CYSTIC FIBROSIS FOUNDATION THERAPEUTICS INC
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Cite this
Plain text CYSTIC FIBROSIS FOUNDATION THERAPEUTICS INC. furp.org, nonprofit organization profile, tax years 2010–2024. https://furp.org/org/cystic-fibrosis-foundation-therapeutics-inc-912059167. Retrieved 2026-11-10.
APA furp.org. (n.d.). CYSTIC FIBROSIS FOUNDATION THERAPEUTICS INC [Nonprofit organization profile; tax years 2010–2024]. Retrieved November 10, 2026, from https://furp.org/org/cystic-fibrosis-foundation-therapeutics-inc-912059167
MLA “CYSTIC FIBROSIS FOUNDATION THERAPEUTICS INC.” furp.org, tax years 2010–2024, https://furp.org/org/cystic-fibrosis-foundation-therapeutics-inc-912059167. Accessed 10 Nov. 2026.
Retrieved 2026-11-10; covers tax years 2010–2024. Data: furp.org (index © the FURP Alliance; the records are public domain).
2024 · Form 990EZ · revenue $0 · expenses $0 · assets $0
- Also known as
- THERAPEUTICS INC
- EIN
- 91-2059167
- Address
- 4550 MONTGOMERY AVE STE 1100N, BETHESDA, MD 20814-3732
- Website
- WWW.CFF.ORG
- NTEE code
- U50 Biological & Life Sciences (Science and Technology) published (IRS Business Master File)
- FURP topic
- science: research education (from its 990 text; the topic index)
- Exempt type
- 501(c)(3): charitable, religious, educational, scientific or literary (corporation)
- Ruling date
- November 2000 (when the IRS recognized its exemption)
- IRS status
- Exempt (unconditional) (IRS Business Master File) IRS data ↗
- Tax-deductible donations
- Yes: listed in IRS Publication 78 (supporting organization) Pub 78 ↗
- Foundation status
- Supporting organization, 509(a)(3)
- Cross-check
- ProPublica Nonprofit Explorer
Mission
THE MISSION IS TO CURE CYSTIC FIBROSIS AND TO PROVIDE ALL PEOPLE WITH CF THE OPPORTUNITY TO LEAD LONG, FULFILLING LIVES.
Each tax year counts once: when a return was amended, only the latest return for that period is used below (superseded returns stay listed, greyed, under Finances).
People paid by the organization
17 people paid across every filing: current people first, then by total pay from this organization. Organizations counts every nonprofit each person appears on.
| Name | Latest title | Years | Latest year pay | Total pay from here | Organizations |
|---|---|---|---|---|---|
| Michael P Boyle Md | PRESIDENT/DIRECTOR | 2015-2024 | $0 | $1,341,331 | 2 |
| Robert J Beall Phd (former) | FORMER CEO | 2010-2017 | $439,043 | $9,226,772 | 3 |
| Preston Campbell Md (former) | PRESIDENT & CEO | 2010-2017 | $1,409,782 | $7,680,512 | 3 |
| C Richard Mattingly (former) | FORMER COO | 2010-2017 | $197,010 | $6,929,802 | 3 |
| Vera H Twigg (former) | TREASURER/DIRECTOR (UNTIL 07/2021) | 2010-2021 | $0 | $4,168,910 | 3 |
| Bruce Marshall Md (former) | SENIOR VP OF CLINICAL AFFAIRS | 2010-2017 | $564,279 | $3,438,180 | 2 |
| Martin Mense Phd (former) | VP OF DRUG DISCOVERY | 2010-2017 | $320,252 | $1,662,047 | 1 |
| William Skach Md (former) | SENIOR VP , RESEARCH AFFAIRS | 2015-2017 | $563,157 | $1,362,157 | 2 |
| Marc S Ginsky (former) | COO/DIRECTOR (UNTIL 07/2021) | 2016-2021 | $0 | $1,344,406 | 2 |
| Hermann Bihler Phd (former) | FELLOW SCIENTIST | 2012-2017 | $200,014 | $856,812 | 1 |
| Elizabeth Joseloff Phd (former) | DIRECTOR, INTEGRATIVE BIOLOGY | 2011-2017 | $191,027 | $644,768 | 1 |
| Feng Liang Phd (former) | SENIOR SCIENTIST | 2014-2017 | $202,247 | $569,587 | 1 |
| Cynthia George Msn Fnp Bc (former) | DIR OF CLINICAL RES RESOURCES | 2010-2013 | $140,932 | $520,940 | 1 |
| Theodore J Torphy Phd (former) | CHAIR | 2010-2017 | $0 | $457,600 | 3 |
| David Mcloughlin (former) | SR. VP OF OPERATIONS | 2015 | $421,928 | $421,928 | 2 |
| Jerome Mahiou Phd (former) | SENIOR SCIENTIST | 2016-2017 | $202,317 | $392,748 | 1 |
| Chris Penland Phd (former) | VICE PRESIDENT OF RESEARCH | 2015 | $315,245 | $315,245 | 2 |
Officers and directors, no compensation reported
12 people listed on the returns with $0 (or no amount) in every compensation column: current people first. Hours are as filed on the latest return each person appears on.
| Name | Latest title | Years | Hrs/wk (latest) | Compensation | Organizations |
|---|---|---|---|---|---|
| Irena Barisic | TREASURER/DIRECTOR | 2021-2024 | 1 | $0 reported | 2 |
| Michael Cavadel | SECRETARY/DIRECTOR | 2022-2024 | 1 | $0 reported | 1 |
| Chris Gegelys (former) | SVP, CLO, SEC./DIR. (UNTIL 12/21) | 2019-2021 | 1 | $0 reported | 2 |
| Carole B Griego Md (former) | DIRECTOR | 2016-2017 | 3 | $0 reported | 3 |
| Eric R Olson Phd (former) | DIRECTOR | 2015-2017 | 3 | $0 reported | 3 |
| Steven Shak Md (former) | DIRECTOR | 2010-2017 | 3 | $0 reported | 3 |
| Catherine C Mcloud (former) | DIRECTOR | 2010-2017 | 3 | $0 reported | 3 |
| Jason M Aryeh (former) | DIRECTOR | 2011-2017 | 3 | $0 reported | 1 |
| Jonathan Cohn Md (former) | DIRECTOR | 2010-2017 | 3 | $0 reported | 1 |
| D Paul Flessner (former) | DIRECTOR | 2010-2017 | 3 | $0 reported | 1 |
| Cathrine C Mcloud (former) | DIRECTOR | 2014 | 3 | $0 reported | 1 |
| Christy Shaffer PHD (former) | CHAIR | 2012-2013 | 5 | $0 reported | 1 |
People by year
2024 · 3 people listed · none paid
| Name | Title | Hrs/wk | From org | From related | Other | Total | Orgs |
|---|---|---|---|---|---|---|---|
| MICHAEL P BOYLE MD | PRESIDENT/DIRECTOR | 1 | $0 | - | $0 | $0 | 2 |
| IRENA BARISIC | TREASURER/DIRECTOR | 1 | $0 | - | $0 | $0 | 2 |
| MICHAEL CAVADEL | SECRETARY/DIRECTOR | 1 | $0 | - | $0 | $0 | 1 |
2023 · 3 people listed · none paid
| Name | Title | Hrs/wk | From org | From related | Other | Total | Orgs |
|---|---|---|---|---|---|---|---|
| MICHAEL P BOYLE MD | PRESIDENT/DIRECTOR | 1 | $0 | - | $0 | $0 | 2 |
| IRENA BARISIC | TREASURER/DIRECTOR | 1 | $0 | - | $0 | $0 | 2 |
| MICHAEL CAVADEL | SECRETARY/DIRECTOR | 1 | $0 | - | $0 | $0 | 1 |
