FORGOTTEN DISEASES RESEARCH FOUNDATION

2025 · Form 990EZ · revenue $137K · expenses $100K · assets $157K

EIN

45-4470463

Address

604 MALARIN AVE, SANTA CLARA, CA 95050-6942

Website

WWW.FORGOTTENDISEASES.ORG

NTEE code

H99

Exempt type

501(c)(3): charitable, religious, educational, scientific or literary (corporation)

Ruling date

March 2012 (when the IRS recognized its exemption)

IRS status

Exempt (unconditional) (IRS Business Master File) IRS data ↗

Tax-deductible donations

Yes: listed in IRS Publication 78 (public charity) Pub 78 ↗

Foundation status

Public charity supported by the public (170(b)(1)(a)(vi))

Cross-check

ProPublica Nonprofit Explorer

Mission

FORGOTTON DISEASES RESEARCH FOUNDATION IS A NONPROFIT DEDICATED TO VERY RARE DISORDERS. THE GOALS ARE TO IMPROVE THE QUALITY OF LIFE OF PATIENTS WITH THESE DISORDERS AND TO IMPROVE RESEARCH PRACTICES IN THE FOLLOWING WAYS: -CREATING A SINGLE PLACE FOR DISSEMINATING INFORMATION ABOUT VERY RARE DISEASES. -HELPING PEOPLE DIAGNOSE VERY RARE DISEASES. -DISCOVERING THE MOST ROBUST SCIENTIFIC APPROACHES TO STUDYING RARE DISEASES. -DISSEMINATING INFORMATION TO FAMILIES THAT WILL HELP THEM CARE FOR SICK FAMILY MEMBERS. -EDUCATING THE PUBLIC ABOUT WHAT CAN BE LEARNED FROM THE STUDY OF RARE DISEASES. -MAKING PHYSICIANS MORE KNOWLEDGEABLE ABOUT THESE DISEASES.

Each tax year counts once: when a return was amended, only the latest return for that period is used below (superseded returns stay listed, greyed, under Finances).

People paid by the organization

2 people paid across every filing: current people first, then by total pay from this organization. Organizations counts every nonprofit each person appears on.

Officers and directors, no compensation reported

2 people listed on the returns with $0 (or no amount) in every compensation column: current people first. Hours are as filed on the latest return each person appears on.

People by year

Highest-paid independent contractors

No independent contractors reported.

Federal grants and contracts

Awards from USAspending.gov to a recipient with this organization's name and zip code. Obligations by federal fiscal year (October to September); each award links to its page on usaspending.gov.

Who gave

Contributor names are not public for this form type.

Public charities filing Form 990 or 990-EZ report large donors on Schedule B, but the IRS withholds their names and addresses from public copies. Private foundations (990-PF) are different: their contributors are public.

Finances

Newest first. Each filing: its name on one row, its figures on the row beneath. Greyed filings are superseded by a later return for the same period and are left out everywhere else on this page.

Funders of this organization

3 grantors reported grants to this organization, $554,306 in all, tax years 2012 to 2024. Exact: the grantor wrote this organization's EIN. Fuzzy: the grantor wrote only a name (foundations' 990-PF has no EIN field), matched to the same or a near-identical name in the same state; the name as filed is shown. From the latest return for each grantor and year, so amended returns aren't counted twice. CSV

Similar organizations

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Who funds organizations like this

Grantors that funded the 100 most similar organizations. Ranked by total given to them. Foundations (990-PF) and donor-advised fund sponsors only. Same matching as Funders above (by EIN, or by name for foundations).

The full list · all similar organizations

Where the money went

Every expense line on each return, biggest first: Form 990 Part IX (with its program, management and fundraising columns), 990-EZ Part I, or 990-PF Part I. Event marks lines the organization itself describes as events. “Events” in each summary adds those lines, conferences and meetings, and the direct costs of fundraising events. Unusual is not the same as improper. Many of these patterns have ordinary explanations. Check the filing.