NOT PREVIOUSLY BEEN DISCLOSED, THE BOARD MEMBER WILL MAKE WRITTEN NOTICE OF A POTENTIAL CONFLICT OF INTEREST AND RECUSE HIMSELF OR HERSELF FROM ANY DISCUSSIONS AND VOTES IN CONNECTION WITH THE ISSUE IDENTIFIED. ANY TIME A MEMBER IS RECUSED FROM DISCUSSION ON AN ISSUE, THE MINUTES OF COMMITTEE MEETING AND BOARD MEETING WILL DULY RECORD SUCH ACTIONS. THE FOLLOWING POTENTIAL CONFLICTS OF INTEREST WERE DISCLOSED FOR 2017: BOARD MEMBER BRENDAN MANNING, PH.D, IS EMPLOYED AT HARVARD COLLEGE, WHICH RECEIVED $100,000 ROTHBERG COURAGE AWARD GRANT TO STUDY REPURPOSING APPROVED INHIBITORS OF PURINE SYNTHESIS FOR TSC TREATMENT. BOARD MEMBER MARTINA BEBIN, MD IS EMPLOYED BY THE UNIVERSITY OF ALABAMA BIRMINGHAM, WHICH RECEIVED A $6,700 FEE FOR SERVICE FOR ENTERING DATA INTO THE NATURAL HISTORY DATABASE AND A $5,000 GRANT TO PROVIDE TRANSPORTATION TO PARTICIPANTS IN THE PREVENT STUDY. COMMITTEE MEETING AND BOARD MEETING WILL DULY RECORD SUCH ACTIONS.
FORM 990, PART VI, SECTION B, LINE 15:	THE COMPENSATION COMMITTEE REVIEWS AND APPROVES THE SALARIES OF THE PRESIDENT/CEO, CHIEF SCIENTIFIC OFFICER, CONTROLLER & CFO, AND ANY EMPLOYEE APPEARING ON THE FORM 990, IN ACCORDANCE WITH THE TUBEROUS SCLEROSIS ALLIANCE BYLAWS. SUCH REVIEW AND APPROVAL OCCURS INITIALLY UPON HIRING, UPON ANNUAL REVIEWS AND WHENEVER MODIFIED. THE ORGANIZATION'S EXECUTIVE REMUNERATION HAS BEEN STRUCTURED TO ENSURE THAT IT: IS REASONABLE; PROVIDES A COMPETITIVE COMPENSATION PROGRAM TO RETAIN, ATTRACT AND REWARD KEY EMPLOYEES AND ACHIEVES CLEAR ALIGNMENT BETWEEN TOTAL REMUNERATION AND DELIVERED BUSINESS AND PERSONAL PERFORMANCE OVER THE SHORT AND LONG-TERMS. THE COMPENSATION IS REVIEWED BY THE COMPENSATION COMMITTEE TO ENSURE: - COMPARABILITY, - PROPER REVIEW, AND - SUBSTANTIATION IN SETTING THE COMPENSATION.
FORM 990, PART VI, SECTION C, LINE 19:	ALL GOVERNING DOCUMENTS, CONFLICT OF INTEREST POLICY AND FINANCIAL STATEMENTS ARE AVAILABLE UPON WRITTEN REQUEST.
FORM 990, PART XI, LINE 9, CHANGES IN NET ASSETS:	$361,566 CHANGE IN INTEREST IN AFFLIIATE $ 6,711 PRIOR YEAR GRANT RETURNED -------- $368,277 TOTAL OTHER CHANGES IN NET ASSETS ========
FORM 990, PART XII, LINE 2C	THE AUDIT REVIEW PROCESS HAS REMAINED UNCHANGED FROM THE PRIOR YEAR.

Schedule R IRS990ScheduleR

Id Related Tax Exempt Org IdRelatedTaxExemptOrgGrp

Disregarded Entity Name DisregardedEntityName

Field	Value	IRS element (for citing)
Business Name Line1	TUBEROUS SCLEROSIS ALLIANCE ENDOWMENT FD	BusinessNameLine1Txt

US Address USAddress

Field	Value	IRS element (for citing)
Address Line1	801 ROEDER ROAD STE 750	AddressLine1Txt
City	SILVER SPRING	CityNm
State Abbreviation	MD	StateAbbreviationCd
ZIP	20910	ZIPCd

Field	Value	IRS element (for citing)
EIN	521926919	EIN
Primary Activities	SUPPORT ORG	PrimaryActivitiesTxt
Legal Domicile State	MD	LegalDomicileStateCd
Exempt Code Section	501(C)(3)	ExemptCodeSectionTxt
Public Charity Status	11B, III	PublicCharityStatusTxt
Controlled Organization	false	ControlledOrganizationInd

Field	Value	IRS element (for citing)
Receipt Of Int Annts Rnts Rylts	false	ReceiptOfIntAnntsRntsRyltsInd
Gift Grnt Or Cap Contri To Oth Org	false	GiftGrntOrCapContriToOthOrgInd
Gift Grnt Cap Contri From Oth Org	Yes (true)	GiftGrntCapContriFromOthOrgInd
Loans Or Guarantees To Other Org	false	LoansOrGuaranteesToOtherOrgInd
Loans Or Guarantees From Oth Org	false	LoansOrGuaranteesFromOthOrgInd
Div Related Organization	false	DivRelatedOrganizationInd
Asset Sale To Other Org	false	AssetSaleToOtherOrgInd
Asset Purchase From Other Org	false	AssetPurchaseFromOtherOrgInd
Asset Exchange	false	AssetExchangeInd
Rental Of Facilities To Oth Org	false	RentalOfFacilitiesToOthOrgInd
Rental Of Fclts From Oth Org	false	RentalOfFcltsFromOthOrgInd
Perform Of Services For Oth Org	false	PerformOfServicesForOthOrgInd
Perform Of Services By Other Org	false	PerformOfServicesByOtherOrgInd
Sharing Of Facilities	Yes (true)	SharingOfFacilitiesInd
Paid Employees Sharing	Yes (true)	PaidEmployeesSharingInd
Reimbursement Paid To Other Org	false	ReimbursementPaidToOtherOrgInd
Reimbursement Paid By Other Org	false	ReimbursementPaidByOtherOrgInd
Transfer To Other Org	false	TransferToOtherOrgInd
Transfer From Other Org	false	TransferFromOtherOrgInd

Transactions Related Org TransactionsRelatedOrgGrp

Other Organization Name OtherOrganizationName

Field	Value	IRS element (for citing)
Business Name Line1	TUBEROUS SCLEROSIS ALLIANCE ENDOWMENT FUND	BusinessNameLine1Txt

Field	Value	IRS element (for citing)
Transaction Type	C	TransactionTypeTxt
Involved	$403,000	InvolvedAmt
Method Of Amount Determination	CASH	MethodOfAmountDeterminationTxt