2022 · 3 people listed · none paid
| Name | Title | Hrs/wk | From org | From related | Other | Total | Orgs |
|---|---|---|---|---|---|---|---|
| MICHAEL P BOYLE MD | PRESIDENT/DIRECTOR | 1 | $0 | - | $0 | $0 | 2 |
| IRENA BARISIC | TREASURER/DIRECTOR | 1 | $0 | - | $0 | $0 | 2 |
| MICHAEL CAVADEL | SECRETARY/DIRECTOR | 1 | $0 | - | $0 | $0 | 1 |
2021 · 5 people listed · none paid
| Name | Title | Hrs/wk | From org | From related | Other | Total | Orgs |
|---|---|---|---|---|---|---|---|
| MARC S GINSKY | COO/DIRECTOR (UNTIL 07/2021) | 1 | $0 | - | $0 | $0 | 2 |
| MICHAEL P BOYLE MD | PRESIDENT/DIRECTOR | 1 | $0 | - | $0 | $0 | 2 |
| VERA H TWIGG | TREASURER/DIRECTOR (UNTIL 07/2021) | 1 | $0 | - | $0 | $0 | 3 |
| IRENA BARISIC | TREASURER/DIRECTOR (AS OF 07/2021) | 1 | $0 | - | $0 | $0 | 2 |
| CHRIS GEGELYS | SVP, CLO, SEC./DIR. (UNTIL 12/21) | 1 | $0 | - | $0 | $0 | 2 |
2020 · 3 people listed · none paid
| Name | Title | Hrs/wk | From org | From related | Other | Total | Orgs |
|---|---|---|---|---|---|---|---|
| MARC S GINSKY | PRESIDENT/DIRECTOR | 1 | $0 | - | $0 | $0 | 2 |
| VERA H TWIGG | TREASURER/DIRECTOR | 1 | $0 | - | $0 | $0 | 3 |
| CHRIS GEGELYS | SVP, CLO, SECRETARY/DIRECTOR | 1 | $0 | - | $0 | $0 | 2 |
2019 · 3 people listed · none paid
| Name | Title | Hrs/wk | From org | From related | Other | Total | Orgs |
|---|---|---|---|---|---|---|---|
| MARC S GINSKY | PRESIDENT/DIRECTOR | 1 | $0 | - | $0 | $0 | 2 |
| VERA H TWIGG | TREASURER/DIRECTOR | 1 | $0 | - | $0 | $0 | 3 |
| CHRIS GEGELYS | SECRETARY/DIRECTOR | 1 | $0 | - | $0 | $0 | 2 |
2017 · 21 people listed · 13 paid, $6.4M · 61 employees · 0 volunteers
| Name | Title | Hrs/wk | From org | From related | Other | Total | Orgs |
|---|---|---|---|---|---|---|---|
| PRESTON CAMPBELL MD | PRESIDENT & CEO | 18 | $396,810 | $805,765 | $207,207 | $1,409,782 | 3 |
| MARC S GINSKY | EXECUTIVE VP, COO & SECRETARY | 5 | $0 | $663,211 | $226,013 | $889,224 | 2 |
| VERA H TWIGG | EXECUTIVE VP & CFO | 5 | $0 | $524,706 | $127,750 | $652,456 | 3 |
| MICHAEL P BOYLE MD | SR VP, THERAPEUTICS DEV | 55 | $503,945 | $0 | $63,689 | $567,634 | 2 |
| BRUCE C MARSHALL MD | SENIOR VP OF CLINICAL AFFAIRS | 41 | $101,381 | $430,358 | $32,540 | $564,279 | 2 |
| WILLIAM SKACH MD | SENIOR VP , RESEARCH AFFAIRS | 47 | $421,375 | $74,361 | $67,421 | $563,157 | 2 |
| ROBERT J BEALL PHD | FORMER CEO | 0 | $55,949 | $383,094 | $0 | $439,043 | 3 |
| MARTIN MENSE PHD | VP OF DRUG DISCOVERY | 55 | $253,980 | $0 | $66,272 | $320,252 | 1 |
| JEROME MAHIOU PHD | SENIOR SCIENTIST | 55 | $153,337 | $0 | $48,980 | $202,317 | 1 |
| FENG LIANG PHD | SENIOR SCIENTIST | 55 | $154,775 | $0 | $47,472 | $202,247 | 1 |
| HERMANN BIHLER PHD | FELLOW SCIENTIST | 55 | $181,398 | $0 | $18,616 | $200,014 | 1 |
| C RICHARD MATTINGLY | FORMER COO | 0 | $0 | $197,010 | $0 | $197,010 | 3 |
| ELIZABETH JOSELOFF PHD | DIRECTOR, INTEGRATIVE BIOLOGY | 55 | $152,856 | $0 | $38,171 | $191,027 | 1 |
| JASON M ARYEH | DIRECTOR | 3 | $0 | $0 | $0 | $0 | 1 |
| JONATHAN COHN MD | DIRECTOR | 3 | $0 | $0 | $0 | $0 | 1 |
| CAROLE B GRIEGO MD | DIRECTOR | 3 | $0 | $0 | $0 | $0 | 3 |
| CATHERINE C MCLOUD | DIRECTOR | 3 | $0 | $0 | $0 | $0 | 3 |
| D PAUL FLESSNER | DIRECTOR | 3 | $0 | $0 | $0 | $0 | 1 |
| STEVEN SHAK MD | DIRECTOR | 3 | $0 | $0 | $0 | $0 | 3 |
| ERIC R OLSON PHD | DIRECTOR | 3 | $0 | $0 | $0 | $0 | 3 |
| THEODORE J TORPHY PHD | CHAIR | 5 | $0 | $0 | $0 | $0 | 3 |
2016 · 21 people listed · 13 paid, $5.6M · 50 employees · 0 volunteers
| Name | Title | Hrs/wk | From org | From related | Other | Total | Orgs |
|---|---|---|---|---|---|---|---|
| PRESTON CAMPBELL MD | PRESIDENT & CEO | 18 | $304,574 | $616,640 | $255,951 | $1,177,165 | 3 |
| ROBERT J BEALL PHD | FORMER CEO | 0 | $126,109 | $609,460 | $565 | $736,134 | 3 |
| VERA H TWIGG | EXECUTIVE VP & CFO | 5 | $0 | $465,131 | $103,024 | $568,155 | 3 |
| BRUCE C MARSHALL MD | SENIOR VP OF CLINICAL AFFAIRS | 14 | $95,540 | $386,312 | $32,117 | $513,969 | 2 |
| MICHAEL P BOYLE MD | SR VP, THERAPEUTICS DEV | 55 | $430,826 | $0 | $59,921 | $490,747 | 2 |
| MARC S GINSKY | EXECUTIVE VP, COO & SECRETARY | 5 | $0 | $305,540 | $149,642 | $455,182 | 2 |
| WILLIAM SKACH MD | SENIOR VP , RESEARCH AFFAIRS | 47 | $329,757 | $58,192 | $54,167 | $442,116 | 2 |
| MARTIN MENSE PHD | VP OF DRUG DISCOVERY | 55 | $227,166 | $0 | $58,464 | $285,630 | 1 |
| HERMANN BIHLER PHD | FELLOW SCIENTIST | 55 | $175,542 | $0 | $17,866 | $193,408 | 1 |
| FENG LIANG PHD | SENIOR SCIENTIST | 55 | $149,425 | $0 | $42,802 | $192,227 | 1 |
| JEROME MAHIOU PHD | SENIOR SCIENTIST | 55 | $146,742 | $0 | $43,689 | $190,431 | 1 |
| ELIZABETH JOSELOFF PHD | DIRECTOR, INTEGRATIVE BIOLOGY | 55 | $143,303 | $0 | $37,202 | $180,505 | 1 |
| C RICHARD MATTINGLY | FORMER COO | 0 | $0 | $135,951 | $7,251 | $143,202 | 3 |
| JASON M ARYEH | DIRECTOR | 3 | $0 | $0 | $0 | $0 | 1 |
| JONATHAN COHN MD | DIRECTOR | 3 | $0 | $0 | $0 | $0 | 1 |
| CAROLE B GRIEGO MD | DIRECTOR | 3 | $0 | $0 | $0 | $0 | 3 |
| CATHERINE C MCLOUD | DIRECTOR | 3 | $0 | $0 | $0 | $0 | 3 |
| D PAUL FLESSNER | DIRECTOR | 3 | $0 | $0 | $0 | $0 | 1 |
| STEVEN SHAK MD | DIRECTOR | 3 | $0 | $0 | $0 | $0 | 3 |
| ERIC R OLSON PHD | DIRECTOR | 3 | $0 | $0 | $0 | $0 | 3 |
| THEODORE J TORPHY PHD | CHAIR | 5 | $0 | $0 | $0 | $0 | 3 |
2015 · 16 people listed · 10 paid, $8.7M · 39 employees · 0 volunteers
| Name | Title | Hrs/wk | From org | From related | Other | Total | Orgs |
|---|---|---|---|---|---|---|---|
| C RICHARD MATTINGLY | EXECUTIVE VP & COO | 5 | $0 | $2,718,373 | $68,546 | $2,786,919 | 3 |
| ROBERT BEALL PHD | PRESIDENT & CEO (UNTIL 9/30) | 20 | $779,230 | $1,575,208 | $108,896 | $2,463,334 | 3 |
| PRESTON CAMPBELL MD | PRESIDENT & CEO (AS OF 10/1) | 20 | $245,571 | $496,970 | $212,541 | $955,082 | 3 |
