STXBP1 FOUNDATION

Reduce your risk when donating: see where the money actually goes.

2024 · Form 990 · revenue $1.4M · expenses $1.3M · assets $1.5M

EIN

82-1439459

Address

PO BOX 1148, HOLLY SPRINGS, NC 27540-1148

Website

WWW.STXBP1DISORDERS.ORG

NTEE code

G20 Birth Defects and Genetic Diseases (Voluntary Health Associations and Medical Disciplines) published (IRS Business Master File)

Exempt type

501(c)(3): charitable, religious, educational, scientific or literary (corporation)

Ruling date

May 2017 (when the IRS recognized its exemption)

IRS status

Exempt (unconditional) (IRS Business Master File) IRS data ↗

Tax-deductible donations

Yes: listed in IRS Publication 78 (public charity) Pub 78 ↗

Foundation status

Public charity supported by the public (170(b)(1)(a)(vi))

Principal officer

Anne Johnson (its 2017 Form 990-N)

Form 990-N e-postcards

1 filed, 2017 (organizations with gross receipts normally $50,000 or less file this instead of a full Form 990) IRS data ↗

Cross-check

ProPublica Nonprofit Explorer

Mission

TO CREATE AWARENESS IN THE DISORDERS ASSOCIATED WITH STXBP1 MUTATIONS. FUND AND DRIVE RESEARCH DISCOVERY OF A CURE. PROVIDE FAMILIES WITH TOOLS TO HELP THEM UNDERSTAND THE DISEASE & HOW TO GET INVOLVED. ADVOCATE TO IMPROVE EARLY DETECTION. FOSTER ACTIVISM TO HELP CHANGE POLICIES IN FAVOR OF ORPHANED DISEASES. IMPROVE THE LIVES OF OUR STXBP1 FAMILIES.

Each tax year counts once: when a return was amended, only the latest return for that period is used below (superseded returns stay listed, greyed, under Finances).

People paid by the organization

None of the 9 people listed on these returns reported compensation from the organization. They are listed below.

Officers and directors, no compensation reported

9 people listed on the returns with $0 (or no amount) in every compensation column: current people first. Hours are as filed on the latest return each person appears on.

People by year

Highest-paid independent contractors

Who the money went to

Grants this organization reported paying: Schedule I Part II of the Form 990, or the grants-paid list on the 990-PF. Open a year for every recipient. Recipients link to their own page when the grant names an EIN we have (990-PF grants list no EIN, so those link only on an exact, unique name and state). Grants to individuals are counted; their names are not shown.

Negative amounts are returned or refunded grants; they are listed last and left out of the totals of grants paid.

Who gave

Contributor names are not public for this form type.

Public charities filing Form 990 or 990-EZ report large donors on Schedule B, but the IRS withholds their names and addresses from public copies. Private foundations (990-PF) are different: their contributors are public.

Finances

Newest first. Each filing: its name on one row, its figures on the row beneath. Greyed filings are superseded by a later return for the same period and are left out everywhere else on this page.

Funders of this organization

35 grantors reported grants to this organization, $1,022,414 in all, tax years 2017 to 2025; the 25 largest shown (all 35). Exact: the grantor wrote this organization's EIN. Fuzzy: the grantor wrote only a name (foundations' 990-PF has no EIN field), matched to the same or a near-identical name in the same state; the name as filed is shown. From the latest return for each grantor and year, so amended returns aren't counted twice. CSV

Nearby + Similar BETA

Who funds organizations like this

Grantors that funded the 100 most similar organizations. Ranked by total given to them. Foundations (990-PF) and donor-advised fund sponsors only. Same matching as Funders above (by EIN, or by name for foundations).

The full list · all similar organizations

Where the money went

Every expense line on each return, biggest first: Form 990 Part IX (with its program, management and fundraising columns), 990-EZ Part I, or 990-PF Part I. Event marks lines the organization itself describes as events. “Events” in each summary adds those lines, conferences and meetings, and the direct costs of fundraising events. Unusual is not the same as improper. Many of these patterns have ordinary explanations. Check the filing.