| VERA H TWIGG | EXECUTIVE VP, CFO & SECRETARY | 5 | $0 | $499,672 | $107,968 | $607,640 | 3 |
| BRUCE MARSHALL MD | SENIOR VP OF CLINICAL AFFAIRS | 35 | $314,135 | $129,754 | $32,060 | $475,949 | 2 |
| DAVID MCLOUGHLIN | SR. VP OF OPERATIONS | 35 | $108,101 | $253,478 | $60,349 | $421,928 | 2 |
| WILLIAM SKACH MD | SENIOR VP OF RESEARCH AFFAIRS | 38 | $233,504 | $74,887 | $48,493 | $356,884 | 2 |
| CHRIS PENLAND PHD | VICE PRESIDENT OF RESEARCH | 23 | $122,428 | $139,512 | $53,305 | $315,245 | 2 |
| MICHAEL P BOYLE MD | SENIOR VP OF THERAPEUTICS DEV. | 50 | $268,355 | $0 | $14,595 | $282,950 | 2 |
| THEODORE J TORPHY PHD | CHAIR | 5 | $13,200 | $0 | $0 | $13,200 | 3 |
| JASON M ARYEH | DIRECTOR | 3 | $0 | $0 | $0 | $0 | 1 |
| JONATHAN COHN MD | DIRECTOR | 3 | $0 | $0 | $0 | $0 | 1 |
| CATHERINE C MCLOUD | DIRECTOR | 3 | $0 | $0 | $0 | $0 | 3 |
| D PAUL FLESSNER | DIRECTOR | 3 | $0 | $0 | $0 | $0 | 1 |
| STEVEN SHAK MD | DIRECTOR | 3 | $0 | $0 | $0 | $0 | 3 |
| ERIC R OLSON PHD | DIRECTOR | 3 | $0 | $0 | $0 | $0 | 3 |
2014 · 14 people listed · 9 paid, $4.7M · 29 employees · 0 volunteers
| Name | Title | Hrs/wk | From org | From related | Other | Total | Orgs |
|---|---|---|---|---|---|---|---|
| ROBERT J BEALL PHD | PRESIDENT AND CEO | 20 | $323,554 | $650,137 | $224,033 | $1,197,724 | 3 |
| C RICHARD MATTINGLY | EXEC VP AND COO | 5 | $0 | $645,755 | $189,266 | $835,021 | 3 |
| PRESTON W CAMPBELL MD | EXEC VP OF MEDICAL AFFAIRS | 20 | $213,925 | $432,875 | $174,822 | $821,622 | 3 |
| VERA H TWIGG | EXEC VP & CFO | 5 | $0 | $461,903 | $85,449 | $547,352 | 3 |
| BRUCE MARSHALL MD | SR. VP OF CLINICAL AFFAIRS | 50 | $407,821 | $0 | $32,120 | $439,941 | 2 |
| MARTIN MENSE PHD | PRINCIPAL SCIENTIST DRUG DISC | 50 | $209,016 | $0 | $46,258 | $255,274 | 1 |
| THEODORE TORPHY PHD | HEAD OF RESEARCH STRATEGY | 16 | $228,800 | $0 | $0 | $228,800 | 3 |
| FENG LIANG PHD | SENIOR SCIENTIST | 50 | $137,177 | $0 | $37,936 | $175,113 | 1 |
| HERMANN BIHLER PHD | SENIOR SCIENTIST | 50 | $151,229 | $0 | $13,417 | $164,646 | 1 |
| JASON M ARYEH | DIRECTOR | 3 | $0 | $0 | $0 | $0 | 1 |
| JONATHAN COHN MD | DIRECTOR | 3 | $0 | $0 | $0 | $0 | 1 |
| CATHRINE C MCLOUD | DIRECTOR | 3 | $0 | $0 | $0 | $0 | 1 |
| D PAUL FLESSNER | DIRECTOR | 3 | $0 | $0 | $0 | $0 | 1 |
| STEVEN SHAK MD | DIRECTOR | 3 | $0 | $0 | $0 | $0 | 3 |
2013 · 15 people listed · 9 paid, $5.5M · 29 employees · 0 volunteers
| Name | Title | Hrs/wk | From org | From related | Other | Total | Orgs |
|---|---|---|---|---|---|---|---|
| Preston W Campbell MD | Exec VP of Medical Affairs | 20 | $394,239 | $796,908 | $202,914 | $1,394,061 | 3 |
| Robert J Beall PhD | President & CEO | 20 | $364,564 | $737,313 | $261,787 | $1,363,664 | 3 |
| C Richard Mattingly | Exec VP, COO AND SECRETARY | 5 | $0 | $752,470 | $220,754 | $973,224 | 3 |
| Vera H Twigg | EXEC VP and CFO | 5 | $0 | $486,851 | $91,349 | $578,200 | 3 |
| BRUCE MARSHALL MD | VP OF CLINICAL AFFAIRS | 50 | $379,325 | $0 | $31,552 | $410,877 | 2 |
| MARTIN MENSE | PRINCIPAL SCIENTIST DRUG DISC | 50 | $185,473 | $0 | $42,920 | $228,393 | 1 |
| THEODORE J TORPHY PHD | HEAD OF RESEARCH STRATEGY | 16 | $215,600 | $0 | $0 | $215,600 | 3 |
| Hermann Bihler PHD | Senior Scientist | 50 | $146,553 | $0 | $12,989 | $159,542 | 1 |
| CYNTHIA GEORGE MSN FNP BC | DIR OF CLINICAL RES RESOURCES | 50 | $127,454 | $0 | $13,478 | $140,932 | 1 |
| Christy Shaffer PHD | CHAIR | 5 | $0 | $0 | $0 | $0 | 1 |
| JASON M ARYEH | DIRECTOR | 3 | $0 | $0 | $0 | $0 | 1 |
| STEVEN SHAK MD | DIRECTOR | 3 | $0 | $0 | $0 | $0 | 3 |
| CATHERINE C MCLOUD | DIRECTOR | 3 | $0 | $0 | $0 | $0 | 3 |
| JONATHAN COHN MD | director | 3 | $0 | $0 | $0 | $0 | 1 |
| D Paul Flessner | Director | 3 | $0 | $0 | $0 | $0 | 1 |
2012 · 15 people listed · 9 paid, $3.8M · 20 employees · 0 volunteers
| Name | Title | Hrs/wk | From org | From related | Other | Total | Orgs |
|---|---|---|---|---|---|---|---|
| ROBERT J BEALL PHD | PRESIDENT & CEO | 20 | $329,867 | $669,561 | $112,672 | $1,112,100 | 3 |
| C Richard Mattingly | EXEC VP, COO & SECRETARY | 5 | $0 | $466,050 | $168,894 | $634,944 | 3 |
| Preston W Campbell MD | Exec VP of Medical Affairs | 20 | $151,900 | $301,432 | $155,629 | $608,961 | 3 |
| Vera H Twigg | Sr. VP and CFO | 5 | $0 | $335,965 | $77,783 | $413,748 | 3 |
| BRUCE MARSHALL MD | VP OF CLINICAL AFFAIRS | 50 | $340,444 | $0 | $31,596 | $372,040 | 2 |
| MARTIN MENSE | PRINCIPAL SCIENTIST DRUG DISC | 50 | $160,605 | $0 | $45,605 | $206,210 | 1 |
| ELIZABETH JOSELOFF PHD | INTEGRATIVE BIOLOGY DIRECTOR | 50 | $110,865 | $0 | $31,342 | $142,207 | 1 |
| HERMANN BIHLER PHD | SENIOR SCIENTIST | 50 | $128,056 | $0 | $11,146 | $139,202 | 1 |
| CYNTHIA GEORGE MSN FNP BC | DIR OF CLINICAL RES RESOURCES | 50 | $115,369 | $0 | $14,968 | $130,337 | 1 |
| JASON M ARYEH | DIRECTOR | 3 | $0 | $0 | $0 | $0 | 1 |
| STEVEN SHAK MD | DIRECTOR | 3 | $0 | $0 | $0 | $0 | 3 |
| CATHERINE C MCLOUD | DIRECTOR | 3 | $0 | $0 | $0 | $0 | 3 |
| JONATHAN COHN MD | DIRECTOR | 3 | $0 | $0 | $0 | $0 | 1 |
| D PAUL FLESSNER | director | 3 | $0 | $0 | $0 | $0 | 1 |
| CHRISTY SHAFFER PHD | TRUSTEE | 5 | $0 | $0 | $0 | $0 | 1 |
2011 · 14 people listed · 8 paid, $3.8M · 12 employees · 0 volunteers
| Name | Title | Hrs/wk | From org | From related | Other | Total | Orgs |
|---|---|---|---|---|---|---|---|
| Robert J Beall PhD | President & CEO | 18 | $234,488 | $477,065 | $362,172 | $1,073,725 | 3 |
| C Richard Mattingly | Exec VP and COO | 5 | $0 | $475,320 | $284,459 | $759,779 | 3 |
| Preston W Campbell MD | Exec VP of Medical Affairs | 18 | $156,360 | $310,778 | $268,893 | $736,031 | 3 |
| Vera H Twigg | Sr. VP and CFO | 5 | $0 | $325,228 | $119,955 | $445,183 | 3 |
| BRUCE MARSHALL MD | VP OF CLINICAL AFFAIRS | 50 | $339,453 | $0 | $26,029 | $365,482 | 2 |
| MARTIN MENSE | PRINCIPAL SCIENTIST DRUG DISC | 50 | $161,275 | $0 | $43,814 | $205,089 | 1 |
| ELIZABETH JOSELOFF PHD | INTEGRATIVE BIOLOGY DIRECTOR | 50 | $103,125 | $0 | $27,904 | $131,029 | 1 |
| CYNTHIA GEORGE MSN FNP BC | DIR OF CLINICAL RES RESOURCES | 50 | $111,524 | $0 | $15,333 | $126,857 | 1 |
| Theodore J Torphy PhD | CHAIRMAN | 5 | $0 | $0 | $0 | $0 | 3 |
| STEVEN SHAK MD | DIRECTOR | 3 | $0 | $0 | $0 | $0 | 3 |
| CATHERINE C MCLOUD | DIRECTOR | 3 | $0 | $0 | $0 | $0 | 3 |
| JONATHAN COHN MD | director | 3 | $0 | $0 | $0 | $0 | 1 |
| JASON M ARYEH | DIRECTOR | 3 | $0 | $0 | $0 | $0 | 1 |
| D PAUL FLESSNER | director | 3 | $0 | $0 | $0 | $0 | 1 |
2010 · 12 people listed · 7 paid, $3.0M · 11 employees · 0 volunteers
| Name | Title | Hrs/wk | From org | From related | Other | Total | Orgs |
|---|---|---|---|---|---|---|---|
| Robert J Beall PhD | President & CEO | 18 | $198,548 | $403,094 | $239,406 | $841,048 | 3 |
| C Richard Mattingly | Exec VP and COO | 5 | $0 | $427,271 | $172,432 | $599,703 | 3 |
| Preston W Campbell MD | Exec VP of Medical Affairs | 18 | $140,934 | $278,976 | $157,898 | $577,808 | 3 |
| Vera H Twigg | Sr. VP and CFO | 5 | $0 | $273,807 | $82,369 | $356,176 | 3 |
| BRUCE MARSHALL MD | VP OF CLINICAL AFFAIRS | 50 | $270,515 | $0 | $25,128 | $295,643 | 2 |
| MARTIN MENSE | PRINCIPAL SCIENTIST DRUG DISC | 50 | $132,787 | $0 | $28,412 | $161,199 | 1 |
| CYNTHIA GEORGE MSN FNP BC | DIR OF CLINICAL RES RESOURCES | 50 | $107,372 | $0 | $15,442 | $122,814 | 1 |
| Catherine C McLoud | DIRECTOR | 3 | $0 | $0 | $0 | $0 | 3 |
| D PAUL FLESSNER | director | 3 | $0 | $0 | $0 | $0 | 1 |
| JONATHAN COHN MD | director | 3 | $0 | $0 | $0 | $0 | 1 |
| Steven Shak MD | DIRECTOR | 3 | $0 | $0 | $0 | $0 | 3 |
| Theodore J Torphy PhD | CHAIRMAN | 3 | $0 | $0 | $0 | $0 | 3 |
Highest-paid independent contractors
2017 · 5 contractors · $28.0M
| Name | Location | Service | Paid |
|---|---|---|---|
| VERTEX PHARMACEUTICALS INC | BOSTON, MA | CONTRACTED RESEARCH | $12,500,000 |
| GENZYME CORPORATION | FRAMINGHAM, MA | CONTRACTED RESEARCH | $9,330,280 |
| PFIZER INC | CAMBRIDGE, MA | CONTRACTED RESEARCH | $2,120,889 |
| CELTAXSYS INC | ATLANTA, GA | CONTRACTED RESEARCH | $2,073,333 |
| SPYRYX BIOSCIENCES INC | DURHAM, NC | CONTRACTED RESEARCH | $2,023,217 |
2016 · 5 contractors · $100.5M
| Name | Location | Service | Paid |
|---|---|---|---|
| VERTEX PHARMACEUTICALS INC | BOSTON, MA | CONTRACTED RESEARCH | $75,000,000 |
| PFIZER INC | CAMBRIDGE, MA | CONTRACTED RESEARCH | $12,034,880 |
| GENZYME CORPORATION | FRAMINGHAM, MA | CONTRACTED RESEARCH | $6,545,460 |
| ALGIPHARMA AS | SANOVINA, 0 | CONTRACTED RESEARCH | $5,000,000 |
| POLYPHOR LTD | ZURICH, 0 | CONTRACTED RESEARCH | $1,900,000 |
2015 · 5 contractors · $32.0M
| Name | Location | Service | Paid |
|---|---|---|---|
| PFIZER INC | CAMBRIDGE, MA | CONTRACTED RESEARCH | $13,724,392 |
| GENZYME CORPORATION | FRAMINGHAM, MA | CONTRACTED RESEARCH | $5,856,680 |
| SHIRE ORPHAN RARE DISEASE GMBH | ZUG, 0 | CONTRACTED RESEARCH | $4,987,500 |
| ALGIPHARMA AS | SANOVINA, 0 | CONTRACTED RESEARCH | $4,800,000 |
| ANTHERA PHARMACEUTICALS | HAYWARD, CA | CONTRACTED RESEARCH | $2,638,627 |
2014 · 5 contractors · $56.3M
| Name | Location | Service | Paid |
|---|---|---|---|
| MORGAN STANLEY CO LLC | BROOKLYN, NY | TRANSACTION ADVISORY | $24,773,304 |
| PFIZER INC | CAMBRIDGE, MA | contracted research | $17,637,626 |
| GENZYME CORPORATION | FRAMINGHAM, MA | CONTRACTED RESEARCH | $5,250,029 |
| PARION SCIENCES INC | DURHAM, SC | CONTRACTED RESEARCH | $4,703,246 |
| VERTEX PHARMACEUTICALS LLC | BOSTON, MA | CONTRACTED RESEARCH | $3,928,582 |
2013 · 5 contractors · $36.6M
| Name | Location | Service | Paid |
|---|---|---|---|
| VERTEX PHARMACEUTICALS LLC | CONTRACTED RESEARCH | $20,281,486 | |
| PFIZER INC | contracted research | $10,449,569 | |
| PROTEOSTASIS THERAPEUTICS INC | CONTRACTED RESEARCH | $2,070,083 | |
| CHANTEST INC | RESEARCH SUPPORT | $1,950,000 | |
| MORGAN STANLEY CO LLC | transaction advisory | $1,879,333 |
2012 · 5 contractors · $25.5M
| Name | Location | Service | Paid |
|---|---|---|---|
| VERTEX PHARMACEUTICALS LLC | CAMBRIDGE, MA | CONTRACTED RESEARCH | $17,959,575 |
| MORGAN STANLEY CO LLC | NEW YORK, NY | TRANSACTION ADVISORY | $3,017,175 |
| SEATTLE CHILDREN'S RESEARCH INSTITU | SEATTLE, WA | CLINICAL RESEARCH | $1,947,124 |
| CHAN TEST INC | CLEVELAND, OH | RESEARCH SUPPORT | $1,625,000 |
| PROTEOSTASIS THERAPEUTICS INC | CAMBRIDGE, MA | CONTRACTED RESEARCH | $959,411 |
2011 · 5 contractors · $15.3M
| Name | Location | Service | Paid |
|---|---|---|---|
| VERTEX PHARMACEUTICALS LLC | CAMBRIDGE, MA | CONTRACTED RESEARCH | $9,222,356 |
| PFIZER INC | CAMBRIDGE, MA | CONTRACTED RESEARCH | $3,125,718 |
| CHANTEST INC | CLEVELAND, OH | RESEARCH SUPPORT | $2,275,000 |
| OUTCOME SCIENCES INC | BOSTON, MA | CLINICAL RESEARCH | $433,655 |
| SCHANER LUBITZ PLLC | BETHESDA, MD | LEGAL SERVICES | $261,943 |
2010 · 5 contractors · $8.6M
| Name | Location | Service | Paid |
|---|---|---|---|
| FOLDRX PHARMACEUTICALS INC | CAMBRIDGE, MA | THERAPEUTICS DISC | $4,003,786 |
| CHANTEST INC | CLEVELAND, OH | THERAPEUTICS DISC | $2,275,000 |
| ALBANY MEDICAL RESEARCH INC | ALBANY, NY | THERAPEUTICS DISC | $1,890,694 |
| NAT'L DISEASE RESEARCH INTERCHANGE | PHILADELPHIA, PA | CLINICAL MATERIAL | $237,000 |
| PROMEDDX LLC | NORTON, MA | TESTING SERVICES | $197,654 |
Who the money went to
Grants this organization reported paying: Schedule I Part II of the Form 990, or the grants-paid list on the 990-PF. Open a year for every recipient. Recipients link to their own page when the grant names an EIN we have (990-PF grants list no EIN, so those link only on an exact, unique name and state). Grants to individuals are counted; their names are not shown.
2017 · 186 grants to organizations · $61.8M
Listed grants add up to $61,754,672; the return's “grants paid” expense line says $68,089,482. Returns can differ here (grants paid vs. accrued, items listed elsewhere); check the filing.
2016 · 184 grants to organizations · $60.4M
Listed grants add up to $60,368,395; the return's “grants paid” expense line says $68,673,186. Returns can differ here (grants paid vs. accrued, items listed elsewhere); check the filing.
2015 · 182 grants to organizations · $55.7M
Listed grants add up to $55,709,808; the return's “grants paid” expense line says $62,018,896. Returns can differ here (grants paid vs. accrued, items listed elsewhere); check the filing.
2014 · 179 grants to organizations · $3.23B
2013 · 129 grants to organizations · $207.4M
Listed grants add up to $207,412,575; the return's “grants paid” expense line says $210,196,981. Returns can differ here (grants paid vs. accrued, items listed elsewhere); check the filing.
2012 · 129 grants to organizations · $113.9M
Listed grants add up to $113,872,509; the return's “grants paid” expense line says $116,651,304. Returns can differ here (grants paid vs. accrued, items listed elsewhere); check the filing.
2011 · 128 grants to organizations · $26.1M
Listed grants add up to $26,105,267; the return's “grants paid” expense line says $27,991,951. Returns can differ here (grants paid vs. accrued, items listed elsewhere); check the filing.
2010 · 105 grants to organizations · $26.5M
Listed grants add up to $26,525,599; the return's “grants paid” expense line says $29,412,613. Returns can differ here (grants paid vs. accrued, items listed elsewhere); check the filing.
Negative amounts are returned or refunded grants; they are listed last and left out of the totals of grants paid.
Who gave
Contributor names are not public for this form type.
Public charities filing Form 990 or 990-EZ report large donors on Schedule B, but the IRS withholds their names and addresses from public copies. Private foundations (990-PF) are different: their contributors are public.
Finances
Newest first. Each filing: its name on one row, its figures on the row beneath. Greyed filings are superseded by a later return for the same period and are left out everywhere else on this page.
| Revenue | Expenses | Assets | Net assets | Contributions | Program revenue | Officer pay | Employees | Volunteers |
|---|---|---|---|---|---|---|---|---|
| 2024 · Form 990EZ | ||||||||
| $0 | $0 | $0 | $0 | - | - | - | - | - |
| 2023 · Form 990EZ | ||||||||
| $0 | $0 | $0 | $0 | - | - | - | - | - |
| 2022 · Form 990EZ | ||||||||
| $0 | $0 | $0 | $0 | - | - | - | - | - |
| 2021 · Form 990EZ | ||||||||
| $0 | $0 | $0 | $0 | - | - | - | - | - |
| 2020 · Form 990EZ | ||||||||
| $0 | $0 | $0 | $0 | - | - | - | - | - |
| 2019 · Form 990EZ | ||||||||
| $0 | $0 | $0 | $0 | - | - | - | - | - |
| 2017 · Form 990 | ||||||||
| $125,014,560 | $125,014,560 | $104,967,871 | $0 | $115,564,401 | $127,538 | $1,601,819 | 61 | 0 |
| 2016 · Form 990 | ||||||||
| $192,669,402 | $192,669,402 | $102,927,707 | $0 | $138,829,706 | $51,523,824 | $1,339,905 | 50 | 0 |
| 2015 · Form 990 | ||||||||
| $124,281,169 | $124,281,169 | $85,794,978 | $0 | $86,230,120 | $120,217 | $1,109,667 | 39 | 0 |
| 2014 · Form 990 | ||||||||
| $3,274,880,997 | $3,274,880,997 | $63,052,423 | $0 | $0 | $3,274,846,429 | $537,479 | 29 | 0 |
| 2013 · Form 990 | ||||||||
| $257,414,279 | $257,414,279 | $55,984,395 | $0 | $0 | $223,471 | $880,483 | 29 | 0 |
| 2012 · Form 990 | ||||||||
| $156,684,773 | $156,684,773 | $41,843,226 | $0 | $0 | $192,984 | $986,063 | 20 | 0 |
| 2011 · Form 990 | ||||||||
| $100,420,758 | $50,488,235 | $28,133,165 | $0 | $99,865,046 | $551,511 | $390,848 | 12 | 0 |
| 2010 · Form 990 | ||||||||
| $54,161,930 | $54,161,930 | $67,639,625 | $0 | $0 | $400,446 | $733,313 | 11 | 0 |
Connected to
Organizations that list some of the same people on their returns (officers, directors, key employees on this organization’s latest return), and related organizations it lists on Schedule R.
- CYSTIC FIBROSIS FOUNDATION Bethesda, MD · 2 people in common (Irena Barisic, Michael P Boyle Md)
Funders of this organization
9 grantors reported grants to this organization, $390,672,161 in all, tax years 2010 to 2024. Exact: the grantor wrote this organization's EIN. Fuzzy: the grantor wrote only a name (foundations' 990-PF has no EIN field), matched to the same or a near-identical name in the same state; the name as filed is shown. From the latest return for each grantor and year, so amended returns aren't counted twice. CSV
| Grantor | Total given | Grants | Latest year's amount | Latest year | Years given | Type | Match | Grants |
|---|---|---|---|---|---|---|---|---|
| CYSTIC FIBROSIS FOUNDATION | $390,556,750 | 4 | $115,564,401 | 2017 | 2011, 2015-2017 | Public charity | Exact | show |
| FORGOOD INC | $79,026 | 2 | $55,550 | 2018 | 2017-2018 | DAF sponsor | Exact | show |
| DARRYL WORLEY FOUNDATION INC | $11,000 | 3 | $1,000 | 2019 | 2011-2012, 2019 | Public charity | Exact | show |
| BJS RESTAURANTS FOUNDATION INC | $10,000 | 1 | $10,000 | 2020 | 2020 | Public charity | Exact | show |
| CHILDRENS HEALTH CARE ASSOCIATES INC | $10,000 | 1 | $10,000 | 2010 | 2010 | Public charity | Exact | show |
| SOUTHLAND TITLE CHILDRENS FOUNDATION | $5,000 | 1 | $5,000 | 2011 | 2011 | Public charity | Exact | show |
| AMICA COMPANIES FOUNDATION | $236 | 2 | $61 | 2022 | 2020, 2022 | Private foundation | Fuzzy filed as “CYSTIC FIBROSIS FOUNDATION THERAPEUTICS INC” | show |
| DANIEL A AND SHEILA M SAKLAD | $100 | 1 | $100 | 2018 | 2018 | Private foundation | Fuzzy filed as “CYSTIC FIBROSIS FOUNDATION THERAPEUTICS INC” | show |
| TRUIST FOUNDATION INC | $49 | 1 | $49 | 2024 | 2024 | Private foundation | Fuzzy filed as “CYSTIC FIBROSIS FOUNDATION THERAPEUTICS” | show |
Nearby + Similar BETA
Organizations like this one: what they do and who they are linked to
Same category: NTEE code and revenue
Ranked without any AI: same NTEE code first, then the same NTEE group; then revenue within 2x, 5x or 10x; then the same state; then similar name and mission text. NTEE: the IRS’s code when it lists one, otherwise FURP’s inferred code. Same state only · More (100)
| Organization | State | NTEE | Latest revenue | Latest expenses | Top-paid title | Top pay | Why similar |
|---|---|---|---|---|---|---|---|
| SOCIETY FOR CRYOBIOLOGY INC | MD | U50 | $390,322 | $311,180 | EXECUTIVE DI | $84,500 | Same NTEE code U50, same state |
| Whole Genome Science Foundation Inc | MD | U50 | $51,102 | $51,102 | President | $0 | Same NTEE code U50, same state |
| THE SELIKOFF FUND FOR ENVIRONMENTAL AND | MD | U50 | $2,744 | $1,172 | President | $0 | Same NTEE code U50, same state |
| HISTOCHEMICAL SOCIETY INC | MD | U50 | $521,375 | $493,167 | PAST PRESIDE | $0 | Same NTEE code U50, same state |
| OTTER POINT CREEK ALLIANCE INC | MD | U50 | $57,069 | $59,012 | PRESIDENT | $0 | Same NTEE code U50, same state |
| PROGRESSIVE LEARNING INC | MD | U50 | $3,976 | $8,513 | PRESIDENT & TREASURER | $10,000 | Same NTEE code U50, same state |
| INSTITUTE FOR BIOLOGICAL RECOGNITION AND CATALYSIS INC | MD | U50 | $0 | $170 | Director | $0 | Same NTEE code U50, same state |
| MARYLAND ENTOMOLOGICAL SOCIETY | MD | U50 | $1,926 | $2,031 | PRESIDENT | $0 | Same NTEE code U50, same state |
| THE PGXL FOUNDATION INC | OH | U50 | $117,625 | $112,910 | DIRECTOR | $0 | Same NTEE code U50 |
| BRAIN TRAUMA FOUNDATION INC | CA | U50 | $1,161,568 | $597,938 | PRESIDENT | $58,490 | Same NTEE code U50 |
| HUMMINGBIRD CAY FOUNDATION INC | CT | U50 | $10,600 | $9,431 | PRESIDENT | $0 | Same NTEE code U50 |
| LEMUR CONSERVATION FOUNDATION INC | FL | U50 | $1,149,366 | $1,038,407 | Executive Director | $111,362 | Same NTEE code U50 |
| DELTAQUEST FOUNDATION INC | MA | U50 | $280,722 | $273,959 | President and Chief Scientist | $335,128 | Same NTEE code U50 |
| FOUNDATION FOR SOY INNOVATION | MO | U50 | $2,600 | $6,068 | BOARD MEMBER | $0 | Same NTEE code U50 |
| MIAMI MEDICOS FOUNDATION INC | FL | U50 | $5,000 | $1,775 | PRESIDENT | $0 | Same NTEE code U50 |
| AXION RESEARCH FOUNDATION INC | CT | U50 | $15,483 | $845,868 | SECRETARY/DIRECTOR | $0 | Same NTEE code U50 |
| THE VIRGINIA BIOSCIENCE FOUNDATION | VA | U50 | $22,787 | $11,093 | VICE CHAIRMAN | $0 | Same NTEE code U50 |
| THE MICROPALEONTOLOGY PRESS FOUNDATION INC | NY | U50 | $332,478 | $218,152 | EXE. EDITOR | $34,667 | Same NTEE code U50 |
| FOUNDATION OF THE FLORA OF VIRGINIA PROJECT INC | VA | U50 | $118,332 | $107,533 | Executive Dir. | $50,000 | Same NTEE code U50 |
| AGRONOMIC SCIENCE FOUNDATION INC | WI | U50 | $911,288 | $734,117 | CEO, EXECUTIVE SECRETARY-TREASURER | $451,072 | Same NTEE code U50 |
| INNOVATIVE GENOMICS FOUNDATION | CA | U50 | $723,960 | $83,272 | PRESIDENT 20 | $0 | Same NTEE code U50 |
| FLORIDA WILDFLOWER FOUNDATION INC | FL | U50 | $725,350 | $679,249 | EXECUTIVE DIRECTOR | $92,715 | Same NTEE code U50 |
| FED IS BEST FOUNDATION | AR | U50 | $48,407 | $49,158 | SCIENCE DIRECTO | $0 | Same NTEE code U50 |
| BIOSPHERE FOUNDATION | CA | U50 | $308,989 | $223,863 | COO | $26,000 | Same NTEE code U50 |
| OPEN INSULIN FOUNDATION | CA | U50 | $132,435 | $121,267 | President - Secretary Board Member | $0 | Same NTEE code U50 |
Who funds organizations like this
Grantors that funded the 100 most similar organizations. Ranked by total given to them. Foundations (990-PF) and donor-advised fund sponsors only. Same matching as Funders above (by EIN, or by name for foundations).
The full list · all similar organizations
Where the money went
Every expense line on each return, biggest first: Form 990 Part IX (with its program, management and fundraising columns), 990-EZ Part I, or 990-PF Part I. Event marks lines the organization itself describes as events. “Events” in each summary adds those lines, conferences and meetings, and the direct costs of fundraising events. Unusual is not the same as improper. Many of these patterns have ordinary explanations. Check the filing.
2017 · Form 990 · $125,014,560 spent · pay $10,480,531 · grants $68,089,482 · events $355,067
| Line | As described | Total | Program | Management | Fundraising | Share |
|---|---|---|---|---|---|---|
| Grants to US organizations and governments | $61,754,673 | $61,754,673 | - | - | 49.4% | |
| Other (as described) | CONTRACTED RESEARCH | $38,744,834 | $38,744,834 | - | - | 31.0% |
| Other salaries and wages | $6,909,823 | $5,636,735 | $1,273,088 | - | 5.5% | |
| Grants outside the US | $6,320,809 | $6,320,809 | - | - | 5.1% | |
| Office expenses | $1,735,887 | $1,583,992 | $151,895 | - | 1.4% | |
| Occupancy | $1,686,004 | $1,549,862 | $136,142 | - | 1.3% | |
| Pay: officers, directors, trustees, key employees | $1,601,819 | $1,306,695 | $295,124 | - | 1.3% | |
| Depreciation and depletion | $931,056 | $866,681 | $64,375 | - | 0.7% | |
| Other employee benefits | $926,714 | $755,972 | $170,742 | - | 0.7% | |
| Information technology | $840,112 | $652,361 | $187,751 | - | 0.7% | |
| Fees: other services | $814,050 | $745,972 | $68,078 | - | 0.7% | |
| Fees: legal | $501,549 | $501,549 | - | - | 0.4% | |
| Payroll taxes | $497,161 | $395,037 | $102,124 | - | 0.4% | |
| Pension plan contributions | $489,065 | $398,958 | $90,107 | - | 0.4% | |
| Conferences, conventions and meetings | $355,067 | $289,121 | $65,946 | - | 0.3% | |
| Other (as described) | MISCELLANEOUS | $334,669 | $265,639 | $69,030 | - | 0.3% |
| Travel | $331,933 | $288,264 | $43,669 | - | 0.3% | |
| Insurance | $169,386 | $169,386 | - | - | 0.1% | |
| Pay: disqualified persons | $55,949 | $45,641 | $10,308 | - | 0.0% | |
| Grants to US individuals | $14,000 | $14,000 | - | - | 0.0% | |
| Total | $125,014,560 | 100% |
2016 · Form 990 · $192,669,402 spent · pay $8,094,213 · grants $68,673,186 · events $271,998
| Line | As described | Total | Program | Management | Fundraising | Share |
|---|---|---|---|---|---|---|
| Other (as described) | CONTRACTED RESEARCH | $108,283,358 | $108,283,358 | - | - | 56.2% |
| Grants to US organizations and governments | $60,368,402 | $60,368,402 | - | - | 31.3% | |
| Grants outside the US | $8,297,784 | $8,297,784 | - | - | 4.3% | |
| Other salaries and wages | $5,283,988 | $4,697,153 | $586,835 | - | 2.7% | |
| Occupancy | $1,687,358 | $1,629,514 | $57,844 | - | 0.9% | |
| Pay: officers, directors, trustees, key employees | $1,339,905 | $1,191,096 | $148,809 | - | 0.7% | |
| Office expenses | $1,147,965 | $1,059,857 | $88,108 | - | 0.6% | |
| Fees: legal | $1,014,415 | $1,014,415 | - | - | 0.5% | |
| Information technology | $944,175 | $811,304 | $132,871 | - | 0.5% | |
| Depreciation and depletion | $825,318 | $801,705 | $23,613 | - | 0.4% | |
| Other employee benefits | $630,752 | $560,701 | $70,051 | - | 0.3% | |
| Payroll taxes | $434,104 | $378,490 | $55,614 | - | 0.2% | |
| Other (as described) | MISCELLANEOUS | $341,500 | $325,099 | $16,401 | $0 | 0.2% |
| Travel | $335,419 | $314,886 | $20,533 | - | 0.2% | |
| Other (as described) | MEDICAL ADVISORY FEES | $321,495 | $321,495 | - | - | 0.2% |
| Other (as described) | CHEMISTRY | $321,143 | $321,143 | - | - | 0.2% |
| Pension plan contributions | $279,355 | $248,330 | $31,025 | - | 0.1% | |
| Conferences, conventions and meetings | $271,998 | $246,372 | $25,626 | - | 0.1% | |
| Insurance | $221,023 | $221,023 | - | - | 0.1% | |
| Fees: other services | $186,836 | $109,144 | $77,692 | - | 0.1% | |
| Pay: disqualified persons | $126,109 | $112,103 | $14,006 | - | 0.1% | |
| Grants to US individuals | $7,000 | $7,000 | - | - | 0.0% | |
| Total | $192,669,402 | 100% |
2015 · Form 990 · $124,281,169 spent · pay $9,002,193 · grants $62,018,896 · events $439,323
| Line | As described | Total | Program | Management | Fundraising | Share |
|---|---|---|---|---|---|---|
| Grants to US organizations and governments | $55,715,621 | $55,715,621 | - | - | 44.8% | |
| Other (as described) | CONTRACTED RESEARCH | $46,960,119 | $46,960,119 | - | - | 37.8% |
| Other salaries and wages | $6,740,789 | $6,152,165 | $588,624 | - | 5.4% | |
| Grants outside the US | $6,296,275 | $6,296,275 | - | - | 5.1% | |
| Pay: officers, directors, trustees, key employees | $1,109,667 | $1,012,768 | $96,899 | - | 0.9% | |
| Office expenses | $1,091,426 | $975,603 | $115,823 | - | 0.9% | |
| Occupancy | $1,051,598 | $995,202 | $56,396 | - | 0.8% | |
| Information technology | $882,625 | $782,729 | $99,896 | - | 0.7% | |
| Fees: legal | $604,718 | $604,718 | - | - | 0.5% | |
| Other (as described) | MEDICAL ADVISORY FEES | $497,387 | $497,387 | - | - | 0.4% |
| Depreciation and depletion | $466,409 | $450,668 | $15,741 | - | 0.4% | |
| Payroll taxes | $459,332 | $413,720 | $45,612 | - | 0.4% | |
| Conferences, conventions and meetings | $439,323 | $416,520 | $22,803 | - | 0.4% | |
| Other employee benefits | $423,586 | $386,597 | $36,989 | - | 0.3% | |
| Other (as described) | MISCELLANEOUS | $387,179 | $362,847 | $24,332 | - | 0.3% |
| Insurance | $324,275 | $324,275 | - | - | 0.3% | |
| Fees: other services | $276,438 | $223,242 | $53,196 | - | 0.2% | |
| Travel | $274,593 | $257,848 | $16,745 | - | 0.2% | |
| Pension plan contributions | $268,819 | $245,345 | $23,474 | - | 0.2% | |
| Grants to US individuals | $7,000 | $7,000 | - | - | 0.0% | |
| Fees: accounting | $3,990 | - | $3,990 | - | 0.0% | |
| Total | $124,281,169 | 100% |
2014 · Form 990 · $3,274,880,997 spent · pay $6,801,253 · grants $3,231,024,082 · events $174,600
| Line | As described | Total | Program | Management | Fundraising | Share |
|---|---|---|---|---|---|---|
| Grants to US organizations and governments | $3,227,374,435 | $3,227,374,435 | - | - | 98.5% | |
| Other (as described) | CONTRACTED RESEARCH | $32,071,504 | $32,071,504 | $0 | $0 | 1.0% |
| Other salaries and wages | $5,184,553 | $4,676,536 | $508,017 | $0 | 0.2% | |
| Grants outside the US | $3,649,647 | $3,649,647 | - | - | 0.1% | |
| Office expenses | $1,173,448 | $1,084,858 | $88,590 | $0 | 0.0% | |
| Information technology | $817,658 | $756,099 | $61,559 | $0 | 0.0% | |
| Occupancy | $813,699 | $758,019 | $55,680 | $0 | 0.0% | |
| Pay: officers, directors, trustees, key employees | $537,479 | $484,813 | $52,666 | $0 | 0.0% | |
| Fees: legal | $425,730 | $425,730 | $0 | $0 | 0.0% | |
| Depreciation and depletion | $422,094 | $408,339 | $13,755 | $0 | 0.0% | |
| Payroll taxes | $376,282 | $335,658 | $40,624 | - | 0.0% | |
| Pension plan contributions | $371,702 | $335,280 | $36,422 | $0 | 0.0% | |
| Other (as described) | MEDICAL ADVISORY FEES | $349,644 | $349,644 | $0 | $0 | 0.0% |
| Other employee benefits | $331,237 | $298,781 | $32,456 | $0 | 0.0% | |
| Travel | $236,645 | $220,818 | $15,827 | $0 | 0.0% | |
| Insurance | $192,740 | $192,740 | $0 | $0 | 0.0% | |
| Fees: other services | $181,207 | $181,207 | $0 | $0 | 0.0% | |
| Conferences, conventions and meetings | $174,600 | $164,518 | $10,082 | $0 | 0.0% | |
| Other (as described) | CHEMISTRY | $110,478 | $110,478 | $0 | $0 | 0.0% |
| Other (as described) | MISCELLANEOUS | $82,365 | $82,365 | $0 | $0 | 0.0% |
| Fees: accounting | $3,850 | $0 | $3,850 | $0 | 0.0% | |
| Total | $3,274,880,997 | 100% |
2013 · Form 990 · $257,414,279 spent · pay $4,951,732 · grants $210,196,981 · events $89,110
| Line | As described | Total | Program | Management | Fundraising | Share |
|---|---|---|---|---|---|---|
| Grants to US organizations and governments | $207,414,076 | $207,414,076 | - | - | 80.6% | |
| Other (as described) | CONTRACTED RESEARCH | $38,740,581 | $38,740,581 | - | - | 15.0% |
| Other salaries and wages | $3,570,839 | $3,183,340 | $387,499 | - | 1.4% | |
| Grants outside the US | $2,782,905 | $2,782,905 | - | - | 1.1% | |
| Pay: officers, directors, trustees, key employees | $880,483 | $784,935 | $95,548 | - | 0.3% | |
| Information technology | $642,349 | $595,409 | $46,940 | - | 0.2% | |
| Office expenses | $641,423 | $605,065 | $36,358 | - | 0.2% | |
| Occupancy | $570,661 | $521,691 | $48,970 | - | 0.2% | |
| Other (as described) | MEDICAL ADVISORY FEES | $360,989 | $360,989 | - | - | 0.1% |
| Payroll taxes | $274,313 | $242,412 | $31,901 | - | 0.1% | |
| Depreciation and depletion | $274,164 | $265,437 | $8,727 | - | 0.1% | |
| Fees: legal | $256,886 | $256,886 | - | - | 0.1% | |
| Pension plan contributions | $185,148 | $165,056 | $20,092 | - | 0.1% | |
| Other (as described) | MISCELLANEOUS | $162,111 | $155,524 | $6,587 | $0 | 0.1% |
| Other (as described) | CHEMISTRY | $151,560 | $151,560 | - | - | 0.1% |
| Travel | $149,288 | $139,506 | $9,782 | - | 0.1% | |
| Insurance | $139,624 | $139,624 | - | - | 0.1% | |
| Conferences, conventions and meetings | $89,110 | $83,897 | $5,213 | - | 0.0% | |
| Fees: other services | $82,970 | $55,962 | $27,008 | - | 0.0% | |
| Other employee benefits | $40,949 | $36,505 | $4,444 | - | 0.0% | |
| Fees: accounting | $3,850 | - | $3,850 | - | 0.0% | |
| Total | $257,414,279 | 100% |
2012 · Form 990 · $156,684,773 spent · pay $3,695,781 · grants $116,651,304 · events $73,714
| Line | As described | Total | Program | Management | Fundraising | Share |
|---|---|---|---|---|---|---|
| Grants to US organizations and governments | $113,876,673 | $113,876,673 | - | - | 72.7% | |
| Other (as described) | CONTRACTED RESEARCH | $33,719,501 | $33,719,501 | $0 | $0 | 21.5% |
| Grants outside the US | $2,774,631 | $2,774,631 | - | - | 1.8% | |
| Other salaries and wages | $2,266,818 | $2,038,208 | $228,610 | $0 | 1.4% | |
| Pay: officers, directors, trustees, key employees | $986,063 | $886,618 | $99,445 | $0 | 0.6% | |
| Occupancy | $525,733 | $493,579 | $32,154 | $0 | 0.3% | |
| Information technology | $400,556 | $373,768 | $26,788 | $0 | 0.3% | |
| Office expenses | $376,309 | $350,165 | $26,144 | $0 | 0.2% | |
| Other (as described) | CHEMISTRY | $331,542 | $331,542 | $0 | $0 | 0.2% |
| Other (as described) | MISCELLANEOUS | $246,357 | $242,678 | $3,679 | $0 | 0.2% |
| Fees: legal | $213,151 | $213,151 | $0 | $0 | 0.1% | |
| Payroll taxes | $195,846 | $175,733 | $20,113 | $0 | 0.1% | |
| Depreciation and depletion | $150,428 | $145,576 | $4,852 | $0 | 0.1% | |
| Insurance | $130,393 | $130,393 | $0 | $0 | 0.1% | |
| Other employee benefits | $123,896 | $111,401 | $12,495 | $0 | 0.1% | |
| Pension plan contributions | $123,158 | $110,737 | $12,421 | $0 | 0.1% | |
| Travel | $116,097 | $108,814 | $7,283 | $0 | 0.1% | |
| Conferences, conventions and meetings | $73,714 | $71,628 | $2,086 | $0 | 0.0% | |
| Fees: other services | $47,818 | $42,295 | $5,523 | $0 | 0.0% | |
| Fees: accounting | $6,089 | $0 | $6,089 | $0 | 0.0% | |
| Total | $156,684,773 | 100% |
2011 · Form 990 · $50,488,235 spent · pay $3,008,405 · grants $27,991,951 · events $57,270
| Line | As described | Total | Program | Management | Fundraising | Share |
|---|---|---|---|---|---|---|
| Grants to US organizations and governments | $26,106,741 | $26,106,741 | - | - | 51.7% | |
| Other (as described) | CONTRACTED RESEARCH | $17,916,553 | $17,916,553 | $0 | $0 | 35.5% |
| Other salaries and wages | $2,150,172 | $1,954,623 | $195,549 | $0 | 4.3% | |
| Grants outside the US | $1,881,811 | $1,881,811 | - | - | 3.7% | |
| Pay: officers, directors, trustees, key employees | $390,848 | $355,302 | $35,546 | $0 | 0.8% | |
| Information technology | $319,734 | $303,417 | $16,317 | $0 | 0.6% | |
| Fees: legal | $261,943 | $261,943 | $0 | $0 | 0.5% | |
| Other (as described) | CHEMISTRY | $252,000 | $252,000 | $0 | $0 | 0.5% |
| Other employee benefits | $210,588 | $191,436 | $19,152 | $0 | 0.4% | |
| Occupancy | $204,557 | $183,530 | $21,027 | $0 | 0.4% | |
| Office expenses | $180,560 | $163,062 | $17,498 | $0 | 0.4% | |
| Payroll taxes | $143,800 | $129,760 | $14,040 | $0 | 0.3% | |
| Insurance | $141,709 | $141,709 | $0 | $0 | 0.3% | |
| Pension plan contributions | $112,997 | $102,720 | $10,277 | $0 | 0.2% | |
| Travel | $78,786 | $74,058 | $4,728 | $0 | 0.2% | |
| Depreciation and depletion | $63,346 | $60,621 | $2,725 | $0 | 0.1% | |
| Conferences, conventions and meetings | $57,270 | $56,020 | $1,250 | $0 | 0.1% | |
| Fees: accounting | $4,790 | $0 | $4,790 | $0 | 0.0% | |
| Fees: other services | $3,705 | $0 | $3,705 | $0 | 0.0% | |
| Grants to US individuals | $3,399 | $3,399 | - | - | 0.0% | |
| Other (as described) | MISCELLANEOUS | $2,926 | $1,197 | $1,729 | - | 0.0% |
| Total | $50,488,235 | 100% |
2010 · Form 990 · $54,161,930 spent · pay $2,842,375 · grants $29,412,613 · events $54,001
| Line | As described | Total | Program | Management | Fundraising | Share |
|---|---|---|---|---|---|---|
| Grants to US organizations and governments | $26,529,182 | $26,529,182 | - | - | 49.0% | |
| Payments to affiliates | $11,352,615 | $11,352,615 | $0 | $0 | 21.0% | |
| Other (as described) | CONTRACTED RESEARCH | $9,260,950 | $9,260,950 | $0 | $0 | 17.1% |
| Grants outside the US | $2,883,431 | $2,883,431 | - | - | 5.3% | |
| Other salaries and wages | $1,804,180 | $1,655,661 | $148,519 | $0 | 3.3% | |
| Pay: officers, directors, trustees, key employees | $733,313 | $672,948 | $60,365 | $0 | 1.4% | |
| Information technology | $242,641 | $232,009 | $10,632 | $0 | 0.4% | |
| Occupancy | $200,413 | $180,608 | $19,805 | $0 | 0.4% | |
| Fees: legal | $184,806 | $184,806 | $0 | $0 | 0.3% | |
| Fees: other services | $171,036 | $167,729 | $3,307 | $0 | 0.3% | |
| Insurance | $150,316 | $150,316 | $0 | $0 | 0.3% | |
| Payroll taxes | $130,823 | $119,689 | $11,134 | $0 | 0.2% | |
| Travel | $125,194 | $121,253 | $3,941 | $0 | 0.2% | |
| Other employee benefits | $108,038 | $99,144 | $8,894 | $0 | 0.2% | |
| Office expenses | $83,711 | $69,445 | $14,266 | $0 | 0.2% | |
| Depreciation and depletion | $71,899 | $69,463 | $2,436 | $0 | 0.1% | |
| Pension plan contributions | $66,021 | $60,586 | $5,435 | $0 | 0.1% | |
| Conferences, conventions and meetings | $54,001 | $52,899 | $1,102 | $0 | 0.1% | |
| Fees: accounting | $4,790 | $0 | $4,790 | $0 | 0.0% | |
| Other (as described) | TRAINING | $4,570 | $2,431 | $2,139 | $0 | 0.0% |
| Total | $54,161,930 | 100% |
Patents
5 US patents filed in the last 20 years.
- CYSTIC FIBROSIS FOUNDATION THERAPEUTICS, INC. 5 patents, 2012-12-18 to 2019-05-28 EXACT high confidence: identical full name and state
| Patent | Title | Granted | Source |
|---|---|---|---|
| US 10301315 | Pyrrolopyrimidines as CFTR potentiators | 2019-05-28 | PVGPATDIS, file of 2026-04-10 |
| US 10208053 | Bicyclic heteroaryl derivatives as CFTR potentiators | 2019-02-19 | PVGPATDIS, file of 2026-04-10 |
| US 10131670 | Bicyclic heteroaryl derivatives as CFTR potentiators | 2018-11-20 | PVGPATDIS, file of 2026-04-10 |
| US 8513242 | Pyrimidine compounds and methods of making and using same | 2013-08-20 | PVGPATDIS, file of 2026-04-10 |
| US 8334292 | Pyrimidine compounds and methods of making and using same | 2012-12-18 | PVGPATDIS, file of 2026-04-10 |
The newest patents of the PatentsView assignees above, matched to this record by name (and state).
Trademarks
1 US trademark, 0 live.
- CYSTIC FIBROSIS FOUNDATION THERAPEUTICS, INC. 1 marks, MD EXACT high confidence: identical full name and state
| Mark | Serial | Filed | Status | Source |
|---|---|---|---|---|
| TRIZYTEK | 77277647 | 2007-09-12 | Abandoned | TRCFECO2, file of 2024-03-27 |
The newest marks of the trademark owners above, matched to this record by name (and state).
Comments